Podcasts about midcoast lyme disease support

Host/Producer: Rhonda Feiman Co-Producer: Petra Hall Studio Engineer: John Greenman Ticks, Lyme & other tick diseases: The challenges of diagnosing & treating tick-borne illness, with a discussion of resources & support offered through Midcoast Lyme Disease Support & Education Key Discussion Points: a) What are the challenges in diagnosing tick-borne illnesses? b) Is a negative result on a Lyme test, proof that you do not have a tick-borne illness? How accurate are tests for Lyme disease? What about testing for co-infections? c) How can we prevent tick bites? d) What are some of the signs and symptoms of undiagnosed & untreated tick-borne illness? e) What other illnesses besides Lyme Disease, can be transmitted by ticks, even in the same bite? f) Why might Lyme Disease and other tick-borne illnesses be diagnosed incorrectly as other disease or conditions, such as Multiple Sclerosis, Parkinson’s Disease, or even dismissed as psychological distress? g) What is a “Lyme-literate” physician? h) How does Midcoast Lyme Disease Support & Education assist those who need information and/or who have tick-borne illness? Guest: Paula Jackson Jones, president & co-founder of Midcoast Lyme Disease Support & Education (MLDSE) Other Websites of interest: Tick removal, tick testing & tick types in Maine International Lyme & Associated Diseases Society (ILADS) May 1st, 2019 Healthy Options Program with Lyme Disease expert Dr. Beatrice Szantyr, about ticks, Lyme disease and tick-borne illness, Other Healthy Options shows on ticks and tick-borne disease,

We want to welcome you to our 5th Annual Midcoast Lyme Disease Support & Education conference. When we first created MLDSE, we thought it would be a place for people to gather, to listen to others, share their own personal journeys and validate their struggles. It quickly became apparent that support has many layers beyond just listening. For us, this has been a journey of not only listening but sharing, educating and connecting, nurturing and networking, encouraging, laughing, crying and celebrating. From the trenches, we take our own personal experiences, the good and the bad, and use them to empower others. Five year later, MLDSE is busier than ever 24/7/365 and we are growing in ways that we never imagined. We are thrilled with all the partnerships and relationships that we’ve worked hard to build and for the supports and resources that we can freely offer to Maine’s Lyme community. This year’s conference is a culmination of five years of hard work and steadfast determination to bring all our resources under one roof, on one day, with free admission to all who attend. Bring your questions, find some answers, connect with resources and leave with hope. Paula & Angele Co-Founders, MLDSE

Part 1: Paula Jackson Jones & Angele Rice, co-founders of Midcoast Lyme Disease Support & Education, talk about their personal journeys with Lyme Disease & other tick co-infections, from being misdiagnosed for many years to the symptoms and treatments they went through and how all this led to them starting this non-profit organization to help others. Part 2: Weekly Words of Wisdom - Lynda talks about bravery and encourages us to pause and show gratitude to all the unsung heroes who put their lives on the line every day to ensure our safety and freedom.

In this episode you will learn: • Why you won’t want to miss the Midcoast Maine Lyme Disease Conference • How this conference is perfect for patients as well Lyme Literate Health Care providers • How the conference is designed to take care of people with Lyme including a quiet room and quality food. Paula was bit by a tick in October 2009 going undiagnosed for almost 18 months. In April 2011, Paula had Neurological Lyme Disease and numerous co-infections and began her three year journey back to health with a team of lyme literate doctors. Angele Rice was bitten as a child - after growing up with numerous complex chronic health conditions - her state of health after the birth of her first child galvinized her to look for answers for why she was so sick - she was finally diagnosed with lyme at age thirty. These women first created the Midcoast Lyme Disease Support group - and later the conference as a way to empower and educate their local community about lyme disease - and as a way to bring national expertise to their local community.

In this episode you will learn: • The Midcoast Lyme Disease Support and Educations upcoming fundraiser and concert • How Paula uses cranial-sacral massage to heal from the damage caused by Lyme • And how the work she and her organization have put in have yielded awareness for conferences fundriasers, and state legislation Paula Jackson Jones is the President and Co-founder of Midcoast Lyme Disease Support & Education, a non-profit 501c3 organization that serves the needs of Midcoast Maine’s Lyme community since 2014. The Midcoast Lyme Disease Support & Education group was created and exists to raise awareness, foster education, advocate for change and provide community support for those affected by Lyme Disease and other tick-borne associated diseases in the Midcoast Maine community.

Paula Jackson Jones is the President and Co-founder of Midcoast Lyme Disease Support & Education, a non-profit 501c3 organization that serves the needs of Midcoast Maine's Lyme community since 2014.