Podcasts about Multiple sclerosis

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Disease that damages the myelin sheaths around nerves

  • 1,629PODCASTS
  • 3,598EPISODES
  • 36mAVG DURATION
  • 2DAILY NEW EPISODES
  • Jun 30, 2022LATEST
Multiple sclerosis

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Best podcasts about Multiple sclerosis

Show all podcasts related to multiple sclerosis

Latest podcast episodes about Multiple sclerosis

Kessler Foundation Disability Rehabilitation Research and Employment
Dr. B. Sandroff on cognition, fitness and physical activity in progressive multiple sclerosis-Ep40

Kessler Foundation Disability Rehabilitation Research and Employment

Play Episode Listen Later Jun 30, 2022 4:35


Fast Takes - Episode 40 Read the transcript at https://kesslerfoundation.org/sites/default/files/2022-06/Dr.%20B.%20Sandroff%20on%20cognition%2C%20fitness%20and%20physical%20activity%20in%20progressive%20multiple%20sclerosis-Ep40-TRANSCRIPT.pdf In this episode, Brian Sandroff, PhD, senior research scientist in the Center for Neuropsychology and Neuroscience Research at Kessler Foundation, talks about his peer-reviewed article, “Cardiorespiratory fitness and free-living physical activity are not associated with cognition in persons with progressive multiple sclerosis: Baseline analyses from the CogEx study,” published on October 1, 2021, in the journal Multiple Sclerosis. Funding source: Multiple Sclerosis Society of Canada (grant no. #EGID3185) Learn more about: Dr. Brian Sandroff at  https://kesslerfoundation.org/about-us/foundation-staff/brian-m-sandroff-phd Center for Neuropsychology and Neuroscience Research - https://kesslerfoundation.org/center-neuropsychology-and-neuroscience-research The peer-reviewed article at https://journals.sagepub.com/doi/10.1177/13524585211048397 Co-authors: Robert W Motl , Maria Pia Amato, Giampaolo Brichetto ,Jeremy Chataway, Nancy D Chiaravalloti (https://kesslerfoundation.org/aboutus/Nancy%20Chiaravalloti), Gary R Cutter, Ulrik Dalgas , John DeLuca (https://kesslerfoundation.org/aboutus/John%20DeLuca), Rachel Farrell, Peter Feys, Massimo Filippi, Jennifer Freeman, Matilde Inglese, Cecilia Meza, Maria A Rocca, Amber Salter and Anthony Feinstein ===================================================== Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. Be sure to subscribe to our SoundCloud channel “KesslerFoundation” for more research updates. Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded remotely on December 15, 2021, and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Kessler Foundation Disability Rehabilitation Research and Employment
Dr. B. Sandroff on virtual reality's role in managing cognitive deficits in multiple sclerosis-Ep42

Kessler Foundation Disability Rehabilitation Research and Employment

Play Episode Listen Later Jun 30, 2022 3:00


Fast Takes - Episode 42 In this episode, Brian Sandroff, PhD, senior research scientist in the Center for Neuropsychology and Neuroscience Research at Kessler Foundation, talks about his peer-reviewed article, “Developing the Rationale for Including Virtual Reality in Cognitive Rehabilitation and Exercise Training Approaches for Managing Cognitive Dysfunction in MS,” published in April 2022, in the journal NeuroSci. He discusses how virtual reality could increase sensory input and promote multisensory integration and processing during rehabilitation for multiple sclerosis. Learn more about: 
Dr. Brian Sandroff, https://kesslerfoundation.org/about-us/foundation-staff/brian-m-sandroff-phd Center for Neuropsychology and Neuroscience Research, https://kesslerfoundation.org/center-neuropsychology-and-neuroscience-research The peer-reviewed article at www.mdpi.com/2673-4087/3/2/15 Co-authors: Carly L. A. Wender, https://kesslerfoundation.org/about-us/foundation-staff/carly-wender, John DeLuca, https://kesslerfoundation.org/aboutus/John%20DeLuca, Brian M. Sandroff ======================================================= Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. Be sure to subscribe to our SoundCloud channel “KesslerFoundation” for more research updates. 
Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded remotely on May 4, 2022, and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Lillian McDermott
Terry Wahls, MD, Multiple Sclerosis Relapse Study

Lillian McDermott

Play Episode Listen Later Jun 29, 2022 53:41


Do you have a “diagnosis” that can never be cured?  Approximately 2.3 million people worldwide are affected by Multiple Sclerosis.  For many, receiving that diagnosis is a “death” sentence. But for Terry Wahls, MD, it became her obsession. Dr. Wahls is back to share her journey as well as how to heal the different phases […] The post Terry Wahls, MD, Multiple Sclerosis Relapse Study appeared first on LillianMcDermott.com.

Myelin & Melanin
Episode 157 |Halting, Reversing, and Freezing Progress in Amber: Reflections (Part I)

Myelin & Melanin

Play Episode Listen Later Jun 29, 2022 29:52


Join us as we share our silver linings and our horrified reflections on the recent diabolical decisions of The US Supreme Court.  --   Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and musician -- each living with Multiple Sclerosis -- are your hosts this season and explore the intersections of race, culture, politics, disability and all the things.  Join us as we Raise the Temp! Connect with us. Instagram: Daana @retrosoul__ Carlos @elcaballonegrito Podcast Socials: Instagram: @myelinmelanin Twitter: @myelinmelanin Facebook: @myelinandmelanin Website: http://myelinandmelanin.com

The MSing Link
71. The Wahls Protocol & Guidelines w/ Dr. Terry Wahls

The MSing Link

Play Episode Listen Later Jun 29, 2022 33:35


Join me today for an exciting episode with guest Dr. Terry Wahls! Not only does she have an amazingly inspirational, personal journey with MS, but she has also created the extremely well known Wahls Protocol diet to help others among her many other professional accomplishments in the MS field. In this episode we chat about her journey, guidelines she uses for nutrition & exercise, some of her favorite food substitutes, and more! Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis. In 2018 she was awarded the Institute for Functional Medicine's Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life. Pick up a one-page handout for the Wahls™ Diet at https://terrywahls.com/diet/ Wahls Research https://terrywahls.com/research/ Wahls Research Lab - to learn about current clinical research studies that Dr. Wahls is conducting https://wahls.lab.uiowa.edu/ Social Media Links https://www.facebook.com/TerryWahls/ https://www.instagram.com/drterrywahls/ https://twitter.com/terrywahls https://youtube.com/c/terrywahlsmd Defying All Odds Movie - a documentary about Dr. Wahls' healing journey and research http://defyingalloddsmovie.com/ Virtual Seminar https://terrywahls.com/seminar/ Autoimmune Intervention Mastery Program (online course for consumer) https://terrywahls.com/aim/ Radical Health Upgrade https://terrywahls.com/radicalhealthupgrade/ Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: Gretchen@DoctorGretchenHawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

FUMS: Giving Multiple Sclerosis The Finger
FUMS 109 - Real Talk About MS with Jon Strum

FUMS: Giving Multiple Sclerosis The Finger

Play Episode Listen Later Jun 28, 2022 42:13


Jon Strum's wife, Jeanne, was an avid biker, hiker, and writer when she was diagnosed with Progressive MS. Almost immediately, she became so severely disabled that Jon stopped working and became Jeanne's carer and advocate. He continued in this role until Jeanne passed in February 2020. Part of Jon's advocacy was (and continues to be) hosting the popular RealTalk MS podcast. As you'll hear, Jon started the podcast while sitting on a scientific committee as a member of the International Progressive MS Alliance, to bridge the gap between patients and caregivers and the scientific community. Since its launch in 2017 and over 200 episodes later it has been downloaded more than 1,000,000 times by listeners in over 100 countries around the world.Jon's devotion to his wife is moving and unquestionable. But so is his desire and commitment to advocating for all people living with Multiple Sclerosis.Listen in to my interview with this wonderful man and find out about all the ways that you can advocate for people with MS and affect change!Topics covered in this episode include:The story of Jeanne's diagnosis, and Jon's journey into caregiving and advocacyJon and Jeanne's experiences with health insurance, the impact on their finances, and the heartbreaking decision Jon had to make for Jeanne's care Why Jon feels that people with more progressive forms of MS can feel forgotten by the scientific community, and why he started the RealTalk MS PodcastJon's partnership with the National MS SocietyThings that are on the legislative horizon for people in the US with MS, and how you can get involved and put pressure on your representatives!Full show notes and resources at https://fumsnow.com/fums109/ See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

COVID NoiseFilter - Doctors Explain the Latest on COVID-19
Ep. 572 - Resurgence of Viruses, and Multiple Sclerosis

COVID NoiseFilter - Doctors Explain the Latest on COVID-19

Play Episode Listen Later Jun 28, 2022 9:55


Today, in episode 572, our expert Infectious Disease Doctor and Community Health Specialist discuss what you need to know about Public Health. We talk about how viruses that died down during the pandemic have seen a resurgence, as well as discussing multiple sclerosis. As always, join us for all the Public Health information you need, explained clearly by our health experts. Website: NoiseFilter - Complex health topics explained simply (noisefiltershow.com) Animations: NoiseFilter - YouTube Instagram: NoiseFilter (@noisefiltershow) • Instagram photos and videos Facebook: NoiseFilter Show | Facebook TikTok: https://www.tiktok.com/@noisefiltershow --- Send in a voice message: https://anchor.fm/noisefilter/message

RealTalk MS
Episode 252: The Journey from MS Diagnosis to Podcaster to Patients Getting Paid with Kathy Reagan Young

RealTalk MS

Play Episode Listen Later Jun 27, 2022 32:44


When I began thinking about launching RealTalk MS, one of the first things I did was listen to other podcasts for the MS community. Five years ago, there weren't nearly as many podcasts focused on MS as there are today, but one of the podcasts I listened to was FUMS. And after listening to that podcast, I remember feeling inspired about moving forward with my plans for launching this podcast. Joining me to talk about her journey from being diagnosed with MS to launching her podcast and learning how patients get paid is the voice and energy behind the FUMS podcast, Kathy Reagan Young. We're also talking about a new venture from France, aimed at myelin repair. We'll share the details of a treatment for urinary incontinence for people living with MS that will soon be available in European Union countries. And we'll tell you about the first robotic exoskeleton that's received FDA clearance for use by people with MS. (And we'll tell you why that's going to make a real difference for some people living with progressive MS!) We have a lot to talk about! Are you ready for RealTalk MS??! 250 Episodes -- 1.500,000 Downloads and counting!   :22 FIND Therapeutics and SATT Connectus collaborate on myelin repair 2:14 Dysport receives favorable opinion from the EU  3:28 FDA grants clearance for robotic exoskeleton use by people with MS  6:09 Kathy Reagan Young's journey from diagnosis to giving MS the finger and learning how patients get paid  8:45 Share this episode  31:12 Download the RealTalk MS app for your iOS or Android device   31:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/252 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: Efficacy and Safety of AbobotulinumtoxinA in Patients with Neurogenic Detrusor Overactivity Incontinence Performing Regular Clean Intermittent Catheterization: Pooled Results of Two Phase 3 Randomized Studies (CONTENT1 and CONTENT2) https://sciencedirect.com/science/article/pii/S03022838220116803 RealTalk MS #198: Dr. Brian Sandroff Shares the Results of Kessler Foundation's Robotic Exoskeleton-Assisted Exercise Pilot Study https://realtalkms.com/198 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 252 Guest: Kathy Reagan Young Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Your Lot and Parcel
The Horse Therapy Ranch May Be Your Answer!

Your Lot and Parcel

Play Episode Listen Later Jun 27, 2022 36:42


 Heart of the Horse Therapy Ranch is committed to promoting therapeutic riding as an efficacious treatment modality for those with a disability by developing community awareness of equine assisted/ facilitated therapy.Though not everyone with disabilities can safely participate in therapeutic riding activities, HHTR serves a broad segment of the disabled community & Veterans from the Fresno VA Hospital here in the central valley.Some of the conditions for which therapeutic riding has been proved an effective treatment are cerebral palsy, muscular dystrophy, multiple sclerosis, traumatic brain injury, sensory impairment (i.e., loss of hearing or sight), Down syndrome, Autism, missing limbs, PTSD, and many other disabilities.www.HeartOfTheHorse.orghttp://www.yourlotandparcel.org

Roadie Free Radio
295: RFR Rewind: Laura Davis-Chanin | I Had To Write It

Roadie Free Radio

Play Episode Listen Later Jun 23, 2022 8:41


Laura Davis-Chanin is a founding member of the band the Student Teachers, and the author of the book about her experiences in the NY punk scene, The Girl in the Back: A Female Drummer's Life with Bowie, Blondie, and the '70s Rock Scene. After being diagnosed with MS at the age of nineteen, she left Rock ‘n' Roll and returned to school and eventually became a lawyer. Her love of writing was always constant, and since leaving law behind and finishing The Girl in the Back, she is working on the autobiography of Michael Alago, a unique and remarkable person who brought Metallica to the world, as well as a novel based on true events about her mother, entitled "A Finished Noise.” Laura is also the co-host of the podcast on Philosophy and Fiction called "Phi Fic" on The Partially Examined podcast network. The Girl in the Back was named one of the Top 10 Music Books of 2018 by BILLBOARD magazine. Subscribe to the podcast: https://podcasts.apple.com/us/podcast/roadie-free-radio/id1115332289 The Following links are affiliate links! Each sale helps our channel out at no additional cost to you. My VLOG & Streaming camera: https://amzn.to/3nEuIh2 The VLOG Lens: https://amzn.to/2y4Zrjd The ALL PURPOSE lens: http://amzn.to/2vPGayB My OTHER lens: https://amzn.to/38OVlfb My MAIN PODCAST mic: https://roswellproaudio.com/products/mini-k87 My OTHER podcast mic: https://amzn.to/3nK9oGQ Create ‘n Cast Bundle from SHURE & Focusrite: https://amzn.to/2LTUTTv The camera CAGE I use: http://amzn.to/2fWUwI2 My DESKTOP mixer: https://amzn.to/39yiSzZ My AUDIO interface: https://amzn.to/2LRF53W BEST FIELD recorder: http://amzn.to/2wfzCYI My FAVORITE mic stands: http://amzn.to/2xnBn6d Roadie Free Radio Merch: http://www.roadiefreeradio.com/merch/ RFR Website: http://www.roadiefreeradio.com

Live Foreverish
Recap: Multiple Sclerosis - Inside the Latest Research – Guest Terry Wahls, MD

Live Foreverish

Play Episode Listen Later Jun 22, 2022 2:51


Nutrition and Autoimmunity 2.8 million people are estimated to live with MS worldwide. Are you living with MS and want to regain your life? On this episode, Drs. Mike and Crystal discuss the latest research on MS and the benefits of a therapeutic diet and lifestyle intervention with Dr. Terry Wahls, MD, a pioneer in the field of MS research.  

