POPULARITY
74 episodes with bloodstream media
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12 episodes with bloodstream media
12 episodes with bloodstream media
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5 episodes with bloodstream media
This month's FLOW delves into the 'Iron Ladies' research - they investigate iron deficiency's prevalence among women with bleeding disorders, the importance of routine screening, the challenges in setting standardized care practices, and the historical exclusion of women from clinical trials. Featuring Dr. Megnahn McCormick, a doctor passionate about treating iron deficiency. Program Notes: Episode Links: Bloodstream Media: https://www.bloodstreammedia.com/ The Iron Ladies Study: The Iron Ladies: Prevalence and Risk Factors of Iron Deficiency in Females With Bleeding Disorders - McCormick - Haemophilia - Wiley Online Library A study presenting the data available through the ATHN dataset on women and girls with bleeding disorders* A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network Cohort | Journal of Women's Health *includes a discussion on how participation in the dataset is not complete and how work is being done to remedy this! An article about the impact of Thalidomide on FDA regulation: How medical research changed after thalidomide More in depth on Thalidomide: Clinical Trials in Pregnancy and the “Shadows of Thalidomide”:Revisiting the Legacy of Frances Kelsey - PMC Information about what is identified as a “normal” hemoglobin; and how women who are iron-replete hemoglobin values are similar to men: “These findings highlight sex-based inequities that lead to normalization of disease states and the critical need to update hematologic ranges truly reflective of iron repletion.” Sex, lies, and iron deficiency: a call to change ferritin reference ranges | Hematology, ASH Education Program | American Society of Hematology 2021 article, Iron Ladies: Variation in the Identification and Management of Iron Deficiency in Women with Bleeding Disorders: https://www.sciencedirect.com/science/article/pii/S0006497121030202 How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
BONUS: Patrick James Lynch on Entertainment That Makes Change - Lessons in Product Thinking from Believe Ltd. In this BONUS episode we explore how Patrick James Lynch, filmmaker, media executive, and rare disease advocate, has built Believe Limited around a powerful mission: entertainment that effects change. Patrick shares his journey from personal experience with his brother's hemophilia to creating award-winning content that empowers rare and chronic disease communities, offering valuable lessons for product managers on human-centered design, stakeholder alignment, and building emotionally viable products. The Genesis of Entertainment That Effects Change "This is more than a product." Patrick's journey began with a deeply personal question about his brother who had hemophilia. As an entrepreneur, he set out to respond to an identified need with one product to meet that need, but quickly realized the scope was much larger. His curiosity about what was different between him and his brother led him to understand that he needed to help people like his brother. This realization drove him to create valuable online videos to engage their audience, marking the beginning of Believe Ltd.'s mission of entertainment that effects change. Essential Product Lessons: Listen, Learn, and Do No Harm "The fact that I am my audience, does not mean that I'm an expert." Patrick emphasizes the critical importance of conducting thorough needs assessments and truly understanding your community before building products. Key insights include: Embed yourself in the community you're serving rather than making assumptions Follow the principle of "listen, learn and do no harm" as your starting point Involve community engagement as a dedicated role - Believe Ltd. has a VP of community engagement Define clear phrases that explain the value you deliver to your audience Use your personal story to establish credibility and relate experiences to your audience The goal is to get as familiar with your community as possible, then conduct your own research and development based on those deep insights. Navigating Multi-Stakeholder Complexity "Collaboration only succeeds when all points of view are respected." Working with patients, funders, healthcare professionals, and pharmaceutical companies requires careful orchestration. Patrick's approach centers on prioritizing the end game and identifying the north star goal that aligns all parties. He emphasizes focusing on combined skills and networks rather than trying to accomplish everything at the start. The key is ensuring that aligning stakeholders becomes a central part of the process, with everyone being accounted for throughout the journey. Human-Centered Storytelling as Product Strategy "What's the story that shows the value add of your product?" Patrick advocates for human-centered storytelling as a fundamental product approach. Rather than leading with features or specifications, he suggests crafting stories that demonstrate real value - like how a thermos saved someone's life while hiking. Stories have been humanity's primary communication tool since the beginning of time, and they remain the most effective way to show product value and connect with audiences on a meaningful level. Being a Value Fundamentalist "At any given moment, if anyone takes a screen grab, and set it against our five core