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Dr. Nikki Maphis didn't just lose a grant. She lost a lifeline. An early-career Alzheimer's researcher driven by her grandmother's diagnosis, Nikki poured years into her work—only to watch it vanish when the NIH's MOSAIC program got axed overnight. Her application wasn't rejected. It was deleted. No feedback. No score. Just gone.In this episode, Oliver Bogler pulls back the curtain on what happens when politics and science collide and promising scientists get crushed in the crossfire. Nikki shares how she's fighting to stay in the field, teaching the next generation, and rewriting her grant for a world where even the word “diversity” can get you blacklisted. The conversation is raw, human, and maddening—a reminder that the real “war on science” doesn't happen in labs. It happens in inboxes.RELATED LINKS:• Dr. Nikki Maphis LinkedIn page• Dr. Nikki Maphis' page at the University of New Mexico• Vanguard News Group coverage• Nature article• PNAS: Contribution of NIH funding to new drug approvals 2010–2016FEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
The Care Advocates is brought to you by the All Home Care Matters Media team and focuses on providing family caregivers and their loved ones with support, resources, and discussion on the issues facing them in the matrix of long-term care. The Care Advocates are honored to welcome, Tony Lynch as guest to the show. About Tony Lynch: Tony Lynch, men's grief coach, program designer, conference host, host of the grief let's talk about it podcast, co-host of The connectwork, graphic novelist, editor in chief of Grief Talk magazine, international best seller, guest speaker, and founder of the non-profit Memories of Us Ltd/The Global Grief Network.
Episode 119 - Neal Shaw shares his caregiving journey and how it inspired innovative solutions to support families and reform America's care system. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
Hello friend, it's Jody Agard. If you're caring for someone else, tonight offers a rare opportunity to care for you. Guided rest, tender compassion, and soft affirmations—designed especially for caregivers who often forget themselves. Self-care isn't optional—it's essential So tuck in, breathe deeply, and let this be your restorative pause. Xo Jody Learn more about your ad choices. Visit megaphone.fm/adchoices
Carla Tardiff has spent 17 years as the CEO of Family Reach, a nonprofit that shouldn't have to exist but absolutely does—because in America, cancer comes with a price tag your insurance doesn't cover.We talk about shame, fear, burnout, Wegmans, Syracuse, celebrity telethons, and the godforsaken reality of choosing between food and treatment. Carla's a lifer in this fight, holding the line between humanity and bureaucracy, between data and decency. She's also sharp as hell, deeply funny, and more purpose-driven than half of Congress on a good day.This episode is about the work no one wants to do, the stuff no one wants to say, and why staying angry might be the only way to stay sane.Come for the laughs. Stay for the rage. And find out why Family Reach is the only adult in the room.RELATED LINKSFamily ReachFinancial Resource CenterCarla on LinkedInMorgridge Foundation ProfileAuthority Magazine InterviewSyracuse University FeatureFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Navigating caregiving can feel overwhelming. This episode introduces Hero Generation, a vital technology platform built for unsung heroes. It truly supports caregivers facing life's toughest transitions. Founded by caregivers and physicians, this innovative technology for caregivers combines real-life insight with clinical expertise. Explore three core pillars designed to ease your journey. First, a powerful collaboration tool simplifies task management. You can easily share responsibilities with family and friends. Next, access expert-led resources, including empathetic AI for tailored information. Furthermore, a vibrant community connects you with others. This combats loneliness and provides much-needed support. Learn how to get organized and find practical guidance. Crucially, you can offload tasks and reduce stress. This comprehensive technology for caregivers helps simplify daily chaos. Therefore, caregivers need robust support, and Hero Generation delivers. Tune in for essential tools and community connection. Ultimately, this technology for caregivers makes life less chaotic. Our Guest: Nicole Beckett One of the founders of HeroGeneration, a Mom, caregiver, and a woman who gets things done. ++++++++++++++++++++++++++ Related episodes: Home Technology: Well Aging for Seniors Simplify Dementia Communication-How MemoryBoard Helps ++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. ++++++++++++++++++++++++++++++++++++++++ Please help us keep our show going by supporting our sponsors. Thank you. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Heartfelt Communication Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ List of the Top 20 Alzheimer's Podcasts via FeedSpot! See where we rank. Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. We'd love to communicate from you! Instagram LinkedIn Facebook Contact Jen at hello@fadingmemoriespodcast.com
Hi Intentional Wellness Warrior! Today, I'm so excited because you get to hear directly from one of our Bold Blueprint moms. I know it's one thing to hear me talk about how this program changes lives, but it's another to hear the real, honest stories of women walking it out in their everyday caregiving journey. Renee is a mom to 4, wife of 11 years and woman of many hats. You will hear WHY she decided to join The Bold Blueprint, HOW she possibly added something to her plate and the transformation that made it all worth it! Moms, if you're listening and realizing you need this kind of shift too, I want to invite you to check out the Bold Blueprint. It's my six-month group coaching program designed to help you reclaim your time, release stress, and rediscover peace in motherhood. You don't have to stay stuck in survival mode—there's a better way. You can learn more and join us at www.theshanwright.com/bold Shalom Shalom, Xx, Shan ……CONNECT…… Are you in burnout or just stressed?? Take the Free QUIZ
You are not alone in your fight. This week, we welcome DK Kang, a martial artist, author, and wellness expert whose life story is a testament to unwavering human resilience.DK's journey is one of perseverance and purpose: He bravely navigated a decade of infertility, profound family losses, job loss, financial hardship, and the emotional isolation of becoming the full-time caregiver for his wife during her battle with breast cancer. He walked through every kind of devastation imaginable—and came out fighting forward.In this powerful episode, DK shares his blueprint for not just surviving, but rebuilding, emphasizing the whole-person approach that saved his life:The Caregiver's Mental Battle: A rare, vulnerable discussion from a male caregiver on the emotional toll of showing up for others when you are personally falling apart.Mindset Metamorphosis: The practical tools he developed (detailed in his book) to shift his thinking, regulate emotion, and rewrite a mental story of survival into one of agency.The Body-Mind Connection: Drawing on his 30+ years in martial arts and experience in pain management, DK shares the science-backed and faith-informed strategies that connect daily movement, nutrition, and purpose to radical mental health.If you are dealing with compounding grief, fatigue, or feel like you are at your limit, this conversation is for you. Learn to feed your mind, fuel your actions, and finally find your fire.Support the showHave a question for the host or guest? Want their freebee? Are you looking to become a guest or show partner? Email Danica at PodcastsByLanci@gmail.com.This show is brought to you by Coming Alive Podcast Production.CRISIS LINE: DIAL 988
The Caregiver's Journal hosted by Lance A. Slatton with Cindy (PT) & Christina (ST) Hardin-Weiss. The Caregiver's Journal is the show where we are sharing the caregiving experiences, stories, and wisdom of family caregivers. Chapter 16 - "Family Caregiver": About Madeline Bastida: My name is Madeline Bastida, but most people call me Maddy. I'm a proud Puerto Rican from New York City, now living in Washington State. I'm a daughter, advocate, and creative soul navigating life while caring for my dad, Fernando, who is living with Alzheimer's. Our journey began when my dad started showing early signs of memory loss, when he lived in Puerto Rico, and everything changed. I felt overwhelmed and alone, unsure of where to turn. But over time, I realized that this wasn't just a diagnosis, it was a chance to connect deeper, love harder, and find purpose through pain. That's why I created my platform to share real, joyful, and honest moments between me and my dad, to remind others they're not alone. From dancing through sundowning episodes to finding peace in small wins, I've made it my mission to advocate for caregivers and those living with dementia or Alzheimer's. I also volunteer for the Alzheimer's Association since they helped me a lot, I want to provide support. and I recently launched a fundraiser and awareness campaign through my Mindful Memory Solutions a website that I just created.
askchapter.org/careblazers Chapter: Chapter and its affiliates are not connected with or endorsed by any government entity or the federal Medicare program. Chapter Advisory, LLC represents Medicare Advantage HMO, PPO, and PFFS organizations and stand alone prescription drug plans that have a Medicare contract. Enrollment depends on the plan's contract renewal. While we have a database of every Medicare plan nationwide and can help you to search among all plans, we have contracts with many but not all plans. As a result, we do not offer every plan available in your area. Currently we represent 50 organizations which offer 18,160 products nationwide. We search and recommend all plans, even those we don't directly offer. You can contact a licensed Chapter agent to find out the number of products available in your specific area. Please contact Medicare.gov, 1-800-Medicare, or your local State Health Insurance Program (SHIP) to get information on all of your options.
