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Blair McKnight & Elora Fucigna are Live from Bimini, Bahamas at the 2019 Crossing for a Cure. They give updates on what is going on & how much they have fundraised for Piper’s Angels Foundation with 2 days to go. This show is broadcast live on Wednesday's at 7PM ET on W4CY Radio – (www.w4cy.com) part of Talk 4 Radio (http://www.talk4radio.com/) on the Talk 4 Media Network (http://www.talk4media.com/).
Exclusive interview with Travis Suit, the founder of Piper’s Angels Foundation and Crossing For A Cure. Managing Associate D.J. Barker, CWS® is participating in the Crossing, an epic paddleboard challenge benefitting cystic fibrosis.
Exclusive interview with Travis Suit, the founder of Piper’s Angels Foundation and Crossing For A Cure. Managing Associate D.J. Barker, CWS® is participating in the Crossing, an epic paddleboard challenge benefitting cystic fibrosis.
Exclusive interview with Travis Suit, the founder of Piper’s Angels Foundation and Crossing For A Cure. Managing Associate D.J. Barker, CWS® is participating in the Crossing, an epic paddleboard challenge benefitting cystic fibrosis.
We are re-sharing an interview that has been a favorite for many listeners. May is Cystic Fibrosis Awareness Month, and Sophie is embarking on another adventure and fitness challenge. This time, it’s Crossing For A Cure—80 miles on a paddle board from Florida to the Bahamas to raise money to find a cure for Cystic Fibrosis. Sophie Grace Holmes was born with Cystic Fibrosis (CF). When she was 19, a doctor told her she was going to die within a few years. She set out to prove him wrong, quitting her office job and organizing her life around health and fitness. Sophie is now 27 years old. She is a fitness model, a trainer, a massage therapist and a motivational speaker. She thrives on challenges, and her many accomplishments include completing a 100k and summiting Mt. Kilimanjaro and Mt. Blanc. Story Reference Points: What is Cystic Fibrosis? @ 1:49 Sophie's diagnosis with Cystic Fibrosis @ 3:15 Sophie's turning point at 19 @ 6:19 Sophie's recent climb of Mt. Blanc @ 14:36 Social Media and CF @ 19:35 Pioneering better treatment plans for CF with a focus on exercise and nutrition @ 22:54 Sophie's perspective on bringing a child with CF into the world @ 30:58 Sophie's perspective on life expectancy and plans for the future @ 33:35 Links and Resources Sophie on Instagram Crossing for a Cure on Instagram Piper’s Angels Sophie’s website Cystic Fibrosis Trust (U.K. org) The Cystic Fibrosis Foundation (U.S. org) Newborn Screening in the U.K. Newborn Screening in the U.S. Check out other Patient Stories podcast episodes. Read other Patient Stories on the Grey Genetics Patient Stories Page Do you want to support Patient Stories? You can now make a donation online! Want to support Patient Stories in a non-monetary way? Leave us a review on iTunes, or share your favorite episodes on Social Media. Patient Stories on Twitter: @GreyGeneticsPod Patient Stories on Instagram: @patientstoriespodcast Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. Choose from our growing Network of Genetic Counselors. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone.
In Episode 58 we speak with Alice Henley, a woman of South Florida who thrives on land and ocean endurance challenges. Alice shares her stories of finding her passion for prone paddling, her evolution as a competitive racer, and her mind-set to pull through the heavy mental challenges endurance sports present. Alice takes us through being seasick in the 2017 M2O race, and the incredible story of her 2018 M2O solo crossing where almost everything went wrong -- except her will to finish (this may be the gnarliest M2O story I've heard so far...). We hear of the marine rescue scene in South Florida, Alice's well-rounded cross-training regimen, and Alice's major focus on Crossing For A Cure where she plans to paddle 80 miles from Bimini, Bahamas back to Florida to raise money for Cystic Fibrosis in June, 2019 (link to donate is below!!!) Thanks for sharing Alice's ocean life with us. You can find pictures and video of her on Instagram , Facebook, and support her Crossing For A Cure paddle by donating on her fundraising website. You can also find good stuff on the ThisOceanLife.TV Instagram and Facebook pages. We are on Twitter ranting about anything cool happening in the ocean. This episode is sponsored by Shearwater Paddleboards, a family-owned company that hand-crafts prone paddle boards and surfboards in rugged Northern California. Now offering a line of open water GROM PADDLE BOARDS! If you want to be fast, smooth, and comfortable in the water check them out at www.ShearWaterPaddleboards.com
Join the Epic Love Radio Crew and special guest Talia Schizzano of Tallymark Productions! Talia is an award winning film director and the creative talent behind the Crossing For A Cure short film documentary series.This show is broadcast live on Monday's at 6PM ET on W4CY Radio – (www.w4cy.com) part of Talk 4 Radio (http://www.talk4radio.com/) on the Talk 4 Media Network (http://www.talk4media.com/).
Join the Epic Love Radio Crew and special guest Lauren Wertepny of Power Design! As a long time friend of Travis Suit, Lauren has been a supporter of the Crossing For A Cure and Piper's Angels Foundation since its inception and was a paddler in the Crossing For A Cure event on Team Heart Power.This show is broadcast live on Monday's at 6PM ET on W4CY Radio – (www.w4cy.com) part of Talk 4 Radio (http://www.talk4radio.com/) on the Talk 4 Media Network (http://www.talk4media.com/).
Join the Epic Love Radio Crew and special returning guest Ben Mudge for a special post-Crossing For A Cure recap! Ben Mudge is an internationally recognized leader in the fitness industry and advocate for cystic fibrosis.This show is broadcast live on Monday's at 6PM ET on W4CY Radio – (www.w4cy.com) part of Talk 4 Radio (http://www.talk4radio.com/) on the Talk 4 Media Network (http://www.talk4media.com/).