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Jason Gilley walked into adulthood with a fastball, a college roster spot, and a head of curls that deserved its own agent. Cancer crashed that party and took him on a tour of chemo chairs, pediatric wards, metal taste, numb legs, PTSD, and the kind of late night panic that rewires a kid before he even knows who he is.I sat with him in the studio and heard a story I know in my bones. He grew up fast. He learned how to stare down mortality at nineteen. He found anchors in baseball, therapy, and the strange friendships cancer hands you when it tears your plans apart. He owns the fear and the humor without slogans or shortcuts. Listeners will meet a young man who refuses to let cancer shrink his world. He fights for the life he wants. He names the truth without apology. He reminds us that survivorship stays messy and sacred at the same time. This conversation will stay with you.RELATED LINKS• Jason Gilley on IG• Athletek Baseball Podcast• EMDR information• Children's Healthcare of AtlantaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode of SHE MD, Mary Alice Haney sits down with Emma Heming Willis, mother, stepmother, wife, advocate, and co-founder of Make Time Wellness, a brand dedicated to women's brain health. Emma shares her journey navigating her husband Bruce Willis' diagnosis of frontotemporal dementia (FTD) and the challenges of caregiving.Emma opens up about recognizing the early warning signs, managing the complexities of a blended family, and building a support system that sustains both the caregiver and their loved one. She also discusses the concept of ambiguous loss and how relationships evolve when a partner's cognitive abilities change.Beyond caregiving, Emma dives into practical strategies for women to maintain brain health, including sleep, nutrition, mental stimulation, and social connection. She highlights the importance of self-care, setting boundaries, and seeking expert support.Through her new book, The Unexpected Journey, and her work with Make Time Wellness, Emma provides actionable insights for caregivers and women prioritizing their brain health, emphasizing resilience, love, and community.Subscribe to SHE MD Podcast for expert tips on PCOS, Endometriosis, fertility, and hormonal balance. Share with friends and visit SHE MD website and Ovii for research-backed resources, holistic health strategies, and expert guidance on women's health and well-being.Sponsors: Cymbiotika: Go to Cymbiotika.com/Shemd for 20% off plus free shippingRocket Money: Cancel your unwanted subscriptions and reach your financial goals faster with Rocket Money. Go to RocketMoney.com/shemd today.Nutrafol: Nutrafol is offering our listeners ten dollars off your first month's subscription and free shipping when you go to Nutrafol.com and enter promo code SHEMD. Vibrant Wellness: Ask your provider for the Hormone Zoomer by Vibrant Wellness — or find a Vibrant-certified provider today at vibrant-wellness.com/SheMDWhat You'll LearnStrategies for women caregivers to maintain mental and physical healthUnderstanding frontotemporal dementia (FTD) and early warning signsHow to build a caregiving support system and engage blended familiesLifestyle approaches for women's brain health, including sleep, nutrition, and mental stimulationTools to navigate ambiguous loss and adapt to changing relationshipsKey Timestamps00:00 Introduction with Mary Alice Haney and Emma Heming Willis03:50 Emma meets Bruce Willis and navigates their blended family dynamics14:50 Recognizing early signs of frontotemporal dementia and seeking diagnosis22:40 Coping with the lack of caregiving resources and support24:30 Prioritizing mental and physical health as a caregiver31:40 Building a caregiving support system with experts and family involvement35:20 Founding Make Time Wellness and creating actionable solutions for brain health38:45 The impact of caregiving on relationships and navigating ambiguous loss40:42 Closing thoughts on resilience, community support, and resources for caregiversKey TakeawaysFrontotemporal dementia (FTD) affects personality, behavior, and communication, often presenting differently than Alzheimer's.Caregiving is a family-wide challenge; support systems are essential to sustain caregivers' health.Ambiguous loss requires adaptive strategies to maintain relationships and emotional resilience.Women can prioritize brain health through lifestyle habits: sleep, nutrition, exercise, mental stimulation, and social connection.Sharing knowledge and resources helps caregivers feel supported and validated.Guest BioEmma Heming Willis is a mother, stepmother, wife, advocate, and co-founder of Make Time Wellness, a brand dedicated to women's brain health. Following her husband Bruce Willis' diagnosis with frontotemporal dementia (FTD), Emma became a passionate voice for caregiving families and authored The Unexpected Journey, highlighting resilience, love, and the practical realities of supporting a loved one with dementia.Links & ResourcesEmma Heming Willis: Make Time WellnessEmma Instagram: https://www.instagram.com/emmahemingwillisEmma Facebook: https://www.facebook.com/EmmaHemingWillisBook: The Unexpected Journey by Emma Heming Willis5% of Make Time Wellness proceeds support Hilarity for CharitySee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Join Dr. Pinkston as she welcomes Erica Bacchus, author of the deeply personal book, A Promise Kept. Erica shares the extraordinary and heartbreaking story of her late husband, John, and his battle with early cognitive impairment consistent with Alzheimer's disease. This conversation delves into a highly controversial and often-unspoken topic: end-of-life choices in the face of neurodegenerative disease. Erica describes the difficulty of John's diagnosis, his profound desire to maintain agency and dignity, and the intense emotional journey she undertook as his caregiver. They discuss: The challenge of Alzheimer's and end-of-life options, particularly the catch-22 regarding mental capacity and current U.S. laws like Medical Assistance in Dying. The couple's decision to seek assistance at Dignitas in Switzerland and the seven-month, complex application process. The overwhelming emotional toll of caregiving, the isolation, and the importance of honoring a spouse's deeply held, personal beliefs about life, purpose, and death. Erica's story is a testament to unwavering love, shared independence, and the courage it takes to support a loved one's choice to have a peaceful, dignified end on their own terms.See omnystudio.com/listener for privacy information.
Recent data shows one out of every four American adults are providing some sort of unpaid caregiving for a loved one, be it a parent, child, or someone else they know with a chronic illness or disability. Caregiving can require a lot of physical, emotional and mental energy, but there's a lot of love there, too - and there is assistance out there to ensure you don't burn out. Nichole talks with Kate Granigan, CEO of Alder in Newton, about the balance that's needed to ensure caregivers can take care of themselves, and resources that can help lighten the load.See omnystudio.com/listener for privacy information.
Get the latest scores and highlights on this weeks Raider Scoreboard. Zoe Ingersoll joins the program to talk about this years Gymnastics team. They are off to a 2-0 start to the season in dual meets. With 15 participants, the team hopes to be very competitive this year. The Raiders Gators head to Austin to […]
Welcome to the fourth film discussion in AlzAuthors' 10th Anniversary Film Festival. This powerful episode features a deep-dive into the documentary "Wine, Women & Dementia,” and offers community, validation, practical wisdom, and a celebration of caregivers. Meet Kitty Norton, creator and director of "Wine, Women & Dementia." After leaving her television career in Los Angeles, Kitty returned to Portland, Oregon to care for her mother with dementia. From her experience she later crafted this touching film to honor family caregivers and raise authentic awareness of dementia's impact. Kitty's film has won awards and is used by medical organizations for staff training. It's a must-watch for caregivers, healthcare professionals, and anyone interested in the realities of dementia care. Learn about her journey, the healing power of humor, and the importance of support networks for caregivers everywhere. Why This Episode Matters Dementia Caregiving Resources: Gain firsthand advice and inspiration from those who've traveled the road of dementia caregiving.Film Festival Celebration: Discover why film is a powerful medium for sharing caregiving wisdom and breaking the stigma around dementia.Empowering Community: Learn how blogging, filmmaking, and online support groups are changing the landscape for caregivers.Real Talk: The podcast doesn't shy away from tough topics—money dilemmas, family dynamics, humor in adversity, and finding community. Key Takeaways Validation & Connection: As shared by Kitty Norton, "Wine, Women & Dementia" helps caregivers feel seen, heard, and supported. Audience feedback shows viewers finally feel understood and less alone.Community Building: The episode highlights how caregivers form lasting friendships and essential support systems—online, through art, and in local groups.The Power of Humor: Humor is a key theme. Listeners will find real stories of finding laughter and lightness, even amidst difficult caregiving situations.Practical Advice: From navigating support groups to honoring the dignity of people with dementia, the conversation offers lots of tips for caregivers. Connect & Learn More Find and follow Kitty Norton on social media: LinkedIn, Instagram, Facebook, TikTokVisit WWD to learn more about the film and how to schedule a screening event Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our mission is to lift the silence and stigma surrounding Alzheimer's and other dementias. The Untangling Alzheimer's and Dementia Podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
Research suggests that anywhere from 46% to 84% of autistic children experience selective eating. And the downstream risks are substantial: selective eating is linked with nutritional deficiencies, psychosocial impairment, and increased risk of developmental and psychiatric comorbidities, with severity tied to how persistent and restrictive the eating patterns become.In this OT Potential course, Britt St. John, PhD, MPH, OTR/L, joins us to break down what occupational therapy professionals need to understand—and do—when supporting autistic children with selective eating. We'll begin with Britt's story and key terminology (picky eating vs. selective eating vs. feeding disorders), then move into practical, evidence-based guidance for clinicians.Together, we'll focus on three core areas:Assessment: How to identify the nature and severity of selective eating, including available OT assessments and red flags that should guide clinical decision making.Caregiver collaboration: How to partner with families in ways that reduce stress, build shared understanding, and promote sustainable change at home.Evidence-backed treatment options: What the research supports, how OT interventions fit within interprofessional care, and when to refer on.This course is designed for OTs and OTAs looking for clarity in a complex practice area—and for practical tools you can use immediately to support families navigating selective eating.See full course details here:https://otpotential.com/ceu-podcast-courses/selective-eating-and-autism See all OT CEU courses here:https://otpotential.com/ceu-podcast-coursesSupport the show by using the OTPOTENTIAL Medbridge Code:https://otpotential.com/blog/promo-code-for-medbridgeTry 2 free OT Potential courses here:https://otpotential.com/free-ot-ceusSupport the show