Under the Cowl of MS
Wellness Wednesday Exercise Cardio Brown Fat Mobility Devices

Under the Cowl of MS

Play Episode Listen Later Jun 22, 2022 57:12


Episode 430 Wellness Wednesday episode in which we talk about Multiple Sclerosis stuff, Exercise, Cardio, Brown Fat, Mobility Devices and more for Multiple Sclerosis Health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

OT & Chill
Episode 57 – Living With Multiple Sclerosis

OT & Chill

Play Episode Listen Later Jun 22, 2022 55:11


Episode 57 – Living With Multiple Sclerosis In this episode, I speak with Alex Deans, a young man living with Multiple Sclerosis. He shares his lived experience of his condition, some of the challenges he faces and how he is using his experience to help others through personal training. You can find out more about Multiple Sclerosis by visiting www.mssociety.org.uk. You can follow Alex on social media (Instagram: wok.works) If you have any feedback on this episode or you would like to be a guest on a future episode, please drop an email to “otandchill@gmail.com” or DM via Twitter (@OT_Chill) or Instagram (otandchill). Please rate and review this podcast to help it get noticed by others. Also share it with colleagues and friends. --- Send in a voice message: https://anchor.fm/otandchill/message

Autoimmune Besties Podcast
S3 Ep. 6: Autoimmune Disease and Pregnancy

Autoimmune Besties Podcast

Play Episode Listen Later Jun 22, 2022 40:21


Autoimmune Disease and pregnancy  Does one affect the other? Does your diagnosis impact your ability to get pregnant and sustain a healthy pregnancy? Is it possible to follow the Wahls Protocol or AIP during pregnancy? What about a post partpartum flare… are you at risk?  Hi I'm Alene and today, I'm opening up about my fertility journey and pregnancy at 42 years old living with Multiple Sclerosis.  It has been a long journey with a lot of doubts, fears, uncertainty and endless questions. Because let's face it, the road to motherhood is not always easy when you have “perfect health” let alone living with a chronic illness. That's why Shanna and I are opening up about our journeys with motherhood.  This week I'm answering all your questions about fertility and pregnancy, as I'm a new momma living with MS.  And next week Shanna will be back to continue the conversation on motherhood and autoimmune disease as she interviews her children to get their perspectives. As always we share our stories, not to suggest that we're doing it the “right way” We share our stories because we know first hand how lonely this road with autoimmune disease can be… and how uncertain it can be.  And we want to open the conversation up and simply share our experience in hopes that it will help to bring comfort and perhaps some clarity on your journey.  Like you, I had many questions swirling around in my head about my dream to get pregnant and be an active mom.  And since sharing about this journey, you've been asking me these same questions about yourself.  So that's what I'm answering for you today.  This session is for you whether you are... Newly diagnosed with an autoimmune disease and wondering what it means for your future plans of becoming a mother Actively trying to get pregnant, or Currently pregnant and wondering what's ahead for you and baby. Whichever stage you're at, I want to welcome you to this space where we can begin to answer the many questions that are likely running across your mind.

Let It In with Guy Lawrence
Secrets Of Aboriginal Healing | Robbie Holz

Let It In with Guy Lawrence

Play Episode Listen Later Jun 21, 2022 56:17


#221 In 1983, award-winning physicist Gary Holz was diagnosed with chronic progressive multiple sclerosis. By 1988, he was a quadriplegic. Then, in 1994, his doctors told him he had two years to live. Desperate and depressed, he followed a synchronistic suggestion and went to Australia to live with a remote Aboriginal tribe. Arriving in a wheelchair, alone, with almost no feeling left from the neck down, Holz embarked on a remarkable healing transformation of body, mind, and spirit and discovered his own gift for healing others.  In this episode, I welcome Robbie Holz, an internationally respected healer, medium, frequent media guest and an award winning co-author who's books have been read in 43 countries. Robbie was married to Gary Holz until his passing in 2007. She will describe how her late husband sought his own healing from Multiple Sclerosis among remote Aboriginal people in Australia.  She will also tell us how she got her own healing from Hepatitis C, Chronic Fatigue Syndrome and Fibromyalgia by learning to shift the emotions of guilt, shame and self-hatred, and instead to connect to the earth and the spiritual world to transcend ego and find healing. It's going to be an incredible journey of discovery towards self-healing, so don't miss out. About Robbie: Robbie Holz is an internationally respected healer and medium, frequent media guest and an author of the award-winning books read in 43 countries: "Secrets of Aboriginal Healing" and "Aboriginal Secrets of Awakening." Robbie's life was drastically altered in 1985. After a difficult 36-hour delivery, while giving birth to her child, Robbie was given a blood transfusion to "perk her up faster".  Unfortunately the transfusion was tainted with Hepatitis C, a disease often referred to as the silent killer. Like a Trojan horse, the virus hid in her body--until it confidently and openly declared war seven years later. Robbie was in for the fight, and spiritual awakening, of her life. Due to her reaction to the experimental Hepatitis treatment, Robbie developed fibromyalgia, chronic fatigue syndrome, temporary brain damage, and became bedridden for 7 months. Since Western medicine was no longer able to help her, Robbie set out to find alternative ways to survive and recover. She ultimately healed herself of Hepatitis C, fibromyalgia, chronic fatigue syndrome and treatment-induced temporary brain damage, described in her award-winning memoir Aboriginal Secrets of Awakening. Her latest book is "Angels in Waiting: How to Reach Out to Your Guardian Angels and Spirit Guides." The companion guidebook is "Vibrant Living: Braving the Pandemic with Help from Your Guardian Angel." Her website is www.holzwellness.com While on her quest for wellness, Robbie met Dr. Gary Holz, an award-winning physicist, Psycho-Neuro-Immunologist and alternative healer. Gary taught her the Aboriginal healing techniques he learned from his encounter with remote Outback Australian Aboriginal tribespeople, chronicled in the award-winning memoir Secrets of Aboriginal Healing. The two eventually married. Like her husband, Robbie has had first-hand experiences with Outback Aboriginal Australians. She participated in Aboriginal healing ceremonies in the Outback. She joined Gary in teaching the over 60,000-year-old Aboriginal healing system, revealed at the tribe's request. Started in 1995, their healing practice centered on Aboriginal healing principles, quantum physics and Psycho-Neuro-Immunology -- using the mind to heal the body. Working as a husband and wife team until his passing in 2007, Robbie helped many people successfully restore their health from such challenges as juvenile arthritis, cancer and sports injuries. Robbie's Website: holzwellness.com Key points with time stamp: Secrets Of Aboriginal Healing (00:00) How the world is resonating with the Secrets of Aboriginal Healing (00:27) Why your emotions could be making you sick (05:24) The truth according to your body versus your mind (14:25) Gary Holz's 2 weeks of amazing healing with the Australian Aboriginal tribespeople (18:52) Meeting Gary Holz while on her own healing journey and how it impacted her life (23:07) Helping people wake up to how to heal themselves (27:02) Forced to change her ways by two near death experiences (34:15) Creating powerful thunderstorms through channeling a collective energy (38:24) Letting go of the beliefs and emotions that hold you back especially in these difficult times (41:59) Connecting to your guardian angel and tapping into the help that's available to you (46:10) Taking your power back and recognizing you have tremendous healing ability (50:10) Mentioned in this episode: Secrets of Aboriginal Healing By Robbie Holz Aboriginal Secrets of Awakening Angels in Waiting About me: My Instagram: www.instagram.com/guyhlawrence/?hl=en My website: www.guylawrence.com.au www.liveinflow.co

SAGE Neuroscience and Neurology
JCN: Medications for Treating Multiple Sclerosis in the Pediatric Population

SAGE Neuroscience and Neurology

Play Episode Listen Later Jun 21, 2022 24:33


Dr. Christy talks with Grace Gombolay, Pediatric Neuroimmunologist at Children's Healthcare of Atlanta and Assistant Professor at Emory University School of Medicine. @GraceGombolayMD JCN: Post-COVID Neurological Disorders and Autoimmune Encephalitis JCN: Neuroinflammation

The Exam Room by the Physicians Committee
Reversing Multiple Sclerosis: A Doctor's Victory Over Disease

The Exam Room by the Physicians Committee

Play Episode Listen Later Jun 21, 2022 41:39


In 1995, Dr. Saray Stancic was diagnosed with multiple sclerosis. Within a matter of years she was already reliant on a cane to walk and doctors told her that eventually she would be confined to a wheelchair. Frustrated by her deteriorating health and lack of options, she began doing research on her own. What she discovered was so much more than she could ever have hoped for.   By changing her diet and reintroducing exercise, her health returned in dramatic fashion. Today, she no longer needs a cane and is walking freely without assistance. She no longer requires medication and is looking forward a future without a wheelchair!   On this episode of The Exam Room™, she joins “The Weight Loss Champion” Chuck Carroll to share what she learned and how it revolutionized her health! Dr. Stancic also reveals how the same diet and lifestyle changes that she made could eliminate up to 80% of all chronic disease cases, including heart disease, diabetes, and cancer!   — — — ICNM https://www.pcrm.org/icnm — — — Dr. Saray Stancic Instagram: https://www.instagram.com/drstancic Website: https://drstancic.com Code Blue: https://geni.us/codeblue What's Missing In Medicine: https://amzn.to/3aYXJU8 — — — Chuck Carroll Instagram: https://www.instagram.com/ChuckCarrollWLC Twitter: https://www.twitter.com/ChuckCarrollWLC Facebook: http://wghtloss.cc/ChuckFacebook — — — Barnard Medical Center Appointments https://bit.ly/BMCtelemed 202-527-7500 — — — Physicians Committee Instagram: https://www.instagram.com/physicianscommittee Facebook: https://www.facebook.com/PCRM.org Twitter: https://www.twitter.com/pcrm — — — 21-Day Vegan Kickstart App iOS: https://bit.ly/VegKStrt-iOS Android: https://bit.ly/VegKStrtAndrd Web: https://www.pcrm.org/kickstart — — — Share the Show Please subscribe and give the show a 5-star rating on Apple Podcasts, Spotify, or many other podcast providers. Don't forget to share it with a friend for inspiration!

Stanford Medcast
Episode 43: Hot Topics Mini-Series: Stem Cell Therapy in Multiple Sclerosis

Stanford Medcast

Play Episode Listen Later Jun 21, 2022 30:15


Today's episode includes a discussion with Dr. Jeffrey Dunn who serves as the Lily Sarafan Director of Neuroimmunology, Clinical Professor and Chief of Neuroimmunology within the Department of Neurology & Neurological Sciences at Stanford University. The discussion includes an overview of the different types of stem cells, as it relates to Multiple Sclerosis (MS), some of the ways researchers are considering using stem cell therapy to treat MS, and the limitations of disease modifying treatments that stem cell therapy could help address. Advice will also be provided to clinicians whose patients are asking about stem cell therapy and when it will be available to them. This session focuses on the knowledge gaps around the risks and benefits of stem cell therapy and the ongoing research taking place to bring this therapeutic option from bench to bedside. Read Transcript CME Information: https://stanford.cloud-cme.com/medcastepisode43 Claim CE: https://stanford.cloud-cme.com/Form.aspx?FormID=1220 This CME Activity is supported by an educational grant from Novartis Pharmaceuticals Corporation. 

Champion's Mojo
Fastest 50-Year-Old Woman Ever, Erika Braun, Episode 158, 6-21-22

Champion's Mojo

Play Episode Listen Later Jun 21, 2022 40:02


There's never been a faster 50-year-old woman swimmer than Erika Braun. Learn her secrets to being so fast and much more.  In today's show, we speak with Erika, who holds 18 FINA Masters Swimming world records and swims for the North Carolina Masters . We check in with Erika on her 10 year anniversary of the amazing feat of making USA Olympic Trial standards as a 40 year old. This tough champion has continued her world bests for the last decade. She balances a full time job with training. Recovered one year ago from back surgery. And gets inspiration from her husband, Eric, who has a Multiple Sclerosis diagnosis, is her biggest supporter and cross-training partner. Although Erika left the sport for many years due to burnout from the pressures of competitive swimming, she re-entered the sport as an older athlete, but this time on her terms. Erika feels her openness to learning and improving, mental preparation, and the supportive role of her swimming community, have been key to her success. In this chat, we learn about Erika's swimming background, her use of visualization, the goals that she has set for herself, what it is like competing as an older athlete, the ways Erika prepares for races, who the inspirations are that keep her motivated, her ideal daily-routine, and so much more. Tune in to hear from a dedicated champion who is making big waves in the pool: Erika Braun!Key Points From This Episode:Introduction and a brief rundown of Erika's swimming background.Erika reflects on the last 10-years in her swimming journey.What are the goals that she has for herself as an older competitive swimmer.How long she has been training with her teammates and the supportive role they play.The differences between competing at age 40 compared to age 50.We find out Erika's ideal training schedule and what she does differently.Erika's mental approach to achieving the goals she has for herself.Ways in which Erika uses visualization to prepare for a race or competition.Other routines and methods that help Erika be successful and maintain a balanced life.Who the people are that inspire her to be successful and reach her goals.We learn what her recent world record was in the 100-meter sprint.The role that swimming plays in her life and how she keeps motivated.The ways in which Erika forms her goals and measures her success.Some advice that Erika has for listeners to become faster swimmers.Erika's message that she has for listeners who want to swim competitively.We close the interview with our famous sprinter-round of fun questions for Erika.Finally, Kelly and Maria give their own Takeaways from the interview. Tweetables:“If you do get inspired by competing, just having that goal to work towards is really key.” — @ErikaSwims [0:05:18]“It's my competitive outlet because I really do enjoy competing. It's my social outlet but it's also my stress outlet.” — @ErikaSwims [0:12:18]“There is no limit on what you can do as an older athlete, as an adult. I think we swim smarter.” — @ErikaSwims [0:29:19]“Even though a lot of those meets may not be successful in your mind, it is a part of the process, so that you can get to those times where you do feel great. ” — Erika BraunSupport the show

