Podcasts about Motor neuron disease

In this podcast, host Dr Anna Volkmer explores the use of Lego Serious Play as a research tool / methodology in dementia and neurodegenerative disease studies. Traditionally used in therapy and organisational development, Lego Serious Play is now finding its way into the research world—helping researchers, participants, and stakeholders express complex ideas, foster collaboration, and build deeper insights (literally and metaphorically). Anna is joined by a panel of expert guests: Dr Warren Donnellan, University of Liverpool – a trained facilitator of Lego Serious Play who applies it to resilience and carer research. Dr Alys Griffiths, University of Sheffield – who has integrated the method into dementia studies and her work in Motor Neuron Disease. Dr Joe Langley, Sheffield Hallam University – known for combining design thinking and participatory research methods, including Lego Serious Play, in health and care settings. Together, they explore the origins, applications, and benefits of this playful method, share case studies, and reflect on how building with Lego can break down communication barriers and empower participants—particularly those with dementia. -- Topics covered:

Dr Michael Knopp (consultant Neurologist) is discussing about management, prognosis and recent advancements in Motor neuron disease.  

A powerful and emotional story of resilience and love.

Ransom ‘79, a two-part documentary tracking veteran journalist Charlie Bird on his last investigation and quest for the truth following his diagnosis of Motor Neuron Disease in October 2022 is set to air later this month.Joining Kieran to discuss is John Kelleher, Producer of Ransom ‘79 and Journalist and Playwright Colin Murphy.

Dr Michael Knopp , consultant neurologist , Royal Derby Hospital is discussing motor neuron disease .

Cork's Honorary French Consul Josselin Le Gall chats in studio with PJ about seeing his dad in France dying of MND and IMNDA Nurse Naomi Fitzgibbon fills PJ in what is available to families Hosted on Acast. See acast.com/privacy for more information.

https://youtu.be/r67J1gFKRF4 Watch episodes on YouTube @roodandriddle or visit us at www.rrvp.com

"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND experiences fueled the creation of a groundbreaking resource for families worldwide.  Hear how the layers of creativity, medical accuracy, and emotional authenticity make this film a vital tool for understanding ALS/MND.Meet my insightful guests — Toby Cochran, Adrian Ochoa, and Dr. Melinda Kavanaugh — who reveal the unexpected journey behind this project. Dr. Kavanaugh shares her unique path into the collaboration, while Toby and Adrian discuss how this team navigated challenges to create a story that resonates globally and transcends cultural and linguistic barriers. Their dedication ensures the film retains its heartfelt essence and medical integrity, proving invaluable for children and families.Beyond the screen, "LUKi and the Lights" is making waves with its global reach and festival appearances, even vying for Oscar consideration.   As a follow-up to this episode, we invite you to participate in a Special Virtual Screening, Tuesday, November 12th at 7pm EST, where you can connect with the creators and delve deeper into the mission of spreading ALS awareness. Join us in supporting this initiative by visiting Global Neuro YCare's website to help bring LUKi's message to families worldwide.  Thank you for sharing LUKi with your friends and family.  If it's on your heart to review this episode to help share LUKi, thank you for doing so!Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Professor Suvankar Pal (University of Edinburgh) joins Sarah Passey (Senior Editor at The Lancet Neurology) to discuss the first findings from the MND-SMART trial of treatments for motor neuron disease. The Article is published in the November issue of The Lancet Neurology.Continue this conversation on social!Follow us today at...https://twitter.com/thelancethttps://instagram.com/thelancetgrouphttps://facebook.com/thelancetmedicaljournalhttps://linkedIn.com/company/the-lancethttps://youtube.com/thelancettv

In this episode, I discuss motor neuron disease with neurologist Kevin Talbot. We explore his dual clinical and research perspectives of the disease as portrayed in his co-authored book.