This week, after hearing from a client who wishes she would have bought more insurance a decade ago, Diane shares decisions that others have made in the past and now regret it. These people, if they had thought through their decisions before making them, could have ended up with much better outcomes. When planning to provide for ourselves and protect our families, we need to take action. And we need to not skip the small things. The small things in these stories would have made all the difference. We all have a plan for our own future long term care needs. Some will just let things happen and will end up being "put" somewhere. Those who proactively seek solutions end up with much better choices later on. You can view both current and projected costs of home care, assisted living, and nursing home care where you live or plan to live I recommend you use 5% inflation on care as that's what we've seen for three decades. Then schedule a phone or zoom meeting to start designing your plan Then you'll be Prepared for Tomorrow!!!
Northfield Union of Youth Executive Director Kelli Podracky introduces NUY’s new Housing Program Manager Brian Marrison, discusses housing and youth homelessness in Minnesota, and previews upcoming events.
Rich and Danny wish Jackson Browne a happy 77th birthday with the first of two Jackson Browne shows (the second will come sooner than later). Not much else to say about the show, but they think you’ll really like it.
Listen to JCO Global Oncology's Art of Global Oncology article, "Whispers After the Cure: Reflections on Marriage and Malignancy in India” by Dr. Vangipuram Harshil Sai, who is a fourth semester medical student at All India Institute of Medical Sciences. The article is followed by an interview with Harshil Sai and host Dr. Mikkael Sekeres. Sai shares his personal reflection of a visit which transformed into an education in silence, stigma, and the unseen aftermath of survivorship for young women in India. TRANSCRIPT Narrator: Whispers After the Cure: Reflections on Marriage and Malignancy in India, Vangipuram, Harshil Sai A Summer Afternoon and A Story That Stayed The summer break of my fourth semester of medical school offered a fleeting reprieve from the relentless immersion in textbooks and caffeine-fueled study sessions. I had envisioned a few weeks of rest—a pause from the algorithms of diagnosis and the grind of multiple-choice questions that had become my daily rhythm. But one humid afternoon altered that plan. I accompanied my mother—a senior medical oncologist—to her clinic in a Tier 2 city in Southern India. Over the years, I had seen her not just as a clinician but as a quiet force of empathy. She was one of those remarkable physicians who listened not just to symptoms but also to stories. Her practice was rooted in presence, and her calm resilience often made my academic anxieties seem trivial. I settled into a corner chair in the waiting area, where the air was tinged with antiseptic and that uncomfortable waiting room stillness—an alert hush between uncertainty and news. Patients waited in quiet constellations: a man turning the same page of a newspaper, a teenage girl watching her intravenous drip as if it held answers, and a couple clasping hands without meeting eyes. It was in this atmosphere of suspended quiet that Aarthi entered. She was a young woman whose presence was composed yet tentative. Her story would become a quiet inflection point in my understanding of medicine. She was 24 years old, embodying the aspirations tied to a recent engagement. A postgraduate in English literature and a practicing psychologist; she carried herself with a rare blend of intellect, poise, and cultural grace that, in the eyes of many families, made her a deeply desirable bride. Her sari was immaculately draped, her posture measured and calm, yet in the way her fingers intertwined and her eyes briefly lowered, there was a trace of vulnerability—a shadow of the turmoil she carried within. She came alone that day, stepping into the waiting room with a composed demeanor that only hinted at the weight she bore in silence. What began as a day to observe became the beginning of something far more enduring: a glimpse into how healing extends beyond treatment—and how survival, though silent, often speaks the loudest. The Diagnosis That Changed the Wedding The consultation was precipitated by a clinical presentation of persistent neck fullness, low-grade fevers, and drenching night sweats, which had prompted a fine-needle aspiration before her visit. The atmosphere in the room held an implicit gravity, suggesting a moment of significant change. My mother, with her characteristic composure, initiated a diagnostic process with a positron emission tomography-computed tomography and biopsy. As usual, her steady presence provided reassurance amid the uncertainty. A week later, the diagnosis of classic Hodgkin lymphoma, stage IIB, was confirmed. Rapid initiation of ABVD chemotherapy would provide an almost certain pathway to remission and an excellent prognosis. Yet, this clinical assurance did not extend to personal tranquility. Aarthi made a deliberate choice to share the diagnosis with her fiancé—a considerate and empathetic individual from a well-regarded family. Their wedding preparations were already underway with gold reserves secured and a vibrant WhatsApp group of 83 members chronicling the countdown to their big day. Shortly thereafter, a prolonged silence settled, eventually broken by a call from a family member—not the fiancé—indicating that the family had decided to terminate the engagement because of apprehensions about future stability. The union dissolved without public discord, leaving Aarthi to navigate the subsequent journey independently. As expected, 6 months of chemotherapy culminated in a clean scan. Her physical health was restored, but an emotional chasm remained, unrecorded by clinical metrics. Yet beneath that silence was a quiet resilience—a strength that carried her through each cycle of treatment with a resolve as steady as any celebrated elsewhere. The regrowth of her hair prompted a conscious decision to trim it shorter, seemingly an assertion of autonomy. Her discourse on the illness shifted to the third person, suggesting a psychological distancing. Her reactions to inquiries about the terminated engagement were guarded. She would yield only a restrained smile, which intimated a multifaceted emotional response. Her remission was certain, yet the world she stepped back into was layered with quiet hurdles—social, cultural, and unseen—barriers far more intricate than the disease itself. Survivorship Without A Map In the weeks that followed Aarthi's diagnosis, I began to notice a quiet but consistent pattern in the oncology clinic—one that extended beyond medical recovery into the unspoken social aftermath. Among young, unmarried women in India, survivorship often came with a parallel challenge of navigating shifts in how they were perceived, particularly as marriage prospects. In Indian families where marital status is closely tied to stability and future security, a woman with a cancer history, even after complete remission, somehow came to be quietly perceived as less suitable. Proposals that had once moved forward with confidence were paused or reconsidered after disclosure. In some cases, financial discussions came with requests for additional support framed as reassurance rather than rejection. These changes were seldom explicit. Yet, across time, they pointed to a deeper uncertainty—about how survivorship fits into the expectations of traditional life scripts. For women like Aarthi, the narrative shifted toward caution. There were subtle inquiries about reproductive potential or disease recurrence and private deliberations over disclosure during matrimonial discussions, even within educated circles. Meanwhile, my observation of the disparity in how survivorship was interpreted across genders in our country left a profound mark on me. A 31-year-old male investment banker who had recovered from testicular cancer was hailed in local media as a testament to fortitude. Male patients seemed to gain social capital from their cancer journeys. This suggested a cultural framework where female value was quietly reassessed, influencing their post-treatment identity through unstated societal perceptions. Digital Ghosting and the New Untouchability Within the digital landscape of curated profiles and algorithmic matchmaking, the reassessment of female survivorship acquired a new dimension. In one instance, a sustained exchange of text messages ended abruptly following the mention of cancer remission. The final message remained unanswered. This form of silent disengagement—subtle, unspoken, and devoid of confrontation—highlighted how virtual spaces can compound post-treatment vulnerability. Designed to foster connection, these platforms sometimes amplified social distance, introducing a modern form of invisibility. Similar to employment status or religion, a cancer history has become another addition to a checklist used to evaluate compatibility. When Medicine Ends, but Society Does Not Begin As a medical student, I felt a growing discomfort. Our curriculum equips us to manage treatment protocols and survival metrics but rarely prepares us for the intangible burdens that persist after cure. What captures the weight of a canceled engagement? What framework supports the quiet reconstruction