Podcasts about Dwarfism

Small size of an organism, caused by growth deficiency or genetic mutations

  • 269PODCASTS
  • 472EPISODES
  • 47mAVG DURATION
  • 1EPISODE EVERY OTHER WEEK
  • May 1, 2025LATEST
Dwarfism

POPULARITY

20172018201920202021202220232024


Best podcasts about Dwarfism

Latest podcast episodes about Dwarfism

Raising Heights with Zach & Tori
The Joy & Anxiety of Raising Children with Medical Needs | Raising Heights

Raising Heights with Zach & Tori

Play Episode Listen Later May 1, 2025 45:18


VISIT ➡️ https://raisingheights.com Join us in celebrating Josiah's upcoming third birthday! We also get into dealing with stubbornness and the emotional and physical demands of raising kids with special needs, this episode covers it all. We share our thoughts on handling medical anxieties, the joys of seeing our kids grow more independent, and the importance of mental breaks for parents. 00:00 Introduction 00:53 Josiah's Birthday and Growing Up 04:07 Parenting Challenges and Milestones 09:14 Sibling Dynamics and Playtime 12:32 Potty Training and Parenting Strategies 13:42 Dental Work and Health Concerns 19:09 Dwarfism and Health Anxieties 23:50 Uncertainty and Medical Concerns 25:30 Mom Intuition and Child Health 26:29 Children's Behavior and Attention 27:47 Parenting Challenges and Medical Appointments 34:27 Reflecting on Pregnancy and Mental Load 38:10 Haircuts and Family Moments 43:32 Pet Peeves and Grass Troubles 44:13 Birthday Wishes and Closing Remarks VISIT: https://raisingheights.com SPONSOR: https://cozyearth.com/heights May 2-4th Mother's Day Sale! Use: HEIGHTSBOGO for Buy One Get One Free! Learn more about your ad choices. Visit megaphone.fm/adchoices

Emerald Podcast Series
Dwarfism Arts and Advocacy

Emerald Podcast Series

Play Episode Listen Later Apr 3, 2025 32:32


Host Daniel Ridge speaks to Erin Pritchard about challenging stereotypes of dwarfism in media and the arts. Welcome to Emerald Podcast Series. Join our hosts as they talk to experts using their research to create real impact in society. In each episode we explore the role research plays in our modern world, and ask how it can contribute to solving the complex environmental, economic, social and political challenges facing our planet.

Always Looking Up
Mark Povinelli On The Return Of Benjamin Lay

Always Looking Up

Play Episode Listen Later Mar 31, 2025 57:44


In this week's episode I sat down with Mark Povinelli. Mark is an activist as well as an actor on stage and screen. He is currently portraying Benjamin Lay, shepherd, sailor, revolutionary, the British Empire's first revolutionary abolitionist, and someone whose story for too long has not been told, in the Off-Broadway production of The Return of Benjamin Lay. We discuss who Benjamin Lay was, how this show came to be, the importance of telling this story at this time, much more. Join The Patreon: Click Here Get your tickets to see The Return Of Benjamin Lay (Use the discount code"LPA"): Here Follow The Return Of Benjamin Lay Play: Instagram: @benlayplay Follow Mark: Instagram: @markpovinelli IMDb: Mark Povinelli Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf This episode was edited and produced by Ben Curwin

Always Looking Up
Rachel Wherley, Erin Elswood and Shelby Holloway On Mascots Matter And Calling For An End Of Discriminatory Disability Mascots

Always Looking Up

Play Episode Listen Later Mar 24, 2025 67:26


In this week's episode I sat down with Rachel Wherley, Erin Elswood, and Shelby Holloway, the co-directors of the Mascots Matter campaign. Mascots Matter is an independent grassroots advocacy initiative calling for the retirement of offensive disability mascots. We discuss the origins of the “m” slur and its continued, harmful use through to present day, the founding of Mascots Matter and its advocacy efforts thus far, why discriminatory disability mascots are not just a local issue and much more. For reference, this conversation was recorded on March 18, 2025. Also, the “m”-slur will be used in context when explaining it as a slur as well as referring to these mascots. It is important to note that neither myself nor my guests condone the use of this word nor is it a part of our vocabularies. Follow And Support Mascots Matter: Website: https://mascotsmatter.net Donate Here Instagram: @mascotsmatter Facebook: Mascots Matter Follow Rachel: Instagram: @thatlittlemom TikTok: @thatlittlemom Follow Erin: Instagram: @erinkaseyhughes Follow Shelby: Instagram: @shelbyhollowayy TikTok: @shelby_holloway Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Disability Arts Online and Graeae present The Disability and...Podcast
Disability and...Dwarfism Arts and Advocacy with Steph Robson and Erin Pritchard

Disability Arts Online and Graeae present The Disability and...Podcast

Play Episode Listen Later Feb 27, 2025 40:56


In this episode Steph Robson is joined by academic and author Erin Pritchard to talk about Erin's latest book 'Dwarfism, Arts and Advocacy: Creating Our Own Positive Identity'.  

Always Looking Up
Jillian Curwin On Turning 30 And Healing In A World Not Necessarily Designed For Me

Always Looking Up

Play Episode Listen Later Feb 24, 2025 54:44


In this week's episode it is just me and the microphone as I sit down to answer your questions about my ongoing surgery recovery journey, healing in a world that was not necessarily designed for me, ending the chapter that was my twenties and preparing to enter the chapter that will be my thirties. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Always Looking Up
Violet On The Weight Of Words When Said Behind A Podium Or A Desk

Always Looking Up

Play Episode Listen Later Feb 6, 2025 61:21


In this episode I sat down with Violet aka hi its vi. Violet is a disability advocate, filmmaker, and content creator with almost 100 thousand followers on TikTok. Violet's advocacy focuses on the representation of people with dwarfism in the media. For context, we recorded this episode on February 3rd following remarks made by the President and the media about people with dwarfism. This is a conversation unpacking how society perceives, acts toward, and talks about people with dwarfism as well as the relationship between disability organizations and politics. Trigger warning for harmful rhetoric. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf   Follow Violet: TikTok: @hi.itsvi Instagram: @hello.itsvi Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Always Looking Up
Adam Ayers On The Wins That Happen On A Level Playing Field