RealTalk MS
Episode 251: MS in the LGBTQ+ Community with Dr. William Conte, Payshunz Nagashima, and Andreina Barnola

RealTalk MS

Play Episode Listen Later Jun 20, 2022 27:43


Health disparities, systemic inequities, and discrimination often stand in the way of gaining access to MS care for members of the LGBTQ+ community. As we explore some of the obstacles faced by members of the LGBTQ+ community in accessing healthcare, we'll gain the clinician's perspective in our conversation with MS specialist, Dr. William Conte. We'll hear about the experiences of a queer trans person living with MS when we talk with Payshunz Nagashima. And we'll learn about the National MS Society's efforts to broaden access to MS care for members of underserved communities when we speak with the MS Society's Director of Health Equity Initiatives, Andreina Barnola. We have a lot to talk about! Are you ready for RealTalk MS??! June is Pride Month   :22 Dr. William Conte discusses obstacles to MS care faced by members of the LGBTQ+ community  1:12 Payshunz Nagashima shares their experience as a queer transgender person living with MS  10:30 Andreina Barnola discusses the role of the National MS Society in improving access to MS care for members of underserved communities  20:20 Share this episode  26:09 Download the RealTalk MS app for your iOS or Android device   26:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/251 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 251 Guests: Dr. William Conte, Payshunz Nagashima, and Andreina Barnola Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Live Foreverish
Multiple Sclerosis - Inside the Latest Research – Guest Terry Wahls, MD

Live Foreverish

Play Episode Listen Later Jun 20, 2022 21:39


Nutrition and Autoimmunity 2.8 million people are estimated to live with MS worldwide. Are you living with MS and want to regain your life? On this episode, Drs. Mike and Crystal discuss the latest research on MS and the benefits of a therapeutic diet and lifestyle intervention with Dr. Terry Wahls, MD, a pioneer in the field of MS research.

Health Coach Conversations
EP194: Current Clinical Research at Wahls Research Lab

Health Coach Conversations

Play Episode Listen Later Jun 20, 2022 34:02


More than ever it's important to understand how diet and behavior impact your health. Dr. Terry Wahls shares her own experience with multiple sclerosis, the treatment path that worked for her and multiple case study patients, and insight into her clinical research changing how MS is both studied and treated.     In this episode, Cathy and Dr. Terry discuss:  What caused Dr. Terry to fundamentally change how she thinks about disease and health  Details about Dr. Terry's clinical research and safety feasibility study  Understanding the results of a modified Paleo diet in people with relapsing MS Dr. Terry's current drug regimen and how diet studies differ from drug studies  Information about the Wahls Behavior Change Model Transitioning from crazy eccentric to beautiful visionary in the studying of MS How Dr. Terry's approach differs from conventional physicians and some functional medicine physicians Why Dr. Terry decided to include the whole family in the treatment of MS   How to be treated with Dr. Terry and details about the Wahls Protocol Training          Memorable Quotes: “We have 15 steps that we teach clinicians…we've been incredibly effective at getting our patients to make and sustain remarkable changes in their behaviors and have the family as a unit experience these remarkable transformations done as a family.” “The conventional doctors don't know much about diet, meditation, exercise, behavior change, and they have on average about 5 minutes, maybe 7 minutes with the patient—at most, 15. So it's hard for them to get into how patients can change their diet and behavior.”   “If you're treating addictions, it's a family intervention. What we eat is a family experience, how we conduct our life is a family experience. And so if we make those changes together as a family, it's very easy. If I make it as an individual, isolated from my family, it will be a struggle forever.”     Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis. In 2018 she was awarded the Institute for Functional Medicine's Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life. Pick up a one-page handout for the Wahls™ Diet at https://terrywahls.com/diet/     Mentioned In This Episode: The Wahls Protocol® Health Practitioner Certification - https://terrywahls.com/certification/   The Revised & Expanded Edition: The Wahls Protocol® How I Beat Progressive MS Using Paleo Principles and Functional Medicine -  https://terrywahls.com/the-wahls-protocol/     Links to resources: Health Coach Group Website https://www.thehealthcoachgroup.com/

Everyday Buddhism: Making Everyday Better
Everyday Buddhism 72 - Walking on Pins and Needles with Arlene Faulk

Everyday Buddhism: Making Everyday Better

Play Episode Listen Later Jun 16, 2022 72:11


Join me for a conversation with Arlene Faulk, as we talk about the ups and downs of living with the symptoms, diagnosis, and eventual healing of Multiple Sclerosis. Arlene went from a career as business executive to a calling as a Tai Chi teacher.  ​Arlene captured her dramatic personal story in a memoir, Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis. Faulk recounts how she regained mobility, embraced the power of Tai Chi, and took back control of her life. Her inspiring story demonstrates how a chronic and debilitating health condition lacks the power to control our lives and stop us from moving in the direction of possibility.   Buy the book: "Walking on Pins and Needles" Learn more about Arlene by visiting her website: https://arlenefaulk.com/about/   Check out her YouTube: https://www.youtube.com/user/faulktaichi

Under the Cowl of MS
Multiple Sclerosis Complications attack Zombies Vampires and Santa Claus

Under the Cowl of MS

Play Episode Listen Later Jun 16, 2022 60:46


Episode 424 Comic Book talk about Die!Namite Never Dies! #4, Little Monsters #4, Loaded Bible Blood of My Blood #4, Meteor Mite #1, MFKZ #6, Naughty List #2, Scary Christmas #2, Who's Who?In the Aw Yeah Comics! Universe #1, Willy's Wonderland #2 & 3. Multiple Sclerosis Health Talk about Sourdough Bread, MS Complications and other stuff with health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

The Smoking Hot Confessions BBQ Podcast
World Steak Champion | Sunny Moody | Mood Swing BBQ

The Smoking Hot Confessions BBQ Podcast

Play Episode Listen Later Jun 16, 2022 59:07


There are few people that you will meet in your life that deserve the moniker, ‘a force of nature'. However Sunny Moody is exactly that. Sunny was awarded, and is the current reigning World Steak Champion, taking out the annual Steak Cookoff Association Championships in 2021. Now winning that prestigious BBQ competition is no mean feat, but there's more to Sunny than ‘just' being a legend on a grill. She's a mother to two teenagers, volunteers taking groups of even more teenagers out into the bush and teaching them how to cook, is a certified nutritionist and physical trainer, and if that wasn't enough is also a Multiple Sclerosis sufferer. Though in truth, it looks more like she's kicking MS's butt rather than suffering from it.  In this full episode of the Smoking Hot Confessions BBQ Podcast, Sunny and I get into: The charity work that she does with teenagers (1:12) Winning the World Steak Championships (10:31) Her special role at the recent NBBQA event (23:16) An insight into how the Georgia BBQ Association (36:19) Her background in forensic science and how that helps her in BBQ (39:56) Sunny's best tips for delicious chicken wings on the BBQ (46:20) Barbe Con is coming! We're bringing the best BBQ Pitmasters and BBQ Business Owners from around the country live into your living room. We're going to help you save time, save money and become the envy of friends and family. PreRegistrations are open now. So to be the first to know when tickets become available, Early Bird deals, specials, presenter announcements and more, head on over to the website below and register your interest. See you soon! https://smokinghotconfessions.com/barbeconprereg/

Under the Cowl of MS
Wellness Wednesday Fitness Apps Comparing Milks Cough Covid Cooking

Under the Cowl of MS

Play Episode Listen Later Jun 15, 2022 57:09


Episode 423 Wellness Wednesday episode in which we talk about Multiple Sclerosis stuff, Fitness Apps and Trends, Comparing Milks, Natural Cough Remedies, Healthy Cooking Tips and more for Multiple Sclerosis Health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

