HC&U

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HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homoc…

Ben and Lindsey Massengale


    • Oct 12, 2021 LATEST EPISODE
    • infrequent NEW EPISODES
    • 42m AVG DURATION
    • 20 EPISODES

    5 from 18 ratings Listeners of HC&U that love the show mention: great.



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    Latest episodes from HC&U

    4. Interview with Ashley Longthorn

    Play Episode Listen Later Oct 12, 2021 46:49


    In the twentieth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Ashley Longthorn, an HCU patient in the UK. We discuss dealing with HCU and the importance of staying on diet. We wrap up with Lindsey's Low-Pro Bites. We discuss million dollar spaghetti and rate it on our random fruit or veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! HCU Network America on Twitter Check out HCU Network America!

    4. Danae Bartke Returns

    Play Episode Listen Later Aug 21, 2021 67:11


    In this episode, we interview Danae Bartke, the executive director of HCU Network America. We discuss dealing with HCU and school and navigating the Covid-19 pandemic with HCU. We wrap up with Lindsey's Low-Pro Bites. We discuss a fantastic enchilada bake and rate it on our random fruit or veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! HCU Network America on Twitter Check out HCU Network America!

    Interview with Dr. Anthony Quinn

    Play Episode Listen Later Aug 19, 2020 39:51


    In the eighteenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Dr. Anthony Quinn, the CEO of Aeglea Biotherapeutics. We discuss research and treatments concerning HCU. We wrap up with Lindsey’s Low-Pro Bites. We discuss loaded cauliflower rice and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Aeglea on Twitter Aeglea’s Website Email us at hcupodcast@gmail.com! Check out HCU Network America!

    Interview with Raenette Franco

    Play Episode Listen Later Apr 27, 2020 37:16


    In the seventeenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Raenette Franco. We discuss the ins and outs of insurance coverage and HCU. We wrap up with Lindsey’s Low-Pro Bites. We discuss crispy potato tacos and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America! Baja Sauce Copycat Recipe!

    Interview with Pam Penrose

    Play Episode Listen Later Mar 22, 2020 44:22


    In the sixteenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Pam Penrose. We discuss her journey in being diagnosed and dealing with HCU. We wrap up with Lindsey’s Low-Pro Bites. We discuss vegetarian Zuppe Toscana and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 15

    Play Episode Listen Later Jun 20, 2019 51:29


    In the fifteenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Breun and Jeremy Smeltser. We discuss their journey in raising kids who have been diagnosed with HCU. We wrap up with Lindsey’s Low-Pro Bites. We discuss shredded carrot BBQ and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   Please share the podcast and give us a 5 star rating and review! Pulled BBQ Carrots HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 14

    Play Episode Listen Later May 5, 2019 48:38


    In the fourteenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Amber Gibson, recipe coordinator for HCU Network America. We discuss low protein recipes and managing a low protein diet for adults and kids. We wrap up with Lindsey’s Low-Pro Bites. We discuss eggplant vegetale (insert Ben’s bad Italian accent here)and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! Cauliflower Curry HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 13

    Play Episode Listen Later Mar 16, 2019 31:03


    In the thirteenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Frank Glavin (CEO) and Jeanie Price (Executive Director of Clinical Operations) of Orphan Technologies. We discuss OT-58 and the natural history study. We wrap up with Lindsey’s Low-Pro Bites. We discuss cauliflower curry and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! Cauliflower Curry HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 12

    Play Episode Listen Later Feb 5, 2019 41:14


    In the twelfth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Amanda Nethery, an HCU patient, and she shares her journey with HCU. We wrap up with Lindsey’s Low-Pro Bites. We discuss cauliflower gnocchi and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 11

    Play Episode Listen Later Jan 8, 2019 37:23


    In the eleventh episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we talk about New Year’s resolutions concerning HCU. We also talk about surgery prep with HCU, and eating at restaurants on a protein budget. Yes, a protein budget. Ben coined that phrase. We wrap up with Lindsey’s Low-Pro Bites. We discuss cauliflower crust pizza and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review!   HC&U on Facebook   Find Our Low Protein Ideas on Instagram!   HC&U on Twitter   HC&U Blog   Email us at hcupodcast@gmail.com!   Check out HCU Network America!

    HC&U Episode 10

    Play Episode Listen Later Dec 4, 2018 38:14


    In the tenth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we interview Ben’s sister, Breanna (Phil)! She talks about following a low protein diet for a week. We wrap up with Lindsey’s Low-Pro Bites. We discuss Lindsey’s veggie casserole and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 9

    Play Episode Listen Later Nov 20, 2018 44:31


    In the ninth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we discuss emergency preparedness, famous vegetarians, and vegetarian Thanksgiving probs! We wrap up with Lindsey’s Low-Pro Bites. We discuss Lindsey’s veggie casserole and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review!   HC&U on Facebook   Find Our Low Protein Ideas on Instagram!   HC&U on Twitter   HC&U Blog   Email us at hcupodcast@gmail.com!   Check out HCU Network America!