Always Looking Up

Play Episode Listen Later Feb 3, 2025 67:55


In this week's episode I sat down with Adam Ayers. Adam is the current president of the Dwarf Athletic Association of America, also known as DAAA. DAAA is a non-profit organization that provides athletic opportunities for people of short stature. The organization consists of a core Board of Directors who are supported by volunteers and philanthropic contributors. We discuss how DAAA has evolved since its founding in 1985, what happens behind the scenes to make the games accessible and successful, the magic of DAAA and much, much more. Learn more about and support the Mascots Matter Campaign using the link here: https://bit.ly/4h6XN16 Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow DAAA: Instagram: @daaanationalgames Website: http://www.daaa.org Email: info@daaa.org Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Raising Heights with Zach & Tori
The Joys and Trials of Raising Children with Dwarfism

Raising Heights with Zach & Tori

Play Episode Listen Later Jan 30, 2025 47:28


Welcome back to Raising Heights with Zach and Tori Roloff! In this episode, Zach and Tori discuss various aspects of parenting and life with a focus on the unique challenges they face as parents of children with dwarfism. The conversation digs into the unique struggles of having children with dwarfism and ways they've seen their parenting techniques work. If you're a parent, or hope to be, we know you'll love this episode! Learn more about your ad choices. Visit megaphone.fm/adchoices

The Mark White Show
Make A Difference Minute: Dr. Klane White Discusses Achondroplasia Dwarfism

The Mark White Show

Play Episode Listen Later Jan 25, 2025 2:34


On this MADM, Dr. Klane White is sharing about the most common form of dwarfism, achondroplasia. Listen & share. Sponsor: SIMRP themarkwhiteshow.thesimrp.com

The Mark White Show
Dr. Klane White Discusses Dwarfism & Patton Bruce Needs a Kidney Donor

The Mark White Show

Play Episode Listen Later Jan 25, 2025 32:25


People with dwarfism face many social stigmas and biases along with other challenges like health complications, sleep disordered breathing, chronic pain, and dental issues. 50-thousand Americans live with dwarfism. Doctor Klane White, who will be joining me on tonight's show, is a leading pediatric orthopedic surgeon at Children's Hospital Colorado. Dr. White will be helping us have a better understanding of dwarfism and what life is like for people living with the genetic condition. After that, we'll once again try to help Patton Bruce find a kidney donor.

Science (Video)
Genetics Narrative Identity and the Ethics of Choosing Disability

Science (Video)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

Health and Medicine (Video)
Genetics Narrative Identity and the Ethics of Choosing Disability

Health and Medicine (Video)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

University of California Audio Podcasts (Audio)
Genetics Narrative Identity and the Ethics of Choosing Disability

University of California Audio Podcasts (Audio)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

Health and Medicine (Audio)
Genetics Narrative Identity and the Ethics of Choosing Disability

Health and Medicine (Audio)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

Humanities (Audio)
Genetics Narrative Identity and the Ethics of Choosing Disability

Humanities (Audio)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

Science (Audio)
Genetics Narrative Identity and the Ethics of Choosing Disability

Science (Audio)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

UC San Diego (Audio)
Genetics Narrative Identity and the Ethics of Choosing Disability

UC San Diego (Audio)

Play Episode Listen Later Jan 15, 2025 65:42


According to the World Health Organization (WHO) an estimated 1.3 billion people or 16% of the global population have a significant disability. A disability is a condition that can be mental or physical, and can affect a person's vision, movement, thinking, learning, communication, hearing, mental health or social relationships. However, not all disabilities are the same. Some disabilities are genetic, passed down from generation to generation, while others may have been caused by an incident out of the person's control. In this episode of Exploring Ethics, Professor Joseph Stramondo will discuss the narrative, identity and ethics of choosing disability. Series: "Exploring Ethics" [Health and Medicine] [Humanities] [Science] [Show ID: 40241]

Always Looking Up
Jillian Curwin On What It Means To Be Healing

Always Looking Up

Play Episode Listen Later Jan 13, 2025 41:36


In this week's episode it is just me and the microphone. After my most recent doctor's appointment last week (week of 1/6/2025) I wanted to sit down and update you all on how I'm doing, how I'm feeling, my frustrations, my hopes, my growth, my pain...all of it. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Dad to Dad  Podcast
SFN Dad To Dad 359 - A Look Back On 2024

