Podcasts about bloodstream

David Howard Thornton, the crazed, bloody smile behind Terrifier stars in this manic and otherworldly take The Dead Place! which is streaming for free (with ads) on Bloodstream. It's a fairly unknown platform, overshadowed by Shudder, Tubi, Netflix and Prime. We sit down with writer and director Michael Pickle to dissect The Dead Place!

Eliminators (1986) Director: Peter Manoogast Cast: Andrew Prine, Denise Crosby, Patrick Reynolds, Roy DotriceRobots. Cavemen. A ninja who shows up two-thirds of the way through for absolutely no reason. A mandroid who can't stay on a boat. This is Eliminators, and it is exactly the fever dream you're hoping it is.This week, John and Sean dive headfirst into the 1986 Charles Band-produced sci-fi action romp that somehow got a PG rating despite side boob, constant explosions, and a villain who gets yeeted 100,000 years into the past by a random keyboard punch. It's stupid. It's charming. It almost works. We love it.In this episode, we discuss:"Bubblegum, Paperclips, and Tank Treads" — The plot holds together by vibes alone, and that's somehow fine. The mandroid falls off the back of a boat mid-river, John rewinds it twice, and we break down why this movie's relentless, logic-free momentum is actually its greatest asset."The Sandbox Theory of Screenwriting" — Robots, time travel, Neanderthals, a ninja who materializes from the woods two-thirds in — John's thesis is that this script was written by handing kids a box of action figures and transcribing the chaos. We make the case for why that works here when it absolutely shouldn't."The Mandroid Disguise Industrial Complex" — A fedora, a tarp-cape, and a giant red flashlight bolted to his head. Incognito. We also settle the tank tread debate: hyped in the trailer, used for five minutes, abandoned, brought back only to fall over. A true cinematic crime."PG? Are You Sure About That?" — Wet T-shirts, a bar brawl led by someone named Bayou Betty, laser violence, side boob. Apparently all fine in 1986. We dig into what the ratings board was and wasn't paying attention to, and what it says about this gloriously unhinged era of filmmaking.We Also Talked About:Mr. Inbetween (Hulu) — An FX series Sean fell hard for: 26 half-hour episodes about an Australian hitman balancing contract kills with single parenthood. Dark, funny, completely addictive.The Magician (2005) (Tubi) — The Scott Ryan mockumentary that originated the Ray Shoesmith character before Mr. Inbetween existed. Essential context.WWE Biographies: Legends (Amazon) – The Von Erichs — Three hours of documented tragedy covering the same ground as The Iron Claw but with more Kevin, more Sportatorium, and more time to sit in the sadness. Sean watched it. He reports back.Video Vixen (Bloodstream) — A shot-on-video indie slasher streaming on Bloodstream (free, but they want your email, which John resents) about a cam girl with a snuff fetish that eventually stops being a fetish and just becomes murder. The most interesting thing about it is the intentionally chaotic camera work — 1080p to vertical phone shot to Super 8 grain, switching based on which influencer is on screen. Cool concept, largely forgettable execution. John supports it on principle because indie filmmakers need somewhere to put their stuff, but he's not going to pretend it's good.King Kong (1976) (Pluto) — John revisited the Jeff Bridges-and-Jessica-Lange remake. Practical effects, a worthy successor to the original, and a soft spot for a giant ape that never fully goes away.SNL on Peacock — John went back to episode one and kept going. What he found: a legitimately fascinating variety show buried under 40 minutes of content per 90-minute slot, missing skits, and enough '90s-era comedy choices to keep a content moderation team busy for years.Some of the above links are affiliate links — if you purchase through them we get a small kickback, and it's the best way to support the show.New episodes of the Dewey Pod Monster podcast drop every week. We're proud members of the YouRun Podcast Network at https://yourunpodcast.com.

What does it look like to raise awareness from the top of the world? On the latest episode of BloodStream, Maia Meier joins our beloved hosts, Patrick and Amy, to talk about her mission to climb the Seven Summits through Project Elevate Her and bring visibility to women and girls living with bleeding disorders. From high-altitude expeditions to the everyday realities of advocacy, the conversation explores what it means to take up space in places where women with bleeding disorders have too often gone unseen. Listen now and subscribe to BloodStream Podcast wherever you get your shows.   Show Notes: Project Elevate Her   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

En este episodio de Más Que Raras conversamos con Sandra Silva-Arrieta, científica, activista y mamá de una joven con un trastorno relacionado con GRIN2B. Sandra ha convertido su experiencia personal en una poderosa labor de liderazgo y colaboración internacional. Es cofundadora de GRIN Europe y GRINpatías, y trabaja activamente para conectar a familias, investigadores, clínicos e industria alrededor de las encefalopatías epilépticas del desarrollo. Además de su trayectoria como activista y científica, Sandra participa en iniciativas europeas como ERN EpiCARE y CREA-E+, impulsando una investigación más conectada con las necesidades reales de las familias. En esta conversación hablamos sobre la enfermedad, pero también sobre la importancia del advocacy, la colaboración internacional y el poder de transformar la experiencia vivida en acción y cambio.   Subscribe: Mas Que Raras Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

In this episode of The ICHE Podcast, host Dr. Dave Calfee sits down with Kavita Bhavan, MD, Sara Keller, MD, MPH, MSHP, Deborah Lockard, BSN, MPH, and Sara Szathmary, BSN, RN, CNRI to discuss their recent publications in ICHE. The authors discuss what current evidence tells us about CLABSI incidence in outpatient infusion populations, why surveillance data remain limited, and the unique challenges healthcare organizations face when trying to monitor and prevent infections outside the acute care setting. Featured ICHE papers Hannum S, Marsteller J, Gurses AP, … Keller SC. Reducing home infusion CLABSI through a dashboard and toolkit implementation. Infect Control Hosp Epidemiol 2026;47(5): 433-440. Johnson K, Alvarez KS, Jaybanks A, …Bhavan K. Rates of line associated bloodstream infections in self-administered outpatient parenteral antimicrobial therapy compared to standard of care: 11 years of data at a safety net hospital. Infect Control Hosp Epidemiol 2026;47(5): 533-535 Other relevant resources: Keller SC, Hannum SM, Weems K, et al. Implementing and validating a home-infusion central-line-associated bloodstream infection surveillance definition. Infect Control Hosp Epidemiol 2023;44:1748–1759. https://nhicpc.org/

