Podcasts about patient advocate

Knowledge is power over a serious health condition w/Kimberly NashHost of The Chronic Truth Podcast, Advocate for Chronic IllnessesCertified Patient Health Leader, Host -The Chronic Truth podcast, Pres. -The Bonnie Morgan Foundation. Living and thriving with MS and End stage liver diseaseFighting serious health conditions while owning and operating 4 companies (in a male dominated field), a foundation and now hosting a podcast featuring real stories of patients with serious health conditions. Bringing a community together one patient, one story at a time.Link:https://www.chronictruthpodcast.com/https://www.instagram.com/chronic.truth.podcastTags:Business Owner,Chronic Illness,Entrepreneur,Healthcare Advocate,Patient Advocate,Professional Women,Survivor,Women Empowerment,Women Owned Business,Knowledge is power over a serious health condition w/Kimberly Nash,Phantom Electric Ghost Podcast,Podcast,Live Video Podcast Interview,Interview,PodmatchSupport PEG by checking out our Sponsors:Download and use Newsly for free now from www.newsly.me or from the link in the description, and use promo code “GHOST” and receive a 1-month free premium subscription.The best tool for getting podcast guests:https://podmatch.com/signup/phantomelectricghostSubscribe to our Instagram for exclusive content:https://www.instagram.com/expansive_sound_experiments/Subscribe to our YouTube https://youtube.com/@phantomelectricghost?si=rEyT56WQvDsAoRprRSShttps://anchor.fm/s/3b31908/podcast/rssSubstackhttps://substack.com/@phantomelectricghost?utm_source=edit-profile-page

Drew's LinkedIn: https://www.linkedin.com/in/drew-harrison-a67285b/Inato: https://go.inato.com/3VnSro6CRIO: http://www.clinicalresearch.ioMy PatientACE recruitment company: https://patientace.com/Join me at my conference! http://www.saveoursites.comText Me: (949) 415-6256Listen on Spotify: https://open.spotify.com/show/7JF6FNvoLnBpfIrLNCcg7aGET THE BOOK! https://www.amazon.com/Comprehensive-Guide-Clinical-Research-Practical/dp/1090349521/ref=sr_1_1?keywords=Dan+Sfera&qid=1691974540&s=audible&sr=1-1-catcorrText "guru" to 855-942-5288 to join VIP list!My blog: http://www.TheClinicalTrialsGuru.comMy CRO and Site Network: http://www.DSCScro.comMy CRA Academy: http://www.TheCRAacademy.comMy CRC Academy: http://www.TheCRCacademy.comLatinos In Clinical Research: http://www.LatinosinClinicalResearch.comThe University Of Clinical Research: https://www.theuniversityofclinicalresearch.com/My TikTok: DanSfera

Today on The Cameron Journal Podcast we are joined by Melissa Winger who is an author and patient advocate after navigating the healthcare system for her special needs child. We have been having an on-going conversation on this show about the healthcare system and this continues that conversation. You can find her book here: https://www.whocaresbooks.com

Send us a textThis week's newsmaker, Dutch Liver Patients Association President Jose Willemse, joins Roger Green to discuss the patient screening program at this year's EASL Congress, which took place in Amsterdam, and the general idea of what constitutes a patient-sensitive dialogue. Jose describes the phenomenal level of interest in the screening activity, in which hepatologists and APPs scanned 400 people per day for MASLD and MASH. Boosted by significant mass publicity in Amsterdam, the number of people seeking screening exceeded the 400/day quota, with some arriving in line hours before the scheduled start time and others traveling for hours to reach the site. Jose believes that with adequate publicity, efforts like these could be replicated around the world, but that the healthcare system lacks the necessary resources to do so. In terms of physician-patient dialogues, Jose emphasized the importance of sensitive yet frank conversations and helping patients appreciate the successes they are achieving. 

Emma Cooksey is a writer, speaker, and patient advocate. She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health issues. In 2020, Emma launched a weekly podcast, “Sleep Apnea Stories”  to break down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.In her current role as Sleep Apnea Program Manager, Emma runs Project Sleep's Sleep Apnea Education and Awareness Program. Through this program, she develops and implements new awareness and educational initiatives, events, and activities to empower people with sleep apnea to seek diagnosis, support, and care. SHOWNOTES:

Healthwatch was set up in 2012 to speak up on behalf of patients in the NHS and Social Care, when necessary to improve services. A few weeks ago, in July, the Government announced that a number of bodies were to be replaced or wound up. Healthwatch, set up by statute, was one of them. Local resident Siobhain McCurrach is Healthwatch’s Hampshire Director and she spoke to Mike Waddington (who is also involved with Healthwatch). The Government Report is here: Review of patient safety across the health and care landscape - GOV.UK Hampshire Healthwatch here: Home | Healthwatch HampshireSee omnystudio.com/listener for privacy information.

In this episode of To Care Is Human, Terri Ipsen talks with Susan Osborne about the power of words in healthcare. Based on her PX blog, “Say this instead of,” Susan shares practical tips and real examples of how small language changes can ease anxiety, build trust, and improve patient experience. Learn how intentional communication can make a lasting difference in patient care across all healthcare settings. 

Supporting someone going through cancer - what's the best way to do it when you don't know what to say? Ruth Fein has a bunch of interesting titles. Medical/science reporter. Award-winning author. Patient engagement leader. Motivational speaker. Ruth is a globally recognized patient advocate leader with a proven track record bringing together the voice of the patient, not-for-profit sector, industry and academia in the hematology/oncology space. In episode 579 of the Fraternity Foodie Podcast, we find out why Ruth chose Utica College for her undergraduate experience, how her rare blood cancer shaped her work as a journalist and patient advocate, what inspired her to write The Big C² and how it's different from other books, what is the best way to support someone going through cancer, how you can recognize red flags in your own health, what are some phrases to avoid when talking to someone who has cancer, what tools or perspectives have helped people she's interviewed to move forward, how to make the most of that time with doctors and truly advocate for themselves, and what college students need to know about the future of cancer treatment.

