Alpha-1-To-One Podcast

Joe Reidy is a long time volunteer of the Alpha-1 community, he has been involved with the Foundation since it’s inception 25 years ago. Joe became a support group leader in 1994 and has led the NY/NJ Alpha-1 Support Group ever since. His group serves Alphas in the New York metropolitan area, New Jersey and Connecticut. Diagnosed with Alpha-1 in 1991, Joe has been involved with the community for decades in many rewarding and impactful roles, including as an Alpha-1 Foundation Board Member and a member of the Foundation’s Medical and Scientific Advisory Committee (MASAC).

Richard Lovrich has compiled a “how to” on online video podcasts. As much of our business, family and social life are taking place online here are a few tips on how Alphas can look and sound best when on social platforms. Whether in a Zoom, Skype, Houseparty, WhatsApp or Facebook Live, we are all turning in video stars, but are we ready for prime time?

The first episode of our renewed Alpha-1-to-One podcast series, we have Alpha-1 Foundation President and CEO Miriam O'Day having a timely conversation with Richard Lovrich. 

Alpha-1 researcher and clinician Irina Petrache, MD talks with Alpha-1 Foundation Editorial Manager Alejandro Hernandez Padilla about the people and things that motivate her and those in her lab to keep pressing towards a cure and better treatments for people affected by Alpha-1. This episode is co-hosted by Martin Zamora, MD, scientific advisor for the Alpha-1 Foundation Board of Directors. Learn more at www.alpha1.org

In this episode of the Alpha-1-To-One Podcast, Karen Erickson shares the unlikely, but all too common story of how she was finally diagnosed with Alpha-1 Antitrypsin Deficiency. Also, Robert Sandhaus, MD, PhD answers a question about augmentation therapy. Learn more about Alpha-1 and connect with Karen Erickson at http://alpha1.org/podcast.

April's co-host is Angela McBride, director of corporate relations and community engagement at the Alpha-1 Foundation (A1F). This month, we're also introducing a new segment - Ask the Alpha Doc, where various Alpha-1 specialists will answer your questions about Alpha-1 lung and liver disease. This episode, our guest doctor is Robert A. Sandhaus, MD, PhD, FCCP, from National Jewish Health in Denver, CO. For our feature interview, we sat down with Jonathan Maidment, a 23-year old Alpha, who raised more than $56,000 for the A1F’s research programs hiking the Appalachian Trail in 2014. Now for 2018 the challenge has become bigger, as he is getting ready to hike the entire Pacific Crest Trail (PCT), also as a fundraiser for the A1F. The PCT is a long-distance hiking trail aligned with the highest portion of the Sierra Nevada and Cascade mountain ranges. To follow and share Jonathan’s hike along the PCT, please visit facebook.com/hiking4acure Proceeds from the fundraising activities relating to Jonathan will be dedicated to research and programs of the Alpha–1 Foundation to find a cure for the rare genetic condition Alpha-1 Antitrypsin Deficiency. To contribute, visit alpha1.org/maidment

On the inaugural episode of the Alpha-1-To-One Podcast, this month's host, Maria Virginia Deliz, sits down with caregiver and Alpha-1 Foundation staff member, Cathey Horsak. Horsak shares the story of how she became involved with the Alpha-1 community after her husband's death due to liver disease caused by the rare genetic condition, Alpha-1 Antitrypsin Deficiency. She also shares why caregivers to play a major role. You can reach Cathey Horsak at 800-245-6809 or chorsak@alpha1.org.   The Alpha-1-To-One Podcast is a production of the Alpha-1 Foundation. Learn more at www.alpha1.org.   The podcast is sponsored by: AlphaNet CSL Behring Dohmen Life Science Services Grifols