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Diumenge 11 de maig se celebra la 10a edició de la cursa solidària Corre per ells, que recapta fons per a la Fundació PKU i altres trastorns metabòlics hereditaris per tal de poder tirar endavant en desenvolupament del biosensor, un aplicatiu que desenvolupa el Laboratori de Malalties Metabòliques de l'Hospital Sant Joan de Déu de Barcelona i permetrà mesurar els nivells de proteïna en sang dels pacients de manera immediata des de casa. Ens ho ha explicat la Candela, la sitgetana que a punt de complir 12 anys, conviu amb aquest trastorn de la PKU des que va néixer. Cursa sisè de primària a l'Utrillo i es planteja ser criminòloga, practica gimnàstica rítmica al Club Rítmica Sitges i ens ha detallat el que representa tenir PKU i quins condicionants li suposa en l'alimentació diària. I sobretot ens ha animat a inscriure'ns a la cursa per a la que han preparat un munt de sorpreses i sortejos per als participants. L'entrada 10 anys de la cursa Corre per ells i gairebé 12 de la Candela, la sitgetana amb PKU ha aparegut primer a Radio Maricel.
Susana Ritchey takes us on her fascinating journey from pseudoscience believer to registered dietitian, revealing how deeply she once embraced "clean eating" myths before science education transformed her perspective. The transition wasn't immediate—it took years of graduate school and clinical experience to recognize that obsessing over "toxins" and food additives distracts from addressing the fundamental nutrition problems most Americans face.Working primarily with children in genetics clinics, Susana offers practical wisdom for parents struggling with picky eaters. She introduces the division of responsibility framework: parents decide when, where, and what kids eat, while children decide if and how much. This approach reduces mealtime battles while establishing healthy boundaries. Her actionable tips include offering regular meals without screens, providing at least three food groups per meal with one guaranteed "safe" food, and recognizing that every exposure to a new food counts as progress—even if kids don't immediately eat it.The conversation takes a fascinating turn when Susanna discusses her work with patients who have rare metabolic disorders like PKU, where protein must be severely restricted—sometimes to as little as 4 grams daily. These conditions highlight how nutrition advice can never be universal and why evidence-based approaches matter. She also addresses food affordability, offering practical suggestions like frozen produce to reduce waste and simple meal combinations that provide balanced nutrition without complexity.For anyone overwhelmed by contradictory nutrition information, Susana's closing advice resonates powerfully: abandon perfectionism. The "all-or-nothing" approach inevitably leads to "nothing" because perfection is unsustainable. Instead, focus on small, consistent improvements that gradually enhance your diet without the pressure of flawless execution. Connect with Susana on social media @Susana.Ritchey.RD where she continues fighting nutrition misinformation with evidence-based content. Support the showYou can find us on social media here:Rob TiktokRob InstagramLiam TiktokLiam Instagram
This week on The Genetics Podcast, Patrick is joined by Michelle Werner, CEO at Alltrna and CEO/Partner at Flagship Pioneering. They discuss Alltrna's promising findings from its first preclinical study on using tRNA to rescue stop codon disease, the strategic use of basket trials, and more!Show Notes: 0:00 Intro to The Genetics Podcast01:00 Welcome to Michelle02:13 Overview of Alltrna's aims and the advantages of using tRNA to tackle stop codon disease5:27 Using basket trials for genetic diseases08:03 Highlights from Alltrna's first preclinical study using tRNA to restore protein production to clinically meaningful levels in methylmalonic acidemia (MMA) and phenylketonuria (PKU)14:02 Considerations in delivery techniques and Alltrna's use of nanoparticles19:22 Stability of tRNA and how engineered tRNAs are recognized in vivo 23:12 Strategic design of basket trials and diseases that are covered26:16 Adaptive trial design in the rare genetic disease setting28:15 Michelle's experience with regulatory organizations on new approaches to trial design32:14 Insights from spearheading Alltrna and Flagship Pioneering's innovative approaches 37:26 Michelle's lessons from working in big pharma versus a small biotech start-up40:50 Closing remarks and a call for collaboratorsFind out more Alltrna (https://www.alltrna.com/)Please consider rating and reviewing us on your chosen podcast listening platform! https://drive.google.com/file/d/1Bp2_wVNSzntTs_zuoizU8bX1dvao4jfj/view?usp=share_link
Lou Cooperhouse is recognized as a leading global authority in food business innovation and technology commercialization, with extensive leadership experiences throughout his 40-year career in the food industry. He is a results-driven professional, and has led cross-functional teams in a wide array of industry settings that include: multinational corporations, foodservice and retail operations, new business startups, mid-sized and family-run companies, university entrepreneurship and innovation centers, and industry trade associations. With his deep and diverse understanding of the food industry, Lou has spoken at hundreds of conferences throughout his career, specializing in food trends, disruptive technologies, and global best practices in business innovation and incubation. A summary of Lou's career experiences in entrepreneurship were featured as the cover story in Food Technology Magazine, titled Oceans of Innovation in December 2023. Most recently, Lou served as CEO of Food Spectrum, LLC, where he provided a broad array of strategic consulting and business management expertise to the food industry. Areas of specialization and focus included: corporate development and strategic planning; organizational leadership and team building; merger and acquisition assessment; corporate partnering and sales development; new product ideation, innovation and incubation; product and process development; technology assessment and commercialization; quality assurance and food safety systems; plant and process design and engineering; and operational performance and metrics. Lou also served as a founder and the Executive Director of the Rutgers University Food Innovation Center (FIC), and led this program for approximately 15 years. Lou created a new global model for food industry economic development, business attraction and retention, and industry cluster creation. The Rutgers FIC subsequently became internationally recognized for its economic development impacts, and recognized as the “Business Incubator of the Year” by the International Business Innovation Association (InBIA), and as a nationwide model and an “Agricultural Innovation Center Demonstration Program” by the USDA. In this role, Lou also testified at the US Congress on best practices in business incubation and industry cluster formation, and also served as President of the New Jersey Business Incubation Network; Executive Director and President of the New Jersey Food Processors Association; and on the Board of Directors of the International Business Innovation Association. Earlier in his career, he also served on the Board and a member of the Executive Committee of the Refrigerated Foods Association; on the board of the United Fresh Produce Association; on the Board of Managers of the NJ Agricultural Experiment Station at Rutgers University; and on the Editorial Advisory Board of Produce Processing Magazine. Lou is also a member of the Explorers Club, a prestigious international organization dedicated to promoting the exploration of land, sea, air and space, and to inspire new generations to pursue discovery and conservation. He's also a member of the Society of Fellows at the Culinary Institute of America. Previously, Lou served as President & COO of F&S Produce, a leading regional supplier of fresh-cut produce and value-added refrigerated foods, providing leadership to over 500 employees, located at two facilities with over 125,000 sf operations. Prior to this, he served as Co-Founder, President and CEO of MenuDirect Corporation, a unique health, wellness, and nutrition company, which provided meal solutions for individuals with celiac disease, diabetes, PKU and dysphagia. Earlier in his career, Lou held positions of increasing responsibility at Campbell's Soup, ConAgra, Nestlé-funded Culinary Brands, Idle Wild Farms, and Grand Union Supermarkets in areas of business development, product development, quality assurance, and operations.
Back in May, we spoke to Dr Colm Calligan, the father of Chloe Calligan, a 9 year old girl with a rare genetic disorder called PKU. There is currently no cure and despite recommendations, Ireland's health authority has still not made a new drug available. Colm is still campaigning for this drug and he joins Sarah.
Latest Utah Avalanche Center forecast, local high school student Claire Oliver discusses PKU Awareness Month, how the metabolic disorder affects her life, and her work to help others with PKU, football coach concerns documented years before Wasatch High investigation, Lt. Alan Siddoway with Summit County SAR discusses the SAR sales tax passing in the November General Election and winter recreation safety, Utah Olympic Foundation Events Coordinator Josh Korn and Senior Sports Manager and Head Competition Biathlon Coach Gerrit Garberich discuss local biathlon events this month and how to watch local athletes, Summit County secures $500K grant for Ure Ranch purchase, and community-based Park City Singers set for two holiday concerts.
