Multiple Sclerosis (MS) is a ‘what if?’ disease and at MS Research Australia, we’ve created this digital platform as a place for you to literally “Start here” in taking control through researched information you can trust.
From 'motion creating emotion' through to exploring the difference between incidental exercise versus prescribed exercise. This conversation with Svet Borojevic highlights how working with an exercise physiologist could bring about physical and mental benefits, allowing you to thrive and optimise.Svet Borojevic is an Accredited Exercise Physiologist and Sport Scientist, who is the Clinic Director and head of Exercise Physiology at Forge West End. Throughout his career, Svet has performed at a very senior level within allied health clinics and has gained valuable knowledge at the highest level of musculoskeletal, cardiovascular, and neuromuscular rehabilitation. He particularly enjoys treating elite and aspiring athletes and managing complex chronic conditions. Other Resources:Exercise & Activity (MS Australia)Exercise and mobility (MS Queensland)Healthier Lifestyle Linked to Lower Disability Levels in MS (MS Research Australia)Tips for starting an exercise program (Exercise is medicine)This podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.
Liz Cameron-Smith is the founder of The Impact Assembly, a social venture under the umbrella of the global consulting firm, PwC Australia. Two years ago, as she was launching the company and expecting her first child, she was diagnosed with MS.Liz’s own expertise lies in bringing groups together to help them understand diverse viewpoints and agendas, to collectively solve complex social issues. Could some of her inherent skills have assisted her in dealing with her own sudden diagnosis? Liz talks about the power of having a support network and the power of your own mind to be mentally strong in tough physical situations. She also introduces the notion of ‘the safe zone’ - or that phase where a person makes their way out of being overwhelmed and starts to understand what a diagnosis of MS will mean for them. This is an incredibly insightful conversation, with plenty of anecdotes that will surely resonate with other people newly diagnosed with MS.More resources:Support & services (MS Australia)Wellbeing & MS (MS Australia)This podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.
Tara King is a unique individual with a successful track record in launching and re-launching entertainment businesses and brands. She has an enormous passion for turning great ideas into the “real thing” and has done just that, as our producer of the fabulous documentary series on the MS Starts Here platform. In creating her honest and inspiring series, Tara has spent so much time speaking with and chronicling the journey of other people newly diagnosed with MS. Tara herself, was diagnosed with MS four years ago. In this podcast she shares her own experiences of what she’s learned while living well with MS and provides plenty of insights for others. Other Resources:MS Starts Here:MS Research AustraliaKiss Goodbye to MSThis podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia, Kiss Goodbye to MS or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.
Dara is an accomplished businesswoman and founder of Byzantine Design - a Melbourne-based store that curates designer tiles from around the globe. After she was diagnosed with MS four years ago, she also created her blog ‘A Chronic Entrepreneur,’ which began out of her passion to share stories of those living with a chronic illness and how they’re thriving each and every day. This podcast aims to change the narrative around living with MS by discussing how Dara has not merely survived but actually thrived because of her diagnosis. This interview has so many take-homes, life hacks and certainly a lot of food for thought as you make your own journey with MS. As Dara says, “being diagnosed with a chronic illness doesn’t have to be the end of your life… it may just be the start of a beautiful new chapter…” This podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.
Kaye Hooper is a specialist MS nurse of 25 years and has worked as the MS Nurse Consultant at the MS Clinic at the Royal Brisbane & Women’s Hospital. Prior to this, her nursing career saw her in the USA, West Africa and also East Africa. She is a founding Board member of the International Organisation of MS Nurses and founding president of MS Nurses Australasia. This podcast highlights the vital role that the MS nurses can play in your own journey with MS. They provide invaluable support and specialist clinical advice and are passionate about supporting symptom management, improving quality of life, educating and empowering people with MS. But as Kaye discusses, the MS nurses are also often intricately involved in research projects. To find an MS Nurse, please contact your local MS Clinic, nearest MS State Society or MS Nurses Australasia.More resources:MS Nurse Insights (MS Australia)Multiple Sclerosis Specialist Nurses in Australia 2017 - Report (MS Australia)Support & Services (MS Australia)This podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.
Jemma Barsby is a hugely talented elite athlete, diagnosed with MS three years ago at the age of 19. At age 24 she is a cricketing star on the rise, having made her Queensland debut at the age of 15 and previously touring with Australia's Shooting Stars squad. Jemma is a wonderful ambassador for Kiss Goodbye to MS, just through the way she lives her positive and outgoing life. And as a young woman newly diagnosed with MS, she is well aware and supportive of the role that research plays in solving - and hopefully reversing - MS. But importantly, Jemma is very much like any other 24 year old.... just trying to get on with life. She has taken her diagnosis of MS into her stride, made some adjustments and learned a lot about herself along the way. Living with MS is a juggling act of symptoms and unknowns and Jemma is very real about that juggling act. But she doesn’t let it stand in her way, talking about the good days with the bad and leaning on her support network when she needs to. More resources:Be a part of changing the future (MS Research Australia)Cooling vests (Arctic Heat)Support & services (MS Australia)This podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.
Melissa Quirk is a vibrant young woman, diagnosed with MS three years ago at the age of 27. Like so many other women at this stage of their life, Melissa was focussed on building a successful career. She works in real estate, an industry she’s been working in for nearly a decade. And like so many others, her own diagnosis came out of the blue. Rather than throw away a career she loved, she took stock, re-evaluated her priorities and forged a path that better suited her being able to live well with MS. Melissa talks about not sweating the small stuff, taking her foot off the pedal and listening to her body. More resources:Be a part of changing the future (MS Research Australia)This podcast reflects one individual’s experience with MS and does not take into account the varied nature of MS. The views expressed here do not necessarily reflect those of MS Research Australia or MS Starts Here. It may contain opinions and advice about scientific studies, diagnosis, medications and treatments that are not applicable to your circumstances or your MS and should not take the place of professional advice, diagnosis or treatment. If you are concerned about any of the topics within this podcast please seek advice from your medical team. If you would like further information on any topics of MS research that might be touched on here, visit www.msra.org.au or feel free to contact the MS Research Australia team on 1300 356 467 or enquiries@msra.org.au with your questions.