Health Hats, the Podcast

These families created a pandemic pod with clear rules & shared childcare. While adults navigated anxiety, their kids called it "the best time of their lives." Summary Bevin Croft and David Weintraub talk about their experience forming a "pod" during the COVID-19 pandemic. Health Hats introduces participatory governance - a concept I've studied throughout my life in various contexts, including families, communities, organizations, and healthcare. My history with governance spans from 1968, through college activism, homeschooling my children, living in an intentional community, and working in corporate settings. The main segment features a conversation with Bevin and David, who formed a COVID-19 support group, or pod, with other families to help one another during the pandemic. They discuss: They spontaneously decided to form the pod in May 2020 Creating formal rules and a written agreement to manage risks and expectations The challenges of prioritizing the pod over extended family relationships The practical arrangements include shared meals, childcare, and rotating responsibilities Their collective approach to virtual schooling for their children The difficulties David experienced as a teacher during hybrid learning How their children viewed the pod experience as "the best time of their lives" despite adults' pandemic anxiety The lasting bonds their "family of friends" developed and maintained The pod used tools from Bevin's work in person-centered practices to create its governance structure. They made decisions based on consensus, with particular attention to accommodate the most cautious member's concerns. Their experience strengthened existing friendships and created lasting bonds between the families. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introMy Life with Participatory GovernanceForming a PodRulesNot easyPrioritiesRules, Contract, RisksTools for AgreementAccountabilityHow are You Different?MealsChildcareTraveling TogetherSchool and WorkingTough Times as a TeacherKids Loved ItBelated Introductions Call to actionReflectionPodcast OutroRelated episodes from Health Hats Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, TikTok to @healthhats Production Team You know who you are. I'm grateful. Podcast episode on YouTube Inspired by and Grateful to Jan Oldenburg, Nakela Cook, Russ Howerton Links and references World Health Network National Center on Advancing Person-Centered Practices and Systems Episode Proem My advocacy revolves around participatory governance in everything that contributes to a decent quality of life. Participatory governance entails broad involvement, accessible information, transparency, and accountability, leading to trust in decision-making. I'm a lifelong student of governance, having studied it in families, communities, teams, organizations, healthcare, research, and various other settings. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. My Life with Participatory Governance I've watched and participated in governance since 1968, when I was 16, dealing with the Vietnam War draft. I learned that the plumbing of the draft contained laws, written regulations, and unwritten rules, with people making decisions, people moving paper, and massive numbers of kids like me processing through. I wanted to prepare myself,

Who needs Spanish when you've got a saxophone? A music-lover proves that disability access is just another improvisation in Havana's jazz scene. Best viewed as a video https://youtu.be/Qz9Rm89LHD0 Summary Danny, Health Hats, chronicles his week-long trip to Cuba in January for a music-cultural exchange. Using a wheelchair and playing baritone saxophone, he traveled with a group of 11 from the States, organized by Dan Fox and Arlington MA's Morningside Studios. The group participated in a "Band Camp" hosted by the Havana Music School, receiving daily individual lessons, rehearsing in ensembles, and performing Cuban music at a restaurant. Despite Danny's initial anxieties about traveling with his disability and instrument, he found Cubans accommodating and helpful. The podcast features an interview with Claudia Fumero, manager of the Havana Music School, who discusses: The school's focus on teaching Cuban music to foreign visitors How the business began and evolved from connecting students with teachers in their homes to having a dedicated facility Her dream of expanding with more instruments and creating a small café where people can play music The episode is interspersed with musical performances by the ensembles, including renditions of "Sofrito" and "Afro Blue" by Mongo Santamaria. The group also attended the Havana Jazz Festival each night during their stay. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle ProemPodcast introBlending Language and CultureHavana Music SchoolHavana Music School – Morningside Studios ConnectionManaging the BusinessManaging the StayEmployer of Musicians Call to actionDreamsTraveling with DisabilitiesWhy Cuba?More MusicReflectionPodcast OutroRelated episodes from Health Hats Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, TikTok to @healthhats Production Team You know who you are. I'm thankful. Inspired by and Grateful to Dan, Peter, Ann, Sonja, Jeff, Deb, Bob, Richard, Pachy, Claudia, Gisselle, Miguel, Alejandro, Mauri, Leo, Adrian, Angelito, Lazaro Links and references Morningside Studios Morningside Studio Tours Havana Music School on Instagram The Second Ensemble performance featuring Jeff Stout, Deb Larkin, Bob Salitsky, and Dan Fox Havana Jazz Festival 2025 Sofrito by Mongo Santamaria Mambo Inn by Mario Bauza Afro Blue by Mongo Santamaria Lagrimas Negras by Miguel Matamoros Guantanamera by Jose Marti/JoesitoFernandez Proem Music is a world within itself, with a language we all understand. — Stevie Wonder. My nighttime voices bombarded me. How can you go to Cuba as a musician? You're not good enough. Your wheelchair won't make it over their crumbling roads and sidewalks.  Your horn is too big and heavy with everything else. You can't do too many stairs. You don't speak Spanish. You won't be safe. I hate those deflating voices. I should be excited about this chance of a lifetime. I completely trust Dan Fox, our guide and arranger. My disabilities do not define me. Helpful people are everywhere. I'm going with my partner of fifty years. We love music and culture. Who cares about politics? What the heck? We went. Welcome to the story of our adventures. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Blending Language and Culture Music alone can abolish differences of language or culture between two people and invoke something indestructible within t...

Data scientist Emily Hadley on navigating AI in healthcare, offering practical advice for maintaining patient agency amid algorithmic decision-making. Summary This interview with data scientist Emily Hadley examines the intersection of artificial intelligence and healthcare through a deeply personal lens. Hadley's journey began when her own health diagnosis coincided with her graduate studies in analytics, revealing how algorithm-driven systems often affect patient care—especially through insurance claim denials and clinical documentation. The conversation offers practical guidance for patients navigating AI-influenced healthcare, including reviewing AI-generated clinical notes for accuracy, challenging algorithmic insurance decisions, and insisting on human intervention when automated systems fail. Hadley advocates for preserving patient agency and rights within increasingly automated systems while highlighting how algorithm review boards are striving to provide governance in this largely unregulated space. The interview concludes with resources for staying informed about developments in healthcare AI, emphasizing that while AI tools are rapidly advancing, patient advocacy remains vital. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemA Data Scientist AwakesBuilding Guardrails with AI GovernanceHallucinations and Validation with AI in ResearchPrompt Engineering-Conversational AIVerification and VigilanceStaying InformedReflectionRelated episodes from Health Hats Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, TikTok to @healthhats Production Team You know who you are. I'm grateful. Podcast episode on YouTube No video Inspired by and Grateful to Eric Pinaud, Laura Marcia, Amy Price, Dave deBronkart, Links and references Prompt Engineering Algorithm Review Boards at RTI Dave deBronkart's Patient's Use AI Episode Proem This year, I switched from Medicare Advantage to Traditional Medicare. I still needed to purchase a supplemental commercial plan to cover what Medicare Part B didn't. However, the supplemental commercial plan denied some services the previous Medicare Advantage plan covered. Why? What algorithms did each plan use to determine coverage? How can I manage this? Welcome to the third installment of Artificial Intelligence Can Work for You. We've explored how I use AI in my podcast productions and delved into some AI basics with Info-Tech leader Eric Pinaud. I asked Emily Hadley, a data scientist at RTI specializing in AI algorithms for insurance coverage decisions, to join us. Early in her graduate studies, Emily was diagnosed with Crohn's disease. This led to her interest in studying insurance algorithms. A Data Scientist Awakes Health Hats: How did you gain expertise in AI? Emily Hadley: Great question. I was diagnosed right as I started a graduate program in analytics. In my undergraduate studies, I studied statistics in public policy. I liked the idea of using data to shape how policymakers make decisions, especially in the US. I had done some work with AmeriCorps and then went to grad school to really hone those skills. Being diagnosed at the same time that I was in grad school meant that I was navigating to new, informative, and educational areas. And I think that that's when I really came to realize the power of data and the power of AI in shaping the way that organizations and people make decisions. We live in a really algorithm-fueled society. We constantly encounter technology and AI systems, even when we don't realize it. An example I give is that I've faced many problems getting insurance to cover the things it is supposed to. I didn't realize until a couple of years ago that this is ...

A child of Holocaust survivors balances pathological optimism with apocalyptic thinking while seeking meaningful ways to channel advocacy in turbulent times. Summary In this deeply personal episode, a child of Holocaust survivors reflects on navigating today's global chaos while maintaining hope in healthcare. As a seasoned healthcare advocate, they share insights on: Leveraging privilege for positive change Finding balance between optimism and realism Adapting communication strategies for greater impact The importance of self-care and community support Key highlights: Moving from long-form monthly interviews to shorter, more frequent content The role of music as a healing force Following Helene Epstein's "Patient No More" insights Special music feature: "The Weight" by The Band with Ringo Starr and Robbie Robertson

Successfully sharing & acting on research findings depends on active partnerships with the implementers – patients, caregivers, & their clinician partners. Summary Claude AI consulted to create this summary The 2024 Academy Health Dissemination & Implementation (D&I) Science Conference revealed a significant gap between researchers and implementers (patients, caregivers, and their clinician partners). While D&I science studies how to share and apply research findings effectively, the conference highlighted that implementers—the very people meant to use these findings—were largely absent. Through interviews with attendees, key barriers emerged: high conference costs, lack of deliberate outreach, and content primarily designed for researchers. A compelling example from Ghana demonstrated successful implementation through radio drama and community health workers, suggesting that effective D&I requires meeting people where they are, both literally and figuratively. Click here to view the printable newsletter with images. It is more readable than the transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemShare and Use: Dissemination and Implementation2024 Academy Health D&I ConferenceAccording to Scientists, What is D&I?Setup and IntroductionsNGOs using Implementation ScienceNothing about us without usNGOs implement every dayUnderstanding the caregiver's experienceResearch questions from implementersAlign the languageFacilitating implementationWhat is Dissemination and Implementation Science?Implementers at the conferenceMore intentional invitationsPartnering with PharmaPaying for implementers to attendExperts don't have all the answersCost and timeRadical dissemination by radioTen + ten + thirtyReflectionRelated episodes from Health Hats Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Audio Podcast   Inspired by and Grateful to Anonymous, Bernard Appiah, Bryan Ford, Catherine Hoyt, Nadia Sam-Agudu, Tatiana Nickelson, Greg Martin, Kristin Carman, Aaron Carroll, Susannah Fox, Eric Kettering, Rodney Elliott, Lisa Stewart, Ellen Schultz, Kathleen Noonan Links and references The Communication Initiative Network Bernard Appiah Bernard Appiah's publications  Fascinating!! Nadia Sam-Agudu recent publication. Check this out. St. Louis Sickle Cell Association University of Colorado Accord Center. See Infographic here. Communication and Dissemination Strategies To Facilitate the Use of Health and Health Care Evidence Dissemination and Implementation Science to Advance Health Equity: An Imperative for Systemic Change Managing Clinical Knowledge for Health Care Improvement Embedding implementation science in the research pipeline A Systematic Review of Patient Engagement and Its Organizational Impact The Application and Evolution of the Practical, Robust Implementation and Sustainability Model (PRISM): History and Innovations Engagement in Research: PCORI's Foundational Expectations for Partnerships | PCORI Toolkit resources | Consumer Engagement | VCCC Alliance Building the table together: Lessons on authentic community engagement from INSPIRE Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care – Susan...

  Demystify AI's evolution, from Netflix recommendations to ChatGPT, exploring how neural networks learn & why even AI creators can't fully explain how it works. Summary Claude AI used in this summary

Reflecting on community & self-care post-election. MS teaches patience. Adjusting media habits, finding strength in family history, music, & trusted connections. Summary Health Hats muses about physical, mental, and spiritual health, community connections, and self-care during these post-election times. He has changed his media consumption habits and is learning from his experiences with multiple sclerosis. He expresses anxiety and a dark curiosity about the future, drawing strength from family history, marriage, and music, and emphasizes the importance of staying connected with trusted communities and being open to help when needed. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast Inspired by and Grateful to Steve and Sue Heatherington, Heidi Frei, Matt Neil, Tania Marien, Ann Boland, Leon van Leeuwen Links and references Heather Cox Richardson's Letters from an American on Substack Weekly Show with Jon Stewart Kareem Abdul-Jabbar on Substack Virginia Heffernan's Magic+Loss on Substack the Bulwark Katelyn Jetelina's Your Local Epidemiologist on Substack Lyz's Men Yell at Me on Substack the Guardian Sue Heatherington's fresh sight from the quiet edge. Episode Let's review the body from head to toe: tedious brain loop, dry, sticky mouth, queasy stomach, tight muscles, loose bowels, and bone fatigue. Fear, anxiety, despair, and hopelessness, with a niggling curiosity. I'm networking and reaching out to loved ones in person and virtually. Searching for facts, trust, and people to follow. I've stopped almost all pundits in print, audio, and video. My feeds are changing with more music, comedy, animals, and sports. And algebra—why algebra? I'm sticking with following Heather Cox Richardson, Jon Stewart, Kareem Abdul-Jabbar, Virginia Heffernan, the Bulwark, Your Local Epidemiologist, Men Yell at Me, the Guardian, and Sue Heatherington's fresh sight from the quiet edge. I've added AOC, Jeff Jackson, and Isaac Saul's Tangle. More music: My Latin Band, Lechuga Fresca, is on hiatus, so I joined a Dixieland Band. I'm still losing weight—30 pounds so far. I just noticed less abdominal flab to pinch when taking my shots. I can do 20 push-ups and 16 squats and can get myself up off the floor. I walk about 3,500 steps a day. I'm getting a new travel wheelchair. I have several priorities: don't fall, progress with MS as slowly as possible, maintain much of my pathological optimism, continue to play my horn, and contribute to inclusive, nurturing communities. The hardest priority may be maintaining optimism. MS has forced me to exercise my patience muscles. What choice do I have? I can't run to the bus. If I miss it, I miss it. What muscles will we strengthen over the next four years? I'm a terrible crystal ball gazer, but I know the self-care muscles will need attention. At this moment, I don't feel the urge to do much of anything except take care of myself and those with whom I'm fortunate enough to share an existence. When a plan comes to me, I'll share it. If someone else comes up with a plan, I'll check out the someone and the plan with others I ...

