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Becky was diagnosed with Crohn's disease at 15 and thought her life was basically over. Spoiler: it wasn't. In this episode we talk about what Crohn's actually looks like day-to-day (fatigue, pain, planning your life around toilets…), the mindset shift that helped her stop shrinking her dreams, and why success sometimes looks like getting out of bed and having a shower — not “hustling” yourself into the ground.We also get into Becky's Everest Base Camp trek attempt, the reality of doing big adventures with an unpredictable body, and the one comment from a stranger that perfectly sums up why invisible illness is such a minefield.Key takeawaysCrohn's isn't “a dodgy tummy” — it's an autoimmune disease with physical and mental load.You can still build a full life, but you may need to do it differently (and that's not failure).The fatigue is real even in remission — “slept 9 hours, feel like 3” levels of real.Invisible illness comes with invisible planning: toilets, timing, travel anxiety, the whole mental spreadsheet.You're allowed to redefine success — especially when your body is fighting you.Turning back isn't quitting. Sometimes it's the bravest, smartest decision you can make.People will judge what they don't understand (“you can't be that sick…”) — don't let that rewrite your reality.Kindness matters more than most people realise. “Be kind” isn't cringe — it's necessary.Timestamps00:00 Intro + “How have you dared and won?”00:14 Diagnosed at 15: believing life was “over”02:22 The pressure of school + the long road to diagnosis/remission04:24 Quitting A-levels, finding snowboarding, becoming an instructor (the pivot)05:43 The biggest misconception: “it's just a tummy issue”06:32 The day-to-day reality: exhaustion, pain, urgency, immunosuppressants08:39 Everest Base Camp planning + how Crohn's derailed it (and why she still went)28:00 Turning back at altitude + hospital in Kathmandu (ego vs survival)33:44 Fundraising wins + choosing your life anyway48:17 Misconception: “you can control it with diet” + the wider symptoms (arthritis, mouth ulcers)49:58 “You can't be that sick…” — the invisible illness moment that stuckMentionedCrohn's & Colitis UK (resources, support, info for patients + employers)Join Dare Club: https://stan.store/shewhodareswinswww.shewhodareswins.com - Code POD10 Hosted on Acast. See acast.com/privacy for more information.
What happens when both a mother and daughter are diagnosed with psoriatic arthritis?In today's episode, we sit down with USPORTS basketball athlete, advocate, and STEM Without Limits scholar, McKinley Penninga, and her mom Lisa Penninga, to talk about navigating life as a family living with the same chronic illness.Diagnosed years apart, McKinley and Lisa share:- how psoriatic arthritis shaped their mother-daughter bond- the early signs Lisa saw in McKinley based on her own lived experience- what it was like recognizing symptoms she personally knew all too well- how both supported each other through flare days, school challenges, and identity changesMcKinley opens up about staying in basketball, balancing varsity-level training with chronic pain, and proving that invisible illness doesn't define your athletic ability. Lisa shares the parent perspective while managing her own health needs — something rarely talked about in chronic illness stories. Together, they discuss advocacy, youth voice in healthcare, the STEM Without Limits Scholarship, and how their shared experiences are shaping the healthcare provider McKinley hopes to become.Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc...Our socials:https://www.takeapaincheck.com/https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheckhttps://ca.linkedin.com/company/take-a-pain-checkhttps://www.youtube.com/@takeapaincheckhttps://www.facebook.com/TakeaPainCheckhttps://www.x.com/takeapaincheckDon't forget to like, comment, and subscribe for more episodes.
Even though it made perfect sense that 2 year old Waylynn McCullough was experiencing the same cold like symptoms that her dad Kevin and her mom Logan had already been through, Waylynn was not as fortunate to say the least, as what she was experiencing was her lead up to her High Risk B Cell Acute Lymphoblastic Leukemia diagnosis which was given to her in January of 2024. Waylynn is now 4 1/2 years old and has been through a very difficult initial treatment plan which was followed by a very difficult Delayed Intensification Treatment plan. Waylynn is now feeling well and thankfully is leading the life for the most part as a very healthy 4 1/2 year old girl.
Are you a podcaster or content creator striving for better diversity and accessibility but worried about saying the wrong thing? The pain point is real: you want to create truly inclusive spaces that feature diverse lived experiences, but you're unsure of the correct language or the most respectful conversations approach. It's time to move past fear and learn the strategic podcasting strategies for impactful disability advocacy. In this episode of Podcasting Unlocked, Alesia sits down with Jenna Udenberg to discuss why disability is not a bad word, the power of human connection, and the essential steps every host must take to make their show accessible and welcoming to all. This week, episode 250 of Podcasting Unlocked is about featuring diverse lived experiences on your podcast! Today's guest is Jenna Udenberg, a thought provoking author, disability advocate, and accessibility educator. Diagnosed with Juvenile Arthritis at just 7 years old, Jenna has faced life's challenges with incredible resilience and determination. As a 2020 Bush Fellow, she uses her voice to create more inclusive and accessible spaces for everyone.In this episode of Podcasting Unlocked, Jenna Udenberg is sharing the importance of being comfortable with not knowing everything and seeking deeper understanding and actionable steps you can take right now to be more inclusive and respectful with your podcast. Jenna and I also chat about the following: Disability Is Not a Bad Word: Shift your mindset to view disability as a neutral descriptor—not a negative one—and embrace it as a part of human diversity and identity.Essential Accessibility for Podcasters: Integrate descriptive practices like visual descriptions and alt text into your video content and show notes to support podcast accessibility for the blind or visually impaired.Lead with Curiosity, Not Assumption: Approach guests and topics related to marginalized communities with genuine curiosity and commonality to foster truly respectful conversations and build deep human connection.Inclusion is Partnership: The goal is to work with people with disabilities on your podcasting strategies and content, not just doing things for them.Be sure to tune in to all the episodes to receive tons of practical tips on turning your podcast listeners into leads and to hear even more about the points outlined above. Thank you for listening! If you enjoyed this episode, take a screenshot of the episode to post in your stories and tag me! And don't forget to follow, rate and review the podcast and tell me your key takeaways!Learn more about Podcasting Unlocked at https://galatimedia.com/podcasting-unlocked/ CONNECT WITH JENNA UDENBERG:LinkedInInstagramWebsiteCONNECT WITH ALESIA GALATI:InstagramLinkedInWork with Galati Media! Work with Alesia 1:1LINKS MENTIONED:Check out the Goal Setting Workshop Free Download: 15 Ways to Improve Your Podcast Book Your Free 1:1 Consultation Proud member of the Feminist Podcasters Collective.
In this episode, I sit down with my friend and client, Connor P. Coleman—a ranch management consultant, entrepreneur, and Enviropreneur Fellow at Stanford University's Hoover Institution. Connor has one of the most fascinating blends of passions: land management, environmental problem-solving, and navigating life and business with ADHD. From childhood memories of kindergarten “Candy Land punishment” to building a thriving consulting business in the mountains of Colorado, Connor opens up about how ADHD has shaped his work, well-being and success.We explore the highs, lows, and turning points that pushed him to embrace systems, routines, delegation, and self-advocacy. Connor shares what burnout taught him, how he finally built a support team, and what shifting from “contractor” to true CEO looks like for a neurodivergent mind. His insight and honesty will resonate with anyone who's ever felt overextended, misunderstood, or unsure how to scale their brilliance.Entrepreneur attempting to do good, better Connor P. Coleman is an amateur philosopher and aspiring polymath based in the mountains of Colorado. Diagnosed with ADHD at an early age, he struggled to keep up in school, but through grit and determination, he was able to navigate college and graduate school successfully. Nearly a decade ago, he founded a ranch management advisory firm that serves conservation-minded landowners nationwide. These days, Connor relies more on systems and habits than pure grit to advance his mission. Episode Highlights:[0:33] – Introducing Connor and his work in ranch management and wildfire-risk solutions [1:14] – What it means to be an Enviropreneur Fellow at Stanford [2:16] – The ADHD-entrepreneur connection and Connor's early path to business [2:44] – Childhood signs of inattentive ADHD and the infamous Candy Land memory [5:52] – How early school experiences shaped Connor's work-reward patterns [8:50] – The impact of having a parent in the medical field and receiving an early diagnosis [10:02] – School accommodations, testing struggles, and how support changed everything [13:04] – Academic Decathlon, discovering intelligence beyond test scores [15:29] – Transitioning into the workforce and the accidental start of his business [18:30] – The “ADHD tax,” missed billing, overwhelm, and finally asking for help [20:07] – Time blindness, doubling time estimates, and the power of realistic planning [22:29] – Learning to celebrate wins and build sustainable routines [23:41] – Burnout, lifestyle changes, and respecting energy and limits [27:12] – The importance of transitions, routines, and boundaries [29:12] – Delegation struggles, the relay-race mindset, and building a trustworthy team [32:08] – Tools like Trello, Monday, and Asana for getting chaos out of your head [33:39] – Learning systems later in adulthood and adapting them over time [35:04] – Connor's advice: own your ADHD, learn the comorbidities, and advocate for yourselfLinks & ResourcesConnor on Instagram: @connor.p.colemanResiliency Lands (Connor's business): https://resiliencylands.com Book mentioned:
Why do so many women with anxiety, depression, and trauma still feel like something deeper is being missed in their health journey?Rita De Michele talks with Dr Jennifer Dall, Grief Informed Neurodivergence Specialist and founder of ADHD Holistically, about what happens when anxiety, depression, trauma, and ADHD all crash the party at once. Diagnosed with ADHD in her 50s, Dr Jennifer helps women swap self blame for self understanding using simple holistic tools that work with their brain, not against it. If you are an alternative health seeker looking for answers beyond another label or prescription, this conversation will help you join the dots and explore a more whole person approach.
