Podcasts about shira strongin

Join me as I sit down and talk with business professional, advocate, activist, warrior fighter and all around badass Shira Strongin of SickChicks. We talk about romance, relationships, legislation, and legacy!!! I hope this podcast fills your cup with @shirastrongin @SickChickSisters --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/triple-threats--beyond/message Support this podcast: https://anchor.fm/triple-threats--beyond/support

Travis Flores is a philanthropist and award-winning author. We are lucky enough to know Travis through our mutual friend Shira Strongin from Sick Chicks, featured in episode 045. Travis talks about how he first encountered the disability community when he was eight-years-old, when he first entered the hospital. He was diagnosed as having cystic fibrosis, but at that point, he seemed very healthy. He had trouble relating to other kids in the hospital with various forms of disability, so he did not make any meaningful connection with anyone in the community of people with disabilities.   Travis left the hospital and continued living the same life as before, but with the spectre of disability quietly haunting him. His personal recognition of what his CF diagnosis meant for him really struck him in his  teenage years. By age 16, he had written a book about his journey with CF, and went on a book tour. He graduated from high school that same year, and got an undergraduate and graduate degree by the time he was 22. He felt a drive to accomplish as much as he could as soon as he could, since his future with the CF diagnosis was uncertain. However, he realized that his personal achievements, though huge and important, weren’t the totality of life. Only when he was away at college and had just split up with his long-term girlfriend, did the barely-there spectre become an unmistakable bloated monster. He couldn’t hide from his disability any longer. He felt trapped. He realized that he was alone.   Travis found that in addition to his personal accomplishments, a way to fulfill the loneliness he felt was to jump headfirst into the disabled community, a group of people he spent his early teenage years trying to avoid. A big way he did that was by becoming a philanthropist, raising money for organizations such as the Make-A-Wish Foundation, the CF Foundation, and many others.   Thank you for joining us, Travis Flores! Check out his book, The Spider Who Never Gave Up! And his latest venture, a TV series called Sorta Supportive.

Five episodes into our six-episode arc of invisible illness and mental health-themed shows, and we’re putting the focus on levels of activism and advocacy in daily life with invisible illnesses. And the guest expert had to be rare disease healthcare activist, and founder of the international nonprofit, Sick Chicks, Shira Strongin. Her work has not only assisted in legislation advocacy, and empowering young adults to get involved in Capital Hill discussions, but with Sick Chicks, Shira has spearheaded a movement of uniting young women with all chronic illnesses to empower themselves and each other. In this episode, Shira and Dominique talk about why we might want ‘swipe left and right’ on online support groups, gives talking points about how to start advocating when you’ve got an invisible illness with friends and doctors to legislation and philanthropic activism, lays out a playlist of the best de-stressor Instagram accounts and TV binge-watch shows when you’re having a ‘sick-sick’ day, and discusses how that be a game-changer with invisible illnesses is knowing that everyone can advocate in their own style, tone, personally and publicly as long as they realize you control your voice and you’re the expert in your illness/disability story. See acast.com/privacy for privacy and opt-out information.

Shira Strongin lives with multiple physical issues but doctors can't seem to put their fingers on them all. She has some gene mutations that make her one-in-a-million but she's been "undiagnosed" for years. She started a blog, writing under the pen name Sick Chick when she was just 11 years old. So many women and girls related to it that it has now become an international organization called Sick Chicks - a support network of strong, chronically ill and disabled young women who choose to make a positive difference in the world. Offering a platform for girls to express themselves, a community for girls to connect with others, and structure to empower girls to be active in their schools or cities, The Sick Chicks is helping change lives! Sick Chicks is hosting its first summit on August 4 at Saddleback College in Mission Viejo, California. The topic will be “Sisterhood and Sexuality.” Fore more info and to purchase tickets, click here.

She is incredible.

Special guests Moriah Peters, Travis Flores, and Shira Strongin by Teens Of America Radio

Teenage girls, under normal circumstances, wrestle with issues of identity and body image. But for young women with a chronic, rare disease, those struggles can be more complicated. That makes the wisdom, self-awareness, and self-confidence that shine through The Sick Chick blog all the more remarkable. We spoke to Shira Strongin, founder of The Sick Chick and a Global Genes 2015 honoree for teen advocacy, about her battle with Ehler-Danlos Syndrom, how she’s come to appreciate what her disease has taught her, and her work with other teen rare disease advocates to form We Are More, an effort to convey to the media and public that teens with chronic illnesses are defined by more than their diseases.