What kind of Artificial Intelligence does Health Hats, the Podcast, use in production? Understanding types of AI, transparency, and ethical considerations. Summary Perplexity used in this summary AI Tools in Use Various AI-powered software and apps are utilized in production, including Zoom, Descript, Grammarly, DaVinci Resolve, Canva, Perplexity, and OpenArt AI. Types of AI The episode breaks down different categories of AI, including Narrow AI, Artificial General Intelligence (AGI), and Artificial Superintelligence (ASI). AI functionalities are explained, from Reactive Machine AI to the theoretical Self-Aware AI. Ethical Considerations Transparency and disclosure of AI usage in content creation Maintaining authenticity and human creativity Ensuring content accuracy and preventing misinformation Addressing bias and fairness in AI algorithms Protecting user privacy and data Ensuring Transparency Disclosing AI usage in audio content and metadata Clear communication with the audience about AI utilization Appropriate use of AI as a tool to enhance, not replace, human creativity Verifying and fact-checking AI-generated content The episode emphasizes the importance of using AI responsibly to enhance the podcasting experience while maintaining integrity, authenticity, and trust with the audience. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemAI used in Health Hats ProductionAI in Podcast Production According to Health HatsAI in Content Creation and EditingAudio ProcessingVideo EditingAI for Content EnhancementTranscription and SubtitlingContent GenerationAI for Audience Engagement and AnalyticsPersonalizationAnalytics and InsightsTypes of AI Based on CapabilitiesNarrow AI (Weak AI)Artificial General Intelligence (AGI)Artificial Superintelligence (ASI)Types of AI Based on FunctionalityReactive Machine AILimited Memory AITheory of Mind AISelf-Aware AIAI Ethical ConsiderationsTransparency and DisclosureMaintaining AuthenticityContent Accuracy and MisinformationBias and FairnessPrivacy and Data ProtectionJob Displacement ConcernsClimate and Resource ImpactTransparencyDisclosure RequirementsClear CommunicationAppropriate AI UsageContent VerificationOngoing EvaluationTransparency: AI Notice in Health Hats, the Podcast Show NotesAI Notice for Health Hats, the PodcastReflectionRelated episodes from Health Hats Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Amy Price, Fred Trotter, Dave deBronkart, Eric Pinaud, Emily Hadley, Laura Marcial, James Cummings, Ken Goodman Links and references https://conversational-leadership.net/quotation/ai-is-neither-artificial-not-intelligent/ AI in Podcasting: Transforming Podcast with AI Technology Best AI tools for podcasts AI in Podcasting: A Guide for Brand Marketers https://www.carmatec.com/blog/ai-in-media-and-entertainment-complete-guide/ AI in Media and Entertainment Complete Guide Episode Proem No surprise, I use Artificial Intelligence in my podcast production. As an early adopter of technology,

Effective solutions & ethical guardrails for data-driven decision-making, care, & treatment require patient involvement in policy & technology development. Summary Patient Insights on Health Access, Technology, and Public Policy  Data should inform decision-making for a triad of patients, caregivers, and clinician partners. Some patients desire data sovereignty - the ability to access, use, and share their health data. However, managing personal health data can be overwhelming for individuals. Transparency about data usage and privacy is crucial for building trust. There are concerns about potential stigma and discrimination from data misuse. Including patients in policy and technology development can lead to more effective solutions. Ethical guardrails are needed, particularly for data aggregation and monetization by companies. There's a mix of optimism and pessimism about the future of health data management. Collaboration with patients in development processes can increase the likelihood of successful outcomes. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introLevel set – Get Your Patient On90% Similar, 100% HumanInspiration from Data: Weak Link in our HealthRelationship Triad for Decision-Making: Patient, Caregiver, Clinician PartnerUnintended Consequences – Crystal Ball GazingData Sovereignty – Self-GovernanceFederated Model of Data (Confederacy of Confederacies)Call to actionTrust Communities – Relaxed ControlTransparency – Knowing What You Don't KnowAnonymous Data. Really?Guardrails – Safety and PrivacyStigma and DiscriminationPessimism or Optimism About the FutureReflectionData and Decision-MakingData Sovereignty and ManagementEthical ConsiderationsPolicy and Technology DevelopmentOutlookPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Kistein Monkhouse, Claire Sachs, Christine Von Raesfeld, Geri Lynn Baumblatt, Aaron Carroll, Erin Holve, Adam Thompson, Kathleen Noonan, Andrea Downing Links and references The Panel Kistein Monkhouse, the moderator, founded Patient Orators. My peeps are Christine Von Raesfeld, founder of People with Empathy and with the Light Collective, and Claire Sachs, founder of the Patient Advocate Chronicles and TPAC Consulting. A federated data model for patient data PCORnet is a prime example of a federated data system. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8596061/ Episode Proem Kistein Monkhouse invited me to participate in a 30-minute panel at September's Academy Health's Datapalooza conference titled ‘Patient Insights on Health Access, Technology, and Public Policy.' I thought, ‘OMG, this thesis-worthy topic can't be addressed in 30 minutes.' However, the opportunity begged to be embraced, especially with the citizen expert panel members: Kistein Monkhouse, the moderator, founded Patient Orators. My peeps are Christine Von Raesfeld, founder of People with Empathy and with the Light Collective, and Claire Sachs, founder of the Patient Advocate Chronicles and TPAC Consulting.

Philip Shadle, CEO, Aimee Copeland Foundation opens outdoor accessibility for disabled individuals with all-terrain wheelchairs. My endorphins flow. Yeehaw! Summary This podcast episode features an interview with Philip Shadle, CEO of the Aimee Copeland Foundation, discussing the transformative impact of all-terrain wheelchairs on accessibility and outdoor experiences for individuals with disabilities. The podcast underscores the importance of accessibility and inclusion in outdoor activities, celebrating the collaborative efforts of organizations, individuals, and communities to enhance the lives of people with disabilities. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introOff-road wheelchair travelIntroducing Philip ShadleTravel in Costa RicaFoundation Business ModelAll-Terrain Wheelchair Models Call to actionTraining for Off-Road TravelBirthing the FoundationExpanding the Foundation OfferingsGratefulContestReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Ann Boland, Bruce Kimmel, Olivia Zivney, Linda DeRosa, and all my many helpers Links and references Camino de Santiago pilgrimages, Costa Rica Aimee Copeland Foundation Action Track Chair in different sizes. Episode Proem According to the CDC A disability is any condition of the body or mind (impairment) that makes it more difficult for the person with the condition to do certain activities (activity limitation) and interact with the world around them (participation restrictions). Clearly, it's not a legal definition. I would add self-image, societal perceptions, and environment as components of that definition. Some days, I feel more disabled than other days, and some situations enhance or reduce my abilities. Ability/Disability is a continuum that changes over time and situation. Travel accentuates my abilities - puts them in high relief - for me. Travel requires close examination of my abilities so I can figure out how to manage minute-to-minute - constant decision-making. Travel allows me to stretch my capabilities. It's exhilarating and eventually exhausting. Periodically, I share my travel experiences. Remember the two Camino de Santiago pilgrimages, one in 2019 and the other 2022? In 2023 we explored Costa Rica.  We're planning a music trip to Cuba in four months. Today, I describe our trip to Cloudland Canyon State Park in northwest Georgia. After a zip-lining accident in 2012, when she was 24, Aimee Copeland was hospitalized and diagnosed with a flesh-eating, bacterial infection. They had to amputate both of her hands, right foot, and entire left leg. Before the infection, she was extremely active, rock climbing, backpacking, and trail running. In response to her frustration with wheelchair life, she created the Aimee Copeland Foundation, which raises funds to create opportunities for connecting with the self, the community, and the earth through the provision of a fleet of all-terrain wheelchairs for free use by people with disabilities within select Georgia state parks.  In this podcast episode,

Aaron Carroll, CEO of Academy Health, discusses his journey to improve health systems & decision making through community engagement & repetitive communication. Summary Aaron Carroll, CEO of Academy Health, shares his journey, from his frustrations with the healthcare system as a pediatrician, and the role of mentorship and science communication in his career. He delves into his efforts to make complex health issues understandable to diverse audiences through various media, his role in improving health care decision making and systems, involving communities in research, and building trust through consistent and repetitive science communication. Dr. Carroll also touches on the importance of implementation science and the challenges of making research findings effective in real-world settings. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introIntroducing Aaron CarrollHealth is FragileWriting a Prescription Isn't EnoughFix itPhase one: Independent InvestigatorPhase Next: Mentor, Communicator, ResponderAcademy HealthCommunicating Science to the Public Where They AreThe Practice of Communicating for ImpactEngaging Lived ExperiencePatients Included at Academy Health Call to actionKey PointsLived Experience at the Table – Your Lived ExperienceResearch SkepticismLearning When the Hypothesis isn't ProvenImplementation ScienceEfficacy and EffectivenessTrust and ListeningRepetition, Repetition, RepetitionReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Seth Godin, Nakela Cook, Ann Boland, Ellen Schultz, Steve Heatherington Links and references Aaron Carrol: The Incidental Economist, Healthcare Triage, Robert Wood Johnson Clinical Scholar, New York Times, Indiana University's COVID response. Academy Health: Academyhealth.org/Datapalooza, Communicating for Impact, community-led research grants, Health Data Leadership Institute, Dissemination Implementation Science Conference patient-included criteria implementation science Episode Proem Danny and Ann, July 3, 2024 Together for more than fifty years, my wife and I still practice communication - practice as in repetition, experimentation, and humility with two steps forward and one step back (or one forward and two back). No wonder anyone participating in healthcare continually struggles with the puzzle of communication. Just today, I texted a pharmacy about access to a critical medication with an expired prescription, tried to explain my newly diagnosed diabetes and diet choices on FaceTime with a friend, and drafted a letter about lessons learned about measurement for team members to share with our leaders. I know some master communicators: Seth Godin, Nakela Cook, my wife, Ellen Schultz, Steve Heatherington, and my guest today, Dr. Aaron Carroll, President and CEO of Academy Health. They each excel in different ways under different circumstances. I must take care to keep listening to their content and not float above and marvel at their artistry and skill. DALL·E 2024-07-24 09.19.39 - A scene depicting various master communicators, each in their element.

Family and friends dispersed Mighty Casey (Mary) Quinlan's ashes in the Gulfstream, reflecting on her life and sharing outrageous and mundane pics and stories. Summary On May 24, 2024, Mighty Casey Quinlan's ashes were spread in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode captures the layers of that experience, featuring an introduction conversation between Jan Oldenburg and Health Hats, recorded on June 27. The episode includes self-introductions of the dispersal party, a historical photo tour of Casey's life, and a reflection from Hank Burchard. The package of audiovisual pieces including a 17-minute video with introductions and a three-minute photo tour by Casey's sister, CeCe can be found in the show notes. Coming soon, Casey's website, mightycasey.com, will include all her podcasts and the contents of six VHS and one Beta tape recorded over the years. Check our progress. These show notes DO NOT include images.  Images are key to this episode. Click here to view the printable newsletter with images.  Contents Table of Contents Toggle CreditsEpisodeProemPodcast introThere's Something Happening HereHow I Met CaseyCall to actionPhoto Tour with Historian, CeCe CaseyJan and Danny sign offReflection from HankPodcast OutroCreative Commons Licensing Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Jan Oldenburg, CeCe Casey, Michael Casey, Myrna Isaacs, Piper Dankworth, Laurie Rodgers Stukel, Hank Burchard, Dave DeBronkhart, Amy Price Links and references Casey's Website Health Hats Podcasts with and about Casey  Credits Music behind photos scraped from YoYo Ma on Fresh Air Images of Casey throught taken by family and friends over the years Episode This transcript DOES NOT include images.  Images are key to this episode. Click here to view the printable newsletter with images. Proem Health Hats: On May 24th, 2024, we spread Casey's ashes in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode layers several of the many pieces of that experience. I stopped here because I'd had enough. Time to publish! You'll find an intro conversation between Jan Oldenburg and me recorded on June 27th, followed by self-introductions of the dispersal party, recorded by our guide, Karen Hallett. Next, we'll take a historical photo tour of Casey's life, piloted by Casey's sister, CeCe. I only included about fifteen of the almost one hundred photos, as the resulting three-minute clip took almost twenty hours to produce. We'll end with me reading Hank Burchard's post-event reflection, and then Jan and I will wrap it up. The written and audio include everything except the videos, of course. I will create a 17-minute video with the introductions and a three-minute one with the photo tour. I'm resurrecting Casey's website to include all her podcasts and the contents of six VHS and one Beta tape Casey recorded over the years. The URL will be Casey's https://mightycasey.com. Try it to see if we've got it ready. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little.

Shana Davidson shares her day-to-day Long Covid challenges using the "spoon theory," a metaphor for the limited energy reserves people with chronic illness face Summary The episode explores the fascination with prolific enigmatic conditions, which are common yet complex and often misunderstood illnesses like fibromyalgia, chronic fatigue syndrome, lupus, endometriosis, and long covid. These conditions highlight systemic issues in healthcare, such as various biases and the complexities of corporate medicine and research. Shana Davidson, having personally experienced misdiagnosis and the challenges of navigating these conditions, emphasizes the intersectional barriers faced by women, people of color, and those with mental and spiritual health challenges. Shana shares her journey with long covid, discussing the day-to-day management challenges using the "spoon theory," a metaphor for the limited energy reserves people with chronic illness face. Shana's experience underscores the difficulties in obtaining a diagnosis and appropriate care, reflecting broader issues in the medical system's handling of chronic conditions. Throughout, the podcast touches on themes of resilience, the need for advocacy, and the struggle for recognition and adequate research in treating long covid and similar conditions. The conversation also highlights the importance of compassion and understanding within the medical community and society towards those living with chronic illnesses. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introLearning health is fragileSpoons, SpooniesPace Yourself versus SpoonsBudgeting spoonsRecovery mode variation in spoonsContracting CovidOpening upYikes, Long Covid?Tired of Pursuing AnswersLong Covid CenterAsynchronous communicationFinally Diagnosed Call to actionRebel HealthSocial media help – 2-edged swordUseful helpSome compassion, pleaseWhat's in a Name?Chronic Disease Management – Diagnosis, Symptoms, Care, TreatmentInvesting in Long CovidReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to  Jeff Horner, Yaneer Bar Yam, Melissa Reynolds Links and references Episode Proem Ants: Prolific and enigmatic. Image by Open Art AI in style of Paul Barson Prolific enigmatic conditions fascinate me. Prolific (many) is the opposite of rare (few), so not a rare condition. Enigmatic means mysterious riddle. Examples of enigmatic conditions include fibromyalgia, chronic fatigue syndrome, lupus, endometriosis, and long Covid. Enigmatic conditions put a spotlight on isms – racism, sexism, ageism, ablism, paternalism. They reveal a near-universal discomfort with uncertainty. And when you pull back the curtain to try to search or solve, you find the weight of corporate medicine, the research industrial complex, and vested-interest policy making. I know the frustration of years of misdiagnosis. I was misdiagnosed with cardiac disease when I had multiple sclerosis. My privilege insulates me from many cultural barriers and humiliation experienced by women, people of color, and those with mental and spiritual health challenges arising...

