Podcasts about mnd

The first part of the Analyst podcast recorded infront of a live audience at the Square Club, Bristol in aid of Syd Lawrence and his MND fund. Featuring Simon Hughes, Simon Mann and Vic Marks reliving some of their scariest experiences on the field (some involving Syd!) and in the commentary box. Includes a preview of the England v India Tests, our predictions, and stories from Vic's new book on England captains past and present. The Cricket Captains of England 1979-2025 by Vic Marks is published by Fairfield Books. In Syd's Voice: The Extraordinary Life of Dave Lawrence is also published by Fairfield Books. Both titles available to buy at fairfieldbooks.co.uk Learn more about your ad choices. Visit podcastchoices.com/adchoices

Simon Hughes and Simon Mann review the first day of the ICC World Test Championship final at Lord's - the Home of Cricket - when fourteen wickets fell for little more than 250 runs. Australia predictably have the upper hand against South Africa's makeshift batting line-up after being bundled out themselves for 212. . England's T20 series whitewash of the West Indies is also assessed. Final reminder if you want to attend our live 'Scary Moments' podcast on June 18th in Bristol in aid of Syd Lawrences's MND cause - visit - https://www.eventbrite.co.uk/e/the-analyst-inside-cricket-podcast-live-tickets-1353264403259 Learn more about your ad choices. Visit podcastchoices.com/adchoices

AFL Round 13 - Washed Up Why aren't these guys better? Charlie Curnow...it's time to start doing something else. 10% epic skill, 90% working dirty in Adelaide Michael Jordan Dawson....WOW All thanks to: Wonthaggi Toyota Inverloch Esplanade Hotel www.invyespy.com.au www.wonthaggitoyota.com.au  

Australian cricket great Mark Taylor spoke with Mark Levy ahead of the AFL's annual Big Freeze slide in support of FightMND! Taylor will be among many celebrities taking part in the event during Collingwood and Melbourne's clash at the MCG on Monday. The awareness and funds raised are all for FightMND, which was founded by Neale Daniher AO, Pat Cunningham, and the late Dr Ian Davis OAM to fight motor neurone disease (MND)!See omnystudio.com/listener for privacy information.

Monday Headlines: Scomo among hundreds on King’s Honours list, National Guard arrives in LA against anti-ICE protests, candlelight vigils held for Pheobe Bishop, a record number of young Aussies are working more than one part-time job and three quarters of Aussies don’t know their neighbours. Deep Dive: The Big Freeze is an annual event that’s become a highlight of the AFL’s King’s Birthday clash for more than a decade. It features Aussie celebrities and sport stars in blue beanies plunging into ice baths as part of the pre-match entertainment. But behind the spectacle is a powerful campaign raising awareness and funds for motor neurone disease or MND. In this episode of The Briefing, Chris Spyrou speaks with Matt Tilley, CEO of FightMND, about the origins of the Big Freeze and how it became one of Australia’s most visible health campaigns. Follow The Briefing: TikTok: @listnrnewsroom Instagram: @listnrnewsroom @thebriefingpodcast YouTube: @LiSTNRnewsroom Facebook: @LiSTNR NewsroomSee omnystudio.com/listener for privacy information.

Matt Tilley is a legend of Australian Radio, Stand-Up Comic, TV Personality and the CEO of FightMND.  Very few people have dominated the radio landscape over the past 20 years than Matt and it was an honour to sit down with him and reflect on his outstanding career.  Matt shares how an unusual moment in a urinal gave him his first start in radio and how he built his career from the ground up.  We hear about some of the famous shows he has been part of and the people he has worked with and why the landscape has shifted so much.  We laugh as we listen and react to one of Matt's famous "Gotcha Calls" and hear about some of the most uncomfortable celebrity interviews he has done over the journey...as well as the great ones!  Matt talks about why he shifted out of media and put his creative skills into use in the world of charity. He has been part of some amazing campaigns that has changed lives.  Nowadays, he is the CEO of FightMND and we hear why Melbourne is leading the way world-wide for awareness and the fight against it, as well as some incredible Neale Daniher stories.  And of course, Matt steps into the infamous confession booth with an all-time story!  We know you'll love this one with the legend that is, Matt Tilley!    Purchase your digital beanie and fight against MND - https://fightmnd.org.au/    This episode is brought to you by Fleet Plant Hire Solutions. Head to www.fph.com.au for all your earth moving needs!  Check out Australia's Leading Electrical Wholesaler - Rexel Australia  Download the rewired Rexel app in your app store today!  Look good, smell good, feel good through Milkman's grooming products! www.milkmanaustralia.com (Use the code "Dosandd" for 20% off your first order)  Have some fun in your pants with Mitch Dowd's comfiest & coolest underwear www.mitchdowd.com.au (Use the code "Dosandd40" for 40% off)  Perform at your best with Australia's best Supplements - SUP Supplements Australia | Gummy Vitamins | Collagen | Probiotics (Use the code "DOSANDD" for 30% off storewide!)  Get Readiness into your Workplace or School for higher performance through wellbeing - Home Page - Readiness    Follow us on Instagram @dosandd_  Follow us on TikTok @dosandd  Watch & Subscribe to our YouTube Channel here - Dos and D - YouTube Follow us on Facebook here - The Dos & D Show | Facebook  Questions & Enquiries - thedosanddshow@gmail.com 

It's Big Freeze 11 time and CEO of Fight MND Matt Tilley is our special guest this week. Matt was the king of Melbourne's FM breakfast timeslot not that long ago but now heads up the fight to cure the beast that is Motor Neurone Disease, working with Australian of the Year Neale Daniher and an incredible team of scientists, doctors and fundraisers. While the famous slide into the ice bath at the MCG on the King's Birthday Holiday is the focus of attention, the work to raise money and find a cure for MND happens 365 days a year. Away from work, Matt is a keen cook and passionate veggie grower - an award winning veggie grower, in fact - who shares his secret weapon for success in the garden. The Food Poll this week is a simple choice. Halloumi cheese - is it a yay or a nay? Big Freeze beanies are available at Coles, Bunnings and Shell Reddy and the new digital beanie, which you can personalise, via bigfreeze.com.au Presented by Sarah Patterson & Kevin Hillier Broadcast each Sunday on the ACE Radio Network - https://aceradio.com.au/Catch us also on:Radio 2DD - Easy Listening - On Line - https://www.2dd.online/Follow us on Facebook...https://www.facebook.com/foodbyteswithsarahpatterson/Twitter & Instagram - @sarahfoodbytesPost-production by Chris GatesforHowdy Partners Media | www.howdypartnersmedia.com.au/podcasts© 2025 See omnystudio.com/listener for privacy information.

England batter the West Indies bowlers at The Oval to complete an emphatic 3-0 series win, as England successfully reboot their one day approach. Meanwhile Virat Kohli helps Royal Challengers Bangalore to a first ever IPL triumph in Ahmedabad. Simon Hughes and Simon Mann discuss. Also a reminder of our live podcast evening on 18 June in aid of Syd Lawrence's MND fund. Tickets here - https://www.eventbrite.co.uk/e/the-analyst-inside-cricket-podcast-live-tickets-1353264403259?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl Learn more about your ad choices. Visit podcastchoices.com/adchoices

Four-time Olympian Ariarne Titmus joined Mick In The Morning as she prepares to go down the slide for Big Freeze 11 supporting Neale Daniher and the fight against MND. The swimming great talks love for the Hawks, new Tassie team, conversations with the Daniher's, rivalry against the American swim team, and so much more!See omnystudio.com/listener for privacy information.

In this powerful episode of Empowering Leaders, Luke sits down with Bec Daniher, Executive Director of Fight MND and daughter of AFL legend Neale Daniher. Recorded and released just days ahead of Big Freeze 11 on June 9, this conversation explores Bec’s personal and professional journey as she leads the fight against one of the world’s most brutal diseases — motor neurone disease (MND, better known in the USA as ALS or Lou Gehrig's disease). Bec reflects on the emotional toll of her father's ongoing battle with MND since 2013, and champions his enduring message: action over words. With over $115 million raised to date, Fight MND continues to drive vital research and awareness. Bec shares how humor, community, and collaboration fuel their mission and why she believes true leadership is about creating a better future for others. To get involved and learn more about ways to donate head to FightMND here. If you enjoy listening to the Empowering Leaders podcast, be sure to subscribe and please, if you have a moment, leave a review for us so we can reach more listeners and empower more leaders. Learn. Lead. Collaborate. Start your leadership journey today. Head to Aleda Collective to find out more about our signature, cross industry collaboration program, Aleda Connect. Curated and facilitated by experts, running for 8 fortnightly sessions, Aleda Connect is the learning experience of a life-time. Empowering Leaders is proudly partnered with Victoria University. Find more information about studying at VU here.See omnystudio.com/listener for privacy information.