Guang Qu, Co-Founder of NGGT Corporation is focused on developing gene therapy products using dual functional vector strategies. Guang highlights the importance of distinguishing between recessive and dominant mutations in rare diseases and explains how their approach differs from other gene therapy approaches. The two leading indications caused by a gene mutation that NGGT is working on are Bietti's Crystalline Dystrophy (BCD), a rare ocular disease, and phenylketonuria (PKU), a metabolic disease. Guang explains, "For our strategies and our product development strategies, I think we are leveraging our experience in the gene therapy field. Later, I will talk more about myself, Dr. Lixin Jiang, and our team. The other thing we are leveraging is our fully integrated team in gene therapy product development, which involves R&D, research and development, CGMP manufacturers, from tox development and clinical regulatory functions and the medical teams. So with all of the teams we built up in the last couple of years, we're in very good positions in developing our gene therapy products." "So, of the two currently leading indications, one is involved in ocular disease, what we call the BCD, Bietti's Crystalline Dystrophy. This disease is caused by a gene mutation. The gene mutation causes lipid metabolic problems. The particular gene is called the CYP4V2 gene. The mutation directly leads to the lipid metabolic process being interrupted. Therefore, lipids are precipitated in the different ocular cells, such as the cornea and the retina. That's most of the disease cell layers affected." #AAV #GeneEditing #GeneTherapy #PKU #BCD Download the transcript here
Guang Qu, Co-Founder of NGGT Corporation is focused on developing gene therapy products using dual functional vector strategies. Guang highlights the importance of distinguishing between recessive and dominant mutations in rare diseases and explains how their approach differs from other gene therapy approaches. The two leading indications caused by a gene mutation that NGGT is working on are Bietti's Crystalline Dystrophy (BCD), a rare ocular disease, and phenylketonuria (PKU), a metabolic disease. Guang explains, "For our strategies and our product development strategies, I think we are leveraging our experience in the gene therapy field. Later, I will talk more about myself, Dr. Lixin Jiang, and our team. The other thing we are leveraging is our fully integrated team in gene therapy product development, which involves R&D, research and development, CGMP manufacturers, from tox development and clinical regulatory functions and the medical teams. So with all of the teams we built up in the last couple of years, we're in very good positions in developing our gene therapy products." "So, of the two currently leading indications, one is involved in ocular disease, what we call the BCD, Bietti's Crystalline Dystrophy. This disease is caused by a gene mutation. The gene mutation causes lipid metabolic problems. The particular gene is called the CYP4V2 gene. The mutation directly leads to the lipid metabolic process being interrupted. Therefore, lipids are precipitated in the different ocular cells, such as the cornea and the retina. That's most of the disease cell layers affected." #AAV #GeneEditing #GeneTherapy #PKU #BCD Listen to the podcast here
Dr Maja Risager Nielsen and Dr François Feillet discuss pregnancy in PKU and two different papers looking at the outcomes in pregnancies with and without BH4 treatment. The impact of phenylalanine levels during pregnancy on birth weight and later development in children born to women with phenylketonuria Maja Risager Nielsen, et al https://doi.org/10.1002/jimd.12600 Efficacy and safety of sapropterin before and during pregnancy: Final analysis of the Kuvan® Adult Maternal Paediatric European Registry (KAMPER) maternal and Phenylketonuria Developmental Outcomes and Safety (PKUDOS) PKU-MOMs sub-registries François Feillet, et al https://doi.org/10.1002/jimd.12724
En aquesta entrega parlem sobre les colònies de les classes de 3r i 4t a Guardiola de Berguedà, la sortida d'i4 a Can Foix, el taller d'insectes (monstruosos) a les classes de 1r, la trobada dels representants de les cooperatives escolars a Ràdio Maricel i de la cursa PKU que es celebra el proper diumenge 26 de maig als jardins del Terramar. L'entrada Les notícies de l’Utrillo ha aparegut primer a Radio Maricel.
PKU-provet är ett blodprov för nyföddhetsscreening som analyserar 26 sällsynta medfödda sjukdomar, och där syftet med provet är att upptäcka dessa tidigt för att även kunna sätta in tidig behandling, något som är är viktig för prognosen. Vi har bjudit in Dr Rolf Zetterström, barnöverläkare och chef för PKU-laboratoriet på Karolinska universitetslaboratorium i Stockholm till ett viktigt faktaavsnitt med frågor som:Vad står PKU för? Varför är det viktigt att vi erbjuder PKU?Hur länge har provet funnits? Görs det i alla länder?Vad/vilka sjukdomar ingår?Viktigt att ta provet inom en viss tid efter födseln?Hur avgörs vad som ska ingå i testet?Hur ser det ut kring hur testet sparas (biobanker, varför, hur länge och vad används det till)?Hur många nyfödda har en sjukdom som hittas med PKU-provet?Hur går provtagning till? Hur går analysen till?Hur lång tid tar analysen?Hur och när svaras resultat ut om nåt avviker? Vilken sjukdom är vanligast/mest förekommande? Nästa steg vid avvikelser?TUNE IN för ett viktigt avsnitt?Avsnittet är i samarbete med MAM och HORMONGUIDEN Hosted on Acast. See acast.com/privacy for more information.
Diumenge 26 de maig serà el gran dia i com ha estat en totes les edicions prèvies el tret de sortida serà a les 10h des dels Jardins de Terramar. Cinc quilòmetres per realitzar, si es vol en família, corrent, caminant, amb gos, cotxet o patinet al llarg del Passeig de la Ribera amb un únic objectiu, recaptar diners per ajudar a la investigació en favor del biosensor que ha de facilitar els controls de proteïna en sang dels pacients d'aquest trastorn metabòlic que és la PKU o fenilcetonúria i que a Sitges pateix la Candela. Els 14€ que val l'inscripció van íntegres a la Fundació PKU i al projecte del biosensor de l'Hospital de Sant Joan de Déu que podria veure's endarrerir per la manca d'inversió. L'entrada Torna la cursa solidària ‘Corre per ells’ i en la 9a edició demana assistència massiva ha aparegut primer a Radio Maricel.
The podcast returns to the subject of gene therapy, with Julien Baruteau, Nicola Brunetti-Pierri, and Paul Gissen discussing the potential of liver directed therapies with an emphasis on Wilson disease, Crigler-Najjar syndrome and PKU. Liver-directed gene therapy for inherited metabolic diseases Julien Baruteau, Nicola Brunetti-Pierri, Paul Gissen https://doi.org/10.1002/jimd.12709
In February, Synlogic cut 90 percent of its workforce as it ended a pivotal study of its lead experimental therapy to treat the rare, metabolic condition phenylketonuria. The decision came in response to results of an internal review that indicated the trial was unlikely to meet its primary endpoint. Synlogic, which had been developing a new class of therapies using synthetic biology, is now weighing its strategic options. We spoke to Neal Sondheimer, outgoing head of clinical for Synlogic and adjunct associate professor of pediatrics and molecular genetics for The Hospital for Sick Children in Toronto, about PKU, the treatment options for people with the condition, and the consequences of the surprising results from the Synlogic study.
Please visit answersincme.com/DWQ860 to participate, download slides and supporting materials, complete the post test, and obtain credit. In this activity, an expert in genetics discusses effective communication and treatment strategies for patients with phenylketonuria (PKU), including a patient's perspective. Upon completion of this activity, participants should be better able to: Recognize the challenges adult patients with PKU face that impact quality of life; Discuss the impact of PKU on executive functioning in adult patients with PKU; and Practice effective patient-centered strategies to optimize care for adults with PKU.
We speak with Dan Ellmer, who was diagnosed with the rare inherited metabolic disorder phenylketonuria (#PKU) as a child. He shares his remarkable story of living with this condition that causes intellectual disability if undiagnosed. Dan explains what PKU is, how it's screened for at birth in some countries, why early diagnosis is critical, and how the required life-long low protein diet keeps symptoms at bay. We discuss the devastating effects of untreated PKU, including its impact on cognitive ability and quality of life. Dan also elaborates on the challenges of affording expensive PKU supplements and restricted food options. He stresses the importance of raising global PKU awareness so patients outside the US and UK can access vital treatment. This riveting episode covers the symptoms, diagnosis and daily realities of living with this lesser known disorder that can profoundly alter one's life trajectory. A must-listen for rare disease advocacy! Visit Dan's Blog: https://thetruthaboutlifewithpku.home.blog/ #PKU #phenylketonuria #raredisease #advocacy #awareness #podcast
Dr Malak Alghamdi unravels the mystery of a 32-year-old woman with a history of recurrent miscarriage and early neonatal death with congenital anomalies. Classical phenylketonuria presenting as maternal PKU syndrome in the offspring of an intellectually normal woman Malak Ali Alghamdi, et al https://doi.org/10.1002/jmd2.12384
Blood spots are integral to disease monitoring in PKU, however, there are concerns regarding correlation between capillary and plasma levels and discrepancies arising based on sampling quality and storage. Dr Rachel Carling explains how a volumetric blood collection device presents a cost effective way to improve consistency and reduce rejected samples. Investigation of the relationship between phenylalanine in venous plasma and capillary blood using volumetric blood collection devices Rachel S. Carling, et al https://doi.org/10.1002/jmd2.12398
You may have seen some scary headlines lately about aspartame and cancer risk – but what is the real story? Should you discard your sugar-free syrup or jello? Dump out your diet sodas? Stop chewing sugar-free gum? In this episode we'll look at the science behind this headline, discovering the facts and dispelling the myths so that you can make informed choices about your diet.Shownotes: yournutritionprofs.com Do you have a nutrition question you'd like us to answer? Let us know! Contact Us on our website or any of the following ways:yournutritionprofs@gmail.comYouTubeInstagram Facebook
When Yolanda Shennan fell pregnant with her first born, Hudson, she envisioned all the foods she would get to cook for him. But only days after he was born, Hudson was diagnosed with a rare genetic disorder called phenylketonuria (PKU) leaving him to lead a life on an incredibly restricted diet to survive. This week, Yolanda shares the many challenges of managing Hudson's diet and how she's raising her son to be the most resilient he can be. LINKS Check out Hudson's food journey on Instagram https://instagram.com/pku_mumma_melbourne?igshid=MzRlODBiNWFlZA==Check out MDDA Australia https://www.instagram.com/mdda_australia/For more information on Phenylketonuria and other metabolic conditions, and how to support families like Yolanda's, please go to: https://mdda.org.au/ See omnystudio.com/listener for privacy information.