Diagnosed in 2024, Portland resident Christy Scattarella has been using her own journey with Alzheimer’s to uplift others and erase stigma surrounding the disease. She began speaking out about Alzheimer's a year after her diagnosis, and champions her “Optimist’s Guide to Alzheimer's" as a way to combat the fear and shame those with Alzheimer’s often face.
Diagnosed recently with both ADHD and autism within the past two years, Cat Orsini's candid storytelling takes us on a journey from feeling like an outsider as a child to building a thriving business based on authentic relationships, automation with heart, and radical self-acceptance. In this interview, Cat reveals her unique approach to business—one that centers curiosity, genuine connection, and meeting people where they are (with a little tech magic to make life easier and more fun). You'll hear not just the triumphs, but also the complex, sometimes messy moments of “unmasking” and designing a business that fits your actual brain and values, not someone else's idea of success.Meet our Guest: Cat OrsiniCat Orsini has an MBA, is a master-certified coach, an entrepreneur, and co-author of the book "Experts Never Chase." She specializes in relationship marketing, strategic conversations, and building automated systems that allow her—and her clients—to focus on human connection over busywork. Through radical acceptance of her neurodivergence and trauma history, Cat has crafted a career and life that honors her strengths and refuses to squeeze herself into a neurotypical mold.Episode HighlightsStrategic Relationship Marketing vs. AutomationCat breaks down why automation and relationship-building aren't mutually exclusive—and how smart systems can let neurodivergent business owners focus on authentic, meaningful connections.Attract, Don't ChaseMove over “hustle culture.” Cat and Diann discuss how building genuine relationships and letting people self-select nurtures business without the creepiness or pressure of hard selling.Neurodivergent Thriving in BusinessHow Cat's ADHD and autism traits fuel her ability to notice patterns, create unique solutions, and support her clients in efficiently reaching their goals.Radical Self-AcceptanceCat shares her journey from masking and trauma in corporate environments to embracing her differences and demanding work that fits her—not the other way around.Automating the Human TouchLearn how emails, follow-ups, and event workflows can be automated, freeing up energy for one-on-one connections with those who are ready for deeper engagement.The Power of Knowing YourselfDiscussion around building business systems that honor your strengths and limitations, rather than struggling to “strengthen your weaknesses” and dilute what makes you unique.Ethical Reciprocity & Non-Bro MarketingCat outlines how heart-centered reciprocity builds lasting relationships and why neurotypical tactics often miss the mark for neurodivergent individuals.A New Standard for Neurodivergent EntrepreneursThe episode closes with hard-won wisdom: Radical self-acceptance and intentional business design are powerful antidotes to burnout—and Cat's story is proof.Links & Resources:Connect with Cat on LinkedInLearn more about Cat Orsini and her workThe Book Cat Co-Authored with - Experts Never ChaseKnow someone who identifies with ADHD + Autism (officially diagnosed or not…)? Think this episode would inspire them? Here is the link to share it with them, in the most comfy way possible:
My guest today on the Online for Authors podcast is Holly Brough, author of the book The Name I Choose. Award-winning author, Holly Brough didn't enjoy reading until she was an adult. Diagnosed with dyslexia, it wasn't until high school when a religious teacher told her if she read the scriptures every day, she would get over her dyslexia. She read faithfully every night. By the time her first child came along, reading had become a favorite past time. At the age of 19, Holly was diagnosed with Rheumatoid Arthritis. Over the years as her body deteriorated, she learned to reinvent herself by trying new things and finding new passions. Though writing a book never made her bucket list, after three children, a bonus daughter and granddaughter, she decided to give it a try when she had a unique experience driving on the freeway. A scene play out in her mind that was both intriguing and discomforting. After studying family names, family history, countries, etc she decided her story needed to go back two generations and start with the grandmother. The Name I Choose, her first novel, was published in May of 2022. In my book review, I stated The Name I Choose by Holly Brough is a historical fiction set in 1823 Spain. We meet Amalia, a 15-year-old girl being sold off by her parents to become a servant so they can acquire land. Amalia is devastated to leave her family, especially her baby brother, Thomas, especially when she learns she will never be allowed to return - even for a visit. Between her new master's ruthlessness and her own naivete, Amalia's life becomes more and more complicated until she finds herself running from her situation and the law until she lands in Menorca. She meets many people along the way - good and bad - and each have a hand in teaching Amalia about life, but more importantly, about herself. When independence comes calling, will she be able to grasp it or will she still see herself as nothing but a lowly serving girl with too many mistakes to forgive? Holly did a great job with all the characters. I loved Amalia, though I wanted to shake her at times. I feared Manuel and urged her to get as far away from his as possible. I enjoyed the banter between the naval officers. And I loved those people Amalia befriended and how they helped one another despite the overbearing patriarchal society. It's a must-read. Subscribe to Online for Authors to learn about more great books! https://www.youtube.com/@onlineforauthors?sub_confirmation=1 Join the Novels N Latte Book Club community to discuss this and other books with like-minded readers: https://www.facebook.com/groups/3576519880426290 You can follow Author Holly Brough Website: www.hollybrough-tnic.com IG: @hcnbrough_art IG: @h_brough FB: @Hcnbrough Purchase The Name I Choose on Amazon: Paperback: https://amzn.to/3JLM2kV Ebook: https://amzn.to/42hQf69 Teri M Brown, Author and Podcast Host: https://www.terimbrown.com FB: @TeriMBrownAuthor IG: @terimbrown_author X: @terimbrown1 Want to be a guest on Online for Authors? Send Teri M Brown a message on PodMatch, here: https://www.podmatch.com/member/onlineforauthors #hollybrough #thenameichoose #historicalfiction #terimbrownauthor #authorpodcast #onlineforauthors #characterdriven #researchjunkie #awardwinningauthor #podcasthost #podcast #readerpodcast #bookpodcast #writerpodcast #author #books #goodreads #bookclub #fiction #writer #bookreview *As an Amazon Associate I earn from qualifying purchases.
What if the mental health diagnosis you’ve been told limits you is actually the beginning of your most extraordinary life? What if stability isn’t the ceiling, but just the foundation? What if the system telling you to “just be stable” has been setting the bar far too low? Award-winning speaker and mental health advocate Gabe Howard reveals a truth the mental health system doesn’t want you to hear: people with serious mental illness can do more than survive. They can thrive, build careers, speak at Oxford University, and lead badass lives. The Dreams That Bipolar Disorder Interrupted Gabe Howard grew up dreaming of becoming a tech mogul, the next Bill Gates or Steve Jobs. It was the mid-90s, the early days of the internet, and he wanted to be an entrepreneur in the public eye. He even considered stand-up comedy. Then bipolar disorder happened. Psychosis happened. Suicidality happened. He was committed to a psychiatric hospital, and everything came crashing down. When he finally reached recovery, Gabe was angry and traumatised. He searched desperately for resources to help himself and his parents, but the harder he looked, the less he found. That’s when he realised something powerful: he wanted somebody to do something, and then he realised he was somebody. He never thought advocacy would become his career. He thought he’d volunteer for his local mental health charity and maybe make a small impact. Now, he’s a Webby Award winner, hosts the Inside Bipolar and Inside Mental Health podcasts, has spoken at Oxford University and the National Press Club in Washington, DC, and wrote a book called Mental Illness is an Asshole and Other Observations. Mental Health Is Identical to Physical Health One of Gabe’s most powerful insights: mental health isn’t like physical health. It’s identical to physical health. Everyone has mental health, just like everyone has physical health. Most people, most of the time, have good mental health. But just like you can catch a cold or break a bone, you can experience mental health challenges. The day after losing a loved one, no one expects you to be at your best mentally. That’s normal. Yet society treats mental health as binary: you’re either “crazy” or “perfectly fine,” with no room for the grey areas where real life actually happens. The System Wants You Stable. Gabe Wants You Thriving. Gabe challenges the mental health establishment’s tendency to set expectations dangerously low. Too often, people with schizophrenia, bipolar disorder, or major depression are told that getting a part-time job and living in a group home means “you’re doing great.” While stability matters, it shouldn’t be the only goal. He’s witnessed people in group homes being told they can’t work full-time or pursue their passions when the real issue is that the system is too scared of relapse to let them try. He shares the inspiring story of Rachel Starr Withers, who lives with schizophrenia yet has hiked volcanoes, appeared in Marvel films, and hosts the Inside Schizophrenia podcast. Her philosophy: “I want to lead a badass life.” No Magic Bullet, Just Consistent Jabs Using boxing as a metaphor, Gabe explains that recovery isn’t about one knockout punch. Everyone loves the idea of that one breakthrough moment, but most fights aren’t won that way. What wins is dozens of small jabs: maintaining sleep hygiene, taking medication as prescribed, keeping mood journals, attending therapy, exercising, eating well, and practicing radical honesty. These seemingly small things add up to sustainable wellness. The key is consistency, not perfection. The Workplace Stigma That Costs Everyone Gabe makes a compelling business case for reducing mental health stigma in the workplace. Companies that create cultures where employees can be honest about their struggles gain productivity. When people feel safe saying they need a mental health hour, they’re more likely to come in later that day rather than calling in sick entirely. This transparency transforms a full day lost into just an hour or two, making it not only ethically right but also more profitable. Three Golden Nuggets for Your Journey Everyone Has Mental Health. Mental health is NOT just negative. It’s a spectrum everyone exists on, just like physical health. The Basics Really Matter. Recovery isn’t one big breakthrough. It’s many small pieces fitting together: sleep, diet, movement, medication, therapy, and honest communication. The Goal Is to THRIVE. Don’t just “live with” mental illness. Believe that people with mental illness can lead GREAT lives, not just get by. About Gabe Howard Gabe Howard is the host of Healthline Media’s Inside Bipolar and Inside Mental Health podcasts and author of Mental Illness is an Asshole and Other Observations. Diagnosed with bipolar disorder in 2003 after being committed to a psychiatric hospital, he received a resolution from the Governor of Ohio naming him an “Everyday Hero” and spoke at Oxford University in England. He makes his home in Central Ohio with his wife, Kendall, and a Miniature Schnauzer he never wanted but now can’t imagine life without. Key Takeaway You are not limited by your diagnosis. The system may tell you to aim for stable, but you were meant for so much more. When you challenge low expectations, build consistent habits, and surround yourself with people who believe in your potential, thriving becomes possible. Your best life isn’t about just getting by. It’s about going as far as you can, and if you stumble, taking a step back and trying again. Watch the full conversation on YouTube Find Out More About Gabe Howard Inside Bipolar Podcast: https://www.healthline.com/health/podcast/ibp Website: gabehoward.com Facebook: facebook.com/gabehowardspeaker Instagram: @askabipolar YouTube: youtube.com/gabehoward29 LinkedIn: linkedin.com/in/gabehoward29
Start your journey at lizwright.org/wellness“Cancer is not the name above every name. Jesus is.” - Dr. Pete SulackIn this awe-inspiring episode of Live Your Best Life, Liz Wright welcomes global wellness leader Dr. Pete Sulack to share his stunning story of miraculous healing. Diagnosed with aggressive, terminal brain cancer and given a 1% chance to live and only an 8-month survival window, Dr. Pete walked out his healing without chemo or radiation. Today he's completely cancer-free.He opens up about the supernatural peace God gave him from the beginning, the faith-infused protocol he followed, and how the Lord used his illness to unlock a new global ministry field. Dr. Pete and Liz dive deep into the connection between emotional stress, spiritual intimacy, and physical health. There is both divine insight and practical tools for anyone facing sickness or fear.You'll walk away with hope, empowerment, and a blueprint to steward your health in partnership with heaven. The testimony alone will take your breath away, but the wisdom will transform how you see your body, your faith, and your future.Related MaterialsIf you've been longing for breakthrough in your health, I want to personally share something close to my heart. After being diagnosed with aggressive stage 4 brain cancer and given just a 1% chance to live, my dear friend Dr. Pete Sulack followed a God-given healing protocol and was completely cancer-free within 90 days. No chemo, no radiation, just surgery, radical faith, and divine strategy.That same protocol is now a personalized wellness program combining tailored nutrition, lab work, and gentle detox support. I've seen the fruit, and I believe in it. If this resonates with your journey explore the program here. Dr. Pete has generously offered a discount for our community.
