POPULARITY
Hosted by patrick james lynch
11 episodes with patrick james lynch
7 episodes with patrick james lynch
8 episodes with patrick james lynch
2 episodes with patrick james lynch
2 episodes with patrick james lynch
6 episodes with patrick james lynch
3 episodes with patrick james lynch
2 episodes with patrick james lynch
BONUS: Patrick James Lynch on Entertainment That Makes Change - Lessons in Product Thinking from Believe Ltd. In this BONUS episode we explore how Patrick James Lynch, filmmaker, media executive, and rare disease advocate, has built Believe Limited around a powerful mission: entertainment that effects change. Patrick shares his journey from personal experience with his brother's hemophilia to creating award-winning content that empowers rare and chronic disease communities, offering valuable lessons for product managers on human-centered design, stakeholder alignment, and building emotionally viable products. The Genesis of Entertainment That Effects Change "This is more than a product." Patrick's journey began with a deeply personal question about his brother who had hemophilia. As an entrepreneur, he set out to respond to an identified need with one product to meet that need, but quickly realized the scope was much larger. His curiosity about what was different between him and his brother led him to understand that he needed to help people like his brother. This realization drove him to create valuable online videos to engage their audience, marking the beginning of Believe Ltd.'s mission of entertainment that effects change. Essential Product Lessons: Listen, Learn, and Do No Harm "The fact that I am my audience, does not mean that I'm an expert." Patrick emphasizes the critical importance of conducting thorough needs assessments and truly understanding your community before building products. Key insights include: Embed yourself in the community you're serving rather than making assumptions Follow the principle of "listen, learn and do no harm" as your starting point Involve community engagement as a dedicated role - Believe Ltd. has a VP of community engagement Define clear phrases that explain the value you deliver to your audience Use your personal story to establish credibility and relate experiences to your audience The goal is to get as familiar with your community as possible, then conduct your own research and development based on those deep insights. Navigating Multi-Stakeholder Complexity "Collaboration only succeeds when all points of view are respected." Working with patients, funders, healthcare professionals, and pharmaceutical companies requires careful orchestration. Patrick's approach centers on prioritizing the end game and identifying the north star goal that aligns all parties. He emphasizes focusing on combined skills and networks rather than trying to accomplish everything at the start. The key is ensuring that aligning stakeholders becomes a central part of the process, with everyone being accounted for throughout the journey. Human-Centered Storytelling as Product Strategy "What's the story that shows the value add of your product?" Patrick advocates for human-centered storytelling as a fundamental product approach. Rather than leading with features or specifications, he suggests crafting stories that demonstrate real value - like how a thermos saved someone's life while hiking. Stories have been humanity's primary communication tool since the beginning of time, and they remain the most effective way to show product value and connect with audiences on a meaningful level. Being a Value Fundamentalist "At any given moment, if anyone takes a screen grab, and set it against our five core values as a company - you see it's playing out." Patrick describes himself as a value fundamentalist, meaning that their company's core values are always present in everything they do. This requires courage, including the willingness to say "no" when opportunities don't align with their values. As CEO, he believes in embodying these values consistently, even when it's challenging, because who they are must always be visible in their work. Balancing Vision with Community Feedback "When you ask the audience for a solution, there's no innovation." Patrick warns against sacrificing vision simply because you're working closely with your audience. While being in the sandbox with your community is essential, maintaining your original vision for entertainment that changes minds is equally important. He recommends having someone you can bounce ideas off to help maintain this balance, and remembers that all great things start small and are inherently iterative. Creating Emotionally Viable Products "We can't develop emotional connection by going through a list of features." Beyond minimum viable products, Patrick focuses on emotional viability - the hook that makes people truly care. Emotional connection cannot be built through feature lists but rather through compelling stories that capture people's imagination. When audiences engage with products outside of direct supervision, storytelling becomes the bridge that helps them discover new uses and applications. This creates a dance between product creators and their audience, leading to better product design. The Currency of Attention "Attention is the only currency - there's great wisdom in that." Patrick recognizes that in today's landscape, capturing and maintaining attention is the fundamental challenge. Since everyone is an audience member at different times, this perspective helps inform both strategy and tactics. Products must compete not just on functionality but on their ability to engage and maintain audience interest over time. As a recommended reading, Patrick suggests that we should read “Save The Cat! The Last Book on Screenwriting You'll Ever Need” to understand how to better tell stories about our products. About Patrick James Lynch Patrick James Lynch is a filmmaker, media executive, and rare disease advocate. CEO of Believe Limited and founder of BloodStream Media, he uses his experience with hemophilia to drive award-winning storytelling, health advocacy, and mission-driven content that inspires and empowers rare and chronic disease communities worldwide. You can link with Patrick James Lynch on LinkedIn and follow Patrick James Lynch's work on his website.
In this special pop-up episode of the Bloodstream Podcast, host Patrick James Lynch discusses the discontinuation of two Takeda bleeding disorder products with Anthea Cherednichenko, Takeda's VP Franchise Head Hematology and Transplant. Additionally, the 'I'm Fine' segment, sponsored by Sanofi, explores why people cling to the notion of being 'fine' and the importance of embracing vulnerability for true resilience. I'm Fine is presented by @SanofiUS Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on X/Twitter
After an early access screening of Heart Eyes, the new killer romcom/ slasher flick from comedic genius Josh Ruben, I was head over heels in love with it and new I had to share it out to the world. This is my experience watching the film and non-spoiler thoughts about why this gory gift is the perfect date movie for Valentines Day 2025. So turn out the lights, find a safe hiding space, and fall in to Haunting Season. Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Video content: http://bit.ly/HauntingSeasonSubscribe Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://linktr.ee/HauntingSeason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
On this episode of the Global Hemophilia Report, host Patrick James Lynch and Senior Advisor Dr. Donna DiMichele review significant discussions from the season on therapeutic advancements, patient advocacy, and critical hematological research. They highlight key topics explored, such as the evolving therapeutic landscape, the role of data and patient involvement in advancing hemophilia care, and the persisting challenges in treatment, particularly for hemophilia B patients. The episode also addresses the impact of artificial intelligence in research and the importance of securing funding for post-licensure studies. Senior Advisor: Donna DiMichele, MD Hosted & Written by: Patrick James Lynch Featured Advertiser: Sanofi Subscribe to the Global Hemophilia Report Show Notes: Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Stories are more than tall tales. They help us relate. They inspire. They educate. They make us feel less alone. Chris talks with Chetan Motiwaras and Patrick James Lynch about the power of story when it comes to bleeding disorders, and how their drive to tell stories led them on their own life's journey. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia.com to take a look at how they are supporting the hemophilia Community. Subscribe to The Final Summit Podcast Produced by BloodStream Media Follow BloodStream Media on Facebook, X/Twitter, Instagram & TikTok Hosted by Chris Bombardier Written by Dru Johnston
