The Russell Silver Syndrome Podcast focuses on one of the more rare types of Dwarfism, medically known as Russell Silver Syndrome or Silver Russell Syndrome - or simply known as RSS. The podcast covers a range of topics that gets to the heart of the cha
Kim is joined in this final episode with guest co-host, creative content producer, fellow RSS adult and friend Steph Robson. They will discuss series 1 of the podcast and answer the question - did the series achieve the dreams and goals that were set out at the start of the creative process? They also discuss each of their favourite highlights from the series and explain the reasons for their choices - over a two-part episode, along with the questions: Has creating this series between us, along with support from the TARSS group and other foundations, had a lasting impact on us personally. Have our goals and dreams for this series been realised? What feedback or questions have we received? What is the future for the Russell Silver Syndrome podcast? Finally, they discuss the biggest question of all - will a second series be made? Is it a viable option and their conclusion on whether they have decided to make it or not?
Kim is joined in this final episode with guest co-host, creative content producer, fellow RSS adult and friend Steph Robson. They will discuss series 1 of the podcast and answer the question - did the series achieve the dreams and goals that were set out at the start of the creative process? They also discuss each of their favourite highlights from the series and explain the reasons for their choices - over a two-part episode, along with the questions: Has creating this series between us, along with support from the TARSS group and other foundations, had a lasting impact on us personally. Have our goals and dreams for this series been realised? What feedback or questions have we received? What is the future for the Russell Silver Syndrome podcast? Finally, they discuss the biggest question of all - will a second series be made? Is it a viable option and their conclusion on whether they have decided to make it or not?
We ask the question in this episode - can we change society's view of our form of Dwarfism? Kim is joined by four Russell Silver Syndrome people to discuss questions including: Do you think it is important TARSS take part in trying to change the view many in society have of people with dwarfism/short stature? What term do we find completely unacceptable in regards to terms people think of or say to people with short stature? How do we identify ourselves? Is this podcast series a positive proactive way to inform and educate people about RSS in particular? Our Guests Tod Tevebaugh Imogen Reid - Instagram Angel Carrola Hennig - Instagram | Facebook Hillary Jorgensen - Instagram | Twitter For more information about this syndrome and to listen to more episodes of this podcast visit www.russellsilversyndromepodcast.com.
With the experience of living as Russell Silver Syndrome (RSS), three RSS women join Kim to share words of wisdom to those that follow in our footsteps. They talk about how our parents raised us. Goals they have set and have achieved, and words of experience they feel are important to share with families of younger RSS children. Find out more about this rare form of primordial dwarfism and listen to more episodes at www.russellsilversyndromepodcast.com.
Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years. They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim's childhood that they feel shows her personality and independence. Do they have any regrets with the choices they made for their daughter? If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child? What advice do they have for families with young RSS children now? Learn and listen to more episodes about this rare form of Dwarfism at www.russellsilversyndromepodcast.com.
These three Russell Silver Syndrome (RSS) women showed so much grace, courage and honesty as they discuss their very personal experiences of not knowing about having a form of dwarfism until later in life and the impact that this has had on them. To learn more about this form of proportionate dwarfism, visit www.russellsilversyndromepodcast.com.
The road to motherhood can be challenging and for a woman with a rare form of dwarfism it very often poses extra complications and support. In this episode, four Russell Silver Syndrome (RSS) women who are mothers join me to discuss their personal journeys to motherhood and how having RSS can have an impact and what positive/negative experiences they had along the way. They will also share words of advice for various groups of people who may be listening and finally they share precious memories of their children. Our guests in this episode are Annabelle Eve Berman Kelly Morgan Steph Robson To listen to more episodes from the podcast visit www.russellsilversyndromepodcast.com.
Two Russell Silver Syndrome men with very different careers from each other join Kim to discuss whether there are negatives or positives to being a man of shorter stature in their chosen career field. Our guests in this episode are: Brian Flowers Tom Wyllie - website To listen to more episodes of the podcast visit our website www.russellsilversyndromepodcast.com.
Love is in the air this episode as Kim is joined by two Russell Silver Syndrome (RSS) women and their average-height husbands. They talk about how they met - was the short stature an issue? What would they say to those listening not associated with RSS or other forms of dwarfism, who may see a couple like them? Our guests include: Angel Carrola Hennig - Instagram | Facebook Amanda Alimena Jenkins To find out more about this rare form of dwarfism and listen to further episodes visit russellsilversyndromepodcast.com.
