My name is !

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Awareness Campaign about rare diseases. This campaign tries to show the disease from the patient angle in less than 90 seconds.

Magpie Concept


    • Aug 14, 2021 LATEST EPISODE
    • infrequent NEW EPISODES
    • 1m AVG DURATION
    • 5 EPISODES


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    Latest episodes from My name is !

    My Name is...Spinal Muscular Atrophy (SMA)

    Play Episode Listen Later Aug 14, 2021 1:40


    Spinal muscular atrophy (SMA) is a genetic condition that makes the muscles weaker and causes problems with movement. #SMA #Spinal muscular atrophy #Raredisease #Mynameis --- Send in a voice message: https://anchor.fm/magpie-concept/message

    My Name is ... Alström syndrome!

    Play Episode Listen Later Apr 17, 2021 1:19


    This episode aims to raise the awareness on very rare autosomal recessive genetic disorder. It is not treatable thats why prevention is the best treatment for disorders development. #Alström_syndrome #Alström #raredisease #Alstrom --- Send in a voice message: https://anchor.fm/magpie-concept/message

    My Name is .... Wilson's Disease!

    Play Episode Listen Later Mar 28, 2021 1:21


    This episode aims to raise the awareness on a rare genetic disease that results from excess copper concentration in body tissues especially, the liver. It is very dangerous if not diagnosed and treated early. #Wislons_disease #wilsons #raredisease --- Send in a voice message: https://anchor.fm/magpie-concept/message

    My Name is .... Alport Syndrome

    Play Episode Listen Later Mar 14, 2021 0:56


    This episode aims to raise the awareness on a rare genetic disease that affects the renal function in addition to hearing and vision loss over time. --- Send in a voice message: https://anchor.fm/magpie-concept/message

    My Name is.... Acromegaly !

    Play Episode Listen Later Feb 27, 2021 1:06


    It is the first episode from an awareness campaign about rare diseases called "My name is ....". The first episode focuses on Acromegaly. It is a rare disease that results from the excessive release of growth hormone from the pituitary gland. All of this is happening in less than 90 seconds. --- Send in a voice message: https://anchor.fm/magpie-concept/message

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