In this episode of the Anchored by the Sword Podcast, I'm joined by Kim Harms—writer, speaker, two-time breast cancer survivor, and author of the newly released devotional Carried Through Cancer: 70 Days of Spiritual Strength from Cancer Fighters, Survivors, and Caregivers.Kim shares her testimony of faith, perseverance, and God's nearness through two cancer diagnoses, long-term treatment, and seasons of suffering. We talk honestly about fear, hope, endurance, and how Scripture anchored her when the road felt overwhelming.In this episode, we talk about: • Kim's faith journey and growing up anchored in Christ • Her first breast cancer diagnosis at 40 and a second diagnosis seven years later • Walking through chemotherapy, radiation, and long-term treatment • The Scriptures that sustained her in different seasons of suffering • Why she wrote Carried Through Cancer and who the book is for • The power of short, accessible devotionals when strength is limited • Encouragement for caregivers and those supporting loved ones • Why letting others help is both humbling and healingThis conversation is for anyone walking through cancer—fighters, survivors, caregivers—or anyone navigating a hard season and needing reminders that God is near and faithful.Bio:Kim Harms is a two-time breast cancer survivor and the author of Carried Through Cancer: 70 Days of Spiritual Strength from Cancer Fighters, Survivors and Caregivers (B&H 2025) and Life Reconstructed: Navigating the World ofMastectomies and Breast Reconstruction. She has a degree in English from Iowa State University and more than two decades of professional writing experience for a wide variety of publications.Married to Corey for nearly three decades, the two live in central Iowa and have three sons and one English Springer Spaniel who thinks he's the fourth child.Anchor Verses:Isaiah 41:10I Peter 5:10Connect with Kim:Website: https://kimharms.netIG: https://www.instagram.com/kimharmsauthor***We love hearing from you! Your reviews help our podcast community and keep these important conversations going. If this episode inspired you, challenged you, or gave you a fresh perspective, we'd be so grateful if you'd take a moment to leave a review. Just head to Apple Podcasts or wherever you listen and share your thoughts—it's a simple way to make a big impact!***
Have you completed the first six essential steps of the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage? Are ready to take on more? Do you find yourself wanting to learn faster and more easily than trying to figure everything out on your own? If you answered ‘Yes', you're in the right place for the next phase of the dementia “In the Beginning” journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that building knowledge, and preparing for progression, are crucial for sustainable caregiving. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about our comprehensive 20-step caregiving journey roadmap guide: Navigating Dementia Caregiving Roadmap. In this podcast, we're sharing steps 7–10. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/44-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-7-10-alzheimers-and-other-dementias/ Additional Resources Mentioned Navigating Dementia Caregiving Roadmap Guide In the Beginning - continued Next Steps - You are ready for more 7. Continue your education: Take the Savvy Caregiver course in person or online.Read this magazine: Mayo Clinic Living with dementia: A guide to caregiving and support. Find and take a virtual dementia tour near you. In the United States, in your search engine, type ‘virtual dementia tour' + 'your state'. For example: ‘virtual dementia tour Florida' or, outside the US, replace your state with your country. 8. Start planning for the next stage of care. Build your personal support network:21 minute TCJ podcast: 40. Create Your Personal Support NetworkTCJ blog: 40. Create Your Personal Support Network.Find and try a memory cafe (Caregivers and care receivers go together).Investigate dementia day centers (also known as adult day centers that include dementia care programs) for your care receiver. Community resource finder: Select Community Services and choose Adult Day Centers for your search.Ask your loved one's medical team for a home safety assessment.The goal is to have someone evaluate your home for safety and dementia care needs. This is usually available through palliative care, GUIDE program, or an order from a physician.You can get a free assessment from social services with this order, or you can pay for an independent assessment from a private organization. 9. Investigate your local government community support: In the US, contact your local Area Agency on Aging. Search for yours at Eldercare.acl.gov or call 1-800-677-1116.Call and set up a screening for eligibility:They will point you to any free government services where you are eligible. Be sure to find out if you are eligible to get paid to be a caregiver. 10. Evaluate driving risks. Some US states have specific requirements for individuals with dementia to report their diagnosis and potentially undergo driving evaluations. Listen to this podcast or read this blog:21 minute TCJ podcast: 5. Taking Away the KeysTCJ blog: 5. Taking Away the Keys. Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care.
In a conversation that challenges stereotypes and brings to light the unexpected realities of caregiving, this episode reveals the experiences of three men who stepped up to care for their mothers with dementia. It's a heartfelt exploration of grief, growth, and the bonds that are both tested and strengthened through caregiving. Shattering Stereotypes: Men as Caregivers We often associate caregiving with daughters, wives, and sisters, yet over 40% of caregivers are men. Many of them, like guests David Bredbenner, Alfredo Botello, and Vincent Zappacosta, find themselves in this role simply because "there really was no other option." Their stories reveal that caregiving isn't just a woman's job—it's a human one. Vincent shares, “My mother and I were always close and I just didn't trust anyone else to take care of her, because nobody knew her as well as I did.” David talks about “reacting, firefighting, and suddenly you're just drawn in, and before you know it, it becomes part of your routine.” Alfredo, navigating life as an only child, speaks honestly about how necessity and love for his mother collided the moment his stepfather passed away. Lifestyle Overhauls and Personal Sacrifice For each son, caring for their mothers led to seismic shifts in their daily lives. Plans are always tentative, boundaries are tested, and a new form of “parenting” emerges. As Alfredo vividly describes: “Nobody told me growing up that I'd have another kid in my 50s—only she'd be in her 80s and have opinions!” From rearranging work schedules to leaving reassuring Post-its for an anxious parent, the logistics become second nature, though the emotional toll lingers. The men openly discuss balancing frustration, guilt, and even resentment with deep love. They offer comfort in recognizing that no one is “superhuman”: “It's almost like we do expect ourselves to be perfect...and that never happened,” Christy reflects. While the stories in “Sons Caring for Mothers” circle around men, the lessons ring true for anyone on a caregiving journey. There are no perfect solutions, only the imperfect, beautiful bonds of love, memory, and forgiveness. After the Podcast Learn more about David, Vincent, and Alfredo and purchase their books here. Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know. We've got merch! Shop our Store
Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You're not alone! You've entered what we call the “messy middle” stage of your caregiving journey. We created for you the comprehensive, 20-step caregiving journey roadmap guide, Navigating Dementia Caregiving Roadmap Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Messy Middle First Steps - You recognize it's time to assert more control 11. Focus on safety. Listen to these podcasts or read these blogs.Home Alone - Hear about the deal breakers for living home alone:21 minute TCJ podcast: 6. Home AloneTCJ blog: 6. Home Alone.Medication - Understand strategies to safely manage medication:20 minute TCJ podcast: 20. Medication ManagementTCJ blog: 20. Medication Management.Home Safety - Find approaches to the basics of home safety:25 minute TCJ podcast: 7. Home Safety TCJ blog: 7. Home SafetyWandering - Learn ways to manage three types of wandering: outside, inside and during the night.20 minute TCJ podcast: 4. Wandering TCJ blog: 4. Wandering. 12. Continue to prioritize your self-care. Understand how to approach the realities of self-care:23 minute TCJ podcast: 27. The Realities of Caregiver Self-CareTCJ blog: 27. The Reality of Caregiver Self-Care. 13. Educate yourself on activities of daily living (ADLs). Prepare for changes in your loved ones ability to manage their ADLs.Listen to these podcasts or read these blogs on activities of daily living:26 minute TCJ podcast: 9. Preparing for Incontinence TCJ blog: 9. Preparing for Incontinence21 minute TCJ podcast: 14. Bathing and DressingTCJ blog: 14. Bathing and Dressing21 minute TCJ podcast: 15. Personal Care e.g. brushing teeth, trimming hair TCJ blog: 15. Personal Care21 minute TCJ podcast: 16. Eating and Drinking TCJ blog: 16. Eating and Drinking. 14.Create a Care Plan - at minimum a Family Emergency Plan. 25 minute TCJ podcast: 33. How to Create a Care Plan TCJ blog: 33. Creating a Care Plan. Messy Middle - Continued Second Steps - It's time for more support 15. Start or increase leveraging dementia/adult day programs. Community resource finder: Select Community Services and choose Adult Day Centers for your search. 16. Start thinking about professional help. Educate yourself: Evaluate continuing care communities (even if you never plan to use one) just in case.33 minute TCJ podcast: 28. Home and Community Living Options TCJ blog: 28. Home and Community Living Options.Understand the types of paid caregivers:26 minute TCJ podcast: 32. Hiring a Paid Caregiver TCJ blog: 32. Hiring a Paid Caregiver.Find an organization to help. Search online: ‘Senior Care Advisor' + ‘your area'.Look for options yourself. Go to the Community Resource Finder sponsored by the Alzheimer's Association and AARP. 17. Continue your education. Take the Savvy Caregiver Advanced training (this can be taken in-person or virtually).Delusions:38 minute TCJ podcast: 23. DelusionsTCJ blog: 23. Delusions.Incontinence:26 minute TCJ podcast: 10. Incontinence Begins TCJ blog: 10. Incontinence Begins. Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Susanne White as guest to the show. About Susanne White: When Susanne was faced with the opportunity to care for her parents, she embarked on a caregiving journey that would change her life. She shares this journey on her website, CaregiverWarrior.cm, offering experience, strength, and hope to help others navigate caregiving with grace and empowerment. Known for her authentic style and deep insight from firsthand caregiving experience, Susanne is a bestselling author, gifted writer, exceptional webinar host, motivational keynote speaker, dynamic radio and podcast guest, and thought leader in the caregiver advocacy community. When speaking to caregivers, professionals, or broader audiences, Susanne delivers engaging conversations that comfort, inspire, and empower. Her approachable style and genuine presence make her a favorite among podcast hosts, listeners, and corporate audiences, where she delivers engaging sessions that spark connection and lasting impact. Her latest book, Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One, is available on Amazon and at major bookstores, including an Audible audio version perfect for busy caregivers on the go.
