Park Right Here-my journey with Parkinson's Disease (PD) is a podcast that I've dreamed of. I was a nurse for 20 years so I thought I knew what PD was. I didn't. PD affects everyone differently. There's more than just movement difficulty. I hope to share information and discuss motor and nonmotor symptoms. I was diagnosed -with young-onset PD in 2014 at the age of 45. I am still in stage 1. This podcast will be more than just PD. I want to inspire and educate friends, family, medical professionals, physical therapists, nurses, PCM's, pharmacists, support groups, personal trainers, home health aides, pastor/spiritual advisor, occupational therapist, neighbors, and anyone who wants to support those with PD. I want to let you know that you are not alone. I want to share my story because it is at times funny, sad, hopefully inspiring, difficult, hopeful, and life-changing. This podcast will have episodes of various topics. An important one is your diagnosis. I will share experiences, trials, and lessons that I have learned through my journey. I will discuss the importance of being your own advocate, basic information about medication, what is and how to choose your care team, what a motor disorder specialist is, how important exercise is for PD, the latest trials and clinical research, tips and tricks on getting through the day, nutrition, the good and bad about supplements and natural remedies, the importance of a support group, what to do when you don't have a support group nearby, how to find support on social media, the importance in talking about PD with others. I want to make it clear that I AM NOT a medical professional or an expert about medications, treatments, or even PD. I am a layperson just like you and I will be sharing MY experiences regarding MY journey with PD. I want you to take what helps you and discard the rest. I also want to EMPHASIZE that if you have any questions about any medication, speak to your doctor, neurologist, movement disorder specialist, or pharmacist. I want to be transparent and honest. I will not sugarcoat how difficult dealing with PD can be or hide on my bad days. What you hear and see, is what you get. I want you to know that PD affects every aspect of your life and those around you, but it shouldn't stop you from living the best life that you can. I will interview people who work with and are associated with PD. For example, a movement disorder specialist, physical and occupational therapists, the CEO of LSVT, PWR ( Parkinson's Wellness Recovery) PD exercise group, medical professionals, those involved in clinical research, those that work for nonprofit organizations like Michael J Fox foundation and Davis Phinney Foundation, psychologists, family and caregivers, those with PD, and the many inventors and entrepreneurs who are working on treatments and items to help improve our quality of life. Possibly even Micheal J Fox himself. An important part of this podcast is that every listener can be involved. It is our podcast. I want the ideas and questions that you have about PD. I want to hear what topics you would like to discuss. It's important to understand if you violate guidelines, use bad language, bully/troll, or are disruptive, you will be reported and blocked. If you threaten or I believe you are a danger to yourself or others, I will report any comments and/or posts that I deem necessary for you to get the help that you need. I am so excited to be able to share this with you and I hope and it helps you understand what PD is and how to walk through this journey with hope and joy. Thanks for listening and supporting my dream.
Donate to "Park Right Here" with Katrina...my personal journey with Young-Onset Parkinson's Disease
This episode is the official relaunch of the podcast!! This week's topic is a continuation from August 2020, titled, What is Parkinson's? Let's Start At the Very Beginning...This episode will be part 3... Symptoms of Parkinson's. I will be discussing the 3 types of symptoms...Premotor, Motor, and Non-Motor symptoms. Link to Davis Phinney's book, Every Victory Counts. Again thank you to everyone for supporting the podcast. Don't forget my email is parkrightherepodcast@gmail.com Follow me on social media on Facebook, Instagram, and Twitter @ Park Right Here Podcast.Support the show (https://paypal.me/kittylynnlpn?locale.x=en_US)
After being off air for some time, I'm bringing you a shorter episode...updating you on where I've been, what's been going on....and ideas for the future of the podcast. Let's reconnect!The official Episode 4 will debut on April 11th in honor of Parkinson Awareness Month. Support the show (https://paypal.me/kittylynnlpn?locale.x=en_US)
I want to give a shout out to Crystal Morissette. She is now my virtual assistant and editor. I definitely couldn't do this without her. I also want to give a shout out to my son John Stipe. He is the one that chose the title Park Right Here.This episode will be a continuation of episode 2 titled what is Parkinson's? Let's start at the very beginning. We will discuss whether there are causes of Parkinson's if we know or not. We will also discuss young-onset Parkinson's. The differences between younger-onset and older onset Parkinson's. Also here are some links that I discussed in the episode. PD Avengers. Please check them out on Facebook and at pdavengers.comclinicaltrial.gov and foxtrialfinder.org. Please check out these two websites if you are interested in getting involved in clinical trials and clinical studies for medications treatments surveys. Again to everyone for supporting the podcast. I still need someone to come up with an outro. Don't forget my email is parkrightherepodcast@gmail.com follow me on social media on Facebook, Instagram, and Twitter. Park Right Here podcastSupport the show (https://paypal.me/kittylynnlpn?locale.x=en_US)
Welcome back! Episode 2! This week I am going to begin to talk about the different aspects of Parkinson's. I will start off discussing the five stages. I will also talk about some of the premotor, non-motor, and motor symptoms of Parkinson's. I will be talking about how many people are affected by Parkinson's in the US and worldwide. I hope I made it entertaining by adding a couple of my stories. This is a pretty deep and not always fun topic, but I do believe it is very important 4 not just us as Parkie's, but everyone involved in the Parkinson's community to be educated on the latest statistics and information that is out there. You will hear me say this a million times. You are your own best Advocate. It is also our responsibility to be educated and know what's going on with the illness that we deal with on a daily basis. Being perfectly honest and also being a nurse for 20 years I can tell you the doctors do not know it all, nurses do not know it all, therapists do not know it all. You know your body the best and you need to be aware of the latest information that's out there. That's one of the biggest reasons I'm doing this podcast and I'm surprising myself a little bit by learning things myself in the second episode. This will be a 2-part episode. Actually episode 3 will come out within the next couple days. I hope you enjoy please communicate with me at my email parkrightherepodcast@gmail.com. I am also on all social media. Park Right Here podcast on Facebook Twitter and Instagram. Also, check out my website at parkrightherepodcast.buzzsprout.comSupport the show (https://paypal.me/kittylynnlpn?locale.x=en_US)
In the first-ever episode of the Park Right Here... My Journey With Parkinson's, Katrina discusses her early life, her journey of discovering that she has Parkinson's, the difficult path to being diagnosed, and how Parkinson's has changed her life. Katrina also discusses her goals for the podcast, such as interviews, showing the ups and downs of Parkinson's, and the upcoming YouTube Channel. Park Right Here to learn more about Parkinson's, as well as supporting and advocating for people living with Parkinson's.Support the show (https://paypal.me/kittylynnlpn?locale.x=en_US)
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