Podcasts about bloodstream

Organ system for circulating blood in animals

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Best podcasts about bloodstream

Latest podcast episodes about bloodstream

BloodStream
Psychosocial support and bye bye, BioMarin

BloodStream

Play Episode Listen Later Mar 13, 2026 48:12


Bleeding disorders aren't just medical conditions — they're lived experiences shaped by resilience, community, and support. On this episode of BloodStream Podcast, Patrick James Lynch sits down with the WFH working group to explore why psychosocial care matters just as much as medicine and how human connections help people thrive.  Rocky Williams joins to share the power of positivity and what it truly means to be more than "fine," inspiring the bleeding disorders community to dream bigger, aim higher, and embrace life fully. We also break down a major shift in gene therapy: BioMarin's decision to pull Roctavian from the market, what it means for patients, and why preserving critical clinical data is essential for ongoing research and safety.  Tune in for a conversation that blends science, mindset, and community — because living with bleeding disorders is about more than treatments, it's about life itself. Show Notes: BioMarin pulls hemophilia gene therapy Roctavian WFH Gene Therapy Registry LevelsMatter.com   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

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FLOW - straight talk about extreme periods
Believing Data: the Study of the Female Body - with Dr. Bethany Samuelson Bannow, M.D., M.C.R.

FLOW - straight talk about extreme periods

Play Episode Listen Later Mar 12, 2026 44:36


Research scientist Dr. Bethany Samuelson Bannow talks bodily autonomy, calls for the need for better menstrual tracking methods for individuals with bleeding disorders, and reveals how medical school training often provides minimal education on the period. She encourages listeners to speak openly about their periods to break the stigma, noting that even within religious texts, there are accounts of individuals seeking and receiving healing for heavy bleeding.   Program Notes:   Episode Links: Dr. Bannow https://www.ohsu.edu/providers/bethany-samuelsonbannow-md-mcr#profile-section__about-me Konika Ray Wong's Period Education Book https://girlpowerscience.com/shop/p/oneinamillionbook Dr. Bannow's paper / ASH Publications, re: Anticoagulation in Women: https://ashpublications.org/hematology/article/2022/1/467/493547/Anticoagulant-therapy-for-women-implications-for?guestAccessKey= NIH / Anticoagulation Article by Dr. Bannow https://pubmed.ncbi.nlm.nih.gov/39476970/ PDX Monthly Article about Dr. Bannow's outstanding work: https://www.pdxmonthly.com/health-and-wellness/2024/06/ohsu-menstrual-research-period-products-bethany-samuelson-bannow NBDF Video featuring Dr. Bannow: https://www.youtube.com/watch?v=kyb44gh27Og Dr. Period Hackers https://www.drperiodhackers.com/ Flow with Dr. Period Hackers https://www.youtube.com/watch?v=AuA63YI8RDU Dr. Bannow first to test menstrual blood on period products! https://www.opb.org/article/2023/08/30/ohsu-researchers-test-menstrual-products-with-blood-for-the-first-time/   FLOW Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/ 

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Hospitality Meets... with Phil Street
#246 - Hospitality Meets Conrad Brunton - Cockroaches in the Bloodstream

Hospitality Meets... with Phil Street

Play Episode Listen Later Mar 11, 2026 62:14


Show your support for Hospitality Sector Letter to the ChancellorWhat happens when two people who love a bit of unstructured behaviour get together for a structured conversation?The answer?Lots of unstructured conversationThis week I sat down with Conrad Brunton, founder of Tonic Talent, passionate hospitality advocate, charity champion, networking powerhouse… and a man who clearly believes that if you're going to do something, you might as well do it properly.Before we get into his journey. Conrad is seeking your help. If you have even a tiny sliver of love for Hospitality, please follow the link at the top of the page and put your name to support his open letter to the chancellorTo his story, From washing pots at 14, to running the best fish and chip shop in England (Genuinely), to bankruptcy, to building a respected recruitment business and one of the Midlands' most influential hospitality networks, Conrad's story is packed with resilience, humour, honesty, and a few brilliant war stories.Including… dropping a potato down the shirt of a senior British politician just before he went on stageYes. That actually happened.But underneath the laughs is a deeper conversation about pride in your work, why hospitality people are wired differently, and the importance of standing up for an industry that so many of us love.In this episode, Conrad and I get into…• Starting in hospitality at 14 as a KP and discovering the “buzz” of kitchens• The concept of restaurants being “a cockroach in the bloodstream” (credit: Sir Terence Conran)• Working at incredible places like Simpsons, Malmaison and the Fat Duck• Opening a fish and chip shop, and eventually being named the best in England• What bankruptcy really teaches you about resilience and self-belief• Why recruitment is really about conversations, not CVs• Building Tonic Talent, now celebrating 10 years in hospitality recruitment• Why great recruiters should feel like an extension of your brand• The importance of culture, accountability, and simple things like a good checklist• The incredible power of hospitality communities and networks• Why the industry needs to stand up for itself right now more than everSome cracking quoteables from Conrad“Restaurants are like a cockroach in the bloodstream, once it's there, it never leaves”“If you're going to do something, do it to the absolute best of your ability”“I don't actually like recruitment… I like the conversations”“Treat people the way you'd want to be treated, it's not complicated”“Hospitality people love what they do. Not many industries can say that”Why this episode is worth your earsConrad's journey is a brilliant reminder that hospitality careers are rarely straight lines.They're messy.They're unpredictable.Sometimes they knock you flat.But if hospitality gets into your bloodstream…You tend to find your way back.And along the way you might build something pretty special.Just try not to drop a potato down anyone's shirt.Show PartnersA big shout out to the first of today's show partner, RotaCloud, the people management platform for shift-based teams.RotaCloud lets managers create and share rotas, record attendance, and manage annual leave in minutes — all from a single, web-based app.It makes work simple for your team, too, allowing them to check their rotas, request holiday, and even pick up extra shifts straight from their phones.Try RotaCloud's time-saving tools today by heading to https://rotacloud.com/philThis podcast uses the following third-party services for analysis: Podcorn - https://podcorn.com/privacy

BloodStream
Jeff & Barb with Connie Montgomery!