A swimmer who is living with motor neurone disease (MND) is hoping to break two Guinness World Records in two countries in one day when he takes part in a special event this coming weekend. Mark O'Brien, who lives in Bedfordshire in the UK, will take part in two sprint events on Sunday – the first in London, with the second taking place in Dublin. Mark is aiming to become the record holder for the fastest swims for a person with MND. Campion Insurance & PIB Insurance Brokers are supporting Mark in his world record attempt, as he also aims to raise vital funds for Motor Neuron Disease charities. For more on this, Alan Morrissey was joined by Mark O'Brien on Monday's Morning Focus. If you would like to donate, go to: https://www.givewheel.com/fundraising/4026/guinness-world-record-attempts/

Motor neuron disease (MND) - also known as amyotrophic lateral sclerosis - is a progressive neurological condition that leads to weakness and wasting of the muscles. It is estimated that there are probably more than 2,000 Malaysians with MND, with 600 new cases diagnosed every year. We speak to Benny Ng, Chairman, and Soo Cheong Futt, Vice-Chairman, of MND Malaysia to find out how the NGO supports people living with motor neuron disease and their caregivers. Find out more about MND Malaysia's ice bucket challenge on their website, and Facebook page.Image credit: MND Malaysia Facebook

Dr Sam Moxon, narrates his blog written for Dementia Researcher. In this blog, Sam explores the potential link between diet and Motor Neuron Disease (MND). With only 10% of MND cases being genetically inherited, Sam investigates the role of environmental factors, particularly diet, in the development and management of MND. He examines various diets, including carnivore, ketogenic, paleo, Mediterranean, and vegan, evaluating their potential benefits and drawbacks. While some diets show promise in reducing oxidative stress and inflammation, the evidence remains inconclusive. Sam emphasises the need for further research to understand the impact of diet on MND and to develop personalised nutritional strategies for people at risk and those living with the disease.   Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-diet-and-motor-neuron-disease-is-there-anything-here/ -- Dr Sam Moxon is a biomaterials Research Fellow at University of Birmingham. His expertise falls on the interface between biology and engineering. His PhD focussed on regenerative medicine and he now works on trying to develop 3D bioprinting techniques with human stem cells, so that we better understand and treat degenerative diseases. Outside of the lab he hikes through the Lake District and is an expert on all things Disney. -- Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@ucl.ac.uk This podcast is brought to you in association with the NIHR, Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher

Your daily kids news podcast. Get ready for a cool story! At the Demons vs Collingwood footy match, over 88,000 fans rocked blue beanies for Neale Daniher's ‘Big Freeze at the G'. Celebrities slid into icy baths dressed as rock stars, raising a whopping $3 million for Motor Neuron Disease. Talk about a chilly way to help! Find out more or donate. Hold onto your asparagus! Jemima Packington, the world's only asparamancer, predicts England will win the UEFA Euro 2024 by tossing asparagus spears. Her veggie predictions have been spot-on before, so England's soccer fans are hoping for a magical win! Travel back in time! Scientists in Lightning Ridge, Australia, unearthed six ancient monotreme fossils, including three never-before-seen species. Imagine a mix of a platypus and echidna ruling the prehistoric world. All hail the mighty monotreme! Guess what? Adults in the USA spent a whopping $2.7 billion on toys this year! From rare Bluey coins to vintage comics, grown-ups are rediscovering the magic of playtime. Who says toys are just for kids? For the full episode notes, click here.

Miriam chats to Claire Bird about her late husband Charlie Bird and how he kept working despite his diagnosis of Motor Neuron Disease. She reminisces about their lives together and their final upcoming documentary film: ‘Ransom 79' which hits cinemas Friday 24th May.

Miriam chats to Claire Bird about her late husband Charlie Bird and how he kept working despite his diagnosis of Motor Neuron Disease. She reminisces about their lives together and their final upcoming documentary film: ‘Ransom 79' which hits cinemas Friday 24th May.

