SCD Stories

Elle is a recipient of a Bronze Congressional Award and has been featured on NPR, ABC 7, BBC World Service Radio, and a guest on many podcasts. She is a writer, motivational speaker, and social media strategist. CleverlyChanging.com and the Cleverly Changing podcast are a go-to resource on health, wellness, finances, and parenting. She is also a passionate storyteller. She holds a B.A. degree in English and History.

Toneisha Harris was the first African American female to make it as far as she did on NBC's The Voice, and is releasing a new single called “Let's Change The World”.  Toneisha has a message of encouragement for individuals and families of the sickle community.

Debra is one of only a few assigned social workers for an agency in the commonwealth of Pennsylvania since most agencies use rotating social workers at clinics and hospitals.

Twaina and her son have dealt with the secondary and tertiary effects of Sickle Cell Disease and have had countless procedures since he was a child and are not allowing that to stop him from living his life.

Shalawn and Jerrick have dealt with the secondary and tertiary effects of Sickle Cell Disease and have had countless strokes since he was a child and are not allowing that to stop him from living his life.

The Williams family is a family of 5 and they unite together as advocates to fight not only against Sickle Cell Disease, but also on behalf of any and all under represented health communities.

Tristan who has dealt with the secondary and tertiary effects of Sickle Cell Disease has had countless strokes since he was a child and is not allowing that to stop him from living his life to the fullest.

Ronald Johnson is a member of the Board of Directors of the South Central PA Sickle Cell Council and the caregiver for his mother.  Ronald is the only child in his family with Sickle Cell Disease and 2 of his siblings have the trait.

Sickle Cell Disease is the leading hereditary blood disease in the nation but one of the least funded diseases.   In order to bring the proper funding, support and attention to this disease we launched this podcast to increase awareness to ensure that even at the local support that will influence the national support from  national community leaders.   We  interview each week individuals and families about their path that include their struggles, successes and tragedy while dealing with sickle cell so that we can all have a human life attached to the label of sickle cell disease and not just a name of a diagnosis.As the host  my  hopes are to make sure that during the interviews we can touch upon the areas not yet known among most health professionals, community leaders and others who can assist lead the charge against this horrific disease.sick