Kat Brown is the author of 'It's Not A Bloody Trend: Understanding Life as an ADHD Adult' and editor of 'No One Talks About This Stuff'. Chapters: 00:31 Early memories of feeling different 04:34 Kat's masking journey 06:32 Rejection Sensitive Dysphoria 18:45 Kat's ADHD mission 23:42 ADHD diagnosis realisations 31:43 Tiimo advert 35:21 ADHD masking 45:09 Why women have been let down 49:22 Consequence of life without identity 51:34 Our eternal pursuit of love 53:45 What would you say to the bullies 56:09 Kat's ADHD item 58:51 Audience questions (washing machine of woes) 01:03:58 A letter to my younger self Visit Kat on Instagram
In this remarkable interview, Rosalin Abigail Kyere-Nartey, who was diagnosed with dyslexia at age 30 after years of struggling through school, decided to transform her trials and tribulations into a mission: to transform how people, teachers, and employees understand and support learners with dyslexia and related learning differences. Rosalin is the proud Founder of the Africa Dyslexia Organization (ADO) and she travels around the world to educate and raise awareness on the importance of creating inclusive education.In this podcast, Rosalin describes why dyslexic people are too often overlooked, stigmatised and not given the support they need and why they are often attracted to hands-on professions in the hospitality field. She clearly explains how not only dyslexic but other neuro-divergent learners often excel in jobs that require problem solving, spatial awareness, visual thinking, creativity and empathy. Rosalin Abigail Kyere-Nartey, is a global advocate for dyslexia, a hospitality consultant, and the Founder of the Africa Dyslexia Organization.Diagnosed with dyslexia at age 30 after years of struggling through school, she turned her lived experience into a mission: to transform how Africa understands and supports learners with dyslexia and related learning differences. Through ADO, she leads groundbreaking initiatives, teacher training, awareness campaigns, and policy advocacy that challenge stigma and promote multi-sensory learning across the continent. ADO's programs span 30+ African countries and impact thousands of educators and learners. As a global speaker, Rosalin engages audiences at international forums including UN platforms and global education summits highlighting the urgency of inclusive systems that leave no learner behind. Beyond advocacy, Rosalin serves as Lead Hospitality Consultant at iQ Mundo and is the Country Representative for the Swiss Education Group in Ghana, Liberia, and Sierra Leone. She brings 17+ years of hospitality experience and holds an MSc in International Hospitality Management. Rosalin's passion lies in building inclusive, equitable systems where every learner can thrive regardless of their learning style.
Hey Diabuddy thank you for listening to show, send me some positive vibes with your favorite part of this episode.In this episode, I sat down with Carrie Neher, who has been living with Type 1 diabetes since 1981 — long before CGMs, pumps, carb ratios, or even finger-stick meters were available. Diagnosed at 14 and hospitalized for two weeks, Carrie learned to manage diabetes in what she calls “the dark ages.”She shares what it was really like growing up using urine testing tablets, one daily shot of mixed insulin, and zero real-time glucose feedback — and the emotional weight that came with high A1Cs despite doing everything “right.
Lucy Dawson was diagnosed with breast cancer aged 25. In this episode she talks to Laura about her experience of being diagnosed with breast cancer as a younger woman, and having fertility preservation treatment as a result of her breast cancer diagnosis. They talk about the importance of sharing positive stories, pregnancy, and starting a family after breast cancer. They also talk about the importance of spreading awareness of the signs and symptoms of breast cancer, and having the confidence to advocate for yourself in a medical setting. If you'd like to find out more about Breast Cancer Now's support services, visit the Breast Cancer Now website or phone our free helpline on 0808 800 6000 (UK only). You can subscribe to this podcast on Spotify, Apple Podcasts, or wherever you get your podcasts. Every episode is available to watch or listen to on the Breast Cancer Now website. You can also watch it on YouTube. Key Topics: 02:00 Lucy's diagnosis 08:40 How are you now? 09:05 Family history of breast cancer 10:55 Support services for younger women 12:42 Fertility preservation treatment 16:00 Starting a family 19:15 Pregnancy after breast cancer 21:20 Breastfeeding 22:40 How did pregnancy feel for you? 24:15 How are you finding motherhood 25:00 How did your partner cope throughout your cancer and pregnancy 25:49 What would you say to other younger women facing fertility challenges as a result of breast cancer treatment? 26:45 Advocating for herself as a younger woman to be diagnosed and being confident in a medical setting. 33:56 How do you look after your mental health 38:57 Posters of the signs & symptoms of breast cancer in M&S changing rooms. 42:15 Taking part in BCN's Pink Ribbon Walk 43:25 What does it mean to Lucy to 'live well'.
All Home Care Matters and our host, Lance A. Slatton are honored to welcome Nancy Nelson & Kat Hartley as guests to the show. About Nancy Nelson "dangle" Co-Founder, dangle & dot: Diagnosed with early-onset Alzheimer's in 2013, Nancy Nelson transformed fear into creativity and purpose. In the quiet hours following her diagnosis, she began writing words and phrases that seemed to "fall from the sky"—a healing practice that deepened her understanding of both her own and her father's dementia journeys. Following a second diagnosis of mild cognitive impairment in 2018, Nancy continued to embrace life with courage and grace plus a brain healthy lifestyle. She is the author of three acclaimed poetry collections—Blue. River. Apple.—which chronicles her personal experience with dementia. An Alzheimer's advocate and public speaker, Nancy shares her story at education and policy events, participates in dementia research, and leads support groups for individuals in the early stages of the disease. Known for her uplifting honesty and creative voice, Nancy uses poetry and social media to reframe how the world sees dementia—not as an ending, but as a call to live fully, not fearfully. About Kat Hartley, BS Pharm "dot", Co-Founder, dangle & dot: Kat Hartley has spent every decade of her life on the emotional, financial, and spiritual rollercoaster of Alzheimer's Disease—having lost seven beloved relatives to it. The lessons and loss of her joyous father, who lived with dementia, continue to inspire her mission to help others live well. A pharmacist by training, Kat has dedicated her career to advancing Alzheimer's research, treatment, and care. She began her professional journey at the U.S. Food and Drug Administration, then served with the Cleveland Clinic Lou Ruvo Center for Brain Health. Today, Kat is a brain health consultant, speaker, and author who promotes healthy lifestyle practices, mindfulness meditation, and community connection as pathways to prevent or delay dementia. Kat finds deep joy and a surprising re-discovery of self-worth as a full-time family care partner for her mother and brother. About dangle & dot Company Bio: dangle & dot delight when inspiring people to explore, with curiosity and willingness, the new possibilities one can discover despite the inherent challenges of cognitive changes. The company is novel as it includes a diagnosis-facing co-founder actively involved with operations and business development, with the goal of creating a new template for people living with dementia to own a business.