For years, women with bleeding disorders were told it was "just a heavy period." On the kickoff episode of The Flow with BloodStream, "It's Not Just a Heavy Period," women and clinicians expose what happens when serious symptoms are minimized, normalized, or dismissed entirely. Heavy prolonged periods. Anemia. Bruising. Joint bleeds. Rectal bleeding. Years without answers. Three women share what it was like to document their symptoms just to be believed — and how finally receiving factor treatment and prophylaxis changed their lives. Hematologist Dr. Jen Davila breaks down how the right questions can uncover what patients have learned to normalize, and how stigma, misinformation, and assumptions about women in bleeding disorders continue to delay care. This episode is about being heard, properly diagnosed, and redefining what women with bleeding disorders should have to live with.   Presenting Sponsor: For too long, women and girls with bleeding disorders have been told they're "just carriers." But the truth is, women can experience real bleeding symptoms too. And their stories deserve to be heard.   That's the idea behind "Because She Matters," a campaign from Novo Nordisk. It highlights the experiences of women living with hemophilia and other bleeding disorders, helping raise awareness of symptoms that are often overlooked or misunderstood.   On the site, you'll see real stories from women who went years without answers, learn about signs like heavy or prolonged periods, frequent bruising, or unexplained bleeding, and find guidance on how to start conversations with your healthcare provider.   Because recognizing the signs is the first step toward getting the care you deserve.   Visit WomenWithHemophilia.com, that's WomenWithHemophilia.com or click the link in the show notes.   Because when it comes to bleeding disorders, women's health matters.   Women's voices matter.   Because SHE matters.   Learn more and explore the resources at WomenWithHemophilia.com.   Show Notes:  WomenWithHemophilia.com   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

For years, women with bleeding disorders were told it was "just a heavy period." On the kickoff episode of The Flow with BloodStream, "It's Not Just a Heavy Period," women and clinicians expose what happens when serious symptoms are minimized, normalized, or dismissed entirely. Heavy prolonged periods. Anemia. Bruising. Joint bleeds. Rectal bleeding. Years without answers. Three women share what it was like to document their symptoms just to be believed — and how finally receiving factor treatment and prophylaxis changed their lives. Hematologist Dr. Jen Davila breaks down how the right questions can uncover what patients have learned to normalize, and how stigma, misinformation, and assumptions about women in bleeding disorders continue to delay care. This episode is about being heard, properly diagnosed, and redefining what women with bleeding disorders should have to live with.   Presenting Sponsor: For too long, women and girls with bleeding disorders have been told they're "just carriers." But the truth is, women can experience real bleeding symptoms too. And their stories deserve to be heard.   That's the idea behind "Because She Matters," a campaign from Novo Nordisk. It highlights the experiences of women living with hemophilia and other bleeding disorders, helping raise awareness of symptoms that are often overlooked or misunderstood.   On the site, you'll see real stories from women who went years without answers, learn about signs like heavy or prolonged periods, frequent bruising, or unexplained bleeding, and find guidance on how to start conversations with your healthcare provider.   Because recognizing the signs is the first step toward getting the care you deserve.   Visit WomenWithHemophilia.com, that's WomenWithHemophilia.com or click the link in the show notes.   Because when it comes to bleeding disorders, women's health matters.   Women's voices matter.   Because SHE matters.   Learn more and explore the resources at WomenWithHemophilia.com.   Show Notes:  WomenWithHemophilia.com   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

On the latest episode of BloodStream, we look at what is really underneath the words "I'm fine" and who it is serving to keep things that way. In I'm Fine, a family story across generations with bleeding disorders traces what has changed, what has not, and how honesty can begin to break cycles of silence that have long been passed down. What emerges is a closer look at resilience, inheritance, and the stories we are taught to minimize. We close out our plasma donation mini-series with donor Carver, highlighting the people behind every donation and the quiet consistency that keeps treatment possible. Plasma, perspective, and the moments where silence finally gives way to something more honest. Listen now and subscribe to BloodStream Podcast wherever you get your shows.   Show Notes: Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

On this episode of BloodStream—our plasma donation series continues with a powerful second installment featuring donor Hannah and the story behind what it really means to give. We've also got a packed lineup: a look at momentum building at the WFH World Congress, policy progress led by State Senator Joseph Addabbo supporting families with rare disorders, and new momentum in storytelling as Sanofi backs additional documentaries spotlighting rare blood conditions. Plus, we dig into the bigger picture—how bleeding disorders impact entire families, the role creativity plays when navigating physical limitations, and the isolation that can come with not knowing someone who shares your experience. And don't miss a spotlight on The Red Ink Project and their virtual screening of Dismissed, a film bringing long-overdue visibility to women and girls with bleeding disorders. All that and more—this is BloodStream. Show Notes: NY State Senator Joseph Addabbo steps up for bleeding disorders Sanofi backs 2 more documentary films about rare blood disorders theredinkproject.org   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Program notes:0:30 Controlling HTN after intracerebral hemorrhage1:30 Triple pill or placebo2:30 Only effective treatment is lowering blood pressure3:32 Serum creatinine levels4:15 Is there a role for Paxlovid?5:15 Did not reduce hospitalization or death6:10 Fast antimicrobial susceptibility test for gram negative7:10 Desirability of outcome ranking or DOOR8:10 Median time to effective therapy reduced9:10 Was not superior10:07 Acute sinusitis treatment11:15 Secondary effects higher with augmentin12:21 End

The hemophilia treatment landscape is evolving faster than ever. In this episode of Global Hemophilia Report, Patrick James Lynch and Dr. Donna DiMichele are joined by Drs. Hermans, Carpenter, and Hansen to break down the emerging class of rebalancing agents—therapies that don't replace clotting factor, but target new parts of the coagulation cascade. We explore what these treatments mean for patients, clinics, and shared decision-making around the world. Key takeaways include the urgent need for real-world data, better patient education, and the potential for new therapies to protect joint health in ways never seen before. Tune in to hear expert insights, practical considerations, and the future of hemophilia care. Guests: Dr. Cedric Hermans, MD, - Hemophilia Centre,  Saint-Luc University Hospital, Brussels  Dr. Shannon Carpenter, MD - Pediatric Hematology, Kansas City Hemophilia Center: CJ Hansen BSN, RN - Nurse Coordinator & Program Manager,  OSU Comprehensive Cancer Center, Patient Advocate   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   The Bigger Picture in Hemophilia B:  Hemophilia A and hemophilia B are different bleeding disorders with unique pathologies and clinical features.1 Due to the distinct behavior of factor IX, multiple PK parameters should be considered when assessing bleed prevention. Learn how a broader view of PK may influence evaluation of treatment and management for patients with hemophilia B.2,3 Learn more at thebiggerpictureinhemb.com  1. Castaman G, Matino D. Haematologica. 2019;104(9):1702-1709. 2. Dolan G, Benson G, Duffy A, et al. Blood Rev. 2018;32(1):52-60.  3. Mann DM, Stafford KA, Poon M-C, Matino D, Stafford DW. Haemophilia. 2021;27(3):332-339.   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

