Podcasts about mnd

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Best podcasts about mnd

Latest podcast episodes about mnd

I'm Dying to Tell You
Supermilk's Jake Popyura: Navigating ALS with Humor & Music

I'm Dying to Tell You

Play Episode Listen Later Aug 8, 2025 48:08 Transcription Available


This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Supermilk, who was diagnosed with ALS at just 38. Rather than despair, Jake felt relief—finally understanding the cause behind years of unexplained symptoms. As his physical abilities shift, Jake and his bandmates have chosen adaptation over retreat, pouring their energy into their recent album Lazy Teenage Boasts. Balancing terminal illness, mental health challenges, and a relentless creative drive, Jake leans into dark humor and online community to navigate the journey. His story is a testament to resilience, reinvention, and finding meaning through music in the face of life's harshest realities.  Thanks for listening.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Parlons introspection
Blessure d'abandon : comment l'identifier et commencer à la guérir [Best of estival 2025 | Les freins] Parlons introspection

Parlons introspection

Play Episode Listen Later Aug 7, 2025 9:15 Transcription Available


Woman's Hour
Listener Week: MND and women, Not being a granny, Studying later in life

Woman's Hour

Play Episode Listen Later Aug 6, 2025 57:15


Motor Neurone Disease is a condition that affects nerves found in the brain and spinal cord which tell our muscles what to do. The disease is life shortening and there is no cure. One listener, Diana Keys, was diagnosed in May 2023. She tells us about her experience and asks why does representation of MND in the media skew so heavily towards men? Diana is joined by Dame Pamela Shaw, an academic neurologist and world-leading researcher in MND.Listener Sally Ruffles describes herself as a 68 year old woman with one daughter and no grandchildren. She got in touch with Woman's Hour for Listener Week  to say: "There's this common assumption that having grandchildren is always a wonderful thing. But nobody really stops to think that not having them might also be okay—or even a positive thing for some people."  She joins Nuala with her daughter Hannah, who persuaded her mother to write to Woman's Hour, to discuss why it can be difficult to talk about not being a grandparent.  We talk to women living full time on the UK's waterways. Charlotte Ashman is an artist and print maker and Jo Bell is a writer and former UK Canal Laureate. They tell us about their lives, their work and the pros and cons of narrowboat living.Have you ever thought about going back to school? Recent graduates Sue Goldsmith & Rahat Ismail both returned to studying later in life. They join Nuala to discuss what took them back to education and the value of lifelong learning.Presenter: Nuala McGovern Producer: Emma Pearce

ABC SPORT Daily
Fri Fix: tears to cheers, the pub sesh that delivered an iconic run

ABC SPORT Daily

Play Episode Listen Later Aug 1, 2025 14:54


This might be our favourite interview of the year because Simone McKinnis and the Melbourne Vixens might be the best story in Australian sport right now. They looked shot after a shocking start to the year, when McKinnis said 'we just need to go to the pub'. Since that moment, they've ridden a rollercoaster of emotion to reach the Super Netball grand final. It's the coach's last game in charge too. PLUS, John Worsfold on a emotive new chapter in the fight against MND. Featured: Simone McKinnis, Melbourne Vixens coach. John Worsfold, West Coast premiership coach.Subscribe to the ABC Sport Newsletter

Parlons introspection
Le modèle DISC un outil pour mieux se comprendre [Best of estival 2025 | Les outils] Parlons introspection

Parlons introspection

Play Episode Listen Later Jul 31, 2025 9:59 Transcription Available


Appel clarté : https://calendly.com/vemilome/appel-clarte-45-mnDécouvrez mon univers ici : https://catalysons-vos-atouts.comConnaissez-vous le modèle DISC ?C'est un outil simple, visuel et très utile pour mieux vous comprendre… et mieux interagir avec les autres.Dans cet épisode, je vous guide pas à pas dans la découverte des 4 couleurs comportementales du DISC :

GAA on Off The Ball
KEITH HIGGINS | Former Mayo star on his late brother Pierce's battle with Motor Neurone Disease

GAA on Off The Ball

Play Episode Listen Later Jul 26, 2025 15:36


Former Mayo star Keith Higgins spoke to John Duggan about his late brother Pierce, who passed away from MND in 2023On Sunday July 27th, there is a 'Shoulder to Shoulder' walk in aid of those suffering from ALS, the most common form of Motor Neurone Disease. The walk is taking place at 9am at St Brigid's GAA Club, Croghan, County Offaly. Former All Ireland winners with Galway, Joe Bergin and Michael Meehan are part of the organising team and it's being supported by the likes of Galway GAA, Leinster Rugby and Connacht Rugby.If you can't make the walk, you can support via iDonate, with all funds going to Research Motor Neurone.

Parlons introspection
Ce que la peur du jugement vous coûte vraiment (et comment en sortir) [Best of estival 2025 | Les freins] Parlons introspection

Parlons introspection

Play Episode Listen Later Jul 24, 2025 11:38 Transcription Available


Appel clarté : https://calendly.com/vemilome/appel-clarte-45-mnDécouvrez mon univers ici : https://catalysons-vos-atouts.comLa peur du jugement est l'un des freins les plus puissants – et les plus silencieux – dans nos parcours professionnels comme personnels.Elle nous pousse à nous taire, à hésiter, à différer… à nous trahir, parfois.Dans cet épisode, je vous propose d'explorer cette peur si commune, en en dévoilant les origines multiples : sociales, familiales, biologiques et émotionnelles.Nous verrons ensemble :Ce qui se cache vraiment derrière cette peur ;Pourquoi elle touche autant les femmes en transition ou en reconversion ;Comment la numérologie éclaire notre rapport au regard des autres ;Et surtout, comment s'en libérer, pas à pas, sans violence ni reniement de soi.Je partage aussi des pistes concrètes pour renforcer votre confiance, poser des limites sans culpabilité, et transformer les critiques en leviers d'évolution.Un épisode à écouter si vous vous êtes déjà demandé : “Et si ce que les autres pensaient de moi dictait encore trop de mes décisions ?”