In this episode, I speak with Fay, a Los Angeles-based multimedia artist, actor, and filmmaker who's working on a comedy-horror short film about misophonia. Diagnosed with severe misophonia along with autism, ADHD, fibromyalgia, and several other conditions, Faye considers misophonia one of the most disabling things she deals with daily. We discuss her creative approach to raising awareness through her film—which features a student literally splitting into two people when classmates start chewing gum—her experience growing up in a Soviet refugee family where mental health wasn't discussed, and how her conditions intersect in complex ways. Fay also shares her crowdfunding campaign to pay disabled crew members for the project, and we talk about representation, advocacy, and using comedy to help people understand this often-invisible disorder. Instagram: @misophonia.film @faythefae Support the film on GoFundMe -----Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and IEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSupport the show
Chanel is back for a doozy of a NMF, from a time when she was rebelling against her feminism... LINKS Send your Nightmare Fuel to hello@itsalotpodcast.com Sign the open letter and learn more about Fix Our Feeds at teachusconsent.com/fix-our-feeds Follow Chanel Contos on IG @chanelc Follow Teach Us Consent on IG @teachusconsent Listen to Chanel's last appearance on It's A Lot https://play.listnr.com/podcast/its-a-lot-with-abbie-chatfield/episode/chanel-contos-consent-is-so-horny Learn more about Teach Us Consent at teachusconsent.com Check out @itsalotpod on IG at https://bit.ly/itsalot-instagram . Review the podcast on Apple Podcasts https://bit.ly/ial-review Follow LiSTNR Entertainment on IG @listnrentertainment Follow LiSTNR Entertainment on TikTok @listnrentertainment Get instructions on how to access transcripts on Apple podcasts https://bit.ly/3VQbKXY CREDITS Host: Abbie Chatfield @abbiechatfield Guest: Chanel Contos @chanelcExecutive Producer and Editor: Amy Kimball @amy.kimballDigital and Social and Video Producer: Oscar Gordon @oscargordon Social and Video Producer: Justin Hill @jus_hillIt's A Lot Social Media Manager: Julia ToomeyManaging Producer: Sam Cavanagh Find more great podcasts like this at www.listnr.com/See omnystudio.com/listener for privacy information.
Diagnosed with autism at a young age, Lia discusses her passion for promoting neurodivergence awareness and the need for sensory-friendly spaces. She created 20 fidget bins, filled with calming tools like calming strips, water timers, and Pop-Its, which she distributed to libraries, schools, and after-school programs. Lia highlights her vision of helping others understand the experiences of neurodivergent individuals and the importance of creating inclusive environments. Tune in to learn about her impactful work and the significance of supporting neurodivergent communities. More about Lia: Lia created Sensory Friendly Futures for her Gold Award project to promote neurodivergence awareness, inclusion, and acceptance within her community. She designed and created fidget bins for neurodivergent individuals and placed them in her local libraries, schools and after school programs to create welcoming and calming spaces for self-regulation. In addition, Lia developed educational materials to teach the community about sensory needs, stimming, and the importance of creating supportive environments for all. Her goal was to make public spaces more inclusive and to inspire others to embrace neurodiversity with understanding and compassion. Through Sensory Friendly Futures, Lia hopes to create a world where everyone feels safe, seen, and valued for who they are. Her project can also be found on her Instagram: @sensoryfriendlyfutures and website. After High School, Lia plans to get a B.S in Legal Studies & go to Law School! sites.google.com/view/sensoryfriendlyfutures instagram.com/sensoryfriendlyfutures/
I grew up surrounded by addiction, though my parents had found recovery early in my life. I was a relatively skinny child. Diagnosed with ADHD at five years old, I was on medication that suppressed my appetite. In 5th grade, my parents and teachers decided to try taking me off meds for a year, and I went from a size 8 slim to a 16 husky, gaining 60 pounds. When I went back on the medication to improve my ability to focus, it never again suppressed my appetite. By 19, I weighed 240 pounds. I was lonely, broke, and down to one pair of pants with the thighs rubbed out. It was less embarrassing to ask my mom to take me to a meeting than to buy me the next size up. At my first Food Addicts in Recovery Anonymous (FA) meeting, I got a sponsor and began working the program. I'd had such a small view of what my future could be, but FA unleashed my ability to dream wildly and achieve those dreams. In the sixteen years since, my life has been transformed beyond what I could have imagined. I'm married, raising two kids, and living with peace and freedom instead of obsession and compulsion. FA saved my life. #FoodAddictionRecovery #FAStories #RecoveryJourney #LifeBeyondFood #FoodAddictsInRecoveryAnonymous #BreakingFreeFromFood #RecoveryWins #OneDayAtATime #HealingWithFA #FromStruggleToStrength #FARecovery #SelfLoveThroughRecovery
Exhausted from late diagnosed autism masking as an adult? In this episode of Adulting with Autism, host April chats with Wendela Whitcomb Marsh (Dr. Wendy), award-winning author, TEDx speaker, and US Autism Association board member, on neurodivergent self-acceptance, workplace accommodations, and advocacy for high-masking autistic adults—especially women/girls/trans/ND folks. After 40 years in special ed/psychology, Dr. Wendy founded (and sold) Adult Autism Assessment & Services, drawing from her autistic family (late husband + 2/3 adult kids). Her Adulting While Autistic series (Independent Living, Dating, Relating, Parenting, Working While Autistic) and SWAN Church (Scripture & Worship for All Neurotypes) empower underserved voices. Key insights: Adult vs. child autism: Masking hides symptoms (e.g., routines for eye contact/socializing); exhaustion from "faking normal." Late-dx challenges: Women/trans/non-binary often missed (3-6x overlap with autism); bullying/shame leads to self-doubt. Workplace/family support: Frame needs as productivity wins (e.g., noise-canceling headphones/WFH); believe autistic voices—no "faking." Clinician tips: Read autistic authors, seek ND-affirming pros; self-ID valid if no paper needed (for disability/accommodations). Advocacy ahead: Boa constrictor squeeze (hard times)—stay safe, speak out; churches need inclusivity (SWAN as model). For autistic young adults unmasking or parents advocating, Dr. Wendy's optimism shines: "Nothing wrong with you—world's not built for you." Free library access to her books; inquire for Book Club readings. Subscribe for ND adulting advocacy! Rate/review on Podbean/Apple/Spotify. Books at Amazon/Barnes & Noble/Powell's/indies; SWAN Church: swanchurch.org. Linktree: adultingwithautism.linktr.ee (Podbean/shop/socials). Holiday merch sale: 30% off tees/hoodies with code BLACK25 at adultingwithautism.shop—fierce ND gear! #LateDiagnosedAutism #AutismMaskingAdults #NeurodivergentWorkplace #AutismWomenTrans #AdultingWhileAutistic #SWANChurchND #AutismSelfAcceptance #AuDHD #OT #MentalHealth #BTS #BTSNeurodivergent #Neurodiversity #ADHD #PodMatch #Podcasts Episode: Late Diagnosed Autism in Adults with Wendela Whitcomb Marsh [00:00] Intro: Masking Exhaustion in Late-Dx ND Adults [00:30] Dr. Wendy's Story: 40-Year Career to Adult Autism Advocacy [02:00] Missed Symptoms: Adult vs. Child Autism (Masking Routines/Sensory) [05:00] Late-Dx Challenges: Women/Trans/Non-Binary Overlap (3-6x Higher) [08:00] Masking Effects: "Faking Normal" & Unmasking Safety [11:00] Family Support: Listen/Believe—Accommodations for All [14:00] Workplace Wins: Frame Needs as Productivity (Headphones/WFH) [17:00] Clinician Tips: ND-Affirming Pros, Read Autistic Authors [20:00] Lived Experience: Autistic Family Shapes Her Books/Advocacy [23:00] Church Inclusivity: SWAN Church Model for ND/LGBTQIA+ [26:00] Future Advocacy: Boa Constrictor Squeeze—Stay Safe/Speak Out [29:00] Testing Advice: Self-ID Valid; Sliding Scales for Assessments [32:00] Outro: Books/Resources & CTAs Resources: Books: Adulting While Autistic series/Recognizing Autism in Women and Girls (Amazon/Barnes & Noble/Powell's/indies/libraries) SWAN Church: swanchurch.org (online ND-affirming worship) Contact: info@WendelaWhitcombMarsh.com (Book Clubs/speaking) Linktree(Podbean/shop/socials) Subscribe on Podbean/YouTube for ND advocacy! Share your masking story in comments. #AutismAdults #LateDxMasking #NDWorkplace #AutismWomen #SWANChurch
"I hate, therefore I am," - Natasha Cornett Natasha Cornett grew up in a poor rural area in Kentucky, raised by a single mother. Diagnosed with bipolar disorder, she began demonstrating anti-social behavior and dropped out of school in the ninth grade. Charismatic and well-spoken, the Goth-inspired Cornett assembled a gang of like-minded outcasts to go on a killing spree which shocked the Deep South.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-opperman-report--1198501/support.