Dr. Marissa Russo trained to become a cancer biologist. She spent four years studying one of the deadliest brain tumors in adults and built her entire research career around a simple, urgent goal: open her own lab and improve the odds for patients with almost no shot at survival. In 2024 she applied for an F31 diversity grant through the NIH. The reviewers liked her work. Her resubmission was strong. Then the grant system started glitching. Dates vanished. Study sections disappeared. Emails went silent. When she finally reached a program officer, the message was clear: scrub the DEI language, withdraw, and resubmit. She rewrote the application in ten days. It failed. She had to start over. Again. This time with her identity erased.Marissa left the lab. She found new purpose as a science communicator, working at STAT News through the AAAS Mass Media Fellowship. Her story captures what happens when talent collides with institutional sabotage. Not every scientist gets to choose a Plan B. She made hers count.RELATED LINKSMarissa Russo at STAT NewsNIH F31 grant story in STATAAAS Mass Media FellowshipContact Marissa RussoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
This week, our hosts Dave Bittner, Joe Carrigan, and Maria Varmazis (also host of the T-Minus Space Daily show) are sharing the latest in social engineering scams, phishing schemes, and criminal exploits that are making headlines. In follow-up this week, we waded into murky legal waters with a fish-demeanor pun that's now swimming rent-free in our heads, then pivoted to some surprisingly practical home-network wisdom—segregating IoT devices before they take over your Wi-Fi (and your sanity). Joe looks at how Google is taking a dual approach to fighting scams—suing to dismantle the “Lighthouse” phishing operation while backing bipartisan legislation and rolling out AI tools to protect users from smishing, robocalls, and fraud. Maria looks at how seniors are more digitally active than ever—and why caregivers and families play a key role in keeping them safe online, with practical tips ranging from strong passwords and MFA to regular conversations about scams and device security. Dave looks at two very different but increasingly common scam fronts: an FBI warning about AI-powered “virtual kidnapping” extortion schemes using fake proof-of-life images, and a surge in celebrity impersonation scams that used hacked social media accounts to trick music fans out of billions in fake tickets, merch, crypto, and VIP offers. Our catch of the day comes from Reddit where Dave and Joe take on a series of messages that will have you rethinking the way you answer scams. Resources and links to stories: A dual strategy: legal action and new legislation to fight scammers Empowering Seniors for Safer Online Experiences: 6 Practical Safety Tips for Caregivers and Families New FBI alert urges vigilance on virtual kidnapping schemes Taylor Swift, Sabrina Carpenter Impersonators Scam Fans Out of $5.3 Billion in 2025: Report Have a Catch of the Day you'd like to share? Email it to us at hackinghumans@n2k.com.
The White House is touting the strength of the nation’s economy; despite data showing Americans remain concerned about inflation and job security. Vice President JD Vance is the latest Trump administration official to tout a rosy economic outlook, during a rally in Pennsylvania. Harrisburg lawmakers are expected to send a bill to Governor Josh Shapiro’s desk that changes the way workers access unemployment benefits. As Philadelphia prepares for the nation’s 250th birthday next year, a dozen artists are painting bell-shaped sculptures that represent Philly neighborhoods. Caregivers in Pennsylvania are celebrating a rare pay boost, but long-term funding issues linger. Dickinson College is the latest area college to announce a more affordable option for middle-class families. Littlestown, Adams County native Aubrey Nicole placed fourth in NBC's "The Voice." WITF, along with hundreds of Public Media organizations across the country, is facing a significant annual budget gap with the loss of federal funding. That means that WITF is now dependent on individual member support more than ever. Visit www.witf.org/givenow. And thank you.Support WITF: https://www.witf.org/support/give-now/See omnystudio.com/listener for privacy information.
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In this illuminating episode, host Darleen Mahoney welcomes Rita Shula, Senior Director of Caregiving at the AARP Public Policy Institute, for an in-depth discussion about the dramatic rise in family caregivers across America—a trend revealed by AARP's latest research. Together, they unpack the staggering statistic that one in four adults now provides some form of caregiving, exploring the forces driving this increase: a rapidly aging population, evolving care needs, and the shortage of affordable professional support.Rita Shula shares insights from the study, revealing that caregiving isn't limited to retired or older adults—most caregivers are actually employed, with a growing number balancing careers, child-rearing, and demanding care roles. Through personal stories and data, the episode dives into the emotional, physical, and financial toll caregiving takes, from invisible stressors and “sandwich generation” pressures to the impacts of loneliness and strained health.The episode also turns to solutions, as Rita Shula explains AARP's advocacy for practical policy changes such as tax credits, improved healthcare navigation, flexible savings accounts, and workplace support. Listeners will discover free resources, expert guides, and vibrant online support groups.SeniorLivingGuide.com Podcast sponsored by TerraBella Senior Living & Tom Marks, Best Selling Author on RetirementAARP 2025 Report LinkAARP Caregiving Resources The background music is written, performed, and produced exclusively by purple-planet.com.https://www.purple-planet.com/SeniorLivingGuide.com Webinars and Podcast represents the opinions and expertise of our guests. The content here is for informational and educational purposes. It does not necessarily represent the views, recommendations, opinions or advice of Fairfax
Have you reached the point where you're now fully responsible for your loved one's care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You've entered what we call "later on"—the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention and planning. This final phase completes our comprehensive 20-step roadmap for dementia caregiving, covering the essential steps when you've moved beyond the messy middle into full caregiving responsibility. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Guide: Navigating Dementia Caregiving Roadmap https://thecaregiversjourney.org/guides/ Donate: https://give.cornerstone.cc/thecaregiversjourney Full show notes Additional Resources Mentioned Later On - You are now managing all aspects of their care 18. Plan for their End of Life Service: You may have done this with your loved one just after their diagnosis. If not, do this without them now:26 minute TCJ podcast: 30. End of Life Service PreplanningTCJ blog: 30. End of Life Service PreplanningLeverage this End of Life Planning Worksheet. 19. Call in hospice. If you are not working with palliative care or a US Medicare GUIDE program organization (both of these are able to tell you when it's time to call in hospice)Find a hospice organization. Get a doctor's referral. Schedule an initial evaluation. It's almost never too early to get the initial evaluation, so don't wait.Search ‘hospice' + ‘your country' - or in the US - ‘your state'. Scroll down until you get below the sponsored links where it says ‘Places':Click on ‘More places' to get a list with a map. Notice rating stars and those located around your area.Schedule an initial consultation with two so you can compare.Educate yourself on when to call in hospice:26 minute TCJ podcast: 29. When To Call In HospiceTCJ blog: 29. When To Call In Hospice. 20. Continue your self-care. Learn about Anticipatory Grief. Read this AARP article:How To Manage Mourning a Loss Before It Happens.Honor your grief, be compassionate with yourself, reach out for support:Each of us navigates the loss of our loved one in our own time and way.It's reasonable when your caregiving journey ends you may feel any or all of:A sense of relief because your journey has ended and your loved one is no longer suffering, Guilty at the same time because you feel relieved.A loss of your own identity, from prioritizing your loved one for so long.Not sure what to do next.If you feel lost, reach out to your family, support group, faith community, friends, professionals. Most importantly - reach out! Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy!3. Later On - You are managing all aspects of their care.