The Department of Health has been requested to establish a cancer patient advocate in Clare. Although the HSE does have a Patient Advocacy Liaison Service and a patient advocate role in the MidWest, neither are specifically dedicated for cancer treatment. Renewed calls have been made for a role to be established to ease pressure on cancer charities here and to guide patients through the processes of accessing chemo and radiotherapy. HSE Regional Health Forum West Member Ennis Fianna Fáil Councillor Antoinette Baker Bashua says it's not good enough that the service is currently being provided by a charity.

In this episode, we continue with a special series close to my heart: Decoding Destiny: Navigating Breast Cancer with Genetic Insight. I'm joined by Kathy Baker, patient advocate and founder of My Faulty Gene to explore the power of genetic testing—particularly cascade testing—and how it can help both you and your family take control of your breast cancer risk. Kathy shares her compelling personal story and how it inspired her to launch My Faulty Gene, a nonprofit organization that provides education, emotional support, and financial assistance for genetic testing. You'll learn all about the importance of cascade testing for families, how genetic knowledge can lead to proactive screenings and preventive health measures, and how advocacy is truly paving the way for more accessible care. Whether you're facing a BRCA-positive diagnosis, considering genetic testing, or looking for support navigating hereditary cancer risk, this is one conversation that you'll want to listen to - and share with your entire family.  Thank you to Merck and AstraZeneca for making this episode possible!

Doris Zallen, PhD, is Professor Emerita of Science Studies and Humanities at Virginia Tech. Her research explores personal, family, and societal issues arising from advances in genetic testing and gene therapy. Zallen is the author of two books about genetic testing and is developing an online tool to help people make informed choices about testing. Zallen […] The post Genetic Testing; Conversation with a Researcher and Patient Advocate (HLOL #260) appeared first on Health Literacy Out Loud Podcast.

Let's witness how one woman's passion for patient advocacy is transforming the dental world, one billing statement at a time. In this episode of Just DeW It, host Anne Duffy dives deep into the world of dental advocacy with her expert guest, Shelbey Arevalo. Shelbey, the visionary founder of Arevalo Elite Services and the National Dental Advocacy Program, shares her journey from a certified dental assistant to a leading advocate for financial transparency in dentistry. Through riveting discussions, Shelbey unveils the planning behind her Patient Advocate program, emphasizing the crucial need for financial education in the dental industry. The conversation unpacks the complexities of billing and highlights Shelbey's innovative solutions, whether it's managing billing processes entirely or enhancing existing practices through consulting. Anne and Shelbey further explore the dynamic role of patient advocacy, painting a vivid picture of the future Shelbey envisions for her program. With a keen focus on patient-centered care, Shelbey underscores the importance of implementing efficient systems to boost both financial transparency and patient satisfaction. Her efforts as a "dental detective" bridge the often daunting gaps between patients and practitioners, offering independent, unbiased guidance to better navigate the field's intricate billing challenges. What You'll Learn in This Episode: The journey and motivation behind Shelbey Arevalo's Patient Advocate program. Challenges in dental billing and Shelbey's innovative solutions. The significance of financial transparency in patient-centered care. How patient advocacy is shaping the future of dental practices. The role and benefits of an independent resource in navigating billing issues. Insights into establishing systems for financial efficiency and patient satisfaction. Join Anne and Shelbey for an eye-opening discussion on improving your dental billing and patient care! Learn More About Shelbey Arevalo Here! Website: elitedentalservices.net Instagram: instagram.com/elitedentalservices101 LinkedIn: linkedin.com/in/elitedentalservices101 Don't Forget to Sign Up for the Next DeW Retreat! 7th Annual DeW Life Retreat November 13-15, 2025 Charlotte, NC Want to get more involved? Join our membership and community below for exclusive perks! Join the DeW Life movement by becoming a member using this link.Join the Dental Entrepreneur movement by becoming a member using this link.Read the most recent edition of DeW Life Magazine here.Just DeW It Podcast is the official podcast of Dental Entrepreneur Women (DeW), founded by Anne Duffy, RDH. The mission of DeW is to inspire, highlight, empower, and connect all women in dentistry. To join the movement or to learn more, please visit dew.life. Together, we can DeW amazing things! References: Events/Communities: DeW Retreat 2025 Publications: Shelbey on Dente Magazine Organizations: Patient Advocate Program BCPA (Board Certified Patient Advocate) National Dental Advocacy Program

TRIGGER/CONTENT WARNING: eating disorders, weightDina dishes with Quinn Haisley (they/she), a non-binary, queer, and neurodivergent eating disorder dietitian who shares her expertise in working with LGBTQ+ and neurodivergent populations.After originally majoring in philosophy for their undergrad degree, Quinn chose to shift gears and returned to school to study nutrition, receiving an associate's degree from LaGuardia Community College and an MS from New York University, where they also completed their dietetic internship.Quinn started working in the eating disorder field 5 years ago and now works full-time at their own private practice. Quinn is passionate about breaking out of the cookie-cutter eating disorder treatment model and bringing social justice into ED recovery.Learn more about Quinn at www.practiceerosnutrition.com and https://www.instagram.com/practice_eros_nutrition/.----Check out our podcast in video format on DishWithDinaTV: https://www.youtube.com/user/DishWithDina?sub_confirmation=1Join our mailing list to stay connected, stay informed, receive exclusive offers, and be a part of the DishWithDina community: ⁠https://forms.gle/932HAWCu1r42dPCo9If you enjoyed this podcast, please subscribe, leave a review, and share it with others! You can also submit listener feedback or request to be a guest on a future episode by completing this form: ⁠https://forms.gle/EFYX7Gshbjx9cCKfA----DISCLAIMER: The purpose of this podcast is to entertain, educate, and inform, but it is not to be taken as medical advice. Please seek prompt, qualified medical care for any specific health issues and consult your physician or health practitioner before starting a new fitness regimen, herbal therapy, or other self-directed treatment.