Good afternoon, I'm _____ with today's episode of EZ News. Tai-Ex opening The Tai-Ex opened down 93-points this morning from last Thursday's close, at 21,253 on turnover of 6.4-billion N-T. The market bucked a regional upward trend on Thursday and ended the day marginally lower. That decline came despite other Asian indexes surging on the back of news that a U-S court ruling has blocked President Donald Trump from imposing sweeping tariffs on imports under an emergency-powers law. MND to take delivery of 42 more Abrams MBTs later this month The Ministry of National Defense is reportedly slated to take delivery of 42 more M-1-A-2-T Abrams main battle tanks later this month. Sources are being cited as saying the tanks will participate (參加) in live-fire drills scheduled to take place between June 18 and 27 at a base in Hsinchu County. The Army took delivery of it first batch of 38 Abrams tanks in December of last year. Another 28 tanks are expected to arrive in Taiwan in the first quarter of next year. The U-S State Department approved Taiwan's request to purchase 108 M-1-A-2-T tanks and related equipment in 2019. Sports body presses for apology after table tennis prodigy pulled from tournament The Sports Administration is demanding an apology from the national table tennis association after it banned Yeh Yi-tian from competing in the upcoming World Table Tennis United States Smash tournament. According to the administration, the Chinese Taipei Table Tennis Association must explain why it withdrew (退出) Yeh from the tournament in Las Vegas. The administration said it contacted the association about the matter after receiving a complaint from Yeh's coach, Chuang Chih-yuan and will now suspend all subsidies until an apology is issued. The Sports Administration is also warning that it could take steps to replace the Chinese Taipei Table Tennis Association's secretary-general if necessary. US Suspect Arrested in PetrolBomb Attack The FBI says it's investigating an attack on pro-Israel protestors in Boulder, Colorado as an act of terror. One man was taken into custody (拘留) accused of throwing Molotov cocktails at demonstrators and wounding several of them. Our US Correspondent Simon Marks reports. 200 dead in Nigeria from flooding The death toll following floods in Nigeria is continuing to rise, with officials now saying at least 200 have been killed in the catastrophe. Rainfall on thursday unleashed the devastating flood on a market town in the country, which is near a major trading and transit (運輸) hub. Authorities say, they're calling off rescue efforts, as they don't believe there are more survivors. Another 11 people were injured in the floods, and more than 3000 displaced… and two roads and bridges were also damaged in the floods. Pope Blesses Cyclists in Giro d'Italia Pope Leo XIV blessed the 159 cyclists competing in the Giro d'Italia as the three-week race's final stage began with an unprecedented ride through the Vatican gardens behind St. Peter's Basilica. Overall race leader Simon Yates and some other riders got off their bikes and walked forward to shake hands with the pope. The pope was presented with a replica (複製品) of the leader's pink jersey. He praised the riders as "role models for young people all over the world”. Leo is honoring the event and bringing it inside the Vatican in memory of Pope Francis, who died in April this year. －－－－以下訊息由 SoundOn 動態廣告贊助商提供－－－－ －挺你所想！與你一起生活的銀行－ 中國信託銀行APP超越大升級， 眾多好用功能，力挺你的金融需求！ 趕緊註冊行動銀行，就送OPENPOINT100點。 立即點擊連結看活動詳情～ https://sofm.pse.is/7nt2qz -- 【台灣虎航 台中獨家直飛名古屋】 開航價$2,399元起，中台灣虎迷每週3班直飛名古屋，說走就走！ 立即訂購：https://sofm.pse.is/7nt2qk -- Hosting provided by SoundOn

Today's episode is a closer to home. I'm opening up about Motor Neurone Disease (MND), a devastating illness that changed my family forever. In 2017, my uncle Mark lost his battle with MND, and back then, I had no idea what the disease even was.This chat is about sharing his story, raising awareness, and shining a light on the incredible work of organisations like FightMND. I'll break down what MND actually is, how it impacts not just the body but entire families, and how you can help, even in small ways.FightMND: Learn more, donate, or grab a Big Freeze 11 beanie!MND Australia: Info, support services, and research updates.

Turning Adversity into Action – Matt Gallagher's Fight Against MNDIn this powerful episode of the Inspiring Leadership Podcast, we sit down with Matt Gallagher, former Coventry rugby player and founder of the Matt Gallagher Foundation, created following his diagnosis with Motor Neurone Disease (MND) in October 2023.Rather than stepping back, Matt has taken bold steps forward—raising over £600,000 through his foundation to support research, increase awareness, and provide hands-on support to the MND community. From charity runs and rugby matches to heartfelt public speaking and community engagement, Matt's story is one of courage, resilience, and purpose.Tune in to hear how Matt is transforming personal adversity into a powerful movement of hope and solidarity.

On our latest podcast, we chat about the goings on in Weatherfield between the 5th and the 9th May 2025 (Episodes #11,561 - 11,566) A jolly May Day trip to the park takes a heartbreaking turn for Eileen this week when Julie sadly passes away. Though we've been critical in the past of Corrie bringing back this character just to kill her off, we have to admit that it's been an absolute joy seeing her on our screens again - however briefly. Pretty much everything surrounding the aftermath of her death gets a big thumbs down from us, though, from Brian jumping to the wild conclusion that Eileen bumped her off to George's farcical embalming fiasco on Friday. Also this week, Jenny bids farewell to  the Rovers (an even greater tragedy than Julie's death as far as we're concerned!), an intriguing past is teased between Mick and Kit, and James returns to the UK to collect Laila - but is Dee-Dee ready to let her go? Next up, it's The Kabin, and we chat about how Paul's MND storyline has inspired one Corrie fan to take on an incredible challenge to raise money for charity over in Australia. We finish things off with more of your listener feedback. Street Talk - 00:10:06 The Kabin - 02:25:33 Listener Questions - 02:37:34

Lukes Law - should it be a criminal offence to share videos of a tragedy?...A devastating diagnosis - helping Claire to live with MND...Digital Detox - no phone for two weeks & lots more Hosted on Acast. See acast.com/privacy for more information.

Kevin Sinfield isn't just a rugby icon. He's a man on a mission. When his best friend and teammate Rob Burrow was diagnosed with MND, everything changed. In this powerful and direct conversation, Sinfield reveals how a simple promise led to running seven marathons in seven days and raising millions for a community often overlooked.He shares raw truths about leadership, loyalty, and what it really means to give. This isn't about glory. It's about purpose, pushing limits, and standing by your mates when it matters most. Whether you lead a business, a team, or a family, this is the episode you need to hear.Real talk. Big heart. Unmissable.Powered By ActionCOACH Business Coaching: The Help You Need to Grow Your Business: https://business.actioncoach.co.uk/Take Your Business to New Heights: Book Your Spot at the UK's Biggest Business Event to hear from Global Thought Leaders and Industry Pioneers in 2026:https://thebizx.co.uk/ Hosted on Acast. See acast.com/privacy for more information.

On this week's episode of That Peter Crouch Podcast, the lads are knee-deep in Championship chaos as Crouchy, Chris, and Sids dive headfirst into the beautiful unpredictability of the Play-Offs.They explore what makes this stage of the season the most thrilling—and brutal—event in English football. With firsthand stories from their own careers, including Crouchy's brief stint at Norwich, to Sid's heartbreak at Brighton, they discuss how the psychological rollercoaster of the Play-Offs impacts clubs, fans, and players alike.From debating whether staying in the Championship is actually more fun than promotion, to reminiscing on iconic moments like Troy Deeney's miracle goal and Bobby Zamora's last-gasp winner, the episode blends nostalgia, insider insight, and hilarious tangents—including sandwich debates, shared lawn feuds, and the real meaning behind "gulf in class."Whether you're a football purist or just in it for the playoff mayhem, this episode delivers everything you love about the pod—laughs, heart, and a serious nod to what football means beyond the pitch.Chumbawamba 00:00 – Acknowledging that Ashley Cole episode title… 02:00 – Golf hole-in-one idea and potential podcast-branded hole04:20 – The Championship: best or most chaotic league in the world?06:10 – Watford in the Premier League vs. Championship11:22 – Mental health in football – Talk More Than Football campaign17:00 – Steve Sidwell on his forced retirement20:03 – Iconic Play-Off memories – Charlton vs. Sunderland23:05 – Brighton's brutal loss and the emotional impact of playoffs25:06 – Bobby Zamora's last-minute goal & legendary QPR moment29:11 – “One game away from £120 million” – The insane business side33:29 – Reading's shock Premier League run with just £2.5M spent40:07 – Will Burnley or Leeds survive the Premier League next season?Football chat? Easy. Talking about how you actually feel? That's where it gets tough. #TalkMoreThanFootball.https://www.three.co.uk/talkmorethanfootballTo donate to Sid's London Marathon challenge for BHF and MND, head over to https://gofund.me/372ef803 and #givesidsaquid. One quid is all it takes!Subscribe to https://www.youtube.com/channel/UCFULBvlxNWW8cWsrV6fGrcwFollow our Clips page https://www.youtube.com/channel/UCLNBLB3xr3LyiyAkhZEtiAA For more Peter Crouch: Twitter - https://twitter.com/petercrouch Therapy Crouch - https://www.youtube.com/@thetherapycrouch For more Chris Stark Twitter - https://twitter.com/Chris_StarkInstagram - https://www.instagram.com/chrisstark/For more Steve Sidwell Twitter - https://twitter.com/sjsidwell Instagram - https://www.instagram.com/stevesidwell14 #PeterCrouch #ThatPeterCrouchPodcast Hosted on Acast. See acast.com/privacy for more information.