The Furber Steps are an iconic part of the UTA course in the Blue Mountains, more than 900 stairs that make up the only path to the finish line. This year, NSW Firefighters are going to climb it for 24 hours raising money for Motor Neuron Disease. And everyone is invited along, so Matt and Eugene and going to be there. We speak with the brainchild of this quad-shredding challenge, Gavin Clifton, about the event, the special nature of the steps, and how he came up with the idea. We also catch up with him about how the UTA course is holding up after recent torrential rain. Best enjoyed running!Firies Climb for MNDCurranzSCOTT Running Julbo Eyewear UltrAspireIrunfarDirt Church Radio on InstagramDirt Church Radio on Twitter Dirt Church Radio on Facebook CieleFurther Faster New ZealandSit Back and Enjoy!Music by Andrew McDowall, Digicake

A man will set off from a Toolleen hotel in central Victoria to Canberra to raise money for Motor Neuron Disease.See omnystudio.com/listener for privacy information.

Today I am joined by Katya Old from Motor Neuron Disease New Zealand, and Darren Bidois - a former New Zealand indoor cricket rep who was diagnosed with MND on his 58th birthday to peel back the layers of Motor Neuron Disease's impact in New Zealand. This is a relentless condition that knows no borders. Learn about the vital lifelines provided by organizations like MND New Zealand, and immerse yourself in the stories that underscore the resilience of those affected, like Darren. Darren candidly shares the everyday realities of living with MND. His journey is not just a battle with physical decline but a testament to the power of positivity and mental fortitude. Darren's experience is a beacon of hope and strength for many, as he and his wife, his indispensable caregiver, tackle the daily challenges with unwavering determination.  Join me in honouring the human spirit's capacity to fight and to find light, even in the darkest of times.See omnystudio.com/listener for privacy information.

When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago.  Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way.  I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity.  Then, I find out what questions my sons have for me after 20 years with ALS.  Although their questions were tough to answer, I think it was good for all of us to discuss.  I'm incredibly grateful for these bonus years since only 5% of ALS patients live longer than 20 years.  Join us for an intimate and candid conversation as we commemorate this significant milestone and look towards the future with hope & gratitude.  Help celebrate with me by sharing this episode with a friend and leaving a review wherever you listen.  Thank you for your incredible support.  Hugs, LorriI am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Akeem Gardner is the Founder and CEO of Canurta. He is an innovative entrepreneur with over five years of experience in industrial hemp enterprises. He has a proven track record in leading high-performance teams that work across multi-channel platforms and strategically aligning profitability with sustainability and economic development in Ontario. At CannMed 24 Akeem will present Effect of Cannflavins on Mitigating a Motor Neuron Disease. During our conversation we discuss: The minor molecules found in cannabis that Canurta is investigating for therapeutics Canurta's process for evaluating indications for cannflavins and polyphenols How the diverse molecules in cannabis make it a great therapeutic for multifactoral diseases like ALS The potential for cannflavins and polyphenols may be used as a anti-inflammatory nutraceutical and more Thanks to This Episode's Sponsor: American Cannabis Nurses Association ACNA is a national nursing organization whose mission is to advance excellence in cannabis nursing practice through advocacy, collaboration, education, research, and policy development. Founded in 2010, ACNA continues to work on providing its members with up-to-date cannabis information and resources to care for patients who use cannabis. Join them today at cannabisnurses.org and be a part of the change. Additional Resources Akeem on LinkedIn - Email Akeem at Akeem@Canurta.com Canurta Journal Page Register for CannMed 24 What Makes CannMed Unique and Why You Don't Want to Miss It Review the Podcast! CannMed Archive

This episode of Lessons From the Lab should make you laugh, think, and maybe cry as Drs. Devon Rubin and Danna Quan discuss various approaches to the evaluation of patients with suspected motor neuron disease. Visit our website for more information and educational materials education.aanem.org.