BloodStream

Play Episode Listen Later Feb 27, 2026 31:04


On this episode of BloodStream, we're thrilled to sit down with Connie Montgomery alongside Jeff and Barb for a warm, wide-ranging conversation grounded in lived experience and deep community roots. Together, they reflect on the moments that shape advocacy, the evolution of the bleeding disorders space, and the power of staying connected to one another. Plus, a nod to Rare Disease Day, a bit of BloodStream banter, and a preview of what's ahead. Tune in, share with your community, and as always—take self-care of yourself. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Global Hemophilia Report
The Future of Comprehensive Care

Global Hemophilia Report

Play Episode Listen Later Feb 26, 2026 45:59


This season opener explores comprehensive hemophilia care in 2025: what's working, what's strained, and what needs to evolve. Clinicians from the US, UK, and Ireland join host Patrick James Lynch and Dr. Donna DiMichele to discuss treatment personalization, shared decision-making, psychosocial burden, and global sustainability challenges. Guest Megan Iditarod from Nigeria offers perspective on delivering comprehensive care with limited resources, highlighting the universal need for multidisciplinary support and good data collection.   Guests: Megan Iditarod Kate Khair, PhD Amy Dunn, MD Prof Niamh O'Connell, MB PhD   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

BloodStream
A preview of 2026 World Congress with Dr. Glenn Pierce

BloodStream

Play Episode Listen Later Feb 20, 2026 33:19


On this episode of BloodStream, we get a sneak peek at the 2026 World Congress with Dr. Glenn Pierce, Vice President, Medical at the World Federation of Hemophilia. What conversations are shaping the agenda? Where is the science heading? And how does a global convening like World Congress moves the needle on access, equity, and innovation for people living with bleeding disorders? Dr. Pierce shares why this gathering still matters — and what the community should be watching as 2026 approaches. Plus, in I'm Fine, we sit down with Anthony, a performer and educator living with a bleeding disorder. From invisible disability to grieving the life you imagined, it's a candid conversation about ambition, identity, and learning to stop blaming yourself for what you can't control. Global outlook. Personal reckoning. Classic BloodStream. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS    Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

FLOW - straight talk about extreme periods
Support your local Black birth workers!

FLOW - straight talk about extreme periods

Play Episode Listen Later Feb 19, 2026 36:43


The conversation highlights propaganda-driven myths about hospital birth, how birth centers / collaborative care models can save lives, and ways listeners can support local birth workers' advocacy efforts. Deliver Us (documentary) shares the journey Black midwives around the country - opening birth centers and demanding justice for Black mothers - visit delvierusdoc.com now to learn more!   Program Notes:   Episode Links: Project Site: https://www.deliverusdoc.com/ Cinequest Screening: https://bit.ly/deliveruscinequest IG www.instagram.com/deliverusdoc Kindred Space LA: https://www.kindredspacela.com/ Birth Sanctuary Gainsville: https://thebirthsanctuary.com/ Chicago South Side Birth Center: https://www.chicagosouthsidebirthcenter.org/ Fourth Tri Sanctuary: https://www.fourthtrisanctuary.com/ Birth Center Equity: https://birthcenterequity.org/   FLOW Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/

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Mas Que Raras
Desde Colombia al mundo: Hablando de liderazgo y abogacía en enfermedades raras con Diego Gil Cardozo

Mas Que Raras

Play Episode Listen Later Feb 18, 2026 30:08


En este episodio de Más Que Raras conversamos con Diego Gil Cardozo, ingeniero industrial, líder social y una de las voces más influyentes en la defensa de los derechos de las personas que viven con enfermedades raras en Colombia y América Latina. Diego vive desde hace más de 30 años con hipertensión pulmonar, una experiencia que marcó profundamente su vida y que transformó en una poderosa labor de incidencia. Actualmente es director ejecutivo de FECOER, organización que representa a 51 grupos de pacientes en Colombia, Presidente de ERCAL y miembro del Consejo de Rare Diseases International (RDI), desde donde impulsa cambios estructurales a nivel nacional, regional y global. Una conversación sobre liderazgo, resiliencia y el poder de la voz del paciente. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

HOT for Your Health - AUDIO version
Gut Health After 40: 4 Science-Backed Ways to Fix Your Microbiome | Dr. Karen Corbin | #148

HOT for Your Health - AUDIO version

Play Episode Listen Later Feb 17, 2026 43:15


Get Dr. Vonda's latest insights on strength, bone health, longevity, and aging with power delivered straight to your inbox. Join her free health & longevity newsletter here: https://www.drvondawright.com/resources/aging-longevity   I've spent years focusing on your external mobility, but I've become obsessed with the world living inside you. We used to think of the gut as just a digestion tube; now we know it's a thriving ecosystem and a metabolic pharmacy that dictates your weight, mood, and longevity. If you're doing "everything right" but still struggling with energy, the issue isn't your willpower, it's your microbiome.   In this episode, I sit down with researcher Dr. Karen Corbin to decode the gut's "black box." We're moving beyond basic digestion to explore how fiber triggers the same satiety hormones as modern weight-loss injections. Stop viewing food as mere calories and start seeing it as fuel for your internal garden. It's time to stop fighting your biology and start partnering with your bacteria to design a resilient future from the inside out. What we cover: - How your gut bacteria produce Butyrate, a "magic" compound that heals the gut and lowers inflammation. - The science of how fiber and resistant starch signal your brain to feel full and satisfied. - Why ultra-processed foods are "too easy" for our bodies to digest, leading to metabolic disaster. - Why "industrial milling" is the hidden enemy of metabolic health, turning even "healthy" grains into rapid glucose spikes by making them too easy to digest. - Why your choices at dinner determine your blood sugar response to breakfast the next morning, proving that your microbiome works on a 12-to-24-hour cycle. - Understanding that because every person's "internal garden" is unique, the same "healthy" food can cause a sugar spike in one person while keeping another perfectly stable. - Exploring the deep connection between the health of your microbiome and the energy-producing engines in your cells that drive your vitality.   About Dr Karen Corbin: Dr. Karen Corbin is a PhD researcher and keynote speaker at the forefront of precision nutrition with Advent Health. She has dedicated her career to decoding the "black box" of the microbiome, revealing how our internal pharmacy dictates metabolic health and longevity.   Connect with Dr Karen Corbin: LinkedIn: linkedin.com/in/karen-corbin-phd-rd-75229111 Website: https://www.geeksthatspeak.com/ Timestamps 00:00 Intro 01:46 Meet Your Microbes: The Colon as a Metabolism 'Show' 05:58 How the Microbiome 'Talks' to You: SCFAs, Bloodstream & the Vagus Nerve 09:28 Feed the Good Guys: Fiber, Mucus Barrier & 'Leaky Gut' Explained 14:23 Aging, Exercise, Antibiotics & Hormones: What Changes in Perimenopause 18:27 Prebiotics vs Probiotics vs Synbiotics: Yogurt, Capsules & What Actually Helps 22:24 Can You Test Your Microbiome? The Limits of Diagnostics & Expensive Probiotics 27:29 Diet Can Remodel Your Gut: The 4 Research-Backed Levers 32:12 Does Food Order Matter? + CGM Lessons on Carbs, Protein, and Spikes 35:48 Practical Breakfast Upgrades: Oats, Flax, Nuts, and Easy Wins 37:00 Calories Aren't One-Size-Fits-All: Microbes, Absorption, and Weight Differences  

