Podcasts about sickle cell trait

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Best podcasts about sickle cell trait

Latest podcast episodes about sickle cell trait

TimeOut With The SportsDr. Podcast
Understanding and Combating Sickle Cell Disease with Dr. Lametra Scott, PharmD

TimeOut With The SportsDr. Podcast

Play Episode Listen Later Jul 8, 2024 39:54


Are you aware of your sickle cell status? Many people aren't, yet understanding this crucial aspect of your health could make a life-saving difference. Sickle cell disease is a genetic condition that affects hemoglobin, the molecule in red blood cells responsible for transporting oxygen. It is a serious, lifelong illness that can cause pain, anemia, infections, and other health problems.  However, early detection and knowledge of your sickle cell status can significantly impact your health outcomes. People with sickle cell disease who are aware of their condition can take proactive steps to manage their health. Having this awareness would enable us to make informed decisions about family planning and seek specialized medical care when needed. By understanding our sickle cell status, we empower ourselves to navigate potential health challenges with greater resilience and informed support from healthcare professionals and community resources. As National Sickle Cell Day approaches, let's advocate for awareness, education, and support systems that empower individuals affected by sickle cell disease to live healthier and more fulfilled lives. Dr. Lametra Scott, PharmD, specializes in managing pharmacy operations and creating/executing programs for cost-effective pharmaceutical care. With a background in analyzing medication usage and operations, she conducts reviews of drug usage and evaluates patient medication histories for optimal treatment results. Her leadership involves collaborating with healthcare providers to recognize and address prescription trends, improve performance, and influence changes in prescribing practices. Dedicated to meeting objectives through efficient resource management, she also promotes health and wellness by supporting natural integrative medicine treatments. Showing a keen interest in education, she established a nonprofit organization focused on raising awareness and preventing sickle cell disease within the community. In this episode with Dr. Lametra Scott, PharmD, we will learn about the critical topic of sickle cell disease and trait, focusing on their implications, the importance of awareness, and the ongoing efforts to educate the masses about this genetic condition. The discussion centers on sickle cell disease and the importance of knowing one's genetic status, particularly in the context of family planning, athletic participation, and overall health. Dr. Scott brings a wealth of knowledge and passion to the discussion, emphasizing the broader impact of sickle cell disease on individuals and communities, especially within minority populations.   "Because of my own personal experiences in life and how God just threw me a curveball and I just decided to play with it, that is how Breaking the Sickle Cell Cycle was formed." – Dr. Lametra Scott, PharmD   Topics Covered: (00:00:49) Introducing our special guest, Dr. Lametra Scott, PharmD. (00:03:21) Sickle hemoglobin cell vs. Regular hemoglobin (00:05:07) Why is it important to know if you have sickle cell? (00:07:28) Know your physical health (00:08:09) Early Screening for Sickle Cell Trait (00:09:39) Symptoms of Sickle Cell Disease (00:11:15) How sickle cell came to be (00:13:52) Different treatments for sickle cell disease (00:18:16) What is Gene therapy? (00:21:21) Advertisement: Are you prepared for life's unexpected challenges? Dr. Stephanie Pearson and her team of skilled advisors at Pearson Ravitz are here to help you guard your most valuable asset. Go to https://pearsonravitz.com/ to make sure you are protected today. (00:23:43) Sickle cells are fragile (00:25:50) Can you discuss sickle cell disease in relation to surgery? (00:27:25) Why are you passionate about fighting sickle cell disease and creating a foundation as a pharmacist? (00:31:34) What educational work are you doing on college campuses for students and faculty? (00:34:31) Final TimeOut with Dr. Scott: How important is it to have early testing and know your sickle cell trait status? (00:35:37) Listen to your body (00:36:48) How does altitude affect a person with sickle cell trait? (00:38:12) Where to connect with Dr. Lametra Scott, PharmD   Key Takeaways:    "Even as a physician who deals with athletes that have sickle cell trait, my knowledge was limited." – Dr. Derrick Burgess   "If you are a sickle trait carrier and you participate in sports, you need to know the signs and symptoms of what to look out for, when to take a break, when to rehydrate, and when not to push it."– Dr. Lametra Scott, PharmD   "Sickle cell trait was actually looked at as a protective mechanism against malaria."– Dr. Lametra Scott, PharmD "Even when trying to pursue the cure for sickle cell disease, death is a real risk factor." – Dr. Lametra Scott, PharmD "We have a huge educational deficit in the health care community about what sickle cell disease is versus sickle cell trait. In addition to the community at large, not knowing and being aware of what sickle cell disease is." – Dr. Lametra Scott, PharmD   "If you don't listen to your body and you continue to push beyond that maximum capacity, you could definitely be doing yourself a huge detriment." – Dr. Lametra Scott, PharmD   Connect with Dr. Lametra Scott, PharmD: Website: https://www.btsscycle.org/ Facebook: https://www.facebook.com/brkthesscycle/ Instagram: https://www.instagram.com/brkthesscycle/ LinkedIn: https://www.linkedin.com/in/dr-lametra-scott-pharmd-cchp-8201a242/   Connect with Dr. Derrick Burgess: Website: https://www.drderrickthesportsdr.com/ Instagram: https://www.instagram.com/drderrickthesportsdr/ Facebook: https://www.facebook.com/TimeOut.SportsDr LinkedIn: https://www.linkedin.com/in/derrick-burgess-72047b246/ YouTube: https://www.youtube.com/channel/UCHGDu1zT4K_X6PnYELu8weg Email: thesportsdoctr@gmail.com   This episode of TimeOut with the SportsDr. is produced by Podcast VAs Philippines - the team that helps podcasters effectively launch and manage their podcasts, so we don't have to. Record, share, and repeat! Podcast VAs PH gives me back my time so I can focus on the core functions of my business. Need expert help with your podcast? Go to www.podcastvasph.com.