In this powerful and deeply personal episode of Walk and Roll Live – Disability Stories, hosts Doug Vincent and Addie Rich sit down with Donald Allison, who shares his lifelong journey from growing up in Fontana, California, to living today in Yucca Valley near Joshua Tree National Monument. Donald opens up about the early signs of a rare and progressive muscle disease called Inclusion Body Myositis (IBM)—a condition that first affected his hands, then his mobility, and ultimately placed him in a wheelchair. Diagnosed at the Mayo Clinic, Donald explains what it's like to live with constant muscle weakness, chronic pain, immune system complications, and the everyday challenges of personal care and independence. He also pays tribute to the pivotal role his mother played in his life, including the legacy she left behind to ensure he could continue living safely in his home after her passing in 2021. This episode is a raw, honest, and educational look at life with a rare neuromuscular condition, filled with resilience, vulnerability, and the power of family and adaptability. Walk and Roll Live
On overmedicalisation and the crisis of authority. Amber Trotter, practicing psychologist and an editor at Damage magazine, and George Hoare tell Alex about their co-written article in the print issue of Damage on "the pre-political". What is driving the explosion in mental health diagnoses? Why are people seeking diagnosis? How is it the product of the subjective and the purely scientific? Does capitalism make us ill? Is blaming 'capitalism' abstractly part of the problem? What is the crisis of authority? Whose authority? Can we solve pre-political problems with politics? And political problems with pre-political approaches? Damage, Issue 5: The Pre-Political
It Happened To Me: A Rare Disease and Medical Challenges Podcast
In this uplifting episode, hosts Beth Glassman and Cathy Gildenhorn sit down with Leanna Scaglione, a powerhouse rare disease advocate and marathon runner living with NF2-Related Schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2. Diagnosed at just 16 years old, Leanna's life changed dramatically when tumors were discovered in her nervous system, a hallmark of NF2-SWN. Many would have slowed down. Instead, Leanna sped up. Today, she has: Completed multiple marathons, including Berlin and New York City Participated in clinical trials Become an advocate and 2025 Ambassador for the Children's Tumor Foundation Set her sights on becoming the first person with NF2 to complete all 7 Abbott World Marathon Majors Her message is powerful: a diagnosis doesn't define the finish line. In This Episode, We Discuss: What NF2-SWN is and how it impacts the nervous system The emotional toll of receiving a life-altering diagnosis as a teenager Losing a dream — and finding a new one Running marathons through surgeries, treatments, and uncertainty How advocacy and visibility can change the rare disease landscape Building a life rooted in resilience, purpose, and possibility About Our Guest: Leanna Scaglione is 34 years old living with NF2-Related Schwannomatosis (NF2-SWN). Ever since being diagnosed at 16 years old, she has refused to live defined by her diagnosis. From relearning to walk, participating in immunotherapy drug trials, and going through numerous surgeries she has defied the odds against her. Most recently she has undergone surgery to remove her right acoustic neuroma. She continues to live her best life as an endurance runner, sharing her story and experiences living with NF2 in hopes to spread awareness, motivate her community and rally for a cure. Resources: Children's Tumor Foundation NF2 Accelerator: A Strategic Portfolio Approach to End NF2 Articles Explaining NF2 MedlinePlus GeneReviews National Organization for Rare Disorders (NORD) Research from China that Leanna reference for a gene therapy for NF2 Yuan R, Wang B, Wang Y, Liu P. Gene Therapy for Neurofibromatosis Type 2-Related Schwannomatosis: Recent Progress, Challenges, and Future Directions. Oncol Ther. 2024 Jun;12(2):257-276. doi: 10.1007/s40487-024-00279-2. Epub 2024 May 17. PMID: 38760612; PMCID: PMC11187037. Additional Research Articles Alexandra K. O'Donohue, Samantha L. Ginn, Gaetan Burgio, Yemima Berman, Gabriel Dabscheck, Aaron Schindeler, The evolving landscape of NF gene therapy: Hurdles and opportunities, Molecular Therapy Nucleic Acids, Volume 36, Issue 1, 2025, 102475 ,ISSN 2162-2531, https://doi.org/10.1016/j.omtn.2025.102475. Connect With Us: Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”. “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer. See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.
I want to hear your thoughts about the show and this episode. Text us here...On this episode of Casa De Confidence, Julie welcomes disability advocate, author, and accessibility educator Jenna Udenberg, a 2020 Bush Fellow whose mission is improving accessibility where it matters most — in our everyday lives.Diagnosed with juvenile arthritis at age 7 and a wheelchair user since age 8, Jenna shares her story of resilience, leadership, and activism. We explore what it means to live in a world designed without disability in mind, how the ADA impacts real accessibility, and why inclusion requires more than just checking compliance boxes.We discuss:Self-advocacy from childhood to adulthoodWhat businesses miss about true accessibilityThe concept of crip time and spoon theoryWhy disability is not a tragedy — but lack of access isInclusive community design & supporting nonprofits like Above & Beyond With UJenna reminds us that disability is part of the human experience — and creating inclusive communities benefits all generations.A powerful and inspiring conversation you won't forget.Jenna's organization, Above & Beyond With U (A&BWU), works intentionally to increase awareness, inclusive practices, accessibility, and belonging for anyone experiencing disability.At Above & Beyond With U, we provide consulting, training, and resources to businesses and local community programs to increase awareness, inclusion, and accessibility for people with disabilities. Our goals:To create and sustain partnerships with other practitioners, community organizations, and agencies for whole community growth and inclusion.Provide cThis is an invitation to join a supportive community of purpose-driven entrepreneurs who are creating an impact in the world.A mastermind is a community of peers who exchange ideas, provide support, and offer sound advice for running a successful business.Join the Confident YOU Mastermind now at https://goconfidentlyservices.myflodesk.com/confidentyoumastermindSupport the showOther helpful resources for you: For more about me and what I do, check out my website. Are you ready to get some help with:Podcast launch/re-launchPodcast growth, to increase your authority and position yourself as the thought leader you are. Or Leveraging your podcast to build your online biz and get more clientsSign up for a FREE 30 minute Confident Podcast Potential Discovery Call In this session I will: Identify the pain point that is holding you back. Suggest a next step strategy for solving the pain point.https://calendly.com/goconfidentlycoaching/30-minutes-free-coaching-sessioin Then we will talk about working together to accelerate the process. Do you want a podcast audit? Check out this link If you're looking for support to grow your business faster, be positioned as an authority in your industry, and impact the masses, schedule a call to explore if you'd be a good fit for one of my coaching programs. ...
Mountain climber and Ironman athlete Risa was the definition of strength—until eight years of dismissed headaches led to a shocking diagnosis: a rare pituitary disease that required major brain surgery and changed her life forever.In the aftermath, determined to reclaim herself, Risa signed up for the ride of a lifetime—a six-week bike tour down the Pacific Coast Highway from Canada to Mexico.She shares that extraordinary journey in "The Road Unpaved", a powerful reminder that sometimes the toughest detours become the very path we were meant to take.http://www.risaaugust.com https://www.risaaugust.com/my-book.htmlallaboutyoupodcast@yahoo.comhttps://www.youtube.com/@allaboutyoupodcast2505
Did you know that there is hope for patients diagnosed with ALS? Amyotrophic Lateral Sclerosis (ALS), the debilitating neurodegenerative disease commonly known as “Lou Gehrig's Disease,” is influenced by genetics and environmental factors, including living near bodies of water frequently impacted by harmful algal blooms. Join Food Sleuth Radio host and Registered Dietitian, Melinda Hemmelgarn for her conversation with Coco Newton, RD, MPH, CNS, a registered dietitian and holistic practitioner with expertise in functional medical nutritional therapy for improving the diet quality and quality of life for those diagnosed with ALS. Newton has been involved with Healing ALS: www.healingALS.org. She references the ALS Clinic at Duke University: https://alsclinic.duke.edu/our-research/ and the international conference on ALS and Motor Neurone Disease will be held Dec 5-7 in San Diego, CA: https://symposium.mndassociation.org/programme/. To learn more about algal blooms and neurodegenerative disease, see: https://www.eurekalert.org/news-releases/1087706 Related Websites: https://www.coconewton.com/
Episode title and number: Anne Mok on Resilience, Blindness, and Building Community 5-#9Summary of the show:In this Connected & Curious with Andy podcast episode, Anne Mok—a mom, author, and accidental influencer—discusses her vision loss, motherhood, and finding purpose amid challenges. She highlights everyday joys, her book Resilience and Purpose, and myths about blindness, while emphasizing community support, inclusive design, and authentic representation. Her narrative shows resilience emerging from life's difficulties through empathy and connection.Bullet points of key topics & timestamps:00:00 – Introduction 04:31 – Diagnosis and Living With Cone Rod Dystrophy09:52 – Misconceptions About Blindness and Representation15:18 – Becoming the Accidental Influencer and Building Community19:48 – From Speaking Contest to TEDx Stage23:26 – Motherhood, Compassion, and Raising Kind Kids26:03 – Writing the Book: Grief, Trauma, and Reframing the Past27:38 – Everyday Frustrations in an Inaccessible World30:13 – Safety, Identity, and Moving Through the World With a Cane34:02 – How to Support the Blind and Low Vision CommunitySupporting Our Advocacy Work:⦁ Be a part of the change! Support our advocacy efforts. Bio for Anne Mok:Anne Mok is a blind storyteller, speaker, author, and advocate redefining what it means to lead a purposeful life. Named one of the Top 40 Blind Influencers in 2025, Anne's influence extends far beyond her platform, engaging audiences and creating meaningful change in the blind and visually impaired community. Diagnosed with cone-rod dystrophy, Anne's journey with sight loss led her to embrace advocacy as a way to educate, empower, and create change. Her work aligns with Bold Blind Beauty's mission of promoting Access, Inclusion, and Representation (A.I.R.)™, ensuring that blind and visually impaired individuals thrive in their passions and claim equal representation in every aspect of life. Anne uses her platform to educate, advocate, and empower others. Through social media and public speaking, she raises awareness about accessibility and inclusivity, sharing heartfelt stories and practical tools that inspire others to turn adversity into purpose. Connecting with Anne:● Instagram: @purposeinview● Website: www.purposeinview.com● LinkedIn: @annemokpurposeinview● TEDx Talk: Blind Sighted | Anne Mok | TEDx SFU● Book: Resilience and Purpose: Discovering Strength and Connection in Life's CracksConnect with Bold Blind Beauty to learn more about our advocacy: Join our Instagram community @BoldBlindBeauty Subscribe to our YouTube channel @BoldBlindBeauty Check out our website www.boldblindbeauty.com Music Credit: "Ambient Uplifting Harmonic Happy" By Panda-x-music https://audiojungle.net/item/ambient-uplifting-harmonic-happy/46309958Thanks for listening!❤️