Dad to Dad Podcast

Play Episode Listen Later Jan 3, 2025 21:27


Episode #359 – A Look Back on 2024  Hi I'm David Hirsch, founder of the 21st Century Dads Foundation and Special Fathers Network as well as host of the Special Fathers Network Dad To Dad Podcast.   Happy New Year and welcome to the first episode of 2025.   Tom Couch, the editor and producer of the SFN Dad To Dad Podcast, and I, thought we would do something special and provide a Look Back on 2024.   In total we produced 72 episodes, 52 were weekly episodes airing on Fridays and for 20 weeks from May through September we produced a series of short episodes with SFN Mentor Fathers who are also involved with the SFN Mastermind Group program.  We called them SFN Mastermind Group Monday Podcasts.    While we'd love to include a snippet from all 70+ episodes, to keep it more concise we decided to provide some highlights.   We hope you enjoy listening to this Look Back on 2024 Episode as much as we did producing it.   18 of the 2024 guests are authors.   Nine of the interviews included international guests, from the following seven countries: Australia, Canada, Cayman Islands, Cuba, Iceland, Israel and the UK.  Four of the guests are women.  Three interviews were with dads who lost a child including one who was an Israeli hostage killed by Hamas terrorists.  Two interviews included military veterans: a former U.S. Navy Seal and a U.S. Air Force Vietnam-era combat pilot.  And one of the guests is a Native American.   The episodes also spanned a very broad range of disabilities including; Autism, Down Syndrome, Cerebral Palsy, Rare Disease, Dwarfism as well as those who are blind, deaf and missing a limb(s).    Here is a brief month by month recap with a clip from a select number of episodes.   In January, we aired four episodes including a dad from the UK and one from the Cayman Islands as well as with Jonathan Eig, father to three, including a son whose parents passed away at an early age.  Jon is also the best-selling author of biographies on: Muhammad Ali, Lou Gehrig, and MLK.   In February, we aired four episodes including one with Dave Jereb of Sydney, Australia, a Physical Therapist, co-founder of Move About Therapies and author of the book: Challenging The Story. We also did a two-episode story with filmmaker Bob Manganelli, whose 23 year old deaf son, very tragically committed suicide, while at Gallaudet University back in 2014.  In March, we produced five episodes including a two-episode interview with Keith Harris of Albuquerque, NM who is a retired business owner and father of four, including son Tim who has Down Syndrome.   He and Tim owned and operated the restaurant Tim's Place for five years.  Tim also went on to author The Book of Hugs, a children's book.  In April, we aired four episodes including one with Jonathan Bennett of Ontario Canada, who is an executive leadership coach, author and father of two, including one with Autism who is also non-binary.  In May, we did six episodes including one with Dr. Greg Pursley of Jackson, MO who is a chiropractor, owner of PC Medical Centers, an author and father of two, including a son who has Dwarfism.   We also interviewed John Borling of Rockford, IL who is a retired Major General in the U.S. Air Force.  John was a combat pilot in Vietnam who flew 97 missions before being shot down and held hostage for six years, eight months at the Infamous Hanoi Hilton.  And we interviewed Jon Ghahate a Pueblo Indian from Placitas, NM who is a Vietnam-er veteran and father of three, including a daughter who is sight impaired.  In June, we produced eight episodes including four SFN Mastermind Group Monday interviews with testimonials about their mastermind group experiences.  One was with John Shouse of Franklin, TN an industrial control engineer and father of three including twin boys, one of which, Evan, is Autistic.   John and his wife, Janet, have been leaders in the disability community throughout TN and John has been involved with the Tuesday night Mastermind group for nearly three years.   We also interviewed Paul Briggs of Falling Waters, WV, who is the father of 38.  No this was not a typographical error or some misstatement.  Paul and his wife, Jeanne, have six biological kids and 32 adopted children including: 13 from Ghana, 10 from Ukraine, six from Russia, two from Bulgaria and one from Mexico.   In July, we did nine episodes including five Mastermind Group Monday interviews.  We also interviewed Kelley Coleman of Los Angeles, CA, a mother of two, a disability advocate, and author of Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports.   We also interviewed Sam Farmer of North Easton, MA who is the father of a son with Autism and later in life was also diagnosed with Asperger's.  Sam is also the author of A Long Walk Down A Winding Road and has become one of the more well recognized self-advocates in the Autism community.  We also Al Malavolti of Rockford, IL in a two-part interview.  Al is a retired aerospace executive and he and his wife, Rosemary, have 22 children including four biologic kids and 17 adopted kids, and one they parented.   In August, we aired nine episodes including four Mastermind Group Monday episodes, including one with Tom Costello of Frankfort, IL who is the father of twin 21-year-old boys who are Autistic.  Tom and his wife Irene created the Twin Autism Foundation and have been outspoken advocates for those diagnosed with ASD.    We also interviewed Alvin Green of Chicago who is a retired Chef.  Alvin and his wife, Angela Ferguson, have two boys including Aiden who is Autistic.  To provide Aiden with some career skills and to support himself, Alvin founded Al's Cookie Mixx, a premium online cookie business that employs individuals who have intellectual disabilities.  In September, we produced nine episodes including five Mastermind Group Monday episodes and one with Agust Kristmanns of Reykjavik, Iceland who is the father of three including son, Ingi, who has 2Q37 Deletion syndrome, a rare chromosome condition that affects his development.  We also interviewed Jonathan Polin who is an Israeli-American.  Jonathan and his wife, Rachel Goldberg-Polin, became some of the most outspoken advocates speaking out about the urgency behind releasing the Israelis being held hostage by Hamas.  They met with the Pope at the Vatican and President Biden at the White House.  They spoke at the United Nations in Geneva and at the Democratic National Convention in Chicago.  I interviewed Jonathan on day 328 of their son Hersh's captivity and very sadly, just days later we learned about Hamas murdering six of the hostages including Hersh.   In October, we aired five episodes including one with Dr. Ruslan Vasyutin who is a single Ukrainian father to 12 year old daughter Alicia, who has Cerebral Palsy and unable to walk or talk.  They are currently living in Solihull, England after fleeing Kiev in February 2022 after the Russia invasion of Ukraine.    We also interviewed Andrew Bustamante of Colorado Springs, CO who is the father of two young children.  Andrew and his wife, Jihi, are both x-CIA undercover intelligence officers and hosts of the EverydaySpy Podcast.  It was a fascinating conversation about utilizing CIA tactics to overcome adversity.   In November, we produced five episodes including one with fellow podcaster daughter-father team: Reena Friedman Watts and her father Wayne, who produce the Better Call Daddy Podcast.  We also interviewed Todd Evans of Brentwood, TN who is an entrepreneur.  He and his wife Kristin have two children with disability and are the co-authors of How To Build A Thriving Marriage As You Care For Children With Disabilities.  And in December we did four episodes including one with former U.S. Navy Seal Phillip Koontz who is a business owner, leadership coach and speaker, father of five including an Autistic son and author of the book: The Truth Behind My Trident, which provides a fascinating look behind the curtain of the life as a U.S. Navy Seal.  We also interviewed Emma Livingstone of London, England who is the mother of three typical kids, who herself has Cerebral Palsy and is founder and CEO of UP - The Adult Movement For Adults With Cerebral Palsy.   All in all 2024 was an extraordinary year for the 21st Century Dads Foundation and Special Fathers Network.    I want to offer my heartfelt thanks to:  Tom Couch, our SFN Dad To Dad Podcast editor and producer and my partner in crime,            To Our primary sponsor Horizon Therapeutics for the ongoing and generous support,           To all those who agreed to do interviews this past year, some of which were included here, andPerhaps most importantly of all, YOU our valued listeners for tuning in week after week and sharing the episodes with family and friends.   For more information, please go to the show notes or visit: www.21stCenturyDads.org.  Thank you again and best wishes to you and your family for a safe and healthy new year.Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there

Always Looking Up
Jillian Curwin On My Surgery Recovery Journey So Far

Always Looking Up

Play Episode Listen Later Dec 11, 2024 52:48


I'm back! After a brief hiatus I am back on the microphone to catch you all up on what has happened in the too many minutes that we've been apart. I share how my recovery has been going, talking about the ups, the downs, the moments of joy, of frustration, and everything in between, before sharing what my plans are for the future of Always Looking Up as we head into the new year. Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Cork's 96fm Opinion Line
Carol Nolle Rice Speaks Out On World Dwarfism Day

Cork's 96fm Opinion Line

Play Episode Listen Later Oct 25, 2024 17:11


Paul Byrne speaks to Carol Noelle Rice on her tireless campaign for acceptance. Hosted on Acast. See acast.com/privacy for more information.