I Am Not My Pain with Melissa Adams
S3E10: The Cushie Effect: A Life with Cushing's Disease- Part Two

I Am Not My Pain with Melissa Adams

Play Episode Listen Later Sep 5, 2023 26:39


Continuing our conversation with warrior, Jewel Dukes. After experiencing unexplained, rapid weight gain, extreme fatigue, mini-strokes and various other symptoms in 2021, Jewel began the difficult journey to find her proper diagnosis of Cushing's Disease. This rare condition required pituitary surgery and caused her to become adrenally insufficient. Two major adrenal crises, several ER visits, and other health complications and comorbidities such as Lipedema, Arthritis, Sickle Cell Trait, and Spinal Stenosis soon followed. Tune in to Part Two as Jewel discusses her best treatment options, her suggestions for the recently diagnosed and her wish for others to understand about living with Cushing's Disease and other rare conditions including the Rare Compassion Program. This program offers a unique opportunity for rare disease patients to share their experience with a medical student. To learn more about The Rare Compassion Program, go  https://globalgenes.org/participate/rare-compassion-program/ and to learn more about Jewel Dukes, go to her social media @thelipedemacushie on Instagram and @Jewel Dukes on Facebook.

Ms. Wanda's Full Circle Radio
Ep. 2340 - Sickle Cell Anemia Awareness

Ms. Wanda's Full Circle Radio

Play Episode Listen Later Sep 5, 2023 87:53


September is National Sickle Cell Anemia Awareness Month. Sickle cell anemia, or sickle cell disease (SCD), is the most common form of inherited blood disorder. SCD and Sickle Cell Trait impacts African Americans at disproportionate rates.  Here's some facts: Sickle Cell Disease (SCD) occurs among about 1 out of every 365 Black or African-American births. SCD occurs among about 1 out of every 16,300 Hispanic-American births. About 1 in 13 Black or African-American babies is born with sickle cell trait (SCT). As you can see, this disease greatly impacts our community and at this time there is no known cure. Hear my conversation with guest who provide first-hand experience with this devastating disease. Lorena Belcher: Mother of a SCD Warrior. Lorena shares her story of parenting a child who is living with the disease and the impacts on her family. Kamilah Bailey: Kamilah shares her journey living with SCD, including surpassing all of the limitations her doctors told her she would never do, like going to college out of state, having a successful career and even having a child. Won't He do it! Ylan Hunt: Ylan is also a SCD Warrior and community health provider. Ylan shares her experiences living with SCD. In addition, Ms. Hunt has the unique opportunity as a mental health provider to bring her personal experience to help bring a cultural connection to patients. Sickle Cell Anemia Association San Francisco (SCAASF): Sickle Cell Anemia Awareness of San Francisco (SCAASF) is a 501(c)3 non-profit organization that came into existence in 2014 after the founder's son Kareem M. Jones passed away in 2013 from complications with sickle cell disease. To learn more about the organization: https://www.scaasf.org/ --- Support this podcast: https://podcasters.spotify.com/pod/show/iammswanda/support

I Am Not My Pain with Melissa Adams
S3E9: The Cushie Effect: A Life with Cushing's Disease- Part One

I Am Not My Pain with Melissa Adams

Play Episode Listen Later Aug 29, 2023 24:37


Meet warrior, Jewel Dukes. After experiencing unexplained, rapid weight gain, extreme fatigue, mini-strokes and various other symptoms in 2021, Jewel began the difficult journey to find her proper diagnosis of Cushing's Disease. This rare condition required pituitary surgery and caused her to become adrenally insufficient. Two major adrenal crises, several ER visits, and other health complications and comorbidities such as Lipedema, Arthritis, Sickle Cell Trait, and Spinal Stenosis soon followed. In Part One, listen as Jewel shares her health journey including her diagnosis discovery and all her comorbidities. Jewel wishes to raise awareness on Cushing's Disease and all the facets of living with chronic illness through her social media, various podcasts and by participating in the Rare Compassion Program. The Rare Compassion Program by Global Genes offers the opportunity for rare disease patients to share their disease and experience with a medical student. To learn more about The Rare Compassion Program, go  https://globalgenes.org/participate/rare-compassion-program/ and to learn more about Jewel Dukes, go to her social media @thelipedemacushie on Instagram and @Jewel Dukes on Facebook. 