Are you feeling overwhelmed by the complexity of dementia care? Do you find yourself wishing you had more support navigating medical decisions and planning for the future? You're not alone - and there's specialized help available that many caregivers don't fully understand. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we both wish we had understood what palliative care is and how to leverage it earlier in our journeys. Unfortunately, when palliative care was first explained to us, it was explained incorrectly, and neither of us took advantage of all the great things palliative care has to offer. We recently spoke with Dawn Kolderman, a registered nurse and Senior Clinical Director of Palliative Care Services at Avow, who has more than 30 years of nursing experience with the last 20 focused on palliative and hospice care. Dawn shared invaluable insights about palliative care that we wish we had known sooner. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Avow Palliative Care LinkSupport the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Understand What Palliative Care Actually Is The first step is clearing up common misconceptions about palliative care. Palliative care is a holistic approach to a life-limiting disease. This includes dementia — which is indeed a life-limiting disease. The key difference between palliative care and hospice care: Palliative care patients are at the beginning of their journey and are still seeking aggressive, curative treatment while seeing all their providers and specialistsHospice care patients are generally at the end of their journey, no longer seeking aggressive treatment, and focusing on comfort care. Palliative care is an additional supportive layer of care that works collaboratively with all your existing medical providers. Most importantly, palliative care focuses heavily on the caregiver. Tip 2: Call Palliative Care In — Here's How Many caregivers don't realize how accessible palliative care is or when to call it in. The answer is simple: the earlier, the better. Tip 3: Understand the Goals of Palliative Care Palliative care has specific, comprehensive goals that address both immediate and long-term needs. Primary goals include: Relieving physical symptoms first Supporting the caregiver and family Education and collaboration Advanced care planning (ACP). This crucial component involves sitting down with the patient, caregiver, and family to discuss important decisions while your loved one can still participate in these conversations. Tip 4: What Else You Need to Know About Palliative Care There are several important aspects of palliative care that many people don't realize. Your loved one won't look sick. The goal is to help them live their life fully. Early intervention builds stronger relationships. The nurse navigator's role is specifically to connect you with community resources you might not know about. Read More in This Blog here
Note: This episodes contains discussion and language of a sexual nature and may not be appropriate for all audiences.In this episode of Marrow Masters, we sit down with Dr. Christian Nelson, a psychologist at Memorial Sloan Kettering Cancer Center and an expert in psycho-oncology, to address a deeply personal yet often overlooked topic: male sexual dysfunction following cancer treatment. Together, we explore how treatments can impact not only physical function but emotional well-being, identity, and relationships.We start by acknowledging that sexual dysfunction is one of the most common side effects of cancer treatment, second only to fatigue. Yet, it's rarely discussed. Dr. Nelson emphasizes the importance of normalizing the conversation and encouraging patients to raise the issue with their treatment teams. He walks us through the emotional toll that erectile dysfunction can take on men, noting how it strikes at the core of masculinity and can lead to increased depression, frustration, and a general sense of brokenness. He stresses that it's not just about what happens in the bedroom—erectile issues can spill over into all aspects of a man's life, including his relationship with his partner.Dr. Nelson outlines a range of treatment options, from well-known medications like Viagra to lesser-known but effective methods like penile injections and implants. He breaks down the fear around these options, especially injections, and highlights how pain levels are often far lower than anticipated. Beyond physical treatments, we discuss the emotional and relational work that's often required. One key issue is avoidance—men avoiding sexual situations due to performance anxiety, which can snowball into long-term distance and silence between partners. Dr. Nelson makes it clear: the real risk isn't failure, it's not trying.We also dive into how couples can redefine intimacy. Many men associate sex solely with penetration, while their partners often value closeness and emotional connection more. Dr. Nelson advocates for expanding the sexual repertoire and restoring non-sexual forms of affection, which can be just as meaningful. We talk about the impact of testosterone—how its depletion can lower libido and cause men to unknowingly withdraw from their partners—and how testosterone replacement may be a viable option for some, depending on cancer type and treatment history.As roles shift from caregiver back to partner post-treatment, Dr. Nelson stresses the importance of open communication. He urges couples to work toward understanding each other's perspectives, not convincing each other. He shares an "aha" moment involving a couple who waited five years before seeking help, only to reconnect within three sessions after simply opening the lines of communication. The takeaway: don't wait.We close by pointing listeners toward additional resources, including certified sex therapists and specialized urologists, and Dr. Nelson highlights two key professional directories: SSTAR and AASECT. We're reminded that even the simplest questions—like whether it's okay to kiss your partner—deserve answers. It's on all of us, both patients and providers, to make room for these conversations.More:Episode with Dr. Flores: https://marrowmasters.simplecast.com/episodes/mens-sexual-health-gvhdEpisode with Dr. El Jawahri: https://marrowmasters.simplecast.com/episodes/dr-el-jawahriSSTAR (Society for Sex Therapy and Research) – https://sstarnet.orgAASECT (American Association of Sexuality Educators, Counselors and Therapists) – https://www.aasect.orgThanks to our Season 19 sponsors, Incyte and Sanofi.https://incyte.com/https://www.sanofi.com/en00:00 - Introduction to Season 19 and Dr. Christian Nelson 01:16 - Normalizing Conversations on Sexual Dysfunction 04:50 - Emotional Toll of Erectile Dysfunction 07:06 - Treatments: Pills, Injections, and Implants 09:03 - Avoidance and Anxiety in Sexual Relationships 12:17 - Expanding the Definition of Intimacy 16:43 - Role of Testosterone in Sexual Health 20:05 - Shifting from Caregiver to Partner 22:17 - Resources and Where to Get Help 26:29 - A Patient Story: Five Years of Silence 28:07 - Closing Thoughts and Resources National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
In this episode, we talk with caregiver Sylvia Chunn of Nashville, who shares her journey alongside her husband David through his diagnosis of AML, a stem cell transplant, and the ongoing challenges of GVHD. Sylvia walks us through their intense timeline, from David's emergency diagnosis in January 2024 to his transplant in July and their extended stay in Atlanta, away from home and their teenage children, until February 2025. Her husband's transplant was successful in its purpose, but complications like heart failure and GVHD turned their lives upside down.We explore the caregiving experience through Sylvia's eyes, especially navigating chronic GVHD symptoms that affect David's gut, eyes, mouth, joints, and skin. She explains how their lives are now filled with medical appointments, medications, and managing side effects from treatment. Sylvia describes her role as a blend of cheerleader and drill sergeant, ensuring medications are taken and appointments kept, while also offering emotional support.Sylvia emphasizes the importance of self-care during the process. With limited financial flexibility, she found peace in simple things like reading through a Facebook book club, daily personal devotions, and leaning on her faith. Exercise helped at times, although maintaining consistency was difficult. She openly shares that she sought mental health support, including therapy and medication, to deal with stress, guilt, and isolation.The conversation turns to how this journey has affected intimacy and family dynamics. Sylvia candidly reflects on how medical realities changed their physical relationship but ultimately brought them emotionally closer. Time spent together—reading, reminiscing, and watching shows—became a new form of connection. They rediscovered old routines from their early marriage and built a stronger bond through shared trials.Sylvia also shares how their children, especially their youngest teenage twins and their adult daughter in medical school, responded to the crisis. She notes how her kids matured emotionally, became more empathetic, and stepped up in unexpected ways.We close with Sylvia offering heartfelt advice to other caregivers: keep showing up, stay grateful, and never forget the power of hope. She reminds us that while this journey is incredibly difficult, it's also filled with unexpected moments of closeness, resilience, and love.Thanks to our Season 19 sponsors, Incyte and Sanofi.https://incyte.com/https://www.sanofi.com/en00:40 - Introduction to Sylvia Chunn01:15 - David's AML Diagnosis and Transplant Decision02:10 - Living Away from Home for Treatment03:40 - Navigating Chronic GVHD05:30 - Caregiver Role and Daily Routine06:40 - Self-Care and Coping Strategies08:20 - Mental Health Support for Caregivers09:40 - Isolation and Infection Risks11:55 - Impact on Intimacy and Marriage16:20 - Parenting Through the Crisis18:40 - Reflections on Family Growth20:40 - Final Thoughts and Advice to Caregivers National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
In this week's Celebrity discussion is, HOW PRINCESS DIANA'S £17M MISTAKE ENDED | EPISODE 332, we discuss how did a Princess not get it right!Does your mom have a retirement plan, or is she just planning on living forever?