values as a company - you see it's playing out." Patrick describes himself as a value fundamentalist, meaning that their company's core values are always present in everything they do. This requires courage, including the willingness to say "no" when opportunities don't align with their values. As CEO, he believes in embodying these values consistently, even when it's challenging, because who they are must always be visible in their work. Balancing Vision with Community Feedback "When you ask the audience for a solution, there's no innovation." Patrick warns against sacrificing vision simply because you're working closely with your audience. While being in the sandbox with your community is essential, maintaining your original vision for entertainment that changes minds is equally important. He recommends having someone you can bounce ideas off to help maintain this balance, and remembers that all great things start small and are inherently iterative. Creating Emotionally Viable Products "We can't develop emotional connection by going through a list of features." Beyond minimum viable products, Patrick focuses on emotional viability - the hook that makes people truly care. Emotional connection cannot be built through feature lists but rather through compelling stories that capture people's imagination. When audiences engage with products outside of direct supervision, storytelling becomes the bridge that helps them discover new uses and applications. This creates a dance between product creators and their audience, leading to better product design. The Currency of Attention "Attention is the only currency - there's great wisdom in that." Patrick recognizes that in today's landscape, capturing and maintaining attention is the fundamental challenge. Since everyone is an audience member at different times, this perspective helps inform both strategy and tactics. Products must compete not just on functionality but on their ability to engage and maintain audience interest over time. As a recommended reading, Patrick suggests that we should read “Save The Cat! The Last Book on Screenwriting You'll Ever Need” to understand how to better tell stories about our products. About Patrick James Lynch Patrick James Lynch is a filmmaker, media executive, and rare disease advocate. CEO of Believe Limited and founder of BloodStream Media, he uses his experience with hemophilia to drive award-winning storytelling, health advocacy, and mission-driven content that inspires and empowers rare and chronic disease communities worldwide. You can link with Patrick James Lynch on LinkedIn and follow Patrick James Lynch's work on his website.
In this episode, FLOWsters from Bloodstream Media share their first encounters with menstruation, coping with period pain, and managing menstrual health. They explore societal taboos, stories of learning about menstruation, and highlight experiences with bleeding disorders. The conversation underscores the importance of education and open dialogue. The team continues Flow's mission to normalize conversations around menstruation and educating everyone, not just those who menstruate; as Patrick notes: 'Women's health is human health.' Program Notes: Episode Links: Bloodstream Media: https://www.bloodstreammedia.com/ Patrick Lynch: https://www.believeltd.com/patrick-james-lynch Bella Hunter: https://www.believeltd.com/bella-gadsby Hanna Beary: https://www.believeltd.com/hanna-beary How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
In this episode of Flow, hosts Jessica Richmond and sex therapist Sarah Watson are joined by guests Jade and Leslie (Bloodstream Media / Believe Limited teammates) to play a game called 'MiTV, Menstruation in Television'! They review and rate the accuracy of menstruation portrayals in various TV shows and films, including 'Euphoria', 'Orange is the New Black', 'Game of Thrones', 'Grease', 'Big Mouth', and 'The Handmaid's Tale'. The discussion highlights the importance of normalizing menstruation - complete with humorous and heartfelt commentary. Key takeaways? Pop culture is getting better at representing the monthly cycle as it continues to show women supporting each other during menstruation. Program Notes: Episode Links: Euphoria: https://www.youtube.com/watch?v=kRcvQN1lYzw Big Mouth: https://www.youtube.com/watch?v=NEbQ7CQPfNI Orange is New Black: https://www.youtube.com/watch?v=Quh92wZ7gUw Game of Thrones: https://www.youtube.com/watch?v=f1hF0CbzGDY Grease: https://www.youtube.com/watch?v=OHmHesDYPzw How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
In honor of Bleeding Disorders Awareness Month, Flow is talking about advocacy in action for Factor 7 Deficiency. Our guest Stacy shares challenges with extreme menstrual pain and dismissed symptoms, emphasizing the importance of persistence while navigating a broken healthcare system where rare conditions are poorly understood. Despite facing systemic hurdles, keeping up with current research and working with several bleeding disorder foundations helps Stacy move the proverbial needle in accessing treatment. Program Notes: Episode Links: https://ches.education/board https://www.bleeding.org/bleeding-disorders-a-z/types/other-factor-deficiencies/factor-vii How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Midwife Morgan and a sex therapist Laura join Jessica and Sarah to discuss The Cycle Book (available now!). The authors share frustrations with lack of data privacy of many digital tracking apps - as well as concerns about the inaccuracy