Real talk, Real people
Study to detail struggles associated with Sickle Cell Disease in Connecticut

Real talk, Real people

Play Episode Listen Later Jun 15, 2023 20:58


James Rawlings, president/CEO of the Sickle Cell Disease Association of America, Connecticut, gives an update on funding and what's being done to help the 45,000 people carrying the Sickle Cell Trait in Connecticut.

america ceo struggle study connecticut detail sickle cell disease sickle cell disease association sickle cell trait
Medscape InDiscussion: Renal Cell Carcinoma
S2 Episode 3: Renal Medullary Carcinoma: The Importance of Early and Accurate Screening, Diagnosis, and Treatment

Medscape InDiscussion: Renal Cell Carcinoma

Play Episode Listen Later Jun 6, 2023 23:07


Drs Sumanta Pal and Pavlos Msaouel discuss the unique pathophysiology of renal medullary carcinoma, treatment options, clinical trials, and the importance of screening and early detection. Relevant disclosures can be found with the episode show notes on Medscape (https://www.medscape.com/viewarticle/984239). The topics and discussions are planned, produced, and reviewed independently of advertisers. This podcast is intended only for US healthcare professionals. Resources Renal Medullary Carcinoma and Its Association With Sickle Cell Trait: A Case Report and Literature Review https://pubmed.ncbi.nlm.nih.gov/32218668/ Renal Medullary Carcinoma: The Kidney Cancer That Affects Individuals With Sickle Cell Trait and Disease https://pubmed.ncbi.nlm.nih.gov/28697316/ Renal Medullary Carcinoma: A National Analysis of 159 Patients https://pubmed.ncbi.nlm.nih.gov/28485059/ Sickle Cell Trait https://pubmed.ncbi.nlm.nih.gov/30725815/ 2004 WHO Classification of the Renal Tumors of the Adults https://pubmed.ncbi.nlm.nih.gov/16442207/ Renal Cell Carcinoma Unclassified With Medullary Phenotype in a Patient With Neurofibromatosis Type 2 - PubMed (nih.gov) https://pubmed.ncbi.nlm.nih.gov/36975468/ Association of High-Intensity Exercise With Renal Medullary Carcinoma in Individuals With Sickle Cell Trait: Clinical Observations and Experimental Animal Studies https://pubmed.ncbi.nlm.nih.gov/34885132/ Metastatic Renal Medullary and Collecting Duct Carcinoma in the Era of Antiangiogenic and Immune Checkpoint Inhibitors: A Multicentric Retrospective Study https://pubmed.ncbi.nlm.nih.gov/35406448/ Ixazomib, Gemcitabine, and Doxorubicin in Treating Patients With Locally Advanced or Metastatic Kidney Cancer https://clinicaltrials.gov/ct2/show/NCT03587662 Phase II Trial of Immunotherapy in Patients With Carcinomas Arising From the Renal Medulla https://clinicaltrials.gov/ct2/show/NCT05347212

Hear Me Now Podcast
Sickle cell disease

Hear Me Now Podcast

Play Episode Listen Later Apr 27, 2023 57:54


A transcript is available onlineSickle cell disease is an inherited disorder of the blood protein hemoglobin. It has multiple ways to impact the health of someone with the disease — with a hallmark symptom being excruciating chronic pain. The vast majority of people with sickle cell trait and sickle cell disease are Black. Until relatively recently, there has been only one drug to treat the disease.On this week's program, host Seán Collins talks with Dr. Titilope Fasipe, co-director of the Sickle Cell and Thalassemia Program at Texas Children's Cancer and Hematology Center in Houston about advances in both the treatment of sickle cell disease and progress toward a cure..Titilope Fasipe, M.D., Ph.D.Co-DirectorSickle Cell & Thalassemia ProgramTexas Children's Cancer & Hematology CenterAssistant ProfessorPediatrics & Hematology/OncologyBaylor College of MedicineHouston, Texas.To produce this episode, we collected stories from people living with sickle cell disease. These interviews are excerpted in this podcast episode and we invite you to listen to more of the conversations by following the links below. Andre Marcel Harris speaks with his sister Alexis HarrisSijaama Branch talking with producer Scott AcordHeather Avant in conversation with her cousin Dr. Bria Davis   ..To learn more:A full list of resources is available on our websiteSickle Cell & Thalasemmia Program   (Texas Children's)Sickle Cell Disease CoalitionA “Narcotics Contract” for a Patient With Sickle Cell Disease   Pediatrics / (the "care-seeking" article) Building access to care in adult sickle cell disease  Blood AdvancesCure Sickle Cell Initiative  NIHSickle Cell Gene Therapy Education Project   NIHAddressing SCD: A Strategic Plan and Blueprint for Action   NASEMA Review of Sickle Cell Disease (and Reply) JAMAHospital Use and Mortality in Transition-Aged Patients With Sickle Cell Disease  Hospital PediatricsStill seeking balance in opioid management for acute sickle cell disease pain   Pediatric Blood & Cancer..   

