Podcasts about sickle cell

In this powerful episode of It Happened To Me, co-hosts Cathy Gildenhorn and Beth Glassman are joined by two fierce patient advocates and changemakers in the sickle cell disease community: Wunmi Bakare and Dima Hendricks. Both women are living with sickle cell disease and have transformed their lived experiences into platforms for storytelling, education, and change.   They are also the co-hosts of #ThroughTheGenes, a podcast that launched last year on World Sickle Cell Day (June 19, 2024). The show explores gene therapy and other innovative treatments for sickle cell disease while centering patient voices. With a second season debuting again on June 19th (exactly a month from today!), Wunmi and Dima continue to bring much-needed visibility to a condition that is often misunderstood and underfunded. And they will be joined by a new dynamic host, Christelle Salomon!   Topics Discussed: What is sickle cell disease and how it impacts daily life The emotional and physical toll of living with a chronic, invisible illness Medical gaslighting and how to advocate for yourself Finding community and realizing you're not alone Blending identity, advocacy, and creativity in the public eye Insights into gene therapy, including CRISPR technology and treatment considerations Health equity and why access to care must be a priority in the sickle cell space The power of patient-centered storytelling through #ThroughTheGenes podcast   During the episode Beth referenced a previous episode with someone who has pancreatic cancer, you can listen to Leslie Waldman's full interview on Episode 25 here.    Catch up with all of season 1 of #ThroughTheGenes podcast right now, before season 2 launches on World Sickle Cell Day on June 19th, 2025.    Both podcasts, It Happened To Me and #ThroughTheGenes are part of Gene Pool Media, the science podcast network. Be sure to check out all these science shows, many of which discuss medical challenges.    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com. 

Sickle cell disease is painful, costly and now possibly- curable. A new treatment reprograms a person's own blood cells to fight the disease. We break down how it works and introduce you to a woman ready for relief.

On this episode of Cheat Codes, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, is joined by sickle cell advocates Teonna Woolford, Cassandra Trimnell, and Rae Blaylark discuss the challenges and rewards of sickle cell advocacy. They delve into personal journeys, the nuances of advocacy, and the importance of self-care. The conversation highlights the power of community, the significance of setting boundaries, and the need for therapeutic support. The advocates also reflect on the impact of their work and offer advice for the next generation of sickle cell advocates.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.  

Send us a textIn this episode we uncover the realities of sickle cell disease with our guest, Jaudat, who has navigated life with this condition firsthand. You'll learn what sickle cell is—and isn't—discover the common triggers of painful crises, and hear Jaudat's personal strategies for managing flare-ups. We also tackle widespread misconceptions, from “only children get it” to myths about contagion, and discuss how friends, family, and healthcare providers can offer real support. Tune in for an honest, compassionate conversation that sheds light on the challenges and resilience of those living with sickle cell—and find out how we can all help break the stigma.The content provided in this podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. The hosts provide medical advice, and any health-related discussions for general informational purposes. If you have a medical emergency, call your doctor or emergency services immediately.

In this week's episode we'll learn more about how phosphoseryl-tRNA kinase inhibition promotes cell death in acute myeloid leukemia, or AML; APOE gene variants and their association with post-hematopoietic stem cell transplant outcomes in AML; and pathways by which chronic inflammation and oxidative stress may lead to cardiomyopathy in patients with sickle cell disease.Featured Articles:PSTK inhibition activates cGAS-STING, precipitating ferroptotic cell death in leukemic stem cells Common Hereditary Variants of the APOE Gene and Posttransplant Outcome in Acute Myeloid Leukemia 17R-Resolvin D1 Protects Against Sickle Cell Related Inflammatory Cardiomyopathy in Humanized Mice 

The Steve Harvey Morning Show for Wednesday, April 16th, 2025: Steve gives Junior a pep talk as he prepares to speak before the Texas State Senate on new Sickle Cell legislation. Michelle Obama addresses speculation that she and the former President are getting a divorce. A$AP Rocky says he knew Rihanna was in the courtroom for his acquittal...find out how. The crew discuss classic TV shows and singing groups they would bring back. There's another crazy Strawberry Letter, Ask The CLO, Would You Rather, & more!Support the show: https://www.steveharveyfm.com/See omnystudio.com/listener for privacy information.

On this episode, Dr. Z and Dr. C. Callahan interview Dr. Isaac Odame, a leading figure in the field of sickle cell disease. Dr. Odame shares his life story, beginning in Ghana, his medical training in the UK, and his global contributions to sickle cell research, including involvement with the Global Sickle Cell Disease Network. The discussion covers his work in various countries, the challenges, and successes in treating sickle cell disease, and his family's influence on his career.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.   Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.  

