Adventures in Neuropathy Land

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The podcast delves into my experience of living with neuropathy, starting with my background and life before neuropathy, then dealing with living with it.

Howard Brayer


    • Oct 25, 2024 LATEST EPISODE
    • monthly NEW EPISODES
    • 6m AVG DURATION
    • 35 EPISODES


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    Latest episodes from Adventures in Neuropathy Land

    Episode 35: Physical Therapy

    Play Episode Listen Later Oct 25, 2024 5:28


    In this episode I talk about my most recent round of physical therapy.

    Episode 34: Pain Management

    Play Episode Listen Later Sep 19, 2024 6:32


    In this episode I discuss a visit to a pain management doctor and his proposed plan of action.

    Episode 33: All Rhodes Lead to Syracuse

    Play Episode Listen Later Sep 2, 2024 3:14


    In this episode I talk about my trip to Syracuse, Italy and Rhodes, Greece.

    Episode 32: Foundation for Peripheral Neuropathy Webinars

    Play Episode Listen Later Jul 15, 2024 3:28


    This episode is about the six webinar series being put on this summer by the Foundation for Peripheral Neuropathy.

    Episode 31: Interview with Mike

    Play Episode Listen Later Jul 1, 2024 15:50


    In this episode I interview Mike who is also dealing with neuropathy.

    Episode 30: What Should I Do?

    Play Episode Listen Later Jun 13, 2024 7:26


    Faced with a new treatment plan, I am unsure what to do.

    Episode 29: (Almost) the End of a Line

    Play Episode Listen Later May 19, 2024 5:33


    In this episode I talk about my latest medical developments and the next steps.

    Episode 28: Looking for Feedback

    Play Episode Listen Later May 1, 2024 1:45


    In this episode I ask my listeners to provide feedback related to the podcast. ( My email address is hbindc@icloud.com)

    I Got a Divorce From My Body

    Play Episode Listen Later Apr 17, 2024 7:26


    In this episode I provide a medical update and explain what I mean when I say I got divorced from my body.

    Episode 26: The Man Who Cried Wolf

    Play Episode Listen Later Mar 26, 2024 3:44


    In this episode I talk about sounding like a broken record and then some negative and positive thoughts about my current physical condition.

    Episode 25: Smile

    Play Episode Listen Later Mar 14, 2024 3:34


    In this episode I talk about smiling to strangers.

    Episode 24: Interview with James

    Play Episode Listen Later Mar 6, 2024 12:37


    In this episode I interview James who is also dealing with neuropathy.

    Walking Man

    Play Episode Listen Later Feb 17, 2024 4:27


    In this episode I talk about my current and future ability to walk.

    Episode 22: Interview with my husband Don

    Play Episode Listen Later Feb 2, 2024 6:54


    In this episode I interview my husband Don about how he is coping with my illness.

    Episode 21: A New Horizon?

    Play Episode Listen Later Jan 25, 2024 6:00


    In this episode I discuss my appointment in January 2024 with the neurologist at the University of Miami who I had seen in 2022 and early 2023.

    Episode 20: Two Avenues

    Play Episode Listen Later Jan 19, 2024 6:32


    In this episode I talk about what I did in response to my neurologist refusing to treat me with rituximab without getting a second opinion.

    Episode 19: Interview with Roy

    Play Episode Listen Later Jan 14, 2024 12:42


    In this episode I interview Roy who lives in Tennessee and also deals with having neuropathy.

    Episode 18: Frustration Sets In

    Play Episode Listen Later Jan 7, 2024 6:26


    In this episode I discuss my second round of IVIG treatment for neuropathy and my follow-up visit with my neurologist.

    Episode 17: A Treatment Failed

    Play Episode Listen Later Jan 2, 2024 4:59


    In this episode I discuss the aftermath of my IVIG treatment for neuropathy.

    Episode 16: A Treatment Tried

    Play Episode Listen Later Dec 27, 2023 6:19


    In this episode I talk about my hospital stay in early August of 2023 for IVIG treatment.

    Episode 15: To the Emergency Room We Go

    Play Episode Listen Later Dec 17, 2023 4:38


    Description: In this episode I tell about my hospital emergency room visit in order to begin treatment for anti-mag neuropathy.

    Episode 14: After Diagnosis the Next Steps

    Play Episode Listen Later Dec 7, 2023 4:50


    In this episode I describe the initial treatment after my diagnosis of anti-mag neuropathy.

    Episode 13: A Diagnosis

    Play Episode Listen Later Nov 29, 2023 5:25


    In this episode I get a diagnosis of my condition after two years of symptoms.

    Episode 12: Pain and Discomfort

    Play Episode Listen Later Nov 23, 2023 5:42


    In this episode I describe how my pain and discomfort greatly increased in the summer of 2023.

    Episode 11: A Trip to the Hospital or Another Bad Trip

    Play Episode Listen Later Nov 14, 2023 7:05


    In this episode I take a long trip to the hospital for an uninviting stay.

    Episode 10: Bad Trips

    Play Episode Listen Later Nov 7, 2023 7:11


    In this episode I recount bad trips to the doctor and to Mexico.

    Episode 9: A Good Night's Sleep

    Play Episode Listen Later Oct 27, 2023 7:41


    In this episode I review the importance of sleep and my experience with lack of it.

    Episode 8: Mental Health and Well-Being

    Play Episode Listen Later Oct 19, 2023 6:07


    In this episode I look at my mental health and dealings with mental health professionals.

    Episode 7: Jumping Ahead

    Play Episode Listen Later Oct 6, 2023 5:39


    Episode 7: In this episode I describe how I am feeling at the time of the recording. I plan to go back and fill in details of what has happened the past few months in future episodes.

    Episode 6: A Summary of My Story to Date, in Rhyme

    Play Episode Listen Later Sep 29, 2023 3:06


    In the episode, with an assist from the artificial intelligence system chatGPT, I summarize the story to date, with a quick peak into future episodes. It's mostly in rhyme.

    Episode 5: Changes are Beginning

    Play Episode Listen Later Sep 22, 2023 6:03


    This episode takes us through the second half of 2022 and into 2023, with new doctors and new symptoms.

    Episode 4: On to 2022, Still No Clue

    Play Episode Listen Later Sep 13, 2023 4:54


    We move on to a new year with no diagnosis and more doctors to see.

    Doctor Doctor Give Me the News - Part 2

    Play Episode Listen Later Sep 4, 2023 6:21


    This episode recaps my travails with neuropathy through the summer and fall of 2021, frustrated with no diagnosis but no real worsening of symptoms.

    Doctor Doctor Give Me the News - Part 1

    Play Episode Listen Later Aug 30, 2023 5:58


    This episode takes me through the Summer of 2021, from my first neuropathy symptoms to my first encounters with the medical system as a neuropathy patient.

    Moving to a New Land

    Play Episode Listen Later Aug 25, 2023 5:38


    In this episode, I talk about my background, including where I grew up, my family, career, and retirement. I conclude with the first signs of neuropathy.

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