Podcasts about diagnosed

  Diagnosed at 34 as a highly active police officer with above-average vision and hand-eye coordination, Jason's condition was especially rare as it typically affects the elderly, organ transplant recipients, or those with AIDS/HIV. Cancer spread to the optic nerve destroyed one eye, which was removed via evisceration last year; a hand-painted prosthetic now tracks the remaining eye, and Jason reports being completely pain-free post-removal. Whole-brain radiation was firmly refused due to the risk of permanent cognitive and personality changes; targeted eye radiation (17 of 24 planned treatments) achieved remission instead. Fifth relapse in 2018 involved six brain lesions including one on the brain stem, a grand mal seizure lasting over five hours, and an inability to walk — Jason drove himself to the hospital and fell in the parking lot before receiving care. Radical lifestyle change followed the fifth relapse: eliminated alcohol, switched to organic produce, wild-harvested venison, exercise, yoga, meditation, and brain-training exercises. Cannabis oil use — oral, suppository, and vaping — is credited with reducing tumor spots on the left tricep within two months (spots were gone before conventional treatment began) and with providing neuroprotection against treatment-related brain damage. Doctors and medical staff were consistently unwilling to discuss cannabis on record, citing protocol restrictions and job security concerns, despite acknowledging Jason's survival as medically baffling. Autologous stem cell transplant at Memorial Sloan Kettering New York was selected as the treatment for the fifth relapse; the procedure involves harvesting stem cells via centrifuge, freezing them, then reinfusing after eight days of high-dose chemotherapy. Jason's stem cell "rebirth day" coincided with his actual birthday (April 24th), Easter, and spring — an alignment no medical facility he asked had ever encountered before. Brain cancer's invisible long-term deficits — poor memory, balance issues, loss of depth perception, declining night vision, and seizure-related damage — are widely misunderstood; people assume remission means full recovery. Cannabis is considered neuroprotective by Jason; a single hit of a joint provided significant pain relief after eye removal when prescribed medications failed entirely. Growing up near a toxic landfill is identified as a likely environmental cause of the cancer cluster in his community, including his own brain cancer, his mother's fatal colon cancer at 56, and two miscarriages. Key advice for cancer patients: eliminate sugar and alcohol, prioritize high-quality food, maintain a positive mindset, cut out negative media, and seek community support — diet and mental state are the first areas Jason addresses when contacted by newly diagnosed individuals. Jason is developing a public speaking career and has two books in progress: Memoirs of Murray Road and Fifth Time's the Charm: The Remarkable Story of a Five-Time Terminal Brain Cancer Survivor. Visit our website: CannabisHealthRadio.comFind high-quality cannabis and CBD + get free consultations at MyFitLife.net/cannabishealthDiscover products and get expert advice from Swan ApothecaryFollow us on Facebook.Follow us on Instagram.Find us on Rumble.Keep your privacy! Buy NixT420 Odor Remover Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Justin, diagnosed at age 3 in 1987 , explores how DIY looping lowered his A1C from 10.0 to 5.1 , CGM necessity , and how stability improves relationships. Type 1 Diabetes Pro Tips - THE PODCAST Eversense CGM Medtronic Diabetes Tandem Mobi ** Use code JUICEBOX to save 40% at Cozy Earth  CONTOUR NextGen smart meter and CONTOUR DIABETES app Dexcom G7 Go tubeless with Omnipod 5 or Omnipod DASH * Get your supplies from US MED  or call 888-721-1514 Touched By Type 1 Take the T1DExchange survey Apple Podcasts> Subscribe to the podcast today! The podcast is available on Spotify, Google Play, iHeartRadio, Radio Public, Amazon Music and all Android devices The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here or buy me a coffee. Thank you! *The Pod has an IP28 rating for up to 25 feet for 60 minutes. The Omnipod 5 Controller is not waterproof.  ** t:slim X2 or Tandem Mobi w/ Control-IQ+ technology (7.9 or newer). RX ONLY. Indicated for patients with type 1 diabetes, 2 years and older. BOXED WARNING:Control-IQ+ technology should not be used by people under age 2, or who use less than 5 units of insulin/day, or who weigh less than 20 lbs. Safety info: tandemdiabetes.com/safetyinfo Disclaimer - Nothing you hear on the Juicebox Podcast or read on Arden's Day is intended as medical advice. You should always consult a physician before making changes to your health plan.  If the podcast has helped you to live better with type 1 please tell someone else how to find it! Diagnosed at 3, Justin shares decades of frustration, lost time, and finally finding CGM, Loop, and better control—plus why he's angry at the system, not just diabetes.

In episode #428 of The Hormone Puzzle Podcast, our guest, Marta Han and Zsofia Jamieson, talk about How Movement Supports Fertility Naturally. More about Marta and Zsofia: Marta Han is a health coach, yoga teacher, and certified Aviva Method instructor. After navigating infertility and hormonal imbalance, she restored her wellbeing naturally through movement, nutrition, and holistic practices. With over a decade of experience, she helps women reconnect with their bodies, balance hormones, and support fertility naturally. Zsofia Jamieson is a certified Aviva Method teacher, entrepreneur, and former fashion executive. Diagnosed with severe PCOS as a teenager and told she might never conceive, she healed naturally through movement and nutrition. After leading global strategy for brands like Net-A-Porter, she introduced the Aviva Method from Hungary to the UK and US. Today, she dedicates her work to helping women worldwide reconnect with their bodies and reproductive health. Thank you for listening! This episode is brought to you in partnership with Puzzle Balm Tallow Lotion - https://hormonepuzzlesociety.com/tallow-lotion Follow Marta and Zsofia on Instagram: @‌thefertilityclass Follow Dr. Kela on Instagram: @‌kela_healthcoach Get your FREE Fertility Meal Plan: https://hormonepuzzlesociety.com/ FTC Affiliate Disclaimer: The disclosure that follows is intended to fully comply with the Federal Trade Commission's policy of the United States that requires to be transparent about any and all affiliate relations the Company may have on this show. You should assume that some of the product mentions and discount codes given are "affiliate links", a link with a special tracking code This means that if you use one of these codes and purchase the item, the Company may receive an affiliate commission. This is a legitimate way to monetize and pay for the operation of the Website, podcast, and operations and the Company gladly reveals its affiliate relationships to you. The price of the item is the same whether it is an affiliate link or not. Regardless, the Company only recommends products or services the Company believes will add value to its users. The Hormone Puzzle Society and Dr. Kela will receive up to 30% affiliate commission depending on the product that is sponsored on the show. For sponsorship opportunities, email HPS Media at media@hormonepuzzlesociety.com

Are you perimenopausal or in your 30s-50s and your hormones feel off? In this guest episode with Dr. Jen Pfleghaar, Ali Miller RD digs into drivers of hormone imbalance and how women often find themselves in a state of overwhelm of overcommitment leading to overdrive mode. Dr. Jen shares her faith-based functional medicine pearls on ways to manage chronic stress as well as supplements and foods to support hormone balance.    In this episode we also talk about Cycle Syncing and Dr. Jen shares her approach to work with the body based on cyclical shifts to support hormone health, regulate period cycles, and feel your best. She also shares her perspective and experience working with injectable and nasal peptides as tools in clinical practice. This is a fun encouraging listen with a lot of tips and tricks to optimize and thrive in your body.   Want to be a Naturally Nourished Ambassador? Apply here Beat the Bloat Free Masterclass 4/7 at 12pm CST Register here! Relax and Regulate has been reformulated  Is stress messing with your hormones? Consider our Stress Support Bundle or Anti-Anxiety Jumpstart  Seeking Whole Health Conference in Ohio SOLD OUT   Where to find more about Dr. Jen www.healthybydrjen.com Get Dr. Jen's free cycle syncing protocol https://www.healthybydrjen.com/cyclesyncing Welcome to the Naturally Nourished Podcast, you are joining me, Ali Miller for episode 485 The Perimenopause Reset with guest Dr. Jen Pfleghaar.  Dr. Jen Pfleghaar, DO, ABOIM BIO: Dr. Jen Pfleghaar is a double board-certified physician in Emergency and Integrative Medicine. She earned her medical degree from Lake Erie College of Osteopathic Medicine, completed residency at St. Vincent's Mercy Hospital, and fellowship at the Andrew Weil Center for Integrative Medicine. She believes true wellness thrives when body, mind, and spirit are aligned with God's design. Diagnosed with Hashimoto's, she became passionate about autoimmune healing, hormone balance, and root-cause medicine. Dr. Jen co-authored Eat. Sleep. Move. Breathe., serves on the boards of the Invisible Disabilities Association and American Board of Integrative Medicine. Through her practice, Healthy by Dr. Jen, she provides virtual care and shares education as @integrativedrmom. She lives on a mini farm in Tennessee with her husband and four children. She loves cheering at her kids' games, lifting weights, reading Scripture, and tending to her chickens. Her newest book, The Perimenopause Reset, was written on a mission to change the health of 500,000 women navigating perimenopause—empowering them with faith-based, science-backed strategies to reclaim their energy, clarity, and joy. Working in the ER I realized medicine is broken and completely a fellowship in Integrative Medicine so I could change medicine one patient at a time.   Cycle Syncing Secrets: How to Eat, Train, and Thrive in Perimenopause  

Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep resilience, and a strong foundation of faith. Sheri is a passionate advocate and, alongside her husband Shawn, co-founded S and S Rocks Life, a platform rooted in honesty, creativity, and hope.Sheri and Shawn share a uniquely intertwined journey. Shawn also lives with CF and is a double lung transplant recipient, and together they navigate post-transplant life with grit, transparency, and determination. They openly share both the challenges and the victories, offering a real and unfiltered look at what it means to live, and love, through cystic fibrosis.Through storytelling and advocacy, Sheri uplifts the CF community and supports CF-focused nonprofit organizations, drawing insight directly from lived experience. With a fascinating background in the music industry, Sheri also brings a distinctive lens to conversations about identity, judgment, and the courage it takes to show up authentically. Her story isn't about the absence of hardship, it's about perseverance, purpose, and choosing hope, even in the hardest moments. Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/enRead us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-pageWatch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

In this inspirational and motivational episode, Reginald D welcomes back an extraordinary young leader whose story is filled with faith, motivation, resilience, and powerful inspirational stories.At just 20 years old, A'Santianna Austin is already an award-winning author, speaker, youth advocate, and 2027 Grammy-nominated spoken word artist. Diagnosed with epilepsy at the age of eight and told she might not live past twelve, A'Santianna turned adversity into purpose through storytelling, faith, and a commitment to inspire others.In this motivational speech conversation, A'Santianna shares the powerful lessons she learned during her Black History Month speaking tour, where she inspired students across multiple school districts. She discusses identity, culture, leadership, and how faith and motivation helped her transform personal struggles into a mission of self-improvement, self development, and empowerment for the next generation.Press play on this motivational and inspirational episode today to hear a powerful motivational speech conversation that will reignite your faith, strengthen your mindset, and motivate you to pursue your purpose with courage.A'Santianna's  Instagram: https://www.instagram.com/asantiannanijeanPurchase A'Santianna's book on Amazon:Amazon.com: MELANATED NOT BLACK: 9798262452439: AUSTIN, ASANTIANNA: BooksSend a textSupport the showFor daily motivation and inspiration, subscribe and follow Real Talk With Reginald D on social media:Instagram: realtalkwithreginaldd TikTok: @realtalkregd Youtube: @realtalkwithreginald Website: https://www.realtalkwithreginaldd.com Real Talk With Reginald D - Merchandise Real Talk With Reginald D is a faith-based globally ranked inspirational and motivational podcast designed to motivate, empower & transform lives through powerful motivational speech, authentic conversations, and real-life inspirational stories. Each episode delivers motivational and inspirational coaching focused on self improvement, leadership, healing, resilience & purpose. Rooted in faith and motivation, this Christian-based platform blends practical growth strategies with biblical wisdom, helping listeners strengthen their mindset, deepen their faith, and walk boldly in their calling. Check out Reginald D's powerful motivational speeches today!`

In this vivid and important episode of Genuine Life Recovery, I'm joined by writer Christopher Carazas, author of the memoir Now That I'm Still Here: A Memoir of Ruin and Resurrection. Christopher shares the story of how a life that looked successful on the outside slowly collapsed under the weight of psychological abuse—and how he fought his way back after reaching the brink. From the outside, his life looked awesome. He worked around the world in places like Haiti, Mali, and Madagascar, building a career in international development. But privately, he was caught in a cycle of psychological and emotional abuse within his marriage. In this conversation, we talk about how abuse often doesn't start in overt ways. We delve into the cycle of psychological abuse and how it moves—subtle shifts, small manipulations, and moments of control that gradually become normal. Over time, the danger becomes harder to recognize, and many people find themselves living inside something they never would have accepted at the beginning. Christopher also shares how trauma doesn't simply disappear when the situation ends. The body and mind can continue carrying those survival patterns long after the danger is gone. Diagnosed with autism later in life, he reflects on how autism shaped his self-esteem, relationships, and what he was experiencing.  Most importantly, this episode is about hope—leaving, healing, and rebuilding a life after surviving the unimaginable.

In this episode of On Rare: Innovators, hosts David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, speak with Kat Bryant Knudson, Founder and CEO of the Speak Foundation and a leader in the limb-girdle muscular dystrophy (LGMD) community. Diagnosed as a child after experiencing early symptoms of muscle breakdown, Kat spent years searching for answers before receiving a definitive genetic diagnosis. What began as a personal journey to understand her condition evolved into a lifelong commitment to ensuring that no one with LGMD faces that journey alone. From founding the Speak Foundation in an unexpected twist of fate to organizing groundbreaking scientific workshops that bring patients, researchers, industry, and the FDA to the same table, Kat has helped reshape how the LGMD community connects, advocates, and advances research. Guided by the belief that people with lived experience should have the loudest voice in the room, Kat continues to innovate on behalf of a diverse and growing rare disease community. Kat's story is a reminder that progress begins with connection, shared experience, and the courage to speak up. Pantene is a third-party trademark. BridgeBio is not affiliated with or endorsed by Pantene or Procter & Gamble, and this reference is for storytelling purposes only.

This episode explains what it means to be diagnosed with a "personality disorder," including how psychologists understand what personality is, when it's pathological, and how clinicians diagnose it. Is "borderline personality disorder" or "narcissistic personality disorder" a fancy term for "toxic"? In this episode, Dr. Kibby dives deeper into the nuanced way psychologists understand personality pathology. She gives an overview of the history of personality disorders and their diagnostic criteria, peeling back the stigma to reveal what's really happening when someone gets diagnosed. She talks about why these conditions are about persistent, pervasive patterns that impact daily life, not character flaws or moral failures. In this episode, you'll hear:How clinicians differentiate between personality disorders and other mental health issuesThe evolution from categorical to dimensional models in modern diagnostics like the DSM-5The key features that make these patterns impairing and how they develop over timeWhy some people develop personality disordersWhy flexibility and adaptation are crucial for changePersonality disorders are not about being a bad person who can't change- they're about understanding how complex patterns shape us and learning how to rewire them. Resources:Krueger, R. F., & Hobbs, K. A. (2020). An overview of the DSM-5 alternative model of personality disorders. Psychopathology, 53(3-4), 126-132.Personality Inventory for DSM-5 If you're close to someone with a personality disorder and need support, book a free call with Dr. Kibby to learn more about KulaMind

"It confirms my diagnosis, as you doctors express it." [SIGN]   Our latest Morley-Montgomery award episode features another dive into the medical world of Sherlock Holmes. But this time, it's about a diagnosis made by Dr. Watson.   In 2004, Costa Rossakis, MD, BSI ("St. Bartholomew's Hospital"), a trained cardiologist, investigated exactly what was going on with the nervous Thaddeus Sholto. His article (but not his diagnosis) is just a Trifle.     If you have a question for us, please email us at trifles@ihearofsherlock.com. If you use your inquiry on the show, we'll send you a thank you gift.   There's a new "Trifling Trifles" episode out — short-form content that doesn't warrant a full episode. We release these at the beginning of every month. The latest episode is about the questionable judgment of the head of the Baker Street irregulars. This is a benefit exclusively for our paying subscribers. Check it out (Patreon | Substack).   Our Merch Store is now open: Trifles mugs, notepads, and oval stickers can be yours (or someone else's, if you'd like to make it a gift). Start shopping today.     Leave Trifles a five-star rating on Apple Podcasts and Spotify; listen to this episode here or wherever you get podcasts     Links The Morley-Montgomery Award All of our social links: https://linktr.ee/ihearofsherlock Email us at trifles @ ihearofsherlock.com    Music credits Performers: Uncredited violinist, US Marine Chamber Orchestra Publisher Info.: Washington, DC: United States Marine Band. Copyright: Creative Commons Attribution 3.0      

Maureen Holloway returns to the Women in Media Podcast to update host Sarah Burke on another journey through breast cancer, reflections on her career in Canadian broadcasting, and her involvement in the Jennifer Valentyne human rights tribunal. 'Mo' shares her experiences with workplace harassment, calls out the behaviour of former colleagues, and discusses the importance of supporting women loudly, especially now. Of course, there are many laughs along the way. All in favour of Mo becoming a stand up comic, raise your hand... More About Maureen Holloway: Maureen Holloway is a fan favourite on the Toronto radio scene. After longtime stints at CKFM/Mix/Virgin 99.9, Q107, 98.1 CHFI and now Newstalk 1010, Mo is jumping into the podcast world feet first, hosting the Women of Ill Repute podcast with her dear pal Wendy Mesley. Throughout her long and varied career, Mo has received many honours, including the 2009 HOPE Award, the Canadian Association of Broadcaster's Gold Ribbon Award for Humour, and the 2018 Rosalie Award, honouring women in broadcasting who have blazed new trails. Diagnosed with a rare form of breast cancer in 2005, Maureen is an outspoken advocate for women's health and social issues and is in frequent demand as a lecturer and keynote speaker, where her topics encompass women, humour and wellness. Now cancer-free, she plays golf and piano, both quite badly, and likes to cook, travel, drink wine, and laugh, often all at once. Follow Women of Ill Repute on Substack: https://womenofillrepute.substack.com/ Listen to Jennifer Valentyne on the Women in Media Podcast: https://www.womeninmedia.network/show/women-in-media/jennifer-valentyne-part-one/ https://www.womeninmedia.network/show/women-in-media/jennifer-valentyne-part-two/ Follow Along with Jennifer Valentyne vs. Corus Entertainment: https://www.chrt-tcdp.gc.ca/en/human-rights/human-rights-public-hearings Connect with Sarah Burke and Women in Media Network: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.womeninmedia.network/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/wimnetwork⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/burketalks Chapters: (00:00) Introduction to Maureen Holloway (03:00) Navigating Cancer: A Personal Journey (05:51) The Evolution of Body Image and Reconstruction (08:55) The Emotional Impact of Cancer on Family (12:02) Reflections on Mortality and Legacy (14:56) The Shift from Radio to Podcasting (20:56) Revisiting Radio Memories: A Personal Journey (22:04) The Human Rights Tribunal: A Call to Testify (24:54) Support and Solidarity: Standing with Jennifer Valentine (27:57) Facing the Past: Emotional Recollections in Court (34:49) The Impact of Trauma: Revisiting Difficult Experiences (37:51) Accountability in Media (39:45) Reflections on Relationships: Encountering the Past (43:58) The Call for Accountability: Acknowledging Past Mistakes (46:40) Empowering the Next Generation Learn more about your ad choices. Visit megaphone.fm/adchoices