Ruth Fitzmaurice was the author of the book “I Found My Tribe” about finding solace in the cold waters of the Irish Sea after her husband Simon was diagnosed with Motor Neuron Disease. Ruth will speak at this year's “First Fortnight” festival in Dublin

In today's episode, we are delving into the groundbreaking world of AI art expression for those with Motor Neuron Disease (or MND) such as ALS. We spoke with guests Franklin Williams and Evan Schmidt from the AREA 23 Agency, along with Richard Cave from the MND Association. Richard Cave is a Speech and Language Therapist, working with the MND Association and also with Google, providing specialist Speech Therapy consultancy to the technology teams.He is also PhD candidate at University College London, national adviser to Royal College of Speech and Language Therapists for voice banking and 2022 Allied Professional of the Year recipient from the International Alliance of ALS/MND Associations.Then from Area 23, we have Franklin Williams and Evan Schmidt. As EVP, Executive Director of Experience Design, Franklin is an ideal blend of creativity, user experience, and technology, and has been using his passion for innovation to elevate the importance of experience design in the advertising industry for nearly 20 years. Along with Franklin we also have Evan Schmidt, Associate Creative Director (Art) at AREA 23. Evan is a dynamic creative fueled by an unwavering passion for AI art. With a background in illustration and a flair for innovation, he seamlessly integrates AI algorithms into his artistic vision, crafting visually stunning and thought-provoking pieces. Together with the team at AREA 23 an IPG Health Company, Evan helped to develop the Mind's Eye app. Mind's Eye is the world's first AI art expression tool for people with MND/ALS. As an Associate Creative Director, Evan inspires his team to embrace the transformative power of AI, creating a new era of visually captivating and intellectually stimulating experiences.In our conversation, we unravelled the journey behind Mind's Eye, exploring its purpose, unique features, and the impact it has on the lives of its users. We also uncover the synergy between Mind's Eye and the Smart Eye assistive technology partner Smartbox (who use our eye tracking to help give a voice to those who are unable to) the pivotal role of eye tracking technology, and hear inspiring user stories. Evan has an exciting call-to-action for our listeners—try Mind's Eye in Grid with a 60-day free trial for Windows or a 30-day free trial for iPad at thinksmartbox.com/try-grid. Get ready for a deep dive into the transformative realm of Mind's Eye and the evolution of human-centric AI!Links of interest: [Try it] Try Mind's Eye in Grid with a 60-day free trial:  thinksmartbox.com/try-grid [Watch] Mind's Eye: https://minds-eye.app/home/[Read] Smart Box: https://thinksmartbox.com/products/eye-gaze/[Get] Smart Eye Smart Box Case Study: https://smarteye.se/testimonials/empowering-people-with-disabilities-with-eye-tracking-technology-a-smartbox-and-smart-eye-collaboration/

Clive Svendsen, Ph.D., leads groundbreaking experiments using stem cell transplants, uncovering unexpected findings. These trials aimed at improving ALS treatments, revealed higher success with upper motor neuron transplants compared to spinal cord methods. Svendsen's exploration of cortical transplants hints at a potential breakthrough. Moreover, his study of stem cell behavior in space opens doors to exciting medical advancements. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39068]

Clive Svendsen, Ph.D., leads groundbreaking experiments using stem cell transplants, uncovering unexpected findings. These trials aimed at improving ALS treatments, revealed higher success with upper motor neuron transplants compared to spinal cord methods. Svendsen's exploration of cortical transplants hints at a potential breakthrough. Moreover, his study of stem cell behavior in space opens doors to exciting medical advancements. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39068]

Clive Svendsen, Ph.D., leads groundbreaking experiments using stem cell transplants, uncovering unexpected findings. These trials aimed at improving ALS treatments, revealed higher success with upper motor neuron transplants compared to spinal cord methods. Svendsen's exploration of cortical transplants hints at a potential breakthrough. Moreover, his study of stem cell behavior in space opens doors to exciting medical advancements. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39068]