Turn-around: Grandson interviews Health Hats about his Zelig-like career path and choices: unpredictable, privileged, mentored, supported, and spiritually healthy. Summary Health Hats is interviewed by his editor, grandson Leon, delving into a discussion about his diverse and impactful career. The episode starts with Leon interviewing Health Hats about the origins and motivations behind the podcast, tracing back to a serendipitous naming and a road trip that solidified the podcast's visual identity. Health Hats shares his journey from opting out of a higher-paying job that required him to cut his long hair to embracing a path in healthcare as a psychiatric aide, which led him to nursing school.  The story also touches on being a male nurse in the 70s, transitioning from direct care to significant hospital and quality management roles. Leon and Health Hats discuss the significant impact of personal decisions on career paths, the unpredictability of life, and the profound influence of one's birth and circumstances. Health Hats reflects on his efforts to improve healthcare systems, advocating for better staff and patient conditions and participatory health. The episode explores Health Hats' professional life, his philosophy on work-life balance, his role as a change agent, and his commitment to continuous learning and improvement. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introBirthing Health HatsNursing school – what's hair got to do with it?Wanted a lifeFirst male public health nurse in Western MassWe don't hire men in nursing hereRetiring in our thirties as back-to-the-land hippiesCouldn't manage an emergency at homeTwelve-bed hospitalWest Virginia, a Third World stateAdvanced Cardiac Life Support Call to actionVolunteering for the Emergency SquadFrom direct care to managementChange agent: staffing and visiting hoursRemote Learning for a Master's DegreeMoving onStudent of organizational healthOutspoken, driven change agentBest Boss EverThe will to change – leadershipNo, lay me offRetiringProfessional life, more than the jobCan't keep a jobReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk  Leon van Leeuwen: article-grade transcript editing  Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Five-minute episodes on YouTube. Inspired by and Grateful to  Jim Bulger and Bob Doherty (deceased), Eric Pinaud, Jane Sarasohn-Kahn, Luc Pelletier, John Marks, Ann Boland, Lynn Hubbard Links and references Are medication error rates useful as a comparative measures of organizational performance? was published in The Joint Commission Journal on Quality Improvements in 1994 receiving the David K Stumpf Award for Excellence in Publication from the National Association for Healthcare Quality. The article was referenced in the book, Error Reduction in Healthcare by Patrice L. Spath in 2000. 1977 article about Danny van Leeuwen, the first male public health nurse in W Mass It sounds like a Zelig effect (if you know Woody Allen) or a Forrest Gump effect (if you know Tom Hanks) Jane Sarasohn Kahn, a blogging health economist West Virginia The University of Minnesota ISP Program Episode Proem As you may know, my production team includes Grandson Leon,

Kathleen Noonan's quest to build bridges between communities & researchers with long-term relationships & respect for experience & expertise, just like juries. Summary Kathleen Noonan, the CEO, catalyzed the transformation of the Camden Coalition into a national platform for complex care. She focused on capacity building, bridging healthcare research with community organizations, and emphasizing the power of diverse partnerships. Noonan is a staunch advocate for community-driven healthcare, pushing institutions to incorporate local insights and foster long-term relationships that shape better research and policy outcomes. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Two five-minute clips on YouTube. Contents Table of Contents Toggle EpisodeProemPodcast introThe fragility of healthJourney to healthcare advocacyInsights from the legal and corporate worldsTransition to Children's Policy and HealthcareFirst encounter with Camden CoalitionThe impact of diversity at conferencesMeeting of the minds over community – research interfacesAn outsider co-directing a Research CenterImplementation, a different animal altogetherWho asks the research questions?Partnering in the communityEarning the right to speakFull of myself Call to actionPunching above our weight classFrom a local to a national organizationComplex care centerCommunity Nursing in 1976 – Walking Inner City route.Capacity to partnerLong-term relationships, lean into expertise.MediationMessy and localCommunity participation in research – capacity buildingStart with the research questions askedLong-term relationships informed consumers and researchersConsider juries as an effective, diverse set of mindsExpertise versus credentialsReflectionPodcast OutroPlease comment and ask questions: Episode Proem In 2020, early in the COVID pandemic, I joined with several colleagues asking the questions: How can the research industry help laypeople and communities find evidence-based guidance on how to live safely? Guidance that answers their questions when needed? Guidance that feels familiar and helpful. Guidance they trust. How can we be inclusive of our communities' awesome diversity? See the podcast episode here. We spent several years exploring those questions, informing my passion for community-research partnerships. I highlight such partnerships as often as possible in my podcast. One of my primary advocacy goals is to promote research that answers questions the public and communities ask. My guest today, Kathleen Noonan, is CEO of the Camden Coalition, a multidisciplinary, community-based nonprofit working to improve care for people with complex health and social needs in Camden, across New Jersey, and nationwide. They develop and test care management models and redesign systems in partnership with consumers, community members, health systems, community-based organizations, government agencies, payers, and more to achieve person-centered, equitable care. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. The fragility of health Health Hats: Kathleen, thank you so much for joining us. I've been looking forward to this. When did you first realize health was fragile? Kathleen Noonan: That's a great question. There are so many different answers to that. At some point as a kid, you realize that your parents aren't just older than you, but older adults don't stay around. When I was a kid, there was a girl on my block who passed away from pneumonia. It was an early developmental moment. But then, when did you realize that health is fragile because the healthcare system i...

Exploring the journey of coffee from farm to cup with expert Jen Stone, delving into flavors, cupping, & the ethics of coffee production. Music & Health, too Full 36-min episode on YouTube Two five-minute clips on YouTube. Click here to view or download the printable newsletter Contents Table of Contents Toggle EpisodeProemPodcast introIntroducing Jennifer StoneHealth is FragileProfound Knowledge of Coffee or CaffeineCaffeine Delivery SystemCoffee CupperCoffee Flavor Notes Call to actionCoffee Flavor Notes in My CuppaDifferent tastes and circumstancesFermentationTransparencySocial Justice in Coffee MakingMy PaletteSlow down and tasteYou've ruined me a bitEquipmentReflectionPodcast OutroPlease comment and ask questions: Episode Proem When I take two minutes to bitch about the annoyances of having Multiple Sclerosis, I insist that I can't be repetitive. I must whine and complain with new words. How many words do we have for describing symptoms of pain? Not enough. Sharp, dull, achy, daily, itchy radiating, nauseating, disabling. Greenland has 46 words for snow and no wonder. Profound knowledge about something leads to more words being needed and created. The better we can describe ourselves to ourselves, the deeper we understand our nuances. More accurate and specific descriptions lead to better communication of our symptoms, moods, and circumstances with our health team. Then, we can make informed decisions, plan, and adjust together. Believe it or not, this rant about words leads us to today's episode on coffee. Welcome to my new hat – coffee snob. Our guest is Jennifer Stone, my colleague in my Thursday morning mastermind group for solo entrepreneurs. Jen is a Sommelier of Coffee and the host of the Coffee Explorer Podcast, a Quality Lecturer, and a Licensed Q Grader by the Coffee Quality Institute. She is internationally recognized as an Expert Coffee Taster and Judge for the Cup of Excellence. She has expertise in finding, sourcing, and sharing remarkable coffees from quality global producers. Over her career, she's opened multiple cafes and created several direct-to-consumer and business-to-business specialty coffee brands. She provided expertise to others in these areas and is always excited to share the best ways to brew coffee with the market. Jen Stone has opened my eyes in unexpected ways. Drink up! Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Introducing Jennifer Stone Health Hats: Jen, you've opened many senses for me. We met over the business. We are working together on our business; you know how that's growing and managing. But I've learned from you about coffee, not just coffee. It's about the sense of taste because it's not just, you know, while I'm learning to appreciate fine coffee. I was concentrating more on what was happening in my mouth. I'm finding it with food, chocolate, and alcohol, and just more awareness. Health is Fragile Health Hats: When did you first realize health was fragile? Jennifer Stone: This is such an interesting question. I love that you asked about the word health as fragile and not life as fragile. When a loved one passes, or you have a near-death experience, that speaks about life, but health, specifically, is a little vaguer. About a year and a half ago, I could say I loved to run. I'm not fast, but I love to jog and exercise. One of my knee joints began to wear down. I have some arthritis in one of my knees, and it felt like this bone-on-bone thing. It was disabling. After a few days of it not going away, no matter how much ibuprofen I took, I realized I needed my knee to strengthen. I don't want to focus on my knee.

Susannah Fox's "Rebel Health" on the power of Seekers, Networkers, Solvers, & Champions in driving patient-led innovation & the communal fight against disease. Full 36-min episode on YouTube Two five-minute clips on YouTube. Click here to view or download the printable newsletter Contents Table of Contents Toggle EpisodeProemPodcast introRealizing the Fragility of HealthTransition from Research to ActivismThe Role of Perception in HealthcareA System Versus Community View of Healthcare InnovationHacking Healthcare and StartupsMotivation to Solve Call to actionSeekersNetworkersSolversChampionsNetworker, Seeker, Solver, ChampionNetworker, Champion, SolverPersisting BossLeading by Helping the HelpersActors on the Stage of InnovationEmergence of ChampionsServing CommunitiesRevolutionary Energy – Regina Holliday and Casey QuinlanDraft Counseling – Working from the InsideChampions Stoke FiresRebels in Health – You Are Not AloneC-Suite and Government Meet RebelsStep into Your PowerThe Enemy is Disease​ReflectionPodcast Outro Episode Proem Rebel Health by Susannah Fox As a student of advocacy and activism, I draw warmth from the heat of others' passion, marvel at the diversity of origin stories, and burst with curiosity about what might come next. How did they start on this journey, and why do they persist? I've been a nurse for 50 years. One of the best things about nursing for me was the license to be nosy – for a brief time - a visit or a stay. This nosiness melds nicely as a podcaster for an episode. I often ask guests, “When did you realize health was fragile?” Another student of advocacy and activism is our guest, Susannah Fox.  Susannah is a health and technology strategist. Her book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, has just been published by MIT Press. She is a former Chief Technology Officer for the U.S. Department of Health and Human Services, where she led an open data and innovation lab. She has served as the entrepreneur-in-residence at the Robert Wood Johnson Foundation, and she directed the health portfolio at the Pew Research Center's Internet Project. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health Hats: Susannah Fox, how are you? It's so good to see you. I've been looking forward to this. You've been my idol for a long time. I first learned about you when you were at Pew Research Center, and I thought your perspective and research were so helpful. Realizing the Fragility of Health When did you first realize health was fragile? Susannah Fox: Wow. The first time I realized that health was fragile was when my dad was a flatliner on the table at the hospital after his heart attack. He was in his fifties and someone who, to anyone who looked at him, would've thought he was a health nut. He went four miles three times a week. He was fit. He loved to hike. He was a mountain climber. And yet he had genetically high cholesterol and a hidden, blocked artery. So, they luckily were able to revive him, and he had open heart surgery and lived long enough to then get kidney cancer in his sixties and melanoma in his seventies. My dad was my model for lifelong health and perseverance. I love this question because it explains how you learned that health is fragile. But then also what? What happened when you learned that health was fragile? For me, it was seeing my dad persevere to regain his health each time he had a setback. Health Hats: That's admirable. Transition from Research to Activism Health Hats: You had these experiences and are now in activism. How did that path happen? How did you get where you are now?

Celebrating my audience. Describing my multimedia journey, stats, ongoing advocacy, future episodes and a musical bonus featuring the host on the Bari Sax. Show Notes at the end. Watch on YouTube None today. Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle Watch on YouTubeRead NewsletterEpisodeProemPodcast introManaging my bandwidthStill learning in my sandbox.AdvocacyPodcast OutroEl QuitrinEpisode Notes Episode Proem Welcome to this bonus episode of Health Hats, the Podcast for subscribers I appreciate. Life is good while I play in the sandbox of audio-visual communication about best health. One of my Reckoning colleagues (we review each other's podcasts), Craig Constantine, describes his audience in each episode so he remains focused. I look at the bobbleheads on my windowsill: Scarecrow, Rosie, the Riveter, and Scully from the X-files. My audience is people who help people on their journey toward best health through caregiving, technology, measurement, spiritual strength, and planning. You get the idea. For an added treat. At the end of this post, I'll include Lechuga Fresca Latin band playing El Quitrin by Bebo Valdez with me on the Bari Sax. Link here if you want to listen now. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Managing my bandwidth I'm finding video creation and production so exciting that I spent 100 hours on the last episode, #214, with Fred Trotter. I can't sustain that pace. I realized I had spent so much time on a full-length video with images, title slides, and the like that I neglected the meat and potatoes – the blog/newsletter and audio podcast. I also need more time to play my horn and improve my music production skills. So, after spending all that time, I published the full audio podcast (63 minutes), two five-minute and four one-minute videos, and a 30-second teaser/trailer. I think I'll put the five-minute ones on YouTube as discrete episodes as they stand alone.  You can find them here: Video 1: Naughty Secret about Chart Reviews https://youtu.be/yLRilkr1LJI and Video 2: ChatGPT and health coverage https://youtu.be/pk4wYl0_U9s. Still learning in my sandbox. I remain committed to multimedia because you are all so different, and it's a hoot. I'm continuing my understanding and skill at short-form videos for social media, especially Instagram. My team of Julia, Kayla, Leon, and Oscar cheer me on. I love that I can still learn. If stats interest you - I don't know what they mean - for some reason, the downloads for the audio podcast have increased from an average of 5-10 a day for years to 27 a day for the past 30 days (or an increased from 80 to 800 an episode). 90+% of those downloads are consistently listened to for at least 3/4 of the episode length over the years (that includes people who automatically download. See what I mean about not being sure what stats mean).  For those who subscribe to the newsletter version, with almost 50% opened, and readers spend more than five minutes reading when they do open. Kayla tells me I should be proud of that. Social media stats indicate that people scroll past and increasingly stop but don't stick around for over a second. It is early days, and I'm refining my process. YouTube shorts require clips to be less than 60 seconds, but I'm not sure that's my target so I may go for two-minute clips on Instagram and TikTok. Again, this is a totally fun sandbox. Advocacy Rebel Health by Susannah Fox Advocacy-wise, my attention is shifting to Long Covid,