Acompáñanos en este episodio de Más Que Raras, donde conversamos con el Dr. Camilo Gutiérrez, neurólogo especializado en epilepsia, Profesor Asociado en la Escuela de Medicina de la Universidad de Maryland y vicepresidente de Calidad en el Departamento de Neurología. El Dr. Gutiérrez se especializa en epilepsias complejas, pero su trabajo también se enfoca en mejorar la calidad del cuidado del paciente y en reducir las disparidades en el acceso al diagnóstico y tratamiento, especialmente en comunidades históricamente marginalizadas, incluyendo nuestra comunidad latina— para que reciban una atención digna y basada en evidencia.   Subscribe: Mas Que Raras Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

I imagine it's been a little while since you've asked somebody, "How's your liver today?" I never thought about it until my wife got sick. She had hepatitis, and for many months I learned how vital the liver is; never thought about it before. It's the filtration plant of your body. We've got all kinds of toxic materials pumping into us every day in medicines that we take, and foods that we eat, and our liver keeps those poisons from getting into our blood stream. Now, liver disease like hepatitis or cirrhosis can cripple you or even kill you if the poison can't be filtered. See, it's deadly if the poisons don't get filtered and they get into your blood stream. And there is one toxin that is on the loose, and it has a long history of being a killer. I'm Ron Hutchcraft and I want to have A Word With You today about "Poison In the Blood Stream." Now, our word for today from the Word of God is going to come from Matthew 27. I'll begin reading from verse 18. And you are going to see the identification of perhaps one of life's most deadly toxins. We're in the middle of one of history's most ironic and most tragic episodes. Israel's Messiah has come in the person of Jesus Christ, and yet ironically it is the religious leaders who are clamoring to have Him executed. They bring Him to Pilate, because they don't have the authority to put Him to death. And there was a sobering footnote here as He is on trial before Pilate. You may have read past it many times. It's sort of a spiritual EKG that looks inside the human heart; what makes people so mean, so critical, so destructive. And it identifies that awful poison in the human blood stream. Here's what it says in a little footnote to the trial of Jesus. "For Pilate knew it was out of envy that they had handed Jesus over to him." In the words of the King James Bible, "Out of envy they had delivered Jesus up to him." Oh, they offered a lot of smoke screens; they gave other reasons. A lot of it was spiritual talk. There were religious reasons, and they sounded very, very spiritual about it. But the real issue - bottom line - was envy. Jesus was delivered up because of it, and people are still being delivered up because of envy. The dictionary says that envy is, "A feeling of discontent or jealousy, usually with ill will at seeing another's superiority, advantages or success." You see, envy is a denial of God's faithful provision for His children. It's saying, "You know what? He's got one and I don't. How come? How come I don't have any? It's not fair." And it often causes us to crucify people with religious words of course. But envy is a poison in the blood stream. It always starts with comparing. You can't envy unless you first compare homes, children, or beauty, or opportunities, or clothes, or positions with what somebody else has. Isn't it interesting that one of the Ten Commandments of God is "You shall not covet." And you know what? You'll never covet if you don't compare. It always starts with comparing. Think of someone you've been critical of lately - maybe negative toward them. When they come around you, you start getting some dark feelings. I wonder if you'd be honest enough to examine your motives today. Could it be envy at the root? You've seen what you perceive to be maybe their superiority, or their advantages, or their success. Ask yourself this, "If envy is in my life, Lord, who is the object of it? Envy gets all dressed up, starts to deliver someone up for destruction. It is an ugly poison in the blood stream. Pray for that person that you might be comparing yourself with and envying. Call envy by name, and trust your Shepherd to give you what's right for you. Filter out that poison of envy. It's a killer!

I imagine it's been a little while since you've asked somebody, "How's your liver today?" I never thought about it until my wife got sick. She had hepatitis, and for many months I learned how vital the liver is; never thought about it before. It's the filtration plant of your body. We've got all kinds of toxic materials pumping into us every day in medicines that we take, and foods that we eat, and our liver keeps those poisons from getting into our blood stream. Now, liver disease like hepatitis or cirrhosis can cripple you or even kill you if the poison can't be filtered. See, it's deadly if the poisons don't get filtered and they get into your blood stream. And there is one toxin that is on the loose, and it has a long history of being a killer. I'm Ron Hutchcraft and I want to have A Word With You today about "Poison In the Blood Stream." Now, our word for today from the Word of God is going to come from Matthew 27. I'll begin reading from verse 18. And you are going to see the identification of perhaps one of life's most deadly toxins. We're in the middle of one of history's most ironic and most tragic episodes. Israel's Messiah has come in the person of Jesus Christ, and yet ironically it is the religious leaders who are clamoring to have Him executed. They bring Him to Pilate, because they don't have the authority to put Him to death. And there was a sobering footnote here as He is on trial before Pilate. You may have read past it many times. It's sort of a spiritual EKG that looks inside the human heart; what makes people so mean, so critical, so destructive. And it identifies that awful poison in the human blood stream. Here's what it says in a little footnote to the trial of Jesus. "For Pilate knew it was out of envy that they had handed Jesus over to him." In the words of the King James Bible, "Out of envy they had delivered Jesus up to him." Oh, they offered a lot of smoke screens; they gave other reasons. A lot of it was spiritual talk. There were religious reasons, and they sounded very, very spiritual about it. But the real issue - bottom line - was envy. Jesus was delivered up because of it, and people are still being delivered up because of envy. The dictionary says that envy is, "A feeling of discontent or jealousy, usually with ill will at seeing another's superiority, advantages or success." You see, envy is a denial of God's faithful provision for His children. It's saying, "You know what? He's got one and I don't. How come? How come I don't have any? It's not fair." And it often causes us to crucify people with religious words of course. But envy is a poison in the blood stream. It always starts with comparing. You can't envy unless you first compare homes, children, or beauty, or opportunities, or clothes, or positions with what somebody else has. Isn't it interesting that one of the Ten Commandments of God is "You shall not covet." And you know what? You'll never covet if you don't compare. It always starts with comparing. Think of someone you've been critical of lately - maybe negative toward them. When they come around you, you start getting some dark feelings. I wonder if you'd be honest enough to examine your motives today. Could it be envy at the root? You've seen what you perceive to be maybe their superiority, or their advantages, or their success. Ask yourself this, "If envy is in my life, Lord, who is the object of it? Envy gets all dressed up, starts to deliver someone up for destruction. It is an ugly poison in the blood stream. Pray for that person that you might be comparing yourself with and envying. Call envy by name, and trust your Shepherd to give you what's right for you. Filter out that poison of envy. It's a killer!