On this week's episode of That Peter Crouch Podcast, Pete, Chris, and Sids dive in with some pre-marathon chat, as Sids gears up for the London Marathon with a torn calf and a point to prove. The lads rally behind him and address what turned out to be a not-so-accurate slogan—‘Quid for Sids' (actually a fiver).They unpack this week's outrageous Premier League predictions, the form of teams like Liverpool and Arsenal, and what's going on at Chelsea and Spurs. Plus, wild tangents ensue—from Jamie Vardy memes, to middle-seat van etiquette, to a riotous reinvention of football jargon with concepts like ‘false one' and ‘fraudulent five'.It's classic chaos, with hot takes on Harry Maguire up front, Rimmel London's football insight (kind of), and just enough stats to keep it somewhat legit.Chumbawamba 00:00 – Introduction to the Friday Pod01:08 – Sids reveals calf tear just weeks before the marathon03:05 – Sids commits to running the marathon despite injury05:14 – Crouch, Chris & Sids' Premier League predictions09:18 – Arsenal's Champions League chances—real or hype?11:14 – Faking Liverpool winning the title… sort of13:12 – Championship drama and promotion praise19:04 – Crouch on Harry Maguire: “Get him up front!”24:10 – Ridiculous predictions for Liverpool v Spurs31:12 – Neutral stand? Games gone. 48:10 – “Fraudulent One” and the rise of fake football positionsTo donate to Sid's London Marathon challenge for BHF and MND, head over to https://gofund.me/372ef803 and #givesidsaquid. One quid is all it takes!Subscribe to https://www.youtube.com/channel/UCFULBvlxNWW8cWsrV6fGrcwFollow our Clips page https://www.youtube.com/channel/UCLNBLB3xr3LyiyAkhZEtiAA For more Peter Crouch: Twitter - https://twitter.com/petercrouch Therapy Crouch - https://www.youtube.com/@thetherapycrouch For more Chris Stark Twitter - https://twitter.com/Chris_StarkInstagram - https://www.instagram.com/chrisstark/For more Steve Sidwell Twitter - https://twitter.com/sjsidwell Instagram - https://www.instagram.com/stevesidwell14 #PeterCrouch #ThatPeterCrouchPodcast Hosted on Acast. See acast.com/privacy for more information.

Graham LLoyd, who has lost family members to Motor Neurone DIsease, is running the London marathon for the MNDA as a triceratops! He’s walking to the starting line and on day two was greeted in Petersfield Town Square by the Mayor, Cllr Lesley Farrow and Morris Dancers, from the Victory, Mafeking and Borden and Alton Morris. Mike Waddington spoke to Ashley Morgan, the organiser, who has MND herself, Krane Norris , 'the Bag' from Alton Norris, Faye Thompson, the Town Cryer, and Graham Lloyd. #ISawTheDinosaur See omnystudio.com/listener for privacy information.

Andrew Sykes heads into the Yorkshire Dales for a few days and this episode of The Cycling Europe Podcast sees him travel from Bradford to Skipton, Appletreewick, Grassington and Buckden, via a canal and a couple of steep hills. Much of this episode, however, is given over to other cyclists who have recently contributed to the podcast in the form of a monologue. We hear from Justin Shiels about Welcome To My Garden, Neal Porter about his cycle around the coast of Britain in aid of MND and from Richard and Cath Jeffries about their winter LEJOG...

This year's AD/PD Conference was held in Vienna, Austria from the 1st to 5th April. In this second of a two-part special we bring you highlights from the last three days of the conference. The AD/PD Conference focuses on basic science and translational and clinical research bringing New insights on disease mechanisms and etiologies, the latest findings from clinical trials, innovative outlooks on therapy and prevention and advances in diagnostic markers. In this special on-location recording our guest host Dr Isabel Castanho, Instructor the Beth Israel Deaconess Medical Center (BIDMC), Harvard Medical School talks with: Dr Emma Garland, Research Associate at The University of Sheffield. An early career researcher with a focus on Alzheimer's, and an interest in protein pathogenesis, iPSC culture and inflammation in neurodegenerative disease. Susan Rohde, PhD Student at UMC Amsterdam. Susan is a Neurobiologist interested in (healthy) brain aging and related diseases, and currently work on the Dutch 100 Plus Study. Dr Martyna Matuszyk, Research Communications Officer at the Alzheimer's Society. Supporting the charity to communicate dementia research with the public, having previously completed a PhD and Postdoc working on Alzheimer's and MND. -- Here are just a few highlights from the discussion:

On this episode of That Peter Crouch Podcast, Crouchy, Chris, and Sids dive into absolute chaos. The speech-breaker game provides hilarious slurred impressions, before the lads dive in to some serious football analysis, with their unfiltered thoughts on everything from Forest's FA Cup charge to the latest Man United woes.Crouchy relives the Anfield Legends Game, and Sids goes deep with heartfelt news about his marathon fundraiser for two causes very close to his heart. To donate to Sid's London Marathon challenge for BHF and MND, head over to https://gofund.me/372ef803 and #givesidsaquid. One quid is all it takes!There's talk of semis at Wembley (yes, those ‘semis' too), Haaland's injury fallout, and the never-ending United vs City saga. And yes, there's even a debate about what football scoreline prediction counts as missionary, and which counts as ‘the wheelbarrow'.Chumbawamba 00:00:00 – Speech Breaker chaos—lads lose it laughing00:05:34 – Premier League predictions00:10:27 – Manchester Derby preview: Haaland's injury fallout00:28:14 – Sidwell speaks on his Marathon00:37:15 – Balotelli, Vinnie & Bowyer Vanarama00:39:23 – Erik Ten Haagen-DazsSubscribe to https://www.youtube.com/channel/UCFULBvlxNWW8cWsrV6fGrcwFollow our Clips page https://www.youtube.com/channel/UCLNBLB3xr3LyiyAkhZEtiAA For more Peter Crouch: Twitter - https://twitter.com/petercrouch Therapy Crouch - https://www.youtube.com/@thetherapycrouch For more Chris Stark Twitter - https://twitter.com/Chris_StarkInstagram - https://www.instagram.com/chrisstark/For more Steve Sidwell Twitter - https://twitter.com/sjsidwell Instagram - https://www.instagram.com/stevesidwell14 #PeterCrouch #ThatPeterCrouchPodcast Hosted on Acast. See acast.com/privacy for more information.

