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George Scola is a stroke survivor. Many years ago, stroke disrupted his thriving career in finance. Undeterred, he started the Stroke Survivors Foundation to champion the cause for stroke survivors. He now also serves on the board of the World Stroke Organization. George has long held the vision that post discharge support is crucial to stroke survivors and a better stroke care. He is now working with Strokefocus to roll out a PDSS program in South Africa and beyond.
This is a special episode. Dr Ayesha Hunter, who is a prime expert in post stroke trauma, met with survivors and support group leaders to discuss post stroke psychological challenges. Strokefocus will work with Healings In Motion to offer a series of such discussions. If you would like to participate and meet the professionals directly, sign up at https://discovery.strokefocus.net/him
Alison Shapiro was a successful business woman and a visual artist when she was hit by 2 devastating brain stem strokes in 2002 at the age of 55. This life changing event turned her into a leader, an author and educator in the stroke community. Alison not only recovered from the injury but published her inspiring book, Healing into Possibilities and her DVD, What Now?: Sharing Brain Recovery Lessons. A strong believer of neuroplasticity, Alison runs a website healingintopossibiliy.com and provides coaching information to people who are interested in leveraging mindfulness to recover from stroke. Alison is the cofounder of Strokefocus. In Sept 2012, Daniel suffered a brain stem stroke. Through the internet, Daniel found Alison who has been mentoring and coaching Daniel ever since. Daniel recovered remarkably well from the injury. In order to turn their experience into something that can help many people, Alison encouraged Daniel to start Strokefocus in 2014. Alison has been involved in a number of recovery focused research projects. She created a successful stroke recovery training program which she teaches in California and Virginia.
Podcasts Let's talk about 3 podcasts in this podcast. After all, the reason, we're podcasters is we like talking about our passions. I mentioned in the previous episode of this show that Microsoft has new technology to create live subtitles as a presenter speaks. I talked about it much more extensively in episode 65 of 2-Minute Talk Tips. You can learn more here. I used the tool to create a transcript of this episode. It's not perfect, but if you'd rather read than listen, click here. I joined Cam Compton on the Hand In Hand show on the Strokefocus network. You can listen to that episode here. You can also explore Strokefocus.net in more detail here. Cam and I talked about our stories, the importance of support groups, keys to recovery, mindset, and exercise. I also appeared on Lyn Henderson's Inside Knowledge podcast. Lyn's show is all about resilience. Based in New Zealand, she interviews folks from around the world to learn how they've overcome challenges to live the lives they want to live. We talk about the warning signs for stroke, the risk factors we must navigate, and the keys to recovery. You can listen to the episode here or check out Lyn's other guests here. Eggs and Tea Medical News today reported on a study in the journal Heart published by the British Cardiovascular Society about a study in China that shows eating one egg a day can reduce the risk of stroke by 12%. If I'm reading the study right, the looked at 461,213 people. Almost daily egg consumption — or around 5.32 eggs per week — was also linked to a 12 percent lower risk of ischemic heart disease, compared with people who never or rarely ate this food (amounting to approximately 2.03 eggs per week). "The present study finds that there is an association between moderate level of egg consumption (up to 1 egg/day) and a lower cardiac event rate," the study authors explain. In the US, eggs are pretty much demonized when it comes to questions about cholesterol and vascular health. Of course, that doesn't stop us from eating the. It seems to me the key, as in most things is moderation. In effort to eat more healthfully, I've reduced my egg yolk consumption. I picked up a carton of liquid egg whites, and now instead of cooking 3 or 4 eggs, I'll cook one egg and make up the difference with egg white. I can't really taste the difference so it's a win. Plus, it's easier to deal with the carton one handed than to crack a bunch of eggs one handed. I encountered another study this week about the benefits of Green Tea. Cardio Vascular Business reports on a study published in the Journal of Biological Chemistry with the headline,"Green tea component may prevent heart attack, stroke." That's great news, because green tea is mighty tasty. And green tea Kit Kats are awesome. But it pays to read a little more deeply. "Our results show that this intriguing compound might also be effective against the types of plaques which can cause heart attacks and strokes." The researchers said a normal amount of green tea is unlikely to have a significant effect on heart health. It's intriguing research, but we are unlikely to get the benefit by simply drinking more tea. Still, it's great to see this; perhaps they will be able to turn this chemical into a thing later on. In the meantime, enjoy your tea. Strokeaversary June 3 was my first Strokeaversary. So it's been a weird week. I'm not satisfied with my progress, but I'm further along than I ought to be. I've got plenty more work to do. I told this story on Facebook. You can read that here. I've learned a ton over the past year, and I've gotten to meet some great people. I've had a great time with this podcast, and I'd like to think I've been able to help some folks. And there's still a ton left to do. Hack of the Week Keep track of your medical expenses. Parking Travel to appointments Deductibles Cobra premiums ...and so much more If you have a lot of unreimbursed medical expenses, keep track of them. They may be tax deductible. Gathering up all this info next year at tax time will be a lot easier if you get started now. This is even more important when it comes to tracking your medical related mileage. The savings can be substantial. Where do we go from here? Have you had your Strokeaversary? What was your experience like? Tell us in the comments below. Have you made a thing? I want to hear about it. Share with us in the comments. Check out the Hand In Hand show and the Inside Knowledge podcast If your Doctor says it's okay, enjoy your eggs and green tea in moderation. Start keeping track of your expenses and mileage now to make tax time easier. Share this episode of Strokecast with a friend or neighbor. Don't get best...get better.