Clive Svendsen, Ph.D., leads groundbreaking experiments using stem cell transplants, uncovering unexpected findings. These trials aimed at improving ALS treatments, revealed higher success with upper motor neuron transplants compared to spinal cord methods. Svendsen's exploration of cortical transplants hints at a potential breakthrough. Moreover, his study of stem cell behavior in space opens doors to exciting medical advancements. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39068]

Clive Svendsen, Ph.D., leads groundbreaking experiments using stem cell transplants, uncovering unexpected findings. These trials aimed at improving ALS treatments, revealed higher success with upper motor neuron transplants compared to spinal cord methods. Svendsen's exploration of cortical transplants hints at a potential breakthrough. Moreover, his study of stem cell behavior in space opens doors to exciting medical advancements. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39068]

Clive Svendsen, Ph.D., leads groundbreaking experiments using stem cell transplants, uncovering unexpected findings. These trials aimed at improving ALS treatments, revealed higher success with upper motor neuron transplants compared to spinal cord methods. Svendsen's exploration of cortical transplants hints at a potential breakthrough. Moreover, his study of stem cell behavior in space opens doors to exciting medical advancements. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39068]

Gabby and Kenny get together for a wee debrief after completing Kenny Logan's Rugby World Cup Challenge, in memory of their great friend Doddie Weir and in aid of My Name'5 Doddie Foundation. They talk about the highs and lows of the weeklong cycle-walk challenge, carrying the Ireland v Scotland Rugby World Cup match ball from Edinburgh to the game in Paris, as well as what it meant to them to meet so many people affected by Motor Neuron Disease along the way. You can still donate to this great cause by clicking here. Hosted on Acast. See acast.com/privacy for more information.

This episode is just me answering YOUR questions.  I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here.  I'm so grateful for all the questions that came in, about life, perspective, my ALS longevity, family and advice.  I love that my listeners feel comfortable asking me anything.  This was a super special experience.  I hope you enjoy and share with a friend.Connect: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en and https://twitter.com/LorrisPodcast