Widowed AF
S3 - EP15 - Life After MND: Colleen Clarke's Story of Love and Loss

Widowed AF

Play Episode Listen Later Jul 21, 2025 61:28


In this episode, Rosie Gill-Moss speaks with Colleen Clarke, a widow from Australia who shares her deeply personal story of losing her husband Steve to motor neurone disease (MND). Through a candid and honest conversation, they explore the realities of caregiving, the emotional toll of terminal illness, and the resilience required to parent a young child while facing unimaginable loss. This powerful episode touches on motor neurone disease, grief, widowhood, parenting through terminal illness, and the long arc of healing.Colleen and Steve met as teenagers and spent over three decades together. Their love story, which began with a pub dance and grew through years of shared life, took a devastating turn when Steve was diagnosed with MND—also known as ALS. Colleen recounts how the illness slowly robbed Steve of his ability to speak and move, and how she shifted from being his partner to his primary carer. She explains the uncertainty that surrounds MND diagnosis, the slow progression of symptoms, and how the family held on to normality for their daughter, Sarah, for as long as possible.Listeners hear how Sarah was conceived after years of IVF and a surprising encounter with Brazilian jungle herbs—an unexpected yet joyful part of Colleen's story. But the joy of becoming a mother was followed just five years later by the slow, cruel advance of MND. Colleen explains the emotional and logistical challenges that came with managing a terminal illness at home: palliative care planning, home adaptations, medical equipment, and navigating grief in real-time. Her experience highlights just how fragmented the support system can be, but also shows the difference strong community networks and dedicated carers can make.As Steve's health declined over three years, Colleen found strength in peer support, online communities, and palliative care teams who helped maintain his comfort and dignity. She also reflects on the communication barriers that emerged as Steve lost his ability to speak and how they found new ways to stay emotionally connected—including using an alphabet board and pre-recorded messages. Her story underscores the emotional complexity of being both wife and caregiver and the internal conflict that arises when love and duty become indistinguishable.Colleen also shares the impact Steve's death had on Sarah, who was just eight at the time. They discuss the delicate balance of protecting a child while being honest, and how Sarah eventually returned to education after years of disengagement. Now 18, Sarah is pursuing a degree in film and media—testament to her strength and the care her mother put into helping her navigate grief on her own terms.This conversation offers rare insight into life with MND and the long road of widowhood that follows. Colleen's story is a vivid account of emotional survival, practical adaptation, and the enduring strength of mother-daughter connection. Her openness about depression, the challenges of solo parenting, and her cautious optimism for the future provides real-world understanding for anyone dealing with terminal illness, bereavement, or solo motherhood.Key takeaways from this episode include the unpredictable progression of motor neurone disease, the importance of early palliative care involvement, the hidden toll on carers, and how children experience grief differently. It's also a testament to how human connection—through peer support groups, counselling, and shared experience—can anchor someone through the darkest seasons of life.Whether you're supporting someone through illness, grieving a partner, or parenting alone, Colleen's story will stay with you long after the episode ends.

I'm Dying to Tell You
Life After ALS: A Journey of Healing and Hope

I'm Dying to Tell You

Play Episode Listen Later Jul 17, 2025 58:46 Transcription Available


The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their paths through grief toward finding purpose and even joy again.  Years after their losses, these women formed "Antiques Roadshow for ALS," a cycling team of women over 60 who donned pearls, vintage clothing, and tutus while raising over $28,000 for ALS TDI's  research. Their stories reveal the complex reality of grief—how it never truly ends but evolves into something you learn to carry alongside new experiences and memories.  These women candidly discuss experiencing depression, anxiety, and PTSD years after their losses, normalizing these ongoing struggles while demonstrating that healing doesn't mean forgetting.  For those currently caregiving or recently bereaved, their stories offer a glimpse into a future where community, purpose, and even joy remain possible. Enjoy the listen and thanks for sharing with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

MONEY FM 89.3 - Your Money With Michelle Martin
Money and Me: The Private Property Pause

MONEY FM 89.3 - Your Money With Michelle Martin

Play Episode Listen Later Jul 14, 2025 17:48


Private home sales plunge, prices stagnate—yet one new launch has had a warm reception. Singapore’s property market cools in Q2 2025, with private home sales down over 66%. HDB resale price growth slows while new supply looms from MND. Yet CapitaLand’s LyndenWoods defies the downturn with a near sell-out launch. Ivan Cai, CEO of Crestbrick, joins Michelle Martin to decode what it all means for investors. Will interest rates, new stamp duties, and cooling measures shake up the second half of 2025? Hosted by Michelle Martin, this episode uncovers key strategies for buyers, sellers, and landlords.See omnystudio.com/listener for privacy information.

The Big Jim Show
Lewis Ludlow - 4ED

The Big Jim Show

Play Episode Listen Later Jul 9, 2025 80:41


Gloucester's captain and all-round warrior Lewis Ludlow joins me on The Big Jim Show. We pick our British & Irish Lions XV, relive what it's like playing against Leinster when they're in full cheat mode, and talk about something much bigger than rugby – our mate Ed Slater and his fight with MND. Details of how to support Ed and other people fighting MND - www.4-ed.co.uk Learn more about your ad choices. Visit podcastchoices.com/adchoices

Marcus Today Market Updates
End of Day Report – Friday 4 July: ASX 200 up 7, 1% for the week | CBA falls again, BHP down 1.6%

Marcus Today Market Updates

Play Episode Listen Later Jul 4, 2025 13:25


ASX 200 rose 7 points to close near to a record of 8603.  Once again, we saw the sell-off in CBA down 0.9% with ANZ the main beneficiary up 0.8%. The Big Bank Basket fell to $281.10 (-0.3%). Financial services back in favour, NWL up 0.6% and PNI flying up 3.4%. HUB also doing well, insurers bouncing back slightly, REITs better with GMG up 0.9% and SCG up 1.1%. Healthcare also better, CSL up 0.7% and RMD up 1.4% with tech better, WTC up 1.1% and the All-Tech Index up 0.3%. Retail rose, AX1 up 2.8% and PMV rising 1.4%. Travel stocks better too. Resources were back on the nose. One day wonder? BHP down 1.4% with RIO off 1.3% and lithium stocks drooping, PLS off 0.7%. Gold miners were mixed, NEM up 0.4% and GMD down 1.2%. Oil and gas flat with profit taking in coal miners and uranium stalling.In corporate news, SLH up 23.3% as ACCC gives it the green light. MND up 0.7% on contract news, and RUL up 14.0%, doing well on an update. Nothing on the economic front.US Markets closed tonight. Futures off slightly.Want to invest with Marcus Today? The Managed Strategy Portfolio is designed for investors seeking exposure to our strategy while we do the hard work for you.If you're looking for personal financial advice, our friends at Clime Investment Management can help. Their team of licensed advisers operates across most states, offering tailored financial planning services.  Why not sign up for a free trial? Gain access to expert insights, research, and analysis to become a better investor.

NIHL Flyby
NIHL Flyby Ep194

NIHL Flyby

Play Episode Listen Later Jun 26, 2025 56:00


Join Mat & Dave this week for their update on the incredible community turnout and support for the fight against MND on the weekend. They also catch up on the two NIHL games played since last record, and have a great interview with one of the best in the league, Paul Reinking. What are you waiting for? Let's goooooo!

Brian Carlton: The Spoonman
MND Tasmania seeking funding to continue local support

Brian Carlton: The Spoonman

Play Episode Listen Later Jun 23, 2025 5:27


Chris Symonds, President of MND Tasmania, joins Kaz and Tubes to discuss the important work the organisation does to support Tasmanians with MND, and the need for Government funding.See omnystudio.com/listener for privacy information.

Stimulate Run
Re-release. Todd Ingraham - The legacy

Stimulate Run

Play Episode Listen Later Jun 20, 2025 81:20


This is a re-release of the episode with Todd Ingraham who recently lost his battle with MND. There are plenty of takeaways throughout this episode even if you have listened previously as I found.

