Families for the Treatment of Hereditary Motor Neuron Disease

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Talks from a dedicated day for those affected by hereditary forms of motor neuron disease

Oxford University


    • Apr 17, 2019 LATEST EPISODE
    • infrequent NEW EPISODES
    • 35m AVG DURATION
    • 5 EPISODES


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    Latest episodes from Families for the Treatment of Hereditary Motor Neuron Disease

    The Future of Treating Genetic MND

    Play Episode Listen Later Apr 17, 2019 33:49


    Professor Kevin Talbot, University of Oxford, gives the fifth and final talk in the day's event, looking at the future of genetic MND and what the future holds for it.

    Early Genetic Trials in MND: The Sheffield SOD1 Experience

    Play Episode Listen Later Apr 17, 2019 45:01


    Professor Christopher McDermott, University of Sheffield, gives the fourth talk in the day's event, and, along with Dani Baird, a person living with MND and a participant in the SOD1 trial, discuss her experieces in the trial.

    The Value of Online Shared Experiences

    Play Episode Listen Later Apr 17, 2019 27:49


    Professor Louise Locock and Jade Howard, Univesity of Aberdeen, give the third talk in the day's event, looking at patient's experiences of motor neuron disease and how patients and families share their experiences online

    Getting Tested: Experience from the Genetic Clinic

    Play Episode Listen Later Apr 17, 2019 48:26


    Professor Anneke Lucassen, University of Southampton, gives the second talk fo the day, looking at her research and experience from studying the genetics related to MND

    What are the Issues in Familial MND?

    Play Episode Listen Later Apr 17, 2019 23:16


    Professor Martin Turner, University of Oxford, gives an introduction to the conference, and outlines some of the research his group has been doing on understanding familial MND and how they can treat it.

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