In this episode of Living Well with MS, Dr Jonathan White, Overcoming MS Medical Advisor who is living well with MS, welcomes Dr Jonny Acheson as our guest. Jonny Acheson is a physician who lives with Parkinson's Disease. They chat about Dr Acheson's diagnosis, the cross-over between MS and Parkinson's and the importance of healthy lifestyle to manage symptoms for neurological conditions.   Watch this episode on YouTube here. Keep reading for the key episode takeaways, which include great tips and advice for people living with MS and other neurological conditions. Questions and Timestamps: 02:54 Could you start by just giving us an introduction about yourself, your background, your personal background and what you do for a living? 05:48 What was it that initially brought you to that first consultation? 09:41 Was your consultation done any differently because of the fact that you're a doctor? 18:09 Can you explain what Parkinson's disease is? 20:44 Most people with MS are diagnosed between around the ages of 20 and 40. It's maybe slightly later in Parkinson's disease normally, is that right? 21:37 Does everybody with Parkinson's end up taking Levodo? 25:09 I know for you, exercise has become a really important part of how you manage your Parkinson's. Can you tell us about that side of things? 29:59 How has work changed for you since your diagnosis? 33:12 Do you think that Parkinson's has changed the way you are a doctor in any way? 36:06 When and how do you disclose your diagnosis to your patients? 38:52 The cross over between MS and Parkinson's lifestyle changes. 41:49 Environmental factors linked to chronic conditions. 45:33 The role of stress and how that affects you. Key Takeaways A lifechanging Diagnosis 11:07 “I was totally blindsided. I thought I had Multiple Sclerosis. I thought I had Motor Neuron Disease. I thought I had I had a brain tumor. So, for him [the doctor] to say those words [you have Idiopathic Parkinson's disease], it was life changing news, but I think he was quite sensible. He said, "take four weeks off." I think he was wise and doing that - I needed time to get my head around it. Now you don't get your head around it in four weeks, but at least you start to educate yourself about it and some things started to make sense.” Taking time off when possible to process and learn about a diagnosis can benefit your wellbeing 16:31 “There are the invisible symptoms that you don't see: the anxiety, the apathy, the problems sleeping. All that stuff is very difficult for people to understand because they don't see it. The four weeks off really helped me, and I think it taught me two things. One, this disease wasn't going to kill me. Well, not directly anyway. And secondly, that high intensity exercise of two and a half hours a week, may slow progression, and it'll certainly help you feel better and reduce your symptoms.” Find an exercise that you enjoy, that is easy and accessible to keep you motivated 27:50 “I think the difficulty is that the general population has difficulty exercising and motivating themselves to exercise. I think if you're living with a long-term neurological condition, it's so important to keep the motivation. That is really quite a challenge. I think it's about finding something that you enjoy doing. It's finding something that you'll stick at, it's something that you know that is easy, and accessible.” More info and helpful links: Read The Imaginary Patient: How Diagnosis Gets us Wrong by Jules Montague Find out more about Every Victory Counts from the David Phinney Foundation Read about Scott, a Parkinson's patient uses exercise to control his symptoms Find out more about Aerobic exercise for Parkinson's Find out more about Sport Parkinson's Jonny Acheson's art website New to Overcoming MS? visit our introductory page  Visit the Overcoming MS website  Follow us on social media: Facebook Instagram Twitter YouTube Pinterest Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. Dr Jonny Acheson's Bio: Jonny's background Jonny Acheson is an Emergency Medicine Consultant in Leicester who was diagnosed with Parkinson's in 2016 when he was 41. Originally from Northern Ireland, he moved to England in 2004 to continue his medical training. He uses his art to educate people about Parkinson's and he has recently taken up the post as Director of Engagement at the Parkinson's Excellence Network. Advocacy for Parkinson's He advocates about the importance of exercise in managing Parkinson's and is presently running a campaign to ensure people in hospital with Parkinson's get their time critical medication when they need it. Jonny's personal life He is married to Heather, and they have two children Ben (17) and Anna (12). He enjoys watching Leicester City and playing golf.

AFL Commentator for SEN and FOX, Dwayne Russell, caught up with Scott Cummings & Tim Gossage after calling the King's Birthday game yesterday between Melbourne & Collingwood, which included the ninth edition of the Big Freeze to fight Motor-Neuron Disease. Learn more about your ad choices. Visit megaphone.fm/adchoices

This week's guest is Carol Sanford, a consistently recognized disruptor & positive contrarian working with Fortune 500 & new economy executives in designing & leading systemic business change & design. She's worked with great leaders of businesses such as Google, DuPont, Intel, P&G & Seventh Generation & her award-winning books are required reading at leading business schools including Harvard, Stanford, Haas Berkeley & MIT. Our conversation covers:- What is 'regeneration' in life, business - from the work That Carol does with leaders/teams/organisations- How she helps leaders move from a behaviourist & humanist practice into a more living systems & developmental way of relating, working, being- How we stop trying to be 'heroes' and start to flow as part of a much larger 'purpose' (nature, universe)- How her maternal grandfather was half Mohawk – and how that, and other ancient wisdoms influenced her regenerative approach - How feel our way back into the way of nature and its living systems instead of trying to ‘sustain' or ‘save' the planet- Having ALS (in UK known as Motor Neuron Disease) we talk about how her regenerative approach has given her a framework for herself and those around her for the time she has left & her plans for your passing.Thank you so much Carol for your dedication to living systems, and for passing on your teachings through all your books, articles and podcasts so that we too may learn to live and work in this way in order to get back in alignment with nature and have a more hopeful existence where we work with the essence of who we are as humans in harmony with the planet.You can find our more about her work on https://carolsanford.com/And follow her on Linkedin @carolsanfordJoin Lou on LinkedinFollow her @brave_newgirl on Instagram and get her books Brave New Girl- How to be Fearless, FEAR LESS and her Internationally Bestselling book DARE TO SHARE on Amazon or Waterstones or Barnes & Noble. UK & US versions available.Lou is the founder of Brave New Girl Media, helping you become more regenerative, putting your story in the spotlight, showcasing your vision and supercharging your impact by guesting you on global podcasts  https://bravenewgirlmedia.comMusic by Melody LoopSupport the showGuest on global podcasts to increase your business growth, influence, and visibility Brave New Girl Media Dare to Share- bestselling guide to podcast guesting TAKE THE QUICK QUIZ to gain access to our FREE MASTERCLASS to become a podcast guesting pro