On this episode, Patrick James Lynch honors the late Neil Frick, Senior VP for Medical Programs at the National Bleeding Disorders Foundation, recognizing his invaluable two-decade contribution to the bleeding disorders community. We also discuss hemophilia B gene therapy with Dr. Mark Redding, focusing on unique clinical trial designs and the role of steroids. Additionally, Makenna Dietrich shares her journey in bleeding disorder advocacy. The episode includes updates from Star Therapeutics on subcutaneous therapy for von Willebrand disease and insights on closing racial health equity gaps in the US. We also invite you to help pick a new BloodStream “theme song”. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast Hemophilia Uncensored Social Media: Instagram & TikTok Star Therapeutics Presents Clinical Data for VGA039, a Subcutaneous Therapy for the Treatment of Von Willebrand Disease (VWD) How the U.S. can close longstanding racial health equity gaps Visit BEQVEZ.com to learn more about gene therapy, sign up for additional information, and listen to real patients who are now living differently. It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
On this episode of the Global Hemophilia Report, host Patrick James Lynch is on location in Madrid, Spain for the WFH 2024 World Congress. Patrick talks about the history of World Hemophilia Day and talks with some of the attendees at the congress. Contributors: Hazri Aris Johnny Mahlangu Rebecca, Hematology Resident Senior Advisor: Donna DiMichele, MD Hosted & Written by: Patrick James Lynch Featured Advertiser: Sanofi Subscribe to the Global Hemophilia Report Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Gene therapy for hemophilia A and B now exists as a licensed, prescribable treatment option for patients in certain countries; however, many questions and challenges remain. Senior advisor Dr. Donna DiMichele and patient-host Patrick James Lynch speak to global KOLs about the current state of hemophilia A and B gene therapies, both commercially and investigationally. Contributors: Lindsey A. George, MD Margareth Ozelo, MD Steven Pipe, MD Senior Advisor: Donna DiMichele, MD Hosted & Written by: Patrick James Lynch Featured Advertiser: Sanofi Subscribe to the Global Hemophilia Report Notes and References: Nathwani: Hematology Am Soc Hematol Educ Program . 2022 Dec 9;2022(1):569-578. The current state of this exciting and rapidly evolving field, as well as the challenges that need to be overcome for the widespread adaptation of this new treatment paradigm, is the subject of this review. Pipe: N Engl J Med. 2023 Feb 23;388(8):706-718 The annualized bleeding rate decreased from 4.19 (95% confidence interval [CI], 3.22 to 5.45) during the lead-in period to 1.51 (95% CI, 0.81 to 2.82) during months 7 through 18 after treatment, for a rate ratio of 0.36 (95% Wald CI, 0.20 to 0.64; P
Historically, camps for kids with hemophilia have played a specific and valuable role, enabling a young person with hemophilia to experience all the benefits of a traditional, summer camp experience. On this episode, we dig into the camp experience with some of the leading voices within the space. Contributors: Tracey Gaslin PhD, CPNP, FNP-BC, CRNI, RN-BC Michael Wang, MD Pat Torrey Sarah Shinkman Chris Bombardier Senior Advisor: Donna DiMichele, MD Hosted by: Patrick James Lynch Written by: Simantini Karve, PhD Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Historically, people with hemophilia and especially children, have lived with considerable limitations when it comes to engagement in sports and athletics, thereby missing out on the numerous biopsychosocial and general health. However, both advancements in hemophilia care/treatment and advancements in understanding the benefits of engaging in sports have significantly changed the risk/benefit equation– but exactly, how? Contributors: Marilyn Manco Johnson, M.D. Olav Versloot, PhD Paul Mclaughlin Chris Bombardier Senior Advisor: Donna DiMichele, MD Hosted by: Patrick James Lynch Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Watch the film Bombardier Blood Listen to The Final Summit podcast Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
It's the final episode of 2022! Patrick gives an update on his ankle journey, through the good and the bad, PLUS a terrific interview with NHF CEO and President, Dr. Len Valentino. We'll close with a Let's Talk segment on focus on trauma, depressive swings featuring our own, Patrick James Lynch. Watch Jonah Hill's Stutz on Netflix Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Episode and Segment Sponsors: Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources. Brought to you by Sanofi Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Renowned hematologist, researcher, and senior advisor to the Global Hemophilia Report Dr. Donna DiMichele shares some of her Season 1 takeaways and thoughts about the future of hemophilia research. Senior Advisor: Donna DiMichele, MD Hosted by: Patrick James Lynch Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Listen to BloodStream's Journey to Joint Health episode. Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Tonight we talk about R. L. Stein guest appearing in a musical, a nostalgic love of children's horror books, and a real life theater ghosts! Turn out the lights, find a safe hiding space, and fall in to Haunting Season's HorrorTok. Get a copy of Goosebumps the Musical Original Soundtrack: https://goosebumpsthemusical.com/ Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch, Produced by Keith Korneluk, with editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
On this episode, we continue our discussion of chronic pain in hemophilia. We'll discuss exercise, medication and investigations. Contributors: Nathalie Anne Roussel, PhD, MSc, PT Paul Mc Laughlin, BSc, MSc, MMACP Senior Advisor: Donna DiMichele, MD Episode Advisors (also contributors): Michelle Witkop, DNP, FNP-BC Tyler Buckner, MD Hosted by: Patrick James Lynch Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Listen to BloodStream's Journey to Joint Health episode. Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Lucy Baal is a demon puppet from hell with a divine love of horror movies and quite a lot to say. Josh chats with Lucy and his handler Robin about being a demon, their shared love of horror movies, a real life haunting, and what it's like being a puppet on tiktok. Josh also shares his Halloween plans and reflects on Halloween past. All that and more, so turn out the lights, find a safe hiding space, and fall in to Haunting Season's HorrorTok Follow @lucy_baal : https://www.tiktok.com/@lucy_baal?is_from_webapp=1&sender_device=pc Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch, Produced by Keith Korneluk, with editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
Steven C Miller's new sci-fi horror slasher film Margaux is a fun new spin on the slasher genre. After an early screening, Josh gets the opportunity to speak to the director himself about the amazing house, the performances, the mixture of CGI and practical effects, and the intense 18 day production schedule. Josh also shares his love of science fiction and cosmic horror. All that and more, so turn out the lights, find a safe hiding space, and fall in to Haunting Season's HorrorTok. Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch, Produced by Keith Korneluk, with editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