Next Monday, the 20th of May is International Clinical Trials Day. To mark the day, Cancer Trials Ireland will host a public webinar on cancer trials (1pm-1.45pm). To find out more, Alan Morrissey was joined by Clare based Patient Advocate, Seamus Cotter and Cancer Trials Ireland, Vice Clinical Lead, Prof. Gerry Hanna. Photo(C): https://www.facebook.com/photo/?fbid=551146093890062&set=a.551146067223398

Hetlena Johnson is a Patient Advocate, Author, Community Organizer, Retired Educator and Lupus Warrior. She is devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life's challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.

HSE MidWest's Patient Advocate says he's shocked and concerned over the continued lack of access to cancer medicines here. A new report from the Irish Pharmaceutical Healthcare Association shows that just 25% of new cancer medicines are available in Ireland, the second-lowest rate in Europe. Of the 56 oncology medicines licensed by the European Medicines Agency since 2020, just 14 are available here. Lahinch-based Healthcare Campaigner John Wall who's living with Prostate Cancer and has been forced to travelled abroad for treatment has been telling Clare FM's Daragh Dolan that patient outcomes are suffering as a result.

In this MM+M Fast Break, Managing Editor Jack O'Brien talks with actress and MS patient advocate Selma Blair about her awareness work, what medical marketers need to know about working with celebrity ambassadors and how media is impacting the spread of health information. Check us out at: mmm-online.com Follow us: YouTube: @MMM-onlineTikTok: @MMMnewsInstagram: @MMMnewsonlineTwitter/X: @MMMnewsLinkedIn: MM+M To read more of the most timely, balanced and original reporting in medical marketing, subscribe here.

Amid the trees of County Clare, a living memorial has taken shape: The Forest That Won't Forget, which has been created in tribute to the women and families affected by the cervical check failures.Joining Kieran to discuss this memorial and why the 221+ group commissioned it is Lyn Fenton, Patient Advocate with 221+ Group and John Conway, Visual Artist and Co-Collaborator on the Forest that Won't Forget with Fiona Whelan.Image: 221+

As AI becomes a more integrated part of our daily lives, it is vital that we consider all stakeholder perspectives to enable us to better foster collaboration for effective AI integration in scientific publishing. In this episode we will explore AI's transformative impact on the creation and dissemination of scientific content, addressing the real-world challenges and diverse perspectives needed to harness its full potential. By considering the opportunities and barriers  (real and perceived) to AI adoption, we can distinguish how these challenges vary among stakeholders from a pharma, publisher, and patient advocate perspective. . Joining us for this conversation is Stephen Griffiths, Publications Head at GSK; Stephanie Preuss, Director of Content Innovation at Springer Nature; and Stephen Rowley, Patient Advocate and Director at Artension.To join ISMPP, visit our website at https://www.ismpp.org/ This episode is generously sponsored by Avalere Health.

This episode explores the evolution of a pediatric Patient Experience. Dive into core values, shared ownership, and practical strategies for building trust, driving change, and creating meaningful experiences for children, families, and staff.

Driven by her own daughter's diagnosis of 33 food allergies, Sherrina Gibson is passionate about food allergy inclusion. Founder and CEO of Carter Consulting, Sherrina brings a community-first, evidence-based approach to everything she does whether she's helping clinics tell their story through data or advancing food allergy awareness at the systems level. In this episode, Sherrina shares more about her impactful work and provides details on Feeding Allergy Awareness RVA, an upcoming event bringing together education and collaborative solutions for support in the food allergy community. Listen now and join us at the event in Richmond on May 15!Sherrina Gibson is the Founder and CEO of Carter Consulting, a nationwide firm that helps health organizations use data to drive equity and impact. Her passion is advancing food allergy inclusion in public health research, quality improvement, and within community organizations, inspired by her daughter's journey with multiple food allergies and asthma. Whether she's helping clinics tell their story through data or advancing food allergy awareness at the systems level, Sherrina brings a community-first, evidence-based approach to everything she does.To register for Feeding Allergy Awareness RVA (5/15/25) visit: https://www.wric.com/calendar/?_escaped_fragment_=/show?start=2023-10-25#!/details/feeding-community-health-rva-solutions-for-food-allergies/15433146/2025-05-15T09To learn more about Richmond Food Allergy Support visit: https://www.facebook.com/groups/375242322502115/?locale=zh_CN

Antibody-drug conjugates (ADCs) are novel therapeutic agents designed to target specific tumor markers with potent anticancer drugs. The Association of Cancer Care Centers (ACCC) is dedicated to providing up-to-date information on ADC treatment management. In this episode, CANCER BUZZ speaks with Nancy Mallett, a patient advocate, to discuss the patient's perspective and experience receiving treatment for gynecologic cancers, particularly with ADCs such as mirvetuximab soravtansine-gynx. “[Providers] giving me the information and allowing us to decide together, instead of just telling me, makes me feel more cared about and that I'm not just a number, I'm a person. They care about what I think, and look at my life and what it can do for me.” – Nancy Mallett   Nancy Mallett Patient Advocate   Resources:  FDA Approval Summary: Mirvetuximab soravtansine-gynx for FRα-positive, Platinum-Resistant Ovarian Cancer - https://bit.ly/4is00nD  Society of Gynecologic Oncology (SGO): Gynecologic Cancer Resources for Patients and Their Families - https://bit.ly/4jpYaoP  ASCO: Antibody-Drug Conjugates in Gynecologic Cancer - https://bit.ly/42GP5k8  Society of Gynecologic Oncology Journal Club: The ABCs of ADCs (Antibody drug Conjugates) - https://bit.ly/42U2962  Antibody-Drug Conjugates in Gynecologic Cancers - https://bit.ly/4cLYECZ    Funder Statement  This program is supported by AbbVie.   