of identity after remission? Aarthi's path, echoed by many others, revealed a dissonance that medicine alone could not resolve. The challenge was not solely the illness but the reality that she was now unqualified to return to her normal life. Medicine delivers clean scans and structured follow-up, but social reintegration is less defined. In that space between biological recovery and social acceptance, cancer survivors often stand at the edge of wholeness—clinically well but navigating a quieter uncertainty. A Different Ending Two years later, Aarthi's journey took a quiet turn. At a spiritual retreat in Bengaluru, she met an ear, nose, and throat resident who had lost his father to lung cancer. Their connection, shaped by shared experiences, evolved into a partnership grounded in empathy and mutual respect. They married the following year. Their invitation carried a brief but powerful line: “Cancer Survivor. Love Thriver. Come celebrate both.” Today, they comanage a private hospital in Hyderabad. Aarthi leads psycho-oncology services, whereas her partner performs surgeries. He often notes that her presence brings a calm to the clinic that no medication can replicate. Aarthi's journey continues to guide me as I progress through my medical training, reminding me that cure and closure often follow separate paths. Healing, I have come to understand, extends beyond the clinic. It often unfolds in quieter spaces where scans no longer guide us. The real curriculum in oncology lies not only in staging and response rates but in recognizing the many transitions—social, emotional, and cultural—that survivors must navigate long after treatment has concluded. Social stigma is often a second metastasis—undetectable by imaging but present in tone, hesitation, and traditions that quietly redefine survivorship. For many women of marriageable age, treatment marks not the end of struggle but the start of another kind of uncertainty. These survivors carry wounds that do not bleed. Yet, they persist, navigate, and redefine strength on their own terms. Aarthi's quiet resilience became a point of reckoning for me, not as a medical case, but as a guide. Her story is not one of illness alone, but of dignity quietly reclaimed. “Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.”—Khalil Gibran. Mikkael Sekeres: Welcome back to JCO's Cancer Stories: The Art of Oncology. This ASCO podcast features intimate narratives and perspectives from authors exploring their experiences in oncology. I'm your host, Mikkael Sekeres. I'm professor of medicine and chief of the Division of Hematology at the Sylvester Comprehensive Cancer Center, University of Miami. In oncology, we often focus on treatment and a way to find a cure. But what about the expectations and challenges a patient may face from their diagnosis, and even discrimination, especially in different cultures? Today, we're going to examine that space with Harshil Vangipuram, a medical student from India whose JCO Global Oncology article, "Whispers After the Cure: Reflections on Marriage and Malignancy in India," touches on this complexity after treatment. Harshil, thank you for contributing to JCO Global Oncology and for joining us to discuss your article. Harshil Vangipuram: Thank you for having me, Dr. Sekeres. I was raised by a family of oncologists, my mother being a senior medical oncologist and father a senior radiation oncologist. I had exposure to contrasting worlds, which were resource constrained and a cutting edge technology world. And I have unfulfilled curiosity, and I'm still learning, forming ideals. I also see patients as my teachers, so I think that might be helpful. Mikkael Sekeres: Thank you so much for a little bit of that background. So, tell us a little bit about your journey through life so far. Where were you born and where did you do your education? Harshil Vangipuram: I was born in a state called Gujarat in the western part of India. My father got transferred to the southern part of India, so I did my education there. That's it, yeah. Mikkael Sekeres: Okay. That's enough. You're not that old. You haven't had the sort of training and final job that a lot of us have gone through. So, what about your story as a writer? How did you first get interested in writing, and how long have you been writing reflective or narrative pieces? Harshil Vangipuram: I read some books from Indian authors and from foreign, too. And they actually inspired me how patient care was being seen around globally. I always used to carry a hand note. I used to write what I used to see in the clinical postings here at AIIMS. And actually, journaling started as a stress relief for me, and slowly, after hearing patients' stories, it almost became an obligation to write about them. Mikkael Sekeres: Obligation, you use that word, which is such an interesting one. How did writing become an obligation? What did you feel obliged to do when writing about some of the patients you were seeing for the first time? Harshil Vangipuram: Many of them were having struggles which were not seen by everybody. And I got astonished by their confidence and resilience in those situations. So, I thought that I should write about them so that everybody knows about it. And these social stigmas were never talked by anyone around them. So, I felt that if I could voice them, others might eventually know about them. So, that's pretty much the reason I wrote. Mikkael Sekeres: It's so interesting. The people we meet every single day, particularly in hematology oncology, bring such fascinating backgrounds to us, and they're backgrounds that may be unfamiliar to us. And I think that as doctors and writers, we do often feel obliged to tell their stories from the mountaintops, to let other people in on some of the aspects of life and medical care that they're going through and just how inspiring some of these patients can be. Harshil Vangipuram: Yeah, yeah, very true. Very true. Mikkael Sekeres: You mentioned that your mom is a medical oncologist. What kind of influence did she have on your decision to enter medicine and perhaps your own specialty one day? Harshil Vangipuram: Observing my mother practice influenced a lot, and she taught me that medicine is not only about treating a patient, but also listening to their problems. It may be more present in the room. The textbooks I read didn't capture live experiences. I always thought that stories will stay with people longer than actual survival curves. Writing filled that gap between what I studied and what I felt in the OPD. Mikkael Sekeres: It's a great phrase you just whipped out. Patients' stories will stay with us longer than survival curves. Can you tell us a little bit about where her clinic is located? You said in southern India. Can you describe the types of patients she sees? Harshil Vangipuram: It's a small town called Nellore in Andhra Pradesh state. The patients are, most of the time, from a rural population where decisions are mostly family-driven and there's a tight community surveillance and the stigmas are more overt, too. A few of them can be from urban population also, but they have subtler discriminations towards stigmas. Mikkael Sekeres: Can you explain a little further what you mean by decisions are often family-driven? Harshil Vangipuram: If we take marriage, it is often seen as an alliance between two families that are trying to increase their social value, their economic status, and respect in the society. In arranged marriages, for suppose, it's basically driven between these concepts. Mikkael Sekeres: I don't know if it's too personal to ask, but are your parents in an arranged marriage? Harshil Vangipuram: No, not at all. Mikkael Sekeres: So not all the marriages in the clinic are arranged marriages. Harshil Vangipuram: Yeah. Mikkael Sekeres: You know, when you said that decisions are family-driven, you mentioned that people are in arranged marriages. And I wanted to talk a little bit about the stigma you highlight in your essay. I'll talk about that in a second. I thought you were going to go down a route about medical decisions being family-driven, meaning people have to support their families, and getting medical care is costly and takes time away from work, and that sometimes influences decisions about treating cancer. What examples have you seen of that in shadowing your mom? Harshil Vangipuram: I have seen patients who have Hodgkin's lymphoma, breast cancer, and ovarian cancer, who were in the age of 25 to 35, who were getting married. Many of them actually got their engagements broken. And many of them got rejected at matrimonial apps. Many of them also had been told to increase the dowry that is given actually in the form of financial security. Mikkael Sekeres: In your essay, you describe a woman who is engaged and who has a new diagnosis of Hodgkin lymphoma. Can you talk a little bit about the process of getting engaged and marrying in southern India? Harshil Vangipuram: We have the arranged marriage, love marriage, and hybrid, which is kind of arranged and kind of in love. Mostly, these problems really occur in arranged marriages. In love marriages, we don't see that that often because both are understanding about themselves and their families. And both families actually accept them both. Mikkael Sekeres: What's the process of going through an arranged marriage? What happens? Harshil Vangipuram: It can be through parents, relatives, or any known ones or through