Cork's 96fm Opinion Line
2024-10-25 Speaking Out On World Dwarfism Day, Birds Targeted By Thugs With Slingshots, The Guinness Jazz Festival & more

Cork's 96fm Opinion Line

Play Episode Listen Later Oct 25, 2024 101:42


Being born with restricted growth lead to bullying as a child - now it's the inappropriate questions from adults…. Birds targeted by slingshots - The horrifying attitude to animals by some … Jazz weekend has arrived - We speak to those involved from chefs to performers & lots more Hosted on Acast. See acast.com/privacy for more information.

All Heart with Paul Cardall
Kris Hammonds: Motivational Speaker with Dwarfism

All Heart with Paul Cardall

Play Episode Listen Later Oct 22, 2024 67:11


In the episode of The Paul Cardall Podcast featuring Kris Hammons, a motivational speaker with dwarfism, the two discuss Kris's journey and his mission to help others face challenges, find their community, and focus on their purpose. As a “Grit Coach for Burned Out High Achievers,” Kris shares insights into his personal experiences with dwarfism and sheds light on the various forms of the condition. The conversation explores resilience, overcoming societal perceptions, and the role of faith in staying grounded while pursuing one's goals. It's an inspiring episode filled with valuable life lessons on grit and purpose. Follow KrisGrow Your Grit: https://www.growing-grit.com/Official Website: https://krishammons.com/Instagram: https://www.instagram.com/krishammons/https://www.facebook.com/krishammonsGrow Grit Newsletter: https://www.growing-grit.com/subscribe Follow PaulOfficial Website: https://www.paulcardall.com Show your support by subscribing to the podcast. Please leave a review.

AntiSocial
What is dwarfism?

AntiSocial

Play Episode Listen Later Sep 17, 2024 7:04


Disney's upcoming Snow White remake has sparked a debate about representations of people with dwarfism. But what does that term actually mean? Dr Melita Irving gives a medical perspective.

AntiSocial
Snow White and the dwarfism debate

AntiSocial

Play Episode Listen Later Sep 13, 2024 53:48


Are the seven dwarfs perpetuating dangerous stereotypes or harmless fantasy figures?Disney is remaking its 1937 classic Snow White as a live action film - but this time there's no mention of dwarfs in the title. Game of Thrones actor Peter Dinklage, who has a form of dwarfism, has questioned whether the story should be retold at all, calling it “backward”. But others argue that it's just a fairytale - and one that can provide valuable work to actors with dwarfism. So how will the remake handle the dwarfs? What is dwarfism and what are the best terms to use? And we take a tour through Hollywood history, from Oompa Loompas to Middle Earth.Presenter: Adam Fleming Producers: Simon Maybin, Phoebe Keane, Ellie House Production coordinator: Janet Staples Editor: Penny Murphy

Always Looking Up
Sophia Herzog Gibb On Why Everyone Is Watching The Paralympics

Always Looking Up

Play Episode Listen Later Sep 3, 2024 67:47


In this week's episode I sat down with Sophia Herzog Gibb. Sophia is a two-time medal-winning Paralympian, having competed as a swimmer in the 2016 and 2020 Paralympic Games in Rio and Tokyo. She is now joining NBC as a contributor covering the 2024 Paralympic Games in Paris. We discuss the excitement and media coverage surrounding this year's Paralympics, important language you need to know, how she prepared to take on this role, what it means to her to be the first little person commentator at NBC, and much, much more. Follow Sophia: Instagram: @sophiaherzog Twitter: @SophiaHerzog Follow Team USA: Instagram: @teamusa TikTok: @teamusa Twitter/X: @TeamUSA YouTube: Team USA  Website: https://www.teamusa.com Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

It Happened To Me: A Rare Disease and Medical Challenges Podcast

“The most charming person I have ever met” is how our host Beth describes the guest in this episode, so you are in for a treat. We have the dynamic, charismatic Colleen Gioffreda! Colleen is the Clinical Operations Program Administrator for the Greenberg Center for Skeletal Dysplasias in the Department of Genetic Medicine at the Johns Hopkins University School of Medicine. She handles patient inquiries, coordinates the Little People of America (LPA) Medical Advisory Board clinics at the national conferences and regionals, provides school/social resources to patients and parents, and also manages budgets and databases.    In her volunteer life, Colleen is LPA's Adoption Coordinator, and has helped facilitate the adoptions of over 400 children with dwarfism for the past seventeen years. She is also the Chair of the LPA Conference Management Committee and is a member of LPA's Medical Advisory Board.    Colleen is lucky enough to answer to the name of ‘Mom' to her four children, who also all happen to have achondroplasia, the most common form of dwarfism. She views having achondroplasia as an opportunity, and feels fortunate to have experienced such a unique and rich adventure in life.    Since our Executive Producer, Kira Dineen, is also a genetic counselor, she joins as a guest host in this episode.    Episode Highlights:   Understanding Terminology and Accommodations: Appropriate terms for individuals with achondroplasia and skeletal dysplasias. Vital accommodations for people with dwarfism in various aspects of life.   Home Modifications and Misconceptions: Recommended home alterations for individuals affected by dwarfism. Addressing misconceptions and stereotypes about dwarfism in her work.   Employment and Workplace Challenges: Employment roadblocks faced by little people and necessary workplace accommodations.   Career Path and Key Responsibilities: Colleen's journey towards helping the skeletal dysplasia community. Key responsibilities in her role, including patient inquiries and coordinating medical advisory board clinics.   School and Social Resources: Providing school and social resources to patients and parents. Importance of this support in managing skeletal dysplasias.   Adoption Advocacy: Motivations for becoming involved in adoption advocacy. Experiences and insights from facilitating adoptions of children with dwarfism. Countries with higher frequencies of children with dwarfism waiting to be adopted.   LPA Conference Management: Involvement in the LPA Conference Management Committee and the significance of organizing conferences. Memorable and rewarding experiences supporting individuals and families.   Parental Support: Approaching support and resources for parents raising children with achondroplasia.   Community Advocacy and Medical Collaboration: Pressing issues within the dwarfism community and advocacy efforts. Response to FDA-approved treatment for achondroplasia (VOXZOGO® (vosoritide)) and differing viewpoints. Collaborating with medical professionals and researchers to advance understanding and treatment.   Personal and Professional Perspective: Influence of personal experience with achondroplasia on professional approach. Current initiatives and projects to support individuals with skeletal dysplasias.   Future Hopes and Advice: Hopes for the future of care and support for individuals with dwarfism. Advice for professionals and volunteers supporting individuals with rare genetic conditions.   Colleen Gioffreda shares invaluable insights into the world of dwarfism, from personal experiences to professional advocacy. Her work with the Greenberg Center and LPA highlights the importance of community, support, and dedicated advocacy for individuals with skeletal dysplasias.   Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