Listen to us on:"Not That Serious" on Apple Podcasts: https://apple.co/3eLJXGC"Not That Serious" on Spotify: https://spoti.fi/3eS0kkKNTS socials:Subscribe to our YouTube: https://bit.ly/3s8kJoHJoin our Patreon: https://bit.ly/3saJileLike and share our content on Instagram: https://bit.ly/3s7tFuPCheck us out on TikTok: https://bit.ly/3Dlr9rjFollow us on Twitter: https://bit.ly/3glyMVoAsk NTS questions to be read on an episode: https://bit.ly/3TtzD4UJoin us on Discord: https://discord.gg/JJtQQYNWusTap in with us on Twitch: https://www.twitch.tv/thentspodIf you like to send us mail, send it to:NTS PodcastPO Box 276Burlington, NJ 08016Follow the crew on:Twitter: @homebodymike / @itselzee / @KoreeB_Flyin / @q_hendryx / @Vinomonty / @padredickson / @mjthesecond_Instagram: @mikelowkey / @djelzee / @koreethe_pilot / @qhendryx / @Vinomonty / @padredickson / @mj_thesecondFilmed & Edited by Michael "MJ" JohnsonBecome a supporter of this podcast: https://www.spreaker.com/podcast/not-that-serious--5918410/support.

Drs. Z and C welcome Dr. Wally Smith, a leading figure in sickle cell research from Virginia Commonwealth University, to discuss crucial issues affecting adults with sickle cell disease. They explore the neglect of adult patients, the need for dedicated centers, and the value of community health workers. Dr. Smith emphasizes the importance of holistic healthcare solutions, state-level policy initiatives, and community support to improve quality of life and outcomes for sickle cell patients.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.   Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.  

Gene therapy offers significant hope for treating sickle cell disease (SCD), a genetic disorder caused by a single mutation in the hemoglobin gene. Recent advancements have led to promising developments and FDA approvals, but challenges remain. In this podcast episode, gene therapy survivor, Jimi Olaghere, shares his journey and offers hope to others with his inspirational message and through his advocacy for patients in the sickle cell community.

Steve and Jim start with continuing their disagreement over concealed carry strategies. We then move on to discussing the attacks on Tesla vehicles and dealerships and Trump's comments regarding Tesla and domestic terrorism. Trump and courts and our Constitutional crisis. We also discuss the death of Federal Judge Jessica Aber; a potential cure for sickle cell anemia; RIP George Foreman and some NFL talk... Enjoy. @whiskeycongress on X and twitter

On this inspiring episode of Cheat Codes, Dr. Z and Dr. C talk with an extraordinary group of individuals who embarked on a monumental climb up Mount Kilimanjaro to raise awareness and funds for sickle cell disease. Led by Dr. Alan Anderson and featuring sickle cell warrior Jimi Olaghere the group of Patrick Hines, MD, PhD, Eva Gallagher, PhD, and Audra Boscoe, PhD shares personal stories of perseverance, determination, and the powerful symbolism of their climb. They discuss the challenges they faced, both mental and physical, and the life-changing impact of their journey. With over $2 million raised, the episode concludes with a hopeful message for the future of sickle cell diagnosis and treatment in Sub-Saharan Africa. Audra Boscoe and Eva Gallagher are employees of Agios Pharmaceuticals. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

Dr Chris answers more listener questions, including: How do sunflowers follow the sun? How does the body determine when you're passing wind or something more solid? Why are mosquitos attracted to some people more than others? Why are some people more intelligent than others? Why are humans the only species with advanced intelligence? How intelligent is an octopus? Like this podcast? Please help us by supporting the Naked Scientists

Dr Chris answers more listener questions, including: How do sunflowers follow the sun? How does the body determine when you're passing wind or something more solid? Why are mosquitos attracted to some people more than others? Why are some people more intelligent than others? Why are humans the only species with advanced intelligence? How intelligent is an octopus? Like this podcast? Please help us by supporting the Naked Scientists

In this powerful episode of Once Upon a Gene, I sit down with James Griffin, author of Breaking Silence: Living With Sickle Cell Anemia. Diagnosed at just two years old, James spent much of his life keeping his condition a secret, fearing how others would perceive him. He faced excruciating pain, hospitalizations, and the daily challenges of living with a chronic illness—all while navigating school, friendships, and a world that often didn't understand his struggles. Now, as an advocate and author, James is using his voice to raise awareness, empower others with sickle cell disease, and push for better care, research, and understanding. In this conversation, he shares what it was like growing up with sickle cell, the language he's learned to use in emergency rooms to be taken seriously, and how he found the courage to finally open up about his diagnosis. Whether you or a loved one are affected by sickle cell disease, or you simply want to hear an inspiring story about resilience and advocacy, this episode is for you.

Sickle cell disease affects approximately 100,000 Americans, with 1 in 365 Black or African American births impacted by this inherited blood disorder. This chronic condition causes immense pain and complications, significantly reducing life expectancy and quality of life for those affected. While treatments have improved over the years, there's growing interest in exploring new avenues to manage sickle cell disease more effectively. One promising area of research is the connection between sickle cell disease and gut health. Recent studies have revealed intriguing links between the gut microbiome and various aspects of sickle cell disease, including pain management and overall well-being. Understanding this relationship could potentially open up new therapeutic approaches and improve outcomes for patients. That's why we're so glad to chat on IG Live with Dr. Charlie Ware, a holistic health expert with expertise in gut health and sickle cell. During this Live, we're going to discuss symptoms of sickle cell disease, the role of genetics in sickle cell, how your gut plays a role in your health, and so much more. Learn more about Dr. Ware's services: https://www.drcharlieware.com/ Get tested for BPA, phthalates, parabens, and other hormone-disrupting chemicals with Million Marker's Detect & Detox Test Kit: https://www.millionmarker.com/