peers. We just find a man or woman who has a similar caste, who has a good financial income, and people who are respected by the society. And obviously, both the families should have aligned interests for them to accept the marriage. Mikkael Sekeres: About how often are marriages arranged and how often are they love marriages in southern India where you live? Harshil Vangipuram: Almost 90% of the marriages are arranged here. Mikkael Sekeres: Wow. So, your parents were unusual then for having a love marriage. Harshil Vangipuram: Yeah. Mikkael Sekeres: In your essay, you write, and I'm going to quote you now, "Among young, unmarried women in India, survivorship often came with a parallel challenge of navigating shifts in how they were perceived, particularly as marriage prospects. In Indian families where marital status is closely tied to stability and future security, a woman with a cancer history, even after complete remission, somehow came to be quietly perceived as less suitable." Wow, that's a really moving statement. I'm curious, what stories have you seen where, in your words, women became less suitable as a marriage prospect? Harshil Vangipuram: For women, the most important thing in a marriage is, what do you call, a family honor, fertility, and economic status in the community. So, after a long dose of chemo, many people think that people become infertile. In India, basically, we have many misconceptions and stigmas. So, people obviously think that people who have got cancer can spread it to their children or are infertile and are often excluded out of the society as a marriage prospect. Mikkael Sekeres: Gosh, that must be devastating. Harshil Vangipuram: Yeah. Mikkael Sekeres: Does the same occur for men? So, is it also true that if a man has cancer, that he is perceived as less fertile, or it may be perceived that he can pass the cancer on to children? Harshil Vangipuram: Here, after a man beats cancer, they start to celebrate it, like they have achieved something, and it's not like that for a woman. Mikkael Sekeres: In your essay, you do write about a happy ending for one woman. Can you tell us about that? Harshil Vangipuram: Yeah, a cancer survivor obviously met her true love of life in Bengaluru, who was an ENT resident then. And his father died from lung cancer. So obviously, he knew what it felt to beat cancer. Mikkael Sekeres: Yeah, he'd been through it himself. And the irony, of course, is that most cancer treatments that we give do not lead to infertility, so it's a complete misperception. Harshil Vangipuram: Yeah. Mikkael Sekeres: Tell us about your future. What are the next steps for you in your training and what do you hope to specialize in and practice? Harshil Vangipuram: Actually, I'm working on another paper which involves financial toxicity after treatment and post treatment depression. I think it would be completed in another year. And after that, after my med school is completed, I think I'm going to pursue oncology or hematology as my branch of interest. Mikkael Sekeres: Wonderful. It's thrilling to hear that somebody who is as sensitive to his patients and both their medical needs and their needs outside of medicine will be entering our field. It'll be great to know that you'll be taking care of our future patients. Harshil Vangipuram: The pleasure is all mine, sir. Mikkael Sekeres: Harshil Vangipuram, I want to thank you for choosing JCO Cancer Stories: The Art of Oncology and for submitting your great piece, "Whispers After the Cure: Reflections on Marriage and Malignancy in India" to JCO Global Oncology. To our listeners, if you've enjoyed this episode, consider sharing it with a friend or colleague or leave us a review. Your feedback and support helps us continue to have these important conversations. If you're looking for more episodes, follow our show on Apple, Spotify, or wherever you listen, and explore more from ASCO at asco.org/podcasts. Until next time, this has been Mikkael Sekeres from the Sylvester Cancer Center, University of Miami. Have a good day. The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. Show notes:Like, share and subscribe so you never miss an episode and leave a rating or review. Guest Bio:Dr Vangipuram Harshil Sai is a fourth semester medical student at All India Institute of Medical Sciences. Additional Reading Impact of Gender of the Child on Health Care–Seeking Behavior of Caregivers of Childhood Patients With Cancer: A Mixed-Methods Study | JCO Global Oncology
Episode 118 - Zach Demopoulos shares his caregiving journey, highlighting the corporate struggle, lack of support and vital need for employer resources and family inclusion. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
When her husband was diagnosed with frontotemporal degeneration at just 29, Katie Brandt's life changed overnight. What began as confusion and heartbreak became a lifelong calling to transform how we see, support, and study dementia. Today, Katie is the Director of Caregiver Support Services and Public Relations at the Massachusetts General Hospital Frontotemporal Disorders Unit, and the Founder & CEO of Katie Brandt Advocacy. In this conversation, we talk about what it means to become a “caregiver detective”, the quiet observer, the record keeper, the advocate who pieces together the truth when something feels off. We explore how early and accurate diagnosis brings dignity, how research becomes more human when it includes caregiver voices, and why supporting caregivers isn't just compassionate, it's strategic. Katie shares the lessons she's learned through love, loss, and leadership, and how her belief that “love will end FTD” continues to guide her work and the families she serves. To buys tickets and learn more about A Night with the Arts for FTD, an annual gala featuring the Sermos Memorial Art Show, benefitting the clinical research program in the MGH Frontotemporal Disorders Unit. Visit HERE. The MGH Frontotemporal Disorders Unit hosts From Care to Cure podcast. Listen HERE. Thank you to our Sponsor Zinnia TV is a therapeutic dementia care platform that supports caregivers. We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com
Summary In this episode of Inspired Caring, Michele Magner engages in a heartfelt conversation with Erica Baccus about her journey through her husband's Alzheimer's diagnosis and the decision to pursue assisted dying in Switzerland. They explore the complexities of grief, the importance of open conversations about death, and the emotional challenges faced by families navigating these difficult choices. Erica shares her personal experiences, insights on the process of Dignitas, and the significance of making informed decisions about end-of-life care.Keywordsassisted dying, Alzheimer's, grief, decision-making, Dignitas, end-of-life options, medical assistance in dying, emotional support, family conversations, personal storiesTakeawaysErica emphasizes the need for open conversations about death and dying.The decision for assisted dying was made with careful consideration and love.Grief can manifest in complex ways, especially after a planned death.Erica's husband, John, maintained a positive outlook throughout his illness.The process of assisted dying in Switzerland involves thorough documentation and evaluations.Erica found solace in writing and journaling during her husband's decline.Family dynamics play a crucial role in navigating end-of-life decisions.The importance of understanding one's options regarding assisted dying is highlighted.Erica's experience reflects the need for supportive medical communities.Conversations about death should begin long before a diagnosis.Sound bites"I wrote a goodbye letter.""This was a gift.""This isn't for everyone."Chapters00:00 Introduction to the Right to Die01:22 Personal Experiences with Assisted Dying04:20 Navigating the Legal Landscape of Assisted Dying07:27 The Emotional Journey of Decision-Making10:17 The Process of Dignitas and Its Requirements13:04 Traveling to Switzerland for Assisted Dying15:47 The Experience at Dignitas18:57 Reflections on Life and Death Choices30:29 The Process of Assisted Dying34:56 Reflections on Choice and Grief37:35 Navigating Conversations About Death43:19 Communicating with Family About End-of-Life Choices48:02 The Importance of Timing in End-of-Life Decisions52:04 Self-Care for Caregivers53:54 Sharing the Journey: The Book Launch57:23 Navigating Difficult Conversations About Death01:00:05 The Emotional Toll of Caregiving01:02:21 Facing Alzheimer's: A Personal Journey01:05:23 The Importance of Sharing StoriesBuy Erica's Book A PROMISE KEPT: Honoring His Wishes, Embracing Our LoveVisit Erica's Website Buy Amy Bloom's Book In Love Being Mortal by Atul GawandeThe Curious Senior Book Review on Being MortalVisit Dignitas' Website Inspired Caring is THE family support & education program that helps families feel calm and confident to make better decisions faster. Inspired Caring is offered as an annual membership to businesses to provide for the families they work with.Connect with Michele Magner:Website: www.InspiredCaring.comE-mail: hello@inspiredcaring.com Instagram: https://www.instagram.com/inspiredcaring/Facebook: https://www.facebook.com/michele.magner.90LinkedIn: https://www.linkedin.com/in/michele-magner-60a99089/YouTube: https://www.youtube.com/@inspiredcaringwithmichelem3138Custom podcast music written and produced by Colin Roberts. He does custom songs for any occasion.