Fred Trotter on the balancing privacy & connection, the role of AI in societal judgment, and practical privacy protection strategies with a nod to Mighty Casey Watch two five-minute podcast clips on YouTube. Click here to view or download the printable newsletter with associated images Contents Table of Contents Toggle EpisodeProemPodcast introPrivacy in Digital CommunicationHarm reduction, safety, data aggregationCommunication minimalists and maximalistsPrivacy in small villages during the Bronze AgePrivacy in the viral modern ageJudicial enginePrivacy and shameDenied accessPeer-to-peer connection and privacy riskPeople-to-needs connectionA connection you don't know you haveHarm reductionOversimplification of harm reductionRedliningAI Artificial IntelligenceCall to actionChatGPT and health coverageAggregating informationAI judicial processes by Insurers outside the courtsWhat can I do to reduce potential harm?The Light CollectivePassword managersPseudonymityLow-tech approachesThe Electronic Frontier FoundationInter-rater reliability in chart reviewsInter-rater reliability and AIAI can make a complex system faster, not betterSituational awarenessExpectations of organizationsChatGPT and Large Language ModelsThe Mighty Casey Quinlan ApproachDALL.E – AI ImagesPrivacy of creatorsDangerously hopeful​ReflectionPodcast OutroPlease comment and ask questions:Production TeamCreditsInspired by and Grateful toLinks and referencesRelated episodes from Health HatsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem How does YouTube know so much about me? I'm searching on my browser for solutions to my too-slow-responding Bluetooth mouse. In moments, YouTube feeds me shorts about solving Mac problems. I'm following a teen mental health Twitter chat, and my TikTok feed shows threads about mental health apps. How do they know? I'm getting personal comments about my mental health. My mental health is mostly good. Who else will know? Do I care? I live my life out loud. I don't share what I wouldn't want on a billboard, which, for me, is almost everything. When is that unsafe? When would I be embarrassed? I'm no longer looking for work, so I don't care. Who can access my data? What should I share? What does privacy even mean? How does privacy impact the need for connection? Isn't privacy a continuum – different needs at different times from different people?  So many questions. Today's guest, Fred Trotter, co-authored the seminal work Hacking Healthcare. Fred is a Healthcare Data Journalist and expert in Clinical Data Analysis, Healthcare Informatics, Differential Privacy, and Clinical Cybersecurity. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Privacy in Digital Communication Health Hats: I picture movement along a continuum when I think about Digital Privacy. Complete privacy is connecting with no one. That's intolerable. No privacy is connecting with everyone about everything. That's unsafe and exhausting. Privacy and risk tolerance go hand in hand for me alone and for me with my peeps and tribes. Risk tolerance isn't fixed it changes with context. My thoughts get muddier when I associate privacy and connection. They are flip sides of the same coin. I need community connection. But the more I connect (content and reach), the more complex privacy becomes. My approach to managing privacy involves harm reduction, a term used in substance use treatment. So, based on my ever-changing risk tolerance and my need for connection, how do I reduce the harm privacy issues can cause? Harm reduction, safety, data aggregation Fred Trotter: It's funny that you mentioned harm reduction. A college friend of mine,

Lisa Stewart interviews Health Hats to discuss family, music, & listening to younger activists taking over navigation & reform of healthcare. Watch on YouTube Download the printable newsletter here Contents Table of Contents Toggle EpisodeProemPodcast introWhy reflect? Accept and look forward.Bitch in bursts, not dribblesCatastrophizing, pathological optimistMusic, podcasting, grandsonsListening to younger activistsConnection through video, Instagram, YouTube shortsImpact Call to actionProgressing in musicProgressive condition and musicTravel with abilities in Costa RicaTravel with abilities in the USWords of wisdomReflection on AdvantagePodcast OutroPlease comment and ask questions:Production TeamCreditsInspired by and Grateful toLinks and referencesRelated episodes from Health HatsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem Boland van Leeuwen family Happy Holidays, family, friends, and colleagues. May the 2024 New Year infuse wonder, community, and rejuvenation. I reunited with my friend, Lisa Stewart, at the PCORI Annual Meeting a few months ago. Lisa suggested that she interview me for the new year. When I met Lisa, she was Senior Engagement Officer and Health Equity Advisor at PCORI (the Patient-Centered Outcomes Research Institute). Currently, Lisa is the Principal at Torchlight Engagement Advisors & Leadership Coaching. Her joy lives in connecting ideas, people, and groups for organizations serious about improving the health outcomes of over-burdened communities through health equity strategy implementation and integration, cross-sector partnerships, impact investing, and capacity-building. We ponder privilege, listening, bitching, travel, family, and music. Hang on. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Why reflect? Accept and look forward. Health Hats: Hi, Lisa Stewart. Lovely to see you, Lisa Stewart: Wow. It's lovely to be seen and be here with you. We had this wild and crazy idea that it was time for Danny to be interviewed, right? We're going to turn the tables on Danny. DALL·E 2023-12-16 - a color photo of a person looking in a mirror and seeing a black and white younger version of herself What better time of year as we march into 2024 and start thinking about the life we want to lead and what we want to do differently? I'm thrilled to be in conversation with you anytime, Danny. Anything you want to say? Health Hats: I have mixed feelings about reflection. On my podcast, I start with a proem, a preface. Why do I  have the conversation? Why this guest, why this topic, whatever. A reflection at the end, done after production - the interview, the producing, the editing - were there pearls here? Is there one more story to tell? But the reflection is essential even though I'm not really a backward-looking guy. Lisa Stewart: Tell me more. Bitch in bursts, not dribbles Health Hats: Life has ups and downs. It is just the way it is. You can't have an up without a down where everything is flat - no ups and downs. Sounds boring to me. I have a chronic illness, and I'm pathologically optimistic, right? That's my style. Other pathologically optimistic people have taught me that you need to take two minutes periodically and just vent. And do the life sucks. Woe is me stuff. But mostly, I don't want to look back and think woe is me. So that's what I mean by not looking back. Accept what is and what are we going to do now. Lisa Stewart: Very practical. Do you have a ritual around your two-minute releases? DALL·E 2023-12-16 - biracial couple laughing, one in a wheelchair looking at their watch Health Hats: It's a good question.

Pathways & switches of pain affect well-being & productivity. Amy Baxter, MD. explores recent insights about managing pain and learning coping mechanisms. Watch on YouTube Download the printable newsletter here Contents Table of Contents Toggle EpisodeProemPodcast introLearning from lived experienceOldest and Best Survival SystemPain as opportunityThe thalamus conducts the switchboardPain: Your brain's opinion of your safetyWhat's going on? Communicating to physiciansSickle cell, self-knowledge, mu receptorsNeurotransmitters: on or offBrain FertilizerExercise as WD-40 loosening lubricantAcceptance and Commitment TherapyBuilding Resilience to Trauma and Pain Call to actionHolocaust PTSD, painMelissa versus FibromyalgiaHelpers: Child Life SpecialistsBrain's survival systemPhlebotomists and clownsPain wuss or high toleranceFear and controlHope in the right frontal cortexGuiding someone to manage their painPrimary care in Managing PainOverride and telehealthCultural humilitySoul points and a bucket of painI am not my painLove myself, pain includedReflectionPodcast OutroPlease comment and ask questions:Production TeamCreditsInspired by and Grateful toLinks and referencesRelated episodes from Health HatsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem Buzzy, Relief from Needle Pain by Amy Baxter How crazy is it that pain is one of my favorite topics? Not so crazy as pain may be life's most common symptom. One study pegs the annual cost of pain (as a primary diagnosis) to be between $261 to $300 billion. Yikes. No one I'd rather talk with about pain than Amy Baxter. Amy and I correspond regularly about life and pain. We last recorded a conversation about pain in July 2019, Pain: The Solution - Many Solutions. Our knowledge about the pathways and switches of the brain's survival system has increased dramatically since 2019. Let's jump right in. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Learning from lived experience Health Hats: You've learned much about pain since we last talked. Tell us about that. Amy Baxter: I broke my neck in 2015 and then got intubated for a while, and then I had a ripped rotator cuff that I ignored until it got horrific. So, I feel grateful that I've had the experience to cope with my own acute and chronic pain, mostly chronic. It's nothing like I imagine having a genetic issue or having an inflammatory ongoing issue, and particularly something like covid or fibromyalgia or an autoimmune system situation where it's ongoing and systemic. Nonetheless, I've had that experience, which has been valuable. I also have been working with the National Institutes of Mental Health, Helping to End Addiction Long-Term Initiative, bridging that place between pain and opioid use because if we didn't have the issues of post-surgical pain and acute pain that we treated with opioids, we wouldn't have an opioid problem. I've been busy. Health Hats: Goodness, where should we start? Amy Baxter: Let's start with the stuff I put in the TED Talk because I spent a lot of time trying to encapsulate what I'd learned so people could use and benefit from it, change society and how we deal with healthcare in this company or country—Freudian slip. Oldest and Best Survival System Amy Baxter: Physicians are not taught about pain in medical school. We don't know what it is. We don't understand how to treat it. We don't think it's our job because we're supposed to figure out what caused the pain and fix that or inflict pain to diagnose it. But most people go to the doctor for pain. So that was something I hadn't appreciated. What we have learned about pain in the last 20 years through fu...

My son, Mike, died 21 years ago at age 26. Wasn't born with a tattoo telling him how long he had to live. Best spiritual health of his life. Left me a sign. Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle Read NewsletterContentsEpisodeProem 2023Proem 2020Open Hearts 2018Love myself 2002He met a girl 2018Birthday wishes for the old guy 2002Spiritual health 2018Lifetime warranty 2018Not personalizing death 2018Leave me a sign 2018Reflection 2020Podcast OutroComment and ask questionsCreditsLinksRelated podcasts and blogsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem 2023 I resurrect this episode to celebrate Mike and thank you, my readers, listeners, and watchers. It's hard to believe that 21 years have passed since Mike died. He would have been 46. We would have been proud of him, and he proud of us. "Danny helped me love myself. I had to love myself to have a good relationship with him." Still, the most glorious thing anyone has ever said about me. Let's celebrate loving ourselves and at least one more. Mike, I feel you. Proem 2020 I wasn't born with a tattoo on my ass telling me how long I have to live. Welcome to the second anniversary of Health Hats, the Podcast, episode number 99. On November 15th, 2018, the first episode honored my son, Mike Funk, who died on November 18th, 2002, eighteen years ago, age 26, of metastatic melanoma. Mike, a wise poet, found his best spiritual health in the last year of his life. Hence, the most memorable sentence in my life. I wasn't born with a tattoo on my ass telling me how long I have to live.  I'm grateful to have known Mike, my son, our brother, our friend. I resurrect this episode to celebrate Mike and celebrate this fantastic medium of sound and storytelling for advocacy and connection. Podcasting enriches my life and my work.  I use podcasting to explore and organize my mind's chaos, experiences, and feelings. I connect with people I admire for brief intimacies. I'm thankful for my podcasting compatriots. We have met weekly and biweekly for two years to support, critique, and challenge each other as artists and technicians. You know who you are. I'm grateful to my readers, listeners, sponsor, Abridge, and web/social media coach, Kayla Nelson. I miss my mom, Ruth van Leeuwen, my first and greatest blog critic, and follower.  She would have tried to learn podcasting technology if she could have found a 15-year-old from her church to teach her how to use a podcast player. She died around Thanksgiving in 2014.   Gratefully, here you go, episode one and ninety-nine. Happy Thanksgiving. Open Hearts 2018 Health Hats: In this session, I'll share some tape of an interview with Mike a few months before he died. Bob Doherty conducted that interview and some thoughts and stories from me. One day, Mike and I were sitting at the kitchen table, talking about dying and superpowers. And Mike thought that he and I had the same superpower. We both accept what is. Not the ‘life sucks, what're you gonna do' variety of acceptance, but the ‘yup, here is impending death, how can we live our best lives' variety. ‘Yup, he died young. Young death happens a lot. You open your heart, and tragedy walks right in. What's the alternative, closed heart? Not for me. So, let me set the stage for you. This recording happened on July 17th, 2002, at my 50th birthday party. We had the party in the Potato Barn in Schoharie County, New York. When you hear some of the audio, you'll hear a lot of noise. I'm able to filter some of it out, but not all of it. So here we are at my 50th birthday party. Love myself 2002 Bob Doherty was interviewing Michael Funk. I'm sure you'll be able to tell who is who. Michael Funk: Yeah. I meant to just shoot questions, and we'll just rap. Bob Doherty: All right.

Personal growth living with a chronic illness, sickle cell, the importance of open communication, building a supportive community, & advocating for oneself. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. Download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introFour more years, a motherYou mean I won't get sickle cell?No lying in motherhoodHarder on myselfTreat us differentlyWhere do they fit in the world? Call to actionMoving on and building communityMuslim communityHealthcare CommunityTrust my teamEgo-centered, patient-centeredSpeaking truth to powerMakeup for the Emergency RoomIntentional whyYou can't read my mind?I'm not your caregiver. I'm your partner.End-of-life. It's for real.Live below your means, cut out the noiseReflectionPodcast OutroPlease comment and ask questionsProduction TeamCreditsInspired by and Grateful toLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem I'm delighted to reconnect virtually with my dear friend, Fatima. We last recorded several conversations, two with her mother, Esosa, in 2019 as part of the series on people with complex conditions transitioning from pediatric to adult medical care. The titles included Living a Happy Full Life, Good Listeners, Good Conclusions, and I'm Not Drug-Seeking. I'm in Pain.  Becoming friends with Fatima has been one of the delights of my last decade. I especially value sharing our diverse experiences, finding many common cords (chords), leading to ongoing separate growth and development. From Fatima, I've dared to proudly introduce myself as a 2-legged cisgender old white man of privilege. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Four more years, a mother When we had the conversations in 2019, you were a mom, but it wasn't about you being a mom. Now, you've been a mom for four more years, dealing with sickle cell and being part of the family unit. Your mom said it's not just the person with the diagnosis; the whole family must manage. What are your thoughts about that now? You and your kids are getting older. Your son's graduating from preschool. I can't believe it. Anyway, what are your thoughts about that? Fatima Muhammed-Ighile: She states that sickle cell is a family issue. These last few years, I've understood that more profoundly. My kids are now five and six. They ask questions, and there are times when they can now comprehend how my restrictions, based on when I feel sickle cell pain, affect their lives. So that's required me to have discussions with them that, at times, I wish I could have delayed. Health Hats: If I remember correctly, your daughter probably has the most challenging questions. You mean I won't get sickle cell? Image from https://www.kold.com/2021/01/28/federal-committee-recommends-more-research-care-patients-with-sickle-cell/ Fatima Muhammed-Ighile: It was a lazy Sunday afternoon,

