Podcasts about spoonies

Robby and Sammi have broken their hiatus, Pain Warriors! Today's episode is a celebration because the podcast that started it all has been around for FIVE YEARS! Things have definitely changed, but also so much is still the same. They do a short check in today, but will be back soon with more episodes focused on pain and other chronic conditions. Keep your head up, Spoonies! Follow the show on Instagram @thepainfultruthpodcast, as well as Robby @robert1950studios and Sammi @thesam.a.lamCheck out their TikTok @1950StudiosYou can find Limitless Broadcasting on Instagram @limitlessbroadcasting.Rant Radio is LIVE! Call 844-857-7268 and leave your rant today. Check out LimitlessBroadcastingNetwork.com for all of our podcasts, subscriptions, and to pick up some awesome merch!

Chronic illness impacts every aspect of our lives, including the bedroom. In this refreshingly candid conversation, we break down the walls of shame and silence surrounding sexuality when living with chronic conditions.Ali returns from her mountain cabin retreat to share how her diagnosis completely changed her relationship with intimacy—once a proudly sexual person who even won a Thunder Down Under fake orgasm contest (with her mother cheering her on!), years of severe symptoms and medication side effects left her disinterested in physical connection. Only after prioritizing rest and health did she reconnect with that part of herself – a journey many Spoonies can relate to.The discussion expands into how religious upbringings compound these challenges. From Catholic households to Mormon traditions, many of us received messages of fear and shame rather than education about our bodies. Jen's mother joins the conversation, offering fascinating insights into Mormon temple practices, including special garments with symbolic markings and secret names women aren't allowed to speak. Her powerful story of liberation – shouting her temple name from a mountaintop – demonstrates how breaking free from restrictive beliefs can be part of our healing journey.Personal stories range from embarrassing (smuggling a vibrator through Middle Eastern customs) to deeply concerning (the lack of comprehensive sex education in today's schools). We examine how gender expectations shaped our understanding of roles within relationships and how breaking these generational patterns through open, honest conversations can create healthier foundations for our children.Whether you're struggling with reclaiming your sexuality through chronic illness or want to better understand how illness impacts intimacy, this episode offers validation, laughter, and a reminder that your experiences deserve to be acknowledged without shame. Join us for this profoundly human conversation about one of the most natural yet seldom-discussed aspects of the Spoonie experience.Send us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice

Ever wondered how fitness can be more inclusive and empowering for everyone? Join us as we dive into a transformative conversation with Keira, the innovative founder of Chaotic Good Fitness, who has redefined personal training for neurodivergent and queer individuals. Keira's journey, marked by personal battles with ADHD and depression, has fueled their empathetic and personalized approach to fitness. Discover how Kira crafts unique fitness plans for those with chronic conditions like RA, fibromyalgia, and POTS, prioritizing collaboration and boosting confidence while challenging the stale norms of traditional fitness.Let's bring a bit of whimsical fun into our fitness journey! Picture this: workout plans laced with nerdy references and inspired by our favorite board games like Mysterium and Clue. We explore how these playful elements foster community and connection, making exercise sessions spark joy beyond the physical. Whether reminiscing about the cultural significance of Mahjong or sharing quirky stories from beloved games, it's all about tailoring workouts to fit personalities and interests, shifting the focus from weight loss to holistic well-being and joy.Staying motivated can be a struggle, especially for those with ADHD. Together with Keira, we tackle the stigmas and societal expectations attached to fitness, advocating for flexibility and creativity in workout routines. We introduce the concept of an "internal bra" for improved posture and share practical tips for maintaining an active lifestyle. As our conversation wraps up, we express heartfelt gratitude for our cherished community of "Spoonies," whose support energizes and inspires us. Join us for this empowering and heartfelt episode as we celebrate the strength in community and the joy of fitness tailored just for you.Send us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/ Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