BloodStream
ASH 2025 Highlights

BloodStream

Play Episode Listen Later Feb 13, 2026 39:22


ASH 2025 brought a wave of new data — and on this episode, we're digging into what stood out. Patrick and Amy welcome Dr. Akshat Jain to talk through the research, the momentum in hematology, and the conversations coming out of this year's meeting. What's generating excitement? What feels meaningful? And what could shape care moving forward for the bleeding disorders community? If ASH sets the tone for the year ahead, this is your chance to hear how it's sounding. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
Amy's History in Hemophilia

BloodStream

Play Episode Listen Later Jan 23, 2026 37:52


Patrick and Amy sit down to hear her story—how she first got involved in the bleeding disorders community back in 2003, and how patient advocacy became her passion. Along the way, they share laughs about their unexpected pasts as actors and the moments that shaped their paths. Also on this episode of BloodStream, our hosts also look back on the year in gene therapy, spotlighting patients, clinicians, and researchers who are redefining what's possible, including five-year insights from the HOPE-B study in hemophilia B. This episode is a celebration of hope, trust, and progress—a reminder that hemophilia care isn't just about science, it's about people and the possibilities they create. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World brought to you by @CSLBehring.  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #genetherapy #healthcare #digitalhealth #biotech   Show Notes: Final Analysis of a Study of Etranacogene Dezaparvovec for Hemophilia B https://www.nejm.org/doi/full/10.1056/NEJMoa2514332   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Talk Cocktail
From Ocean to Bloodstream: The Truth About Plastic

Talk Cocktail

Play Episode Listen Later Jan 17, 2026 41:00


Two garbage trucks of plastic hit the ocean every minute. Microplastics are in your brain. Recycling doesn't work. What the plastic industry never told you.In this WhoWhatWhy podcast, former EPA Regional Administrator Judith Enck pulls back the curtain on an industry built on deception. Her new book, The Problem with Plastic, connects dots most people miss — between fracking booms and plastic floods, between what you're told to recycle and what actually happens, between industry promises and courtroom battles that reveal decades of lies.You think you know about plastic pollution. You've heard about ocean gyres, you recycle diligently, maybe you switched to a reusable water bottle. But here's what they haven't told you: Two garbage trucks worth of plastic enter the ocean every minute. Recycling? It's a lie — only 5-6 percent of plastic actually gets recycled, and the industry has known this since the 1970s.Chemical recycling, the new salvation, doesn't work. And those microplastics aren't just in fish anymore — they're in your brain, your heart arteries, your kidneys, with no known way to get them out. Get full access to Talk Cocktail Podcast at jeffschechtman.substack.com/subscribe

BloodStream
Top Bleeding Disorders Stories of 2025

BloodStream

Play Episode Listen Later Jan 16, 2026 34:55


On this episode of BloodStream, we look back at a year that reshaped the bleeding disorders community. Our Top Stories of 2025 segment explores the biggest shifts, from expanded treatment choices and growing complexity, to hard conversations about safety, trust, and the real-world limits of innovation. We examine gene therapy's reality-check moment, global progress through changes to the WHO Essential Medicines List, and why 2025 marked a turning point for women and girls with bleeding disorders. Also featured, a powerful I'm Fine segment with Makenna Dietrich, who shares how "I'm fine" can hide anxiety and inaction, and why waiting has a cost. Her story is a reminder that speaking up and seeking support can bring clarity and change. Together, these stories capture a year defined by honesty, courage, and a deeper understanding of what progress really asks of us. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy   Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

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FLOW - straight talk about extreme periods
Navigating Extremes / PMDD - empowerment through the Lilith Lens

FLOW - straight talk about extreme periods

Play Episode Listen Later Jan 15, 2026 42:46


PMDD (Premenstrual Dysphoric Disorder) goes far beyond typical PMS, causing debilitating symptoms including extreme depression, intrusive thoughts, and reality distortion. FLOW's Sarah and Jessica sit down with Christina de la Riva, who shares her journey with diagnosis, shame, and initially thinking she was just "handling PMS poorly." Cristina also introduces the archetype of Lilith* as a framework for understanding PMDD, emphasizing how Lilith* validates the PMDD experience rather than pathologizing it.    *Often culturally constructed as a symbol of uncontrollable female rage, Lilith is reframed herein as an icon of wisdom, pleasure, and righteous anger.   As always, FLOW includes practical management strategies and a reminder to reach out for community support.    Program Notes:   Episode Links: International Association of Premenstrual Disorder (IAPMD) https://www.iapmd.org/pmdd-not-pms Pleasure Activism https://adriennemareebrown.net/ University of Amnsterdam, Hermetic History Program https://ash.uva.nl/content/research-groups/history-of-hermetic-philosophy-and-related-currents/history-of-hermetic-philosophy-and-related-currents.html The Montrose Center / TX https://montrosecenter.org/ Guest IG https://www.instagram.com/cristinadelariva/ Guest Linkedin https://www.linkedin.com/in/cristinadelariva27/     How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/   

