Podcasts about boston children

One diagnosis flipped a scientist's entire life upside down, and led her to research that's giving parents real hope.Dr. Theresa Lyons, scientist and autism mom, joins Brigitte Cutshall on Real Things Living to break down what autism actually is — a wide spectrum that can look completely different from one child to the next. She explains why autism is rooted in the nervous system, not "bad behavior," how nutrition and gut health can drive emotional outbursts and hyperactivity, and shares groundbreaking research showing autism isn't always lifelong. This is a conversation full of compassion, science, and hope for parents navigating a new diagnosis.3 Takeaways:(1) Autism is a true spectrum — from nonverbal kids with intense daily-living needs to highly verbal kids whose challenges show up mainly in social communication.(2) Behaviors like anger, hyperactivity, or meltdowns often trace back to the nervous system — infections, nutrition deficiencies, and gut health all play a role.(3) New 2023 research from Boston Children's Hospital found 37% of kids lost their autism diagnosis over time — proof that early, holistic support can change a child's trajectory.If you're a parent navigating an autism diagnosis, visit Dr. Teresa's Navigating AWEtism platform (yes — spelled A-W-E-T-I-S-M) for science-backed support, lab testing, and health coaching. https://awetism.co/work-together

In this Complex Care Journal Club podcast episode, Patricia Basualto discusses a qualitative study of service provider perspectives on access to disability services for children with neurodevelopmental disabilities in British Columbia, Canada. She describes the importance of cross-sectoral collaboration, actionable policy and program recommendations, and next steps from this work.‌ SPEAKER Patricia Basualto, MHP, PhD Candidate Assistant Professor, Physiotherapist Pontificia Universidad Católica de Chile PhD Candidate in Kinesiology (Rehabilitation) University of Calgary HOST Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital Assistant Professor of Pediatrics Harvard Medical School DATE Initial publication date: June 8, 2026. JOURNAL CLUB ARTICLE Basualto P, Senevirathna AM, Seth A, Dimitropoulos G, Zwicker JD. Improving Equitable Access to Disability Services and Support for Children With Neurodevelopmental Disabilities: Service Provider and Decision-Maker Perspectives. Child Care Health Dev. 2026 Jan;52(1):e70213. doi: 10.1111/cch.70213. PMID: 41457809; PMCID: PMC12746062. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/7wvf65c7rjcxkvvt4vjspx9v/Basualto_Final_Transcript_5-27‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Basualto P, Huth K. Opening a Wider Door: Access to Services for Children with Neurodevelopmental Disabilities‌‌‌. 06/2026. OPENPediatrics. Online Podcast.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter

Our guest this week is Hubert Eugene 'Hubie' Jones, of Boston, MA. who has shaped and defined the civic and social landscape of Boston for more than forty-five years. He played a leadership role in the formation, building and rebuilding of at least thirty community organizations within Boston's Black community and across all neighborhoods in the city.Hubie and his wife, Kathy, have been married for 68 years and are the proud parents of eight accomplished and college educated children and grandparents to 10.We learn about a handful of organizations that Hubie helped start, shape or was involved in,  including: 1964 Roxbury Multiservice Center, Massachusetts Advocates for Children, City To City, Boston Children's Choir, City Year, and W.K. Kellogg Foundation Like Warren Buffet is to investments, Hubie is to community service and advocacy.  It's an uplifting story about faith and family as well as advcoacy and service to those marginalized in society, all on this episode of the Special Fathers Network Dad to Dad Podcast.Show Notes -Phone – (617) 332-8183 Email – hjones@cityyear.org Website - https://www.massadvocates.org/Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network and distribute 2,000 complimentary copies of our new book.  Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st.  Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home.  Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we explore the staggering $65 billion raise by Anthropic, propelling them beyond OpenAI's valuation and transforming the AI landscape. We also discuss innovative moves by companies like Shift and Asana, tackling community-driven robot training and expanding their tech capabilities amidst an evolving market.Chapters00:00 Introduction00:30 Anthropic's Valuation Surge05:01 Shift's Robot Training Initiative09:28 AI in Healthcare at Boston Children's11:49 Grok's Funding and Independence14:00 Asana Acquires Stack AI Show LinksGet the top 80+ AI Models for $8.99 at AI Box: ⁠⁠https://aibox.aiHow I Grow and Scale My Business with AI: https://www.skool.com/aihustleGet the AI Chat Daily Newsletter: https://www.aichatdaily.com/newsletter See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

It's re-run time, as Lee is off getting ready for the launch of ArtPhilly's What Now: 2026 festival. To that end, we're kicking off summer by chatting about Cape Cod. Sharing his thoughts, feelings, and shark avoidance tips is Joe Fenti, standup comedian and corporate drone/content creator. Follow him on Instagram (@fentifriedchicken) and TikTok. For more on Boston Children's Choir and to register, head to bostonchildrenschorus.org or call 617-245-6036.  Have feedback on this episode or ideas for upcoming topics? DM me on Instagram, email me, or send me a voice memo. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Boston Children's Museum is welcoming a new attraction to its waterfront. WBZ's James Rojas is on the Fort Point Channel with more.See omnystudio.com/listener for privacy information.

In this World Shared Practice Forum Podcast, Drs. Mark Peters and Scott Weiss provide their expert insight on the methodology and development of the 2026 International Surviving Sepsis Campaign guidelines. They discuss challenges encountered during the process and review notable changes to these guidelines compared to previous iterations. The authors share the recommendations that will most impact their personal practice for patients with sepsis, and reflect on how we can improve global research infrastructure to address salient knowledge gaps in pediatric critical care. LEARNING OBJECTIVES - Understand the design and methodology for the 2026 Surviving Sepsis Campaign guidelines - Review notable changes in the 2026 sepsis guidelines compared to the 2020 edition - Discuss the implications of the altered recommendations for clinical practice changes - Consider methods to improve global pediatric research infrastructure and data organization AUTHORS Mark Peters, MBChB, PhD, MRCP, FFICM, FRCPCH Professor of Paediatric Intensive Care NIHR Senior Investigator UCL Great Ormond St Institute of Child Health Hon. Consultant Paediatric Intensivist Paediatric Intensive Care Unit and Children's Acute Transport Service Great Ormond St Hospital Scott Weiss, MD, MSCE Professor of Pediatrics and Pathology & Genomic Medicine, Division Chief of Critical Care, Vice-Chair of Research for the Department of Pediatrics, Nemours Children's Hospital, Sidney Kimmel Medical College at Thomas Jefferson University Jeffrey Burns, MD, MPH Emeritus Chief Division of Critical Care Medicine Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Professor of Anesthesia Harvard Medical School DATE Initial publication date: May 26, 2026. ARTICLES REFERENCED & ADDITIONAL REFERENCES - Weiss SL, Peters MJ, Oczkowski SJW, et al. Surviving Sepsis Campaign International Guidelines for the Management of Sepsis and Septic Shock in Children 2026. Pediatr Crit Care Med. 2026;27(4):379-434. https://pubmed.ncbi.nlm.nih.gov/41869844/ - Balamuth F, Weiss SL, Long E, et al. Balanced Fluid or 0.9% Saline in Children Treated for Septic Shock. N Engl J Med. Published online April 24, 2026. https://pubmed.ncbi.nlm.nih.gov/42028918/ - Weiss SL, Balamuth F, Long E, et al. PRagMatic Pediatric Trial of Balanced vs nOrmaL Saline FlUid in Sepsis: study protocol for the PRoMPT BOLUS randomized interventional trial. Trials. 2021;22(1):776. Published 2021 Nov 6. https://pubmed.ncbi.nlm.nih.gov/34742327/ - Steven Pinker "Enlightenment Now” - https://stevenpinker.com/publications/enlightenment-now-case-reason-science-humanism-and-progress - Blood Poison: The Untold Story of Sepsis - https://amplifypublishinggroup.com/product/nonfiction/health-medicine-and-wellness/general-health-medicine-and-wellness/blood-poison/ TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/r9q8w9vhsbpg7wwzn35kbmz/202605_WSP_Peters_and_Weiss_Transcript.pdf Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge among healthcare providers worldwide who care for critically ill children across all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Peters MJ, Weiss SL, O'Hara J, Burns JP. Pediatric Surviving Sepsis: Insights From the Leadership. 05/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/pediatric-surviving-sepsis-insights-from-the-leadership-by-m-peters-s-weiss-openpediatrics.