In this special episode, host Melissa Berry is joined by Harjeet Kaur, a Stage 4 cancer survivor, patient advocate, speaker, influencer, and founder of Chai and Hope, a support community for South Asian cancer patients. Harjeet is dedicated to breaking the stigma around cancer, fertility loss, and hair loss due to treatment—especially within the South Asian community. After her cancer diagnosis and stem cell transplant, Harjeet turned her pain into purpose by breaking down barriers within her own family. While she received love and support, the topic of cancer was never discussed. Harjeet found a way to open up that conversation with her own family and now helps others do the same. We explore the emotional and familial challenges of fertility and hair loss—issues deeply significant in South Asian culture—and how Harjeet overcame these obstacles. She shares how founding Chai and Hope has created a supportive space for South Asian cancer patients. This conversation is about breaking stigma, overcoming family barriers, and finding strength through shared stories.  

00:00:00 - Surf's Up: Season 6 Episode 3Surfing the MASH Tsunami continues its coverage of the AASLD Emerging Trends Conference on MASLD, MetALD and ALD. This week, the panelists focus on what studies on bariatric surgery and drugs in development can tell us about future treatment and explore some clinical trial questions. Our newsmaker, HistoIndex Director of Clinical Development Yukti Choudhury, introduces us to FibroSIGHT, which provides clinicians with highly precise biopsy analysis. Finally, our expert, Global Liver Institute Vice President, Liver Programs Jeff McIntyre, discusses the implications of recent US government job cuts on future MASH treatment options and patient care.00:04:35 - IntroductionHost Roger Green briefly describes this episode's three sections and one key lesson from each.00:05:45 - Roundtable: Highlights from the AASLD Emerging Trends Conference, Part 3This portion of our Emerging Trends Conference Roundtable looks at how therapy might evolve over time. Aleksander Krag starts by discussing a presentation on what we can learn from bariatric surgery in terms of fibrosis reduction and why pharmacotherapies work (or not). He envisions a day where we have multiple treatment options and understanding how each works for specific types of patients, leading to robust, cost-effective, patient-specific treatment algorithms.  Alex Lalos describes how presentations on FGF-21s in advanced fibrosis and cirrhosis have whetted his appetite and Jenn Jones asks questions regarding ALD patient trial selection and assignment and clinical endpoints for cirrhosis trials. 00:16:55 - Newsmakers: FibroSIGHT Brings Clinical Trial Analytics to Clinical Practice Use of BiopsyYukti Choudhury, Director of Clinical Development at HistoIndex, joins Roger Green to discuss FibroSIGHT, a new HistoIndex service that allows clinicians to use HistoIndex's Second Harmonic Generation (SHG) technology to determine specific CRN fibrosis level for patients with inconclusive NIT results.  Yukti states that demand for this technique could equal 163,000 cases this year and rising to one million by 2028. She provides practical cues on ordering the test and its reimbursement. Roger shares his long-standing respect for SHG and the clarity it produces. He notes the economic benefit of determining whether a patient has F2 fibrosis, which is indicated for pharmacotherapy, vs.F1, which is not indicated. He sees clear benefit, but expresses concern that any option requiring more biopsies will reduce the number of patients treated.00:41:49 - Patient Advocate and Policy Expert Jeff McIntyre Discusses the Implications of FA/NIH Job Cuts on MASLD Patient CareGlobal Liver Institute Vice President, Liver Programs Jeff McIntyre joins Roger to discuss the April 1 job reductions at the FDA, explore implications for the entire MASLD community, and to ask what patients can and should do. Jeff and Roger note that the job changes will create significant uncertainty and probably reduce the government's ability to respond to future health crises. Jeff notes former FDA Commissioner Rob Califf's comment that the FDA as we know it "is dead," and that we have little idea what the future holds. According to Jeff, patients need to become even more vigilant self-advocates and also seek the guidance and support they need from patient advocacies. Finally, the conversation turns to discuss FibroSIGHT. Jeff describes FibroSIGHT as "exactly where we should be and should not be at the same time," a technology that takes a large step forward in understanding and patient support, but one that ties us to biopsy as a standard for clinical care. Jeff and Roger agree this issue will play out over the coming years. 01:09:18 - Business ReportRoger thanks listeners quoting a letter from one of them, and describes the next round of episodes. 

As the Director of Business Development at Cottonwood Tucson, Musomi McDowell brings over 25 years of experience in multi-level leadership. He started his career at Cottonwood Tucson in the year 2000 as a Mental Health Tech. He then became a Milieu Manager and was promoted to a Patient Advocate. The rest of his tenure has been in Marketing and Business Development. He possesses a distinctive ability to cultivate enduring professional relationships while forging strategic new partnerships. His deep understanding of ethical principles, combined with advanced sales expertise, enables him to effectively address the evolving needs of both clients and the industry. Musomi is widely recognized for his integrity and professionalism, earning a distinguished reputation both nationally and internationally. His sincerity, industry acumen, and comprehensive knowledge of clinical issues, treatment modalities, and levels of care make him a trusted resource for referents and treatment programs alike. His philosophy on client care is encapsulated in the following statement: "I am a passionate advocate for quality care, and Cottonwood Tucson exemplifies this commitment at every level. Through a client-centered treatment approach, Cottonwood Tucson provides a nurturing and secure environment where individuals can embark on a transformative healing journey, equipping them with the necessary tools to navigate life with resilience and clarity."