CSL Behring just announced a global "stockout" of Hemgenix—what's happening, and what does it mean for patients? On this episode of BloodStream Podcast, we break down the news, launch our mini-series on plasma donation, and hear from Thomas Savage in our I'm Fine segment, sharing the highs, the lows, and the reality of living with a severe bleeding disorder.  Pain, perseverance, and the lessons learned along the way give a rare, unfiltered glimpse into life behind the headlines—reminding us all that every treatment, every donation, and every day matters. Show Notes: I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

This year marks 100 years since von Willebrand disease (vWD) was first described, and on this episode of BloodStream we take a closer look at how far the field has come. Our beloved hosts, Patrick and Amy happily welcome Dr. Nathan Connell, hematologist and leading expert in bleeding disorders, for a conversation about the past, present, and future of vWD. Together they explore how our understanding of the condition has evolved since its discovery, the challenges that remain in diagnosis and care, and why awareness still matters for the millions of people worldwide living with vWD. From early clinical observations to modern treatment approaches, Dr. Connell reflects on the milestones that have shaped care over the last century—and what the next hundred years could hold. Plus, a preview of what's coming next on BloodStream as we approach World Hemophilia Day.   Show Notes: Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok      

En este episodio de Más Que Raras conversamos con la Dra. Adriana Bermeo Ovalle, especialista en epilepsia y neurofisiología clínica, y Profesora en el Rush University Medical Center. Formada en Colombia y actualmente líder en Estados Unidos, la Dra. Bermeo Ovalle ha dedicado su carrera a mejorar la atención de personas con epilepsia, así como aquellas que sufren de crisis no epilépticas funcionales. Su objetivo es impulsar la equidad en salud y crear espacios de atención culturalmente competentes, incluyendo la primera clínica de epilepsia para adultos hispanos en el área de Chicago. En esta conversación hablamos de su camino profesional, su compromiso con la comunidad latina, y la importancia de una atención más humana, inclusiva y consciente. Un episodio que une ciencia, vocación y propósito.   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

Bleeding disorders aren't just medical conditions — they're lived experiences shaped by resilience, community, and support. On this episode of BloodStream Podcast, Patrick James Lynch sits down with the WFH working group to explore why psychosocial care matters just as much as medicine and how human connections help people thrive.  Rocky Williams joins to share the power of positivity and what it truly means to be more than "fine," inspiring the bleeding disorders community to dream bigger, aim higher, and embrace life fully. We also break down a major shift in gene therapy: BioMarin's decision to pull Roctavian from the market, what it means for patients, and why preserving critical clinical data is essential for ongoing research and safety.  Tune in for a conversation that blends science, mindset, and community — because living with bleeding disorders is about more than treatments, it's about life itself. Show Notes: BioMarin pulls hemophilia gene therapy Roctavian WFH Gene Therapy Registry LevelsMatter.com   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Research scientist Dr. Bethany Samuelson Bannow talks bodily autonomy, calls for the need for better menstrual tracking methods for individuals with bleeding disorders, and reveals how medical school training often provides minimal education on the period. She encourages listeners to speak openly about their periods to break the stigma, noting that even within religious texts, there are accounts of individuals seeking and receiving healing for heavy bleeding.   Program Notes:   Episode Links: Dr. Bannow https://www.ohsu.edu/providers/bethany-samuelsonbannow-md-mcr#profile-section__about-me Konika Ray Wong's Period Education Book https://girlpowerscience.com/shop/p/oneinamillionbook Dr. Bannow's paper / ASH Publications, re: Anticoagulation in Women: https://ashpublications.org/hematology/article/2022/1/467/493547/Anticoagulant-therapy-for-women-implications-for?guestAccessKey= NIH / Anticoagulation Article by Dr. Bannow https://pubmed.ncbi.nlm.nih.gov/39476970/ PDX Monthly Article about Dr. Bannow's outstanding work: https://www.pdxmonthly.com/health-and-wellness/2024/06/ohsu-menstrual-research-period-products-bethany-samuelson-bannow NBDF Video featuring Dr. Bannow: https://www.youtube.com/watch?v=kyb44gh27Og Dr. Period Hackers https://www.drperiodhackers.com/ Flow with Dr. Period Hackers https://www.youtube.com/watch?v=AuA63YI8RDU Dr. Bannow first to test menstrual blood on period products! https://www.opb.org/article/2023/08/30/ohsu-researchers-test-menstrual-products-with-blood-for-the-first-time/   FLOW Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/ 