After a life-altering experience when her husband was diagnosed with glioblastoma during her pregnancy, Andrea Nakayama realized the healthcare system often treats illnesses instead of the individual. This inspired her to revolutionize the approach to chronic illness. In this episode, Dr. Jannine Krause speaks with Andrea Nakayama, founder of the Functional Nutrition Alliance, about her groundbreaking work in narrative medicine—an approach that focuses on listening to a patient's story and addressing the nuances in the clent's story often overlooked in healthcare. Andrea shares how integrating health stories with clinical insights can help uncover the root causes of chronic conditions and why many people don't improve despite doing “all the right things.” What You'll Learn in This Episode: How the medical system's diagnosis-first approach impacts your health journey. Why doctors and the healthcare system can't always “fix” chronic illnesses. The dangers of treatment bias in alternative and functional medicine. The value of doing your own research to empower your healthcare decisions. Risks of following social media influencers for health advice. Why foundational health tests—like blood work, hydration checks, and bowel movement evaluations—are crucial. How combining your health story with your chemistry reveals key health insights. The surprising power of joy and its role in healing beyond supplements and protocols. Key Takeaways: Your Story Matters: Chronic illness isn't just about symptoms—it's about the full context of your life and history. Listen to Your Body: Foundational health markers, like hydration and digestion, hold valuable clues to your health. Beware of Bias: Both conventional and alternative medicine can fall into one-size-fits-all treatment patterns. Joy Is Healing: Small, joyful activities can be as transformative as any supplement. Resources from the Show: Andrea Nakayama's Website: andreanakayama.com Learn more about Narrative Medicine Meets Functional Medicine: Visit Here If you or someone you love is struggling with chronic health conditions, this episode will inspire you to uncover the clues in your own story and take a holistic approach to wellness.

For this special season three finale, Martine is joined by Kathy Perez, Head of Global Patient Advocacy at argenx. They reflect on some of the most impactful and moving moments from guests this season. Kathy asks Martine about her favorite learnings and takeaways as host of the show. While life with autoimmune conditions like MG or CIDP includes a wide range of emotions, Kathy and Martine dig into perhaps the strongest of them all: hope. Whether managing frustrations or juggling the physical changes and pain, hope is what continues to shine through as a beacon for perseverance. Together, Kathy and Martine underscore the transformative power of sharing each untold story, building a strong community, and demonstrating how fostering hope becomes armor for adversity.See omnystudio.com/listener for privacy information.

Tasha has always faced life's challenges head-on. Diagnosed with MG at the young age of 6, she quickly learned the importance of self-confidence. At 29, an MG crisis pushed her to manage her health from a new perspective. From her hospital bed, she created a nonprofit aimed not just at sharing her story but also at empowering and inspiring others within the MG community. Despite numerous setbacks, Tasha tapped into a deep well of strength, showcasing the transformative power of believing in oneself. See omnystudio.com/listener for privacy information.

Curious about how to navigate life with rheumatoid arthritis while maintaining a positive outlook? Join us as we reconnect with Cheryl Crow with Jen Weaver,  spirited advocates and fellow Spoonies, who share her heartfelt journies. Jen opens up about the severe allergic reactions she's faced with TNF inhibitors leading to pustular psoriasis, offering a candid look at her daily routines and the importance of personalized treatment plans. Her story is one of resilience, community, and finding unexpected blessings amid the challenges of chronic illness.Ever wondered how social media can lead to life-changing opportunities? Discover how our online connections brought us to the Rheumatology Research Foundation, where we took on the pivotal roles of Rheum Champions at the Rheumatology Investigators Meeting in Denver. Learn about the Foundation's mission to address workforce shortages and the critical role of patient and caregiver voices in shaping the future of rheumatology research. From grant updates to the purpose of the investigators' meeting, we provide an insider's look at the exciting advancements in the field.Finally, gain valuable insights and practical tips for living with arthritis, whether you're newly diagnosed or a long-time warrior. From highlighting favorite arthritis gadgets like the Kitchen Mama can opener and Grace and Abel compression gloves, to sharing personal entertainment picks and exploring support groups, we cover it all. Plus, hear about our new roles as moderators on the Cabana app and the importance of community support. Tune in for an episode filled with heartfelt stories, expert advice, and a touch of inspiration to help you navigate your journey with arthritis.https://rrf.beta-markstein.co/rheum-champion/https://podcasts.apple.com/us/podcast/arthritis-life/id1519637317?i=1000662917607Send us a Text Message.New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the Show.Website: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

