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27 episodes with kevin jess
2 episodes with kevin jess
Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
Kevin's journey with WeHaveAFace began over a decade ago when he joined as a regional advocate. Recognizing the urgent need for advocacy in the HD community, he immersed himself in the organization's mission to raise awareness and support for those affected by the disease. In 2015, his commitment and expertise led him to assume the position of Patient Advocate, where he worked tirelessly to ensure that HD patients received the care and attention they deserved. Driven by his passion for advocacy and the desire to make a difference, Kevin ultimately ascended to the role of President within WeHaveAFace Canada. In this capacity, he continues to lead the organization with unwavering dedication and a clear vision. Drawing inspiration from James Valvano, he embodies Valvano's spirit of relentless pursuit in furthering Project Change and pushing for positive change in the HD community. Please visit www.wehaveaface.org/change for more information.
Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
Kevin Jess speaks about his wife Sheila, how they met up until her recent passing.
Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
Kevin Jess speaks with Jen Almeida from the Connecticut Chapter of WeHaveAFace about "Blessings for HD and JHD Warriors
Kevin Jess speaks with Jen Almeida from the Connecticut Chapter of WeHaveAFace about "Blessings for HD and JHD Warriors
Kevin Jess, VP of wehaveaface.org Canada joins the show to talk with Paul about Huntington's Disease, advocacy, and resources for people who are interested in being a part of making our generation the last one affected by HD. I also mention in the episode several organizations doing great work for the HD community, learn more by clicking any of the links below. www.wehaveaface.org www.wehaveafaceglobaltimes.org https://www.championsforhd.org/ --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
Alex Scheer joins the podcast to talk about following dreams, being grateful for what you have, seeing Avengers: Endgame 13 times in the theater and a ton more. It's a great conversation that I really got a lot out of, and I think you will, too. Find out more about Alex's (far superior) podcast at https://www.atbsports.net/ or wherever you are listening to Mixtape Tales. Upcoming guests will include Kevin Jess from wehaveaface.org, a Huntington's Disease group, and Toledo band Pop's Garage drummer Ashley Spitler. Want to be a guest or have feedback? Email me at mixtapetales45806@gmail.com.
The Ain't No Such Thing team, Amanda and Kevin (Jess is back with us next week), discuss famous cases of mass hysteria as well as two popular ones in our own back yard, The Wolf Woman of Davis Avenue and the elusive Crichton Leprechaun. Did you see them? These local legends are hard to miss (the latter especially on YouTube - link below). Have a look at the "pretty, but hairy" Wolf Woman sketch from AL.com here! Enjoy the original - eventually viral- news report on the Crichton Leprechaun here! Support our Patreon Campaign for access to:More StoriesHorror Movie ReviewsVideo UpdatesPDF Transcripts of Our StoriesPhysical Merchandise: Magnets & Autographed PhotosNarrated Chapters of Our Planned Horror Novel Written by Kevin (EXCLUSIVE to Patreon)Live Skype Sessions with Amanda, Jess and KevinPrint Copies of the Novel and Anthologies Featuring Our Original StoriesJoin our Facebook group for exclusive insights and art based on our stories: https://www.facebook.com/groups/aintnosuchthing
Kevin Jess reads an excerpt from his novel that is still in progress.
Kevin Jess reads an excerpt from his novel that is still in progress.
Kevin Jess talks with his daughter about her recent experience with testing for Huntington's Disease
Kevin Jess talks with his daughter about her recent experience with testing for Huntington's Disease
Jonathan Monkemeyer talks with Kevin Jess and Leanne Delong
Jonathan Monkemeyer talks with Kevin Jess and Leanne Delong
Leanne Delong interviews Kevin Jess in regards to his son being tested for HD
Leanne Delong interviews Kevin Jess in regards to his son being tested for HD
A couple of announcements to our community.
A couple of announcements to our community.
Cindy Moore and Kevin Jess
Cindy Moore and Kevin Jess
#WeHaveAVoice" Radio: Families torn apart by HD/JHD" - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar. #YouAreLoved
#WeHaveAVoice" Radio: Families torn apart by HD/JHD" - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar. #YouAreLoved
This is a LIVE update regarding our Thursday, September 29th show at 7PM (EST). Show Topic: "Families torn apart by Huntington's and Juvenile Huntington's disease." - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar! We look forward to hearing from you! #YouAreLovedhttp://www.wehaveaface.org/whaf-blog
This is a LIVE update regarding our Thursday, September 29th show at 7PM (EST). Show Topic: "Families torn apart by Huntington's and Juvenile Huntington's disease." - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar! We look forward to hearing from you! #YouAreLovedhttp://www.wehaveaface.org/whaf-blog
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