Living Well with Multiple Sclerosis
Laughter is the Best Medicine | S4E53

Living Well with Multiple Sclerosis

Play Episode Listen Later Jun 15, 2022 28:39


Bio:   Shari Short is a patient advocate, a professional in healthcare communications and naturally, a standup comedian. As Senior Director of Insights and Strategy at Bionical Solutions, she has over 20 years of experience in patient education from behavior change to clinical trial recruitment. A developmental psychologist by training, Shari has held positions with the National Cancer Institute, Centers for Disease Control, Virginia Department of Health, Fox Chase Cancer Center, and various healthcare marketing firms. Shari received her M.A. in developmental psychology from Columbia University Teachers College.    Shari has been living with Multiple Sclerosis for 14 years. As a Patient Advocate, Shari has shared insights from living with Multiple Sclerosis to the New Jersey statewide advocacy committee of the National MS Society as well as written for their national magazine, Momentum. She incorporated her experience with MS into a sold-out one-woman show called “It's My Mother's MS, I just Have It” and a satire letter series from “The Crazy Cane Lady”. Shari has been featured on multiple podcasts. She has been performing standup comedy since her teen years (read: the 80s) and has opened for performers such as Shawn Colvin and Sandra Bernhard.   Questions:   Welcome to the program, Shari, and thanks so much for joining us on Living Well with MS. You have a very eclectic background, from standup comedy to developmental psychology. Can you tell us a bit about how that all ties together and has helped you forge your current path focused on behavior change? We know humor is important to you, an essential part of your personal and even professional identity. And we'll dig into that in a moment. But first, I'd like to understand your experience with MS. Can you give us a bit of an intro to that, anything you feel comfortable sharing? Was there a point when you developed a philosophy or even a methodology for using humor to cope with some of the challenges of MS? Can you tell our audience about that journey? You've produced a lot of humorous output about MS. Some notable things to mention (incidentally links to many of these can be found in the show notes, so I encourage everyone to have a look): a one woman show called “On My Nerves”; a satirical piece for Momentum, the National MS Society magazine; presentations at the University of Pennsylvania; various podcast appearances, including this one. Do any of these stand out for you, and if so, how? I understand that humor has personally helped you deal with scary situations, reframe your current physical abilities, and not take yourself too seriously. How transferable are these “benefits” to the broader MS community, and how would you advise people who don't have the same organic relationship with humor that you do tap into them? How do you overcome the discomfort some people may feel when you apply a humorous or jokey spin to a “serious” topic such as MS? There's a principle I understand you have called “laughing on purpose”. Can you tell us a little more about that? So I'm getting the sense that humor can be many things as applied to MS: a coping tool, a teaching tool, or even a defense mechanism. What's your best advice for how Joe Q. Public with MS can harness humor to its maximum positive advantage? Thanks so much for being our guest on Living Well with MS, Shari. We are thrilled to learn about the amazing work you're doing to help people with MS ease their burdens and get the most out of life using humor. And I encourage everyone to learn more about you and your work by checking out the links and more in our show notes for this episode. Thanks again, Shari.   Links:   Connect with Shari on LinkedIn Read Shari's humorous piece in Momentum Magazine, the official magazine of the National MS Society Check out Shari's satirical take on pharma marketing Here's a collection of Shari's videos connected to the 2021 Tody Awards Check out selections from Shari's 2011 one-woman show, "It's My Mother's MS, I Just Have It" – clip 1 and clip 2   Coming up next:   Starting June 27, please join us for the 33rd installment of our Living Well with MS Coffee Break series. On this journey into the lives of our global OMS community, we have a special surprise for you – a mystery guest. Their location won't be disclosed until the episode because you'd likely guess who it is it were. But we assure you that you'll relish some of the behind-the-scenes details of this person's life and OMS journey.   Don't miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. For your convenience, a full episode transcript is also available on all platforms within 72 hours of each episode's premiere. If you like our program, don't be shy and leave a review on Apple Podcasts or wherever you tune into the show. And feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.   S4E53 Transcript Laughter is the Best Medicine   Geoff Allix (00:00): Welcome to Living Well with MS, the podcast from Overcoming MS, the world's leading multiple sclerosis healthy lifestyle charity, celebrating its 10th year of serving the MS community. I'm your host, Geoff Allix. The goal of our organization and this podcast is to inform, support, and empower people with MS to lead full and happy lives. We're excited you could join us for this new episode.   Make sure to check out this episode's show notes for more information and useful links. You can find these on our website at www.overcomingms.org/podcast or on whichever podcast platform you use to tune into our program. If you enjoy the show, please spread the word about us on your social media channels or leave a review wherever you tune into our podcast. Have questions or ideas to share? Email us at podcast@overcomingms.org or you can reach out to me directly on Twitter, @GeoffAllix. We'd love to hear from you. Finally, don't forget to subscribe to Living Well with MS on your favorite podcast platform so you never miss an episode. And now, let's meet our guest for this episode.   Welcome to the Living Well with MS podcast. This episode is Laughter is the Best Medicine, with guest, Shari Short. Shari is a patient advocate, a professional in healthcare communications, and naturally, a stand-up comedian. As senior director of insights and strategy at Bionical Solutions, she has over 20 years of experience in patient education, from behavior change to clinical trial recruitment. A developmental psychologist by training, Shari has held positions with the National Cancer Institute, Centers for Disease Control, Virginia Department of Health, Fox Chase Cancer Center, and various healthcare marketing firms. Shari received her MA in Developmental Psychology from Columbia University Teacher's College.   Shari has been living with multiple sclerosis for 14 years. As a patient advocate, Shari has shared insights from living with multiple sclerosis to the New Jersey Statewide Advocacy Committee of the National MS Society, as well as written for their national magazine, Momentum. She incorporated her experience with MS into a sold-out one-woman show called, It's My Mother's MS, I Just Have It, and a satire letter series from The Crazy Cane Lady. Shari has been featured on multiple podcasts. She had been performing stand-up comedy since her teen years and has opened for performers such as Shawn Colvin and Sandra Bernhard. Welcome to the program, Shari, and thanks so much for joining us on Living Well with MS.   Shari Short (02:34): Thank you for having me.   Geoff Allix (02:37): You have a very eclectic background, from stand-up comedy to developmental psychology. Can you tell us a bit about how that all ties together and has helped you forward your current path focused on behavior change?   Shari Short (02:51): Sure. I mean, doesn't it sound like such a natural path, from stand-up comedy to developmental psychology. It's like a board game, really, it's like a party game. I basically started out really wanting to be in the arts and especially stand-up, I preferred stand-up to acting. I sing, I act, whatever, but stand-up was my favorite. And I for some reason had the guts to start it at 14 years of age when I had braces and was in high school and was able to go into the comedy clubs and just watch, watch and learn. And the older comics there just, they adopted me and took really good care of me. I read John Belushi's book, a book about John Belushi by Woodward, at a young age, and it scared me to have to depend on my sense of humor for finances.   So I said, "Well, I want to have like a solid degree and a solid job and do stand-up." And of course, when you're a teenager, you think that all works. I was eager to at least get academic credentials behind me, so I went to film school, went to NYU, and there I minored in psychology, spent a lot of time during the summers, working with young kids and parents in theater camps, and just absolutely fell in love with... Excuse me... The way that our lives changed when we become parents. And it wasn't me, I was watching people become parents, and I was helping parents and I wasn't even a parent yet. So when I chose developmental psychology for my graduate work, I felt like that's what I'm going to go into. I want to create resources for parents.   I became concerned with... like we talked about Microsoft earlier, I was like, "Are there books for parents on how to use the computer?" I interned with Sesame Street. I was very focused on being creative within this academic psych setting. But once you go to grad school, nothing's really funny, so I stopped doing comedy. I had opened for Sandra Bernhard, I'd opened for Shawn Colvin, I'd had a wonderful time, but you got to commit. If you want to do stand-up, you have to commit and you have to want it, you have to want that life and I preferred giving lectures.   I preferred making the audience laugh that they had to be there, I had to grade them or they had to be graded, they had to show up. And I tipped my hat off to everybody I know that's successful now, that just put in those hours and put in that amount of travel to live the life of a stand-up comic, especially in the 90s, and the early 2000s, because that was way before MS for me, but something I knew I didn't have the stamina for. And I was so nervous to not get paid and have it all depend on my sense of humor, that was a big thing for me.   Geoff Allix (06:14): We'll come back to the humor in a bit because it's obviously an essential part of your personal and professional identity. But first, because this is a Living Well with MS Podcast, we want to understand a bit about your experience with MS. Could you give us a bit of an intro, anything that you feel comfortable sharing about your MS journey?   Shari Short (06:35): Sure. I was diagnosed in the summer of 2008. I had become a runner a year or so before that, and was training pretty intensely for a 10k, and I suddenly had vision loss and pain behind my eye. It presented as the optic neuritis, but I didn't know that. For me it was, "Oh, there's pain, there's my eye, there's my head. Clearly it's a brain tumor." And I panicked and went to the urgent care center and they sent me to the ER, and I got an emergency eye doctor appointment the following morning. And the eye doctor just said, "Oh, this is really classic optic neuritis." And I was like, "Great, give me some eye drops." I didn't know what that meant, and he just kept sitting there and I'm like, "Oh, you have more to tell me, don't you?"   He got me into a pretty quick appointment with a neurologist. And I don't have a slow, drawn-out diagnosis story, like so many. They had a neuroradiologist at my MRI, they saw lesions, I was diagnosed really quickly, all based on that one event with the optic neuritis.   Geoff Allix (07:53): I think there is a difference in different health care systems around the world, it does seem to me the Americans I've spoken to, do get diagnosed typically quite quickly, whereas in the UK we often get diagnosed quite slowly. But on the flip side, we get lots of free medication.   Shari Short (08:10): Yes, it's quite the flip side.   Geoff Allix (08:13): Definitely tradeoffs between the different-   Shari Short (08:13): It's quite the flip side.   Geoff Allix (08:16): If someone were to come up with the best of both worlds, it'd be pretty good. But yeah. Yeah, I would never say anything bad about our system, our system is fantastic.   Shari Short (08:24): I'm a fan of your system.   Geoff Allix (08:25): But yeah, there are downsides to how quickly things happen occasionally, but anyway, we can live with that.   Shari Short (08:30): Yeah [inaudible 00:08:33].   Geoff Allix (08:33): Was there a point when you developed a philosophy or methodology even of using humor to cope with some of the challenges that came up because of MS?   Shari Short (08:45): It was pretty organic, I think, for me to be using my humor to cope. And I just didn't realize how naturally it would be until I was actually in a situation where I had to really tap into my coping skills. At my very first MRI where they diagnosed me, and the neuroradiologist is literally showing me my scan so I'm seeing my skull, the first thing out of my mouth, Geoff, was, "Do I look fat?" Right? It's like, "What?" Like, "Where'd that come from?" Like okay, I'm nervous and I'm processing, and clearly I'm going to try to lighten the mood. And to just see myself consistently doing that, when I got my first handicap tag and I was very sad about it, I remembered I had a dress the same color and I'm like, "I can finally accessorize."   So things were just coming to me in a way to get me off of the morbid train, to get me off of the "Okay, I could really [inaudible 00:09:53] because of this particular situation, but I'm going to find the humor in it." And the more I did that, the more my friends would say to me, "You've got a collection of stuff here. You've got stories, you've got strangers who've said ridiculous things to you, you've got just funny conversations, you've had funny interactions." People would see me, and I didn't mention this before, but eventually after the optic neuritis, eventually I lost feeling on my left side and now I walk with a cane and two leg braces. And I've had people just approach me, like I'm some sort of former athlete and then they'd be like, "Oh, was it soccer?" They just made up sports and they're strangers, I started telling people it was a Quidditch injury.   Geoff Allix (08:45): Well Quidditch is very dangerous. I mean, the altitude and...   Shari Short (10:48): Well, yeah, this is my little PSA. Yeah, so Quidditch causes MS, so yeah. I had a lot of time to not only see how I was using my humor to cope, but also to just see humor in situations. I was watching it unfold and gave myself the project of putting together a one woman show. And in doing so, in writing and in taking every Sunday to just sit and write and write, it was really, it was a deep dive into my own perspective. And from there I did the show, but I also then put together presentations and different types of creative outlets and tools for coping, that could hopefully help other people. Because this is not a mindset that just comes easily to a lot of people.   Geoff Allix (11:39): You've produced a lot of content, which you've touched on there, and it is mentioned in the show notes, so do have a look, there's links to a lot of that content. Some of the things are shows, like On My Nerves, as well as a satirical piece for Momentum, the National MS Society magazine in the States. Presentations at the University of Pennsylvania, various podcast appearances, including this one. Could you tell us if there's any of those experiences that stand out for you?   Shari Short (12:11): The one-woman show was phenomenal, and it was called On My Nerves, but the working title for me was, It's My Mother's MS, I Just Have It, because I had so many stories about how mom was dealing with my diagnosis or dealing with my disease, as opposed to me. And then that dovetailed into how everybody else was dealing with my situation, and the stories that I had on that. To have so many people come out and see that, and then be asked, "Do you want to do this for fringe festivals and stuff like that?" And to have to say, "Actually, no, I can't, that took all the energy I have." It was amazing, I'm glad I had it taped, I'm glad I have my binder. I could do it again, but I couldn't do it on a show basis.   To have a night at the theater where 140 people came out and it was sold out, was a really wonderful way to honor how I've used the humor. And also I got just emails and responses from people with other chronic illnesses, and a lot of people with more silent, hidden chronic illness that were like, "Thank you for that, because you just touched on stuff that no one's talking about, and you did it in a way that was safe." And I just realized that the humor can help people and it's not just helping me. Yeah, and then just the Crazy Cane Lady letter series that I started a couple of years ago was just a little creative advocacy project for me, where I would just write letters, fake letters, very real feelings, but fake letters to different entities, like hotels or restaurants, or back to school night, or Broadway theaters, about how they could be more accommodating to people like me.   I definitely honed in on the cane part of my existence because I see that there are tremendous accommodations, and we could still improve for people in wheelchairs, but the cane, it gets a little middle child treatment sometimes. And there's a ramp that it'll take me a year to get up the ramp on the cane when I could just go up the steps and then be there. So I just feel like there's a lot to learn and people have a lot to learn in terms of event planning and in terms of accommodating people with canes. I did this series of letters during MS Week here in the States, it was in March a couple of years ago. And I made those public, and that took off really nicely. People responded really well to that, and I need to write more of them. I was going to do it again the following year, but the following year was COVID and I just felt like we all had bigger fish to fry than if I can find a bench near a movie theater, right? So I didn't continue with that. I did a video series, like an Oscars version of just thanking different entities within the MS community that have helped me cope. I feel like if I can't perform it or if I can't write it and put it out there in a satirical way, I'm not processing. I don't do the serious stuff and process; it has to be creative for me to feel like it's healing.   Geoff Allix (15:37): You've mentioned that humor's helped you deal with situations you've had and help with your physical abilities and not take yourself too seriously, so how transferable are those benefits to the broader MS community? And how would you advise people to try to tap into that relationship you have with humor?   Shari Short (16:03): Yeah, no, that's a great question. I think that it comes down to the lens that you're seeing life through and the lens that you're seeing your mobility issues through, or whatever it is that MS has affected for you. And the lens I used to see my slow gait and my balance issues, I used to just... Well, I went from being a runner to the negative and it was, "Oh, great. This is what I get, and this isn't fair." And all of those very, very normal feelings, to, "All right, I'm going to rock a cane." Or "All right, with these assistant orthotic devices, they make me look like a Jedi." Or not, they made me look like a storm trooper actually, because they were white.   I also, I have to say I had a small child during this time, so I really felt the need to be creative about what was happening to mommy, because he saw me go from a runner to, I can't walk well, and that kind of pushed me along. There might be something for other people, when they consider, "Well, am I looking through it in the glass half full lens, or am I looking through it in the glass half empty? And what lens am I looking at it through? And are there things that I think are funny that, if I tell people I think they're funny, they're going to judge me?" And I'm here to say, embrace all of it. It's your lens, you're seeing it through. I did a lot of acceptance of dark humor. I did a lot of acceptance of the fact that humor is a language and some people will be put off if you're joking about your condition. And some people will feel like, "Oh, okay, good [inaudible 00:17:53]."   Geoff Allix (17:53): How do you deal with that discomfort if people are not comfortable with you talking in a humorous way about something as serious as MS?   Shari Short (18:03): Sure. Well, it's always know your audience, right? If I'm talking to other people who have MS, to the best of my ability I gauge where they are, like that talk I gave at Penn here in the States, they knew they were logging on to see a comedian, they knew what they were getting, so I wasn't too scared to read the Crazy Cane Lady letters or whatever. But I mean, to this day... look, last week I dealt with COVID and I knew I had COVID not because of a cold or a cough, but because I collapsed, and my husband had to pick me up off the floor. It triggered something in the MS and I'm like, "Oh, I've got a virus that my body wants me to know about."   And I could tell people and I get the "Oh." You know, I get the face. And I'm like, "Yeah, but I didn't hurt myself." Or "Yeah, my husband was right there." Or "My COVID's more fun than your COVID." I feel the need to keep going with the story instead of letting it halt and let them know I'm okay. And not everybody can do that, and I get that. And that's why, when I do workshops or anything like that, I get personal and talk about, "Okay, what's in your toolbox? What can you grab onto at that moment that is going to help you get either through telling the story or through what you're doing?" Almost in a cognitive behavioral way, "What's a great image you have in your head to just move you through the situation?"   And that's all just been because that's worked for me, and I know from research that humor is healing and laughing is really good for the body. There have definitely been situations in my life where the instinct is to cry, but I know it I've always felt better if I set the situation up so I could laugh at it.   Geoff Allix (20:10): You've got a principle, I believe, called laughing on purpose, which you've almost touched on there, I think. But could you tell us a bit of more about that?   Shari Short (20:18): Laughing on purpose?   Geoff Allix (20:19): Yes.   Shari Short (20:22): Laughing on purpose, I mean, when I hear that phrase, I mean, I feel like it's making a conscious choice to keep your sense of humor about you when things are challenging. And that looking at things with humor is not a weakness, it's like, if I don't laugh, I'll cry, that phrase that's out there. It's like if you laugh, it's actually going to help the situation a little bit. And it's for you, it's personal for you. It's not like, "Oh, somebody else is suffering, so laugh at them." I'm only talking about when one is dealing with one's own stuff. That would be horrible advice to give to anybody to just laugh at other people's challenges.   Geoff Allix (21:04): I just think all the best humor is when it's the comedian laughing at themselves, I think that's the funniest humor, isn't it?   Shari Short (21:10): Of course. Yeah, and I felt like sometimes I had to be jostled into it, I had to be jostled back. And I had this wonderful story in the show whereby I got that handicap tag and I was sad about it. And my boss at the time was like, "Well, can I borrow it? I have Springsteen tickets, and I would love to use your handicap tag." Here I was feeling really bad for myself, and then people were like, "You've got the golden ticket." I have this motto or whatever, or this creed or this way of looking at things, like if I don't try to find the humor in this, then I haven't really processed it, like I mentioned before. And it's not a pressure, it's just how can I help myself?   Occasionally they'll be like, "Oh no, no, no, it's not working yet. It's not working yet." And in my toolbox, I have things that make me laugh. I have old Blackadder episodes, I have the best of Bits of Fry and Laurie, I have comedians like David Mitchell and things on the BBC that make me laugh, or American comedians like Kathleen Madigan. And I just go there, I'm like, "They're going to make me laugh and it's going to reset me." The things that are dark, the things that I've had to deal with with MS, the intimate, discreet ways in which the central nervous system wreaks havoc, MS wreaks havoc on it, I don't want to share with everybody, but I've become a little bit more like, "I've got to advocate for me or no one else will."   So if we're all going into a restaurant, I'm like, "Excuse me, but the seat near the bathroom. Yeah, that would be me. That is mine." Right? Yeah. And it's just like, I'm 51 years old, people might think, "Oh, oh, women do that." No, no, no, it is totally because of the MS. But I've just grown a little bit more comfortable with the uncomfortable because I communicate with my humor. And when you have MS, I mean, everybody's got it differently, but there's uncomfortable things about it.   Geoff Allix (23:33): Sense of humor can apply to many things in MS. It can be coping tool, teaching tool, defense mechanism, so just for general member of the public who's got MS, how can they harness humor to make a positive benefit to themselves?   Shari Short (23:55): I think, first of all, you have to ask how you're processing any aspect of where you are in your patient journey, is the term that's used most often. How are you processing? Are you talking about it a lot? Are you thinking about it a lot? Are you down on yourself because of it? Or are you trying to give yourself pep talks? Are you worried about the future? Where are you with it? And then ask yourself in that processing, "Okay, what kind of lens should I look at this through so it's going to help me move forward?"   The toolbox is something I come back to a lot. What makes you laugh, as you, your own person with MS, what makes you laugh is not what makes me laugh, is not what makes everybody else laugh, it's you. So write it down, actually acknowledge your sense of humor. What makes you laugh? And start to collect those things, whether it's books or whether it's links on the internet, whether it's the cat video or the guy who says, "I'm not a cat," to the lawyer, you know those things that went viral last year. There are things that can immediately make you laugh so just be more aware of them because they're tools for you to reset. And I use humor to communicate, not everybody does. You may find in your dealing with MS, that you've got two friends that will get your dark humor, that will get your jokes, or will support you on that, then they're part of your toolbox too.   I've found that I've had, like we talked about earlier, there's people that get uncomfortable or they make faces and I don't stop too long in their party. I just go, "Okay, yeah, yeah, no, I know it sucks." I can't take care of anybody else but me, so I think that's really important, is to just look where you are, what lens are you looking at it through? Where can you find, is there humor in this situation? Do you want to write about it? Do you want to tell a good close friend about it? Do you want to tell your doctor about it? But collect those things, because at other times it's going to make you laugh when no one else knows what you're thinking, and it's going to be part of your own collection of stories that you can go back to and say, "This is how I dealt. This is how I helped myself." Because to find humor in situations, it's not self-defeating, it's empowering.   Geoff Allix (26:26): With that, I'd like to thank you so much for being our guest on Living Well with MS. We're thrilled to learn about the amazing work you've been doing to help people with MS, to ease their burdens and get the most out of life using humor. And I would absolutely encourage everyone to learn more about you and your work by checking out the links in the show notes, they're available on every platform. Have a look at the show notes of the episode. And thank you much for joining us again, Shari.   Shari Short (26:52): Thank you so much for having me, this was great.   Geoff Allix (27:01): Thank you for listening to this episode of Living Well with MS. Please check out this episode's show notes at www.overcomingms.org/podcast. You'll find all sorts of useful links and bonus information there. Do you have questions about this episode or ideas about future ones? Email us at podcast@overcomingms.org. We'd love to hear from you. You can also subscribe to the show on your favorite podcast platform, so you never miss an episode.   Living well with MS is kindly supported by a grant from The Happy Charitable Trust. If you'd like to support the Overcoming MS charity and help keep our podcast advertising free, you can donate online at www.overcomingms.org/donate. To learn more about Overcoming MS and its array of free content and programs, including webinars, recipes, exercise guides, OMS Circles, our global network of community support groups, and more, please visit our website at www.overcomingms.org. While you're there, don't forget to register for our monthly e-newsletter so you can stay informed about the podcast and other news and updates from Overcoming MS. Thanks again for tuning in and see you next time.   The Living Well with MS family of podcasts is for private, non-commercial use, and exists to educate and inspire our community of listeners. We do not offer medical advice. For medical advice please contact your doctor or other licensed healthcare professional. Our guests are carefully selected, but all opinions they expressed are solely their own and do not necessarily reflect the views or opinions of the Overcoming MS charity, its affiliates, or staff.