Waiting is the Hardest (W.I.T.H)
S2 Bonus-An interview with Pediatric Hematologist, Dr. Andrew Campbell

Waiting is the Hardest (W.I.T.H)

Play Episode Play 15 sec Highlight Listen Later Mar 24, 2023 75:07


Dr. Andrew Campbell, Director of the Comprehensive Sickle Cell Disease program at Children's National Hospital in Washington, D.C graces our presence on the show. Dr. Campbell enlightens us with the latest in cures for sickle cell disease, educates us on first-of-its-kind legislation, the Sickle Cell Disease Treatment Centers Act of 2022, natural remedies, and many more insights about Sickle Cell Disease and Bone Marrow Transplant that you can't miss.This episode is a must-share for anyone who is personally or knows someone who is experiencing sickle cell anemia. Press play now!

Waiting is the Hardest (W.I.T.H)
S2Ep3- Deciding to move forward with transplant

Waiting is the Hardest (W.I.T.H)

Play Episode Listen Later Mar 10, 2023 43:20


Making the decision to go through a transplant is a difficult, if not heart wrenching, decision. How does one make the decision to go through transplant? Where does the peace come from to move forward with a life changing decision? This episode reveals insights that helped Sofia's family make this difficult choice. Other topics include: Sofia's mental and emotional state leading up to the transplant, donor match types, finding your support system, and preparing financially to go through the transplant process. 

Self-Cell Care
Genetics and Muscle Recovery

Self-Cell Care

Play Episode Listen Later Jan 23, 2023 133:23


How former professional athletes Lance Kearse and Montre Hartage use nutrition to offset the Sickle Cell Trait and improve recovery. 

genetics muscle recovery sickle cell trait
@theAlynettework
All Things 805 11/20/22

@theAlynettework

Play Episode Listen Later Nov 20, 2022 52:05


Farron Dozier, Founder of Whatz Da Count for Sickle Cell Trait awareness & owner of the Oxnard Orcas Professional Basketball Team. Checking with Swapmeet Justice and BlackinBusiness 805. Local Events and More. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/alynettework/message Support this podcast: https://anchor.fm/alynettework/support

The Sickle Cell Podcast
Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof)

The Sickle Cell Podcast

Play Episode Listen Later Jul 22, 2022 58:13


For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story with SCT, the challenges they had to face with telling their families, and weighing the options for marriage and children that led them to their IVF journey with PGD testing. Find Abisola and Seyi Shof on Instagram: @theshofs --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support

ivf abi seyi sct pgd sickle cell trait
Youth Sports Safety Update
Sickle Cell Trait - know the facts and prepare to be safe

Youth Sports Safety Update

Play Episode Listen Later Jun 30, 2022 4:44


For more information and thank you to the NCAA for sharing this educational informationhttps://ncaaorg.s3.amazonaws.com/ssi/other/SSI_NCAASickleCellTraitforSA.pdf

safe ncaa sickle cell trait
Indiana Minority Health Network Podcast - Minority Health Matters

IMHC's Erica Pedroza sits down with Gary Gibson, President/CEO of Martin Center Sickle Cell Initiative, to provide information about Sickle Cell Trait and Sickle Cell Disease, a disease that disproportionately affects African Americans.

The Clarke County Democrat Podcast

Berry's Chapel AME Zion Church's Bloodmobile located at 2451 Berry's Chapel Road in Jackson will have a Blood Drive Friday, April 1 from 10 a.m. to 3 p.m. Participants will receive the following gifts: a Amazon gift card, Sickle Cell T-shirt, free Covid Antibody Testing, testing for Sickle Cell Trait and a Berry's Chapel coffee mug. The drive will be sponsored by the American Red Cross. For more information contact www.RedCrossBlood.org or enter sponsor keyword “berrychapel” or call 1- 800-733-2767. United Way to offer assistance to those in quarantine United Way and the Alabama Department of Public Health are...Article Link

We G.A.M.E.(GROW,ALIGN,MANIFEST and EVOLVE!!!) Are you ready to GAME?

After two years of hosting their annual Sickle Cell 10k, 5k, 1k race on a virtual platform, the Houston-based As One Foundation is happy to announce that the 2022 race will be in person. The event will take place Sunday, February 27, 2022, at Stude Park in the heights located at 1031 Stude St. Houston, TX 77021. The race will kick off at 8 am. “Due to the COVID-19 pandemic we were forced to host the race virtually for the past few years, and although we are grateful for those who continued to support us during those times, we are beyond excited that the race is back in person this year,” said As One foundation Executive Director, Dr. Tomia Austin. The Darling Dash is held in honor of the As One Foundation Founder and former Houston Texan NFL player, Devard Darling's identical twin brother Devaughn, who died from complications of Sickle Cell Trait. The annual race helps to bring awareness to athlete deaths that plague the sickle cell community. Sickle Cell Trait is classified as the leading non-injury killer of collegiate athletes and affects 2.5 to 4 million people in the U.S. “Playing in the NFL was a dream for me and my brother,” said Darling. “I never thought that we wouldn't be able to carry out our dream together. Since his death, I've made it my life's mission to shine a light on Sickle Cell Trait related deaths among high school and college athletes. Proceeds from the race help to provide training material and testing kits for the Operation Hydration training program & supplies for outreach efforts for over 700 coaches and teachers. Funds from the race also afford monthly blood drives in partnership with Red Cross and the Gulf Coast Regional Blood Bank for Sickle Cell patients who need lifesaving blood transfusions once or twice a month.“ Sickle Cell Trait (SCT) can kill. It takes the lives of young athletes every year. A simple blood test along with supplemental SCT education for coaches & student-athletes can prevent these deaths. For each $10 donation, we can provide 1 student with a free sickle cell trait screening and supplemental education, said Austin.To register for the race please visit https://www.asonefoundation.org/darlingdash2022/ you can also sign up to be a vendor, or host a blood drive at your facility. The As One Foundation is encouraging organizations and businesses to create individual teams to run the 10k, 5k, 1k race.