Show your support for Hospitality Sector Letter to the ChancellorWhat happens when two people who love a bit of unstructured behaviour get together for a structured conversation?The answer?Lots of unstructured conversationThis week I sat down with Conrad Brunton, founder of Tonic Talent, passionate hospitality advocate, charity champion, networking powerhouse… and a man who clearly believes that if you're going to do something, you might as well do it properly.Before we get into his journey. Conrad is seeking your help. If you have even a tiny sliver of love for Hospitality, please follow the link at the top of the page and put your name to support his open letter to the chancellorTo his story, From washing pots at 14, to running the best fish and chip shop in England (Genuinely), to bankruptcy, to building a respected recruitment business and one of the Midlands' most influential hospitality networks, Conrad's story is packed with resilience, humour, honesty, and a few brilliant war stories.Including… dropping a potato down the shirt of a senior British politician just before he went on stageYes. That actually happened.But underneath the laughs is a deeper conversation about pride in your work, why hospitality people are wired differently, and the importance of standing up for an industry that so many of us love.In this episode, Conrad and I get into…• Starting in hospitality at 14 as a KP and discovering the “buzz” of kitchens• The concept of restaurants being “a cockroach in the bloodstream” (credit: Sir Terence Conran)• Working at incredible places like Simpsons, Malmaison and the Fat Duck• Opening a fish and chip shop, and eventually being named the best in England• What bankruptcy really teaches you about resilience and self-belief• Why recruitment is really about conversations, not CVs• Building Tonic Talent, now celebrating 10 years in hospitality recruitment• Why great recruiters should feel like an extension of your brand• The importance of culture, accountability, and simple things like a good checklist• The incredible power of hospitality communities and networks• Why the industry needs to stand up for itself right now more than everSome cracking quoteables from Conrad“Restaurants are like a cockroach in the bloodstream, once it's there, it never leaves”“If you're going to do something, do it to the absolute best of your ability”“I don't actually like recruitment… I like the conversations”“Treat people the way you'd want to be treated, it's not complicated”“Hospitality people love what they do. Not many industries can say that”Why this episode is worth your earsConrad's journey is a brilliant reminder that hospitality careers are rarely straight lines.They're messy.They're unpredictable.Sometimes they knock you flat.But if hospitality gets into your bloodstream…You tend to find your way back.And along the way you might build something pretty special.Just try not to drop a potato down anyone's shirt.Show PartnersA big shout out to the first of today's show partner, RotaCloud, the people management platform for shift-based teams.RotaCloud lets managers create and share rotas, record attendance, and manage annual leave in minutes — all from a single, web-based app.It makes work simple for your team, too, allowing them to check their rotas, request holiday, and even pick up extra shifts straight from their phones.Try RotaCloud's time-saving tools today by heading to https://rotacloud.com/philThis podcast uses the following third-party services for analysis: Podcorn - https://podcorn.com/privacy

On this episode of BloodStream, we're thrilled to sit down with Connie Montgomery alongside Jeff and Barb for a warm, wide-ranging conversation grounded in lived experience and deep community roots. Together, they reflect on the moments that shape advocacy, the evolution of the bleeding disorders space, and the power of staying connected to one another. Plus, a nod to Rare Disease Day, a bit of BloodStream banter, and a preview of what's ahead. Tune in, share with your community, and as always—take self-care of yourself. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

This season opener explores comprehensive hemophilia care in 2025: what's working, what's strained, and what needs to evolve. Clinicians from the US, UK, and Ireland join host Patrick James Lynch and Dr. Donna DiMichele to discuss treatment personalization, shared decision-making, psychosocial burden, and global sustainability challenges. Guest Megan Iditarod from Nigeria offers perspective on delivering comprehensive care with limited resources, highlighting the universal need for multidisciplinary support and good data collection.   Guests: Megan Iditarod Kate Khair, PhD Amy Dunn, MD Prof Niamh O'Connell, MB PhD   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

On this episode of BloodStream, we get a sneak peek at the 2026 World Congress with Dr. Glenn Pierce, Vice President, Medical at the World Federation of Hemophilia. What conversations are shaping the agenda? Where is the science heading? And how does a global convening like World Congress moves the needle on access, equity, and innovation for people living with bleeding disorders? Dr. Pierce shares why this gathering still matters — and what the community should be watching as 2026 approaches. Plus, in I'm Fine, we sit down with Anthony, a performer and educator living with a bleeding disorder. From invisible disability to grieving the life you imagined, it's a candid conversation about ambition, identity, and learning to stop blaming yourself for what you can't control. Global outlook. Personal reckoning. Classic BloodStream. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS    Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

The conversation highlights propaganda-driven myths about hospital birth, how birth centers / collaborative care models can save lives, and ways listeners can support local birth workers' advocacy efforts. Deliver Us (documentary) shares the journey Black midwives around the country - opening birth centers and demanding justice for Black mothers - visit delvierusdoc.com now to learn more!   Program Notes:   Episode Links: Project Site: https://www.deliverusdoc.com/ Cinequest Screening: https://bit.ly/deliveruscinequest IG www.instagram.com/deliverusdoc Kindred Space LA: https://www.kindredspacela.com/ Birth Sanctuary Gainsville: https://thebirthsanctuary.com/ Chicago South Side Birth Center: https://www.chicagosouthsidebirthcenter.org/ Fourth Tri Sanctuary: https://www.fourthtrisanctuary.com/ Birth Center Equity: https://birthcenterequity.org/   FLOW Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/

En este episodio de Más Que Raras conversamos con Diego Gil Cardozo, ingeniero industrial, líder social y una de las voces más influyentes en la defensa de los derechos de las personas que viven con enfermedades raras en Colombia y América Latina. Diego vive desde hace más de 30 años con hipertensión pulmonar, una experiencia que marcó profundamente su vida y que transformó en una poderosa labor de incidencia. Actualmente es director ejecutivo de FECOER, organización que representa a 51 grupos de pacientes en Colombia, Presidente de ERCAL y miembro del Consejo de Rare Diseases International (RDI), desde donde impulsa cambios estructurales a nivel nacional, regional y global. Una conversación sobre liderazgo, resiliencia y el poder de la voz del paciente. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