What makes sickle cell disease so challenging to manage? It's not just the pain — it's the complications, stigma, and the need for fast, effective care. In this episode, Morgan Taylor, RN helps us unpack the science behind sickle cell crisis and how nurses can address both the medical and emotional needs of their patients.Learn how to recognize early warning signs of severe complications like acute chest syndrome, balance efficacy and safety in treatment, and help patients prevent a sickle cell crisis. Morgan also shares five key insights that will give you the tools and confidence to provide the best care to your next sickle cell patient. Tune in to this can't-miss episode now!Topics discussed in this episode:Patient presentation and initial symptomsPathophysiology of sickle cell anemiaPain managementRole of fluids and oxygen therapyAdvanced treatments and managing severe complicationsSigns and symptoms of worst case scenarios like Acute Chest SyndromeImportance of advocacy and patient educationPsychosocial impacts of chronic illnessYou can learn more about Morgan here:https://www.linkedin.com/in/morgan-clark-taylor/Find out everything Archer Review has to offer here:https://www.linkedin.com/company/archerreview/Mentioned in this episode:Rapid Response Academy LinkWanna check out Rapid Response Academy: The Heart and Science of Caring for the Sick? click this link to learn more: https://www.rapidresponseandrescue.com/communityCONNECT

Got a story idea for Bloodworks 101? Send us a text message In February of 2024, since it was Black History Month, we took a hard look at Sickle Cell Disease, a devastating genetic blood disorder that predominantly impacts people of African descent. In this Bloodworks 101 Best of 2024 episode, producer Helen Pitlick told us that Sickle Cell disease is an unfortunate reality for many members of Black communities, and at Bloodworks, we'd like to make it history. Dr. Raymond Adili of Bloodworks Research Institute thinks this is possible.

BUFFALO, NY- December 11, 2024 – A new #research paper was #published in Aging (listed by MEDLINE/PubMed as "Aging (Albany NY)" and "Aging-US" by Web of Science) Volume 16, Issue 21 on November 14, 2024, entitled, “Adolescents and young adults with sickle cell disease exhibit accelerated aging with elevated T-cell p16INK4a expression.” Researchers Samuel R. Wilson, Natalia Mitin, Vanessa L. Ayer Miller, Andrew B. Smitherman, and Marcus A. Carden, from the University of North Carolina at Chapel Hill, Sapere Bio, Campbell University, and Cogent Biosciences have discovered that young people with sickle cell disease (SCD) exhibit signs of accelerated biological aging compared to those without the disease. By measuring levels of p16INK4a, a key marker of cellular aging, the team found significantly higher levels in individuals with SCD. Remarkably, some participants showed biological aging equivalent to an additional 43 years. These findings suggest that SCD may drive faster aging in the body, offering new insights into the disease's long-term impact. Sickle cell disease (SCD) is a genetic condition primarily affecting individuals of African or Mediterranean descent. While treatments have advanced, people with SCD often face significant health challenges, including complications that mimic the effects of aging. Cellular aging, or senescence, occurs when cells stop dividing yet continue to send harmful signals that damage surrounding tissues. Researchers believe this process happens at an accelerated rate in people with SCD, underscoring the importance of finding ways to slow it down and mitigate its impact. The study compared p16INK4a levels in 18 adolescents and young adults with SCD to 27 healthy people of the same age. The results showed that even the youngest participant with SCD had higher levels of this aging marker than anyone in the non-SCD group. “Our youngest participant, a 15-year-old with SCD, had a higher p16 expression than all the comparators, underscoring the early rise of p16 expression in this population.” The researchers believe this faster aging could be caused by the chronic inflammation, lack of oxygen, and stress on the body associated with SCD. Along with managing the symptoms of the disease, SCD patients also face a higher risk of aging-related problems like organ damage and physical decline much earlier in life. The findings suggest that measuring p16INK4a levels could help clinicians identify patients at risk for these problems earlier and offer targeted care. The study also opens the door to new treatments, such as drugs that aim to remove old, damaged cells. These therapies could potentially slow down the aging process. Further research is essential to confirm these findings and to gain a deeper understanding of how to support SCD patients effectively. Larger, long-term studies could investigate whether therapies targeting cell aging can help prevent complications and improve the quality of life for individuals with SCD. In conclusion, this study marks an important step in understanding how SCD accelerates aging and offers new ways to improve the lives of those living with the condition. DOI - https://doi.org/10.18632/aging.206152 Corresponding author - Samuel R. Wilson - samuel.wilson@med.unc.edu Video short - https://www.youtube.com/watch?v=QXVdxBikaqg About Aging-US The mission of the journal is to understand the mechanisms surrounding aging and age-related diseases, including cancer as the main cause of death in the modern aged population. The journal aims to promote 1) treatment of age-related diseases by slowing down aging, 2) validation of anti-aging drugs by treating age-related diseases, and 3) prevention of cancer by inhibiting aging. (Cancer and COVID-19 are age-related diseases.) Please visit our website at https://www.Aging-US.com​​. MEDIA@IMPACTJOURNALS.COM

In this episode, we dive into the inspiring story of Hanif Mouehla, a Harvard student and former sickle cell warrior. Hanif shares his journey of growing up with sickle cell disease, from the challenges he faced in his youth to the curative treatment that changed his life. Support this podcast: ⁠https://anchor.fm/thesicklecellpodcast/support⁠ --- Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

The Red Cross is calling for donations to help folks living with sickle cell anemia.Then, as lawmakers prepare their budget recommendations for the 2025 legislative session, they're hearing from Mississippi's State Economist.Plus, November is Diabetes Awareness Month. It's a disease affecting thousands of Mississippians. Hosted on Acast. See acast.com/privacy for more information.