The Analyst Inside Cricket
The Analyst Live: Scary Moments

The Analyst Inside Cricket

Play Episode Listen Later Jun 19, 2025 58:29


The first part of the Analyst podcast recorded infront of a live audience at the Square Club, Bristol in aid of Syd Lawrence and his MND fund. Featuring Simon Hughes, Simon Mann and Vic Marks reliving some of their scariest experiences on the field (some involving Syd!) and in the commentary box. Includes a preview of the England v India Tests, our predictions, and stories from Vic's new book on England captains past and present. The Cricket Captains of England 1979-2025 by Vic Marks is published by Fairfield Books. In Syd's Voice: The Extraordinary Life of Dave Lawrence is also published by Fairfield Books. Both titles available to buy at fairfieldbooks.co.uk Learn more about your ad choices. Visit podcastchoices.com/adchoices

The Analyst Inside Cricket
The Home of Wickets

The Analyst Inside Cricket

Play Episode Listen Later Jun 11, 2025 33:46


Simon Hughes and Simon Mann review the first day of the ICC World Test Championship final at Lord's - the Home of Cricket - when fourteen wickets fell for little more than 250 runs. Australia predictably have the upper hand against South Africa's makeshift batting line-up after being bundled out themselves for 212. . England's T20 series whitewash of the West Indies is also assessed. Final reminder if you want to attend our live 'Scary Moments' podcast on June 18th in Bristol in aid of Syd Lawrences's MND cause - visit - https://www.eventbrite.co.uk/e/the-analyst-inside-cricket-podcast-live-tickets-1353264403259 Learn more about your ad choices. Visit podcastchoices.com/adchoices

We've Watched It Again
AFL Round 13 - Washed Up

We've Watched It Again

Play Episode Listen Later Jun 10, 2025 54:05


AFL Round 13 - Washed Up Why aren't these guys better? Charlie Curnow...it's time to start doing something else. 10% epic skill, 90% working dirty in Adelaide Michael Jordan Dawson....WOW All thanks to: Wonthaggi Toyota Inverloch Esplanade Hotel www.invyespy.com.au www.wonthaggitoyota.com.au  

The Ray Hadley Morning Show: Highlights
'More than a fight' - Mark Taylor previews epic Big Freeze slide for FightMND

The Ray Hadley Morning Show: Highlights

Play Episode Listen Later Jun 9, 2025 6:05


Australian cricket great Mark Taylor spoke with Mark Levy ahead of the AFL's annual Big Freeze slide in support of FightMND! Taylor will be among many celebrities taking part in the event during Collingwood and Melbourne's clash at the MCG on Monday. The awareness and funds raised are all for FightMND, which was founded by Neale Daniher AO, Pat Cunningham, and the late Dr Ian Davis OAM to fight motor neurone disease (MND)!See omnystudio.com/listener for privacy information.

The Briefing
Ex-PM & Hollywood heavyweights on King's list + Footy's ice-cold ritual

The Briefing

Play Episode Listen Later Jun 8, 2025 19:42


Monday Headlines: Scomo among hundreds on King’s Honours list, National Guard arrives in LA against anti-ICE protests, candlelight vigils held for Pheobe Bishop, a record number of young Aussies are working more than one part-time job and three quarters of Aussies don’t know their neighbours. Deep Dive: The Big Freeze is an annual event that’s become a highlight of the AFL’s King’s Birthday clash for more than a decade. It features Aussie celebrities and sport stars in blue beanies plunging into ice baths as part of the pre-match entertainment. But behind the spectacle is a powerful campaign raising awareness and funds for motor neurone disease or MND. In this episode of The Briefing, Chris Spyrou speaks with Matt Tilley, CEO of FightMND, about the origins of the Big Freeze and how it became one of Australia’s most visible health campaigns. Follow The Briefing: TikTok: @listnrnewsroom Instagram: @listnrnewsroom @thebriefingpodcast YouTube: @LiSTNRnewsroom Facebook: @LiSTNR NewsroomSee omnystudio.com/listener for privacy information.

The Dos and D Show
#253 - Matt Tilley - Inside his Legendary Career...the Radio Years, FightMND & Beyond

The Dos and D Show

Play Episode Listen Later Jun 8, 2025 82:06


Matt Tilley is a legend of Australian Radio, Stand-Up Comic, TV Personality and the CEO of FightMND.  Very few people have dominated the radio landscape over the past 20 years than Matt and it was an honour to sit down with him and reflect on his outstanding career.  Matt shares how an unusual moment in a urinal gave him his first start in radio and how he built his career from the ground up.  We hear about some of the famous shows he has been part of and the people he has worked with and why the landscape has shifted so much.  We laugh as we listen and react to one of Matt's famous "Gotcha Calls" and hear about some of the most uncomfortable celebrity interviews he has done over the journey...as well as the great ones!  Matt talks about why he shifted out of media and put his creative skills into use in the world of charity. He has been part of some amazing campaigns that has changed lives.  Nowadays, he is the CEO of FightMND and we hear why Melbourne is leading the way world-wide for awareness and the fight against it, as well as some incredible Neale Daniher stories.  And of course, Matt steps into the infamous confession booth with an all-time story!  We know you'll love this one with the legend that is, Matt Tilley!    Purchase your digital beanie and fight against MND - https://fightmnd.org.au/    This episode is brought to you by Fleet Plant Hire Solutions. Head to www.fph.com.au for all your earth moving needs!  Check out Australia's Leading Electrical Wholesaler - Rexel Australia  Download the rewired Rexel app in your app store today!  Look good, smell good, feel good through Milkman's grooming products! www.milkmanaustralia.com (Use the code "Dosandd" for 20% off your first order)  Have some fun in your pants with Mitch Dowd's comfiest & coolest underwear www.mitchdowd.com.au (Use the code "Dosandd40" for 40% off)  Perform at your best with Australia's best Supplements - SUP Supplements Australia | Gummy Vitamins | Collagen | Probiotics (Use the code "DOSANDD" for 30% off storewide!)  Get Readiness into your Workplace or School for higher performance through wellbeing - Home Page - Readiness    Follow us on Instagram @dosandd_  Follow us on TikTok @dosandd  Watch & Subscribe to our YouTube Channel here - Dos and D - YouTube Follow us on Facebook here - The Dos & D Show | Facebook  Questions & Enquiries - thedosanddshow@gmail.com 

Food Bytes  with Sarah Patterson proudly sponsored by Cheeselinks

It's Big Freeze 11 time and CEO of Fight MND Matt Tilley is our special guest this week. Matt was the king of Melbourne's FM breakfast timeslot not that long ago but now heads up the fight to cure the beast that is Motor Neurone Disease, working with Australian of the Year Neale Daniher and an incredible team of scientists, doctors and fundraisers. While the famous slide into the ice bath at the MCG on the King's Birthday Holiday is the focus of attention, the work to raise money and find a cure for MND happens 365 days a year. Away from work, Matt is a keen cook and passionate veggie grower - an award winning veggie grower, in fact - who shares his secret weapon for success in the garden. The Food Poll this week is a simple choice. Halloumi cheese - is it a yay or a nay? Big Freeze beanies are available at Coles, Bunnings and Shell Reddy and the new digital beanie, which you can personalise, via bigfreeze.com.au Presented by Sarah Patterson & Kevin Hillier Broadcast each Sunday on the ACE Radio Network - https://aceradio.com.au/Catch us also on:Radio 2DD - Easy Listening - On Line - https://www.2dd.online/Follow us on Facebook...https://www.facebook.com/foodbyteswithsarahpatterson/Twitter & Instagram - @sarahfoodbytesPost-production by Chris GatesforHowdy Partners Media | www.howdypartnersmedia.com.au/podcasts© 2025 See omnystudio.com/listener for privacy information.