of information provided! Laura also shares her experience returning to birth control and coping with PMDD and Morgan discusses her endometriosis and anemia management. Each was motivated to create The Cycle Book when conversations with clients revealed recurring missing information…. “When people are trying to conceive…they are often surprised to find out that the 14 day thing isn't necessarily real, and the getting pregnant at any moment is most definitely not real, that it's actually just a very tiny little window.” Learn more of what you didn't know you didn't know - on this month's FLOW. Program Notes: Episode Links: Morgan Miller - https://softcornermidwifery.com/morgan Laura Federico - a https://www.laurafedericotherapy.com/ The Cycle Book: https://www.penguinrandomhouse.com/books/747795/the-cycle-book-by-laura-federico-lcsw-cst-and-morgan-miller-cpm-lm/ How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org
This episode of FLOW features Lisa Williams, from Hello Again! Lisa shares her personal journey with fibroids, a hysterectomy, menopause, and how discovering cannabis-based vaginal suppositories dramatically improved her quality of life. The conversation touches on the value of cannabis in treating various health issues and how a supportive community to openly discuss challenges is essential! Program Notes: Episode Links: Hello Again: https://helloagainproducts.com/ Lisa Williams: https://www.linkedin.com/in/simplylisawilliams/ How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org
On this month's FLOW, peak behind the curtain of the award-winning comedic web-series Stop the Bleeding! The guests share personal stories about learning about and dealing with hemophilia, periods, and the significance of portraying these issues through their characters on STBhemo.com - and the joys of benign part of an ( animated ) series that tackles choosing pride, dismantling shame, and raising awareness - specifically that women have hemophilia too! Program Notes: Episode Links: Stop the Bleeding! https://www.stbhemo.com/en/our-episodes Queen Noveen Hillary Hawkins How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org
In this live episode from the Hemophilia Foundation of Michigan's Conference for Women and Teens, hosts Jessica and Sarah create an open dialogue about menstruation, aiming to normalize the conversation and encourage self-advocacy. They invite participants (virtual and in person) to discuss their menstrual journeys, touching on subjects such as heavy bleeding, inadequate medical support, and the stigma surrounding periods. Special guests Christine, Francis, and Erica share stories of managing bleeding disorders, receiving late diagnoses, and utilizing various tools and products for relief. The episode passionately encourages advocacy, community support, and broader education on menstrual health. Program Notes: Episode Links: Hemophilia Foundation of Michigan's Conference for Women + Teens Women with Hemophilia - Documentary Sign Up How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Dr. Erin Ellis specializes in the complexities of hormone balance. On this month's FLOW, she unpacks the essential role environmental factors play in overall well-being. Her practical approach focuses on how combined lifestyle choices can / do have a positive impacting hormonal balance and menstrual health! Re: Extreme Menstruation “You don't need to suffer - you don't! And that goes with anything in life.” - Dr. Erin Ellis Program Notes: Episode Links: Dr. Erin Ellis: https://hopenaturalhealth.com/dr-erin-ellis/ Instagram: https://www.instagram.com/dr.erinellis/ Facebook: https://www.facebook.com/drerinellisnmd/ Podcast: https://hopenaturalhealth.com/health-podcast/ How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Alexandra brings an innovative approach to the discussion on reproductive health. She has a passion for empowering individuals with knowledge about their bodies, and a commitment to breaking down complex topics - and thus she is positioned as a valuable and relatable voice in the field of reproductive health education. Flow with us to gain educational insights into all aspects of reproductive health for informed decision-making! Program Notes: Guest / Episode Links: Paloma Fairfax Instagram: https://www.instagram.com/palomafairfax/ Tik Tok: https://www.instagram.com/palomafairfax/ Youtube: https://www.youtube.com/@palomafairfax How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
This month on Flow - learn effective strategies for understanding and managing uterine fibroids and alternative treatments for heavy periods. Charlene Modeste is a menstrual health advocate and holistic wellness enthusiast; she brings a wealth of personal experience and knowledge to the conversation. From our Flow with Charlene Modeste: “I'm an expert on me. You may be a doctor and an expert in your field, but I've been with me my entire life, and I can tell you what's working for me, what's not working for me.” Program Notes: Episode Links: OASH Fibroid Report National Library of Medicine - on Cannabis + Dysmenorrhoea How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