In this deeply personal episode , I share the story of how my mother's passing triggered my first sickle cell crisis in over five years. Losing her was an emotionally overwhelming experience, and I never expected that the stress and grief would manifest physically in such a powerful way. I walk you through the emotional and physical toll that the loss of a loved one can take, especially for those of us living with chronic conditions like sickle cell disease.In this video, I open up about:​The impact of grief on both mental and physical health​My experience with the sickle cell crisis and how it affected me​How I coped with the emotional and physical challenges during this time​The importance of self-care, support, and finding strength during difficult momentsIf you're going through a similar experience or living with a chronic illness, I hope my story helps you feel less alone. Don't forget to like, share, and subscribe for more content on living with sickle cell and navigating life's toughest moments.#SickleCell #GriefAndHealing #Chronicillnes #SickleCellCrisis #MentalHealth #SickleCellDisease

Welcome back to Seasoned Sessions! This week, we talk about the Daily Mail linking Harry and Meghan to the Archbishop of Canterbury abuse scandal, a man with sickle cell who died in police custody, and more. Get in touch with us at @seasonedsessionspod, @adaenechi, and @its_hanifahh and leave any questions for Honesty Hour on this form.

Chantay Harrison-Crawford, a resilient 35 year-old woman, navigates life with Sickle Cell Anemia, Liver Disease, and various medical complications stemming from Sickle Cell Disease. Despite facing immense personal challenges, in 2019, she courageously founded Tilted Crown I Inc., a testament to her strength and determination. In 2023, Chantay confronted rock-bottom moments as she grappled with her own and her daughter's separate suicide attempts, triggered by toxic relationships within her family and circle of friends. Through adversity, she found a renewed purpose after a divine intervention during her second suicide attempt, leading her to dedicate herself to self-transformation and following a higher calling. As a mother, professional, wife, and entrepreneur, Chantay now channels her energy into fostering mental and emotional well-being. She initiated the "Royal Bible Study" program, aiming to empower women towards self-love and care, building on her commitment to serving others. Concurrently, she extended her compassion by offering shelter to two homeless individuals in Illinois. Chantay's past initiatives like "Wisdom Wednesday," documenting stories of Sickle Cell Warriors, and providing community support reflect her altruistic nature. Notably, she has also launched programs such as "Melanated Warrior" and "PMS - Pray and Manifesting Ish," emphasizing natural remedies for Sickle Cell Anemia and hosting relatable discussions through a weekly podcast. Embarking on a new chapter, she is set to release her first book under She Rises Studios, expected between November 2024 and January 2025, marking a significant milestone in her journey of resilience and empowerment. Her social media presence on Instagram as @Catica.33, TikTok as @dearcatica.333, and podcasts on IHeartRadio, Apple Podcasts, and Spotify under "Dear Catica.33" showcase her commitment to sharing experiences and insights.

On this episode of Cheat Codes, Dr. Z and Dr. C are joined by Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia. Tabatha shares her remarkable journey from systems engineer to leading the foundation, driven by a personal mission to enhance the lives of sickle cell warriors. The discussion delves into innovative programs like the Sickle Cell Sanctuary, holistic care initiatives, and the importance of community engagement and advocacy. An inspiring talk on leadership, resilience, and the transformative power of compassion in the fight against sickle cell disease.   To visit the Sickle Cell Foundation of Georgia, click here.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.  

For so long, so many of our Pivot followers have asked when we will interview each other and share our own takes on certain personal questions we often wonder about but never have time to dig in and find out ... .so we are finally doing it! That's right, on this episode of the Pivot, in partnership with Fanatics, Ryan, Fred, and Channing switch it up and dive into one another's stories by interviewing each other, leaning into their own vulnerabilities while learning the how and why of who they are today and where they see themselves in the future.  The conversation kicks off with football, talking about the early youth years to how each got their big NFL break to the things they would have done differently to any regrets and how their respective teams shaped their legacy. Ryan opens up about his undrafted journey to battling Sickle Cell to winning a Super Bowl, and how those experiences furthered his "underdog mentality"—something that still fuels him today. Fred is honest about missing the game and wishing he could still play while Channing doesn't miss it at all. Channing finds it ironic that Fred feels a void because in the history books, Fred is one of the best to ever play his position. But despite Fred's legendary career, he opens up on his own struggles, through dealing with the "Fragile Freddy" stages to not yet making the Hall of Fame and the emotional toll public perception took on him. Channing gets real about the balance (or lack of) between football and everything else he did away from the game…revealing some regrets about the choices he made and how it affected his career.  Understanding that life always moves at a fast pace, doesn't mean we shouldn't stop and realize the reach of our choices is far beyond the field and what we contribute each day is how we will be remembered long after we are gone.  On the eve of Ryan's 45th birthday, he reflects on where he is today and the mission he tries to live out in all his life moments not wanting his Super Bowl win to be the single accomplishment everyone references with more focus on the impact he makes each day and how he's seen for his contributions as well as how he's viewed by the people closest to him. Ryan shares a personal story of a childhood friend recently passing away and how age is creeping up on us and that when it's all said and done, he doesn't want to be defined by his past or a single accomplishment but by who is today and his current mission.  Posing the same question to the guys, Ryan asks what the future holds for each of his co-hosts. Channing shares his vision about making the Crowder name mean something, both for his family and business, while Fred's focus is on his kids and teaching them to be strong minded and live with integrity. The depth of vulnerability and authenticity displayed in the voice of Ryan, Channing and Fred is something that will resonate with all of us as we continue to Pivot through our own lives and journeys. Make progress towards your financial goals with Chime. Visit https://www.chime.com/PIVOT Learn more about your ad choices. Visit megaphone.fm/adchoices