When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experiences, and the "dark ages" of health information access, drove him to action. The result? ROON.Roon addresses the three dimensions of living with ALS – medical knowledge, practical daily concerns, and the emotional/existential questions that arise. Through short, digestible videos, users can find answers to questions they might never get to ask during brief clinical appointments.This episode offers a masterclass in turning personal tragedy into purpose. Beyond highlighting a valuable resource for the ALS community, it demonstrates how technology, when designed with genuine empathy, can create what Vikram beautifully describes as "a doctor friend who has your back."Download Roon to experience this sanctuary of knowledge, where the burden of searching for reliable information is lifted, and a community of experts and fellow patients are ready to help.  Thanks for sharing with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this heartfelt episode of the Therapy Works podcast, Julia welcomes Lindsey Burrow, widow of rugby legend Rob Burrow. Lindsey discusses the challenges of coping with Rob's battle against motor neurone disease and life after his passing in June 2024. She opens up about dealing with anticipatory grief, the struggle of single parenthood, and maintaining a positive mindset. Lindsey also shares her ways of coping through exercise, the importance of communication, and the support she received from family and friends. Lindsey also sheds light on the role of unpaid carers, the importance of exercise and communication, and her efforts to continue Rob's legacy through fundraising for a specialist MND care centre and her upcoming book, 'Take Care,' which which focuses on love, resilience, and the power of family during adversity. Buy Lindsey's book: https://amzn.eu/d/epJlLxi Follow Lindsey on Instagram: @rob7lindsey 00:22 Lindsey Burrow's Story: Life with Rob Burrow 01:11 Greatest Challenges After Rob's Passing 03:03 Coping with Grief and Loss 04:25 Balancing Parenthood and Personal Grief 06:02 The Role of a Carer 15:44 Children's Grief and Resilience 29:10 Rob's Legacy and Future Plans 30:17 Writing the Book: A Therapeutic Journey 32:57 Final Thoughts Please subscribe and leave a review—it truly makes all the difference! Follow Julia at @juliasamuelmbe for more insights, tips, and conversations on life's challenges and how to improve your mental well-being. Learn more about your ad choices. Visit podcastchoices.com/adchoices

Good afternoon, I'm _____ with today's episode of EZ News. Tai-Ex opening The Tai-Ex opened down 26-points this morning from yesterday's close, at 22,245 on turnover of 4.1-billion N-T. The market closed up on Tuesday, as buying was sparked by a rally on Wall Street overnight on hopes that the U-S Federal Reserve will cut interest rates after the release of worse-than-expected retail (零售) sales data in February. MND send Quadrennial Defense Review to LY for review Defense Minister Wellington Koo is slated to meet with members of the Legislative National Defense Committee later today to answer quesitons about the Quadrennial Defense Report. The report was sent to the Legislative Yuan yesterday for review. This report focuses on the need to building strong defenses and a multilayered deterrence (威懾), while also elaborating on military cooperation with the United States. The report has to be submitted to the the Legislative Yuan within 10 months of the presidential inauguration. CDC seeing an end to flu epidemic The Centers for Disease Control says the ongoing influenza epidemic is expected to end in late March. According to the C-D-C, a total of around 108,000 outpatient and emergency visits due to flu-like illness were reported from March 9 through 15 .. .. and that figure indicate (顯示) a downward trend, but still an ongoing epidemic. The C-D-C says the most common respiratory pathogen in the community is the flu virus, with the majority being influenza type A. C-D-C Deputy Director-General Tseng Shu-hui says that the flu epidemic remains at a "critical point" and "still requires continued monitoring." UN Guterres Shocked at Israel's Gaza Strikes The United Nations Secretary General has expressed shock at the overnight Israeli attacks on Gaza. Israel launched a series of air strikes on the enclave (飛地) on Monday night ending an almost two month ceasefire. Jody Jacobs reports from New York where the Security Council ismeeting on the matter. Mali Withdraws from FrenchSpeakingCountry Alliance Mali has withdrawn from a global alliance of French-speaking countries, days after two of its neighbors took the same step. In a letter seen by The Associated Press on Tuesday, Mali's foreign ministry accused its French counterpart of “selective application of sanctions” and “contempt for Mali's sovereignty.” On Monday, the alliance's spokeswoman said Burkina Faso and Niger had also decided to remove their countries from the organization, which had already suspended the membership of the three countries over military coups in recent years. Mali, Niger and Burkina Faso are now all ruled by military juntas that have severed diplomatic ties with France and expelled (驅逐) French troops while building security partnerships with Russia instead. The three will have six months to discuss the terms of their withdrawal from the alliance before it becomes final. That was the I.C.R.T. EZ News, I'm _____. －－－－以下訊息由 SoundOn 動態廣告贊助商提供－－－－ 福斯原廠認證中古車提供一站式購車安心保障 歐洲進口跨界休旅 The T-Cross 配備 Level 2 駕駛輔助系統 限時優惠 66.8 萬起再享一年原廠保固 試駕請洽璿豐汽車 03-3349555 https://sofm.pse.is/7b22t2 -- 金融市場波動加劇，想尋找資金避風港? 00864B中信美國公債0-1，鎖定存續期小於一年的美國公債， 利率風險較小，適合資金停泊，是你進可攻、退可守的投資良選！ https://user285523.pse.is/79hhms -- Hosting provided by SoundOn

What happens when you learn that your DNA carries the same mutation that led to a loved one's battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and community can help navigate these uncertainties. Mindy also talks about her work with End the Legacy, a patient led organization dedicated to the needs and interests of the Genetic ALS & FTD community.This powerful conversation is a reminder that while genetics may shape our path, they don't define who we are. Tune in for an honest, hopeful discussion about fear, resilience and finding purpose in the face of the unknown.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Lindsey Burrow who inspired the nation caring for her late husband, the rugby league legend Rob Burrow, as he lived with MND, shares her story of love, loss, resilience and advocacy. At the age of sixteen, Connor Allen attacked his own mum and she reported him to police, but his life turned around thanks to support from his teachers at trial to become the Welsh Children's Laureate and multi-disciplinary artist. Multi-disciplinary is something I could add to John McFall's description too; former Paralympian, surgeon, and now the first person with a physical disability to be cleared to take part in a mission to the International Space Station. All that plus the Inheritance Tracks of The Crown and Chernobyl actor Jared Harris. Presenters: Nikki Bedi and Jon Kay Producer: Ben Mitchell

In this special episode we share both of our perspectives on life after a tracheostomy. Why did Jules decide to go for it? How easy is it for MA to take care of it? What has changed? All this and more. It feels good to be back!Thanks for listening. With love, Jules & MAInstagram: @teamhighoctanejulesWebsite: www.teamhighoctane.com✉️ Email us: TCS@mariaaleandra.comALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

Welcome to EP16 of Beyond The Balls! Jeff is 38, a father of two beautiful children and has Motor Neurone Disease (MND). He was diagnosed 7 months ago and his body is robbing him of his life with his family.  Chi's father also passed away at 68 from MND (Also known as ALS / Lou Gehrig's). It's a terrible disease which shuts down your nerves, but leaves you in full faculty of everything happening around you - including what's being taken away. That includes your movement, your speech, your dignity and ultimately your breathing.  It sadly is a disease that is becoming much too common. It is also incredibly poorly understood. We don't know what causes it and there is no cure, with average life expectancy from diagnosis being 2 years. So when we got introduced to Jeff and his wife Sarah, we agreed we would try to change that, to increase awareness of the disease.  Jeff & Sarah came on the podcast  to talk about what they're going through and it is one of the most profound, inspiring and heartbreaking pieces of work we could ever hope to be a part of. Jeff talks about resilience. About being grateful for a life well lived. About love. About his family. The grace in which he & Sarah have approached his diagnosis is truly, truly astounding. They are by all definitions, incredible human beings, dealt the most unfair hand in life.  We hope you can be inspired by this difficult interview.   Resource links: Jeff & Sarah's GoFundMe Learn more about MND on FightMND   Beyond the Balls is a fatherhood podcast brought to you by Jayde Couldwell and Chi Lo, a Beyond The Bump production. This podcast is targeted at dads, dads to be, their partners and anyone interested in the journey of fatherhood.  We believe that every dad wants to be the best they can be so our purpose is to entertain, educate and empower our audience. We promise to have open and honest discussions in the hope to leave you feeling more supported after every listen. Join us in celebrating the ups and downs of fatherhood today! Yeah the dads!   Follow us on Instagram: @beyondtheballs.podcast Follow Jayde on Instagram: @londonxboston Follow Chi on Instagram: @chi_lo Follow @yummmchi for some cooking adventures!   This episode is proudly sponsored by Tommee Tippee! Happy 60th Anniversary!  Tommee Tippee's award-winning bottles have been trusted by parents for over 60 years. From the self-sterilising bottle range for ultimate convenience, to the #1 Natural Start Bottle designed to make switching between breast and bottle effortless, to the Advanced Anti-Colic Bottle that's proven to ease colic, gas, and reflux, their scientifically-backed bottles support every stage of your feeding journey. Loved by parents, and we know you'll love them too.

PJ talks to taximan Derry who had a case against him thrown out in court, to Cork's Honorary French Consul Josselin Le Gall about his dad's death in France from MND, to Orla O'Donovan about a powerful new documentary on Image Abuse and Deep Fakes. And more... Hosted on Acast. See acast.com/privacy for more information.

Cork's Honorary French Consul Josselin Le Gall chats in studio with PJ about seeing his dad in France dying of MND and IMNDA Nurse Naomi Fitzgibbon fills PJ in what is available to families Hosted on Acast. See acast.com/privacy for more information.

From stroke to cancer to MND, Clive Branson's journey proves that resilience and mindset can redefine recovery. Watch his inspiring story now. The post How I Overcame Stroke, Cancer & MND – Clive Branson's Powerful Story appeared first on Recovery After Stroke.