The Analyst Inside Cricket
Windies Whitewashed; Virat Victorious

The Analyst Inside Cricket

Play Episode Listen Later Jun 3, 2025 48:17


England batter the West Indies bowlers at The Oval to complete an emphatic 3-0 series win, as England successfully reboot their one day approach. Meanwhile Virat Kohli helps Royal Challengers Bangalore to a first ever IPL triumph in Ahmedabad. Simon Hughes and Simon Mann discuss. Also a reminder of our live podcast evening on 18 June in aid of Syd Lawrence's MND fund. Tickets here - https://www.eventbrite.co.uk/e/the-analyst-inside-cricket-podcast-live-tickets-1353264403259?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl Learn more about your ad choices. Visit podcastchoices.com/adchoices

Kennedy Molloy Catchup - Triple M Network
Ariarne Titmus | Big Freeze 11, Hawthorn Loyalty & Ledecky Rivalry

Kennedy Molloy Catchup - Triple M Network

Play Episode Listen Later Jun 3, 2025 9:37


Four-time Olympian Ariarne Titmus joined Mick In The Morning as she prepares to go down the slide for Big Freeze 11 supporting Neale Daniher and the fight against MND. The swimming great talks love for the Hawks, new Tassie team, conversations with the Daniher's, rivalry against the American swim team, and so much more!See omnystudio.com/listener for privacy information.

EZ News
EZ News 06/02/25

EZ News

Play Episode Listen Later Jun 2, 2025 6:10


Good afternoon, I'm _____ with today's episode of EZ News. Tai-Ex opening The Tai-Ex opened down 93-points this morning from last Thursday's close, at 21,253 on turnover of 6.4-billion N-T. The market bucked a regional upward trend on Thursday and ended the day marginally lower. That decline came despite other Asian indexes surging on the back of news that a U-S court ruling has blocked President Donald Trump from imposing sweeping tariffs on imports under an emergency-powers law. MND to take delivery of 42 more Abrams MBTs later this month The Ministry of National Defense is reportedly slated to take delivery of 42 more M-1-A-2-T Abrams main battle tanks later this month. Sources are being cited as saying the tanks will participate (參加) in live-fire drills scheduled to take place between June 18 and 27 at a base in Hsinchu County. The Army took delivery of it first batch of 38 Abrams tanks in December of last year. Another 28 tanks are expected to arrive in Taiwan in the first quarter of next year. The U-S State Department approved Taiwan's request to purchase 108 M-1-A-2-T tanks and related equipment in 2019. Sports body presses for apology after table tennis prodigy pulled from tournament The Sports Administration is demanding an apology from the national table tennis association after it banned Yeh Yi-tian from competing in the upcoming World Table Tennis United States Smash tournament. According to the administration, the Chinese Taipei Table Tennis Association must explain why it withdrew (退出) Yeh from the tournament in Las Vegas. The administration said it contacted the association about the matter after receiving a complaint from Yeh's coach, Chuang Chih-yuan and will now suspend all subsidies until an apology is issued. The Sports Administration is also warning that it could take steps to replace the Chinese Taipei Table Tennis Association's secretary-general if necessary. US Suspect Arrested in PetrolBomb Attack The FBI says it's investigating an attack on pro-Israel protestors in Boulder, Colorado as an act of terror. One man was taken into custody (拘留) accused of throwing Molotov cocktails at demonstrators and wounding several of them. Our US Correspondent Simon Marks reports. 200 dead in Nigeria from flooding The death toll following floods in Nigeria is continuing to rise, with officials now saying at least 200 have been killed in the catastrophe. Rainfall on thursday unleashed the devastating flood on a market town in the country, which is near a major trading and transit (運輸) hub. Authorities say, they're calling off rescue efforts, as they don't believe there are more survivors. Another 11 people were injured in the floods, and more than 3000 displaced… and two roads and bridges were also damaged in the floods. Pope Blesses Cyclists in Giro d'Italia Pope Leo XIV blessed the 159 cyclists competing in the Giro d'Italia as the three-week race's final stage began with an unprecedented ride through the Vatican gardens behind St. Peter's Basilica. Overall race leader Simon Yates and some other riders got off their bikes and walked forward to shake hands with the pope. The pope was presented with a replica (複製品) of the leader's pink jersey. He praised the riders as "role models for young people all over the world”. Leo is honoring the event and bringing it inside the Vatican in memory of Pope Francis, who died in April this year. ----以下訊息由 SoundOn 動態廣告贊助商提供---- -挺你所想!與你一起生活的銀行- 中國信託銀行APP超越大升級, 眾多好用功能,力挺你的金融需求! 趕緊註冊行動銀行,就送OPENPOINT100點。 立即點擊連結看活動詳情~ https://sofm.pse.is/7nt2qz -- 【台灣虎航 台中獨家直飛名古屋】 開航價$2,399元起,中台灣虎迷每週3班直飛名古屋,說走就走! 立即訂購:https://sofm.pse.is/7nt2qk -- Hosting provided by SoundOn

Your Safe Space
Losing My Uncle to MND

Your Safe Space

Play Episode Listen Later May 24, 2025 24:58


Today's episode is a closer to home. I'm opening up about Motor Neurone Disease (MND), a devastating illness that changed my family forever. In 2017, my uncle Mark lost his battle with MND, and back then, I had no idea what the disease even was.This chat is about sharing his story, raising awareness, and shining a light on the incredible work of organisations like FightMND. I'll break down what MND actually is, how it impacts not just the body but entire families, and how you can help, even in small ways.FightMND: Learn more, donate, or grab a Big Freeze 11 beanie!MND Australia: Info, support services, and research updates.

Inspiring Leadership with Jonathan Bowman-Perks MBE
368. Pro rugby player. Striving to beat MND - Matt Gallagher

Inspiring Leadership with Jonathan Bowman-Perks MBE

Play Episode Listen Later May 20, 2025 57:05


Turning Adversity into Action – Matt Gallagher's Fight Against MNDIn this powerful episode of the Inspiring Leadership Podcast, we sit down with Matt Gallagher, former Coventry rugby player and founder of the Matt Gallagher Foundation, created following his diagnosis with Motor Neurone Disease (MND) in October 2023.Rather than stepping back, Matt has taken bold steps forward—raising over £600,000 through his foundation to support research, increase awareness, and provide hands-on support to the MND community. From charity runs and rugby matches to heartfelt public speaking and community engagement, Matt's story is one of courage, resilience, and purpose.Tune in to hear how Matt is transforming personal adversity into a powerful movement of hope and solidarity.