The World Health Organization calls for menstrual health to be recognized, framed, and addressed as a health and human rights issue, and that all menstruators should be able “to live, study, and work in an environment in which menstruation is seen as positive and healthy and not something to be ashamed of and to be able to participate in work and social activities fully.” And FLOW echoes that call. Program Notes: Episode Links: Occupational Safety and Health Act of 1970: https://www.osha.gov/laws-regs/oshact/completeoshact ADA, 1990: https://www.dol.gov/general/topic/disability/ada#:~:text=The%20Americans%20with%20Disabilities%20Act,local%20government'%20programs%20and%20services. Menstrual Equity Act for All 2021: https://www.congress.gov/bill/117th-congress/house-bill/3614#:~:text=%2F28%2F2021 HB 155: https://www.ilga.gov/legislation/BillStatus.asp?DocNum=155&GAID=16&DocTypeID=HB&SessionID=110&GA=102 BSI 2023: https://www.bsigroup.com/en-GB/insights-and-media/insights/brochures/bs-30416-menstruation-menstrual-health-and-menopause-in-the-workplace/ Pregnant Workers Fairness Act - June 2023 - not in effect until June 18 2024: https://www.eeoc.gov/wysk/what-you-should-know-about-pregnant-workers-fairness-act WHO Report: https://www.who.int/news/item/22-06-2022-who-statement-on-menstrual-health-and-rights Effect of War: https://pubmed.ncbi.nlm.nih.gov/17400856/ Menstrual Justice defined: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10259305/#:~:text=Johnson%20defines%20menstrual%20justice%20in,%2C%20simply%20because%20they%20menstruate%E2%80%9D. How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Amy Board, host on the Bloodstream podcast (!) slides into the FLOW host chair for a special Mother's Day episode. Amy interviews her mom, Jenny, about intense menstrual cycle experience and how advocacy for proper care has revolutionized her mom's quality of life. Drawing from her own challenges, Jenny offers practical insights into managing heavy menstrual flow and underscores the importance of securing a supportive healthcare team. Program Notes: Episode Links: Bloodstream Podcast! Bloodstream IG @bloodstream_media Amy IG @boardo87 NBDF Advocacy Tips FLOW episode that covers PCOS + more :) How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
On this special episode of the BloodStream Podcast, we explore interferons in the treatment of polycythemia vera (or PV). This episode is brought to you by PharmaEssentia. If you'd like to learn more about polycythemia vera, check out our sister show PV Pod: Stories from the Marrow (brought to you by BloodStream Media and PharmaEssentia). Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
A little education goes a long way. Mariam Saparamadu is passionate about bridging the gap between cultural experiences inside and outside the home. “If you are working with someone that continues to dismiss you and make you feel small, then they are not the provider for you… and you can find another provider.” - Mariam Saparamadu First tampon use when learning to swim in your 30's, cultural attitudes towards menstruation, and what happens when great therapist minds meet? Hear more on this month's FLOW. Program Notes: Guest Links: Psychology Today Profile, Maraiam Saparamadu https://www.psychologytoday.com/us/therapists/mariam-saparamadu-bingham-farms-mi/830644 How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills Tik Tok @jrichsocal HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
“Men can have vWD and women can have hemophilia, I'll say it again -” Hanna is a passionate advocate within the Bleeding Disorders Community. In today's day and age - stating things that are true is important. Hanna has led the way since youth in progressing conversations, and acting as a voice for those unable to voice their struggle. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest + Links Mentioned in this Episode: Hanna Beary Better You Know: https://www.cdc.gov/ncbddd/blooddisorders/women/materials/ NBDF's Victory for Women with Bleeding Disorders Bleeding DIsorders of the Heartland Bad Blood - Documentary Ricky Ray Relief Act National Library of Medicine: Ricky Ray Relief Act How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
HFA CEO Dan Kelsey joins Patrick and Amy to respond to recent organizational changes, followed by Blood Brother, Carl Weixler, who shares a bit about HFA's history, mission, and current state. Also, a tribute to Rare Disease Day, led by voices from BloodStream Media. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Check out the Everyday Life Foundation hosting Bombardier Blood Everyday Life Foundation Legislative Asks This Rare Disease Day segment is brought to you by Genentech. Genentech has several resources to help caregivers navigate hemophilia including stories from other members in the community. Please visit www.thecommunityhelps.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
In this episode of FLOW, join hosts Jessica and Sarah and Amy Board from BloodStream Media for an engaging conversation about the challenges and experiences of women with bleeding disorders. The impact of bleeding disorders on menstrual health is multifaceted and profound, affecting physical health, emotional well-being, and quality of life. Amy Board vividly brings out this impact through personal stories and experiences, offering listeners valuable insights into the world of diagnosis and treatment blockers for menstruators in the bleeding disorders community. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest + Episode Links: MASAC Documents (via NHF) FAIR - Coalition for Women with Bleeding Disorders Study on Red Hair and Menstrual Bleeding Bloodstream Podcast Amy Board on Instagram How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