After a recent discussion Ross Stevenson had relating to Neale Daniher, the 3AW Breakfast host has come up with an idea to honour all of the great work Daniher has done for MND. See omnystudio.com/listener for privacy information.

Actor Michael Patrick has just picked up an award for his unique portrayal of Shakespeare's Richard III, which gives the play a fresh twist inspired by his own experience of living with motor neurone disease (MND).Michael is no stranger to MND. His father died from the condition and his sister is also living with it, although drug trials for the siblings have given them more hope for the future.Also on this episode, the charity Mencap says it fears for peoples lives after the NHS dropped annual health checks for people with learning disabilities from its priorities plan.We speak with Mencap CEO, Jon Sparkes, as well as Nigel and Rahima about their experiences of the Health MOTs.And we meet Japan's Nobuyuki Tsujii, a blind pianist who's played at concert venues around the world including the Sydney Opera House.Presented by: Emma Tracey Produced by: Daniel Gordon, Alex Collins and George Sharpe Sound recording and design by: Dave O'Neill Editors: Beth Rose and Ben Mundy

Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope.  In this special episode, we're celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Because for far too long, those most impacted by ALS weren't leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but we're operating on the ALS clock—pushing for accelerated progress every single day.Today, I'm thrilled to chat with four incredible volunteers, Tim Abeska, Randy Gregory Jr., Cristy Hardin & Deb Winters about how I AM ALS continues to be driven by patient voices, advocating, empowering, and fighting to make ALS a thing of the past. We'll dive into the work of the I AM ALS Community Teams, their ongoing efforts, and how YOU can get involved in this powerful movement.So, listen in and be inspired to join these teams of patients, caregivers, and advocates who prove that the impossible is possible—every single day.  Thank you for sharing this celebration.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

نیل دانیهیر، برنده جایزه آسترالیایی سال ۲۰۲۵، می‌گوید امیدوار است این افتخار به پیشبرد تلاش‌هایش برای یافتن تداوی مریضی لاعلاج عصب‌های حرکی (MND) کمک کند. مریضی عصب‌های حرکی یک اختلال عصبی است که باعث از دست دادن تدریجی توانایی کنترول عضلات بدن می‌شود. این اسطوره فوتبال AFL در سال ۲۰۲۳ به این بیماری مبتلا شد و می‌گوید که امید، نیروی محرکه‌ای قدرتمند در فعالیت‌هایش بوده است.

On Saturday, Neale Daniher AO became the 2025 Australian of the Year. Daniher, who was an AFL player and captain, was diagnosed with motor neurone disease (MND) in 2013. Since then, he's gone on to co-found FightMND, an organisation which has raised over $115 million for research into finding a cure for MND. In today's podcast, we explain more about who Daniher who, and what he's achieved over the last decade. You can find out more about FightMND here. Hosts: Zara Seidler and Sam KoslowskiProducer: Orla Maher Want to support The Daily Aus? That's so kind! The best way to do that is to click ‘follow’ on Spotify or Apple and to leave us a five-star review. We would be so grateful. The Daily Aus is a media company focused on delivering accessible and digestible news to young people. We are completely independent. Want more from TDA?Subscribe to The Daily Aus newsletterSubscribe to The Daily Aus’ YouTube Channel Have feedback for us?We’re always looking for new ways to improve what we do. If you’ve got feedback, we’re all ears. Tell us here.See omnystudio.com/listener for privacy information.

Former AFL player and motor neurone disease (MND) advocate, Neale Daniher, is the Australian of the Year. Bec Daniher joins ABC Sport's Brett Sprigg to celebrate her father's achievement. 

In this episode of Human Endurance, we catch up with Paul Robinson a guest we had on last year. Paul is an extraordinary athlete who recently completed the world's hardest triathlon, the Arch to Arc. The race involves running 87 miles from London to Dover, swimming across the English Channel, and cycling 181 miles to Paris. Paul not only finished but also set a new men's non-wetsuit course record. Tune in as Paul shares his race experience and how he managed to physically and push through. Paul also reflects on raising £13,000 for motor neuron disease (MND) research and discusses his future athletic pursuits. (00:00) Introduction (01:14) Paul's Record-Breaking Achievement   (02:44) Reflecting on the Journey   (06:46) The Start of the Arch to Arc Challenge   (10:19) Facing the Channel Swim   (19:30) The Final Leg: Cycling to Paris   (32:17) Support Crew  (32:55) Challenges During the Run   (35:12) Blister Management and Trust in the Team   (37:02) Power Naps and Sleep Strategy   (38:25) Planning for All Eventualities   (39:42) Raising Money for MND Research   (43:15) Mental vs Physical Challenge   (45:54) Post-Race Recovery   (47:43) Shifting Focus to a sub 3 hours Marathon (50:23) Reflections on Life and Challenges   (55:54) Becoming an Open Water Coach   (58:14) Final Thoughts and Advice  

Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved hearing him talk about how fashion, music and medicine are all playing a part in the battle against ALS.For 24 years, Dr. Bedlack of the Duke ALS Clinic has been at the forefront of ALS research, driven by a childhood fascination with the brain. His journey has been marked by pivotal moments that shaped his dedication to building a program offering hope and options for ALS patients.  Here, Dr. Bedlack reflects on the significance of HOPE, not only as a treatment strategy but as a vital component of navigating life with ALS.  Dr. Bedlack also shares his learnings after studying the 62 known cases of ALS reversals.  This episode is a testament to the relentless pursuit of a brighter tomorrow, where there is a world without ALS.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

In this week's bonus episode, we take a deep dive into all things Coronation Street in 2024 - a year where the drama behind the scenes often rivalled what was playing out on screen! From the departure of producer Iain Macleod and the early releases on ITVX, to a wave of concerning press articles about the state of our beloved soap, it was certainly a bit of a challenging year to be a Corrie fan. But as always, there were plenty of moments that stood out for the right reasons. For every misstep - like the George and Glenda feud - there were episodes, stories, and characters that captured our imagination, including Paul's heartbreaking journey with MND and the chaotic antics at the Institute. We also had the multiple twists of the Joel and Lauren saga, the credulity-stretching reveal of Toyah's baby, the undeniable charm of Dorin, and of course... #Swarla. In this episode, we'll unpack everything we loved, everything that didn't quite hit the mark, and everything in between. We hope you enjoy the ride!

Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That's what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny's story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what's possible with ALS.Johnny's support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life's possibilities. Listen in and share with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Nuedexta is a combination of dextromethorphan and quinidine, and is FDA approved for treating “pseudobulbar affect” (a symptom complex where patients lose control of their laughing and crying).  Here we summarize recent trials suggesting that Nuedexta might also help bulbar function (speech, swallowing and oral secretions).  We also discuss important risks, monitoring, and insurance coverage.