Kyra Elise Gardner grew up with a father that was… a little different. As a child, her house was filled with dead bodies, severed limbs and cursed dolls, but she's not the daughter of a serial killer. In fact, it's all fake! Kyra grew up with a special effects master as a father and his many years working int he horror business has not only made her a life long fan, but a filmmaker herself. With a love of practical effects, Kyra started her film career with a short about a talking fish person, and has expanded from there. Her first feature documentary Living With Chucky is touring festivals as we speak, and she has nearly half a million people following her journey on tiktok. This episode is filler with laughs and filled with terror so turn out the lights, find a safe hiding space and fall in to Haunting Season's HorrorTok. Follow _KyraMyra_ : https://www.tiktok.com/@_kyramyra_?_t=8WTsWm1azsp&_r=1 Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch, Produced by Keith Korneluk, with editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
Josh talks about new releases Pearl, Barbarian and Smile and the surprising opinions he has about them. Josh also gets an opportunity to speak to the writer/ director duo behind the new Paramount+ release Significant Other, asking them about mental health, the marriage between comedy and horror, and the process of writing their film. All this and more, so turn out the lights, find a safe hiding space, and fall in to Haunting Season's HorrorTok. Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch, Produced by Keith Korneluk, with editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
Lee Howard is about the nicest person you'll ever meet, but behind his Ted Lasso charm lies a dark creative side that has launched him into being a full time artist. With over 1.6 million followers on tiktok alone, Lee's upsetting yet lovable f***ed up teddy bears sell out in mere moments. Tonight, Lee talks about his journey as an artist, horror lover, and content creator. Turn out the lights, find a safe hiding space, and fall in to Haunting Season. Follow QuietRoomBears.Official: https://www.tiktok.com/@quietroombears.official?lang=en The Quiet Room Bears Short Film: https://www.amazon.com/Quiet-Room-Bears-Nick-Smyth/dp/B096DWL7FX All the other links: https://linktr.ee/quietroombears Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok was created by Joshua Sterling Bragg and is a joint production with Believe Limited and Matt Gielen. Executive Producers Ryan Gielen, Matt Gielen and Patrick James Lynch, Produced by Keith Korneluk, with editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synthlord from minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
CEO Podcasts: CEO Chat Podcast + I AM CEO Podcast Powered by Blue 16 Media & CBNation.co
Patrick James Lynch is a globally- recognized healthcare and rare disease advocate, media professional, filmmaker, and father. He is the cofounder and CEO of Believe Limited, a mission- driven content agency and production company, and he's the Founder of BloodStream Media, a rare and chronic disease podcast network. Some of Patrick's producing credits include the films Bombardier Blood (EP: Alex Borstein), Elsewhere (HRIFF: Best Picture), My Beautiful Stutter (EPs: Paul Rudd, Mariska Hargitay), sometimes, i think about dying (Sundance Film Festival; Academy Award shortlist), and the multi-award winning web series Stop the Bleeding!. Patrick is also the Founder of the 501(c)(3) Entertainment 2 Affect Change (E2AC), a proud graduate of Boston University (BFA, Acting), and a fierce indoor cyclist. Born with severe hemophilia, Patrick dedicates his work in bleeding disorders and rare diseases to the memory of his late brother, Adam. Website: www.believeltd.com www.bloodstreammedia.com Headshoot link: https://m.imdb.com/name/nm4019838/mediaviewer/rm2979742720
Hannah Raulston has been an internet sensation for decades, dating back to the beginning of youtube as we know it. Clocking in at over 600,000 followers on tiktok, she shares her life as our friendly neighborhood clairvoyant lesbian. That's right, she sees spirits, always has, and tonight she's sharing what it's like growing up with ghosts, being a content creator, and of course why the horror genre means so much to her. So turn off the lights, find a safe hiding space, and fall in to Haunting Season. Follow HannahSeries: https://www.tiktok.com/@hannahseries?lang=en Haunting Season is a growing network of horror entertainment based around Joshua Sterling Bragg's love of horror. Daily horror content on tiktok: https://bit.ly/HauntingSeasonTikTok Updates, reviews and photos on Instagram: https://bit.ly/HauntingSeasonIG Original Scary Stories: https://bit.ly/HauntingSeasonYouTube All the other links: https://drum.io/hauntingseason Haunting Season and Haunting Season's HorrorTok were created by Joshua Sterling Bragg and are a joint production with Believe Limited and Matt Gielen. Executive Produced by Ryan Gielen, Matt Gielen and Patrick James Lynch. Produced by Keith Korneluk. Editing support by Todd Jackson and Kay Vermeil. Music was designed for the show by North Innsbruck the synth-lord from Minneapolis. https://www.northinnsbruck.com/ Thanks for listening, and come back soon because we're more likely to survive if we stick together.
On this episode, Executive Producer of the Global Hemophilia Report, Patrick James Lynch, is joined in person by Senior Advisor, Dr. Donna DiMichele, and Writer/Host, Laurence Woollard, to reflect on Season 1 so far as well as debate existing and emerging research priorities from each episode. Contributors: Patrick James Lynch Laurence Woollard Donna DiMichele, MD Senior Advisor: Donna DiMichele, MD Links to Learn More: Episode 1 - Inhibitors: Prevention, Eradication & Lived Experiences Episode 2 - Novel Therapies: Entering Uncharted Territory Episode 3 - Prophylaxis: Protection, Achievements & Shortcomings Episode 4 - Bone & Joint Health: Monitoring & Detection Episode 5 - Mental Health & Hemophilia in Adolescence & Young Adulthood Episode 6 - Women with Hemophilia: Research Priorities Show Notes: Recorded in person at the National Hemophilia Foundation's Bleeding Disorders Conference on August 26th, 2022 in Houston, Texas, US. Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Today we're talking to two rare disease patients who are accomplished advocates. We will hear their ups and downs with self advocacy and the steps they include when crafting their stories whether in a clinician's office or their professional lives. We hear from Bianca Basset who lives with PKD, is a disability consultant from Australia and author of the book “Walking My Path…Building Memories”. We also hear from Patrick James Lynch, a filmmaker and a patient advocate who lives with severe hemophilia A. He is the co-founder and CEO of Believe Limited, a content agency that produces entertainment to affect change. Patrick and Bianca are both professional storytellers. We'll hear the unique ways both of them craft their stories over the years. World Blood Donation Day is June 14, 2022. Please donate if you can. Connect with Patrick James Lynch: LinkedIn BloodStream Podcast Global Hemophilia Report Connect with Bianca Bassett : Website Instagram SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD and Instagram shorturl.at/gmFT4. TRANSPARENCY STATEMENT Just Listen: Voices of PK Deficiency and KnowPKDeficiency.com are made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time. Produced by BloodStream Media
In this episode, Luke Pembroke, Creative Director, Haemnet, speaks with Patrick James Lynch, haemophilia community advocate and Founder of Believe Ltd; a production company based in LA creating entertainment to affect change in the bleeding disorders and rare disease community. Patrick shares the story and inspiration behind founding Believe and shares his insights about the potential of storytelling to educate those living with rare conditions about care, treatment and advocacy, as well as using storytelling to raise awareness amongst the general population. Be sure to follow Patrick on Twitter @pjlynch and check out Believe Ltd's work - https://www.believeltd.com/ You can watch the latest (and previous) series of Stop The Bleeding by going to www.stbhemo.com or on YouTube.