In this episode of Beyond the Torch, hosts Todd Herzog and Leslie Nease welcome the legendary Survivor: Panama player Terry Dietz, catching up with him from his current perch in the Bahamas. They open with a touching fan message from Brandon Jesse about how Survivor built community in his life, then dive into Terry's journey — from watching Tom Westman win and deciding to audition, to his memorable run against a tribe of D1 athletes, and the infamous one-inch, one-second mistake that cost him the immunity challenge (and the million dollars) against Aras. The conversation shifts to Terry's Second Chances season, where he was pulled from the game mid-episode when his son Danny was rushed to Boston Children's Hospital with a dangerously failing heart — an ejection fraction of just 8 — requiring open-heart surgery and ultimately a heart transplant on 9/11, 2016, after nearly 90 days in the hospital. Terry updates us on Danny today: now engaged, thriving in San Jose, and the true "second chance" of Terry's life. The episode also covers the current Survivor 50 season (heaping praise on Rick Devens and discussing Oscar's big gameplay mistake), a lively debate about whether Terry would ever play again, the news that Todd has been invited to the live finale in LA, Leslie sharing that her husband just had successful prostate cancer surgery, and warm reflections on the unique brotherhood that Survivor creates among players and fans alike.Special thanks to the best Whiskey on the Planet Watertown Whiskey! Check them out on instagram: https://www.instagram.com/watertownwhiskey/?hl=en Tell them Fairplay sent you! Please Drink Responsibly https://watertownwhiskey.com/Our new Website is live! Check it out at: www.realityaftershow.comJoin our Patreon at RealityPatron.comIf you would like a cameo from Jonny Fairplay order one now! cameo.com/jonnyfairplayCheck us out on Tiktok @fairplaytokBecome a supporter of this podcast: https://www.spreaker.com/podcast/reality-after-show--5448874/support.

In this special Complex Care Journal Club podcast episode, co-hosts Drs. Emily Goodwin, Kristie Malik, and Kathleen Huth interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the Pediatric Academic Societies (PAS) 2026 annual meeting, as well as at a pre-PAS event focused on home- and community-based care and training in complex care. Speakers describe their key findings, messages for care teams including patients and families, and opportunities to translate their findings into practice.‌ SPEAKERS Flor Arellano, MPH Clinical Research Coordinator, University of California, Los Angeles Jennifer Arnold, MD, MSc Medical Director, Skeletal Health, Boston Children's Hospital Ryan Brewster, MD Neonatal- Perinatal Medicine Fellow, Stanford University School of Medicine Meg Comeau, MHA Senior Project Director, Center for Innovation in Social Work & Health, Boston University School of Social Work John Greenwood, PT Executive Director for Physical Therapy, Occupational Therapy and Rehabilitation Services, Boston Children's Hospital Elaine Lin, MD Complex Care Pediatrician, Boston Children's Hospital Michelle Macy, MD, MS Professor of Pediatrics, Northwestern University Feinberg School of Medicine Scientific Director, Community, Population Health, and Outcomes, Research and Evaluation Center, Ann & Robert H. Lurie Children's Hospital of Chicago Ashley Nmoh, BA Medical Student, Duke University School of Medicine Jennifer Peralta, MD, MSHPN Assistant Clinical Professor, University of California, Los Angeles Nora Renthal, MD, PhD Assistant Professor of Pediatric Endocrinology, Boston Children's Hospital Erin Ward, MEd Patient Engagement Consultant, Complex Care Service, Boston Children's Hospital HOSTS Emily J. Goodwin, MD Clinical Associate Professor of Pediatrics, University of Missouri Kansas City School of Medicine Pediatrician, General Academic Pediatrics Beacon Program, Children's Mercy Kansas City Kristina Malik, MD Assistant Professor of Pediatrics, University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics, Boston Children's Hospital Assistant Professor of Pediatrics, Harvard Medical School DATE Initial publication date: May 11, 2026. ARTICLES REFERENCED - Brewster RC, Kats DJ, Elborki M, Chilukuri N, Ray M, Shaar N, Hron J, Khan A. Clinical Outcomes of Postedited Artificial Intelligence Translation for Discharge Instructions. Hosp Pediatr. 2026 Apr 10:e2025008986. doi: 10.1542/hpeds.2025-008986. Epub ahead of print. PMID: 41956490. - FamilyCIRCLE. University of Wisconsin–Madison, Department of Pediatrics. Accessed May 4, 2026. https://familycircle.pediatrics.wisc.edu/ - Pediatric Academic Societies. Online program guide. Accessed May 4, 2026. https://2026.pas-meeting.org/ - Pediatric Academic Societies. Who we are. Accessed May 4, 2026. https://www.pas-meeting.org/about/ - Pediatric Academic Societies. Academic Pediatric Association (APA) awards. Accessed May 4, 2026. https://www.pas-meeting.org/2026-awards-apa/‌ TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/k7qqm93qqpqgb5k3jw4f3w2t/PAS_2026_conference_transcript_5-8-26‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. CITATION Goodwin EJ, Malik K, Arellano F, Arnold J, Brewster R, Comeau M, Greenwood J, Lin E, Macy M, Nmoh A, Peralta J, Renthal N, Ward E, Huth K. Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2026 Annual Meeting. 05/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-pediatric-academic-societies-2026.

This episode of the World PICU Awareness Week 2026 podcast series explores the realities of working in pediatric intensive care across the Middle East, with a focus on the wellbeing of healthcare professionals. Through expert insights and real-life experiences, the discussion highlights the emotional impact of high-intensity PICU environments – moving beyond burnout to address deeper challenges such as moral distress and moral injury. Practical strategies are shared, from simple daily practices that strengthen team connection to structured organizational initiatives that support resilience and retention. The episode also examines the role of leadership in fostering psychologically safe environments, as well as the influence of culture, family dynamics, and faith in shaping care across the region. HOST Raghad Al Abdwani Head of Division of Pediatric Critical Care Sultan Qaboos. University Hospital, University Medical City, Muscat, Oman GUEST Marianne Majdalani Head of Division of Pediatric Critical Care American University of Beirut Medical Center Ashley Cowan Clinical Nurse Facilitator Sidra Hospital Caroline McIntire Manager of Child Life Services Sidra Medicine DATE Initial publication date: May 8, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript Spanish - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript?position=7 French - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript?position=3 Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript?position=6 Italian - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript?position=5 German - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript?position=4 Arabic - https://cdn.bfldr.com/D6LGWP8S/as/qjxhnqx8jt9zvn848svp2955/Middle_East_26_transcript?position=2 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

In this North America episode of the World PICU Awareness Week 2026 podcast, leading experts explore how leadership directly influences caregiver wellbeing and burnout in pediatric intensive care. Through practical examples and evidence-based insights, the discussion highlights the importance of listening to teams, addressing system-level challenges, and fostering a culture where wellbeing is embedded into everyday practice. From leadership behaviors to institutional support, this episode emphasizes a clear message: sustainable PICU care starts with how we lead. HOST Leah Harris Professor and Chair, Department of Pediatrics Dell Medical School at the University of Texas at Austin - Dell Children's Hospital GUEST Asha N Shenoi Professor, Associate Dean University of Kentucky Will Border Chief Physician Wellness Officer, Director of Noninvasive Cardiac Imaging Children's Healthcare of Atlanta and Emory University School of Medicine Wendy Quiroz Nasser Pediatric Nurse Practitioner Baylor College of Medicine (BCM) | Texas Children's Hospital DATE Initial publication date: May 7, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript Spanish - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript?position=7 French - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript?position=3 Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript?position=6 Italian - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript?position=5 German - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript?position=4 Arabic - https://cdn.bfldr.com/D6LGWP8S/as/jcbg3x5x35f4sb3wct2kx89w/North_America_26_transcript?position=2 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

In this episode of the World PICU Awareness Week 2026 podcast series, we explore caregiver wellbeing through the perspective of PICU teams across Africa. Moderated by Dr. Charlyne Kilba, this discussion brings together multidisciplinary voices from across the continent, highlighting both the shared challenges and the strength of teams working in resource-limited, high-demand environments. The conversation provides an honest reflection on the realities of pediatric critical care in Africa – including staff shortages, high patient volumes, ethical dilemmas, and limited access to essential resources – and how these factors impact the wellbeing of healthcare professionals. At the same time, the episode showcases powerful and practical approaches to support caregivers, including team-based support systems, debriefing practices, spirituality, and community-driven initiatives. A strong emphasis is placed on resilience – not only at the individual level, but as a collective and system-supported effort. HOST Marie-Charlyne Kilba Paediatric Intensivist, Head of Department Child Health, Greater Accra Regional Hospital, Ghana GUEST Ireen Primrose Machira Nursing Officer PICU in the Mercy James Centre, Malawi Rohini Kalagouda Patil Lead Paediatric Intesivist Nairobi Hospital, Kenya Susan Zakariah Paediatric emergency and critical care specialist, Head of the PICU Korle Bu Teaching Hospital, Ghana Brenda Morrow Physiotherapist University of Cape Town, South Africa DATE Initial publication date: May 6, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript Spanish - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript?position=6 French - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript?position=7 Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript?position=5 Italian - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript?position=4 German - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript?position=3 Arabic - https://cdn.bfldr.com/D6LGWP8S/as/4rpjqpv6nxzcxf7w78z9h4z/Africa_26_transcript?position=2 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

This podcast reviews cyanotic congenital heart disease in newborns, including truncus arteriosus, transposition of the great arteries, tricuspid atresia, tetralogy of Fallot, and total anomalous pulmonary venous return. It summarizes their key pathophysiology, presentation, imaging findings, and initial management leading to neonatal cyanosis. LEARNING OBJECTIVES • Explain the pathophysiology for each of the diseases • Recognize the physical exam findings for these heart defects • Identify the different diseases based on imaging • Formulate an initial treatment plan AUTHORS Julia Pian, MD, MBA Pediatric Hospitalist Boston Medical Center Jaclyn McKinstry, MD Pediatric Critical Care Fellow Boston Children's Hospital DATE Initial publication date: May 5, 2026. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Pian J, McKinstry J, Fantasia K, Marques B, Wills K, Wolbrink TA. Congenital Heart Disease. 05/2026. Online Podcast. OPENPediatrics. https://soundcloud.com/openpediatrics/congenital-heart-disease-by-j-pian-j-mckinstry-for-openpediatrics.