Northfield Mayor Erica Zweifel and City Administrator Ben Martig discuss last night’s city council meeting, where topics included a petition to establish a Special Services District downtown, water utility rates, and more.
Host Natalie Draper talks with library staff about their experiences in post-grad Library and Information Science programs, and later talk readings they were assigned in high school.
Host Joe Moravchik talks with St. Olaf Associate Professor of Biology and Neuroethologist Dr. Norman Lee about how animals like crickets, flies, frogs, and spiders sense, process, and respond to the world around them and use sound in decision making. Additionally, how does this type of research benefit neuroscience?
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Anne S. Royer & Robert W. Royer as guests to the show. About Anne S. Royer: Anne's background and interests have included family, volunteering, and her love of art, painting and photography that began while living in Santa Fe and continues today. About Robert W. Royer: Robert is a semi-retired real estate developer specializing in residential, mixed-use, and resort properties. About Meal Lifter®: The Meal Lifter® eating aid was created to assist individuals suffering from Parkinson's, Alzheimer's, dementia, Cerebral Palsy, Essential Tremors, autism, strokes, injuries, learning disabilities, and age-related conditions that make it difficult to eat independently.
Jennifer J. Brown is a scientist, a writer, and a mother who never got the luxury of separating those roles. Her memoir When the Baby Is Not OK: Hopes & Genes is a punch to the gut of polite society and a medical system that expects parents to smile through trauma. She wrote it because she had to. Because the people who gave her the diagnosis didn't give her the truth. Because a Harvard-educated geneticist with two daughters born with PKU still couldn't get a straight answer from the very system she trained in.We sat down in the studio to talk about the unbearable loneliness of rare disease parenting, the disconnect between medical knowledge and human connection, and what it means to weaponize science against silence. She talks about bias in the NICU, the failure of healthcare communication, and why “resilience” is a lazy word. Her daughters are grown now. One's a playwright. One's an artist. And Jennifer is still raising hell.This is a conversation about control, trauma, survival, and rewriting the script when the world hands you someone else's lines.Bring tissues. Then bring receipts.RELATED LINKS• When the Baby Is Not OK (Book)• Jennifer's Website• Jennifer on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
When you picture a caregiver, what image comes to mind? Often, it's someone running on empty, holding everything together, and putting their own needs last. But what if preserving yourself isn't selfish but essential?In this episode, Charlotte challenges the belief that caregiving means disappearing. Through real examples and deeply relatable moments, she redefines what strength looks like for caregivers. This episode explores how caring for yourself: your body, your mind, and your nervous system, isn't a luxury. It's survival.You'll walk away with practical, grounded ideas for integrating small acts of self-preservation into your caregiving life. From setting boundaries to taking conscious breaths, Charlotte shares how these quiet actions are acts of resistance against a system that often overlooks you.
Show SummaryThis episode features a conversation with Kathleen Ellertson, the Founder and President of the Veteran Art Institute. The Veteran Art Institute is a 501(c)3 Nonprofit dedicated to honoring and empowering active-duty military and veterans through the arts.Provide FeedbackAs a dedicated member of the audience, we would like to hear from you about the show. Please take a few minutes to share your thoughts about the show in this short feedback survey. By doing so, you will be entered to receive a signed copy of one of our host's three books on military and veteran mental health. About Today's GuestKathleen Ellertson is the dedicated Founder and President of the Veteran Art Institute (VAI). Inspired by her father, an Army Air Forces Veteran and WWII Bronze Star Medal recipient, Kathleen has channeled her lifelong passion for the arts into a mission to honor veterans through creative expression. With a BFA in Art History and years of experience curating veteran art exhibits, including a notable year-long exhibit at the Pentagon, Kathleen has established VAI as a platform for veterans to showcase their work both online and in local galleries. Since its inception in 2019, VAI has not only hosted numerous art exhibitions but has also cultivated a nurturing community where veteran artists can share their stories and find solace. Kathleen's unwavering dedication to giving back to the veteran community continues to drive her work, making a meaningful impact through art and advocacy.Links Mentioned During the EpisodeVeteran Art Institute Web Site PsychArmor Resource of the WeekThis week's PsychArmor Resource of the Week is the PsychArmor course Telling Your Story. Your experience in the United States military is one only you can tell and it's up to you how much you choose to share with others. In this course, four Veterans share their personal stories and offer insight. You can find the resource here: https://learn.psycharmor.org/courses/va-s-a-v-e Episode Partner: Are you an organization that engages with or supports the military affiliated community? Would you like to partner with an engaged and dynamic audience of like-minded professionals? Reach out to Inquire about Partnership Opportunities Contact Us and Join Us on Social Media Email PsychArmorPsychArmor on XPsychArmor on FacebookPsychArmor on YouTubePsychArmor on LinkedInPsychArmor on InstagramTheme MusicOur theme music Don't Kill the Messenger was written and performed by Navy Veteran Jerry Maniscalco, in cooperation with Operation Encore, a non profit committed to supporting singer/songwriter and musicians across the military and Veteran communities.Producer and Host Duane France is a retired Army Noncommissioned Officer, combat veteran, and clinical mental health counselor for service members, veterans, and their families. You can find more about the work that he is doing at www.veteranmentalhealth.com
Join caregiving expert Pamela D. Wilson as she contrasts caregiver counseling with traditional therapy, offering effective support strategies for addressing elderly care challenges. Finding caregiver counseling for elderly care can be challenging, especially when counseling is typically thought of as mental health therapy. Caregiver counseling is not traditional therapy. It encompasses much more, offering personalized, direct, and practical steps, as well as caregiver support, to manage elderly care challenges, including dementia and other health complications.In this episode, caregiving expert Pamela D. Wilson contrasts the differences between traditional therapy and caregiver counseling that prioritize caregiver well-being and address complex caregiving issues and family dynamics. Discover how to navigate the intricacies of caregiving relationships to ensure a realistic balance around caregiving for elderly loved ones. Join Pamela to unlock valuable strategies that empower family caregivers.To find show transcripts and links mentioned in Episode 229 and other The Caring Generation podcasts, click here to visit Pamela's website: https://pameladwilson.com/caregiver-radio-programs-the-caring-generation/For more caregiving, aging, and elder care tips, visit Pamela's website at www.PamelaDWilson.comLearn about Pamela D Wilson, her professional background, and her experience: https://pameladwilson.com/pamela-d-wilson-story/Schedule a 1:1 elder care counseling session by telephone or video call with Pamela. https://pameladwilson.com/elder-care-consultant-aging-parent-consultation-managing-senior-care-needs-meet-with-pamela-d-wilson/Sign up for Pamela's newsletter here: https://pameladwilson.com/contact/Join Pamela's Online Caregiver Support Group on Facebook https://www.facebook.com/groups/thecaregivingtrapFollow Pamela on Social Media:Facebook: https://www.facebook.com/pameladwilsoncaregivingexpert/LinkedIn: https://www.linkedin.com/in/pameladwilsoncaregiverexpert/ X: https://x.com/CaregivingSpeakPamela D Wilson | Caregiving Expert provides caregiver tips, support for caregivers, and resources for aging and elder care. Caregiving and aging for parents doesn't have to be challenging with expert caregiver advice, solutions, and strategies based on Pamela's 25 years of experience in care management, dementia care, and as an expert witness. Visit Pamela's website www.PamelaDWilson.com to access online caregiver programs, advice and tips to support caregivers and aging adults.©2018, 2025 Pamela D Wilson. All Rights Reserved
