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In 1971, the National Cancer Act transformed cancer into a national research priority. More than 50 years later, the next frontier is no longer defined solely by scientific discovery, but by how quickly knowledge, lived experience, and patient voices can reshape healthcare itself.The concluding chapter of The Cancer Mavericks: A History of Survivorship explores how the cancer advocacy movement continues to evolve in an era of digital communities, social media, precision medicine, and grassroots activism. Building on the work of pioneers such as Mary Lasker, Rose Kushner, and the generations of survivors who followed, today's advocates are expanding the movement beyond awareness to demand health equity, trusted information, patient-centered research, and meaningful representation in healthcare decision-making.The episode examines how technology has transformed advocacy from local support groups into global communities capable of organizing in real time. Researchers, policymakers, nonprofit leaders, and survivors reflect on the growing influence of digital storytelling, online education, and peer-to-peer networks that connect patients across diagnoses, generations, and geographic boundaries. At the same time, they acknowledge new responsibilities: ensuring accurate medical information, combating misinformation, protecting trust, and keeping patients at the center of innovation.The story also looks ahead to the next generation of advocates. Young leaders are applying lessons learned from decades of cancer activism while drawing inspiration from broader movements for social justice, public health, and community organizing. Their work reflects a simple but enduring truth: meaningful change rarely begins inside institutions. It begins when ordinary people refuse to accept that the system cannot improve.Cancer survivorship has never been a finished story. Every generation inherits the progress achieved by those who came before while confronting challenges uniquely its own. The future of survivorship will be shaped not only by scientific breakthroughs, but by those willing to listen, organize, educate, and ensure that every patient's voice helps define what comes next.RELATED LINKSNational Cancer InstituteCancer MoonshotCenters for Disease Control and Prevention | Division of Cancer Prevention and ControlHopeLabTigerlily FoundationStupid CancerFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Why can you feel almost functional one day and completely wrecked the next with hypermobile EDS, HSD, POTS, or MCAS? And how do you know whether you need more treatment, more rest, more movement, or an entirely different approach? In this special episode of Bendy Bodies with the Hypermobility MD, producer Aron Korney turns the tables on Dr. Linda Bluestein, asking questions submitted by the hypermobility community about some of the most frustrating and misunderstood parts of living with hypermobile Ehlers-Danlos syndrome (hEDS), hypermobility spectrum disorder (HSD), mast cell activation syndrome (MCAS), POTS/dysautonomia, joint instability, chronic pain, and related conditions. Dr. Bluestein breaks down why symptoms can fluctuate so dramatically from day to day and explains the physiology that may be driving those changes. Sleep quality, hormones, hydration, immune and mast cell activation, physical activity, cumulative stress, and other factors can all influence how someone feels from one day to the next. The conversation also tackles something that is rarely discussed enough: the shame, guilt, and self-doubt that can come with unpredictable chronic illness. Dr. Bluestein shares practical ways family members, partners, and friends can offer support without minimizing symptoms, giving advice that wasn't requested, or assuming they know what the person needs. They also explore two professionals who are often missing from a hypermobility care team: pelvic floor physical therapists and mental health professionals who truly understand chronic illness. Drawing from The Book of Questions: Living with Chronic Illness by Brianna Greenspan and Dr. Gregory Stock, Dr. Bluestein discusses a powerful self-advocacy question: “Despite how I'm feeling in this exact moment, what can I do to best support myself starting now?” Sometimes the most useful intervention isn't a complicated new treatment. It may be drinking water, eating something, changing position, putting on compression, asking for help, modifying an activity, or simply doing one small thing that moves you forward. And then things get rapid-fire. Dr. Bluestein reveals some of her favorite and most underrated treatments for hypermobility, the misconceptions about joint instability she encounters most often, and what she considers one of the most dangerous myths in EDS and HSD care: that surgery is always the answer for an unstable joint. They discuss why joint stability is more complicated than ligaments alone, how systemic issues such as mast cell activation may influence symptoms and stability, and why optimizing the entire person before pursuing surgery can matter. The episode closes with a simple strategy for anyone who feels overwhelmed by a long list of health problems: don't try to fix everything at once. Start small, build momentum, and keep moving in the right direction. Whether you're living with hEDS, HSD, POTS, MCAS, chronic pain, dysautonomia, or another complex connective tissue disorder, this episode offers practical strategies for understanding symptom variability, building a better care team, advocating for yourself, and making progress without needing a perfect plan. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Chapters: 00:00 Fatigue Battery Analogy 01:15 Episode Goals and Community 04:08 Family and Friends Variability 06:26 Why Symptoms Fluctuate 12:26 Spoon Theory and Energy 15:14 Supportive Accommodations 30:38 Care Team Unsung Heroes 33:24 Micro Massive Self Support 36:38 AI Tools And Privacy 38:55 Rapid Fire Myths And Treatments 47:36 One Next Step Hack 53:20 Goodbye And Final Resources Learn more about your ad choices. Visit megaphone.fm/adchoices
Welcome to Episode 323 of Autism Parenting Secrets. This week, I'm joined by returning guest Beth Lambert, Executive Director of Documenting Hope and author of A Compromised Generation. After more than two decades immersed in children's health, Beth is more hopeful than ever. Why? The science has changed. Our understanding of the microbiome, nervous system, metabolism, environmental stressors, and other contributors to chronic childhood conditions has exploded. More practitioners are applying this knowledge clinically. And more parents are sharing stories of children making remarkable progress. But having more information and more options doesn't necessarily make a parent's job easier. In fact, it can make discernment even more important. Your child is unique. There is no universal roadmap, perfect practitioner, or silver bullet. The opportunity is to gather good information and support while becoming increasingly clear about what makes sense for your child. We also explore something parents can easily overlook: you are part of your child's environment. Your nervous system, energy, decisions, consistency, and ability to regulate matter. Supporting yourself isn't taking attention away from your child. It can be foundational to helping your child feel safe and thrive. Beth also shares why in-person community can be so powerful and what she's most excited about at Documenting Hope's upcoming Health & Healing Expo in Orlando, November 21-22. The future is changing quickly. There are more reasons for hope, more tools available, and more possibilities opening up for families. The secret this week is… Healing Is More Possible Than You Think You'll Discover: Why there's more reason for hope than ever before (1:26) Why YOU are your child's most important decision-maker (7:00) Why commitment beats chasing the next intervention (15:42) How community can create unexpected breakthroughs (23:05) Why the future of children's health could look radically different (32:48) About Our Guest: Beth Lambert is a former healthcare consultant and teacher. As a consultant, she worked with pharmaceutical, medical device, diagnostic, and other healthcare companies to evaluate industry trends. She is the author of A Compromised Generation: The Epidemic of Chronic Illness in America's Children and co-author of Brain Under Attack: A Resource for Parents and Caregivers of Children with PANS, PANDAS, and Autoimmune Encephalitis. Beth founded Epidemic Answers in 2009 and currently serves as Executive Director of Documenting Hope. She attended Oxford University, graduated from Williams College, and holds a Master's Degree in American Studies from Fairfield University. www.beth-lambert.com/documenting-hope References in this Episode: Health & Healing Expo by Documenting Hope, November 21–22, 2026 | Orlando, Florida + Virtual Healing Together by Documenting Hope A Compromised Generation by Beth Lambert Brain Under Attack by Beth Lambert Additional Resources: To learn more about personalized 1:1 support go to www.elevatehowyounavigate.com If you enjoyed this episode, share it with your friends.
Mast Cell Activation Syndrome can affect nearly every system in the body—and its symptoms are often dismissed, misdiagnosed, or mistaken for anxiety. In this deeply personal conversation, Drs. May and Tim Hindmarsh sit down with integrative and functional registered dietitian Michelle Shapiro, RD, to unpack MCAS, histamine intolerance, and the experience of living in a “highly sensitive body.” Michelle shares how rapid weight loss, nutrient depletion, mold exposure, long COVID, and an injury left her increasingly ill and eventually bedbound. She explains why common wellness protocols can make highly sensitive patients worse, how mast cells interact with the nervous, vascular, immune, and connective-tissue systems, and why meaningful care must be personalized—not pulled from a one-size-fits-all protocol. May also opens up about her own MCAS journey, including years of unexplained symptoms, hormonal and genetic factors, severe post-COVID illness, and the trial-and-error process that finally helped her connect the dots. In This Episode Michelle's path from rapid weight loss and chronic panic symptoms to functional nutrition and MCAS advocacy What mast cells do—and why MCAS can create symptoms across multiple body systems Why flushing, itching, reflux, dizziness, insomnia, migraines, palpitations, anxiety-like episodes, and food reactions may seem unrelated The difference between ordinary allergy symptoms, histamine intolerance, and a broader mast-cell activation pattern Why MCAS can be difficult to diagnose and why laboratory testing may not capture an active flare How nervous-system dysregulation, blood-flow changes, connective tissue, immune activation, trauma, stress, and hormones can interact The overlap among MCAS, POTS, hypermobility, and long COVID Why aggressive detoxes, IV therapies, restrictive diets, or popular supplements may backfire in highly sensitive bodies The role of antihistamines, mast-cell stabilizers, DAO support, food freshness, and individualized risk-benefit decisions Why every medication and supplement should “fight for its life” before earning a place in a care plan How validation, pattern recognition, and a slower, personalized approach can help interrupt the symptom snowball About Michelle Shapiro, RD Michelle Shapiro is an Integrative and Functional Registered Dietitian and founder of Michelle Shapiro Nutrition LLC. Her practice specializes in supporting people with complex chronic conditions, including MCAS, POTS, histamine intolerance, Long COVID, autoimmune conditions, and gastrointestinal issues. After experiencing her own health challenges with Long COVID, MCAS, POTS, and thyroid issues, Michelle brought that firsthand perspective into her work helping patients better understand complex and highly sensitive bodies. Michelle is also the host of the Quiet the Diet podcast and creator of the Highly Sensitive Body™ Hub, a resource dedicated to MCAS, POTS, hypermobility, and Long COVID. Learn more about Michelle and her work at Michelle Shapiro Nutrition. And, at the following: Instagram: @michelleshapirord LinkedIn: Michelle Shapiro, RD The Highly Sensitive Body™ Hub Quiet the Diet Podcast: QuietTheDiet.com Connect with BS Free MD BS Free MD website Instagram Facebook Email: doc@bsfreemd.com Listen & Subscribe Follow BS Free MD wherever you listen to podcasts, and share this episode with someone who has been told their symptoms are “all in their head.” Listen on Spotify. Medical Disclaimer This podcast is for informational and entertainment purposes only and does not constitute medical, nutrition, diagnosis, or treatment advice. The experiences and opinions shared are personal and may not apply to every listener. Medications, supplements, and dietary changes can cause adverse or paradoxical reactions; always consult a qualified healthcare professional who understands your individual history before making changes to your care. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
