Hemos Unite

Thanks for being patient with all the reposts while I try to iron out our recording issues. First, I couldn’t get Christa’s audio…so we had to redo the entire pod. THEN, my side of the pod was almost inaudible, so after much recreation, here is the final result for part …

  This pod is about some of the questions listeners have sent in regarding  how I have been transitioning my elementary school child into taking control of his care. I don’t have all the answers. I don’t have 10% of the answers. I do listen and try to pilfer as …

Hello United! This is a quick pod all about Back to School. YAY!  I often over prepare, but only because I am LAZY! I have a base presentation and checklist for who I need to contact and it doesn’t change too much. Do the hard work the first time and …

    Welcome to a special episode with friend of the Pod, L.A. Aguayo. Anytime you talk to L.A., you get real talk. We talk about his exciting new fitness challenge, #Hemolife, mental challenges that affect some in the community and general L.A. awesomeness. Neither L.A. or I are doctors …

Super excited about this month’s guest!    This month we are honored with Kari Peepe’s story of learning about platelet storage pool disorder to the mover and shaker she is today.  She is absolutely delightful and after chatting with her for a small bit, I want to be her BFF. …

  I absolutely love talking with Vaughn. After this recording, I was high on life! We have so many responsibilities and we sometimes forget to make sure we are nurturing ourselves and holding true to our values and goals. Vaughn reminds us to start small. This episode, he offers up …

  I am super excited about this month’s guest. I met him when I first landed in town at an Arizona Hemophilia Association event. He is a student and has a brain that won’t quit. He is one of the wisest people I know and constantly inspires me with his …

Hello everybody. First, let me just say my heart is with you Houston.  I am assuming that the foundation there will be needing some assistance so this month’s donation from HU will be going to the NHF Relief Fund. I can’t donate a lot but I always try to donate where …

  Hemos Unite is proud to host another incredible guest who is proving that you can live a rich, fulfilling life with a rare blood disorder. I feel so lucky that we have such empowering people in our community. Meet Cassandra, an accomplished woman in Southern Arizona who is speaking …

I met Jessica at an Arizona Hemophilia Association in the first month that we landed in Tucson. She worked for industry at the time and she was just so genuine, we instantly connected. She knows so many people in the community, it has been wonderful knowing I can call on her …

Hello Bleeders! We have added a new column to Hemos Unite! Introducing (again, if you follow the podcasts) one of my BFFs (thank you Hemophilia, I never would have met this amazing woman otherwise) HEATHER to the HU site. She will be contributing to the site to inspire you to …

Dan and I are virtual buddies. We met through Facebook a couple of years ago and have attempted a podcast before. Our first try, we ended up chatting for almost 4 hours about everything under the sun. I was just fascinated about the exciting life he has created for himself. …

  Boom Baby! We’re back with an awesome guest. This guy has an amazing story and after you listen to this podcast, make sure you go get the full experience and subscribe to his YouTube channel. L.A. Aguayo has Hemophilia B and has overcome some dark days to emerge as …

You are going to fall in love with this amazing lady. Her hemophilia story is one that has changed so much from finding out the diagnosis and how it is managed today, you will love the growth and it will inspire you to take control of your situation.  She is …

I met Josh last year through Facebook and are working on a nice little friendship. He is quite possibly one of the nicest people I have ever met. He is so kind and knowledgeable and willing to give of his time and energy. He and his wife are very special …

I am thrilled to intoduce you to Jeffrey Leiken from Evolution Mentoring. This guy is a bad ass and I absolutely love his message and how he sees relationships and LIFE.  I was so excited that Novo Nordisk also saw how amazing he is and decided to bring his expertise …

Giovanni is so passionate. He is affected by hemophilia and is heavily vested in the  community and making it stronger.  I am fortunate to have met and learned more about him this year and I am genuinely impressed with how knowledgeable and helpful he is. This guy has some great …

This guy is AWESOME. He was born a country boy and grew up on a cattle ranch (my dream is to live out in the middle of nature and have a retreat for all my friends to come together) and was misdiagnosed as a child. He did get the correct …

I am so excited to introduce Christa to you all. Many of you in Northern California already know her and her family. She lost her father and stepped away from the community for a while. She became a mom and her son has hemophilia. She decided to come back and …