More than 9 year ago, David Karchem suffered a stroke on his way home. The former executive's life took an unexpected turn. In his recovery David found his new calling. He is now heavily involved with University of Southern California stroke research projects. In 2016, he got involved with the Strokefocus community after our launch. David wants to apply his own experience to drive stroke care to improve. He wants to challenge the myth that stroke recovery ends in 18 months. He uses his own experience, that he gained his smelling sense back in more than 6 years to prove that recovery extends much longer than the commonly believed timeline of only 18 months. A very resourceful individual, David built his own electric scooter. He even applied to the PhD program of Occupational Therapy of University of Southern California. Listen to David's interview. We wish Dave all the success!
In 2012, LeaAnn was enjoying her life. She was a professional caregiver who loved her job. She was traveling in Central America enjoying the weather and food, when she suddenly collapsed. Doctors found an issue with her heart. They placed a mechanical valve in her. LeaAnn gradually recovered. It seemed life was back on track again. In Sept 2014, LeaAnn went for a dental surgery. Unexpectedly the surgery triggered an infection. After the dental surgery, she started to throw up and had flu like symptoms for a month. LeaAnn went to see doctors who said it was just the flu. One night, she went to bed one night with a strange headache. LeaAnn woke up the next morning and fell to her left side. When she woke up, it was in a hospital. LeaAnn had a stroke. Life has been changed forever after that. One thing will never change- her passion as a caregiver. In her recovery, LeaAnn set up a Facebook support group. She also started working with Strokefocus to improve the stroke care. Listen to her episode.
Meri Kelly, inventor of her unique series of color books to help caregivers got her idea when being a caregiver of her mom. Meri's mom was diagnosed with Alzheimer's. She decided to become a full time caregiver for her mom. In a rare occasion, Meri discovered the unique power of color books to calm caregivers down. Stress relief is crucial to caregivers as well as people they are taking care of. Strokefocus has used her color books with a group of caregivers for stroke survivors. The response was overwhelmingly positive. In this episode, Meri also discusses her experience of self publishing. Find her book at https://www.amazon.com/Here-Love-Coloring-Book-Inspirational/dp/153949439X. Check Meri's site out at http://colormecaring.com
Strokefocus and its podcast, Hand in Hand is today's topic. In this episode, Cam interviews Nancy, Alison and Daniel to understand how Strokefocus started. Strokefocus started as Wohaula. In 2012, Daniel suffered a brainstem stroke before turning 41. Two fellow survivors made a tremendous difference to his recovery. One was Alison Shapiro. In 2002, Alison survived 2 brainstem strokes. Through her own remarkable recovery, she discovered that survivors could significantly improve the recovery outcome by effectively engaging themselves. She developed a program to help survivors. Daniel found Alison through the Internet. Alison coached Daniel in the most critical stage of his recovery. They never met in person. Yet the support significantly changed the course of Daniel's recovery outcome. Inspired by their own experience, in 2014, Daniel, his wife Hong, Alison and some friends started Wohaula, which meant I have survived in Mandarin. It is also known now as Strokefocus. In building Wohaula, Daniel found Nancy Weckwerth, who is a caregiver and author. Nancy devoted 26 years to take care of her husband John, who suffered a massive stroke at the height of his musical career. The team discussed their journey, Strokefocus and its unique philosophy. They also talked about its podcast program the Hand in Hand Show. Listen to episode to find out more...
The Hand in Hand show is a show designed and run by stroke survivors and caregivers. It is part of Strokefocus, formerly known as Wohaula. In this episode, co-host Kenny Carbullido talks about his own story. Kenny used to be a policeman and a comedian. At the age of 38, he suffered a stroke. He was in a wheelchair for over a year. In spite of enormous adversity, Kenny did not lose his optimism. He recovered 95% (his own estimate) and is now back to stage as a comedian. Listen to Kenny’s story.
The Hand in Hand show is a show designed and run by stroke survivors and caregivers. It is part of Strokefocus, formerly known as Wohaula. The Hand in Hand show features honest and real discussion by survivors and caregivers on stroke. It also welcomes new and local institutions serving the stroke and brain injury community to come onto the show. Host Cam Compton tells you her story as a stroke survivor and her remarkable recovery. Cam discovered a new self in the process. Listen to her story.