How do you follow the voice of spirit? In this week's episode, one of our listener's shares a story of how she listened to the voice of spirit and how she received three consecutive validations of the connections being made with her loved one in spirit. Validations such as a favorite song, a band, and a medical condition can change your life and relationship to the other side.    When spirit talks, question everything to make sure it feels right, and then be brave to take action steps with the guidance offered. Building trust with spirit may take some time and many experiences. Once you have the trust in your guidance, you will create a lasting bond with your guides and with mediumship.   Resources: Order your Beanie and Donate to Motor Neuron Disease of South Australia: https://my.mndsa.org.au https://www.mndaustralia.org.au   Join our Monthly Training Sessions or become a Psychic Evolution Mystery School Inner Eye Member here.   For further information and resources on this topic and more, visit our website here.   To listen to more episodes, head to Apple Podcasts!   Connect with Jamie and Maggie: Facebook Instagram YouTube TikTok

Regina speaks to Neil about her mother suffering with Motor Neuron Disease, Marie O'Sullivan from Breastfeeding Cork, and a chat with Glen Hansard ahead of ‘The Frames' Live at the Marquee this Summer! Tune into the Neil Prendeville Show weekdays from 9am on Cork's RedFM.

May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

Orlagh Reynolds was a messer as a child and she has retained that sense of mischief into adulthood. She loved life and life loved Orlagh back as she lived the dream. City hopping as her career developed, working her dream job, surrounded by friends and family and topped off by her husband and daughter. Orlagh was lucky and grateful.Then one day, her husband Fraser received a Motor Neuron Disease diagnosis that turned their world upside down. He was given two years to live and as the devastating news sunk in Fraser decided that something good was going to come from this diagnosis. It may have been too late for him but he was sure he was going to make a difference for future MND patients. And with that, they began to fight back!WebsiteInstagram TwitterFacebook

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Guest: Wendy Toerien is The Secretary Motor Neuron Disease Association South Africa and she joins John to discuss the support network that you can turn to if you or a loved one is coping with the illness.See omnystudio.com/listener for privacy information.

Looking for more information on this topic? Check out the Signs of Upper and Lower Motor Neuron Lesions brick. If you enjoyed this episode, we'd love for you to leave a review on Apple Podcasts.  It helps with our visibility, and the more med students (or future med students) listen to the podcast, the more we can provide to the future physicians of the world. Follow USMLE-Rx at: Facebook: www.facebook.com/usmlerx Blog: www.firstaidteam.com Twitter: https://twitter.com/firstaidteam Twitter: https://twitter.com/mesage_hub Instagram: https://www.instagram.com/firstaidteam/ YouTube: www.youtube.com/USMLERX Learn more about Rx Bricks by signing up for a free USMLE-Rx account: www.usmle-rx.com You will get 5 days of full access to our Rx360+ program, including over 800 Rx Bricks.  After the 5-day period, you will still be able to access over 150 free bricks, including the entire collections for General Microbiology and Cellular and Molecular Biology.