In this powerful episode of the LowCarbUSA podcast, Doug Reynolds and Pam Devine sit down with Beth McNally and Matt Miernik, the couple behind T1D Nutrition, to discuss their journey with type 1 diabetes (T1D) and the transformative role of nutrition in managing the condition. Their journey began in 2015 when their son Lachlan was diagnosed with T1D at age 9. After months of frustration with conventional high-carb, insulin-heavy treatments, they adopted a very low-carb diet, which dramatically improved Lachlan's blood glucose stability and brought his A1C levels into the normal range. Now, at 18, Lachlan is a thriving athlete, and Beth and Matt are dedicated to sharing the benefits of therapeutic carbohydrate reduction with others facing similar challenges. A central theme of the conversation is the recently published Position Paper by The SMHP on therapeutic carbohydrate reduction for type 1 diabetes, to which Beth, Matt, and a team of experts have made significant contributions. This paper will revolutionize T1D management by advocating for therapeutic carbohydrate reduction as a viable, evidence-based option. It calls for healthcare providers to support patients choosing this approach and underscores the importance of continued research and education on low-carb nutritional strategies. Beth expresses her enthusiasm for the Position Paper, noting its potential to challenge current T1D care practices. With only about 17% of youth and 21% of adults meeting the American Diabetes Association's A1C target of 7.0, this paper could be a game-changer, providing clinicians with new guidelines and resources to enhance patient outcomes. It advocates for open access and support for those exploring low-carb diets as a therapeutic intervention, signaling a much-needed shift in mindset. Throughout the episode, Beth and Matt stress how this Position Paper will empower both patients and clinicians, offering a solid foundation for discussing low-carb options within healthcare teams and integrating evidence-backed guidelines into mainstream T1D care. They encourage families to share the Position Paper with their doctors, fostering more comprehensive and supportive care. The couple also reflects on their involvement in the January 2024 LowCarbUSA Boca Raton Symposium for Metabolic Health, which featured a dedicated Type 1 Day. This event assembled international experts in T1D management, including Dr. Ian Lake, Dr. Suzanne Schneider, Dr. Eric Westman, Dr. Belinda Lennerz, and Dr. Robert Cywes, who shared innovative insights into how nutrition can stabilize blood glucose levels and improve the quality of life for those with T1D. These presentations set the stage for the Position Paper and underscored the need for a low-carb approach to gain wider recognition and support within the medical community. Matt offers additional insights into why therapeutic carbohydrate reduction is so effective, explaining how reducing carbohydrate intake decreases insulin dependency, leading to more stable blood glucose levels. He compares it to "removing logs from a fire," minimizing the blood glucose fluctuations that make T1D so difficult to manage. This Position Paper will address these scientific principles, equipping clinicians with the knowledge and tools to guide their patients more effectively. Matt also discusses the phenomenon of "double diabetes," a condition where individuals with type 1 diabetes develop insulin resistance, resembling type 2 diabetes. He explains how the conventional high-carb diet paired with large insulin doses can lead to this dangerous overlap, increasing health risks and complications. By adopting a low-carb approach, insulin needs are minimized, reducing the chances of developing double diabetes and supporting better metabolic health in people with T1D. Doug and Pam share how eye-opening the Type 1 Day event was for them and other attendees, with many healthcare professionals admitting they gained more insight into T1D management in one day than they had in their entire careers.  Click here to listen and discover the latest advancements in therapeutic carbohydrate reduction. Additionally, LowCarbUSA® has released all the Dedicated Type 1 Diabetes Workshop & Presenter videos from the recent LCUSA & SMHP Symposium for Metabolic Health, held in January. This video playlist features expert presentations that explore therapeutic carbohydrate reduction, optimal protein intake, healthy fats, and low-carb strategies for T1D. Featured speakers in this series include: Dr. Èvelyne Bourdua-Roy, MD & Dr. Tro Kalayjian, DO- Workshops intro & Prevailing outcomes in T1D Beth McNally, MS MA CNS LDN - Therapeutic Carbohydrate Reduction (TCR)/Low-carb Diet Implementation for T1D Dr. Ian Lake, BSc, BM,MRCGP - Low-Carb in T1D: Getting started, troubleshooting and guidance Dr. Belinda Lennerz, MD - Medication & Technology Implementation Allison Herschede, BSN, RN, CDCES - Hormonal Challenges for Women with T1D Dr. Ian Lake, BSc, BM,MRCGP - Exercise how to & Fasting (intermittent and multi-day) Lester Hightower & Beth McNally, MS MA CNS LDN - Parents Perspective - TCR/Low-carb for Type 1 diabetes Dr. Eric Westman, MD, MHS - Standard of Care - Advances and challenges in Type 1 diabetes care Dr. Jessica Turton, PhD, MND, B.App.Sc (ExSpSc) - Current research on low-carbohydrate diets for Type 1 diabetes management Dr. Belinda Lennerz, MD - Children living with Type one Diabetes - Current and future research questions pertaining to therapeutic dietary carbohydrate reduction in children Dr. Eric Westman, MD, MHS, Dr. Jessica Turton, PhD, MND, B.App.Sc (ExSpSc), & Dr Belinda Lennerz, MD - Panel Discussion Dr. Robert Cywes, MD, PhD - Clinical implementation of low-carbohydrate diets in T1DM – experiences from adults and children Dr. Ian Lake, BSc, BM,MRCGP - Exercise and Therapeutic Carbohydrate Reduction – Current research and clinical experiences Suzanne Schneider, PhD Researcher, MSc, Bcomm - Cognitive and Psychological Implications of Carbohydrate Reduction in T1DM Dr. Robert Cywes, MD, PhD, Dr. Ian Lake, BSc, BM,MRCGP, & Suzanne Schneider, PhD Researcher, MSc, Bcomm - Panel Discussion These videos are available for free on the LowCarbUSA® YouTube channel in the "Type 1 Workshop - Symposium for Metabolic Health - Boca 2024" Playlist. Explore this valuable resource to gain insights from the leading voices in T1D management and be part of the growing community dedicated to improving outcomes for those living with type 1 diabetes. Links: T1D Nutrition website

The lads are feeling inspired after an epic cross-code weekend for the MND charity game in Leeds, before crashing back down to earth with another England loss. We break down all the weekend's matches including Ireland's patchy win over Argentina, England's defensive frailties against South Africa, and Wales' drubbing by Australia. The lads discuss who England and Wales might be approaching as their potential saviour. Plus, we look at the hype and the off-field drama from France's thriller against the All Blacks. We also cover the latest rumour around a potential global franchise competition set to shake up rugby by 2026 and what it potentially means for the sport. Learn more about your ad choices. Visit podcastchoices.com/adchoices

We're back for a bonus episode to preview England's massive showdown with South Africa. Can England handle the Bok bomb squad and hold steady in the scrum? What's the ideal bench strategy and has Borthwick made the right changes? We're also joined by Mark Mapletoft to discuss England's upcoming stars from the Under 20s and England A ahead of their clash with Australia. Plus we preview Wales vs. Australia, Ireland vs. Argentina, and France vs. New Zealand. Don't miss our live show at the Ed Slater game with rugby legends coming together to fight MND. Learn more about your ad choices. Visit podcastchoices.com/adchoices

This week, Dr Louise is joined by Nicola McFarlane, who was diagnosed with motor neurone disease (MND) in 2023. Nicola shares the story of her MND diagnosis, as well as the barriers she faced in accessing treatment for perimenopause symptoms – including low mood, anxiety and recurrent UTIs – to improve her quality of life. Nicola talks about how health professionals often put her perimenopause symptoms (which pre-dated her MND diagnosis) down to her MND, and why she is sharing her own experiences to help other women living with MND and facing hormonal changes. For more information on Newson Health, click here.

Since 2020 Taiwan's Ministry of National Defense has been reporting the number of incursions China makes by sea and air into Taiwan's Air Defense Identification Zone. These incursions now happen on a daily basis and already the tally for this year alone has surpassed the total number of occurrences that took place last year in 2023.   Related Links: https://talkingtaiwan.com/psychological-defense-and-practices-to-manage-stress-for-the-people-of-taiwan-a-talk-with-dr-hsiao-wen-lo-ep-296/   Recently, on October 14th, just days after President Lai Ching-te's Double Ten Day speech, China's military initiated the "Joint Sword-2024B" drills, a simulated blockade which took place in the Taiwan Strait and areas to the north, south and east of Taiwan. According to Taiwan's MND, a record number of 153 Chinese military aircraft were detected around Taiwan within a 25-hour period.   We've previously discussed China's gray zone military tactics and civil defense preparedness, on this podcast, but just as important is something called psychological defense.   In July we brought Talking Taiwan to the 53rd annual Taiwanese American Conference, East Coast that was held at West Chester University. I sat down with Dr. Hsiao-Wen Lo (駱筱雯) who spoke at the conference about Psychological Defense for the People of Taiwan.   We also got into a discussion about the related topics of trauma and practices to manage stress and maintain good mental health.   This episode is sponsored in part by the Taiwanese American Council of Greater New York.   Here's a little preview of what we talked about in this podcast episode: ·   How Dr. Lo got interested in psychological defense ·   What is psychological defense ·   The importance of the mind-body connection ·   Types of trauma: psychological trauma, generational trauma, collective trauma ·   What is psychological warfare ·   The Chinese People's Liberation Army's psychological warfare tactics ·   The impact of long-term stress ·   Post traumatic growth ·   Fight or Flight states ·   Strategies to deal with stress ·   The erasure of Taiwan by China   Related Links: https://talkingtaiwan.com/psychological-defense-and-practices-to-manage-stress-for-the-people-of-taiwan-a-talk-with-dr-hsiao-wen-lo-ep-296/

"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND experiences fueled the creation of a groundbreaking resource for families worldwide.  Hear how the layers of creativity, medical accuracy, and emotional authenticity make this film a vital tool for understanding ALS/MND.Meet my insightful guests — Toby Cochran, Adrian Ochoa, and Dr. Melinda Kavanaugh — who reveal the unexpected journey behind this project. Dr. Kavanaugh shares her unique path into the collaboration, while Toby and Adrian discuss how this team navigated challenges to create a story that resonates globally and transcends cultural and linguistic barriers. Their dedication ensures the film retains its heartfelt essence and medical integrity, proving invaluable for children and families.Beyond the screen, "LUKi and the Lights" is making waves with its global reach and festival appearances, even vying for Oscar consideration.   As a follow-up to this episode, we invite you to participate in a Special Virtual Screening, Tuesday, November 12th at 7pm EST, where you can connect with the creators and delve deeper into the mission of spreading ALS awareness. Join us in supporting this initiative by visiting Global Neuro YCare's website to help bring LUKi's message to families worldwide.  Thank you for sharing LUKi with your friends and family.  If it's on your heart to review this episode to help share LUKi, thank you for doing so!Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

