Podcasts about mnd

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Best podcasts about mnd

Latest podcast episodes about mnd

The FitMIND FitBODY Podcast
Episode 676 - From Hating Running to Chasing the Impossible with Frank Collins

The FitMIND FitBODY Podcast

Play Episode Listen Later Sep 14, 2026 75:35


Frank Collins hated running growing up. These days, he seems to have a habit of looking for running challenges that appear slightly ridiculous and thinking, that sounds good.

LMFM Late Lunch
The Lite Lunch, Monday, September 7th 2026

LMFM Late Lunch

Play Episode Listen Later Sep 8, 2026 41:08


On today's Lite Lunch with Andrea Hayes: An appeal after a 15 year old was diagnosed with MND, Pete the Vet talks Pete the Man and much more Hosted on Acast. See acast.com/privacy for more information.

Robin, Terry & Bob
BRISBANE EXCLUSIVE: Jai Arrow Talks Running On To The Field For The Last Time

Robin, Terry & Bob

Play Episode Listen Later Sep 8, 2026 15:33 Transcription Available


Following a heartbreaking 2026 with the diagnosis of MND, ending his Rugby League career immediately, Jai Arrow was permitted two more walk-ons with the team in the final two rounds of the NRL season - allowing him to reach the 100 game milestone with his beloved South Sydney Rabbitohs. Emotional scenes played out in Sydney as that happened - Robin, Kip & Corey speak to Jai about what that moment meant, how he is progressing and how Jai & his wife Berina are handling Jai's public, yet private health battle...See omnystudio.com/listener for privacy information.

SBS Croatian - SBS na hrvatskom
Bolest motoričkih neurona sve češća, a uzrok i dalje nepoznat

SBS Croatian - SBS na hrvatskom

Play Episode Listen Later Sep 7, 2026 9:38


Znate li koja bolest u Australiji svake godine odnese gotovo 800 života i čiji broj oboljelih stalno raste? Riječ je o bolesti od koje boluju brojne svjetski poznate osobe i koju podržavaju poznati pokrovitelji, no još uvijek ne znamo zašto većina slučajeva nastaje. Nova istraživanja bolesti motoričkih neurona, odnosno MND-a, otkrila su područja Australije s neobično visokim stopama obolijevanja što je Novi Južni Wales potaknulo na osnivanje prvog registra MND-a u svijetu.

wales mnd motori bolest znate rije australiji australije
SBS Sinhala - SBS සිංහල වැඩසටහන
හදිසියේම මාස ගණනකට අපේ ජීවිතය කෙටි කරන MND රෝගය ගැන නොදන්න තොරතුරු මෙන්න

SBS Sinhala - SBS සිංහල වැඩසටහන

Play Episode Listen Later Sep 7, 2026 12:06


මොළයේ සහ සුෂුම්නාවේ ස්නායු වලට හානි සිදු කරන Motor neurons disease හෙවත් MND තත්වය සම්බන්ධයන් වන සාකච්ඡාවට සවන් දෙන්න

Desert Island Discs
Professor Dame Pamela Shaw

Desert Island Discs

Play Episode Listen Later Sep 6, 2026 52:10


Professor Dame Pamela Shaw is a pioneering Neurologists and a leading figure in tackling motor neurone disease or MND. She is the founder and Director of SITran – the World leading Sheffield Institute for Translational Neuroscience, which is slowly but surely unlocking the secrets of MND and other devastating neurological conditions. Pam was born in Rothbury, Northumberland, in 1955, and at three moved to Kuwait when her father took up the position of harbour master. She lived there until she was eleven, but with no suitable secondary school available locally, she was sent back to Northumberland to board at Our Lady's Convent High School in Alnwick. She studied medicine at Newcastle University and began her clinical training in the North-east. Following her appointment as a consultant neurologist she developed an interest in Motor Neurone Disease. A chance meeting with a recently dignosed MND patient led to Pam founding the Sheffield Institute for Translational Neuroscience in 2010. She was made a Dame in 2014. Pam lives in Sheffield with her husband Paul. They have a grown-up daughter, Sophie. DISC ONE: Messiah HWV 56, "Hallelujah Chorus". Composed by George Frideric Händel and performed by The London Philharmonic Orchestra, The London Philharmonic Chorus, conducted by Douglas Gamley DISC TWO: Somethin' Stupid - Frank Sinatra / Nancy Sinatra DISC THREE: Both Sides Now - Joni Mitchell DISC FOUR: Clarinet Concerto in A Major, K.622: II. Adagio. Composed by Wolfgang Amadeus Mozart and performed by Thea King (clarinet), English Chamber Orchestra, conducted by Alun Francis DISC FIVE: Sweet and Dandy - Toots and the Maytals DISC SIX: The Marriage of Figaro / "Duettino" Sull 'Aria. Composed by Wolfgang Amadeus Mozart and performed by Edith Mathis, Gundula Janowitz (sopranos) The Orchestra of Deutsche Oper Berlin, conducted by Karl Böhm DISC SEVEN: Ashokan Farewell - The Band of H.M. Royal Marines DISC EIGHT: The Lucky One - Alison Krauss & Union StationBOOK CHOICE: Kristin Hannah Collection LUXURY ITEM: Roses CASTAWAY'S FAVOURITE: Clarinet Concerto in A Major, K.622: II. Adagio. Composed by Wolfgang Amadeus Mozart and performed by Thea King (clarinet), English Chamber Orchestra, conducted by Alun Francis Presenter: Lauren Laverne Producer: Tom Alban Desert Island Discs has cast away many medical scientists over the years, including Stephen Westaby, Professor Dame Lesley Regan and David Nott. You can hear their programmes if you search through BBC Sounds or our own Desert Island Discs website.