What is Flooding? What is tranexamic acid? What is a chromogenic essay? What is an MMB? What is the PBAC? And Who would be the douchiest of all douchebags? Answers to all this and more on January's FLOW with Jeanette Jones. Jeanette Jones is a menstrual health advocate and a connoisseur in tracking for improved healthcare. Jeanette is passionate about empowering individuals to take control of their menstrual health experience. Her down-to-earth approach and wealth of knowledge make her a valuable resource for anyone looking to gain a deeper understanding of their menstrual cycle and improve their healthcare decisions. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest Info: Jeannette Jones Jeanette Jones Linkedin: https://www.linkedin.com/in/jeanette-jones-ok Menstrual Tracking Logs: https://www.hemophiliafed.org/resource/menstruation-tracking/ Tranexamic Acid info: https://www.ncbi.nlm.nih.gov/books/NBK532909/ How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Gillian MacSpurr, an experienced running coach from the UK, joins the conversation to shed light on her personal journey with endometriosis. Her transformation from a non-athlete to a dedicated runner highlights the profound impact of movement on overall well-being. With her emphasis on personalized approaches to fitness, Gillian's insights resonate with FLOW's focus on self-advocacy and proactive healthcare decisions. Her story serves as an inspiration for individuals navigating reproductive health challenges as she showcases the power of listening to one's body and embracing a holistic approach to health and wellness! FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest Info: GILLIAN MacSpurr Website: https://gmacspurr.com/links/ IG: https://www.instagram.com/gmacspurr_coaching/ Facebook: https://www.facebook.com/gmacspurrcoaching/ How's Your Flow? Calendly link: https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Boston-based Sexvangelicals have made it their mission to cultivate self-compassion while navigating through the complexities of sex education in a religious context. Empower yourself with knowledge about menstruation and challenge the stigma in your religious community on this month's FLOW. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest Info: Sexvangelicals Website https://www.sexvangelicals.com/ IG: https://www.instagram.com/sexvangelicals/ Podcast: https://podcasts.apple.com/us/podcast/sexvangelicals/ How's Your Flow? Calendly link: https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
The BloodStream Podcast is off this week but we have something very special for you. Introducing PNH: Facts, Fiction & FYI. Dive deep into the critical history, medical background, and foundational insights of Paroxysmal Nocturnal Hemoglobinuria (PNH) in our inaugural episode. Join us as we set the stage for a comprehensive exploration of this rare blood disorder. Content Independently Created by Bloodstream Media. Novartis is our exclusive advertising partner. Subscribe to PNH: Facts, Fiction & FYI.
“I really think that if we got in there earlier, we could really shape things differently for (teens) and for those that care for (teens) too.” This month, Flow with Dr. Abraham and effective strategies for discussing puberty with teens. Plus, get reminders of the power of early and often conversations and learn listening strategies for garnering severity of extreme symptoms: “...Often on the other side once we've made things better, that's when (teens) start to open up about how bad things really were.” - Maggie FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest: Dr. Maggie Abraham, The Gyn Space https://thegynspace.com/ IG: @the_gyn_space Email: info@thegynspace.com How's Your Flow? Calendly link: https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
What if understanding your menstrual cycle was the key to unlocking your optimal health? Join Jessica and Sarah as they dive into the fascinating world of the cervix's adjusting anatomy, the painful environment of menstruating with an extreme bleeding disorder, and the new reality of online access to providers / treatment (no matter where you are located). FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: How's Your Flow? Calendly link: https://calendly.com/flowtalk/flow-talk-period-pain-stories HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Venuz Zamora is an accomplished stage manager with a spirited heart, and her dedication to solutions spills over onto the stage of her life where she manages idiopathic thrombocytopenic purpura (ITP). Venus's story highlights the power of positive thinking and self-care: “I keep my platelets up with the power of positive thinking.” while also calling to attention the need for collaborative decision-making with medical professionals. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: What is ITP? https://my.clevelandclinic.org/health/articles/5726-immune-thrombocytopenia https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/idiopathic-thrombocytopenic-purpura-itp Books by Manly P Hall: https://www.prs.org/store/c2/Books_by_Manly_P._Hall.html HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
A trip to India shines a light on how important advocacy is, and how we can't stop fighting in our quest for a better world. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia community. Donate to Save One Life! Produced by BloodStream Media
Chris connects with an old friend from Kenya to discuss the myth that hemophilia is a “man's disease,” and how women face inequality in care across the world. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia community. Donate to Save One Life! Produced by BloodStream Media