In this episode of the World PICU Awareness Week 2026 podcast series, we explore caregiver wellbeing through the lens of Latin America – a region characterized by resilience, diversity, and a strong commitment to delivering high-quality care in often resource-constrained environments. Moderated by Dr. Lorena Acevedo, this conversation brings together multidisciplinary perspectives from across the region, including physicians, nursing, and allied health professionals. The discussion highlights innovative and structured approaches to caregiver support, such as the CRECEP model, which integrates “caring for the caregiver” as a core pillar of care. It also explores how institutional programs, peer support, education, and simulation contribute to building safer and more supportive environments for healthcare professionals. HOST Lorena Acevedo Pediatric Intensivist Fundación CardioInfantil GUEST Teresa Stegman CICU Nurse Practitioner CHOP Luis Moya Pediatric Intensivist Hospital San Juan de Dios Daniel Sandoval Respiratory Therapist Fundación valle del Lili DATE Initial publication date: May 5, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/vz6... Spanish - https://cdn.bfldr.com/D6LGWP8S/as/vz6... French - https://cdn.bfldr.com/D6LGWP8S/as/vz6... Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/vz6... Italian - https://cdn.bfldr.com/D6LGWP8S/as/vz6... German - https://cdn.bfldr.com/D6LGWP8S/as/vz6... Arabic - https://cdn.bfldr.com/D6LGWP8S/as/vz6... Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

In this episode of the World PICU Awareness Week 2026 podcast series, we explore caregiver wellbeing through a Nordic perspective, with contributions from clinicians and researchers across Europe. Moderated by Prof. Janet Mattsson, this discussion brings together experienced PICU professionals from Sweden and Denmark to reflect on how wellbeing is supported in daily clinical practice. The conversation highlights the importance of structured approaches – from team check-ins and mentorship to ethical discussions and simulation-based learning – while also acknowledging the real challenges of implementing these practices in busy, high-demand PICU environments. HOST Janet Mattsonn Professor of Critical Care nursing Linnaeus University GUEST Johanne Meijers IC nurse Karolinska Universitetssjukhuset Solna Rikke Louise Stenkjaer Researcher Copenhagen University Hospital DATE Initial publication date: May 4, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript Spanish - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript?position=6 French - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript?position=3 Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript?position=7 Italian - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript?position=5 German - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript?position=4 Arabic - https://cdn.bfldr.com/D6LGWP8S/as/pbp7m6rprj24tc8b4hnthjcp/Europe_26_transcript?position=2 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

In this Asia episode of the World PICU Awareness Week 2026 podcast, experts and families come together to explore the human side of pediatric intensive care – where caregiver wellbeing, communication, and cultural sensitivity play a central role. Through powerful real-life experiences, the discussion highlights the importance of family-centered care, emotional support, and multidisciplinary collaboration in navigating the challenges of critical illness. HOST Ririe Fachrina Malisie Senior Consultant of Pediatric Emergency & Intensive Care Department of Pediatrics, Faculty of Medicine - Universitas Sumatera Utara GUEST Lydia Tan Accredited Social Worker KK Women's and Children's Hospital Mohamad Aris Iqqhwan bin Alizan Father Nur Amalina Miswan Mother Manpreet Kaur Nursing Officer Advanced Pediatric Centre, Chandigarh, India DATE Initial publication date: May 3, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript Spanish - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript?position=7 French - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript?position=3 Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript?position=6 Italian - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript?position=5 German - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript?position=4 Arabic - https://cdn.bfldr.com/D6LGWP8S/as/hp29mq4ghwh3n89nxpkh5fnx/Asia_26_transcript?position=2 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

In this episode Abi and Jen welcome elementary TAB educator Jess Baker to explore the powerful connections between Teaching for Artistic Behavior, special education, differentiated instruction, and student independence. Jess shares how her graduate work helped her recognize the ways TAB already supports students with exceptionalities by centering choice, access, collaboration, and authentic artmaking. Together, we talk about honoring the whole child, advocating for students in the art room, and why play, freedom, and independence matter so deeply in a TAB studio. Resources:Teaching for Artistic Behavior / TAB — official TAB website. TAB Community on Mighty Networks — online TAB educator community. Parents Encouraging Parents / PEP Conference — Colorado Department of Education — conference Jess references for families of children with disabilities. CAST Universal Design for Learning Guidelines — UDL resource connected to the conversation about access and differentiated instruction. Colorado Multi-Tiered System of Supports / MTSS — MTSS resource connected to the discussion of student support systems. Response to Intervention within Colorado MTSS — RTI resource connected to the MTSS/RTI language in the episode. TAB Storytellers: Meet George Szekely & Ilona Szekely — episode referenced during the conversation about play, collections, and agency. Play and Art Podcast with Dr. Ilona and Dr. George Szekely — podcast focused on play-based art teaching. Discovery Museum — da Vinci Workshop — maker/exploration space Jen mentions. Boston Children's Museum — Art Lab — hands-on art space mentioned in relation to children's open-ended artmaking. The Art Barn / Cultural Center of Cape Cod — children's art space on the Cape mentioned by Jen. Margie's Java Joint — Greeley coffee shop mentioned in Abi and Jess's story. Here is a lightly edited transcript of this episode. We recognize that there are probably errors and grammatical issues. If anyone with the time or inclination to edit this wants to do so, please email us at storytellers@teachingforartisticbehaviors.org. Also we are using our imagination to pretend Abi got this episode published in March. Life was life-ing.

366: Stop Writing for Your Organization. Write for Your Donor. (Tom Ahern)Episode SummaryMost nonprofit communications are, in Tom Ahern's blunt assessment, built to fail. Not because the work isn't worthy, but because organizations keep writing about themselves when they should be writing for the donor. In episode #366, Patton sits down with Tom Ahern, founder of Ahern Communications, Inc. and one of the most influential voices in fundraising copywriting, to unpack why so many appeals, newsletters, and annual reports fall flat. Drawing on decades of commercial copywriting experience before he “wandered into” the nonprofit sector, Tom walks listeners through the three questions every case for support must answer (Why us? Why now? Why you, the donor?) and explains why urgency without desperation, emotion over information, and a relentless focus on the reader are the difference between a gift and a pass. He shares a remarkable story of a Boys & Girls Club that owned a million-dollar crisis and came back stronger, makes the case that donors are already 99% of the way there, and offers a clear-eyed take on what AI can and cannot do for fundraising writers. Listeners will leave with a practical framework they can apply to their next appeal this week, a sharper understanding of donor psychology, and permission to stop trying to inform their way to a gift.About TomTom Ahern is the founder of Ahern Communications, Inc. and one of the leading voices in donor communications and fundraising copywriting. His clients have ranged from Save the Children US and Catholic Relief Services to the Animal Rescue League of Boston, Boston Children's Hospital, the Anchorage Museum, and universities including Princeton, Carleton, and the University of Saskatchewan. He came to the nonprofit sector after fifteen years as a commercial copywriter, led, as he puts it, by an angel: his wife Simone, a longtime development professional and consultant. Since then he has coached fundraisers on best practices in appeals, newsletters, and cases for support, led communications audits (he prefers to call them “autopsies”), and trained nonprofit teams on four continents. Tom is the author of eight how-to books on donor communications, each rated 4.5 stars or higher on Amazon, and a sought-after faculty member for masterclasses and webinars. These days he volunteers most of his coaching hours for small and mid-sized charities, and still keeps Jerry Weissman's book on his desk, the spine sun-bleached from daily use.ResourcesConnect with Tom on LinkedInLearn more at Ahern CommunicationsTom's case-for-support framework: Why us? Why now? Why you, the donor?Book recommendation: Presenting to Win: The Art of Telling Your Story by Jerry WeissmanTom's books on donor communications, including Keep Your Donors (co-authored with Simone Joyaux), available on AmazonFollow Your Path to Nonprofit Leadership, and please leave a review!Learn more about the leadership resources at Armstrong McGuire: ArmstrongMcGuire.com

In this opening episode of the World PICU Awareness Week 2026 podcast series, we explore caregiver wellbeing through the lens of the Oceania region. Moderated by Jacinta Winderlich (Australia), this episode features Dr. Liz Crowe, a leading expert in clinician wellbeing with over two decades of experience in pediatric intensive care and extensive research on workforce sustainability. The conversation challenges conventional narratives around burnout and distress in PICU, shifting the focus toward what sustains healthcare professionals in this demanding environment. Drawing on both clinical experience and research, Dr. Crowe highlights the importance of meaning, team dynamics, and system-level responsibility in supporting those who deliver care. This episode offers a thought-provoking perspective on how PICU teams can move beyond individual-focused solutions and instead foster environments where clinicians can continue to thrive. HOST Jacinta Winderlich Paediatric Clinical Specialist Dietitian Monash Children's Hospital GUEST Liz Crowe Director of Wellbeing Royal Brisbane and Women's Hospital DATE Initial publication date: May 2, 2026 TRANSCRIPTS English - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript Spanish - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript?position=7 French - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript?position=3 Portuguese - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript?position=6 Italian - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript?position=5 German - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript?position=4 Arabic - https://cdn.bfldr.com/D6LGWP8S/as/jf785nrnf4pqtx6jr4z6mw/Oceania_26_transcript?position=2 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.