Mas Que Raras
De América Latina al mundo: Voces, historias y futuro de Más Que Raras con Vicky Arteaga y Debbie Requesens

Mas Que Raras

Play Episode Listen Later Jan 14, 2026 33:58


En este episodio especial de Más Que Raras, las anfitrionas Deborah Requesens y Victoria Arteaga se sientan juntas para una conversación honesta y cercana sobre el camino que las llevó a crear este espacio, las historias que han vivido juntas y los desafíos que siguen enfrentando las comunidades que viven con enfermedades raras. A lo largo del episodio, Vicky y Debbie reflexionan sobre la falta de representación de las familias hispanas en la investigación y la atención médica, el poder del lenguaje y la narrativa en la abogacía, y el impacto emocional de acompañar a pacientes y cuidadores desde distintos roles profesionales. Este episodio es una invitación a conocer más a las voces detrás de Más Que Raras: por qué existe este podcast, qué aprendizajes han surgido de cada conversación y cómo imaginan el futuro de la participación de pacientes, la investigación y la equidad en salud para las enfermedades raras. Un episodio íntimo, reflexivo y necesario para quienes creen en el poder de las historias para generar cambio.   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Other information: Sociedad Hispana de Enfermedades Raras: https://www.hispanicsocietyrarediseases.org/ Cure Syngap1 https://curesyngap1.org/ Orphan Disease Center https://www.orphandiseasecenter.med.upenn.edu/  

WhoWhatWhy's Podcasts
From Ocean to Bloodstream: The Reality About Plastic

WhoWhatWhy's Podcasts

Play Episode Listen Later Jan 8, 2026 41:01


Two garbage trucks of plastic hit the ocean every minute. Microplastics are in your brain. Recycling doesn't work. What the plastic industry never told you. Read More: www.WhoWhatWhy.org

BloodStream
Blood Brothers - Part 3

BloodStream

Play Episode Listen Later Dec 26, 2025 58:53


In this special year-end episode of the Bloodstream Podcast, Patrick and guest host Mark Pangilinan conclude their powerful three-part Blood Brother series featuring the voices and stories of men living with bleeding disorders across the country. Together, they explore themes of complicated grief, advocacy, identity, fatherhood, discrimination, and the emotional realities that often go unspoken within the community. Listeners will also hear the latest installment of the Gene Therapy: A Whole New World segment, where Dr. Margaret Ragni and Dr. Richard Lemons break down new long-term data, future technologies, and where gene therapy may be heading next. It's an honest, heartfelt, and hopeful finale that celebrates vulnerability, connection, and the collective strength of the bleeding disorders community.    Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Gene Therapy Segment It's a Whole New World brought to you by @CSLBehring.  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #genetherapy #healthcare #digitalhealth #biotech Show Notes: To meet members of the community and to hear more about their hemophilia A journey, head to www.hemophiliacommunity.com   Final Analysis of a Study of Etranacogene Dezaparvovec for Hemophilia B   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
The Stress of Shifting Roles with Cheri Clark

BloodStream

Play Episode Listen Later Dec 19, 2025 50:15


On this episode of BloodStream, Cheri Clark opens up about juggling life as a nurse, patient, caregiver, and board member, all while managing her own health. She shares the pressure of always saying "I'm fine," the moments she's pushed past her limits, and the lessons she's learning about setting boundaries that actually stick. We also hear from Nicole Angeles, reflecting on her second pregnancy with vWD—a very different experience than her first.    Together, their stories offer honest, grounded insights into balancing responsibilities, navigating health challenges, and finding your footing when life keeps shifting.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy Show Notes: Rareblooddisorders.com   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

FLOW - straight talk about extreme periods
Transformative Tech for Menstrual Health - OhmBody's Neurostimulation

FLOW - straight talk about extreme periods

Play Episode Listen Later Dec 18, 2025 41:19


In this episode, hosts Jessica and Sarah FLOW with guest Amy Gaston to explore the groundbreaking future of menstrual aid. Join us to understand the science behind OhmBody's device, its impact on reducing blood loss - and how OhmBody's tech can improve overall quality of life for menstruators.  Amy Gaston highlights the need for better menstrual education and research, and aims for a future where managing periods becomes seamless and integrated into daily life, "because life doesn't stop when you start."    Program Notes:   Episode Links: Ohm Body https://go.ohmbody.com/FLOW Re: neurostimulation https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2025.1664433/full What is a PBAC? https://elearning.wfh.org/resource/pictorial-blood-loss-assessment-chart/ Pictoral Blood Assessment Chart https://hemophiliafed.org/wp-content/uploads/2023/08/PBAC_Weekly_Revised_08.23.23.pdf OhmBody Socials: Ohm Body IG https://www.instagram.com/ohm.body Ohm Body FB https://www.facebook.com/getohmbody/ Ohm Body TT https://www.tiktok.com/@ohmbody   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/   

BloodStream
Blood Brothers - Part 2

BloodStream

Play Episode Listen Later Dec 12, 2025 37:28


This episode of the Bloodstream Podcast continues the Blood Brother Collaboration, featuring candid conversations among men living with bleeding disorders. Guests share personal stories of resilience, complicated grief, and the importance of community support. The discussion highlights the unique challenges faced across the lifespan, from childhood through aging, and emphasizes the value of open dialogue and mental health awareness. Listeners are encouraged to connect, share, and support one another through the Blood Brotherhood program and broader community resources. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Show Notes:   To meet members of the community and to hear more about their hemophilia A journey, head to www.hemophiliacommunity.com Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Kottke Ride Home
A Robot That Swims Through Your Bloodstream To Deliver Medication & A Gene Responsible for Mental Illness

Kottke Ride Home

Play Episode Listen Later Dec 3, 2025 11:07


This magnet-powered micro-robot could soon swim through your bloodstream Scientists discover first gene proven to directly cause mental illness Save on the perfect Holiday gift by visiting AuraFrames.com to get $35 off Aura's best-selling Carver Mat frames - named #1 by Wirecutter -  by using promo code COOLSTUFF at checkout. Contact the Show: coolstuffdailypodcast@gmail.com Learn more about your ad choices. Visit megaphone.fm/adchoices