In this episode, host Marianne Sciucco and acquisitions editor Sheila Luna sit down with Shari Ross, a senior healthcare professional and author of “Senior Living Made S.I.M.P.L.E.: A Real World Guide for Navigating Senior Care for Your Loved One.” Shari's expertise spans her professional experience in senior living communities and her personal connection to dementia through family. This conversation explores the emotional, practical, and logistical challenges families face when transitioning loved ones to senior living, with a focus on memory care, language barriers, and advocacy. In this episode: Shari discusses her background as a senior healthcare specialist, working in senior living communities, and her personal caregiving experience with her grandmother.She provides an overview of her new guide, “Senior Living Made S.I.M.P.L.E.,” and how it can help make senior living transitions easier for all.The book's conversational, relatable, and honest approach to guiding families through the overwhelming senior care landscape is discussedShari's “S.I.M.P.L.E.” framework is explained: Support, Information, Matching, Preparation, Letting Go, Engagement.In addition, Shari reframes the “new” memory Care CommunitiesThe importance of language—using terms like “community” and “neighborhood” to foster warmth and reduce stigma.Shari provides pointers on transitioning to Community LivingWhy adult children and spouses often find themselves overwhelmed and unsure where to start, and how to approach those milestones.The need to tour and “feel the vibe,” prioritize care and community over aesthetics.The power of social engagement, good nutrition, and routine in enhancing quality of life. Aging in Place vs. Senior Living The hidden burdens and risks of managing aging at home—care coordination, safety concerns, and social isolation.Shari's research: Most homes aren't designed for aging adults; successful “aging in place” requires massive support.Community living can provide more safety, social interaction, and peace of mind for both loved ones and families. Buy Shari's book here Learn more about Shari Ross and her resources and services at seniorlivingmadesimple.com. Key Quotes: “Memory care is not a punishment; it's a lifeline.”“Independence without a support net is just a slow-motion disaster.”“Be observant, be vocal, and trust your gut.” Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube About the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
Laura Turek and Kathy Olson from WINGS (Women in Northfield Giving Support) discuss their organization’s impact in the community, and their 25th anniversary open house at Reunion this Thursday evening.
Send Cathy a text:)Ready for a fresh start? After more than 260 episodes and navigating through some deeply personal caregiving seasons, I've taken a much-needed pause to reimagine what this podcast can be for you. Now I'm back with renewed energy and a powerful focus: your wellbeing as a caregiver.Season One, "What's in Your Cup," is entirely about you—your health, identity, energy, and emotional wellbeing. Because here's the truth that often gets overlooked: caregiving is not just about what you give; it's about how you refill, protect, and care for your own cup. As Emma Hemming Willis wisely notes in her book "The Unexpected Journey, "Caregiving asks everything of us, yet somehow we must find ways to keep something for ourselves." When nearly 60% of caregivers report their health worsening due to caregiving responsibilities, this conversation isn't just important—it's essential.Every Tuesday from October 7th through December 8th, 2025, you'll receive six core episodes filled with real talk, self-discovery tools, and practical strategies, plus bonus content including mini pep talks and journaling prompts between episodes. We'll kick off with "Refilled and Reimagined: What's in Your Cup Today," setting the foundation for your journey back to yourself. Whether you're new here or have been listening since day one, this season is your invitation to pause, breathe, and reconnect with what makes you whole. Because when you show up as your best self, you become a stronger caregiver, advocate, and healthier human being. Mark your calendar, grab your favorite drink, and let's rediscover what belongs in your cup—together.Support the show
When your health fails, families often bear the emotional and financial cost. In this episode of Protect Your Assets, David Hollander dives into long-term care planning, from real-life caregiving challenges to understanding the true cost of in-home and facility care. Learn how to evaluate caregivers, what long-term care can cost in California, and how veterans or their spouses may qualify for the VA’s Aid and Attendance benefit to help pay for care. David also breaks down key RMD strategies for retirees age 73 and older, including how a QLAC can reduce taxable income and delay distributions. Plus, a brief market update and what to watch for as year-end approaches. You can send your questions to questions@pyaradio.com for a chance to be answered on air. Catch up on past episodes: http://pyaradio.com Liberty Group website: https://libertygroupllc.com/ Attend an event: www.pyaevents.com Schedule a complimentary 15-minute consultation: https://calendly.com/libertygroupllc/scheduleacall/ See omnystudio.com/listener for privacy information.
If you've ever wondered how to hang on—much less laugh—while caring for someone you love, this episode of Hope for the Caregiver is for you. I recently joined Dr. Jessica Peck, known to her listeners as Dr. Nurse Mama on American Family Radio, for a conversation about faith, humor, and the realities of caregiving. We talked about my new book, A Caregiver's Companion: Scriptures, Hymns, and 40 Years of Insights for Life's Toughest Role, and the lessons Gracie and I have learned through her 98 surgeries, chronic pain, and the daily challenges that come with four decades of caregiving. You'll hear how I've found strength in Scripture, laughter in the hardest places, and peace in trusting God when nothing makes sense. We discussed what it means to be healthy while caring for someone who isn't—and why I believe healthy caregivers make better caregivers. I also shared one of the most powerful moments of my life: Gracie singing “In My Life, Lord, Be Glorified” while nurses worked on her open leg wound—and later, singing hymns with Joni Eareckson Tada over FaceTime. Those moments reveal what the world can't understand but what believers know deeply: even in the ICU, there is hope. I close the program at the Caregiver Keyboard with one of my favorite hymns, “Near to the Heart of God,” and the story behind its writing—a reminder that even in sorrow, there is a place of quiet rest near to His heart. If you're a caregiver—or love someone who is—I invite you to listen, share, and visit HopefortheCaregiver.com for more resources, music, and encouragement.
Host Kosmo Esplan talks with former Northfield Raiders Football Head Coach and current Offensive Coordinator Bubba Sullivan about the history of Northfield Raiders Football.
NAFRS Chief Tom Nelson talks about National Fire Prevention Week October 5th-11th, tips for fire safety at home, and events going on this week.