In this episode of Fertility Village Live, hosts Erin and Marissa sit down with a powerhouse panel of endo warriors for Endometriosis Awareness Month, to discuss the realities of living with endometriosis and how it impacts fertility. Joining the conversation are:

Dr. Hoffman continues his conversation with Dr. Julie Siemers, a nurse educator and author of “Surviving Your Hospital Stay: A Nurse Educator's Guide to Staying Safe and Living to Tell About It.” 

Dr. Julie Siemers, a nurse educator and author of “Surviving Your Hospital Stay: A Nurse Educator's Guide to Staying Safe and Living to Tell About It,” details the importance of patient safety in hospitals, the dangers of medical errors, and how patients and their families can advocate for better care. Dr. Siemers talks about the critical role of nurses, the hierarchy within the nursing profession, and the importance of effective communication between healthcare providers and patients. She also offers practical advice on dealing with high-risk medications, leveraging AI in healthcare, and ensuring better health outcomes by being informed and proactive.

While hair transplant services are well known, beard transplants are now on the rise too. But, how do they work, and should we be wary?Joining Seán to discuss is Spencer Stephenson, a Patient Advocate in the hair transplant industry…

Rhonda Nelson, renowned patient advocate, author, speaker and philanthropist is a beacon of resilience and strength. Her charitable work spans championing equitable access to affordable healthcare, supporting those diagnosed with AERD (Aspirin Exacerbated Respiratory Disease), serving as a voice in the foster care system and encouraging women to reinvent themselves in their different stages of life. Rhonda serves on the Executive Board of Directors with the Asthma & Allergy Network, impacts legislation and speaks nationally, raising awareness for AERD. Having dealt with AERD (Aspirin Exacerbated Respiratory Disease) herself for more than twenty years, she has experienced many misdiagnoses, a near fatal struggle to find relief, a desperate search for answers and a constant journey to access proper support. Rhonda and her husband Wayne, of the Little River Band tirelessly devote their time and resources to helping others to navigate this challenging medical journey frequently associated with severe respiratory disease. Rhonda is a firm believer in empowering women to pursue the dreams they have for their lives, regardless of age, while finding strength in overcoming challenges. In her book, "A Different Life,” Rhonda not only pulls back the curtain on celebrity life, but also offers readers the chance to hear never-before-told stories, enjoy treasured family recipes and photos all while getting a taste of all things pertaining to life on the road.

Dr. Eithan Haim is the surgeon who blew the whistle on a Texas hospital's use of trans treatments on minors - and subsequently faced an intense, years-long criminal investigation from the Biden DOJ. Chloe Cole is a former trans kid and Patient Advocate for the nonprofit Do No Harm, which fights to protect minors from gender transition procedures.   They joined Rep. Crenshaw on March 12th for DeTrans Awareness Day and the reintroduction of Rep. Crenshaw's bill to ban federal funding for children's hospitals that perform gender transition procedures on minors. Dr. Haim tells the story of his persecution by the Biden DOJ and the medical malpractice being committed by some pro-trans doctors and hospitals. Chloe exposes the dark reality of how kids are manipulated by social media and unethical doctors into undergoing irreversible procedures. They also discuss the impact of President Trump's executive orders and the upcoming legal/legislative battles to protect minors from these harmful procedures.   Follow Chloe on X at @ChoooCole and Dr. Haim at @EithanHaim.

Feeling overwhelmed by a recent diagnosis? Lost in medical information? Struggling with the emotional ups and downs of cancer? Navigating this journey can be confusingand frightening. You can regain control, find strength, and confidently manage your cancer path! Please join us next week for an engaging discussion on Episode 496 of Marketing with Russ…aka #RussSelfieMarch 6, Thursday, 8am PacificFeaturing Talaya Dendy Meet Talaya, a Cancer Doula. As a Wellness Coach and Patient Advocate with Mental Health First Aid training, she offers compassionate support to those affected by cancer. Talaya also helps individuals build sustainable habits for long-termwell-being as a Calming Health and Wellness Coach. Connect with Talaya:LinkedIn:  linkedin.com/in/talayadendyWebsite: ontheotherside.lifeEmail:  talaya@ontheotherside.life Connect with Me:Website: https://www.russhedge.comEmail: Russ@russhedge.com #holistichealth #wellness #cancersupport #InspirationSpecialist #inspiration #Marketing

Dr. Lawren Honken is a wife, mom of 3, and a board certified Obstetrician-Gynecologist currently practicing in the Southeastern US. She is also a Certified Menopause Practitioner and is completing a fellowship in Integrative Health. She serves her patients as a trusted resource, providing medical education online while advocating for patient autonomy and informed consent. Her goal is to simplify difficult concepts in women's health and for those interacting with her online to feel they have a friend who is also an Ob/Gyn.She provides so much helpful information in today's episode on women's health and how to advocate for yourself in the healthcare industry. If you like today's episode, be sure to follow her on instagram, @yourfriendtheobgyn, and share the episode with someone who could learn from her!Thank you to HxH Podcast Sponsor, A Ranger Paints. Podcast listeners can get 10% off their purchase using code "HXH10"!Follow Haven on Instagram @healthbyhaven for more health and wellness content! 