On December 30th, 2021, longtime bleeding disorders and HIV/AIDS advocate and former National Hemophilia Foundation CEO Val Bias passed away suddenly at age 63. This special episode features audio from numerous interviews that Val gave to BloodStream Media and Believe Limited across the years; it's Val's life, in Val's own words, set alongside personal reflections from hosts Amy Board and Patrick James Lynch. Show Notes: Presenting Sponsor: Takeda Subscribe to BloodStream Podcast: Link Buffalo New Obituary Val Bias, 63, crusader for better care for those with hemophilia and HIV/AIDS: LINK World Federation of Hemophilia WFH VP Medical Glenn Pierce pays tribute to Val Bias: LINK National Hemophilia Foundation NHF Mourns the Loss of Longtime CEO, Val Bias: LINK Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
Patrick James Lynch is CEO of Bloodstream Media and creator of award winning documentaries, TV Shows, podcasts, and other media that entertains and educates about rare disease. He is a big presence in the Hemophilia community but has a certain resistance to becoming "Mr. Hemophilia". We really enjoyed the conversation and we hope you do too! Some of Patrick's work: Blood Stream Media Stop the Bleeding Web Series Bombardier Blood documentary My Beautiful Stutter documentary
Patrick James Lynch is CEO of Bloodstream Media and creator of award winning documentaries, TV Shows, podcasts, and other media that entertains and educates about rare disease. He is a big presence in the Hemophilia community but has a certain resistance to becoming "Mr. Hemophilia". We really enjoyed the conversation and we hope you do too! https://youtu.be/ZVw9lcyM_bY Some of Patrick's work: Blood Stream Media The Blog Post we talked about in the episode. Stop the Bleeding Web Series Bombardier Blood documentary My Beautiful Stutter documentary
ONCE UPON A GENE - EPISODE 091 Episode 091 - A Rare Collection- Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring three people from the rare disease community, sharing a story with a common theme. Patrick James Lynch, Michelle Morganoff and Anna Laurent share stories of re-runs. EPISODE HIGHLIGHTS Patrick James Lynch Patrick shares a story of him and his brother growing up with hemophilia, going to summer camp every year and getting to meet kids affected by a range of illnesses. They later went on to be camp counselors. After Patrick's little brother died, he was devastated and spent years struggling to move forward. He went back to camp as a head counselor, to find himself, to feel productive, to recollect the memories of the summers he spent at camp with his brother. With the closing announcements at the end of summer camp, Patrick felt he had said his final goodbye and realized that no re-run is ever the same as it is the first time you watch it. Michelle Morganoff Special is a new comedy series on Netflix that has Michelle hooked. Special is about a young gay man with cerebral palsy, navigating his way into adulthood and dealing with the real issues that exist in our society. Michelle shares how certain episodes keep her coming back to watch the re-run time and time again. She reflects on how the story lines of each episode make her feel validated, feel seen and how her observations impact her as a mother to her two children- one neurotypical and one neurodiverse. Anna Laurent Anna shares a story about a small girl who can't be still, scratching her body, in discomfort, and mesmerized by Mulan on the TV. Night after night, the girl fixates on Mulan, she smiles and giggles and she's content with the movie's ending. She watches the movie over and over until her hands slow, her body relaxes and she's finally able to drift off to sleep. For years, the girl is affected by the symptoms of Alagille Syndrome and watching Mulan is her only ticket to a restful night's sleep. Anna shares how the movie offered comfort in difficult, medically complex times and how it still brings joy into her life as a young adult. TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/
Today’s featured guest is Ryan Gielen. Ryan is the producer and director of the new documentary My Beautiful Stutter from executive producers Paul Rudd & Mariska Hargitay, streaming exclusively on Discovery Plus Channel in the United States, and available now on Vimeo On Demand throughout the rest of the world. My Beautiful Stutter is a documentary film about the arts-based program at Camp SAY (The Stuttering Association for the Young) for children who stutter. Ryan is also the executive producer of the short film sometimes, i think about dying, which was honored as an official Sundance Short, and short-listed for the 2020 Academy Awards. Ryan & his company Believe Limited have won the SABRE AWARD, the Shorty Social Good Award, and two WEBBYs, and was recently nominated for a Norman Lear Imagen Award for positive representations of Latinos in entertainment. I would like to thank Ryan for this truly profound and amazing documentary that talks about the struggles of daily life for children who stutter, and the memorable bonds made at this camp. I encourage everyone to watch with your family and see these amazing and courageous children as they continue in their journey. I would also personally like to thank Taro Alexander, George Springer, Mariska Hargitay, Peter Hermann, Patrick James Lynch, Michael Alden, Steven Sander & Paul Rudd for bringing this important subject matter into the spotlight and raising awareness that people who stutter are CHAMPIONS! LINKS Official Site: www.MyBeautifulStutter.com Rent on Vimeo: https://bit.ly/watchMBS Watch on Discovery Plus: discoveryplus.com/?xp=mybeautifulstutter Instagram: instagram.com/mybeautifulstutter Facebook: facebook.com/beautifulstutter Twitter: twitter.com/loveyourstutter Say: https://say.org For More Information on Ryan Gielen: Email: ryan@believeltd.com Thank you to Noah Swiderski (owner and producer of Briton Beats) for your outro music. For more information on Briton Beats, click this link: https://www.britonbeats.com/ Thank you to Epidemic Sound for the intro music. https://www.epidemicsound.com/ Thank you to Mike Russell for that voice over outro. https://musicradiocreative.com I use SquadCast for all my remote interviews. If you are interested in Squad Cast, check out my affiliate link: https://squadcast.fm/?ref=pedropena Leave a rating & review on Apple Podcasts: https://itunes.apple.com/us/podcast/my-stuttering-life/id1434435654?mt=2&app=podcast For correspondence: Pedro Peña, PO Box 1585, La Porte, Texas USA 77572