In this World Shared Practice Forum Podcast, Drs. Briseida Mema and Wynne Morrison share their journeys into medical humanities, and reflect on the principles of narrative writing that resonate with healthcare workers. They explore how mentorship in narrative writing evolves through fostering connections and leads to community-building. The authors discuss the qualities of effective narrative pieces and share examples of impactful work on their professional practice. LEARNING OBJECTIVES - Understand the role of medical humanities in healthcare practice - Discuss community building and mentorship in narrative writing - Review narrative medicine examples and their impact on professional identity AUTHORS Briseida Mema, MD, MHPE Professor, Staff Physician University of Toronto, Hospital for Sick Children Wynne Morrison, MD, MBE Professor, Departments of Anesthesiology and Critical Care and Pediatrics Perelman School of Medicine at the University of Pennsylvania, The Children's Hospital of Philadelphia Jeffrey Burns, MD, MPH Emeritus Chief Division of Critical Care Medicine Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Professor of Anesthesia Harvard Medical School DATE Initial publication date: April 28, 2026. REFERENCES - Morrison WE. A PCCM Narrative, in Verse. Pediatr Crit Care Med. 2022;23(10):836-837. - Healy LI, Helmers A, Mema B. Vulnerability through art: a path forward. Intensive Care Med. 2025;51(7):1380-1383. - https://niallwilliams.com/pages/this-is-happiness - https://www.middlebury.edu/writers-conferences/writers-conference - https://www.penguinrandomhouse.com/books/743358/on-call-by-anthony-fauci-md/ - https://www.penguinrandomhouse.com/books/183598/cutting-for-stone-by-abraham-verghese/ - https://en.wikipedia.org/wiki/Fathers_and_Sons_(novel) - https://www.poetryfoundation.org/poets/eavan-boland TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/2p43kr4k2546gzw3qr75n/20260417_WSP_Mema_and_Morrison_Transcript.pdf Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Mema B, Morrison W, Burns JP. Reflection and Community Building Through Narrative Writing. 04/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/reflection-and-community-building-through-narrative-writing-by-b-mema-et-al.

A chance phone call between Amy Davis and a friend who was taking her daughter to get checked for allergies, led Amy to take her then 2 year and 10 month old daughter Phoebe to see her Pediatrician, where shortly thereafter she was diagnosed with Acute Lymphoblastic Leukemia in June of 2010. Phoebe was in Boston Children's Hospital for 8 weeks and completed her treatment as an outpatient for the next 26 months, until she was 5 years old. From that time on Phoebe has been cancer free with no long term side effects, and is feeling great as an 18 year old. It is always nice to talk about successful Pediatric Cancer journey's on this podcast. 

About our Guests: Catherine Ross, MD, is a pediatric critical care physician in the Division of Medical Critical Care at Boston Children's Hospital (BCH) and Assistant Professor at Harvard Medical School. She serves on the joint American Heart Association (AHA) and American Academy of Pediatrics national writing group for Pediatric Advanced Life Support 2025 guidelines as well as the AHA Emergency Cardiovascular Care Science Subcommittee and Pediatric Emphasis Group. Her research interests lie in pediatric resuscitation, specifically in designing and implementing high-quality randomized controlled trials in the pre- and intra-arrest periods. Specific areas of interest include peri-arrest bolus epinephrine, intra-arrest drug management, and massive pulmonary embolism in children.Ryan Morgan is a pediatric intensivist and Associate Professor at the Children's Hospital of Philadelphia, where he is the Associate Director of the CHOP Resuscitation Science Center and the Associate Division Chief for Faculty Affairs. He was a writing group member for the 2025 AHA/AAP PALS Guidelines and currently serves on the International Liaison Committee on Resuscitation's Pediatric Life Support Task Force. Ryan's research focuses on intra-arrest physiology and on using physiology to guide resuscitation therapies. He is currently leading PEDICA, an NHLBI-funded study underway across 22 hospitals in the pediRES-Q network examining the physiologic effects of epinephrine during pediatric cardiac arrest.Selected References: Cardiac Arrest Pharmacopeia, Critical Care Clinics, 2025Peri-arrest bolus epinephrine practices amongst pediatric resuscitation experts - PMC Resusc Plus. 2022 Physiologic response to pre-arrest bolus dilute epinephrine in the pediatric intensive care unit - PMC Resuscitation. 2018 The physiologic response to epinephrine and pediatric cardiopulmonary resuscitation outcomes - PubMed Crit Care. 2023 Comparison of vasopressin to epinephrine during pediatric in-hospital cardiac arrest: survival and physiologic responsiveness - PubMed Pediatric Research. 2025Epinephrine Dosing Intervals Are Associated WQuestions, comments or feedback? Please send us a message at this link (leave email address if you would like us to relpy) Thanks! -Alice & ZacSupport the showHow to support PedsCrit:Please complete our Listener Feedback SurveyPlease rate and review on Spotify and Apple Podcasts!Donations are appreciated @PedsCrit on Venmo , you can also support us by becoming a patron on Patreon. 100% of funds go to supporting the show.Please remember that all content during this episode is intended for educational and entertainment purposes only. It should not be used as medical advice. The views expressed during this episode by hosts and our guests are their own and do not reflect the official position of their institutions. If you have any comments, suggestions, or feedback-you can email us at pedscritpodcast@gmail.com.  You can also check out our website at http://www.pedscrit.com. Thank you for listening to this episode of PedsCrit!

Send us Fan MailDr. Sharon Levy, director of the Division of Addiction Medicine at Boston Children's Hospital, joins Daphna for a wide-ranging conversation on adolescent substance use. She shares data showing a sudden spike in nicotine exposure among teens in treatment for substance use disorders — likely driven by larger vape devices and cooling agents that eliminate the burn sensation — and introduces one of the most novel concepts in addiction medicine: a vaccine that would create antibodies against fentanyl, blocking its effect at the meningeal level before it reaches the brain. She also presents findings on why current surveillance questions fail to capture how teens actually talk about drug use, and why kids who need treatment most are paradoxically the ones most likely to answer screening questions honestly.Support the showAs always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.Enjoy!

Send us Fan MailDr. Ofer Levy, director of the Precision Vaccines Program at Boston Children's Hospital and member of the FDA's Vaccines and Related Biologic Products Advisory Committee, makes the case that vaccines must be tailored to the immune system of the person receiving them — and that immune system changes dramatically from the moment of birth through old age. He explains why preterm infants, who represent 11% of births worldwide, carry an increased risk of infection-related hospitalization all the way through age 18, and why almost no investment has been made in understanding how to optimally immunize them. He also discusses the FDA Modernization Act 2.0, which is shifting vaccine development away from animal models toward human in vitro modeling and systems biology, and reflects on what precision vaccinology could mean for rebuilding public trust in a deeply polarized conversation — not by dismissing concerns, but by taking vaccine safety science more seriously than ever before.Support the showAs always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.Enjoy!

Dr. Wilner would love your feedback! Click here to send a text! Thanks!Many thanks to Phillip Pearl, MD, for joining me on this episode of The Art of Medicine with Dr. Andrew Wilner. Dr. Pearl is a pediatric neurologist and Director of Epilepsy and Clinical Neurophysiology at Boston Children's Hospital, in Boston, MA. He is also a serious musician and has performed in the Longwood Symphony Orchestra. Dr. Pearl is a member of the Music and Health Institute at the Berklee College of Music. Dr. Pearl's love of music has even overflowed to his wife, who is now taking piano lessons! Dr. Pearl's new book, Please click "Fanmail" and share your feedback!If you enjoy an episode, please share with friends and colleagues. "The Art of Medicine with Dr. Andrew Wilner" is now available on Alexa! Just say, "Play podcast The Art of Medicine with Dr. Andrew Wilner!" To never miss a program, subscribe at www.andrewwilner.com. Follow me on Instagram: @andrewwilnermdX: @drwilnerlinkedin.com/in/drwilner Please rate and review each episode. To contact Dr. Wilner or to join the mailing list: www.andrewwilner.comThis production has been made possible in part by support from “The Art of Medicine's” wonderful sponsor, Locumstory.com, a resource where providers can get real, unbiased answers about locum tenens. If you are interested in locum tenens, or considering a new full-time position, please go to Locumstory.com.Or paste this link into your browser:https://locumstory.com/?source=DSP_directbuy_drwilnerpodcast...

