With Mais and Mal

In this episode, Mal unpacks everything it took to move across the country to the east coast. From apartment hunting and car rentals, to dance classes and doctor appointments.   Join us in welcoming 2024 with some chill vibes and setting our intentions with a vision board workshop! Friday, February 16th 6:00 PM EST (now that we're in the same time zone!) Come hang out on Zoom with us and think about what this year holds for you, or just work on a craft and chill.  Register here! @withmaisandmal  @the_maisinator @curbcutsncocktails

In this episode, Mais and Mal share their experiences traveling domestically and internationally.  They share their run ins with TSA and the constant plague of inaccessibility, and some helpful things they've learned along the way.     If you want to chat with Mallory about how to make your bar, restaurant, hotel, or airline more accessible, check out her services on her website HERE   If you want to check out Maisy's Packing Spreadsheet, go HERE     @withmaisandmal  @the_maisinator @curbcutsncocktails

In this episode, listen as Mais and Mal slowly unravel while talking about the inconsistencies and lack of communication within the healthcare system, but also all of the cool stuff they're working on! @withmaisandmal  @the_maisinator @curbcutsncocktails

Places to Donate: Abortion Funds by State Planned Parenthood Maine Family Planning ----------------------------------------------------- In this episode we will be talking about our individual experiences in graduate school and higher education in general, why we decided to go, what we learned, and was it worth it?!  We'll also touch on how we found a balance between managing our health and navigating the more typical challenges that grad school presents.  

We know it's been a little while since our last podcast.  Here's what we've been up to in the meantime!   Thanks for your patience as we wrap up degrees, navigate new jobs, and try to find some semblance of normalcy in this wild world.   As always, find us on social media and let us know what you want to hear more about!   @withmaisandmal        @the_maisinator        @curbcutsncocktails  

In this episode, Maisy shares her most recent healthcare endeavors while balancing work, school, and life, and Mal talks about hearing from providers at a recent conference.  What advice would you give providers dealing with patients who have rare diseases?  How do you balance your health and the other parts of your life?   @withmaisandmal        @the_maisinator        @curbcutsncocktails      

We know it's been a little while since we've posted on here so we really appreciate your patience.  Part of what we talk about is balancing a rare disease with living a "normal" life and sometimes that means some things get put on the back burner.  But we're back! So thanks for sticking around.  Hear all the things we've been up to and all the changes that we've brought into 2021, as well as some exciting opportunities we have coming up!   Register for the Global Gene Summit! We'll be presenting Wednesday, 9/29 at 12:50 EST   And as always, follow us on social media and check out our new website for more updates! @withmaisandmal    

CW: Mention of mental health challenges & suicidal ideation   In this episode, we dig into the ways social media has helped and hindered the chronic illness & rare disease community, the ways in which we can seek support and the risk of getting caught up in the toxicity of social media as a whole. We would love for this to be a dialogue of sorts so feel free to share your thoughts and opinions in the comments! This is definitely one of our heavier episodes thus far, so thank you for giving us the space to share our thoughts and our journey.   ---  Subscribe to our Patreon   Follow us on Instagram @curbcutsncocktails @the_maisinator @withmaisandmal  

We got so many good questions for our mom before our last episode that we wanted another chance to answer some of them.  In this episode, we dig a little deeper in navigating the healthcare world as a new mom and as a family.  Our mom also talks about the incredible advocacy work she's done on behalf of families with children who have special health care needs.    Subscribe to our Patreon   Follow us on Instagram @curbcutsncocktails @the_maisinator @withmaisandmal  

In this episode, we host our first guest: our mom!  She helps us answer some of your questions about our childhood and what it was like to raise two daughters with complex medical needs. It was a lot of fun reminiscing so we didn't get to every question, but she'll definitely be back for a part 2! Stay tuned!      Subscribe to our Patreon  Follow us on Instagram@curbcutsncocktails@the_maisinator@withmaisandmal

Join Mais & Mal as we share some of our favorite virtual holiday activities and some of our tips for getting through a cold, dark winter.  Your feelings are valid and you are not alone.  Happy Holidays!  We're here for you.      ---Mindfulness & Meditation:CalmHeadSpaceInsight7 minutes to lower your stress in your body and mind10 minutes to lower the tension in your bodyShineCalming AnxietyMovement: Yoga with AdrieneBlogilates(with kids!)GoNoodleYoMind Guided MeditationsQuick Easy Breathing Exercise---Other Resources:TalkspaceNational Suicide Prevention Lifeline800-273-8255List of Warm Lines by State---Subscribe to our PatreonFollow us on IG!Mal: @curbcutsncocktailsMaisy: @the_maisinator@withmaisandmal

In this episode of With Mais & Mal, we discuss HEALTH INSURANCE!...and also our favorite Thanksgiving traditions, foods, and memories. We know this year is going to look pretty different for a lot of people, so we shared some of our ideas for how to keep the festivities virtual!  What's your favorite Thanksgiving food or memory? Check out the health insurance marketplace here!How to watch the Macy's Thanksgiving Day Parade Follow us on insta:Mal: @curbcutsncocktailsMais: @the_maisinatorPod: @withmaisandmal

We know times are still weird for everyone so we just wanted to take a moment to check in with each other and let you know you're not alone.  Sometimes social media makes it look like things are easy for people, but just know, everyone is doing their best to navigate these unprecedented times. As things start to open up again, don't feel guilty for making the choices that are best for you and your family. If you are having a hard time, and need someone to talk to, reach out: National Suicide Prevention Lifeline800-273-8255List of Warm Lines by State  Subscribe to our Patreon Sign up for our Halloween Zoom

In this episode, Maisy recounts her study abroad adventures from London to Rome, Italy, Ireland, Scotland, and Paris.  It was an unforgettable experience, but having a chronic illness definitely made things challenging. Subscribe to our Patreon!https://www.patreon.com/WithMaisandMal  Sign up for our Live Halloween Zoom Party!We're going to be staying home for Halloween this year and we hope you do too. Join us for a Live Zoom Halloween Party on 10/31!From 7:00-9:00 (EST) Follow us on IG!Mal: @curbcutsncocktailsMaisy: @the_maisinator@withmaisandmal 

In this episode, Mais and Mal dive into their experience choosing and attending college. We talk about accommodations, communication, friends, professors, and so much more.Thank you to Rebekah, Cat, and Samantha for the great questions!If there are any more that we didn't answer, let us know in the comments and we'll get to them in our next episode!Here are some fun memories from our college years:   .    .   . .      Find us on IG! curbcutsncocktailsthe_maisinator

In this episode, we recount what Maisy does remember and Mal helps fill in the blanks. We also discuss our different experiences in our school and community growing up.  Mal: @curbcutsncocktailsMaisy: @the_maisinator

Mal describes our family's journey through a new diagnosis, some of the amazing people who helped us along the way, and... Michael Jackson?Tune in!

Well, here it is folks! Our very first podcast episode. We wanted to roll out this first episode to let you all know who we are and what inspired us to start this. We are still getting the hang of things and will gladly welcome feedback on production quality, but we're just so happy to share our voices with you! Thanks for tuning in!  Find us on IG:Mal: @curbcutsncocktailsMais: @the_maisinator