Conversation Street
Conversation Street Episode #679

Conversation Street

Play Episode Listen Later May 10, 2025 187:37


On our latest podcast, we chat about the goings on in Weatherfield between the 5th and the 9th May 2025 (Episodes #11,561 - 11,566) A jolly May Day trip to the park takes a heartbreaking turn for Eileen this week when Julie sadly passes away. Though we've been critical in the past of Corrie bringing back this character just to kill her off, we have to admit that it's been an absolute joy seeing her on our screens again - however briefly. Pretty much everything surrounding the aftermath of her death gets a big thumbs down from us, though, from Brian jumping to the wild conclusion that Eileen bumped her off to George's farcical embalming fiasco on Friday. Also this week, Jenny bids farewell to  the Rovers (an even greater tragedy than Julie's death as far as we're concerned!), an intriguing past is teased between Mick and Kit, and James returns to the UK to collect Laila - but is Dee-Dee ready to let her go? Next up, it's The Kabin, and we chat about how Paul's MND storyline has inspired one Corrie fan to take on an incredible challenge to raise money for charity over in Australia. We finish things off with more of your listener feedback. Street Talk - 00:10:06 The Kabin - 02:25:33 Listener Questions - 02:37:34

Cork's 96fm Opinion Line
2025-05-07 Can we have "Lukes Law", MND - a devastating diagnosis, Digital detox & more

Cork's 96fm Opinion Line

Play Episode Listen Later May 7, 2025 131:31


Lukes Law - should it be a criminal offence to share videos of a tragedy?...A devastating diagnosis - helping Claire to live with MND...Digital Detox - no phone for two weeks & lots more Hosted on Acast. See acast.com/privacy for more information.

The Business Excellence Podcast
#109 From Rugby Legend to Relentless Fundraiser: The Power of Giving with Kevin Sinfield

The Business Excellence Podcast

Play Episode Listen Later May 1, 2025 59:29


Kevin Sinfield isn't just a rugby icon. He's a man on a mission. When his best friend and teammate Rob Burrow was diagnosed with MND, everything changed. In this powerful and direct conversation, Sinfield reveals how a simple promise led to running seven marathons in seven days and raising millions for a community often overlooked.He shares raw truths about leadership, loyalty, and what it really means to give. This isn't about glory. It's about purpose, pushing limits, and standing by your mates when it matters most. Whether you lead a business, a team, or a family, this is the episode you need to hear.Real talk. Big heart. Unmissable.Powered By ActionCOACH Business Coaching: The Help You Need to Grow Your Business: https://business.actioncoach.co.uk/Take Your Business to New Heights: Book Your Spot at the UK's Biggest Business Event to hear from Global Thought Leaders and Industry Pioneers in 2026:https://thebizx.co.uk/ Hosted on Acast. See acast.com/privacy for more information.

NEW: That Peter Crouch Podcast
“You're One Game from £120M” – The BRUTAL Reality of the Championship…

NEW: That Peter Crouch Podcast

Play Episode Listen Later Apr 30, 2025 49:21


On this week's episode of That Peter Crouch Podcast, the lads are knee-deep in Championship chaos as Crouchy, Chris, and Sids dive headfirst into the beautiful unpredictability of the Play-Offs.They explore what makes this stage of the season the most thrilling—and brutal—event in English football. With firsthand stories from their own careers, including Crouchy's brief stint at Norwich, to Sid's heartbreak at Brighton, they discuss how the psychological rollercoaster of the Play-Offs impacts clubs, fans, and players alike.From debating whether staying in the Championship is actually more fun than promotion, to reminiscing on iconic moments like Troy Deeney's miracle goal and Bobby Zamora's last-gasp winner, the episode blends nostalgia, insider insight, and hilarious tangents—including sandwich debates, shared lawn feuds, and the real meaning behind "gulf in class."Whether you're a football purist or just in it for the playoff mayhem, this episode delivers everything you love about the pod—laughs, heart, and a serious nod to what football means beyond the pitch.Chumbawamba 00:00 – Acknowledging that Ashley Cole episode title… 02:00 – Golf hole-in-one idea and potential podcast-branded hole04:20 – The Championship: best or most chaotic league in the world?06:10 – Watford in the Premier League vs. Championship11:22 – Mental health in football – Talk More Than Football campaign17:00 – Steve Sidwell on his forced retirement20:03 – Iconic Play-Off memories – Charlton vs. Sunderland23:05 – Brighton's brutal loss and the emotional impact of playoffs25:06 – Bobby Zamora's last-minute goal & legendary QPR moment29:11 – “One game away from £120 million” – The insane business side33:29 – Reading's shock Premier League run with just £2.5M spent40:07 – Will Burnley or Leeds survive the Premier League next season?Football chat? Easy. Talking about how you actually feel? That's where it gets tough. #TalkMoreThanFootball.https://www.three.co.uk/talkmorethanfootballTo donate to Sid's London Marathon challenge for BHF and MND, head over to https://gofund.me/372ef803 and #givesidsaquid. One quid is all it takes!Subscribe to https://www.youtube.com/channel/UCFULBvlxNWW8cWsrV6fGrcwFollow our Clips page https://www.youtube.com/channel/UCLNBLB3xr3LyiyAkhZEtiAA For more Peter Crouch: Twitter - https://twitter.com/petercrouch Therapy Crouch - https://www.youtube.com/@thetherapycrouch For more Chris Stark Twitter - https://twitter.com/Chris_StarkInstagram - https://www.instagram.com/chrisstark/For more Steve Sidwell Twitter - https://twitter.com/sjsidwell Instagram - https://www.instagram.com/stevesidwell14 #PeterCrouch #ThatPeterCrouchPodcast Hosted on Acast. See acast.com/privacy for more information.

NEW: That Peter Crouch Podcast
Has The False Nine Debate Gone TOO FAR?