In this episode, we are joined by Dr. Katherine Peeler, founding director of the Peeler Immigration Lab, to discuss her longstanding empirical work on human rights and US immigration systems. Dr. Peeler is an Associate Physician in Pediatrics at the Boston Children's Hospital and Assistant Professor of Pediatrics, Global Health and Social Medicine at Harvard Medical School. She is a faculty member of the Harvard Medical School Center for Bioethics. Dr. Peeler describes her longstanding interest in building an evidence base of health effects of human rights abuses as a means of changing policy. Her interest in this field was initially sparked by the work of Paul Farmer and Partners in Health and their mission to improve direct care to patients. She was drawn specifically to challenges facing asylum seekers in the US and shifted towards policy work with Physicians for Human Rights. She founded the Peeler Lab during the COVID pandemic out of concern for people facing the pandemic in detention. Her lab has focused on writing for a public and policy audience to improve conditions and health of immigrants. More recently, her work has focused on solitary confinement in Immigration and Customs Enforcement (ICE) facilities. She painstakingly documents the multiple human rights violations, record number of deaths in these facilities, and violations of United Nations (UN) minimal standards for treatment of detained individuals. Policies for solitary confinement or "restricted housing" meet UN criteria for torture. She outlines strategies that States and local governments can employ to improve oversight and limit expansion of these facilities. The episode wraps up with a discussion of the role of bioethicists to forge common language across opposition and help parties understand shared values and have more productive conversations.Peeler Lab: https://peelerimmigrationlab.hsites.harvard.edu/Publications:"Praying for Hand Soap and Masks:" Health and Human Rights Violations in U.S. Immigration Detention during the COVID-19 Pandemic.”“Endless Nightmare” Torture and Inhuman Treatment in Solitary Confinement in U.S. Immigration Detention (2024)Cruelty Campaign: Solitary Confinement in US Immigration Detention

Derrick is running the London Marathon for Boston Children's Hospital; Shannon works at Fed Ex and wants to wear one while standing to cheer runners on the route!

In this Complex Care Journal Club podcast episode, Drs. Ryan Coller, Jay Berry, Allysa Ware, and Ms. Dania Champion describe the Systems and Policy Research Network (SPRNetwork), a multi-site research collaborative focused on children with special healthcare needs. They discuss the network's core research areas — child quality of life, family well-being, and family engagement — as well as recent work leveraging national Medicaid and hospitalization data to inform federal policy. They also highlight the network's Early Investigator Program, its lived experience partner advisory model, and pathways for researchers and families to get involved at SPRnetwork.org. SPEAKERS Ryan Coller, MD, MPH Co-Director, SPRNetwork Associate Professor, Chief, Division of Hospital Medicine & Complex Care, University of Wisconsin School of Medicine and Public Health, UW Health American Family Children's Hospital Jay Berry, MD, MPH Executive Director, SPRNetwork Co-Director of the Children's Hospital Association Health Services Research Academy Chief of Complex Care in the Division of General Pediatrics, Department of Pediatrics and Department of Plastic and Oral Surgery, Boston Children's Hospital Associate Professor of Pediatrics, Harvard Medical School‌ Allysa Ware, PhD, MSW Co-Director, SPRNetwork Executive Director, Family Voices Dania Champion, MS, BS Network Manager, SPRNetwork University of Wisconsin School of Medicine and Public Health HOST Kristina Malik, MD Assistant Professor of Pediatrics, University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado DATE Initial publication date: April 13, 2026. JOURNAL CLUB ARTICLE Systems & Policy Research Network. Research. Accessed March 18, 2026. https://sprnetwork.org/research/ OTHER ARTICLES REFERENCED Berry JG, Williams DJ, Wright SM, Sanders LM, Agarwal D, Foster C, Vasquez J, Perrin JM, Lomangino S, Hall M. US Pediatric Hospitalizations Among Children Enrolled in Medicaid. JAMA Pediatr. 2026 Jan 1;180(1):101-103. doi: 10.1001/jamapediatrics.2025.4537. PMID: 41247751; PMCID: PMC12624467. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/wgbphpxjfcg8npb66hc7jj7/Final_CCJCP_april_transcript_4-9-26‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Coller R, Berry J, Ware A, Champion D, Malik K. Network Effects: Multi-Site Research for Children with Medical Complexity. 04/2026. OPENPediatrics. Online Podcast.

In this episode, Laura sits down with Alysia Lee, President & CEO of the Baltimore Children & Youth Fund, to explore what it means to lead through community, creativity, and shared power. Alysia brings a unique leadership lens shaped by her background as a musician and composer, offering insight into how artistic practice (listening, collaboration, and responsiveness) translates into her approach as a first-time CEO. At the heart of the conversation is Alysia's approach to Ubuntu community-led leadership—a model that challenges traditional, expert-driven systems and instead centers collective wisdom, shared ownership, and trust. She shares how community voice is not just consulted, but embedded in decision-making at the Baltimore Children & Youth Fund, including real examples of how community input has shaped funding strategies and organizational direction. Alysia also offers a candid look at the inner work required to lead differently. Moving from having the answers to facilitating collective insight requires unlearning, humility, and a willingness to sit in uncertainty. She speaks openly about what it takes to quiet the instinct to control and instead cultivate environments where others can contribute meaningfully. The conversation also explores the realities of leading within complex stakeholder ecosystems, including youth, community members, funders, and policymakers, and how to navigate differing expectations while maintaining alignment and trust.  About Alysia Alysia Lee is the President & CEO of the Baltimore Children & Youth Fund, where she leads one of the nation's most innovative public philanthropic organizations dedicated to advancing racial equity and youth leadership. Under her leadership, BCYF has transformed traditional grantmaking by centering community voice, investing in grassroots leadership, and designing systems that prioritize justice, sustainability, and abundance. A nationally recognized thought leader, Alysia works at the intersection of philanthropy, youth development, education, and the arts. She brings a rare blend of operational discipline, visionary thinking, and values-aligned leadership to her work. She has built and managed high-performing teams, navigated complex government partnerships, and launched initiatives that expand access and deepen impact across sectors. During her tenure, BCYF's compliance rate has increased from 30% to over 90%, and the organization launched Baltimore's first-ever Youth Master Plan. Alysia is the Founder of Sister Cities Girlchoir, an El Sistema-inspired choral program that has empowered hundreds of girls across multiple cities through a blend of musical excellence, social justice, and youth development. She is also a proud Kennedy Center Citizen Artist and an in-demand guest conductor, with recent engagements including the LA Master Chorale, Mendelssohn Chorus, and Boston Children's Chorus. Her choral composition "Say Her Name" is published by Hal Leonard, and she has been commissioned by the Baltimore Choral Arts Society and Portland Lesbian Choir. She formerly led statewide arts education policy at the Maryland State Department of Education and currently serves on the Board of Chorus America. Alysia is a sought-after national speaker and facilitator, with recent engagements at the U.S. Department of Education, Carnegie Hall, state arts agencies, and universities across the country. As a Black woman leader, she leads with lived experience and a deep commitment to justice, creating space for new models of power and partnership. Whether managing multimillion-dollar investments or conducting on stage, Alysia is known for turning bold ideas into measurable results. She leads with integrity, builds with courage, and brings people together to do what hasn't been done before.   Connect with Alysia Website: bcyfund.org On socials @bcyfund LinkedIn: https://www.linkedin.com/in/alysiadlee/   BWL Resources: Join us at the 2026 Black Woman Leading LIVE! Conference & Retreat.  May 11-14, 2026 in Myrtle Beach, SC.  Save your seat at www.BWLretreat.com Full podcast episodes are now on Youtube.  Subscribe to the BWL channel today! Check out the BWL theme song here: https://www.youtube.com/watch?v=l68EqEJjXq0  Check out the BWL line dance tutorial here: https://www.youtube.com/watch?v=Eui89AmJwUg  Download the free Black Woman Leading Career Reset Kit - https://blackwomanleading.com/career-reset-kit/   Credits: Learn about all Black Woman Leading® programs, resources, and events at www.blackwomanleading.com Learn more about our consulting work with organizations at https://knightsconsultinggroup.com/ Email Laura: info@knightsconsultinggroup.com  Connect with Laura on LinkedIn: https://www.linkedin.com/in/lauraeknights/  Follow BWL on LinkedIn: https://www.linkedin.com/showcase/blackwomanleading  Instagram: @blackwomanleading Facebook: @blackwomanleading Youtube: @blackwomanleading  Podcast Music & Production: Marshall Knights - https://marshallknights.com/  Graphics: Dara Adams Listen and follow the podcast on all major platforms: Apple Podcasts  Spotify Stitcher iHeartRadio Audible Podbay  

Explore evidence-based clinical signs, diagnostic accuracy, and practical assessment strategies to optimize care with an in-depth look at the latest information on pediatric concussion. JAMA Review author Sonal N. Shah, MD, MPH, of Boston Children's Hospital, discusses this and more with JAMA Associate Editor David Simel, MD, MHS. Related Content: Does This Child Have a Concussion? Even Mild Concussions Tied to Worse Cognition Later in Life Vestibular/Ocular Motor Screening (VOMS) in Suspected Concussion Balance and Gait Assessment Including Modified BESS Cervical Spine Examination in Suspected Concussion

In this episode, Dr. Jordan Whatley and Dr. Amber Hildreth talk to Dr. Pete Duncan, Pediatric Gastroenterologist at Boston Children's Hospital who specializes in Aerodigestive Medicine and leads the NASPGHAN Aerodigestive Special Interest Group. We talk about the evaluation and management of oropharyngeal dysphagia and aspiration in children and how the approach to these issues has changed over time. Learning objectives1.     Understand normal swallowing function and the phases involved2.     Describe the causes of dysphagia in each phase of swallowing3.     Understand the evaluation and management of children with oropharyngeal dysphagiaLinkshttps://www.iddsi.org/standards/frameworkhttps://www.childrenshospital.org/services/aerodigestive-centerSupport the showThis episode may be eligible for CME credit!  Once you have listened to the episode, click this link to claim your credit.  Credit is available to NASPGHAN members (if you are not a member, you should probably sign up).  And thank you to the NASPGHAN Professional Education Committee for their review!As always, the discussion, views, and recommendations in this podcast are the sole responsibility of the hosts and guests and are subject to change over time with advances in the field.Check out our merch website!Follow us on Bluesky, Twitter, Facebook and Instagram for all the latest news and upcoming episodes.Click here to support the show.