What happens when the psychologist becomes the patient? In this episode of Conversations with a Chiropractor, Dr. Stephanie Wautier talks with psychologist, chronic illness and pain coach, author, and advocate Dr. Jeffrey Bone about his own decade-long journey with chronic illness and what that experience has taught him about pain, identity, grief, resilience, and hope. Jeff shares how a mysterious collection of neurological and physical symptoms eventually led him through functional medicine, environmental testing, immunology, and a diagnosis of common variable immune deficiency. Along the way, he experienced something many people with complicated or chronic health conditions know all too well: the exhaustion of appointments, uncertainty, conflicting opinions, and simply wanting someone to believe that something is wrong. But Jeff's story is not just about illness. It is about what happens when the life you had planned is no longer available. He and Stephanie talk about grieving your former self, accepting a new normal without surrendering your quality of life, becoming your own healthcare advocate, and finding doctors who remain genuinely curious when the answers are not obvious. That same curiosity ultimately became one of Jeff's most important tools. After years of defining himself largely through work, chronic illness pushed him toward poetry, books, podcasting, creativity, philosophy, new experiences, and a different definition of success. Today, he helps other people living with chronic illness and persistent pain navigate the emotional realities that often receive far less attention than the symptoms themselves. Jeff's challenge is beautifully simple: Ask yourself, "What could be wonderful today?" You do not have to completely reinvent your life. Sometimes curiosity begins with trying something new, asking another question, creating something imperfectly, or simply noticing what has been around you all along. Important Note This episode includes personal experiences and discussion of mold exposure, chronic inflammatory response syndrome, common variable immune deficiency, functional medicine, cortisol testing, supplements, sleep, chronic pain, and other health-related approaches. The experiences and opinions shared belong to the speakers and are provided for education and conversation. This episode is not a substitute for individualized medical or mental health care. Please consult qualified healthcare professionals before beginning supplements, changing treatment, or making decisions about a chronic health condition. Listener Offer This episode of Conversations with a Chiropractor is supported by Lemongrove Oil. Use code DRSTEPHANIE at checkout for 10% off your order. https://www.lemongroveoil.com/ Featured Wellness Resource: Exodus Strong Explore Exodus Strong, a faith-centered wellness company offering red and near-infrared light therapy products including full-body mats, masks, wands, belts and other at-home devices, along with molecular hydrogen and botanical supplements, frequency-based wellness products, and complete Light Code wellness systems. If you're interested in exploring what Exodus Strong has to offer, please use Dr. Stephanie's link below. Purchases made through this affiliate link help support Conversations with a Chiropractor and allow us to keep bringing you new conversations each week. https://exodusstrong.com?a_aid=drstephanie Learn More About Dr. Jeffrey Bone Website: https://drbone.live/ Jeff provides chronic illness coaching throughout the United States. Podcast: To the Bone: Conversations on Pain, Illness and Meaning Available on Apple Podcasts and Spotify. Conversations with a Chiropractor YouTube: http://www.youtube.com/@ConversationswithaChiro Facebook: https://www.facebook.com/wautierwellness Email: drstephaniewautier@yahoo.com Want to be a guest? Send Stephanie Wautier a message on PodMatch: https://www.podmatch.com/hostdetailpreview/drstephanie Credits Podcast production by Brand|Sound. Start your podcast journey by emailing brandsoundpodcasts@gmail.com. Chapters 00:00 Introduction 00:53 Meet Dr. Jeffrey Bone 01:52 Mold Exposure and the Search for Answers 05:10 Functional Medicine and an Immune Deficiency Diagnosis 08:44 Grieving the Old Self and Accepting a New Normal 12:31 Helping Others Through Lived Experience 17:20 Medical Burnout, Chronic Stress, and Being Believed 20:41 Exploring Treatment and Becoming Your Own Advocate 27:26 Creativity, Writing, and Finding Freedom Again 29:15 To the Bone and Creating Without Perfection 32:06 Curiosity as a Tool for Healing and Growth 37:18 Redefining Success After Chronic Illness 41:18 "What Could Be Wonderful Today?" 42:14 Where to Find Dr. Jeffrey Bone 43:39 Closing Thoughts
Welcome to Hot Topics! In this episode, host Gabrielle Crichlow sits down with guest Carly Alyssa Thorne to discuss congenital rubella syndrome, a condition that results from a mother contracting rubella during pregnancy. Carly shares her personal experience living with the chronic illness, including the symptoms she faces and how it has impacted her life. Join us for an enlightening conversation that sheds light on the challenges and resilience associated with this important health topic.Who is Carly Alyssa Thorne?Carly Alyssa Thorne is a Director, Producer, Actress, Author, and Speaker with over 30 years in the conscious transformation field. Blending Eastern and Western philosophies, she integrates wellness, spirituality, and storytelling to create media and experiences that inspire growth and healing. A former fitness and wellness center owner and certified Life Coach, Reiki Master, NLP and Hypnotherapy Practitioner, and Interfaith Ordained Minister, Carly brings a holistic lens to every production and collaboration. Her work bridges film, business, and consciousness—empowering others to embody their truth, elevate their message, and lead with purpose.You can find Carly:On the web: https://carlyathorne.com/On Facebook: https://www.facebook.com/carlyalyssathorneOn Instagram: https://www.instagram.com/carlyathorne On Threads: https://www.threads.com/@carlyathorneOn X: https://twitter.com/carlyathorneOn LinkedIn: https://www.linkedin.com/in/carlyalyssathorne/On YouTube: https://www.youtube.com/c/CarlyAlyssaThorne-TheTransformerOn Pinterest: https://www.pinterest.com/carlyathorne/Freebie: Tell Carly that you heard about her from our podcast "Hot Topics!" and she'll give you a free 30-minute discovery call for coaching! Her email is carlyathorne@gmail.com.Watch this episode on YouTube: https://youtube.com/live/ckSk1sZ7KTMOriginal Date of Episode: July 23, 2026Become a supporter of this podcast: https://www.spreaker.com/podcast/hot-topics--5600971/support.
In 1987, Mary P. Lovato, a member of Kewa Pueblo in New Mexico, was diagnosed with acute leukemia. To receive a bone marrow transplant, she had to travel more than 800 miles from home because specialized cancer care was unavailable through the Indian Health Service. When she returned, she discovered another obstacle: many in her community feared cancer so deeply that they avoided speaking about it altogether.This episode examines how cancer survivorship exposed profound inequities in the American healthcare system. Long before health equity became a national priority, advocates from underserved communities were confronting disparities rooted in geography, poverty, racism, language, underfunded healthcare systems, and historical mistrust of medical institutions. Their work demonstrated that scientific advances alone cannot improve survival if patients cannot reach, afford, or trust the care available to them.The story follows pioneers including Mary P. Lovato, who built the first national Native-led cancer support and education program for Indigenous communities, and Maimah Karmo, founder of the Tigerlily Foundation, whose breast cancer diagnosis inspired a movement to improve early detection, clinical trial participation, and representation for Black women. Their advocacy challenged longstanding barriers to culturally competent care while highlighting persistent inequities in access to screening, fertility preservation, navigation, and innovative treatments.The episode also explores why diversity in clinical research matters. For decades, many cancer clinical trials disproportionately enrolled White patients, limiting both access to promising therapies and the scientific understanding of how treatments perform across different populations. Researchers, patient advocates, and community leaders responded by redesigning outreach, improving patient navigation, reducing logistical barriers, and insisting that affected communities help shape the research itself.Cancer survivorship cannot be measured solely by scientific breakthroughs. It also depends on whether every patient has a meaningful opportunity to benefit from them. The pursuit of health equity remains one of the defining challenges and enduring responsibilities of modern oncology.RELATED LINKSNational Cancer Institute | Cancer Health DisparitiesIndian Health ServiceTigerlily FoundationNational Cancer Institute | Cancer Clinical TrialsAmerican Indian Cancer FoundationAbramson Cancer Center | University of PennsylvaniaFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
You knew something was wrong with your body long before anyone found it. Months, sometimes years, of being the only one who kept taking your chronic illness seriously - while the standard tests came back clear and the system ran out of places to look. So you found your own answers. And you were right.But here's the part almost no one connects to their physical symptoms. When being proven right costs you that much, a part of you starts holding onto the evidence of how sick you are — because that proof is the thing you fought to earn. And that emotional pattern can sit directly across from the healing you say you want as a woman with chronic illness.In this episode, you'll discover:Why the years you spent being the only one who believed you can end up working against you now.Why part of you can want to be well and resist it in the same breath.What changes when getting well no longer feels like conceding anything.Becoming the Version of You Who Heals is my seven-day audio series that works at the level of identity — separating who you are from what you've been diagnosed with, one day at a time. Read about the transformations women have had in just seven days. CLICK HERE.For women navigating Chronic Illness, Autoimmune Disease, IBS, Digestive Disorders, Migraines, Chronic Fatigue, Fibromyalgia, Pain, PCOS, and Endometriosis.