This episode is brought to listeners by NHS Blood & Transplant!Join this channel to get access to perks:https://www.youtube.com/channel/UCOIOo7ybnNFNdwjSCgYDtOw/joinPO Box 5038 HORNCHURCH RM12 9JX Hosted on Acast. See acast.com/privacy for more information.

Approval of BMS's first-in-class schizophrenia drug is good news for patients and the company's thinning pipeline alike, but maximizing Cobenfy's commercial potential depends on readouts in additional indications. On the latest BioCentury This Week podcast, BioCentury's editors assess the significance of the new therapy and what the pharma needs to do to make its launch a success.They also discuss the impact of the withdrawal of Pfizer's sickle cell therapy; the work left unfinished on biotech-related legislation in Congress; BioAge's NASDAQ IPO; and the importance of FDA's Oncologic Drugs Advisory Committee meeting on the use of PD-1 inhibitors in patients with certain tumors expressing low levels of PD-L1. This episode of BioCentury This Week was sponsored by Parexel Biotech.View full story: https://www.biocentury.com/article/65373200:01 - Sponsor Message: Parexel BioTech01:41 - BMS Schizophrenia Drug12:28 - Pfizer Withdrawal's Oxbryta18:26 - ODAC and PDL123:56 - D.C. Update26:51 - BioAge IPOTo submit a question to BioCentury's editors, email the BioCentury This Week team at podcasts@biocentury.com.Reach us by sending a text

Today in Closing Remarks, Big Dog and the crew talk about Sickle Cell awareness and it gets loud.See omnystudio.com/listener for privacy information.

On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful mentors who have shaped her career.  SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

FAMILY DISPUTE OVER MY MOMS ESTATE In this special episode we jby Jenica & A Star, who are both Sickle Cell advocates, to teach and educate us on what we can do to help raise awareness of Sickle Cell. As always, please comment below with your thoughts and don't forget to Like, Share And Subscribe

Pink Sheet reporters and editors discuss Pfizer's abrupt decision to withdraw Oxbryta (:32), the US FDA's Oncologic Drugs Advisory Committee bringing sponsors of approved products back to discuss labeling changes while competitors are pending (10:46), and the new CEO of a generic industry trade association (27:34). More On These Topics From The Pink Sheet Pfizer Withdraws Oxbryta, But Overall Market Impact May Be Limited: https://pink.citeline.com/PS155302/Pfizer-Withdraws-Oxbryta-But-Overall-Market-Impact-May-Be-Limited EMA Discusses Fatal Events That Prompted Pfizer To Pull Oxbryta From Global Markets: https://pink.citeline.com/PS155296/EMA-Discusses-Fatal-Events-That-Prompted-Pfizer-To-Pull-Oxbryta-From-Global-Markets New US FDA Adcomm Trend: Approved Cancer Meds Get Another Look When Competitors Coming: https://pink.citeline.com/PS155285/New-US-FDA-Adcomm-Trend--Approved-Cancer-Meds-Get-Another-Look-When-Competitors-Coming All Comers No More? US FDA AdComm Supports PD-L1 Threshold In Esophageal, Gastric Cancer: https://pink.citeline.com/PS155300/All-Comers-No-More-US-FDA-AdComm-Supports-PDL1-Threshold-In-Esophageal-Gastric-Cancer Pazdur Calls For 'Kumbaya' To Standardize ImmunoOncology Biomarkers: https://pink.citeline.com/PS155298/Pazdur-Calls-For-Kumbaya-To-Standardize-ImmunoOncology-Biomarkers New AAM CEO Looking To ‘Force Multiply' For US Generics Industry: https://pink.citeline.com/PS155294/New-AAM-CEO-Looking-To-Force-Multiply-For-US-Generics-Industry

FAMILY DISPUTE OVER MY MOMS ESTATE In this special episode we jby Jenica & A Star, who are both Sickle Cell advocates, to teach and educate us on what we can do to help raise awareness of Sickle Cell. In Part 1 of this Episode the boys play, Don't Google it and give advice on a dilemma around a lady who sadly recently lost her mother and is being forced to pay her debts by her Grandmother from her moms estate. As always, please comment below with your thoughts and don't forget to Like, Share And Subscribe