There's a rare kind of grace that comes from living with something that tries to take everything from you. Nicole Pedra knows that grace well. Diagnosed with multiple sclerosis, she's learned that gratitude isn't just a feeling—it's a practice. A model, actress, and fierce advocate, Nicole has turned what could have been a closed door into an open invitation for others to find strength in vulnerability. Now, as one of the main cast members in ‘Because I Can', she's sharing her story so others might find pieces of their own strength reflected within it. Because when gratitude becomes your lens, even the hardest days hold their own kind of beauty.Featured in 'The Gratitude Edition' of AwareNow Magazine: www.awarenowmagazine.comGuest: Nicole PedraHost: Allié McGuireMusic by: Jupiter SandsProduced by: AwareNow Media
You can make a tax deductible donation here: https://me-onefoundation.networkforgood.com/projects/37321-keeping-life-s-scoreboard-at-cancer-zero-me-one. If every subscriber donated ONE DOLLAR you could fund this wonderful organization for an entire year! Finding Hope & Healing: The Me-One Foundation & Camp Wieser with Erica Pope & John Burke Join us for an inspiring conversation with Erica Pope, Executive Director of the Me-One Foundation, and John Burke, Camp Director of Camp Wieser. They'll share the mission of this incredible nonprofit, which provides a cost-free retreat for adult cancer patients and their families, offering a weekend filled with joy, support, and unforgettable memories. We'll explore the history of Camp Wieser and how it came to be, the Me-One Foundation's mission to ease the burden of cancer through laughter, courage, and hope, John Burke's personal cancer journey and how he became the heart of Camp Wieser as Camp Director, and how you can support and get involved to help keep Camp Wieser completely free for families facing cancer. You can watch what Camp Wieser is all about here: https://youtu.be/SFDX2UbZ6Fk?feature=shared Learn more about the Me-One Foundation and their program, Camp Wieser here: https://me-onefoundation.org/ You can donate today to help keep Camp Wieser completely free for all campers here: https://me-onefoundation.networkforgood.com/projects/37321-keeping-life-s-scoreboard-at-cancer-zero-me-one. Erica Pope, Executive Director of the Me-One Foundation, leads the all-volunteer organization dedicated to giving adult cancer patients and their families a weekend of rest, connection, and joy at Camp Wieser—all at no cost to the campers. She works to expand the foundation's reach, deepen community engagement, and inspire donors and ambassadors. Erica is an active nonprofit leader, serving on the board of the Association of Fundraising Professionals California Capital Chapter and participating in the Rocklin Leadership cohort. John Burke, Camp Wieser's longtime Camp Director, has guided the retreat for over 14 years. A cancer survivor and former three-time camper, he brings personal insight and empathy to every aspect of the experience. John's background in event planning and marketing—including seven years with Disney—supports his leadership on the Me-One board, where he represents the patient perspective. His dedication helped move the camp to its current home in the Santa Cruz Mountains, ensuring comfort, privacy, and a healing environment for families. Diagnosed with stage IV pancreatic cancer in 2006, John attended the very first camp—an experience that brought his family hope and connection during an overwhelming time. Now preparing for his 17th camp, he remains committed to creating a space where others can find the same relief, renewal, and strength he found years ago. Please share this episode to help spread the mission of Me-One and Camp Wieser. Follow them on social media: https://www.instagram.com/meone_foundation/ https://www.facebook.com/meonefoundation
Get your FREE copy of "Your A-Z Guide to Staying Cancer Free" here: https://dramycancer.com/azcancerfree When you first hear the words "You have cancer" your entire world tilts — but the very next steps you take can shape your outcome in a powerful way. Most people feel terrified, rushed, and completely overwhelmed. But you deserve clarity, confidence, and a plan you can trust. In this episode, I'm breaking down the essential mindset shifts and immediate actions that help you regain control after a cancer diagnosis — so you can move forward with strength instead of fear. You'll learn what truly matters in those early days, what not to waste your energy on, and the powerful choices that put YOU back in the driver's seat of your recovery. So let me show you how it's done. Join the Cancer Freedom Program Apply HERE: https://www.cancerfreedomprogram.com/?utm_source=podcast&utm_content=cancer_freedom_podcast #cancerfighter #cancersurvivor #breastcancer #breastcancersurvivors #cancerrecovery #cancernutrition #mastectomy #tamoxifen #anastrozole #letrozole #exemestane PS - Whenever you're ready, here are the 2 best ways I can help you… "Your A-Z Guide to Staying Cancer Free" – FREE Click HERE https://dramycancer.com/azcancerfree Join the Cancer Freedom Program Apply HERE: https://www.cancerfreedomprogram.com/?utm_source=podcast&utm_content=cancer_freedom_podcast Let's Connect: Website: https://www.cancerfreedomprogram.com/?utm_source=podcast&utm_content=cancer_freedom_podcast Instagram: https://www.instagram.com/dramymorris/
Today's guest is Derek, an educator at heart whose life journey—rooted in autism, ADHD, and dyslexia—has been shaped by a lifelong quest to transform confusion into clarity. Diagnosed at age 50, he finally gained the language, belonging, and understanding that helped him make sense of decades of feeling “different.” That clarity became his calling.Professionally, Derek's path spans the trades, automotive manufacturing, entrepreneurship, process engineering, and ultimately talent development—where he became the architect behind Amazon's highest-rated employee training program, earning an extraordinary 92 NPS and 4.92/5 rating.Today, he is the visionary behind Human-First AI, including his book, Human First AI, which lays out a powerful and accessible blueprint for building AI systems that augment humanity rather than replace it. His company, Practical AI, builds tools like Pocket Mentor, offering voice-based, just-in-time support so no one ever feels stuck, judged, or alone again.This episode explores what it really means to unlock neurodiverse brilliance—and how empathy and human-centered AI can change the way we learn, collaborate, and lead.
We're joined by women's health advocate and author Leslie Ferris Yerger, founder & CEO of My Density Matters. Diagnosed with stage IV breast cancer just two months after a “clear” mammogram and ultrasound, Leslie uncovers how dense breast tissue can hide cancer, why current screening standards fail many women, and what you can do to protect yourself.Leslie's mission: make sure her story doesn't become someone else's. Her nonprofit empowers women to check their breast density, ask the right questions, and push for additional screening when needed.✅ Listen to learn:What breast density is — and why it mattersHow dense tissue affects mammogram accuracyWhen to ask for MRI or advanced imagingPatient advocacy: how and when to push your doctorReal steps you can take todayChapters:00:00 – Intro & background01:17 – Clear mammogram → diagnosis journey05:13 – Why dense breast tissue matters12:58 – Understanding density categories & reports18:47 – What to ask your doctor next22:15 – Insurance, screening access & advocacy26:54 – Leslie's takeaways & how to take actionGuest Bio:Leslie Ferris Yerger is a Tedx speaker, author of Probably Benign, and a women's advocate with a laser focused mission. Leslie was diagnosed with Stage IV breast cancer in November 2017 after an ‘all clear' mammogram and ultrasound, experiencing firsthand the failings of our current breast cancer screening standards. As Founder and CEO of the not-for-profit My Density Matters, Leslie is determined to empower women to find out their breast density, learn their options, and advocate for themselves to get the additional breast cancer screening they need, so that her story doesn't become their story. Leslie lives in Hawthorn Woods, IL with her husband John. She has 3 grown children: Evan, Julia, and Megan.Resources:My Density Matters → https://mydensitymatters.org/Purchase her book “Probably Benign” → https://probablybenign.com/Trigger warning: This episode covers breast cancer and screening challenges.If you found this helpful, please like, subscribe, and share this with the women in your life. Your next mammogram might just end up different.#BreastCancer #BreastDensity #WomenHealth #PatientAdvocacy #ScreeningFailureEnjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
About a decade ago, Dr. Jackie Meyer hit a wall of exhaustion running her CPA firm, but she refused to hide behind the industry's mask of perfection. Diagnosed with chronic fatigue and juggling motherhood and her work responsibilities, she began to question the relentless pace and the culture of stoicism that define the profession. On her return to The Unique CPA for Episode 239, she explains that instead of retreating, she transformed her struggle into a mission: she built TaxPlanIQ, a platform that lets accountants reclaim their time and sanity, and developed the ROI Method, a value pricing formula now championed by the AICPA. Since then, she's completed her doctorate in leadership and written a forthcoming book, The Balanced Millionaire. Jackie's journey, from iron infusions and late-night epiphanies to a much healthier, sustainable pace now, offers a candid look at what it takes to change not just a career, but an entire profession. Get the full show notes and more resources at TheUniqueCPA.com
At just 28 years old, Rachel Smith is preparing to make history. Diagnosed with type 1 diabetes before her third birthday, she has never let her condition define her limits. Already having summited the highest peaks in South America, Africa, and Australia, Rachel now sets her sights on Mount Vinson, Antarctica's highest peak at 4,892m.In this conversation with host Eoin Walker, Rachel shares her remarkable journey:Growing up as the first child in Northern Ireland to use an insulin pumpHow evolving technology has supported her ambitions in medicine and mountaineeringThe unique physiological challenges of managing diabetes at high altitude and in extreme coldThe balance between risk, resilience, and pushing human potentialHer partnership with Breakthrough T1D and the importance of raising awarenessThis is a story of grit, adaptability, and proving that chronic conditions don't have to hold you back from extraordinary goals.Learn about Rachel and follow her journey here.Find out more about Breakthrough T1D.