Dirt Church Radio
The 2026 Firies Climb For MND | DCR AidStation 060

Dirt Church Radio

Play Episode Listen Later Sep 4, 2026 75:13


Community gets bandied around too much these days. Everything is a community, even though around us our worlds get smaller, our networks become increasingly online, and our horizons narrow. Even accounting for our jaundiced views, this weekend was a true display of what community can and should be. MND sucks; this has been established. The fight that people like Professor Dominic Rowe, Gavin Clifton, Matt Pridham, and others are waging against this disease, and the advocacy for the community affected by it, are staggering. There are lots of serious discussions in this podcast; however, there is also lightness, hope, humour, and fun. Please enjoy our conversations with the aforementioned above, plus Rob Philpott, Fionn Curran, Sarah Jenkins, and current Firies Climb course record holder Jess. Dirt Church Radio – Best Enjoyed Running.--- --- ---Episode LinksFiries Climb For MNDSign up for the DCR AidStation newsletter and never miss an episode! Join us today.Dirt Church Radio on InstagramDirt Church Radio on FacebookFurther Faster New ZealandEnjoy!Music and editing by Andrew McDowall, Digicake

SBS Dutch - SBS Dutch
Het risico op MND in jouw woonplaats: 'Australiërs zouden geschokt zijn'

SBS Dutch - SBS Dutch

Play Episode Listen Later Sep 4, 2026 7:42


Welke ziekte heeft een jaarlijks sterftecijfer dat twee derde bedraagt van het aantal verkeersdoden in Australië, en komt steeds vaker voor? De aandoening heeft talloze bekende patiënten en ambassadeurs, zowel in Australië als wereldwijd, maar we weten nog steeds niet waardoor de ziekte ontstaat. Onderzoek naar motorneuronziekte - in het kort MND - laat zien dat er in Australië clusters zijn, waardoor één staat een wereldprimeur heeft ingevoerd.SBS Dutch, iedere woensdag en zaterdag om 11AM op SBS2. Meer op onze website of abonneer je op onze feed in Spotify of Apple Podcast.

CReATe Connect Podcast
ALS Untangled Series Ep. 68 - Pyridostigmine

CReATe Connect Podcast

Play Episode Listen Later Sep 3, 2026 10:09 Transcription Available


Pyridostigmine enhances neuromuscular transmission and is commonly used to treat myasthenia gravis. The effect of pyridostigmine in slowing ALS progression is uncertain. Here we discuss the potential mechanisms, cases, clinical trial data, and potential risks. 

SBS Polish - SBS po polsku
Choroba neuronu ruchowego: dlaczego w niektórych regionach Australii jest jej więcej?

SBS Polish - SBS po polsku

Play Episode Listen Later Sep 3, 2026 8:33


Choroba neuronu ruchowego (MND, znana też jako stwardnienie boczne zanikowe łac. sclerosis lateralis amyotrophica SLA), zabija w Australii coraz więcej osób, a naukowcy wciąż nie wiedzą, dlaczego dochodzi do większości zachorowań. Najnowsze badania wskazują, że ryzyko może zależeć od tego, gdzie mieszkamy i czym się zajmujemy. Od 1 września MND jest w Nowej Południowej Walii chorobą podlegającą obowiązkowemu zgłaszaniu. Nowy rejestr ma pomóc naukowcom znaleźć przyczyny choroby i lepiej zrozumieć, dlaczego w niektórych regionach Australii występuje ona znacznie częściej.Posłuchaj godzinnej audycji Radia SBS Polish po polsku na żywo lub w dowolnym czasie, naciśnij tutaj...Aby słuchać na żywo lub w dowolnym czasie w Twoim telefonie przez aplikację - zainstaluj bezpłatną aplikację SBS Audio appAudycje na żywo - w poniedziałki, środy, czwartki, piątki i niedziele o godz. 14.00 (czasu wschodnioaustralijskiego) na paśmie SBS Radio 1. (Audycja czwartkowa jest powtarzana w niedziele o godz. 14.00)Aby słuchać na żywo w radiu analogowym znajdź pasmo w Twoim mieście naciskając link poniżej:Pasmo nadawania audycji w danym rejonie naciśnij tutaj.Aby słuchać na żywo w radiu cyfrowym DAB znajdź 'SBS Radio1'Aby słuchać na żywo w telewizji cyfrowej znajdź: SBS Radio 1 na kanale 301Aby słuchać na żywo w internecie wejdź na stronę: https://www.sbs.com.au/language/polish/pl/polskie-radio-i-podcasty

SBS Hindi - SBS हिंदी
Motor Neurone Disease: NSW takes world first step to track disease as cases rise

SBS Hindi - SBS हिंदी

Play Episode Listen Later Sep 3, 2026 9:13


MND deaths in Australia have more than tripled in four decades, with researchers identifying geographic clusters of the disease. New South Wales is now the first jurisdiction in the world to make Motor Neurone Disease (MND) a notifiable disease, enabling systematic data collection to help uncover its causes and improve patient care.

The Magic Sponge Podcast - with NRL Physio
The Magic Sponge - MND Special with NSW Minister for Health Ryan Park

The Magic Sponge Podcast - with NRL Physio

Play Episode Listen Later Sep 2, 2026 34:58


In the same week Jai Arrow brings up 100 games for Souths, the change he fought for becomes law. Brien (NRL Physio) is joined by NSW Health Minister Ryan Park to unpack NSW becoming the first place in the world to make Motor Neurone Disease notifiable: what it means, what data gets collected, whether it can help find a cause, and what it's been like working with Jai. Plus a quick MND explainer and some Dragons therapy for the Minister.The Magic Sponge is supported by Muscle Nation - head over to musclenation.org, and use the code NRLPHYSIO for 10% off any order!

SBS Vietnamese - SBS Việt ngữ
Ngạc nhiên về nguy cơ mắc bệnh thoái hóa thần kinh vận động tại nơi bạn sống

SBS Vietnamese - SBS Việt ngữ

Play Episode Listen Later Sep 1, 2026 7:58


Căn bệnh nào có tỷ lệ tử vong hàng năm, chiếm đến 2/3 tổng số người chết do tai nạn giao thông trên toàn quốc và đang ngày càng trầm trọng hơn? Bệnh này có rất nhiều bệnh nhân và nhà hảo tâm nổi tiếng trong nước và trên toàn thế giới, nhưng chúng ta vẫn chưa biết tại sao hầu hết các trường hợp lại xảy ra. Giờ đây, nghiên cứu về bệnh ‘thoái hóa thần kinh vận động', Motor Neurone Disease hay MND, đã xác định được các nhóm bệnh trên khắp nước Úc và thúc đẩy một tiểu bang, thực hiện bước đi tiên phong trên toàn thế giới.

