Podcasts about salty cysters

Join Gunnar and Tiffany in celebrating the life of Lea Faraone as told by Lea's voice! Tiffany and Gunnar remember Lea, one half of the Salty Cysters and the pulse of the Breathe In trio, in this very special episode that goes back and pulls clips from past episodes. Laugh, cry, but most importantly share in the love that was Lea's life. We will miss Lea very much! We love you, Lea!

KCBS Radio afternoon anchor and A2A founder Jeff Bell spotlights Tiffany Rich, who has lived with Cystic Fibrosis since birth. In 2016 she underwent a double lung transplant after being on the donor list for 973 days. Tiffany is the co-founder of Salty Cysters, an organization that creates awareness of CF and unites the CF Community. She also co hosts a weekly CF podcast called Breathe In.

KCBS Radio afternoon anchor and A2A founder Jeff Bell spotlights Tiffany Rich, who has lived with Cystic Fibrosis since birth. In 2016 she underwent a double lung transplant after being on the donor list for 973 days. Tiffany is the co-founder of Salty Cysters, an organization that creates awareness of CF and unites the CF Community. She also co hosts a weekly CF podcast called Breathe In.

With the trio reunited, Gunnar and the Salty Cysters take on some Taboo Topics in the CF World. Tiffany recounts a powerful moment before her transplant surgery when she was faced with coming to grips with a life changing surgery or immediate demise, while the Gunnar and Lea talk about some fears associated with Death. The group talks about sexual health and how it is a normal part of life for everyone (people with CF included!), and although there can be some physical barriers (feeding tubes, and IV's included), nothing is insurmountable with a little imagination. The conversation turns to genetic ethics, comparing illness between patients, and do PFT machines harbor bacteria? Listen discretion is advised for this episode.

Filling in for Gunnar, Somer Love returns to the podcast and joins the Salty Cysters in a chat about social media in the cystic fibrosis community. They dive into why they use social media, how it has helped CF communication and friendships, and the positive influences it has brought to all three of them. Whether you are an active member on social media, looking to start a personal or CF account, or you’re a bystander on social media & you are just now looking into branching out & making connections with your fellow CFers, this episode offers something for everyone & gives great advice on how to use social media to make it the best & most positive experience for you!

With Gunnar away on business this week the Salty Cysters aka Lea & Tiff take over the Breathe in Podcast. They chat about the struggles of being a female with cystic fibrosis. CF poses challenges for any individual fighting the illness, however being a female with CF brings its own set of unique challenges. Whether it's that bottomless pit of a purse, that sexy CF belly, needing to eat a TON of food especially on a first date & the not so glamorous need to use the bathroom, or not being so lady like & spitting up a big glob of mucus in public, the Salty Cysters tackle it all. Lea & Tiff touch on all these issues, how they deal with them, & so much more on this weeks episode!

On this weeks podcast we have the pleasure of interviewing one of Rima’s amazing salty cysters. What may you ask is a salty cyster, well, these special nicknames are used between friends in the Cystic Fibrosis community, referring to another person who has CF. Rima and Tiffany are not just friends, or salty cysters but also have experienced very similar journeys recently. Receiving a double lung transplant and moving through the motions of post transplant life. Tiff get’s real about her journey with Cystic Fibrosis and getting a transplant. We discuss organ donation, which is very close to Tiffany’s heart. Check out this episode and learn more about this amazing woman who is so full of life and passion. You can find her on YouTube at Tiffany Rich. IG @tiffrich22 @Saltycysters and listen to her own podcast at @breathe_in_pod

The CF cough. It's very distinct, it's very violent and it certainly sounds a little gross. The trio take a question from a listener, who asks how they deal with the cough in public. Coughing in public is a bit of a faux pas, especially during cold and flu season (for anyone), so Gunnar and the Salty Cysters talk about how they navigate some of the looks and comments directed towards them. They each share some positive and negative anecdotes (most of which have to do with nasty altercations with passengers on airplane). The group announces an upcoming series for next week!

The trio jumps into a Buy or Sell episode. Gunnar, Lea and Tiff debate common topics in the CF and chronic illness worlds. Are PICC lines or Ports better? Why do Tiffany and Lea love the VogMask, while Gunnar hates it? Is Chest PT better than the Vest? Reusable neb-cups or disposable neb-cups? Listen to Gunnar and the Salty Cysters duke it out over some of these topics, and more!

Cystic Fibrosis advocate Tiffany Rich joins Heather in the studio to talk about her own journey with the disorder to the point of receiving a double-lung transplant, and how she turned her experience into a way of raising awareness and donations through her many online ventures.

In response to Gunnar's blog about friendships between people living with cystic fibrosis the trio discusses some of the pros and cons of such relationships. Tiffany and Lea dive into the start of the Salty Cysters, how they met and why they've decided to share their stories on social media. Gunnar, on the other hand, discusses his role as an advocate for people living with CF and shares why having met so many people with CF has helped shape his personality. While there are so many things to be gained in a CF friendship, the group warns that there is a potential for some negatives, including the guilt in seeing a friend get sick.

Gunnar, Tiffany and Lea discuss dating in the face of cystic fibrosis. CF can certainly complicate things when it comes to social activities and meeting someone new. The everyday person may not be comfortable with things that people with CF need to do on a daily basis, like treatments, medications and taking tablets. The trio also discusses dating apps, dating in college and creating relationships with old friends. Ultimately Gunnar and the Salty Cysters agree that dating with CF can be a challenge, but it is not one that is impossible!

A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cystic fibrosis face and the people who face them.

Julia and I invited the Salty Cysters to join the program this week to talk about the kind of friendship that can be created between two people living with CF. Tiffany, a recent double lung transplant recipient, lives in California, while Lea (who has already been on the podcast once before) lives in Baltimore. Lea mentions that a few years ago she was struggling and wanted to talk to someone who understood everything that people with CF go through - Tiff was that person! And now today they have a recognizable social media brand, the Salty Cysters, spreading awareness and raising money for the fight against CF. Of note: while they do mention the possibility of one day meeting in person, that is not something that I can personally advocate for. Cross-Infection guidelines are in place to keep people with cystic fibrosis safe from different strains of bacteria

Lea Faraone, 26 with cystic fibrosis, joins Gunnar and Julia and on the Making it Matter podcast. She talks about her experiences in clinical trials, working as a nurse, thoughts on CF life expectancy and her work with the Salty Cysters, a social media platform used to spread awareness about cystic fibrosis.