29-year-old Olivia McAleenan was diagnosed last week with multiple sclerosis…She joins Anna Daly to share her experience thus far of recognizing her symptoms and receiving a diagnosis.

This interview is brought to you in partnership with Eisai and is part of the Journey to Diagnosis series.Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/Ben Draper was just 47 when he was diagnosed with early-onset Alzheimer's. In the years leading up to that diagnosis, he and his wife, Robin, began noticing changes. Ben struggled with everyday tasks that used to come easily, such as sending text messages, using a phone or computer, managing time, and doing simple math. While running his construction business, he realized he could no longer read a tape measure. Even following GPS while driving became difficult.Early testing revealed significant cognitive impairment, followed by an extensive medical workup that included an MRI and a spinal tap. The results showed amyloid plaque, and, with a strong family history of Alzheimer's, Ben later learned he also carries a genetic link to the disease.Today, Ben and Robin are focused on living each day to the fullest. They document their experiences on TikTok (@draperfamilylife) to help others feel less alone and to raise awareness about early-onset Alzheimer's.In this conversation with Being Patient's founder Deborah Kan, Ben and Robin describe the emotional whiplash of fearing a rapidly fatal diagnosis like Creutzfeldt-Jakob disease before receiving clarity, and the unexpected relief that can come with finally having the early-onset Alzheimer's diagnosis. They talk candidly about Ben's symptoms and how financial and care gaps can leave younger families scrambling for disability coverage, insurance, and support. Above all, they return to a guiding mindset, focus on what Ben can still do, lean on community, and make each day count.----Visit Being Patient for more Alzheimer's and brain health coverage: https://www.beingpatient.com/Follow Being PatientTwitter: https://twitter.com/Being_PatientInstagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet covering brain health, cognitive science, and neurodegenerative diseases. Our Live Talk series features interviews with experts and people living with dementia.Watch more Live Talks: https://beingpatient.com/live-talks/

Today's guest is Josh Vintner-Jackson, diagnosed with stage 3 colon cancer at only age 29 and living with stage 4 since 2023. Diagnosed during COVID, living in Texas, he went through chemo in complete isolation. That experience of profound loneliness drove him to create Chat Cancer, a community for young adults navigating cancer. His philosophy for life: you can't control the storm, but you can control how you navigate it. Don't let cancer get in the way of your life!We talk about navigating treatment on another continent from your family, grit and determination, challenges of cancer as a young adult, peer to peer support, and so much more!!Resources:Josh's LinkedIn: https://www.linkedin.com/in/josh-vintner-jackson-91a5b650/Chat Cancer LinkedIn: https://www.linkedin.com/company/chatcancer/?viewAsMember=trueJosh's Instagram: https://www.instagram.com/joshvintnerjackson/Chat Cancer Instagram: https://www.instagram.com/chat.cancer/Josh's Substack: https://resiliencereborn.substack.com/Follow:Follow me: https://www.instagram.com/melissagrosboll/My website: https://melissagrosboll.comEmail me: drmelissagrosboll@gmail.com

Skye Waterson joins the show to talk about something that hits home for a lot of creatives—why we start everything but finish nothing. She breaks down the connection between ADHD symptoms and creative entrepreneurship, shares her game-changing filter for deciding what actually deserves your attention, and explains why having fewer goals will get you further faster. This one's packed with practical systems that'll help you work with your brain instead of constantly fighting against it. Key Takeaways About 30% of creative entrepreneurs show ADHD symptoms—and most don't even realize it's affecting how they run their business The Filter Framework helps you ask three critical questions before taking on any new project: Does this move my business forward? Can I do this sustainably? Will this create momentum? Having 20 goals for the year means you're building a house of cards that'll collapse the moment something shifts—focus on one domino at a time instead Deep work sessions are most effective when you focus on completing ONE thing across multiple sessions rather than spreading your attention across three different projects each week About Skye Waterson Skye Waterson is the founder of Unconventional Organisation, an international support service for professionals with ADHD. Diagnosed during her PhD after repeated burnout, she's built a business that helps entrepreneurs and executives with ADHD (or suspected ADHD) build sustainable systems, scale their companies, and actually enjoy the process. Her approach is science-backed, realistic, and built around how ADHD brains actually work. In This Episode   [00:00] Welcome to the show! [05:05] Meet Skye Waterson [07:46] Classic ADHD Symptoms [12:28] ADHD And Dopamine [21:27] Brain Dump [24:53] How To Prioritize [45:17] Stop Doing The Hard Way [47:15] Connect with Skye [48:18] Outro   Quotes "I would recommend that you stop trying to just do it the hard way because you feel like you should because if everyone else can do it, you can do it." - Skye Waterson "You probably are working at capacity right now. You need a new system, not just more stuff to do." - Skye Waterson Guest Links Follow Skye Waterson on Instagram Visit Skye Waterson's Website and Podcast Links Find out more about the Studio Sherpas Mastermind Join the Grow Your Video Business Facebook Group  Follow Ryan Koral on Instagram Follow Grow Your Video Business on Instagram Join the Studio Sherpas newsletter

Tony Garcia will talk about his early in life Pediatric Cancer battle which began in 1973 when he was diagnosed with Leukemia  when he was 2 1/2 years old. Tony's treatment finally ended nearly 10 years later in 1983 and since that time he has been doing as well as possible for the past 43 years, as a long term Pediatric Cancer survivor. Now 55 years old, Tony just published his first book (memoir) at the end of January called MY CHILDHOOD CUT SHORT. SURVIVING LEUKEMIA AND FINDING PURPOSE BEOND PAIN. Tony also is involved in supporting Pediatric Cancer patients through fundraising, volunteering, and advocacy work. 

What's the real difference between being diagnosed with diabetes as a kid… versus as an adult? In this episode of the Your Diabetes Insider Podcast, I'm diving into something I've honestly never talked about before - and it's a BIG one. I was diagnosed with type 1 diabetes at 7 years old. I've now worked with thousands of people living with both type 1 and type 2 diabetes - kids, teens, adults, even people diagnosed in their 60s. And let me tell you… The difference in support, education, and real-life impact between being diagnosed as a child versus an adult is WILD. Want the best blood sugars you've ever had while enjoying great food? Peep this: https://www.yourdiabetesinsider.com/coaching   RESOURCES: Download these FREE guides that will help you on your diabetes, nutrition, and exercise journey! https://www.yourdiabetesinsider.com/free-stuff   LET'S TALK! Instagram: @yourdiabetesinsider Tiktok: @yourdiabetesinsider  

Episode Notes Andrew chats with Abigail, a 20-year-old London-based photographer and disability advocate. Diagnosed with a facial tumour at six and over 50 surgeries later, they talk medical trauma, silent bullying, caregiving, healthcare systems, and why disability representation needs a serious upgrade. Honest, funny, and real this one is. Enjoy! Follow Abigail: @BraveArtist2005 on Instagram & TikTok Episode Sponsors Do you wanna turn b*tt stuff up a notch. Go to bvibe.com and use code AFTERDARK to receive 20% off orders of $100 (including bundles, discounted items and more). Disability content creation doesn't have to be hard. Follow @seated.perspectives on Instagram to learn how to make content creation a gentle, easy, accessible experience. Are you looking for attendant care when you need it at your convenience? Check out your team, on tap www.whimble.ca Get 15% off your next purchase of sex toys, books and DVDs by using Coupon code AFTERDARK at checkout when you shop at trans owned and operated sex shop Come As You Are www.comeasyouare.com Order Notes From a Queer Cripple and hire him to speak on it by e-mailing andrew@andrewgurza.com US: https://us.jkp.com/products/notes-from-a-queer-cripple Canada: https://www.ubcpress.ca/notes-from-a-queer-cripple Support the show with a donation: https://patreon.com/disabilityafterdark This podcast is powered by Pinecast.

