Podcasts about Cystic fibrosis

In this podcast, Brett M. Elicker, MD, and David E. Griffith, MD, ATSF, FACCP, FRSM, discuss the pathophysiology of non–cystic fibrosis bronchiectasis (NCFBE), the patient burden, and best practices with diagnosing NCFBE, including:The vicious vortex of NCFBE (ie, airway dysfunction, inflammation, infection)Cough as the most significant symptom and burdenImaging bronchiectasis with classic and inflammatory findingsDifferentiating the causes of NCFBE to inform patient carePresentersBrett M. Elicker, MDProfessor of Clinical RadiologyChief, Cardiothoracic Imaging DivisionDepartment of Radiology & Biomedical ImagingUniversity of California, San FranciscoSan Francisco, CaliforniaDavid E. Griffith, MD, ATSF, FACCP, FRSMProfessor of MedicineDivision of Mycobacterial and Respiratory DiseasesDepartment of MedicineNational Jewish HealthDenver, ColoradoProgram page: https://bit.ly/4mZbYsm

In this podcast, Brett M. Elicker, MD, and David E. Griffith, MD, ATSF, FACCP, FRSM, discuss the pathophysiology of non–cystic fibrosis bronchiectasis (NCFBE), the patient burden, and best practices with diagnosing NCFBE, including:The vicious vortex of NCFBE (ie, airway dysfunction, inflammation, infection)Cough as the most significant symptom and burdenImaging bronchiectasis with classic and inflammatory findingsDifferentiating the causes of NCFBE to inform patient carePresentersBrett M. Elicker, MDProfessor of Clinical RadiologyChief, Cardiothoracic Imaging DivisionDepartment of Radiology & Biomedical ImagingUniversity of California, San FranciscoSan Francisco, CaliforniaDavid E. Griffith, MD, ATSF, FACCP, FRSMProfessor of MedicineDivision of Mycobacterial and Respiratory DiseasesDepartment of MedicineNational Jewish HealthDenver, ColoradoProgram page: https://bit.ly/4mZbYsm

"Oh, the people you'll meet, and the places you'll go..."That classic Dr. Seuss line couldn't have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quiet presence with a resume that reads like a roadmap through the last 30 years of rare disease breakthroughs, Dr. Cohn is the kind of person who reminds you just how much heart and science it takes to change lives.Dr. Gabe Cohn is the Executive Director and Medical Director of the Rosenau Family Research Foundation. He stepped into the role in October, bringing with him over three decades of experience that spans academic medicine and the biotechnology industry. A licensed, board-certified Clinical Geneticist and Obstetrician-Gynecologist, Dr. Cohn has contributed to the development of multiple therapeutics aimed at treating rare genetic disorders—a career built on both clinical precision and compassionate innovation.Beyond RFRF, he's also the Chief Medical Officer at iECURE, Inc., a biotech company pioneering gene editing therapies for rare diseases. His prior leadership roles at Homology Medicines, AVROBIO, OvaScience, and Shire reflect a steady focus on advancing gene therapy and editing platforms. Since 2017 alone, he's played a pivotal role in getting five different cell and gene therapy programs past the critical regulatory gatekeeping stages of IND and CTA submissions.Dr. Cohn isn't just a scientist—he's a builder, a connector, and a relentless advocate for the potential of genetic medicine to rewrite the future for patients with rare diseases.If you would like to get a hold of the Rosenau Foundation: https://rosenaufoundation.org Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

A look at how cystic fibrosis has become more treatable with a doctor who has studied it for 50 years. And a new folk art museum opens in the Amana Colonies.

It's been a fast rise to major glory, A little over two years on from his first tee shot in the elite game David concurs Baltray and returns to Fota Island as the East of Ireland champion.David's first love was pitch & putt and heading to the course with his family, diagnosed with Cystic Fibrosis at a young age he would have to overcome many challenges along the way, but doing well now he has set out on his golf journey. enjoyed this chat and hope you do too.

Send us a textFormer Mississippi State Diamond Dawg National Champion and SEC Player of the Year Tanner Allen is back on Johnny's World. TA talks about NCAA baseball regionals, MSU coaching hire, and gives his predictions on what teams he thinks will make it to Omaha this year. TA also gives us an update on how he's teaching young kids the game of baseball and how his faith in God plays an important role in his journey.To support our mission to raise funds for Cystic Fibrosis be sure to buy a fresh roasted bag of coffee from Johnnypacker.netSupport the show

This episode of Kiwi Birth Tales is proudly brought to you by Your Birth Project, if you are pregnant you need YBP in your life!In this episode of Kiwi Birth Tales, I speak to Mads. Some of the topics we cover:Concerns at scan - perforated bowel Cystic Fibrosis screening, testing and confirmationRonald McDonald House in Christchurch Putting life on hold waiting for next steps Navigating work with pregnancy complicationsHypertension Preeclampsia Premature birth 35 weeks NICU Surgery after birth Repeat hospital stays due to illnessPostnatal depressionFunding for Cystic Fibrosis medicines Your Birth Project Online Hypnobirthing Coursehttps://www.fertilityassociates.co.nz/book-a-free-nurse-consultPlease seek support for any mental health concerns, some helpful links are below:Mental Health in PregnancyPerinatal Depression and Anxiety Aotearoa Plunket - Dads Mental HealthLittle Shadow - Private Counselling NZFind me @kiwibirthtales and @yourbirthproject Hosted on Acast. See acast.com/privacy for more information.

Live from Mix and Mingle Education Day: A Powerful Conversation with CaregiversIn this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of caregivers—grandparents, parents, stepparents, dads, and friends—for a heartfelt discussion about the emotional journey of caring for a loved one with cystic fibrosis.What started as a simple idea to gather voices turned into our most beautiful and emotional podcast yet. There were tears, laughter, and unforgettable stories. We were honored to be joined by a Grief Counselor who helped guide us through the complex feelings that surfaced during our conversation.This episode is a raw, real, and uplifting tribute to the strength, vulnerability, and love that caregivers bring to their roles every single day.Join us for a conversation that honors the heart of caregiving and the power of community.You'll hear from:(00:00:00) Laura Bonnell - Host - (Egypt, Foundation programs, legislation)(00:16:49)  Lois Teicher - CF Grandmother (Laura's Mom) (00:19:05)  Natalie Wicks Lois's partner(00:21:36) Julie Weatherhead - Grief Doula(00:28:45)  Sharon Tischio - CF Mom(00:33:08) Cambria Whitaker - CF Mom in a queer/transgender relationship(00:38:55) Theresa Dagget, MSU Clinic, Respiratory Therapist, CF coordinator(00:49:00 ) Dorothy Stratford,CF Family Caregiver(00:52:15) Jillian Rogers Smith, 33 year old CF Patient and Dad, Bill Rogers (01:01:40) CF Mom to 6 year old daughter Louisa(01:07:28) Wendi Tague (Nurse Coordinator) and Claire Haglund (Social Worker) Present but not on the microphone were Joe Bonnell (Laura's husband), Jeannette Bovensie (Dorothy's Mom) and Dani Nettleton and daughter.Claire Haglund: CHaglund@dmc.orgWendi Tague: wtague@dmc.orgLois Teicher (Laura's Mom): Loisteicher@yahoo.comNatalie Wicks: Piccolo35@gmail.comTheresa Daggett: daggett3@msu.eduCambria Whittaker: cambriawhitta@gmail.comDorothy Straford: dstrat701@gmail.comSharon Tischio: stischio@comcast.netJamie Rudnycky: jamie.rudnycky@gmail.comJulie Weatherhead: weathervanecounseling@gmail.comJillian Smith, Jillian's Jay Walkers: jill@jilliansjaywalkers.org   And Jillian's Dad, Bill Rogers Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

Beat Migs! And we chat from our live appearance at the Cystic Fibrosis walk.