A few years ago, Ali DiGiacomo was shocked to discover her face on a Daily Mail article called ‘Addicted to being sad: Teenage girls with invisible illnesses – known as ‘Spoonies' – post TikToks of themselves crying or in hospital to generate thousands of likes – as experts raise concerns […]

Of course approaching the one year anniversary of losing someone very important, our thoughts turn to grief. In this episode we discuss grief as it pertains to chronic illness patients and even try to apply it to how the doctor's feel/act.We've also added a resource to every discription which is the most elaborate checklist of symptoms associated with Ehlers-Danlos. You have to school a bit past some technical jargon but the checklist is there and easy to read.  We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comHere is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdfIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

I recorded a conversation with three amazing members of my group mentorship program: the Thriving Spoonie Pathway. They share where they were before they joined, how their life has changed since then, and what helped them make the decision to join. TSP is a live group experience that will help you find freedom from debilitating fatigue and unpredictable symptoms in under 16 weeks! If you didn't know - the doors are open again and you can save 45% for a limited time! Visit https://www.thespooniementor.com/tsp for more details! Want to learn how to find freedom from chronic pain and fatigue? Register for my free training: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.thespooniementor.com/tsp Earn with Ease (Business Coaching): https://www.thespooniementor.com/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.thespooniementor.com/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

After a little break after a crazy few weeks, Bri and Beka are back! In this week's episode, those girls give an update on what has been going on in their lives and also talk about The Tortured Poets Department album and how certain songs relate to their chronic illness.  We encourage you to get social with us on social media by liking our Facebook page, “Those Girls with Arthritis”, and following us on instagram @thosegirlswitharthritis. Send your questions to us on Instagram or click here to submit your questions anonymously. We encourage anyone who would like to join our Facebook community group to do so! You can access the page by clicking here. Check out our merch shop by going to thosegirlswitharthritis.com. Don't forget to subscribe, so you won't miss future episodes!Disclaimer: Those Girls with Arthritis was created by two friends hoping to share their personal experiences and learn from others. We are not medical experts. Please contact your health professionals before making any choices to change your medical plan.

My 2024 has been FULL of ups and downs! Tune in to hear what's been going on in my life and how I've been navigating the rollercoaster. Join our live workshop on navigating grief when chronically ill: https://emilyfraser.ck.page/griefworkshop Thriving Spoonie Pathway (Group Mentorship Program) https://www.thespooniementor.com/tsp Earn with Ease (Business Coaching for Spoonies): https://www.thespooniementor.com/earnwithease Instagram: ⁠https://instagram.com/thespooniementor⁠ Contact: hello@thespooniementor.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Tis the season! What season? Struggle Bus Season! And it doesn't just pertain to Spoonies but Amberlyn and Ann discuss the reality of the struggle and some ways to manage it. Hint: supportive friends and humor. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Spoonies, we have missed y'all!!! On this episode, we catch up on life lately and fill you all in on some of the things that have been going on in our lives. As we walk through the hard things and the little things in our lives, we are thankful for one another and all of you! We hope you enjoy!

Maz joins Rick on the show this week to start the conversation about how to pick where to stay on a Walt Disney World vacation.  There are a lot of choices between on or off property, and between values, moderates, and deluxes.  Also, Rick addresses the controversies regarding the changes to the DAS pass system at Walt Disney World, and more importantly the toxic way a lot of the Disney community has been talking about disabled people.

Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library. Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your shoes handy and ready to go. And remember that part of prepping is thinking about the worst case scenario. You don't need to plan every detail in the event of a death, but it's a good idea to share basic wishes with your loved ones. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

On this episode, we have the talented and fun Pearce Butcher with us. Pearce is the owner of Pearce B Designs where she is a landscape designer who specializes in designing beautiful spaces for functional outdoor living. We had a great time with her being amazed at spring and nature while also getting her input into some of the South's iconic trees. We hope you enjoy Spoonies!

Yes, we're a few days late, but we discussed some "Good News" that was shared on Rare Disease Day, February 29th. We'd love to hear what you think.We also got a new mascot and are in the process of naming them. (We are all inclusive so our mascot uses they/them pronouns.) Listen in to find out who the mascot could possibly be. Big surprise: it's NOT A ZEBRA! We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Ann has experience having a service dog and Amberlyn wants to know more so why not have the discussion on the podcast, right?You may notice the new name: Tale of Two Zebras. Amberlyn aka Mrs. Labeezy and Ann aka Elder Zebra are making this thing official so you'll be noticing our efforts to make this brainchild a reality.  Like so many things involving chronic illness, it will take baby steps and time to fully reach 100% official status. Thank you for joining us on our journey. Glad you're here. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Thank you to our special guest this episode. We had a lot of fun talking about POTS, living with chronic illness, and sharing stories. There were a lot of resources mentioned and I will be adding them to the episode description asap. TBH: It was much harder editing the recording than I expected. It is one thing to live with health challenges, it is another to listen to others validate the experience. Listening back to the recording I was moved to tears and I need some time to process my feelings before finishing all the notes and details for reference. Thank you for your patience and understanding.Very soon we will be doing an official intro to our "new" podcast: The Tale of Two Zebras. Amberlyn and I feel it is a better reflection of our podcast topics and discussions. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

What don't we cover in this episode? From 90s television to current television, ghetto cowboys and vermin removal....a wise variety of topics are discussed in this episode. Hope you enjoy Spoonies and hope we can bring you a smile today!!

Sleep is suppose to be restorative but for EDS Zebras, it is often every but restorative. Who knew there was an illness where sleeping can actually be painful? Pillows quickly become friends. There are also higher risks of serious issues and it is strongly recommended that sleep troubles be discussed with  medical professionals. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. With it being the month of February and Valentines Day in the week, Mrs. Lazbeezy and Ann decided to discuss friendships and the challenges presented by being a spoon.Here's a link to the reel that talked about 8 minute friends: https://www.instagram.com/reel/C3BM8ZkpMIG/?utm_source=ig_web_copy_linkWe gave a shout out to the our TikTok creator friend, eryykc, and his brilliant life hack to remember what he needs to bring with him for the day and how to make sure those items get home. Here's the link to hear his idea from the source: https://www.tiktok.com/@eryykc/video/7332858626647854379?is_from_webapp=1&sender_device=pc&web_id=7173368752716793390Mrs. Labeezy highlighted a Zebra "must have": handwarmers that are rechargeable, don't burn, and are highly portable. Here's a link and she is eligible for commission if you use the link: https://www.amazon.com/dp/B0CMQMYBK7?starsLeft=1&ref_=cm_sw_r_apin_dp_2DQG2WTP3K5B8D7V0KND&th=1 Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at GotAnySpoons@gmail.com

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.Our main topic of discussion this week is mobility aids. It's a hot topic and often a rough one with generational challenges of who, when, & why people should use them.Trigger Warning: we do talk about depression and mention suicidal ideation along with giving specifics to our weight as it relates to some mobility aids.Please visit Mrs. Labeezy's Amazon Link to see our Zebra "Must Haves". She is eligible for a small commission if you purchase by following the link.https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_AQWPX1V8SSS04G2WRF8ALast week I mentioned the Body Braid and shared the video that helps me get the most support out of my braid. I forgot to share a link to purchase the Body Braid, so let me correct that here: https://bodybraid.com/pages/products Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.The episode is a bit random and is a great example of our general randomness dealing with our chronic illness. I had never heard of the Ladle Theory so join in Amberlyn teaching me neat things. Please visit Mrs. Labeezy's Amazon Link to see our Zebra "Must Haves". She is eligible for a small commission if you purchase by following the link.https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_4QNC0KVCS7YE81PGMVVWI mentioned the Body Braid. You can find this product here.Here's the woman who's video who helps me every time I put mine on.https://youtu.be/_WzD6WJ6tQ8?si=jlo1rq_30lwUqGq5 Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