Love this clip? Check out the full episode: Episode #346: Voicemails from the ADHD Trenches: Marriage, Faith, Regret, and Rage (Yep, We're Going There)Listen to the full conversation in the original episode HERE.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What happens when patients become true partners in healthcare innovation? In this episode of Moving Medicine Forward, we speak with Dr. Karin Hehenberger, physician, scientist, transplant recipient, and Founder & President of Lyfebulb, about how lived experience can reshape chronic disease care.Diagnosed with type 1 diabetes as a teenager, Karin's journey through medicine, biotech, and ultimately organ transplantation inspired Lyfebulb's mission to empower patients through education, community, and innovation. We explore why patient voices must be included early in development, how patient entrepreneurs are driving real‑world solutions, and why reducing isolation is essential to better outcomes.01:00 Welcome & Guest IntroductionMeet Dr. Karin Hehenberger and the mission behind Lyfebulb.02:10 Living With Chronic Illness Karin's early diabetes diagnosis and how it shaped her path into medicine and research.05:35 When Disease Progresses Anyway Facing kidney failure and vision loss despite careful disease management.06:45 Transplant & New Perspective How kidney and pancreas transplants led to a renewed purpose.07:55 Founding Lyfebulb Why patient education, connection, and innovation are central to empowerment.10:45 Patients as Partners Moving beyond “patient‑centric” language to true collaboration.12:20 Patient‑Driven Innovation Innovation challenges and real solutions created by patients for patients.17:55 The Power of Community Reducing isolation to improve emotional health and daily disease management.22:45 Industry & Research CollaborationWhy patient insight must be integrated early—not as a checkbox.27:15 Rethinking Chronic Disease A vision for managing chronic illness without constant mental burden.31:15 Learn More How to get involved at LyfeBulb.comb

In this episode of All Things ADHD, Jeremy Didier, an ADHD coach and past CHADD president, discusses ADHD in the workplace, exploring early signs of its effects on productivity, the importance of diagnosis and treatment, and the potential challenges to job performance and career advancement. She describes the benefits of structure and support, the concept of masking, and the nuances of disclosing ADHD in professional settings.  She also highlights the strengths adults with ADHD bring to the workplace, the importance of supportive management, and practical strategies for requesting accommodations. Ultimately, the conversation emphasizes the need for workplaces to become more aware, inclusive, and understanding of neurodiversity. Jeremy Didier, LSCSW, LMAC, ADHD-CCSP, is the immediate past president of CHADD's board of directors and has more than fifteen years of experience supporting individuals and families affected by ADHD. Grounded in CHADD's mission of evidence-based information, support, and advocacy, she is the founder and co-coordinator of Kansas City's CHADD chapter, ADHDKC, twice named CHADD Chapter of the Year. Didier provides assessment, diagnosis, and therapeutic services for adults with ADHD through her private practice, TreehouseADHD, in the Kansas City, Missouri, area. A nationally recognized speaker and contributor to the Washington Post and NBC Nightly News, her professional focus includes the underdiagnosis of ADHD in girls and women, the intersection of ADHD and addiction, and improving outcomes for justice-involved individuals. Diagnosed with ADHD as an adult, she holds a master's degree in social work from Fordham University and a bachelor's degree in journalism from the University of Kansas. Didier is most proud to be the mother of five children, four of whom are also neurodivergent.

In this episode of All Things ADHD, Jeremy Didier, an ADHD coach and past CHADD president, discusses ADHD in the workplace, exploring early signs of its effects on productivity, the importance of diagnosis and treatment, and the potential challenges to job performance and career advancement. She describes the benefits of structure and support, the concept of masking, and the nuances of disclosing ADHD in professional settings. She also highlights the strengths adults with ADHD bring to the workplace, the importance of supportive management, and practical strategies for requesting accommodations. Ultimately, the conversation emphasizes the need for workplaces to become more aware, inclusive, and understanding of neurodiversity. Jeremy Didier, LSCSW, LMAC, ADHD-CCSP, is the immediate past president of CHADD's board of directors and has more than fifteen years of experience supporting individuals and families affected by ADHD. Grounded in CHADD's mission of evidence-based information, support, and advocacy, she is the founder and co-coordinator of Kansas City's CHADD chapter, ADHDKC, twice named CHADD Chapter of the Year. Didier provides assessment, diagnosis, and therapeutic services for adults with ADHD through her private practice, TreehouseADHD, in the Kansas City, Missouri, area. A nationally recognized speaker and contributor to the Washington Post and NBC Nightly News, her professional focus includes the underdiagnosis of ADHD in girls and women, the intersection of ADHD and addiction, and improving outcomes for justice-involved individuals. Diagnosed with ADHD as an adult, she holds a master's degree in social work from Fordham University and a bachelor's degree in journalism from the University of Kansas. Didier is most proud to be the mother of five children, four of whom are also neurodivergent.

In this special episode, host Dr. Cassandre Dunbar takes listeners inside the Johnson & Johnson Healthy eVoices Conference in Princeton, New Jersey — a gathering of hundreds of health advocates from across the country, all living with chronic illness.Cassandre sat down with eight extraordinary women and asked them all the same question: How did you become an advocate?None of them planned it. Most of them were chosen - by a diagnosis, by a moment of crisis, by the simple fact that no one who looked like them existed in the spaces they needed most.From a 7-year-old giving her first speech at a gala, to a woman fired from her job because of epilepsy, to a cancer diagnosis in the middle of a divorce — these stories will move you, challenge you, and remind you why showing up matters.*Disclosure: Johnson & Johnson covered travel and accommodations for the Healthy Voices Conference. They had no involvement in the conversations, participants selected, questions asked, or how this story is told.*Featuring:Alexis - Pulmonary Arterial HypertensionAlexis is a Black disabled advocate and healthcare professional committed to amplifying the patient voice and advancing disability representation. She began her advocacy at age seven with the American Heart Association and was later crowned Miss Amazing National Senior Miss Amazing 2021. Through her work and storytelling—including her love of Disney and fashion—she creates space for honest conversations about disability, identity, and what it means to live well and fully.Asha - Breast Cancer & VitiligoAsha Miller is a nationally recognized breast cancer veteran, speaker, and storyteller who uses her lived experience as a Black woman navigating cancer, divorce, motherhood, and healing to advocate for equity in healthcare. Diagnosed with stage 3 breast cancer in her early 30s, Asha speaks candidly about identity, body image, racial disparities, and reclaiming power after diagnosis. She is the founder of Asha Miller Creative and is known for building transformative spaces where storytelling becomes a catalyst for healing and change.Ayesha - Psoriatic ArthritisFounder of The PsoriaSis Collective and Sistas With Psoriasis Online Support Group, Ayesha Patrick is a long-time psoriasis and psoriatic arthritis patient advocate dedicated to empowering Black women through education, connection, and support. She volunteers with the National Psoriasis Foundation, has written for WebMD and PlaquePsoriasis.com, and serves as a patient research partner advancing psoriatic disease studies. She is a proud Mom of two and resides in NewJersey. Derra - EpilepsysDerra Howard is a content strategist, filmmaker, and the Founder and President of Saving Grace Epilepsy Foundation. She leads initiatives focused on epilepsy awareness, education, and direct community support, working to break stigma and improve access to care for individuals and families affected by seizure disorders.Jenice - Crohn's DiseaseRacquel - LupusLupus In Color founder Racquel H. Dozier is a passionate lupus advocate, educator, speaker, and community builder dedicated to educating, inspiring, encouraging, and empowering lupus warriors around the world. Navigating her own lupus journey, she transformed her experience into purpose, creating a platform that amplifies diverse voices, addresses health disparities, and centers the lived experiences of those often underrepresented in chronic illness spaces.Stephanie - IBD (Crohn's/Ulcerative Colitis)Stephanie A. Wynn is a Certified Patient Leader, Founder and President of The Stephanie A. Wynn Foundation, and Program Director of the IBD Patient Navigator® Program. She leads initiatives that connect patients diagnosed with Crohn's Disease and Ulcerative Colitis two forms of Inflammatory Bowel Disease (IBD)with trained IBD Patient Navigators who provide individualized support to help patients manage their disease and navigate healthcare with confidence. Through advocacy, education, and community-based navigation, she works to reduce healthcare disparities and improve outcomes in underserved communities.Yolanda - Multiple MyelomaYolanda Brunson-Sarrabo, former Fashion Pro, now vocal advocate. She shares her story of being diagnosed and managing multiple myeloma. She's a certified Patient Leader and the founder and CEO of Chronic Fitness. Yolanda is a Content Creator for No Better Time Than The Present, an IG /YouTube Podcast, where she speaks with various Patient Advocates on their trials and Journeys.Connect with Be Well, Sis:Instagram – @bewellsis_podcastSubstack – bewellsis.substack.comFollow, rate, and share this episode!We're supporting St. Jude Children's Research Hospital. Head over to www.stjude.org/bewellsis right now and sign up to be a monthly donor. Together, we can make a real impact.Want to get in touch? Maybe you want to hear from a certain guest or have a recommendation for On My Radar? Get in touch at hello@editaud.io with Be Well Sis in the subject line! Have your own Not Well, Sis rant to contribute? Click here to send it into the show!Be Well, Sis is hosted by Dr Cassandre Dunbar. The show is edited, mixed and produced by Megan Hayward. Our Production Manager is Kathleen Speckert. Be Well, Sis is an editaudio collaboration. Be Well, Sis is hosted by Dr Cassandre Dunbar. This episode was edited by Victoria Marin. Our Production Manager is Kathleen Speckert. Be Well, Sis is an editaudio collaboration. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Send a textWhat if the biggest barrier to inclusion isn't awareness, but the way our systems are built? We sit down with Robert Annis, a London-based founder of NEURO, to unpack how the “alignment trap”—cultures that prize sameness over substance—quietly locks out cognitive diversity and throttles innovation. Instead of chasing badges and box-ticking, Robert lays out a practical path where inclusion becomes a strategic engine for better problem solving, collaboration, and growth.We explore why designing “for everyone” often defaults to the median, and how designing “for anybody” opens doors for real people with real differences. Robert shares vivid examples—from misplaced braille signage to performance reviews that reward conformity—showing how small oversights create big barriers. He explains NEURO's accreditation model that ties recognition to verifiable investment in leadership, governance, recruiting, policies, and performance management. We also dig into Resonance, a tool that helps individuals map challenges to supports and gives organizations a shared language to act—with clarity rather than guesswork.Robert's personal journey brings the stakes home. Diagnosed later in life with autism and ADHD, along with face blindness and severely deficient autobiographical memory, he describes the daily friction of misread cues and expectations. The lesson is not “more hardware”; it's deeper understanding. When teams know how different minds perceive, communicate, and process, they build trust and psychological safety—the soil where learning and innovation grow. Along the way, we spotlight curiosity as a cultural superpower, the practical role of labels in granting access, and the ripple effects of unconditional support in families, schools, and workplaces.If you're a leader tired of tokenism, a parent seeking clarity, or a builder who wants real outcomes, this conversation offers a roadmap. Learn how to move beyond awareness into accountable inclusion that attracts talent, lifts performance, and proves it with evidence. Ready to turn difference into your competitive edge? Listen now, subscribe, and leave a review to share what change you're making first.Support the showSJ CHILDS - SOCIALS & WEBSITE MASTER LIST WEBSITES - Stream-Able Live — https://www.streamable.live-COMING SOON - The SJ Childs Global Network — https://www.sjchilds.org - The SJ Childs Show Podcast Page — https://www.sjchildsshow.com YOUTUBE - The SJ Childs Show — https://www.youtube.com/@sjchildsshow - Louie Lou (Cats Channel) — https://www.youtube.com/@2catslouielou FACEBOOK - Personal Profile — https://www.facebook.com/sara.gullihur.bradford - Business Page — https://www.facebook.com/sjchildsllc - The SJ Childs Global Network — https://www.facebook.com/sjchildsglobalnetwork - The SJ Childs Show — https://www.facebook.com/SJChildsShow INSTAGRAM - https://www.instagram.com/sjchildsllc/ TIKTOK - https://www.tiktok.com/@sjchildsllc LINKEDIN - https://www.linkedin.com/in/sjchilds/ PODCAST PLATFORMS - Spotify — https://open.spotify.com/show/4qgD3ZMOB2unfPxqacu3cC - Apple Podcasts — https://podcasts.apple.com/us/podcast/the-sj-childs-show/id1548143291 CONTACT EMAIL - sjchildsllc@gmail.com