In this episode, I sit down with the brilliant Hannah Wallace — TEDx speaker, writer, disability advocate and host of the Finding Grace podcast — for a deeply human conversation about meeting life's hardest moments with honesty, hope and courage. Hannah's story is extraordinary. Diagnosed with Ehlers–Danlos and now living with Parkinson's, she has had to rebuild her life again and again. And yet what shines through in her is not just resilience, but a profound sense of grace, humour and grounded strength. We talk about: • What it means to live in a body that doesn't follow the rules • How to keep hold of identity when life forces you to change • The role of spirituality, self-trust and community in healing • Grief, acceptance and finding meaning through uncertainty • How to navigate the medical system when you feel unheard • Why slowing down can be its own kind of power Hannah has become known for her ability to tell the truth about suffering while holding onto hope — a rare combination that makes this episode so moving, uplifting and real. If you've ever faced a diagnosis, a life change, or a season where everything felt hard, this conversation is for you. Listen, subscribe and leave a review if this episode speaks to you. It helps more people find the show and helps us keep these important conversations going. You can find Hannah here: https://www.instagram.com/thehannahwallace/ https://podcasts.apple.com/gb/podcast/finding-grace/id1441430338 https://substack.com/@hannahwallace
This episode is for anyone who's ever felt like their brain is working against them, who's tired of pretending everything is fine when it's not, or who needs to hear that surviving the day is enough.Most people don't understand what it's like when your brain is wired differently. They don't get the exhaustion of fighting yourself every single day just to do basic things. Sebbzzy knows that fight intimately.Diagnosed with ADHD and Tourette syndrome at six years old, Sebbzzy spent his childhood being medicated and told something was wrong with him. His stepfather constantly corrected his tics, giving him negative attention that destroyed his self-confidence. The result was that he learned to camouflage his tics by mimicking normal behaviors like coughing when others coughed. He described Tourette's as an itch in your whole body that you have to release through movement or sound. The compulsive thinking that came with it meant doing things in specific patterns or numbers.Then depression hit five years before our interview. Not the kind of sadness people think of when they hear the word depression. The kind that steals your ability to feel anything genuine. Sebbzzy talked about laughing as a reflex rather than a real emotion. About smiling at the "right" times to appear normal. About the complete disconnect from positive emotions while negative thought patterns run on repeat.The fatigue is what he hates most. Not physical tiredness but the mental wall between him and everything he wants to do. He compared it to having a barrier between himself and his goals even though nothing is physically stopping him. He loves being active, playing guitar, working out and improving himself. But depression doesn't care what you love. Some days you just can't do it.Add anxiety to that mix and you get physical symptoms that mimic serious illness. Sebbzzy described waking up after barely sleeping, feeling aches all over his body and having trouble breathing. He thought he had COVID. It was anxiety. The conditions feed each other in a brutal cycle. Anxiety triggers his Tourette's tics. Depression makes his ADHD worse. The ADHD makes it harder to maintain routines that help with depression.He refused professional help for years because he wanted to fix his own problems. He's an overthinker who can usually figure out what he needs to do. The problem was, he couldn't stay consistent. When things crashed again after years of barely functioning, his mother encouraged him to get help. He finally agreed, partly because Norway's healthcare system provides free treatment for serious depression and anxiety. Having a diagnosis on paper also gives you certain rights and protections.His advice for getting unstuck is brutally practical - take small steps. Get a haircut. Take a shower. Do something that makes you feel like you're taking care of yourself. It won't cure anything but it creates momentum. He uses a rubber band on his wrist to snap himself out of negative thinking. He forces himself to do physical activity even when depression makes everything feel impossible.The biggest misconception he wants to destroy is that you can just think yourself healthy. ..That depression is a choice or a mindset problem. You can use positive thinking and good habits to manage symptoms but you can't think away chemical changes in your brain. You can't willpower your way out of neurological conditions.https://www.tacosfallapart.com/podcast-live-show/podcast-guests/sebbzzySebbzzy was 19 when we talked. He'd been fighting these conditions for most of his life. He wasn't cured. He wasn't "better." He was surviving and that's enough.
Sponsored by Squarespace: Check out squarespace.com for a free trial, and when you're ready to launch use offer code: DYP to save 10% off your first purchase of a website or domain. In this inspiring episode of Discover Your Potential, we sit down with Jose Flores, a world renowned motivational speaker, bestselling author, and mindset disruptor who has dedicated his life to helping people push past excuses and rise above their limitations. Diagnosed at a young age with a neuromuscular condition that affects his mobility, Jose refused to let adversity define his future. Instead, he transformed his challenges into fuel for greatness. Today, he travels the world teaching audiences how to cultivate mental toughness, activate purpose, and unlock the power of a resilient mindset. In this conversation, Jose shares• how mindset shapes momentum• why adversity can become your greatest advantage• what it means to lead with purpose instead of limitation• practical steps to build confidence and self-belief• how to rise above circumstances and create your own path forward This is an episode for anyone facing obstacles, self doubt, or a desire to step into the best version of themselves. Jose's story reminds us all that our potential becomes limitless when we choose courage over fear. Website: https://joseinspires.comInstagram: https://instagram.com/joseinspiresFacebook: https://facebook.com/JoseInspiresYouTube: https://www.youtube.com/@JoseInspiresLinkedIn: https://www.linkedin.com/in/joseinspiresBooks: https://joseinspires.com/books #JoseFlores #JoseInspires #DiscoverYourPotential #RisingAboveLimits #MotivationalSpeaker #Inspiration #MindsetShift #MindsetMatters #OvercomingAdversity #ResilientMindset #PurposeDriven #LimitlessPotential #SuccessMindset #StrengthInStruggle #PersonalGrowth #NeverGiveUp #RiseAbove #Empowerment #DisabilityAdvocacy #InspiringStories #PodcastInterview #SquarespacePartner #SquarespaceSponsor
Keywords: disability, business, freelance writing, health challenges, entrepreneurship, personal growth, autoimmune conditions, writing career, self-employment, community support, entrepreneurship, disability, delegation, scheduling, business success, coaching, service-based business, profit psychology, value, nonprofit Summary: In this conversation, Maria Chapman shares her transformative journey from being a teacher to a freelance writer after facing significant health challenges. Diagnosed with CIDP and myasthenia gravis, she navigated the complexities of disability while building a writing career. Maria emphasizes the importance of valuing one's skills, seeking community support, and the necessity of collaboration in entrepreneurship. Her story highlights resilience, adaptability, and the power of pursuing one's passion despite obstacles. In this conversation, Maria Chapman and Mitch Beinhaker discuss the journey of entrepreneurship, particularly focusing on the challenges and strategies for disabled entrepreneurs. They emphasize the importance of finding one's unique strengths, the necessity of delegation, and the significance of scheduling life around priorities. They also explore the dynamics of service-based businesses, the psychology of profit, and the value of recognizing one's worth in the business landscape. The discussion highlights the role of nonprofits in supporting disabled individuals in their entrepreneurial endeavors and the life lessons learned through the entrepreneurial process. Takeaways Maria Chapman shares her journey from teaching to freelance writing. She faced significant health challenges that led to her diagnosis of CIDP and myasthenia gravis. Transitioning to freelance writing allowed her to adapt to her new circumstances. Maria emphasizes the importance of valuing one's skills and charging appropriately for services. She highlights the role of community and support in her entrepreneurial journey. Freelance writing provided a flexible work environment for her health needs. Maria's first writing job was for a parenting blog, which helped her gain confidence. She learned SEO and other skills to enhance her writing business. Collaboration with others has been crucial for her success as a writer. Maria encourages others to seek help and not try to do everything alone. Find your genius and leverage it in business. Delegation is crucial for success, especially for those with disabilities. Scheduling priorities can lead to better work-life balance. Service-based businesses are often more manageable for disabled entrepreneurs. Understanding the psychology of money can motivate better business decisions. It's important to take profits from your business, not just reinvest everything. Valuing your work is essential for sustainable business growth. Nonprofits can play a vital role in supporting disabled entrepreneurs. Life lessons from entrepreneurship can apply to personal growth. Good conversations can lead to valuable insights and connections. Titles From Teacher to Writer: Maria Chapman's Journey Overcoming Health Challenges in Business Sound Bites "I'm a paranoid attorney." "Find your genius." "Money is psychological." Chapters 00:00 Introduction and Background 01:32 Health Challenges and Diagnosis 06:47 Transitioning to Freelance Writing 12:36 Building a Writing Business 17:06 First Clients and Growth 21:30 Learning and Collaboration 27:52 The Importance of Community and Support 30:03 Finding Your Genius 31:22 The Importance of Delegation 32:27 Scheduling for Success 39:18 Supporting Disabled Entrepreneurs 48:05 Service-Based Business Strategies 49:35 The Psychology of Profit 54:16 Valuing Your Work 56:24 Life Lessons from Entrepreneurship
Two-time Emmy and Three-time NAACP Image Award-winning, television Executive Producer Rushion McDonald interviewed Senita M. Hill. Purpose of the Interview To spotlight Peace on Patuxent Incorporated, a nonprofit founded by Sunita M. Hill. To discuss the challenges women face when diagnosed with cancer and how the organization provides sanctuaries for peace, clarity, and empowerment. To inspire entrepreneurs and individuals to prioritize wellness and community support. Key Takeaways About Peace on Patuxent Located in Prince George’s County, Maryland. Offers two-day retreats for women diagnosed with life-leveling cancers. Provides limousine pickup, red carpet welcome, prepared meals, and activities focused on stillness. Launching virtual sessions nationwide in January to reach women who cannot attend in person. Life-Leveling Cancer Defined as any cancer diagnosis that disrupts life and forces major changes. Emphasizes the emotional and psychological impact beyond physical illness. Senita’s Personal Journey Inspired by her mother’s battle with lung cancer to create a space for women to pause and regain control. Empowerment Through Pause Women often feel they have choices, but treatment paths are usually predetermined. Peace on Patuxent offers a moment of stillness to reflect and make informed decisions. Community and Cultural Impact Addresses stigma in African American and ethnic communities around illness. Encourages open conversations and sharing of resources. Access and Application Apply via peaceonpatuxent.org. Requirements: Over 18, healthy enough to be independent, ideally within two years post-diagnosis. Notable Quotes “Every woman should allow herself the opportunity to come to peace.” “She matters—not just as a patient, but as a mother, daughter, coworker, and friend.” “When you hear the word cancer, it changes your life. It’s life-leveling.” “We’re not here to tell you how to run your journey. We’re here to allow you to pause your mind.” “The only way you’ll know your options is if you come out and have the conversation.” #SHMS #STRAW #BESTSupport the show: https://www.steveharveyfm.com/See omnystudio.com/listener for privacy information.