View the Show Notes Page for This Episode Become a Member to Receive Exclusive Content Sign Up to Receive Peter's Weekly Newsletter Wendy Chung is a board-certified clinical and molecular geneticist with more than 25 years of experience in human genetic disease research. In this episode, Wendy delves deep into the world of genetics by first exploring the historical landscape of genetics prior to decoding the human genome, contrasting it with what we know today thanks to whole genome and exome sequencing. She provides an overview of genetic testing by differentiating between various genetic tests such as direct-to-consumer, clinical, whole genome sequencing, and more. Additionally, Wendy unravels the genetic underpinnings of conditions such as PKU, breast cancer, obesity, autism, and cardiovascular disease. Finally, Wendy goes in depth on the current state and exciting potential of gene therapy while also contemplating the economic implications and ethical nature of gene editing. We discuss: Wendy's interest in genetics and work as a physician-scientist [2:45]; The genetics of phenylketonuria (PKU), a rare inherited disorder [5:15]; The evolution of genetic research: from DNA structure to whole genome sequencing [18:30]; Insights and surprises that came out of the Human Genome Project [28:30]; Overview of various types of genetic tests: direct-to-consumer, clinical, whole genome sequencing, and more [34:00]; Whole genome sequencing [39:30]; Germline mutations and the implications for older parents [45:15]; Whole exome sequencing and the importance of read depth [50:30]; Genetic testing for breast cancer [54:00]; What information does direct-to-consumer testing provide (from companies like 23andMe and Ancestry.com)? [1:01:30]; The GUARDIAN study and newborn genetic screening [1:06:30]; Treating genetic disease with gene therapy [1:18:00]; How gene therapy works, and the tragic story of Jesse Gelsinger [1:22:00]; Use cases for gene therapy, gene addition vs. gene editing, CRISPR, and more [1:28:00]; Two distinct gene editing strategies for addressing Tay-Sachs and fragile X syndrome [1:37:00]; Exploring obesity as a polygenic disease: heritability, epigenetics, and more [1:41:15]; The genetics of autism [1:48:45]; The genetics of cardiovascular disease [2:01:45]; The financial costs and economic considerations of gene therapy [2:06:15]; The ethics of gene editing [2:12:00]; The future of clinical genetics [2:21:00]; and More. Connect With Peter on Twitter, Instagram, Facebook and YouTube
Visiting the campuses of the famous Peking University and Tsinghua University is a huge summer attraction for Chinese students and their parents. As only a limited number of visitors are allowed to enter the premises of the two universities on any given day, scalpers are making big money by selling free entry tickets at high prices to eager students. 参观著名的北京大学和清华大学校园是暑期吸引中国学生和家长的一个热门旅游景点。由于这两所大学每天只允许有限数量的游客入内，黄牛们通过高价出售免费门票来赚取高额利润。The campuses have only recently reopened to the public after remaining closed for three years due to the COVID-19 pandemic. Now that visitors are being allowed in again, there is a massive rush to book the limited number of free tickets that are released by the universities for day trips. The scalpers, some of whom are former students of the two universities, have been profiting from this situation. 这两所大学的校园由于新冠疫情封闭了三年之久，最近才重新对公众开放。现在游客再次被允许入内，每天所释放的限量免费门票成为抢手货。其中一些黄牛甚至是这两所大学的校友，他们从中牟利。Peking University has acted against 46 former students who raked in around 1.5 million yuan ($210,000) from 139 students who wanted to visit the campus, said a notice issued by the university recently. Each of the 139 students was charged 10,800 yuan for a "study tour" that included visits to the university. 北京大学日前发布公告称，该校已对46名前学生采取了行动，他们从139名希望参观校园的学生那里敛财约150万元人民币（约合21万美元）。这139名学生每人被收取了10800元的“参观学习”费用，其中包括参观北大。The university, which allows former students to book tickets for up to three companions to enter the campus during the summer vacation, has suspended the 46 former students' access to booking tickets either for themselves or others. 这所大学允许毕业生在暑假期间为最多三名同伴预订进入校园的门票，但已暂停了这46名毕业生为自己或他人预订门票的权限。On July 8, both PKU and Tsinghua reopened their campuses to the public, and visitors need to book appointments in advance. While PKU did not specify how many visitors are being allowed daily, Tsinghua University said it is letting in 4,000 visitors a day. 7月8日，北京大学和清华大学重新向公众开放校园，但参观者需要提前预约。北京大学没有说明每天允许多少游客参观，而清华大学则表示每天允许4000名游客参观。Experts said the strong interest among parents and students to visit the two universities means the campuses would be swamped with people if there are no restrictions, yet allowing in only those who have booked slots in advance is helping unscrupulous elements to exploit the situation. 专家表示，家长和学生对参观两所大学的浓厚兴趣意味着，如果不加限制，两所大学的校园将人满为患，但只允许提前预订时段的人进入，这就助长了不法分子的钻空子行为。On travel portal Ctrip, a five-day summer camp to PKU and Tsinghua costs around 5,000 yuan. The trip includes meeting students from the two universities, taking pictures with them, learning about the admission process from them and also attending lectures given by professors. 在旅游门户网站携程网上，为期五天的北京大学和清华大学夏令营费用约为5000元。行程包括与两所大学的学生见面、合影留念、向他们了解入学流程，以及聆听教授的讲座。However, there is no way of actually verifying if the students and professors are really from the universities. Moreover, the trip does not promise entry into the university campuses. It only talks about visits to the "outside" of the universities. 但是，无法实际核实学生和教授是否真的来自大学。此外，这次旅行并不承诺进入大学校园。它只谈及对大学“外部”的访问。According to Nanfang Metropolis Daily, a woman surnamed Li from Hangzhou said that she signed her child up for a five-day study tour to the universities, costing 4,980 yuan, but her child did not even get to enter the two universities, and had to be satisfied with photographs taken at the gates. 据《南方都市报》报道，杭州一位李姓女士说，她给孩子报了五天的大学游学团，花了4980元，但孩子连两所大学的大门都没进，只能在校门口拍照。Apart from the so-called study tours, simply entering the two universities is now costing a lot of money. Netizens have complained on different social media platforms about the difficulties they have faced in obtaining a free slot to visit the two universities, while others claimed that they got the tickets for a price. 除了所谓的游学团，现在仅仅进入这两所大学就要花很多钱。网民在不同的社交媒体平台上抱怨，他们很难获得免费参观两所大学的名额，而其他人则声称，他们是花钱买到门票的。According to Beijing Business Today, scalpers have been selling tickets for a day tour of the campuses at 300 to 500 yuan. People wanting to visit have to share their ID number and phone number with the scalpers, who claim they can get the entry tickets as soon as they are released. 据《北京商报》报道，黄牛以300至500元的价格出售校园一日游门票。想去参观的人必须把身份证号和电话号码告诉黄牛，黄牛声称只要一放出门票就能拿到。There have been instances where people have paid the money to the scalpers, but have not got the tickets in return. 曾有一些人向黄牛支付了钱，却没有换来门票。A 19-year-old student surnamed Han said he paid a scalper 20 yuan to enter Tsinghua, and sent his personal information as advised. However, when he tried to enter the campus, the security guard told him the ticket system did not have his information. 一位19岁的韩姓学生说，他向黄牛支付了20元钱，并按照建议发送了个人信息，以进入清华校门。然而，当他试图进入校园时，保安告诉他，售票系统没有他的信息。When he tried to ask for his money back, the scalper blocked his number. 当他试图要回自己的钱时，黄牛拉黑了他的号码。Sun Zhifeng, a lawyer at Chance Bridge Law Firm, said it is difficult to crack down on such scalpers, as many are anonymous online entities. 北京卓纬律师事务所的律师孙志峰表示，很难打击此类黄牛，因为许多黄牛都是匿名的网络实体。However, if a lot of money is involved, they can be tracked for committing fraud and carrying out illegal business operations, Sun said.不过，孙志峰说，如果涉及大量资金，就可以追查他们的诈骗和非法经营行为。Profit英/ˈprɒfɪt/美/ˈprɑːfɪt/v.赢利，获利Fraud英/frɔːd/ 美/frɔːd/n.欺诈，骗局，诡计Reporter: Zou ShuoIntern : Zang Tianyi
In this episode, Patrick is joined by Dr. Mike Severino, CEO of Tessera Therapeutics and CEO-Partner of Flagship Pioneering. Join us as Mike walks us through Tessera's approach to treating genetic diseases by rewriting bases, exons, or even whole genes with a novel approach called Gene Writing. 0:00 Intro 1:00 What prompted you to join Flagship Pioneering? 3:32 How is Flagship able to innovate and invent novel therapies in ways that Big Pharma companies may find difficult? 5:00 Introduction to gene writing and the role of Tessera Therapeutics 8:22 The current limitations and challenges of gene writing 10:22 Gene knockouts vs gene writing – which is more useful for genetic therapies? 12:30 Reasons why the liver the most commonly targeted organ for gene therapies 19:00 Lipid Nanoparticles and their role in gene writing 22:45 How do you guide mobile genetic elements to write genes in the intended location? 25:20 Development of gene writing technology since 2018 28:15 The implications of gene writing for diseases like PKU, Alpha-1 antitrypsin deficiency, sickle cell disease, and cancer 34:00 Next steps on the way to clinical trials 36:46 Using genomics and computational biology to guide measurable outcomes in drug discovery and development 40:15 Using gene writing to address rare developmental diseases 43:32 Closing remarks
In this episode, Patrick is joined by Dr. Mike Severino, CEO of Tessera Therapeutics and CEO-Partner of Flagship Pioneering. Join us as Mike walks us through Tessera's approach to treating genetic diseases by rewriting bases, exons, or even whole genes with a novel approach called Gene Writing. 0:00 Intro 1:00 What prompted you to join Flagship Pioneering? 3:32 How is Flagship able to innovate and invent novel therapies in ways that Big Pharma companies may find difficult? 5:00 Introduction to gene writing and the role of Tessera Therapeutics 8:22 The current limitations and challenges of gene writing 10:22 Gene knockouts vs gene writing – which is more useful for genetic therapies? 12:30 Reasons why the liver the most commonly targeted organ for gene therapies 19:00 Lipid Nanoparticles and their role in gene writing 22:45 How do you guide mobile genetic elements to write genes in the intended location? 25:20 Development of gene writing technology since 2018 28:15 The implications of gene writing for diseases like PKU, Alpha-1 antitrypsin deficiency, sickle cell disease, and cancer 34:00 Next steps on the way to clinical trials 36:46 Using genomics and computational biology to guide measurable outcomes in drug discovery and development 40:15 Using gene writing to address rare developmental diseases 43:32 Closing remarks
Gareth McGlynn, our host, sat down with David Roberts , Director of Modular Fabrication at KHS&S in Southern California. Discussed on this episode of The Preconstruction Podcast: - David Roberts' background and position at KHS&S - Spek by KHS&S: What is PBU and PKU? - Design process when it comes to Design Assist Digital Fabrication - The value to the client and capabilities of Modular Fabrication - The collaboration needed to carry out PBU or PKU - And much much more For further information or to ask David any questions please email him at david.roberts@khsswest.com I hope you enjoyed this episode and please subscribe to be kept up to date with the latest episodes.