Rich — a leukemia survivor, nurse practitioner, and longtime oncology clinician — to talk about what it's really like to survive cancer, rebuild your life after treatment, and live with long-term side effects.Rich was diagnosed with leukemia at age 28, underwent an allogeneic stem cell transplant at Dana-Farber / Brigham and Women's, and is now a 29-year survivor. His experience as both a patient and provider offers a rare, honest look at cancer survivorship, prostate cancer side effects, sexual health, mental health, and post-traumatic growth.In this conversation, we cover:What it's like to be told you have leukemia in your 20sStem cell transplant and long-term survivalTurning cancer into purpose and becoming an oncology NPCommon prostate cancer side effects (urination, bowel changes, erectile dysfunction)How doctors actually manage these symptomsSexual health after cancer treatmentMental health, grief, and post-traumatic growthHow to rebuild your life after active treatmentThis episode is for patients, survivors, caregivers, and anyone navigating life after a cancer diagnosis.

What does it really mean to parent with multiple sclerosis, and how do you talk to your children about something so unpredictable? In this episode of Living Well with MS, we're joined by Julie Stamm – MS advocate, author and mother – for an honest and uplifting conversation about raising a child while living with MS. Diagnosed in 2007, Julie turned her experience into advocacy, determined to be open with her son about her condition in ways that are truthful but age-appropriate. She shares how parenting reshaped her perspective on resilience, how listening to children can ease the guilt many parents carry, and why adapting as a family is a sign of strength, not failure. We explore storytelling as a tool for empowerment, the importance of peer support and community, and why the outlook for people newly diagnosed today is more hopeful than ever. Julie also reflects on her children's book Some Days and her work to promote inclusion and diverse abilities through advocacy and education. This episode will resonate with anyone parenting with MS, considering starting a family, supporting a loved one with MS, or looking to turn lived experience into meaningful advocacy. Keep reading for the key episode takeaways and Julie's bio. 00:00 Introduction and Julie's diagnosis journey 01:23 Why honesty with children matters 02:26 Sharing your story and the power of lived experience 03:37 Parenting guilt, resilience and writing Some Days 04:42 How MS affects the whole family 06:40 Adjusting to change and adapting over time 08:39 Becoming an MS advocate and finding your niche 10:02 Gratitude, grief and staying hopeful 11:23 The importance of peer support and community 13:52 Research advances and hope for the future 14:58 Advice for newly diagnosed parents   Learn more at Julie's website www.iamstamm.com Follow Julie on Instagram at @iamstamm New to Overcoming MS? Learn why lifestyle matters in MS - begin your journey at our 'Get started' page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS here. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to help us continue creating future podcasts, please leave a donation here. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. If you like Living Well with MS, please leave a 5-star review.

Welcome to Episode 088 of the Beyond the Diagnosis Podcast. During Rare Disease Week 2026, we're shining a spotlight on something that moves our community forward in powerful ways: advocacy. On this episode we sit down with Nate Saelinger — a Histiocytosis Youth Ambassador, high school sophomore, and passionate advocate — who went to Capitol Hill to participate in Rare Disease Week with the EveryLife Foundation for Rare Diseases. Diagnosed with Langerhans Cell Histiocytosis as a child and continuing to manage diabetes insipidus, Nate is using his voice to help shape conversations around research funding, policy, access to medication and the future of rare disease care. His story is a powerful reminder that advocacy has no age limit — and that sharing lived experience can drive real change. Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org.   Take a screenshot and tag us @histiocytosis_association on Instagram. We'd love to hear your feedback!  Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.   Resources mentioned in the podcast: Rare Disease Week with Every Life Foundation Follow the Histiocytosis Association on social media: Facebook: https://www.facebook.com/histio Twitter: @histiocytosis Instagram: histiocytosis_association YouTube: https://www.youtube.com/@Histiocytosis  Music: “Heroes” by Noah Smith

Subscribers can dive into exclusive, extended conversations from this podcast! To join the adventure, head to BumpInTheRoad.Substack.com. Follow Bump on YouTube @BumpInTheRoadPodcast! Cindy Wageman was diagnosed with multiple sclerosis at just 24 years old, facing a potentially daunting reality that many would find difficult to bear. However, instead of succumbing to despair, she embarked on a personal journey that would ultimately lead her to reclaim her health and happiness. Cindy's path was not an easy one. Faced with the limitations imposed by her diagnosis, she found herself at a crossroads. The medical advice she received left her feeling hopeless, and she realized that she needed to take matters into her own hands. "I decided that I needed to do my own research because the doctors just couldn't help me," she recalls. This pivotal moment marked the beginning of her transformative journey. Through extensive research and a commitment to understanding her condition, Cindy discovered the "eight laws of health" that would guide her towards recovery. These principles—nutrition, exercise, water, sunshine, balance, rest, and trust in divine power—became the foundation of her new lifestyle. She embraced a plant-based diet, incorporated daily exercise, and prioritized her mental well-being. Cindy's journey was also about emotional healing. She learned the importance of forgiveness, not just for others but for herself. "Forgiveness gives you freedom in life when you forgive the other person," she explains. This realization allowed her to let go of past grievances and focus on the present moment. Cindy shares her insights and experiences, encouraging listeners to explore their own paths to health and happiness. Whether you're struggling with a health issue or simply seeking motivation, her story is a powerful reminder that we all have the capacity to overcome life's challenges and emerge stronger on the other side. It's an Award Winning, Amazon best selling book! What they're saying: "This is a beautiful book about life, its imperfections, its challenges, and its joys. It is a book of hope and wisdom for all of us facing a bump in the road." –Pragito Dove "Pat has woven together beautiful stories of life setbacks that have been transformed into spiritual growth. This book is a gift and a must-read for souls experiencing pain and yearning for growth." –Gary Hensel Learn more at BumpInTheRoad.us Follow Bump on: ➡️ Twitter ➡️ Facebook ➡️ Substack ➡️ Instagram ➡️ YouTube

Season FIVE Episode EIGHT of the Your Story Our Fight® podcast welcomes Dr. Nya Oglesby. Dr. Nya Oglesby is a lupus survivor who turned her diagnosis into purpose-driven advocacy. Diagnosed as a teenager, she uses her lived experience to educate, empower, and uplift others impacted by lupus. She is pursuing a career in pediatric rheumatology and is committed to closing gaps in care for underserved communities. Her work centers on storytelling, faith, and fighting for patients who deserve to be seen and believed.