We emceed the Cystic Fibrosis walk yesterday at Seattle Center, and got to raise over $230K!

Cystic Fibrosis and obesity?  Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the concern is now a reality.  University of Michigan CF doctor, Carey Lumeng is researching the issue.  As he says in this podcast, researchers have a lot to learn about the connection between better health in CF and obesity.  We also talk about The Bonnell Foundation fellowship program. A few years ago we started the program to encourage doctors to work in the specialty field of cystic fibrosis. Dr. Lumeng is one of the doctors who oversees this program.Dr. Lumeng is the Frederick G.L. Huetwell Professor for the Cure and Prevention of Birth Defects and Professor in Pediatrics and Molecular and Integrative Physiology. Dr. Lumeng is the Division Chief of Pediatric Pulmonology at the C.S. Mott Children's Hospital and Associate Director of the Michigan MSTP Program.He grew up in Indiana and graduated from Princeton University in Molecular Biology. He received his PhD in Human Genetics and MD from the University of Michigan and completed residency training in Pediatrics in the Boston Combined Pediatrics Residency Program at Boston Children's Hospital and Boston Medical Center. He then completed fellowship training in Pediatric Pulmonology at the University of Michigan and started as faculty in 2006.  He runs a research lab focused on the health effects of obesity and the links between metabolism and lung health. The laboratory participates in both basic science and translational research projects in adult and pediatric obesity. He is funded by the NIH and the CF Foundation for new projects studying the changing causes of diabetes in people with CF.To contact the CF pediatric department (the Bonnell girls are pictured on this page): https://www.mottchildren.org/conditions-treatments/cystic-fibrosis-pediatric?pk_vid=6ff46bd2d38fe04c1739891353f5b28b Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

What does it mean to embody true beauty in a world obsessed with appearances? In this inspiring episode of the Raising Godly Girls Podcast, Patti Garibay is joined by none other than Miss America* 2025, Abbie Stockard, to explore how faith, girlhood, and purpose can shine even in the most public of arenas. With grace and conviction, Abbie shares how her identity in Christ shapes everything—from her passion for pediatric nursing and her advocacy for Cystic Fibrosis, to her bold stance on inner beauty and self-worth in the pageant world.  A proud Alabama native and senior at Auburn University, Abbie has used her platform to raise over $200,000 for CF research and promote healthy habits in children through her “High Five for Kids” initiative. But what sets Abbie apart isn't just her crown—it's her heart. With remarkable vulnerability and insight, she opens up about the fire God placed in her belly and how her family and faith community nurtured that calling from a young age.  Patti and Abbie tackle big questions moms are asking today: How can we help our daughters dream big while keeping Christ at the center? How do we preserve the innocence and wonder of girlhood in a world that pushes girls to grow up too fast? And how can we teach our daughters to find their worth not in the mirror or on social media, but in the unchanging truth of God's Word?  This episode is a heartfelt celebration of young women who boldly pursue their God-given purpose—and a powerful reminder to mothers that your influence matters deeply. Whether your daughter dreams of a stage, a stethoscope, or something in between, this conversation will encourage you to walk alongside her with intentionality, love, and unshakable faith.  Don't miss this opportunity to hear from a young woman who's not just wearing a crown—but living out her calling to reflect the beauty and goodness of the King.  Learn more about Abbie and her work as Miss America at missamerica.org  Find an American Heritage Girls Troop near you, visit americanheritagegirls.org       Add even more Biblical wisdom to your parenting quiver, visit raisinggodlygirls.com   *American Heritage Girls is not affiliated with, nor does it formally endorse, the Miss America organization. While we are grateful for the opportunity to welcome Abbie Stockard—whose strong Biblical Worldview and devoted walk with the Lord inspire us—we want to clarify that her appearance at our event does not reflect an endorsement of the Miss America organization. Our enthusiasm for Abbie stems from her personal testimony, her character, and her commitment to living out her faith with integrity. 

The True Blue Podcast is proud to introduce Cst. Tyrus Sleightholme (Class #174) and so happy to see him achieving his goal of serving as a police officer.  Tyrus was born with Cystic Fibrosis and thankfully remained healthy as a child, fortunately once he received the live changing medication “Trikafta” his goal of becoming a police officer became very achievable. Tyrus was very active in sports as a kid and even played college baseball before getting the new medicine.  He comes to VicPD with previous experience working as a By-Law Officer and you'll hear about his compassion for people and his drive to serve the public.  Thank you to his proud father, retired Sergeant Dale Sleightholme for sharing his memories and some anecdotes about Tyrus. Good luck to Tyrus in his policing career.  Go "Red Sox"!Sound editing done by Todd Mason.More about the Victoria City Police Union (VCPU): - Tweet us at https://twitter.com/VicPD_Union - Follow us on Instagram at https://www.instagram.com/vicpd_union/ - Find us on FaceBook at https://www.facebook.com/truebluevictoria/ - Visit our website for information at https://truebluevic.ca/ - Email us at media@vcpu.ca for any media inquiries or requests to be on the True Blue Podcast

The full NFL schedule will be released today. We want to be able to announce one of the games, even if it's a week 10 Jets/Dolphins game. A caller told us just to eat dinner at the golf course we're playing, which is a pretty good idea. Jerry returns for an update and starts with Evan Roberts proclaiming the Knicks success as a Nets fan has him ‘dead'. The Pacers moved on to the conference finals after knocking off the Cavaliers. Jayson Tatum had his achilles surgery. The Yankees lost to the Mariners in 11 and we heard from Max Fried. Boomer said he had a conversation with Dave Sims about him taking off the A's series. The Mets beat the Pirates 2-1 as Baty homered. Carlos Mendoza talked about Baty's recent performance. Pete Alonso was late to get on the field one inning. He might have been in the bathroom. In the final segment of the hour, we remember Katy Monte, who passed away from Cystic Fibrosis. Boomer knew her well and she was a Michael Brennan Award winner. More NFL games have been released and we're getting Chiefs at Cowboys on Thanksgiving.