Dive into a compelling discussion on embracing vulnerability, caregiving, and the complex relationships we have with our mothers. Join Marina Franklin and her incredible guests, Angela Nissel and Charla Lauriston, for a powerful episode. Angela Nissel is an author and television writer-producer best known for her comedic memoirs *The Broke Diaries* and *Mixed*, as well as her work on TV shows like *Scrubs* and *Mixed-ish*. Born and raised in Philadelphia, she graduated from the University of Pennsylvania before co-founding the music site Okayplayer with Questlove. After the success of her books, The Broke Diaries: The Completely True and Hilarious Misadventures of a Good Girl Gone Broke and Mixed: My Life in Black and White, she became a prominent writer and producer. She has a new memoir, *Good Grief, Pass the Bread, Mom Is Dead*, focusing on caring for her terminally ill mother and the humor and heartbreak of grief. Pre-order sales available now. Charla Lauriston is a comedian, TV writer (Grand Crew, Unbreakable Kimmy Schmidt, The Last O.G.), and ICF-certified life coach. She is the creator of the award-winning series Witchsters and the founder of The Werking Writer and Thriving with Mindfulness, platforms dedicated to helping creatives build their confidence, careers, and lives they love. Always hosted by Marina Franklin - One Hour Comedy Special: Single Black Female ( Amazon Prime, CW Network), TBS's The Last O.G, Last Week Tonight with John Oliver, Hysterical on FX, The Movie Trainwreck, Louie Season V, The Jim Gaffigan Show, Conan O'Brien, Stephen Colbert, HBO's Crashing, and The Breaks with Michelle Wolf. Writer for HBO's 'Divorce' and the new Tracy Morgan show on Paramount Plus: 'Crutch
Episode 126 - 2025 brought twists, wins and one announcement that changes everything. The sisters drop the news, spill the truth and ask every listener to jump in for what's next. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
Caring for elderly parents with dementia presents unique challenges for family caregivers, especially as memory loss progresses and decision-making becomes more complex. In this episode, caregiving expert Pamela D. Wilson shares vital caregiver tips and support strategies to help you navigate difficult choices when your aging loved ones can no longer fully understand or evaluate the consequences of decisions.Learn how to balance compassion in caregiving with the need for safety, including when to intervene in situations such as driving or living arrangements when caring for adult parents. Explore real dementia caregiver experiences and gain practical caregiver advice for managing caregiving challenges as memory loss advances with empathy and confidence.Pamela's extensive background as a home care agency owner, care manager, guardian, medical power of attorney, and expert witness provides valuable insights into eldercare solutions and offers proven and practical family caregiving support.Whether you are a new family caregiver of a person with dementia or seeking guidance on challenging family dynamics that can occur during dementia care, this episode offers eldercare solutions and actionable tips to support your caregiving journey. You'll find solutions to complex dementia caregiving challenges on this episode of The Caring Generation to share with your family members.Find podcast show transcripts and links mentioned in Episode 234 https://pameladwilson.com/caregiver-radio-programs-the-caring-generation/ For more caregiving, aging, and elder care tips for your caregiving journey, visit Pamela's website at https://www.PamelaDWilson.comLearn about Pamela D Wilson, her professional background, and her experience: https://pameladwilson.com/pamela-d-wilson-story/Schedule a 1:1 elder care consultation by telephone or video call with Pamela: https://pameladwilson.com/elder-care-consultant-aging-parent-consultation-managing-senior-care-needs-meet-with-pamela-d-wilson/Sign up for Pamela's newsletter here: https://pameladwilson.com/contact/Join Pamela's Online Caregiver Support Group on Facebook https://www.facebook.com/groups/thecaregivingtrap Follow Pamela on Social Media:Facebook: https://www.facebook.com/pameladwilsoncaregivingexpert/LinkedIn: https://www.linkedin.com/in/pameladwilsoncaregiverexpert/ X: https://www.x.com/CaregivingSpeakPamela D Wilson | Caregiver, Elderly Care & Caregiving Expert provides caregiver tips, support for caregivers, and resources for aging and elder care. Caregiving and aging for parents doesn't have to be challenging with expert caregiver advice, solutions, and strategies based on Pamela's 25 years of experience in care management, dementia care, and as an expert witness. Visit Pamela's website www.PamelaDWilson.com to access online caregiver programs, advice and tips to support caregivers and aging adults.©2018, 2025 Pamela D Wilson. All Rights Reserved
“In the marathon that is caregiving, the difference between exhaustion and endurance isn't willpower, it's the strength of the support network we build around us.” Sue Ryan Are you feeling overwhelmed by the responsibilities of caregiving? Do you find yourself thinking, “I don't have time to get everything done.” or “I should be able to do this myself.”? You're not alone, and there's a better way forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned building a strong personal support network is crucial for sustainable caregiving. Studies show that dementia family caregivers face overwhelming emotional challenges. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes: https://thecaregiversjourney.org/40-create-your-personal-support-network-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned 27. The Realities of Caregiver Self-Care https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/32. Navigating the Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess Your Needs and Make a List Ask yourself: Do I have time to get everything done that needs to be done?Am I physically strong enough to handle all caregiving tasks?Do I find myself losing patience or empathy?Is my loved one struggling with activities of daily living that I can't manage alone? If you answered yes to any of these questions, it's time to ask for help. Tip 2: Create a List of Who Can Help and What They Can Do Think about all the people who have offered to help or who might be willing to help. Map your list of potential helpers to your list of needs. If multiple people can help with a particular task, list them all—it's better not to rely on just one person. Tip 3: How to Effectively Ask for Help Recognize that some people want to help your care receiver, while others want to help you. Be specific and direct about what you need and why you need it.Remember that the people on your list have likely already offered to help or have shown willingness to support you.Adapt your approach based on the person you're asking. Tip 4: When People Offer to Help, Say "Yes" Avoid these common traps: "It would be easier just to do it myself.""No one can care for my loved one like I can.""I should be able to do this myself.""I feel guilty—they have their own busy lives." Tip 5: Maintain Your Support Network and Adjust as Things Change Encouraging open communication with your support team membersBeing proactive about finding new support team members when neededChecking in regularly with your helpers to keep them informed and engagedWatching for signs of burnout in your helpers—they may experience caregiver fatigue tooAddressing inflection points in your loved one's care needs Read More in This Blog https://sueryansolutions.medium.com/36-building-your-personal-caregiving-support-network-9f9639e9ae87
I'm delighted to welcome back to the podcast Dr. Barry Jacobs, and equally excited to welcome his co author and wife, Dr. Julia Mayer. Dr. Barry Jacobs is a clinical psychologist, family therapist, author and principal at Health Management Associates, a national healthcare consulting firm. He's the author of the emotional Survival Guide for Caregivers, and has been a trusted voice for caregivers through his long running aarp.org advice column. Dr. Julia Mayer is a clinical psychologist with over three decades of experience supporting women in caregiver roles as well as those with troubled marriages and histories of sexual trauma. She's the author of the novel A Fleeting State of Mind, and co-host of the psychology and social justice podcast Shrinks on Third. Together, Barry and Julia have co authored several AARP titles, and now they're back with their latest collaboration, The AARP Caregiver Answer Book. This compassionate and practical guide is a must have for anyone navigating the caregiving journey. Today, we're discussing some of the topics in their book, covering common challenges in caregiving: breaking promises, dealing with guilt and burnout, the emotional realities of caregiving and so much more. TRANSCRIPT For more support and community, find us at Daughterhood
In today's episode of A Time to Care: The Caregivers Podcast, we speak with Amy Chastain, author of How to Find God in the Caregiver's Journey. Amy opens her heart and shares how her personal relationship with God was both tested and strengthened through her caregiving experience. She candidly describes a time when she felt unworthy and had to return to the foundations of her faith to rebuild from within. Amy emphasizes the vital importance of community, even when it feels incredibly vulnerable to admit we need help. She reminds us that healing is not a one-time event but a journey—a process filled with highs and lows, including moments of anger, doubt, and even blame toward God. But, as Amy beautifully puts it, “God already knows it all—and still loves us exactly as we are.” She encourages caregivers to begin simply: by praying without filters. Don't try to tidy up your emotions. God won't run from your pain, frustration, or sorrow. In fact, it's in those raw and honest moments that He draws closest, offering strength and reassurance. Amy leaves us with a powerful message: caregiving is not just a role—it's sacred. It's holy work. And when we invite God into our caregiving journey, we not only care better for others, we also find the space to be cared for ourselves. Tune in to this deeply moving conversation and discover how spirituality and community can help anchor us in the storm. To contact Amy: Enduring Together: Strength for the Weary Caregiver https://a.co/d/gqtqNDq Caregivers | Encouragement from Amy Chastain