League Express Podcast
#152: London Broncos Win the 1895 Cup! Huddersfield's Incredible Revival

League Express Podcast

Play Episode Listen Later Sep 1, 2026 66:25


In this week's episode of the League Express Podcast, Editor Martyn Sadler and Host Jake Kearnan discuss all the major talking points from another busy weekend of Rugby League action.They begin with London Broncos' victory over Widnes Vikings in the 1895 Cup Final, as London claimed the trophy in a major moment for the club. They also review the weekend's Super League action, including Wigan Warriors' big win over Hull KR, Leeds Rhinos' victory over St Helens, and Huddersfield Giants' impressive win over Leigh Leopards.The pair discuss Huddersfield's remarkable turnaround since the arrival of Jim Lenihan, with the Giants now having won seven matches this season. Is Huddersfield a completely different team under their new coach?They also examine the broadcasting problems surrounding the 1895 Cup Final, after the Super League+ app crashed during the match, and question what the incident says about the current state of Rugby League broadcasting.There is also controversy surrounding Wakefield Trinity and coach Darryl Powell, after the club was fined over an illegal approach for St Helens youngster Harry Robertson. The episode also covers Cameron McInnes' move to York Knights, the latest news surrounding retiring players, and the emotional story of Jai Arrow, who made his 99th appearance for South Sydney Rabbitohs while continuing to deal with his MND diagnosis.Finally, they discuss Jett Cleary's NRL debut for the New Zealand Warriors.

SBS Persian - اس بی اس فارسی
بیماری‌ مرموزی که هر سال بیش از دو برابر قربانیان جاده‌های استرالیا جان می‌گیرد

SBS Persian - اس بی اس فارسی

Play Episode Listen Later Aug 31, 2026 7:24


کدام بیماری هر سال جان دو سوم تعداد افرادی را می‌گیرد که در جاده‌های استرالیا کشته می‌شوند، و در عین حال آمار مرگ‌ومیر ناشی از آن رو به افزایش است؟ بیماری‌ای که افراد بسیار مشهور زیادی در استرالیا و سراسر جهان با آن دست‌وپنجه نرم کرده‌اند، اما هنوز نمی‌دانیم چرا بیشتر موارد ابتلا اتفاق می‌افتد. حالا تحقیقات درباره بیماری نورون حرکتی یا MND، از وجود مناطقی در استرالیا با شیوع بالاتر این بیماری خبر می‌دهد؛ موضوعی که باعث شده یکی از ایالت‌های استرالیا برای نخستین بار در جهان اقدام جدیدی انجام دهد.

I'm Dying to Tell You
AndyAtrophy: Still Andy, Living With ALS

I'm Dying to Tell You

Play Episode Listen Later Aug 30, 2026 58:35 Transcription Available


Send us Fan MailMeet Andy Johnson, diagnosed with ALS at just 40—and determined not to let ALS define him.  I've been following him on Instagram as @AndyAtrophy, where his humor and ability to find the funny in life with ALS has me smiling.  In this conversation, Andy shares his journey from New York actor and model to husband, cyclist, storyteller and ALS advocate. We talk about humor, identity, marriage, the Tri-State Trek, and finding ways to keep living—and laughing—in the face of ALS.  Because ALS may be part of Andy's story, but it certainly isn't the whole story.  This is a conversation about ALS, but it's really about living life on your own terms, finding reasons to laugh and remembering that a diagnosis doesn't get to tell you who you are.   Thank you for listening in, recommending this to others and for being a part of this amazing community.  Hugs, LorriFollow and see what's coming next: Instagram,  Facebook,  Twitter, TikTok,  LinkedIn.

5 Good News Stories
A Golden Retriever and her best friend Louie the duck

5 Good News Stories

Play Episode Listen Later Aug 25, 2026 5:40 Transcription Available


Barley, a golden retriever whose seizure medication dulled her personality, regains her spark after bonding and playing with Louie, a duck acquired via Facebook Marketplace for Justin's garden center; 67-year-old Claire cycles 6,835 miles from Portugal to Norway on her bike “Margaret” to honor her father and raise awareness of motor neuron disease, noting strangers' generosity and an encounter that helped an MND-affected family speak openly; standup comedian Dan Hudson seeks verification for a world record running the fastest half marathon dressed as a microphone, adding to his existing microphone-costume marathon record; 74-year-old Kathy in Illinois opens a “Stick Library” for neighborhood dogs; and a shoplifter returns Edward Gorey's "The Unstrung Harp" to Book Legger after 40 years with an apology and $100. Johnny plugs ad-free listening via Apple Podcasts and his Daily Comedy News podcast.   Become a supporter of this podcast: https://www.spreaker.com/podcast/5-good-news-stories-happiness-and-fun--5747537/support.5 Good News Stories is a daily podcast with five positive, uplifting news stories to brighten your day. New episodes every day. Follow on Apple Podcasts, Spotify, or wherever you listen. Part of the Caloroga Shark Media networkJohn also hosts Daily Comedy NewsUnlock an ad-free podcast experience with Caloroga Shark Media!  For Apple users, hit the banner which says Uninterrupted Listening on your Apple podcasts app. Subscribe now for exclusive shows like 'Palace Intrigue,' and get bonus content from Deep Crown (our exclusive Palace Insider!) Or get 'Daily Comedy News,' and '5 Good News Stories' with no commercials! Plans start at $4.99 per month, or save 20% with a yearly plan at $49.99. Join today and help support the show!Get more info from Caloroga Shark Media and if you have any comments, suggestions, or just want to get in touch our email is info@caloroga.com

Marcus Today Market Updates
End of Day Report – Tuesday 25 August: ASX 200 sprints ahead - BHP new record - Banks ok - Tech better - EOS soars!