Hour 1 The Indiana Pacers eliminated the Cavaliers and await the Knicks/Celtics winner. With Jayson Tatum having Achilles surgery, the expected Cavaliers/Celtics Eastern Conference Finals is impacted, putting pressure on Jaylen Brown. Evan and Tommy Lugauer are broadcasting from Boston; Evan enjoys sports travel. BT compared himself and Sal to "Mike & The Mad Dog," recalling past Knicks travel. Boomer called Tommy Lugauer the "Shedeur Sanders of WFAN." Jerry's update covered the Pacers' win and Adam Schein's displeasure with the Mavericks getting the top draft pick. In Mets news, Baty homered in a win over the Pirates, despite a Vientos error. Bill Belichick clarified Jordon Hudson's lack of connection to UNC football. The show's final segment discussed logistics for next week's Jersey shore broadcast, including golf and dinner, ruling out Butcher Block in Long Branch. Hour 2 The full NFL schedule is released today. Jerry's update included Evan Roberts' reaction to the Knicks' success as a Nets fan. The Pacers advanced by beating the Cavaliers; Jayson Tatum had Achilles surgery. The Yankees lost to the Mariners in 11 innings. Boomer mentioned a conversation with Dave Sims about skipping the A's series. The Mets won 2-1 against the Pirates with a Baty homer; Carlos Mendoza discussed Baty's play, and Pete Alonso was late to the field one inning. The final segment remembered Katy Monte, who died from Cystic Fibrosis; Boomer knew her well. More NFL games were released, including Chiefs at Cowboys on Thanksgiving Hour 3 Boomer & Gio discussed the awkwardness of asking new parents how they're doing, the Giants' early season schedule including a Week 3 home game against the Chiefs on MNF (Art Stapleton confirmed 3 primetime games), Timothee Chalamet's Knicks fandom, Porzingis discussing Tatum's injury, Yankees losing (Boone ejected), Mets winning (Baty homer), Shawne Merriman liking the Giants' Abdul Carter pick, Trey Hendrickson's uncertain Bengals future due to contract issues, and Michael Jordan joining NBA on NBC in an unclear role. Hour 4 License Plate Guy indicates the Giants may be in Vegas between Christmas and New Year's. Audio played of Brandon Tierney mentioning comparisons to Mike & The Mad Dog. Boomer faced criticism, including from Keith McPherson, for questioning Dave Sims taking off the A's series. A caller suggested betting on the underdog Knicks tonight. Jerry's update covered the Pacers advancing and needing 8 wins for a title, Charles Barkley's humorous response to a question about playing Wilt Chamberlain, Aaron Boone's ejection after Dominguez's strikeout call, and Baty's homer in the Mets' 2-1 win. Bill Belichick sidestepped questions about Jordon Hudson. The Moment of The Day was Tommy Lugauer being called the "Shedeur Sanders of WFAN." The first six difficult Giants games were also revealed.

Antimicrobial resistance is a rising global threat. When these become ineffective, infections can become difficult or impossible to treat, leading to an increase in the spread and severity of disease. In a new study, published in Nature Medicine, a team of researchers at the Center for Phage Biology and Therapy at Yale discovered a novel approach that may revolutionize the fight against antimicrobial resistance. In the study, the research team investigated the use of phage therapy—the use of viruses, or phages, to target and kill bacteria—to help patients with cystic fibrosis, a disease in which antimicrobial resistance is a significant issue. The team pioneered a strategy to select phages that not only kill bacteria that cause infections but also weaken surviving bacteria to become less virulent or less resistant to antibiotics. Joining me today to discuss phage therapy and their research is Jon Koff, MD, Dr. Koff is an associate professor in Yale School of Medicine's Section of Pulmonary, Critical Care, and Sleep Medicine and medical director of the Center for Phage Biology and Therapy.   Check out the paper: Phage Therapy May Treat Drug Resistance in Patients With Cystic Fibrosis, Study Finds   Watch the video version at Outbreak News TV

Grace Bervoets talks about living with cystic fibrosis and cystic fibrosis related-diabetes.  Amanada Stride, who works as a diabetes consultant helping people with cystic fibrosis related-diabetes, explains the many challenges of this unusual type of diabetes.Send us a text

Cystic Fibrosis Walk full 203 Tue, 13 May 2025 13:37:20 +0000 r5KJG9kgmnkF8J6QH7ui3uFvaveYKdFS society & culture Janet and Nick Podcast society & culture Cystic Fibrosis Walk Join Janet and Nick as they wake up Western New York every morning! They bring great interviews, celebrity gossib and much more! Don't miss out on what Western New York is going to talk about today! 2024 © 2021 Audacy, Inc. Society & Culture False https://player.amperwavepodcasting.com?feed-link=https%3A%2F%2Frss.amper

A 70-year-old person with cystic fibrosis. It's a phrase that wasn't just uncommon a few decades ago—it was virtually unheard of.When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctors told her parents she might live to be 19 years old. Today, Luanne stands on the edge of her 70th birthday—a milestone that not only redefines possibility but embodies resilience, creativity, and purpose.Born in Dallas, Texas in 1955, Luanne was diagnosed at a time when cystic fibrosis was still barely understood. No vests. No targeted medications. No community. And yet, she carved out a life of profound impact. “I stand as a witness to the possible.” says Luanne McKinnonAfter earning a Master of Fine Art in Painting and a PhD in Art History, she launched a celebrated career in the visual arts—owning an art dealership in New York City, directing major university museums, publishing works, and curating over 35 exhibitions. She even became a Fellow at the prestigious Getty Research Institute.And while that would be more than enough for most of us, Luanne continued to pour herself into advocacy—serving as Co-chair for Stanford's Patient and Family Advisory Committee, raising awareness for CF patients before and after transplant. In 2011, she underwent a successful double-lung transplant at Stanford, and fourteen years later, she is still very much living proof.This episode is not about her equally remarkable husband—EMMY award-winning filmmaker Daniel Reeve—though we'll mention him later. This is about Luanne—her life, her art, her truth, and her refusal to let a diagnosis define the limits of her possibility. She says, “I stand as a witness to the possible.”And after listening to this conversation, I think you'll believe in the possible, too.Welcome, to a very special episode of the Living with cystic fibrosis podcast and our incredible guest, Luanne McKinnon. Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

Fitness challenge on at Anytime Fitness to raise funds for Cystic Fibrosis research: See omnystudio.com/listener for privacy information.

Frank Mengert, President, Cystic Fibrosis Foundation of CT along with Aaron Britton, living w/ CF to discuss CF Awareness month.