Have you ever felt overwhelmed because you don't know what information you need, can't find reliable sources, or feel frustrated by too much conflicting advice? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage. This podcast is bringing the first six essential steps to take immediately after diagnosis. Connect with us and share your tips: Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Full Show Notes Here In the Beginning - First Steps - Right after the diagnosis 1. Choose a palliative care organization. This will likely also serve as your hospice organization later in your journey. In your search engine, type ‘Palliative Care' + ‘the name of your country' or, in the US ‘the name of your state'. Schedule an initial consultation with more than one so you can compare. Educate yourself on what palliative care is: 27 minute The Caregiver's Journey (TCJ) podcast: 42. When To Call In Palliative Care 2. Create an Advance Care Plan. Get your legal documents in order and do some initial end of life preplanning with your loved ones input: Contact your attorney or an elder law attorney NAELA.org. Listen to this podcast or read this blog on elder law attorneys: 32 minute TCJ podcast: 31. Elder Law Attorneys Alzheimer's Association legal documents overview: Leverage this End of Life Planning Worksheet. 3. Understand the financial situation. Work with a financial advisor - especially those who focus on seniors. Elder law attorneys can also advise in this area. Alzheimer's Association resources overview of financial planning 4. Find support groups. First and foremost for you. If possible, find a support group you can attend in person: The Alzheimer's Association support group finder has support groups for a variety of types of dementia. If your loved one is interested a support group: Dementia minds has online groups for people living with dementia. Many local senior centers have support groups for your loved one to increase socialization: In the US, go to your ‘countyname'.gov website and search for a senior center. The Alzheimer's Association 24/7 helpline in the US: 1.800.272.3900. 5. Educate yourself on early caregiving journey topics. Listen to these two podcasts or read these two blogs. Memory Loss: 29 minute TCJ podcast: 2. Memory Loss Communication: 20 minute TCJ podcast: 3. Communication – in the Beginning 6. Investigate the US Medicare GUIDE program. Listen to this podcast or read this blog: 23 minute TCJ podcast: 39. Is the Medicare GUIDE program for you Understand if your loved one may be eligible: https://www.cms.gov/priorities/innovation/guide/faqs#ben-cgs. If you think you might be eligible, find a US Medicare GUIDE program provider near you. There may be several who cover your zip code so explore options. Go here to find a GUIDE program: Enter your state. Under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model'. Click ‘Display selected'. You can use the plus and minus signs in the upper right corner to zoom in closer to your area. When you find the location you want, click on the blue dot and detailed contact information will show. The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care. Full blog here
In this heartwarming episode, Jean Lee, AlzAuthors founder and author of Alzheimer's Daughter, joins us to discuss her personal journey of caring for both of her parents after their simultaneous Alzheimer's diagnosis. Jean shares how she journaled her family's dementia journey, the emotional process of turning those notes into a memoir, and the discovery of her parents' World War II love letters during the difficult process of moving them into memory care. The conversation covers crucial topics facing caregivers—navigating diagnoses, managing moves to different care facilities, supporting siblings at a distance, and confronting the emotions tied to sharing private family stories. Listeners will also hear about the importance of community, storytelling, and connecting with others who understand life on the dementia journey. Plus, don't miss Jean's poignant reading of her parents' correspondence and practical tips for families facing similar challenges. What You'll Hear In This Episode: Hear Jean's personal story of caring for both parents, who were diagnosed with Alzheimer's on the same day. Learn how her experience as a “hometown daughter” shaped her perspective on dementia and caregiving.Jean shares how a simple journal became an essential tool for tracking her parents' symptoms, achieving an earlier diagnosis, and eventually forming the backbone of her memoir.Discover the emotional and logistical challenges of transitioning parents with dementia into assisted living and secure memory care, and hear practical advice on how to handle repeated moves.An honest discussion about the moment of diagnosis—how doctors communicate difficult news, and what families can do when left with more questions than answers.Jean recounts the touching discovery of her parents' WWII love letters and how these preserved memories added richness and hope to her storytelling.Explore what keeps couples bonded through the trials of Alzheimer's, and how caregivers can find strength in family history and shared memories.From note-taking systems to balancing a full-time career with caregiving, Jean offers actionable strategies for dementia caregivers. After the Podcast Purchase “Alzheimer's Daughter” Read one of Jean's many blog posts Listen to another podcast featuring Jean Lee Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know. We've got merch! Shop our Store
Have you ever thought, "I wish I knew how to have a constructive conversation with my manager about how to align my work responsibilities and my caregiving responsibilities?" Today we're sharing strategies to help working family caregivers thrive at both work and at home. We're sharing four tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how caregivers often feel torn between their responsibilities at home and their professional responsibilities, which they're trying desperately to fulfill, often without support. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/41-aligning-work-and-caregiving-responsibilities-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Self-Identify and Strategically Disclose Assess your company culture firstExamples of supportive company policiesDisclose early in the journeyPlan your conversationFrame it collaborativelyDocument everything Tip 2: Build Flexibility Explore flexibility options in your organizationPropose pilot arrangementsConsider team involvementCreate backup plansLeverage technologyConsider career flexibility Tip 3: Leverage Your Resources Connect with colleagues who are also caregiversExplore Employee Assistance Programs (EAPs)Look for community resourcesTake things off your plate Tip 4: Plan for the Unplanned Understand your benefits and protectionsCreate a caregiving budgetExplore financial resourcesBuild an emergency fundPrepare for career transitions Read More in This Blog https://sueryansolutions.medium.com/40-building-your-personal-caregiving-support-network-9f9639e9ae87
In today's episode of A Time to Care: The Caregivers Podcast, we sit down with financial advisor Joel Arsenault for an eye-opening conversation about personal finance—especially for caregivers and families navigating later stages of life. Joel encourages us to go deeper into the topic of finances, reminding us that financial planning is not just for experts or investors—it's for everyone, especially those in caregiving roles. He reflects on how, in the past, financial decisions were often left solely to men, which created an imbalance in knowledge and confidence that still lingers today. Many people—particularly women—have been conditioned to feel ashamed or intimidated when it comes to talking about money. Joel challenges this mindset and emphasizes that not knowing something isn't a weakness; it's an opportunity to learn and grow. He also highlights a surprising fact: only a small percentage of people actually work with a financial advisor, despite how valuable that support can be. For caregivers who are managing not only their loved ones' needs but also their own futures, financial clarity can make all the difference.
Dementia is becoming one of healthcare's most difficult problems to ignore. As the population ages, more families are finding themselves responsible for loved ones who can no longer manage their own care, communicate symptoms clearly, or navigate the healthcare system. Research shows that people living with dementia are hospitalized far more often than those without it—even when age and other medical conditions are taken into account—fueling a cycle of stress, confusion, and hospital visits that are often avoidable with the right support in place.That raises a simple but uncomfortable question: if people living with dementia can't meaningfully engage with the healthcare system on their own, why do we keep designing care models that expect them to?That question sits at the heart of this episode of Highway to Health, hosted by David Kemp, featuring Dirk Soenksen, CEO of Ceresti Health. Together, they explore why family caregivers—not patients—are the most important and overlooked participants in dementia care. The conversation looks at what actually happens inside the home, how caregivers make daily decisions that affect outcomes, and why supporting them can improve quality of life while reducing strain on the healthcare system.Top insights from the talk…Why traditional patient engagement doesn't work for dementia: Cognitive impairment makes it unrealistic to rely on patients to self-report symptoms or manage care, often leaving them disconnected from timely medical support.How caregivers become the real care coordinators: When caregivers are educated and supported, they're better equipped to recognize changes, respond early, and work effectively with primary care physicians.What a caregiver-first model changes for the system: Ceresti Health's approach has shown meaningful reductions in avoidable hospitalizations, saving roughly $6,000 per patient per year while helping people remain at home longer.Dirk Soenksen is a healthcare executive and entrepreneur with a long track record of founding, scaling, and commercializing technology-enabled care and diagnostics companies. He is the co-founder and CEO of Ceresti Health, where he leads a caregiver-enabled dementia care model that delivers proven cost savings for Medicare Advantage plans, ACOs, and PACE programs, and participates in CMS's GUIDE model. Previously, he founded and scaled Aperio into a global leader in digital pathology—raising over $50M and leading the company through FDA clearances and a successful acquisition by Danaher—after earlier leadership roles in digital health, medical technology, and engineering.
Roughly 1 in 4 Americans now identifies as a family caregiver. That share has risen dramatically over the past decade. With more people needing care and limited options for affordable long-term care services in the United States, caregivers are strained—often mentally and financially. On today's show, Debra Whitman, chief public policy officer of AARP, joins Kimberly to unpack how this “invisible workforce” fits into the broader economy and how we can make caregiving more sustainable for families.Here's everything we talked about today:"Caregiving in the US 2025" from AARP"The number of “sandwich generation” caregivers is growing" from Marketplace "If Americans Were Paid For Their Caregiving, They Would Make More Than $1.1 Trillion" from the National Partnership for Women and Families"Returning to the Workforce After Being a Caregiver" from Harvard Business Review"Invisible crisis: America's caregivers and the $600 billion unpaid cost of their labor" from ABC News"Caregiving in the US 2025: Caring Across States" from AARPWe love hearing from you. Leave us a voicemail at 508-U-B-SMART or email makemesmart@marketplace.org.
