Podcasts about hemophilia council

BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."  Exclusive Sponsor for The Factor Revolution: Shire LINKS: - ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**) - JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD” - HEMOPHILIA FEDERATION OF AMERICA (HFA): “1970s: Living with Hemophilia” “Medical Bullentin #7 Chapter Advisory #8” “1982—AIDS Discovered Among Patients with Hemophilia” “1980’s: Hemophilia, HIV/AIDS, and Hepatitis C” - HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment” - AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”   - NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders” - NBC's Earliest Report on AIDS 1982 - ABC News Nightline AIDS - 12/17/1982 - 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years) - BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A” - WORLD FEDERATION OF HEMOPHILIA (WFH) “The Tragic History of AIDS in the Hemophilia Population, 1982-1984” “Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A” - THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making” - CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations” - HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White” - LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.” - GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children” - PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard INTERVIEWS: Bobby Wiseman (via the HIV Story Project) - Board Member of Hemophilia Council of California Carl Weixler (via the HIV Story Project) - Board of Directors for and President of the Committee of Ten Thousand Dana Francis (via the HIV Story Project) - The clinical social worker with the Adult Hemophilia Treatment Team at UCSF Glenn Pierce (via the HIV Story Project) - Medical and Scientific Advisory Council (MASAC) for NHF; Previously served as president of the Board of NHF Jeanne White-Ginder (via the HIV Story Project) - Serves on the advisory board of The AIDS Institute; Advocate & Mother of Ryan White Louise & Clifford Ray (via the HIV Story Project) - Advocates & Parents of Ricky Ray Mark Skinner - Former President of NHF and WFH; Current member of the Federal Advisory Committee on Blood Safety Michelle Rice - Senior VP of external affairs for the National Hemophilia Foundation Randy Curtis - President of the Hemophilia Council of California Val Bias (via the HIV Story Project) - CEO of NHF Dana Kuhn - President and founder of Patient Services Incorporated Sue Geraghty - Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center Various interviews from the film Bad Blood. LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC US Federal Govt Statistics & Timeline, HIV.Gov National Institutes of Health (NIH) Huffington Post Top Books on HIV AIDS Ryan White Care Act Connect with BloodStream: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodFeed: https://www.bloodfeed.com Powering Through Podcast: http://poweringthrough.org/podcast Ask The Expert Podcast: http://bloodstreamexpert.com Email mailbag@bloodstreammedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."  Episode 2: The Contamination Crisis pulls together first-hand accounts from survivors of the HIV/AIDS outbreak, often referred to in our community as "the contamination crisis." This series - and especially this episode - was created in partnership with The HIV Story Project and the seminal documentary film, Bad Blood.  Exclusive Sponsor for The Factor Revolution: Shire LINKS: - ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**) - JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD” - HEMOPHILIA FEDERATION OF AMERICA (HFA): “1970s: Living with Hemophilia” “Medical Bullentin #7 Chapter Advisory #8” “1982—AIDS Discovered Among Patients with Hemophilia” “1980’s: Hemophilia, HIV/AIDS, and Hepatitis C” - HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment” - AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”   - NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders” - NBC's Earliest Report on AIDS 1982 - ABC News Nightline AIDS - 12/17/1982 - 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years) - BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A” - WORLD FEDERATION OF HEMOPHILIA (WFH) “The Tragic History of AIDS in the Hemophilia Population, 1982-1984” “Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A” - THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making” - CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations” - HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White” - LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.” - GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children” - PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard INTERVIEWS: Bobby Wiseman (via the HIV Story Project) - Board Member of Hemophilia Council of California Carl Weixler (via the HIV Story Project) - Board of Directors for and President of the Committee of Ten Thousand Dana Francis (via the HIV Story Project) - The clinical social worker with the Adult Hemophilia Treatment Team at UCSF Glenn Pierce (via the HIV Story Project) - Medical and Scientific Advisory Council (MASAC) for NHF; Previously served as president of the Board of NHF Jeanne White-Ginder (via the HIV Story Project) - Serves on the advisory board of The AIDS Institute; Advocate & Mother of Ryan White Louise & Clifford Ray (via the HIV Story Project) - Advocates & Parents of Ricky Ray Mark Skinner - Former President of NHF and WFH; Current member of the Federal Advisory Committee on Blood Safety Michelle Rice - Senior VP of external affairs for the National Hemophilia Foundation Randy Curtis - President of the Hemophilia Council of California Val Bias (via the HIV Story Project) - CEO of NHF Dana Kuhn - President and founder of Patient Services Incorporated Sue Geraghty - Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center Various interviews from the film Bad Blood. LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC US Federal Govt Statistics & Timeline, HIV.Gov National Institutes of Health (NIH) Huffington Post Top Books on HIV AIDS Ryan White Care Act Connect with BloodStream: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodFeed: https://www.bloodfeed.com Powering Through Podcast: http://poweringthrough.org/podcast Ask The Expert Podcast: http://bloodstreamexpert.com Email mailbag@bloodstreammedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