WHO THIS EPISODE HELPS: People carrying widow grief, childhood trauma, chronic illness grief, foster-care trauma or the loss of identity that follows a life-changing diagnosis.WHAT LISTENERS WILL GET: An honest look at grief and loss, how support can fail grieving families and how telling the truth can help someone reclaim identity, agency and hope.DESCRIPTION:In this episode of Grief Is Not A Dirty Word, Nick Gaylord speaks with author Adriene Caldwell about the many forms of grief that can collide in one life. Adriene survived childhood abuse, homelessness, foster care and years of instability before building a career that represented independence, dignity and the future she wanted her daughter to see. At 35, rheumatoid arthritis forced her to leave that career, and eight days after she filed for disability, her 38-year-old husband, Hugh, died unexpectedly in his sleep. She explains the shock of sudden widowhood, the isolation created by unhelpful grief support and the challenge of parenting a ten-year-old through the death of her father while living with chronic pain. Adriene also shares how Experience Camps helped her daughter find people who understood child grief and gave her space to speak about loss with honesty and humor. The conversation explores career loss, identity grief and the painful process of reading the foster-care case files Adriene had kept hidden for years. Writing Unbroken: Life Outside the Lines became an act of radical honesty, a way to reclaim her voice and a chance to challenge systems that failed vulnerable children. Together, Nick and Adriene show that healing from trauma does not mean pretending the damage never happened; it means refusing to let grief, abuse or loss have the final word.This episode answers:· How do you cope with the sudden death of a husband while raising a grieving child?· Why can losing a career or becoming disabled feel like a form of grief?· What should you say and do to support someone after the death of a spouse?· How can childhood trauma and foster care affect grief, identity and adult relationships?· Can writing about trauma help you heal and reclaim control of your story?Key Takeaways:· Grief is not limited to death; chronic illness, lost independence and the end of a professional identity can require real mourning.· Practical support often matters more than perfect words. A meal, a grocery run or a genuine check-in can reduce a grieving person's isolation.· Children need grief support from peers who understand their loss without requiring them to explain or soften it.· Radical honesty can restore agency when institutions deny accountability and other people have controlled the story.Being unbroken does not mean being untouched by trauma. It means repairing, rebuilding and refusing to be defined by what happened. ADRIENE'S LINKS:Website: https://www.unbrokencaldwell.com/Book information and free sample: https://www.unbrokencaldwell.com/the-bookBuy on Amazon: https://www.amazon.com/Unbroken-Outside-Lines-Adriene-Caldwell/dp/B0GSLMZF2Q/ADRIENE'S SOCIAL MEDIA:Facebook: https://www.facebook.com/profile.php?id=61575765845419Instagram: https://www.instagram.com/unbrokencaldwell/LinkedIn: https://www.linkedin.com/in/unbrokencaldwellX: https://x.com/Unbrokenlo81234TikTok: https://www.tiktok.com/@unbrokencaldwellYouTube: https://www.youtube.com/@Unbroken-CaldwellSupport the showGIVE THE SHOW A 5-STAR RATING ON APPLE PODCASTS! FOLLOW US ON APPLE OR YOUR FAVORITE PODCAST PLATFORM! BOOKMARK OUR WEBSITE: www.griefisnotadirtyword.com FOLLOW OUR DEAD DADS ON SOCIAL MEDIA: Facebook: https://www.facebook.com/griefisnotadirtyword Instagram: https://www.instagram.com/griefisnotadirtyword TikTok: https://www.tiktok.com/@griefisnotadirtywordYouTube: https://www.youtube.com/channel/UCmmv6sdmMIys3GDBjiui3kw LinkedIn: https://www.linkedin.com/in/nick-gaylord/
Parasites are one of those topics people avoid because it feels “gross” or unlikely, but the real problem is how often they get missed and how much suffering that creates. We sit down with Dr. Pamela M. Cipriano, a clinician focused on complex chronic illness and advanced root cause diagnostics, to talk plainly about parasites in the United States and why “you didn't leave the country” is not a medical answer. She shares what she's seen after years of watching patients get dismissed, misdiagnosed, or told symptoms are psychological when the biology is screaming for attention. We get into the practical side of parasite diagnosis and parasite testing, including why common stool tests can come back negative even when symptoms are severe, and why specialty labs and experienced eyes matter. We also cover parasite symptoms that don't look like the stereotype: fatigue, unexplained weight loss, nutrient depletion, brain fog, confusion, skin and scalp issues, and intense sugar cravings that can feel like you've lost control of your own choices. Dr. Cipriano explains how antiparasitic medications like albendazole and ivermectin fit into care, why treatment may need to follow cycles to catch ova, and what “before and after” recovery can actually look like. Because real life is messy, we also connect the dots to tick-borne disease, co-infections, and why some people end up mislabeled with psychiatric diagnoses when an infection is driving the presentation. If you've been told “everything looks normal” while you feel anything but normal, this conversation offers a grounded framework and specific next steps. Subscribe, share this with someone who feels stuck, leave a review, and then reply to us: what symptom or myth hit you the hardest?You can find Dr. Pamela M. Cipriano at:Website - https://www.thepracticeofhealthandwellness.com/Send us your desired health topic or guest suggestions Please Follow and Review this podcast if you would like to support the growth of this show. Thank You! :)If you enjoyed this episode, please consider sharing it with two people you know that might benefit from the information. The more knowledge that people have in their hands, the healthier we can all become. If you would like to see a particular health issue discussed, or know someone who would be a great guest, contact the Open-Minded Healing podcast at marla@openmindedhealing.com. Note: By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, including but not limited to patients that you are treating. Consult your own physician for any medical issues that you may be having. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Marla Miller, Open-Minded Healing Podcast, any guests or contributors to the podcast, be responsible for damages arising from use of the podcast.
Want more exclusive content?! http://prometheuslens.supercast.com to sign up for the "All Access Pass" and get early access to episodes, private community, members only episodes, private Q & A's, and coming documentaries. We also have a $4 dollar a month package that gets you early access and an ad free listening experience!====================In this episode of The Prometheus Lens Podcast, Doc Brown sits down with author A.W. Finnegan to unpack the deep and provocative research behind The Sleeper Agent: The Rise of Lyme Disease, Chronic Illness, and the Great Imitator Antigens of Biological Warfare.What starts as a conversation about Lyme disease quickly opens into a much larger discussion about biowarfare, immune suppression, historical experiments, and the uneasy overlap between public health, defense, and hidden agendas. Adam shares the personal story that led him to spend years researching the topic, tracing connections through old papers, declassified documents, historical figures, and global programs that he believes shaped modern disease narratives.If you're interested in history, medicine, biology, or the darker corners of scientific research, this one will make you think twice about what you've been told.Topics covered:The origins of Adam Finnegan's book The Sleeper AgentLyme disease, immune tolerance, and chronic illnessHistorical biowarfare and disease experimentationEric Traub, Plum Island, and Operation PaperclipPublic health, vaccine debates, and government secrecyHow old ideas about biological warfare still echo todayGuest: A.W. FinneganWebsite: thesleeperagent.comHost: Doc Brown The Prometheus Lens PodcastIf you enjoyed this conversation, make sure to like, subscribe, and share for more thought-provoking interviews that challenge assumptions and explore the stories beneath the surface.====================
This podcast episode features a compelling discussion centered around the profound challenges and experiences associated with chronic illness, as exemplified through the insights of our guest, Renee Lehmann. We delve into the complexity of navigating faith amidst physical and emotional struggles, emphasizing the necessity of community support and open communication in such times. Renee articulates the intricate balance between gratitude and uncertainty, highlighting how one can maintain a spirit of thankfulness even in the face of unpredictable health challenges. Furthermore, she explores the significance of sharing personal testimonies, highlighting how vulnerability can foster connection and understanding within one's community. Ultimately, this episode seeks to provide encouragement and hope to those battling similar adversities, reinforcing the notion that one is not alone in their journey.Takeaways: In navigating chronic illness, the interplay between gratitude and uncertainty is profound, illustrating how one can maintain a grateful heart amidst unpredictable health challenges. Community support plays an indispensable role during times of chronic illness, providing emotional and practical assistance that alleviates feelings of isolation and despair. The experience of silence following fervent prayer can be daunting, yet it invites a deeper understanding of faith that transcends mere expectation of immediate answers from God. Open and honest communication between spouses is crucial when facing chronic illness, as it fosters mutual understanding and grace during challenging times. The journey of chronic illness often leads to a reevaluation of personal identity and worth, as the individual learns to embrace their value beyond physical capabilities. The act of sharing one's testimony of faith and struggle can serve as a powerful tool for encouragement, not only for oneself but also for others facing similar trials.
For women with chronic illness, the dread that builds ahead of a hard week can cost you more than the week itself.You spend Sunday running the work, the appointments, the flare you're sure is coming — and by Monday your body has already lived it three times over. This mini is about that anticipatory dread, one of the emotional patterns that quietly drains the energy your body needs, and the simple shift that stops you living the hard thing twice. It's one of the most relatable patterns I see in women with chronic illness and autoimmune illness, and almost no one connects it to how depleted they feel.In this episode, you'll discover:Why dreading a hard week can wear you out more than the week itself doesWhat your body does when you rehearse something stressful that hasn't happened yetOne question that pulls you out of the dread and back into the day you're actually inUse my free ChatGPT prompt to identify the emotional patterns that may be connected to your symptoms in under 30 seconds. CLICK HERE.For women navigating Chronic Illness, Autoimmune Disease, IBS, Digestive Disorders, Migraines, Chronic Fatigue, Fibromyalgia, Pain, PCOS, and Endometriosis.
Humanities Radio Presents COMM 3540: Navigating Chronic Illness Annabel Kim In this episode, Annabel Kim explores the realities of autoimmune and chronic illness in young women through conversations with three individuals living with conditions including endometriosis, celiac disease, Hashimoto's, POTS, myalgic encephalomyelitis, and PCOS. We discuss the day-to-day challenges, mental health impact, misdiagnosis, and resilience that often go unseen. This episode sheds light on invisible illnesses and the strength it takes to navigate life while managing them.