Episode 125 | Ste Johnson (The VI Guy) returns to the podcast! In this three hour episode, Ste shares how he has custom-designed a fulfilling life with his disability, his take on whether blindness exists on a spectrum, how he travels the globe as a legally blind man, how his parents knew he had retinitis pigmentosa (RP) but never told him, how his wife's Cystic Fibrosis reshaped his perspective on vision loss, how he joined a dangerous paddleboard expedition by withholding the fact that he's legally blind, how he creates content, and much more! SEE-THROUGH is hosted by Lance Johnson. Based in New York City, Lance is a video editor living with a rare and incurable eye condition called retinitis pigmentosa (or RP for short). In most cases, RP causes legal-blindness by the age of 40. Now 34, Lance uses SEE-THROUGH as a platform to explore his inevitable future of blindness through his transparent conversations with his guests. ------------------------- SUPPORT SEE-THROUGH: Buy Merch: https://seethroughpod.com/merch ------------------------- SUPPORT STE: Instagram: https://www.instagram.com/the_vi_guy/ The RP Show: https://www.youtube.com/@therpshow ------------------------- FOLLOW SEE-THROUGH: YouTube: https://bit.ly/3JRSPEO Instagram: https://instagram.com/seethroughpod TikTok: https://www.tiktok.com/@seethroughpod X (Twitter): https://twitter.com/seethroughpod Facebook: https://www.facebook.com/seethroughpod Website: https://www.seethroughpod.com/ ------------------------- CHAPTERS: 00:00:00 - Intro 00:06:14 - Is Blindness a Spectrum? 00:32:37 - On Traveling 00:39:18 - Work & "Spend Your Time" 01:09:04 - His Wife, Anna 01:28:20 - On Not Having Kids 01:31:31 - RP Diagnosis Story 02:02:02 - Designing Your Life 02:18:41 - Content Creation 02:37:15 - Paddle Board Story 02:48:10 - Using Friends as Guides 02:57:59 - Closing  

The Noles flexed their muscles to beat No. 3 Clemson in the finale to take the series against the Tigers. Brett and Ariya discuss the heroics of the weekend, including Jamie Arnold and Joey Volini's masterful starts, the comeback walkoff win on Friday night in extras, and the the run-rule beatdown on Sunday. The guys give their thoughts on why this was such a big weekend for FSU's Top 8 National Seed hopes and welcome Jamie Arnold to the show for a fun conversation. An episode you don't want to miss!2:20- FSU Baseball with magic to walk off Clemson in the 11th23:48- Volini dominant on the mound, but missed opportunities and rain dampens the mood, as Tigers take Game 2. 37:30- Noles respond to wild Game 3 with late surge of homers to run-rule Clemson and win series57:05- Jamie Arnold 1-on-1 conversation with Brett1:14:08- How to help Jamie and Bradley in their fundraiser for Cystic Fibrosis (https://fundraise.cff.org/TallahasseeGS/ktimeforcf)1:16:00- Jacksonville preview, potential for trap game?

Eight miles. Two friends. One cause.In this inspiring episode, Jacob Venditti opens up about his life with cystic fibrosis, offering candid updates on his health and the challenges he faces as he prepares for a lung transplant. He emphasizes the vital role of community support and shares how his work with the Live Fearlessly Foundation fuels his mission to empower others. Jacob also sheds light on the rare disease income threshold amendment he's championing, which aims to create more equitable opportunities for patients. The conversation builds toward his upcoming Crossing 4 CF event, showcasing his unwavering resilience and commitment to living fearlessly.The heartfelt conversation continues with Rob Brown. Rob talks about their upcoming 80-mile paddle race aimed at raising awareness for cystic fibrosis (CF). Jacob shares how open ocean paddling has become both a personal passion and a powerful way to connect with the CF community. Rob reflects on his enduring friendship with Jacob and their mutual love for surfing. Together, they highlight the healing power of the ocean—physically, mentally, and emotionally—especially for those living with CF. To connect with Jacob and his team: https://livefearlesslyfoundation.com   Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

What would you do if both of your children were diagnosed with a life-threatening genetic disease—and there was no support system in place for parents like you? In this inspiring episode, Katie interviews Laura Bonnell, a former Detroit news reporter turned full-time advocate and nonprofit founder. After both of her daughters were diagnosed with cystic fibrosis (CF), Laura transformed her grief and determination into the Bonnell Foundation, providing real-time support to families across the U.S. who are navigating life with CF. In this powerful episode, we explore: ✅ How Laura pushed for her daughter's diagnosis when doctors dismissed her instincts ✅ Why child life services were “among the best things” during hospitalizations ✅ What it's like raising two daughters with cystic fibrosis in the same home ✅ The emotional toll of pretending “everything's fine” as a medical parent ✅ How her foundation is providing financial relief, mentorship, and inspiration ✅ Why advocacy can take many forms—and how small actions can create significant change Whether you're a CF parent, a caregiver of a chronically ill child, or someone passionate about parent-led advocacy, this episode will move and motivate you. Timestamps & Key Topics ⏱️ [00:00] – The Power of Child Life Services How art, distraction, and support brought relief during hospital stays ⏱️ [03:00] – Meet Laura Bonnell From Detroit news reporter to cystic fibrosis advocate and nonprofit founder ⏱️ [06:00] – A Life-Altering Diagnosis How Laura's instincts—and persistence—led to a CF diagnosis after months of dismissal ⏱️ [09:00] – Fighting for Answers & Processing the News Pulling over mid-assignment to receive the call—and deciding, that same day, to keep moving forward ⏱️ [12:00] – Advocacy from the Start Speaking publicly just weeks after diagnosis and discovering the emotional weight of her new reality ⏱️ [14:00] – Life with Two Children with CF Navigating work, marriage, and hospitalization rotations while trying to maintain “normalcy” ⏱️ [16:00] – School Accommodations & Advocacy Wins How brochures, IV poles, and enzymes in every classroom made private school possible ⏱️ [18:00] – The Hidden Truths of “Being Fine” Why Laura never told friends how hard it really was—and what she wishes she could've said ⏱️ [21:00] – Building Community & Finding Strength in Other Moms How hospital garden meetups and phone calls with CF parents created safe spaces ⏱️ [23:00] – Founding the Bonnell Foundation How a calendar and a vision turned into a national nonprofit serving families with CF ⏱️ [26:00] – What the Bonnell Foundation Offers From financial assistance and college scholarships to CF masterclasses and bilingual resources ⏱️ [28:00] – “Don't F With Me”: Laura's Strength as an Advocate Why she'll knock on every door, from Capitol Hill to the hospital billing department ⏱️ [29:00] – Celebrating Her Daughters Emily's resilience through hospitalizations and marathon training Molly's fearless leap to study in London and become a sustainability changemaker Resources & Links

Send Kiona a Text Message!Maddie and Macka take us along on their journey to parenthood as they discovered their daughter Maya was diagnosed with Cystic Fibrosis. At the time of the recording, Maya is only 6 months old. Throughout the episode, you will hear how Maddie and Macka had to uproot their lives for 10 weeks to live in a different city so Maya could get the support she needed immediately after birth. This support included a necessary surgery only 12 hours after Maya was born.birthasweknowitpodcast.com/84Disclaimer: This podcast is intended for educational purposes only with no intention of giving or replacing any medical advice. I, Kiona Nessenbaum, am not a licensed medical professional. All advice that is given on the podcast is from the personal experience of the storytellers. All medical or health-related questions should be directed to your licensed provider.  Want to hear another birth story that talks about their journey through postpartum depression? Tune into 38-Athena Estelle-Vaginal Birth-Cecilia-Delivered: Finding Victory After Postpartum Depression PodcastResources:Perinatal Support of Washington: https://perinatalsupport.org/ Postpartum Support International: https://www.postpartum.netPreeclampsia Foundation: https://preeclampsia.org/ Grow NZ: https://nz.growapp.org/Ronald McDonald House Charities: https://rmhc.org/   Definitions:Cystic FibrosisPreeclampsiaIleostomySupport the showThank you so much for tuning in to this episode! If you like this podcast, don't hesitate to share it and leave a review so it can bring the podcast to the attention of others. If you want to share your own birth story or experience on the Birth As We Know It™️ Podcast, head over to https://birthasweknowitpodcast.com/ or fill out this Guest Request Form. Support the podcast and become a part of the BAWKI™️ Community by becoming a Patron on the Birth As We Know It Patreon Page! And don't forget to join in on the fun in the Private Facebook Group!