When your health fails, families often bear the emotional and financial cost. In this episode of Protect Your Assets, David Hollander dives into long-term care planning, from real-life caregiving challenges to understanding the true cost of in-home and facility care. Learn how to evaluate caregivers, what long-term care can cost in California, and how veterans or their spouses may qualify for the VA’s Aid and Attendance benefit to help pay for care. David also breaks down key RMD strategies for retirees age 73 and older, including how a QLAC can reduce taxable income and delay distributions. Plus, a brief market update and what to watch for as year-end approaches. You can send your questions to questions@pyaradio.com for a chance to be answered on air. Catch up on past episodes: http://pyaradio.com Liberty Group website: https://libertygroupllc.com/ Attend an event: www.pyaevents.com Schedule a complimentary 15-minute consultation: https://calendly.com/libertygroupllc/scheduleacall/ See omnystudio.com/listener for privacy information.
Turning Diagnosis into Purpose: Deana and Liam's MissionWhen Liam was diagnosed with cystic fibrosis (10 years ago) at just three weeks old, Deana's world shifted overnight. What began as one mother's fight for her child has grown into a movement empowering families, educators, and kids facing chronic illness, all through courage, creativity, and hope.From bestselling advocacy workbooks to emotional wellness initiatives, Deana and Liam are transforming personal challenges into meaningful change. You'll hear how storytelling became their most powerful tool, and why their message, hope is louder, is resonating far beyond the CF community.In this episode, we talk about:How The Ultimate CF Family Workbook came to lifeThe importance of storytelling in chronic illnessTheir upcoming children's book and animated series, Liam's ChroniclesHow they're changing the conversation around invisible illnessLearn more about their work or grab a workbook: [Insert Website or Linktree]Available on Amazon + EtsyFeatured by hospitals like SickKids and CHEOConnect with Deana & Liam:FB: Facebook.com/liamsmission00To order: www.liamsmission.ca IG: Instagram.com/liamsmission Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en
Programa musical para nuestra audiencia del Barrio Latino en Northfield, Minnesota.
Stop Struggling Now - We help Improve your Personal and Business Wealth Mindset
Send us a textSTOCKS BEST SEPTEMBER IN 15 YRS. Wealth Creation❤️️Grants from states and local governments: https://findhelp.org/❤️️Caregivers, Mental Health: https://www.211.org
Hosts Andy Tellijohn and Rich Larson talk with Concordia, Moorehead safety Jacob Pipho, St. Katherine’s goalkeeper Brianna Valdez, and Andy Rennecke of St. Cloud Live breaks down the St. John’s Bethel football game.
Raiders football team set the pace for homecoming with a victory over rival Owatonna. Ned Newberg, voice of the Raiders, recaps the victory. Former Assistant and now Head Coach of the Boy’s Hockey team, Charlie Cloud talks about the opportunity and what to expect for the future of the program. The girl’s tennis team advances […]
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Jonathan Cottor as guest to the show. About Jonathan Cottor, MBA, MPH. : Jonathan Cottor is a devoted father whose journey with his son Ryan, diagnosed with Spinal Muscular Atrophy at 9 months old, profoundly shaped his life. Ryan defied expectations, living an extraordinary 17 years until his death in December 2018. Inspired by their experience, Jonathan and his wife co-founded Ryan House, a pioneering children's respite, palliative, and hospice care home in Phoenix, Arizona. After a 30-year career in corporate marketing and leadership, Ryan's death became the catalyst for Jonathan to align his work with his passion. He earned a Master of Public Health (MPH) from the Johns Hopkins Bloomberg School of Public Health, specializing in policy and advocacy, along with a certificate in Maternal and Child Health. Jonathan is now a recognized national thought leader in pediatric palliative care. He has been instrumental in building a coalition of community-based pediatric palliative care home models, culminating in the creation of the National Center for Pediatric Palliative Care Homes and its flagship initiative, Children's Respite Homes of America. About National Center for Pediatric Palliative Care Homes (NCPPCH): The National Center for Pediatric Palliative Care Homes (NCPPCH) is a national nonprofit advancing an innovative solution: local, community-based homes that provide overnight respite, palliative, and hospice care tailored to the needs of medically fragile children and young adults, particularly those with life-limiting conditions.
When you use your God-given gifts to serve others, you become a living example of Christ's love in action. -------- Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org Find more encouragement on Instagram, TikTok, Facebook, and YouTube.
Dalton SizemoreBiology with Heart, Humor, and a DrawlI'm Dalton — a molecular biologist, science communicator, and caregiver. I hold a BS and MS in Cell and Molecular Biology from Appalachian State University, where I focused on cancer biology, virology, and immunology. My research explored how viruses like VSV might be used to disrupt the immune processes that help cancer metastasize. I also hold a graduate certificate in clinical psychology, which helps me bridge the gap between the science of the body and the realities of the human experience.But the truth is, everything I've done in science is rooted in something far more personal.I'm a survivor of childhood abuse. My father left when I was young, and my mother — who raised me on her own — endured two severely abusive relationships: one during my childhood, and another while I was in high school and starting college. Those years shaped me deeply. They taught me what it means to live in chaos and still push forward, to carry pain and still protect others, and to learn, even when nothing in your life feels safe.While I was earning my degrees, I was also a full-time caregiver. My mom nearly died from a MRSA infection that turned into a kidney crisis. My grandmother is disabled and was one of the first people in the U.S. to receive an implantable defibrillator. My sister has a seizure disorder that renders her disabled. At 22, I was managing emergency care, making medical decisions, studying biochemistry and organic chemistry, and trying not to fall apart.Want to be a guest on Book 101 Review? Send Daniel Lucas a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/17372807971394464fea5bae3 Hosted on Acast. See acast.com/privacy for more information.
Today in the ArtZany Radio studio Paula Granquist welcomes Pauline Jennings, the Performing Arts Manager at the Northfield Arts Guild to visit about all the upcoming happenings, shows, and events and of course we will celebrate creating and stories. https://northfieldartsguild.org
Director of Library Services Natalie Draper discusses the new grant the library has received and their plans for landscaping and new equipment, and talks upcoming events at the library.
This episode of Standard Deviation features Oliver Bogler in conversation with Dr Na Zhao, a cancer biologist caught in the crossfire of science, politics, and survival. Na's life reads like a brutal lab experiment in persistence.She grew up in China, lost her mother and aunt to breast cancer before she turned twelve, then came to the United States to chase science as both an immigrant and a survivor's daughter. She worked two decades to reach the brink of independence as a cancer researcher, only to watch offers and grants vanish in the political chaos of 2025.Oliver brings her story into sharp focus, tracing the impossible climb toward a tenure-track position and the human cost of a system that pulls the ladder up just as people like Na reach for it. This conversation pulls back the curtain on the NIH funding crisis, the toll on early-career scientists, and what happens when personal tragedy fuels professional ambition.Listeners will walk away with a raw sense of how fragile the future of cancer research really is, and why people like Na refuse to stop climbing.RELATED LINKSDr Zhao at Baylor College of MedicineDr Zhao on LinkedInDr Zhao's Science articleIndirect Costs explained by US CongressFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Hello Brave Friends! This is an Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this Ask Us Anything episode, #227, we are discussing how to approach and support other caregiving moms when we see them in the wild. In this heartfelt episode, Jessica Patay, Susanna Peace Lovell, and Dr. Zoe Shaw dive into the challenges and triumphs of parenting children with special needs. They share personal stories and insights on how to approach fellow parents with empathy and understanding, emphasizing the importance of being allies to one another. Join them as they explore the power of connection, the impact of societal norms, and the simple yet profound act of acknowledging each other's humanity. Tune in for an inspiring conversation that encourages us all to be more compassionate and supportive in our daily interactions.Keep the questions coming, we're here to support you! Whether you have questions as a parent to a child with complex medical or mental health needs or you're someone looking to support a care-giving parent, we would LOVE to hear from you. We see you and we love you! Leave us a message here.Find more information about Licensed Psychotherapist, Dr. Zoe Shaw here. Find more information about Life Coach, Susanna Peace Lovell here.Find Susanna's book, Your True Self is Enough here.Find our first book from We Are Brave Together here.Find full episodes and clips of our podcast on Youtube here.Brave Together Podcast is a resource produced by We Are Brave Together, a global nonprofit that creates community for moms raising children with disabilities, neurodivergence, or complex medical and mental health conditions. The heart of We Are Brave Together is to preserve and protect the mental health of caregiving moms everywhere. JOIN the international community of We Are Brave Together here. Donate to our Retreats and Respite Scholarships here. Donate to keep this podcast going here. Can't get enough of the Brave Together Podcast? Follow us on Instagram , Facebook and Youtube. Feel free to contact Jessica Patay via email: jpatay@wearebravetogether.org If you have any topic requests or if you would like to share a story, leave us a message here. Please leave a review and rating today! We thank you in advance! ...