Dr. Kirsten Viola Harrison, trauma psychologist, author, and founder of Soul Wise Solutions, brings over 35 years of experience helping individuals navigate profound psychological and spiritual transitions. In this powerful podcast conversation, she shares her work with clients living with complex PTSD, dissociative identity disorder (DID), schizophrenia, trauma recovery, and near-death experiences, offering deep insights into healing, resilience, and spiritual integration in psychotherapy. Dr. Harrison is the co-author of I, Sean/a: The Story of a Homeless Intersex Woman Who Inspired a Community, the remarkable true story of Sean/a Smith — a homeless intersex woman living with schizophrenia whose life challenges stigma and inspires a movement toward dignity, inclusion, trauma healing, and community transformation. Her story powerfully addresses mental health stigma, homelessness, schizophrenia awareness, and intersex advocacy.

Kendel Davy is a Founding Member of the Riley Rocks Memorial Foundation and Meghan Fessenden is the Director of Social Media and Marketing for the Foundation and is Riley's sister. Together they will talk about Riley who was diagnosed with Esthesioneuroblastoma which is a Pediatric Cancer of the Nasal Cavity when she 6 years old in 2013, and battled for 3 years before her passing on July 20th of 2016 when she was 9 years old. They will also talk about their Foundation which was started by Riley's parents Kamie and Todd.

MEDICARE ADVANTAGE MINUTE:                                                                     CMS (THE GOVERNMENT) TAKES AIM AT MEDICARE ADVANTAGE FRAUD Correspondence: Client Mike writes to ask me to find his wife a Plan G Medicare supplement with a better price. Her current Aetna plan has scheduled a $60+ monthly rate increase so Mike asked me to look for a better deal.  Once again I explained the advantages of High Deductible Plan G (HDG) but Mrs. Mike is very risk averse and wants to stay with regular (expensive) Plan G. A few weeks after, Mike contacted me again to announce that he plans to switch to HDG when his state mandated Birthday Rule period came around. Contact me at: DBJ@MLMMailbag.com (Most severe critic: A+)                   Visit us on: BabyBoomer.ORG Inspired by: "MEDICARE FOR THE LAZY MAN 2026; SIMPLEST & EASIEST GUIDE EVER!" "MEDICARE ENROLLMENT GUIDE!" (Free download from site below) "MEDICARE DRUG PLANS: A SIMPLE D-I-Y GUIDE" For sale on Amazon.com. After enjoying the books, please consider returning to leave a short customer review to  help future readers. Official website: https://www.MedicareForTheLazyMan.com.

"Ever moment, every day is worth celebrating." Somer LoveSomer Love has spent her life choosing hope, dreaming big, and showing up fully for each day. Diagnosed with cystic fibrosis at just 11 months old, Somer has grown into a powerful and compassionate advocate for the CF community.Guided by her belief that “Every moment, every day is worth celebrating,” Somer brings joy and purpose into everything she does. She often reminds others that “laughter is key,” a mindset that has helped carry her, and those around her, through the challenges of life with cystic fibrosis.Through her work, Somer is dedicated to raising awareness, educating others, and offering hope, especially to families navigating a new CF diagnosis. In 2001, she founded Love to Breathe®, a platform created to educate, spread awareness about cystic fibrosis, and share love and connection around the world.Big on birthdays, Somer's parents made celebration part of her story in an unforgettable way. Every year, they placed Somer's photo on a billboard. What began as a birthday tradition became something much bigger, raising awareness about cystic fibrosis in a way that stops people in their tracks. What that billboard did for awareness will give you chills. It's something you will never forget. You'll have to listen to the podcast to hear the story!Somer knows that fighting CF isn't something anyone can do alone. Her journey is deeply rooted in the strength of her support system and the community that stands beside her. She continues to advocate not only for her own future, but for a cure, for everyone living with cystic fibrosis.Somer sums up the reason to advocate. This quote is on her website: "The goal isn't to live forever, but to create something that will"-Chuck Palahniuk Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/enRead us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-pageWatch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

If your child has just been diagnosed with autism, you might be thinking… now what? In this video I'm sharing what actually happens after the diagnosis, from the emotional rollercoaster of the meeting itself to the practical next steps with school, EHCP or IDP conversations, paperwork, financial support and protecting your own mental health. I've been through this four times with my own children, and I know how overwhelming that day can feel. An autism diagnosis does not change your child. It gives you data. And data helps you support them better. If you're in this space right now, you're not alone. ➡️ Join the conversation in the YouTube comments here - https://youtu.be/0kamuXuGM00 Resources ➡️ Free Autism Signs Guide - https://mummyoffour.com/100asd ➡️ Join my free Neuro-Sparkly community - https://mummyoffour.com/join ➡️ Join the Organised Life Club - https://mummyoffour.com/joinOLC ⸻ UK Financial Support - I can't advise on individual financial circumstances, but you can check eligibility here: GOV.UK benefits calculators https://www.gov.uk/benefits-calculators Turn2us https://www.turn2us.org.uk Citizens Advice https://www.citizensadvice.org.uk/benefits/ ✨ Join My FREE Neuro-Sparkly Community & Resource Hub - https://www.rhiannanmorgan.com/join

Love the episode? Send us a text!In this powerful episode of Breast Cancer Conversations, Laura Carfang speaks with Kathy Giusti, a two-time cancer survivor who has lived with multiple myeloma for 30 years and later faced a breast cancer diagnosis as well.Diagnosed at 37 after what she thought was a routine visit, Kathy was told she had a fatal blood cancer and would live “three years at best.” Instead of accepting that prognosis, she helped change the trajectory of cancer research by founding the Multiple Myeloma Research Foundation (MMRF)—a model that brought scientists, clinicians, biotech, and the FDA together to accelerate treatments.This conversation explores survivorship, advocacy, and what patients and caregivers can do when the science is moving fast—but the system isn't.In This Episode, We DiscussGetting a shocking diagnosis after a “routine” appointmentWhy multiple myeloma was once considered a “silent killer”How Kathy helped build a research engine that accelerated drug developmentThe difference between fast-moving science and slow-moving systemsHow Kathy's identical twin impacted her breast cancer risk and screeningDCIS decisions and why “there's no right or wrong—only what's best for you”Why “looking healthy” can cause people to underestimate what you're carryingHow to set boundaries when you're in treatment or survivorshipWhy you shouldn't rely on only one or two caregivers—and how to “invite people in”Kathy's book: Fatal to Fearless: 12 Steps to Beating Cancer in a Broken Medical SystemResources & LinksFollow Kathy: @kathy.giustiBook: Fatal to Fearless: 12 Steps to Beating Cancer in a Broken Medical SystemSurvivingBreastCancer.org: Free programs, support groups, and communityDownload the SBC App: Search SurvivingBreastCancer.org in the App Store or Google Play Support the showLatest News: Become a Breast Cancer Conversations+ Member! Sign Up Now. Join our Mailing List - New content drops every Monday! Discover FREE programs, support groups, and resources! Enjoying our content? Please consider supporting our work.

Diagnosed just months after childbirth, Kat Robertson reflects on treatment, motherhood, and moving forward with gratitude.

From Casual Drinking to Liver Failure: Jacob's Story of Alcoholic Cirrhosis, Sobriety, and Second Chances In this episode of the Sober Motivation Podcast, Jacob shares his powerful journey from a normal upbringing and moderate drinking to developing alcoholic liver cirrhosis after a slow, 10-year descent into alcohol dependency. Growing up in Wisconsin with a loving family, sports, and strong values, Jacob never saw alcohol as dangerous. Drinking started socially and casually — a beer here, wine at dinner, fun with friends. But as stress increased through marriage, business responsibilities, and parenting, alcohol quietly shifted from celebration to coping. In 2023, Jacob was hospitalized with severe abdominal swelling (ascites), jaundice, and ultimately diagnosed with alcoholic liver cirrhosis. Doctors gave him a grim prognosis and discussed palliative care. But this is not a tragedy story. It's about what Jacob is doing with his second chance.  ----------- Support the Show: https://buymeacoffee.com/sobermotivation Join the Sober Motivation Community: https://sobermotivation.mn.co/ Jacob in Instagram: https://www.instagram.com/feel_sober_good/

Discover what's possible when self-esteem saves lives. Are you looking for tools and to help your neurodivergent teen feel supported in this important phase in life? Whether that's your case or you're curious about behavioral parenting strategies, you'll want to listen to this episode with Jheri South.  Jheri South is a behavioral coach and the mother of seven neurodivergent children, five being on the autism spectrum. Diagnosed with ADHD herself at age 40, Jheri specializes in coaching teens and parents to navigate ADHD, autism, anxiety, and parenting with mindset, strategy, and community. This episode is part two of our conversation, and we discuss: Common struggles for parents of neurodivergent teens The importance of being consistent as parents How to help autistic teens build confidence and self-esteem How Jheri successfully helped an autistic teen to stop cutting herself Tips to set realistic expectations for autistic adolescents To learn more about Jheri South and her work, please visit: IG @msjherisouth ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey 