During a trip to Uganda, Chris meets two young men with bleeding disorders who are determined to find a better life through education. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia community. Donate to Save One Life! Produced by BloodStream Media
After a visit to Nepal, Chris reconnects with Monsoon, a young man with hemophilia who overcame social stigmas to build a successful life alongside his brother. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia community. Donate to Save One Life! Produced by BloodStream Media
I cared enough to make a change & because I could care enough, I could change the way things were & just my little ripple could have an impact. - Rep Jaime Churches Join us on Flow as we delve into the significance of conversations about menstruation, the transformative power of women in leadership roles, and the urgent need former fifth grade teacher Jaime Churches feels to help reluctant learners on the house floor. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest: Representative Jaime Churches https://housedems.com/jaime-churches/ Social Media: HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
After a trip to Cambodia, Chris reflects on how poverty compounds the problems patients can face, and reimagines what healthcare can mean. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia community. Donate to Save One Life! Produced by BloodStream Media
No matter the country, no matter the peak, there are some things that connect us all. We all breathe. We all dream. We all bleed. You see things differently when you're standing on top of the world. In 2018 Chris Bombardier became the first mountaineer with hemophilia to successfully climb the Seven Summits, the tallest mountain on each of the seven continents. But that was just the beginning of his journey. What he saw on his adventures, both from the mountain tops and in the surrounding villages, inspired and changed him. In the years since his climbs, Chris channeled my spirit and ambition towards a new frontier: advocacy and global healthcare through my work at Save One Life. Produced by BloodStream Media. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia community.
Empowering menstruating individuals with knowledge and resources to confidently embrace their bodies is what FLOW is all about. This month, gain insights into how menstrual awareness can enable self-assured decision-making about your body. This month: Assess the latest advances in tackling heavy cycles, to help find relief for those with extreme periods…. Acknowledge the growing demand for diverse birth control methods and non-hormonal alternatives…. Realize the significance of challenging menstruation-related misconceptions and normalizing discussions on this natural bodily function. Plus: identify the avenues for private support and assistance with abortion services. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Resources Mentioned in this Episode “What a Period is really like” with Cameron Esposito: https://www.youtube.com/watch?v=zeg3h5zbadc Keep Your Abortion Private: https://www.vpnmentor.com/blog/keep-your-abortion-private/ HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Have you heard the myths that normalizing menstruation experiences is a taboo, or that it only happens to women, or that it's only an inconvenience? Don't believe it! Stephanie and Emily are here to bust those myths and share the truth about menstruation experiences. In this episode, you will be able to: Embrace a diverse range of menstruation experiences and tackle extreme situations with confidence. Learn tools to maintain mental well-being and manage symptoms during menstrual cycles. Foster open, empathetic conversations with others about menstruation to promote understanding. Recognize the crucial role of menstrual cycle tracking for overall health and wellness. Enhance teacher-student dialogue about menstruation, encouraging empathy and support in the learning environment. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Guest Info / Resources Mentioned Cycle Chats https://www.cyclechats.com/ Cycle Chats Instagram https://www.instagram.com/cyclechats/ Cycle Chats Twitter https://twitter.com/cyclechats Cycle Chats Facebook https://www.facebook.com/CycleChats/ The Egg The Egg - A Short Story “RuPaul-blicans” https://time.com/6271330/instagram-turns-republican-anti-lgbtq-drag-queen/ HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Sarah and Jessica discuss the recently proposed ban on period conversation in Florida, the reality of period pain that is as strong as a heart attack, and why education is life saving. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Period Talk Resources Foundation for Women & Girls with Bleeding Disorders Let's Talk Period HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Jessica Foley, MD is a pediatric hematologist and oncologist with a passion for camp. Join Sarah and Jessica on FLOW as they deep dive into vWD diagnosis challenges, treatment options, and the joys of hemophilia camp - all in honor of March / Bleeding Disorders Awareness month. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: vWD Resources NHF - National Hemophilia Foundation WFH - World Federation of Hemophilia Foundation for Women & Girls with Bleeding Disorders Let's Talk Period HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe factor replacement products. However, the course of progress has been uneven, and rocky, for many. This is part two of our series on Aging with Hemophilia. Contributors: William McKeown, MD Randall Curtis Gerry Dolan, MD, MBChB, FRCP, FRCPath Barbara Konkle, MD Sara L. Schwartz, PhD Tam Perry, PhD Senior Advisor: Donna DiMichele, MD Hosted by: Patrick James Lynch Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Maryon is driven by injustice. She shares the story of a menopausal woman “sectioned” (institutionalized) in the UK, her menopause experience dismissed repeatedly… How can awareness transform the lives of those experiencing menopause? …how about the lives of those who love someone experiencing menopause? Happy early Valentine's to all Menopausal menstruators - we love you so much! Join Sarah and Jessica on FLOW as they unpack the essential health benefits of Menopause Awareness with author and educator Maryon Stewart. Maryon is driven by injustice, having witnessed so many menopausal individuals with “no hope“. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Maryon Stewart WEBSITE http://www.maryonstewart.com/book FACEBOOK @ms.maryonstewart TWITTER @maryonstewart IG @maryonstewartmenopause YOUTUBE: https://www.youtube.com/channel/UCNrg33q-OzFaPwV4V86irOg Order Maryon's Book: https://www.amazon.com/dp/1608686825/ HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
“When we launched we realized how little people with periods knew about their own bodies” - determined to create a positive and welcoming space to focus on reproductive health, founder Robyn McLean started Hello Period Products - helloperiod.com. Robyn offers FLOW a lesson on vaginal shape (shot glass, champagne flute, or lab dish?), unpacks sustainability challenges, and gives a peek into the New Zealand healthcare scene. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: LINKS Hello Period https://helloperiod.com/en-us Hello Period IG, @helloperiodco Hello Period Twitter, @thehellocup Hello Period Facebook, @helloperiodco HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
On this episode, Dr. Rachel Grace, a pediatric hematologist, clinical researcher at the Dana-Farber/Boston Children's Cancer and Blood Disorders Center and previous guest on the podcast fills in as guest host. She interviews Dr. David Nathan, a pioneer in the field of hematology and pyruvate kinase deficiency. She also interviews Jill Welle, a patient and previous guest on the show to discuss her journey with PKD. Originally aired on July 20th, 2022. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD and Instagram shorturl.at/gmFT4. TRANSPARENCY STATEMENT Just Listen: Voices of PK Deficiency and KnowPKDeficiency.com are made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time. Produced by BloodStream Media
Renowned hematologist, researcher, and senior advisor to the Global Hemophilia Report Dr. Donna DiMichele shares some of her Season 1 takeaways and thoughts about the future of hemophilia research. Senior Advisor: Donna DiMichele, MD Hosted by: Patrick James Lynch Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Listen to BloodStream's Journey to Joint Health episode. Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
This month Jessica and Sarah share clips from Civia Tamarkin's Birthright: A War Story. The Documentary is a call-to-action and offers access points to get informed and get involved in the fight. Focusing on the continued fight ahead, topics include: Trigger Laws, Pro-Roe Abortion Bans, Fetal Heartbeat Abortion Bans, Domestic Gag Rule, Contraception Deserts, and Catholic Healthcare. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Birthright: A War Story Follow Along with FLOW's Hosts: Key Area Issues Begins Here www.birthrightfilm.com/key-issue-areas/catholic-healthcare Abortion Resources and Content Abortion Fund Network - https://abortionfunds.org/ Planned Parenthood Abortion Information - https://www.plannedparenthood.org/learn/abortion Book Reference Ejaculate Responsibly by Gabrielle Stanley Blair HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
This month Jessica and Sarah Flow with Dr. Julia Jaffe, NYC based OB GYN and abortion provider: “There is not a single system of the body unaffected by pregnancy…and there is no other area in our society where we determine if someone should up their life at risk against their will.” FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand your menstrual awareness. “I really felt proud to do this. These are people who really needed care. I felt nothing but a sense of pride to be able to help people who really did not have a lot of other places to go.” NYC based OBGYN and abortion provider Dr. Julia Jaffe delves into the reality of abortion. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. Program Notes: Dr. Julia Jaffe, NYC Gramercy Gynecology https://www.gramercygynecology.com/julia-jaffe-gynecologist-new-york.html Dr. Jaffe, IG: https://www.instagram.com/millennialgyn/ Abortion Resources and Content Abortion Fund Network - https://abortionfunds.org/ Planned Parenthood Abortion Information - https://www.plannedparenthood.org/learn/abortion HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond Twitter @geniuspills HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