In 2000, Katie Couric underwent a live colonoscopy on national television following the death of her husband, Jay Monahan, from colorectal cancer at age 42. The broadcast demystified a procedure many Americans feared, led to an estimated 20% increase in colonoscopy screenings, and became one of the clearest examples of how public storytelling can change healthcare behavior.This episode examines how celebrities, journalists, filmmakers, and entertainers helped reshape the public conversation about cancer during a period when survivorship was becoming increasingly visible. As breakthroughs in targeted therapies, immunotherapy, and early detection allowed more people to live beyond cancer, public figures used their platforms to encourage screening, reduce stigma, and accelerate research. Their influence extended far beyond awareness campaigns, helping transform cancer from a private diagnosis into a national public health conversation.Central to this story is Laura Ziskin, the Hollywood producer behind Pretty Woman and the Spider-Man films, whose metastatic breast cancer diagnosis inspired the creation of Stand Up To Cancer. Working alongside Couric and leaders from entertainment, journalism, and biomedical research, Ziskin championed a new funding model that required multidisciplinary scientific collaboration, helping accelerate discoveries that contributed to multiple FDA-approved cancer therapies. The episode also highlights the advocacy of actor Patrick Dempsey, whose family's experience with ovarian cancer led to the creation of the Dempsey Center, expanding support for patients and caregivers beyond medical treatment.The story also asks what celebrity advocacy often leaves unsaid. Financial toxicity, caregiver burden, chronic pain, mental health, and the long-term effects of treatment rarely receive the same attention as dramatic diagnoses or breakthrough cures. As cancer survivorship continues to evolve, the greatest challenge may not be convincing people to care about cancer, but helping them understand what it truly means to live with and beyond it.RELATED LINKSStand Up To CancerKatie Couric MediaDempsey CenterAmerican Association for Cancer ResearchNational Cancer InstituteDana-Farber Cancer Institute | Adult Survivorship ProgramFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Donate to the Institute: https://givenow.nova.edu/assaf-family-and-community-me-cfs-endowed-fund-campaign/?a=1 In today's episode, Makena Thompson speaks with Dr. Deepa Verma, a double board-certified MD in integrative and anti-aging medicine, to examine why our population is sicker than ever despite greater access to healthcare. Dr. Verma argues that what we call healthcare is actually sick care. Rather than teaching people how to live well, the system waits for disease to develop and manages it with pharmaceuticals that treat symptoms rather than causes. She draws on 13 years of integrative practice to explain how the modern food supply, environmental toxins, glyphosate, microplastics, and chemical exposures in the home are driving the rise in autoimmune disease, infertility, hormone disruption, and chronic fatigue. She also addresses why so many patients are told their labs are normal when they clearly are not well, and what a truly preventative model of care would require. If you are tired of being managed and ready to understand the root cause, this episode is your starting point. Tune in to Hope and Help For Fatigue and Chronic Illness. Dr. Deepa Verma is double board certified in family medicine and integrative functional medicine from Rutgers Medical School (formerly known as Robert Wood Johnson Medical School). Dr. Verma completed her family medicine residency at Somerset Medical Center and was elected Chief Resident. After years of searching for deeper fulfillment treating patients traditionally, Dr. Verma changed course. She followed her passion to educate and heal individuals as a whole, rather than just focusing on treating symptoms. This led her to found Synergistiq Integrative Health in 2013. From the beginning, her goal has been to create a practice that could give patients an opportunity for a healthier and happier version of life. She understands frustrated patients who are fed up with traditional medicine.Dr. Verma's training has taught her that in order to find a long-term cure, patients need treatment that addresses the root cause of their symptoms, not just addressing their lab numbers. She is also an accomplished author, blogger, and regular television personality. Website: https://synergistiqhealth.com/ Instagram: https://www.instagram.com/drdeepavermamd/?hl=en Makena Thompson is a Research Program Manager at the Institute for Neuro-Immune Medicine at Nova Southeastern University. Haylie Pomroy, Founder and CEO of The Haylie Pomroy Group, is a leading health strategist specializing in metabolism, weight loss, and integrative wellness. With over 25 years of experience, she has worked with top medical institutions and high-profile clients, developing targeted programs and supplements rooted in the "Food is Medicine" philosophy. Inspired by her own autoimmune journey, she combines expertise in nutrition, biochemistry, and patient advocacy to help others reclaim their health. She is a New York Times bestselling author of The Fast Metabolism Diet. Learn more about Haylie Pomroy's approach to wellness through her website: https://hayliepomroy.com Instagram: https://www.instagram.com/hayliepomroy Facebook: https://www.facebook.com/hayliepomroy YouTube: https://www.youtube.com/@hayliepomroy/videos LinkedIn: https://www.linkedin.com/in/hayliepomroy/ X: https://x.com/hayliepomroy Thank you for tuning in to the Hope and Help For Fatigue and Chronic Illness Podcast. Sign up today for our newsletter.
In this encore episode, Dr. Liew shares her personal journey to becoming a rheumatologist inspired by a friend's diagnosis. She then discusses the condition in detail, addressing common misconceptions such as it being exclusive to white men and always showing up on imaging. Listeners will gain invaluable insights into the challenges of diagnosing this condition, social determinants affecting diagnosis, and reliable resources for further information. This episode is a must-listen for anyone navigating the labyrinth of rheumatic diseases, providing hope and knowledge to help you thrive. Episode at a glance: 00:00 Introduction to Rheumer Has It Podcast 00:26 Meet Dr. Jean Liew: Expert on Axial Spondyloarthritis 00:40 Understanding Axial Spondyloarthritis 01:41 Dr. Liew's Journey into Rheumatology 04:16 Busting Myths: Axial Spondyloarthritis and Demographics (it's not just men!) 06:50 Challenges in Diagnosing Axial Spondyloarthritis 10:27 The Role of HLAB 27 in Axial Spondyloarthritis 12:26 Imaging and Axial Spondyloarthritis 14:38 Final Thoughts and Resources Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
How can we hold onto hope in the midst of autoimmune and chronic illness? In today's episode, Tara is sharing the whole story of her personal journey with fibromyalgia, from the beginning to now. Not only does she share her thirteen-year-struggle with this illness, but also how God has refined her faith through it. Spoiler alert: It's been messy at times and it would be an understatement to say that her faith was questioned during the process. But God is kind, faithful, and wastes nothing. If you're struggling with a chronic illness today, I hope you walk away knowing that what we may consider a setback in our life can truly be used as a setup and divine sanctification by our Heavenly Father. Visit Grace Coffee to place your coffee order and change a child's life for the kingdom. Use code TARASUN15. Watch Truth Talks with Tara on YouTube here! CONNECT WITH TARA ON SOCIAL MEDIA: https://www.instagram.com/misstarasun https://www.instagram.com/truthtalkswithtara https://www.tarasunministries.com CONTACT: podcast@tarasunministries.com SPEAKING INQUIRIES: contact@tarasunministries.com ADVERTISE ON THE SHOW: To inquire about host-read ads or to become the show's next sponsor, please send an email to podcast@tarasunministries.com. DISCLAIMERS: This podcast may contain affiliate links, sponsorships, or products I've received for free. Please know that I always try to operate in integrity and only share products I know you'll love (and I genuinely love). If you decide to purchase through my links, thank you so much for your support! The perspectives shared in each episode belong solely to the individual contributors and don't necessarily represent the views of the podcast host, production team, or the owner of this intellectual property. This podcast is not intended to provide legal advice, and we encourage listeners to consult qualified professionals regarding their brand, business, or other matters. This disclosure is made in accordance with the Federal Trade Commission's guidelines under 16 CFR, Part 255: “Guides Concerning the Use of Endorsements and Testimonials in Advertising.” Learn more about your ad choices. Visit megaphone.fm/adchoices
Full Plate: Ditch diet culture, respect your body, and set boundaries.
What does it mean to live in a body that doesn't always do what you wish it would? A body that's unpredictable, maybe in pain, maybe exhausted — a body shaped by chronic illness, disability, or medical trauma?This week on the podcast, I'm revisiting an episode with the deeply compassionate Dr. Jennifer Caspari, a psychologist who specializes in health psychology and lives with cerebral palsy. Her personal and professional wisdom come together in such a powerful way — this conversation felt like a breath of fresh air in a world that so often asks us to override, fix, or fight our bodies.We talk about what it means to be in relationship with your body when it doesn't feel like it's on your side — and how to cultivate self-compassion, presence, and joy even in the midst of that. (Her new book is a beautiful read, by the way).Jen shares her own story — how she came into therapy, what it's like navigating the world in a disabled body, and the mindset shifts that have helped her most during painful or difficult seasons.We explore:* How societal body image pressure intersects with disability and illness* Why we don't have to wait for symptoms to go away in order to start living* The role of values-based living and gentle courage in hard moments* Practical strategies for coping with chronic pain* What it really means to practice radical acceptance* Why chronic illness often involves grief — of function, identity, possibility* Navigating relationships and communicating needs with loved ones* Finding agency, even when so much feels out of your control* Living fully with a body that's chronically ill — and maybe always will beSupport the show: Enjoying this podcast? Please support the show on Substack for bonus episodes, community engagement, and access to "Ask Abbie" at abbieattwoodwellness.substack.com/subscribe Apply for Abbie's Group Membership:If you're looking for support, live sessions, community, and continued learning, apply for Abbie's monthly membership: https://www.abbieattwoodwellness.com/circle-monthly-groupSocial media:Find the show on Instagram: @fullplate.podcastFind Abbie on Instagram: @abbieattwoodwellness Podcast Cover Photography by Anya McInroyThis podcast is ad-free and made possible by paid subscribers on Substack. Subscribe HERE. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit abbieattwoodwellness.substack.com/subscribe
In 2006, a landmark report titled Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer confirmed what young survivors had been saying for years. While survival rates for children and older adults had steadily improved, adolescents and young adults had experienced decades of stalled progress. They had become cancer's lost generation.This episode explores how young adult survivors transformed their shared isolation into one of the most influential grassroots movements in cancer advocacy. Diagnosed during the years typically devoted to education, careers, relationships, and starting families, patients between the ages of 15 and 39 confronted challenges that extended far beyond treatment. Fertility preservation, sexual health, employment, financial toxicity, insurance, and long-term quality of life were rarely discussed in oncology clinics, leaving many to navigate survivorship alone.The episode follows advocates including Tamika Felder, Lindsay Avner, Heidi Adams, Doug Ulman, and Dr. Archie Bleyer, whose research and advocacy fundamentally changed how medicine understands adolescent and young adult cancer. Through organizations including Planet Cancer, Fertile Hope, the Lance Armstrong Foundation, and later Stupid Cancer, survivors built online communities, educational resources, conferences, and national partnerships that challenged long-standing assumptions about cancer care. Their work helped establish fertility preservation as a standard discussion before treatment, expanded research dedicated to adolescent and young adult oncology, and elevated quality of life as a critical clinical outcome alongside survival.The movement also demonstrated the power of lived experience to reshape medicine. Survivors became researchers, educators, nonprofit founders, and policy advocates, insisting that cancer care account not only for years of life saved, but for the lives patients hoped to build afterward.What began as a search for peers evolved into a national movement that permanently transformed adolescent and young adult oncology. Today, dedicated research programs, clinical fellowships, survivorship resources, and patient advocacy organizations continue to build on the foundation these young cancer mavericks created.RELATED LINKSNational Cancer Institute | Adolescent and Young Adult (AYA) Cancer ProgramClosing the Gap: Research and Care Imperatives for Adolescents and Young Adults with CancerAmerican Society of Clinical Oncology | Fertility Preservation GuidelinesStupid CancerLivestrong FoundationJournal of Adolescent and Young Adult OncologyFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Endo. Chronic injury. Mental illness diagnoses. Updates to genetic testing. Let’s talk about it. This episode comes at a time where the NDIS is being wound back for approx. 241,000 Australians. So, what does this mean if you are experiencing chronic illness, permanent injury or disability? And what financial support is in place to help you sustain a decent quality of life when government services are being pared back? During this Deep Dive, we’ve invited friend of the pod, Phil from Skye Wealth to chat about the impact of chronic illness on our personal insurances. From stigma and stereotyping to the upcoming industry shifts that are happening around mental illness, join Victoria and Phil for an illuminating ep on what your options are in the year of our lord 2026. CHAT WITH SKYE: Thanks again to our partners over at Skye Wealth for making this episode possible. If you're ready to chat to a professional about your personal insurance, we have a long standing referral partnership with Skye Wealth. Book your consult at https://www.skye.com.au/shesonthemoney INSURANCE 101: Still grade yourself at about a B+ when it comes to money? Upgrade your knowledge with this playlist on personal insurance at https://open.spotify.com/playlist/1kdVBELk5klU7yzzFblSqe?si=F7bBhVGpShSQmgWf8R4kEQ LOVE NUMBERS? Here are some stats on the various kinds of claims being paid out across Australia from 2024. Visit insurancewatch.com.au/insurance-claims-statistics.html for more info. New here? Follow us on Instagram (@shesonthemoneyaus) for Q&As, bite-sized advice, daily money inspo... and relatable money memes that just get you. Acknowledgement of Country By Nartarsha Bamblett (nartarshabamblett.com.au) The advice shared on She's On The Money is general in nature and does not consider your individual circumstances. She's On The Money exists purely for educational purposes and should not be relied upon to make an investment or financial decision. If you do choose to buy a financial product, read the PDS, TMD and obtain appropriate financial advice tailored towards your needs. Victoria Devine and She's On The Money are authorised representatives of Money Sherpa PTY LTD ABN - 321649 27708, AFSL - 4451289.See omnystudio.com/listener for privacy information.