NEW: That Peter Crouch Podcast

Play Episode Listen Later Apr 25, 2025 52:13


On this week's episode of That Peter Crouch Podcast, Pete, Chris, and Sids dive in with some pre-marathon chat, as Sids gears up for the London Marathon with a torn calf and a point to prove. The lads rally behind him and address what turned out to be a not-so-accurate slogan—‘Quid for Sids' (actually a fiver).They unpack this week's outrageous Premier League predictions, the form of teams like Liverpool and Arsenal, and what's going on at Chelsea and Spurs. Plus, wild tangents ensue—from Jamie Vardy memes, to middle-seat van etiquette, to a riotous reinvention of football jargon with concepts like ‘false one' and ‘fraudulent five'.It's classic chaos, with hot takes on Harry Maguire up front, Rimmel London's football insight (kind of), and just enough stats to keep it somewhat legit.Chumbawamba 00:00 – Introduction to the Friday Pod01:08 – Sids reveals calf tear just weeks before the marathon03:05 – Sids commits to running the marathon despite injury05:14 – Crouch, Chris & Sids' Premier League predictions09:18 – Arsenal's Champions League chances—real or hype?11:14 – Faking Liverpool winning the title… sort of13:12 – Championship drama and promotion praise19:04 – Crouch on Harry Maguire: “Get him up front!”24:10 – Ridiculous predictions for Liverpool v Spurs31:12 – Neutral stand? Games gone. 48:10 – “Fraudulent One” and the rise of fake football positionsTo donate to Sid's London Marathon challenge for BHF and MND, head over to https://gofund.me/372ef803 and #givesidsaquid. One quid is all it takes!Subscribe to https://www.youtube.com/channel/UCFULBvlxNWW8cWsrV6fGrcwFollow our Clips page https://www.youtube.com/channel/UCLNBLB3xr3LyiyAkhZEtiAA For more Peter Crouch: Twitter - https://twitter.com/petercrouch Therapy Crouch - https://www.youtube.com/@thetherapycrouch For more Chris Stark Twitter - https://twitter.com/Chris_StarkInstagram - https://www.instagram.com/chrisstark/For more Steve Sidwell Twitter - https://twitter.com/sjsidwell Instagram - https://www.instagram.com/stevesidwell14 #PeterCrouch #ThatPeterCrouchPodcast Hosted on Acast. See acast.com/privacy for more information.

The Cycling Europe Podcast
Episode 089: The Yorkshire Dales Monologue Special

The Cycling Europe Podcast

Play Episode Listen Later Apr 13, 2025 60:52


Andrew Sykes heads into the Yorkshire Dales for a few days and this episode of The Cycling Europe Podcast sees him travel from Bradford to Skipton, Appletreewick, Grassington and Buckden, via a canal and a couple of steep hills. Much of this episode, however, is given over to other cyclists who have recently contributed to the podcast in the form of a monologue. We hear from Justin Shiels about Welcome To My Garden, Neal Porter about his cycle around the coast of Britain in aid of MND and from Richard and Cath Jeffries about their winter LEJOG...

Dementia Researcher
ADPD 2025 Conference Highlights - Part 2

Dementia Researcher

Play Episode Listen Later Apr 12, 2025 54:04


This year's AD/PD Conference was held in Vienna, Austria from the 1st to 5th April. In this second of a two-part special we bring you highlights from the last three days of the conference. The AD/PD Conference focuses on basic science and translational and clinical research bringing New insights on disease mechanisms and etiologies, the latest findings from clinical trials, innovative outlooks on therapy and prevention and advances in diagnostic markers. In this special on-location recording our guest host Dr Isabel Castanho, Instructor the Beth Israel Deaconess Medical Center (BIDMC), Harvard Medical School talks with: Dr Emma Garland, Research Associate at The University of Sheffield. An early career researcher with a focus on Alzheimer's, and an interest in protein pathogenesis, iPSC culture and inflammation in neurodegenerative disease. Susan Rohde, PhD Student at UMC Amsterdam. Susan is a Neurobiologist interested in (healthy) brain aging and related diseases, and currently work on the Dutch 100 Plus Study. Dr Martyna Matuszyk, Research Communications Officer at the Alzheimer's Society. Supporting the charity to communicate dementia research with the public, having previously completed a PhD and Postdoc working on Alzheimer's and MND. -- Here are just a few highlights from the discussion:

NEW: That Peter Crouch Podcast
“It's Not Over!” Could Arteta's Champions League Sights SAVE Arsenal's Season?

NEW: That Peter Crouch Podcast

Play Episode Listen Later Apr 4, 2025 39:47


On this episode of That Peter Crouch Podcast, Crouchy, Chris, and Sids dive into absolute chaos. The speech-breaker game provides hilarious slurred impressions, before the lads dive in to some serious football analysis, with their unfiltered thoughts on everything from Forest's FA Cup charge to the latest Man United woes.Crouchy relives the Anfield Legends Game, and Sids goes deep with heartfelt news about his marathon fundraiser for two causes very close to his heart. To donate to Sid's London Marathon challenge for BHF and MND, head over to https://gofund.me/372ef803 and #givesidsaquid. One quid is all it takes!There's talk of semis at Wembley (yes, those ‘semis' too), Haaland's injury fallout, and the never-ending United vs City saga. And yes, there's even a debate about what football scoreline prediction counts as missionary, and which counts as ‘the wheelbarrow'.Chumbawamba 00:00:00 – Speech Breaker chaos—lads lose it laughing00:05:34 – Premier League predictions00:10:27 – Manchester Derby preview: Haaland's injury fallout00:28:14 – Sidwell speaks on his Marathon00:37:15 – Balotelli, Vinnie & Bowyer Vanarama00:39:23 – Erik Ten Haagen-DazsSubscribe to https://www.youtube.com/channel/UCFULBvlxNWW8cWsrV6fGrcwFollow our Clips page https://www.youtube.com/channel/UCLNBLB3xr3LyiyAkhZEtiAA For more Peter Crouch: Twitter - https://twitter.com/petercrouch Therapy Crouch - https://www.youtube.com/@thetherapycrouch For more Chris Stark Twitter - https://twitter.com/Chris_StarkInstagram - https://www.instagram.com/chrisstark/For more Steve Sidwell Twitter - https://twitter.com/sjsidwell Instagram - https://www.instagram.com/stevesidwell14 #PeterCrouch #ThatPeterCrouchPodcast Hosted on Acast. See acast.com/privacy for more information.

I'm Dying to Tell You
Questions About ALS? There's an App for That: Roon!

I'm Dying to Tell You

Play Episode Listen Later Apr 2, 2025 50:58 Transcription Available


When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experiences, and the "dark ages" of health information access, drove him to action. The result? ROON.Roon addresses the three dimensions of living with ALS – medical knowledge, practical daily concerns, and the emotional/existential questions that arise. Through short, digestible videos, users can find answers to questions they might never get to ask during brief clinical appointments.This episode offers a masterclass in turning personal tragedy into purpose. Beyond highlighting a valuable resource for the ALS community, it demonstrates how technology, when designed with genuine empathy, can create what Vikram beautifully describes as "a doctor friend who has your back."Download Roon to experience this sanctuary of knowledge, where the burden of searching for reliable information is lifted, and a community of experts and fellow patients are ready to help.  Thanks for sharing with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Therapy Works
Lindsey Burrow on Life After Rob