Day starts with angst, leading to screen-free day, reservoir walk, visit to farm stand, reading real book. Revived with renewed sense of gratitude & well-being. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube None today. Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle Watch on YouTubeRead NewsletterContentsEpisodeProemPodcast introScreen-free dayWalking a mile around the ResFarm stand Call to actionBack homeDay's endReflectionPodcast OutroEpisode NotesProduction TeamOther CreditsDisclaimerRelated podcastsCreative Commons Licensing Episode Proem JoJo and Danny selfie Good morning. I'm sitting on my porch with my dog, Jojo, who's now coming up to sit on my lap. The sun is shining. We live on a busy street, so you'll hear many of those noises. I didn't sleep that well last night. I had more angst than I've had in a long time. And my angst was about, oh, I'm doing so much, oh goodness, what is that, a cardinal, that I'm doing so much, I'm so busy, I'm trying so many new things, why can't I settle, do I have ADHD, just worry, worry, worry, worry. I haven't had this kind of worry in a long time, not since I've been working or... Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Screen-free day I finally got some sleep, woke up, and decided that everything I was doing was fun, that I was my master, and that I would have a screen-free day. So... It's already been a little bit of a challenge. I had to text my sister. She wanted to have dinner tonight. I guess that was just a second, and I listened to music on my phone, but I don't think that counts. My wife, the dog, and I will take a walk. I'm going to read an actual book instead of a Kindle. So, I'll check in as the day goes on and let you know how it's going. Walking a mile around the Res Arlington Reservoir image by Danny Hear that sound? That's the sound of the water going out of the Arlington Reservoir. The Arlington Reservoir is the secondary water source for where we Image of Danny and JoJo by Danny live in case our primary water source goes bad. I love that we have this. We're walking around it. It's about not quite a mile. See how I do. Arlington Reservoir image by Danny. Okay, I'm about three-quarters of the way around the reservation. It's really low. I wonder why because we've had a lot of rain. I'm still plugging away, going kind of slow. We've seen some bird watchers who identified some yellow bottom warblers, and then I saw a woodpecker on my own, and of course, there's a ton of squirrels, which the dog sees. There are a lot of dogs. So far, I've been okay. I think I will be thoroughly exhausted when we get back to the car, but we're three-quarters of the way there. So that's good. It's a good day. It's a good day to be able to walk that far. The leaves are beginning to change. But not too much. Hello. Okay. I see a gate here. It's open. I was thinking. I don't know if I could go around the gate. There's a beach path, but it looks narrow. What a beautiful day. It's so sunny. God! It's supposed to be that eclipse, but I'm not here, so I won't see it. But since I'm not doing screen time today, I have to wait till tomorrow to go on YouTube and see it. Anyway... Ooh, I'm fading. I can just feel it. Oh, my goodness. I'm going to have to sit at the next place to sit. Unless I'm, I don't think I can see our car, so I guess I can keep walking. Farm stand We stopped at a farm stand to see what good stuff we could find. I'm roaming around the farm store.

Newsletter subscribers: Apologies. My Mailchimp feed broke down, and I didn't notice until yesterday. You've missed 10 episodes!! I will repost an episode every other day until we're caught up. I'm so sorry! Dr Herndon, former Medicaid CMO: challenges faced to improve mental health care for emerging adults. Better support systems for their transition to independence Subscribers About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Proem.. 2 Podcast intro. 3 Meet Dr. Mike Herndon. 3 Health is Fragile. 3 Mental Illness in family practice. 3 Readiness to manage mental illness in practice. 4 State Medicaid Director 5 Levers of power 6 Aligning incentives 6 Minor success, at best 7 A word from our sponsor, Abridge. 8  Call to action. 8 Family Advocacy. 9 Not easy being an emerging adult 10 Reflection. 11 Podcast Outro. 11 Episode Proem According to the Commonwealth Fund, in 2016, spending in the US on behavioral healthcare was almost $160 billion, with 58 percent of all behavioral health spending being paid for by Medicare and Medicaid. According to SAMHSA, The Substance Abuse and Mental Health Services Administration, Medicaid is the largest payer in the United States for behavioral health services. Medicaid accounted for 26 percent of all behavioral health spending in 2009. Behavioral health is a term for mental health and substance use disorder conditions to differentiate from physical health. As a clinician, I seldom met a person with chronic physical health issues who didn't also have behavioral health issues. I don't know how meaningful statistics are, except to say a lot of people have behavioral health diagnoses in their records. It costs them, their families, and communities a fortune, and government health insurance pays a significant proportion of those direct costs. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Meet Dr. Mike Herndon Health Hats: I invited my friend and colleague, Dr. Mike Herndon, recently retired  Chief Medical Officer for the Oklahoma Healthcare Authority, Medicaid, to chat with us about Emerging Adults with Mental Illness. Mike, thank you so much for joining me. Mike Herndon: You bet, Danny. Happy to be here. Health Hats: Thank you. My friend, Dr. Mike Herndon, and I have done quite a bit together over the years, mainly through PCORI, the Patient-Centered Outcomes Research Institute. We sat on an advisory panel together, then you were appointed to the PCORI Board of Governors, and I came on the board a few years later. You were my Board orientation buddy and helped me navigate and reduce the shock of the experience. I appreciate it. Let's just jump right in. Mike, when did you first realize that health was fragile? Health is Fragile Mike Herndon: That's an easy answer for me. I grew up in rural Oklahoma. In the summer between my sixth and seventh-grade years, I was 12 years old,

Immersion into cultural humility needs curiosity, addresses power dynamics, embraces failure, meditates on self-critique, & fosters respectful relationships. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. Download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introCultural competenceCultural sensitivityHealthcare, a product not delivered aloneNot the same person foreverCuriosity in not knowingReading the room, getting it wrongSelf-reflection and self-critiqueNot interacting with a statueRedress the power imbalanceCall to actionWhat about emerging adults?Person-centered approach to cultural identityTeenagers and cultural humility: ListenRelationship dyads and triadsCultural humility for the clinicianHumility in the relationship, power dynamicProviders, hang out on social media feeds where your patients hang outReflectionPodcast OutroProduction TeamOther CreditsLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem Image created on DALL.E Something is missing. I'm not yet ready to conclude this series on emerging adults with mental illness. In the next and last episode, I'll dive for pearls in the fifteen episodes published over the past ten months. What's nagging at me? Each guest spoke from the culture they knew and the cultures in which they received or offered treatment and service. I need an episode about how people can approach, be curious about, and be open to the cultures they experience. Is this cultural competence or sensitivity or what? I sought experts working with a kaleidoscope of cultures—first, Jamila Xible, a previous guest and community health worker with Cambridge Health Alliance. Jamila blows my socks off whenever Photo taken by Thyla Jane PhD on UnSplash I speak with her. Next, my friend and previous guest, Kiame Mahaniah, referred me to Catherine Smail, Ph.D., a psychologist at the Lynn Community Health Center. Cat is a clinician therapist and the Associate Director of Training for Behavioral Health. Erika Malik at the Innovation and Value Initiative referred me to Theresa Nguyen, Ph.D., who has a social work background at Mental Health America. Theresa primarily does research and runs their screening program of youth coming onto the internet to solve problems for the first time. Hang on. Here we go. I learned a ton. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Cultural competence Health Hats: Let's discuss cultural competence, sensitivity, and humility. How do cultural humility, sensitivity, and competence come into the team sport of best health? We'll dwell here briefly, hearing all three guests speak in depth. Catherine Smail: Cultural competence came about in the eighties, a first attempt to start grappling in a new way with the disparate health outcomes that providers saw in their immigrant populations. They tried to understand why that was happening and how ...

Danny & Oscar muse about tension between thumbnails & descriptions, superconductors & the environment, health hats origin, life & bad habits, like snarkiness. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube None today. Check back later Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodePodcast introProemTitles, ThumbnailsDescriptionsClick-throughWho opens, downloadsSuperconductors, trains, speedEnvironmental impactEnvironmental sustainabilityHow does it benefit people?Why do you enjoy hats?PlugLife, the Universe, and EverythingSnarkinessCall to actionReflectionPodcast OutroEpisode NotesProduction TeamOther CreditsDisclaimerRelated podcastsCreative Commons Licensing Episode Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Proem Welcome to this third bonus episode. We're busy producing the next Emerging Adults with Mental Illness episode about Cultural Humility.  It's taking longer than expected because we're combining three 30–40-minute dynamite interviews into one episode, and my team has new school semester obligations. So, Oscar and I chatted, sitting on his couch. I asked him to ask me anything, and he did. No video today. We might put one up in the future. What a hoot. Here goes. Health Hats: Oscar first asked me about how people find my material, whether via the web, podcast platforms, or YouTube. We talked about titles, thumbnails, descriptions, click-through rates. Titles, Thumbnails Health Hats: Titles are hard. Oscar: Titles? In what way are titles hard? Health Hats: For example, in my series on Emerging Adults with Mental Illness, I have 15 episodes or so. I have a few words in the title and then the number in the Emerging Adults with Mental Illness series. The unique thing is those few words. I did that because I wanted people to know it's part of a series. But Emerging Adults with Mental Illness has so many characters that I'm trying to keep it to 60 characters. Okay. Then, it doesn't leave that many characters for something to be unique. Oscar: So, then what if you put the emerging adults with mental illness, and you put it in the thumbnail. You put those like words, like text, in the thumbnail. Descriptions Health Hats: Or in the description. Oscar: When a viewer looks at the video, they'll see the, maybe, the thumbnail for a brief second, they'll see the title, and then they'll, it'll probably like autoplay. They won't see the description until they click on it, and if you want to know, if you wanted them to know that it's part of a series, then you could do it in the thumbnail. Of course, that could mess up your captivating thumbnail. Health Hats: That's a lot of words for a thumbnail. It is hard. So, I try to pay attention to the title and the headings of the description. There's a tension between being descriptive of what's in the section or catchy. Oscar: Okay. Interesting,

Rodney Elliott discusses the PATIENTS Program, a community-research partnership for health equity. The podcast explores authenticity, engagement, & growth. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introHealth is fragile: sports injury.Health is fragile: caregiverThe table setter for the PATIENTS Program through the Bridge podcastHenrietta LacksRelationship between academics and the communityListening first wherever we canInternal marketingPlugPeer into the future – a yearGenuine, authentic, transparent, humbleNext play mentalityPodcasting communitiesInternReflection Podcast OutroProduction TeamOther CreditsLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem I specialize in patient/ caregiver/ clinician/ community partnerships and the intersection between research, technology, and the health journey. This sentence describes the nut of what Health Hats offers. The key word is partnerships. My antennae quiver when I sense a mature, evolving community-research partnership. So, I readily agreed when my friends and colleagues, Janice Tufte and Sneha Dave, invited me to attend the SHining the SpOtlight Wide (SHOW) Conference. The PATIENTS Program sponsored the SHOW Conference. The PATIENTS Program envisions a world in which patients and stakeholders are heard, inspired, and empowered to co-develop patient-centered outcomes research (PCOR). The PATIENTS Program is an interdisciplinary research team of community partners and researchers housed at the University of Maryland School of Pharmacy that works to change the way we think about research by creating a path for health equity in West Baltimore. Our guest, Rodney Elliott, and his production partner, Eric Kettering, reached out to me after the virtual conference. They host a podcast, The Bridge: Your Health Your Voice, at the PATIENTS Program. We decided to interview each other for our respective podcasts.  Here's the link to Rodney and Eric's version. Stay tuned for mine. Same raw footage, very different output. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health is fragile: sports injury. Health Hats: When did you first realize health was fragile? Rodney Elliott: I realized health was fragile at two distinct times. Back to that part when I said I was playing basketball overseas in Europe, I had a significant injury for one year in Italy. I was playing, and it was the start of the game. It was a jump ball. I jumped the ball to start the game. A referee didn't move out of the way like they usually do. And I came down on his foot and fractured my ankle. I was out for the rest of the season. It was playoff time, just horrible. I rehabbed all summer, started that next year, and still had issues, so much so that I had surgery the following year. Up until that point, a sprained finger,

Rodney Elliott discusses the PATIENTS Program, a community-research partnership for health equity. The podcast explores authenticity, engagement, & growth. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introHealth is fragile: sports injury.Health is fragile: caregiverThe table setter for the PATIENTS Program through the Bridge podcastHenrietta LacksRelationship between academics and the communityListening first wherever we canInternal marketingPlugPeer into the future – a yearGenuine, authentic, transparent, humbleNext play mentalityPodcasting communitiesInternReflection Podcast OutroProduction TeamOther CreditsLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem I specialize in patient/ caregiver/ clinician/ community partnerships and the intersection between research, technology, and the health journey. This sentence describes the nut of what Health Hats offers. The key word is partnerships. My antennae quiver when I sense a mature, evolving community-research partnership. So, I readily agreed when my friends and colleagues, Janice Tufte and Sneha Dave, invited me to attend the SHining the SpOtlight Wide (SHOW) Conference. The PATIENTS Program sponsored the SHOW Conference. The PATIENTS Program envisions a world in which patients and stakeholders are heard, inspired, and empowered to co-develop patient-centered outcomes research (PCOR). The PATIENTS Program is an interdisciplinary research team of community partners and researchers housed at the University of Maryland School of Pharmacy that works to change the way we think about research by creating a path for health equity in West Baltimore. Our guest, Rodney Elliott, and his production partner, Eric Kettering, reached out to me after the virtual conference. They host a podcast, The Bridge: Your Health Your Voice, at the PATIENTS Program. We decided to interview each other for our respective podcasts.  Here's the link to Rodney and Eric's version. Stay tuned for mine. Same raw footage, very different output. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health is fragile: sports injury. Health Hats: When did you first realize health was fragile? Rodney Elliott: I realized health was fragile at two distinct times. Back to that part when I said I was playing basketball overseas in Europe, I had a significant injury for one year in Italy. I was playing, and it was the start of the game. It was a jump ball. I jumped the ball to start the game. A referee didn't move out of the way like they usually do. And I came down on his foot and fractured my ankle. I was out for the rest of the season. It was playoff time, just horrible. I rehabbed all summer, started that next year, and still had issues, so much so that I had surgery the following year. Up until that point, a sprained finger,