In this episode we explore the finite nature of personal energy and capacity. We refer to our own experiences and to wider "spoon theory". The pace of this conversation is slow and relaxed; it's basically two autistic people hanging out together. If that's your vibe, we'd love you to join us

On this episode we chat about surviving the month of January and a couple of stories from the arctic blast of cold we have experienced recently. We discuss after school routines, homework and the inevitable snacking. We also cover a little on newborn life and the gift of self compassion. Hope you enjoy, Spoonies!

Are you tired of striving for perfection in every aspect of your life, including your wellness journey? It's time to let go of the pressure to be perfect and instead focus on progress over perfection. In the latest episode of The Autoimmune Hour, host Sharon Sayler sits down with veteran psychotherapist, award-winning speaker, and author Dr. Charryse Johnson. Dr. Charryse, known for her bestseller “Expired Mindsets,” discusses her latest book “Get Off the Scale and Heal,” a valuable guide not about losing weight but rather about gaining self-love, empowerment, breaking free from external judgments, and forming a healthier relationship with our bodies, including • Understanding how hormones play a meaningful role in our well-being,• Looking at how fear affects our self-image and perception,• Discovering helpful ways to break from destructive patterns,• Simple strategies to recognize and rejoice in gradual improvement.Plus, much more... More About Our Guest: Dr. Charryse Johnson is a veteran psychotherapist, award-winning speaker, and author of #1 best-selling books, Expired Mindsets: Releasing Patterns That No Longer Serve You Well (2021) and Get Off the Scale and Heal (2023). Dr. Johnson holds a B.A. in Human Development and Family Studies, an M.A. in Professional Counseling, and a Ph.D. in Counseling Psychology with a concentration in crisis and trauma. Some of her most recent work involved conducting international research focused on reducing the stigma around mental health. She is a strong community advocate and has contributed to radio, social media, television, and documentaries. Her thought leadership has been featured in CNBC Online News, Prevention, Romper, Healthline, Bustle, and the Atlassian. Her passion is rooted in the belief that our past only holds the power we have relinquished— it is only meant to be a place of reference and not a place of residence. One person, one organization at a time, she aims to help others honor the space they were designed to occupy. Learn more at www.DrCharryse.com.Share this link with your family and friends: www.UnderstandingAutoimmune.com/Okay_2024* Your host is not a doctor or medical professional. In the capacity of this presentation, both guest(s) and host are acting as everyday people trying to make sense of the world. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.©2023 Sharon Sayler and UnderstandingAutoimmune.com

Ever thought of starting a business? I'm breaking down the reasons why I think becoming an entrepreneur is an amazing option for anyone with chronic illness. Dream of working 2-4 hours on weekdays, living in your PJs, and being able to take breaks whenever you want? This episode is for you! Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Welcome Mrs. Labeezy and the New Year. Had some technical difficulties but we should be good to go both here and on YouTube. Mrs. Labeezy covers the Beighton Scoring System found on the EDS Society website here. We cover some other Zebra basics and have fun relating with our unique zebra experiences. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

To learn more about the origins of the opioid crisis, check out HBO- MAX: The Crime of the Century.You can learn more about Brent David Slone and his wife's fight for justice at https://youarewithinthenorms.com/2022/03/26/they-killed-my-husband-brent-david-slone-2016-cdc-opioid-guidelines%EF%BF%BC/If you want to read about the Elliots' tragic demise, visit https://www.cato.org/commentary/after-crackdown-pain-clinic-tragic-double-suicide Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

We are in the middle of the Christmas season Spoonies!! As well as the middle of sick season. Which is why this episode features a little bit of a third scoop home from school:) We chat about a few recent Christmas activities we have been enjoying. We discuss a few hacks for you on how to not just survive Christmas break but THRIVE! One of these tips is what we are calling...."the Whatever Win". Hope you enjoy!!!

