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As medical advancements continue to shape the detection, diagnosis, and treatment of disability and illness, technology is often presented as a path to autonomy. Rebecca Monteleone shows how such technologies contribute to a cruel double bind, forcing disabled people to be accountable for adapting to a world built by and for nondisabled people while dismissing their lived experiences in favor of medical expertise. In the new book The Double Bind of Disability, Monteleone explores anecdotes about prenatal genetic screening, deep brain stimulation, and do-it-yourself artificial pancreas systems, exposing new relationships among disability, authority, knowledge, and responsibility. Monteleone is joined here in conversation with Ashley Shew. Rebecca Monteleone is associate professor of disability and technology at the University of Toledo and author of The Double Bind of Disability: How Medical Technology Shapes Bodily Authority. Ashley Shew is a professor of science, technology, and society at Virginia Tech and author of Against Technoableism: Rethinking Who Needs Improvement.EPISODE REFERENCES:-Ally Day-“Transmobility: Possibilities in Cyborg (Cripborg) Bodies,” Mallory Kay Nelson, Ashley Shew, and Bethany Stevens / Catalyst: Feminism, Theory, Technoscience -Jackie Leach Scully-Dana Lewis-Biomedicalization: Technoscience, Health, and Illness in the U.S. / Adele E. Clarke, Laura Mamo, Jennifer Ruth Fosket, Jennifer R. Fishman, Janet K. Shim, editorsPraise for the book:"A generous, timely, and essential contribution to understanding the current politics that shape medical technology and disability in the context of neoliberal ableism. A book that I will be thinking-making-feeling with for many years to come!"—Laura Forlano, Northeastern University The Double Bind of Disability: How Medical Technology Shapes Bodily Authority by Rebecca Monteleone is available from University of Minnesota Press. Thank you for listening.
Janet K. Shim‘s new book juxtaposes the accounts of epidemiologists and lay people to consider the roles of race, class, and gender (among other things) in health and illness. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease (New York University Press, 2014) integrates several kinds of sources into a theoretically-informed sociological investigation of inequality and cardiovascular disease, including interviews with epidemiologists and people of color who are dealing in different ways with the disease, participant observation at conferences and health education events, and engagement with discourses of cultural and social theory. Shim considers the points of commonality and divergence among lay and epidemiological communities in terms of how each group conceptualizes the nature of social and cultural difference, the significance of difference for health and disease, and the reliability of different forms of knowledge. In the process, Heart-Sick places these accounts into dialogue with theories of biopower and biopolitics, intersectionality (a notion that addresses how “interlocking systems of oppression shape both the distribution of chances and of risk”), and fundamental causality (a concept that considers social conditions as fundamental causes of disease). The result is a masterfully articulated and clearly argued study that will be of interest to sociologists of science and medicine, historians, and curious readers interested in becoming better informed about the processes through which we have come to understand our bodies and selves and the consequences of those processes for research and treatment of heart disease. Learn more about your ad choices. Visit megaphone.fm/adchoices
Janet K. Shim‘s new book juxtaposes the accounts of epidemiologists and lay people to consider the roles of race, class, and gender (among other things) in health and illness. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease (New York University Press, 2014) integrates several kinds of sources into a theoretically-informed sociological investigation of inequality and cardiovascular disease, including interviews with epidemiologists and people of color who are dealing in different ways with the disease, participant observation at conferences and health education events, and engagement with discourses of cultural and social theory. Shim considers the points of commonality and divergence among lay and epidemiological communities in terms of how each group conceptualizes the nature of social and cultural difference, the significance of difference for health and disease, and the reliability of different forms of knowledge. In the process, Heart-Sick places these accounts into dialogue with theories of biopower and biopolitics, intersectionality (a notion that addresses how “interlocking systems of oppression shape both the distribution of chances and of risk”), and fundamental causality (a concept that considers social conditions as fundamental causes of disease). The result is a masterfully articulated and clearly argued study that will be of interest to sociologists of science and medicine, historians, and curious readers interested in becoming better informed about the processes through which we have come to understand our bodies and selves and the consequences of those processes for research and treatment of heart disease. Learn more about your ad choices. Visit megaphone.fm/adchoices
Janet K. Shim‘s new book juxtaposes the accounts of epidemiologists and lay people to consider the roles of race, class, and gender (among other things) in health and illness. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease (New York University Press, 2014) integrates several kinds of sources into a theoretically-informed sociological investigation of inequality and cardiovascular disease, including interviews with epidemiologists and people of color who are dealing in different ways with the disease, participant observation at conferences and health education events, and engagement with discourses of cultural and social theory. Shim considers the points of commonality and divergence among lay and epidemiological communities in terms of how each group conceptualizes the nature of social and cultural difference, the significance of difference for health and disease, and the reliability of different forms of knowledge. In the process, Heart-Sick places these accounts into dialogue with theories of biopower and biopolitics, intersectionality (a notion that addresses how “interlocking systems of oppression shape both the distribution of chances and of risk”), and fundamental causality (a concept that considers social conditions as fundamental causes of disease). The result is a masterfully articulated and clearly argued study that will be of interest to sociologists of science and medicine, historians, and curious readers interested in becoming better informed about the processes through which we have come to understand our bodies and selves and the consequences of those processes for research and treatment of heart disease. Learn more about your ad choices. Visit megaphone.fm/adchoices