Non-cystic fibrosis (CF) bronchiectasis, which affects approximately a half million people in the US, is a chronic lung condition that involves permanent bronchial dilation and inflammation; it is characterized by a productive cough and recurrent exacerbations. Author Alan F. Barker, MD, of Oregon Health and Science University joins JAMA Deputy Editor Kristin Walter, MD, MS, to discuss non-CF bronchiectasis. Related Content: Non–Cystic Fibrosis Bronchiectasis in Adults

Send us a textWhat happens when you deliberately choose difficulty and discomfort? In this powerful reunion episode with Brian Mora, we explore how voluntary adversity shapes character, expands capabilities, and ultimately leads to greater fulfillment.Since we last spoke two years ago, Brian has transformed his life through deliberate challenge. After taking on leadership of recruiting at Ameriprise Financial, he learned stand-up paddleboarding from scratch to complete the 79-mile Crossing for Cystic Fibrosis event from the Bahamas to Florida. Perhaps most significantly, he fulfilled his entrepreneurial dream by opening a Rumble Boxing franchise, stepping far outside his corporate comfort zone.The conversation reveals practical wisdom for anyone seeking growth. Brian emphasizes starting with meaningful challenges, identifying potential obstacles, creating progress markers, and cultivating accountability partnerships. He shares how his paddleboard journey through shark-infested waters taught perseverance, while his boxing studio revealed striking differences between financial services and fitness industries—particularly regarding customer relationships and retention.Most powerfully, Brian addresses the core barrier many face: the fear of being bad at something new. He advocates dual visualization—picturing both the rewards of persevering and the risks of inaction. This approach provides motivation through difficult moments and helps overcome the natural tendency to avoid discomfort.Whether you're contemplating a major life change or simply seeking to build more discipline into your daily routine, this episode offers a blueprint for embracing discomfort as a path to growth. As Brian notes, "The key to a long life is continuing to challenge yourself"—wisdom backed by neuroscience and demonstrated through his remarkable journey.Ready to step outside your comfort zone and discover what you're truly capable of? Listen, reflect, and take that first uncomfortable step toward meaningful growth.Support the showhttps://bamboolab3.com/

Matters Microbial #88: Microbial Interactions in Cystic Fibrosis April 24, 2025 Today, Dr. Reed Stubbendieck, Assistant Professor of Microbiology & Molecular Genetics at Oklahoma State University joins the #QualityQuorum to discuss how microbes and the host communicate with one another in the cystic fibrosis lung. Host: Mark O. Martin Guest: Reed Stubbendieck Subscribe: Apple Podcasts, Spotify Become a patron of Matters Microbial! Links for this episode An overview of cystic fibrosis as a disease with a genetic link. A review of the microbiome of the cystic fibrosis lung. An overview of biofilms. An interesting role for extracellular DNA itself as a “building block” of biofilms. An overview of polymicrobial communities. Life in mucus—an interesting essay. An overview of Pseudomonas aeruginosa. Pseudomonas and the siderophore pigment pyoverdin which is not only about iron, but also bacterial conflict and cooperation.   An interesting overview of microbe-microbe interactions, often called “sociomicrobiology,” and an introductory article on this topic. A review of the nasal microbiome. The organism Rothia, understudied and of interest to Dr. Stubbendieck's research group.  Some work from Dr. Stubbendieck's group describing how Rothia is helpful in inhibiting some disease causing bacteria. The organism Dolosigranulum pigrum, also understudied and of interest to Dr. Stubbendieck's research group. More work from Dr. Stubbendieck's group with another possibly probiotic bacterium,  Dolosigranulum pigrum, that may protect against disease causing microbes.  Dr. Stubbendieck's faculty website. Dr. Stubbendieck's very interesting research group website.  Intro music is by Reber Clark Send your questions and comments to mattersmicrobial@gmail.com

In this episode of DriveTime, Pete Proimos, founder of the Filotimo Foundation, discusses his former aftermarket career at AP Emissions Technologies and the next facet of his life that supports cystic fibrosis.After Pete finished college, briefly attended law school and quickly realized that career wasn't for him, his father Vange advised him to work in the company's distribution center. Pete worked his way up through the ranks, spending a year and a half working through every single department, and eventually landed in sales where he held various roles.Pete then took his tools and war chest and moved it to another phase of his life, when he founded the Filotimo Foundation for cystic fibrosis support. Pete shares that he was born with cystic fibrosis, which is a genetically inherited disease. He describes the issues of living with cystic fibrosis, medical advancements that have increased life expectancy, and how his foundation was formed to help and support a patient set of 40,000 adults in the U.S. who are living longer with cystic fibrosis, and who now have to figure out how they're going to survive as adults in society.The Filotimo Foundation is hosting a gala fundraising event on May 16, 2025, to help create awareness of and support for the disease. The event will raise money for both hardship support and fertility support for cystic fibrosis patients. Every dollar raised is a dollar that goes straight toward those patients, Pete said, such that $2,000 can get one cystic fibrosis patient full hardship support for an entire year.To learn more about Pete and his foundation, be sure to watch the video above.To donate, log onto: https://filotimofoundation.org/donate/ Episode Overview:• Pete describes how he got his start in the automotive aftermarket and provides an overview of his former role at AP Emissions (1:14)• Pete shares his personal story and how it fostered the creation of a foundation, the Filotimo Foundation, in support of cystic fibrosis (6:48)• The purpose of the Filotimo Foundation (12:58)• Details about the upcoming Gala event, and how the industry can support the Foundation (17:10)• Lightning Round (21:12).

Dr. Neil Bradbury, a Professor of Physiology and Biophysics at the Chicago Medical School. He received his undergraduate degree from the University of St. Andrews in Scotland in Biochemistry, and his Ph.D. from the Welsh National School of Medicine in Medical Biochemistry. His research has focused on genetic diseases, particularly Cystic Fibrosis, and has spoken on the topic at national and international scientific conferences. He is also an award-winning teacher, and A Taste for Poison is his first book. Topics covered in this episode:Poisonous Plants and ToxinsHistorical Use of PoisonsAtropine PoisoningDisguising PoisonsDetection of PoisonsModern Cases of PoisoningTherapeutic Index of SubstancesErgot PoisoningPolonium PoisoningRadioactive MaterialsPolitical AssassinationsAllergic ReactionsMisconceptions About ChemicalsIndustrialized FarmingDark History and TourismTo learn more about Neil Bradbury and his work, head over to https://neilbradbury.org/Poison Help Line (1-800-222-1222)Become a supporter of this podcast: https://www.spreaker.com/podcast/the-lindsey-elmore-show--5952903/support.