Mrs. Labeezy and Ann discuss clothing options that have worked to support the bendy zebra bodies. Links to come so check back. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Join us for this episode with the fun and lovely Mills Hall. Mills shares her story of how she began this new venture into teaching manners and etiquette to children. We love origin stories and it was fun to hear how Mills started "Manners Made Fun". We play a little game of "etiquette" cup or cone and Mills shares some tips for us to help our kids with greetings and thank you's. We hope you enjoy this one Spoonies!

I am so excited to have Mrs. Labeezy back on the show.  I will add links soon so please stop back by if you're looking for those. You can also find Mrs. Labeezy on the clock app.Here is Mrs. Labeezy's "Must Haves" on her Amazon storefront. Check it out:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_A0TB8S5PEQ474SPJKQMH Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

On this episode, we chat about holiday expectations versus reality and how to embrace where we are this holiday season. We also share three things we are loving right now which leads to discussions of home scents, sweatsuit sets, sneakers and a few of the sayings young people have these days. Hope you enjoy Spoonies!!!

Emily shares an update about her journey with IVF. How she has moved through fear and allowed herself to let go of control and trust the process. Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Did you know that movement can actually RESTORE your spoons? Exercising with chronic illness is tricky - especially for those whose health can fluctuate daily. In this episode, Zoe of @ActivelyAutoimmune breaks down tangible strategies to help people implement a sustainable and consistent movement routine. She uses her expertise as physiotherapist, personal trainer, and pilates instructor to create transformative programs for fellow spoonies. Even if you experience post-exertional malaise or are currently bed-ridden, there are tips in this episode for you! Check out Zoe's work: https://www.activelyautoimmune.com/ Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

In this episode, we have a heartfelt conversation with Kelly J. Mendenhall, a disabled author, artist, public speaker, and disability advocate. Get ready for a powerful conversation filled with inspiration, resilience, business insights, and the power of crafting. KEY HIGHLIGHTS: Get to know Kelly and delve into her journey of using crafting, particularly hand sewing and embroidery, as a form of self-care and meditation. Kelly opens up about facing sudden mobility loss in 2017 and the subsequent transformation of her life. Discussion about the importance of being true to one's authentic self. Kelly recommends "A Heartbreaking Work of Staggering Genius," emphasizing its impact on her journey and mental health. Kelly stresses the importance of self-care, dispelling the notion that it's a luxury. Pam and Kelly celebrate their wins for the week, highlighting the power of intentionality and letting go of fear. Kelly shares her future plans, including her podcast launch, creating art, and organizing craft shows designed for people with chronic disabilities. ABOUT THE GUEST: Kelly J. Mendenhall, a disabled author, artist, and advocate, has been a prominent voice against medical gaslighting since 2017. After a career dedicated to serving under-resourced communities, she faced sudden medical disability in 2017. Known for her impactful work as a medical journalist and blogger, Mendenhall has been featured in Business Insider and Yahoo! News for her advocacy. In 2019, she published the well-received "Skin in the Game: The Stories My Tattoos Tell" and launched the podcast "Skin in the Game: An Intimate Author Experience" in July 2023. Mendenhall initiated the Affordable Art Revolution in 2022, spreading joy and love to Spoonies through art and words. Additionally, she served as the keynote speaker for Disability Awareness Day in Grand Rapids, Michigan, in 2023. KEY TAKEAWAY: One of the amazing things about treating things with your hands is the tangible outcome. It's the same with writing—there's a tangible outcome. You can see words pouring onto a page. You can see a beautiful piece of art coming to life, your vision coming to life, and that is a reward I didn't ever get in the professional world with a lot of the things that I was doing. - Kelly To connect with Kelly visit her at: Website: https://kellyjmendenhall.com/ Facebook: https://www.facebook.com/nerdzilla138 Instagram: kellyjmendenhall Connect with me on Facebook at: Facebook: Pamela Stone Vision Made Media www.visionmadtwork.com --- Support this podcast: https://podcasters.spotify.com/pod/show/whatsnextforwomen/support