What happened over the past few days in Russia? What does this mean for the future of Putin and the war in Ukraine? To discuss, I recorded today a show with Kamil Galeev, a PKU classmate of mine formerly of the Wilson Center. Outtro music: Repo Man, Coup d'etat https://www.youtube.com/watch?v=CJjuVzZQj0U Learn more about your ad choices. Visit megaphone.fm/adchoices
What happened over the past few days in Russia? What does this mean for the future of Putin and the war in Ukraine? To discuss, I recorded today a show with Kamil Galeev, a PKU classmate of mine formerly of the Wilson Center. Outtro music: Repo Man, Coup d'etat https://www.youtube.com/watch?v=CJjuVzZQj0U Learn more about your ad choices. Visit megaphone.fm/adchoices
This episode features Brittany Holmes who is a nurse practitioner in the Metabolism Program in the Genetics & Genomics division at Boston Children's Hospital. She is an experienced provider who specializes in caring for patients with inborn errors of metabolism. She serves on the Board of Directors for the National PKU Alliance, the Newborn Screening Translational Research Network (NBSTRN) Steering Committee, and the Rare Disease Clinical Research Network (RDCRN) PHEEFREE Consortium External Advisory Board. She received her Bachelor of Science at Merrimack College, and Master of Science in Nursing from Simmons University in Boston, and is beginning the Doctor of Nursing Practice program at UMass Boston this September. In addition to expanding expertise in the clinical care and research for those with a variety of inborn errors of metabolism, she also has a particular interest in Phenylketonuria (PKU) and newborn screening. Her interest in working with inborn errors of metabolism began at a young age, due to her personal experience as a patient with PKU. After years of speaking at conferences from the patient perspective and receiving care from leading clinicians/researchers in metabolism from the patient side, this ultimately led to seeking a career as a healthcare professional in the specialty. She enjoys being able to offer both the provider and patient perspective, and has a passion for caring for patients in this specialty. Interview Questions: Could you tell our listeners how you got involved in newborn screening? May is the PKU awareness month. What is the purpose of this rare disease awareness campaign. How can our listeners get involved this month? In the year 2023, it is the 60th anniversary of the newborn screening, and PKU was the first condition to be screened in newborns in 1951. A PKU screening test is a blood test given to newborns one to three days after birth. If babies are identified with PKU, they can benefit from early treatment. However, in the year 2013, there was a study that indicated that there is individual patient, social, and economic factors prevent some adult PKU patients in the US from accessing treatment. Ten years later, do you see any changes? There is a policy in development or in place to address this such as The Medical Nutrition Equity Act (MNEA). Can you tell us listener about this policy? In addition to medical nutrition therapy for PKU patients, what are other new types of treatment and gene therapy for PKU patients? Could you share the latest research effort and clinical trial in this area? You are on the Rare Disease Clinical Research Network (RDCRN) PHEEFREE Consortium External Advisory Board. What is the mission and activities of this network? What resources are available to patients and families with rare disease? Could you share your process for proving medical care to patients with PKU? As an adult with PKU, any advice for new parents who just received a newborn screening positive result for PKU? What do you think prospective parents should know about newborn screening research in screening, diagnosis, and treatment for PKU? You are currently on the Steering Committee at NBSTRN, what efforts do you see NBSTRN can support in NBS Research and your efforts? What does NBS research mean to you?
Phenylketonuria (or PKU, for short) is a complex condition to treat, yet nutrition takes center stage. If you need a refresher on the nutrition recommendations, we have you covered. Sara and Lyndel cover the basics you need to know to successfully feed your next patient with PKU. Consider this your PKU crash course. Show Notes: How do health care providers diagnose phenylketonuria (PKU)? NIH website. Updated December 1, 2016. Accessed October 12, 2022: https://bit.ly/2USHOti MacDonald A, van Wegberg AMJ, Ahring K, et al. PKU dietary handbook to accompany PKU guidelines. Orphanet Journal of Rare Diseases. 2020;15:171. Schuck PF, Malgarin F, Cararo JH, et al. Phenylketonuria pathophysiology: on the role of metabolic alterations. Aging and Disease. 2015;6(5):390-399.
Gerald Vockley, MD, PhD, Head of the Division of Medical Genetics at UPMC Children's Hospital of Pittsburgh, provides a brief history on newborn screening. Newborn screening began with phenylketonuria (PKU). In the 1960s, Dr. Robert Guthrie showed the value of developing a NBS program to screen for PKU since it was a genetic disease that can lead to permanent damage to the body if not treated early. Since babies with PKU appear normal at birth, NBS is important to establish a proper treatment/diet plan as soon as possible.
ONCE UPON A GENE - EPISODE 174 A Rare Collection - To the Moon and Back There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme. EPISODE HIGHLIGHTS Nicole Wright After many seizures, McCall was diagnosed with Dravet Syndrome. Since her diagnosis, her symptoms, seizures and developmental delays have worsened and multiple hospitalizations led to long recoveries. We have grieved McCall's initial diagnosis and we try to allow ourselves room to grieve the life we had envisioned for McCall. She can't enjoy simple things like school and gatherings. We will love and celebrate her no matter what, but we can see pieces of her fade without return. We will never stop fighting to get those pieces back through therapy and eventual life-changing treatments we know will come. Kevin Alexander Until I produced a documentary called My PKU Life, I was completely cut off from the PKU and rare disease communities. I was isolated. I knew no one like me and few people understood the challenges I faced. When I engaged with the community, a new world opened up to me. Life was different than before, and I knew it would never be the same after. It's been incredible to meet so many parents in our community. It's humbling to hear how they discovered my film after receiving their child's diagnosis and how it gave them hope. I still get messages like that and one of the best parts is seeing the love that parents have for their children with a rare disease— they sacrifice every day. Some have left their careers behind, created amazing organizations, held fundraisers and raised incredible amounts of money for research. On behalf of all of us, the children and adults living with a rare disease, thank you. Rhonda Thorington I never fully comprehended my capacity to love until I had children of my own. One of my three children was four years old when she got sick and was diagnosed with mixed connective tissue. Raya loves to dance and has taken lessons since she could walk. When the disease impacted her mobility, she required high doses of steroids and one of the side effects was a 25 pound weight gain. She had greater mobility, but she was unrecognizable. Dance costumes that were ordered in the fall didn't fit by the time they arrived for the spring recital, and she had missed months of dance classes because she was too sick to go. I thought this disease robbed my daughter of her love for dancing, but I couldn't be more wrong, thanks to everyone else who loves Raya too. Rachel Heilmann It is often said that grief is caused because you love someone so much, it hurts when they leave. When Rory was born, I knew she was different, exceptional, that her life would change our lives forever. I didn't know why or how deep that transformation would be. When she died from NARS1 disease, the gaping wound left by her worldly exit was indescribable. Charlie had to understand death at six. I had to understand it at 38, and we are both still learning how to live in love with the same fearlessness as we had before Rory died. The love and memories between Charlie and I continue to flood the emptiness left by the grief of Rory's death. For these precious moments, I'm so grateful, to the moon and back. CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/
De regreso, con nuevos conflictos, con ciclos cerrados y otros en proceso, llega el primer Podcast de 2023, con un invitado que llegó para regalarme tantos aprendizajes poderosos. Gracias Marcel por acompañarme, guiarme y dejarme pensando en un montón de cosas. Eres de esas personas que una siempre quiere tener cerca. A Marcel Armonía & Bienestar puedes encontrarlo en: Instagram: https://www.instagram.com/marcelmfarinas Correo: marcelbussin@gmail.com ***** La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar. Desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Y no olvides suscribirte y valorar nuestro Podcast ★★★★★
It's our year-end holiday remix, and at the center of this podcast episode is what's likely at the center of many traditional holiday celebrations: food. Whether its Ghanaian groundnut stew or Nigerian jollof rice for Kwanzaa, the traditional “seven fishes” served in many Italian-American homes on Christmas Eve, latkes for Chanukah, pork pie for boxing day, or buckwheat soba noodles served at midnight on New Year's Eve in many Japanese homes, traditional foods and holidays seem to go hand in hand. But what happens if none of the aforementioned foods - or any other traditional holiday foods from across the world - don't fit with your disease state or diagnosed metabolic condition? In this episode, we revisit the Killian family: Nemours associate and mom-of-two Lindsey and her husband, Tom, who, in November 2021, visited us on the podcast to outline the struggles and joys of being a PKU family. We'll look back on their story, the 2022 formula storage that affected them and get an update on how the family is today now that TJ is a kindergartener. Carol Vassar, producer
Why are so many of the snacks and drinks offered as safe for consumption in the United States wholly banned in other parts of the world? How bad could our favorite foodstuffs actually be? Welcome to Skeptical Sunday, a special edition of The Jordan Harbinger Show where Jordan and fact-checker, comedian, and podcast host David C. Smalley break down a topic that you may have never thought about, open things up, and debunk common misconceptions. Editor's note: A previous version of this show's notes erroneously declared that aspartame was banned in the EU. We are in the process of correcting this and apologize for the error. Full show notes and resources can be found here: jordanharbinger.com/766 On This Week's Skeptical Sunday, We Discuss: Coffee Mate's liquid version is banned in Europe due to the presence of trans fats (found in hydrogenated vegetable oils) that can lead to heart disease. While the US requires warning labels for these foods, they are still available to consumers. Mexican and most European cola brands use cane sugar, while American Coke uses high fructose corn syrup, which is regulated in the EU. High fructose corn syrup has been linked to health issues such as insulin resistance, diabetes, and cardiovascular illnesses. Aspartame is a low-calorie sweetener found in many US foods and drinks, including diet sodas and gum. It contains phenylalanine, which can cause problems for people with a rare genetic condition called PKU. While evidence is still being gathered, there have been concerns about the potential health effects of certain artificial food dyes, particularly their potential to cause hyperactivity in children. In the European Union, these dyes are banned from use in food products, while they are widely used in the United States. The EU has banned the use of growth hormones in cows due to concerns about potential health risks to humans and animals, as well as potential negative impacts on the environment. In the United States, however, they're commonly used in the dairy and meat industries to promote faster growth and increase milk production in cows. Connect with Jordan on Twitter, Instagram, and YouTube. If you have something you'd like us to tackle here on Skeptical Sunday, drop Jordan a line at jordan@jordanharbinger.com and let him know! Connect with David at his website, Twitter, Instagram, TikTok, and YouTube, and make sure to check out The David C. Smalley Podcast here or wherever you enjoy listening to fine podcasts! If you like to get out of your house and catch...
