Podcasts about friedreich's ataxia

Ryan wanted some more action this week, so we gave him 2015's FPS movie Hardcore Henry. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

First he wanted a comedy, then an action movie, and this week Ryan was in the market for an action comedy so Kevin and Adam gave him MacGruber. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Ryan wanted some action this week so Adam and Kevin took a risk and gave him the Korean film Train to Busan. Will Ryan be able to get past the dreaded subtitles? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    April giveaway: Army of Shadows Criterion Collection Blu-ray - https://filmpulse.net/win-army-of-shadows-on-blu-ray/   web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Ryan wanted another comedy this week to get a reprieve from our depressing reality, so Adam and Kevin gave him 2017's The Nice Guys. He loved it. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Given the depressing climate we're currently living in, Ryan wanted something lighter this week, so Adam and Kevin had him watch Logan Lucky from 2017. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

This week, we honored Ryan's request for some action by giving him 2012's Dredd, but did it scratch that action itch? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Ryan was hankering for some action this week, so Adam and Kevin give him Ben Wheatley's 2016 film Free Fire, but is its blend of action and comedy something he was looking for? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

This week, Ryan want a dark and twisted international horror film so we gave him the Australian thriller Hounds of Love from 2016, but was this unnerving true crime nightmare dark enough for him? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure. web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet    facebook: http://facebook.com/filmpulse

Ryan wanted a raunchy sex comedy this week, so Adam and Kevin gave him the raunchiest one they could think of- Wetlands. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.nettwitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted some bloody action this week, so Adam and Kevin gave him the gritty crime thriller Brawl in Cell Block 99. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

In this special episode, Adam and Kevin reveal a secret they've been keeping from Ryan all year and also talk about Ryan's opinions on Star Wars: The Rise of Skywalker. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted a comedy this week, so Adam and Kevin gave him 2016's Everybody Wants Some!! To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.  web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted something sci-fi for this week so Adam and Kevin gave him Demolition Man from 1993. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted to get into the Halloween spirit and watch a horror movie this week so Adam and Kevin gave him Rob Zombie’s latest, 3 From Hell. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted a comedy this week so we gave him Olivia Wilde's Booksmart from earlier this year. He loves Superbad, so will this teen comedy be a hit? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted some action this week, so Adam and Kevin gave him 2015's Mad Max: Fury Road but did he love it as much as they did? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

This week, Ryan requested a comedy so Adam and Kevin gave him Never Goin' Back from last year. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.      web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted an action movie this week so Adam and Kevin gave him Avengement from earlier this year. Is this gritty crime thriller something he'll be into? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.     web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan loved Taika Waititi's What We Do in the Shadows, so when he asked for a comedy this week Adam and Kevin rolled the dice with another Waititi-directed film, Hunt for the Wilderpeople. To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Adam and Kevin give Ryan 2018's Upgrade this week, but did he like more than the sci-fi wheelchair tech? To learn more about Friedreich's Ataxia please visit: http://curefa.org and consider donating for a cure.    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan was in the mood for a soccer movie this week, so Adam and Kevin gave him 1997's Fever Pitch in the hope it would quell his soccer fever. To learn more about Friedreich's Ataxia please visit: http://curefa.org Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse    web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan was looking for a comedy this week, so we gave him 2018's Uncle Drew in the hope he would have fun with this goofy basketball movie. To learn more about Friedreich's Ataxia please visit: http://curefa.org Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse   web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted some horror this week, so Adam and Kevin gave Ryan 2017's Revenge, but was the level of violence in lieu of scares good enough for him? Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse   To learn more about Friedreich's Ataxia please visit: http://curefa.org   web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Ryan wanted a slasher this week, so Adam and Kevin thought they picked a safe bet with 2018's Halloween, but Ryan's reception of the film came as a surprise. Please consider supporting Film Pulse by contributing to our Patreon for just $1 per month! http://patreon.com/filmpulse To learn more about Friedreich's Ataxia please visit: http://curefa.org web: http://filmpulse.net twitter: http://twitter.com/filmpulsenet facebook: http://facebook.com/filmpulse

Kyle Bryant joins host Frankie Picasso on Mission Unstoppable Radio. Kyle Bryant was diagnosed with Friedreich's Ataxia, at 17, a life shortening illness that threatened to put this athlete in a wheel chair in his 20’s. Needing some control over his life, Kyle decided he would ride 2500 miles on his bike to raise money and awareness for his disease. Little did he know, he would really find himself.As the miles passed on by, Kyle Bryant made a huge self discovery, one that not only changed his own life, but impacts the lives of anyone who reads his brilliant memoir, Shifting into High Gear. You see, whether one is able bodied, have a rare disease like Kyle or face a hang nail, each of us has a choice about three things. 1. How we choose to define ourselves, 2. What limits we place on ourselves, and 3. How much of ourselves we are going to give back for the greater good!However, as time moved on, Kyle began to see that he was not in this disease by himself. That there were opportunities for him to build community and be an example for others despite the obstacles that lay before him, the FA community and their families Kyle chose to break free from self imposed limits and limited thinking. He allowed the definition of himself to expand even as his disease took away. some of his others see defeat. abilities. It is a courageous person who shows up to really Live live where

Patients as Partners Day 2 Session How FARA and Horizon Pharma Partnered to Improve Clinical Development and Trial Design-Case Study This session will feature how the Friedreich’s Ataxia Research Foundation collaborated with Horizon Pharma on aspects of clinical development and trial design to better understand patients living with the disease and how to better develop medicine to help manage their disease. Key areas of discussion include how they collaborated on the following: • Focus groups to better understand drug administration • Clinical trial design to ensure feasibility and efficiency • Recruiting patients for clinical trials • Open discussion at FDA meetings Kyle Bryant Director of the Bicycle Ride Fundraiser, rideAtaxia for the Friedreich’s Ataxia Research Alliance (FARA)  Robert Metz SVP, Global Business Operations and External Affairs, Horizon Pharma

Sioux Falls attorney Dan Brendtro and Peter Vitiello of Sanford Research discuss their attempts to raise money to try to find a cure for Friedreich's Ataxia. Brendtro's daughter was diagnosed with FA when she was 11. Now 16 and in high school, his daughter is in a wheel chair and faces the possibility of dying in her 20s.

MDS presents the latest research and findings from the field of Movement Disorders. Abstracts of articles from the Society Journal, Movement Disorders, are taken from the February 2013 (Vol. 28, Issue 2) issue.