Get Dr. Vonda's latest insights on strength, bone health, longevity, and aging with power delivered straight to your inbox. Join her free health & longevity newsletter here: https://www.drvondawright.com/resources/aging-longevity   I've spent years focusing on your external mobility, but I've become obsessed with the world living inside you. We used to think of the gut as just a digestion tube; now we know it's a thriving ecosystem and a metabolic pharmacy that dictates your weight, mood, and longevity. If you're doing "everything right" but still struggling with energy, the issue isn't your willpower, it's your microbiome.   In this episode, I sit down with researcher Dr. Karen Corbin to decode the gut's "black box." We're moving beyond basic digestion to explore how fiber triggers the same satiety hormones as modern weight-loss injections. Stop viewing food as mere calories and start seeing it as fuel for your internal garden. It's time to stop fighting your biology and start partnering with your bacteria to design a resilient future from the inside out. What we cover: - How your gut bacteria produce Butyrate, a "magic" compound that heals the gut and lowers inflammation. - The science of how fiber and resistant starch signal your brain to feel full and satisfied. - Why ultra-processed foods are "too easy" for our bodies to digest, leading to metabolic disaster. - Why "industrial milling" is the hidden enemy of metabolic health, turning even "healthy" grains into rapid glucose spikes by making them too easy to digest. - Why your choices at dinner determine your blood sugar response to breakfast the next morning, proving that your microbiome works on a 12-to-24-hour cycle. - Understanding that because every person's "internal garden" is unique, the same "healthy" food can cause a sugar spike in one person while keeping another perfectly stable. - Exploring the deep connection between the health of your microbiome and the energy-producing engines in your cells that drive your vitality.   About Dr Karen Corbin: Dr. Karen Corbin is a PhD researcher and keynote speaker at the forefront of precision nutrition with Advent Health. She has dedicated her career to decoding the "black box" of the microbiome, revealing how our internal pharmacy dictates metabolic health and longevity.   Connect with Dr Karen Corbin: LinkedIn: linkedin.com/in/karen-corbin-phd-rd-75229111 Website: https://www.geeksthatspeak.com/ Timestamps 00:00 Intro 01:46 Meet Your Microbes: The Colon as a Metabolism 'Show' 05:58 How the Microbiome 'Talks' to You: SCFAs, Bloodstream & the Vagus Nerve 09:28 Feed the Good Guys: Fiber, Mucus Barrier & 'Leaky Gut' Explained 14:23 Aging, Exercise, Antibiotics & Hormones: What Changes in Perimenopause 18:27 Prebiotics vs Probiotics vs Synbiotics: Yogurt, Capsules & What Actually Helps 22:24 Can You Test Your Microbiome? The Limits of Diagnostics & Expensive Probiotics 27:29 Diet Can Remodel Your Gut: The 4 Research-Backed Levers 32:12 Does Food Order Matter? + CGM Lessons on Carbs, Protein, and Spikes 35:48 Practical Breakfast Upgrades: Oats, Flax, Nuts, and Easy Wins 37:00 Calories Aren't One-Size-Fits-All: Microbes, Absorption, and Weight Differences  

ASH 2025 brought a wave of new data — and on this episode, we're digging into what stood out. Patrick and Amy welcome Dr. Akshat Jain to talk through the research, the momentum in hematology, and the conversations coming out of this year's meeting. What's generating excitement? What feels meaningful? And what could shape care moving forward for the bleeding disorders community? If ASH sets the tone for the year ahead, this is your chance to hear how it's sounding. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Patrick and Amy sit down to hear her story—how she first got involved in the bleeding disorders community back in 2003, and how patient advocacy became her passion. Along the way, they share laughs about their unexpected pasts as actors and the moments that shaped their paths. Also on this episode of BloodStream, our hosts also look back on the year in gene therapy, spotlighting patients, clinicians, and researchers who are redefining what's possible, including five-year insights from the HOPE-B study in hemophilia B. This episode is a celebration of hope, trust, and progress—a reminder that hemophilia care isn't just about science, it's about people and the possibilities they create. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World brought to you by @CSLBehring.  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #genetherapy #healthcare #digitalhealth #biotech   Show Notes: Final Analysis of a Study of Etranacogene Dezaparvovec for Hemophilia B https://www.nejm.org/doi/full/10.1056/NEJMoa2514332   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

On this episode of BloodStream, we look back at a year that reshaped the bleeding disorders community. Our Top Stories of 2025 segment explores the biggest shifts, from expanded treatment choices and growing complexity, to hard conversations about safety, trust, and the real-world limits of innovation. We examine gene therapy's reality-check moment, global progress through changes to the WHO Essential Medicines List, and why 2025 marked a turning point for women and girls with bleeding disorders. Also featured, a powerful I'm Fine segment with Makenna Dietrich, who shares how "I'm fine" can hide anxiety and inaction, and why waiting has a cost. Her story is a reminder that speaking up and seeking support can bring clarity and change. Together, these stories capture a year defined by honesty, courage, and a deeper understanding of what progress really asks of us. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy   Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

PMDD (Premenstrual Dysphoric Disorder) goes far beyond typical PMS, causing debilitating symptoms including extreme depression, intrusive thoughts, and reality distortion. FLOW's Sarah and Jessica sit down with Christina de la Riva, who shares her journey with diagnosis, shame, and initially thinking she was just "handling PMS poorly." Cristina also introduces the archetype of Lilith* as a framework for understanding PMDD, emphasizing how Lilith* validates the PMDD experience rather than pathologizing it.    *Often culturally constructed as a symbol of uncontrollable female rage, Lilith is reframed herein as an icon of wisdom, pleasure, and righteous anger.   As always, FLOW includes practical management strategies and a reminder to reach out for community support.    Program Notes:   Episode Links: International Association of Premenstrual Disorder (IAPMD) https://www.iapmd.org/pmdd-not-pms Pleasure Activism https://adriennemareebrown.net/ University of Amnsterdam, Hermetic History Program https://ash.uva.nl/content/research-groups/history-of-hermetic-philosophy-and-related-currents/history-of-hermetic-philosophy-and-related-currents.html The Montrose Center / TX https://montrosecenter.org/ Guest IG https://www.instagram.com/cristinadelariva/ Guest Linkedin https://www.linkedin.com/in/cristinadelariva27/     How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/   

En este episodio especial de Más Que Raras, las anfitrionas Deborah Requesens y Victoria Arteaga se sientan juntas para una conversación honesta y cercana sobre el camino que las llevó a crear este espacio, las historias que han vivido juntas y los desafíos que siguen enfrentando las comunidades que viven con enfermedades raras. A lo largo del episodio, Vicky y Debbie reflexionan sobre la falta de representación de las familias hispanas en la investigación y la atención médica, el poder del lenguaje y la narrativa en la abogacía, y el impacto emocional de acompañar a pacientes y cuidadores desde distintos roles profesionales. Este episodio es una invitación a conocer más a las voces detrás de Más Que Raras: por qué existe este podcast, qué aprendizajes han surgido de cada conversación y cómo imaginan el futuro de la participación de pacientes, la investigación y la equidad en salud para las enfermedades raras. Un episodio íntimo, reflexivo y necesario para quienes creen en el poder de las historias para generar cambio.   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Other information: Sociedad Hispana de Enfermedades Raras: https://www.hispanicsocietyrarediseases.org/ Cure Syngap1 https://curesyngap1.org/ Orphan Disease Center https://www.orphandiseasecenter.med.upenn.edu/  