The "Community Meets Clinic" podcast series introduces clinicians and healthcare personnel specializing in rare neuroimmune disorders. In this episode hosted by Krissy Dilger of SRNA, we meet Dr. Elizabeth Wilson, a pediatric neurologist at Cincinnati Children's Hospital and Director of its Multiple Sclerosis and Neuroimmunology Center. Dr. Wilson described her interest in individualized, longitudinal neuroimmunology care and the rapid evolution of treatments [01:47]. She highlighted her research on social determinants of health, including environmental stressors, caregiver impacts, and the roles of race and ethnicity in pediatric neuroinflammatory outcomes [05:21]. Dr. Wilson outlined how patients can self-refer or be referred, and described the center's multidisciplinary model involving neuroimmunology, rheumatology, neuro-ophthalmology, neuropsychology, mental health, school support, social work, rehabilitation, and research resources [07:49]. She shared self-care strategies and expressed hope for faster diagnosis, earlier treatment, and biomarkers to better track disease activity and prevent attacks [13:31].Elizabeth Wilson, MD is a pediatric neurologist at Cincinnati Children's hospital with specialized training in neurology and neuroimmunology. She received a Bachelor of Science in Neurosicence from Lafayette College in Pennsylvania. She then completed medical school at Boston University, Pediatric residency at Boston Children's Hospital/Boston Medical Center, and Pediatric neurology residency at Boston Medical Center. She went on to pursue a fellowship in Neuroimmunology at Massachusetts General Hospital/Boston Children's Hospital. She recently became the director of the Multiple Sclerosis and Neuroimmunology Center (MS-NIC) at Cincinnati Children's Hospital. Through her research she aims to understand how a patient's environment, including life stressors, interacts with their body and genetics in inflammatory neurologic conditions, such as multiple sclerosis. She believes that by studying this relationship we can better manage these disorders and advocate for changes that will improve patient outcomes. You can view her medical profile here: https://www.cincinnatichildrens.org/bio/w/elizabeth-wilson00:00 Introduction01:47 Why Pediatric Neurology03:27 Choosing Neuroimmunology05:21 Research And Health Equity07:49 Inside Cincinnati Children's Hospital and the Multiple Sclerosis and Neuroimmunology Center11:07 Multidisciplinary Team Support13:31 Clinician Self Care15:14 Considering The Clinic17:29 Hope For The Future18:50 Closing

Friday, April 3, 2026 - Week 14   Just back from the DSC-III Kickoff Meeting!  As announced back in September 2025.  Really strong group of clinicians.   https://dsc.rarediseasesnetwork.org/patient-advocacy-groups   More on DSC in #S10e184 https://curesyngap1.org/podcasts/syngap10/dsc-rdcrn-ncats-nih-press-aav-in-cell-srf-at-cb-scramble-for-syngap1-s10e184/   We will have sites at SYNGAP1 established doctors, Dr. Wiltrout at Boston Children's Hospital/Harvard, Dr. Holder at Baylor and our very own ProMMiS Doctors: Knowles at Stanford / Dr. Abbott at Colorado.  AND, excitingly, these two new locations: Rush University Medical Center (Rush) led by Dr. Dr. Liz Berry-Kravis. University of Alabama at Birmingham led by Dr. Martina Bebin.   Interestingly we are paired with PMS aka SHANK3 so the comparisons will naturally arise.  Both post-synaptic, they are a half step ahead of us.  (We will catch up!)  SHANK3 and SYNGAP1 have lots in commons: PSD, Synaptic Plasticity, mTOR.  Differences, we have more epilepsy, they have more Catatonia (see Table 2 in Trelles 2026 https://pubmed.ncbi.nlm.nih.gov/41895438/).    After that I met with Dr. Xin Tang from BCH who is working on some exciting potential therapies and then over to CAMP4, who is moving at light speed.   ILAE Rare Epilepsy Big Data Task Force for 4 years!  Makes me think about data…   Where does SYNGAP1 Data Live? Citizen.Health Retrospective ProMMiS Clinical Rare-X PRO Now the DSC will have both Combined Brain Registry and EEG Database. In Argentina SYNGAP1 Registry, potentially expanding to Chile and Colombia. In the EU there is PATRE part of EURAS. In the UK, it seems largely via NHS. In China, I don't know but this paper shows us someone has 99 people: https://pubmed.ncbi.nlm.nih.gov/41914539/ Where else?   SYNGAP1 is having a moment, we need project manager volunteers.   SPRINT FOR SYNGAP1, EVERYWHERE – 21 days - $132k! Get on the map!   https://curesyngap1.org/calendar/sprint4syngap-2026   INAUGURAL SF NIGHT OF IMPACT, CA – 55 days Join us this is our only Gala for 2026! cureSYNGAP1.org/SF26   5TH SCRAMBLE FOR SYNGAP, SC – 183 days  Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26 PUBMED Pubmed 2026 is at 22.  https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date   SOCIAL MATTERS 4,822 LinkedIn.  https://www.linkedin.com/company/curesyngap1 1.55k YouTube.  https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 45k Insta https://www.instagram.com/curesyngap1   $CAMP closed at $4.47 today.  https://www.google.com/finance/beta/quote/CAMP:NASDAQ   Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10 Episode 203 of #Syngap10 #CureSYNGAP1 #Podcast

A subpoena from the Department of Justice isn't just paperwork, it's a powerful tool that can drain resources, intimidate providers, and threaten patient care.  In this eye-opening episode of Succeed In Medicine, host Dr. Bradley Block welcomes back Dr. Crystal Beal, along with Adrian Levitt from the ACLU of Washington. In June 2025, Dr. Beal's small private practice received one of over 20 identical DOJ subpoenas targeting providers of gender-affirming care for adolescents. While large institutions like Boston Children's, Seattle Children's, and Children's Hospital of Philadelphia also received subpoenas, the impact on a solo practitioner is uniquely daunting. Dr. Beal describes the anti-climactic moment the subpoena arrived via their accountant and the immediate decision to fight it with pro bono support from the ACLU, Arnold & Porter, and Perkins Coie. The conversation unpacks the broader context: the Supreme Court's decision in United States v. Skrmetti, executive actions, funding cuts, and the federal government's stated goal of ending gender-affirming care for minors. Adrian explains how the DOJ is using the Federal Food, Drug, and Cosmetic Act (FDCA) in a novel way, traditionally applied to drug manufacturers, to investigate individual physicians. The subpoena demanded extensive records, including patient names, addresses, dates of birth, Social Security numbers, training materials, and communications with pharmaceutical reps. Throughout the episode, they emphasize their ethical obligation as a physician to provide evidence-based, life-saving care and reflect on the deeper moral questions raised by this moment in history. Three Actionable Takeaways: Know your rights and secure legal support early: If you receive a government subpoena or face regulatory pressure, contact organizations like the ACLU or the Abortion Defense Network immediately. Do not assume you must comply right away. Document and practice ethically, but prepare for scrutiny: Continue providing medically necessary, evidence-based care while understanding that political targeting of certain specialties is increasing. Build relationships with legal counsel before crises hit. Speak up and combat misinformation: Physicians have a unique platform in their communities. Learn about gender-affirming care if it's within your scope, talk openly with colleagues and patients, and stand against efforts to criminalize or restrict legitimate medical practice. About the Show: Succeed In Medicine covers patient interactions, burnout, career growth, personal finance, and more. If you're tired of dull medical lectures, tune in for real-world lessons we should have learned in med school! About the Guests: Dr. Crystal Beal is a board-certified family medicine physician and founder of Queer Doc, providing expert, individualized queer and gender-affirming medical care. A nonbinary femme with lived experience in the community, Dr. Beal has extensive training in sexual health, queer health, and gender-affirming care. They also offer continuing education on transgender medicine through QueerCME.com. Adrian Levitt is an attorney with the ACLU of Washington, specializing in protecting access to gender-affirming care and defending providers against government overreach. Website: QueerCME.com Queer Doc website: https://queerdoc.com About the Host: Dr. Bradley Block – Dr. Bradley Block is a board-certified otolaryngologist at ENT and Allergy Associates in Garden City, NY. He specializes in adult and pediatric ENT, with interests in sinusitis and obstructive sleep apnea. Dr. Block also hosts Succeed In Medicine podcast, focusing on personal and professional development for physicians Want to be a guest? Email Brad at brad@physiciansguidetodoctoring.com  or visit www.physiciansguidetodoctoring.com to learn more! Socials: @physiciansguidetodoctoring on Facebook @physicianguidetodoctoring on YouTube @physiciansguide on Instagram and Twitter This medical podcast is your physician mentor to fill the gaps in your medical education. We cover physician soft skills, charting, interpersonal skills, doctor finance, doctor mental health, medical decisions, physician parenting, physician executive skills, navigating your doctor career, and medical professional development. This is critical CME for physicians, but without the credits (yet). A proud founding member of the Doctor Podcast Network!Visit www.physiciansguidetodoctoring.com to connect, dive deeper, and keep the conversation going. Let's grow! Disclaimer:This podcast is for informational purposes only and is not a substitute for professional medical, financial, or legal advice. Always consult a qualified professional for personalized guidance. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Leonard Zon, winner of the 2026 March of Dimes Richard B. Johnston, Jr., MD Prize, Director of the Stem Cell Research Program at Boston Children's Hospital, and the Grousbeck Professor of Pediatric Medicine at Harvard Medical School, discusses his career using the 1.5-inch zebrafish to study human disease.