PJ speaks to Andrew Chambers who fears he may die before the end of the year due to Motor Neuron Disease. His life partner Sian is in Laos and cannot get a visa to join him. Hosted on Acast. See acast.com/privacy for more information.

Motor Neuron Disease (MND) is a degenerative disease that relentlessly attacks the human nervous system, deteriorating muscle function to the point where patients can no longer move, talk, eat, or even breathe. To date there's no cure, and until fairly recently there were only minimal treatments to ease the symptoms. Pam Shaw has dedicated her career to changing that. A Professor of Neurology at Sheffield University and Founding Director of the Sheffield Institute for Translational Neuroscience, she recently led clinical trials into a drug that delivered unprecedented results: showing that it could slow the progression of MND in certain patients, and even improve symptoms for some. It's just one small step – but with a new tranche of research funding and a national institute to study the disease on the cards, Pamela believes this could be the start of real progress in understanding and treating Motor Neuron Disease. Producer: Lucy Taylor

Lawrence Cowan set out in politics determined to change lives but his life took an unexpected turn when his best friend, Gordon Aikman, was diagnosed with Motor Neuron Disease. It was too late for Gordon but together they were determined to positively impact the lives of future MND sufferers.From Gordon Brown to Nicola Sturgeon, Lawrence and his friends energised Scottish politics to change Scottish Healthcare for the better, positively impacting Scottish generations to come. Their campaign was so successful Gordon's legacy was preserved when the largest lecture theatre in Edinburgh University was renamed The Gordon Aikman Lecture Theatre.Laurence's work raising funds and awareness of MND lead him to pursue a career in fundraising. He continued on to work for Breast Cancer Now and Chest, Heart and Stroke Scotland, saving countless lives in the process.Lawrence speaks with passion throughout this episode, none more so than when he speaks about his daughter who navigates the world with a visual and physical disability. Lawrence's story is the inspiration for all of us to be the change we wish to see in the world.WebsiteInstagram TwitterFacebook

Wherein I chat with the lovely Stuart Thom, now of the Royal Belfast Golf Club, about Doddie Weir, Motor Neuron Disease, and his work raising money for the "My Name'5 Doddie Foundation." The Foundation's main site is here: https://www.myname5doddie.co.uk/ If you want to get involved, there are some ideas here: https://www.myname5doddie.co.uk/fundraising-support The upcoming cycling event has details here: https://www.myname5doddie.co.uk/events/the-longest-night If you are able to help out in any way, please do! --- Support this podcast: https://anchor.fm/thescrumoftheearth/support

Waterborne diseases are on the rise in Sindh province in Pakistan where water levels are still high after record floods. BBC Urdu's Riaz Sohail visited the region and tells us about the conditions in roadside camps and a hospital in Dadu district. A recently published Motor Neuron Disease trial suggests that a new drug could make a fundamental difference for some people living with the disease. And how does healthcare work if a doctor can only be reached by boat, helicopter or plane? BBC's Marnie Chesterton went to Greenland and spoke to a healthcare worker in the small village of Narsarsuaq. Presenter: Claudia Hammond Producer: Florian Bohr (Picture: Flood-affected people on the road in Dadu city, Pakistan. Photo credit: Jan Ali Laghari/Anadolu Agency/Getty Images.)

Good News: Denmark has pledged millions to help developing nations cope with the devastations of climate disasters, Link HERE. The Good Word: A thought-provoking quote from Pericles. Good To Know: A fun little historical bit of trivia! Good News: Drug trials are offering a glimmer of hope in the fight against Motor Neuron Disease, Link […]

We've just heard the amazing story of Adeena, a young mother diagnosed three years ago with Motor Neuron Disease. We'd love to lend a hand to help her. Learn more about your ad choices. Visit megaphone.fm/adchoicesSee omnystudio.com/listener for privacy information.

We've just heard the amazing story of Adeena, a young mother diagnosed three years ago with Motor Neuron Disease. We'd love to lend a hand to help her.