In this episode, we explore the journey of aging with sickle cell disease through the inspiring stories of 80-year-old Ms. Pat McGill and Linda Wade. Ms. Pat shares her decades-long experience living with sickle cell, providing invaluable insight into the challenges and triumphs of aging with the condition. Linda Wade, founder of the Mark Thomas Foundation and caregiver to her late husband who had sickle cell, joins the conversation to discuss her role in supporting the sickle cell community and her personal journey of advocacy. Support this podcast:⁠ https://anchor.fm/thesicklecellpodcast/support --- Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

Listen as Dr. London Smith (.com) and his producer Cameron discuss Sickle Cell Nephropathy with special guest David Copperwater (John Dardenne). Not so boring! https://www.patreon.com/join/jockdocpodcast Hosts: London Smith, Cameron Clark. Guest: John Dardenne. Produced by: Dylan Walker Created by: London Smith

Former President Donald Trump tried to overturn the election results and slander election workers in 2020. Less than two months before this year's election, officials are preparing for new conspiracy theories. Online influencers are trying to find evidence of debunked events in Springfield, Ohio, and many people with sickle cell disease are slow to sign up for new genetic treatments.Want more comprehensive analysis of the most important news of the day, plus a little fun? Subscribe to the Up First newsletter.Today's episode of Up First was edited by Ben Swasey, Brett Neely, Scott Hensley, HJ Mai and Ally Schweitzer. It was produced by Iman Maani, Ziad Buchh, Nia Dumas and Mansee Khurana. We get engineering support from Arthur Laurent, and our technical director is Zac Coleman.Learn more about sponsor message choices: podcastchoices.com/adchoicesNPR Privacy Policy

In this episode Sean O'Leary, MD, MPH, FAAP, chair of the AAP Committee on Infectious Diseases, previews the 2024 viral season with a focus on immunization for RSV, flu and COVID-19. Hosts David Hill, MD, FAAP, and Joanna Parga-Belinkie, MD, FAAP, also speak with Zora Rogers, MD, FAAP, about a clinical report on managing sickle cell disease in general pediatric practices. For resources go to aap.org/podcast.

Two-time Emmy and Three-time NAACP Image Award-winning television Executive Producer Rushion McDonald interviewed Kier "Junior" Spates. Co-Host of Steve Harvey Morning Show and founded Kier's Hope to provide underprivileged individuals who suffer from Sickle Cell Disease to ensure they receive the medical, physical, and emotional attention they deserve. Suffering from sickle cell disease in silence is not uncommon in the African-American Community as there is a lack of knowledge of the disease. So, he created the Kier's Hope Foundation. The annual Kier's Hope 5K Fun Run and Walk and Junior Claus is an opportunity for families and those with sickle cell disease to gather and learn more about new treatments, spread awareness, and increase community engagement. Sickle Cell Disease is misunderstood as being contagious, an automatic death sentence, and that people with SCD can't do what "normal" people do!  Kier is changing that narrative. #AMI #BEST #SHMS  #STRAW  See omnystudio.com/listener for privacy information.

Two-time Emmy and Three-time NAACP Image Award-winning television Executive Producer Rushion McDonald interviewed Kier "Junior" Spates. Co-Host of Steve Harvey Morning Show and founded Kier's Hope to provide underprivileged individuals who suffer from Sickle Cell Disease to ensure they receive the medical, physical, and emotional attention they deserve. Suffering from sickle cell disease in silence is not uncommon in the African-American Community as there is a lack of knowledge of the disease. So, he created the Kier's Hope Foundation. The annual Kier's Hope 5K Fun Run and Walk and Junior Claus is an opportunity for families and those with sickle cell disease to gather and learn more about new treatments, spread awareness, and increase community engagement. Sickle Cell Disease is misunderstood as being contagious, an automatic death sentence, and that people with SCD can't do what "normal" people do!  Kier is changing that narrative. #AMI #BEST #SHMS  #STRAW  Support the show: https://www.steveharveyfm.com/See omnystudio.com/listener for privacy information.

Two-time Emmy and Three-time NAACP Image Award-winning television Executive Producer Rushion McDonald interviewed Kier "Junior" Spates. Co-Host of Steve Harvey Morning Show and founded Kier's Hope to provide underprivileged individuals who suffer from Sickle Cell Disease to ensure they receive the medical, physical, and emotional attention they deserve. Suffering from sickle cell disease in silence is not uncommon in the African-American Community as there is a lack of knowledge of the disease. So, he created the Kier's Hope Foundation. The annual Kier's Hope 5K Fun Run and Walk and Junior Claus is an opportunity for families and those with sickle cell disease to gather and learn more about new treatments, spread awareness, and increase community engagement. Sickle Cell Disease is misunderstood as being contagious, an automatic death sentence, and that people with SCD can't do what "normal" people do!  Kier is changing that narrative. #AMI #BEST #SHMS  #STRAW  See omnystudio.com/listener for privacy information.