In this World Shared Practice Forum Podcast, Drs. Luregn Schlapbach and Janet Kelly-Geyer discuss the implementation and impact of the Airway, Breathing, Circulation - Plan, Risk, Options (ABC-PRO) handover tool in the Pediatric Intensive Care Unit. They discuss how a structured, proactive risk assessment during clinical handovers can reduce cardiac arrest rates and improve patient outcomes. They share perspectives on enhancing team situational awareness by anticipating high-risk events, identifying management strategies, and encouraging multidisciplinary participation in anticipatory care. Lastly, they highlight how the ABC-PRO framework advances overall patient safety in critical care settings. LEARNING OBJECTIVES - Understand the ABC-PRO tool's function in reducing cardiac arrests and enhancing safety - Examine bedside team-based discussions around key patient risks during handovers using the ABC-PRO tool - Recognize the significance of interdisciplinary collaboration in patient management - Assess the potential for implementing similar handover improvements in diverse healthcare settings AUTHORS Luregn Schlapbach, MD, PhD Professor in Pediatric Intensive Care, Head of Department of Intensive Care and Neonatology, University Children`s Hospital Zurich Janet Kelly-Geyer, MBChB Senior PICU Consultant University Children's Hospital Zurich Jeffrey Burns, MD, MPH Emeritus Chief Division of Critical Care Medicine Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Professor of Anesthesia Harvard Medical School DATE Initial publication date: March 24, 2026. ARTICLES REFERENCED - Catchpole KR, de Leval MR, McEwan A, et al. Patient handover from surgery to intensive care: using Formula 1 pit-stop and aviation models to improve safety and quality. Paediatr Anaesth. 2007;17(5):470-478. doi:10.1111/j.1460-9592.2006.02239.x - Starmer AJ, Spector ND, Srivastava R, et al. Changes in medical errors after implementation of a handoff program. N Engl J Med. 2014;371(19):1803-1812. doi:10.1056/NEJMsa1405556 - Riley CM, Diddle JW, Harlow A, et al. Shifting the Paradigm: A Quality Improvement Approach to Proactive Cardiac Arrest Reduction in the Pediatric Cardiac Intensive Care Unit. Pediatr Qual Saf. 2022;7(1):e525. Published 2022 Jan 21. doi:10.1097/pq9.0000000000000525 - Spaeder MC, Lee L, Miller C, Keim-Malpass J, Harmon WG, Kausch SL. Incidence of cardiac arrest following implementation of a predictive analytics display in a pediatric intensive care unit. Resusc Plus. 2025;21:100862. Published 2025 Jan 2. doi:10.1016/j.resplu.2024.100862 TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/f7xr7vcxc6f4mhc9736tzpb/202603_WSP_Schlapbach___Kelly-Geyer_Transcript.pdf Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Schlapbach LJ, Kelly-Geyer JF, Burns JP. Reducing Cardiac Arrests in the PICU with ABC-PRO. 03/2026. OPENPediatrics. Online Podcast.

DR1In our 'Asshole is selfish' headline of the week. Billionaire Uber co-founder Travis Kalanick admits strategically moving to Texas before California wealth tax***************Kalanick was caught on camera in a heated argument with an Uber driver, who complained about falling fares and the company's treatment of drivers: "Some people don't like to take responsibility for their own sh*t"In our 'Top snarky podcast hosts plead with airline companies to stop the share buyback bullshit and pay airport workers. ‘Once again, air travel CEOs are bullshit artists'' headline of the week. Top airline CEOs plead with Congress to restore DHS funding and pay airport workers. ‘Once again, air travel is the political football'***************Between June 1, 2025, and March 16, 2026:Southwest repurchased $2.6B in 2005; $400M in 2026United $1.5B5 NEOs: $91 million in 2025Scott Kirby $34M; $97M in shares Delta focused on $4.8B debt reductionFrontline Transportation Security Officers (TSOs, Airport Screeners): 50,000$328M per monthIn our 'Pervy owner does pervy stuff and everybody is fake shocked.' headline of the week. It Was Going to Be Magic City Night at the Atlanta Hawks. Then the Outrage Poured In.***************Tony Ressler founded the private equity firm Apollo Global Management with Leon Black.An independent review revealed that Leon Black paid Jeffrey Epstein $158M for financial and tax-planning services between 2012 and 2017. These payments occurred after Epstein's 2008 conviction for soliciting an underage girl.Ressler is the brother-in-law of Leon Black (Black is married to Ressler's sister, Debra) In our 'College dropout techbro ignores actual experts, part 17 million ' headline of the week. OpenAI's own mental health experts unanimously opposed “naughty” ChatGPT launch*************** The probably might be too many women and not enough Stanford? The council consists of the following eight independent experts:David Bickham, Ph.D. – Research Director at the Digital Wellness Lab at Boston Children's Hospital and Assistant Professor at Harvard Medical SchoolMathilde Cerioli, Ph.D. – Chief Scientific Officer at everyone.AI and researcher in cognitive neuroscience and psychologyMunmun De Choudhury, Ph.D. – Professor of Interactive Computing at Georgia Tech, specializing in how technology shapes mental healthTracy Dennis-Tiwary, Ph.D. – Professor of Psychology at Hunter College and co-founder/CSO of Arcade TherapeuticsSara Johansen, M.D. – Clinical Assistant Professor at Stanford University and founder of Stanford's Digital Mental Health ClinicDavid Mohr, Ph.D. – Professor at Northwestern University and Director of the Center for Behavioral Intervention TechnologiesAndrew K. Przybylski, Ph.D. – Professor of Human Behavior and Technology at the University of OxfordRobert K. Ross, M.D. – Former President and CEO of The California Endowment and a national leader in public health.In addition to the council's pushback, Ryan Beiermeister, OpenAI's head of product policy, was reportedly fired in January 2026 after being an outspoken internal critic of the erotica rollout. OpenAI has denied her dismissal was related to her opposition, citing separate workplace allegations that Beiermeister has called "absolutely false."In our 'Petulant manchild with no regulatory or societal guardrails screws up again and bails himself out with shareholder money from a different company' headline of the week. Elon Musk admits xAI ‘wasn't built right' as only 2 co-founders remain and its biggest AI bet stalls out***************The people leaving xAI right now aren't "legacy" employees—they are the hand-picked superstars Musk himself recruited in 2023 to build his AI dream.Out of the 12 original co-founders, 10 are gone. This isn't just "trimming the fat"; it's the original architects of the company walking out the door.In early 2026, Tesla (a public company) invested $2B into xAI.Tesla shareholders are furious, arguing that Musk used their money to fund a "broken" startup, then tucked it away inside his private SpaceX empire where there is less public oversight.Total Headcount Before Buyout: Approximately 7,500 to 8,000 employees.In his first week, Musk fired roughly 50% of the staff (about 3,700 people) overnight.Shortly after, he issued his famous "extremely hardcore" memo. When hundreds of employees refused to sign it and resigned instead, the headcount plummeted further.By April 2023, Musk confirmed in a BBC interview that the workforce had been slashed by 80%, leaving only about 1,500 employees. MM1In our 'The world's most stable billionaire announces a billionaire to all other billionaires ratio of 693:1' headline of the week. Elon Musk Is Now Worth More Than Bottom 693 Billionaires CombinedIn our 'In news celebrated worldwide, older women announce a "please save us from tech bros" to asshole ratio of 64:1 Elon Musk' headline of the week. Older women set to inherit most of $54 trillion in ‘great wealth transfer' to widowed spousesIn our 'Asshole wants you to know he is still here' headline of the week. ‘I never left': Travis Kalanick launches new robotics company Atoms with manifesto"At Atoms we make gainfully employed robots — specialized robots with productive jobs that bring abundance to their owners and society at large,"In our 'Company founder announces major "stealth mode" company perk is stealthy sexual harassment' headline of the week. Travis Kalanick sees benefits of being in stealth mode for 8 years. ‘You build a culture of people that want to build and do not need to be famous'In our 'Christmas, St. Patrick, Mel Gibson, and Casper the Friendly Ghost have reportedly filed complaints with the EEOC' headline of the week. Nike and Coca-Cola cases point to the next DEI fight: who gets to claim discriminationDR2In our 'Sheryl Sandberg says "If I could have worked at Facebook things would have turned out differently."' headline of the week. Sheryl Sandberg says Silicon Valley's hypermasculine rhetoric is ‘terrible'—contributing to ‘one of the worst' corporate climates she's ever seen*************** In our 'Explosive Messages Show Live Nation Thinks Customers Are ‘Stupid'; board member Richard Grenell Demands Credit for Same Observation' headline of the week. Live Nation Directors Mocked Customers in Explosive Just-Released Messages, Saying They're “Stupid” for Allowing Themselves to Be Gouged***************"Yes, I cut the DEI bullshit." — In a leaked 2025 email Grenell justified dismantling diversity programs by labeling them "woke" initiatives that "haven't made money."appointed to the Live Nation board on May 19, 2025, but was not up for the vote at the AGM on June 12, 2025In our 'Gun manufacturers say, "Oh no, it's not the gun that kills people, it's the pesky bullets."' headline of the week. She spent 16 hours on Instagram in a day. It's up to a jury to decide if Meta is to blame*************** In our 'She responded to "O" with "K," she said "J' to "D," and she responded to "F" with a simple "U"' headline of the week. Mary Barra still responds to ‘every single letter' she gets by hand despite running $65 billion automaker General Motors***************She did not say "V" to "E"In our 'OpenAI Chairman Admits It's Painful Watching AI Replace His Coding, Less So Watching It Accelerate the Collapse of Global Democracy' headline of the week. OpenAI Chairman says it's 'hard, emotionally' to let AI write his code: 'I have a hard time not caring'*************** MM2In our 'Proposals include a reduction in the CEO pay ratio from 1800:1 to 1799:1, for my boss to stop calling me Carl when my name is Todd, having a job, and not to have to take out my nose ring I got in 1998' headline of the week. Starbucks union sent the company a proposed contract. Here's what baristas wantProtections for union baristas against discrimination, unjust firings and temporary or permanent store closures.Starting wage floor of $17 per hour, down from its prior proposal of $20 an hour but still above the company's current starting wage of $15.25 to $16 an hour in 43 states.Annual raises of 4%.A process for baristas, management and union representatives to resolve workforce grievances.A dress code endorsed by the union.Requirement for at least three workers on the floor at all times and enforceable staffing and safety protections.A mandate to offer open hours to existing employees before hiring new baristas.Resolution of hundreds of outstanding unfair labor practice charges.In our 'But Sam Altman is SORRY' headline of the week. Professors Say AI Is Destroying Their Students' Ability to ThinkIn our 'Don't be fooled, I'm actually a MAN' headline of the week. CoStar Group Appoints Nana Banerjee to Its Board of DirectorsI pulled every Trade Wire story with a director appointment - 69 in the last week, all press released, some private some public - and here's the count: 60 men added to boards, 9 women added, 1 woman leftIn our 'Building on Warren Buffet's innovative "Giving Pledge", billionaire creates the rival "Taking Pledge"' headline of the week. Peter Thiel is actively convincing billionaires to abandon The Giving Pledge — and it's workingIn our 'When asked for comment, ISS asked if Nelson Peltz was involved.' headline of the week. The Coca-Cola Company Announces Maria Elena Lagomasino Will Conclude Her Service on the Board of Directors