Episode 117 - Donna Steigleder shares her journey as a lifelong caregiver, nurse and advocate, offering resources and hope to families navigating complex care challenges. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
What happens when love isn’t enough to hold up a broken system? Ai-jen Poo—award-winning organizer and executive director of the National Domestic Workers Alliance—joins Kate Bowler to talk about caregiving in America. Who provides it. Who’s left out. And why we need a system that treats care as the sacred, shared labor that it is. Together they explore: Why more than 100 million Americans are caregiving right now What it costs to support a loved one—and why the math doesn’t add up The long shadow of slavery in how we treat domestic workers today Why dignity and agency are essential in every stage of life What it would look like to build a policy solution that works for everyone If you’re carrying the care of someone else—or fearing the moment when you will—this conversation is for you. Show Notes Caring Across Generations – A movement co-led by Ai-jen Poo to transform the way we care in America. National Domestic Workers Alliance – Advocating for the dignity and rights of the people who care for our homes and loved ones. The Age of Dignity by Ai-jen Poo – A powerful read on what the “elder boom” means for all of us. Find your elected officials – Contact Congress to protect Medicaid and support caregiving policies. State-by-state Medicaid info – Learn what Medicaid is called in your state and how it supports care. Congressional Budget Office – For context on recent Medicaid budget cuts and projections for coverage loss. Aspen Ideas Festival Share your caregiving story on Substack – Join the conversation with others who are navigating care. A Blessing for Care-Givers and Care-Receivers – A gentle word for those in the trenches of giving or needing care. See omnystudio.com/listener for privacy information.
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Dr. Malinda Shultice as guest to the show. About Dr. Malinda Shultice: Dr. Malinda Shultice is a professor at Iowa State University and Barcelona Executive Business School, as well as the founder and CEO of M.S. Healthcare Consulting, a firm dedicated to training and developing leaders in the healthcare industry. She earned her Doctorate in Health Sciences from MCPHS University in Boston in 2022. Before moving into higher education in 2023, Malinda spent years managing continuing care retirement communities in the senior living sector. It was a role that demanded adaptability every single day—whether adjusting to new regulations, finding creative ways to support staff, or responding to the changing needs of residents and their families. Those experiences shaped her passion for connecting generations and building a strong, flexible workforce that can deliver quality care in an ever-changing healthcare world. About M.S. Healthcare Consulting: Through keynote speaking, interactive workshops, and executive coaching, I help leaders and organizations cultivate that curiosity while also building practical skills to lead effectively. Whether it's inspiring a room full of professionals, guiding teams through hands-on problem solving, or supporting executives one-on-one, my mission is the same: to empower healthcare leaders to become confident, curious, and impactful in their spheres of influence. 1. Seminars & Workshops: Interactive sessions on a variety of healthcare-related topics that address pressing issues such as burnout, low morale, high turnover, and lack of team engagement. (See the Courses tab for details.) 2. One-on-One Mentoring: Personalized coaching for healthcare administrators and staff. Designed to help individuals build resilience, improve leadership skills, and create strategies to reduce stress and disengagement. 3. Small Group Trainings: Tailored training for teams or community groups. These sessions focus on strengthening collaboration, boosting morale, and developing practical solutions to reduce turnover and improve workplace culture. 4. Speaking Engagements: Inspiring and practical presentations for audiences of any size—ideal for conferences, staff meetings, or community events. Topics center on building healthier work environments and addressing burnout and disengagement. Connect with Dr. Malinda Shultice: Official Website: https://www.malindashultice.com
Katie Henry has seen some things. From nonprofit bootstraps to Big Pharma boardrooms, she's been inside the machine—and still believes we can fix it. We go deep on her winding road from folding sweaters at J.Crew to launching a vibrator-based advocacy campaign that accidentally changed the sexual health narrative in breast cancer.Katie doesn't pull punches. She's a born problem solver with zero tolerance for pink fluff and performative empathy. We talk survivor semantics, band camp trauma, nonprofit burnout, and why “Didi” is the grandparent alter ego you never saw coming.She's Murphy Brown with a marimba. Veronica Sawyer in pharma. Carla Tortelli with an oncology Rolodex. And she still calls herself a learner.This is one of the most honest, hilarious, and refreshingly real conversations I've had. Period.RELATED LINKS:Katie Henry on LinkedInKatie Henry on ResearchGateLiving Beyond Breast CancerNational Breast Cancer CoalitionFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
All Home Care Matters and our host, Lance A. Slatton were honored to welcome George Koenig as guest to the show. About George Koenig: George Koenig is the Founder and CEO of eCaregivers. He has 22+ years of licensed and accredited home care agency ownership and deep expertise in the home care industry. He founded eCaregivers with a vision to democratize home care for the better with a mission of empowering families with the tools to access safe, affordable, and transparent home care and care providers with autonomy, safety, and flexibility. About eCaregivers: eCaregivers is an online platform where families can find & manage 1-1 private home care, saving 30-50% compared to traditional agency costs. eCaregivers also partners with traditional home care channels. By collaborating with assisted living facilities, CCRCs, long-term care insurers, and other organizations, eCaregivers helps traditional providers supplement their services with additional private-pay care opportunities, increasing staff retention and resident care continuity. Families or residents can join in under 10 minutes for as low as $9.99/month to find care by posting a job & receiving applicants or searching our database of local Care Providers. Easily choose the right match using eCaregivers' built-in messaging, safe & secure phone / video interviews, verification and background check features! eCaregivers has made it easier and safer than ever to manage private care, giving agency-like care management tools directly to families. Users can utilize care scheduling, GPS-verified clock-in and clock-outs, backup-care arrangements, automatic payments, family split-billing, and more. Families can engage Care Providers as a 1099 or W2 and premium plan holders can enjoy the protection of liability, auto, and occupational insurance protections. Care Providers can join eCaregivers for free and begin applying to local jobs in less than 10 minutes. eCaregivers empowers Care Providers by giving them the tools to set their own rates, hours, and employment relationships. Care Providers keep 100% of their earnings—eCaregivers takes no commission. eCaregivers operates nationwide with over 10,000 Care Providers, and more users are joining every day. Built by industry experts, eCaregivers is truly a complete solution for both families and traditional home care models.