I decided to chat with Patrick about the irresponsible, ignorant comments made during the airing of the Secrets and Lies, a dramatic TV show by ABC studios.  He is MUCH more eloquent than I, but we thought that I should put this out to the community to also gain some …

This lady is so cool. We met this year through Nurse Jane from Episode 7 and have become fast friends. She is a single mom with 5 kids and she is an awesome mom. I have seen this in person. She shares her story, “You Won A Free Trip To …

I bugged my buddy Matt to come on and give us some details about the super cool Internship that Bayer is running. He went through the internship when he was in college and after hanging out with this guy for a while, I have heard him refer to this program …

Warning:  Matti let’s some colorful language out – all in the spirit of  fun.  It’s all jokes people. Jokes and ear muffs. That being said,  you know I love me some Patrick James Lynch. I am just so impressed by how articulate, intelligent, talented, hilarious and NICE this guy is. …

I seriously love Ryanne! She is so honest, beautiful, smart, I love her accent and I just want to be her BFF.  She started the Hemophilia Is For Girls blog to help her process her experiences. At first it was just for her and her journey, it turned into a resource …

In Betweeisodes are now part of the programming here at HU. We will be doing quick catch ups with past guests, and giving letting you get to know everyone a little more. These are quickies. We will still do a longer chat with cool people in the community once a …

Powering through event from Believe Digi on Saturday! The fourth installment of the series which has been done all over the United States.  Patrick and Believe Digi bring together people from the Hemo community as well as others in the fields of interest for all humans! Really excited to support …

Candace is  one of the coolest ladies I have ever met. She is fiercely intelligent, beautiful, a strong advocate and really knows her stuff.  They are a military family and the ins and outs of getting proper care with base doctors is interesting and another example of how we all …

I feel so blessed to have met Vaughn. What an inspiration! His energy, outlook and story are amazing. He is a triathlete, published author, blogger, speaker, musician and inspiration to many. He is a “Hemo-lebrity” in our community and I could talk to this guy all day. I was so …

I can’t believe Barry was so kind to let us peek into his world with an interview for Hemos Unite! This is a pretty cool guy, he has made me a super fan and I am buying everything he has created. Literally. This is a great chat, not necessarily about …

Hi Everyone! This mini Episode is just me talking about some events that have happened and our upcoming event in SoCal on Nov. 2. Comment below and subscribe!

Surpise! An extra podcast this month!! So excited about this lovely guest! The creator of the popular Facebook page Hemophilia Mother, Milena was so cool to talk to. She is just so wonderful and really making a difference out there. You are going to really enjoy this amazing woman.  She …

Jane has some amazing stories about her experiences (and foreshadowing) with Hemophilia and has the coolest kids on the planet. She has lived a very interesting life and has taught me a lot and given me a of of ideas. The differences in how the community was and how it …

Everyone in my area knows Randy, she has been a wonderful resource for many of the families in the Southern California area. She conducts many educational programs and is so caring. When you meet her it feels like she has been a part of your life forever. She has a …

I just love this guy!!! He is so genuine, caring, articulate, funny and gives so much with seemingly endless creativity and energy. Patrick James Lynch is an actor, producer, director, speaker and advocate for the Hemophilia community. He is also the creator of Stop The Bleeding web series on youTube, …

I LOVE Morgan! I had the pleasure of meeting her at event that Randy puts on (thanks Randy!) and she is just one of those people that instantly makes you feel comfortable. She is happy, helpful and has a beautiful smile. She is very special in the Hemo community because …

Cazandra MacDonald is awesome and if you have any experience with Hemophilia, you know that she is a fantastic advocate and positive force in the community. She is a pastor’s wife, a musician and heavily involved in church ministry and “there is no such thing as normal” in her life. She …

Meet the super sweet, Lovee! I love her blog and it really helped me through my sharp learning curve when hemophilia was thrust into my life. I know you all have read some of her thought through her blog or on her FB page. Meeting her via skpe was like …

Meet the Amazing Rebecca! Her son was finally correctly diagnosed with Severe A at age 7. He had been treated for arthritis for the three years prior to this diagnosis. Through their journey she learned several empowering lessons and has become such a strong advocate for her family. Their story …

A little about Matti and how this pod came to be. We were hoping to release one a week, but we are starting with one a month. Editing and scheduling will hopefully be less time consuming as we move forward and the goal is to be able to release one …