Marcus Today Market Updates

Play Episode Listen Later Aug 25, 2026 12:26


The ASX 200 rose 62 points today to 9,165 as the banks rebounded, with CBA slightly higher and NAB up 0.6%. The Big Bank Basket rose to $266.31 (0.3%). We also saw gains in other financials, with SUN bouncing hard, up 8.0%, and IAG also doing well. MQG had a good day, up 1.7%, and we saw ZIP also doing well, together with AMP. The REITs were slightly mixed, with GMG up but SCG down 2.5% and VCX down 2.7%.Industrials were better today, with a slight rebound in retail stocks as JBH rose 1.9% and LOV also having a good day, with WOW up 0.8% and COL doing well on the back of its results. Meanwhile, tech stocks bounced, with XRO up 2.6% and WTC adding to recent gains, with others in the tech space rallying too. Healthcare was once again in favour, with CSL pushing up another 2.7% and RMD up 1.7%, although PME dropped 1.5%.Resources were a little mixed today, although BHP continued to hit record highs, up 0.8%. RIO was also doing well. Gold miners were slightly mixed, with the bullion price pushing a little higher and EVN up 1.0%. Lithium stocks were a little depressed today, with PLS falling hard after a good run yesterday and LTR also falling 8.7%.Oil and gas stocks eased, with both WDS and STO falling 1.4%. Once again, we have seen increased interest in uranium stocks, with PDN up 2.2% and DYL up 5.6%.In corporate news today, AZJ rose 1.6% after announcing a $250m buyback. ARB strutted its stuff, up 13.9% on better numbers. COL jumped after net profit rose only 1%. SDR plunged 11.0% on its results, while EOS jumped 23.0% higher on better-than-expected numbers and MND fell 12.0% after its numbers missed expectations. NAN was also in the doghouse as it missed expectations, falling 17.1%.Asian markets were mixed, with Japan up 0.3%, Hong Kong down 0.3%, China down 0.1%, Kopsi up 0.4%, and US futures were narrowly firmer, with the Dow down 6 points and the Nasdaq up 120. PCE data today. European futures pushing ahead. Marcus Today – Daily Market Insights Marcus Today provides clear, practical commentary for self-directed investors – covering markets, portfolios, education, and decision-making without the noise. If you'd like to go further: Start a free 14-day trial of Marcus Today http://bit.ly/mt-trial-podcast Join Marcus Today Use code MTPODCAST for 10% off http://bit.ly/mt-join-podcast-offer MT20 – Managed ETF Portfolio A professionally managed portfolio run by Marcus Padley and the team, using ASX-listed ETFs with active market timing. http://bit.ly/mt20-podcast Principles – How We Think About Investing A short video series on timing, behaviour, and decision-making. No stock tips. http://bit.ly/mt-principles-podcast — Disclaimer This podcast is general information only and does not consider your personal circumstances. It is not personal financial advice. 

Dirt Church Radio
Running Wife Running Life | DCR AidStation 059

Dirt Church Radio

Play Episode Listen Later Aug 21, 2026 53:00


This week, Ali and Matt stock the AidStation with all the goodness you need. We have a very special conversation with Gavin Clifton, one of the leading voices for the Firies Climb for (against) MND. We are so excited to be joining this amazing event for the second time and look forward to being there in The Blue Mountains next week. Then we hit on the totally non-complicated and 100% non-minefield of engaging in trail and ultramarathon with a member of the opposite sex who is not your partner. From simple fun and mateship to a situation fraught with trust issues. Should you run with your mates of the opposite sex, and if not, why not? Where do you stand on this issue? We'd love to hear from you. Dirt Church Radio – Best Enjoyed Running.--- --- ---Episode LinksFiries Climb For MNDSign up for the DCR AidStation newsletter and never miss an episode! Join us today.Dirt Church Radio on InstagramDirt Church Radio on FacebookFurther Faster New ZealandEnjoy!Music by Andrew McDowall, Digicake

4BC Breakfast with Laurel, Gary & Mark
Race against time: Why a Hamilton Island yacht crew is battling more than just rough seas

4BC Breakfast with Laurel, Gary & Mark

Play Episode Listen Later Aug 20, 2026 5:46


Live from Hamilton Island Race Week, 4BC Breakfast host Jason Matthews spoke with yacht owner Louise Cotter and MND Queensland CEO Jane Milne about their mission aboard the 41-foot Bella Luca to raise critical funds and awareness for Motor Neurone Disease. Inspired by former owner David’s diagnosis, the crew is using island parade signs, QR codes, and online fundraising through fightmnd.org.au to ensure over 300 Queenslanders facing MND receive vital support.See omnystudio.com/listener for privacy information.

CReATe Connect Podcast
ALS Untangled Series Ep. 67 - Alpha Lipoic Acid

CReATe Connect Podcast

Play Episode Listen Later Aug 7, 2026 10:01 Transcription Available


Alpha-lipoic acid (ALA) is a naturally occurring fatty acid. It has several plausible mechanisms for slowing ALS progression. Preclinical studies showed ALA slowed motor function decline. Some patients reported improvement when taking ALA together with other supplements. Here we discuss the mechanism, clinical studies, and potential risks. 

Sistas, Let's Talk
The joys and challenges of intercultural relationships in the Pacific

Sistas, Let's Talk

Play Episode Listen Later Aug 5, 2026 30:20


Love doesn't follow rules or boundaries. In a diverse society, it often brings together people from different cultural backgrounds, creating relationships that can be as enriching as they are complex. On Sistas Let's Talk, Natasha Meten explores the shared sense of connection, respect and belonging that couples have despite their cultural differences.  She speaks to Pauline Dorney from Papua New Guinea, Cook Islands Māori woman Mari Unuia Sanga and Fijian Finau Vulivuli about how bringing together different cultures can come with its own unique joys, challenges and lessons along the way. Listen on ABC Radio Australia. 

Football Manager Therapy
FMT Episode 247: We All Play FM (Not Clickbait) Again. Promise.

