The Mito Podcast

Megan and Ashley have a great talk with April, who was diagnosed as an adult with a mitochondrial disease. She is a true Mito warrior and is currently writing her memoir. Find out more: https://www.facebook.com/chronicallyapril and https://aarguin.wixsite.com/website This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Ashley and Megan talk to Sebastien of the Flowering Hope Foundation. His son, Jagger, has Leigh Syndrome, a mitochondrial disease. Sebastien shares his story, and his work in promoting information and research on the use of medical cannabis, which has been instrumental in reducing the number of daily seizures that Jagger suffers. This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk to Rachel from Cecily's Closet. This is an amazing organization that collects and donates equipment and supplies to families of special needs children. It is named in honor of Rachel's daughter Cecily. Find out more at https://www.cecilyscloset.org/ This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Have you registered or donated to the 2022 Mito 5K?! This is the 10th year for this amazing event has raised over $800,000 for mitochondrial disease research! Ashley and Megan give a quick update on this great family event that they help organize and put on each year. Find out more at https://p2p.onecause.com/mito5k This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Ashley and Megan talk to Ashley's sister, Jamila! She discusses her role with the WorkAbility program in the San Diego Community College District. This amazing program provides vocational assistance and services to adults with disabilities looking to obtain employment during and after their education. "WorkAbility III teaches students the skills that will help them transition to meaningful careers and realize their potential." Find out more: https://www.sdccd.edu/about/departments-and-offices/student-services-department/dsps/workability/ A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Happy New Year! Megan and Ashley talk to Ryan and Sam who have an amazing lifelong friendship. Ryan is from Extreme Motus, a company that makes all-terrain wheelchairs. Ryan has taken his best friend Sam, who has cerebral palsy, on many off-road adventures with his "X3" all-terrain chair - they share their adventures frequently on Youtube, and Instagram and Facebook. Megan's son Troy also has an X3 and loves it! Enjoy! Follow Extreme Motus: https://www.youtube.com/c/ExtremeMotus http://extrememotus.com https://www.instagram.com/extrememotus/ A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Happy Holidays! Ashley and Megan talk about gift giving when it comes to special needs kids. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

We've all suffered through loss and grief after the death of a loved one or family member. In this special episode of The Mito Podcast Megan and Ashley explore the history and traditions of Dia de los Muertos with Ashley's cousin, Laurie. As Laurie puts it, the goal of these traditions is to “bring a little bit of light to a very challenging time” and help us find solace as we remember our family and friends who have passed on. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk to Devin, a genetic counselor who has a mitochondrial disease. She offers her unique insight as someone living with mito and working with families who are getting their own diagnoses of genetic diseases and disorders. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk with Seth and his mother Cindy. Seth is a 30 year-old living with mito. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk to Brandi from the Malan Syndrome Foundation. Megan's son Troy has recently been diagnosed with Malan, a very rare genetic disorder, in addition to his mitochondrial dysfunction. Currently, there are about 150 individuals diagnosed with this disorder worldwide.

Megan and Ashley talk about the upcoming annual Mitochondrial Awareness Week from September 19 - 25. This is the only global mito event every year. Hear ideas for how you can support mito awareness! A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

PART 2! Megan and Ashley talk to Stephanie and hear her incredible mito journey. After losing her infant daughter to mitochondrial disease, she is now pursuing three person in-vitro fertilization in hopes of having a child free of mitochondrial disfunction. Part TWO of a two part interview. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk to Stephanie and hear her incredible mito journey. After losing her infant daughter to mitochondrial disease, she is now pursuing three person in-vitro fertilization in hopes of having a child free of mitochondrial disfunction. Part one of a two part interview. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley welcome back Breanne and Jesse from Boise - one year later(from Episode #14)! Their daughter, Kyra, has Mito, and they talk about life over the last year during COVID. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley welcome back Raquel! Her daughter is Ruby, and she talks about their life over the past year. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Ashley and Megan talk to Leif Weigel, a neurologic music therapist. Leif has been working with Megan's son, Troy, for the last few years. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk to Abby Bartlett, a graduate student researching mitochondrial biology and function. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Ashley and Megan talk with Allison, a 20 year old with Mitochondrial myopathy. She talks about growing up and living with Mito, and what day to day life is like as she balances all of the things she needs to allow her to strive. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk about this year's Mito 5K Virtual Run happening on May22! They help organize this annual event which has raised over $600,000 to date for mito research! Register now at http://mitoresearchfund.org A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk to Laura, the mom of 8 month-old Briley, who was recently diagnosed with mitochondrial disease. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

Megan and Ashley talk POOP! They discuss digestive health and raising mito kids. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube.

Megan and Ashley talk to Mina, an adult living with MELAS, a mitochondrial disease. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube.

Megan and Ashley talk about their kids' trips to the hospital - short visits and extended stays - and the challenges when your child is medically fragile and immunocompromised. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube.