BloodStream
Blood Brothers - Part 1

BloodStream

Play Episode Listen Later Nov 28, 2025 62:19


On this special episode of the Bloodstream Podcast, hosts Patrick James Lynch and Marc Pangilinan kick off a three-part Blood Brother Collaboration, featuring heartfelt stories and insights from men across the bleeding disorders community. The discussion centers on lived experiences, including complicated grief, joining the community, wearing multiple hats, and challenges across the lifespan. Listeners will hear candid conversations about overcoming obstacles, building support networks, and the evolution of treatment and community resources. Tune in for an inspiring and honest look at life with bleeding disorders, and discover valuable resources and support along the way. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.  Show Notes:   To meet members of the community and to hear more about their hemophilia A journey, head to www.hemophiliacommunity.com Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Mas Que Raras
Desde Uruguay al mundo: Hablando de abogacía, acceso y la investigación para las diversas variantes de GABA-A

Mas Que Raras

Play Episode Listen Later Nov 26, 2025 41:08


En este episodio de Más Que Raras, tenemos el honor de contar con Agustina Fernández, una defensora incansable en el ámbito de las enfermedades raras. Agustina no solo es madre de una niña con encefalopatía genética (GABRA1), sino que también lidera como vicepresidenta y Responsable de Atención al Paciente en la fundación CURE GABA-A. Su experiencia personal se fusiona con su compromiso profesional, lo que le permite generar un impacto real en la comunidad de pacientes. En esta conversación, Agustina comparte su trayectoria como madre, enfrentando la incertidumbre del diagnóstico, las barreras del sistema y el estigma que rodea estas enfermedades. Además, nos brinda sus esperanzas y su visión para el futuro, abarcando la investigación, el acceso a terapias y el fortalecimiento de la comunidad de pacientes junto a los investigadores. No te pierdas esta charla sincera, poderosa y llena de valentía. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

BloodStream
I'm Fine is back! Featuring Benjamin Denman

BloodStream

Play Episode Listen Later Nov 21, 2025 27:16


In this episode of BloodStream, we look back at the history of gene therapy and highlight key voices from Portraits of Progress. We also share the story behind I'm Fine, featuring community advocate Benjamin Denman, recently honored at the Hope Gala. Plus, we introduce HFA's new Voice of the Community initiative and how you can get involved in shaping the future of bleeding disorders care and advocacy. Tune in and join us in reflecting on where we've been, where we are, and where our community is heading next. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.   "I'm Fine" Segment I'm Fine is presented by @SanofiUS  #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy Show Notes: Portraits of Progress: https://www.portraitsofprogress.com/  HFA Voice of Community: https://www.hemophiliafed.org/voice-of-the-community/    Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Global Hemophilia Report
40 Years in Hemophilia

Global Hemophilia Report

Play Episode Listen Later Nov 20, 2025 49:48


In this special episode, host Patrick James Lynch reflects on turning forty…and on forty years of life with hemophilia. Joined by Dr. Donna DiMichele, Patrick traces the parallel evolution of his own experience and the hemophilia community's journey through crisis, discovery, and innovation. From the HIV epidemic of the 1980s to the arrival of gene therapy and digital health, they explore how science, data, and humanity have shaped the story of hemophilia. Together, they ask: what have we learned, what still can't be measured, and what might the next forty years hold? Guests: Donna DiMichele, MD   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   Join Kevin as he shares about his journey with hemophilia and the hurdles he faced in communicating with friends, family, and healthcare providers about his condition. He highlights how hemophilia affects far more than just physical health — and why honest, open conversations that focus on the full patient experience, not just symptoms, are so essential.   Click here to watch his story: https://www.youtube.com/watch?v=3v1cCTbhClA&list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&index=5   Rich's Story Join Rich as he discusses how hemophilia has impacted his ability to travel and live an active lifestyle. He highlights how hemophilia affects far more than just physical health and shares his journey of overcoming barriers to be able to safely travel internationally, fly fish, garden, and more.    Click here to watch his story: https://www.youtube.com/watch?v=ihEvFywE43E&list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&index=8   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

CCO Infectious Disease Podcast
Integration of Genotypic RDT With Rapid Phenotypic AST for Bloodstream Infections

CCO Infectious Disease Podcast

Play Episode Listen Later Nov 18, 2025 17:55


Unnecessary broad-spectrum antibiotics can drive antimicrobial resistance and cause adverse events, whereas inadequate antibiotic coverage is linked to increased mortality and length of stay for patients with bloodstream infections (BSIs). Listen now to learn from Jose Alexander, MD, D(ABMM), CIC, FCCM, SM/MB(ASCP), how to use rapid genotypic and phenotypic antimicrobial susceptibility testing results to inform antibiotic selection for patients with gram-negative BSIs. Topics covered include:Typical patterns of intrinsic antibiotic susceptibility and resistance in EnterobacteralesMechanisms of resistance in gram-negative bacteriaGenotypic rapid diagnostic tests for BSIsResistance markers for earlier targeted therapyRapid phenotypic antimicrobial susceptibility test platforms for blood culturesPresenter:Jose Alexander, MD, D(ABMM), CIC, FCCM, SM/MB(ASCP)Medical and Public Health MicrobiologistMedical and Technical Director of MicrobiologyAdventHealthOrlando, FloridaLink to full program and downloadable slides:https://bit.ly/4inoXCxGet access to all of our new podcasts by subscribing to the CCO Infectious Disease Podcast on Apple Podcasts, Google Podcasts, or Spotify. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

CCO Infectious Disease Podcast
The Ongoing Challenge of Antimicrobial Selection for Bloodstream Infections