Football Manager Therapy

Play Episode Listen Later Aug 4, 2026 71:07


Hi gang!The FMTeam are back and, believe it or not, they've all been playing Football Manager.How's Jeb's Stoke getting on post network save? Does Rich like Mexico yet? Why does Dee keep going on about feet and scooters?All t hese questionsa and more answered!We also talk about Jonny and his wife Ana - Jonny was recently diagnosed with MND and his wife Ana is documenting their journey. Jonny is a massive FM fan with 25 years worth of love for the series. It's a genuinely touching story that deserves your attention.VIVA LA FMT!VIVA JONNY!Our links:https://linktr.ee/fmtpodhttps://twitch.tv/richowensfmhttps://twitch.tv/jebaroohttps://twitch.tv/deeboiplayshttps://twitch.tv/the_steak_bakeAna & Jonny's story:https://linktr.ee/anaclarabutcherCupburger: ⁠https://www.cupburger.org⁠#FMT #FootballManager #Football #Soccer #FM26 #FM

The Ray Hadley Morning Show: Highlights
'Vale Bob Montgomery' - Tributes flow for MND cycling hero

The Ray Hadley Morning Show: Highlights

Play Episode Listen Later Aug 3, 2026 9:48


An emotional Mark Levy has paid tribute to Bob Montgomery, who unexpectedly passed away aged 82—just hours after he and his grandson Tom completed a 5,300-kilometre cross-country cycle to raise funds for motor neurone disease (MND). The pair raised over $85,000 on their six-week journey, cycling from Broome, WA to Bowral, NSW, in honour of one of Bob's cousins who battled the condition. Only a little over a month ago, Bob and Tom were in the 2GB studio to talk about their cross-country ride.See omnystudio.com/listener for privacy information.

I'm Dying to Tell You
Beyond the Mics: Happy Hour with ALS Podcasters

I'm Dying to Tell You

Play Episode Listen Later Jul 28, 2026 59:18 Transcription Available


Send us Fan MailIn this special roundtable episode, I welcome three fellow ALS podcasters for a conversation about the stories that stay with us, the people we'll never forget, and why a microphone can become a lifeline.So happy to chat with Alison Burell-Stanley and David Stanley, hosts of I Lost My Person, who share how losing spouses to ALS eventually led them to friendship, love, and a shared mission of helping others navigate grief. Together they talk about remembering the people we've lost, saying their names, laughing at the memories, and discovering that joy and grief can exist side by side.Cory Mosley, host of ALS Matters, offers the perspective of someone living with familial ALS while navigating the realities of treatment, advocacy, and uncertainty. He shares what he's learned about turning overwhelming medical information into conversations that people can actually understand—and why stories often teach us more than statistics.Together, we discuss:  living with grief while still finding joy, what listeners have taught us over the years, how podcasts create community when people feel isolated and more.                      If this episode encouraged you, please subscribe, leave a review, and share it with someone who needs to hear these stories. Every share helps another family find hope.  Hugs, LorriFollow and see what's coming next: Instagram,  Facebook,  Twitter, TikTok,  LinkedIn.

Paddling The Blue Podcast
#169 - Developing paddling skills and confidence and listening to yourself with Elaine Shooter Alexander

Paddling The Blue Podcast

Play Episode Listen Later Jul 13, 2026 47:33 Transcription Available


Elaine Alexander, or Shooter as she is known to friends, joins today's episode of the podcast to speak about her late start in paddling, training and teaching at Share Discovery Village, and the determination that led to a solo circumnavigation of Ireland — 71 days with 51 on the water, stormbound moments, and life-changing encounters. The episode highlights the generosity of coastal communities, the support network that made the expedition possible, Shooter's fundraising and advocacy work including Summit to Sea for MND, and SHARE's inclusive outdoor programs. Website: Share Discovery Village Traditional Greenland Games at Share Facebook Summit to Sea for MND  

The Ray Hadley Morning Show: Highlights
'Environmental disease' - Professor Dominic Rowe on trying to solve MND

The Ray Hadley Morning Show: Highlights

Play Episode Listen Later Jul 13, 2026 20:16


Professor Dominic Rowe, along with Fire and Rescue NSW Commissioner Jeremy Fewtrell, joined Mark Levy in the studio to talk about Motor Neurone Disease (MND). MND continues to make headlines in the media, most recently following the death of AFL legend Neale Daniher and the diagnosis of NRL star Jai Arrow. The professor spoke with Levy about the disease, what he has experienced with his own patients, and why keeping awareness alive is crucial as doctors and scientists work to uncover the origins and causes of the condition.See omnystudio.com/listener for privacy information.

The Continuous Call Team
Jai Arrow shares emotional words following shattering MND diagnosis

The Continuous Call Team

Play Episode Listen Later Jul 12, 2026 8:40


Live from Accor Stadium, a brave Jai Arrow joins the boys on his 31st birthday to open up on his shattering MND diagnosis. Refusing to hide, he shares his gratitude for the massive outpouring of support as he tackles a new mission to find a cure.See omnystudio.com/listener for privacy information.

The Continuous Call Team
V'landys reveals how the new broadcasting deal secures the future of the NRL

The Continuous Call Team

Play Episode Listen Later Jul 12, 2026 9:27


ARL Commission Chairman Peter V’landys discusses the NRL wrapping its arms around Jai Arrow and his family following his devastating MND diagnosis. He also breaks down the game's new billion-dollar broadcasting agreement, explaining positive impact on grassroots footy and the future of the salary cap.See omnystudio.com/listener for privacy information.

THE MORNING SHIFT
What You Have ALL Been Waiting For - Our Chat With Moana And Maui!

THE MORNING SHIFT

Play Episode Listen Later Jul 7, 2026 46:33


Yah Welcome Wednesday The United States recently buried a time capsule to celebrate the 250th year of the country where it can only be opened in another 250 years!... If your country was to bury a time capsule, what would you place into it to represent your home?... When 'The People's Media' and 'The People's Champ' come together, it is destined for greatness!... Thanks to Disney, we were able to sit down and talk to Dwayne Johnson and Catherine Laga'aia who play Maui and Moana in the NEW Disney Live-Action 'Moana' - OUT IN CINEMAS NOW!... When 'The People's Media' and 'The People's Champ' come together, it is destined for greatness!... Disney Live-Action 'Moana' - OUT IN CINEMAS NOW!... Tap the link to grab a party hat to party with Jai Arrow as we celebrate his birthday on the 12th of July... All proceeds from purchasing a party hat goes towards Jai Arrow and his family towards their fight against MND!. Send a Hat for Jai - https://jaivirtualpartyhat.rabbitohs.com.au/?utm_source=nrl&utm_medium=network&utm_campaign=SWJ26 Hit that link below to stay caught up with anything and everything TMS. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.facebook.com/groups/3394787437503676/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We dropped some merch! Use TMS for 10% off. Here is the link: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://youknowclothing.com/search?q=tms⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Thank you to the team at Chemist Warehouse for helping us keep the lights on, here at The Morning Shift... ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.chemistwarehouse.co.nz/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 00:00 - INTRO 2:37 - CHECK IN (JAI JULY) 9:22 - DAILY BREAD 17:10 - DWANYE JOHNSON & CATHERINE LAGA'AIA 32:31 - TIME CAPSULE (NEW ZEALAND EDITION) 44:42 - OUTRO Learn more about your ad choices. Visit megaphone.fm/adchoices