Megan and Ashley talk about In-Home Support Services (IHSS), a state and county program that provides services for aged, blind, and disabled individuals, allowing them to remain safely in their own homes. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Megan and Ashley talk to Abby, a school speech pathologist from San Diego! Advice and information for parents about all things relating to speech therapy for kids! A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com Now on Spotify! Subscribe on the Apple Podcast app! Listen on Google Podcasts. Like us @ Facebook.com/mitopodcast Youtube: The Mito Podcast

ONE YEAR ANNIVERSARY EPISODE! Megan and Ashley talk about getting the coronavirus vaccine! A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com Subscribe on the Apple Podcast app! Listen on Google Podcasts. Like us @ Facebook.com/mitopodcast Youtube: The Mito Podcast

Happy New Year! Megan and Ashley talk to Leah, a 23 year-old from Souther California, who is living with mitochondrial myopathy. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Now on Youtube! All links @http://mitopodcast.com

Megan and Ashley talk chat with each other about communicating with a child with mito and special needs. Megan shares about her experiences with her son, Troy, who is 12 years old. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. http://mitopodcast.com Subscribe on the Apple Podcast app! Listen on Google Podcasts. Like us @ Facebook.com/mitopodcast Youtube: The Mito Podcast

A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com Subscribe on the Apple Podcast app! Listen on Google Podcasts. Like us @ http://facebook.com/mitopodcast and http://instagram.com/mitopodcast. Also available on YouTube!

Ashley and Megan talk to Hannah from Indiana, a 19 year-old college student living with Mito. She is studying to be a genetic counselor. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

This episode Megan and Ashley talk to Stephanie from Minnesota. She shares the story of her son, Ted, and their Mito journey together. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Megan and Ashley discuss Mitochondrial Disease Awareness Week which runs Sep 14 - 20! They also have information about their special events on Facebook this week. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley are lucky enough to be joined by Dr. Richard Haas. Dr. Haas is director of the Neurometabolic Clinic at Rady Children's Hospital-San Diego and director of the Mitochondrial Disease Laboratory and a professor at UC San Diego School of Medicine. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley are joined by fellow mito mom, Louise, from the United Kingdom! She has a son, Freddy, who has Leigh's Syndrome, a mitochondrial disease.

Ashley and Megan talk to Sophia Ceulemans, M.S., a genetic counselor in San Diego, CA, about a variety of topics. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley are joined by the awesome couple Jesse and Breanne from Boise. They share the story of their daughter, Kyra. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley are joined by Tim Boyle the founder of "I Run 4" - an amazing non-profit that pairs special needs children and adults with runners and athletes. For more information go to: https://whoirun4.com or https://vimeo.com/386072564. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley talk to David and his mom, Cheryl. At 33 years old, David is one of the oldest living people with Leigh's Syndrome, one of the many mitochondrial diseases. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley talk to fellow mito mom, Raquel. She talks about her wonderful 4 year old daughter, Ruby, who has Leigh's Syndrome. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley talk to Cliff Gorski, director of communications for the United Mitochondrial Disease Foundation! The UMDF is the largest organization dedicated to fighting mitochondrial diseases! Visit http://umdf.org for more info. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. mitopodcast.com

Megan and Ashley talk to one of their favorite people - Stephanie from Sunshine Ranch Therapeutic Riding! Stephanie has been providing horse therapy riding services to children - including mito kids - for over 8 years. This is Megan's son Troy's favorite physical therapy and he has been riding with Stephanie for over 5 years. Please visit https://sunshineranchriding.org/ for more information about this wonderful non-profit!

Megan and Ashley talk about day to day life with mito kids and how it is similar and different during the current COVID-19 pandemic. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. http://mitopodcast.com

Megan and Ashley talk about various therapies for mito kids as well as the "mito cocktail" - supplements and vitamins that have proven successful. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Megan and Ashley welcome their friend, and fellow mito mom, Christina. She started the Mito Research Fund which holds events in San Diego and has raised hundreds of thousands of dollars for Mitochondrial Disease research! Check out the website: http://mitoresearchfund.org A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Megan and Ashley talk about the recent UMDF webcast "Ask The Mito Doc" about COVID-19 and mitochondrial disease. To see the full webcast on YouTube: https://youtu.be/vDqXV3J20LM A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

*Note: We apologize for the poor audio quality on this episode!* Episode #4 - Megan and Ashley talk to Desiree from the Daphne's Lamp foundation. Desiree has a daughter, Daphne, who has mito, and she has given back to the community by raising thousands of dollars to purchase medical supplies for mito families through her foundation. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Episode #3 - What is Mitochondrial Disease? Part 2 Megan and Ashley explain about the genetic inheritance of mito and relate info about the process they went through to get Troy and Angie's diagnoses. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Episode #2 - What is Mitochondrial Disease? Megan and Ashley explain some background about Mitochondrial Diseases and talk about their day to day life with a mito child. A podcast for families and friends of children with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.