Ben Mudge has been coaching for 14 years and his platforms are all about making health and fitness easier.    His new book Fitness Without Limits – training to break through barriers and live fearlessly is available now.    This is Ben's hat trick appearance on the podcast.    Ben has Cystic Fibrosis and on top of being an inspiration for so many, I personally get so much from every conversation we have; so definitely check out previous episodes with this incredible human being if you haven't already.  Here are some of the things we talked about in today's show:  ·      Comparison can be detrimental to personal growth and happiness. ·      Life experiences should take precedence over physical appearance. ·      Worrying is a waste of imagination and energy. ·      Memories are more important than physical achievements. ·      It's essential to break free from restrictive mindsets around food and fitness. ·      Perspective shifts can empower individuals to make better choices. ·      Coaching should focus on helping clients find their own answers.  Understanding individual needs is crucial for effective coaching. ·      Disordered eating can normalize unhealthy behaviors. ·      No food should be off limits to promote a healthy relationship with food. ·      Mental health is foundational for overall well-being and coaching success. ·      Life is chaotic; we must adapt our expectations accordingly. ·      Food is more than just fuel; it carries emotional significance. ·      Coaches provide accountability and structure, but clients must empower themselves. ·      A problem shared is a problem halved; don't minimize your struggles. Brian's website: www.briankeanefitness.com Ben's new book:  https://www.amazon.co.uk/Fitness-Without-Limits-Training-obstacles/dp/1408733617 (Youtube) Ben Mudge - YouTube (Facebook) https:// www.facebook.com/benmudgept/ (Threads) Ben Mudge - Online Coach (@benmudge_) • Threads, Say more (Instagram) https:// www.instagram.com/benmudge_/ (Tiktok) TikTok - Make Your Day (Previous appearance) Episode 271 Ben Mudge on Diet Red Flags, Dedication Vs Motivation and Choosing To Have A Positive Mindset! | Brian Keane Fitness  Episode 154:    https://briankeanefitness.com/podcast/154-give-your-problems-all-the-time-they-need-and-no-more-with-ben-thor-mudge    

Welcome back to the Dr. Kinney Show! This week's episode is both inspiring and deeply moving as I sit down with Jennifer McKinnon, a cystic fibrosis (CF) warrior, advocate, and community leader who has lived with the disease since she was just six weeks old. Jennifer is a powerhouse of resilience, determination, and grace—and her story is one of unwavering strength in the face of lifelong adversity.Jennifer shares how she's not just surviving, but truly thriving, managing CF with grit, love, and purpose. From daily breathing treatments and hospitalizations to breakthrough medications and advocacy work, she gives us a glimpse into the reality of life with CF—and how hope, faith, and storytelling are helping her transform that reality for others.In Today's Episode, We Discuss:Jennifer's early diagnosis with CF and her family's powerful responseHow CF has impacted her life—and how she continues to defy the oddsThe breakthrough medication that changed everythingHer daily routine managing CF and the role of new treatmentsThe emotional side of chronic illness and finding strength through motherhoodHow fitness, faith, and community support help her thriveHer work with Jennifer's Journey, local fundraising events, and her new storytelling platformHer goal to inspire others with CF and give them the hope she didn't have growing upJennifer's story is a true testament to what's possible when determination meets heart. Her work as a speaker, advocate, and mom to twin daughters is a shining example of living fully—even in the face of great challenge.Connect with Jennifer McKinnon:Instagram: @justonemorebreathWebsite: www.jennifer-mckinnon.comEvent: Don't miss her annual fundraising event Deadlifts & Donuts – March 15th at Maxed Out Fitness in Annapolis!Resources for Cystic Fibrosis:Cystic Fibrosis Foundation – info, support groups, and funding opportunitiesFor genetic testing or to learn more about CF advocacy and research

About Dr. Laleh Talebian:Dr. Laleh holds a bachelor's degree in Genetics and Food Biochemistry, a Ph.D. in Molecular & Cellular Biology from Dartmouth Medical School, and completed a post-doctoral fellowship on biomarkers for Cystic Fibrosis. She directed a clinical research lab on immunotherapy for blood cancers and served as a Research Project Manager at the Dartmouth Institute for Health Policy & Clinical Practice.Realizing her true calling, she became a certified health coach for patient care in 2019. Today, as a Nutritional Healing Doctor, she helps people with chronic conditions, cancer, obesity, and overweight issues heal through food prescriptions.She enjoys cycling, gardening, cooking, and reading.In this episode, Jennie Bellinger and Dr. Laleh Talebian discuss:Personal Health Journey Through FoodCustomized Nutrition Based on GeneticsRoot Cause Approach to Chronic ConditionsHealthy Plate Concept Without Complex CalculationsEpigenetics and Controllable Health OutcomesKey Takeaways:Food is a powerful tool for managing chronic conditions.Traditional diets often fail because they're not tailored to individual needs; on the other hand, listening to your body and recognizing how specific foods impact your health is crucial for long-term wellness.By making intentional choices about nutrition and lifestyle, individuals can positively influence their genetic expression.Diagnostic testing goes beyond surface-level health assessments.Simplifying nutrition can make sustainable health changes more achievable, and the "healthy plate" concept eliminates complex calculations, making it easier for people to make informed dietary choices without feeling overwhelmed."One in three people listening to this podcast is diagnosed with cancer.” — Dr. Laleh TalebianConnect with Dr. Laleh Talebian:  Facebook Name: https://www.facebook.com/profile.php?id=61554963903409Facebook Business Page: https://www.facebook.com/profile.php?id=61558516023406LinkedIn URL: https://www.linkedin.com/in/drlalehphd/Instagram Business Link: https://www.instagram.com/dynamicnaturaladvantage/Link to Gift from Dr. Laleh Talebian:Dr. Laleh's Gift for Healthy Badass Crew is her Healthy Plate One Page Guide: https://www.dynamicnaturaladvantage.com/healthy-plate  Dr. Laleh's Gift for Badass Crew who are dealing with a chronic condition is her monthly complimentary webinars called “Eat To Defeat ___________” Join her live here: https://dynamicnaturaladvantage.com  Connect with Jennie:Website: https://badassdirectsalesmastery.com/Email: jennie@badassdirectsalesmastery.comFacebook personal page: https://facebook.com/jbellingerPLFacebook podcast page: http://facebook.com/BadassDirectSalesMasteryFacebook group for Badass Crew: https://facebook.com/groups/BadassDirectSalesMomsInstagram: https://instagram.com/BadassDirectSalesMasteryPersonal Instagram: https://www.instagram.com/thedirectsalesdomme/LinkedIn: https://linkedin.com/in/BadassDirectSalesMasteryThe Badass Direct Sales Mastery Podcast is currently sponsored by the following:Bella Grace Elixir: https://shopbellagrace.com/?ref=jenniebadassdirectsalesmasteryLeadBuddy Digital Marketing: Use code BDSM when checking out at https://leadbuddy.io/pro-monthly-9310?am_id=jennie582Show Notes by Podcastologist: Hanz Jimuel AlvarezAudio production by Turnkey Podcast Productions. You're the expert. Your podcast will prove it.

