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What if an algorithm could be your doctor? Living with Type 1 diabetes usually means making a lot of medical decisions on your own, sometimes daily. In this episode of ‘Fixed That For You’, you’ll hear about a problem millions of sick people face daily. It’s the story of Dana Lewis, a young woman who got tired of managing her disease, and decided to replace biology with data by creating an artificial pancreas. The results? Life changing. 'Fixed That For You' is an original podcast from Segment. For more on the series go to fixedthatforyou.com. In this episode, Dana talks about the Open Artificial Pancreas System project — here’s where you can read more about #OpenAPS. Want to learn more about what continuous glucose monitoring is or how it works? Take a look at the CGM made by Dexcom. Additionally, please visit the American Diabetes Association to learn more about how to manage diabetes. Build something of your own with a Raspberry Pi. Lastly, check out Nightscout, the visualization app Dana mentioned in this episode.
Scott Leibrand loves Dana Lewis (episode 63) and together they built Dana her very own artificial pancreas. This episode isn't a true part 2, it is more a different perspective on the story of OpenAPS then the one you heard in ep 63. In the end, I got the feeling that if this guy loves you... there is nothing that he wouldn't do. In episode 63 of the JBP I talk with Dana and get her perspective on their journey. Show Notes Check out the all new MyOmniPod.com, like OmniPod on Facebook, follow them on Twitter and download their all new app for iOS or Android. *** OpenAPS means basic overnight closed loop APS technology is more widely available to anyone with compatible medical devices who is willing to build their own system. Find out more at OpenAPS.org The JBP is now available on Google Play! Subscribe to the podcast on iTunes today! My type 1 diabetes parenting blog Arden's Day Listen to the Juicebox Podcast online Read my award winning memoir: Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad Follow Scott on Social Media @ArdensDay @JuiceboxPodcast Disclaimer - Nothing you hear on the Juicebox Podcast or read on Arden's Day is intended as medical advice. You should always consult a physician before making changes to your health plan.
“A Roomba ate my pancreas!” It sounds like the plot of a weird sci-fi comedy. But in Dana Lewis’s life, this is just a normal day. Lewis is one of the first people in America to create her own mechanical pancreas in an attempt to better manage her type 1 diabetes. (Her robotic vacuum cleaner keeps slurping up and choking on the system’s many cables.) Some of Lewis's artificial pancreas devices. (Kenny Malone) Type 1 diabetes is, at its simplest, a broken pancreas. Sometimes called juvenile diabetes, the autoimmune disease disables the pancreas from producing insulin, a key component for controlling blood sugar. People with Type 1 diabetes often have to use glucose monitors and insulin pumps to allow their bodies to function. For years, the Holy Grail of diabetes management has been the so-called artificial pancreas, a system that can measure blood glucose levels and automatically give the appropriate insulin dosage. And while a handful of companies are close to getting the technology to market, tech-savvy patients have grown impatient. Dana Lewis and her husband Scott Leibrand devised a system to “hack” the usual methods of diabetes management, which they found tiresome for a normal, active person trying to live their life. Their Open Artificial Pancreas System (OpenAPS) rigged Dana’s glucose monitor and insulin pump to automatically understand shifts in blood sugar and adjust insulin rates accordingly. Dana Lewis and her husband, Scott Leibrand. (Kenny Malone) An early version of the couple’s system caught the attention of the Food and Drug Administration – the government agency that regulates medical devices. The FDA strongly encouraged Scott and Dana to keep their invention to themselves and not distribute do-it-yourself pancreases or the code running them. But last year the couple decided that OpenAPS was working so well for Dana, that they had a moral obligation to share it with the type 1 diabetes community. In February of 2015 they open-sourced the documents for the artificial pancreas and now, nearly 50 people have been built their own versions. In this episode of Only Human, we look at how Dana and Scott hacked together one of the first artificial pancreas systems and the complicated ethical questions that come with sharing the technology. Have you ever hacked your own medical advice? Tell us in the comments below.
Scott sits with fellow Type 1 Diabetic Dana M. Lewis about the Open Artificial Pancreas System that she and her husband Scott Leibrand created. As other commercial entities race to "close the loop" for diabetics, how did two regular folks control diabetes with off-the-shelf parts? Dana demystifies the technology behind this software-managed diabetes solution.
Worried about alarms she couldn't hear, Dana Lewis and Scott Leibrand "hacked" into the programming of her CGM. What they learned led them to a do-it-yourself closed loop artificial pancreas system that Dana has been using since December 2014 (and which she wore during their wedding in August). We find out how they did it, why they make their methods public and what it may mean for the future of diabetes management. In the Community Connection segment, we hear about LADA (Latent Autoimmune Diabetes in Adults).