Podcasts about friedreich's ataxia

  • 5PODCASTS
  • 29EPISODES
  • 24mAVG DURATION
  • ?INFREQUENT EPISODES
  • May 7, 2020LATEST

POPULARITY

20172018201920202021202220232024

Related Topics:

watches

Best podcasts about friedreich's ataxia

Latest podcast episodes about friedreich's ataxia

Film Pulse
Ryan Watches Hardcore Henry

Film Pulse

Play Episode Listen Later May 7, 2020 27:21


Ryan wanted some more action this week, so we gave him 2015's FPS movie Hardcore Henry. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

watches fps hardcore henry friedreich's ataxia
Film Pulse
Ryan Watches MacGruber

Film Pulse

Play Episode Listen Later Apr 30, 2020 22:42


First he wanted a comedy, then an action movie, and this week Ryan was in the market for an action comedy so Kevin and Adam gave him MacGruber. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

watches macgruber friedreich's ataxia
Film Pulse
Ryan Watches Train to Busan

Film Pulse

Play Episode Listen Later Apr 23, 2020 28:38


Ryan wanted some action this week so Adam and Kevin took a risk and gave him the Korean film Train to Busan. Will Ryan be able to get past the dreaded subtitles? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    April giveaway: Army of Shadows Criterion Collection Blu-ray - https://filmpulse.net/win-army-of-shadows-on-blu-ray/   web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches The Nice Guys

Film Pulse

Play Episode Listen Later Apr 17, 2020 23:09


Ryan wanted another comedy this week to get a reprieve from our depressing reality, so Adam and Kevin gave him 2017's The Nice Guys. He loved it. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

watches nice guys friedreich's ataxia
Film Pulse
Ryan Watches Logan Lucky

Film Pulse

Play Episode Listen Later Apr 9, 2020 21:19


Given the depressing climate we're currently living in, Ryan wanted something lighter this week, so Adam and Kevin had him watch Logan Lucky from 2017. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

watches logan lucky friedreich's ataxia
Film Pulse
Ryan Watches Dredd

Film Pulse

Play Episode Listen Later Apr 2, 2020 22:52


This week, we honored Ryan's request for some action by giving him 2012's Dredd, but did it scratch that action itch? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

watches dredd friedreich's ataxia
Film Pulse
Ryan Watches Free Fire

Film Pulse

Play Episode Listen Later Feb 20, 2020 20:34


Ryan was hankering for some action this week, so Adam and Kevin give him Ben Wheatley's 2016 film Free Fire, but is its blend of action and comedy something he was looking for? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Hounds of Love

Film Pulse

Play Episode Listen Later Feb 13, 2020 26:40


This week, Ryan want a dark and twisted international horror film so we gave him the Australian thriller Hounds of Love from 2016, but was this unnerving true crime nightmare dark enough for him? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure. web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Wetlands

Film Pulse

Play Episode Listen Later Jan 30, 2020 32:12


Ryan wanted a raunchy sex comedy this week, so Adam and Kevin gave him the raunchiest one they could think of- Wetlands. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.nettwitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches wetlands friedreich's ataxia
Film Pulse
Ryan Watches Brawl in Cell Block 99

Film Pulse

Play Episode Listen Later Jan 23, 2020 29:50


Ryan wanted some bloody action this week, so Adam and Kevin gave him the gritty crime thriller Brawl in Cell Block 99. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Star Wars: The Rise of Skywalker

Film Pulse

Play Episode Listen Later Jan 16, 2020 34:09


In this special episode, Adam and Kevin reveal a secret they've been keeping from Ryan all year and also talk about Ryan's opinions on Star Wars: The Rise of Skywalker. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Everybody Wants Some!!

Film Pulse

Play Episode Listen Later Dec 12, 2019 23:33


Ryan wanted a comedy this week, so Adam and Kevin gave him 2016's Everybody Wants Some!! To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Demolition Man

Film Pulse

Play Episode Listen Later Nov 21, 2019 27:08


Ryan wanted something sci-fi for this week so Adam and Kevin gave him Demolition Man from 1993. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches demolition man friedreich's ataxia
Film Pulse
Ryan Watches 3 From Hell

Film Pulse

Play Episode Listen Later Oct 31, 2019 27:05


Ryan wanted to get into the Halloween spirit and watch a horror movie this week so Adam and Kevin gave him Rob Zombie’s latest, 3 From Hell. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Booksmart

Film Pulse

Play Episode Listen Later Oct 10, 2019 19:34


Ryan wanted a comedy this week so we gave him Olivia Wilde's Booksmart from earlier this year. He loves Superbad, so will this teen comedy be a hit? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches booksmart superbad olivia wilde's booksmart friedreich's ataxia
Film Pulse
Ryan Watches Mad Max: Fury Road

Film Pulse

Play Episode Listen Later Aug 29, 2019 20:58


Ryan wanted some action this week, so Adam and Kevin gave him 2015's Mad Max: Fury Road but did he love it as much as they did? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches mad max fury road friedreich's ataxia
Film Pulse
Ryan Watches Never Goin' Back

Film Pulse

Play Episode Listen Later Aug 22, 2019 17:24


This week, Ryan requested a comedy so Adam and Kevin gave him Never Goin' Back from last year. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.      web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches goin friedreich's ataxia
Film Pulse
Ryan Watches Avengement

Film Pulse

Play Episode Listen Later Aug 8, 2019 20:42


Ryan wanted an action movie this week so Adam and Kevin gave him Avengement from earlier this year. Is this gritty crime thriller something he'll be into? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.     web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches avengement friedreich's ataxia
Film Pulse
Ryan Watches Hunt For The Wilderpeople