Journey in adlibbed speaking, video editing, business growth strategies, & the ups/downs of personal life, including music & health challenges. Bobbleheads, too About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodePodcast introOn-micSeeking consultationMastermind communitiesBeehiveMusic, of courseDouble visionEpisode NotesProduction TeamOther CreditsDisclaimerSponsored by AbridgeLinksBusiness PlanRelated podcastsCreative Commons Licensing Episode Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. On-mic Welcome to this second bonus episode for Health Hats, the Podcast subscribers and patrons. These on-mic bonus episodes reflect on my writing, recording, and producing adventures. On-mic means just me extemporaneously.  On-mic is challenging for me as I prefer to write and read a script, but then it looks like I'm reading. I've gotten anti-glare glasses, so my glasses don't reflect. I'm trying out a new feature today with this bonus episode where the app rejiggers my eyes, so it looks like I'm looking at the camera.  How does it look? Seeking consultation Lately, I have focused on improving my video editing skills, like transitions between scenes, use of images when I don't have or don't want to use video, and settling on the fewest possible video editing apps. A couple of months ago, I used six apps, Zoom (to record the call), Descript (for transcription), Shotcut and DaVinci Resolve (for video editing), and Audacity and Auphonic (for audio editing). Steve Heatherington, of The Alpaca Tribe Podcast fame, counsels me on efficient audio and video editing workflow. Last episode, I used three, Descript, Audacity, and Auphonic.  Progress. I just engaged Julia Higgins, a freelance marketing professional, to help me integrate my business plan, website, and use of social media. I'll put a copy of my business in the show notes. I've never really cared about how many followers I have, but now I want to grow my paid subscribers and patrons to build my production team. Also, my wife retired, so I'd like the podcast to be more self-supporting. Reviewing my mission, vision, and audience periodically helps me stay fresh, engaged, and relevant. I can't overstate the joy of working with my grandsons on this podcast. One coaches me in video editing; the other takes the first pass at editing audio transcripts into newsletters. We have several years of mutual warm criticism that greases the process considerably. Mastermind communities I still participate in a weekly Sunday call with other podcasters. We've Zoomed since 2018 as a team at Seth Godin and Alex DePalma's second Podcasting course. Steve Heatherington teaches that course now. I host a couple of mastermind groups. Reckoning with various podcasts with different subjects (Alpacas, Hansel, and Gretel fairytale, secondary education, environmental educator,

Dive into the intricate web of conflicting healthcare incentives. Dr. Wang explains how health economics guides resource allocation for better outcomes. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemIntroducing Dr. Yun (Sherry) WangPodcast introMental health research-it's complicatedHealth Economics – How is money spent?From whose point of view? Different reasons to spend moneyDirect and indirect costsSchizophrenia, for exampleUnder- and over-utilizationMedicare and MedicaidHealth Economics for decision makingHealth economics for policymakersThe time frame for economic analysis – years or lifetime?A word from our sponsor, AbridgePlugHealth Economics for advocatesHealth economics and homelessnessIncarcerationCrystal ball gazing far into a lifetimeA more comprehensive viewBuprenorphineStigma and BuprenorphineHome value disparities as an indicatorMapping disparitiesReflectionPodcast OutroProduction TeamOther CreditsLinks and referencesDisclaimerSponsored by AbridgeRelated podcastsCreative Commons Licensing Episode Proem Photo by Rodion Kutsaiev on UnSplash Several guests in this Emerging Adults with Mental Illness series discussed conflicting incentives. What does that even mean? Do incentives mean motivation? Why we do what we do? Are we talking about incentives for patients and caregivers, insurance companies, consultants, vendors, policymakers, clinicians, drug companies, pharmacy benefit companies, employers, or communities? In the last episode with Dr. Amanda Chue, we examined dynamic tensions. Incentives certainly cause tensions. Health Image created in DALL.E care is big business, with massive amounts of money involved, extremely fragmented systems within systems, and much power at stake. No wonder we think of conflicting incentives. The first health economist I knew personally was Jane Sarasohn-Kahn, of Health Populi fame. Full disclosure, Jane introduced me to blogging and suggested my name and brand, Health Hats. Introducing Dr. Yun (Sherry) Wang Photo by Francesco Gallarotti on UnSplash Our guest today is Dr. Yun Wang, who prefers Sherry. Dr. Wang is Assistant Professor in Health Economics and Outcomes Research at Chapman University School of Pharmacy. Before joining Chapman, she worked in global health, epidemiology, social science, clinical pharmacy, health economics, and health service research in Asia, Australia, and America. She is also an Alumni Affiliate at the Center for the Study of Race, Ethnicity & Equity, Washington University in St Louis. Her research interests lie in pharmacoepidemiology and health service research for substance users and chronic disease patients—a perfect guest for us. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health Hats: Sherry, thank you so much for joining us today. I'm excited about this. We met a month or two ago,

PCORI's Dr. Chue brings to light the complexities & challenges of conducting research, engaging stakeholders, and implementing findings in real-world settings. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Executive Summary. 1 Proem.. 2 Introducing Dr. Amanda Chue 01:37. 2 Podcast intro 02:22. 2 Health is fragile 03:14. 2 Path to young adult mental health research 03:48. 3 Evidence gaps 05:22. 3 Do comparators exist? 08:17. 4 Efficacy versus efficiency 11:29. 4 Dynamic tension - Parent engagement in research 12:52. 4 A word from our sponsor, Abridge 13:38. 5  Call to action 14:41. 5 Dissemination to those with lived experience 15:51. 5 Research results impacting clinical work or decisions 19:07. 6 Dynamic tension – CER and innovation 20:04. 6 Dissemination – sharing results 21:36. 6 Community implementation 22:51. 7 Stakeholder Advisory Panels 27:06. 7 Dynamic tensions in public engagement, dissemination, and implementation 30:09. 8 PCORI and public engagement 30:53. 8 Policy making 34:17. 9 Reflection 37:18. 10 Podcast Outro 39:26. 10 Episode Executive Summary PCORI's Dr. Chue brings to light the complexities and challenges involved in conducting research, engaging stakeholders, and implementing findings in real-world settings. It emphasizes the need for long-term partnerships with community organizations and the importance of addressing disparities in research representation. The dynamic tensions in various research and implementation aspects underscore the need for thoughtful and creative approaches to address complex healthcare issues effectively. Proem Image created in DALL.E I treasure the dynamic tensions in life—for example, privacy and community, pathological optimism and catastrophizing, early adopter and skeptic. While not a researcher, I am personally and professionally neck-deep in research. Yet, despite my commitment to research, I'm a skeptic. Who's it for? How can it aid decision-making? Who's included in the research question, process, analysis, and dissemination? Where are the vested interests? Do we already have evidence yet have little will to implement, or does the bureaucracy or culture impede action? I will step in and highlight some dynamic tensions as the conversation flows. What about research funding sources? What's their perspective? What are the dynamic tensions? I asked my cronies at PCORI (Patient-Centered Outcomes Research Institute) to introduce me to a staff scientist specializing in comparative effectiveness research funding for emerging adults with mental illness. Dr. Amanda Chue kindly agreed to speak with us. Image created on DALL.E Introducing Dr. Amanda Chue Dr. Amanda Chue received a BS in human development from Cornell University and a Ph.D. in clinical psychology from American University. She is a Program Officer for the Clinical Effectiveness and Decision Science program at the Patient-Centered Outcomes Research Institute (PCORI). In this role, she manages a portfolio of comparative clinical effectiveness research awards focused on meaningful outcomes for patients. Her portfolio includes several studies on clinical strategies for managing and reducing lo...

Dr. Motley studies emerging black males & females with mental illness compounded by racism & violence. They need support systems & a chance for upward mobility. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Proem.. 2 Podcast intro 01:07. 2 Exposure to community violence 03:54. 2 Emerging adults 2 Emerging and experiencing violence and mental illness 06:12. 3 Breaking the cycle – support systems 08:05. 3 Breaking the cycle – transportation 08:44. 3 Breaking the cycle – belonging 10:51. 4 Breaking the cycle – upward social mobility. 4 A word from our sponsor, Abridge 11:40. 4  Call to action 12:22. 4 Identifying the research question 13:54. 5 Gaps in research 15:27. 5 Staying in touch, up to date 16:06. 5 Think, read, write, talk 18:10. 6 Measuring police violence 18:49. 6 Vacuum-filler, gap filler 20:55. 6 Community Advisory Board 23:00. 7 People with lived experience analyzing study results 25:31. 7 Research without implementation – ink on paper 26:22. 8 Strategies for Youth 28:47. 8 Community uptake of research 29:49. 8 Social media 33:11. 9 Reflection 35:40. 10 Podcast Outro 38:34. 10 Episode Proem Image by Susan Wilkenson on Unsplash Trauma and mental illness seem inexorably linked with racism and homelessness contributing to severity and complexity. How do we know? Does evidence exist? Do we even need proof? Isn't it obvious? I think I need to speak with a social worker, researcher. Fortunately, I met Whitney Irie, Ph.D., MSW, Assistant Professor at Boston College School of Social Work, who introduced me to Robert Motley, Ph.D., MSW, also at Boston College. Robert examines the intersection of racism, violence, and trauma for emerging black adult men and women ages 18-29 and associated mental and behavioral outcomes. Eureka, a match! Image by Stefano Pollio on Unsplash Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Exposure to community violence Robert Motley: During my doctoral studies, my research focused on exposure to community violence among black emerging adults. I conducted a systematic literature review on trauma. What was the prevalence of trauma among black males? What were some barriers or facilitators to using mental health services? Looking at the literature, we found high levels of trauma exposure for black men: 50% to 60% had experienced trauma, some of them seven or eight times during their lifetime. They also had high rates of mental health illnesses such as anxiety, generalized anxiety, psychotic disorders, etc. But the most critical finding was that roughly 56% to 74% of the black males across these studies may have had an unmet need for mental health services. So, you're talking about a large population of black men walking around what I like to call ticking time bombs because they are experiencing a lot of traumas. And we know the adverse effects of trauma on one's mental...

Exploring the world of podcasting and the challenges we face in storytelling, sound editing, & decision-making. We reflect on the evolution of our journeys. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Proem.. 1 Podcast intro. 1 Introducing Steve Heatherington, Alpaca Shephard. 2 Virtual podcasting friends.  Yes, friends. 2 Podcasting and writing. 3 Sound editing. 3 What's the story?. 4 Unexpected engagement 5 A word from our sponsor, Abridge. 5  Call to action. 6 So much to do. Music! 6 Many Decisions to Make. 6 Decisions in disability. 7 Podcast workshop. 8 Reflection. 9 Podcast Outro. 9 Episode Proem Photo by Frugal Flyer on Unsplash Welcome subscribers and patrons to this first exclusive bonus episode #200 (egads, #200). If you could look around the room, you'd see 275 long-standing subscribers, 12 monthly Patrons, and ten one-time supporters who contributed almost $300 in May and nearly $675 in June. Beyond my wildest expectations! I have an advisory call scheduled in early July with some experts who work with emerging adult interns. My colleague and friend Fatima has agreed to help me manage the initiative. I'm burning with excitement to get going. Thanks to you, I can afford it. My friend and crony in podcasting, Steve Heatherington, of Alpaca Tribe fame, joins me in today's bonus episode as we muse about this intriguing podcasting world. I love that I can still learn with my Swiss cheese brain.  Check out the quilt in Steve's background if you're watching the video. Very cool. Image from https://fineartamerica.com/featured/7-mri-of-multiple-sclerosis-medical-body-scans.html Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Introducing Steve Heatherington, Alpaca Shephard Health Hats: Steve. Thank you so much for doing this with me. So, you know that this is for me. This is going to be my first bonus episode. Nice. In my new Patreon world that I'm setting up. I'm excited to talk about all things podcasting with you since we've been buddies for four and a half, five years, and four and a half. Yeah. Four and a half years. And we've been podcasting, and we meet weekly to discuss anything about podcasting and life—the six or seven of us who, however many, it changes from time to time. So anyway, thank you. Why don't you introduce yourself? Steve Heatherington: It's a pleasure and a privilege to meet up like this, and Wow. Honor to be part of the first bonus episode. Wow, that's so exciting. Yeah. How did this happen? It happened by mistake almost. I'm based in Swansea in the UK. And we have a farm, and I'm an alpaca shepherd. So, we got currently got 36 alpacas that I care for. Most of the time, it's straightforward, but occasionally you turn a corner, and there's something new and challenging. I used the alpacas to learn to podcast, and it's kept going. So I've been going over four years now.

Dr Herndon, former Medicaid CMO: challenges faced to improve mental health care for emerging adults. Better support systems for their transition to independence About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Proem.. 2 Podcast intro. 3 Meet Dr. Mike Herndon. 3 Health is Fragile. 3 Mental Illness in family practice. 3 Readiness to manage mental illness in practice. 4 State Medicaid Director 5 Levers of power 6 Aligning incentives 6 Minor success, at best 7 A word from our sponsor, Abridge. 8  Call to action. 8 Family Advocacy. 9 Not easy being an emerging adult 10 Reflection. 11 Podcast Outro. 11 Episode Proem According to the Commonwealth Fund, in 2016, spending in the US on behavioral healthcare was almost $160 billion, with 58 percent of all behavioral health spending being paid for by Medicare and Medicaid. According to SAMHSA, The Substance Abuse and Mental Health Services Administration, Medicaid is the largest payer in the United States for behavioral health services. Medicaid accounted for 26 percent of all behavioral health spending in 2009. Behavioral health is a term for mental health and substance use disorder conditions to differentiate from physical health. As a clinician, I seldom met a person with chronic physical health issues who didn't also have behavioral health issues. I don't know how meaningful statistics are, except to say a lot of people have behavioral health diagnoses in their records. It costs them, their families, and communities a fortune, and government health insurance pays a significant proportion of those direct costs. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Meet Dr. Mike Herndon Health Hats: I invited my friend and colleague, Dr. Mike Herndon, recently retired  Chief Medical Officer for the Oklahoma Healthcare Authority, Medicaid, to chat with us about Emerging Adults with Mental Illness. Mike, thank you so much for joining me. Mike Herndon: You bet, Danny. Happy to be here. Health Hats: Thank you. My friend, Dr. Mike Herndon, and I have done quite a bit together over the years, mainly through PCORI, the Patient-Centered Outcomes Research Institute. We sat on an advisory panel together, then you were appointed to the PCORI Board of Governors, and I came on the board a few years later. You were my Board orientation buddy and helped me navigate and reduce the shock of the experience. I appreciate it. Let's just jump right in. Mike, when did you first realize that health was fragile? Health is Fragile Mike Herndon: That's an easy answer for me. I grew up in rural Oklahoma. In the summer between my sixth and seventh-grade years, I was 12 years old, and my mom had a pituitary tumor. That hormonal gland in the brain had gotten so large it caused terrific headaches. She had double and blurred vision and had to have a craniotomy, and brain surgery, to remove the tumor.