The Quicky
PM Backs a Punt, Blames Pokies & MAFS UK Star Arrested On Suspicion Of Rape

The Quicky

Play Episode Listen Later Jul 3, 2026 8:59 Transcription Available


SBS Thai - เอสบีเอส ไทย
สรุปข่าวรอบวัน 03 กรกฎาคม 2569

SBS Thai - เอสบีเอส ไทย

Play Episode Listen Later Jul 3, 2026 5:31


ฝ่ายค้านหนุนสอบร่างกฎหมายคุมโซเชียลมีเดียเด็ก | อัลบานีซีออกโรงป้องร่างกฎหมายคุมโฆษณาการพนัน | โครงการช่วยผู้หญิงอะบอริจินหลังพ้นโทษมีที่อยู่อาศัย |ความหวังผู้ป่วย MND นักวิจัยเตรียมทดสอบยาในคนภายใน 5 ปี

I'm Dying to Tell You
When Life Changes Before It Begins | A Young Couple's ALS Story

I'm Dying to Tell You

Play Episode Listen Later Jul 1, 2026 58:39 Transcription Available


Send us Fan MailWhat happens when the life you're just beginning suddenly changes forever?Hannah Broermann and Logan Chowning were newly married, building a home, and dreaming about the future when Hannah began experiencing symptoms that eventually led to a diagnosis of ALS at just 27 years old.In this episode, Hannah and Logan share the shock of diagnosis, the uncertainty that followed and how they've learned to navigate marriage, caregiving and a future they never expected. They also open up about finding strength in community, embracing hope, and choosing to keep building a meaningful life together.Whether you're living with ALS, supporting someone you love, or facing an unexpected challenge of your own, I hope this conversation reminds you that even when life changes, hope and love can still grow.  In this episode:• Young onset ALS• ALS diagnosis at age 27• Marriage and caregiving• Finding strength through community• Living with hope and purposeIf this episode encourages you, please follow I'm Dying To Tell You, leave a review, and share it with someone who could use a little hope today.  If it's on your heart, follow Hannah and Logan on Facebook and attend or support their upcoming Hope for Hannah event.  Hugs, LorriFollow and see what's coming next: Instagram,  Facebook,  Twitter, TikTok,  LinkedIn.

CReATe Connect Podcast
CReATe Author Series Ep. 19 - Dr. Paul Lingor on Fasudil as a Potential Therapeutic for ALS

CReATe Connect Podcast

Play Episode Listen Later Jul 1, 2026 41:11 Transcription Available


Paul Lingor, MD, is Professor for Neurology, Group Leader and Head of the Outpatient Clinics for Motoneuron Disorders and Co-head of the Outpatient Clinics for Movement Disorders and at the Department of Neurology of the TUM Klinikum Rechts der Isar in Munich, Germany.  Here he discusses the recent publication "Safety, tolerability, and efficacy of fasudil in amyotrophic lateral sclerosis (ROCK-ALS): a phase 2, randomised, double-blind, placebo-controlled trial."

Rugby Union Weekly
In Jo'burg with Sir Kev

Rugby Union Weekly

Play Episode Listen Later Jun 30, 2026 39:21


Chris and Paul Grayson are in Johannesburg ahead of England's huge Nations Championship opener against South Africa. They are joined by the sport's newest knight, Sir Kevin Sinfield, to talk about being awarded the knighthood and his determination to continue raising awareness for MND. Sinfield discusses England's approach this weekend at Ellis Park and how they are dealing with the unique challenges of playing in the spiritual home of Springbok rugby.

The Sunday Triple M NRL Catch Up - Paul Kent, Gorden Tallis, Ryan Girdler, Anthony Maroon
Are Broncos Done For This Year & Next? Rabbits & Chooks Cement Places In The 8 & Bronson Xerri Is Out! | Saturday Scrum

The Sunday Triple M NRL Catch Up - Paul Kent, Gorden Tallis, Ryan Girdler, Anthony Maroon

Play Episode Listen Later Jun 27, 2026 107:16


The Saturday Scrum crew were back and started the show by asking if the Broncos are done for the season after their loss to the Roosters? Plus, South Sydney continue an impressive few weeks and the news where Bronson Xerri's next club was revealed! Plus, Parramatta Eels coach Jason Ryles joined the team and James Graham spoke to us about the incredible amount of money the Bye Round raised for MND. Plus, Believe It or Not, Tony's Quiz and much more! Check out Triple M NRL's Instagram, Facebook, TikTok and YouTube!See omnystudio.com/listener for privacy information.

The Triple M Rocks Footy NRL
Are Broncos Done For This Year & Next? Rabbits & Chooks Cement Places In The 8 & Bronson Xerri Is Out! | Saturday Scrum

The Triple M Rocks Footy NRL

Play Episode Listen Later Jun 27, 2026 107:16


The Saturday Scrum crew were back and started the show by asking if the Broncos are done for the season after their loss to the Roosters? Plus, South Sydney continue an impressive few weeks and the news where Bronson Xerri's next club was revealed! Plus, Parramatta Eels coach Jason Ryles joined the team and James Graham spoke to us about the incredible amount of money the Bye Round raised for MND. Plus, Believe It or Not, Tony's Quiz and much more! Check out Triple M NRL's Instagram, Facebook, TikTok and YouTube!See omnystudio.com/listener for privacy information.