Always Looking Up
Kayla Hamilton On Being A Dancer And A Storyteller

Always Looking Up

Play Episode Listen Later Aug 5, 2024 53:48


In this week's episode I sat down with Kayla Hamilton. Kayla is a Texas-born, Bronx based performance maker, dancer, educator, and consultant. She is a Bessie Award-winning dancer and her performance, choreographic and disability arts work has been presented by institutions across New York City and the U.S. In July of 2024 she announced the creation of Circle O, a new cultural organization established by and for Black Disabled and other multiply marginalized creatives. We discuss her journey to becoming a dancer, creating space in places where disability is often not welcome, the stories that can be told and the voices that can be heard through the art of movement and much, much more. Buy Tickets: Open Call: Kayla Hamilton at The Shed HERE Follow Kayla: Website: https://www.khamiltonprojects.com/k-a-y-l-a-h-a-m-i-l-t-o-n Follow Circle O: Instagram: @circleo_org Website: https://www.circleo.org Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

Always Looking Up
Aubrey Smalls On The Realities Of Life As A Little Person

Always Looking Up

Play Episode Listen Later Jul 29, 2024 71:24


In this week's episode I welcomed back Aubrey Smalls. Aubrey is an actor, filmmaker, and content creator with dwarfism who uses his platforms to educate people about what it means to be a little person and dwarfism history. We discuss how the historical beliefs, behaviors, perceptions and prejudices towards people with dwarfism have persisted and evolved through to present day in a world where conversations are now being driven by algorithms and the mainstream media and how it impacts the dwarfism community. Follow Aubrey: Instagram: @theaubreysmalls , @dwarfismhistory TikTok: @aubreysmalls Website: https://www.dearaverageheightpeople.com Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

ListenABLE
James Chapman (Pseudoachondroplasia Dwarfism)| #109

ListenABLE

Play Episode Listen Later Jul 28, 2024 38:55


James Chapman Pseudoachondroplasia Dwarfism has taken him around the world, representing Australia in sport, attracting plenty of attention and interesting ways to get around in style, some suitcases are double his size! His adventures don't stop internationally as he shreds local surf breaks and skates like Tony Hawk thanks to his lower centre of gravity, at 3 ft 7 inches. And for someone who's belief system are rooted Christianity how does ‘god's perfect image' shape a relationship for James and his disability? Feel free to join the conversation beyond this episode at: https://www.instagram.com/listenable_podcast/ Want to check out more of Chappo's Content? Instagram: https://www.instagram.com/stories/james13chapman_/ TikTok: https://www.tiktok.com/@james13chapman Watch the Full Episode with Captions Here: https://youtu.be/A5yazSztF_s Grab our first merch release at our website From Your Pocket https://fromyourpocket.com.au/work/listenable/merch Recorded, edited and produced by Angus' Podcast Company https://fromyourpocket.com.au/See omnystudio.com/listener for privacy information.

Two Minks Podcast
Eminem CANCELED for Dwarfism Lyrics

Two Minks Podcast

Play Episode Listen Later Jul 26, 2024 37:32


Brandon Herrara's Trump video, Eminem "The Death of Slim Shady" First Listen + Reaction/Review, Bladee updates, The American Voting Process, Blind people walking down the steet, Running as a hobby, Youtuber AndyPants and much more on another episode of DWL podcast.

The Unplanned Podcast with Matt & Abby
Zach & Tori Roloff on Leaving ‘Little People, Big World', Raising Kids with Dwarfism & Mixed-Height Marriage

The Unplanned Podcast with Matt & Abby

Play Episode Listen Later Jul 24, 2024 101:32


'Little People, Big World' stars Zach & Tori Roloff open up about leaving reality TV, parenting children with dwarfism, and navigating their mixed-height marriage. This episode is sponsored by Factor & Nutrafol. Factor: Head to https://factormeals.com/unplanned50 and use code UNPLANNED50 to get 50% off your first box plus 20% off your next month. Nutrafol: Visit https://nutrafol.com/UNPLANNED for $10 off your first month's subscription and free shipping. Learn more about your ad choices. Visit megaphone.fm/adchoices

Always Looking Up
Jillian Curwin On A Week Of New Friendships And New Memories

Always Looking Up

Play Episode Listen Later Jul 15, 2024 29:47


In this week's episode it is just me and the microphone as I sit in my thoughts and feels and reflect on the Little People of America national conference that just took place in Baltimore. I explain what the national conference is, reflect on what the week meant to me and yes, there was certainly some laughter and perhaps tears. Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin

Always Looking Up
Muroj Negha On Being A Changemaker In An Industry That Refuses To Design For Us

Always Looking Up

Play Episode Listen Later Jun 17, 2024 52:22


In this week's episode I sat down with Muroj Negha. Muroj is a fashion designer who is striving to redefine the boundaries of fashion and empower individuals of short stature to express themselves authentically. We discuss trying to fit into spaces and clothing that are not designed for our bodies, the inaccessibility of adaptive fashion for people of short stature, how she is building a brand for herself, the community, and ultimately for everyone, and much, much more. Follow Muroj: Instagram: @muroj_negha Website: https://muroj.art/ , https://www.graduatefashionweek.com/search-portfolios/muroj-negha Follow Muroj Negha Fashion: Instagram: @murojnegha.fashion Body Measurements Google Doc HERE Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin

On Rare
“If I had known then what I know now, I wouldn't have been so scared.” Alex is the mother of Hudson, a boy living with hypochondroplasia, a rare form of dwarfism.

