Podcasts about my soul an unfinished life

With Tiffany off for the week, Gunnar is joined by his girlfriend, Darcy, and Jack Goodwin, who dated the late Mallory Smith. Jack talks about his relationship with Mallory and her posthumously published memoir, "Salt in My Soul: An Unfinished Life". Gunnar, Darcy and Jack talk about the dynamics of what goes into a relationship with someone who might have cystic fibrosis, the risks, realities and what good often comes from them. Jack talks about his favorite part of the book and shares some memories that didn't make the final publication. Finally, Darcy and Jack offer some advice for people who might be dating someone with CF. "Salt in My Soul: An Unfinished Life" by Mallory Smith can be purchased wherever you get your books!

Mallory Smith lived and died with Cystic Fibrosis. Mallory wrote, "Salt in My Soul: An Unfinished Life." In this fifteen episode of Young Adults with Complex Conditions, I speak with mother, Diane. Mallory was Captain of her own ship, lived HAPPY, and shares many lessons with us. Heart-warming affirmation! Tragic, tragic, tragic! Blog subscribers: Scroll down through show notes to read the post. If you'd like to listen to the podcast, click here or the title Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Diane Shader Smith 00:55. 1 Health IS fragile 04:40. 2 Self-care. A common question. 06:05. 2 Managing and coordinating care 08:04. 3 Who’s doing what? Team roles. 14:40. 4 Captain of her ship and the Control Freak 15:54. 5 Unforgiving Cystic Fibrosis 18:40. 5 Gifts and superpowers 22:24. 6 The ship reflects its Captain 25:24. 7 Lessons from Mallory 26:45. 7 What does healthy look like now? 33:23. 9 Reflection 38:37. 10 Links Find the full series here Mallory's 65 Roses - book Diane wrote Salt in My Soul on Amazon Protecting Sleep in the Hospital, for Both Patients and Doctors Documentaries by the people making a movie about Mallory The Invisible War, The Hunting Ground Phage therapy  An experimental treatment that may have worked for Mallory and shows promise LungesforLungs Notes Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer Dustjacket Photo by Diane Shader Smith About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel.  Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Diane Shader Smith My Opa, my father’s father, survived the Bergen-Belsen Concentration Camp. He also survived my dad’s death. He told me that he suffered more from losing a son than the concentration camp. I’m unhappy to say that I share the experience of losing a child with my Opa and Diane Shader Smith. Diane’s daughter, Mallory, kept extensive journals about her life with Cystic Fibrosis. Diane continued the bittersweet journey of shaping those journals into the book, Salt in my Soul, an Unfinished Life after Mallory died. I’m beginning and ending the conversations in this Young Adults with Complex Conditions series with solo parents - speaking with a parent and not their children - the first with Jill Woodworth and the last with Diane. I sought to provide a platform to share the stories of the young adults with perspective provided by parents, clinicians, and teachers. To hear Mallory’s story, please read the book. While Diane is engaging and well spoken,

In Part 2 of our "Salt In The Soul" series.  Paige and Martha are joined by Mallory Smith's father, Mark Smith.  Mark educates us about Phage Therapy. Phage therapy is widely being reconsidered as an alternative to antibiotics. The use of naturally-occurring phages to treat bacterial infection has a contentious history in western medicine.  Mark discusses all the research and treatments he looked into while trying to help his daughter, Mallory.  To donate to Mallory's Legacy Fund CLICK HERE  Purchase Mallory's Book "Salt in My Soul: An Unfinished Life"

Paige and Martha welcome a very special guest, Diane Shader Smith.  Diane is the mother of Mallory Smith who authored the book "Salt in My Soul: An Unfinished Life." The book is are stories of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five.  Diane relives many memories with Paige and Martha.  A truly, super CF Mom. Purchase the book "Salt in My Soul: An Unfinished Life"

Salt in My Soul: An Unfinished Life by Mallory Smith by Nurse Talk

Diane Shader Smith is the mother of the late Mallory Smith who authored the posthumously published memoir "Salt in My Soul: An Unfinished Life." Mallory was diagnosed with cystic fibrosis (CF) at the age of three and began writing a journal at 15. She continued writing in that journal until she died at the age of 25. Diane worked to get those pages published in book form and the result is the memoir published this month by Penguin Random House. During this podcast, Diane shares her daughter's story and her own story, including how she and her husband handled raising a child with CF. Diane reveals the struggles and the triumphs that Mallory and her family experienced, their determination as a family to try to beat CF, and she details the inspiring way that Mallory lived her life.

On this episode of XRAY In The Morning: (1 ) News With Friends, with Emily Gilliland and Colin Jones, (2) We sit down with Se-Ah-Dom Edmo, executive director of the MRG Foundation, (3)We speak with Diane Shader Smith, who published her daughter’s memoir "Salt in My Soul: An Unfinished Life", (4) We're joined writer and comedian Dino Samatopoulos, and local comic Belinda Carroll.