TrachBaby

You're listening to The TrachBaby Podcast. It's a podcast for Trach Parents and members of the Trach Community. This is Episode 17 for May 23rd, 2021, Embracing Minimalism Today, we're following up with a past guest, Shannon Bralley. We featured her son, Beau, on The TrachBaby Podcast back in August of 2020. Today we're talking to Shannon about a new lifestyle group intended to help reduce stress, anxiety and embrace a simpler lifestyle. The Private Facebook Group is called the "Embracing Minimalism Support Group". If you're listening and would like to join the group, simply mention you heard about the group on the TrachBaby Podcast. If you are now or have been the parent of a trach child, or perhaps you have or had a trach yourself and would like to be a guest on our show to help others, visit trachbaby.com and fill out the form. We hope today's episode has helped in some way. Thank you for listening. Learn more at trachbaby.com Support Support this podcast: https://anchor.fm/trachbaby/support (All funds go to the operating costs of this podcast. They are appreciated, but you're not obligated.) Subscribe Apple Podcasts: https://bit.ly/TrachBabyApple Google Podcasts: https://bit.ly/TrachBabyGoogle Spotify: https://bit.ly/TrachBabySpotify YouTube: https://bit.ly/2RlCwdr Connect TrachBaby.com Facebook Page: https://www.facebook.com/trachbaby/ Facebook Group: https://www.facebook.com/groups/trachbaby Twitter Account: https://twitter.com/trachbaby Send us a voice message: https://anchor.fm/trachbaby/message --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to The TrachBaby Podcast. It's a podcast for Trach Parents and members of the Trach Community. This is Episode 16 for May 16th, 2021, An Interview with Svenja Thanks for joining us today! Before I introduce our next guest I want to let you know you can find the TrachBaby Podcast on Apple Podcasts, Google Podcasts and Spotify. Be sure to like our TrachBaby page as well as join our TrachBaby group, both on Facebook. Follow @trachbaby on Twitter, and visit our website, trachbaby.com for a list of information resources as well as to sign up for email subscriptions so you never miss an update. Today, we're speaking with a real-life superhero! She's an ENT Nurse Clinician located in Central Texas by the name of Svenja Atchley. Her full professional title has so many abbreviations that trying to say them would not do them justice, but I personally think she is the expert of experts when it comes to trach care. I'll put her full title in the show notes below. Svenja Atchley MSN, RN-BC, CORLN ENT Nurse Clinician When parents are told their child will require a trach, Svenja is the first person they meet as she prepares them for trach care. In fact, she taught my wife and me what to expect with our son, John and how to care for him. I can't thank Svenja enough for coming on the podcast and we hope to have her on again in the near future. She is a wealth of information and provides a great perspective from that of a healthcare professional. If you are now or have been the parent of a trach child, or perhaps you have or had a trach yourself and would like to be a guest on our show to help others, visit trachbaby.com and fill out the form. We hope today's episode has helped in some way. Thank you for listening. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby It's a podcast about hope, inspiration, and action for the TrachBaby community. This is Episode 15 for May 2nd, 2021, Cori's Story Thanks for joining us today. We'll get into today's interview shortly, but first I wanted to provide a little background on the TrachBaby podcast. My wife and I originally started the TrachBaby Podcast to tell our son's story. After a few episodes we realized there were other parents with either similar or completely different stories and we wanted others to hear them because they provide value. Sometimes you may feel a bit lonely as a trach parent. You're scared and you may feel you're going it alone. That's not the case. There are people who understand and I invite you to come on the podcast to share you story. You can do that by going to TrachBaby.com and filling out the form. I am a trach parent. Our son John was trached at 6 months and just a few weeks back at 7 years old has been decannulated. We're fortunate he was never at the level of requiring to be on a vent at all times, but he needed one at night and when sleeping, in addition, he required the aid of a g-button. He still has that, but we're hopeful it will come out in a few weeks. I have a technical background in media production and felt a podcast would be a fairly simple, but effective way of telling stories. I do not distribute the TrachBaby podcast to make money. I've experimented using ads, specifically promoting Anchor, the service we use to distribute as they pay a small amount after several plays of their ad. I have also turned on the Supporter Feature which allows supporters to provide a donation if desired, and we've had one donation. All in all, after you add all of that, the Anchor Ads and the one donation from since we started back in 2020, we have $11.35 sitting in our Anchor account. When we do cash it out, it will likely go back to pay for a domain renewal of trachbaby.com or maybe a hosting fee. I want to emphasize, you don't have to donate, it's appreciated, but by no means expected. If you're looking for a place to give, consider your church, or maybe the local respite room or the equivalent of a Ronald McDonald House in your area. I say Ronald McDonald House because they helped us, but there are other groups who could benefit if you're looking to donate. We should be last on your list. Today we're talking with Melissa, who lives on the West Coast with her daughter Cori. Cori is now an adult in her 30s, and does require assistance, provided by her mother. Cori's mother, Melissa tells her story. Melissa has also authored a book titled "Surviving Life: Through Faith, Hope and Love" and you can find it on Amazon at the link. If you are now or have been the parent of a trach child, or perhaps you have or had a trach yourself and would like to be a guest on our show to help others, visit trachbaby.com and fill out the form. We hope today's episode has helped in some way. Thank you for listening. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby it's a podcast about hope, inspiration, and action for the TrachBaby community. This is Episode 14 for April 25th, 2021, Melissa's Story This is a first for the TrachBaby Podcast, we have Melissa with us today, and she was trached at just 6yrs old. She has since been decannulated and has a promising future ahead of her as a singer. I'm excited for you to hear her story! It's very refreshing to hear Melissa tell her own story. If there's even just one takeaway from today it's to not let the world tell you what you'll be limited to. I want to thank Melissa for advocating for the tracheostomy tube community and we wish her continued success. If you are now or have been the parent of a trach child, or perhaps you have or had a trach yourself and would like to be a guest on our show to help others, visit trachbaby.com and fill out the form. We hope today's episode has helped in some way. Thank you for listening. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby It's a podcast about hope, inspiration, and action for the TrachBaby community. This is Episode 13 for April 18th, 2020, Mina's Story We're in for a story of inspiration today, we're talking with Sina from South Carolina about her daughter Mina. Mina has a craniofacial disorder caused by Crouzon syndrome. Mina was trached at 3 years old. Mina is now 5, and after listening to today's story you'll realize Mina is your typical 5-year who doesn't let her differences keep her from being the bubbly, outgoing child she is. I want to thank Mina's mom, Sina for sharing her daughter's story because, through her courage, others may receive comfort and support. Mina is expected to have a midface and palate expansion procedure in the near future with hopes of one day being decannulated. Sina maintains a Facebook Page, titled "Mina's Journey with Crouzon Syndrome", and her mom crafts beaded ties and loves showing support to other Trach Parents. If you are now or have been the parent of a trach child, or perhaps you have or had a trach yourself and would like to be a guest on our show to help others, visit trachbaby.com and fill out the form. We hope today's episode has helped in some way. Thank you for listening. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby It's a podcast about hope, inspiration, and action for the TrachBaby community. This is Episode 12 for April 11th, 2021, An Exciting Update on John Since our son John was about 6 months old he's always had a trach tube. At his peak of medical requirements, he needed a ventilator, oxygen concentrator, and additional oxygen canisters. Over the years he has slowly been able to lessen the load on equipment, and finally, on March 23rd of this year he is "Trach Free". After a scope procedure indicated no obstructions present he was able to be admitted to the PICU and have his trach tube removed. After staying the night for observation he was able to leave. It's been a little over two weeks and he's still doing great. We want to thank all of our friends and family for their support over the years. Thomas and Jacqueline Miller -- If you are now or have been the parent of a trach child, or perhaps you have or had a trach yourself and would like to be a guest on our show to help others, visit trachbaby.com and fill out the form. We hope today's episode has helped in some way. Thank you for listening. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