Today marks 65 Roses Day, the national fundraising and awareness campaign for Cystic Fibrosis Ireland. Joining us is Claire Merrigan from Gorey, whose young son Mason lives with CF. Claire shares what this day means to their family, the challenges they face, and the importance of community support. We also reflect on the origin of the campaign's name — a touching mispronunciation that has come to symbolise hope and resilience.

CFRI's Executive Director, Siri Vaeth is sunshine to me. She's a dear friend.We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor.  Siri is truly among the smartest people I know.  She is an advocate for her daughter Tess, who has CF,  and is an incredible advocate for the CF community.  If you need legislation explained to you, Siri can help you. She can put it in a way you'd understand.Siri has a master's degree in social Welfare, she's fluent in Spanish, she's great at marketing and does a lot of public speaking…and is an all-around great person.This episode is packed with information about legislation, colon cancer, health insurance and discussion about the fact that people of color are under-diagnosed, concerns for the future of CF and catching up about our kids.To learn more about CFRI: https://www.cfri.org Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Thanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

Send us a textJohnny and BW talk a bit about the Mississippi State basketball season and everything else going on in Johnny's World then Johnny talks with Bart Hyche about some old MS State Final 4 memories and what to expect in this weekend's Final 4.  To support our mission to raise funds and awareness for Cystic Fibrosis be sure to visit Johnnypacker.net to order some fresh roasted coffee today!Support the show

Ben Mudge is a friend and a treasure. Ben shares his story of growing up with cystic fibrosis, his fears around the potential progression of the disease, and how devoting his life to his fitness and health has helped improve his quality of life. Ben shares:-How cystic fibrosis works-The catalysts for his changed outlook and effort-Why he feels “Imperfect actions beats perfect words every time”-Why he focuses on love of the process-Why peace and space are important-Details about his love of Warhammer and other things “nerd culture”-How to prioritize time for fitness and leisure passions-And much more.00:16 Meet Ben: Fitness Without Limits01:32 Living with Cystic Fibrosis06:32 The Turning Point: Hospitalization and Recovery15:09 Prioritizing Health and Lifestyle Changes28:30 Mental Health and Fitness31:36 Shooting the Book in a Day31:47 The Importance of a Friendly Image32:17 Deliberate Social Media Choices35:56 Balancing Fitness and Gaming42:29 The Joy of Warhammer44:24 Embracing Your True Self51:25 The Challenge of Modern Convenience54:31 Conclusion and Final ThoughtsI've been putting a lot of time and effort into making these new episodes valuable for you. You can help me get these great guests and their knowledge in front of more people by:-Subscribing and checking out more episodes-Sharing on your social media (please tag me - I promise I'll respond)-Sharing with the friend you think of who needs this episodeFollow Andrew Coates:Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@andrewcoatesfitness⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Join My Email List:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.andrewcoatesfitness.comGet the RP App at www.rpstrength.com/coates - use the code COATESRP

The reigning Ms. America joins the podcast to coach us up on a number of topics. We learn about the pageant process, how to advance to the Ms. America stage, and all the work that's involved in preparing. Also, she coaches us up on choosing joy through difficult circumstances and we learn about how a commitment to her best friend has turned into a passion to find a cure for Cystic Fibrosis.•••••••••••••••••••••••••••••••••••••••••••••••••••••••••••As always we thank our title sponsor OneCountry.com for making this podcast possible, and to Konexial.com for their continued support of our podcast.COACH ME UP TEAM⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠OneCountry.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Konexial.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Follow us on Twitter:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@CoachJimmyDykes⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@ChrisBurke02⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••Hosted by Jimmy Dykes and Chris BurkeProduced by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Jared Mark Fincher⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠All audio is subject to copyright 2025 Jimmy Dykes Inc.Contact us at coachmeuppodcast@gmail.com

In this episode, host Dr. Sarah Wise speaks with Dr. Do-Yeon Cho and Dr. Brad Woodworth. They discuss the recently published Research Note: “Prevalence of Cystic Fibrosis Carrier Status in Chronic Rhinosinusitis Without Nasal Polyp”. The full manuscript is available online as Open Access in the International Forum of Allergy and Rhinology. Listen and subscribe […]

I love that I was able to bump into Aaron Trumm via an email.  He reached out to check in about our scholarship program for college.  We only award grants to undergrad students, but I was intrigued by all I learned about him.Aaron has CF, he is post-transplant, he started a recording label, he plays the piano and wraps, And he worked with the man known as the Lion of Zimbabwe. And he's going to law school in the Fall.We have a lot to talk about!  To get in touch with Aaron:https://aarontrumm.comA music production education brand:https://recordinglikemacgyver.com This site Aaron says is disappearing soon! https://nquit.com  Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Thanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

In this episode of Training Chats with Aloha Athletics, hosts Lindsey Tilton and Casey McCullough sit down with John Meskauskas, the founder of Flying Fish Board Co. John shares his inspiring journey from shaping his first board in a Florida garage to building a world-class paddleboard brand. They dive into the art of board shaping, the power of community, and why continuous improvement is key—whether you're chasing a big race goal or building a business from scratch.You'll also hear valuable tips on board selection, the importance of time on the water, and how Flying Fish has become a major player in events like the Crossing for Cystic Fibrosis. Whether you're a paddler, entrepreneur, or simply someone with a big dream, this episode will leave you motivated to start before you're ready—and keep pushing forward.Show notes and journal prompts to take actionConnect with show host and guest@flying_fish_board_co@JohnMeskauskas@aloha.athletics@earthgrownlindsey@casey_lynn_mccullough

Abbie Stockard, Miss America 2025, is a 22-year-old dancer, choreographer, and proud Alabama native. A senior at Auburn University, she is a member of the Tiger Paws Dance Team and a dedicated student in Auburn's College of Nursing. With plans to pursue a career as a pediatric nurse, Abbie will fully fund her education using the $89,000 in scholarships she earned through the Miss America Opportunity.Abbie's commitment to service extends beyond health advocacy. She has worked with state and national leaders to advance impactful legislation and plans to continue using her platform to amplify awareness for CF while demonstrating the powerful influence of women in leadership. A dedicated Mission Partner and Best Buddies Champion, Abbie has also raised funds for the American Heart Association (AHA) and was recognized with the prestigious AHA Go Red for Women Leadership Award during the Miss America Competition.As a member of Auburn University's Tiger Paws Dance Team, Abbie has experienced the transformative power of an active and balanced lifestyle. This passion inspired her personal initiative, High Five for Kids, which promotes the importance of establishing healthy habits early in life. Guided by five key pillars of health, the program teaches children that wellness is not a set of rules but an exciting and attainable way of life. Through High Five for Kids, Abbie encourages children, including those with chronic illnesses like CF, to embrace their potential and make positive choices that will serve them for a lifetime.Inspired by her best friend, Maddie, Abbie is a passionate advocate for Cystic Fibrosis (CF). She was honored as the “2024 Hero of Hope” by the Cystic Fibrosis Foundation and named an Official National Ambassador for the organization. Her advocacy efforts have raised over $200,000 for CF research, including leading Alabama's largest CF fundraiser and collaborating with researchers nationwide to accelerate progress toward a cure.Abbie exemplifies the organization's mission of service, scholarship, and leadership. She strives to empower ambitious young women, leaving a legacy of advocacy and purpose while continuing her relentless fight for a cure for Cystic Fibrosis.Follow Abbie for more: @missamerica and @abbiestockard and https://missamerica.org/Follow us on Instagram @oneworldonefuturepodcast to be the first to know when new episodes drop! And don't forget to follow our host, Ashley, at @itsashleynevison for even more updates and behind-the-scenes content!

CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey of Bob's son, Bobby, who has cystic fibrosis. They explore the advancements in treatment, the importance of advocacy, and the intersection of policy and innovation in the biotechnology sector. Bob shares his personal experiences as a caregiver and advocate, emphasizing the need for continued support and education in the medical community. The conversation highlights the emotional rollercoaster of living with a chronic illness and the hope brought by new therapies. In this conversation, Bob Coughlin shares his emotional journey as a parent of a child with cystic fibrosis, detailing the transformative impact of new treatments and the importance of community support. He discusses the hope brought by advancements in gene therapy and the future of cystic fibrosis treatment, emphasizing the need for continued advocacy and innovation in healthcare. The conversation highlights the emotional highs and lows experienced by families dealing with chronic illness and the importance of maintaining a positive outlook.Bob aligns real estate strategies with scientific business objectives. Which is very cool if you ask me. He's on numerous boards and is extremely involved in work, life and organizations.___________________________Bob Coughlin is a Managing Director at JLL and is the New England's Life Science and Healthcare Practice Group lead. He specializes in the representation of lab, GMP manufacturing and technology space. Robert delivers creative solutions that align real estate strategies with scientific business objectives. ExperienceRobert most recently operated as the President & CEO of the Massachusetts Biotechnology Council, where his mission was to advance Massachusetts's leadership in the life sciences to grow the industry. Robert has spent his career in both the public and private sectors. Before joining MassBio, he served as the Undersecretary of Economic Development within Governor Deval Patrick's administration, where he prioritized both healthcare and economic development issues and was a strong advocate for the life sciences industry in Massachusetts. Prior to that, he was elected as State Representative to the 11th Norfolk district for three terms. Robert has also held senior executive positions in the environmental services, capital management and venture capital industries.Board InvolvementFranciscan Children's Hospital, Vice Chair, Board of TrusteesTeam Impact,  Member of National Board of DirectorsMassBio, Member, Board of DirectorsBA Sciences, Member, Board of DirectorsAnagram, Member, Board of DirectorsNuvara, Member, Board of DirectorsCystic Fibrosis Foundation, Chair, MA/RI Board of DirectorsSchwartz Center for Compassionate Care, Lifetime Board Member Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Thanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Fat Malabsorption in Disease States” published in April 2024. This episode features Ms. Kay Varina, MPA, RDS, LD, CNSC, focusing on fat malabsorption in cystic fibrosis. This podcast series provides an in-depth look at the latest understanding of fat malabsorption in various disease states and was developed to educate clinicians on the current evidence in the management of this condition. This podcast is supported by Alcresta. Business Corporate by Alex Menco | alexmenco.net Music promoted by www.free-stock-music.com Creative Commons Attribution 3.0 Unported License creativecommons.org/licenses/by/3.0/deed.en_US March 2025

On this edition of TMWS, we are focusing on cystic fibrosis with Rita Flynn, who is a grandmother to Tanner Young. Tanner lives with CF and his mother, Christina, is a 24/7 caregiver for him. I hope you will listen to the messages within the interview and be encouraged by them. Listen & share.

On this MADM, Rita Flynn, who is a grandmother to Tanner Young who lives with CF, is sharing about statistics that go along with cystic fibrosis. Listen & share. Sponsor: Green's Dependable Hardware Russellville, AL

This episode covers cystic fibrosis.Written notes can be found at https://zerotofinals.com/paediatrics/respiratory/cysticfibrosis/Questions can be found at https://members.zerotofinals.com/Books can be found at https://zerotofinals.com/books/The audio in the episode was expertly edited by Harry Watchman.

In this episode of It Happened To Me, co-hosts Beth Glassman and Cathy Gildenhorn sit down with Laura Bonnell, a seasoned journalist with 25 years of experience in Detroit, founded The Bonnell Foundation in 2010 after her daughters, Molly and Emily, were born with cystic fibrosis (CF). Despite having ten siblings between them, Laura and her husband, Joe, had no idea they were carriers of the disease, as no one else in either family had been diagnosed with CF. Driven by her personal experience and professional expertise, Laura used her platform as a reporter to raise awareness about CF. Before establishing The Bonnell Foundation, she actively raised funds for the Cystic Fibrosis Foundation, participating in the Great Strides Walk fundraisers and speaking at CFF events. Bonnell also organized events like the first Celebrity Softball game with the Detroit Tigers' wives and launching the "Portraits of Cystic Fibrosis" calendars in 2003—both of which are integral to The Bonnell Foundation's fundraising efforts today.  Through her foundation, Laura continues to advocate tirelessly for those affected by CF, leveraging her journalistic skills to amplify the cause and support the CF community. Topics Covered: Understanding Cystic Fibrosis: What it is, how it affects the body, and the daily medical routines required to manage it. Personal Journey: Laura's experience with her daughters' diagnoses and the challenges her family faced. Advocacy Through Journalism: How Laura's skills as a journalist influenced her podcast, Living With Cystic Fibrosis, and her advocacy work. The Bonnell Foundation: From organizing the first Celebrity Softball game with the Detroit Tigers' wives to producing the "Portraits of Cystic Fibrosis" calendars, Laura discusses her foundation's mission and impact. Challenges and Progress: The evolving landscape of CF treatment, including the life-changing potential of medications like Trikafta. Community Support: How The Bonnell Foundation helps families navigate life with CF and fosters a sense of connection. Resources Mentioned: The Bonnell Foundation The Bonnell Foundation Facebook The Bonnell Foundation X The Bonnell Foundation Instagram Living With Cystic Fibrosis Podcast Connect with Us:  Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.   

When your parents tell you you'll be the exception to CF's cruel rules, you either sink or swim - Madison MacGregor chose to freestyle. When doctors couldn't halt her declining health, Madison went rogue - ditching the CF diet for squash and alternative treatments until she weighed just 88 pounds. From competitive dancing with an IV to battling her medical team at every turn, this self-proclaimed "geriatric Gen Z-er" shares her unconventional journey through CF. But the real twist? Sometimes surviving isn't the hardest part - it's figuring out who you are when death is no longer knocking at your door.Find our other episodes about cystic fibrosis here (the first-ever episode of Sickboy!), here, and here (our chat with Justin Baldoni).Catch the full video version of this episode on YouTube.Follow Sickboy on Instagram, TikTok and Discord!