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In this episode, Dave deBronkart and Christina Farr, champions of patient-centered digital health, join Lee to talk about how AI is reshaping healthcare in terms of patient empowerment and emerging digital health business models. DeBronkart, a cancer survivor and longtime advocate for patient empowerment, discusses how AI tools like ChatGPT can help patients better understand their conditions, navigate the healthcare system, and communicate more effectively with clinicians. Farr, a healthcare investor and former journalist, talks about the evolving digital health–startup ecosystem, highlighting where AI is having the most meaningful impact—particularly in women's health, pediatrics, and elder care. She also explores consumer trends, like the rise of cash-pay healthcare.
Knowledge is power.So how can we ensure our healthcare system is empowering patients?This episode is a brilliant chat with ‘e-Patient Dave' deBronkart, a legendary advocate of participatory medicine who came into the spotlight during a battle with cancer in 2007.Dave is the living embodiment of participatory medicine, and reflects passionately on numerous inspiring examples of patient-led change: Long Covid, Parkinson's Disease, Marfan Syndrome… the list goes on.Sharing candidly on his own health battle and the preventable death of his mother due to staff shortages at a care home, it's clear Dave has always been dedicated to giving as much to life as he can. Our healthcare system is broken, the establishment is stubborn to change, but patient power will never let up - we can always take matters into our own hands!Follow me on Instagram and Facebook @ericfethkemd and checkout my website at www.EricFethkeMD.com. My brand new book, The Privilege of Caring, is out now on Amazon! https://www.amazon.com/dp/B0CP6H6QN4
As an author and a Ted Talk Speaker, e-Patient Dave deBronkart is an advocate for patient experience, satisfaction, engagement, and safety. In May 2018, Mr. deBronkart was the keynote speaker at the SIIM 2018 Annual Meeting's opening general session. The day before this keynote speech, Dr. Paul Nagy, SIIM Chair, sat down with e-Patient Dave to discuss participatory medicine and how empowered and engaged e-patients are sharing information with their clinicians. "...being an e-patient - empowered, engaged, equipped, enabled." - e-Patient Dave deBronkart
Host: Alicia A. Sutton Guest: Dave deBronkart From the annual meeting of the Alliance for Continuing Education in the Healthcare Professions in Orlando, Florida, keynote speaker Dave deBronkart joins host Alicia Sutton to discuss the evolving roles in the patient and doctor relationship. Better known as ‘e-Patient Dave’, deBronkart emphasizes key points in the shift from the patient as a passive recipient of care to one where the patient is an active contributor to his or her own care. deBronkart discusses healthy patient:doctor communication and ways clinicians can employ effective techniques. As a co-founder of the Society for Participatory Medicine and stage 4 kidney cancer survivor, deBronkart speaks globally on how patients should be partners in their care, rather than passive recipients, and how collaboration makes healthcare better for everyone.
We are all patients, but only one has come to be recognized as the face and voice for a growing community of activists encouraging the rise of participatory medicine. My guest today is a cancer survivor and patient advocate, Dave deBronkart, better known as e-Patient Dave. The evolving field of health & medicine has many challenges, but having patients pro-actively participate in their medical decision-making shouldn’t be one of them. As an industry that has historically relied on the one-sided expertise of physicians, technology and the internet have fundamentally changed the game. Patients have much greater access to information than ever before. So why then is it still so difficult to get patients to take charge of their health? As it turns out, e-Patient Dave believes there is a science to patient engagement and behavior change that is not too different from how we describe the mechanism of action of a drug. On this episode, Dave shares what this means, what he has learned in his own personal journey on battling the ugly “C” word, what he believes is the fundamental difference between a patient and consumer, and what we need to do going forward so that patients play a more central and active role in their care. I found this conversation to be both inspirational and informative as I hope you will too. e-Patient Dave is an inspiring human being who believes the voice of the patient needs to be heard around the world. All this and more on today’s episode. Now, That’s Unusual. About “e-Patient” Dave deBronkart Dave deBronkart, better known as e-Patient Dave, was diagnosed with Stage IV kidney cancer in January of 2007. The best information gave him just 24 weeks to live, and with tumors in both lungs, several bones and muscle tissue, the prognosis was grim. Lucky enough to be connected with an academic medical center, Boston’s Beth Israel Deaconess, he received superior care that leveraged the best available research. Once it was clear that he had beaten the disease, deBronkart became an activist, seeking to open the healthcare information system directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. Dave is the author of the highly rated Let Patients Help: A Patient Engagement Handbook and one of the world’s leading advocates for patient engagement. After beating stage IV kidney cancer in 2007 he became a blogger, health policy advisor and international keynote speaker. He is today the best-known spokesman for the patient engagement movement, attending over 500 conferences and policy meetings in fifteen countries, including testifying in Washington for patient access to the medical record under Meaningful Use. A co-founder and chair emeritus of the Society for Participatory Medicine, e-Patient Dave has appeared in Time, U.S. News, USA Today, Wired, MIT Technology Review, and the HealthLeaders cover story “Patient of the Future.” His writings have been published in the British Medical Journal, the Society for General Internal Medicine Forum, iHealthBeat, and the conference journal of the American Society for Clinical Oncology. In 2009 HealthLeaders named him and his doctor to their annual list of “20 People Who Make Healthcare Better,” and he’s appeared on the cover of Healthcare IT News and the Australian GP magazine Good Practice. Key Interview Takeaways The ‘e’ in e-patient stands for more than just ‘electronic.’ An e-patient is equipped, engaged, empowered and enabled to ask, “How can I help?” When considering scientific literature, ask yourself, “Was this study done well?” e-Patient Dave has a great respect for the literature, but he understands that it can be unreliable. Doctors are not trained how to examine and validate clinical studies, thus patients aren’t always receiving care based on the latest information. Though we crave certainty, we live in uncertainty. Our body has just twelve ways to express a problem,
Dave deBronkart joins us to talk about how being an empowered patient helped him get the life-saving treatment he needed after being diagnosed with kidney cancer. Dave speaks about the importance of finding the latest technology in treatment, how to find a doctor that is willing to be a partner with the patient, and much more. Listen in! Inspiration, Health, Healthcare, Empowerment, Dave deBronkart, Kidney Cancer "e-Patient Dave" deBronkart International keynote speaker, author and health policy adviser Let Patients Help! A patient engagement handbook www.smartpatients.com www.inspire.com Patient empowerment Music: "Catch and Release" by Pete Huttlinger