Conscious Caregiving with L & L is "Tackling the Tough Conversations." The topic of this episode is "Holiday Gifts for Seniors" featuring hosts Lori La Bey and Lance A. Slatton. About Lori La Bey: Lori La Bey is the founder of Alzheimer's Speaks and is co-founder of Dementia Map global resource directory and the co-host of Conscious Caregiving with L & L. Lori's mother who lived with dementia for 30 years. Her goal has always been to shift dementia care from crisis to comfort around the world. She offers a variety of free resources to educate, empower, connect, and decrease stigmas; helping families and professionals live graciously alongside dementia. Lori is an international speaker known for her multiple platforms and training programs. Connect with Lori La Bey: Official Website: https://alzheimersspeaks.com/ Official Dementia Map Website: https://www.dementiamap.com/ About Lance A. Slatton - known as "The Senior Care Influencer"": Known as "The Senior Care Influencer" Lance is a Writer, Author, Influencer, and Healthcare professional with over 20 years in the healthcare industry. Lance A. Slatton is a senior case manager at Enriched Life Home Care Services in Livonia, MI. He is also host of the award winning podcast & YouTube channel All Home Care Matters and Co-Host of Conscious Caregiving with L & L with Lori La Bey along with The Care Advocates and The Caregiver's Journal. Lance's book, "The All Home Care Matters Official Family Caregivers' Guide" was the recent recipient of the 2024 International Impact Book Awards. Connect with Lance A. Slatton - "The Senior Care Influencer": Official Website: https://www.lanceaslatton.com Official Website for All Home Care Matters: https://www.allhomecarematters.com Lance A. Slatton and Lori La Bey Co-Host and Produce Conscious Caregiving with L & L. Visit their website at: https://consciouscaregivingll.com/
Roughly 1 in 4 Americans now identifies as a family caregiver. That share has risen dramatically over the past decade. With more people needing care and limited options for affordable long-term care services in the United States, caregivers are strained—often mentally and financially. On today's show, Debra Whitman, chief public policy officer of AARP, joins Kimberly to unpack how this “invisible workforce” fits into the broader economy and how we can make caregiving more sustainable for families.Here's everything we talked about today:"Caregiving in the US 2025" from AARP"The number of “sandwich generation” caregivers is growing" from Marketplace "If Americans Were Paid For Their Caregiving, They Would Make More Than $1.1 Trillion" from the National Partnership for Women and Families"Returning to the Workforce After Being a Caregiver" from Harvard Business Review"Invisible crisis: America's caregivers and the $600 billion unpaid cost of their labor" from ABC News"Caregiving in the US 2025: Caring Across States" from AARPWe love hearing from you. Leave us a voicemail at 508-U-B-SMART or email makemesmart@marketplace.org.
Scott Capozza and I could have been cloned in a bad lab experiment. Both diagnosed with cancer in our early twenties. Both raised on dial-up and mixtapes. Both now boy-girl twin dads with speech-therapist wives and a lifelong grudge against insurance companies. Scott is the first and only full-time oncology physical therapist at Yale New Haven Health, which means if he catches a cold, cancer rehab in Connecticut flatlines. He's part of a small, stubborn tribe of providers who believe movement belongs in cancer care, not just after it. We talked about sperm banking in the nineties, marathon training during chemo, and what it means to be told you're “otherwise healthy” when your lungs, ears, and fertility disagree. Scott's proof that survivorship is not a finish line. It's an endurance event with no medals, just perspective.RELATED LINKSScott Capozza on LinkedIn: https://www.linkedin.com/in/scott-capozza-a68873257Yale New Haven Health: https://www.ynhh.orgExercising Through Cancer: https://www.exercisingthroughcancer.com/team/scott-capozza-pt-msptProfiles in Survivorship – Yale Medicine: https://medicine.yale.edu/news-article/profiles-in-survivorship-scott-capozzaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode, Carolyn Foster, MD, FAAP, discusses the financing of pediatric home health care. David Hill, MD, FAAP, and Joanna Parga-Belinkie, MD, FAAP, also speak with Emily Johnston, MD, and Sarah McCarthy, PhD, about partnering with caregivers in bereavement research. For resources go to aap.org/podcast.
In this episode of the StartUp Health NOW podcast, Unity Stoakes sits down with Mitul Desai, co-founder of The Care Hack, a member of StartUp Health's Caregiving Moonshot Community. Desai opens up about the decades-long journey that began when his younger brother was diagnosed with schizophrenia and his family became full-time caregivers – with no support, no training, and no roadmap. Drawing from this lived experience, Mitul partnered with psychiatrist Dr. Eli Shalenberg to launch The Care Hack, a platform purpose-built for cognitive caregivers – those supporting loved ones with long-term brain and mental health conditions. Together, they're on a mission to bring caregivers into the center of the healthcare system, not just as recipients of support, but as key contributors to better outcomes and lower costs. You'll hear why Mitul left a successful career in law, policy, and tech to pursue this mission, how The Care Hack is partnering with providers and payers to scale what already works, and what it means to create infrastructure for the “second healthcare system” that families already power every day. Listen to learn why The Care Hack isn't just another health app – it's a movement grounded in empathy, evidence, and a belief that caregivers can change everything when given the right tools. Want to meet founders like Mitul in person? Join us at Apollo House at JPM Healthcare Week in January. Are you ready to tell YOUR story? Members of our Health Moonshot Communities are leading startups with breakthrough technology-driven solutions for the world's biggest health challenges. Exposure in StartUp Health Media to our global audience of investors and partners – including our podcast, newsletters, magazine, and YouTube channel – is a benefit of our Health Moonshot PRO Membership. To schedule a call and see if you qualify to join and increase brand awareness through our multi-media storytelling efforts, submit our three-minute application. If you're mission-driven, collaborative, and ready to contribute as much as you gain, you might be the perfect fit. » Learn more and apply today. Want more content like this? Sign up for StartUp Health Insider™ to get funding insights, news, and special updates delivered to your inbox.
Whether you're grieving someone who's passed or experiencing the aching shift of someoneIn this deeply emotional episode, Charlotte gently guides caregivers through the quiet grief that lives in everyday spaces: the scent of a familiar cologne, a tradition now missing someone, a chair no longer filled. Charlotte explores the invisible weight of anticipated grief, the myth of “moving on,” and the raw honesty of loving someone even when they're no longer here in the same way. You'll learn how to stay present with the absence without rushing past it or forcing a silver lining. This isn't about closure. It's about continuing.She offers a beautifully guided Memory-Holding Ritual and shares tender reflections on the complex truth of memory, the layered grief of caregiving, and why love always leaves a mark even when the chair is empty.Find your Free Scanxiety Toolkit at https://www.cancercaregiverpodcast.com/tools
In this heartwarming and deeply reflective episode, hosts Marianne Sciucco and Christy Byrne Yates are joined by award-winning filmmaker, bestselling author, and dementia advocate C. Nathaniel (Chuck) Brown, to discuss his touching short film “The Present.” Centered around the holidays, “The Present” explores the profound grief and complex emotions that follow the loss of a loved one to dementia. Together, this panel discussion, which includes film festival participants Susie Singer Carter and Kitty Norton and others, delves into the impact of preserving memories, supporting caregivers, and navigating the waves of grief during the holiday season. Key Themes & Takeaways 1. Navigating Grief Through the Holidays The episode provides a compassionate space to talk about the unique ways families experience grief after losing someone to dementia, especially when “the firsts” of holidays and milestones arrive. The importance of being intentional with memory-making, and allowing yourself and others grace during emotionally charged holiday gatherings. 2. Legacy and Memory Preservation Chuck shares the inspiration behind “The Present” — encouraging families to record stories, capture everyday moments, and find creative ways to leave a legacy for future generations. The episode discusses different approaches: written notes, photo books, video recordings, and even collaborative family projects like Christmas books.Emphasizes that “the present” is both the gift of NOW and an opportunity to create memories that comfort and connect after loss. 3. Filling the Silence Around Dementia The hosts and guest highlight the stigma and silence that often surrounds dementia and how storytelling—through books and film—can break barriers and offer support to grieving families. 4. Compassionate Support for Caregivers and Families The discussion reinforces that grief after dementia is unique and ongoing.Chuck and the group discuss supporting one another without assumptions—acknowledging that everyone's grieving process is different.Practical advice for loved ones: Don't shy away from mentioning the loss. Extend empathy and connection—sometimes just being present is enough. 5. The Role of Art and Community in Healing Chuck shares his work with Exposed Dementia Inc., using the arts as a tool for healing, education, and advocacy.Upcoming dementia-friendly events, including conferences, art exhibits, and ways to get involved. Resources & Further Support Watch “The Present” and other festival films: AlzAuthors Film Festival. Links expire 12/31/2025.Explore more from C. Nathaniel Brown including details on the Exposed Dementia Conference Film Festival & Art Exhibit (March 2026) at Exposed Dementia Inc.Discover our dementia resources: Over 150 podcast episodes, 100's of quality books, blogs, and more at AlzAuthors.com. Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org We've got merch! Shop our Store
Caregiving is an act of love, but it can also be exhausting, overwhelming, and emotionally heavy. That's why self-care for caregivers isn't selfish. It's essential. In this episode of A Couple Takes on MS, we're joined by Susanne White, a best-selling author and passionate voice in the caregiver advocacy community. Susanne shares how stepping into a caregiving role for her parents changed her life and ultimately led her to dedicate her work to supporting caregivers everywhere. Together, we talk honestly about the realities caregivers face, including: What caregiver burnout looks like and why it's often hard to recognize Why guilt so often comes with the caregiving role How the pressure to be perfect and to do everything alone can take a real toll Throughout the conversation, Susanne offers powerful insights about reframing success, accepting imperfection, and learning to be kind to yourself while caring for someone else. Susanne reminds us that caregivers were never meant to do this work in isolation. Community, communication, and self-awareness aren't optional. They're essential to sustaining care over time. We also talk about her book, Self-Care for Caregivers, a practical and accessible resource made for caregivers who are short on time but still need support. Here are the links we referenced that offer depth and insights for our conversation: • caregiverwarrior.com – Official website for you to access Susanne's perspectives and insights on living as a caregiver and getting the support you need. • Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One – Learn more about and order your copy of Susanne's book that's described as, “The ultimate caregivers' guide to resilience, strength, and balance.” *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.