Meagan is joined today by the amazing Eyla Cuenca! Eyla's many years of experience as a birth worker have led her to specialize in holistic birth guidance. She helps women process past birth experiences and prepare for the most optimal future birth experiences. Eyla has so much wisdom and such a beautiful way with words. You will definitely want to take notes and save her advice!“There is no right way to do things. It's simply what is in alignment with you. That's what matters at the end of the day.”Additional LinksEyla's WebsiteBebo Mia's WebinarHow to VBAC: The Ultimate Prep Course for ParentsFull Transcript under Episode DetailsFull TranscriptMeagan: Turn your love of babies and bellies into cash. If you love babies and bellies and want to provide care and support to families, then Bebo Mia's webinar is the right place for you. Get answers to those burning questions like how to be the voice you wish you had at your birth and how babies and families can be supported by doulas. Learn all about the different kinds of doulas. You can work in fertility, pregnancy, birth, postpartum, or just enjoy working with those squishy babies. Supporting families by becoming a birth worker, aka doula, is perhaps an option that hasn't even crossed your mind. That's why we want you to join this webinar. You can have great earning potential while doing something you love. Bebo Mia is the one-stop shop for education, community, and mentorship. Reserve your spot today at bebomia.com/freewebinar.Meagan: Hello, hello. This is Meagan with The VBAC Link and we have an episode today to bring to you all about preparing, processing, and so many other things. This is something that a lot of people will write us about on our Instagram, our email box, “How do I process my previous births? How do I process what I'm going into and how do I prepare for birth when I've never even given birth?”Now, I want to just note on that right there that just because you've had a Cesarean does not mean you haven't given birth. That is just simply not true, so if that is in your headspace, I want you to crinkle it all up and throw it away. You have given birth. You just haven't maybe labored because I know for me, I hadn't labored. I hadn't progressed. I hadn't dilated, but that left me questioning, “Could I dilate?” especially when I had a provider telling me that I couldn't. So I'm excited today to bring Eyla on. She is going to talk all about the wonderful things that she does. Eyla is a holistic birth guide doula, trainer, childbirth educator, lactation counselor, health freedom advocate, and mother. That is a lot just right there. Her work is dedicated to offering guidance that supports women and men in the process that is a return to the deepest knowing about birth, individual sovereignty, and the body's innate intelligence. Wow. A conscious birth building a conscious world.Does that just give you chills? Because that just gave me chills. Eyla, thank you so much for being here with all of us today and taking the time out of your very busy life where you do a whole bunch of things. In fact, you even mentioned in the beginning that you homeschool. What do you not do? What do you not do? Seriously, thank you so much. Normally, we read a review, but we are actually just going to get right into it. I want to know more about what led you into doing what you do today, all of the many things. Eyla: Yeah, thank you so much for having me. I'm super excited to be here. So what led me to this? I actually was a birth photographer for many years before I started holding space as a birth doula and before I became a childbirth educator. I've been in the birth space for quite a long time. What I started noticing as a photographer, kind of a fly on the wall, was how different births were unfolding for women in different environments and how her birth team would also influence the energy feel of the birth. I started taking note of all of these factors. I was a part of a few transfers meaning from a birth center to a hospital. I was a part of a woman's journey when she would decide not to go to a hospital and just work with a midwife and do a home birth. I started noticing all of these nuances and I really wanted to get more involved and offer guidance. So I've done various trainings for myself and carved out what is now this path that I am on of offering support as a holistic birth guide. Holistic really means all-encompassing. Whatever journey you're on, whatever part of your journey you're on, I'm going to meet you there. There is no right way to do things and that's really what I've learned over the last decade is that there is no right or wrong. It's simply what is in alignment with you. That's what matters at the end of the day. Meagan: I love that. I love that. It's so important to touch on that because I feel like in today's society, we put so much emphasis on right, wrong, failure, and success. Eyla: Right. Meagan: It's so hard to feel that you failed. It's so hard to even be labeled, even labeled on a medical record that you failed. Eyla: Yeah. Meagan: Or that you didn't do this. I know that for me, when I was reviewing my previous Cesarean op reports, it triggered me and I knew. I knew. I was a doula at that point. I knew I didn't fail, but seeing the word fail was so hard. So I love that you're like, “I meet you wherever you are. You didn't fail.” Yeah. I just love that. I love that so much. Eyla: Yeah, the litmus test for a successful birth if we want to look at it, if we want to use the word successful is how you feel postpartum. Even if a woman has had an “ideal birth” and there is a lot of sludge that she is working through postpartum, that's indicative to me that there was something about the birth that was not resonant. Meagan: Right. Elya: You know? That, for me, is like I said, the litmus test. What is happening to you postpartum? Are you having triggers when you are looking at your report? Are you feeling like you are still ruminating about something that occurred or something that someone said? There is always something to process. Even for women who have had an epidural, everything went smoothly, and no bumps in the road, no obvious bumps in the road, she might be having a lot of anxiety postpartum and she's not really sure why because everything went fine. Baby is alive and healthy. She is alive and healthy.When you start to dig in, you realize that she maybe didn't do things a certain way that she thought she wanted to. Maybe there was someone in the room who was not treating her well, but she just ignored it and betrayed herself, and told herself that it went fine. Meagan: Yes. Right there. Eyla: Our postpartum state is really indicative of how things shook out during the birth. At face value, it might not seem like anything was wrong, but when we start to dig, there might be things that we just need to unbraid. It's not right or wrong, but there is an unbraiding process that is an opportunity.Meagan: Yeah, for sure. I love that you pointed that out because sometimes I will have clients tell me their past birth experience and I'm like, “Oh, it sounds so amazing.” Your “ideal” birth and they are like, “Yeah, but this.” Right? And I'm like, “Okay.” It might not have even been something that happened, but it was something someone said. It's so crazy how we look back like yeah. That totally did happen every what that you would want it to happen, but like you said, there may be something that didn't happen the exact way they wanted or someone said something. We hold onto those things. I know for me, I held onto something. No, my second birth didn't go the way I wanted it. It didn't, but at the same time, I was getting some things in that birth that I did desire. But something that was said to me held on for a long time. Sometimes, it's those little things and it's hard to recognize them. How can we go, especially if we had this “birth”, but how can we go back and realize what it may be that is triggering us or bringing us into this space of confusion of why we are feeling this way?Eyla: I think it's first important to recognize that we really can't do this in a vacuum. If a woman is trying to process her birth on her own, it's difficult. It's helpful to have someone that can reflect back on what you are saying, that can just reflect back to you what they are hearing. And also being witnessed by someone is really helpful to express. It helps us in expressing. We feel safe in expressing ourselves, so you want to find someone that you feel safe talking to whether it's a good friend. Maybe they don't know anything about birth or it's someone who assists with birth processing. That's something that I do. I do one on one sessions. Even if it's a birth from 15 years ago, I have clients who birthed 15 years ago and they are like, “I'm just now realizing that things didn't go down in a way that felt good for me.” So what that can look like is just walking through, “How did the labor begin?” talking about the labor and pregnancy, reflecting on the dynamic between the woman and her partner at the time, and then looking at, “When did we arrive at our birthplace? What happened? Who was there? What were the faces that you were experiencing? What were the things that were being said? What did you plan for? What went differently?”After looking at the big picture, going back and saying, “Well, let's look at what purpose and role each of those things played in our growth.” It's an alchemy process that we go through. It's like your wounds become your gifts. How do we look at everything that shook out and how do we spin that into gold? It's not negating that things were painful or that things were deeply wounding on an emotional level. We want to acknowledge that, but we want to say, “How do we alchemize that?” Otherwise, you're just circling the drain for years and years. I know women in their 60s who still talk about how horrible their birth was and how they would never do it again. It's like, “Wow. Do you really want to feel that way for the rest of your life?” That's why I tell people in preparation for birth, “Really educate yourself. It's never going to look exactly how you want it to, but you can get pretty close based on how well you prepare and how flexible you become.” Right? Because making a birth plan is not all of it. It's how flexible are you with change. Meagan: Yes. Eyla: So if you have those components, your birth is going to unfold the way that it should and you are going to be in deep acceptance. But if you just walk into it and say, “Well, I'm just going to show up at my birthplace. The midwife is going to take care of it because midwives are into natural things. They'll just do all of the natural things and I don't need to think about it,” so we kind of dig our heads in the sand. That's often when things don't go as planned and they don't turn out how you want them to. I would say that getting into space with someone who can reflect back to you what you experienced and sometimes just speaking it out loud is all you need to do. It's helpful if you know someone who understands physiological birth, so they can say, “Oh yeah. Sometimes when you get an epidural, it can slow down the baby's heart rate and that's probably why you heard a deceleration in the heart rate and that's often what can lead to a C-section.” Then for the woman, it clicks for her as, “Oh. That's what it was. There wasn't something wrong with me or the baby.” Meagan: Yes. Eyla: It was the epidural and it's okay. Now I know. And then that unlocks and she can move on. Meagan: Yeah. I think sometimes that can be hard because I've heard so many people say, “Epidural doesn't cause C-sections.” I don't want to say that is true. Epidurals don't necessarily cause C-sections, but there are things that happen sometimes after an epidural takes place. Eyla: Yeah. There are symptoms of