Myelin & Melanin
Episode 156 | The Rachel Dolezal of the Cherokee Nation and Other Distractions

Myelin & Melanin

Play Episode Listen Later Jun 15, 2022 18:58


Join us as we share our silver linings and lament about the disorienting and uncomfortable satisfaction in hearing evil folks tell the truth. Oh, and Carlos refers to Johnny Depp as "the Rachel Dolezal of the Cherokee Nation", and it was everything. --   Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and musician -- each living with Multiple Sclerosis -- are your hosts this season and explore the intersections of race, culture, politics, disability and all the things.  Join us as we Raise the Temp! Connect with us. Instagram: Daana @retrosoul__ Carlos @elcaballonegrito Podcast Socials: Instagram: @myelinmelanin Twitter: @myelinmelanin Facebook: @myelinandmelanin Website: http://myelinandmelanin.com  

The MSing Link
68. Less Stigma, More Joy with Jenn Powell

The MSing Link

Play Episode Listen Later Jun 15, 2022 25:18


Who doesn't want more joy in their lives? With a disease such as Multiple Sclerosis, or any disability really, it can be hard to keep a mindset of joy rather than thinking of the stigmas that can be associated with the disease. Jenn Powell has some amazing view points, and tips to help with just that! Jennifer is the Director of Community Engagement for BioNews (Multiple Sclerosis News Today is a subsidiary of BioNews). Jenn is also the host of the Multiple Sclerosis Podcast as well as a featured columnist. An active advocate in the MS community, Jenn imparts her hopeful optimism into real-life challenges facing the MS community. Now with secondary-progressive MS, Jenn continues to elevate the patient voice to better the lives of those living with MS. When she is not writing, Jenn enjoys volunteering with her local golden retriever rescue, traveling, and spending time with family and friends. Jenn resides in Orange County, California, with her husband and golden retrievers. Find Jenn on Social Media: Multiple Sclerosis News Today: Silver Linings Column The Multiple Sclerosis Podcast Facebook: Multiple Sclerosis News Today Twitter: Multiple Sclerosis News Today Instagram: Multiple Sclerosis News Today Soundcloud: Multiple Sclerosis News Today LinkedIn: http://linkedin.com/in/jennifer-jenn-powell-354674182 Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: Gretchen@DoctorGretchenHawley.com Website: www.MSingLink.com Social Media: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Our Power Is Within
90: Healing Multiple Sclerosis with Bob Cafaro.

Our Power Is Within

Play Episode Listen Later Jun 14, 2022 61:44


Our guest today is Bob Cafaro. Bob has been a cellist with the Philadelphia Orchestra since 1985. In early 1999, Bob was diagnosed with Multiple Sclerosis. Six months later he was nearly blind, unable to use his hands, and he was told he would be on permanent disability. Refusing to accept his prognosis, Bob set out to cure himself of the disease. He has since continued his career as a cellist with the Philadelphia Orchestra. Today he is in perfect health and shows no signs of MS. In his new book, Bob shares the knowledge he gained from extensive research, personal life experiences, and studying people who have accomplished the impossible. To connect with Bob: www.bobcafaro.com Order his book on amazon (As an Amazon Associate I earn from qualifying purchases) You tube: https://www.youtube.com/user/bobcafarocello where you can also listen to his Ted Talk. Follow @ourpoweriswithin for weekly updates, challenges & more. Click the link below to the virtual tip jar to support future episodes: Disclaimer: The Content provided on this podcast is for informational purposes only. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast. Individual results may vary. --- Support this podcast: https://anchor.fm/ourpoweriswithin/support

FUMS: Giving Multiple Sclerosis The Finger
FUMS 108 - A Cause for MS Has Been Found

FUMS: Giving Multiple Sclerosis The Finger

Play Episode Listen Later Jun 14, 2022 17:56


In January of 2022, one of the biggest MS news stories EVER was announced - that MS is probably caused by infection with the Epstein-Barr virus (EBV), according to a study led by Harvard T.H. Chan School of Public Health researchers. Now, this link has long been suspected but here was proof!My guest today is Kjetil Bjornevik, the lead author of the publication that got us all excited. Kjetil is an epidemiologist whose focus is on finding risk factors and better treatments for neurological diseases, including multiple sclerosis.As you'll hear, by opening the doors for future preventative treatments for EBV (one of which is in a Phase 1 clinical trial right now), this report points towards a way to prevent MS and the real possibility of a CURE.Topics covered in this episode include:What led Kjetil to specialize in neurological diseases in general and multiple sclerosis in particularA breakdown of the study and its findingsEBV is one possible (but important) trigger of MS - what are the others?The possibility of an EBV vaccine and the effect this would have on people at risk of developing MSFuture research at the Harvard T.H. Chan School of Public Health that is of interest to the FUMS community Full show notes and resources at https://fumsnow.com/fums108/ See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Happiness in Progress
#195 One Day at a Time feat. Carlos Spann

Happiness in Progress

Play Episode Listen Later Jun 14, 2022 37:38


"I just wake up and thank God that I'm alive because I didn't have to be. I've been through the fire." - Carlos Spann Today you get to hear from my old friend and colleague, Carlos Spann, about his diagnosis and journey with MS. Carlos is a photo journalist who was just inducted into the Nevada Broadcasters Hall of Fame in October 2021. During his career in news, at just 33 years old, he was diagnosed with multiple sclerosis. He's also a divorced man with a six year old son - now living in Atlanta Georgia. In this conversation we talk about: what it was like to get that MS diagnosis What keeps him going with a hopeful attitude rather than one of hopelessness The miracles he's received when he needed the push to keep going for just one day at a time And how he's remained positive with MS amid a very difficult year CONNECT WITH CARLOS Loved his voice? He does voiceover work, you can connect with him on Instagram CONNECT WITH DANIELLE Buy the HIP Habits Workbook Facebook Instagram Twitter Website This podcast is brought to you by the Mail Tribune. Check out more Mail Tribune podcasts here.

RealTalk MS
Episode 250: At the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Marijean Buhse, PhD, RN, NP-C, MSCN

RealTalk MS

Play Episode Listen Later Jun 13, 2022 34:46


One afternoon during the Consortium of Multiple Sclerosis Centers Annual Meeting, I set up my equipment at the National MS Society's booth in the conference exhibit hall and recorded some conversations with a few old friends and a few new friends of the podcast. In this week's episode, we'll hear a couple of those conversations. Before I left for the conference, I had a chance to catch up with Dr. Saud Sadiq. So, we'll begin this episode with an update on his mesenchymal stem cell clinical trial and the unprecedented outcome he's seeing. We'll talk with Dr. Kathy Zackowski and get her impressions of some of the conference presentations that got her attention. And we'll hear from Marijean Buhse as she recaps what I found to be an important presentation on shared decision-making. We have a lot to talk about! Are you ready for RealTalk MS??! We're at the Consortium of Multiple Sclerosis Centers Annual Meeting!   :22 Dr. Saud Sadiq Updates Us on His Mesenchymal Stem Cell Clinical Trial   1:43 Dr. Kathy Zackowski Discusses the Conference Presentations That Caught Her Attention  10:44 Marijean Buhse Recaps Her Conference Presentation on Shared-Decision Making  23:27 Share this episode  33:13 Download the RealTalk MS app for your iOS or Android device   33:34 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/250 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance RealTalk MS Episode 215: Stem Cell Therapy for MS with Dr. Jeffrey Cohen https://realtalkms.com/215 The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 250 Guests: Dr. Saud Sadiq, Dr. Kathy Zackowski, Marijean Buhse, PhD, RN, NP-C, MSCN Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Full Plate: Ditch diet culture, respect your body, and set boundaries.
#23: Handling Autoimmune Flares Without Diet Culture

Full Plate: Ditch diet culture, respect your body, and set boundaries.

Play Episode Listen Later Jun 13, 2022 43:51


Today we're answering a listener question from instagram. The question is about being tempted to restrict or revert to elimination of foods during an autoimmune flare, and how to cope without diet culture. We discuss the influence of wellness culture on the autoimmune community, the pitfalls of food as a way to “fix” ourselves when our bodies are struggling, and how to think about this complex experience from a lens of compassion and true self-care.  Links of Interest: Review of Studies on Hashimoto's & Gluten Current Evidence on the Efficacy of Gluten-Free Diets in Multiple Sclerosis, Psoriasis, Type 1 Diabetes and Autoimmune Thyroid Diseases Doubtful Justification of the Gluten-Free Diet in the Course of Hashimoto's Disease We are a listener-supported show (no ads!) so please support us on Patreon for bonus episodes at Patreon.com/fullplate Patreon is also where we publicly host transcripts for each episode, so if you're looking for those, head over to our Patreon.  Find the show and hosts on Instagram @fullplate.podcast Diane is  @dianesanfilippo and Abbie is @abbieattwoodwellness

Books on Pod
#255 - Tyler Campbell on THE BALL CAME OUT

Books on Pod

Play Episode Listen Later Jun 9, 2022 60:55


Multiple Sclerosis ambassador and motivational speaker Tyler Campbell chats with Trey Elling about THE BALL CAME OUT: LIFE FROM THE OTHER SIDE OF THE FIELD. Topics include: Tyler's goal with the book (3:00) The thing that caused him to let his guard down a bit as a kid (4:36) Growing up as an African American in an affluent, predominantly white community (7:13) How the discovery of football helped him (12:15) An mistake that derailed his life as a junior in high school (15:29) How his mom and dad reacted to that mistake (19:37) Ending up at Pasadena City College in California (27:02) Getting that full ride to play at San Diego State (30:10) Swallowing his pride in making a name for himself on special teams (33:03) The terrifying details of his first experience with Multiple Sclerosis (35:03) Continuing to play football through this debilitating condition (41:08) Becoming an ambassador for MS and a highly sought-after public speaker (46:48) Inheriting Earl's skill as a public speaker (50:18) The key to a good story (52:14) What his mom means to him (54:51) What his dad means to him (55:44) What his wife means to him (56:37)

Under the Cowl of MS
Wellness Wednesday Tattoos UTI's Simple Sugar TM Self Touch

Under the Cowl of MS

Play Episode Listen Later Jun 8, 2022 60:58


Episode 416 Wellness Wednesday episode in which we talk about Multiple Sclerosis stuff, Tattoos and MS, Treating UTI's, Simple Sugar Molecule and Myelin Repair, Transcendental Meditation, Self Touch and more for Multiple Sclerosis Health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

The Jim Fortin Podcast
Ep 221: The Psychology of Doing The Impossible

The Jim Fortin Podcast

Play Episode Listen Later Jun 8, 2022 58:28


Have you ever wondered how truly powerful your mind is?  We all hear different stories about the “Power of the Mind” but have you experienced that in your own life?  In this episode, I interview Bob Cafaro, who healed himself from an incurable disease, Multiple Sclerosis, using the power of his mind. He demonstrates the power of doing the impossible, and that the only place where things are impossible is in your mind. VISIT THE SHOW NOTES HERE FOR MORE: https://www.jimfortin.com/221   LIKED THE EPISODE? If you're the kind of person who likes to help others, then share this with your friends and family. If you have found value, they will too. Please leave a review on Apple Podcasts so we can reach more people.   Join us in the official Jim Fortin Podcast Community Facebook group HERE.   OTHER RESOURCES YOU MAY ENJOY: My Instagram account My Facebook page Free Training “Discover How To Eliminate Fear And Negativity In An Instant” Click here to send your questions   UPCOMING EVENTS: Join the waitlist for the upcoming Transformational Coaching Program   Thank you for listening!  With Gratitude, Jim Fortin

RUSK Insights on Rehabilitation Medicine
Dr. Julia Karsten: Neurorehab Part 2

RUSK Insights on Rehabilitation Medicine

Play Episode Listen Later Jun 8, 2022 26:27


Dr. Karsten has more than five years of clinical experience across diverse healthcare settings and currently works full-time on an acute inpatient neurorehabilitation unit, evaluating and treating adults with acquired brain injury and other neurological & complex orthopedic conditions. She also serves as a mentor to other staff members and acts as a supporting faculty member of the Neurologic Residency Program in acute inpatient rehabilitation at NYU Langone Orthopedic Hospital. Dr. Karsten has presented posters at American Physical Therapy Association meetings and also at the 5th International Gait and Balance Symposium in Multiple Sclerosis. Her Doctor of Physical Therapy degree is from Hunter College and she has achieved Board Certification in Neurologic Physical Therapy. Part 2 covers related topics, including: some challenges that may characterize treating different kinds of patients based on age; possible impairments associated with an ABI involving  communication, loss of mobility, increased fatigue, sleep difficulties, and vision deficits; patients' level of self-awareness; negative health behaviors exhibited prior to sustaining a brain injury; and challenges faced by caregivers.    