This is TrachBaby! It's a podcast about hope, inspiration, and action for the TrachBaby community. Episode 11 for December 6th, 2020, "Miako and MJ" Today, we're talking with Miako from Illinois about MJ's story. MJ was trached at about 4 months old and is now going on 18 months. Miako's inspirational story ends with hope as she discusses the desire to help other trach parents. If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby It's a podcast about hope, inspiration, and action for the TrachBaby community. Episode 10 for September 20th, 2020, Moms of Trach Babies Today, we are continuing our discussion with Tonya Boyd, founder of the Moms of Trach Babies Facebook Support Group and it's related sub-groups and pages. In today's interview, she provides more insight into the beginning of the group, the need associated with its creation, and the future. As a parent of a Trach child, I want to thank Tonya for her efforts in building a group thousands of Trach parents are able to use as a valuable resource. I will be placing links to her groups in the show notes. The public Facebook page is accessible to anyone; however, certain conditions including Admin approval must be met to join the private groups. LINKS: Moms of Trach Babies and related Facebook Support groups (Note: Group is Private and you will be screened) If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby It's a podcast about hope, inspiration, and action for the TrachBaby community. Episode 9 for September 13th, 2020, Elly's Story Today, we are talking to Tonya Boyd from Kentucky about her daughter Elly who was trached at around 3 weeks old. While there were a few additional changes they faced, Elly shows a fierce spirit. I want to thank Tonya for telling Elly's story. For those in the Trach parent world, you may recognize Tonya as the founder of the Moms of Trach Babies and related Facebook Support groups (Note: Group is Private and you will be screened) Next week we'll hear how those groups started. If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby It's a podcast about hope, inspiration, and action for the TrachBaby community. Episode 8 for August 23rd, 2020, Beau's Story Thanks for joining us. This is the real episode 8. I realized I somehow skipped over #7 last week for anyone who actually pays attention. Well today, my wife and co-host, Jacqueline and I are talking to Shannon Bralley from Central Texas about her son Beau who was trached at around 15 months. Right before COVID, which I'm sure is scary for many of us, but I will tell you, Shannon's positive attitude is one that I want to instill in my own life as she discusses their struggles and triumphs. I want to thank Shannon for telling Beau's story. What I enjoyed is that we found a connection between having the same medical staff and procedures at the same hospital. It just helps to show how while everyone's journey is unique we can still find something in common, and I think the world needs to find more things in common rather than those things that are different. If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