On this Make A Difference Minute, Coleman Drew talks about the timeline surrounding his upcoming transplant. Diagnosed with cystic fibrosis at just two years old, Coleman has spent his life managing daily treatments and health challenges. Now, as transplant becomes the next step in his journey, he shares what the process looks like, what happens next, and how he and his family are preparing. This is a powerful glimpse into the reality behind the word “transplant.” If you would like to support Coleman and his family with transplant-related expenses, visit: cota.org/cotaforcolemansfight Sponsor: Singing River Dentistry SingingRiverDentistry.com

What if a cancer diagnosis didn't mean surrender—but transformation?In this powerful episode of Integrative Cancer Solutions, Dr. K sits down with bestselling author, philanthropist, and lifelong learner Glenn Sturm, who has lived—and thrived—through nearly two decades of continuous chemotherapy. Diagnosed with a rare, incurable lymphoma and given just years to live, Glenn shares how integrative, multidisciplinary cancer care helped him defy the odds and reclaim his life.This conversation explores why silo-based oncology fails patients, how true integrative cancer care dramatically improves survival and quality of life, and why mindset, communication, movement, and purpose are as critical as chemotherapy itself. Glenn also shares deeply human stories—from surgery rooms to chemo suites—that reveal how gratitude, laughter, and patient empowerment can become some of the most powerful medicines available.Key Takeaways:0:00 Introduction4:10 Why Glenn refused to let cancer define him9:30 Integrative cancer care vs silo-based oncology15:20 Building a multidisciplinary cancer care team21:45 Cancer fatigue, chemo brain, and overlooked root causes29:10 Medication interactions and why patients must stay vigilant36:40 How mindset, purpose, and joy influence survival44:30 Why patients—not doctors—must be the quarterbacks of careResources Mentioned:Cancer Set Me Free - https://glennsturm.com/store/Cancer-Set-Me-Free-p711698418Medical Disclaimer: This content is for educational purposes only and is not intended to diagnose, treat, cure, or replace professional medical advice. Always consult your physician or qualified healthcare provider regarding any medical condition or treatment decisions. -----------------------------------------------A Better Way to Treat Cancer: A Comprehensive Guide to Understanding, Preventing and Most Effectively Treating Our Biggest Health ThreatGrab my book here: https://www.amazon.com/dp/B0CM1KKD9X?ref_=pe_3052080_397514860 Unleashing 10X Power: A Revolutionary Approach to Conquering CancerGet it here: https://store.thekarlfeldtcenter.com/products/unleashing-10x-powerPrice: $24.99100% Off Discount Code: CANCERPODCAST1Healing Within: Unraveling the Emotional Roots of CancerGet it here: https://store.thekarlfeldtcenter.com/products/healing-withinPrice: $24.99100% Off Discount Code: CANCERPODCAST2-----------------------------------------------Integrative Cancer Solutions was created to instill hope and empowerment. Other people have been where you are right now and have already done the research for you. Listen to their stories and journeys and apply what they learned to achieve similar outcomes as they have, cancer remission and an even more fullness of life than before the diagnosis. Guests will discuss what therapies, supplements, and practitioners they relied on to beat cancer. Once diagnosed, time is of the essence. This podcast will dramatically reduce your learning curve as you search for your own solution to cancer. To learn more about the cutting-edge integrative cancer therapies Dr. Karlfeldt offer at his center, please visit www.TheKarlfeldtCenter.com

Pain has a way of demanding your attention, but it doesn't get to decide who you become. Lyndsay Soprano's life has been shaped by layers of trauma, abuse, chronic illness, and a diagnosis of Complex Regional Pain Syndrome, one of the most painful conditions known. Yet instead of letting pain define her, Lyndsay made a conscious decision to give it purpose. This episode explores what it means to reclaim your power when your body hurts, your past weighs heavy, and healing feels overwhelming. Through honesty, humor, and radical gratitude, Lyndsay shares how facing trauma head-on, questioning broken systems, and choosing presence over despair changed everything. Her story is not about fixing pain,  it's about learning how to live fully in spite of it. Guest Bio Lyndsay Soprano is the founder and host of The Pain Game Podcast and a bold advocate in the chronic pain and trauma recovery space. Diagnosed with Complex Regional Pain Syndrome (CRPS) in 2017, Lyndsay is also a survivor of sexual, emotional, and physical abuse, infertility, depression, anxiety, and divorce. After years of misdiagnosis and failed treatments, she chose a trauma-informed, integrative approach to healing and turned her lived experience into a platform that helps others feel seen, understood, and less alone. Her guiding belief is simple but uncompromising: the only way out is through.   You'll hear About How early trauma quietly shaped Lyndsay's coping mechanisms Living with CRPS and navigating life in constant physical pain The moment she chose gratitude over despair Why Western medicine alone failed her — and what she did differently Turning pain into purpose through conversation, advocacy, and voice   Chapters 00:00 Welcome and Episode Introduction 02:00 Lyndsay's Early Trauma and Childhood Coping 05:00 Uncovering Repressed Memories and Their Impact 08:00 Living With CRPS and Daily Pain Decisions 12:00 Gratitude as a Survival Skill 15:30 The Night Everything Had to Change 18:30 Reclaiming Power From Medication and Misdiagnosis 22:30 Functional and Integrative Healing Approaches 26:30 Advocacy, Self-Trust, and Taking Control of Care 30:00 Why Pain Does Not Get to Define Identity 33:30 Creating The Pain Game Podcast 37:30 Writing, Forgiveness, and Letting Go 41:00 Lyndsay's Message to Anyone Feeling Hopeless 45:00 Chuck's Closing Reflections Chuck's Challenge This week, notice where pain or frustration is trying to take your power. Pause before reacting. Ask yourself how you can meet that moment with curiosity, compassion, or gratitude instead. Even small shifts can change the entire direction of a day. Connect with Lyndsay Soprano Website: thepaingamepodcast.com Email: talktoher@thepaingamepodcast.com Connect with Chuck Check out the website: https://www.thecompassionateconnection.com/ Linked In: https://www.linkedin.com/in/chuck-thuss-a9aa044/ Follow on Instagram: @warriorsunmasked Join the Warriors Unmasked community by subscribing to the show. Together, we're breaking stigmas and shining a light on mental health, one story at a time

What do you do when doctors give you five years to live… and you're still here more than twenty years later? In this moving episode of Contagious Influencers of America, nine-time Emmy winner David Sams interviews singer-songwriter and worship leader Tim Timmons. Diagnosed with incurable cancer in 2001 and given just five years, Tim's story deepened into one of profound faith, surrender, and hope. Now, over two decades later, his journey is portrayed by Milo Ventimiglia (Gilmore Girls, This is Us) in "I Can Only Imagine 2," tied to MercyMe's iconic song that has impacted millions "Even If." Tim shares openly about: Living with cancer while embracing both grief and hope Shifting from "working for God" to simply joining Jesus His daily grounding practice (the X he writes on his wrist each morning) Co-writing "Even If" with MercyMe's Bart Millard Watching his life and pain depicted on the big screen The heart of his new book, Waking Up Again: A Journey of Grief and Gratitude This isn't about pretending life is easy—it's about waking up again to presence, purpose, and a faith that holds joy and sorrow together. If you're facing uncertainty, loss, or a heavy season, this conversation will meet you with real hope. I Can Only Imagine 2 opens in theaters this Friday! "Waking Up Again" is available now wherever books are sold. Listen today—and share with someone who needs encouragement. Click here for tickets:  I Can Only Imagine 2 | Only In Theaters February 20 #PodcastInterview #FaithAndHope #WakingUpAgain #ICanOnlyImagine2 #EvenIf #GriefAndGratitude #TimTimmons #MercyMe #DavidSams #KeepTheFaith