Jack Teter is the Regional Director of Government Affairs for Planned Parenthood (PPRM) and has dedicated his efforts to championing that abortion should be free, private and acccessible to all. On this month's episode of FLOW, Jack shares insights into the legislation creation process and offers actionable advocacy advice (“Always Be Organizing” - “Vote Your Feelings”)! Join hosts Sarah and Jessica to normalize the conversation around reproductive health - and tune in for more of FLOW's Abortion is Healthcare series, throughout 2022. Tune in for tips for self study, shared discoveries and to expand menstrual awareness. FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Program Notes: Abortion Resources and Content Abortion Fund Network - https://abortionfunds.org/ Planned Parenthood Abortion Information - https://www.plannedparenthood.org/learn/abortion HOST: Jessica RIchmond: Website: jrich.online IG, @jessicalaurenrichmond HOST: Sarah Watson: Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG, @swsxtherapy Twitter @swsextherapy FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
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Patrick James Lynch is a globally- recognized healthcare and rare disease advocate, media professional, filmmaker, and father. He is the cofounder and CEO of Believe Limited, a mission- driven content agency and production company, and he's the Founder of BloodStream Media, a rare and chronic disease podcast network. Some of Patrick's producing credits include the films Bombardier Blood (EP: Alex Borstein), Elsewhere (HRIFF: Best Picture), My Beautiful Stutter (EPs: Paul Rudd, Mariska Hargitay), sometimes, i think about dying (Sundance Film Festival; Academy Award shortlist), and the multi-award winning web series Stop the Bleeding!. Patrick is also the Founder of the 501(c)(3) Entertainment 2 Affect Change (E2AC), a proud graduate of Boston University (BFA, Acting), and a fierce indoor cyclist. Born with severe hemophilia, Patrick dedicates his work in bleeding disorders and rare diseases to the memory of his late brother, Adam. Website: www.believeltd.com www.bloodstreammedia.com Headshoot link: https://m.imdb.com/name/nm4019838/mediaviewer/rm2979742720
BloodStream welcomes back frequents collaborators, Cazandra Campos-Macdonald & Laurence Woollard. Caz shares an emotional update on her chronic pain and mental health, while Laurence tells us about the impressive recent episode of Global Hemophilia Report featuring women with bleeding disorders. Show Notes: Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Subscribe to BloodStream Podcast Listen to the latest from BloodStream's FLOW podcast Listen to the Pain Podcast Brought to you in party by Genentech #Genentech #hemophiliacommunity #BleedingDisorders #Hemophilia #HemophiliaA #Healthcare Brought to you in part by CSL Behring. To learn more, check out www.HemEvolution.com If you have sickle cell disease, how often do painful crises have you visiting the doctor? Pfizer is now enrolling a research study of an investigational medicine that may help to prevent pain crises caused by sickle cell disease. If you have seen a healthcare provider for 2 to 10 sickle cell crises in the past year, you may be able to participate. To speak with the study team, visit ClinicalTrialSCD.com. With your help, we can pursue new treatment options for sickle cell disease. Learn more at ClinicalTrialSCD.com or click the link in the show notes. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Amy and Patrick are joined by Believe Limited colleague and new BloodStream Podcast correspondent James Maple! Plus, Let's Talk is back with a segment of suffering that features interviews with community members Dwayne Whitis and Heather Hogan, and a follow-up interview with Dr. Hanny Al-Samkari on the 2nd most common bleeding disorder that you don't know about! Presenting Sponsor: Takeda (bleedingdisorders.com) Show Notes: Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Learn more about HHT Subscribe to BloodStream Podcast Listen to the latest from BloodStream's FLOW podcast Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources. Brought to you by Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Subscribe to The Final Summit Podcast
There is a women's movement a brewin' and Patrick & Amy have the scoop! Special guest Ashley Gregory is here to tell us all about it! Plus, Amy has a diagnosis of her own to talk about, and Jessica brings us back to The Well for a segment on growth featuring community member, Michelle Conde. Presenting Sponsor: Takeda (bleedingdisorders.com) Episode Advertiser: CSL Behring (portraitsofprogress.com) Learn more about FAIR! Contact ashley.gregory@hemofoundation.org. Show Notes: Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more. Subscribe to BloodStream Podcast Listen to the latest from BloodStream's FLOW podcast To learn more about FAIR, Females Are Important to be Recognized, contact Ashley Gregory. The Bloodstream Podcast is also brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
BloodStream welcomes Greig Blamey, a physiotherapist from Winnipeg, Canada and the lead investigator and author of Sexual Issues in People with Haemophilia: Awareness and Strategies for Overcoming Communication Barriers (A fantastic interview!). Plus, Patrick learned something at his recent HTC visit and the latest Let's Talk mental health segment, featuring Joshua Sterling Bragg, on growing, evolving, and taking baby steps. Show Notes: Subscribe to BloodStream Podcast Sexual Issues in People with Haemophilia: Awareness and Strategies for Overcoming Communication Barriers: Click HERE Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources. Brought to you by Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
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