Media with a Mission with Believe Limited CEO Patrick James Lynch Patrick James Lynch has to inject himself with medication every other day because his liver doesn't produce a protein that helps his blood vessels seal when they burst. He and his brother were both born with hemophilia and he's since lost his brother to the disorder. After his loss, he felt compelled to reach others to provide support and awareness about the importance of life-sustaining medicine. Patrick is the founder and CEO of Believe Limited, he hosts camps, produces web series, creates workbooks and workshops, hosts the BloodStream podcast and has produced a film called Bombardier Blood. LINKS AND RESOURCES MENTIONED Believe Limited https://www.believeltd.com/ BloodStream Podcast https://podcasts.apple.com/us/podcast/bloodstream/id1133574474?mt=2 Bombardier Blood https://www.bombardierblood.com/ My Beautiful Stutter https://www.mybeautifulstutter.com/ Stop The Bleeding! https://www.youtube.com/watch?v=UCfGfh6Pax0 The Birth Story: Welcome Vivian Bea! https://podcasts.apple.com/us/podcast/the-birth-story-welcome-vivian-bea/id1133574474?i=1000513633326 TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/
On this episode of Haunting Season, Josh and Cody sit with Haunting Season executive producer Patrick "Bubbsey" James Lynch as they each tell a real-life story about a great loss in their life. You've only got 2.5 billion heartbeats in a lifetime, don't waste them! Subscribe for more haunting: http://bit.ly/HauntingSeasonSubscribe Check out our latest episodes: http://bit.ly/HauntingSeasonRecentUploads Welcome to Haunting Season, a weekly storytelling podcast about life and the afterlife, hosted by Joshua Sterling Bragg and Cody Dugan. New episodes every Friday! Patrick James Lynch: https://twitter.com/pjlynch?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor http://www.patrickjameslynch.com/ Follow for more updates on the Haunting Season Podcast: TikTok: https://bit.ly/HauntingSeasonTikTok Instagram: https://bit.ly/HauntingSeasonIG Twitter: https://bit.ly/HauntingSeasonTwitter Facebook: https://bit.ly/HauntingSeasonFacebook Theme music for Haunting Season is produced by North Innsbruck. Available on Apple Music: http://bit.ly/NorthInnsbruck #HauntingSeason #Death
Sit back, close your eyes and allow yourself to go on a journey through time as Jonathan (played by Patrick James Lynch) takes us through his formative years of life as a young boy living with hemophilia. Through the power of a 360 degree soundscape and a full cast of characters, we will venture on Jonathan's first big hike, learning to self infuse, and find out first hand exactly how Dungeons and Dragons became such an important part of his life. Program Notes: Want to follow more of our Journey? Subscribe here! Blood fo the Paladin is exclusively sponsored by BioMarin: www.biomarin.com Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org
The Rare Impact Awards, hosted by the National Organization for Rare Disorders (NORD), take place on Friday October 9th at 7pmEST and will honor music legend Peter Frampton, Ohio Senator Sherrod Brown, and our very own Patrick James Lynch (amongst others)! NORD’s Director of Strategic Planning and Project Development Lisa Sarfaty joins to discuss the event, then Germantown Academy’s legendary basketball coach Jim Fenerty joins to talk about his four-decade long coaching career, his diagnosis, and the rare blood cancer awareness campaign he’s joined. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite REGISTER (free) for the Rare Impact Awards - bit.ly/NORDRIA20 VOICES of MPN - bit.ly/VMPN20 VOTE! Vote.org - bit.ly/VoteOrg20 VOTE! WhenWeAllVote - bit.ly/BSPWWAV SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP LIKE BloodStream on Facebook - bit.ly/BSFB20 WATCH BloodStream on YouTube - http://bit.ly/BSPYT20
Bombardier Blood is an intimate and unflinching portrait of one man’s perseverance and determination. With a cinematic eye, director Patrick James Lynch captures a deeply personal story that illuminates the universality of triumphing over our challenges and finding purpose in our lives. Janeane speaks with Director Patrick James Lynch and Chris Bombardier.
On this episode of Big Blend Radio, hemophiliac film director Patrick James Lynch along with documentary subject Chris Bombardier discuss their film “Bombardier Blood” that chronicles Chris’ remarkable journey as a hemophiliac mountaineer who embarks on a historic mission to complete the Seven Summits, and inspire an international community to help those with hemophilia around the globe. More at https://www.bombardierblood.com/Featured music is "The Climb" by Evren Ozan.
On this special episode Alrik and Liz welcome Patrick James Lynch, director of Bombardier Blood! Bombardier Blood is a documentary that captured Chris Bombardier on his historic quest to conquer the seven summits, including Mt. Everest, as the first person with severe Hemophilia. Patrick, who has Severe Hemophilia as well, speaks on directing a documentary without being on location, how he got investors in this niche field, and getting Alex Borstein of Mad TV and The Marvelous Ms. Maisel fame to sign on as Executive Producer! (Spoiler Alert: She has a special interest in the bleeding disorders community!) Listen Now to hear all about what went into making this epic adventure about blood brotherhood, love and mountain climbing!
I have never felt so emasculated as when I spoke with Chris Bombardier about his new documentary Bombardier Blood. Bombardier at the time of the filming of this documentary had already climbed five of the seven's world largest mountains. What makes this documentary unique is that Bombardier is a hemophiliac. According to the Mayo Clinic, Hemophilia is a rare disorder in which your blood doesn't clot normally because it lacks sufficient blood-clotting proteins (clotting factors). What I found out thanks to Bombardier and director, Patrick James Lynch is that there are two types of hemophilia. Type A and Type B. Bombardier has Type A, while Lynch has Type B. The difference between the two is the type of proteins that are effected via the disorder. Bombardier was an aspiring baseball player, who once his hopes of going pro didn't pan out, he decided to become an adventurer. We spoke with Bombardier and Lynch about hemophilia, climbing Everest and what is next both for him and Lynch. Visit www.bombardierblood.com and www.adventuresofahemophiliac.com for more information on the film and what Chris Bombardier is up to. Follow Patrick James Lynch on Instagram @patrickjameslynch and @bombardierblood and on Twitter @bombardierblood Follow Chris Bombardier on Instagram @adventures_of_a_hemo #Hemophilia #Documentary #Everest
New film alert! In this episode, Adam Torres and Patrick James Lynch, CEO & Founder at Believe Limited, explore Patrick's new film "Bombardier Blood."Follow Adam on Instagram at https://www.instagram.com/askadamtorres/ for up to date information on book releases and tour schedule.Apply to be interviewed by Adam on our podcast:https://missionmatters.lpages.co/podcastguest/Visit our website:https://missionmatters.com/