On Rare

Play Episode Listen Later Jun 10, 2024 43:12


Alex joins David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Director of Patient Advocacy at BridgeBio Gene Therapy, to speak about her son, Hudson. Before Hudson's birth, Alex and her husband learned that Hudson would be born with hypochondroplasia. A genetic counselor helped her to understand the diagnosis. Although Alex is a medical professional, she had never heard of this condition, and the many unknowns of this new diagnosis left Alex feeling scared. However, all these fears were put aside when she held Hudson for the first time. At five days old, Hudson had breathing problems and Alex had to perform CPR on him. Hudson was later diagnosed with severe obstructive sleep apnea and needed to be on oxygen therapy. Alex describes the learning curve that she and her husband experience as they learned to care for Hudson and anticipate some of his early medical needs. Now at 20-months-old, Hudson is a happy little boy who loves to read, walk, and babble, and is adored by his older sister. Teja Reddi, Ph.D., a Senior Director of Strategy and Operations of Skeletal Dysplasias at BridgeBio, explains that although hypochondroplasia is a milder form of dwarfism than achondroplasia, the condition can cause some medical complications. Hypochondroplasia is a skeletal dysplasia characterized by short stature; stocky build; disproportionately short arms and legs; broad, short hands and feet; mild joint laxity; and macrocephaly. Teja also talks about the challenges of underdiagnosis and the hope for more research to improve the lives of people with hypochondroplasia. Please note, the views and opinions expressed in this episode of On Rare are those of Alexandra and do not necessarily reflect the official policy or position of BOLDSCIENCE.

Clownfish TV: Audio Edition
Time Bandits Reboot Has NO Actors with Dwarfism?!

Clownfish TV: Audio Edition

Play Episode Listen Later May 25, 2024 17:17


Apple is rebooting Time Bandits with Taika Waititi and Lisa Kudrow... and not a single dwarf actor as far as we can tell. Is this another example of Hollywood ditching dwarf actors like they did with Snow White and Wonka? ➡️ Tip Jar and Fan Support: http://ClownfishSupport.com ➡️ Official Merch Store: http://ShopClownfish.com ➡️ Official Website: http://ClownfishTV.com ➡️ Audio Edition: https://open.spotify.com/show/6qJc5C6OkQkaZnGCeuVOD1 About Us: Clownfish TV is an independent, opinionated news and commentary channel that covers Entertainment and Tech from a consumer's point of view. We talk about Gaming, Comics, Anime, TV, Movies, Animation and more. Hosted by Kneon and Geeky Sparkles. Disclaimer: This series is produced by Clownfish Studios and WebReef Media, and is part of ClownfishTV.com. Opinions expressed by our contributors do not necessarily reflect the views of our guests, affiliates, sponsors, or advertisers. ClownfishTV.com is an unofficial news source and has no connection to any company that we may cover. This channel and website and the content made available through this site are for educational, entertainment and informational purposes only. These so-called “fair uses” are permitted even if the use of the work would otherwise be infringing. #TimeBandits #AppleTV #News #Commentary #Reaction #Podcast #Comedy #Entertainment #Hollywood #PopCulture #Tech

True Crime Obsessed
365: The Curious Case of Natalia Grace (From our Patreon Feed)

True Crime Obsessed

Play Episode Listen Later May 16, 2024 68:22


When Michael and Kristine Barnett receive a call from an adoption agency looking to place a 5 year old Ukrainian orphan suffering from an incredibly rare form of Dwarfism, they jump at the chance to bring the little girl into their family. They quickly become suspicious that she is now who she says she is, but rather a psychopathic adult with murderous intentions. You can get all 6 ad-free episodes of our coverage of seasons 1 and 2 of The Curious Case of Natalia Grace right now on our Patreon feed. It's where you'll also find over 400 FULL AD-FREE BONUS episodes to BINGE RIGHT NOW, including our episode-by-episode coverage of popular documentary series like Love Has Won: The Cult of Mother God, LulaRich, and The Curious Case of Natalia Grace; classics like The Jinx, Making A Murderer, and The Staircase; and well-known cases like The Menendez Murders, The Murder of Laci Peterson, Casey Anthony: American Murder Mystery, and The Disappearance of Madeleine McCann, and so many more!  JOIN HERE!

Dad to Dad  Podcast
SFN Dad To Dad 304 - Dr. Greg Pursley of Jackson, MO A Chiropractor, Author & Father Of Two Including A Son With Dwarfism

Dad to Dad Podcast

Play Episode Listen Later May 3, 2024 51:39


Our guest this week is Dr. Greg Pursley of Jackson, MO who is a chiropractor, owner of PC Medical Centers, father of two and author of two books.Greg and his wife, Sheree, have been married for 19 years and are the proud parents of two children: daughter, Eveekay(18) and son, Izaac(16), who has dwarfism.We'll hear about the many organizations that have played an influential role in the Pursley family, including:Make A Wish FoundationChallenged Athlete FoundationLittle People of America      Dwarf Athletes Association of America, and      Ronald McDonald HouseDr. G also reflects on the two books he's written:A New Kind Of NormalFix Your BS (Belief System)That's all on this episode of the SFN Dad to Dad Podcast.Show Links - Email - drgregpursley@gmail.comWebsite – https://www.fixyourbs.com/homeWebsite - https://drgregpursley.com/LinkedIn - https://www.linkedin.com/in/drgregpursley1/Instagram - https://www.instagram.com/drgregpursley/Make A Wish Foundation - https://wish.org/Challenged Athlete Foundation - https://www.challengedathletes.org/Little People of America - https://www.lpaonline.org/Dwarf Athletes Association of America - http://www.daaa.org/Ronald McDonald House Charities - https://rmhc.org/Give Kids The World https://www.gktw.orgBooks:A New Kind of Normal - https://tinyurl.com/2upnufx2Fix Your B.S. - https://www.amazon.com/Fix-Your-B-S-Belief-Systems/dp/B0BRZ4KF5BSpecial Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Register for the May 11, 2024 SFN Dads Virtual Conference -https://us02web.zoom.us/meeting/register/tZUkdOyqrTIoH9JR7UVhd9qBOfpxQ5-ZUGgA Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channe...Please support the SFN. Click here to donate: https://21stcenturydads.org/do...Special Fathers Network: https://21stcenturydads.org/SFN Dads Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Discover more about the Dads Honor Ride 2023 - https://21stcenturydads.org/2023-dads-honor-ride/Find out about Horizon Therapeutics – Science and Compassion Working Together To Transform Lives. https://www.horizontherapeutics.com/