Everybody Pulls The Tarp
Ryan Clark: Preparing Like A Champion

Everybody Pulls The Tarp

Play Episode Listen Later Oct 14, 2021 27:38


Ryan Clark is a Super Bowl Champion, Pro Bowler, NFL Analyst, and an MMA commentator. After signing with the New York Giants as an undrafted free agent in 2002, Ryan went on to have a successful 13-year career in the NFL including a Super Bowl XLIII title and two AFC Championships. In 2007, Ryan faced a life-threatening illness and returned courageously to the NFL to continue his football career. In this conversation, Andrew and Ryan explore ways to prepare like a champion, differentiate yourself from others, and stay tough amidst adversity.Show highlights:1:56 - Staying confident after not being selected in NFL draft2:05 - Advice from Coach Nick Saban3:19 - Consistency and playing 30 consecutive games at LSU4:41 - Intellectual side of football, preparation, and being prepared for what's coming7:40 - Preparing with urgency and differentiating yourself from others10:18 - Learning how to evolve your preparation to fit your needs and skills12:59 - How to feel ready for a new, challenging opportunity14:55 - "You don't prepare to win. You prepare to make the other team beat you."16:33 - Determining how you learn and positioning yourself for success19:58 - Ryan's life-threatening health crisis due to sickle cell trait23:01 - Preparing for the Super Bowl and how to stay focused when out of routine25:07 - NFL taunting penalties and importance of letting passion shine throughBe sure to subscribe & leave a review for the show in your favorite podcast app.Please tell your friends about Everybody Pulls The Tarp on social media and be sure to tag Andrew in your posts @andrewmoses123 (Instagram) and @andrewHmoses (Twitter).Follow Andrew on IG: @AndrewMoses123 and Twitter:@andrewhmosesSign up for e-mails to keep up with the podcast at everybodypullsthetarp.com/newsletter!

Joe Cannon Health Podcast
Sickle Cell Trait & Rhabdo

Joe Cannon Health Podcast

Play Episode Listen Later Aug 19, 2021 71:50


Sickle cell trait is one of the genetic risk factors that raise the risk for rhabdomyolysis. Today I sit down with Farron Dozier, a US military vet who has sickle cell trait. We discuss how Farron got rhabdo, what happened afterward, and along the way discuss many other related issues.  This is episode 110. ============= Connect with Farron Websites: WDConSct.org and FarronD.com =========== Preorder My Rhabdo Book The updated version of my rhabdo book is 99% ready. You can pre-order it directly from me by going to this page of my website Joe-Cannon.com rhabdo book page If you are outside the US, you will soon be able to get it too. Email me for details. ============ I'm Joe Cannon. I have an MS degree in exercise science and a BS degree in biology & chemistry.  I'm an authority on dietary supplements, personal fitness training, and the author of several books including Rhabdo, the first book about exercise-induced rhabdomyolysis. Connect with me: Joe-Cannon.com SupplementClarity.com My books: All my books on Amazon Disclaimer: Episodes are for information only. I'm not a medical doctor. No medical advice is given or implied. Always consult your doctor for the best health advice for you. I participate in the Amazon Associates program

Dear Dad Podcast
Sickle Cell Trait

Dear Dad Podcast

Play Episode Listen Later Jun 17, 2021 81:31


From an early age, I was told I have the Sickel Cell trait. I was told countless times to be careful of who I have kids with and certain activities I could not partake in, but what I didn't know there was a whole book of things I should look out for. Farron Dozier talks about the importance of getting yourself check out especially if anyone of you family member have the Sickle Cell or the Trait.   Guest: Farron Dozier For more information please click on the links below CDC: https://www.cdc.gov/ncbddd/sicklecell/traits.html Farron Dozier website: https://wdconsct.org/ National Suicide Prevention Lifeline Website: https://suicidepreventionlifeline.org/ National Suicide Prevention Lifeline: 800-247-8255

The Sickle Cell Podcast
Sickle Cell Trait + RMC - A Kidney Cancer (Feat. Dr. Pavlos Msaouel, MD, PhD)

The Sickle Cell Podcast

Play Episode Listen Later Jun 2, 2021 88:24


Did you think Renal Medullary Carcinoma (RMC – a kidney cancer) was a sickle cell trait complication? Listen and learn more about this rare, but aggressive kidney cancer and what signs, symptoms, and precautions to take to stay on top of this issue and your kidney health. Featuring RMC expert Dr. Pavlos Msaouel --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support