Being symptom-free is the whole goal. And for a lot of women with chronic illness, it's also the most uncomfortable place to be.When your symptoms finally ease and a good stretch arrives, something feels off instead of freeing. So you spend it waiting for the crash, watching the horizon, unable to relax into the exact thing you've been working toward. This episode is about that fear of feeling good — one of the emotional patterns behind chronic illness and autoimmune illness in women that almost no one connects to their physical symptoms and why it keeps your body stuck.In this episode, you'll discover:Why a good stretch can leave you more on edge than a flare doesWhat your body is actually doing in the moments you can't let yourself enjoyThe one shift that lets you finally enjoy a good day instead of anxiously awaiting something to come ruin itUse my free ChatGPT prompt to identify the emotional patterns that may be connected to your symptoms in under 30 seconds. CLICK HERE.For women navigating Chronic Illness, Autoimmune Disease, IBS, Digestive Disorders, Migraines, Chronic Fatigue, Fibromyalgia, Pain, PCOS, and Endometriosis.
In this episode, we connect with research scientist and C60 specialist Ken Swartz, known as "Ken the Scientist," to explore Carbon 60 (C60), the science behind the molecule, and its growing presence in conversations around cellular health, oxidative stress, and longevity. Ken's interest in C60 began while working on fusion reactor technology and researching the effects of radiation. His work introduced him to Buckminsterfullerene, a unique carbon molecule with properties that sparked his interest in its potential applications beyond the laboratory. What began as part of his scientific research eventually became the focus of his career. During this conversation, Ken breaks down what C60 is, how it interacts with free radicals, and why researchers have become interested in its possible relationship with oxidative stress and mitochondrial function… Join in now to explore: The science behind Carbon 60 and Buckminsterfullerene. How C60 interacts with free radicals and oxidative stress. Ken's background in research science and fusion technology. Why C60 has attracted attention in mitochondrial and cellular health. Ken is the founder and Chief Science Officer of C60 Purple Power, where he has focused on the research, development, and production of C60 products. With a background in laboratory research and applied science, he brings a technical perspective to a something that continues to generate interest across the health, wellness, and longevity communities. Connect with Ken: C60 Purple Power WhatisC60.org Instagram
Gigi Robinson grew up in and out of hospitals with a connective tissue disorder. She could have hidden it. Instead she built her entire personal brand around it — and now has over 500,000 followers, a book deal, and a keynote speaking career. In this episode of Running With Wolves, Savannah sits down with Gigi to talk about what it actually looks like to build a brand from your most vulnerable story, why authenticity without strategy is just oversharing, and what the personal brand era means for every founder listening right now. Here's what this episode covers: Why Gigi never hid her chronic illness — and how that decision became the foundation of everything she built The difference between influence and impact — and why Gigi has always optimized for the second one How anyone can be a content creator in today's world Connect with Gigi on Instagram at @itsgigirobinson — https://www.instagram.com/itsgigirobinson Apply to work with Savannah HERE: http://bit.ly/applywlfpodcast or DM her on Instagram @itssavannahjordan with your takeaway. Gigi Robinson, chronic illness brand, personal brand, marketing strategy 2026, female founder, More Than a Body, organic marketing
In this episode, Leigh Ann welcomes Cassandra Gray, co-founder of Helixona, for an inside look at a new model of care designed for people navigating complex chronic illness. Cassandra shares how her own experience with Lyme disease, mold toxicity, and mast cell activation—combined with 25 years in healthcare management—inspired her to help build the kind of clinic she wished had existed during her own health journey. They explore Helixona's “Eliminate, Nourish, Repair” philosophy, why the order and timing of treatments matter, and how comprehensive diagnostics, IV therapies, EBOO, laser therapy, Rife technology, nanobaths, and other modalities can be thoughtfully integrated into a personalized plan of care. Cassandra also explains Helixona's unusual commitment to fighting for insurance coverage and why addressing the nervous system and emotional side of illness is considered an integral part of recovery. Finally, Leigh Ann and Cassandra discuss Leigh Ann's upcoming move into Helixona, their plans to develop new patient programs together, and their shared vision for making truly integrative care more collaborative and accessible.Product Discount Codes + LinksFREE Anxiety First Aid KitLiving Libations: Website (Link gives you 10% off)Broc Shot: Website (Discount Code: LEIGHANNLINDSEY)Guest InfoHelixona - WebsiteHelixona - InstagramRelated EpisodesPodcast Ep 236. Dr. Thomas Bakman (Helixona) - The Hidden Neurological Factors Sabotaging Chronic Illness RecoveryLeigh Ann's Bonus Episode on her move to HelixonaWork w/Leigh AnnLearn: What is EVOX Therapy?Book: Schedule a Session or FREE Discovery CallMembership: What is The Healing Alchemy MembershipConnect w/Me & Learn MoreWebsiteInstagramTiktokYoutube
How can better measurement of MCS and chemical intolerance help reduce misunderstanding, missed cases, and misdiagnosis?In this episode of The Chemical Sensitivity Podcast, Aaron Goodman speaks with Raymond F. Palmer, PhD, a biostatistician and research professor at the University of Texas Health Science Center at San Antonio who has studied chemical intolerance for more than a decade.You'll hear:Why better recognition may help address misunderstanding and misdiagnosisHow the QEESI can help identify and measure MCS and chemical intoleranceThe TILT model and the potential role of environmental exposuresResearch into genetics, mast-cell activation, and biomarkersWhy listening to patients and improving recognition matterA conversation about how researchers are working to better measure and understand MCS and chemical intolerance — and why doing so could help change how people with the illness are recognized and treated.Links:The QEESI (Quick Environmental Exposure and Sensitivity Inventory)Raymond Palmer, PhDSupport the showThank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast!If you find the podcast helpful, please consider becoming a monthly or one-time supporter:https://www.chemicalsensitivitypodcast.org/1970633/supporters/newhttps://buymeacoffee.com/mcspodcast Follow the podcast on YouTube! Captions available in any language. Please follow the podcast on social media:FacebookInstagramXBlueSkyTikTok
Welcome to another edition of This Week in Autistic Culture, our Sunday magazine podcast that brings together the stories, conversations and ideas shaping Autistic culture each week.Content note: This episode contains discussion of suicide, suicidal ideation and public harassment.This week, Angela and Simon reflect on the death of Professor Jason Arday and the pressures that can come with being a highly visible Autistic person. They discuss public scrutiny, the way successful Autistic people can be placed on impossible pedestals, and what happens when institutions fail to protect people during periods of intense vulnerability.They also turn to Robbie Williams following his recent comments about being Autistic, asking why autism is so often used to explain someone's struggles or differences, but rarely recognised as part of the creativity, innovation and perspective behind their success.Later, Angela takes us inside the 2026 Neurodiversity Index Report, including the striking gap between the number of employers who believe their workplaces are neuroinclusive and the neurodivergent employees who actually feel supported.As always, we'll also take you through everything happening across the Autistic Culture Podcast Network this week, with new episodes exploring writing, drinking and masking, Autistic menopause, autism therapy, PDA, Reddit and more.Plus, we head to the Community Notice Board for books, events and opportunities from across the wider Autistic community.
Fan Mail: Tell Wendy how you're saying yes to yourself!DM Wendy on Instagram: instagram.com/wendy.harropor email her at hello@phineaswrighthouse.comSusanne Eden turned 60 and thought her life was over. She could barely get out of a chair, was on 200 units of insulin a day, and had spent years on prednisone that had quietly wrecked her endocrine system. Now 87, she's the author of Healing from the Inside, Living Fully As You Age. Susanne and Wendy explore:What actually changed when she stopped waiting for a doctor to hand her the answer and started experimenting with holistic and energy-based healing insteadWhy she believes health, aging, and self-worth are impossible to separate, and how trying to treat them individually is where so many people get stuckThe recent loss of a close friend, and the recorded conversation they shared in her friend's final months that became part of a new project called Conversations with SusanneSusanne's story isn't about reversing a diagnosis or finding a miracle fix. It's about what happens when someone finally stops outsourcing the answer and starts paying attention to what her own body and mind were trying to tell her all along.Connect with Susanne:SusanneEden.comConversations referenced in this episode: susanneeden.com/conversationsGet her book, Healing from the Inside: Living Fully as You Agehttps://www.amazon.com/Healing-Inside-Living-Fully-You/dp/1038343712?tag=syty-20Referenced in this Episode:Caroline Myss: myss.com________________________________________________________________________________________Connect with Wendy:LinkedinInstagram: @wendy.harropFacebook: Phineas Wright HouseWebsite: Phineas Wright House PWH Farm StaysPWH Curated Experience and TravelInterested in being a guest on the show? Send your pitch to podcast@phineaswrighthouse.comPodcast Production By Shannon Warner of Resonant Collective Want to start your own podcast? Let's chat!If this episode resonated, follow Say YES to Yourself! and leave a 5-star review. It helps more women in midlife discover the tools, stories, and community that make saying YES not only possible, but powerful.
What if the belief you're holding about your own future is the very thing keeping you from healing?For a lot of women with chronic illness, hope feels almost impossible to hold onto. Your body hurts, the evidence that you can get better is thin, and somewhere along the way you decided this might just be your life now. But that belief shapes everything you do next, and the emotional patterns underneath it have a real effect on whether anything changes. This mini is about why you have to believe better is possible before the proof arrives, not after, and the one shift that starts building that belief on real things that are actually happening.In this mini, you'll discover:Why believing healing is possible has to come before the evidence, not afterThe reason hope feels so hard to hold when you're the one living in a body that hurtsOne shift that turns every small win into proof your body can get better7-DAY AUDIO SERIES: Becoming the Version of You Who HealsThat 3am thought, "what if this is just my life now?", stops being the thing you wake up to. You start to believe something can actually be different, even after everything you've tried that didn't hold. Start today - CLICK HERE!For women navigating Chronic Illness, Autoimmune Disease, IBS, Digestive Disorders, Migraines, Chronic Fatigue, Fibromyalgia, Pain, PCOS, and Endometriosis.
