Being a dad to a child with a rare genetic disorder, I came to the realization years ago that there isn't much support for dads in regards to coming to terms with her diagnosis, her treatment, the life-altering effects on myself and my family. This podcast is the answer! If you're a dad with a child with a medical condition of any kind I hope you can utilize this podcast to help you come to grips, learn to cope, and overcome the daily challenges we face as dads of children with disorders.
In episode four of the DDD podcast, we take a dive into the dietary lifestyle of a child with ASA, and the poorly handled mental health of your host, Mike Wear.
In episode 3 of the DDD podcast, I take a look at the medication that Emmalyn was taking when she was first diagnosed with ASA. I discuss the mental and physical toll medications can have, and the side effects her meds have had on her. We look at the mental toll meds have on a dad, and how even something as simple as altering meds to something better, can be devastating on a fathers mental health.
In this episode of the DDD podcast, I take you through what it was like for the first year of Emmalyn's life, the hospital visits, the IVs. The emotional toll it took on me as a father. And I hope it gives you some insight into what it is like to be a dad, who has a child with a disorder.
When we first found out that Emmalyn had ASA it changed my life completely. In this episode, I go over the thoughts and feelings I had as a father, what it was like to try and come to grips with this life-altering diagnosis.
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