CCO Infectious Disease Podcast

Play Episode Listen Later Nov 18, 2025 18:55


Sepsis and bloodstream infections (BSIs) are common and cause millions of deaths each year, with a disproportionate burden in low-income and middle-income countries. Tune in to learn from Jasmine R. Marcelin, MD, FACP, FIDSA, how inadequate antibiotic coverage can be linked to increased mortality and length of stay and how unnecessary broad-spectrum antibiotics can drive antimicrobial resistance. Topics covered include:The worldwide burden of sepsis and BSIsThe ongoing threat of antimicrobial resistanceUS and global health disparities in sepsis, BSI, and antimicrobial resistanceBarriers toward optimizing antibiotic use in BSIsPresenter:Jasmine R. Marcelin, MD, FACP, FIDSAAssociate Professor, Infectious DiseaseAssociate Medical Director, Antimicrobial Stewardship ProgramVice Chair for Belonging and Community Engagement, Department of Internal MedicineCo-Director, Digital Innovation & Social Media Strategy, Division of Infectious DiseasesUniversity of Nebraska Medical CenterOmaha, NebraskaLink to full program and downloadable slides:https://bit.ly/4inoXCxGet access to all of our new podcasts by subscribing to the CCO Infectious Disease Podcast on Apple Podcasts, Google Podcasts, or Spotify.  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Daily Zen Teisho
Blood Stream Sermon – Part 3

The Daily Zen Teisho

Play Episode Listen Later Nov 17, 2025 8:08


This piece is profoundly deep and vast in its scope. It's as if all the true essentials of Buddhism and Zen are laid out right before us. Read the Journal while listening

BloodStream
The Red Ink Project & Global Action Network for Sickle Cell

BloodStream

Play Episode Listen Later Nov 14, 2025 54:00


This week on BloodStream, we're talking to changemakers. Elsa and Ann Kendall from The Red Ink Project share how they're shifting the story for women and girls in bleeding disorders. And advocate Lanre Tunji-Ajayi joins us to discuss building global networks for sickle cell and other inherited blood disorders. A conversation about voice, visibility, and what it takes to lead. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Red Ink Project  Global Action Network for Sickle Cell and Other Inherited Blood Disorders  Subscribe: The BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

FLOW - straight talk about extreme periods
Chicken Soup for the Flow: Stories of extreme bleeds, medical gaslighting, and HTC's (part 2)

FLOW - straight talk about extreme periods

Play Episode Listen Later Nov 13, 2025 39:20


Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan! Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recurring lack of testing for rare conditions.  Program Notes:   Episode Links: The New Menopause by Claire Harver https://thepauselife.com/pages/the-new-menopause-book Bloodstream Media: https://www.bloodstreammedia.com/ HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/ 

Echoes From The Void
Echo Chamber - 400 - Part Six (Shaked Benson & BloodStream)

Echoes From The Void

Play Episode Listen Later Nov 9, 2025 65:52


Mas Que Raras
De Ecuador a Carolina del Norte: Hablando de la inclusión en ensayos clínicos con Perla Nunes

Mas Que Raras

Play Episode Listen Later Oct 28, 2025 37:31


En este episodio de Más Que Raras, charlamos con Perla Nunes, una destacada líder en divulgación comunitaria e investigación clínica bilingüe, originaria de Ecuador. Con más de 30 años de experiencia en instituciones como Hoffmann-LaRoche y el Duke University Clinical and Translational Science Institute, Perla ha trabajado en aumentar la representación de poblaciones diversas en la investigación clínica.   Actualmente, colabora como consultora con organizaciones de pacientes y farmacéuticas para promover la equidad en salud. Su enfoque en estrategias de divulgación y formación para promotores de salud comunitarios busca generar confianza y participación de comunidades subrepresentadas. Su compromiso y liderazgo son un ejemplo inspirador de cómo la ciencia y la comunidad pueden unirse para lograr un cambio duradero en la investigación clínica Show Notes: Subscribe: Mas Que Raras Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter  

BloodStream
Beyond the Diagnosis

BloodStream

Play Episode Listen Later Oct 24, 2025 40:08


Art and science collide on this episode of BloodStream Podcast! Hosts Patrick James Lynch and Amy Board bring stories that inspire and inform the bleeding disorders community. Patty Weltin and the Beyond the Diagnosis exhibit show how artists bring portraits of children with life-altering diseases to life. These works travel to hospitals, medical schools, galleries, and museums, raising awareness and sparking connection. Hanna sits down with genetic counselor Kaylee Dollarshell to talk gene therapy—the science, the emotions, and the big decisions families face. A real, behind-the-scenes look at navigating this treatment. Next time: Hear from Else and Ann Kendall of The Red Ink Project, sharing stories that will challenge how you think about patient advocacy. Don't miss this episode packed with insight, inspiration, and real stories shaping the future of bleeding disorders care.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes: https://www.beyondthediagnosis.org/ https://findageneticcounselor.nsgc.org/?reload=timezone    Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

FLOW - straight talk about extreme periods
Chicken Soup for the Flow: stories of extreme bleeds, medical gaslighting, and HTC's (part 1)

FLOW - straight talk about extreme periods

Play Episode Listen Later Oct 23, 2025 45:36


Recorded live in session at HFM's Conference for Women with Bleeding Disorders in Detroit, Michigan! Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recuring lack of testing for rare conditions.  Program Notes: Episode Links: Bloodstream Media: https://www.bloodstreammedia.com/ HFM Conference for Women: https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/ On Burnout / Emily Nagoski: https://www.ted.com/talks/emily_nagoski_and_amelia_nagoski_the_cure_for_burnout_hint_it_isn_t_self_care How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn   Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/   

BloodStream
Joint Health and Gene Therapy - Live from BDC!