radio pro, philanthropist, caregiver, docf.org  By heart, and with closed eyes, I have a very vulnerable spot for the unhoused.  -Sue Brady For millions of radio listeners in Boston, Sue Brady was that fun, friendly, relatable voice they heard on the air for years.  In this episode, we get to know the deepest layers of a woman who will always love radio but has turned the page to discover a whole new passion as a Certified Nursing Assistant.   Born and raised in Stoneham, Massachusetts, by an Army vet and a beloved school teacher, Sue learned lessons in kindness and charity early in life from a mother who would prepare peanut butter and jelly sandwiches for the homeless every weekend, load her girls in the car, and distribute the food at the Boston Common.   This experience informed Sue's devotion to the unhoused, and she has passed these values on to her own children.   A tireless volunteer and fundraiser for Boston Rescue Mission, The Winter Walk, Rosie's Place, and Back on My Feet,  I asked Sue what she wishes people knew about the issue: “We are all the same, and we are a life choice, addiction, or diagnosis away from being homeless.”  Always willing to go the extra mile for a worthy cause, Sue also supports Boston Children's Hospital, The Red Sox Foundation, and the Ellie Fund.  In fact, she serves on the board of the David Ortiz Children's Fund www.docf.org and enjoys a long friendship with the Red Sox slugger and Hall of Famer who calls her “Rubia,” which means “blonde” in Spanish.  When I asked Sue to explain the motivation behind becoming a caregiver,  the story that emerged will break your heart and lift your soul.    Trust me, this conversation is gold.   Go ahead and hit that download button. #radio #homelessness #charity #hospice #caregiver #motherhood 

Friday, March 6, 2026 - Week 10   WHAT DO WE NEED $ FOR? I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants.  All of this is what we need to fund.   SPRINT FOR SYNGAP1 Sprint for SYNGAP is coming fast– 49 DAYS. Make a difference. Raise some money. Get on the map!  Text sprint26 to 71777 https://curesyngap1.org/calendar/sprint4syngap-2026/   INAUGURAL SF NIGHT OF IMPACT Also to raise funds, please join us in SF on May 28th. 83 DAYS. Thanks to the organizational team Justin, Zoe, Ed, Jessica, etc. cureSYNGAP1.org/SF26    NHS Matter I talked in episode 198 #S10e198 about the importance of natural history studies. Check out this paper on Zuvenersen from Dravet to understand the long-term impact these studies could have. https://www.nejm.org/doi/full/10.1056/NEJMoa2506295 Join ProMMiS and Citizen Health.   SHOUTOUTS Rosie Davilla on Univision  curesyngap1.org/rosie2026 - https://www.univision.com/local/dallas-kuvn/syngap1-el-diagnostico-que-cambio-la-vida-de-rosie-en-texas-video   #RareDiseaseDay Talks Emily Barnes @ Quiver; Paulina and Brian Sheehan @ Third Rock; Mike @ SparkNS; John Hill & Allison CNBC Cures.   Beata's double header SYNGAP1 Stories. Part 1. https://curesyngap1.org/podcasts/syngap1-stories/beata-tarasiuk/   DSCIII In addition to Colorado Children's & Stanford we are now in a study at Boston Children's, Rush and U Alabama aka UAB.  Attending kick off for this at the end of the month.   DATES TO TRACK Scramble for Syngap - 5th annual on October 3 in S. Carolina in 211 DAYS cureSYNGAP1.org/Scramble26    Conference in Denver CO!  271 DAYS.  Sponsorship options in our #Prospectus for industry are available here https://curesyngap1.org/prospectus  Science Day - cureSYNGAP1.org/SD2025Videos Family Day - cureSYNGAP1.org/FD2025Videos See our entire library of webinars & videos on YouTube youtube.com/cureSYNGAP1    BIOSAMPLES & EEGs! Biorepository needs more samples.  Check out the list and map here https://combinedbrain.org/roadshow/ and contribute both blood & EEGs.  The data and research we do with these samples is invaluable.  Let us know if you are going, email our CSO@curesyngap1.org PUBMED Pubmed 2026 is at 12, just like last week but am I seeing some amazing manuscripts! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date    Two particularly cool papers: HDAC Inhibitors https://pubmed.ncbi.nlm.nih.gov/41777621/  A positive missense causing cognitive resiliencehttps://pubmed.ncbi.nlm.nih.gov/41777621/   SOCIAL MATTERS 4,732 LinkedIn.  https://www.linkedin.com/company/curesyngap1 1,535 YouTube.  https://www.youtube.com/@CureSYNGAP1 11.2k Twitter https://twitter.com/cureSYNGAP1 45k Insta https://www.instagram.com/curesyngap1   $CAMP stock is at $4.59 on 5 Mar. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ   Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/ Episode 201 of #Syngap10 #CureSYNGAP1 #Podcast

Send a textWhen parents fundamentally disagree on life-saving interventions in the delivery room, how do clinical teams decide the next step? Live from the NEO Conference, Ben and Daphna sit down with Dr. Mark Mercurio, Executive Director of the new Center for Pediatric Bioethics at Boston Children's Hospital. Dr. Mercurio dissects a highly complex ethical case regarding parental disagreement over resuscitation at the border of viability. Emphasizing the distinction between parental "preference" and parental "judgment," he explores the necessity of clinical humility, the hidden margins of error in gestational age dating, and how admitting our own medical uncertainty is the first step toward honest family counseling.Support the showAs always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!