I almost had a huge setback this week. Listen to the episode to learn how I avoided it. Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Are you ready to decode the enigma of 'Spoon Theory'? Let's embark on a journey together, unraveling this metaphorical term coined by the notable blogger, Christine Mizerendino. We'll leverage the concept of spoons as units of daily energy, revealing the victories and challenges inherent in life with chronic illnesses or disabilities. Prepare to discover 15 signs that resonate with the 'Spoonie' life, from systematically designed daily routines to the comfort found in the empathetic companionship of fellow Spoonies.Feeling alone in your battle? Here's a promise - you are not! The wonderful world of social media abounds with expansive communities brimming with support and understanding. Simply look up hashtags like #Spoonies, #SpoonieCommunities, and #SpoonieSupport, and you'll find a universe of resources. From Rare, Patient Voice, Reactive Rehab, and countless more, you'll never be short of encouragement. We're rooting for you, and eager to accompany you along this journey. So, why wait? Come, share your story, and remember, never forget your spoon!https://myspooniesisters.chewack.com/ Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Today's guest expert is Scotty Stiles, a Pain Relief Coach and Mindbody Practitioner. Tune into this episode to hear his inspiring story! Scotty coaches men and women across the world via Zoom, assisting clients who are on their own self healing journey of overcoming chronic neuroplastic and mind-body symptoms that are related to stress, repressed emotions, and learned neural pathways from the brain. Scotty is a certified coach from the MindBodyFood Institute and is trained by Dr. Howard Schubiner in Pain Reprocessing Therapy and Emotional Awareness and Expression Therapy. It is his vision to help clients uncover their innate self healing capabilities that allow them to unlearn conditioned neural pathways & to turn the volume down on the danger signal that causes chronic pain and symptoms so that they can be living the life that was truly meant for them. Follow him for his free content across all social media platforms at @howtohealchronicpain Offering 1:1 Mindbody Coaching and Pain Reprocessing over Zoom. Book your FREE 30-min Discovery Call here: http://calendly.com/howtohealchronicpain https://linktr.ee/howtohealchronicpain Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Today Emily reflects on how her health has transformed over the last few years. What she is grateful for. What impacted her improvements. How she has been able to go from stuck in bed to doing a 4-hour hike! And the mindset shifts that helped her stop identifying as someone who is sick. VIP WAITLIST: The Art of Pacing https://emilyfraser.ck.page/theartofpacing Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

A physician in the middle of a pandemic, one who survived the earthquakes in Nepal, Christy realized the mounting rates of trauma. Seeing these showing up but not being recognized, she felt compelled to share what she knew about healing skills. So she started creating on TikTok in January of 2021. People listened, not just because she shared tools they could use, but also because she looked at it from a systems lens. How trauma shows up in bodies, in families, and in communities. In this episode we discuss the difference between post-traumatic growth and resilience. Dr. Gibson shares advice for navigating health-care systems and the importance of storytelling for advocacy. Connect with Dr. Christy Gibson: https://www.christygibson.com/ Order "The Modern Trauma Toolkit": https://www.moderntrauma.com/ VIP WAITLIST: The Art of Pacing https://emilyfraser.ck.page/theartofpacing Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Welcome to "Shit Talking Shrinks," I'm your host Paulie Siegel, a Licensed therapist, Certified Addiction Counselor and master-level trained mindfulness practitioner with a passion for psychology, humor, and insightful journeys through the realm of mental wellness. Join me as we explore the depths of the human mind, unraveling complexities while keeping it lighthearted.Today, we have a special guest, Emily Fraser, a Chronic Illness Advocate who works with a unique group of individuals known as Spoonies. Ever wondered what Spoon Theory is? Emily breaks it down for us and helps us identify the characteristics of a Spoonie.In this episode, we'll dive into the world of chronic illness, exploring what it means and how Spoonies can cope with its challenges. Emily shares valuable insights on pacing oneself and using energy wisely, essential skills for those navigating chronic health conditions. As a seasoned advocate, she provides practical strategies to enhance the lives of individuals who relate or identify as Spoonies.Join us for an enlightening conversation that combines psychology, humor, and genuine insights into the human experience. Whether you're a Spoonie yourself or simply curious about this unique perspective, you won't want to miss this episode.Listen now for episode that promises to be both informative and uplifting, as we navigate the intricacies of chronic illness with Emily Fraser on "Shit Talking Shrinks."Learn more about Emily's work at: https://www.emilyfraser.ca/Connect with Emily on Instagram here: @thespooniementorIf you want to work with me therapeutically and live in CO or ILhttps://www.courageouspathscounseling.comNeed quality therapy ASAP?! Receive 10% off your first month by clicking this link