Everyone has a story to tell. And sharing whatever creative content you have can make a huge difference, especially when your audience are people living with chronic illness. Storytelling can help people with chronic illness and rare diseases to move from a sad narrative to a more hopeful one where they can see themselves as people who have manageable chronic disease. In this episode, I’m joined by Patrick James Lynch, CEO of Believe LTD and host of Bloodstream Media. He shared with us how he and his team create engaging stories that positively impact people with chronic and rare disease, as well as his personal experience with loss and triumph, and his personal journey of living with severe hemophilia. Join me as we dive into how Patrick turned Believe LTD into a sustainable business and why they create content to make a difference in the world! Episode Highlights: Hobbies and activities that Patrick enjoys outside of his work at Believe LTD Patrick talks about his work at Believe LTD and their mission Content is King: What it means and why? How Believe LTD is serving the community of hemophilia and other chronic rare diseases How Patrick turned Believe LTD into an actual and sustainable business Always keep the end-users in mind when doing business The most important thing to consider when creating authentic content About Our Guest: Patrick James Lynch is a filmmaker, media professional, and globally-recognized health advocate who has delivered more than 100 presentations, all around the world. He's been recognized with the Hemophilia Federation of America's (HFA) Health & Wellness Award (2013), the National Hemophilia Foundation's (NHF) Meritorious Service Award (2014), was a featured speaker during World Federation of Hemophilia's (WFH) World Congress (2016, 2018), is an executive producer of Save One Life's 2020 content campaigns, has served as founding board president of the 501(c)(3) Entertainment 2 Affect Change since 2013, and since 2011 has been the CEO of Believe Limited. His work has been featured by Backstage, BuzzFeed, Forbes, Fox News, HemAware, Hemophilia News Today, HuffPo, PBS, Reuters, VoyageLA, and elsewhere. Film credits include documentaries sometimes, i think about dying (https://youtu.be/JTLBnjWbpBo) (EP, Sundance 2019, Oscars 2020 shortlist), and Ryan's Mom (producer/writer, in development w/ Jersey Films). Notable digital content includes the comedy web series "Hemophilia: The Musical (https://www.breakingthroughhemophilia.com/), an original 6-song musical, co-created with teen participants (original cast recording streamable on website!) Bleeding disorders programs of note include the arts workshop The Science Fair (http://thesciencefair.org/). Patrick can be seen as an actor in the Amazon Prime series patrickjameslynch.com (http://patrickjameslynch.com/). Links Supporting This Episode: Patrick James Lynch’s website: (https://www.believeltd.com/) Patrick James Lynch’s Instagram: (https://www.instagram.com/patrickjameslynch/) Patrick James Lynch’s Twitter: (https://twitter.com/pjlync) Patrick James Lynch’s LinkedIn: (https://www.linkedin.com/in/believepatrick) Bombardierblood Trailer: (https://vimeo.com/293432617) Bombardier Blood website: (https://www.bombardierblood.com/) Bloodstream Podcast: (https://podcasts.apple.com/us/podcast/bloodstream/id1133574474) Support this podcast
ON THIS EPISODE OF BIG BLEND RADIO: - Bombardier Blood - Hear about this inspiring doumntary with hemophiliac film director Patrick James Lynch and documentary subject Chris Bombardier. - Discover San Benito County - Jen Rodriguez, Tourism Director of San Benito County Chamber of Commerce & Visitors Bureau in Central California, talks about the region's parks including Pinnacles National Park, along with the local public art, wineries, and culinary destinations. - Artist-in-Residence Programs - Tanya Ortega, founder of the National Parks Arts Foundation, discusses the organization's unique month-long artist residence opportunities in various national park units across the country. Show Music: “The Climb” By Evren Ozan, “California Days” by Josh Pfeiffer, “A Day in Hawai’I” by Makana.
Patrick James Lynch is a filmmaker & advocate for people with bleeding disorders. Through his company Believe Limited, he has produced documentaries such as Bombardier Blood from EP Alex Borstein and My Beautiful Sutter from EPs Paul Rudd & Mariska Hargitay. Patrick can be heard alongside his wife each week on The BloodStream Podcast. Patrick dedicates his mission and work to the memory of his brother, Adam. @patrickjameslynch Pre-Order Bombardier Blood! bit.ly/preorderbb @dyingoflaughter_podcast
Our guest for this month is Believe Limited CEO and Bloodstream host, Patrick James Lynch. Ask the Expert is headed in a new direction and Patrick joins us to share what the future will hold for the Bloodstream Media network. Even though this will be the final episode of Ask the Expert, we are excited to announce the new path for our expert interviews, because they’re not going away! Listen in with Patrick and Amy as they share the new and exciting things coming from Bloodstream Media! Welcome to Episode 40, or To the Future! The final episode of the Ask The Expert Podcast! Check out all the podcast offerings from Bloodstream Media: https://www.bloodstreammedia.com/ Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058
BloodStream Media hosts Ahmar Zaidi and Patrick James Lynch are joined by guests Phillip Okwo and André Marcel Harris for a discussion on race, violence, and healthcare in America. Take Action Right Now: https://8cantwait.org/ Guests: Phillip Okwo; André Marcel Harris Subscribe to The BloodStream Podcast Subscribe to Cheat Codes
BloodStream Media hosts Ahmar Zaidi and Patrick James Lynch are joined by guests Phillip Okwo and André Marcel Harris for a discussion on race, violence, and healthcare in America. Take Action Right Now: https://8cantwait.org/ Guests: Phillip Okwo; André Marcel Harris Subscribe to The BloodStream Podcast Subscribe to Cheat Codes
Andrew and I had the pleasure to welcome in-studio Patrick James Lynch, a true renaissance man of many hats who was born of his condition — for a DOUBLE INTERVIEW.If I were to fully divulge all that is Patrick James Lynch, this intro would be longer than the episode. So in brief, he is one of world's most influential hemophilia patient leaders in addition to being a filmmaker, actor, producer, media guy, keynote speaker, and Founder/CEO of both Bloodsteeam Media, a rare and chronic disease podcast network and Believe Limited, a unique storytelling agency that creates entertainment to affect change.This man is a frieken specimen. Advocates love him. Activists want to be him. And I unapologetically may have developed little man-crush throughout getting to know him. This episode is on the longer side of what we usually publish, but, I assure you that if you've got the time, it's worth the listen. And as an added bonus, a recurring theme of Steve Guttenberg — along with mentions of The Golden Child, the phrase “penis breath” from ET, and Wilfred Brimley — will assure all you GenX’ers that the 80s are alive and well right here on the pod.Please enjoy this double intervew with Patrick James Lynch.