Always Looking Up
Colin Buckingham On The Realities Of Living In An Average Height World That Does Not Understand What It Means To Be A Little Person

Always Looking Up

Play Episode Listen Later Apr 1, 2024 87:41


To start I would like to issue a trigger warning. In this conversation we do discuss harassment, assault, and trauma. If these are triggers for you, please feel free to skip this episode. In this week's episode I sat down with Colin Buckingham. Colin Buckingham is a Writer, Actor, Model, and Producer based in Brooklyn, NY. His goal as a storyteller is to make projects that reflect the intersectional nature of disability and create opportunities for historically excluded and disenfranchised persons. We have a raw and honest conversation about the beliefs and behaviors we confront as little people living in an average-height world, how the world does not know and understand its image of dwarfism, what it takes to challenge these perceptions and much, much more. Follow Colin: Instagram: @cocobucks Website: https://www.colin-buckingham.com Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This podcast was edited and produced by Ben Curwin

Always Looking Up
Alycia Anderson On What It Means For A Brand To Listen To Disabled People

Always Looking Up

Play Episode Listen Later Mar 18, 2024 44:13


In this week's episode I sat down with Alycia Anderson. Alycia is a TEDx motivational speaker, corporate Diversity, Equity, Inclusion & Accessibility consultant, advocate, founder & CEO of The Alycia Anderson Company, and host of the podcast Pushing Forward with Alycia. We discuss making the decision to either lead or follow, disability inclusion in DEI efforts, daring to be bold and asking for what you want, what can happen when a brand actually listens to disabled people and much, much more. Listen To Pushing Forward With Alycia: Apple Podcasts Spotify Listen To My Episode of Pushing Forward With Alycia: Apple Podcasts Spotify Follow Alycia: Instagram: @alyciaspeaking TikTok @alyciaspeaking LinkedIn: Alycia Anderson Website:  https://alyciaanderson.com/  Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This podcast was edited and produced by Ben Curwin 

Pushing Forward with Alycia | A Disability Podcast
Jillian (Ilana) Curwin: Dwarfism Champion and Advocate

Pushing Forward with Alycia | A Disability Podcast

Play Episode Listen Later Mar 14, 2024 20:21


Welcome Jillian (Ilana) Curwin! Alycia Anderson sits down with the vibrant Jillian Curwin, known in the digital sphere as Jillian Ilana, for another episode of "Pushing Forward with Alycia | A Disability Podcast. As an advocate, podcaster, and storyteller, Jillian uses her platforms to challenge perceptions and standup for the dwarfism community. From the streets of New York to the airwaves of her podcast "Always Looking Up," Jillian is a powerful voice of inclusivity, visibility, and understanding. This conversation highlights the importance of representation, the transformative power of media, and Jillian's personal narrative of growth and advocacy. Episode Highlights:

Always Looking Up
Hannah Bonam-Young On Writing Stories Where Disabled People Get A Happy Ever After

Always Looking Up

Play Episode Listen Later Mar 11, 2024 75:09


In this week's episode I sat down with Hannah Bonam-Young. Hannah is a writer of romance novels including Next of Kin, Next to You, and Out On A Limb that feature a cast of diverse, disabled, marginalized, and LGBTQIA+ folks in romantic storylines that blend with the beautiful, messy, and challenging realities of life. We discuss how she got into writing, why she wanted to write romance, the need for more diverse, disabled authors in the genre, how beautiful it is to be loved for who you are, that disabled people are worthy of a happy ever after and much, much more. Hannah's Books: Next of Kin Next to You Out On A Limb Follow Hannah: Instagram: @authorhannahby TikTok: @hannahby_writes Website: https://www.hannahbywrites.com/ Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This podcast was edited and produced by Ben Curwin 

Always Looking Up
Emma Vogelmann On Changing A World That Is Always Trying To Change Us

Always Looking Up

Play Episode Listen Later Mar 4, 2024 66:12


In this week's episode I sat down with Emma Vogelmann. Emma, also known as The Wheelchair Activist, is a disability activist based in the UK. She is the Policy, Public Affairs and Research Manager at Transport for All and host of The Wheelchair Activist Podcast. We discuss the differences in the US vs the UK in regards to disability representation, some of the impossible beauty standards that exist and the impact they have on the disability community, that disabled people are the experts on disability, how the world can change yet continuously tries to change us and much, much more. Listen To The Wheelchair Activist Podcast: Spotify Apple Podcasts Listen To My Episode Of The Wheelchair Activist Podcast: Spotify Apple Podcasts Follow Emma: Instagram: @emma.vogelmann Website: https://www.thewheelchairactivist.com  Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin 

Always Looking Up
Matthew Jeffers On Being A Dwarf Actor On Stage And Screen

Always Looking Up

Play Episode Listen Later Feb 26, 2024 69:01


In this week's episode I sat down with Matthew August Jeffers. Matthew is an actor of stage and screen, having appeared on shows such as New Amsterdam, FBI, and The Blacklist and can currently be seen portraying Nat on the AMC show The Walking Dead: The Ones Who Live and is about to be making his Broadway debut in the play An Enemy Of The People. We discuss the dance between recognizing limitations and accepting challenges, that dwarfism is not a monolith, seizing opportunities to affect the most change, what it means to him to be an actor with dwarfism and much, much more. Follow Matthew: Instagram: @matthewaugustjeffers  Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin 

Always Looking Up
Dom Kelly On New Disabled South And What It Takes To Build A Coalition