the epidural that can cause a C-section. It's not that A + B = C, but sometimes A and B together can go to C. They can go to D. They can go into different things and you have to understand that it's a possibility always, but it doesn't necessarily mean it will cause the C-section, but it is possible. Meagan: It is possible. Yeah. Another thing that stood out to me just now is a lot of things, but another thing that you just said– we were talking about birth plans. So many of my clients and maybe you have seen this through your experience through birth, but so many of my clients want these birth plans. I'm not going to tell you that a birth plan is bad, but sometimes I feel like when we have a birth plan in place, we hold ourselves to these high expectations and we have to check this birth plan off. But when you were saying, “How flexible are you with change?” I was to encourage all of you listening whether you have had one, two, three, or however many Cesareans or maybe you are a first-time mom listening and you are wanting to learn how to avoid Cesarean and how things can pan out. If we can't be flexible in childbirth, that can be really hard on us. It can impact us because childbirth doesn't happen exactly the same way every time. Even my third kid was totally different. I love that you said, “How flexible are you with change?” Is there anything that you would suggest or any tips that you could give for learning how to be flexible? Because we want what we want. We desire what we desire. We have this vision and we want this vision to pan out exactly how we want it to. That is no shame. We are human beings, right? I go to Target. I see that shirt. I want that shirt. I'm going to do what I want to get that shirt. We go into birth and we have this birth plan and it's this path. This is what we want. We are here to get what we want. Sometimes it doesn't happen, so is there any way that you could give us any ideas of how to learn how to be flexible while also not getting all of your desires and shoving them to the side saying, “Oh, I have to be flexible because birth doesn't pan out.” does that make sense?Eyla: Totally. I think the latter like you said, “Oh, I just have to do whatever comes comes.” For me, there's a level of self-betrayal there because you're not asserting your needs which you should be. Meagan: Yes. Eyla: I don't necessarily think that polarization is helpful to go to that end of the spectrum, however, I want to say that when we want to look at how to become more flexible, there are two main components for me. One is having faith, which a lot of people don't. It's having a lot of trust and faith in this process. Meagan: It's hard. Eyla: It's really hard, but that is something that is deeply personal when it comes to having faith in every area of our lives that what is laid out is meant for us. Meagan: Mhmm. Eyla: Seeing what we call curses and blessings and gifts. That's how we have to look at things. Meagan: It's a change of mind. Eyla: It's a perspective shift. Meagan: Uh-huh. That's what I was going to say. It's a whole perspective of, “Let's look at it this way.” Elya: And it's a level of spirituality that a lot of people are resistant to for whatever reason. You know? So there's that if you're asking me which you are. The other piece of that for flexibility is looking at where our desire to control comes from. That's going to require a level of inquiry that a lot of people are uncomfortable with accessing because that does require us to look at our history. I'm not one to be stuck living in the past, however, it is helpful to look at certain experiences that we've had throughout childhood and growing up that cause us to really need control in order to feel safe. That comes from being in an unstable environment in childhood, right? Did you have a parent that required caretaking and did you have a parent who was emotionally volatile that required you as a child to be like, “Okay. I can't control how my parents are responding to me. I can't control the yelling. I can't control the physical abuse. I can't control the up and down, and schedule changes all of the time, but what I can control is this tiny little world in front of me. Maybe I organize my toys and my clothes a certain way. Maybe I eat certain foods because this is what I have control over.” That compounds and becomes a patterning in our adult life of, “Well, if I don't control the time and the place, who my OB is, the nurse that's going to be there, and the birth plan, and the this, my hair, my clothes–” we become hyper-controlling of everything because that's how we feel safe because as a child—Meagan: That was our safe space. Eyla: We could access safety. That's just one example because, for me, holding onto that birth plan so rigidly is that there is a fear that if we lose control, we're not going to be safe. Meagan: Yeah. Totally. Sometimes that's really hard to process. I have to let go of this and I'm going to be safe and create this safe space. This is not necessarily for VBAC in general. This is just preparation. You do a lot. Obviously, I just read off 10,000 caps that you wear and there are caps that you wear that we don't even know about, right? You have all of these caps, I swear, that you wear, but in addition to processing and stuff like that, preparing. Physiological birth– we talked about it. How can you prepare for that specifically? What tips would you give to really prepare for that and hone in on that? Eyla: So, yeah on the physiological level, what I invite people to do is return to what I would call indigenous ways of moving. How we've moved before, how we moved as human beings before modern society and modern design. What does that mean? It does not mean doing a specialized pregnancy yoga or pregnancy pilates program. Meagan: Dance. Eyla: It means, how did we move before we had these specific things? We were squatting often. We were bending down to garden. We were resting in a squat. We were sitting in tailor pose. We were weaving, sitting in tailor pose for two hours. Meagan: Hands and knees. Eyla: We were walking, hands and knees. We were climbing things. So if we integrate all of those natural movements which are very second nature for our body, that's the best physiological preparation for birth. There is no $5,000 program that is going to make your body. It's nothing like that. It's daily movement and resting actively. I could sit in a chair. I could slump into the couch and rest or I could rest in a squat against a wall. I could check my emails and rest. I could scroll through my phone while I'm in a squat. Resting should be active and that's going to open the pelvis. It's going to add elasticity to the perineum. It's going to make the woman's legs stronger and ready for being in what is the marathon of labor. Meagan: Yes. Eyla: So that's what I would say. We just don't move enough as a society. You don't need to be doing high-level cardio either. You don't need to go to the gym. You need to walk at least an hour every day and rest actively. That's what I would say. The other part of the preparation is a lot of the more psycho/spiritual work that I talk about. It's owning where we feel fear and say, “Okay. Well, I want to feel safe. This is my birth plan. I need it to feel safe.” Well, if you feel the need for that safety, it's because there is something about your birth environment or your birth team that doesn't feel good. So let's address that because you shouldn't have to rely on a birth plan to feel safe. You shouldn't have to rely on a birth plan. You should be able to communicate the things that you want and if you're trusting that your birth team is hearing you, then you are not going to feel so attached to that plan like, “Follow it.” Right? You're not going to be controlling. You're going to be able to surrender. So we have to look also at who is supporting us and if is this the right environment for us.Meagan: You know, that just resonated with me so much because, with my second, I wanted this VBAC. I didn't have a doula and my husband wasn't on board. I had this feeling at 36 weeks that I should change providers but then I didn't because I didn't want to hurt his feelings or I felt bad that I was leaving his care. Eyla: Oh, you were caretaking your doctor. Meagan: Yes. Yeah. I really did. I was like, “I don't want to leave him. He's been with me for two babies,” and all of these things. I went to the same place that I knew deep down, but I didn't want to accept it that it triggered me even just walking into my prenatal visits. Eyla: You went back to the scene of the crime. Meagan: Yes. I went back there and I kept going back there. I would feel it when I was there and I would feel angst. I would get more annoyed as I was waiting longer in the waiting room and I never felt like that. I am actually very calm and chill, very lax, probably too lax of a person. So all of these things were signs and things happening and then obviously, I had a repeat Cesarean and I wasn't necessarily supported during that birth. It happened and I have worked through it and processed it, but with my third, I had a provider who was super supportive. Super supportive and everyone was like, “Yeah, you are totally going to have this VBAC. Oh my gosh.” And something didn't sit right. Something did not sit right. Every time I would go in, I was like, “I don't know. I don't know. I don't know.” I ended up leaving his care, a supportive provider at 24 weeks and I changed care. Exactly like what you just explained. I knew I wanted a VBAC. I knew I wanted that. Other than that, there was nothing set in my way during my labor with my third that I was like, “I have to do this. I have to do this.” It was like I was just there and I was in full trust of my entire team in that space. I felt that that space held me and it held me tight. It held me warm and I felt all of the love and all of the support and all of the tingles along the way because truly, I mean, I don't want to give myself a cookie, but I nailed it with my birth team. Eyla: Give yourself the cookie. Meagan: It took a long time for me to find it, but having that in that space, even when it was taking longer and there was a question of, “What do we do? We've been doing this for a really long time.” Even then, it was okay. It was okay. Eyla: That's so beautiful. Meagan: And I loved that. I loved that space and I will cherish it forever. I will say that there were some things postpartum that happened that I was kind of not super loving. That's more what I hold onto interestingly enough. I hold onto that and I still talk about this. I probably still haven't processed this and I probably might be that 60-year-old in my sixties talking about–Eyla: Yeah, we'll process it one day. Just call me.Meagan: Yeah, my postpartum. I think that processing is going to come to know more, just answering the questions that I have, right? It wasn't bad. There were just some things that I was like, “What happened? What was that?” But yeah. I think what you were saying is getting that team, feeling that space where you might still have those desires of those birth preferences, but it's not even something you're focused on. You don't even question it. Eyla: No, if there is any part of you that is like, “This doesn't feel good.” If you are sitting in that waiting room and you're like, “I don't even like being in this waiting room.” It's not just because waiting rooms suck. There are some waiting rooms I've sat in where I didn't even notice I was waiting. I felt good. I felt safe. I felt at ease. I want to invite women to stop gaslighting themselves and trust their intuition. Meagan: That just gave me the chills, literally. Eyla: And just because all of your friends birthed with that doctor or that midwife and they have great Yelp reviews, it does not mean that it works for you. There