It is the turn of two Rusell Silver Syndrome men in this episode to discuss topics that can affect a man with short stature/dwarfism. Do they think it is important for RSS men to have a ‘voice'? What challenges have they faced in life? And what comments do they want to share with listeners? Our Guests Tod Tevenbaugh Kenny Kamm Find out more about this rare form of dwarfism at www.russellsilversyndromepodcast.com.
Joining Kim in this episode are two Rusell Silver Syndrome women who chat about their experiences surrounding various topics such as confidence and self-esteem, fashion, dating, socialising and other advice they want to share with listeners. Whether it's from feeling the self-consciousness when visiting a children's department for clothes or shoes, to finding the perfect wedding dress for our proportionate form of dwarfism. The guests explain what it is like to deal with and experience prejudice – in the workplace or when people first meet them. And how one guest explains that ‘faking confidence, can make confidence'. Our Guests Kirstyn Rice Helen Watson Find out more about this rare form of dwarfism at www.russellsilversyndromepodcast.com.
Content Warning: In this episode, our guests talk about the ableist prejudice and attitudes they have faced because of Russell Silver Syndrome. Including bullying in the workplace, as well as, the objectification and fetishisation of this proportionate dwarfism. -- In this episode, Kim is joined by three RSS women who all have careers in the Performing Arts. They each talk about the challenges they have faced in pursuing their dreams. They discuss what advice would they give to fellow RSS people who may have fears or concerns about being able to achieve their goals in a chosen career. And is there anything they would like to say to those listeners who know nothing about RSS or other types of dwarfism? Our Guests Hazel Crafer - website Tabbi Coleman - Instagram Imogen Reid - Instagram
Three people with the Russell Silver Syndrome (RSS) join Kim for this episode to discuss health challenges we can face as adults. We discuss questions such as: What treatments, if any, have you had for your health issues? Do you feel you have to be a strong advocate for your own health issues as so many Dr's do not know about RSS? Guests include: Tom Wyllie Hannah Gilroy Marissa Pohlmeyer Find out more about this rare form of dwarfism over at www.russellsilversyndromepodcast.com.
In this episode, Kim is in the hot seat and being interviewed by guest co-host and the podcast's co-producer, Steph Robson. She asks 'Who is our host?' as we get to know the person behind the podcast. Kim had no knowledge of what Steph was planning to ask her prior to the recording the episode.
In this episode, Kim chat's with the guest co-host, podcast co-producer and technical genius of this podcast series, Steph Robson. They talk about how she started supporting fellow RSS adults via online forums a number of years ago. Also, we talk about how Kim created the TARSS, Teens and Adults with Russell Silver Syndrome, Facebook group. The TARSS group is a very important part of this podcast series. Steph will also discuss her personal projects and activism within the wider dwarfism community.
The only way to start a podcast series about Russell Silver Syndrome (RSS) is to first explain what is this syndrome. In this episode, I am joined by Dayna Carney from the MAGIC Foundation (USA based) and Rachel Pidcock from the Child Growth Foundation (UK based). Both ladies will discuss questions: What is Russell Silver Syndrome? What services does each foundation offer to support those associated with Russell Silver Syndrome? Do your foundations support adults with this syndrome? Our Guests Dayna Carney from the MAGIC Foundation (USA based) - www.magicfoundation.org Rachel Pidcock from the Child Growth Foundation (UK based) - http://childgrowthfoundation.org.uk/
The Russell Silver Syndrome Podcast focuses on one of the more rare types of Dwarfism, medically known as Russell Silver Syndrome or Silver Russell Syndrome - or simply known as RSS. Kim runs an international online support group for people with RSS, joined forces with fellow group member, and creative practitioner, Steph Robson, who also has the syndrome, to get the project off the ground. The first series of the podcast covers a range of topics that gets to the heart of the challenges and issues that people, from across the globe, with Russell Silver Syndrome, face daily. So whether they have the syndrome, are a parent or family member of someone with the syndrome, or have an interest in learning about RSS, you can discover how they navigate through life as they share the community's diverse perspectives. From finding love to being diagnosed, the podcast aims to provide support and signposting to members of the RSS community. To find out how with determination, strength and the ability to adapt as they live day-to-day despite the challenges our everyday lives can pose and our varied medical experiences. You can listen to the podcast, and find out more about the syndrome, by visiting russellsilversyndromepodcast.com or follow the podcast on Facebook or Instagram.