Two garbage trucks of plastic hit the ocean every minute. Microplastics are in your brain. Recycling doesn't work. What the plastic industry never told you. Read More: www.WhoWhatWhy.org

In this special year-end episode of the Bloodstream Podcast, Patrick and guest host Mark Pangilinan conclude their powerful three-part Blood Brother series featuring the voices and stories of men living with bleeding disorders across the country. Together, they explore themes of complicated grief, advocacy, identity, fatherhood, discrimination, and the emotional realities that often go unspoken within the community. Listeners will also hear the latest installment of the Gene Therapy: A Whole New World segment, where Dr. Margaret Ragni and Dr. Richard Lemons break down new long-term data, future technologies, and where gene therapy may be heading next. It's an honest, heartfelt, and hopeful finale that celebrates vulnerability, connection, and the collective strength of the bleeding disorders community.    Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Gene Therapy Segment It's a Whole New World brought to you by @CSLBehring.  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #genetherapy #healthcare #digitalhealth #biotech Show Notes: To meet members of the community and to hear more about their hemophilia A journey, head to www.hemophiliacommunity.com   Final Analysis of a Study of Etranacogene Dezaparvovec for Hemophilia B   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

On this episode of BloodStream, Cheri Clark opens up about juggling life as a nurse, patient, caregiver, and board member, all while managing her own health. She shares the pressure of always saying "I'm fine," the moments she's pushed past her limits, and the lessons she's learning about setting boundaries that actually stick. We also hear from Nicole Angeles, reflecting on her second pregnancy with vWD—a very different experience than her first.    Together, their stories offer honest, grounded insights into balancing responsibilities, navigating health challenges, and finding your footing when life keeps shifting.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy Show Notes: Rareblooddisorders.com   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

In this episode, hosts Jessica and Sarah FLOW with guest Amy Gaston to explore the groundbreaking future of menstrual aid. Join us to understand the science behind OhmBody's device, its impact on reducing blood loss - and how OhmBody's tech can improve overall quality of life for menstruators.  Amy Gaston highlights the need for better menstrual education and research, and aims for a future where managing periods becomes seamless and integrated into daily life, "because life doesn't stop when you start."    Program Notes:   Episode Links: Ohm Body https://go.ohmbody.com/FLOW Re: neurostimulation https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2025.1664433/full What is a PBAC? https://elearning.wfh.org/resource/pictorial-blood-loss-assessment-chart/ Pictoral Blood Assessment Chart https://hemophiliafed.org/wp-content/uploads/2023/08/PBAC_Weekly_Revised_08.23.23.pdf OhmBody Socials: Ohm Body IG https://www.instagram.com/ohm.body Ohm Body FB https://www.facebook.com/getohmbody/ Ohm Body TT https://www.tiktok.com/@ohmbody   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/   

This episode of the Bloodstream Podcast continues the Blood Brother Collaboration, featuring candid conversations among men living with bleeding disorders. Guests share personal stories of resilience, complicated grief, and the importance of community support. The discussion highlights the unique challenges faced across the lifespan, from childhood through aging, and emphasizes the value of open dialogue and mental health awareness. Listeners are encouraged to connect, share, and support one another through the Blood Brotherhood program and broader community resources. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Show Notes:   To meet members of the community and to hear more about their hemophilia A journey, head to www.hemophiliacommunity.com Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

This magnet-powered micro-robot could soon swim through your bloodstream Scientists discover first gene proven to directly cause mental illness Save on the perfect Holiday gift by visiting AuraFrames.com to get $35 off Aura's best-selling Carver Mat frames - named #1 by Wirecutter -  by using promo code COOLSTUFF at checkout. Contact the Show: coolstuffdailypodcast@gmail.com Learn more about your ad choices. Visit megaphone.fm/adchoices

On this special episode of the Bloodstream Podcast, hosts Patrick James Lynch and Marc Pangilinan kick off a three-part Blood Brother Collaboration, featuring heartfelt stories and insights from men across the bleeding disorders community. The discussion centers on lived experiences, including complicated grief, joining the community, wearing multiple hats, and challenges across the lifespan. Listeners will hear candid conversations about overcoming obstacles, building support networks, and the evolution of treatment and community resources. Tune in for an inspiring and honest look at life with bleeding disorders, and discover valuable resources and support along the way. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.  Show Notes:   To meet members of the community and to hear more about their hemophilia A journey, head to www.hemophiliacommunity.com Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

In this episode of BloodStream, we look back at the history of gene therapy and highlight key voices from Portraits of Progress. We also share the story behind I'm Fine, featuring community advocate Benjamin Denman, recently honored at the Hope Gala. Plus, we introduce HFA's new Voice of the Community initiative and how you can get involved in shaping the future of bleeding disorders care and advocacy. Tune in and join us in reflecting on where we've been, where we are, and where our community is heading next. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.   "I'm Fine" Segment I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy Show Notes: Portraits of Progress: https://www.portraitsofprogress.com/  HFA Voice of Community: https://www.hemophiliafed.org/voice-of-the-community/    Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

In this special episode, host Patrick James Lynch reflects on turning forty…and on forty years of life with hemophilia. Joined by Dr. Donna DiMichele, Patrick traces the parallel evolution of his own experience and the hemophilia community's journey through crisis, discovery, and innovation. From the HIV epidemic of the 1980s to the arrival of gene therapy and digital health, they explore how science, data, and humanity have shaped the story of hemophilia. Together, they ask: what have we learned, what still can't be measured, and what might the next forty years hold? Guests: Donna DiMichele, MD   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   Join Kevin as he shares about his journey with hemophilia and the hurdles he faced in communicating with friends, family, and healthcare providers about his condition. He highlights how hemophilia affects far more than just physical health — and why honest, open conversations that focus on the full patient experience, not just symptoms, are so essential.   Click here to watch his story: https://www.youtube.com/watch?v=3v1cCTbhClA&list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&index=5   Rich's Story Join Rich as he discusses how hemophilia has impacted his ability to travel and live an active lifestyle. He highlights how hemophilia affects far more than just physical health and shares his journey of overcoming barriers to be able to safely travel internationally, fly fish, garden, and more.    Click here to watch his story: https://www.youtube.com/watch?v=ihEvFywE43E&list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&index=8   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