is nothing wrong with you if you switch providers four times in your pregnancy until you find the right one. People spend more time shopping around for cars and test-driving cars than they do the person who is going to hold space for their birth. Meagan: Yes. Eyla: It's kind of wild, right? So I really want to invite women to do that. Spend more time noticing how your body feels when you are in certain environments and with certain people who are going to be there for your birth. It might be the most amazing doula that everyone loves and you meet her and you're like, “I am not vibing. Is there something wrong with me that I am not vibing with the best doula that everyone recommends?” No. You just don't vibe and that's fine. Meagan: Yes. Eyla: You might vibe with the doula who's only done one birth and doesn't have any reviews, but you just feel really safe with her. That's where you need to walk toward. So yeah. The birth plan is helpful only because it's an exercise in learning about what goes down at birth, but it's not because it's going to keep you safe from the unknowns, right? You need to feel safe with your team. Meagan: Absolutely. Eyla: The birth plan is not a contract. Just because you have one does not mean that everyone has to abide by the contract. It's just an opportunity for you and your partner to be like, “Oh, what's PKU? What's an epidural? What's Pitocin?” That's where you can learn about this process. But I would just invite everyone to shop around with who's going to be at your birth. Do not caretake like, “Oh, my mom really wants to be there.” It's like, “That's okay that she wants to be there, but if you have a really charged relationship with your mother and it would actually stress you out for her to be there because she's an anxious woman, she's not supposed to be there because the woman birthing is supposed to surrender and how can we surrender to birth when we are taking care of everyone's feelings?Meagan: Yes. I mean, I can relate to that so much. My mom, to this day, I don't know if she will ever forgive me. Seriously, she holds this grudge against me that I didn't love her unconditionally enough to invite her into that space, but right there just goes to show right? My mom, I love her. I love my mom. I do. She's not the person I want in my birth space. I would have been that person. I would have been that person worrying about what she would have been thinking and her worries along the way and hosting my mom. So yeah. Sometimes those things are really, really hard. Those choices are really hard to make, but creating that birth space is going to be so powerful and like you said, you can change many times. You can change. You can change during your labor. If someone comes in and they are not resonating with you and you are not feeling it and you are feeling contention, excuse them from the birth space. Ask your husband or your partner or your doula, or someone else to play the bad guy and let them go. That is okay. When I went in to go get my op reports for my second, he looked at me, laughed, and he said, “Good luck. No one's going to want you out there.” Right there. Why did I stay with a provider that treated me that way? Why didn't I follow my heart? Why didn't I follow that heart? I was feeling good about my provider with my third. I was, but something didn't feel right. I couldn't put a pointer on it, but it was. It was more like, “I think my provider is going to be restrictive in the end,” and he would have. He would have been restrictive in the end. Eyla: Wow, yeah. Isn't it amazing? That's what the classic narcissist says when you try to leave them. It's like, “Good luck out there. No one else is going to want you.” It's literally what a narcissist says to their– I don't want to say victim because no one is a victim. No one is a victim. Everyone has a choice. Even in a narcissistic relationship, the one who is “being abused” is choosing to be there. They are the ones who are choosing not to leave. It's interesting that we get into these dynamics with our medical providers. It's not just OBs. It's midwives as well. I want everyone to get very clear on the reality that just because you are working with a midwife does not mean that it's not going to be a highly controlled, potentially conventional relationship and birth. Meagan: Yeah. Yeah, I mean, there are providers out there that are going to be right for you and not right for you. I do too. I encourage you to follow your heart. Like you said, check into it. If you're in that waiting room and your heart is racing and you're feeling anxious, I don't know. You've got to tune into it. This is where I speak a lot about intuition and when Julie was with me, I swear, we preach intuition. It is hard sometimes to really dive in and figure that out, but it's important. It's really important. It's going to tell you something. It's going to tell you something. Same thing with processing birth. Tune into what's hanging there. What is hanging there and what are you talking about? For some, that's probably something. That's probably something that's triggering you. Eyla: Of course. Of course. Yeah. This is also something that I do. I lead doula training and mentorships. This is a lot of what we talk about in this mentorship is how to hold that space. It's not necessarily– some of the women that do this training, it's not even to become a birth doula, it's just learning how to hold space for a woman and offer reflection when they are going through their process or if they want to process something postpartum. In this training, I also require that the trainees do their own amount of share of processing because we can't really be holding space for a woman unless we are also in a self-actualization process. So yeah. It's just learning to tune into the body and again, not gaslight yourself, right? Meagan: Yeah. I love that. Oh, so many things. You have so many amazing things. Tell everybody where– let's see. We've talked about the course and your training. Tell everybody where they can find you and find more information about everything that you offer. Eyla: Yeah, so my website is obviously the best place to get in touch with me. It's eylacuenca.com. There's also uncoveringbirth.com and that's where you could go through the master class even if you're not pregnant, if you're a practitioner of any kind, you're a chiropractor, or a friend of yours is giving birth and you just want to understand the arc of birth. How were we birthing? How have we arrived here? I really feel that everyone should understand their own birth even if they don't plan to have kids. Understand how you came in because the way that we are born and what we experienced in our mother's womb when she was pregnant with us influences and creates the blueprint for our life. So a lot of unanswered questions that you might have about your health, about your mental/spiritual state, those are things that you can uncover in understanding birth more clearly. I also have an Instagram, so I do a lot of interaction there. I like to answer questions on Instagram. I do a lot of health advocacy on Instagram. I provide different types of forms for people who are going into hospital settings and want to make sure that they can keep their placenta, for example, and want to understand their rights to the placenta. So yeah. I offer a lot of those resources through Instagram and through my website. Meagan: I love it. Awesome and we'll make sure to have all of your information in the show notes in case you don't know how to spell Eyla Cuenca. Don't worry. It's right down there and it is not Ayla, it's Eyla if you're looking on Instagram as well. So thank you so much Eyla. It's been a pleasure. You are amazing. I can just feel, I can feel the passion coming through this Zoom. I really can. I feel like I need to come be your friend.Eyla: Please, please. Meagan: You are amazing and I'm so grateful for you and I know so many people will take so many nuggets out of this episode and they are going to apply it in their journey. Eyla: Yeah, thank you so much for having me. ClosingWould you like to be a guest on the podcast? Tell us about your experience at thevbaclink.com/share. For more information on all things VBAC including online and in-person VBAC classes, The VBAC Link blog, and Meagan's bio, head over to thevbaclink.com. Congratulations on starting your journey of learning and discovery with The VBAC Link. Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
Artificial sweeteners have been around for more than a century, but today, it seems that they're showing up almost everywhere: in snacks, sports drinks, and tons of processed foods. And just like sugar, kids are getting too much. In fact, more than one in 4 kids consumes artificial sweeteners on any given day. Although they may seem like a step up from sugar, you might be wondering, are artificial sweeteners safe for kids? In this episode, I sat down with Kimberly Gomer, a registered dietitian nutritionist with a master's in nutrition who specializes in medical nutritional therapy. She has over 25 years of experience coaching clients for health and wellness and is currently the Director of Nutrition at Body Beautiful Miami. Gomer is also a well-known media expert who has been featured in leading media outlets including CNN Health, Fox News Health, and Prevention. Kimberly talks about how to spot artificial sweeteners on labels, the surprising foods they show up in, and what research is revealing about their safety. She also talks about ways to limit artificial sweeteners and sugar in your kid's diet and dishes up healthy and creative snack ideas for kids. Welcome 2:34 Let's talk about your story! 7:47 What's the sugar problem with kids in the U.S.? 15:27 What are artificial sweeteners and how can we spot them on food labels? 17:53 What are some surprising ways they hide? 20:19 Are companies using artificial sweeteners more? 21:09 What are myths about artificial sweeteners? 25:08 Are there certain kids that should avoid them? 29:08 What are your best tips for limiting sugar and artificial sweeteners? 36:02 What are your favorite snack and treat ideas that use real food ingredients? 37:39 What should we be mindful of when it comes to artificial sweeteners around the holidays? LINKS MENTIONED IN THE SHOW Kimberly talks about the Pritikin Longevity Center. Kimberly mentions that 16.2% of children ages 10-17 have obesity. Julie mentions non-alcoholic fatty liver disease (NAFLD). Kimberly talks about Primal Kitchen ketchup. Kimberly mentions phenylketonuria (PKU). Learn more about Kimberly on BodyBeautifulMiami.com. Follow Body Beautiful Miami on Instagram. FROM OUR PARTNERS Kids Cook Real Food eCourse The Kids Cook Real Food eCourse, created by a mom of 4 and a former elementary school teacher, is designed to build connection, confidence, and creativity in the kitchen. The course includes 30 basic cooking skills, 45 videos including several bonuses, printable supply and grocery shopping lists, and kid-friendly recipes. The course is designed for all kids ages 2 to teen and has three different skill levels. More than 18,000 families have taken the course and The Wall Street Journal named it the #1 cooking class for kids. Sign up now for the Kids Cook Real Food ecourse and get a free lesson for being a “Food Issues” listener. Thrive Market Thrive Market is an online membership-based market that has the highest quality, organic, non-GMO, healthy, and sustainable products. From groceries, clean beauty, safe supplements, and non-toxic home products to ethical meat, sustainable seafood, clean wine, and more, Thrive Market is where members save an average of $32 on every order! Through Thrive Gives, every paid membership sponsors a free one for a low-income family. Join Thrive Market today and get 25% off your first order and a free gift.