Morgan Harper Nichols (All Along You Were Blooming) joins The Art of Kindness with Robert Peterpaul in a previously-released episode (2024) from our library, discussing: kindness through artistic spaces, the thoughtfulness of kindness, the kindness of memes and much more. ⁠Morgan Harper Nichols⁠ is an artist, writer, and creator based in Georgia. Diagnosed with autism, ADHD, and sensory processing disorder, Morgan's work often explores themes of embracing life's narrative and creating room to breathe. She began creating art and poetry in response to social media messages she received in 2017, and since then, her practice has expanded to include digital art, collage, coding, and 3D environments. Morgan is the creator of the app Storyteller and the online shop Garden24. Her WSJ bestselling book, All Along You Were Blooming, is one of several published works, and she currently serves as Vice President on the board of TWLOHA, a mental health organization. Morgan is passionate about the intersection of art, storytelling, and health, and her long-term goal is to teach and develop resources that explore how we create and interact with narratives in our lives. L Morgan Lee's "Reaching for Help from Drowning" Fundraiser: ⁠https://www.gofundme.com/f/reaching-for-help-from-drowning⁠ Follow Morgan: ⁠@morganharpernichols⁠ Follow us: ⁠@artofkindnesspod⁠ / ⁠@robpeterpaul⁠ ⁠youtube.com/@artofkindnesspodcast⁠ ⁠Support the show⁠! (https://www.buymeacoffee.com/theaok) Got kindness tips or stories? Want to just say hi? Please email us: artofkindnesspodcast@gmail.com Music: "Awake" by Ricky Alvarez & "Sunshine" by Lemon Music Studio. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Clinical Research Coach, I sit down with Ella Balasa, a cystic fibrosis patient advocate whose lived experience is shaping how our industry understands trust, transparency, and meaningful patient engagement.Diagnosed in infancy with cystic fibrosis, a progressive genetic lung disease, Ella has spent her life navigating hospital systems, breakthrough therapies, and clinical trials — not as an abstract participant, but as someone whose health and future depend on research progress. Along the way, she has become a powerful voice for improving how industry partners with patients.In this conversation, Ella shares what sponsors, sites, and biotech leaders often overlook:* Patient experience is never one-size-fits-all — even within the same diagnosis.* Patients learn about trials through trusted networks, not just databases or digital ads.* Transparency builds confidence and drives long-term participation in research.* Dropout affects more than timelines — it influences trust and future enrollment decisions.* Technology should support patients, but never replace human connection.Ella's perspective challenges us to think beyond enrollment metrics and toward something deeper: relational trust. Because sustainable progress in clinical research depends on listening to patients as individuals, partners, and experts in their own lives.To learn more about Ella:Https:/ellabalasa.com

Noah May joins Rich Bennett for one of the most honest conversations yet about mental health, resilience, and survival.Diagnosed with clinical depression at 14 and anxiety at 18, Noah shares how his symptoms escalated into severe nausea, dramatic weight loss, and daily fear that left him physically shaken. As a member of the Class of 2020, he also faced the emotional toll of graduating during the COVID pandemic, followed by six months of long COVID symptoms.But this story is not about defeat. It's about breakthrough.Noah opens up about finally finding the right medication, rebuilding his confidence, earning a journalism degree from Auburn University, and launching the Lethal Venom Podcast to help others speak their truth.If you or someone you know struggles with anxiety or depression, this episode offers hope, perspective, and encouragement to never fight alone.Send a textVote for us here 10% off All MembershipsRuntime: 2/10/2026 until 2/28/2026Code: CRBPodcast This discount is valid only for memberships purchased February 10, 2026 until February 28, 2026. It cannot be applied retroactively to previous purchases and may not be combined with any other discount or promotion. All memberships purchased are nonrefundable.Maryland PickersFamily Owned & Operated - Maryland Pickers Junk Removal & Hauling - Serving Harford & Baltimore CouDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showRate & Review on Apple Podcasts Follow the Conversations with Rich Bennett podcast on Social Media:Facebook – Conversations with Rich Bennett Facebook Group (Join the conversation) – Conversations with Rich Bennett podcast group | FacebookTwitter – Conversations with Rich Bennett Instagram – @conversationswithrichbennettTikTok – CWRB (@conversationsrichbennett) | TikTok Sponsors, Affiliates, and ways we pay the bills:Hosted on BuzzsproutSquadCast Subscribe by Email

Ever notice how the most meaningful connections seem to happen "by accident"? They're not accidents. They're collisions you can engineer. James Eder—entrepreneur, coach, and author of The Collision Code—reveals the exact framework for creating serendipitous moments that change your business and life. His story: Built Student Beans to 200+ employees. Diagnosed with a heart condition. Told he might need a transplant. Instead of slowing down, he wrote a book, donating 100% of royalties to charity, and created a coaching practice serving entrepreneurs worldwide. The Collision Code breaks down to three elements: Permission - Give yourself permission to start conversations (or blame this podcast for making you do it) Confidence - Built through practice, not preparation Context - Create conversation starters through what you wear, carry, or say In our conversation on Get Yourself Optimized, James shares how he met his longest-running client (8+ years, £20,000+ engagement) by asking a stranger on the street, "Are you looking for a job?" because the man had a resume in his hand. Real connections. Real results. Real impact. The show notes, including the transcript and checklist to this episode, are at getyourselfoptimized.com/552.

Discover what's possible when understanding leads to acceptance. Have you ever wondered how ADHD and autism can affect family dynamics? Whether you're part of a neurodiverse family or know someone who is, you'll want to listen to this episode with Jheri South.  Jheri South is a behavioral coach and the mother of seven neurodivergent children, five being on the autism spectrum. Diagnosed with ADHD at age 40, Jheri specializes in coaching teens and parents to navigate ADHD, autism, parenting, and anxiety with mindset, strategy, and community. This episode is part one of our conversation, and we discuss: Jheri's journey of understanding her ADHD How her experience with her own neurodivergent children  shapes her coaching approach The importance of education and awareness in fighting the stigma surrounding autism and ADHD How societal misconceptions can make it hard for parents to accept their children's diagnoses Overlapping characteristics of ADHD and autism Why ADHD and Autism are underdiagnosed in females Mental health and suicidal ideation among neurodivergent adolescents To learn more about Jheri South and her work, please visit: IG @msjherisouth ----more---- We appreciate your time. If you enjoy this podcast and you'd like to support our mission, please take just a few seconds to share it with one person who you think will find value in it too. Follow us on Instagram: @autismpodcast Join our community on Mighty Networks: Global Autism Community Subscribe to our YouTube channel: Global Autism Project We would love to hear your feedback about the show. Please fill out this short survey to let us know your thoughts: Listener Survey

Tired of ADHD strategies that don't work? Here's what actually does. FREE training here: https://programs.tracyotsuka.com/signup_____Many neurodivergent women are not struggling because they lack ability. They struggle because the systems around them were never designed for how their brains actually work.In this episode, Tracy talks with Stephanie Ray, a neurodivergent lawyer, coach, and founder of Growthset Coaching. Diagnosed with ADHD in her early 30s, Stephanie spent years succeeding on the surface while quietly struggling with memorization, rigid study methods, and performance pressure in law school and legal practice.Once she understood how her brain learns best, she stopped forcing traditional systems and built visual, movement-based, and story-driven approaches that actually worked. Tracy and Stephanie break down why standard study advice often fails ADHD learners and what makes information stick instead.They also cover imposter syndrome, accommodations, time blindness, and task initiation, along with practical strategies for studying, exam prep, and managing demanding careers. If you feel smart but still behind, this episode will help you see why and what to change.Resources: Website: https://www.growthsetcoaching.com Linkedin: https://www.linkedin.com/in/stephanie-didomizio-ray-esq-75157347 Send a Message: Your Name | Email | Message If this podcast helps you understand your ADHD brain, Shift helps you train it. Practice mindset work in just 10 minutes a day. Learn more at tracyotsuka.com/shift Instead of Struggling to figure out what to do next? ADHD isn't a productivity problem. It's an identity problem. That's why most strategies don't stick—they weren't designed for how your brain actually works. Your ADHD Brain is A-OK Academy is different. It's a patented, science-backed coaching program that helps you stop fighting your brain and start building a life that fits.

Both of this week's stories come from Chan Zuckerberg Initiative's Rare As One Project grantees, who share their deeply personal experiences with rare diseases and illustrate how research is so essential in the search for better treatments and cures. (For more stories like these, you can also check out our previous episode The Story Collider produced with Rare As One in 2019, 2021, 2023, and 2024, as well as our Rare Disease playlist.)Part 1: After multiple relapses, Carlos Guerrero-Anderson takes a chance on an experimental treatment for his rare cancer. Part 2: Angie Weaver holds onto an unshakable belief that her daughter, who has a rare SCN2A disorder, will beat the odds. Carlos Guerrero-Anderson is an executive leader and patient advocate committed to amplifying the voices of Hairy Cell Leukemia and rare disease communities. Diagnosed with a rare blood cancer at age 25, Carlos transformed his personal journey into a lifelong mission to advance equity and create inclusive spaces for patients and families. He currently serves as the Director of Multicultural Engagement & Insights at the Hairy Cell Leukemia Foundation, supporting patients through education, outreach to underrepresented communities, data analysis, program promotion, and the sharing of diverse patient stories. With over 20 years of experience in healthcare insights and data-driven communications, Carlos combines strategic expertise with a lived perspective to create and lead culturally responsive programs that strengthen trust, amplify patient voices, and deliver measurable impact across diverse communities. He is an active member of several national patient advocacy groups, and his work has been featured at national conferences, most recently at the NORD Rare Disease Summit 2025. Carlos believes that storytelling is one of the most powerful tools for breaking barriers, building trust, and ensuring that no patient has to fight alone. Angie Weaver is the Director of Philanthropy and Development for the FamilieSCN2A Foundation, whose mission is to accelerate research, build community, and advocate to improve the lives of those affected by SCN2A-related disorders around the world. After her daughter Amelia was diagnosed with SCN2A, Angie became a passionate advocate for rare disease families—sharing her story to advance research, policy change, and awareness. She lives in northern Minnesota with her husband, Josh, and their youngest daughter, Penelope.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.