MS Living Well: Key Info from Multiple Sclerosis Experts

With over 20 options, what is the best multiple sclerosis treatment for me? Selecting an appropriate disease-modifying therapy (DMT) needs to consider your risk of worsening disability over time. Your age, sex and race can affect your prognosis and can influence the power of treatment chosen. Details about your early relapses and MRI activity are very important for treatment decisions. Treatment selection should also consider responsiveness to vaccines, family planning and other medical problems (another autoimmune disease or cancer). For each individual living with multiple sclerosis, balancing power of treatment against serious risks of treatment needs to be considered.  The future of personalizing care to better pick the right medication shared. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews Celia Oreja-Guevara MD PhD, Vice Chair of Neurology & Head of the Multiple Sclerosis Center, University Hospital, San Carlos, Madrid, Spain & John Foley MD, Director, Rocky Mountain MS Clinic, Salt Lake City, Utah

Stanford Medcast
Episode 42: Hot Topics Mini-Series - Gut Microbiome in Multiple Sclerosis

Stanford Medcast

Play Episode Listen Later Jun 7, 2022 30:36


A recent study showed that interaction between the immune system and the gut microbiota plays a crucial role in the development of MS. This episode includes a discussion with Dr. Emmanuelle Waubant regarding her ongoing research and new treatments for multiple sclerosis (MS). Dr. Waubant is the Director of UCSF Regional Pediatric Multiple Sclerosis Center and serves on the clinical care committee of the National Multiple Sclerosis Society's local chapter and the translational research review committee for the society's national office. Read Transcript CME Information: https://stanford.cloud-cme.com/medcastepisode42 Claim CE: https://stanford.cloud-cme.com/Form.aspx?FormID=1194 

RealTalk MS
Episode 249: The Ball Came Out with Tyler Campbell

RealTalk MS

Play Episode Listen Later Jun 6, 2022 28:27


In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis. For some people, that would have been the end of the story. For Tyler, it was only the beginning.  In this week's episode, Tyler Campbell talks about his transformational journey from the football field to becoming a motivational and inspirational leader in the MS movement. We have a lot to talk about! Are you ready for RealTalk MS??! I met a real difference-maker!   :22 My conversation with Tyler Campbell   1:12 Share this episode  26:56 Download the RealTalk MS app for your iOS or Android device   27:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/249 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 249 Guest: Tyler Campbell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Living Well with Multiple Sclerosis
Coffee Break #32 with Regina Beach | S4E52 bonus