BloodStream Media is proud to present The Factor Revolution. The last sixty years in hemophilia treatment, with over forty interviews from community members, doctors, and advocates. We take a deep look at the history of factor treatment in the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project".  Exclusive Sponsor for The Factor Revolution: Shire ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**) ENCYCLOPEDIA.COM - “Hemophilia Throughout History” JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD” HEMOPHILIA FEDERATION OF AMERICA (HFA) “1970s: Living with Hemophilia” “Medical Bullentin #7 Chapter Advisory #8” “1982—AIDS Discovered Among Patients with Hemophilia” “1980’s: Hemophilia, HIV/AIDS, and Hepatitis C” HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment” AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”   NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders” NBC's Earliest Report on AIDS 1982 ABC News Nightline AIDS - 12/17/1982 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years) BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A” WORLD FEDERATION OF HEMOPHILIA (WFH) “The Tragic History of AIDS in the Hemophilia Population, 1982-1984” “Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A” THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making” CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations” HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White” LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.” GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children” PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard INTERVIEWS: Bobby Wiseman (via the HIV Story Project) Board Member of Hemophilia Council of California Carl Weixler (via the HIV Story Project) Board of Directors for and President of the Committee of Ten Thousand Dana Francis (via the HIV Story Project) The clinical social worker with the Adult Hemophilia Treatment Team at UCSF Glenn Pierce (via the HIV Story Project) Medical and Scientific Advisory Council (MASAC) for NHF Previously served as president of the Board of NHF Jeanne White-Ginder (via the HIV Story Project) Serves on the advisory board of The AIDS Institute Advocate & Mother of Ryan White Louise & Clifford Ray (via the HIV Story Project) Advocates & Parents of Ricky Ray Mark Skinner Former President of NHF and WFH Current member of the Federal Advisory Committee on Blood Safety Michelle Rice Senior VP of external affairs for the National Hemophilia Foundation Randy Curtis President of the Hemophilia Council of California Val Bias (via the HIV Story Project) CEO of NHF Dana Kuhn President and founder of Patient Services Incorporated Sue Geraghty Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center Various interviews from Bad Blood. LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC US Federal Govt Statistics & Timeline, HIV.Gov National Institutes of Health (NIH) Huffington Post Top Books on HIV AIDS Ryan White Care Act   Connect with BloodStream: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodFeed: https://www.bloodfeed.com Powering Through Podcast: http://poweringthrough.org/podcast Ask The Expert Podcast: http://bloodstreamexpert.com Email mailbag@bloodstreammedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

In this episode Randy Curtis, the Hemophilia Council of California’s Board President and longtime community activist, joins Ask The Expert to answer questions on aging with hemophilia, and the how he and peers in the Baby Boomer and Generation-X populations view this historic point in treatment history. We address that, and more, on Episode 7 of BloodStream Media’s Ask The Expert podcast series!   Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment.   Have a bleeding disorders-related question you’d like to submit to Ask The Expert? Excellent! You can email it to mailbag@bloodstreammedia.com (Subject: Ask The Expert Question), post it on the wall of our Facebook Page, Facebook.com/BloodStreamMedia or tweet it to us @BloodStreamInfo or @pjlynch (host) Randy Curtis’ biography on the Hemophilia Council of California’s website. PROBE-ing Patients with Hemophilia from NHF’s Hemaware. Haemophilia Utilization Group Study: assessment of functional health status in hemophilia.