Dreamvisions 7 Radio Network
Awakened Wellness with Mylaine Riobe MD

Dreamvisions 7 Radio Network

Play Episode Listen Later May 6, 2021 60:12


The Link between Covid and Sickle Cell Trait you Need to Know While the medical community pays a lot of attention to sickle cell anemia, there are very few studies on a “less dangerous” form called sickle cell trait. Join Dr. Riobe to explore how sickle cell trait may be largely responsible for the staggering increased risk of death from covid and other diseases in the black and brown community. Learn what strategies these communities can take to protect themselves. Video Version: https://youtu.be/4-BJ7ANWAys Call in and Chat with Dr. Mylaine during Live Show with Video Stream: Call 646-558-8656 ID: 8836953587 press #.  To Ask a Question press *9 to raise your hand Have a Question for the Show? Email Dr Mylaine : Info@RiobeIntegrativeMedicine.com www.RiobeIntegrativeMedicine.com Post on https://www.facebook.com/AwakenedWellness8

SCD Stories
EP #4 Shalawn James Story

SCD Stories

Play Episode Listen Later Apr 20, 2021 41:18


Shalawn and Jerrick have dealt with the secondary and tertiary effects of Sickle Cell Disease and have had countless strokes since he was a child and are not allowing that to stop him from living his life.

SCD Stories
EP #3 Williams Family Story

SCD Stories

Play Episode Listen Later Apr 13, 2021 32:20


The Williams family is a family of 5 and they unite together as advocates to fight not only against Sickle Cell Disease, but also on behalf of any and all under represented health communities.

SCD Stories
EP #2 Tristan Lee Interview

SCD Stories

Play Episode Listen Later Apr 6, 2021 25:37


Tristan who has dealt with the secondary and tertiary effects of Sickle Cell Disease has had countless strokes since he was a child and is not allowing that to stop him from living his life to the fullest.

SCD Stories
EP #1 Ronald Johnson Story

SCD Stories

Play Episode Listen Later Mar 23, 2021 42:27


Ronald Johnson is a member of the Board of Directors of the South Central PA Sickle Cell Council and the caregiver for his mother.  Ronald is the only child in his family with Sickle Cell Disease and 2 of his siblings have the trait.

SCD Stories
Welcome To SCD Stories

SCD Stories

Play Episode Listen Later Mar 21, 2021 4:24


Sickle Cell Disease is the leading hereditary blood disease in the nation but one of the least funded diseases.   In order to bring the proper funding, support and attention to this disease we launched this podcast to increase awareness to ensure that even at the local support that will influence the national support from  national community leaders.   We  interview each week individuals and families about their path that include their struggles, successes and tragedy while dealing with sickle cell so that we can all have a human life attached to the label of sickle cell disease and not just a name of a diagnosis.As the host  my  hopes are to make sure that during the interviews we can touch upon the areas not yet known among most health professionals, community leaders and others who can assist lead the charge against this horrific disease.sick

The Mental Corner Podcast
US Army Veteran Farron Dozier on Sickle Cell Trait | The Mental Corner Podcast

The Mental Corner Podcast

Play Episode Listen Later Mar 11, 2021 67:08


Farron is a 24-year US Army veteran who shares his personal experiences and journey with Sickle Cell Trait to help raise awareness for both Sickle Cell Trait patients and soldier mental health The Mental Corner Podcast is a show hosted by Harry Potvin where guests from all different backgrounds come on weekly and discuss the many different aspects of Mental Health and how we can change society, and ourselves for the better. Farron's Socials: Instagram: https://www.instagram.com/farrondozier/ Website: https://farrond.com Harry's Socials: Instagram: https://www.instagram.com/thementalcorner/

Patient Stories with Grey Genetics
A Mother's Journey with Sickle Cell Disease

Patient Stories with Grey Genetics

Play Episode Listen Later Mar 2, 2021 46:59


When Layla was pregnant, she knew there was a 1 in 4 chance that her child would have Sickle Cell Disease. Routine newborn screening was done in London when Suki was 5 days old. She would be notified soon if her daughter Suki had Sickle Cell Disease, or even if she was a carrier and had Sickle Cell Trait. Like other parents, Layla was told that no news was good news. She was relieved. Then, when Suki was a month old, there was a knock at the door: Layla was told that Suki did have Sickle Cell Disease. She was handed pamphlets and told that Suki would have an appointment at the hospital when she was 3 months old. Layla shares how their world changed and what her experience with motherhood has been like. She also shares how racism has impacted Suki’s care, specifically during Covid-19, when Suki received care at a different hospital from where she is normally cared for by a dedicated team. Links and Resources Follow Suki on Instagram: @suki_lawson Follow Layla on Instagram: @layls.x Sickle Cell Society (UK) Sickle Cell Disease Association of America Addressing Health Disparities in Sickle Cell Disease. Interview with Barbara W. Harrison, MS, CGC. December 15, 2020. Genotypecast Podcast. Listen to another interview with a young woman who has sickle cell disease: Invisible and Unpredictable. Interview with Mary Adenturinmo. September 25, 2018. Patient Stories Podcast. Have thoughts or a related story you’d like to share? Leave us a short voice message here! We may use your message on a future show. Check out other Patient Stories podcast episodes. Read other Patient Stories on the Grey Genetics Patient Stories Page. Do you want to support Patient Stories? You can make a donation online! Want to support Patient Stories in a non-monetary way? Leave us a review on iTunes, or share your favorite episodes on Social Media. Patient Stories on Twitter: @GreyGeneticsPod Patient Stories on Instagram: @patientstoriespodcast Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone. Not quite ready for genetic counseling but still looking for guidance? Check out our new family history review services here.