SBS Vietnamese - SBS Việt ngữ
Cao Niên Vui Sống - Bệnh thoái hóa thần kinh vận động MND

SBS Vietnamese - SBS Việt ngữ

Play Episode Listen Later Jun 25, 2026 18:40


Mới đây một lễ tang long trọng diễn ra tại sân vận động Criket Melbourne, để tiễn biệt ông Neale Daniher, người đấu tranh cho căn bệnh thoái hóa thần kinh vận động (MND). Cuộc chiến kéo dài 13 năm của Daniher với căn bệnh mà ông gọi là “The Beast hay Con thú", nổi tiếng nhờ chiến dịch gây quỹ và nâng cao nhận thức cho nghiên cứu y học về MND của Neale. Bác sĩ Michael Dũng Cao tại Sydney cho biết thêm về bệnh nầy, vốn thường xuất hiện ở các bậc cao niên.

Leicester Tigers Rugby Show
Lewis Moody's 500 Mile Challenge

Leicester Tigers Rugby Show

Play Episode Listen Later Jun 24, 2026 26:11


Hear our special episode as Lewis Moody cycles 500 miles to raise money for MND research.

Inspiring Leadership with Jonathan Bowman-Perks MBE
428. Turning Tragedy into Legacy in Business and Life

Inspiring Leadership with Jonathan Bowman-Perks MBE

Play Episode Listen Later Jun 16, 2026 52:59


Andy Foote is a Birmingham-based entrepreneur, founder, and philanthropist whose career spans property, recruitment, investment, and charitable leadership. With a portfolio of successful ventures built on strategic growth and social impact, Andy is known for combining commercial strength with a strong sense of purpose. He is the Founder and Chairman of Joseph Mews Property Group, a prominent UK-based property investment and development company. Joseph Mews is recognised for delivering high-quality residential projects and investment opportunities across the UK, with a growing international client base. Andy's leadership has been central to the group's expansion, reputation, and investor trust. Andy is also the Founder and CEO of Seven Invest Ltd, the former sales and marketing arm of Seven Capital PLC, one of the UK's leading property development companies. Through Seven Invest, Andy played a pivotal role in shaping Seven Capital's sales strategy, investor relations, and international presence, helping the group become a major name in UK real estate. In addition, he is the founder of BMS Homes and BMS Land, both focused on residential and mixed-use property development. These companies reflect Andy's passion for delivering well-designed, community-enhancing homes that meet modern standards and create long-term value. Andy is also the founder of Alexander Daniels, a specialist recruitment consultancy working across the accountancy, finance, and executive search sectors. Built on trust, industry insight, and people-first thinking, Alexander Daniels has become a leading name in talent acquisition and career development. Outside of business, Andy is a dedicated philanthropist. He founded Fetcher Dog, a registered rescue charity that rehomes dogs from abuse and abandonment. He is also the Co-Founder of The Brain Tumour Charity, one of the UK's most influential medical charities, and the Matt Gallagher Foundation, which supports his close friend's values and impact for the MND community. Andy's leadership is defined by clarity, integrity, and a belief in building ventures that deliver lasting impact. Whether in property, recruitment, or charitable work, he leads with purpose and a commitment to doing the right thing. Firmly rooted in Birmingham, Andy remains closely involved in both the city's business and charitable communities. His work reflects his core belief: success is measured not just by profit, but by the positive difference you leave behind. Hosted on Acast. See acast.com/privacy for more information.

Matt and Alex - All Day Breakfast
Matt Okine's Piano Redemption

Matt and Alex - All Day Breakfast

Play Episode Listen Later Jun 15, 2026 24:19


Matt Okine’s Piano Redemption Lewis shares his friend Jeff's MND journey and an ultramarathon fundraising effort | To find out more or donate, head to cause2cure.com.au/moveformnd LINKS Alex Dyson's new book 'The Apocalypse and Other Mild Inconveniences' HERE Listen to Chopped Unc Mixtape, an album by Boilermakers on #SoundCloud HERE TICKETS TO MATT OKINE AUSTRALIAN COMEDY TOUR HERE If you've got something to add to the show, slide into our DMs @matt.and.alex CREDITSHosts: Matt Okine and Alex Dyson Produced by: Bronwyn Dojcsak Post Production: Linc Kelly Find more great podcasts like this at www.listnr.com See omnystudio.com/listener for privacy information.

SBS Mandarin - SBS 普通话电台
【SBS新闻快报】AFL传奇人物、抗MND斗士丹尼赫告别仪式举行

SBS Mandarin - SBS 普通话电台

Play Episode Listen Later Jun 10, 2026 4:55


2026年6月10日下午:在与运动神经元病(MND)长达13年的抗争中,尼尔·丹尼赫(Neale Daniher)联合创立了慈善机构 FightMND,该机构已投入超过1.41亿澳元用于该疾病的医学研究(收听播客,了解详情)。在YouTube、Apple Podcasts或Spotify搜索播客名“SBS新闻快报”,随时了解澳洲国内外大事。

Triple M Rocks Footy AFL
Big Freeze 12 - All The Sliders, and All Our Ratings!

Triple M Rocks Footy AFL

Play Episode Listen Later Jun 8, 2026 79:51


Jack Heverin, Nathan Brown, Isaac Smith, and Damian Barrett are ready at the Triple MCG for Big Freeze 12 - starting by chatting to Luke and Lauren Daniher as the fight to find a cure for MND continues. The team recaps the weekend's games, with a look at Sydney and St Kilda, Essendon and Carlton, North Melbourne and Fremantle, and Brisbane and Gold Coast. Then it's time for the sliders. Ruby Schleicher joins in the fun as we hear all the sliders in Big Freeze 12. Andy Lee, Nathan Jones, Sam Mostyn, Sam Mac, Cooper Woods, Jo Weston, Daisy Thomas, Mark Howard, Amy Shark, and Dan Gorringe all took the plunge - but who did we declare the winner in our very serious and fact-based ratings system?See omnystudio.com/listener for privacy information.