In this powerful and deeply personal conversation, Dr. Steph sits down with Christina P. Kantzavelos Gameiro, LCSW, MSW, MLIS, an Integrative Lyme, Chronic Illness/Pain, Neurodivergent, C PTSD Psychotherapist and Coach.Christina brings a unique perspective to chronic illness because she has lived it herself.After years of unexplained symptoms, countless medical appointments and eventually becoming so sick that she could no longer work, Christina was diagnosed with Lyme disease. Her own healing journey led her to explore the nervous system, trauma informed care and the mind body connection, ultimately inspiring her to help others navigating chronic illness.In this episode, Dr. Steph and Christina dive into the often overlooked layers of chronic illness and Lyme, including:• Why the nervous system can become stuck in fight, flight, freeze or fawn• The connection between chronic illness, trauma and the window of tolerance• Why some people become incredibly sensitive to supplements, foods and their environment• Why building safety and nervous system capacity can be an important part of the healing process• The complicated relationship between Lyme, chronic illness, environmental stressors and the body• Why there is no single protocol or one size fits all approach• The emotional experience of losing your health and wondering if you will ever feel like yourself again• Learning to trust your body instead of living in fear of every new symptomMost importantly, this episode is a reminder that your body is not your enemy.It is constantly trying to protect you, adapt and keep you safe.As Christina says, we don't get sick in isolation, and we don't heal in isolation.This is a conversation about chronic illness, nervous system regulation, trauma, resilience, hope and learning to work with your body rather than constantly fighting against it.Let us know your thoughts on this episode hereFor any further information, feel free to email us at info@vagusclinic.com. Our team is happy to help. We offer 20-minute complimentary health calls, and you can sign up for one here.
In 2006, the Institute of Medicine published From Cancer Patient to Cancer Survivor: Lost in Transition, concluding that millions of Americans were surviving cancer only to find themselves navigating a healthcare system unprepared for life after treatment. The report challenged oncology to recognize that curing cancer was not the end of care, but the beginning of survivorship.This episode explores how the growing cancer survivorship movement exposed the long-term consequences of cancer treatment that medicine had largely overlooked. As survival rates improved following the National Cancer Act of 1971, millions of survivors faced chronic fatigue, neuropathy, infertility, cognitive impairment, financial hardship, employment discrimination, anxiety, depression, and post-traumatic stress. These were not rare complications. They became defining features of survivorship for many patients.Drawing on the work of oncologist Dr. Patricia Ganz, survivor advocate Ellen Stovall, and researchers, clinicians, and survivors across the country, the episode examines how survivorship research expanded beyond recurrence and mortality to include quality of life, psychosocial care, rehabilitation, and long-term follow-up. Their efforts helped establish survivorship care plans, multidisciplinary survivorship clinics, and a broader understanding that cancer affects every aspect of a person's life long after treatment ends.The episode also confronts persistent inequities in survivorship care. Insurance coverage often ends when treatment stops, supportive services remain inconsistent, financial toxicity continues to drive medical hardship, and racial, geographic, and socioeconomic disparities still influence who receives comprehensive follow-up care. For many survivors, finishing treatment simply marks the beginning of another struggle.Modern oncology increasingly recognizes that surviving cancer is measured by more than years of life. It is also measured by quality of life, dignity, access to care, and the ability to rebuild a future after treatment. That evolution remains one of the most significant legacies of the cancer survivorship movement.RELATED LINKSNational Academy of Medicine | From Cancer Patient to Cancer Survivor: Lost in TransitionNational Cancer Institute Office of Cancer SurvivorshipAmerican Society of Clinical Oncology | Survivorship CompendiumCancerCareHopeWell Cancer SupportNational Coalition for Cancer SurvivorshipFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Lisa Wang went from being an athlete to being in a wheelchair at the age of 14. Now, she's the winner of take a pain check's 2026 STEM Without Limits Scholarship. What happens when a life-changing chronic illness diagnosis at age 14 inspires a lifelong mission to find a cure?In this episode of the Take a Pain Check Podcast, Lisa Wang shares her journey navigating juvenile ankylosing spondylitis from enduring severe diagnostic delays, debilitating pain, and mobility loss to becoming an award-winning student researcher fighting for the future of pediatric rheumatology.We discuss:- What it is like being diagnosed with a severe rheumatic disease in high school- Overcoming mobility challenges, crutches, and the stigma of an "old person's disease"- Navigating the fear of biologics, injections, and complex treatment plans- How Lisa turned her personal health struggle into academic and research excellence- Her work in the lab studying cellular biomarkers to discover new treatments- Winning top scholarships and paving the path toward becoming a clinician-scientist- The power of patient story-sharing in driving scientific research forwardHow do you transform your greatest physical pain into your biggest life achievement?Watch the full conversation to learn how resilience, patient advocacy, and scientific curiosity can turn a diagnosis into a groundbreaking career.Don't forget to like, comment, subscribe, and share this episode.Take a Pain Check's Socials:https://www.takeapaincheck.com/https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck / take-a-pain-check https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca / thttps://www.youtube.com/channel/UCRF07SYaN-9fbatNCKhL08ghttps://www.x.com/takeapaincheckDonate today: https://www.gofundme.com/f/takeapainc...#JuvenileArthritis #ArthritisAwareness #PediatricRheumatology#Rheumatology #scholarships #ChronicIllness
In 1967, breast surgeon Dr. Harold P. Freeman arrived at Harlem Hospital expecting to treat cancer. Instead, he confronted a healthcare system where poverty, racism, lack of insurance, and institutional barriers often determined who lived long enough to receive treatment. Patients frequently arrived with advanced disease, not because medicine lacked answers, but because access to care had failed them.This episode explores how cancer survivorship expanded beyond medical breakthroughs to include healthcare access, health equity, and organized advocacy. Building on the early work of the National Coalition for Cancer Survivorship (NCCS), it examines the recognition that surviving cancer depended not only on research, but also on whether patients could navigate a fragmented healthcare system.Freeman responded by creating one of the nation's first patient navigation programs at Harlem Hospital in 1990. Community-based navigators helped patients overcome practical barriers including insurance, transportation, appointments, communication, and fear. The model dramatically improved timely diagnosis and treatment, increased breast cancer survival in Harlem, and ultimately inspired the Patient Navigator Outreach and Chronic Disease Prevention Act of 2005, establishing navigation as a cornerstone of modern oncology care.The episode also follows cancer survivor Ellen Stovall, whose leadership transformed survivorship into a national policy movement. Through the NCCS, she united advocates across cancer types, fought for insurance protections, expanded access to clinical trials, helped shape the creation of the Office of Cancer Survivorship at the National Cancer Institute, and organized the landmark 1998 National March for Cancer Survivorship in Washington, D.C. Her work reframed survivorship as a public policy issue rather than a personal experience.Together, Freeman and Stovall demonstrated that scientific progress alone could not eliminate disparities in cancer outcomes. Their work established two enduring principles that continue to shape oncology today: patients need someone to help them navigate care, and survivors must have a voice in the policies that govern it. Modern cancer survivorship depends on both.RELATED LINKSNational Coalition for Cancer SurvivorshipHarold P. Freeman Patient Navigation InstituteNational Cancer Institute Office of Cancer SurvivorshipPatient Navigator Outreach and Chronic Disease Prevention Act of 2005American Cancer SocietyTuskegee Study Timeline | Centers for Disease Control and PreventionFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Kaylin Foisy has been part of the K.I. team for five years — podcast production, social media, and now stepping into a bigger coaching role. In this Coaches' Corner chat, we get into Coach Kaylin's 20-year vegan journey (which started with ethics at age twelve, long before she'd heard the word "vegan"), what it's actually like coaching clients online versus in person, and how a chronic illness diagnosis three years ago forced her to rethink training entirely, including why she'd rather "level out" than "level up." We also cover raising vegan kids, the senior fitness class she teaches, and the vegan bakery she founded that's fooled more than a few farmers market skeptics.
Lyndsay Soprano sits down with spiritual counsellor, energy healer, and author Chris Wasko for a heartfelt conversation about trauma, narcissistic abuse, old souls, and the lifelong journey of healing. Together, they explore how childhood experiences shape our nervous systems, why so many survivors remain stuck in survival mode, and what it means to reconnect with the truest version of yourself.Chris shares her own story of growing up in a narcissistic family, the path that led her to spiritual healing, and how inner child work, nervous system regulation, and self-awareness can help us move from simply surviving to truly living.This episode is compassionate, deeply validating, and a reminder that healing happens one layer at a time—and that even after profound pain, peace is still possible.Episode Highlights:(00:00) Introduction and episode overview(03:23) Chris Wasko's background and expertise(04:07) Traumatic upbringing and narcissism spectrum(06:30) Recognizing narcissism in family and its effects(08:23) Healing abilities emerging through trauma work(09:23) Covert vs overt narcissism explained(12:14) Connection between narcissism and old souls(13:29) Understanding the old soul and Spicy Old Souls test(14:55) Healing old souls and vibrational energy(17:57) Impact of pain on nervous system and trauma response(22:32) Healing ripple effects and collective consciousness(24:49) Regulating the nervous system for trauma recovery(29:21) The wayfinder archetype and exploration energy(33:02) Personal insights on movement and safety(41:01) The significance of safe spaces and inner chaos(41:38) Introduction to the book An Old Soul's JourneyFind Chris Wasko Online Here:Website: chriswasko.comFacebook: @chriswaskomediumYouTube: @energyhealingwithChrisBook: An Old Soul's JourneyFind Giving Pain Purpose Online Here:Website: givingpainpurpose.comInstagram: @givingpainpurposeFacebook: The Giving Pain Purpose PodcastLinkedIn: Lyndsay SopranoYouTube: @givingpainpurposeShop: thegivingpainpurposeshop.comSubscribe on YouTube | Merch Shop is OPEN!! | COMING SOON: The Pain Hub - A Women's Healing Community. Subscribe Now!Unfiltered convos. Dark humor. Real healing. This is where pain meets purpose — and you're not doing it alone.++Want to be a guest on Giving Pain Purpose with Lyndsay Soprano? Send her a message on PodMatch, here: Be a Guest on The Show
Taking time off to heal was supposed to be the thing that finally worked. So why do you feel exactly the same, or worse?Here's what nobody tells women with chronic illness who step back from work to recover. Stopping your job is not the same as resting your body. And if you've quietly turned getting better into your new full-time job, complete with targets, a timeline and a daily verdict on whether you're passing or failing, your body is still under pressure. It never actually stopped. This episode is about the emotional patterns underneath that pressure, why it keeps your body locked out of the state it needs to repair, and what real rest actually looks like.In this episode, you'll discover:Why taking time off to heal can make your chronic illness worse instead of betterThe hidden pressure you've been putting on your body since the day you stopped work, or the day you took leaveWhy rest hasn't been working, and what has to shift before your body can actually repairFREE CHATGPT PROMPTClick here to download my FREE ChatGPT prompt that helps connect your real physical symptoms to the emotional patterns that may be underneath them in 30 seconds!For women navigating Chronic Illness, Autoimmune Disease, IBS, Digestive Disorders, Migraines, Chronic Fatigue, Fibromyalgia, Pain, PCOS, and Endometriosis.