Therapy Works

Play Episode Listen Later Mar 19, 2025 52:38


In this heartfelt episode of the Therapy Works podcast, Julia welcomes Lindsey Burrow, widow of rugby legend Rob Burrow. Lindsey discusses the challenges of coping with Rob's battle against motor neurone disease and life after his passing in June 2024. She opens up about dealing with anticipatory grief, the struggle of single parenthood, and maintaining a positive mindset. Lindsey also shares her ways of coping through exercise, the importance of communication, and the support she received from family and friends. Lindsey also sheds light on the role of unpaid carers, the importance of exercise and communication, and her efforts to continue Rob's legacy through fundraising for a specialist MND care centre and her upcoming book, 'Take Care,' which which focuses on love, resilience, and the power of family during adversity. Buy Lindsey's book: https://amzn.eu/d/epJlLxi Follow Lindsey on Instagram: @rob7lindsey 00:22 Lindsey Burrow's Story: Life with Rob Burrow 01:11 Greatest Challenges After Rob's Passing 03:03 Coping with Grief and Loss 04:25 Balancing Parenthood and Personal Grief 06:02 The Role of a Carer 15:44 Children's Grief and Resilience 29:10 Rob's Legacy and Future Plans 30:17 Writing the Book: A Therapeutic Journey 32:57 Final Thoughts Please subscribe and leave a review—it truly makes all the difference! Follow Julia at @juliasamuelmbe for more insights, tips, and conversations on life's challenges and how to improve your mental well-being. Learn more about your ad choices. Visit podcastchoices.com/adchoices

EZ News
EZ News 03/19/25

EZ News

Play Episode Listen Later Mar 19, 2025 5:36


Good afternoon, I'm _____ with today's episode of EZ News. Tai-Ex opening The Tai-Ex opened down 26-points this morning from yesterday's close, at 22,245 on turnover of 4.1-billion N-T. The market closed up on Tuesday, as buying was sparked by a rally on Wall Street overnight on hopes that the U-S Federal Reserve will cut interest rates after the release of worse-than-expected retail (零售) sales data in February. MND send Quadrennial Defense Review to LY for review Defense Minister Wellington Koo is slated to meet with members of the Legislative National Defense Committee later today to answer quesitons about the Quadrennial Defense Report. The report was sent to the Legislative Yuan yesterday for review. This report focuses on the need to building strong defenses and a multilayered deterrence (威懾), while also elaborating on military cooperation with the United States. The report has to be submitted to the the Legislative Yuan within 10 months of the presidential inauguration. CDC seeing an end to flu epidemic The Centers for Disease Control says the ongoing influenza epidemic is expected to end in late March. According to the C-D-C, a total of around 108,000 outpatient and emergency visits due to flu-like illness were reported from March 9 through 15 .. .. and that figure indicate (顯示) a downward trend, but still an ongoing epidemic. The C-D-C says the most common respiratory pathogen in the community is the flu virus, with the majority being influenza type A. C-D-C Deputy Director-General Tseng Shu-hui says that the flu epidemic remains at a "critical point" and "still requires continued monitoring." UN Guterres Shocked at Israel's Gaza Strikes The United Nations Secretary General has expressed shock at the overnight Israeli attacks on Gaza. Israel launched a series of air strikes on the enclave (飛地) on Monday night ending an almost two month ceasefire. Jody Jacobs reports from New York where the Security Council ismeeting on the matter. Mali Withdraws from FrenchSpeakingCountry Alliance Mali has withdrawn from a global alliance of French-speaking countries, days after two of its neighbors took the same step. In a letter seen by The Associated Press on Tuesday, Mali's foreign ministry accused its French counterpart of “selective application of sanctions” and “contempt for Mali's sovereignty.” On Monday, the alliance's spokeswoman said Burkina Faso and Niger had also decided to remove their countries from the organization, which had already suspended the membership of the three countries over military coups in recent years. Mali, Niger and Burkina Faso are now all ruled by military juntas that have severed diplomatic ties with France and expelled (驅逐) French troops while building security partnerships with Russia instead. The three will have six months to discuss the terms of their withdrawal from the alliance before it becomes final. That was the I.C.R.T. EZ News, I'm _____. ----以下訊息由 SoundOn 動態廣告贊助商提供---- 福斯原廠認證中古車提供一站式購車安心保障 歐洲進口跨界休旅 The T-Cross 配備 Level 2 駕駛輔助系統 限時優惠 66.8 萬起再享一年原廠保固 試駕請洽璿豐汽車 03-3349555 https://sofm.pse.is/7b22t2 -- 金融市場波動加劇,想尋找資金避風港? 00864B中信美國公債0-1,鎖定存續期小於一年的美國公債, 利率風險較小,適合資金停泊,是你進可攻、退可守的投資良選! https://user285523.pse.is/79hhms -- Hosting provided by SoundOn

I'm Dying to Tell You
Carrying an ALS Gene: Mindy Uhrlaub's Story of Hope & Action

I'm Dying to Tell You

Play Episode Listen Later Mar 5, 2025 49:53 Transcription Available


What happens when you learn that your DNA carries the same mutation that led to a loved one's battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and community can help navigate these uncertainties. Mindy also talks about her work with End the Legacy, a patient led organization dedicated to the needs and interests of the Genetic ALS & FTD community.This powerful conversation is a reminder that while genetics may shape our path, they don't define who we are. Tune in for an honest, hopeful discussion about fear, resilience and finding purpose in the face of the unknown.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Saturday Live
Lindsey Burrow, Connor Allen, John McFall, Jared Harris

Saturday Live

Play Episode Listen Later Mar 1, 2025 61:40


Lindsey Burrow who inspired the nation caring for her late husband, the rugby league legend Rob Burrow, as he lived with MND, shares her story of love, loss, resilience and advocacy. At the age of sixteen, Connor Allen attacked his own mum and she reported him to police, but his life turned around thanks to support from his teachers at trial to become the Welsh Children's Laureate and multi-disciplinary artist. Multi-disciplinary is something I could add to John McFall's description too; former Paralympian, surgeon, and now the first person with a physical disability to be cleared to take part in a mission to the International Space Station. All that plus the Inheritance Tracks of The Crown and Chernobyl actor Jared Harris. Presenters: Nikki Bedi and Jon Kay Producer: Ben Mitchell

The Couple Shift
I wasn't ready to die

The Couple Shift

Play Episode Listen Later Feb 28, 2025 24:46


In this special episode we share both of our perspectives on life after a tracheostomy. Why did Jules decide to go for it? How easy is it for MA to take care of it? What has changed? All this and more. It feels good to be back!Thanks for listening. With love, Jules & MAInstagram: @teamhighoctanejulesWebsite: www.teamhighoctane.com✉️ Email us: TCS@mariaaleandra.comALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

