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In honor of Autoimmune Disease Awareness Month, Indie chats with Lilly Stairs - autoimmune advocate, Founder & Principal of Patient Authentic, & acting interim CEO of American Autoimmune Related Diseases Association (AARDA). Lilly and Indie talk about Lilly's journey living with multiple autoimmune diseases, the importance of patient advocacy and how she found her purpose through her diagnoses. Links:Patient Authentic InstagramPatient Authentic WebsiteAARDA Website
On Friday, April 3, AARDA was honored to co-hosted a briefing with the Centers for Disease Control (CDC) and in conjunction with the National Coalition of Autoimmune Patient Groups (NCAPG) on the risks associated with COVID-19 and patients with autoimmune diseases.The outstanding panelists:Dr. Georgina Peacock, CDC COVID-19 Task Force Lead and Director, Division of Human Development and Disability at the National Center on Birth Defects and Developmental DisabilitiesDr. Aline Charabaty, gastroenterologist, Clinical Director of the GI Division and Director of the IBD Center, Johns Hopkins-Sibley Memorial HospitalDr. Nancy Carteron, rheumatologist, University of California – Berkeley, School of Optometry, former Chair of the Medical & Scientific Advisors for the Sjogren’s FoundationDr. Eric Chow, COVID-19 Response: Medical Care and Countermeasures Task Force, Epidemic Intelligence Service Officer, Influenza Division, National Center for Immunization and Respiratory DiseaseListen to the webinar here: https://www.aarda.org/autoimmune-disease-covid-19/ See acast.com/privacy for privacy and opt-out information.
In this podcast episode, I had the privilege of interviewing Virginia Ladd, the President and Executive Director of the American Autoimmune Related Diseases Association, Inc. (AARDA), an organization that she founded to bring a national focus to autoimmunity and increase collaboration in autoimmune research, education, awareness, and advocacy. We take a deep dive in this episode, we go talk about many things from what to ask your doctor about to different stories about walking through our autoimmune journey. It was a pure treat to interview her and I hope that you enjoy this episode as much as I did!
Billboard charting vocalist Lori Jenaire talks about her efforts to pledge .25 cents from every single sold of her single of the jazzy R&B classic "As You Are," to the 25th anniversary celebration of the American Autoimmune Related Diseases Association, Inc. (AARDA). www.LoriJenaire.com
Vocalist Lori Jenaire Makes Billboard's Top Five with Jazzy R&B Classic "As You Are" featuring Patrice Rushen and Supports AARDA #25for25 Fundraising for Autoimmune Related Diseases Vocalist Lori Jenaire is pledging .25 cents from every single sold of "As You Are" to the 25th anniversary celebration of the American Autoimmune Related Diseases Association, Inc. (AARDA) #25for25 Campaign. Los Angeles - With the release of her Top Five Billboard Hot Singles Sales charting debut, "As You Are," featuring Patrice Rushen, a remake of the 1978 Pharoah Sander's R&B soul classic which originally featured Phyllis Hyman, songstress Lori Jenaire is on a mission that transcends music sales and charting. The lovely diva is hoping to bring more attention to an issue that not only personally affects her, but also millions of others, autoimmune diseases. Jenaire is pledging .25 cents from every single sold of "As You Are" to the 25th anniversary celebration of the American Autoimmune Related Diseases Association, Inc. (AARDA) #25for25 Campaign. The AARDA #25for25 effort invites individuals and organizations around the world to recognize AARDA's achievements on behalf of people with autoimmune diseases and to support their work going forward by donating to the organization. Jenaire is hoping that her remake of "As You Are" uplifts the spirit of those battling with their own autoimmune related health struggles while encouraging awareness and compassion for global healing on a mass level. According to AARDA, there are more than 100 known autoimmune diseases (ADs), including psoriasis, Graves' disease, Sjogren's syndrome, Type 1 diabetes, relapsing polychondritis, myasthenia gravis, multiple sclerosis, rheumatoid arthritis, Crohn's disease and lupus. The underlying cause of all of these diseases is autoimmunity which disproportionately affects women. Of the 50 million Ameri
Autoimmune patients often face significant challenges getting diagnosed and treated, not to mention lack of awareness about autoimmunity in general. In this episode, Virginia Ladd, founder and president of the American Autoimmune Related Diseases Association (AARDA), talks about efforts to increase medical research in autoimmunity, establish data that will support creation of diagnostic centers, increase awareness of autoimmune disorders, and advocate for patient interests. Show notes available at http://aiadventures.com