The show to promote public awareness about rare inherited bleeding disorders. Jesse John Francis Clark is a serial entrepreneur that was born with severe Hemophilia. Clark started HemoAware in 2018 to enhance the lives of those with inherited bleeding disorders through advocacy, education and technology.
In Episode 3 of the HemoAware Podcast, Jesse John Francis Clark talks about how Genentech will no longer give the hemophilia community access to the Hemlibra death data. Hemlibra currently has 44 fatalities and that number has grown every time Genetech publishes a new death report. Find out what Jesse John Francis Clark thinks on episode 3 of the HemoAware Podcast.
In the episode, Jesse John Francis Clark describes how his local Hemophilia Treatment Center, the Hemostasis and Thrombosis Center of Nevada (HTCNV) and Amber Federizo gave him two options: sign a contract to try to silence him or discharge him as a patient. Tune in to find out what happened.
In episode 1 of the HemoAware Podcast, Jesse John Francis Clark intimately shares his struggles living with severe Hemophilia. Jesse shares why he started HemoAware, Hemo Times and Fixx Pharmaceuticals.
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