Patrick and Kristin talk about his journey with hemophilia and the impact on his mental health. Patrick shares where he finally opened up to his friends and colleagues a time when he was struggling with mental health challenges. The opening up, as it always does, was liberating and humbling for him. Patrick James Lynch is a filmmaker, media professional, and globally-recognized health advocate who has delivered more than 100 presentations, all around the world. He's been recognized with the Hemophilia Federation of America's (HFA) Health & Wellness Award (2013), the National Hemophilia Foundation's (NHF) Meritorious Service Award (2014), was a featured speaker during World Federation of Hemophilia's (WFH) World Congress (2016, 2018), is an executive producer of Save One Life's 2020 content campaigns, has served as founding board president of the 501(c)(3) Entertainment 2 Affect Change since 2013, and since 2011 has been the CEO of Believe Limited. His work has been featured by Backstage, BuzzFeed, Forbes, Fox News, HemAware, Hemophilia News Today, HuffPo, PBS, Reuters, VoyageLA, and elsewhere.Film credits include documentaries Bombardier Blood (director/producer; EP Alex Borstein), My Beautiful Sutter (EP; also EP: Paul Rudd), Poster Child (director/producer, in production), and the scripted films Elsewhere (director/actor; Best Picture HRIFF; Best Ensemble NYCIFF) sometimes, i think about dying (EP, Sundance 2019, Oscars 2020 shortlist), and Ryan's Mom (producer/writer, in development w/ Jersey Films).Notable digital content includes the comedy web series "Stop The Bleeding!" (9 seasons; numerous awards; bi-lingual), The BloodStream Podcast (creator/host, also founder: BloodStream Media), and Hemophilia: The Musical, an original 6-song musical, co-created with teen participants (original cast recording streamable on website!)Bleeding disorders programs of note include the arts workshop Breaking Through!, the youth empowerment program Teen Impact Awards, and the interactive & educational The Science Fair.Patrick can be seen as an actor in the Amazon Prime series Baker's Dozen and he occasionally writes about mental health and other things at www.patrickjameslynch.com and www.believeltd.com
Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our third episode, we speak to community members and advocates about their hopes for the future of FVIII inhibitor treatment as well as local and nationwide resources available to FVIII inhibitor patients. “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of living with hemophilia A with factor VIII inhibitors. Special, huge thanks to our guests: Justin Levesque Dr. Guy Young Sue Geraghty Liz Purvis Eric Lowe Janet Brewer and Benjamin Denman BloodLine—FVIII Inhibitors: The Next Chapter is produced by me, Patrick James Lynch, and Ryan Gielen. Written by Ryan Gielen. Edited by Josh Davis. Produced at BloodStream Media's Los Angeles studio, and mixed by Michael Capuano at Icemen Sound. For more information on the podcast, visit our website at www.BloodLinePod.com. This series was produced by Believe Limited in collaboration with Genentech, the makers of HEMLIBRA® (emicizumab-kxwh). What is HEMLIBRA? HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors. What is the most important information I should know about HEMLIBRA? HEMLIBRA increases the potential for your blood to clot. Carefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. HEMLIBRA may cause serious side effects when used with activated prothrombin complex concentrate (aPCC; FEIBA®), including thrombotic microangiopathy (TMA), and blood clots (thrombotic events). If aPCC (FEIBA®) is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (FEIBA®) total. How should I use HEMLIBRA? • Stop (discontinue) prophylactic use of bypassing agents the day before starting HEMLIBRA prophylaxis. • You may continue prophylactic use of factor VIII for the first week of HEMLIBRA prophylaxis. What should I know about lab monitoring? HEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and may cause a false reading. Talk to your healthcare provider about how this may affect your care. The most common side effects of HEMLIBRA include: redness, tenderness, warmth, or itching at the site of injection; headache; and joint pain. These are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects. You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at (888) 835-2555. Please see the HEMLIBRA full Prescribing Information and Medication Guide for Important Safety Information, including Serious Side Effects, here: bit.ly/2kp959s HEMLIBRA® is a registered trademark of Chugai Pharmaceutical Co., Ltd., Tokyo, Japan. The Genentech logo is a registered trademark of Genentech, Inc. © 2019 Genentech USA, Inc. All rights reserved. EMI/053019/0107e 07/19
Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our second episode, we learn about the ten-year journey to bring HEMLIBRA® (emicizumab-kxwh) to market and take a deep look at the clinical trials of HEMLIBRA. “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of living with hemophilia A with factor VIII inhibitors. Special, huge thanks to our guests: Justin Levesque Dr. Guy Young Sue Geraghty Liz Purvis Eric Lowe Janet Brewer and Benjamin Denman BloodLine—FVIII Inhibitors: The Next Chapter is produced by me, Patrick James Lynch, and Ryan Gielen. Written by Ryan Gielen. Edited by Josh Davis. Produced at BloodStream Media's Los Angeles studio, and mixed by Michael Capuano at Icemen Sound. For more information on the podcast, visit our website at www.BloodLinePod.com. This series was produced by Believe Limited in collaboration with Genentech, the makers of HEMLIBRA® (emicizumab-kxwh). What is HEMLIBRA? HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors. What is the most important information I should know about HEMLIBRA? HEMLIBRA increases the potential for your blood to clot. Carefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. HEMLIBRA may cause serious side effects when used with activated prothrombin complex concentrate (aPCC; FEIBA®), including thrombotic microangiopathy (TMA), and blood clots (thrombotic events). If aPCC (FEIBA®) is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (FEIBA®) total. How should I use HEMLIBRA? • Stop (discontinue) prophylactic use of bypassing agents the day before starting HEMLIBRA prophylaxis. • You may continue prophylactic use of factor VIII for the first week of HEMLIBRA prophylaxis. What should I know about lab monitoring? HEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and may cause a false reading. Talk to your healthcare provider about how this may affect your care. The most common side effects of HEMLIBRA include: redness, tenderness, warmth, or itching at the site of injection; headache; and joint pain. These are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects. You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at (888) 835-2555. Please see the HEMLIBRA full Prescribing Information and Medication Guide for Important Safety Information, including Serious Side Effects, here: bit.ly/2kp959s HEMLIBRA® is a registered trademark of Chugai Pharmaceutical Co., Ltd., Tokyo, Japan. The Genentech logo is a registered trademark of Genentech, Inc. © 2019 Genentech USA, Inc. All rights reserved. EMI/053019/0107e 07/19
Presenting a NEW BloodLine podcast, “FVIII Inhibitors: The Next Chapter.” In our first episode, we meet patients from around the country who live with hemophilia A with factor VIII inhibitors and hear about their journeys first hand. “FVIII Inhibitors: The Next Chapter” is a three-part podcast series looking at the current and future state of living with hemophilia A with factor VIII inhibitors. Special, huge thanks to our guests: Justin Levesque Dr. Guy Young Sue Geraghty Liz Purvis Eric Lowe Janet Brewer and Benjamin Denman BloodLine—FVIII Inhibitors: The Next Chapter is produced by me, Patrick James Lynch, and Ryan Gielen. Written by Ryan Gielen. Edited by Josh Davis. Produced at BloodStream Media's Los Angeles studio, and mixed by Michael Capuano at Icemen Sound. For more information on the podcast, visit our website at www.BloodLinePod.com. This series was produced by Believe Limited in collaboration with Genentech, the makers of HEMLIBRA® (emicizumab-kxwh). What is HEMLIBRA? HEMLIBRA is a prescription medicine used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A with or without factor VIII inhibitors. What is the most important information I should know about HEMLIBRA? HEMLIBRA increases the potential for your blood to clot. Carefully follow your healthcare provider’s instructions regarding when to use an on-demand bypassing agent or factor VIII, and the dose and schedule to use for breakthrough bleed treatment. HEMLIBRA may cause serious side effects when used with activated prothrombin complex concentrate (aPCC; FEIBA®), including thrombotic microangiopathy (TMA), and blood clots (thrombotic events). If aPCC (FEIBA®) is needed, talk to your healthcare provider in case you feel you need more than 100 U/kg of aPCC (FEIBA®) total. How should I use HEMLIBRA? • Stop (discontinue) prophylactic use of bypassing agents the day before starting HEMLIBRA prophylaxis. • You may continue prophylactic use of factor VIII for the first week of HEMLIBRA prophylaxis. What should I know about lab monitoring? HEMLIBRA may interfere with laboratory tests that measure how well your blood is clotting and may cause a false reading. Talk to your healthcare provider about how this may affect your care. The most common side effects of HEMLIBRA include: redness, tenderness, warmth, or itching at the site of injection; headache; and joint pain. These are not all of the possible side effects of HEMLIBRA. Speak to your healthcare provider for medical advice about side effects. You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at (888) 835-2555. Please see the HEMLIBRA full Prescribing Information and Medication Guide for Important Safety Information, including Serious Side Effects, here: bit.ly/2kp959s HEMLIBRA® is a registered trademark of Chugai Pharmaceutical Co., Ltd., Tokyo, Japan. The Genentech logo is a registered trademark of Genentech, Inc. © 2019 Genentech USA, Inc. All rights reserved. EMI/053019/0107e 07/19
Josh has coffee with Patrick James Lynch and Rob Bradford to discuss filmmaking the hardest way possible […] The post Patrick James Lynch & Rob Bradford/Bombardier Blood appeared first on NYEH Entertainment.