Welcome to a very, very, very special bonus episode of Out of Patients, and one unlike anything published on this feed before. For nearly 20 years, Matthew Zachary has handed these microphones to patients, caregivers, doctors, advocates, troublemakers, and people with something worth saying. This time, he handed them to his daughter. Hannah Greenzweig grew up around this show, and now she has commandeered the studio with 3 of her wonderfully creative high school friends to talk about something they built entirely themselves. There is an enormous amount of Dad Pride baked into this episode, along with the strange and wonderful realization that sometimes your kid grows up, takes your chair, takes your microphone, and produces a better show without you.Hannah Greenzweig, Michael Aidinov, Gwendolyn Baldini, and Astronomy are student artists from the Roundabout Youth Ensemble at James Madison High School in Brooklyn. Working alongside teaching artists from Roundabout Theatre Company, they spent a school year creating an original play from the ground up, writing every scene, developing every character, and producing the performance themselves.Instead of discussing a Broadway production, they dissect one they invented.Their play, Subject Matter, began with a room full of improbable ideas. Murderous bounce houses, pirate family sagas, underwater adventures, courtroom dance battles, and birthday parties at math museums all competed before the group settled on an absurd rivalry between New York's fictional History Museum and Math Museum. From there, they built a fully staged comedy about institutional competition, sabotage, oversized personalities, and the unexpected discovery that history and mathematics need each other more than either side wants to admit.The conversation pulls back the curtain on a creative process most audiences never see. The students explain how scenes evolved through constant rewrites, how characters emerged from improvisation, how costumes came together with last minute ingenuity, and how rehearsals often collapsed into uncontrollable laughter. They recount cutting favorite ideas, solving production problems with limited resources, and trusting each other enough to keep rewriting until the story worked.The episode also captures something harder to script: teenagers speaking honestly about collaboration without adults translating their experience. They celebrate classmates who stepped into unexpected roles, teachers who quietly held the production together, and the strange joy of creating something that exists only because everyone showed up.It is a conversation about theater, friendship, education, creativity, and what happens when 4 young artists get the microphones and the adults get out of the way.RELATED LINKSRoundabout Theatre CompanyRoundabout Youth EnsembleJames Madison High SchoolFEEDBACKLike this bonus episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
The natural immunity framing from the COVID years carried the same premise underneath: strong enough to get through it and you live, and if not, that is simply how it goes. Applied to a country where most people accumulate two or three chronic conditions with age, that is a policy with a serious body count. Measles is already back at levels not seen in decades. Bouie's closing point is the one that stuck: Trump has no ideology beyond himself. The ideologues are Stephen Miller and Russ Vought - both of whom are happy to implement racist policies targeting those who are vulnerable in the US. SUPPORT & CONNECT WITH HAWK- Support on Patreon: https://www.patreon.com/mdg650hawk - Hawk's Merch Store: https://hawkmerchstore.com - Connect on TikTok: https://www.tiktok.com/@mdg650hawk7thacct - Connect on TikTok: https://www.tiktok.com/@hawkeyewhackamole - Connect on BlueSky: https://bsky.app/profile/mdg650hawk.bsky.social - Connect on Substack: https://mdg650hawk.substack.com - Connect on Facebook: https://www.facebook.com/hawkpodcasts - Connect on Instagram: https://www.instagram.com/mdg650hawk - Connect on Twitch: https://www.twitch.tv/mdg650hawk ALL HAWK PODCASTS INFO- Additional Content Available Here: https://www.hawkpodcasts.comhttps://www.youtube.com/@hawkpodcasts- Listen to Hawk Podcasts On Your Favorite Platform:Spotify: https://spoti.fi/3RWeJfyApple Podcasts: https://apple.co/422GDuLYouTube: https://youtube.com/@hawkpodcastsiHeartRadio: https://ihr.fm/47vVBdPPandora: https://bit.ly/48COaTB
You've been waiting for the right doctor, the right protocol, the right person to finally fix you. What if the problem was never that you haven't found them yet?There's a belief almost every woman with chronic illness carries about how healing happens, and it quietly hands control of your body to everyone but you. Most women have no idea they're doing it, and it's costing them more than they realize.In this mini, you'll discover:The difference between waiting to get better and waiting to be rescuedWhy the belief that someone else will fix you keeps your healing at a standstillOne honest shift that changes how you approach your recoveryUse my free ChatGPT prompt to identify the emotional patterns that may be connected to your symptoms in under 30 seconds. CLICK HERE.For women navigating Chronic Illness, Autoimmune Disease, IBS, Digestive Disorders, Migraines, Chronic Fatigue, Fibromyalgia, Pain, PCOS, and Endometriosis.
**Our final Wholeness Method cohort of 2026 is open now.**Can you follow a carnivore diet, improve your environment, take the right supplements, and still feel stuck in chronic illness? Judy Cho sits down with licensed clinical social worker and Wholeness Method practitioner Lauren Cogan to examine nervous system dysregulation, trauma responses, anxiety, people-pleasing, boundaries, CIRS, mold illness, and the mind-body patterns that can remain after the physical foundations are addressed.This conversation explores why some behaviors that appear to be personality may actually be protective responses, why understanding a pattern is different from changing it, and how chronic illness can alter the way someone interprets every new healing strategy. This is not an argument against carnivore or functional medicine. It examines the additional layer that may matter when diet, sleep, lifestyle, and protocols have helped, but the body still does not feel safe. How trauma and anxiety show up in the bodyWhen anxiety can look like ADHDTalk therapy, somatic work, and nervous system healingHow childhood shapes the stress responseWhen a trauma response feels like personalityA chronic illness transformation storyWhy saying no can trigger fight or flightThe crash that can happen before a health issue_____EPISODE REFERENCESWholeness Method CohortWholeness Method ResourcesWEEKLY NEWSLETTER
A man is struck by a car on the streets of Los Angeles. In the emergency department, a CT scan ordered to look for traumatic injuries reveals something nobody expected: a mass in his colon. Days later, sitting across from Dr. Belinda Waltman, he calls the accident “a blessing in disguise.” Then he changes the subject. He is less worried about cancer than about whether he can afford to miss another day of work. In this season finale of Standard Deviation, host Dr. Oliver Bogler explores what happens when biomedical science collides with the realities of the healthcare safety net. Dr. Waltman, a primary care physician in Los Angeles County, specializes in expedited cancer workups for uninsured and underinsured patients. Every diagnosis arrives carrying another set of questions about housing, transportation, food insecurity, wages, and survival that rarely appear in medical records or scientific literature. For years, Waltman carried those stories without knowing how to bring them into the academic record. As a full-time clinician without a research lab, grant funding, or publication pipeline, she faced barriers familiar to many working scientists and physicians whose most important observations happen outside traditional research settings. With support from the Life Science Editors Foundation's JEDI program, those experiences became The Margins Matter, a narrative medicine essay published in JAMA that argues the social realities surrounding cancer care are not background details. They are part of the disease itself. Bogler traces how editorial mentorship transformed lived clinical experience into published scholarship while asking a larger question about who gets to shape the scientific record. The conversation examines cancer care, Medicaid, health-related social needs, medical publishing, and the structural incentives that determine which stories become evidence and which disappear from view.The result is a conversation about documentation, visibility, and why the margins of medicine often determine who survives long enough to benefit from its advances.RELATED LINKSDr. Belinda WaltmanThe Margins Matter | JAMAThe Margins Matter | PubMedLife Science Editors FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode of Behind the Bite, Dr. Cristina Castagnini sits down with therapist, educator, and author Tamie Gangloff to explore the profound intersection of chronic illness, eating disorders, and substance use. After being diagnosed with scoliosis as a child and struggling with the shame of being told she had a "deformity," Tamie developed a deeply distorted relationship with her body and food, eventually turning to alcohol as a way to cope with severe self-consciousness. Through an open and honest conversation about her non-linear journey—which involved medical trauma, multiple spinal surgeries, and navigating inadequate insurance coverage—Tamie shares how identifying her underlying medical PTSD was the key to unlocking true recovery. This episode serves as an insightful resource for anyone seeking to understand how physical ailments shape identity and why professional, trauma-informed support is essential on the path to healing. SHOW NOTES: Click here Follow me on Instagram @behind_the_bite_podcast Visit the website: www.behindthebitepodcast.com Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
TODAY ONTHE ROBERT SCOTT BELL SHOW: Trump Vaccine Backlash, MMR Autism Study, Food Policy Reforms, Parasite Chronic Illness, Lupulus Humulus, Vaccine Safety Report, Matt Warnock, RidgeCrest Herbals, Cam Newton Backs Aaron Rodgers, and MORE! https://robertscottbell.com/trump-vaccine-backlash-vaccine-autism-study-food-policy-reforms-hidden-parasite-illness-lupulus-humulus-vaccine-safety-taskforce-matt-warnock-ridgecrest-herbals-fake-nfl-vaccine-cards-and-mor/ Purpose and Character The use of copyrighted material on the website is for non-commercial, educational purposes, and is intended to provide benefit to the public through information, critique, teaching, scholarship, or research. Nature of Copyrighted Material Weensure that the copyrighted material used is for supplementary and illustrative purposes and that it contributes significantly to the user's understanding of the content in a non-detrimental way to the commercial value of the original content. Amount and Substantiality Our website uses only the necessary amount of copyrighted material to achieve the intended purpose and does not substitute for the original market of the copyrighted works. Effect on Market Value The use of copyrighted material on our website does not in any way diminish or affect the market value of the original work. We believe that our use constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the U.S. Copyright Law. If you believe that any content on the website violates your copyright, please contact us providing the necessary information, and we will take appropriate action to address your concern.