Sepsis and bloodstream infections (BSIs) are common and cause millions of deaths each year, with a disproportionate burden in low-income and middle-income countries. Tune in to learn from Jasmine R. Marcelin, MD, FACP, FIDSA, how inadequate antibiotic coverage can be linked to increased mortality and length of stay and how unnecessary broad-spectrum antibiotics can drive antimicrobial resistance. Topics covered include:The worldwide burden of sepsis and BSIsThe ongoing threat of antimicrobial resistanceUS and global health disparities in sepsis, BSI, and antimicrobial resistanceBarriers toward optimizing antibiotic use in BSIsPresenter:Jasmine R. Marcelin, MD, FACP, FIDSAAssociate Professor, Infectious DiseaseAssociate Medical Director, Antimicrobial Stewardship ProgramVice Chair for Belonging and Community Engagement, Department of Internal MedicineCo-Director, Digital Innovation & Social Media Strategy, Division of Infectious DiseasesUniversity of Nebraska Medical CenterOmaha, NebraskaLink to full program and downloadable slides:https://bit.ly/4inoXCxGet access to all of our new podcasts by subscribing to the CCO Infectious Disease Podcast on Apple Podcasts, Google Podcasts, or Spotify.  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Unnecessary broad-spectrum antibiotics can drive antimicrobial resistance and cause adverse events, whereas inadequate antibiotic coverage is linked to increased mortality and length of stay for patients with bloodstream infections (BSIs). Listen now to learn from Jose Alexander, MD, D(ABMM), CIC, FCCM, SM/MB(ASCP), how to use rapid genotypic and phenotypic antimicrobial susceptibility testing results to inform antibiotic selection for patients with gram-negative BSIs. Topics covered include:Typical patterns of intrinsic antibiotic susceptibility and resistance in EnterobacteralesMechanisms of resistance in gram-negative bacteriaGenotypic rapid diagnostic tests for BSIsResistance markers for earlier targeted therapyRapid phenotypic antimicrobial susceptibility test platforms for blood culturesPresenter:Jose Alexander, MD, D(ABMM), CIC, FCCM, SM/MB(ASCP)Medical and Public Health MicrobiologistMedical and Technical Director of MicrobiologyAdventHealthOrlando, FloridaLink to full program and downloadable slides:https://bit.ly/4inoXCxGet access to all of our new podcasts by subscribing to the CCO Infectious Disease Podcast on Apple Podcasts, Google Podcasts, or Spotify. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

This week on BloodStream, we're talking to changemakers. Elsa and Ann Kendall from The Red Ink Project share how they're shifting the story for women and girls in bleeding disorders. And advocate Lanre Tunji-Ajayi joins us to discuss building global networks for sickle cell and other inherited blood disorders. A conversation about voice, visibility, and what it takes to lead. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Red Ink Project  Global Action Network for Sickle Cell and Other Inherited Blood Disorders  Subscribe: The BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan! Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recurring lack of testing for rare conditions.  Program Notes:   Episode Links: The New Menopause by Claire Harver https://thepauselife.com/pages/the-new-menopause-book Bloodstream Media: https://www.bloodstreammedia.com/ HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/ 

Art and science collide on this episode of BloodStream Podcast! Hosts Patrick James Lynch and Amy Board bring stories that inspire and inform the bleeding disorders community. Patty Weltin and the Beyond the Diagnosis exhibit show how artists bring portraits of children with life-altering diseases to life. These works travel to hospitals, medical schools, galleries, and museums, raising awareness and sparking connection. Hanna sits down with genetic counselor Kaylee Dollarshell to talk gene therapy—the science, the emotions, and the big decisions families face. A real, behind-the-scenes look at navigating this treatment. Next time: Hear from Else and Ann Kendall of The Red Ink Project, sharing stories that will challenge how you think about patient advocacy. Don't miss this episode packed with insight, inspiration, and real stories shaping the future of bleeding disorders care.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes: https://www.beyondthediagnosis.org/ https://findageneticcounselor.nsgc.org/?reload=timezone    Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan! Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recuring lack of testing for rare conditions.  Program Notes: Episode Links: Bloodstream Media: https://www.bloodstreammedia.com/ HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/ On Burnout / Emily Nagoski: https://www.ted.com/talks/emily_nagoski_and_amelia_nagoski_the_cure_for_burnout_hint_it_isn_t_self_care How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/   

We're live at BDC!  Host Amy Board take you straight to the exhibit hall floor, chatting with doctors like Drs. Quon, Sidonio, and Radak, plus patient advocates Collin Johnson and Matt Capsel. From man-on-the-street interviews to a touching story from Greg, this episode reminds us all to run—not walk—towards science. Join us for real conversations, patient perspectives, and insights on gene therapy, joint health, and life in the bleeding disorders community. Next up: An inspiring interview with Patty Weltin and the “Beyond the Diagnosis” art exhibit.   Don't miss this insightful, energizing episode that dives into the future of bleeding disorders care.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

On this episode of BloodStream, hosts Patrick James Lynch and Amy Board share stories of remarkable achievement and progress in bleeding disorders. Hear from Tim Stowers, a severe hemophilia A patient who has summited Everest and completed solo English Channel swims, as he shares his journey of resilience and determination. Plus, get the latest updates on Star Therapeutics' lead VWD therapy, now entering a pivotal Phase 3 trial, and learn how patients can help shape the first validated VWD quality-of-life assessment tool.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes:   Star's Pivotal Phase 3 Study (VIVID-6) Initiated:   VGA039 is the first subcutaneous therapy, dosed once monthly, that has the potential to address all types of VWD and all types of bleeds. It has also received Fast Track and orphan drug designation from the United States Food and Drug Administration (FDA). The additional investment announced today supports our continued global clinical expansion as we advance into our pivotal, Phase 3 trial.   Explore clinical trial eligibility: visit THIS WEBSITE    To participate in the first validated VWD quality of life patient-reported outcome tool, please e-mail Judith.Monickaraj@chet.rochester.edu to learn more. Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

On this episode of BloodStream, we explore the World Health Organization's updates to the Essential Medicines List and what they mean for bleeding disorders care. Hemophilia B mom and creator Jesseca Lockie shares her perspective on advocacy and storytelling online, while Domenic and his mom open up about how gene therapy has transformed his daily life. Real stories, important updates, and conversations shaping the bleeding disorders community.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

A new study reveals that virtually every American now carries toxic PFAS chemicals in their blood. Jefferey explains where these “forever chemicals” come from, and why the EPA is finally being forced to act.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-highwire-with-del-bigtree--3620606/support.