Mental illness in the bleeding disorders community is a challenging topic to discuss, but given that approximately one-third of people with a chronic illness experience symptoms of depression, it’s clearly a topic in need of more attention. This month’s guest is Debbie de le Riva, community advocate and social worker. She joins host Chris Bombardier and guest co-host Patrick James Lynch for an open and honest discussion about depression, mental illness, and suicide prevention in the bleeding disorders community, and the work that she’s doing to make an impact. NotOk app: https://www.notokapp.com/ Research Articles: Journal of Blood Medicine: Sue duTreil: Physical and psychosocial challenges in adult hemophilia patients with inhibitors https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4114907/ Haemophilia: Iannone M, Pennick L, Tom A, Cui H, Gilbert M, Weihs K, Stopeck AT: Prevalence of depression in adults with haemophilia. https://www.ncbi.nlm.nih.gov/pubmed/22642565 HERO Study: http://www.herostudy.org/ Suicide Prevention Hotline: 1-800-273-TALK (8255) https://suicidepreventionlifeline.org/ Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment or changes in physical activities. Have a bleeding disorders-related question you’d like to submit to Ask The Expert? Excellent! You can email it to mailbag@bloodstreammedia.com (Subject: Ask The Expert Question), post it on the wall of our Facebook Page, Facebook.com/BloodStreamMedia or tweet it to us @BloodStreamInfo or @pjlynch (host) All 2018 episodes of Ask The Expert are made possible exclusively by Bayer & Living With Hemophilia. Connect with BloodStream: BloodStream Facebook Page BloodStream Twitter Account Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Host Patrick James Lynch on Twitter and Instagram.
Day 5 from WFH's 2018 World Congress is in the books, as is the 2018 Congress itself! What a few days it's been. We spend a few minutes reviewing today and capsuling the conference before saying goodbye from Glasgow! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 WFH's Congress News Daily. Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay Spotify: http://spoti.fi/2nNPhui
Day 4 from WFH's 2018 World Congress is in the books, and The BloodStream Podcast daily recap is ready! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay Spotify: http://spoti.fi/2nNPhui
Special guest Laurence Woollard from the UK joins The BloodStream Podcast for Day 3 of the World Federation of Hemophilia's World 2018 Congress! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay Spotify: http://spoti.fi/2nNPhui Read more at http://bloodstream.libsyn.com/wfh-world-congress-day-2-recap?tdest_id=394637#PUDeY18LOFqdFlpE.99
During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay Spotify: http://spoti.fi/2nNPhui
During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay Spotify: http://spoti.fi/2nNPhui
In Part 3 of BloodLine’s Hemophilia and Young Adulthood Series - our final episode - eight members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch. Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder. Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org. National Hemophilia Foundation’s Chapter Directory. Hemophilia Federation of America’s Member Organizations Search Platform. BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links. Find all of BloodStream Media’s podcasts for the bleeding disorders community by visiting BloodStreamMedia.com.
In Part 2 of BloodLine’s Hemophilia and Young Adulthood Series, eight members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of PAIN MANAGEMENT, and troubling topic of SUBSTANCE ABUSE. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch. Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder. Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org. BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links. Find all of BloodStream Media’s podcasts for the bleeding disorders community by visiting BloodStreamMedia.com.
In Part 1 of BloodLine’s Hemophilia and Young Adulthood, eight members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder; DISCLOSURE in school, professional, and social settings; and TRANSITIONS, such as those from high school to college, from college into the professional world, and from singledom to marriage. This conversation was recorded live on January 17th at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick James Lynch. Series Sponsor: Shire. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder. Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org. BloodLine is a BloodStream Media podcast series featuring deep dives into the stories and topics that matter most to the bleeding disorders community. Subscribe to The BloodLine Podcast on iTunes (http://bit.ly/BloodLinePod) or visit BloodLinePod.com to stream or subscribe via links.
Believe Limited is excited to announce the launch of not one but TWO new podcasts! Ask the Expert and The Powering Through Podcast join our flagship podcast BloodStream™ to round out the growing BloodStream Media Network. Read a bit more about both podcasts below and make sure to subscribe on your favorite platform! Check out BloodStreamMedia.com! Ask The Expert features a HTC hematologist or other healthcare expert answering listener-submitted questions about all things bleeding disorders. Ask The Expert is created and produced by Believe Limited and hosted by Patrick James Lynch. Listen and Subscribe! Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment. The Powering Through Podcast features empowering, live panel conversations on obstacles, challenges, and what it takes to overcome, held for the benefit of the bleeding disorders community. The Powering Through Podcast is sponsored by NCHS, produced by Believe Limited, and hosted by Patrick James Lynch. Listen and Subscribe! BloodStream Media on Social: BloodStream Facebook Page BloodStream Twitter Account BloodStream Host Patrick James Lynch on Twitter and Instagram Want to submit a question for Ask The Expert? Want to send in an idea for a segment on The BloodStream Podcast? Want to find out more about Powering Through events in your area? Email BloodStream: mailbag@bloodstreammedia.com.
Warning: Matti let’s some colorful language out – all in the spirit of fun. It’s all jokes people. Jokes and ear muffs. That being said, you know I love me some Patrick James Lynch. I am just so impressed by how articulate, intelligent, talented, hilarious and NICE this guy is. …
Powering through event from Believe Digi on Saturday! The fourth installment of the series which has been done all over the United States. Patrick and Believe Digi bring together people from the Hemo community as well as others in the fields of interest for all humans! Really excited to support …
I just love this guy!!! He is so genuine, caring, articulate, funny and gives so much with seemingly endless creativity and energy. Patrick James Lynch is an actor, producer, director, speaker and advocate for the Hemophilia community. He is also the creator of Stop The Bleeding web series on youTube, …
For those with commitment issues, here's a taste of what "going steady" gets you in this episode of MyNY, hosted by Patrick James Lynch.
© 2020-2025 Ivy Podcast Discovery LLC