Born to Talk Radio Show
Farron Dozier

Born to Talk Radio Show

Play Episode Listen Later Dec 29, 2020 65:44


As I end this year of my Born To Talk Radio Show Podcasts, I am grateful for my friend Farron Dozier for joining me in an hour’s worth of inspiration. The Farron Story. What do you know about Sickle Cell Trait, Anemia, and Disease? Farron highlights these differences. Little did Farron know, as a little... The post Farron Dozier appeared first on Born To Talk.

BackTalk by Successful Black Parenting magazine
If Your Black Child Plays Football, This Hidden Trait Could Kill Him

BackTalk by Successful Black Parenting magazine

Play Episode Listen Later Sep 21, 2020 34:46


https://www.SuccessfulBlackParenting.com -- You and your children could have this trait and not even know you have it and you can easily find out by just asking your obstetrician. This trait has killed at least 11 football players since 2000 during practice and it is called Sickle Cell Trait. The sad thing is the now deceased players did not have Sickle Cell Anemia, they didn't know they had the trait (like most of us), and they dropped dead during practice. On our BackTalk livestream/podcast, Janice Robinson-Celeste, publisher of Successful Black Parenting magazine and CEO of Successful Parenting Media spoke to Dr. Corey Hebert who is a pediatrician, affiliated with Children’s Hospital in New Orleans. He is carrying the banner for educating the Black family about this disease and imploring them to find out if they have the trait. This can save lives. Don't forget to follow us on Twitter (BlackParenting1) and Instagram (BlackParentingMagazine). Our website is SuccessfulBlackParenting.com. SHARE! SHARE! SHARE! #sicklecellawarenessmonth #sicklecell #sicklecelldisease #sicklecellanemia #football #children #coreyhebert #family #successfulblack #parenting #backtalk #janicerobinsonceleste --- Send in a voice message: https://anchor.fm/janice-celeste/message Support this podcast: https://anchor.fm/janice-celeste/support

The Zero to Finals Medical Revision Podcast

In this episode I cover sickle cell anaemia.If you want to follow along with written notes on sickle cell anaemia go to zerotofinals.com/medicine/haematology/sicklecellanaemia/ or the haematology section in the Zero to Finals medicine book.This episode covers the definitions, types, tests, causes and treatments of sickle cell anaemia. The audio in the episode was expertly edited by Harry Watchman.

Anna Marie's Sunday Focus
Breaking the Sickle Cell Cycle

Anna Marie's Sunday Focus

Play Episode Listen Later Jun 10, 2019 28:47


Anna Marie interviews Dr. Lametra Scott, Founder and President of Breaking the SSickle Cell Cycle Foundation, Inc.

#12minconvos
Dr. Tomia Austin, a Sickle Cell Trait (SCT) Educator, Advocate & Researcher /Ep2260

#12minconvos

Play Episode Listen Later Apr 20, 2019 13:02


Dr. Tomia Austin   #TraitWarrior Dr. Tomia Austin, a Sickle Cell Trait (SCT) Educator, Advocate & Researcher, travels the country educating parents, coaches & student-athletes on how being tested for & educated about SCT can help alleviate fear of not being able to compete as SCT carrier among other things. Nationally, many of the nearly 4 million people of African, Latin, Asian, Indian, Italian, Mediterranean, Greek and Turkish descent have SCT without knowing or understanding the true health implications of having SCT. This audience is directly targeted on her weekly Facebook-based show - #TraitWarrior where SCT carriers are highlighted, including athletes’ success stories of excelling in collegiate & professional sports due to knowledgeable & compliant coaching and training staffs.#SickleCellTraitEducationDr. Austin, as Executive Director of the As One Foundation (AOF), authored a program – Operation Hydration - to bring awareness to SCT and promote hydration as prevention of adverse effects such as exertional sickling. The AOF was established by NFL wide-receiver and SCT carrier, Devard Darling, to honor the memory of his late brother, Devaughn Darling, who died of dehydration and exhaustion complicated by SCT. Under Dr. Austin’s leadership the new mission of the foundation became to educate & increase awareness of sickle cell trait while encouraging youth to achieve their dreams in the face of life challenges. Dr. Austin’s nearly 20 years of dedicated work in the higher education and not-for-profit sectors fuels her pursuit of health literacy for disadvantaged populations – especially young athletes of color. Her work focus and research interest areas include genetics, sickle cell anemia and sickle cell trait, dehydration, asthma, youth sports, high school, college and professional athletics, physical activity and obesity among populations of African, Caribbean, Asian, Indian, Latin, Italian, Greek, Turkish and Mediterranean descent. Dr. Austin has had experience in community settings on local, county, state, national and international levels, laying the foundation for globally impactful contributions to the research. As a telecommuter to Metro Houston, Texas in her executive role, she makes her home in Metro Atlanta with her husband, Douglas.Dying to Win? While the National Collegiate Athletic Association (NCAA) mandates SCT screenings for all collegiate athletes due to exertional sickling deaths’ classification as student athletes’ top killer, student-athletes can opt out of SCT testing and are provided minimal SCT education. High schools receive no SCT education and are not mandated to test for SCT – even though high schoolers have died similarly. Exertional sickling deaths of athletes are largely preventable deaths. Winning does not have to come at the cost of another young athlete’s life. Hence, Dr. Austin’s goal is to eradicate exertional deaths & pre-season funerals of young athletes.Goal – 2020 by 2020. Dr. Austin's goal is to provide SCT education & screenings to 2,020 school districts by the end of 2020. In order to qualify for educational grants participants must take pre/posttests to measure SCT knowledge gain. Join the movement to STOP WORKOUT SEASON FUNERALS. To register your school for SCT education; to be a guest on the #TraitWarrior Facebook show or to join the email list for access to latest news, visit:https://tinyurl.com/SickleCellTraitEducation. Listen to another #12minconvo