This podcast hit paid subscribers' inboxes on Sept. 15. It dropped for free subscribers on Sept. 22. To receive future pods as soon as they're live, and to support independent ski journalism, please consider an upgrade to a paid subscription. You can also subscribe to the free tier below:WhoKelly Pawlak, President & CEO of the National Ski Areas Association (NSAA)Recorded onAugust 19, 2024About the NSAAFrom the association's website:The National Ski Areas Association is the trade association for ski area owners and operators. It represents over 300 alpine resorts that account for more than 90% of the skier/snowboarder visits nationwide. Additionally, it has several hundred supplier members that provide equipment, goods and services to the mountain resort industry.NSAA analyzes and distributes ski industry statistics; produces annual conferences and tradeshows; produces a bimonthly industry publication and is active in state and federal government affairs. The association also provides educational programs and employee training materials on industry issues including OSHA, ADA and NEPA regulations and compliance; environmental laws and regulations; state regulatory requirements; aerial tramway safety; and resort operations and guest service.NSAA was established in 1962 and was originally headquartered in New York, NY. In 1989 NSAA merged with SIA (Snowsports Industries America) and moved to McLean, Va. The merger was dissolved in 1992 and NSAA was relocated to Lakewood, Colo., because of its central geographic location. NSAA is located in the same office building as the Professional Ski Instructors of America and the National Ski Patrol in Lakewood, Colo., a suburb west of Denver.Why I interviewed herA pervasive sub-narrative in American skiing's ongoing consolidation is that it's tough to be alone. A bad winter at a place like Magic Mountain, Vermont or Caberfae Peaks, Michigan or Bluewood, Washington means less money, because a big winter at Partner Mountain X across the country isn't available to keep the bank accounts stable. Same thing if your hill gets chewed up by a tornado or a wildfire or a flood. Operators have to just hope insurance covers it.This story is not entirely incorrect. It's just incomplete. It is harder to be independent, whether you're Jackson Hole or Bolton Valley or Mount Ski Gull, Minnesota. But few, if any, ski areas are entirely and truly alone, fighting on the mountaintop for survival. Financially, yes (though many independent ski areas are owned by families or individuals who operate one or more additional businesses, which can and sometimes do subsidize ski areas in lean or rebuilding years). But in the realm of ideas, ski areas have a lot of help.That's because, layered over the vast network of 500-ish U.S. mountains is a web of state and national associations that help sort through regulations, provide ideas, and connect ski areas to one another. Not every state with ski areas has one. Nevada's handful of ski areas, for example, are part of Ski California. New Jersey's can join Ski Areas of New York, which often joins forces with Ski Pennsylvania. Ski Idaho counts Grand Targhee, Wyoming, as a member. Some of these associations (Ski Utah), enjoy generous budgets and large staffs. Others (Ski New Hampshire), accomplish a remarkable amount with just a handful of people. But layered over them all – in reach but not necessarily hierarchy – is the National Ski Areas Association. The NSAA helps ski areas where state associations may lack the scale, resources, or expertise. The NSAA organized the united, nationwide approach to Covid-era operations ahead of the 2020-21 ski season; developed and maintained the omnipresent Skier Responsibility Code; and help ski areas do everything from safely operate chairlifts and terrain parks to fend off climate change. Their regional and national shows are energetic, busy, and productive. Top representatives – the sorts of leaders who appear on this podcast - from every major national or regional ski area are typically present.This support layer, mostly invisible to consumers, is in some ways the concrete holding the nation's ski areas together. Most of even the most staunchly independent operators are members. If U.S. skiing were really made up of 500 ski areas trying to figure out snowmaking in 500 different ways, then we wouldn't have 500 ski areas. They need each other more than you might think. And the NSAA helps pull them all together.What we talked aboutLow natural snow, strong skier visits – the paradox of the 2023-24 ski season; ever-better snowmaking; explaining the ski industry's huge capital investments over recent years; European versus American lift fleets; lift investments across America; when it's time to move on from your dream job; 2017 sounds like yesterday but it may as well have been 1,000 years ago; the disappearing climate-change denier; can ski areas adapt to climate change?; the biggest challenges facing the NSAA's next leader, and what qualities that leader will need to deal with them; should ski areas be required to report injuries?; operators who are making progress on safety; are ski area liability waivers in danger?; the wild cost of liability insurance; how drones could help ski area safety; why is skiing still so white, even after all the DE&I?; why youth skier participation as a percentage of overall skier visits has been declining; and the enormous potential for indoor skiing to grow U.S. participation.Why I thought that now was a good time for this interviewFirst, Pawlak announced, in May, that she would step down from her NSAA role whenever the board could identify a capable replacement. She explains why on the podcast, but hers has been a by-all-accounts successful seven-year run amidst and through rapid and irreversible industry change – Covid, consolidation, multi-mountain passes, climate change, skyrocketing costs, the digitization of everything – and it was worth pausing to reflect on all that the NSAA had accomplished and all of the challenges waiting ahead.Second, our doomsday instincts keep running up against this stat: despite a fairly poor winter, snow-wise, the U.S. ski industry racked up the fifth-most skier visits of all time during its 2023-24 campaign. How is that possible, and what does it mean? I've explored this a little myself, but Pawlak has access to data that I don't, and she adds an extra dimension to our analysis.And this is true of so many of the topics that I regularly cover in this newsletter: capital investment, regulation, affordability, safety, diversity. This overlap is not surprising, given my stated focus on lift-served skiing in North America. Most of my podcasts bore deeply into the operations of a single mountain, then zoom out to center those ski areas within the broader ski universe. When I talk with the NSAA, I can do the opposite – analyze the larger forces driving the evolution of lift-served skiing, and see how the collective is approaching them. It's a point of view that very few possess, and even fewer are able to articulate. Questions I wish I'd askedWe recorded this conversation before POWDR announced that it had sold Killington and Pico, and would look to sell Bachelor, Eldora, and Silver Star in the coming months. I would have loved to have gotten Pawlak's take on what was a surprise twist in skiing's long-running consolidation.I didn't ask Pawlak about the Justice Department's investigation into Alterra's proposed acquisition of Arapahoe Basin. I wish I would have.What I got wrongI said that Hugh Reynolds was “Big Snow's head of marketing.” His actual role is Chief Marketing Officer for all of Snow Partners, which operates the indoor Big Snow ski area, the outdoor Mountain Creek ski area, and a bunch of other stuff.Podcast NotesOn specific figures from the Kotke Report:Pretty much all of the industry statistics that I cite in this interview come from the Kotke Demographic Report, an annual end-of-season survey that aggregates anonymized data from hundreds of U.S. ski areas. Any numbers that I reference in this conversation either refer to the 2022-23 study, or include historical data up to that year. I did not have access to the 2023-24 report until after our conversation.Capital expendituresPer the 2023-24 Kotke Report:Definitions of ski resort sizesAlso from Kotke:On European lift fleets versus AmericanComparing European skiing to American skiing is a bit like comparing futbol to American football – two different things entirely. Europe is home to at least five times as many ski areas as North America and about six times as many skiers. There are ski areas there that make Whistler look like Wilmot Mountain. The food is not only edible, but does not cost four times your annual salary. Lift tickets are a lot cheaper, in general. But it snows more, and more consistently, in North America; our liftlines are more organized; and you don't need a guide here to ski five feet off piste. Both are great and annoying in their own way. But our focus of difference-ness in this podcast was between the lift fleets on each continent. In brief, you're far more likely to stumble across a beefcaker on a random Austrian trail than you are here in U.S. America. Take a look at skiresort.info's (not entirely accurate but close enough), inventory of eight-place chairlifts around the world:On “Waterville with the MND lift”Pawlak was referring to Waterville Valley's Tecumseh Express, built in 2022 by France-based MND. It was the first and only lift that the manufacturer built in the United States prior to the dissolution of a joint venture with Bartholet. While MND may be sidelined, Pawlak's point remains valid: there is room in the North American market for manufacturers other than Leitner-Poma and Doppelmayr, especially as lift prices continue to escalate at amazing rates.On my crankiness with “the mainstream media” and climate changeI kind of hate the term “mainstream media,” particularly when it's used as a de facto four-letter word to describe some Power Hive of brainwashing elitists conspiring to cover up the government's injection of Anthrax into our Honey Combs. I regret using the term in our conversation, but sometimes in the on-the-mic flow of an interview I default to stupid. Anyway, once or twice per year I get particularly bent about some non-ski publication