Living Well with Multiple Sclerosis

Play Episode Listen Later Jun 6, 2022 29:53


Welcome to Living Well with MS Coffee Break #32, where we are pleased to welcome Regina Beach as our guest!   Our Coffee Break series is your chance to get to know members of our diverse OMS community. In each episode, you'll join Geoff Allix for an intimate chat with a different member of our global community. Our guests will share their personal stories and talk about their challenges and victories, large and small. We hope you find common cause and a source of inspiration from the stories of these very special people.   As always, your comments and suggestions are always welcome by emailing podcast@overcomingms.org. Regina is a very special guest for many reasons, including being an American living in the UK, and being an OMSer who works for the charity as its Trusts and Community Fundraising Manager. We hope you enjoy this episode's conversation with Regina, coming to you straight from the UK.   Regina's Bio:   Regina Beach is an American living in the Welsh Valleys with her British husband. She was diagnosed with RRMS in April 2021 and adopted the Overcoming MS program shortly thereafter. She is a yoga teacher and writer who regularly leads workshops and publishes poetry and essays.  She enjoys cooking and is writing an oil-free vegan cookbook with her husband. She also works part time as the Trusts and Community Fundraising Manager for Overcoming MS. Prior to diagnosis she was an avid long-distance cycler. Her goal is to feel strong enough and balanced enough to get back in the saddle.     Questions:   Regina, welcome to Living Well with MS Coffee Break. We're so pleased to have you on our program. The purpose of this series is to better get to know some of the diverse members of our community from around the world, and today you're in the hot seat. Can you tell us a little about your day-to-day life? When were you diagnosed with MS? Can you provide some context on that? When were you diagnosed and how did you initially deal with it? At which point did you come across the OMS program? How was that experience for you? Why did you decide to start following it? I understand that you're rated as having significant disability on the EDSS scale. Has the OMS Program helped alleviate this, or had no effect? What are your thoughts on people with MS choosing other types of diets or lifestyle protocols that are not OMS? Let's shift gears a little bit and talk about your professional life. You used to be a schoolteacher in the US, but now you live in the UK with your British husband, and you actually work part-time for OMS as its Trusts and Community Fundraising Manager. How did that transition come about? OMS is celebrating its 10th birthday this year, and there are some special events in the wings. I understand you're involved in some of these, such as OMS Birthday Trivia in June, and the Big Picnic in July. Can you tell us a little about what to expect? Since you work in fundraising, what advice would you give to people in our community who want to get involved in this domain to help the charity? My next question straddles the personal and professional realm: you're a devout yoga and meditation practitioner, and you also teach it. Can you tell us how that's helped you, and share some tips on how others can get into the groove of a daily mindfulness practice? Regina, thank you so much for being on Living Well with MS Coffee Break and allowing our community to get to know one of its own a little better. One last question before you go, and it's a bit of a tradition in that we ask it of all our Coffee Break guests. If you tap into your experience with MS generally and OMS specifically for a nugget of wisdom that would help people ease into and better adopt the OMS program, what would that advice be?   Three Interesting Facts About Regina (in her own words):   I'm a yoga teacher and have changed my practice to be gentler and exploratory. I used to teach hot 26+2 (Bikram style).  I used to be a public-school teacher in Chicago where I taught secondary art and design. I have significant disability, with my neurologist most recently rating my EDSS at 6.5. I have incomplete remission, so my symptoms are always with me.     Regina's Links:   Check out Regina on Instagram, all about her adventures with whole food plant-based eating. Read Regina's newsletter, all about creativity through movement, art, and whole food plant-based cooking. Have a peek at Regina's website.   Coming up on our next episode:   On the next episode of Living Well with MS, premiering June 15, 2022, meet Shari Short – MS patient advocate, professional in healthcare communications, and naturally, a standup comedian – and learn from her experience with MS how laughter can be a powerful medicine in itself.   Don't miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. For your convenience, a full episode transcript is also available on all platforms within 72 hours of each episode's premiere. If you like our program, don't be shy and leave a review on Apple Podcasts or wherever you tune into the show. And feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.   S4E52b Transcript Coffee Break #32 with Regina Beach   Geoff Allix (00:00): Welcome to Living Well With MS Coffee Break, a part of the Living Well with MS podcast family from Overcoming MS, the world's leading Multiple Sclerosis healthy lifestyle charity, celebrating its 10th year of serving the MS community. I'm your host, Geoff Allix.   Today, you'll meet someone living with MS from our diverse and global Overcoming MS community. Our Coffee Break series invites you into the lives of each guest. They share their personal MS journeys, and speak openly about their challenges and victories, large and small. We hope you find some common cause and a source of inspiration from the stories of these very special people.   You can check out our show notes for more information and useful links. You can find these on our website at www.overcomingms.org/podcast. If you enjoy the show, please spread the word about us on your social media channels or leave a review wherever you tune into our podcast. Finally, don't forget to subscribe to Living Well with MS on your favorite podcast platform, so you never miss an episode. So, get your favorite beverage ready, and let's meet today's guest on Living Well with MS Coffee Break.   Welcome to Living Well with MS Coffee Break #32, where we are pleased to welcome Regina Beach as our guest. Regina is an American living in the Welsh Valleys with her British husband. She was diagnosed with Relapse-Remitting MS in April 2021 and adopted the Overcoming MS program shortly thereafter. She's a yoga teacher and writer who regularly leads workshops and publishes poetry and essays. She enjoys cooking and is writing an oil-free vegan cookbook with her husband. She also works part-time as the Trusts and Community Fundraising Manager for Overcoming MS. Prior to diagnosis, she was an avid long-distance cycler. Her goal is to feel strong enough and balanced enough to get back in the saddle.   Regina, welcome to Living Well with MS Coffee Break. We're very glad to have you on our program. So the purpose of this series is to get a better understanding of the members of our community from around the world, and today you are in the hot seat. So, could you tell us a bit about your day-to-day life?   Regina Beach (02:12): Sure. Thanks, Geoff, for having me. I am American, but I do live in the UK. So, my day-to-day life takes place in South Wales where I am a writer, a yoga teacher, and I also work part-time for Overcoming MS as the Trusts and Community Fundraising Manager, which means I help people who want to do a charity bike ride, or a race, or if they want to sell something, or raise funds for OMS. I help in whatever way, sending out swag, helping promote and advertise, and working with some really cool OMSers doing amazing things.   In terms of my day-to-day, I was diagnosed with Relapsing-Remitting MS in April of 2021, so not that long ago, and so I am still in the middle of figuring out what works best for me and how to fully embrace the OMS lifestyle. I jumped in right away about a month after diagnosis, I found the website, devoured it, and soon after got the book, read it, joined the Facebook group. I really feel like this is the pathway back to health, or to living as well as I possibly can, for me.   Geoff Allix (03:40): So how was it being diagnosed mid-COVID pandemic? I'm guessing that's made a difference.   Regina Beach (03:50): Yeah, absolutely, because I really put off getting the tingles in my feet checked out for a long time. I wasn't really in pain; I wasn't really having mobility issues. I was just having lots of numbness in my feet. And since I had been extra active in 2019, I did miles of swimming, biking, and running, I thought I was just experiencing some overuse residual something. And I really put it off and put it off, and it wasn't until my acupuncturist was like, "Your cold tingly feet, really, I haven't been able to do anything about this. I really think you should go to your GP and get some blood work done." And I'm really glad that she said that because I think, especially for people who like to tough it out or who are used to doing physical things and maybe having their body have adjust to stuff, I really wasn't thinking that I had something neurologically wrong with me.   And so then, obviously it took a little bit of time to check, I didn't have low B12, I didn't have low iron. My GP thought maybe I had a pinched nerve and just ordered a cervical MRI, and then eventually a full MRI. And then I ended up in the hospital for a week because I was having, I guess, a big relapse where I really had some terrible symptoms, and was losing mobility, and ended up with the diagnosis about a year after I really first started having those tingles. So, I do feel like I'm getting good care now, but I feel like the road to finding that diagnosis and really finding my way was definitely prolonged because of the pandemic.   Geoff Allix (05:38): And I think MS is a difficult one anyway, because it's not like we have a key symptom. Most things you can say, "Yeah, that's likely to be that because you've got this key symptom." We're like, "Well, actually it could be anything." Your nerves do everything in your body, and we've got a problem with our nerves, so it could be, people have got eye problems, walking problems, bladder problems, temperature problems, pins and needles problems, and they're all MS. So yeah, it is really difficult.   Regina Beach (06:07): Yeah, exactly, and you don't necessarily think of, "Oh, I need to pee all the time," as being connected to this idea that the grip in my left hand is not as strong as it used to be. You don't make that connection naturally, I think, because MS symptoms can run the gamut.   Geoff Allix (06:25): So, when did you come across OMS? How did you find out about OMS? And how did that go for you?   Regina Beach (06:33): My whole life, I have said, "If I ever get really sick," kind of jokingly, "I'm just going to become a monk and be a vegan and live in the woods." And so obviously, one of the first things I Googled was, what's the best diet for MS, because I understand that what we put into our body is the molecules that we become. And so I thought, okay, someone has got to have been doing research on this, and so I came across Swank, and then came across Jelinek, and then the evidence was just so compelling to me. I spent a month researching recipes, getting rid of stuff in the fridge, overhauling things.   My husband's been really wonderful and has changed his diet too, so we cook together. We're writing down our recipes and compiling a cookbook. We have an Instagram where we post recipes. It's been really fun, and it's been a huge change because I used to really love cheese and dairy, and my husband used to be big into smoking meats and grilling meats, and so we've just done a 180 with our meals, and it's really helpful to have somebody to co-plan with and cook with.   Like last night, we had some smoked fish and veg, and it's actually really amazing what you can do, cooking without oil, that I had no idea was possible. So I'm actually really happy that we found this. He's a triathlete and has found a lot of benefits from the diet portion of Overcoming MS as well, and I've always been a meditator of sorts, but now I feel like it's really key, and I definitely carve out the time more than I used to for that component.   And yeah, I do take a DMT, and I'm hopeful that with everything together, I'll get some more mobility back because I walk currently with two sticks, and I'm really hoping to one day be able to walk without a mobility aid.   Geoff Allix (08:42): Yeah. That was the next thing I was going to ask actually, so you are listed as having significant disability on the EDSS scale. So what's two sticks? That's somewhere up like four and a half, five, or something on the scale?   Regina Beach (08:55): Yeah, so I don't leave the house without at least one stick and it really just depends on how my balance is feeling that day. And sometimes, if we're at a museum or if I'm out and about in a big public arena, I've used a wheelchair before, just because walking long distances is really tough for me. And that was really heartbreaking because it was something that, hiking and long-distance trekking are things that have been a really important part of my life up to this point. I did the Camino de Santiago, and I've done a lot of long-distance cycle trips across Europe and Asia and North America, and I feel really lucky that I was able to do those things. But yeah, so being in this new body of mine that doesn't function the same way, and is really slow, and I have foot drop on the left side, and it's really a big adjustment, and I don't think I'm totally there. I dream of running sometimes, or I dream that I can walk.   Geoff Allix (10:08): Literally in your dreams?   Regina Beach (10:09): Literally in my dreams.   Geoff Allix (10:10): I have that as well. Some people say, "Does that make you sad because you've lost it?" And it's actually no, when you half wake up and you're just coming out of a dream, if I'm getting back to sleep, I'm just like, "I'd love to get back into that dream again," the one where I'm running around.   Regina Beach (10:25): Yes.   Geoff Allix (10:26): Because it's like memories of what used to be, and very similar stuff I used to do, like do a lot of mountain walking and hiking and cycling and stuff. The things now that I think would be an amazing achievement, whereas before it would be climbing Mont Blanc or something, now it's like, something less daunting. I mean, if I can do something like Snowden, or something that's not a hard mountain, that would be such an achievement for me. I mean, I don't know if it's achievable because I'm not really, I'm similar to you, I always take a stick when I go out, but I'm not ruling out that I can get a bit better.   Regina Beach (11:04): That's how I feel.   Geoff Allix (11:06): There are people I've come across, who like me, think those aids, they're not disabling, they're enabling. So, using mobility aids, and certainly, yeah, so I've got an E-Trike that I use partly also as a mobility scooter sometimes because I can just put it a walk mode and just trundle along. Because I just, yeah, the distance is the problem really, whereas I'd love to go on a city break where I just wander around all day. But now I-   Regina Beach (11:39): I love that, yes, where you're just walking miles and miles and seeing all the things, and now you have to be a little more deliberate about where you're going to go, how long is it going to take, and where can you take a rest? But it doesn't mean you can't do it. So I was really nervous to take my first international trip since having mobility issues, but my husband and I went to Egypt over Christmas and New Year's, and it was amazing how much we were able to do and how accommodating people are when you just explain the situation, and how much people want to help and make things as easy as possible. So, we did a snorkeling trip and everyone on the boat was super helpful because that is, as someone who has balance issues, it's a nightmare to walk around on a boat.   Geoff Allix (12:27): Yeah. Well I've been scuba diving twice since I've had MS.   Regina Beach (12:27): Nice.   Geoff Allix (12:33): Yeah, I've been scuba diving in Costa Rica and in Thailand, because I used to scuba dive a lot, but actually I thought, well, why not? Because there's not a balance issue.   Regina Beach (12:33): Yeah. Once you're in the water, it's great.   Geoff Allix (12:44): Yeah. And actually when you're scuba diving, you don't really, really, it's not a lot of exertion, because otherwise you use up all your air basically. So you are trying to do everything in a very gentle motion, so I still have the skills, and yeah, the problem is getting on and off the boat. On the boat, because it's moving around, there's loads of stuff to hold onto because everyone's got to hold onto stuff, so actually it wasn't that bad. So yeah, I could do that, and that was really cool.   Regina Beach (13:11): Yeah, and it is just about finding what you can do and leaning into what you can do, and making new goals, like you said. There's a little lake, we live right near the Cwmcarn Forest Drive, and one of my goals is to make it around that whole little lake without taking a break. And that is a very small goal compared to maybe what I used to be doing, but that's fine, that's where I'm at right now, and I'd rather be getting out there and trying for that. And also I just really appreciate my good days because, obviously, I used to take walking and running for granted, and now I'm like, "Oh, I feel great today. I'm definitely going to go out for a walk or for a little hike." So there's the small joys.   Geoff Allix (13:58): Yeah. And the next question is, what are your thoughts on people with MS choosing other types of diets or lifestyle alternative to OMS?   Regina Beach (14:11): Yeah, so this is really interesting. Since being diagnosed and disclosing my diagnosis, I've had a lot of people say, "Oh I have MS too," or "I have another autoimmune condition," which I think is really interesting, how much you don't know about your acquaintances. I feel like disclosing brought me really close to some people who I had no idea also had things that they were dealing with. But I also think that it's a really personal decision about how you're going to self-manage your condition, and so I've definitely had to be firm, but kind, in my approach saying, "I'm sticking with OMS. This is what I want to do. If you want to do paleo, you want to do another diet, that's fine."   I think it really comes down to how you feel and what you can stick with. And so anybody who is managing through lifestyle, I think deserves big kudos. Anyone who's making these big changes in their lives, whether it's adding exercise or mindfulness, or taking supplements, or whatever it is. I think we're not really at odds with most of the other diets, they are mostly whole food based, they are mostly much healthier than the standard Western diet, and I think that you want to be encouraging, this idea that we have autonomy to make changes that aren't just dictated from a neurologist or a GP, that we can do something for ourselves.   Geoff Allix (15:46): Yeah, and I've spoken to people on different protocols, Mathew Embry, Best Bet Diet, talked to him, and the commonality is greater than the differences.   Regina Beach (16:00): Much more.   Geoff Allix (16:01): And with the Wahls protocol similarly, basically they're all non-dairy, they're all low saturated fat, they're all whole food based. Now it may be that you have organic grass fed, lean meat occasionally on the Best Bet Diet. It may be that you have, gluten is okay on OMS, which is not on others. So there's little bits on the edges, but the core bits are really the same, low saturated fat, whole food diet with no dairy, is basically common across all of them. And I think-   Regina Beach (16:39): Yeah, and even Swank had low fat meat after year one on his original diet, which the OMS diet is built on, so there is so much that is in that same vein.   Geoff Allix (16:53): Yeah. I think some people, as well, because there's a lot of stuff with fasting now as well, and I think there's a lot of interest in fasting. And the paleo diet, if you cut out all your carbs, then you put your body into a fasting state, but when you talk to the neurologist about this, when you are proposing this, they're saying, "Oh yeah, we're not actually encouraging you to just go on an Atkins diet because that would put you into a fasting state, but that's not actually healthy. What you want to be doing is going to fasting state by reducing the time window you eat, or not eating for a day, a week," these different ways of doing it, and then eating a healthy lifestyle. So there's sort of like-   Regina Beach (17:35): Yes, and not just putting yourself into ketosis for the sake of it by not consuming carbs, which are really in everything, and as long as you're eating whole grains, is very, very healthy. That's what so many cultures and indigenous people's whole diets are based on, potatoes, or rice, or other grains. And I think cutting them out is, like you're saying, it's not healthy for the long haul.   Geoff Allix (18:06): So, to change a little bit and talk about your professional life, you were a schoolteacher in the US, moved to the UK and live with your British husband, and now work part-time for OMS as the Trusts and Community Fundraising Manager, as you mentioned. So how did that transition come about?   Regina Beach (18:27): Oh my gosh, I feel that life in Chicago, when I was teaching in public schools there, is a lifetime ago. I was really burnt out, it's a really tough job. I really give a lot of praise to all of the schoolteachers out there, especially in these strange times. But I was really at a point in my career where I was turning into the type of teacher I didn't want to be and needed to pivot, and so I decided to take a year to do a Fulbright Fellowship in Laos in Southeast Asia, and that was my last full year of teaching. I taught teacher candidates there, and that's actually where I met my now husband, who was on a motorcycle adventure through Southeast Asia, and came back to visit me a couple times.   And so, through that process, I was really thinking, okay, what is it that I really like? What is it that I really want to do? I did yoga teacher training. I became a lot more interested in mindfulness and moving meditation, and pivoted back to my first love, which was writing. I studied journalism in university, and really decided, okay, I want to pursue writing. And so some of my work with Overcoming MS is grant writing, and blog writing, and press releases, and I also write essays and poetry in my own time. And so, I'm just trying to carve out a life that's more reflective of my values and what I really enjoy and what I want to spend my time doing. And I was kind of already in that mode when I was diagnosed, but since diagnosis, it's been even more acute that, the time I have, I want to spend it focusing on the things that I really enjoy, and the things where I feel like I can make a big difference.   Geoff Allix (20:31): So OMS is celebrating its 10th birthday this year, and you've got some special events upcoming, there's various OMS birthday trivia, OMS big picnics, and other events. So could you tell us a bit about the events upcoming?   Regina Beach (20:45): Yeah, so we're really excited to celebrate a decade of the charity promoting the OMS program for people worldwide. And so, yes, the big picnic is a great way to get family, friends, your OMS Circle, involved in some outdoor fun, a barbecue, maybe, bringing OMS compliant foods, teaching people about what the diet pillar is about and why, and possibly even doing some fundraising for the charity. And we are going to do a big birthday quiz on Zoom this year, so that will be really fun, having people answer questions both about the program and also just fun trivia stuff.   And so, this year is really important because 10 years ago, Linda Bloom decided that the OMS program needed a cheerleader. I feel the organization is a mouthpiece to help deliver the content and help people who have MS understand that there are thousands of us who are living better because we're self-managing through the program. So, yeah, if you would like to get involved, email fundraising@overcomingms.org. We're really excited to celebrate. We're celebrating the launch of the new brand, we're celebrating what we're moving towards in the future, and hopefully it will be another 10 years of growth and expansion, and yeah, great food and great fun.   Geoff Allix (22:28): So my next question straddles personal and professional, so you're a devout yoga and meditation practitioner, which you also teach, so could you tell us a bit about how that's helped you? How that yoga and meditation side of things has helped you, and share some tips to others about how they could get into a daily meditation practice?   Regina Beach (22:50): Yeah, for sure, so I used to teach a very yang, very physical style of yoga, the 26+2 Bikram series, which is done in a 40-degree Celsius hot room, which I can't do anymore because heat really exacerbates my symptoms, and a lot of the standing series involves so much balance that it is just out of reach for me right now. So I really have had to adjust my practice and my teaching from this really intense [inaudible 00:23:24] to a much gentler, more yin, more long hold, more floor-based yoga.   And so that was really tough for me at first, because obviously this is something I've been doing, I took my first yoga class when I was in university, I was 18 years old, it's been with me for a long time. I'm trying to see it as, I have all of these years of experience, but now I have a beginner's body where I can't necessarily do all of the things that I used to do, and I'm now reteaching myself.   And so, coming at it from that perspective, I feel has been really helpful because it's just being curious about, what can I do today? Being curious about, how does my body feel today? And leaning into that, and saying, "Okay, this is how I feel. This is what I can do. This is how much I can do." And just letting the rest go, and that's where the mindfulness and meditation come in because we cannot force ourselves to do something that we're not able to, and that doesn't necessarily have to lead to frustration. I think that piece is so crucial, when you are able to accept where you are at today, then everything just floats a little better and we're a little more at ease.   I think you can do meditation no matter what you're doing, whether you're doing yoga, whether you're just sitting mindfully, whether you're drinking tea mindfully, whether you're just taking a nice walk and observing the birds and the trees. I think all of that is just, what can I do? Where am I now? How am I feeling in my body? All of that is mindfulness.   And I'm just appreciating where I'm at, and what I can do, and moving towards little goals to improve my balance, to improve my flexibility, and not necessarily treating my old body as the goal, because I might not be able to do all of those yoga asanas in the future, and that's fine, that doesn't mean I can't deepen my practice. And for a while I was thinking, well, does this make me a terrible yoga teacher if I can't do all of these poses? And I've come to the realization that people don't actually care if their yoga teacher can do fancy arm balances, what they care about is if their yoga teacher can meet them where they're at, and help them find comfort and ease, and a little bit of stretch and relaxation in their own body. And so that's also been just a new version of my yoga practice and my yoga teaching.   Geoff Allix (26:03): Yeah. I mean, Usain Bolt's coach is not a world record runner, so you can teach without being at that level, can't you?   Regina Beach (26:13): Exactly.   Geoff Allix (26:14): So, thank you so much for joining us on the Living Well with MS Coffee Break, and allowing the community to get to know you a bit better. So there's one last question that we have that we tend to always ask people, which is, if you could tap into your experience with MS generally, and OMS specifically, for a nugget of wisdom to help people, particularly if they're new to the OMS program, what would that be?   Regina Beach (26:39): I think, really planning out who you'll tell, and how, and what you need from those people you tell is really important because, for as strong as we all are, you need a community behind you. So whether you're going to lean on your OMS Circle, or your family, or your friends, I think having a plan and knowing how you're going to react when someone doubts that what you're doing is helpful. Because I think as a newly diagnosed person, it can be really crushing to hear someone say, "Oh, there's no proof for that," or "Why are you doing that? That's pseudoscience," or whatever the negative, we always remember the negative more than the positive. And so building a community of trusted people, of people who are supporting what you're doing, and having ways to deflect any naysayers, would just go a long way because the mental health aspect of having MS is no joke and it takes a village to keep people moving forward and living well, and taking care of all of these different components of the lifestyle.   But we can do it, and we can do it together, and I think things like the podcast, and the OMS Circles, and all of the wonderful OMSers really do support one another. I think that's the best part of this program, is the community.   Geoff Allix (28:03): Thank you. And thank you very much for joining us, Regina Beach, and thank you for all your work that you do with OMS as well.   Regina Beach (28:11): Thanks, Geoff, it was great to talk to you today.   Geoff Allix (28:13): Thank you for listening to this episode of Living Well with MS Coffee Break. Please check out this episode's show notes at www.overcomingms.org/podcast. You'll find all sorts of useful links and bonus information there.   Do you have questions about this episode, or do you or someone you know want to be featured in a future Coffee Break episode? Then email us at podcast@overcomingms.org. We'd love to hear from you. You can also subscribe to the show on your favorite podcast platform, so you never miss an episode. Living Well with MS Coffee Break is kindly supported by a grant from the Happy Charitable Trust. If you'd to support the Overcoming MS charity and help keep our podcast advertising free, you can donate online at www.overcomingms.org/donate.   To learn more about Overcoming MS and its array of free content and programs, including webinars, recipes, exercise guides, OMS Circles, our global network of community support groups, and more, please visit our website at www.overcomingms.org. While you are there, don't forget to register for our monthly e-Newsletter so you can stay informed about the podcast and other news and updates from Overcoming MS. Thanks again for tuning in and see you next time.   The Living Well with MS family of podcasts is for private non-commercial use and exists to educate and inspire our community of listeners. We do not offer medical advice. For medical advice, please contact your doctor or other licensed healthcare professional. Our guests are carefully selected, but all opinions expressed are solely their own and do not necessarily reflect the views or opinions of the Overcoming MS charity, its affiliates, or staff.  