Always Looking Up

Play Episode Listen Later Feb 19, 2024 60:21


In this week's episode I sat down with Dom Kelly. Dom is the Co-Founder, President & CEO of New Disabled South, a non-profit working to achieve liberation and justice for disabled people in the South. and New Disabled South Rising, its advocacy arm. Prior to that he served as both the Georgia Fundraising Director and the Senior Advisor for Disability for Stacey Abrams' campaign for governor of Georgia and was the Senior Fundraising Manager and a Strategic Advisor for Disability at Fair Fight Action, where he also created and led the organization's Disability Council composed of prominent disability advocates and policy experts from across the country. We discuss understanding disability from a political perspective, the importance of base-building, how New Disabled South is achieving its mission and much, much more. Follow Dom: Instagram: @the_tattoedjew Twitter/X: @the_tattoedjew Follow New Disabled South: Instagram: @newdisabledsouth Twitter/X: @DisabledSouth LinkedIn: New Disabled South Facebook: New Disabled South Website: https://www.newdisabledsouth.org Follow New Disabled South Rising: Instagram: @newdisabledsouthrising Twitter/X: @DisSouthRising LinkedIn: New Disabled South Rising Website: https://www.newdisabledsouthrising.org Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast Twitter/X: @jillx3456 Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin 

Raising Heights with Zach & Tori
The Moment We Almost Lost Zach

Raising Heights with Zach & Tori

Play Episode Listen Later Feb 15, 2024 42:27


One year ago, we went through one of the scariest moments of our lives. ER visits, what seemed like a never-ending search for answers and missed moments with our newborn… this is Raising Heights with Zach and Tori Roloff. This week we're talking about an experience we all hope never happens again. Listen in to hear about:

Always Looking Up
Shelby Holloway On The Realities Of Dating As A Little Person

Always Looking Up

Play Episode Listen Later Feb 12, 2024 65:39


In this week's episode I sat down with Shelby Holloway. Shelby, in addition to being one of my best friends, is a content creator on TikTok and an advocate for dwarfism awareness. With Valentine's Day just around the corner we have a heart-to-heart about the realities of dating as a little person, dating as a disabled person, the importance of looking for a safe space to find those relationships, and much, much more. Follow Shelby: Instagram: @shelbyhollowayy TikTok: shelby_holloway Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast Twitter: @jillx3456 Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin 

The Sarah Fraser Show
Shauna Rae (Star Of I Am Shauna Rae) On: Getting Her License, If She's Had Sex, Raising Awareness For Dwarfism, And More!, Sunday, December 31st, 2023 | Sarah Fraser

The Sarah Fraser Show

Play Episode Listen Later Dec 31, 2023 33:54


Shauna Rae is the star of the new TLC's show ‘I Am Shauna Rae,' and she opens up about her Dwarfism which was caused by cancer treatments when she was just 6 months old. Shauna reveals her parents biggest fear of letting her live alone. Plus, is she getting her license? Is girlfriend having sex? And, the biggest message she is hoping people take away from the show. This episode is a best of episode so be sure to follow her on IG to keep up with the latest in Shauna's life and get ready for a S3 of I Am Shauna Rae. @thereal_shaunarae99 Show is sponsored by:   ***Visit our Sub-Reddit: reddit.com/r/thesarahfrasershow for ALL things The Sarah Fraser Show!!!*** Hellobatch.com/tsfs get your hemp, CBD, and pet CBD oils. Use code TSFS for 30% OFF your first order Carawayhome.com use code TSFS for 10% OFF your order at check out Cozyearth.com use code TSFS for 35% OFF Horizonfibroids.com get rid of those nasty fibroids! Nutrafol.com Use code TSFS for FREE shipping and $10 off your subscription Upliftdesk.com amazing office desks, chairs, and more! Use code TSFS for 5% OFF your order **Check out some of my FAVORITE things on Amazon Marketplace - especially if you're looking to get geared-up to start your own Podcast!!!** https://www.amazon.com/shop/thesarahfrasershow Advertise on The Sarah Fraser Show: thesarahfrasershow@gmail.com Got a TIP about your favorite show? Email: thesarahfrasershow@gmail.com Follow me on Instagram: @thesarahfrasershow Follow me on Tiktok: @thesarahfrasershow Follow me on Twitter: twitter.com/SarahFraserShow Book me on Cameo: cameo.com/sarahfraser Learn more about your ad choices. Visit megaphone.fm/adchoices

The Allusionist
185. Gems and Patties

The Allusionist

Play Episode Listen Later Nov 20, 2023 37:08


We're returning to the theme of renaming, for two food-related renamings: the first one that mostly happened, the second that mostly did not - but in a good way. Dr Erin Pritchard persuaded a British supermarket to rebrand a type of sweets that had a slur in their name. And Chris Strikes recounts the renaming conflict that was the Toronto Patty Wars of 1985. Content note: the first part of the episode concerns an ableist slur, so there are incidences of that slur, and discussion of ableism and later anti-Black racism. Find out more about this episode and the topics therein and read the transcript at theallusionist.org/gemsandpatties. This episode was produced by me, Helen Zaltzman. Martin Austwick of Neutrino Watch and Song By Song podcasts provides the Allusionist music. Become a member of the Allusioverse at theallusionist.org/donate and as well as keeping this independent podcast going, you get regular livestreams and watchalong parties - AND to hang out with your fellow Allusionauts in our delightful Discord community. You can also sign up for free to receive occasional email reminders about Allusionist stuff. The Allusionist's online home is theallusionist.org. Stay in touch via facebook.com/allusionistshow, instagram.com/allusionistshow, youtube.com/allusionistshow and twitter.com/allusionistshow. Our ad partner is Multitude. If you want me to talk lovingly and winningly about your product or thing on the show in 2024, sponsor an episode: contact Multitude at multitude.productions/ads. This episode is sponsored by: • Catan, the endlessly reconfigurable social board game. Shop at catanshop.com/allusionist and get 10% off the original base game CATAN by using the promo code ALLUSIONIST at checkout. • Ravensburger, who make the world's largest Disney jigsaw puzzle - 40,320 pieces! As well as many other sizes of puzzles. Buy Ravensburger puzzles in your preferred puzzle emporium.• Bombas, whose mission is to make the comfiest clothes ever, and match every item sold with an equal item donated. Go to bombas.com/allusionist to get 20% off your first purchase. • Squarespace, your one-stop shop for building and running your online empire. Go to squarespace.com/allusionist for a free 2-week trial, and get 10 percent off your first purchase of a website or domain with the code allusionist. Support the show: http://patreon.com/allusionistSee omnystudio.com/listener for privacy information.