Two-time Emmy and Three-time NAACP Image Award-winning television Executive Producer Rushion McDonald interviewed Kier "Junior" Spates. Co-Host of Steve Harvey Morning Show and founded Kier's Hope to provide underprivileged individuals who suffer from Sickle Cell Disease to ensure they receive the medical, physical, and emotional attention they deserve. Suffering from sickle cell disease in silence is not uncommon in the African-American Community as there is a lack of knowledge of the disease. So, he created the Kier's Hope Foundation. The annual Kier's Hope 5K Fun Run and Walk and Junior Claus is an opportunity for families and those with sickle cell disease to gather and learn more about new treatments, spread awareness, and increase community engagement. Sickle Cell Disease is misunderstood as being contagious, an automatic death sentence, and that people with SCD can't do what "normal" people do!  Kier is changing that narrative. #AMI #BEST #SHMS  #STRAW  See omnystudio.com/listener for privacy information.

The Louisiana Policy Institute for Children recently announced $1.3 million in grant funding for projects that address compensation for early childhood educators in the state. Seven grantees across the state will look at ways to increase wages and benefits for the workforce that provides early education for the state's youngest children.Dr. Candace Weber, the partnerships director for the Louisiana Policy Institute for Children, joins us to discuss the grants. Alabama has executed three people this year — more than any other state except Texas. The Gulf States Newsroom's Kat Stromquist takes us to a Birmingham church, to view “The Art of Resistance,” exhibit, which includes work made by people on Alabama's death row. September is National Sickle Cell Awareness month. The disease causes irregularly-shaped red blood cells that inhibit blood flow, which can lead to severe pain.Last year,  the FDA approved gene therapy for sickle cell that's widely regarded as a cure. , . Yet people still struggle with the disease, and many have limited access to the treatment which is not covered by insurance.Alvin Henry, Jr. is board president of the Sickle Cell Association of South Louisiana, and has the disease himself. He tells us more about what this new treatment could mean for Louisiana patients. —Today's episode of Louisiana Considered was hosted by Adam Vos. Our managing producer is Alana Schreiber; our contributing producers are Matt Bloom and Adam Vos; we receive production and technical support from Garrett Pittman and our assistant producer, Aubry Procell.You can listen to Louisiana Considered Monday through Friday at noon and 7:00 p.m. It's available on Spotify, Google Play, and wherever you get your podcasts. Louisiana Considered wants to hear from you! Please fill out our pitch line to let us know what kinds of story ideas you have for our show. And while you're at it, fill out our listener survey! We want to keep bringing you the kinds of conversations you'd like to listen to.Louisiana Considered is made possible with support from our listeners. Thank you!

In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients. Highlighting critical insights from her books, she emphasizes the importance of medical management, patient empowerment, and the need for diverse treatment options in fighting this disease. For more information, visit the Sickle Cell Medical Advocacy website. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guest featured in this episode have been compensated for their time.

This week, we have an INCREDIBLE episode for you. We welcome Titilope Fasipe, MD, PhD, who not only is the Co-Director of the Sickle Cell and Thalassemia Program at Texas Children's and an Assistant Professor in the Department of Pediatrics at the Baylor College of Medicine, she herself also has sickle cell disease! Dr. Fasipe takes us through her life story, from childhood to now. Conducting this interview was such an eye-opening experience for us, and we hope that her message resonates with you when you care for your patients with sickle cell disease. Contents: - What it is like growing up with sickle cell disease?- Pearls to ensure that our practice provides excellent care for our patients with SCD- Important resources when caring for patients****Have some time and want to make some extra money? Get paid to participate in market research surveys: https://affiliatepanel.members-only.online/FOC_24?utm_campaign=FOC&utm_source=email&utm_medium=email** Want to review the show notes for this episode and others? Check out our website: https://www.thefellowoncall.com/our-episodesLove what you hear? Tell a friend and leave a review on our podcast streaming platforms!Twitter: @TheFellowOnCallInstagram: @TheFellowOnCallListen in on: Apple Podcast, Spotify, and Google Podcast

Dr. Zach Baker, DPT, SCS and Dr. Seth Hawks, DPT discuss recent literature and pscyhological readiness to return to sport after ACL surgery. They also discuss updates to the NATA guidlines on Sickle Cell related illnesses with training. 