Dicen que pobre es aquel que quiere todo lo que no tiene. Yo prefiero enfocarme más en agradecer por lo que tengo que por lo que me falta. ***** La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar. Desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Y no olvides suscribirte y valorar nuestro Podcast ★★★★★ --- Support this podcast: https://anchor.fm/yaniurbys-reynaldo/support
On this MADM Julie Tucker is sharing the second half of her PKU effort. I hope that you will listen and share. Sponsor: Bob Sykes Bar-B-Q BobSykes.com
On this MADM, we are continuing to bring awareness to PKU and the current critical need that PKU families have when it comes to formula. I hope that you will listen & share. Sponsor: J. Calvert Farm JCalvertFarm.com
This episode is all about inborn errors of metabolism and who better to talk to than Danielle Vice, an amazing metabolic dietitian and a special friend of mine. We have a great conversation about metabolic conditions that might pop up on the exam. This conversation is sure to make you fall in love with metabolics. And at the very least, you'll be reminded why dietitians are so incredible and important. This is what you'll learn in this episode: How to manage the diet for people with Phenylketonuria (PKU) and why dietary management is so incredibly important MNT for homocystinuria An overview of Maple Syrup Urine Disease (MSUD) A review of Urea Cycle Defects An update on galactosemia and the most recent recommendations for dietary management Metabolics is a great reminder of why dietitians take so many classes in chemistry (biochemistry, organic chemistry) and how important metabolic pathways are for metabolism. When something goes wrong, Registered Dietitians are the experts in dietary management. If you're interested in learning more about metabolics, here are some great resources to help you expand your knowledge: Metabolic University Genetic Metabolic Dietitians International And I give a big shout out to another fabulous RD who just passed the RD Exam. I love this community so much and am so honored this podcast helps so many listeners get across the finish line. Be sure to listen while I welcome this incredible RD to the RD community.
¿Cuál es tu función en la vida? ¿Cuál es nuestra misión en el mundo? Este es un episodio para que recuerdes que cada uno tiene su propio camino y el ritmo es personal. Lo estás haciendo lo mejor que puedes. Honra tu proceso. ***** La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar. Desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Y no olvides suscribirte y valorar nuestro Podcast ★★★★★ --- Support this podcast: https://anchor.fm/yaniurbys-reynaldo/support
En este episodio conocerás de primera mano cómo llegamos a los Estados Unidos. Cómo lo planificamos, cuántos días, cómo lo vivimos y lo más importante, cómo lo sentimos. ***** La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar. Desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Y no olvides suscribirte y valorar nuestro Podcast ★★★★★
The beauty industry has found new ways to bring customers back into the stores (01:10). / PKU students take portrait photos for villagers of an entire village, for free (26:32). / Is it a good idea to get back together after a breakup (39:27)? On the show: Heyang, Huang Shan & Ding Heng
A veces tenemos más proyectos de los que podemos, acumulamos más preocupaciones que soluciones, nos creamos más historias que las cosas reales que están pasando. Eso solo no te pasa a ti, nos pasa a todos. Para poder tener calma, paciencia, enfrentar las crisis familiares y solucionar los conflictos del día, necesitamos dedicarnos tiempo para cuidarnos a nosotros mismos. No hay otra fórmula. ***** La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar. Desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro www.amareselmilagro.com E-book: Mamá en calma, niños felices https://amareselmilagro.com/mamas-conscientes/ebook-amar-es-el-milagro/ Y no olvides suscribirte y valorar nuestro Podcast ★★★★★
¿Tú también eres de los que necesita tenerlo todo bajo control? ¿Qué pasa cuando las cosas no salen como tienes planeado? En este episodio te cuento cómo gestioné la ansiedad que aparece cuando no me salen las cosas cómo y cuándo quiero. ***** La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar...desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Suscríbete y valora nuestro Podcast ★★★★★
Un episodio sobre la Fenilcetonuria (PKU). ¿Qué es la PKU? ¿Qué pasa si no se detecta a tiempo? ¿Por qué mi hijo tiene PKU? ¿Cómo integramos esa nueva condición en casa? * * * * * La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar...desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Suscríbete y valora nuestro Podcast ★★★★★
En este primer episodio te cuento cómo una situación negativa, la más trascendental hasta este minuto, me hizo encontrar el propósito de mi vida. * * * * * La primera vez que pensé en lanzar un Podcast estaba segura que sería sobre maternidad, pero como el Universo lo ubica todo en su lugar, hoy me regalo y te presento un espacio en el cual podré desaprender mis creencias y reírme de las trampas de la mente. Estallar. Gritar. Sanar. Perdonar...desde la empatía y el amor, en voz alta y en tu compañía. Conflictos en el alma y en el hogar, juicios, proyecciones, relaciones de pareja, Energía Femenina, PKU, Crianza consciente y respetuosa, rabietas de niños y adultos...Compartiré todo aquello que necesite seguir practicando. Todo lo que nos permita expandir nuestra conciencia. Puedes encontrarme en: Instagram: @yanita_lamamadelucas Blog: Amar es el Milagro E-book: Mamá en calma, niños felices Suscríbete y valora nuestro Podcast ★★★★★
Breastfeeding is not easy. It's a learning experience for moms and babies, especially the first time around. Nemours associate Lindsey Killian faced more barriers than most when it came to her first-time breastfeeding experience: her son was diagnosed with the metabolic disorder PKU when he was just four days old. This required the introduction of specially blended PKU formula to his breastfeeding routine - a staple of his diet (and that of his father, Tom, who also has PKU) to this day. This makes 2022 particularly worrisome, as the Killians, and many other families in the U.S., do their best to find the formula they need amid a nationwide shortage. Carol Vassar, producer Listen to the Killian family's full PKU journey in these episodes of Champions for Children: Episode 124: What's That You're Eating? Episode 125: Becoming a PKU Family
The formula shortage crisis has been devastating for patients with rare metabolic conditions, like PKU, who depend on specialty formulas daily. We hear from patients and families impacted by the shortage, including Lillian Isabella and Sarah Chamberlin, executive director of National PKU News. But patients have struggled to access and afford these formulas for years, which come with high price tags and aren't always covered under insurance. A bill in Congress, the Medical Nutrition Equity Act, aims to change that.And ahead of Memorial Day weekend, Terry and Dr. Bob discuss three health care bills in Congress drafted to improve health care access for veterans.Hosts: Terry Wilcox, Executive Director, Patients RisingDr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public InterestKate Pecora, Field CorrespondentGuests: Sarah Chamberlin, Executive Director, National PKU News Lillian Isabella, Patient AdvocateLinks: National PKU NewsThe Effects of the Abbott Hold on the Metabolic CommunityPatients and Providers for Medical Nutrition EquityMetabolic Formula | Patient StoriesFiscal Year 2022 Veterans Affairs Major Medical Facility Authorization ActPatient Advocate Tracker ActSERVICE ACTNeed help?The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.orgHave a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?Drop us a line: podcast@patientsrising.orgThe views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.
Close your eyes and think about what you hope the first moments after your baby is born will be. You might be imagining cuddles, skin to skin contact, or little one crawling up you for their first feed. However in addition to the cuddles, there are a number of routine procedures your little one will need to go through to ensure their health. From eye drops and a PKU screening to your little one's APGAR score, and first bath there are a lot of standard practices that take place right after baby is born. So, are any of these tests and procedures optional? Can any of these procedures be delayed to ensure early moments of family bonding? And why do our little ones have so many tests right after birth? To answer these questions I welcomed back to Yoga| Birth| Babies pediatrician Dr. Tracey Agnese. She dives deep into each procedure standardly encountered (in NY) giving us the risks and benefits so that you can begin your journey as a new parent feeling informed and empowered as you navigate the right choices for your family. Support Our Sponsors: Ritual: Turn healthy habits into a ritual. For 10% off your first 3 months go to ritual.com/ybb Boober: Looking for a lactation support, birth doulas, mental health therapists, and postpartum doulas. Use the code PYC to get 10% off your first service at www.getboober.com Prenatal Yoga Center: YBB podcast listeners- join Deb for class! Take $10 off an 8 class or One Month Unlimited yoga class package with the code ybb10 Get your package here! Get the most out of each episode by checking out the show notes with links, resources and other related podcasts at: prenatalyogacenter.com Don't forget to grab your FREE guide, 5 Simple Solutions to the Most Common Pregnancy Pains HERE If you love what you've been listening to, please leave a rating and review! Yoga| Birth|Babies To connect with Deb and the PYC Community: Instagram & Facebook: @prenatalyogacenter Youtube: Prenatal Yoga Center Learn more about your ad choices. Visit megaphone.fm/adchoices
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