framing lift-served skiing as an already-doomed industry because the climate is changing. I'm not some denier kook who's stockpiling dogfood for the crocodile apocalypse, but I find this narrative stupid because it's reductive and false. The real story is this: as the climate changes, the ski industry is adapting in amazing and inventive ways; ski areas are, as I often say, Climate Change Super Adapters. You can read an example that I wrote here.On the NSAA's Covid responseThere's no reason to belabor the NSAA's Covid response – which was comprehensive and excellent, and is probably the reason the 2020-21 American ski season happened – here. I already broke the whole thing down with Pawlak back in April 2021. She also joined me – somewhat remarkably, given the then-small reach of the podcast – at the height of Covid confusion in April 2020 to talk through what in the world could possibly happen next.On The Colorado Sun's reporting on ski area safety and the NSAA's safety reportThe Colorado Sun consistently reports on ski area safety, and the ski industry's resistance to laws that would compel them to make injury reports public. I asked Pawlak about this, citing, specifically, this Sun article From April 8, 2024:[13-year-old] Silas [Luckett] is one of thousands of people injured on Colorado ski slopes every winter. With the state's ski hills posting record visitation in the past two seasons — reaching 14.8 million in 2022-23 — it would appear that the increasing frequency of injuries coincides with the rising number of visits. We say “appear” because, unlike just about every other industry in the country, the resort industry does not disclose injury data. …Ski resorts do not release injury reports. The ski resort industry keeps a tight grasp on even national injury data. Since 1980, the National Ski Areas Association provides select researchers with injury data for peer-reviewed reports issued every 10 years by the National Ski Areas Association. The most recent 10-year review of ski injuries was published in 2014, looking at 13,145 injury reports from the 2010-11 ski season at resorts that reported 4.6 million visits.The four 10-year reports showed a decline in skier injuries from 3.1 per 1,000 visitors in 1980-81 to 2.7 in 1990-91 to 2.6 in 2000-01 to 2.5 in 2010-11. Snowboarder injuries were 3.3 in 1990, 7.0 in 2000 and 6.1 in 2010.For 1990-91, the nation's ski areas reported 46.7 million skier visits, 2000-01 was 57.3 million and 2010-11 saw a then all–time high of 60.5 million visits. …The NSAA's once-a-decade review of injuries from 2020-21 was delayed during the pandemic and is expected to land later this year. But the association's reports are not available to the public [Pawlak disputes this, and provided a copy of the report to The Storm – you can view it here].When Colorado state Sen. Jessie Danielson crafted a bill in 2021 that would have required ski areas to publish annual injury statistics, the industry blasted the plan, arguing it would be an administrative burden and confuse the skiing public. It died in committee.“When we approached the ski areas to work on any of the details in the bill, they refused,” Danielson, a Wheat Ridge Democrat, told The Sun in 2021. “It makes me wonder what it is that they are hiding. It seems to me that an industry that claims to have safety as a top priority would be interested in sharing the information about injuries on their mountains.”The resort industry vehemently rebuffs the notion that ski areas do not take safety seriously.Patricia Campbell, the then-president of Vail Resorts' 37-resort mountain division and a 35-year veteran of the resort industry, told Colorado lawmakers considering the 2021 legislation that requiring ski resorts to publish safety reports was “not workable” and would create an “unnecessary burden, confusion and distraction.”Requiring resorts to publish public safety plans, she said, would “trigger a massive administrative effort” that could redirect resort work from other safety measures.“Publishing safety plans will not inform skiers about our work or create a safer ski area,” Campbell told the Colorado Senate's Agriculture and Natural Resources Committee in April 2021.On ASTM International Pawlak refers to “ASTM International” in the podcast. That is an acronym for “American Society for Testing and Materials,” an organization that sets standards for various industries. Here's an overview video that most of you will find fairly boring (I do, however, find it fascinating that these essentially invisible boards operate in the background to introduce some consistency into our highly confusing industrialized world):On Mammoth and Deer Valley's “everyone gets 15 feet” campaignThere's a cool video of this on Deer Valley's Instapost that won't embed on this page for some reason. Since Alterra owns both resorts, I will assume Mammoth's campaign is similar.On Heavenly's collision prevention programMore on this program, from NSAA's Safety Awards website:Heavenly orchestrated a complex collision prevention strategy to address a very specific situation and need arising from instances of skier density in certain areas. The ski area's unique approach leveraged detailed incident data and distinct geographic features, guest dynamics and weather patterns to identify and mitigate high-risk areas effectively. Among its efforts to redirect people in a congested area, Heavenly reintroduced the Lakeview Terrain Park, added a rest area and groomed a section through the trees to attract guests to an underutilized run. Most impressively, these innovative interventions resulted in a 52% year-over-year reduction of person-on-person collisions. Judges also appreciated that the team successfully incorporated creative thinking from a specialist-level employee. For its effective solutions to reduce collision risk through thoughtful terrain management, NSAA awarded Heavenly Mountain Resort with the win for Best Collision Prevention Program.On the Crested Butte accidentPawlak and I discuss a 2022 accident at Crested Butte that could end up having lasting consequences on the ski industry. Per The Colorado Sun:It was toward the end of the first day of a ski vacation with their church in March 2022 when Mike Miller and his daughter Annie skied up to the Paradise Express lift at Crested Butte Mountain Resort. The chair spun around and Annie couldn't settle into the seat. Mike grabbed her. The chair kept climbing out of the lift terminal. He screamed for the lift operator to stop the chair. So did people in the line. The chair kept moving. Annie tried to hold on to the chair. Mike tried to hold his 16-year-old daughter. The fall from 30 feet onto hard-packed snow shattered her C7 vertebrae, bruised her heart, lacerated her liver and injured her lungs. She will not walk again. The Miller family claims the lift operators were not standing at the lift controls and “consciously and recklessly disregarded the safety of Annie” when they failed to stop the Paradise chair. In a lawsuit the family filed in December 2022 in Broomfield County District Court, they accused Crested Butte Mountain Resort and its owner, Broomfield-based Vail Resorts, of gross negligence and “willful and wanton conduct.”In May, the Colorado Supreme Court ruled on the incident, per SAM:In a 5-2 ruling, the Colorado Supreme Court found that liability waivers cannot be used to protect ski areas from negligence claims related to chairlift accidents. The decision will allow a negligence per se claim brought against Vail Resorts to proceed in the district courts.The decision, however, did not invalidate all waivers, as the NSAA clarified in the same SAM article:There was concern among outdoor activity operators in Colorado that the case might void liability waivers altogether, but the narrow scope of the decision has largely upheld the use of liability waivers to protect against claims pertaining to inherent risks.“While the Supreme Court carved out a narrow path where releases of liability cannot be enforced in certain, unique chairlift incidents, the media downplayed, if not ignored, a critical part of the ruling,” explained Dave Byrd, the National Ski Areas Association's (NSAA) director of risk and regulatory affairs. “Plaintiffs' counsel had asked the [Colorado] Supreme Court to overturn decades of court precedent enforcing the broader use of ALL releases in recreation incidents, and the court unanimously declined to make such a radical change with Colorado's long-standing law on releases and waivers—and that was the more important part of the court's decision from my perspective.”The Colorado Supreme Court's ruling “express[es] no view as to the ultimate merit of the claim,” rather it allows the Millers' claim to proceed to trial in the lower courts. It could be month or years before the lawsuit is concluded.On me knowing “all too well what it's like to be injured on a ski trip”Boy do I ever:Yeah that's my leg. Ouch.Don't worry. I've skied 102 days since that mangling.Here's the full story.On “Jerry of the Day”I have conflicted feelings on Jerry of the Day. Some of their posts are hilarious, capturing what are probably genuinely good and seasoned skiers whiffing in incredible fashion:Some are just mean-spirited and stupid:Funny I guess if you rip and wear it ironically. But it's harder to be funny than you may suppose. See The New Yorker's cloying and earnest (and never-funny), Shouts & Murmurs column.On state passport programsState passport programs are one of the best hacks to make skiing affordable for families. Run by various state ski associations, they provide between one and three lift tickets to every major ski area in the state for some grade range between third and fifth. A small administrative fee typically applies, but otherwise, the lift tickets are free. In most, if not all, cases, kids do not need to live in the state to be eligible. Check out the programs in New Hampshire, Vermont, New York, and Utah. Other states have them too – use the Google machine to find them.The Storm explores the world of lift-served skiing year-round. Join us.The Storm publishes year-round, and guarantees 100 articles per year. This is article 58/100 in 2024, and number 558 since launching on Oct. 13, 2019. Get full access to The Storm Skiing Journal and Podcast at www.stormskiing.com/subscribe