I'm sharing four health trends I saw in 2024 that I'll be talking a lot more about now that I'm back from maternity leave plus some personal updates and announcements! Make sure we're connected https://getwellbe.com/subscribe/ and https://www.instagram.com/getwellbe/ 

Rhonda Nelson, renowned patient advocate, author, speaker and philanthropist is a beacon of resilience and strength. Her charitable work spans championing equitable access to affordable healthcare, supporting those diagnosed with AERD (Aspirin Exacerbated Respiratory Disease), serving as a voice in the foster care system and encouraging women to reinvent themselves in their different stages of life. Rhonda serves on the Executive Board of Directors with the Asthma & Allergy Network, impacts legislation and speaks nationally, raising awareness for AERD. Having dealt with AERD (Aspirin Exacerbated Respiratory Disease) herself for more than twenty years, she has experienced many misdiagnoses, a near fatal struggle to find relief, a desperate search for answers and a constant journey to access proper support. Rhonda and her husband Wayne, of the Little River Band (most popular during the 1970s and still touring) tirelessly devote their time and resources to helping others to navigate this challenging medical journey frequently associated with severe respiratory disease. Rhonda is a firm believer in empowering women to pursue the dreams they have for their lives, regardless of age, while finding strength in overcoming challenges. In her book, A Different Life, Rhonda not only pulls back the curtain on celebrity life, but also offers readers the chance to hear never-before-told stories, enjoy treasured family recipes and photos all while getting a taste of all things pertaining to life on the road. In this episode, Rhonda talks about her survival story, becoming your best self during your midlife years and being your best self while facing a chronic illness. She joins us from her home in Tennessee. Learn more and follow Rhonda: https://www.instagram.com/rhondabnelson/ https://rhondabnelson.com/ https://www.facebook.com/rhondabassnelson/

So many women today are coming to me in perimenopause…they have been to their doctor and told that their blood work is fine when they aren't feeling that way, they have been dismissed, offered birth control pills and anti depressants, they have been refused hormone testing, and HRT. This has left women suffering and feeling dismissed, gas lit even and hopeless.   In this exclusive expert interview with Dr. Jaime Hope, you will get real tips and strategies on how women can best advocate for their health with their health care practitioners in perimenopause and always.   Dr. Jaime Hope is a dual-board certified Attending Physician, Assistant Professor, Patient Advocate, keynote speaker, best-selling author, and passionate educator that helps people navigate the health care system to optimize their results   Tune In To Learn:   Why feeling dismissed by your doctor is not in your head Why you may get normal labs from your doctor but still not feel fine 4 simple steps to make sure you get the health care that you deserve   Learn more from Dr. Hope Here:   Website: www.drhopehealth.com Insta: https://www.instagram.com/dr.hopehealth/     SCHEDULE A FREE 30 MINUTE CONSULTATION TO DISCUSS YOUR HORMONE AND HEALTH NEEDS NOW  

Achieving work-life balance is essential for overall well-being, especially in healthcare. Join us as Robert Cote, a patient advocate for the VA, shares his personal journey through imbalance and the steps he took to restore stability. Discover the warning signs, practical strategies for self-care, and the importance of setting boundaries. Cote's powerful message reminds us: caring for yourself is the first step in being there for others.

Award-winning author, speaker, Gestalt Practitioner (a form of holistic, non-traditional coaching/guiding), and Patient Advocate, Risa August has been living with a pituitary tumor and rare disease for more than a decade. Risa shares her insights and perspectives on stage, offering words of inspiration to audiences. Additionally, Risa works one-on-one with clients, guiding them through the many roadblocks of life and toward living more fully inspired. Risa's book, The Road Unpaved: Border to Border with a Brain Tumor and a Bike, describes her soul-healing journey riding her bike from Canada to Mexico. She currently is working on the screenplay adaptation of the book. A girl with sparkles in her hair and once an Ironman athlete, Risa still has a passion for her bike and barbells. With her genuine curiosity and love for trying new (and old) things, you may find Risa taking Bollywood or Hip-Hop dance lessons, trying a silks aerialist or boxing class, going indoor skydiving, and guiding inspirational workshops in creativity. Through her personal transformation, following brain surgery and radiation, Risa has learned and practiced removing limiting beliefs, shifting her perspective, and embracing an expansive life…a life unleashed. Having survived brain surgery, Risa says: "I believe anything is possible. I believe in miracles. I believe we each hold the power to heal." Learn more: www.risaaugust.com www.instagram.com/risaunleashed/  www.facebook.com/risaunleashed www.facebook.com/featherandsagecoaching/  www.facebook.com/risa.august.unleashed/ www.linkedin.com/in/risa-august-9b130524a https://linktr.ee/risaaugust https://substack.com/@risaunleashed

Vasculitis is a rare condition that constricts blood vessels and can lead to loss of function or degeneration of certain parts of the body.In the case of Jayne Hardman, the disorder took her nose, but as she puts it, she now has several to choose from.Jayne Hardman is Patient Advocate for Vasculitis UK and joins Seán to discuss.

On this episode, we welcome Brianna Henderson, the founder and CEO of the nonprofit Let's Talk PPCM and a certified patient family partner, patient advocate, doula, and a bestselling author.On this episode, you will hear:- Brianna's journey: from misdiagnosis to advocacy- understanding postpartum cardiomyopathy- the impact of family history on health- navigating healthcare challenges- the birth of Let's Talk PPCM- survivor's guilt and advocacy- empowering moms with knowledge If you suspect you may be experiencing PPCM, you can request a BNP blood test from your obstetrician or your midwife.If you are experiencing these symptoms during pregnancy or postpartum, please talk with your doctor to make sure these are not early signs of PPCM:- rapid heartbeat palpitations- nagging cough- heavy chest pains- excessive swelling specifically of the legs and feet- excessive fatigue or tiredness during physical activities- shortness of breath- increased urinationResources:LetsTalkPPCM.orgYou can find Brianna and her Let's Talk PPCM community on Instagram:@letstalkppcm@letstalkppcm_ceoGuest Bio:Brianna Henderson is the Founder and CEO of the Lets TalkPPCM nonprofit organization, a Certified Patient-Family Partner, Patient Advocate, Doula, and Best Selling Author. She is also a loving wife and mother of two children. She was deeply inspired to provide comprehensive prenatal and preventative education after surviving a missed diagnosis during her pregnancy and postpartum season. After recovering from her pregnancy-induced health condition and learning what took her sister's life, Brianna dedicates her time to ensuring that mothers and families are informed during the perinatal year. She fulfills her hearts' mission through professional doula support andher non-profit organization.For more birth trauma content and a community full of love and support, head to my Instagram at @thebirthtrauma_mama.Learn more about the support and services I offer through The Birth Trauma Mama Therapy & Support Services.