Today my wife, Jacqueline, and I discuss some organization tips and equipment that have helped us with our TrachBaby, John. We also talk a little bit about how COVID-19 has affected our family. We hope to go into further detail in a future episode. Finally, we need guests, and we'd like to invite you! If you would like to be a guest on our show, drop us an email at hello@trachbaby.com. You can also leave us a message by downloading the Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. Links from the show: John's Progress: http://www.millershewrote.com If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

Today, my wife Jacqueline and I are talking to Amber Gale from the great state of Iowa. She's going to share her son, AJ's story, PLUS, we're going to hear about a non-profit organization she's recently started to help special needs parents reach their life goals. It's called "More for Caregivers" where you can gain access to life coaching and other needed resources, visit moreforcaregivers.org for more information. Just as a note, this service is currently available to Iowa residents only, but she does have plans on expanding nationwide in the future. If you would like to be a guest on our show, drop us an email at hello@trachbaby.com. You can also leave us a message by downloading the Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

Towards the beginning of March, I experienced an equipment failure, that and COVID hitting around the same time impacted our ability to continue bringing you this podcast. Fortunately, repairs have been made, and we've finally found a groove that will let us continue to bring you new content. We've also made a change and will be bringing in guests to share their experiences. There's only so much we can talk about on our own, and we want to continue to build TrachBaby into a community. What better way to do that than with hearing from others like us. This week we're talking to Sarah Saucier about her son Colton. Colton's story is likely very familiar to our own stories. Today, Colton is a typical 2 and a half-year-old boy with the same interests as you'd expect, but as with most of us, his beginnings were challenging. Sarah talks about her family's struggle during her pregnancy, his first few weeks of life, their emotions, and how they've triumphed to this day. If you would like to be a guest on our show or leave your comments, here are all the ways you can reach us. Visit trachbaby.com and fill out the form. Email hello@trachbaby.com Text or Call Us: 903-361-7150 Anchor.FM app, searching for TrachBaby and selecting the “Voice Message” option. We hope today's episode helps in some way. --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby. It's a podcast about hope, inspiration, and action for the TrachBaby community. In today's episode we share a story of inspiration from Ashley, and we hear from the focus of our journey, John. Links: Follow along with Talon's Progress: https://www.facebook.com/talonstory6 Send us your stories by emailing hello@trachbaby.com Like our page: http://www.facebook.com/trachbaby Learn more: www.trachbaby.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby, by Thomas and Jacqueline Miller It's a podcast about hope, inspiration, and action for the TrachBaby community. Link to video of John using his Passy Muir Speaking Valve // Email: hello@trachbaby.com Learn more: www.trachbaby.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby, by Thomas Miller It's a podcast about hope, inspiration, and action for the TrachBaby community. The core message of TrachBaby, is that circumstances are not always as we expected them to be. We're met with challenges daily, and it's how we react to them that builds our character and attitude. In today's episode, we talk to one special guest who held everything together, mom. We talk about the pregnancy, the birth, and the dark days which actually turned into blessings during the months after. If you're listening today and have faced similar circumstances, but are now stronger for facing challenges, I ask that you tell your story. Please email us at hello@trachbaby.com, send us a message on our Facebook page at facebook.com/trachbaby. You can also call or text 903-361-7150. We want to hear from you. Perhaps you have a child with a trach, or maybe it's something else entirely that could help inspire others. We'd like to tell your stories in future episodes. Remember your message of strength is important to others. Learn more: www.trachbaby.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support

You're listening to TrachBaby, by Thomas Miller. It's a podcast about hope, inspiration, and action for the TrachBaby community. The core message of TrachBaby, is that circumstances are not always as we expected them to be. We're met with challenges daily, and it's how we react to them that builds our character and attitude. If you're listening today and have faced similar circumstances, but are now stronger for facing challenges, I ask that you tell your story. Please email us at hello@trachbaby.com, send us a message on our Facebook page at facebook.com/trachbaby. YoU can also call or text 903-361-7150. We want to hear from you. Perhaps you have a child with a trach, or maybe it's something else entirely that could help inspire. We'd like to tell your stories in future episodes. Remember your message of strength is important to others. Learn more: www.trachbaby.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/trachbaby/message Support this podcast: https://podcasters.spotify.com/pod/show/trachbaby/support