Film Pulse

Play Episode Listen Later Aug 1, 2019 18:48


Ryan loved Taika Waititi's What We Do in the Shadows, so when he asked for a comedy this week Adam and Kevin rolled the dice with another Waititi-directed film, Hunt for the Wilderpeople. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Film Pulse
Ryan Watches Upgrade

Film Pulse

Play Episode Listen Later Jul 25, 2019 25:03


Adam and Kevin give Ryan 2018's Upgrade this week, but did he like more than the sci-fi wheelchair tech? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

upgrade watches friedreich's ataxia
Film Pulse
Ryan Watches Fever Pitch (1997)

Film Pulse

Play Episode Listen Later Jun 27, 2019 26:40


Ryan was in the mood for a soccer movie this week, so Adam and Kevin gave him 1997's Fever Pitch in the hope it would quell his soccer fever. To learn more about Friedreich's Ataxia please visit: http://curefa.org Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches fever pitch friedreich's ataxia
Film Pulse
Ryan Watches Uncle Drew

Film Pulse

Play Episode Listen Later Jun 13, 2019 24:01


Ryan was looking for a comedy this week, so we gave him 2018's Uncle Drew in the hope he would have fun with this goofy basketball movie. To learn more about Friedreich's Ataxia please visit: http://curefa.org Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse   web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

watches uncle drew friedreich's ataxia
Film Pulse
Ryan Watches Revenge

Film Pulse

Play Episode Listen Later May 30, 2019 21:06


Ryan wanted some horror this week, so Adam and Kevin gave Ryan 2017's Revenge, but was the level of violence in lieu of scares good enough for him? Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse   To learn more about Friedreich's Ataxia please visit: http://curefa.org   web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

revenge watches friedreich's ataxia
Film Pulse
Ryan Watches Halloween (2018)

Film Pulse

Play Episode Listen Later May 23, 2019 17:30


Ryan wanted a slasher this week, so Adam and Kevin thought they picked a safe bet with 2018's Halloween, but Ryan's reception of the film came as a surprise. Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse To learn more about Friedreich's Ataxia please visit: http://curefa.org web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Mission Unstoppable
Kyle Bryant Rides for his Life, Riding for Freidreichs Ataxia

Mission Unstoppable

Play Episode Listen Later Mar 13, 2019 53:37


Kyle Bryant joins host Frankie Picasso on Mission Unstoppable Radio. Kyle Bryant was diagnosed with Friedreich's Ataxia, at 17, a life shortening illness that threatened to put this athlete in a wheel chair in his 20’s. Needing some control over his life, Kyle decided he would ride 2500 miles on his bike to raise money and awareness for his disease. Little did he know, he would really find himself.As the miles passed on by, Kyle Bryant made a huge self discovery, one that not only changed his own life, but impacts the lives of anyone who reads his brilliant memoir, Shifting into High Gear. You see, whether one is able bodied, have a rare disease like Kyle or face a hang nail, each of us has a choice about three things. 1. How we choose to define ourselves, 2. What limits we place on ourselves, and 3. How much of ourselves we are going to give back for the greater good!However, as time moved on, Kyle began to see that he was not in this disease by himself. That there were opportunities for him to build community and be an example for others despite the obstacles that lay before him, the FA community and their families Kyle chose to break free from self imposed limits and limited thinking. He allowed the definition of himself to expand even as his disease took away. some of his others see defeat. abilities. It is a courageous person who shows up to really Live live where

live shifting riding fa rides needing high gear ataxia frankie picasso kyle bryant shifting into high gear friedreich's ataxia mission unstoppable radio
PharmaTalkRadio
How FARA and Horizon Pharma Partnered to Improve Clinical Development

PharmaTalkRadio

Play Episode Listen Later Jun 22, 2018 34:00


Patients as Partners Day 2 Session How FARA and Horizon Pharma Partnered to Improve Clinical Development and Trial Design-Case Study This session will feature how the Friedreich’s Ataxia Research Foundation collaborated with Horizon Pharma on aspects of clinical development and trial design to better understand patients living with the disease and how to better develop medicine to help manage their disease. Key areas of discussion include how they collaborated on the following: • Focus groups to better understand drug administration • Clinical trial design to ensure feasibility and efficiency • Recruiting patients for clinical trials • Open discussion at FDA meetings Kyle Bryant Director of the Bicycle Ride Fundraiser, rideAtaxia for the Friedreich’s Ataxia Research Alliance (FARA)  Robert Metz SVP, Global Business Operations and External Affairs, Horizon Pharma

Patrick Lalley Show
Dan Brendtro and Peter Vitiello trying to save a life

Patrick Lalley Show

Play Episode Listen Later Dec 2, 2017 27:58


Sioux Falls attorney Dan Brendtro and Peter Vitiello of Sanford Research discuss their attempts to raise money to try to find a cure for Friedreich's Ataxia. Brendtro's daughter was diagnosed with FA when she was 11. Now 16 and in high school, his daughter is in a wheel chair and faces the possibility of dying in her 20s.

fa sioux falls save a life vitiello sanford research friedreich's ataxia dan brendtro
Movement Disorders Journal Podcasts 2012-2015
Safety and tolerability of carbamylated erythropoietin in Friedreich's ataxia

Movement Disorders Journal Podcasts 2012-2015

Play Episode Listen Later Jul 8, 2014 1:37


safety tolerability erythropoietin friedreich's ataxia
Movement Disorders Journal Podcasts 2012-2015
Common data elements for clinical research in Friedreich's ataxia

Movement Disorders Journal Podcasts 2012-2015

Play Episode Listen Later Feb 25, 2013 2:02


MDS presents the latest research and findings from the field of Movement Disorders. Abstracts of articles from the Society Journal, Movement Disorders, are taken from the February 2013 (Vol. 28, Issue 2) issue.