An interim report on HIQA's review examining the case for a second emergency department in the Midwest is expected within the next three to four weeks. Public consultation opened last month on the independent statutory review for which the ultimate findings are due this summer. It comes as overcrowding has spiralled once again at University Hospital Limerick with 138 waiting for a bed at the facility this morning according to the Irish Nurses and Midwives Organisation. Lahinch-based Patient Advocate on HSE Midwest's Programme Improvement Board John Wall has been telling Clare FM's Seán Lyons he believes when it comes to the prospect of a second ED in this region, it's a question of when, not if.

In this episode, Dr. Paul Wheatley-Price sits down with Tim Monds, Founder of Give A Breath 5K and Patient Advocate living with Stage 4 Lung Cancer. They talk about how Tim's personal journey with lung cancer inspired him to start the Give A Breath 5K walk/run in 2019, which has raised over $500,000 to date for support and research initiatives for those living with lung cancer, and now including the inaugural Give A Breath Research Award. Two awards of $25,000 each are available in support of advancements for patients with advanced or metastatic (i.e., stage III or IV) lung cancer; specifically, initiatives that apply to those beyond first-line therapy. Applications are now open for the Give a Breath Research Award until January 31, 2025. For more details on how to apply, visit https://lungcancercanada.ca/about-us/research-program/give-a-breath-research-award/

AN OATH AND PLEDGE PODCAST RESHARE! John Page - Military2VA (M2VA) Transition Patient Advocate with the TN Valley Healthcare System/Dept. of Veterans Affairs joins veterans Josh Roe and John Ballinger in studio to talk about how the local VA can/does help veterans transition back into civilian life! Plus - mental health - why he joined the military - stories around deployment and bootcamp - how to connect with fellow veterans - and more! ALSO - a very honest and transparent story and ending to our podcast! This was a very good conversation and I think much needed - worth a listen and share! A podcast centered around our soldiers, veterans, and the civilians they protect! Through conversations, questions, and stories - we will address topics like healthcare, lessons learned, relationships, combat, the transition out of the military, and more! Our veterans take an oath - we say a pledge - what does that mean and why are they important?! === THANK YOU TO OUR SPONSORS: Vascular Institute of Chattanooga: https://www.vascularinstituteofchattanooga.com/ The Barn Nursery: https://www.barnnursery.com/ Optimize U Chattanooga: https://optimizeunow.com/chattanooga/ Guardian Investment Advisors: https://giaplantoday.com/ Alchemy Medspa and Wellness Center: http://www.alchemychattanooga.com/ Chattanooga Concrete: www.chattanoogaconcreteco.com Roofingco.com: www.roofingco.com ALL THINGS JEFF STYLES: www.thejeffstyles.com Please consider leaving us a review on Apple and giving us a share to your friends! This podcast is powered by ZenCast.fm

This episode of the DiepCJourney podcast is our final edition in 2024. I share a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story. Marie Ennis O'Connor is well known for “Journeying Beyond Breast Cancer” a platform where she gathers writers and bloggers sharing their stories across social media platforms. Her journey in patient advocacy began twenty years ago with a diagnosis of breast cancer. Marie poignantly tells us in the interview that, "We find when we are diagnosed with a serious illness, something is missing. We look around and see who can fix this. I discovered the person who could fix it was me." Sue Robins , whose patient experience started with a breast cancer diagnosis, has focused her healthcare advocacy based on her son, Erin's down syndrome. Like Marie, her healthcare advocacy began about twenty years ago. She is a Senior Partner and Patient Consultant at Bird Comm. I call them both my friends and they grace us with rich information in the realm of storytelling and patient engagement. We take a deep dive and share firsthand experiences, good and bad, about conference attendance, invitations to speak, and how important we feel it is to pass on the wisdom we have learned to the next generation of advocates. We are filled with nostalgic hope of meeting in person some day in Ireland, Marie's home country, on the Wild Atlantic Way, the western side of Ireland. It was my favorite area when I visited there in the fall of 2023 and was able to meet Marie in person in Dublin. Enjoy the final 2024 episode and I look forward to seeing you on the DiepCJourney podcast in 2025 with more exciting guests and topics!!  Connect with Marie across these platforms: LinkedIn: https://www.linkedin.com/in/marieennisoconnor/ Facebook: https://www.facebook.com/beyondbreastcancer Instagram: https://www.instagram.com/marie_ennis_oconnor/ Connect with Sue across these platforms: LinkedIn: https://www.linkedin.com/in/sue--6609147/ Facebook: https://www.facebook.com/sue.squawk.9 Instagram: https://www.instagram.com/suework/ Books: Birds Eye View and Ducks in a Row          

Amanda Lee was a passionate wedding photographer whose business was booming - that is, until, February 2020. Covid canceled her job and income, and to make matters worse, severe stomach pain was preventing her from eating (and pooping). When she finally got an appointment to see a doctor at the height of the pandemic, instead of offering scans or tests, he said it was "a blessing" that she hasn't eaten solid food in weeks, since she could stand to lose a few pounds. Distraught and in tears, she turned to TikTok to vent her frustration, then went to bed. She woke up to THOUSANDS of women in the comments, sharing similar stories dismissal and fat-shaming. They also urged her to get a colonoscopy ASAP. Turns out, a massive tumor was blocking her colon, and she immediately started treatment for Stage 3 cancer. Amanda's extraordinary story about our broken healthcare system and the power of women supporting each other on the Internet has garnered her a huge following on TikTok and Instagram, and media appearances on The Today Show and other outlets. She joins Matt to discuss how TikTok comments *literally* saved her life, fighting cancer with no income, her mom and friends who stood by her side, her innovative work with brands, and her new life's work as a patient advocate for women who need allies in the doctor's office. Follow Amanda: https://www.tiktok.com/@mandapaints https://www.instagram.com/mandapaints/ This show is made possible by listener support: https://www.patreon.com/influencepod Listen & subscribe wherever you get podcasts:

Phantom Electric Ghost Podcast With Ray Hartjen: Writer, Musician & Cancer Patient Advocate Positive and Growth Mindsets Ray Hartjen is a writer and musician who lives in Mission Viejo, California. In a professional career that has spanned parts of five decades, Ray has pivoted on many occasions, from investment banking to pharmaceuticals, from consumer electronics to SaaS software. One constant throughout his career path, however, has been storytelling. In the past, Ray has been a frequent source for quotes from the national media on both the consumer electronics and retail industries. Additionally, as a contributor to a number of online outlets and platforms, including his rayhartjen.com site, he has spun his fair share of yarn on topics as far ranging as sports — primarily football, hockey and auto racing — and business, particularly revenue team functions like sales and marketing. Ray's previous work includes being the coauthor of Immaculate: How the Steelers Saved Pittsburgh (December 2022) and the author of Me, Myself & My Multiple Myeloma (May 2024), both published by Morgan James Publishing and available at all major booksellers. His third book, The Indy 500: A Year-Long Quest to Win the Greatest Spectacle in Racing, will drop at booksellers on May 6, 2025. Diagnosed with multiple myeloma in March of 2019, Ray is a cancer fighter every day of the week that ends in a ‘y.' And, with the soundtrack of life playing continuously in his head, Ray also performs and records with his two-piece acoustic band, the Chronic Padres.  A native of Texas, Ray holds an undergraduate degree from Eastern Kentucky University and an MBA from the University of Washington. Link: https://rayhartjen.com/ Donate to support PEG free artist interviews: PayPalMe link Any contribution is appreciated: https://www.paypal.com/paypalme/PhantomElectric?locale.x=en_US Support PEG by checking out our Sponsors: Download and use Newsly for free now from www.newsly.me or from the link in the description, and use promo code “GHOST” and receive a 1-month free premium subscription. The best tool for getting podcast guests:  Podmatch.com https://podmatch.com/signup/phantomelectricghost Subscribe to our Instagram for exclusive content: https://www.instagram.com/expansive_sound_experiments/ Donate to support PEG free artist interviews: Subscribe to our YouTube  https://youtube.com/@phantomelectricghost?si=rEyT56WQvDsAoRpr PEG uses StreamYard.com for our live podcasts https://streamyard.com/pal/c/6290085463457792 Get $10.00 Credit for using StreamYard.com when you sign up with our link RSS https://anchor.fm/s/3b31908/podcast/rss

Grace Cordovano is an expert healthcare navigating solutionist and award winning, board-certified patient advocate, and Grace Vinton is an account director at Amendola, Patient Advocate, and the host of Like a Girl Media's Podcast "HITea With Grace”. In this discussion, recorded at Digital Health and AI Summit in Boston, they discussed AI use cases for improved patient experience in healthcare, how patients already use AI, and more.  Read the summary of the event in our newsletter: https://fodh.substack.com/p/ai-digital-health-pharma Key points:  AI can significantly reduce the administrative burden on patients, especially those managing chronic conditions, caregiving responsibilities, or complex medical records. Patients are using tools like ChatGPT to prepare for medical appointments by generating lists of questions and organizing medical records. AI can assist with translating complex medical information into more understandable language. Patient advocates emphasized the importance of involving patients in the design and implementation of AI in healthcare, ensuring tools cater to different types of patients (e.g., those with terminal illnesses, multiple comorbidities, etc.). It is critical for healthcare companies to involve diverse patient voices throughout the development of AI tools and offer fair compensation to prevent bias. The healthcare industry needs to improve digital literacy among patients, ensuring they understand how to use AI tools effectively and responsibly. Resources like the Patients Included Charter and organizations like the Light Collective and Savvy Coop were highlighted as valuable for patient education and advocacy. Advice for Patients on Using AI: 1. Start with Questions 2. Refine Prompts 3. Check for Errors 4. Be mindful of security and data privacy https://www.facesofdigitalhealth.com/

On today’s episode, I am speaking with Allison Rosen, a 12-year early-age onset colorectal cancer…

There are over 7000 rare diseases identified in the U.S. alone. Many of these diseases affect children, leaving families desperate for answers. In this episode, we talk with one of those families and the biotech company offering them new hope. We also talk with an expert on policy that has jump-started R&D for rare diseases.Follow us on LinkedIn, X, Facebook and Instagram. Visit us at https://www.bio.org/

John Page - Military2VA (M2VA) Transition Patient Advocate with the TN Valley Healthcare System/Dept. of Veterans Affairs joins veterans Josh Roe and John Ballinger in studio to talk about how the local VA can/does help veterans transition back into civilian life! Plus - mental health - why he joined the military - stories around deployment and bootcamp - how to connect with fellow veterans - and more! ALSO - a very honest and transparent story and ending to our podcast! This was a very good conversation and I think much needed - worth a listen and share! Listen to all our podcasts: www.oathandpledge.com A podcast centered around our soldiers, veterans, and the civilians they protect! Through conversations, questions, and stories - we will address topics like healthcare, lessons learned, relationships, combat, the transition out of the military, and more! Our veterans take an oath - we say a pledge - what does that mean and why are they important?! Please consider leaving us a review on Apple and giving us a share to your friends! This podcast is powered by ZenCast.fm