Beyond The Bump

Welcome to EP16 of Beyond The Balls! Jeff is 38, a father of two beautiful children and has Motor Neurone Disease (MND). He was diagnosed 7 months ago and his body is robbing him of his life with his family.  Chi's father also passed away at 68 from MND (Also known as ALS / Lou Gehrig's). It's a terrible disease which shuts down your nerves, but leaves you in full faculty of everything happening around you - including what's being taken away. That includes your movement, your speech, your dignity and ultimately your breathing.  It sadly is a disease that is becoming much too common. It is also incredibly poorly understood. We don't know what causes it and there is no cure, with average life expectancy from diagnosis being 2 years. So when we got introduced to Jeff and his wife Sarah, we agreed we would try to change that, to increase awareness of the disease.  Jeff & Sarah came on the podcast  to talk about what they're going through and it is one of the most profound, inspiring and heartbreaking pieces of work we could ever hope to be a part of. Jeff talks about resilience. About being grateful for a life well lived. About love. About his family. The grace in which he & Sarah have approached his diagnosis is truly, truly astounding. They are by all definitions, incredible human beings, dealt the most unfair hand in life.  We hope you can be inspired by this difficult interview.   Resource links: Jeff & Sarah's GoFundMe Learn more about MND on FightMND   Beyond the Balls is a fatherhood podcast brought to you by Jayde Couldwell and Chi Lo, a Beyond The Bump production. This podcast is targeted at dads, dads to be, their partners and anyone interested in the journey of fatherhood.  We believe that every dad wants to be the best they can be so our purpose is to entertain, educate and empower our audience. We promise to have open and honest discussions in the hope to leave you feeling more supported after every listen. Join us in celebrating the ups and downs of fatherhood today! Yeah the dads!   Follow us on Instagram: @beyondtheballs.podcast Follow Jayde on Instagram: @londonxboston Follow Chi on Instagram: @chi_lo Follow @yummmchi for some cooking adventures!   This episode is proudly sponsored by Tommee Tippee! Happy 60th Anniversary!  Tommee Tippee's award-winning bottles have been trusted by parents for over 60 years. From the self-sterilising bottle range for ultimate convenience, to the #1 Natural Start Bottle designed to make switching between breast and bottle effortless, to the Advanced Anti-Colic Bottle that's proven to ease colic, gas, and reflux, their scientifically-backed bottles support every stage of your feeding journey. Loved by parents, and we know you'll love them too.

Cork's 96fm Opinion Line
Cork's Honorary French Consul Josselin Le Gall On Seeing His Late Dad Die Of Motor Neuron Disease

Cork's 96fm Opinion Line

Play Episode Listen Later Feb 18, 2025 24:42


Cork's Honorary French Consul Josselin Le Gall chats in studio with PJ about seeing his dad in France dying of MND and IMNDA Nurse Naomi Fitzgibbon fills PJ in what is available to families Hosted on Acast. See acast.com/privacy for more information.

Cork's 96fm Opinion Line
2025-02-18 Victory For Taxis On Bus Lanes, My Dad Died Of MND In France, Image Abuse & Deepfakes & More...

Cork's 96fm Opinion Line

Play Episode Listen Later Feb 18, 2025 132:10


PJ talks to taximan Derry who had a case against him thrown out in court, to Cork's Honorary French Consul Josselin Le Gall about his dad's death in France from MND, to Orla O'Donovan about a powerful new documentary on Image Abuse and Deep Fakes. And more... Hosted on Acast. See acast.com/privacy for more information.

Recovery After Stroke
How I Overcame Stroke, Cancer & MND – Clive Branson's Powerful Story

Recovery After Stroke

Play Episode Listen Later Feb 17, 2025 77:35


From stroke to cancer to MND, Clive Branson's journey proves that resilience and mindset can redefine recovery. Watch his inspiring story now. The post How I Overcame Stroke, Cancer & MND – Clive Branson's Powerful Story appeared first on Recovery After Stroke.

Ouch: Disability Talk
‘Time is the enemy' for actor playing Richard III

Ouch: Disability Talk

Play Episode Listen Later Feb 5, 2025 28:29


Actor Michael Patrick has just picked up an award for his unique portrayal of Shakespeare's Richard III, which gives the play a fresh twist inspired by his own experience of living with motor neurone disease (MND).Michael is no stranger to MND. His father died from the condition and his sister is also living with it, although drug trials for the siblings have given them more hope for the future.Also on this episode, the charity Mencap says it fears for peoples lives after the NHS dropped annual health checks for people with learning disabilities from its priorities plan.We speak with Mencap CEO, Jon Sparkes, as well as Nigel and Rahima about their experiences of the Health MOTs.And we meet Japan's Nobuyuki Tsujii, a blind pianist who's played at concert venues around the world including the Sydney Opera House.Presented by: Emma Tracey Produced by: Daniel Gordon, Alex Collins and George Sharpe Sound recording and design by: Dave O'Neill Editors: Beth Rose and Ben Mundy

I'm Dying to Tell You
I AM ALS Turns 6: Community Teams Inspiring Change

I'm Dying to Tell You

Play Episode Listen Later Jan 28, 2025 66:29 Transcription Available


Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope.  In this special episode, we're celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Because for far too long, those most impacted by ALS weren't leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but we're operating on the ALS clock—pushing for accelerated progress every single day.Today, I'm thrilled to chat with four incredible volunteers, Tim Abeska, Randy Gregory Jr., Cristy Hardin & Deb Winters about how I AM ALS continues to be driven by patient voices, advocating, empowering, and fighting to make ALS a thing of the past. We'll dive into the work of the I AM ALS Community Teams, their ongoing efforts, and how YOU can get involved in this powerful movement.So, listen in and be inspired to join these teams of patients, caregivers, and advocates who prove that the impossible is possible—every single day.  Thank you for sharing this celebration.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

I'm Dying to Tell You
Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack

I'm Dying to Tell You

Play Episode Listen Later Jan 15, 2025 63:57 Transcription Available


Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved hearing him talk about how fashion, music and medicine are all playing a part in the battle against ALS.For 24 years, Dr. Bedlack of the Duke ALS Clinic has been at the forefront of ALS research, driven by a childhood fascination with the brain. His journey has been marked by pivotal moments that shaped his dedication to building a program offering hope and options for ALS patients.  Here, Dr. Bedlack reflects on the significance of HOPE, not only as a treatment strategy but as a vital component of navigating life with ALS.  Dr. Bedlack also shares his learnings after studying the 62 known cases of ALS reversals.  This episode is a testament to the relentless pursuit of a brighter tomorrow, where there is a world without ALS.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Conversation Street
Corrie in 2024: A Year In Review

Conversation Street

Play Episode Listen Later Jan 7, 2025 129:28


In this week's bonus episode, we take a deep dive into all things Coronation Street in 2024 - a year where the drama behind the scenes often rivalled what was playing out on screen! From the departure of producer Iain Macleod and the early releases on ITVX, to a wave of concerning press articles about the state of our beloved soap, it was certainly a bit of a challenging year to be a Corrie fan. But as always, there were plenty of moments that stood out for the right reasons. For every misstep - like the George and Glenda feud - there were episodes, stories, and characters that captured our imagination, including Paul's heartbreaking journey with MND and the chaotic antics at the Institute. We also had the multiple twists of the Joel and Lauren saga, the credulity-stretching reveal of Toyah's baby, the undeniable charm of Dorin, and of course... #Swarla. In this episode, we'll unpack everything we loved, everything that didn't quite hit the mark, and everything in between. We hope you enjoy the ride!

I'm Dying to Tell You
Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey

I'm Dying to Tell You

Play Episode Listen Later Dec 12, 2024 54:36 Transcription Available


Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That's what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny's story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what's possible with ALS.Johnny's support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resilience. With a holistic approach to managing ALS—including ice baths, meditation, and advocacy through Athletes vs ALS—Johnny exemplifies hope, unity, and perseverance. His journey reminds us of the strength in community and the relentless pursuit of life's possibilities. Listen in and share with a friend. Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.