About McLean Hospital. Referrals, COVID impact, capacity, stigma. Still need more resources & shift towards treating mental health on par with physical health. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Contents Proem.. 1 Podcast intro 01:49. 2 Health is fragile 02:41. 2 Leadership at McLean's Hospital 04:08. 2 Levels of care 05:12. 2 Massachusetts Child Psychiatry Access Project (MCPAP) 07:04. 3 Supporting Primary Care 09:41. 3 Mental illness and Covid 11:59. 4 Capacity – space, and staff 13:28. 4 Using Peer Experts – lived experience 16:12. 5 A word from our sponsor, Abridge 17:56. 5  Call to action 18:39. 5 Coalitions and partnerships 20:26. 5 Academics, research, advisory panels 24:43. 7 Stigma 27:13. 7 Level the playing field between physical and mental health 30:07. 8 Reflection. 8 Podcast Outro 33:49  9 Episode Proem Photo by razvan-mirel-xhYhjMIfsq8-unsplash Continuing the series spiral with emerging adults with mental illness at the center, along the outbound curve, we experienced a parent, a high school teacher, primary care and emergency doctors, and community services. Now we arrive at mental health providers in the person of Michael Macht Greenberg, who administers an integrated system of mental health medical services, McLean Hospital, of the preeminent healthcare system, Mass General Brigham's Hospital. I met Michael working together at Boston Children's Hospital. Michael was the administrative director of the Department of Medicine, and I led the patient/family experience initiative. We both left Boston Children's more than ten years ago. As circumstances allow, we still meet for coffee at least quarterly, in person or virtually. Michael's low-key presentation belies his passion and compassion for emerging adults and people with mental illness. Podcast intro 01:49 Photo by Diana Feil on Unsplash Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Like what you're reading, hearing, or watching? Go to my web page https://health-hats.com/support to choose a method of support that suits you. Thank you. Health is fragile 02:41 Health Hats: Michael, thank you so much for joining us. I appreciate it. I love seeing you. This is different from our usual coffee at Pete's. Michael Macht Greenberg: Always good to be with you. Thanks for asking to chat. Health Hats: Yeah. When did you first realize health was fragile? Michael Macht Greenberg: Wow. As a kid growing up, when you start losing people, grandparents, and great-grandparents, you start realizing you can lose people. Those people who have been important in your life aren't around anymore. Fortunately, I am a healthy guy, and my experience with fragile health is limited. I'm fortunate that, with limited exception, that hasn't been too dramatic or traumatic. But while growing up and realizing the people you love aren't around forever,

Exploring Youth Clubhouses, drop-in centers for youth in recovery from/at risk for substance use disorders, focusing on access, partnerships, & peer support. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Contents Proem.. 1 Podcast intro 02:45. 2 Health is fragile 04:08. 2 Youth Clubhouses, safe places 07:27. 3 Access to the Clubhouse 10:23. 4 Community partnership and collaboration 13:22. 4 Youth program engagement and leadership 17:03. 5 A word from our sponsor, Abridge 19:03. 6 Coping tools in your toolbox 19:48. 6 Continual learning. 6 Hopeful, hopeless 25:03. 7 Policy change, harm reduction 28:23. 7 OASAS: Office of Addiction Supports and Services 31:01. 8 Clubhouse Radio 31:45. 8 Narcan and Harm reduction 34:36. 9 Reflection 38:16. 10 Tribute to Casey Quinlan 39:53. 10 Tribute to Michael Funk 43:46. 11 Podcast Outro 44:33. 11 Episode Proem Figure 1: DALL.E image of Sculpture of community-based research in style of Yoshitoshi Kanemaki I gravitate toward, am attracted to, community-based programs that build partnerships with their participants. The programs serve well, plant seeds, build capacity, and inspire copying. Medical, professional, or larger companies have a more challenging time serving, planting, building, and inspiring. Perhaps it's a function of community-based and partnerships with lived-experience experts. I thank Dorothy Cucinelli, last episode's guest, for introducing Paul Taylor and the Youth Clubhouses at the Mental Health Association of Columbia Greene Counties. Youth Clubhouses are drop-in centers for youth and young adults in recovery from or at risk of developing a substance use disorder. These programs provide recovery supports – including peer support – as well as skill-building and community engagement opportunities, educational and vocational support, recreational and prosocial activities, family engagement activities, and sessions on health and wellness. Youth and Young Adults | Office of Addiction Services and Supports (ny.gov) Youth Clubhouses are programs of NY State OASAS. The New York State Office of Addiction Services and Supports (OASAS) oversees one of the nation's largest Substance Use Disorder systems of care. Approximately 1,700 prevention, treatment, and recovery programs serve over 680,000 individuals per year. About Us | Office of Addiction Services and Supports (ny.gov) Kai Hellman invited Paul Taylor and Phoebs Potter to join us. We spoke about youth access to the Clubhouse, Clubhouse partnerships in their communities, youth engagement and leadership, peer support, and harm reduction. We will end the episode with two tributes, one of Mighty Casey Quinlan who died a couple of weeks ago and to my son, Mike Funk who would have been 47 on May 17th. Podcast intro 02:45 Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Like what you're reading, hearing,

COAST, a 24/7/365 access program in upstate NY, offers access to med-assisted treatment & wraparound services for substance use & mental health concerns About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Contents Proem.. 1 Podcast intro 01:13. 2 Access through a single number 1:50. 2 Wraparound services 04:16. 2 The behavioral health network collaborative 05:52. 3 Doing something right 08:40. 4 Substance use and mental health 09:32. 4 Warm hand-off 11:52. 4 Partnership with families 12:33. 4 Residential and inpatient? 13:28. 5 A word from our sponsor, Abridge 14:20. 5 Collaboration over competition 15:03. 5 Networking coordination 16:52. 5 Emerging adult priorities 18:07. 6 Matching resources to demand 21:36. 6 Maximize access 25:19. 7 Prevention 28:59. 8 Marketing programs 29:49. 8 Reflection 33:34. 9 Podcast Outro 25:39  9 Episode Proem Photo by Nima Ara on Unsplash, reference not found When I'm in trouble or have a question, I need help when I need it, preferably from a warm person, not an app or a bot. Is this even possible today? One of the health systems I use just shifted the patient portal inquiry responses to a central department, open Monday through Friday, 8 am to 5 pm. No more replies to non-emergent questions from my doctor or nurse within two days as I'm used to. Not a warm person when I need it. I called my dear friend Dorothy Cucinelli as I planned this Emerging Adult with Mental Illness series. Dorothy, CEO of the Capital Behavioral Health Network (CBHN), sponsors COAST (Coordinated Opioid and Stimulant Treatment) 24/7/365 person-answered hotline for people in need. Kelly Lane joins Dorothy to tell us more. Podcast intro 01:13 Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Access through a single number 1:50 Health Hats: Dorothy and Kelly, thank you for joining us today. I look forward to discussing the COAST program (Coordinated Opioid and Stimulant Treatment). And as we've talked about previously, I'm focused on young adults and their families with mental illness and the services they need and can get. So, I was very excited when Dorothy and I were just catching up to hear about the COAST program. I'm wondering if you could tell us a little about how people access COAST referrals, supportive services, young adults, and families. Kelly Lane: Sure. It's easy. We've designed this project with a single number that connects you to services anywhere in our eight-county region, south to Columbia Green County, north to Warren, and Washington. Health Hats: In upstate New York? Kelly Lane: Yes, the Capitol District, Warren, Washington, and Columbia Green. Dorothy Cucinelli: For those listeners who might not know this area, the Capitol District is Albany, about three hours' drive north of New York City. We cover the eight counties in that region, to the Massachusetts border and West,

Introducing you to my new Patreon page so that I can earn some revenue to help me keep the lights on. Fans can pay a $small amount each month for bonus rewards. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Episode Notes Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors, or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Hey there. As one of my blogging, podcasting, and vlogging cronies, I'm excited to share a sneak peek of a big upcoming launch with you and see what you think. For the past few weeks, I've been working on a Patreon page so that I can earn some more ongoing revenue through my fans to help me keep the lights on. With Patreon, fans can pay a small amount of money each month in exchange for some bonus rewards. The "About" tab tells you more. Free will remain an option. https://health-hats.com/free/ I've launched my page, but it isn't finalized. Go here. https://www.patreon.com/user?u=8382489. Click on the "About" and "Membership" tabs. I'd love to hear any feedback you have about it before I make it live for the world. Specifically, Does everything make sense? Is it clear what Patreon is and what fans get out of joining my community? What do you think of the rewards? Do any, in particular, stand out as things you would join Patreon for? Is there anyone you think I should connect with to help spread the word once I launch? Thanks for letting me know what you think. I'm excited to get this off the ground and couldn't do it without the support of friends, and family like you. I'll be sending out an email to my mailing list subscribers once I launch. So feel free to add your email here  https://health-hats.com/free/ if you'd like to stay in the know. I'm looking forward to incorporating your feedback into my final page. Thanks.

Dr. Joel Hudgins muses on up and downstream changes to Peds ED for emerging adults with mental illness. Higher numbers & acuity, too few beds, services, & staff About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Contents Proem.. 1 Update on Mighty Mouth Casey Quinlan. 2 Podcast intro. 2 Health is fragile. 2 Crossing the threshold into the ED. 2 How can we help up front?. 3 Upstream and downstream issues 4 Can we really help? It takes a toll. 4 A word from our sponsor, Abridge. 5 System interventions/solutions. 5 Hopeful, hopeless 6 Real people all around. 6 Profound knowledge. 7 Academic medical center versus critical access hospital 7 Reflection. 8 Next: Episode #8: COAST. 8 Podcast Outro. 9 Proem In this series we've met Emeka and Annie, two emerging adults with mental illness and Emeka's mom, Erika. We learned about their ‘something's wrong' experience, finding treatment, family dynamics, and recovery. We met Matt, a high school teacher leading a student-run welcoming Ambassador program, and Dr. Bonnie, a primary care doc, managing the care of emerging adults with developing and full-blown illness with limited resources. You can see that I'm starting in the center with lived experience and spiraling out. Photo by razvan-mirel-xhYhjMIfsq8-unsplash Welcome to today's episode, #7 in the series, of the lived experience of another professional, Dr Joel Hudgins, pediatric emergency physician at Boston Children's Hospital.  Full disclosure, I worked from 2002 to 2008 at Boston Children's leading their patient family experience initiative and I worked as a nurse/paramedic at two rural hospitals in West Virginia in the late eighties, early nineties. Despite my experience in pediatrics and emergency services, I feel out-of-touch with the dynamics of treating an increasing proportion of youth with mental illness while also faced with exploding infectious disease incidence, COVID, RSV, and flu. Emergency care and pediatrics are near and dear to my heart. Let's see what we can learn with Dr. Joel Hudgins. Update on Mighty Mouth Casey Quinlan Before we begin, I published my last episode on April 1, 2023, the mashup of my chats with Casey Quinlan. Many subscribers reached out to me. Is Casey alive or has she passed? I purposefully left it ambiguous because I didn't know when people would be reading, listening, or watching. Besides, Casey told me several times over the years when I called her about various deaths in my family, why do funerals and memorial services need to come after death? Anyway, as of today, April 12, 2023, Casey lives in a hospice, with several visitors a day, alert for short periods of time, still snarky. Go to CaringBridge.com, for up-to-date information from Jan Oldenburg. From Health Hats, the Podcast https://health-hats.com/pod193/ Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health is fragile

In mid-March Casey didn't sounds lucid or humorous and she couldn't spin a yarn or offer wisdom. I'm grateful for her impact on the patient-caregiver movement. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode can be watched on YouTube Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 2 Healthcare is Hilarious intro 00:44. 2 Health Hats, the Podcast intro 01:20. 2 From Episode#127 Healthcare is Hilarious, with Mighty Casey Quinlan. Jun 6, 2021 01:59. 3 Feel like I've been shoved through a pipe 02:38. 3 Mobility 04:49. 4 Bemused about dying 06:34. 4 Bored with the new you? 07:51. 5 Not alone 08:55. 5 From episode #132: Healthcare is Hilarious. Continuing Mets Saga. Hospital. Home. 09:41. 5 Pain management 11:16. 6 Recognize privilege 13:10. 6 Hospitalists and coordination of care 14:35. 7 A word from our sponsor, Abridge 16:06. 7 Episode #139: Normal, A Dryer Setting with Mighty Casey Quinlan 16:49. 7 Steroids, love ‘em, hate ‘em 17:30. 8 Leaping tall buildings 19:20. 9 Engaged with sax – changing capabilities 20:16. 9 Patient hackers adapting 21:36. 9 Not quitting till I'm dead 23:26. 10 Episode #181: Might Casey Unplugged 24:00. 10 Health update – not great 25:27. 11 Crying over spilled hair? 27:43. 11 Spiritual Health 30:27. 12 Death by a thousand pilots 31:52. 12 Busting down silos 36:07. 13 Colossal challenge 37:02. 14 Reflection 39:25. 14 Podcast Outro 41:23. 15 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter,  to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, and Arranger including Moe's Blues for Proem and Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Leon van Leeuwen edits the article-grade transcript.  Intro photo of Vulture Couple by Rich Rieger used with permission Photo of fire by Ani Kolleshi on Unsplash  Photo of fist by Dan Burton on Unsplash  Photo of silos by Ricardo Gomez Angel on Unsplash  Photo of ice cream by Food Photographer | Jennifer Pallian on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors, or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Jan Oldenberg, Geri Lynn Baumblatt, Fred Trotter, Claire Sachs, Lygeia Ricciardia, and hundreds of others Links In hospice, Mighty Casey receives SPM's “Doc Tom” Award Related podcasts Episode#127 Healthcare is Hilarious, with Mighty Casey Quinlan. Episode #132: Healthcare is Hilarious. Continuing Mets Saga. Hospital. Home. (health-hats.com) Episode #139: Normal, a Dryer Setting with Mighty Casey Quinlan #139 (health-hats.com) Episode #181: Mighty Casey Quinlan Unplugged #3 | Danny van Leeuwen Health Hats (health-hats.com) About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust...

Thoughtfulness, frustration, and caring of PCP, Dr. Bonnie Engelbart managing referral, consultation, and stretching resources but still, not enough bodies. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode can be watched on YouTube Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Podcast intro 01:26. 2 Health is fragile 02:00. 2 Primary care practice at Cambridge Health Alliance 05:31. 3 Screening for mental illness 06:29. 3 The referral maze 08:10. 3 Team building 11:40. 4 Toll on staff 14:02. 4 The burden of stigma, lack of resources, barriers to continuity 14:41. 5 Need more bodies 17:00. 5 Care partners 18:31. 5 A word from our sponsor, Abridge 19:27. 6 Complex time 20:09. 6 Changes over the past twenty years 21:27. 6 Self-medication 22:56. 7 Questions for emerging adults 24:03. 7 Questions for administrators 25:27. 7 The burden of cost to families 27:19. 7 Culture and language 28:09. 8 Reflection 30:35. 8 Next #7 Emergency medicine: We're not trained for this 32:25. 9 Podcast Outro 33:02. 9 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Proem and Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Photo of Swaziland by Ndumiso Silindza on Unsplash Images of emerging adult with mental illness and community collaboration from DALL.E The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors, or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Laura Zucker, Mike Herndon, Sue Donnelley, Luc Pelletier   Links World Health Organization (WHO) Adolescent Mental Health Most mental health concerns, especially for emerging adults, first present in primary care, placing them in a critical role for addressing these concerns. The PSC-17 Pediatric System Checklist is a brief questionnaire that helps identify and assess changes in emotional and behavioral problems in children When kids turn 18, we transition to a form called the AWQ, Cambridge Health Alliance Adult Wellbeing Scale, which screens for depression, anxiety, and substance use. National Alliance of Mental Health: Kids, Teens, and Young Adults, White House Fact Sheet: Improving Access and Care for Youth Mental Health and Substance Abuse Conditions, American Academy of Family Practice (AAFP) article, Managing Behavioral Health Issues in Primary Care: Six Five-Minute Tools. Related podcasts Series: Emerging Adults with Mental Illness Pediatric Transition to Adult Care | Danny van Leeuwen Health Hats (health-hats.com) About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to ad...