BloodStream

Play Episode Listen Later Oct 17, 2025 64:13


We're live at BDC!  Host Amy Board take you straight to the exhibit hall floor, chatting with doctors like Drs. Quon, Sidonio, and Radak, plus patient advocates Collin Johnson and Matt Capsel. From man-on-the-street interviews to a touching story from Greg, this episode reminds us all to run—not walk—towards science. Join us for real conversations, patient perspectives, and insights on gene therapy, joint health, and life in the bleeding disorders community. Next up: An inspiring interview with Patty Weltin and the “Beyond the Diagnosis” art exhibit.   Don't miss this insightful, energizing episode that dives into the future of bleeding disorders care.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
Channel swimmer (and blood brother!) Tim Stowers

BloodStream

Play Episode Listen Later Oct 10, 2025 33:29


On this episode of BloodStream, hosts Patrick James Lynch and Amy Board share stories of remarkable achievement and progress in bleeding disorders. Hear from Tim Stowers, a severe hemophilia A patient who has summited Everest and completed solo English Channel swims, as he shares his journey of resilience and determination. Plus, get the latest updates on Star Therapeutics' lead VWD therapy, now entering a pivotal Phase 3 trial, and learn how patients can help shape the first validated VWD quality-of-life assessment tool.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes:   Star's Pivotal Phase 3 Study (VIVID-6) Initiated:   VGA039 is the first subcutaneous therapy, dosed once monthly, that has the potential to address all types of VWD and all types of bleeds. It has also received Fast Track and orphan drug designation from the United States Food and Drug Administration (FDA). The additional investment announced today supports our continued global clinical expansion as we advance into our pivotal, Phase 3 trial.   Explore clinical trial eligibility: visit THIS WEBSITE    To participate in the first validated VWD quality of life patient-reported outcome tool, please e-mail Judith.Monickaraj@chet.rochester.edu to learn more. Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

ASPEN Podcasts
Treatment Outcomes in Pediatric IF Patients with Central Line-Associated Bloodstream Infections

ASPEN Podcasts

Play Episode Listen Later Sep 30, 2025 18:50


In this podcast, Dr. Jump, the author of the paper “Treatment Outcomes in Pediatric IF Patients with Ambulatory Candida Central Line-Associated Bloodstream Infections with and without Central Venous Line Removal” discussed advancements in medical care over the past decades and the impact on CLABSI in pediatric patients. She focuses on Candida infections and treatment strategies to mitigate poor outcomes in pediatric home nutrition support. Business Corporate by Alex Menco | alexmenco.net Music promoted by www.free-stock-music.com Creative Commons Attribution 3.0 Unported License creativecommons.org/licenses/by/3.0/deed.en_US October 2025

BloodStream
WHO Guidelines Updated!

BloodStream

Play Episode Listen Later Sep 26, 2025 42:56


On this episode of BloodStream, we explore the World Health Organization's updates to the Essential Medicines List and what they mean for bleeding disorders care. Hemophilia B mom and creator Jesseca Lockie shares her perspective on advocacy and storytelling online, while Domenic and his mom open up about how gene therapy has transformed his daily life. Real stories, important updates, and conversations shaping the bleeding disorders community.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

Global Hemophilia Report
There's Nothing New for Me in the Pipeline (Clinical Trials & Patient Participation)

Global Hemophilia Report

Play Episode Listen Later Sep 25, 2025 35:02


In this episode, we take a deep dive into the state of the treatment pipeline for bleeding disorders. From the way clinical trials are structured to what's actually available for different conditions, we examine both the promise and the reality of innovation in this space. Recorded live at the NBDF Bleeding Disorders Conference, we join Mike Recht, MD, PhD, Chief Science and Medical Officer of NBDF, for a “research posters walk & talk” to explore what's happening right now — and why so many promising treatments never make it to market. Guests: Mike Recht, MD, PhD Maria Santaella, PhD(c), MSN, RN-BC, CPHON Samantha Carlson, LMSW   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Written by: Kay Vermeil   Featured Advertiser: Sanofi   Subscribe to the Global Hemophilia Report   Show Notes:   Join Kevin as he shares about his journey with hemophilia and the hurdles he faced in communicating with friends, family, and healthcare providers about his condition. He highlights how hemophilia affects far more than just physical health — and why honest, open conversations that focus on the full patient experience, not just symptoms, are so essential.   Click here to watch his story: https://www.youtube.com/watch?v=3v1cCTbhClA&list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&index=5   Sanofi's Global Hemophilia Survey uncovers significant care gaps and emotional challenges faced by patients and caregivers. Learn how improving health literacy and fostering better patient-provider communication are essential to addressing these inequities. Explore the findings and see how Sanofi is driving health equity for the hemophilia community. Explore the survey findings here: Global Hemophilia Survey Page. Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X/Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter   

The Final Summit
Leading with Values: The Challenge of Building Something Bigger

The Final Summit

Play Episode Listen Later Sep 22, 2025 19:43


After climbing the Seven Summits, Chris becomes executive director of Save One Life. It's a chance to help people with bleeding disorders. But it's also his first time in a leadership role.  This episode is brought to you by Genentech. Visit http://www.hemashort.com/ to watch the short film. Guests:  Amy Board, MNM, Believe Limited Senior Vice President of Engagement and Programs    Patrick James Lynch, Founder and CEO of Believe Limited, (Instagram)     Dr. Ryan Warner, clinical psychologist and speaker, founder of RC Warner Consulting    Joana Baquero, business strategist and resilience expert, author, Driven by Hope; Ted Talk: “Resilience: A Mindset for Everyday Life”    The Final Summit is produced by BloodStream Media. To get in touch, email mailbag@bloodstreammedia.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
Emerging treatment for vWD?!

BloodStream

Play Episode Listen Later Sep 19, 2025 42:30


Is there a new treatment for von Willebrand Disease on the horizon? This week on BloodStream, we're joined by Jess Swann and Dr. Ben Kim from Star Therapeutics to talk about their promising pipeline and what it could mean for the vWD community. From science to support, they share their commitment to innovation and the people at the heart of it all. Plus, Patrick and Amy catch you up on the latest happenings—including the premiere of Dismissed!    Don't miss this insightful, energizing episode that dives into the future of bleeding disorders care.   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

FLOW - straight talk about extreme periods
United in Flow: stories from the heart of BDC (Bleeding Disorders Conference)

FLOW - straight talk about extreme periods

Play Episode Listen Later Sep 18, 2025 46:37


Recorded August 23, 2025 in Denver, CO at NBDF's Annual Bleeding Disorders Conference (BDC). Flow thanks NBDF (National Bleeding Disorders Foundation) for the time to Flow with participants in a session at their annual conference! This recorded-live episode captures powerful stories of individuals navigating life with bleeding disorders. Conversations highlight the struggles of diagnosis, the impact of medical gaslighting, and the essential role of self/collective-advocacy.   Program Notes:   Episode Links: NBDF - find your chapter! https://www.bleeding.org/ Dismissed - new documentary from Bloodstream media  - host a screening near you! https://www.dismissedfilm.com/ Flow with us on Instagram www.instagram.com/howsyourflow   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  BloodStream on Instagram BloodStream on TikTok  

tiktok conversations stories conference dismissed calendly bloodstream bleedingdisorders bloodstream media bloodstream media find
Let's Talk Micro
204: In the Bloodstream: Diagnosing Infections Faster