We are joined by guest expert Dr. Rita White in this episode! This is a must-listen for anyone who is a spoonie. We dig into hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), chronic fatigue, pelvic health, and MORE! Connect with Dr. Rita: https://www.intrinsic-pt.com/ Follow Dr. Rita on instagram: https://www.instagram.com/theintrinsicpt/ Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

One year ago I was hospitalized for having myocarditis & fluid around my heart. I was also in a severe flare of my UC. I was afraid & full of doubt that I would ever be ok. I was worried I would never live the life I once lived again.But I AM. & Even better than before. Today's episode is the reminder for you that you can overcome anything. Your mindset is your greatest tool. It can empower you or keep you sick. COME JOIN THE COMMUNITY here at Journey to Limitless so we can JOURNEY TOGETHER:Community — Journey to Limitless (jtl-lifecoaching.com)Connect with your host, Court:Court | Podcast Host (@journeytolimitless_) • Instagram photos and videosLove the Journey to Limitless Podcast?Leave us a 5-star rating and review on your favorite listening app! Take a screenshot of the Journey to Limitless podcast on your phone and share it to your Instagram stories! Make sure you tag @journeytolimitless_ so that I can personally say “Hey thanks!” Showing your support for the podcast is SO appreciated and I definitely don't want it to go unnoticed! 

Richard Kellner, the founder of the Polycystic Kidney Disease Outreach Foundation joins us to talk about his mission for ending PKD in future generations. Emily talks about her fertility journey and why she has decided to do PGT-M (pre-genetic implantation testing). Learn more about PKDo: https://www.pkdo.org/pkd-free-babies Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Today's guest expert is Erin - A Chronic Illness + Complex Trauma Coach. She is also a somatic practitioner. We break down what exactly that means, and how learning about body-based approaches transformed her healing journey. Follow Erin on Instagram: https://www.instagram.com/healing.with.erin/ Learn more about Erin: https://www.embodiedhealingwitherin.com/ Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Melani Schweder of A Brighter Wild shares New Year's resolutions for spoonies. Episode 2570: New Year's Resolutions For Spoonies by Melani Schweder Melani Schweder is a Certified Health Coach, Reiki Master/Teacher, and guide for those who want to live life in full color, even through hardships like chronic illness, divorce, or other struggle. Her own health issues led her to dig deep into alternative/natural health and take sustainable, self-guided steps towards recovery. She is passionate about holistic methods, and her unique coaching process combines the best of her knowledge in whole-foods nutrition, Reiki, mindfulness, herbal medicine, and positive psychology. The original post is located here: https://www.abrighterwild.com/blog/new-years-resolutions-for-spoonies Visit Me Online at OLDPodcast.com  Interested in advertising on the show? Visit https://www.advertisecast.com/OptimalLivingDaily Learn more about your ad choices. Visit megaphone.fm/adchoices