In this episode of the JIMD Podcast, Terry G. J. Derks, Alessandro Rossi, Sarah C. Grünert and Yunkoo Kang talk about the evolving role of continuous glucose monitoring (CGM) in liver glycogen storage diseases. The conversation spans international consensus on CGM use and an exciting deep-learning approach to predicting hypoglycaemia, pointing towards more personalised and preventive care for people living with GSD. State of the Art and Consensus Statements by Healthcare Providers, Patients, and Caregivers on Continuous Glucose Monitoring in Liver Glycogen Storage Diseases Terry G. J. Derks, et al https://doi.org/10.1002/jimd.70040 and A deep learning approach for blood glucose monitoring and hypoglycemia prediction in glycogen storage disease Ji Seung Ryu, et al https://www.nature.com/articles/s41598-025-97391-8
In episode 99 of the Summits Podcast, co-hosts Vince Todd, Jr. and Daniel Abdallah are joined by Andrew Peters, Team Heroes cyclist and Division Manager at Republic National Distributing Company. Tune in as Andrew shares about surviving brain cancer, leaning on faith and good health habits to get through hard times, and how he's giving back to others facing a similar battle.
Oglethorpe University and The King Center are partnering to teach Dr. Martin Luther King Jr.’s way of leadership – centering nonviolence, civic responsibility, courage and compassion. Under their new partnership agreement, four selected Oglethorpe students will participate in The King Center Scholars Program and receive The King Center's Nonviolence365 training. We hear from Oglethorpe University’s Dr. Kendra King Momon, a politics professor and the associate provost of academic affairs, and Dr. Gabriel Barreneche, a provost and vice president for academic affairs. They discuss details about the partnership that allows students to learn more about Dr. King’s principles. Plus, data from the National Alliance for Caregiving reveals 1 in 4 adults in the U.S. are caregivers. Along with caring for a loved one, many caregivers are juggling careers and other responsibilities. It’s something Chanel T. Rowe, an Atlanta-based attorney and caregiving advocate, understands. Since 2019, she’s been navigating the many experiences that come with being a caregiver. Rowe talks with program host Rose Scott about her journey and the hope and inspiration she wants readers to gain from her new book, “Finding Balance: A Devotional to Help Caregivers Move from Suffering to Strength.”See omnystudio.com/listener for privacy information.
Codey: Early Humanoid Prototype for Kids & Caregivers by Marwa ElDiwiny
Caregiving is relentless. The needs don't pause, the stress doesn't politely wait, and the temptation to put ourselves last feels almost virtuous. But in this episode of Hope for the Caregiver, I push back on a lie many of us live with: that our health is expendable. Joined by my longtime friend and health coach Dale Richardson, we talk candidly about weight, stress eating, and the quiet ways caregivers drift into unhealthy patterns, especially during the holidays. This isn't about shame, gimmicks, or willpower. It's about intentionality. I share my own journey, losing weight, gaining it back during months in the hospital with Gracie, and then recommitting again, not out of vanity, but out of necessity. I'm no good to my wife if I'm fat, broken, and miserable. That hard truth drives everything. Dale helps reframe food not as comfort, reward, or failure, but as fuel. Emotional eating isn't a moral flaw. It's often a stress response. The question isn't "Why am I weak?" but "What am I carrying?" Caregivers already know the answer. We talk about simple, sustainable choices: • Eating with a plan, especially at holidays • Understanding portions without demonizing food • Why "starting over Monday" keeps us stuck • The value of accountability that doesn't condemn • Staying active in real life, not just gyms and step counters We also explore why community matters. Lone-ranger caregiving is dangerous. Having someone who understands the weight you carry, and walks with you toward healthier choices, can change everything. The episode closes with a reminder grounded in Advent hope and the hymn Hark! The Herald Angels Sing. Christ did not come for people who had it together. He came for the weary, the burdened, and the broken. That includes caregivers. You don't accidentally get healthy. But with intention, support, and grace, you can move toward strength, not just for yourself, but for those who depend on you. Healthy caregivers make better caregivers. Your future self, and your loved one, will thank you. The 2026 Caregiver Calendar is now available! Click for more information!
When the news cycle is loud and life is already heavy, your nervous system pays the bill. In this episode of Healthy Mind, Healthy Life, host Charu talks with Andrea W LeDew, a former lawyer and mother of four, about turning political stress, grief and caregiver burnout into something usable through poetry, journaling and structured creative expression. Andrea shares how parenting a son with autism and intellectual disabilities, managing estate responsibilities after losing both parents and living through pandemic-era uncertainty pushed her toward writing as a mental health tool. The conversation also goes straight at the uncomfortable stuff. Emotional eating as coping, self-compassion vs self-sabotage, activism vs burnout and how to stay engaged without spiraling into rumination. Andrea's book Polemics: Political Poetry, Poems and Prose frames writing as survival and invites listeners to process big emotions without pretending the world is not on fire. About the Guest: Andrea W LeDew is a former lawyer turned stay-at-home mother of four and a writer focused on poetry and essays that explore political change, civic identity and emotional resilience. Her book Polemics: Political Poetry, Poems and Prosebrings together years of work shaped by grief, caregiving and public events. Key Takeaways: Political stress is real mental load. Naming it reduces shame and makes it workable for mental health and emotional well-being. Writing can function like therapy when it helps you feel, label and metabolize grief, rage and fear instead of suppressing them. Structure matters. Rhyme, form and constraints can keep expression honest without turning into endless rumination. Caregiver life adds chronic stress. If you are parenting autism or disability needs, coping tools must be realistic, not performative wellness. Comfort eating is common. The key line is habit. When coping becomes automatic daily behavior it shifts from self-compassion to self-sabotage. Activism can be healthier than hiding if it moves you from helplessness into values-based action and community connection. You can hold patriotism and critique at the same time. Reclaiming belonging should not erase marginalized experiences. Free speech and civic participation are not abstract. They are day-to-day practices that protect mental health through agency. “Touch grass” advice is incomplete. A better play is balanced inputs, boundaries on doomscrolling and intentional creative output. Your story is not finished. Creativity gives shape to chaos so it becomes something you can hold. Connect With Andrea W LeDew: Book page: https://books2read.com/polemics Website: https://frlcnews.com/ Want to be a guest on Healthy Mind, Healthy Life? DM on PM - Send me a message on PodMatch DM Me Here: https://www.podmatch.com/hostdetailpreview/avik Disclaimer: This video is for educational and informational purposes only. The views expressed are the personal opinions of the guest and do not reflect the views of the host or Healthy Mind By Avik™️. We do not intend to harm, defame, or discredit any person, organization, brand, product, country, or profession mentioned. All third-party media used remain the property of their respective owners and are used under fair use for informational purposes. By watching, you acknowledge and accept this disclaimer. Healthy Mind By Avik™️ is a global platform redefining mental health as a necessity, not a luxury. Born during the pandemic, it's become a sanctuary for healing, growth, and mindful living. Hosted by Avik Chakraborty. storyteller, survivor, wellness advocate. this channel shares powerful podcasts and soul-nurturing conversations on: • Mental Health & Emotional Well-being • Mindfulness & Spiritual Growth • Holistic Healing & Conscious Living • Trauma Recovery & Self-Empowerment With over 4,400+ episodes and 168.4K+ global listeners, join us as we unite voices, break stigma, and build a world where every story matters.