Let's Talk Micro

Play Episode Listen Later Sep 18, 2025 35:35


Bloodstream infections can progress rapidly to sepsis—bringing high costs, high mortality, and lasting effects. In the second episode of this series in collaboration with bioMérieux, Luis speaks with Dr. Jeff Cies, Senior Medical Advisor at bioMérieux, about how molecular diagnostics are reshaping bloodstream infection diagnosis. They discuss: Limitations of traditional blood cultures How rapid molecular tests deliver results faster than ever The impact on outcomes, costs, and antimicrobial resistance The role of stewardship programs in maximizing results What the future holds: direct-from-blood testing, nanotechnology, and AI A powerful look at how innovation in microbiology is changing the fight against sepsis and saving lives. This episode is sponsored by bioMérieux, a global innovator in infectious disease diagnostics. Resources from this episode: bioMérieux Sepsis Webinar Stay connected with Let's Talk Micro: Website: letstalkmicro.com Questions or feedback? Email me at letstalkmicro@outlook.com Support the podcast: Venmo Buy me a Ko-fi  

The Final Summit
Climbing the Impossible: Setting—and Achieving—Big Goals

The Final Summit

Play Episode Listen Later Sep 15, 2025 17:20


Chris looks back on his journey to climb the Seven Summits through a new lens: what it was like to become a role model in the international bleeding disorder community, and how it affected him.    This episode is brought to you by Genentech. Visit http://www.hemashort.com/ to watch the short film.   Guests:  Dr. Ryan Warner, clinical psychologist and speaker, founder of RC Warner Consulting    Patrick James Lynch, Founder and CEO of Believe Limited, (Instagram)     Joana Baquero, business strategist and resilience expert, author, Driven by Hope; Ted Talk: “Resilience: A Mindset for Everyday Life”  The Final Summit is produced by BloodStream Media. To get in touch, email mailbag@bloodstreammedia.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
Patrick's Surgery and Ed Rogoff's book

BloodStream

Play Episode Listen Later Sep 12, 2025 46:04


Edward Rogoff, Blood Brother, NY chapter board member, and author of Scary Diagnosis, joins us on today's BloodStream. We hear the powerful stories behind community tattoos and get an update from PJL on his ankle surgery and recovery. This episode is full of resilience, creativity, and the strength we find in unexpected places. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: http://www.linkedin.com/in/edward-rogoff-6624366   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

The Final Summit
The Fork in the Road: When the Dream Ends, What's Next?

The Final Summit

Play Episode Listen Later Sep 8, 2025 21:19


After pursuing medical school, Chris finds his true passion: helping people with bleeding disorders. And a live-changing trip to Kenya inspire Chris to climb Mt. Kilimanjaro.    This episode is brought to you by Genentech. Visit http://www.hemashort.com/ to watch the short film.   Guests: Patrick James Lynch, Founder and CEO of Believe Limited, (Instagram)     Joana Baquero, business strategist and resilience expert, author, Driven by Hope; Ted Talk: “Resilience: A Mindset for Everyday Life”    Amy Board, MNM, Believe Limited Senior Vice President of Engagement and Programs  The Final Summit is produced by BloodStream Media. To get in touch, email mailbag@bloodstreammedia.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
Gene Therapy Around the World

BloodStream

Play Episode Listen Later Aug 22, 2025 35:04


Do you ever wonder who's actually getting gene therapy around the world? So have we! Dr. Hank Greely from Stanford and Simon Fletcher, a nurse and PhD Candidate from Oxford, break it down in a way that's eye-opening and real. Then stick around for Dr. Radek Kaczmarek's update on the latest game-changing research. Two fascinating chats, one episode, this is BloodStream you don't want to miss!   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Show Notes:   Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok  

BloodStream
Actress Sami Rappoport's short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis

BloodStream

Play Episode Listen Later Aug 15, 2025 54:27


What do a heartfelt short film, a Hollywood actress, and a powerful community story all have in common? This week's BloodStream Podcast. Actress Sami Rappoport shares how her grandfather's life with hemophilia inspired her latest project, and Dr. Joanna Davis sits down with Barb Forss and Jeffrey Moualim for a conversation you won't want to miss. Jeffrey Moualim, Barbara Forss and Joanna Davis, M.D., discussion is in conjunction with CHESFoundation/LadyBugs Program   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on X/Twitter  BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok

Think BIG Bodybuilding
Blood Sweat & Gear 311 Everything You Wanted To Ask A Bodybuilding Coach

Think BIG Bodybuilding

Play Episode Listen Later Aug 8, 2025 72:23


BSG 311 Coaches Skip Hill, Andrew Berry, Scott McNally 0:00 Intro and advertisers 0:40 Andrew's massive coaching mistake 3:40 Tampa Pro 5:00 Dallas 10:40 Physique Critique 18:00 Improvement without gaining size 19:40 Pharma GH Testing Out Poorly? 24:00 Made in China Peptides 29:00 DMSO to transfort Gear To the Bloodstream 31:45 Availability of Info In Bodybuilding Today 38:00 Skip getting trolled 46:30 GH & Insulin Protocol…again 48:45 21 amps Sustanon in 21 days? 50:20 Healing Protocols 57:00 Vegan and Vegetarian Bodybuilding Challenges 1:01:20 Heavy Injectable Pre-workout Stack 1:04:50 Cycle Critique - Deca, Test, NPP, EQ Reach out to the guys for coaching !

The Highwire with Del Bigtree
PFAS IN OUR BLOODSTREAM

The Highwire with Del Bigtree

Play Episode Listen Later Jul 29, 2025 3:47


A new study reveals that virtually every American now carries toxic PFAS chemicals in their blood. Jefferey explains where these “forever chemicals” come from, and why the EPA is finally being forced to act.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-highwire-with-del-bigtree--3620606/support.