    HC&U Episode 8

    Play Episode Listen Later Oct 28, 2018 65:27


    In the eighth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we continue to discuss HCU Awareness Month! We also have a very special guest, pediatrician, biochemical geneticist, and all around HCU rockstar, Dr. Harvey Levy of Boston Children’s Hospital! We wrap up with Lindsey’s Low-Pro Bites. We discuss buffalo cauliflower dip and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America! Inspiration for some of Dr. Levy’s interview questions!

    HC&U Episode 7

    Play Episode Listen Later Oct 9, 2018 37:42


    In the seventh episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we discuss HCU Awareness Month! We talk about the timeline of homocystinuria, the calendar of awareness “challenges,” and ALL THE FALL THINGS! We wrap up with Lindsey’s Low-Pro Bites. We discuss not so chicken pot pie and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 6

    Play Episode Listen Later Sep 25, 2018 43:14


    In the sixth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we also have a set of three guests! Ben’s parents share what it was like raising a child with HCU. Also, Ben’s sister makes an appearance to save any complaining that may have occurred otherwise. We wrap up with Lindsey’s Low-Pro Bites. We discuss low protein gyros and rate them on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! Please share the podcast and give us a 5 star rating and review! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 5

    Play Episode Listen Later Sep 11, 2018 39:58


    In the fifth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we also have our third guest, a very dapper fellow who shares his experience with HCU. Hint hint, it’s Ben!Danae Bartke! We wrap up with Lindsey’s Low-Pro Bites. We discuss zucchini boats and rate them on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America! Free HCU Bear!

    HC&U Episode 4

    Play Episode Listen Later Aug 26, 2018 38:56


    In the fourth episode of HC&U, we have our regular “Tell Me Something Good” segment where we share several bits of good news regarding the podcast! In this episode, we also have our second guest, Danae Bartke! She discusses experiencing pregnancy while having homocystinuria. We wrap up with Lindsey’s Low-Pro Bites. We discuss stuffed bell peppers and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** Want a FREE T-shirt? We are asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, these shirts are pretty sweet. Oh, and did we mention? They are FREE!   HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America! Free HCU Bear!

    HC&U Episode 3

    Play Episode Listen Later Aug 11, 2018 31:00


    In the third episode of HC&U, we discuss the first ever HCU Conference which was held in Westford, Massachusetts. It was called Taking the Lead for HCU, and it was a blast! In this episode, we also talk about traveling with homocystinuria and provide some tips for managing medication while traveling. We wrap up with Lindsey’s Low-Pro Bites. We discuss jackfruit “pulled pork” sandwiches and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** We are also asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, we are working on some swag for people who share their good news and are chosen for a shoutout on the podcast! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

    HC&U Episode 2

    Play Episode Listen Later Jul 29, 2018 47:14


    In the second episode of HC&U, we discuss low protein food providers. These providers include Cambrooke Therapeutics, Taste Connections, PKU Perspectives, Loprofin, Lil’s Dietary Specialty Shop, and Mevalia. In this episode, we also welcome our first guest, Sarah Chamberlin! We discuss the Medical Nutrition Equity Act with Sarah and tell listeners how to get involved! Visit howmuchphe.org to see unrounded protein content of various food. We wrap up with Lindsey’s Low-Pro Bites. We discuss Lindsey’s Italian bake and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** We are also asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! Plus, we are working on some swag for people who share their good news and are chosen for a shoutout on the podcast! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Check out HCU Network America!

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    HC&U Episode 1

    Play Episode Listen Later Jul 14, 2018 12:50


    In the pilot episode of HC&U, we give a basic overview of the condition. We talk about the four main systems that HCU can affect, and we also mention some less serious symptoms. Then we discussed the treatment methods for HCU. We talk about vitamin B6, low protein diets, and cystadane/betain powder. We wrap up with Lindsey’s Low-Pro Bites. We discuss carrot “notdogs,” and rate them on our random veggie scale! We hope you enjoy! We are also asking listeners to tell us something good regarding your experience with HCU! This could be anything from getting your levels down, finding a new recipe, or finding a better metabolic formula! Reach out to us using one of the methods listed below! We would love to hear from you! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HC&U Blog Email us at hcupodcast@gmail.com! Carrot Notdogs Recipe Check out our blog to find the low protein version of the relish! HCU Article Check out HCU Network America!

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