Along the way, they talk about the comfort of pets, the importance of finding friends who truly understand, why kids with invisible illnesses deserve to be believed, and the hope they've found through the Arthritis Foundation community. Whether you're raising a child with JIA, living with arthritis yourself, or simply want to better understand what these young patients experience, this conversation is a powerful reminder that no one has to face arthritis alone. Episode at a glance: 00:00 Welcome and JIA Basics 01:05 Meet the Kids 02:38 Diagnosis Stories 06:49 Treatments and Trial Error 11:05 School Friends and Uveitis 15:41 Coping on Hard Days 20:26 Advice for Newly Diagnosed 23:33 What Adults Should Know 26:42 Final Thoughts and Foundation 29:51 Rapid Fire Favorite Books 33:41 Wrap Up and Goodbye Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
What does it mean to truly draw near to God? Not as a method or a spiritual technique, but as a settled confidence in who he is and how he feels about you? In this Summer Reset episode of the Jesus Over Everything podcast, Lisa Whittle sits down with author, speaker, and renowned radio host Susie Larson for a conversation rooted in Susie's book, Closer Than Your Next Breath. Susie draws on the story of the Israelites, brain science, her own 30-year battle with chronic illness, and the transforming power of pondering God's love to make the case that the presence of God is not a feeling to chase. It is a reality to inhabit. For anyone navigating hard circumstances, carrying the weight of a complicated story, or wondering whether their prayers are reaching God's ears, this conversation is a reminder that goodness is coming, and that a settled heart will know it when it arrives. Listen in to learn more: (05:47) Will we recognize an answer to prayer when it comes? (07:13) What to do while you wait. (12:00) Susie's 30-year battle with chronic illness and what it taught her about the presence of God. (18:00) Why the presence of God isn't a feeling to chase. (25:00) How to build a redemptive narrative at the exact moment a lie is vying for position (32:00) Brain damage, limbic rewiring, and what Susie did to reroute her own neural pathways. (39:55) A 30-day challenge that will change your brain structure, your faith, and your whole physiology. (40:23) Between "big" encounters, how you can experience the love of God. (42:02) Susie's last word: What God thinks about you and why no one can change his mind. Mentioned in the Episode: Book — Closer Than Your Next Breath by Susie Larson: https://www.susielarson.com/closerthanyournextbreath Invite Lisa to Speak: https://www.lisawhittle.com/speaking Connect with Susie Larson: Website: https://www.susielarson.com Instagram: https://www.instagram.com/susielarsonauthor Radio Show: https://www.susielarson.com/susielarsonlive Connect with Lisa:Website: https://www.lisawhittle.comSubstack: https://letsbeclear.substack.comYouTube: https://www.youtube.com/@lisawhittleofficialInstagram: https://www.instagram.com/lisawhittleFacebook: https://www.facebook.com/lisawhittleofficial
AT Parenting Survival Podcast: Parenting | Child Anxiety | Child OCD | Kids & Family
In this episode, I talk with Psychiatric Mental Health Nurse Practitioner Chyllia Dixon about the emotional impact of growing up with a chronic illness and the unique mental health challenges children and families can face along the way.Drawing from both her professional experience and her own childhood experience with Juvenile Myositis, Chyllia shares insight into what chronically ill kids may be carrying emotionally, the importance of helping children stay connected to the present moment, and ways parents can support their child's mental health while navigating an ongoing medical condition.We also talk about Chyllia's children's book, Ellie and the Oh (Ellie the Elephant), which encourages children to slow down and be present in the moment. All profits from the book are donated to the CureJM Foundation to help fund research and bring hope to children living with Juvenile Myositis.Learn more about Chyllia at Hazelwood Mental Health and learn more about the CureJM Foundation at CureJM.org.***This podcast episode is sponsored by NOCD. NOCD provides online OCD therapy in the US, UK, Australia and Canada. To schedule your free 15 minute consultation to see if NOCD is a right fit for you and your child, go tohttps://go.treatmyocd.com/at_parentingThis podcast is for informational purposes only and should not be used to replace the guidance of a qualified professional.Parents, do you need more support?
In 1986, 23 survivors, physicians, nurses, attorneys, and community organizers gathered in Albuquerque, New Mexico, for a weekend that would permanently change the language and politics of cancer. Working late into the night, they debated not only strategy, but identity, ultimately declaring that from the moment of diagnosis, every person with cancer is a survivor.This episode traces the social and political forces that gave birth to the modern cancer survivorship movement. As advances in early detection and treatment allowed more people to live beyond cancer, survivors discovered that finishing treatment did not mean returning to normal life. Many faced employment discrimination, loss of insurance, social stigma, infertility, chronic health complications, and a healthcare system that viewed survival as the end of care rather than the beginning of a new chapter.Against the backdrop of the civil rights, disability rights, and community health movements of the 1960s and 1970s, physicians, activists, and survivors challenged medicine's paternalistic culture and demanded a greater voice in decisions affecting their lives. Central to this story are physician and survivor Dr. Fitzhugh Mullan, whose landmark 1985 essay, Seasons of Survival, redefined survivorship as a lifelong continuum, and community organizer Katherine Logan, whose determination united dozens of grassroots organizations into what became the National Coalition for Cancer Survivorship.The coalition's founding established principles that continue to shape oncology today. Survivors were no longer defined solely by disease or treatment outcomes. Their experiences became evidence. Their voices became essential to clinical research, healthcare policy, and patient advocacy. By redefining survivorship as an ongoing experience rather than a destination, the movement challenged medicine to recognize the lasting physical, emotional, financial, and social consequences of cancer.The ideas forged during that weekend in Albuquerque became the foundation of modern cancer survivorship. Nearly 40 years later, the coalition's defining principle, that survivorship begins at diagnosis, continues to influence cancer care, research, policy, and the way millions of people understand life after cancer.RELATED LINKSNational Coalition for Cancer SurvivorshipNational Cancer Institute Office of Cancer SurvivorshipThe New England Journal of MedicineAmericans with Disabilities Act (ADA.gov)Library of Congress | Civil Rights History ProjectWhite Coat, Clenched Fist by Fitzhugh MullanFEEDBACKLike this episode? Rate and review The Cancer Mavericks: A History of Survivorship on your favorite podcast platform. For more information, visit CancerMavericks.com. Please send any questions to podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
For most highly sensitive people, advocating for a physical need feels like being a burden. Jen Fitzpatrick, a celiac advocate and founder of the Confident Celiac Community, joins Alissa to talk about the years she spent staying quiet about her own needs and the shift that finally changed it.The tension is one a lot of HSPs with a chronic condition know well. Speaking up is what keeps you safe, but every people pleasing instinct says stay quiet instead. Alissa and Jen unpack why that instinct runs so deep and how to move through it anyway.Pulling from Jen's diagnosis story, a study abroad trip where she watched everyone else eat what she couldn't, and Alissa's own experience navigating her daughter's recent diagnosis, the conversation moves through shame, community and self worth.In this episode, you'll learn:Why highly sensitive people are especially likely to stay quiet about a chronic health needJen's own story of cross contamination scares and learning to advocate for herself after years of people pleasingThe simple swap that changed everything for Jen, saying thank you instead of sorryWhy choosing ten seconds of social discomfort is almost always worth it over days of physical painHow finding community turned a hard diagnosis into something less isolating for both Jen and AlissaFollow Jen:Website: https://www.thenomadicfitzpatricks.com/ Instagram: https://www.instagram.com/thenomadicfitz Self-Love Toolkit: https://the-nomadic-fitzpatricks-gluten-free.teachable.com/p/celiac-self-love-toolkit-1059254 Uncover your sneaky internal belief that's stopping you from being your most confident self TAKE The FREE Shadow Archetype Quiz NOWLearn my 6-step process for managing & neutralizing your triggers as an HSP in our FREE UN-Botherable Workshop!Join the Not Too Sensitive Club
"You actually have a choice here... feed your mind proof that it is possible to recover." -Miguel Bautista Miguel Bautista is the founder of CFS Recovery, a global program designed to help individuals overcome chronic fatigue syndrome (CFS), long Covid, fibromyalgia, and other conditions linked to nervous system dysregulation. After facing severe illness at the age of 19 and navigating a lengthy search for solutions, Miguel developed an innovative recovery methodology that focuses on regulating the nervous system. His approach has empowered thousands to reclaim their health. Miguel actively shares clear, actionable strategies with a growing online audience, contributing significantly to the field of alternative health solutions for chronic conditions. Episode Summary: In today's episode of "Oh, My Health... There Is Hope," host Jana Short welcomes Miguel Bautista, founder of CFS Recovery, to discuss his transformative journey from debilitating illness to health and vitality. Miguel candidly shares his personal experience with chronic fatigue syndrome and his pioneering approach to recovery based on nervous system regulation. His story is a testament to human resilience and the power of strategic healing interventions. Throughout their conversation, Miguel and Jana delve into the challenges of living with chronic conditions like fibromyalgia and long COVID. The podcast sheds light on common symptoms and the failure of conventional medical paths to address them effectively. Miguel elaborates on how mindset shifts, understanding the body's protective mechanisms, and removing external stressors are crucial. With his CFS Recovery program, Miguel has helped countless people step back into life, highlighting the importance of individualized care and the potential for full recovery. Key Takeaways: Personal Experience and Innovation: Miguel Bautista's personal battle with severe illness led to the creation of a practical recovery strategy focusing on nervous system regulation. Mind-Body Connection: Understanding the brain's role in physical symptoms can redefine how chronic conditions are addressed, creating new pathways for recovery. Lifestyle and Personality Influences: High-performance lifestyles, often marked by perfectionism and overthinking, are explored as potential contributors to chronic symptoms. Recovery Strategy: A methodical, staged approach to intervention, customized to individual needs, can significantly enhance recovery prospects, according to the insights shared by Miguel. Education and Empowerment: Miguel emphasizes the importance of informing and empowering individuals to recognize and harness their innate healing capabilities. Resources: https://cfsrecovery.com/ https://www.instagram.com/cfsrecovery https://www.linkedin.com/in/miguel-bautista-85a188a9/ https://www.youtube.com/@cfsrecovery FREE Nervous System Health Assessment, which helps you understand where you are in the recovery process and what steps to focus on next. You can take it here: https://cfsrecovery.co/myhealth FREE subscription to the Best Holistic Life Magazine, one of the fastest-growing independent magazines centered around holistic living: https://bestholisticlife.info/BestHolisticLifeMagazine. Get in touch with Jana and listen to more podcasts: https://www.janashort.com/ Show Music 'Hold On' by Amy Gerhartz: https://www.amygerhartz.com/music. Grab your FREE gift today: https://bestholisticlife.info/BestHolisticLifeMagazine Connect with Jana Short: https://www.janashort.com/contact/
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