Are we truly achieving health equity when patients with sickle cell anemia face a stark lack of family counseling and support in hospitals? How can we claim fairness in healthcare when these basic needs are so often neglected? And what about cultural differences in healthcare? How frequently are these crucial aspects overlooked, perpetuating disparities? Is it any wonder that African-American patients often feel undervalued in a system that fails to recognize their humanity?   In this episode of the Productivity Smarts Podcast, host Gerald J. Leonard is joined by Dr. Mauvareen Beverley, an executive physician renowned for her expertise in patient engagement and cultural competency. As the author of Nine Simple Solutions to Achieve Health Equity, Dr. Beverley draws on her extensive experience to explain why cultural competency is essential in healthcare. She shares innovative approaches for improving health outcomes, focusing on African American communities and patients with sickle cell disease. Through personal stories, Dr. Beverley underscores the importance of understanding cultural contexts to enhance patient care and achieve meaningful results.   Don't miss this episode for Dr. Beverley's invaluable insights and actionable strategies for advancing equitable healthcare.   What We Discuss [02:32] Dr. Beverley's background [04:43] The bridge-team concept [05:47] Patient story: Sickle cell experience [07:41] Understanding patient needs [10:39] Sustainability of health equity initiatives [12:52] Barriers to health equity [14:53] Historical context of health disparities [20:24] Cultural competence in healthcare [22:34] Curiosity in patient engagement [29:04] Workplace health equity strategies [36:23] Bridging perceptions and reality   Notable Quotes [10:32] “My focus is on sustainability of a process that we're going to put in place to achieve health equity.” - Mauvareen [10:49] “If our health is not taken care of and we're not being advocated for or we don't know how to advocate for ourselves, our productivity will be shot.” - Gerald  [20:24] “Recognize and treat all atrocity survivors the same.” - Mauvareen [27:06]  “Once accurately diagnosed, there's no human being on planet Earth that can give it that. The millionaire can think, oh, I'll give you $1 million to take the cancer back. Oh, that's not enough. I'll give you 5 million.”- Mauvareen [29:07] “Eliminate the word non-adherent or non-compliant without asking implied questions.”- Mauvareen [35:26] “If you're designing a system based on perception and not reality, how are we able to solve the problem?”- Mauvareen   Resources Dr. Mauvareen Beverley Website - https://drbeverley.com/ LinkedIn - https://www.linkedin.com/in/mauvareen-beverley-md/ Book: The Nine Simple Solutions to Achieve Health Equity   Productivity Smarts Podcast Website - productivitysmartspodcast.com   Gerald J. Leonard Website - geraldjleonard.com Turnberry Premiere website - turnberrypremiere.com Scheduler - vcita.com/v/geraldjleonard   Kiva is a loan, not a donation, allowing you to cycle your money and create a personal impact worldwide. https://www.kiva.org/lender/topmindshelpingtopminds

2023 ended with an exciting biotech breakthrough for sickle cell patients. A gene-editing therapy using the revolutionary CRISPR technology provides new hope and options for the nearly 100,000 Americans with sickle cell disease. In this episode, we talk with the company behind one of the life-changing therapies, CASGEVY, and speak with two advocates for sickle cell patients. 

6.19.2024 #RolandMartinUnfiltered: Juneteenth 2024; Verzuz to air on Elon Musk's X; Willie Mays dies; World Sickle Cell Day As we celebrate Cel-Liberation Day and commemorate the celebration of emancipation, we'll examine the loophole that enables schools nationwide to ignore Juneteenth's importance.  We'll also talk to the CEO of OneUnited Bank, the largest Black-owned bank in the U.S., who says emancipation has four economic benefits.   The "Grandmother of Juneteenth," Opal Lee, gets the keys to her new house this week, built where her family's Fort Worth, Texas, home was burned down by a racist mob 85 years ago. We'll pay tribute to baseball Hall of Famer Willie Mays, "the Say Hey Kid," who died at 93. Today is World Sickle Cell Day.  We'll talk about the latest in finding a cure for this disease that affects primarily Americans of African descent. #BlackStarNetwork advertising partners:Fanbase

Two-time Emmy and Three-time NAACP Image Award-winning television Executive Producer Rushion McDonald interviewed Karon Joseph Riley.  The co-star of BET+ "The Black Hamptons" will soon be releasing his first book, “Keep Pedaling The Things I Learned on My Bike.” Karon Joseph Riley was born a star; at least, that is what his mother often told him while growing up in Detroit, Michigan. Karon wanted to be an actor as early as the first grade when he played Puss in Boots in a stage play. Soon after his theatre debut, his athletic talents also emerged. Being the crowd pleaser, he entertained everybody with his athletic prowess. He graduated from the University of Minnesota and remains the All-Time Sack leader and All-American football player. His performance on the gridiron stage led him to become a 4th Round Draft pick of the Chicago Bears. He played seven years between the NFL, CFL, and AFL. After his career ran, he set his sights on Hollywood as he always promised. Through sports and lessons from his mother, Karon was taught that hard work is the only way to make the blueprints that God downloaded into his work. Working off of his faith, he took acting classes in his off-seasons in Los Angeles. Once he officially retired, he dropped the football body and replaced it with the body of a leading man. As a testament to his work, ethnic booked his first speaking role in Russ Parr's classic romantic comedy “35 and Ticking,” starring Kevin Hart and Meagan Goode. After that he booked steady roles on multiple networks on shows like “Single Ladies,” and “Necessary Roughness”. Now a solid network talent, Karon set himself up for a huge year run with a role in Will Packer's feature film “Little” starring Issa Ray and Regina Hall. After that box office exposure, Karon booked two series regular roles on two hit shows. One was “Ambitions,” with Brian J. White and Robin Givens, and the other was “Saints and Sinners,” with Clifton Powell and Vanessa Bell Calloway, respectively. He is currently starring in the NAACP-nominated series The Black Hamptons on BET.Support the show: https://www.steveharveyfm.com/See omnystudio.com/listener for privacy information.

Images of Palestinian men stripped to their underwear prompt outrage. Genetic editing leads to new treatments for blood ailment. Income-based plan zeroes out payments for millions of borrowers.