Janet K. Shim‘s new book juxtaposes the accounts of epidemiologists and lay people to consider the roles of race, class, and gender (among other things) in health and illness. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease (New York University Press, 2014) integrates several kinds of sources into a theoretically-informed sociological investigation of inequality and cardiovascular disease, including interviews with epidemiologists and people of color who are dealing in different ways with the disease, participant observation at conferences and health education events, and engagement with discourses of cultural and social theory. Shim considers the points of commonality and divergence among lay and epidemiological communities in terms of how each group conceptualizes the nature of social and cultural difference, the significance of difference for health and disease, and the reliability of different forms of knowledge. In the process, Heart-Sick places these accounts into dialogue with theories of biopower and biopolitics, intersectionality (a notion that addresses how “interlocking systems of oppression shape both the distribution of chances and of risk”), and fundamental causality (a concept that considers social conditions as fundamental causes of disease). The result is a masterfully articulated and clearly argued study that will be of interest to sociologists of science and medicine, historians, and curious readers interested in becoming better informed about the processes through which we have come to understand our bodies and selves and the consequences of those processes for research and treatment of heart disease. Learn more about your ad choices. Visit megaphone.fm/adchoices
Janet K. Shim‘s new book juxtaposes the accounts of epidemiologists and lay people to consider the roles of race, class, and gender (among other things) in health and illness. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease (New York University Press, 2014) integrates several kinds of sources into a theoretically-informed sociological investigation of inequality and cardiovascular disease, including interviews with epidemiologists and people of color who are dealing in different ways with the disease, participant observation at conferences and health education events, and engagement with discourses of cultural and social theory. Shim considers the points of commonality and divergence among lay and epidemiological communities in terms of how each group conceptualizes the nature of social and cultural difference, the significance of difference for health and disease, and the reliability of different forms of knowledge. In the process, Heart-Sick places these accounts into dialogue with theories of biopower and biopolitics, intersectionality (a notion that addresses how “interlocking systems of oppression shape both the distribution of chances and of risk”), and fundamental causality (a concept that considers social conditions as fundamental causes of disease). The result is a masterfully articulated and clearly argued study that will be of interest to sociologists of science and medicine, historians, and curious readers interested in becoming better informed about the processes through which we have come to understand our bodies and selves and the consequences of those processes for research and treatment of heart disease. Learn more about your ad choices. Visit megaphone.fm/adchoices
Janet K. Shim‘s new book juxtaposes the accounts of epidemiologists and lay people to consider the roles of race, class, and gender (among other things) in health and illness. Heart-Sick: The Politics of Risk, Inequality, and Heart Disease (New York University Press, 2014) integrates several kinds of sources into a theoretically-informed sociological investigation of inequality and cardiovascular disease, including interviews with epidemiologists and people of color who are dealing in different ways with the disease, participant observation at conferences and health education events, and engagement with discourses of cultural and social theory. Shim considers the points of commonality and divergence among lay and epidemiological communities in terms of how each group conceptualizes the nature of social and cultural difference, the significance of difference for health and disease, and the reliability of different forms of knowledge. In the process, Heart-Sick places these accounts into dialogue with theories of biopower and biopolitics, intersectionality (a notion that addresses how “interlocking systems of oppression shape both the distribution of chances and of risk”), and fundamental causality (a concept that considers social conditions as fundamental causes of disease). The result is a masterfully articulated and clearly argued study that will be of interest to sociologists of science and medicine, historians, and curious readers interested in becoming better informed about the processes through which we have come to understand our bodies and selves and the consequences of those processes for research and treatment of heart disease. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/medicine
Robert Wood Johnson Foundation Center for Health Policy at The University of New Mexico
As part of the RWJF Center for Health Policy at UNM's Spring 2012 Lecture Series, Dr. Janet K. Shim presented her findings on Embodied Inequality: Heart Disease and the Politics of Causation. The presentation discussed how race, ethnicity and gender play significant roles in how heart disease is diagnosed and treated.