MPN Voices Out Loud

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MPN Voices Out Loud is a podcast series focused on educating and supporting the myeloproliferative neoplasm (MPN) community. Listen for interviews with people living with MPNs, discussions with Healthcare Professionals, and other interesting content for anyone who wants to learn more about MPNs. To learn more, visit MPN Voices Out Loud.

Sponsored by Incyte Corporation


    • Sep 23, 2022 LATEST EPISODE
    • infrequent NEW EPISODES
    • 26m AVG DURATION
    • 8 EPISODES
    • 1 SEASONS


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    Latest episodes from MPN Voices Out Loud

    Patient and Caregiver Perspectives: Managing MPNs Together

    Play Episode Listen Later Sep 23, 2022 19:11


    Hear how caregivers can help patients affected by myeloproliferative neoplasms (MPNs) get the care they need by communicating the impact of MPN symptoms to Healthcare Professionals. Special guest actor, director, and health advocate LeVar Burton shares insights from Jeff and Summer as they work together to manage Summer's myelofibrosis (MF). Caregivers Nancy, Tom, and John reveal tips for taking care of their loved ones—and themselves.· Download communication workbooks for patients and caregivers at MPNPodcast.com

    Why FINE Is Not Enough When Speaking About the Impact of Your MPN Symptoms

    Play Episode Listen Later May 17, 2022 27:56


    Listen to patients impacted by myeloproliferative neoplasms (MPNs) discuss the importance of speaking up and spelling out how their MPNs affect them. Understand why saying they were “fine” was not enough for their MPN journeys. Tune in to discover patient stories, real life experiences, and useful tips to have informed conversations with your Healthcare Professional.Get the FINE Communication Workbook at fineisnotenough.com 

    LeVar Burton: MPN Self-Advocacy and Prioritizing Your Health

    Play Episode Listen Later Dec 23, 2021 33:18


    Tune in as actor, director, and health advocate LeVar Burton explores the importance of prioritizing your own health when living with the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs). Burton is joined by Kathryn and Andrea, two MPN patients, as they reveal that the best way to manage progressive diseases like MPNs is through consistent visits with Healthcare Professionals. Hear them share how open, honest communication with their healthcare teams helps them get the care they need. Also hear from MPN Peers Kathy, Dave, and Marilyn. Listen as they talk about the support and inspiration they get by connecting with others in the MPN community through the Voices of MPN® CHAMPN Connections program. Register now for MPN information, resources, and support 

    The Importance of Communication for People with MPNs

    Play Episode Listen Later Sep 22, 2021 31:39


    Listen to a Healthcare Professional, Incyte Oncology Clinical Nurse Educators, and patients discuss the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs) and why informed conversations are important for proper patient care. Learn that when patients tell their MPN healthcare team how their condition affects their lives, they help ensure they get the care and support they need. Hear about telehealth and how regular check-ins are key for people with MPNs. Hear conversation tips to use at healthcare appointments and find out how being specific about your MPN experience can lead to more informed discussions.Register now for useful MPN information and resources

    Matt & Josh: An MPN peer-to-peer discussion

    Play Episode Play 15 sec Highlight Listen Later Jan 12, 2021 24:20


    For people living with a myeloproliferative neoplasm (MPN), such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF), it is not uncommon to sometimes feel alone on the MPN journey. That’s because MPNs are considered rare diseases. Connecting with an MPN peer to share information, insights, and experiences may help reinforce that you’re part of a greater community—and that you’re not alone on your journey. Hear from Matt and Josh, two members of the MPN Community who recently had the opportunity to connect with each other through CHAMPN Connections, a peer-to-peer program that provides MPN patients and caregivers with the opportunity to connect one-on-one with a peer who shares a similar experience.Listen as these two individuals connect for the first time and have a conversation about their individual PV journeys, from initial diagnosis and beyond. Find out what they had in common—and how they were able to inform, inspire, and empower each other.Learn how to connect one-on-one with a member of the MPN community by registering for CHAMPN Connections at voicesofmpn.com/connections.The content presented is brought to you by Incyte Corporation. The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.

    Dr. Krisstina Gowin on Living with MPNs

    Play Episode Play 21 sec Highlight Listen Later Aug 14, 2020 26:28 Transcription Available


    Listen to MPN expert Dr. Krisstina Gowin, Assistant professor of medicine in the division of Hematology/Oncology at the university of Arizona Cancer Center, and renowned comic book artist J.G. Jones discuss important topics for those living with an MPN, like the value of education and ways to work with your Healthcare Professional to be an advocate for your health. Dr. Gowin, J.G. Jones, and host, Gina, will also discuss the value of an individualized approach for patients with MPNs.Register now for useful MPN information and resources See the Rare Reflections: MPNs Unmasked series

    Comic Artist J.G. Jones: My MPN Story

    Play Episode Play 19 sec Highlight Listen Later Jul 9, 2020 22:49 Transcription Available


    Listen to renowned comic book artist, J.G. Jones talk about his myeloproliferative neoplasm (MPN) journey and his new portrait series, Rare Reflections: MPNs Unmasked, specifically created to reveal the powerful and personal stories of individuals who are also impacted by an MPN. J.G. is joined by Dr. Krisstina Gowin, an MPN expert who is also an assistant professor of medicine in the division of Hematology/Oncology, at the University of Arizona Cancer Center.See the Rare Reflections: MPNs Unmasked series Register now for useful MPN information and resources The content presented is brought to you by Incyte Corporation. The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.

    Diagnosis, Symptoms, and Living with an MPN

    Play Episode Play 28 sec Highlight Listen Later May 11, 2020 24:43 Transcription Available


    Hear from an MPN expert—plus a group of real MPN patients! Learn about polycythemia vera, myelofibrosis, and essential thrombocythemia—the rare, chronic blood cancers known as myeloproliferative neoplasms, or MPNs. Listen to Andrea Larson from Incyte Corporation talk with Incyte oncology clinical nurse educator Paul Larson about important topics for people living with MPNs, like tracking symptoms to watch for signs of disease progression. Also hear from Wilma, Marilyn, Dave, and other members of the Voices of MPN community who share their own personal MPN experiences.Learn more about tracking your MPN over time Receive resources to help you better understand and promote awareness of MPNs The content presented in this podcast is not medical advice and should not replace a conversation with your Healthcare Professional, who is the best source of medical information about your individual diagnosis and management plan.

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