The Sickle Cell Podcast
Sickle Cell + Trait

The Sickle Cell Podcast

Play Episode Listen Later Sep 10, 2018 67:04


Happy Sickle Cell Awareness Month! Stephen nerds out on everything sickle cell trait, hence the length of the episode. This episode delivers our usual cheese, so enjoy! :) --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support

sickle cell trait
JAMA Neurology Author Interviews: Covering research, science, & clinical practice in the structure and function of the nervou

Interview with Hyacinth Idu. Hyacinth, MD, PhD, MPH, author of Association of Sickle Cell Trait With Ischemic Stroke Among African Americans: A Meta-analysis

It's Real Talk Radio
September Is Sickle Cell Awareness Month

It's Real Talk Radio

Play Episode Listen Later Sep 5, 2017 129:00


Tonight, on It's Real Talk Radio, we'll be recognizing Sickle Cell Awareness Month, which is September for those who don't know. Ms. Sha', It's Real Talk Radio co-host, has the Sickle Cell Trait and has a child who has the actual virus which is passed on genetically. Millions of people carry the trait and millions live with the actual illness and it's important to recognize and educate ourselves on this deadly disease, which claims the lives of countless people including Hip Hop legend, Prodigy. Sickle Cell patients live with great discomfort and pain and there is no cure for it. When you have it, you have it for life. Some of you probably have a family member who has this illness and you yourself may carry the trait and not even know it. There is so much to be educated on when it comes to Sickle Cell Awareness and there's no better suited person to learn from than Ms. Sha', because she has been dealing with this disease for years! There are organizations that help and support Sickle Cell patients, including the Sickle Cell Society, the Children's Sickle Cell Foundation and others which we'll get into on the show. So make sure you listen in because there will be a lot of valuable information you can learn and pass on to friends, family and loved ones. It doesn't get much realer than this! Topics like this are what It's Real Talk Radio is all about. Spreading knowledge and making a voice for the people. #ItJustGotReal Call In # 347-838-9540

JALM Talk Podcast
Sickle Cell Trait in the Blood Supply

JALM Talk Podcast

Play Episode Listen Later May 30, 2017 7:53


Joesph Wiencek

blood supply sickle cell trait
In the BarberZone with Chevez Moman
Sickle Cell Awareness...Know Your Status

In the BarberZone with Chevez Moman

Play Episode Listen Later Apr 27, 2016 61:00


BarberZone Radio presents "In The BarberZone" We discuss topics that effect Barbers and trade of Barbering. Open & Honest dialogues about the Industry and the People that Love it. We also address the issues that effect the communities in which we serve. Show Topic: Sickle Cell Special Guest:  Felice Thomas, President FaithThomasFoundation Show Time: 10pm EST...7pm PST LISTEN LIVE on your computer, laptop, tablet or mobile device at www.barberzoneradio.com & Become a friend of the show on Blogtalk. Listener call-in number... 6573830790 and Press 1...To join the show & express your opinion of the show topic. Follow BarberZone Radio on Facebook & Twitter: Facebook-www.facebook.com/barberzoneradio Twitter-www.twitter.com/barberzoneradio #InTheBarberZone #ComeGetYourHeadRight #BarberZoneRadio #BarberStrong #BarberUnity #BarberPride #barberbusiness #barberradio #barberlifestyle #hair #barber        

Strength and Conditioning Journal Podcast
Sickle Cell Trait: A Review and Recommendations for Training with Erin Fidler

Strength and Conditioning Journal Podcast

Play Episode Listen Later May 30, 2012 6:04


06:04 no william.gee@wolterskluwer.com (Ben Reuter, SCJ Podcast Editor)Ben Reuter, SCJ Podcast EditorStrength and Conditioning Journal is the professional journal of the National Strength and Conditioning Association (NSCA). The purpose "SCJ Podcasts" is to highlight current to