Two-time Emmy and Three-time NAACP Image Award-winning, television Executive Producer Rushion McDonald interviewed Senita M. Hill. Purpose of the Interview To spotlight Peace on Patuxent Incorporated, a nonprofit founded by Sunita M. Hill. To discuss the challenges women face when diagnosed with cancer and how the organization provides sanctuaries for peace, clarity, and empowerment. To inspire entrepreneurs and individuals to prioritize wellness and community support. Key Takeaways About Peace on Patuxent Located in Prince George’s County, Maryland. Offers two-day retreats for women diagnosed with life-leveling cancers. Provides limousine pickup, red carpet welcome, prepared meals, and activities focused on stillness. Launching virtual sessions nationwide in January to reach women who cannot attend in person. Life-Leveling Cancer Defined as any cancer diagnosis that disrupts life and forces major changes. Emphasizes the emotional and psychological impact beyond physical illness. Senita’s Personal Journey Inspired by her mother’s battle with lung cancer to create a space for women to pause and regain control. Empowerment Through Pause Women often feel they have choices, but treatment paths are usually predetermined. Peace on Patuxent offers a moment of stillness to reflect and make informed decisions. Community and Cultural Impact Addresses stigma in African American and ethnic communities around illness. Encourages open conversations and sharing of resources. Access and Application Apply via peaceonpatuxent.org. Requirements: Over 18, healthy enough to be independent, ideally within two years post-diagnosis. Notable Quotes “Every woman should allow herself the opportunity to come to peace.” “She matters—not just as a patient, but as a mother, daughter, coworker, and friend.” “When you hear the word cancer, it changes your life. It’s life-leveling.” “We’re not here to tell you how to run your journey. We’re here to allow you to pause your mind.” “The only way you’ll know your options is if you come out and have the conversation.” #SHMS #STRAW #BESTSee omnystudio.com/listener for privacy information.
Two-time Emmy and Three-time NAACP Image Award-winning, television Executive Producer Rushion McDonald interviewed Senita M. Hill. Purpose of the Interview To spotlight Peace on Patuxent Incorporated, a nonprofit founded by Sunita M. Hill. To discuss the challenges women face when diagnosed with cancer and how the organization provides sanctuaries for peace, clarity, and empowerment. To inspire entrepreneurs and individuals to prioritize wellness and community support. Key Takeaways About Peace on Patuxent Located in Prince George’s County, Maryland. Offers two-day retreats for women diagnosed with life-leveling cancers. Provides limousine pickup, red carpet welcome, prepared meals, and activities focused on stillness. Launching virtual sessions nationwide in January to reach women who cannot attend in person. Life-Leveling Cancer Defined as any cancer diagnosis that disrupts life and forces major changes. Emphasizes the emotional and psychological impact beyond physical illness. Senita’s Personal Journey Inspired by her mother’s battle with lung cancer to create a space for women to pause and regain control. Empowerment Through Pause Women often feel they have choices, but treatment paths are usually predetermined. Peace on Patuxent offers a moment of stillness to reflect and make informed decisions. Community and Cultural Impact Addresses stigma in African American and ethnic communities around illness. Encourages open conversations and sharing of resources. Access and Application Apply via peaceonpatuxent.org. Requirements: Over 18, healthy enough to be independent, ideally within two years post-diagnosis. Notable Quotes “Every woman should allow herself the opportunity to come to peace.” “She matters—not just as a patient, but as a mother, daughter, coworker, and friend.” “When you hear the word cancer, it changes your life. It’s life-leveling.” “We’re not here to tell you how to run your journey. We’re here to allow you to pause your mind.” “The only way you’ll know your options is if you come out and have the conversation.” #SHMS #STRAW #BESTSteve Harvey Morning Show Online: http://www.steveharveyfm.com/See omnystudio.com/listener for privacy information.
After noticing that their 20 month old son Jacob was wobbling while walking and had fallen to the ground in February of 2024 , Jocelyn Espinoza and Samuel Steward, took their son first to a doctor in Tijuana Mexico, and shortly thereafter to Rady's Children's Hospital in San Diego where he was diagnosed with the Pediatric Brain Cancer ATRT. It has been over a year and a half since Jacob's diagnosis, and he is currently doing very well and living the life of a very active 3 1/2 year old boy.
In episode 45 of “World of Wishes”, we chat with wish alum Courtney Priede, whose journey from chronic illness to a life-changing adventure will leave you inspired. Diagnosed with ulcerative colitis at just 12 years old, Courtney endured years of hospital stays, surgeries, and emotional challenges during some of the most formative years of her life. But through it all, she held onto hope—and when her doctor referred her to Make-A-Wish, Courtney dared to dream big. Courtney shares how she wished for an unforgettable family trip to Australia, where she swam in the Great Barrier Reef, explored the Outback, and rediscovered joy with her loved ones. Now more than a decade later, she reflects on the lasting impact of that experience, the strength it gave her, and why she continues to give back as a passionate ambassador for Make-A-Wish. This is a story of resilience and the impact of a wish fulfilled. With touching stories, raw emotion, and a genuine heart for service, Alex reveals why she calls Make-A-Wish “her baby”—and how each wish leaves a lasting mark not just on the lives of the children, but on hers as well. Learn more about how can get involved at https://wish.org/sfla!Be sure to follow us @makeawishsfla on Instagram, Facebook, YouTube, Twitter, TikTok, and LinkedIn!Subscribe, Rate, & Review this podcast to support future episodes that will feature wish kids and parents' past and present, volunteers, donors, referral sources and everyone who contributes to this World of Wishes!
Episode 143 - Diagnosed with Alzheimer's 18 years ago, Jim Mann has dedicated his life to reducing the stigma and discrimination associated with Dementia. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
When we protect the pace of childhood, everyone in the family heals. In this illuminating conversation, Dr. Natasha Beck—also known as Dr. Organic Mommy—shares how slowing down, simplifying, and removing hidden toxins from our homes can transform not just our kids' health, but our own. Diagnosed as a child with ADHD and dyslexia, Dr. Beck eventually uncovered how diet, environment, and overstimulation were shaping her well-being. Now a pediatric neuropsychologist, she helps families create calmer, more connected lives through practical changes—like her two-week “fragrance-free” challenge that has surprised even the most skeptical parents. (Follow her work on Instagram, Substack, and her podcast When Millennials Become Moms.) From food choices and slow tech habits to the Waldorf philosophy and her “Three S's” framework—sleep, sugar, and screens—Dr. Beck and Ginny Yurich explore how a developmentally appropriate childhood actually restores balance for parents too. This episode is both practical and freeing, showing that you don't need to overhaul your life overnight. One slow evening, one home-cooked meal, one outdoor day at a time—those small shifts might be the self-care your whole family has been missing. Learn more about your ad choices. Visit megaphone.fm/adchoices
"My baby went from fussy to lifeless in hours—by the time we reached the PICU, they said he might have had six hours to live." In this episode, TikTok Influencer and Medical Mom Marlee Brandon, a pediatric speech-language pathologist turned full-time mom, shares the whirlwind diagnosis of her 12-month-old son Bain with Type 1 diabetes and severe DKA, the traumatic hospital stay, and the everyday advocacy that followed. Raw, practical, and deeply hopeful. Why this episode matters Emotional clarity: what a Type 1 diagnosis really feels like in infancy Practical advocacy: scripts, choices, and language that help toddlers cope System gaps: when even major hospitals say "we've never seen this in a baby" Hope forward: raising a confident kid who knows why care matters What You'll Learn Early signs & ER visit: how "ear infection" symptoms masked T1D in a baby DKA in plain language: what "acidic blood" means and how PICU treats it The learning cliff: carb ratios, breastfeeding while dosing insulin, and why it's OK not to "get it" on day one Toddler coping: give choices, narrate care, build independence Rebuilding trust after mistakes: when training/tools aren't perfect Finding your people: groups, podcasts, and creators who answer "what now?" Timestamps 00:00 Meet Marlee (pediatric SLP → motherhood) 01:40 Why speech therapy & pediatrics 03:55 Bain turns one → sudden "ear infection" → nonstop vomiting 06:30 Small-town ER: "He has diabetes" (dismantling stereotypes) 08:35 Life-flight & PICU: severe DKA, hourly sticks, no food for 48 hrs 10:20 Turning the corner: energy returns; the six-hour window 11:22 "I don't understand this"—carb ratios, nursing, overwhelm 13:05 "We've never seen this in a baby" at a major children's hospital 15:23 Tears → handing tasks to partner → first solo shot 17:20 The Chick-fil-A moment: necessity builds confidence 18:44 Finding community: Facebook groups, YouTube, TikTok 19:55 Narrating care for toddlers—SLP tools that build trust & language 21:19 Offering choices: stickers, shot sites, pushing the button 22:53 Caregiver reality: self-care with very young T1D 24:32 Why daycare felt unsafe: syringe mix-ups & trust 25:54 Joy check: rocks, crafts, and a kid excited by everything 27:56 Best resources for newly diagnosed families 29:52 "Diabetes doesn't define your life." Marlee Shares that... "Type 1 isn't about weight or diet—my baby was still nursing." "They told my husband he probably had six hours to live." "I thought I needed nursing school to understand our endo." "I won't chase him with a shot. I explain why—insulin keeps you safe." "You can be anything and do anything…and have diabetes." Resources & Links Support communities Diapers & Diabetes (Facebook group for infants/toddlers with T1D) Juicebox Podcast Related Child Life On Call resources Explaining shots, blood draws and vaccines to kids SupportSpot App (by Child Life On Call) Procedure guides, coping plans, journals, and parent resources to feel prepared and advocate with confidence
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Endometriosis is a painful disease that occurs when endometrium-like tissue grows outside of the uterus. It's extremely common—if you have a uterus, you have a 1 in 10 chance of getting it. Yet, it takes seven years on average to receive a formal diagnosis. What does the latest science tell us about the biology of the condition and how to treat it? And why do so many people have such a difficult time getting diagnosed? Host Flora Lichtman is joined by endometriosis researcher and patient Linda Griffith to answer those questions and more. Guest: Dr. Linda Griffith is a biological engineer and Scientific Director of The MIT Center for Gynepathology Research.Transcripts for each episode are available within 1-3 days at sciencefriday.com. Subscribe to this podcast. Plus, to stay updated on all things science, sign up for Science Friday's newsletters.