Costa Rica welcomes travelers with disabilities. Juve Acuna, travel guide, spent a week with us sharing his expertise in flora, fauna, history, & disabilities. Blog subscribers: Listen to the podcast here. Scroll down through the show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Podcast intro 03:58. 2 Grandfather of disability travel 04:33. 2 Capabilities and preferences 07:07. 3 Building a network 08:30. 3 Preparation 10:51. 4 National Tourism Board 12:48. 4 Building infrastructure for accessibility 13:44. 5 The network for accessibility 16:39. 5 Pride 17:30. 5 Possibilities, safety 19:42. 6 A word from our sponsor, Abridge 21:14. 6 Photo highlights of the trip 21:57. 7 Swimming in the Pacific Ocean 22:16. 7 Howler and white-faced monkeys 23:17. 8 Reflection 24:02. 8 Podcast Outro 24:53  8   Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger  Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Photo by Iswanto Arif on Unsplash Photos taken by Ann Boland, Paul Boland, Juve Acuna, and Danny van Leeuwen The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Ann Boland, Linda and Mike DeRosa, Kate Higgins, Mary Lawler Links Il Viaggio Travel Costa Rica - Plan your trip to Costa Rica with us (ilviaggiocr.com) Where to Go Bird-Watching in Costa Rica - Tripadvisor Arenal Hanging Bridges | Experiencing Costa Rica From The Treetops (parenthoodandpassports.com) Related podcasts Camino | Danny van Leeuwen Health Hats (health-hats.com) About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show To see the transcript with images download the printable transcript here Proem Figure 1: Skywalk hanging bridge in Arenal National Park, Costa Rica Figure 2: Danny in his chair with our guide, Juve Just stay in the middle.

Matt Neil, teacher, offers a hopeful story. Not focusing on mental health per se but on belonging and inclusion in a typically lonely time – high school. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings Proem Podcast intro 01:46 Health is fragile 02:20 Health class 03:35 Introducing Ambassadors 04:53 Sustaining the Ambassadors program 06:42 Three points of contact 07:52 New student defined 08:27 Back to school after a life-changing event 09:30 Kathy's table 13:50 Prevention is invisible 15:26 A word from our sponsor, Abridge 18:18 Support and continuity 19:00 Continuity and diversity 21:23 Team leadership 22:42 Ninth grade 23:55 Perhaps they don't want help 25:04 A lesson from failure 25:51 Standardization, data 27:53 Social health, a safe place 29:21 Loneliness, belonging, hope 30:50 Captain, CEO of your health team 32:48 What can we do to help young people? 33:42 Wisdom shared 36:06 Reflection 39:53 Nuggets from the Mine 40:42 What's next? 41:18 Dr. Bonnie Engelbart, Primary Care 41:38 Podcast Outro 43:44 to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Proem and Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Image of emerging adult with mental illness and community collaboration from DALL.E Photo by Alex Simpson on unsplash Photo by Trung Thanh on Unsplash High school The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Karl Madeo,  Marc Lefebvre, Bonnie Engelbart, Ruben van Leeuwen, Kathy Bloom Links Related podcasts Series: Emerging Adults with Mental Illness https://health-hats.com/a-learning-community-for-ceos-of-your-health/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem

Annie Schneider with Bipolar II, experiencing abrupt and slow simmering transitions from home, hospital, school. Develops agency, control, and trust. Powerful! Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings Proem Introducing Annie Schneider 02:18 Podcast intro 03:18 Something's wrong 04:07 Self-reflection 06:49 Something helps! 07:47 Diagnosis 09:32 Who is ‘we'? 11:31 Underwater 13:15 Friends 14:43 Hospital friends/peers 16:17 Not a medical hospitalization 16:47 Abruptly in 17:21 Survivor's guilt 21:45 Abrupt hospital exit – discharge 22:46 Abrupt re-entry back to school 24:21 Familiar with what others may be experiencing 26:06 Just get over it 27:07 A word from our sponsor, Abridge 30:15 Toolbox 30:58 Physical tools – medications 32:56 Tools: sunshine, friends, and pets 34:26 Alcohol 35:29 Apps 36:27 What change would you make for best life? 37:57 Reflection 43:03 Next episode: Matt Neil 43:46 Podcast Outro 45:09 to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Image of emerging adult with mental illness from DALL.E Photo by Stormseeker on Unsplash underwater Photo by Khamkéo Vilaysing on Unsplash reentry Photo by Colton Sturgeon on Unsplash Meditation Photo by Trung Thanh on Unsplash High school The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Emeka Chima, Erika Blair, Sue Donnelly, Matt Neil, Bonnie Englebart Links Bipolar II Headspace's website:  https://www.headspace.com/ Related podcasts Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Series: Emerging Adults with Mental Illness About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show

#3: Erika Blair, proud of son, Emeka Chima. Found professionals with lived experience, integrated teams, positive support & a sense of hope from other parents. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Challenges of multi-media. A note to followers. 01:14 Podcast intro 02:48 Health is fragile 03:22 Proud of your son 04:19 Getting to diagnosis 04:50 Help in school 06:33 First psychotic break 07:36 Finding integrated help for the family 09:03 Goal-based care 10:44 IEP finally 11:18 Transitioning back 12:17 A word from our sponsor, Abridge 13:00 Freaking out together 13:44 Questions for professional helpers 14:51 Do professionals have lived experience? 16:19 Giving back 17:14 Hope 18:10 Family on the team 18:49 Early intervention 20:15 Students with Psychosis 22:29 Positive support for parents 25:02 Reflection 27:09 Annie Schneider 29:19 Matt Neil 30:23 Podcast Outro 32:13 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Photo by Nick Fewings on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Matt Neil, Annie Schneider,  Links IEP (Individualized Education Plan) Asperger's Syndrome DSM V Johns Hopkins Bayview Johns Hopkins' Early Psychosis program National Association of Mental Illness Students with Psychosis Related podcasts Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Series: Emerging Adults with Mental Illness About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My privilege offers little experience with the loneliness of severe illness without reliable support.

Since AI dissemination exploded in 2022, I wanted to create my holiday letter using a variety of AI apps. May you all have adventures, rest, and inspiration. Love ya. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Better to watch than listen   Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 00:43 Or as CHAT CPG translated as a Shakespearean sonnet 01:19 Boland van Leeuwen family 02:16 Health 02:43 Music, my life 02:54 Multimedia publishing 03:27 A word from our sponsor, Abridge a la ee cummings 04:00 Advocacy 04:36 Reflection 04:36 Podcast Outro 05:53 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Photo by Rich Rieger Photo by Diane Feil on Unsplash Images by DALL.E  https://labs.openai.com/e/qK0AYWzbfbstxmhUIXpDUNXu/CUf17lDwAbvALkZwa9zuHi2M https://labs.openai.com/e/sgimC5lsgZBWobq2ZIgFQD1i/aDAs9Tgmuk4yfhdAk0aBtkLh https://labs.openai.com/e/v8iDSCzKlD13AVPPwjiAQ7v2/0YGebq0qdijNJTcxXHgQbggz https://labs.openai.com/e/rrb28KfkM47oki5Ju9BQnwAN/kDDr4QrrDO1GnXH16T6QXSpk Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to all of you Links I'll be using two versions of Descript's AI created overdubs of my voice, reading scripts created by CHAT CPG(2020), with images drawn by DALL.E, and my avatar done in Remini. Related podcasts https://health-hats.com/pod105/ https://health-hats.com/engaging-with-sax-good-as-i-am-merry-holidays/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem May the New Year surround you with empathy, equanimity, spirit, and gratitude. You're hearing me speak in my own voice. Since AI dissemination exploded in 2022, I wanted to create the rest of my holiday letter using a variety of the AI apps out there I'll be using two versions of Descript's AI created overdubs of my voice, reading scripts created by CHAT CPG(2020), with images drawn by DALL.E,

Episode #2: Emerging Adult living with Schizophrenia, finding help, using a toolbox to cope, giving back as peer specialist, leading with Students with Psychosis Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 01:53 When did you realize health is fragile? 02:27 How did mental illness feel? 03:15 Loneliness 05:54 Get treatment sooner 06:52 My parents, my chosen family 07:26 More than medication – empathy 09:19 Re-entry, relearning 10:15 Finding the right medication 11:57 Hospital to school 12:40 Finding the right therapist 13:52 Remission, cured? 15:05 A word from our sponsor, Abridge 16:59 Never too early to ask for help 17:41 Keep your coping skills in your toolbox 20:10 I wish health professionals… 21:01 Need, capacity, staff, recovery coaches 22:05 Reciprocating as a peer specialist 23:32 Students with Psychosis 24:20 Reflection 28:19 Clip -Erika Blair, Emeka's Mom 28:35 Nugget from the Mine – Ciel Coffee 29:58 Podcast Outro 32:02 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Photo by Nick Fewings on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Jimmy Clare, Jason Stewart, Keith Scott Links Johns Hopkins Bayview Students with Psychosis Nuggets from the Mine (Unfunded Recommendation) Ciel Coffee Roasters FOR COFFEE CONNOISSEURS. Nothing but the best. For me, the best reflects a coffee product of time, attention, and care from the Coffee Producer and the Coffee Roaster.  Each bean is a reflection of its best potential Related podcasts https://health-hats.com/peer-support-patience-and-kindness/ https://health-hats.com/pod117/ https://health-hats.com/pod114/ Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Young Adults, Parents, alone, together. High school, college, professionals, parent. Plus physician, teacher Series: Emerging Adults with Mental Illness   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio,

We need our emerging adults healthy in spirit, mind, body. How can we learn more about their exploding mental illness? Start with people with lived experience. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Podcast intro Four stories to set the stage Behavioral health managed care 00:34 Adolescent advisory panel at Children's Hospital 02:52 Integrated community approach 04:33 Lived experience on the Board of Directors 06:56 Engagement and partnerships with those with lived experience 10:41 Healthy emerging adults 11:13 Far from young adulthood myself 14:10 A word from our sponsor, Abridge 15:26 Introducing the podcast series 16:09 Introducing some guests 17:40 Emika Chima 18:03 Erika Blair 19:31 Annie Schneider 22:05 Nuggets from the mine -CURESZ.com 23:42 Podcast Outro 24:57 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion Photo by Nick Fewings on Unsplash Photo by Kat J on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Bethany Yeiser, Robert Doherty, Jim Bulger, Chris Gordon, Greg Fredo, Sneha Dave, Betsy Neptune, Sue Donnelly Links   Nuggets from the Mine CURESZ.org Comprehensive Understanding via Research and Education and Schizophrenia Related podcasts Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Young Adults, Parents, alone, together. High school, college, professionals, parent. Plus physician, teacher https://health-hats.com/pod178/   https://health-hats.com/pod174/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot of our very little. We will listen and learn about what it takes to adjust to life's realities in t...

Where do veteran advocates point people new to advocacy for skills, resources, and research? What are trusted resources? 15 interviews from Healthe Voices 22. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Prefer to watch the episode rather than listen? Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 03:27 Sue Rericha 04:00 Sharnae Smith 04:33 Christine Von Raesfeld Hetlena Johnson 05:48 Brooke Abbott 06:22 Bethany Yeiser 07:41 Michele Nadeem-Baker 08:59 Jenna Green 10:50 Kara Beck 12:15 A word from our sponsor, Abridge 12:47 Jasmin Pierre 13:30 Alexis Newman 14:02 Ryan Williams 14:43 Andrew Schorr 16:04 Howard Chang 17:45 Rachel Star Withers 17:48 Reflection 18:22 Nuggets from the mine 19:55 Podcast Outro 20:55 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Proem and Reflection music, Moe's Blues, played by the Joey van Leeuwen Band Photo by Shane Rounce on Unsplash Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaiser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang, Rachel Star Withers Links Raw, unedited transcript of all responses to question #2 Healthe Voices website Facebook Bethany Yeiser CURESZ (Comprehensive Understanding via Research and Education in Schizophrenia). Mind Estranged: My Journey from Schizophrenia and Homelessness to Recovery Paperback – July 10, 2014 Lupus Foundation of America (LFA) Hetlena Johnson's thelupusliar.com @thejennagreen Instagram Kara Beck @karabear_rny Instagram Schizophernia medication TAAR1 agonist NAMI (National Association for Mental Illness) Books on Alzheimer's by Ryan Williams patient's story Chronic Lymphocytic Leukemia The CLL Society CLL Women Strong  Kicking Cancer in Heels National MS Society Andrew Schorr Patient Power Nuggets from the Mine Knowledge for Caregivers podcast   Related podcasts https://health-hats.com/pod180/ https://health-hats.com/pod182/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing

Time for gratitude and appreciation for what is. Update on Health Hats, the person, family, music, connection, and activism. New feature: Nuggets from the Mine Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) The awesome circus of life Podcast intro 02:11 Young adults with mental illness 02:46 Health communication 04:24 A word from our sponsor, Abridge 05:34 Video skills 06:18 My health 07:21 Nuggets from the mine 08:03 Remembering Michael Funk 09:55 Podcast Outro 11:20 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion Photo of 2 wheel minivan from Unsplash. Couldn't find reference. Photo by Elijah Hiett on Unsplash Photo by Nick Fewings on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Ann Boland, Simon, Ruben, Oscar, Leon van Leeuwen, Kate Gleeson, Jessica Conaway, Anica Madeo Links Alt-Text as poetry strabismus surgery Nuggets from the Mine Those Nerdy Girls on Substack, Facebook, and website. Related podcasts https://health-hats.com/covid-19-people-living-safely/ https://health-hats.com/pod146/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show The awesome circus of life My dear readers, listeners, and watchers, do your heads spin as mine does in this awesome circus of life? So much to take in, process, and react to - or not. I don't even pretend to keep up. My curiosity and fascination with life, people, stories, motivation, and connections continue unabated. I'm grateful to discover gobs of inspiring work almost every day. However, every few days, I need to integrate the shiny objects I discover and re-prioritize my activities. Before I tell you about some of my ongoing and upcoming projects, my activism focus has shifted. Not off patients and caregivers but realizing that I'm old.  If I could have changed the world, it would have happened already.