The Real Truth About Health Free 17 Day Live Online Conference Podcast
Treating Multiple Sclerosis With A Low-Fat Diet - by John McDougall, M.D

The Real Truth About Health Free 17 Day Live Online Conference Podcast

Play Episode Listen Later Jun 2, 2022 5:45


Treating Multiple Sclerosis With A Low-Fat Diet - by John McDougall, M.DJohn A. McDougall, M.D. •           http://www.drmcdougall.com•           Book - The Starch Solution: Eat the Foods You Love, Regain Your Health, and Lose the Weight for Good! John A. McDougall, M.D. a physician and nutrition expert who teaches better health through vegetarian cuisine, John A. McDougall, MD has been studying, writing, and speaking out about the effects of nutrition on disease for over 50 years. Dr. John and Mary McDougall believe that people should look and feel great for a lifetime. Unfortunately, many people unknowingly compromise their health through poor dietary habits. Dr. McDougall is the founder and director of the nationally renowned McDougall Program: a ten-day residential program that he and Mary McDougall host at a luxury resort in Santa Rosa, CA where medical miracles occur through diet and lifestyle changes. In addition to her formal training as a nurse, Mary McDougall provides many of the delicious recipes that make the McDougall Program not only possible, but also a pleasure. Dr. McDougall has cared for thousands of patients for 5 decades. His program not only promotes a broad range of dramatic and lasting health benefits but, most importantly, can also reverse serious illnesses including high blood pressure, heart disease, diabetes and others, all without the use of drugs. #JohnMcDougall #TheRealTruthAboutHealth  #WholeFood #Vegan #Vegetarian #PlantBasedNutrition  CLICK HERE - To Checkout Our MEMBERSHIP CLUB: http://www.realtruthtalks.com Social Media ChannelsFacebook: https://www.facebook.com/TRTAHConferenceInstagram : https://www.instagram.com/therealtruthabouthealth/Twitter: https://twitter.com/RTAHealthLinkedin: https://www.linkedin.com/company/the-real-truth-about-health-conference/Youtube: https://www.youtube.com/c/TheRealTruthAboutHealth    Check out our Podcasts Visit us on Apple Podcast and Itunes search:  The Real Truth About Health Free 17 Day Live Online Conference Podcast Amazon: https://music.amazon.com/podcasts/23a037be-99dd-4099-b9e0-1cad50774b5a/real-truth-about-health-live-online-conference-podcastSpotify: https://open.spotify.com/show/0RZbS2BafJIEzHYyThm83JGoogle:https://www.google.com/podcasts?feed=aHR0cHM6Ly9mZWVkcy5zaW1wbGVjYXN0LmNvbS8yM0ZqRWNTMg%3D%3DStitcher: https://www.stitcher.com/podcast/real-truth-about-health-live-online-conference-podcastAudacy: https://go.audacy.com/partner-podcast-listen-real-truth-about-health-live-online-conference-podcastiHeartRadio: https://www.iheart.com/podcast/269-real-truth-about-health-li-85932821/Deezer: https://www.deezer.com/us/show/2867272 Other Video ChannelsYoutube:  https://www.youtube.com/c/TheRealTruthAboutHealthVimeo:  https://vimeo.com/channels/1733189Rumble:   https://rumble.com/c/c-1111513Facebook:  https://www.facebook.com/TRTAHConference/videos/?ref=page_internalDailyMotion: https://www.dailymotion.com/TheRealTruthAboutHealthBitChute:  https://www.bitchute.com/channel/JQryXTPDOMih/ Disclaimer:Medical and Health information changes constantly. Therefore, the information provided in this podcast should not be considered current, complete, or exhaustive. Reliance on any information provided in this podcast is solely at your own risk. The Real Truth About Health does not recommend or endorse any specific tests, products, procedures, or opinions referenced in the following podcasts, nor does it exercise any authority or editorial control over that material. The Real Truth About Health provides a forum for discussion of public health issues. The views and opinions of our panelists do not necessarily reflect those of The Real Truth About Health and are provided by those panelists in their individual capacities. The Real Truth About Health has not reviewed or evaluated those statements or claims. 

Myelin & Melanin
Episode 155 | The Dangerous Minds of Temps: Privilege,Optics & Ableism

Myelin & Melanin

Play Episode Listen Later Jun 1, 2022 58:12


Join us as we explore the dangerous minds of temps, and the privilege that informs their delusional thinking -- from outlandish optics  to complete disability erasure. Our hearts are with the victims and families impacted by the massacre in Uvalde. --   Daana Townsend (she/her) a Professor and content creator; and Carlos Kareem Windham (they/them), a comedian, facilitator and musician -- each living with Multiple Sclerosis -- are your hosts this season and explore the intersections of race, culture, politics, disability and all the things.  Join us as we Raise the Temp! Connect with us. Instagram: Daana @retrosoul__ Carlos @elcaballonegrito Podcast Socials: Instagram: @myelinmelanin Twitter: @myelinmelanin Facebook: @myelinandmelanin Website: http://myelinandmelanin.com  

FUMS: Giving Multiple Sclerosis The Finger
FUMS 107 - MS Advocate Jenna Green

FUMS: Giving Multiple Sclerosis The Finger

Play Episode Listen Later May 31, 2022 46:49


Jenna Green worked for 15 yrs in corporate marketing, when she realized that she had to leave for the sake of her mental health! So she began working freelance - but the hustle culture, combined with chronic pain she experienced following a car accident, led her to a diagnosis of Multiple Sclerosis in 2016.On what should have been her first Tysabri infusion, she learned that her insurance wouldn't cover the treatment. This was Jenna's first experience of Step Therapy or Fail First practices - where, in order to control costs, insurance companies restrict coverage of expensive therapies unless patients have already failed treatment with a lower-cost alternative. And we all know that a failed treatment for MS means more relapses, leading to more irreparable damage, increased disability, and worse outcomes! Jenna is now a patient advocate, content creator, consultant, and public speaker. She has used her experience in marketing to help bring awareness, support, education, and community to those who live with invisible illnesses, chronic pain, and fatigue, primarily on Instagram @thejennagreen. AND she's devoted to helping to change public policy via her volunteer work with the MS Society. GO JENNA!Topics covered in this episode include:Jenna's life before her MS diagnosis, and her experience of Step Therapy or Fail First policiesHer belief that privilege equates to responsibilityThe alternative therapies that Jenna uses alongside conventional medicineHow Jenna became an MS advocate, and how this work makes her feelInformation about Jenna's exciting patient resource about Public Speaking For Patient Advocates (coming soon) Full show notes and resources at https://fumsnow.com/fums107/See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Flip Your Script
Andy Buerger: From Family Tragedy to Climbing for Hope

Flip Your Script

Play Episode Listen Later May 31, 2022 39:53


Andy Buerger's sister was diagnosed with breast cancer in 2004. Her courage and strength motivated Andy to turn his pain into a passion. He started a non-profit, Jodi's Climb for Hope, to raise money for cancer research by climbing mountains. When Andy's wife was diagnosed with Multiple Sclerosis, Climb for Hope expanded their efforts to include MS research. In this episode of Flip Your Script with Kristi Piehl, Andy talks about his climbing adventures, personal struggles and how to find your purpose. 

RealTalk MS
Episode 248: Pregnancy and MS with Dr. Annette Langer-Gould

RealTalk MS

Play Episode Listen Later May 30, 2022 32:32


Starting a family is a big step for anyone. And when you're living with MS and you're on MS medications along with other symptom management medications, planning a family creates a lot of questions about what's safe and what's not. Dr. Annette Langer-Gould, a clinician-scientist and MS specialist in the Kaiser-Permanente health system, joins me to answer questions about how to safely and successfully navigate conception, pregnancy, and the postpartum period with MS. We'll also get a briefing from Principal Investigator Dr. Jiwon Oh on the long-term extension study of Tolebrutinib, an investigational MS medication that's part of a whole new category of MS medications.  And we're sharing details of the 2022 Black MS Experience Summit, taking place June 15-16. Find out how and where to register for this free event! We have a lot to talk about! Are you ready for RealTalk MS??! I'm heading to the Consortium of MS Centers Annual Meeting   :22 Dr. Jiwon Oh discusses the long-term extension study of Tolebrutinib  1:02 The Black MS Experience Summit is happening June 15-16  11:01 Can-Do MS is hosting a webinar on "Bowel and Bladder: How to Find Confidence and Control"  12:03 Dr. Annette Langer-Gould discusses pregnancy and MS  13:01 Share this episode  31:00 Download the RealTalk MS app for your iOS or Android device   31:20 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/248 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience Can Do MS Webinar Information and Registration https://cando-ms.org/webinar iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 248 Guests: Dr. Jiwon Oh and Dr. Annette Langer-Gould Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy  

RUSK Insights on Rehabilitation Medicine
Dr. Julia Karsten: Neurorehab Part 1

RUSK Insights on Rehabilitation Medicine

Play Episode Listen Later May 26, 2022 24:12


Dr. Karsten has more than five years of clinical experience across diverse healthcare settings and currently works full-time on an acute inpatient neurorehabilitation unit, evaluating and treating adults with acquired brain injury and other neurological & complex orthopedic conditions. She also serves as a mentor to other staff members and acts as a supporting faculty member of the Neurologic Residency Program in acute inpatient rehabilitation at NYU Langone Orthopedic Hospital. Dr. Karsten has presented posters at American Physical Therapy Association meetings and also at the 5th International Gait and Balance Symposium in Multiple Sclerosis. Her Doctor of Physical Therapy degree is from Hunter College and she has achieved Board Certification in Neurologic Physical Therapy. Part 1 covers various topics, including: an average day's caseload size of patients who are being treated for an acquired brain injury or ABI; creation of a tool called the Preparedness for Caregiving Scale; kinds of skills being developed by caregivers; members of the rehabilitation team participating in caregiver training;  Care Partner Carryover Day activities; and program limitations.   

The MSing Link
64. Core Values To Thrive With MS

The MSing Link

Play Episode Listen Later May 25, 2022 23:24


What are "core values" & how can they help us in our day to day lives? This is a question that today's guest, Edie, knows well! Through Edie's love of learning she uncovered not only how knowing her core values can help improve & empower her life, but also how to help others learn their's as well. Tune in to hear Edie's best tips & resources so that you can start thriving! Edie Sohigian was diagnosed with Multiple Sclerosis on Easter Sunday in 2015. Four days before that she checked herself into the hospital because she was numb from her neck to her toes. A neurologist told her that was the only way she was going to get diagnosed. She says that her MS diagnosis saved her life. She was in a spiral of unhealthy behaviors from stress to sleep, diet, and movement. She has changed many aspects of her life since being diagnosed, but the most important is her mindset. She is still a work in progress, but the guests on her podcast, Thriving Over Surviving, are inspiring her to focus on her core values in order to live her best life. She encourages everyone to keep thriving. Find Edie on Social Media: Website - https://thrivingoversurvivingpodcast.libsyn.com Facebook - https://www.facebook.com/groups/thrivingoversurvivingms https://www.facebook.com/thrivingoversurvivingpodcast Instagram - https://www.instagram.com/thrivingoversurvivingpodcast/ Twitter - @MS_thriving Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: Gretchen@DoctorGretchenHawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

JJ Virgin Lifestyle Show
Dietary Interventions for Autoimmune Disease with Dr. Terry Wahls

JJ Virgin Lifestyle Show

Play Episode Listen Later May 25, 2022 36:24


Do profound health transformations inspire and motivate you? Then you'll want to listen to this conversation with Dr. Terry Wahls, who went from being in a wheelchair to living life as an active, busy professional. Dr. Wahls is living proof that you can change debilitating conditions like multiple sclerosis (MS) with diet and lifestyle changes. Dr. Wahls – a clinical professor of medicine at the University of Iowa Carver College of Medicine, clinical researcher, and author of several books including The Wahls Protocol® – was diagnosed with relapsing-remitting multiple sclerosis (MS) in 2000. In December 2007, she began the Wahls Protocol®. The results were stunning: Within a year, Dr. Wahls could walk without a cane. She even completed an 18-mile bicycle tour! Here, you'll learn about Dr. Wahls' TEDx talk that changed everything, her big a-ha moment that helped redesign the paleo diet, and the moment that changed everything for Dr. Wahls (and left her family in tears). Plus, you'll hear about why the Wahls Protocol® is ideal for any autoimmune condition (not just MS) and the one simple dietary strategy EVERYONE should do. JJ and Dr. Wahl also talk about the most inflammatory foods (and the best anti-inflammatory options), how The Virgin Diet and the Wahls' Protocol® overlap, the groundbreaking research Dr. Wahls is doing to challenge the conversation about MS and other autoimmune conditions, and where to start if you're just beginning the Wahls Protocol®. Whether you have MS or another autoimmune condition, or you need a big hit of inspiration, you won't want to miss this information-packed conversation where Dr. Wahl proves that with the right diet, lifestyle, and mindset, anything is possible. As a thank you for listening, you'll get Dr. Wahls' five-step process that she uses in her clinics to help patients improve their health behaviors. Get Dr. Terry's Free Guide: Introduction to the Wahls Behavior Change Model https://terrywahls.com/betterhealth/