Never Surrender - a GWS Giants AFL podcast
NO. 127 - 2026 - R12: Traeger Park is the new GMHBA Stadium... WE DO NOT LOSE IN ALICE!!! Park that Road Train at The Beanstalk

Never Surrender - a GWS Giants AFL podcast

Play Episode Listen Later Jun 4, 2026 78:24


What's better than watching us towel up the Dees in beautiful Central Australia, at the foot of the MacDonnell Ranges, with the Tanami Transport Road Train parked in behind the goals?NOT BLOODY MUCH!!We love that ground. We kick straight. The opposition don't. Bad Kicking is Bad Footy. We win.So on that note, let's just claim Traeger Park as another ground to call our temporary home over the Easter Show period. Homebush, Canberra, Alice — all part of the “Greater” Western Sydney. Another tick in the “keep the name” column, Scotty... and Tim (Reed, number one fan of the pod. We see you Tim).So yeah, another won. TWO IN A ROW!!! Not quite as dominant as the DRUBBING of the Brisbane Cubs, but convincing nonetheless. Are we now perfectly placed? YES, in an Orange Tinted Shades kind of way — how we like it — not on top, but nicely positioned for a strong, storming, Stormy sprint to the finish.RagsBet/SpazBet this week suggests loading up at odds of $24 for the Cup to come home to Tom Wills Oval. (Gamble responsibly; for gambling help call 1800 858 858). It'll only get shorter as we knock teams off after the bye.Enjoy the bye, wear your Big Freeze Beanie for Neale Daniher and all those impacted by MND, and we'll meet again via the airwaves soon...Maybe next week. We'll see.Till then, Never Surrender.----To get in contact, drop us an email, comment on Spotify or message us on X.We love reviews or ratings.Email: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠thesquinterspodcast@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Support: ⁠buymeacoffee.com/thesquinters⁠YouTube: ⁠⁠NeverSurrenderByTheSquinters⁠⁠X: ⁠⁠TheSquinters⁠⁠Instagram: ⁠⁠gws_squinters⁠⁠FB: ⁠⁠thesquinters⁠⁠TikTok: ⁠⁠the.squinters⁠

CReATe Connect Podcast
ALS Untangled Series Ep. 66 - PoNS

CReATe Connect Podcast

Play Episode Listen Later Jun 3, 2026 10:00 Transcription Available


Portable Neuromodulation Stimulator (PoNS) is a type of electrical stimulation that can theoretically increase rewiring in the brain (neuroplasticity).  Small trials suggest that it can improve walking in MS but thus far there are no data in people living with ALS.  Here we further discuss the mechanism, studies in other conditions, and potential risks.

SBS Mandarin - SBS 普通话电台
前澳大利亚年度人物尼尔·丹尼赫去世 他是怎样的一个人?

SBS Mandarin - SBS 普通话电台

Play Episode Listen Later May 26, 2026 5:51


丹尼赫(Neale Daniher)在2013年被诊断患有运动神经元疾病(MND)后,一直致力于寻找治疗方法。他戏称这种疾病为“野兽”。

The Rush Hour Melbourne Catch Up - 105.1 Triple M Melbourne - James Brayshaw and Billy Brownless
A Tribute to Neale Daniher, Cody Weightman, Travis Bazzana's 'Piss Missile' - The Rush Hour podcast - Monday 25th May 2026

The Rush Hour Melbourne Catch Up - 105.1 Triple M Melbourne - James Brayshaw and Billy Brownless

Play Episode Listen Later May 25, 2026 58:33


We start the show with a tribute to the great Neale Daniher, who passed away after a 13-battle with MND. Damian Barrett joins the boys to talk about Neale's legacy, then moves into his positives and negatives from Round 11. We want you to tell us something amazing you've done with Monday Brag Artist, then Billy gets to do his All Sports Report - as it gets weird when we talk about baseball. Western Bulldog Cody Weightman is in studio as he readies himself for a return to the AFL, then Billy finishes the show with a joke about Little Johnny.See omnystudio.com/listener for privacy information.

Triple M Rocks Footy AFL
FRIDAY HUDDLE | A History of Games Record Holders, Browny's Kennel, Damo Nearly White-Anted

Triple M Rocks Footy AFL

Play Episode Listen Later May 22, 2026 102:39


Browny starts the show by admitting to doing something at a wine tasting that everyone else is appalled by, then we whip through the boys favourite news headlines from the past week. Chief questions whether it's right to phone it in at your job, then gives 110% himself with two more movie monologues from some cult classics. Browny has a question about gym etiquette, and Howie runs through the stories of the last five players to break the VFL/AFL Games Record. Gorden Tallis calls in to talk about the shocking MND diagnosis of Jai Arrow, and how the rugby community has rallied around one of its stars. Chief has a Scott Pendlebury-themed quiz, Browny built a dog kennel and it hasn't gone well, then he puts Cup Noodles under the microscope in the Health Hotline. The boys chat about Essendon's next three games and how they could determine Brad Scott's future, then Howie reveals how Damo nearly lost his exclusive Michael Voss interview to another member of the Friday Huddle team. Tigers coach Adem Yze calls in ahead of tonight's clash with the Bombers, Browny's Top 5 is 'improbable but not impossible', and Howie has a bad habit of continually losing important items.See omnystudio.com/listener for privacy information.

I'm Dying to Tell You
Erin Taylor and Her Mom Lily on Living Fully with ALS

I'm Dying to Tell You

Play Episode Listen Later Apr 21, 2026 53:52 Transcription Available


Send us Fan MailMeet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS.  Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it's like to build a life in your twenties while your body changes fast and your natural voice fades.  Erin and her mom Lily show us how advocacy, humor, and everyday love can keep you feeling like a whole person even when ALS is always in the room.  We chat about:• Grieving lost dreams and rebuilding purpose through ALS advocacy• Losing a natural voice and using eye gaze with an AI clone voice• Choosing authenticity online to help others feel seen• Managing dark moments by focusing on what we can control• Finding joy in small outings and planning energy for big experiencesErin shares her heart to educate people that ALS can affect anyone, even someone in their 20's.  She said she didn't know that was possible when she was diagnosed.   If you'd like to share Erin's message, please send this episode to a friend.  Thank you. Hugs, LorriFollow and see what's coming next: Instagram,  Facebook,  Twitter, TikTok,  LinkedIn.