Podcasts about diabetes patient advocacy coalition

This week we talk about a major victory for patients regarding Copay Assistance Programs. We're joined by one of the major players in the lawsuit that made it happen, George Huntley, the CEO of the Diabetes Leadership Council and the Diabetes Patient Advocacy Coalition. He helps us break down why this was such a significant win for patients.  We also discuss the new Patients Rising working paper all about current formulary practices and how they're hurting patients..    Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the Patients Rising Helpline. Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: podcast@patientsrising.org The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest's current or previous employers.  

Erin Callahan, Chief Operating Officer for the Diabetes Patient Advocacy Coalition and the Diabetes Leadership Council, recaps what she noticed from the Senate HELP Committee Hearing on PBMs and Insulin; the Senate HELP Committee holds a markup on the Pharmacy Benefit Manager Reform Act, where an amendment was offered on step therapy; and Dr. Joanne Kaiser-Smith,  President of the American College of Osteopathic Internists, tells us the importance of the Senate's reintroduction of the Safe Step Act. Diabetes Patient Advocacy Coalition Webpage Diabetes Leadership Council Webpage News Release: Physicians Wenstrup, Ruiz Lead Reintroduction of Safe Step Act to Improve Patients Access to Treatments News Release: Senator Hassan and Colleagues Reintroduce Bipartisan Bill to Ensure That Patients Can Get the Medication They Need  

In this episode, Susan Elder and Glenn Pasewicz interview  Helen Khanzhina about the latest in a series of ongoing reports covering the Diabetes epidemic in Pennsylvania. Their conversion covers the associated  health risks of Covid-19 to people with Diabetes, the role of telehealth in treating the disease, and recent statistical trends. For more information see the full report, "Diabetes in Pennsylvania: Prevention and Maintenance Programs - Fifth Biennial Report," available on the JSGC website.  Advocacy Organizations and Educational Resources mentioned in this episode: Diabetes Action Network, Diabetes Patient Advocacy Coalition, Diabetes Sisters, JDRF, T1D Exchange, PA Dept. of Health, and the PA Dept. of Aging.Podcast music by Joseph McDade.

Time now for the third and final part of my conversation with Christel Marchand Aprigliano.  If you haven't yet listened to the first two parts of our chat, please go back after this episode and listen to them, because they are well worth your time. In this episode, we talk about Diabetes Patient Advocacy Coalition,or DPAC.  Christel and Bennet Dunlap started DPAC as a way to help amplify the voice of the patient to elected officials and policy makers.  They provide a slew of tools that empower friends, family, and fellow advocates to take action on a number of diabetes-centric issues.  Often, in less than one minute. Note: I volunteered with DPAC in 2016, and plan to do so again in 2017.  Also, I should mention that this interview was recorded after the November 2016 election, but prior to the beginning of the 115th U.S. Congress in 2017.   Thanks so much to Christel for sitting down for this conversation.  Enjoy, and get your advocacy on! Reference Material - Click below for more information on this topic Christel Marchand Aprigliano writes about diabetes at: ThePerfectD.com   You can connect with Diabetes Patient Advocacy Coalition, or DPAC, at: DiabetesPAC.org  

Welcome back to Diabetes By The Numbers. Today, I feature the second part of my conversation with Christel Marchand Aprigliano.  In this episode, we talk about one of the hot button issues of the day-- insulin pricing. We cover a recent meeting between insulin makers and diabetes advocates, and developments on pricing announced by two of those insulin makers since that meeting took place in November of 2016. ------------------------------------------------------------------------------------- Reference Material - Click below for more information Christel Marchand Aprigliano writes about diabetes at:ThePerfectD.com You can connect with Diabetes Patient Advocacy Coalition, or DPAC, at: DiabetesPAC.org © Stephen Shaul

I can't tell you how excited I am to finally share a conversation with Christel Marchand Aprigliano.  In three parts.   Christel, as I mention in the introduction, is a force in the diabetes world.  Until there isn't a diabetes world any longer, we can only hope to have advocates like her who get in the trenches and fight for the things that are important to those of us living with this disease.   In part two of our conversation, you'll hear about one of the hot topics of the day, insulin pricing, where roles are slightly reversed, and I'm the feisty one.  Part three will cover Diabetes Patient Advocacy Coalition, and how using the easy button can help you get your diabetes advocacy started, and up your diabetes advocacy, all in less than two minutes.  Those episodes are still to come, and you're not going to want to miss them.   Today, we talk about the unique gathering known as the Diabetes UnConference.  Christel covers all the things that make the UnConference life-affirming.  We discuss the No Social Media policy that exists during the sessions on Saturday and Sunday, and why that is so important to attendees.  And Christel admits that her intentions in creating the UnConference were not entirely altruistic (her words, not mine).  She needs it just as much as the rest of us.   If you’re in a place in your walk with diabetes where you could use some space to vent, or learn, share, and meet new friends, whether diabetes has been in your life for days, weeks, months, or years, this is the podcast episode you’ve been waiting to hear.   Full disclosure:  I will be a facilitator at the Diabetes UnConference in both locations this year.  I am not compensated in any way for this interview, except in the good vibes that come with going one on one with a person whom you admire and trust and learn from at every turn. Reference Material - Click below for more information on this topic Christel Marchand Aprigliano writes about life with diabetes at: theperfectd.com Find out everything about the Diabetes UnConference (and read experiences from attendees too), by going to: DiabetesUnConference.com The Diabetes UnConference will be held February 10, 11, and 12 at the Westin Las Vegas. Register by January 24 by going to: DiabetesUnConference.com/register

Christel Marchand Aprigliano returns to the podcast to chat about her experience attending the American Association of Diabetes Educators Conference, expanding the Diabetes UnConference to Atlantic City, and measuring the impact of policy advocacy efforts from the Diabetes Patient Advocacy Coalition (DPAC). Also, bowling. Follow Christel on Twitter @theperfectdblog. Learn more about the Diabetes UnConference at diabetesunconference.com and the Diabetes Patient Advocacy Coalition at diabetespac.org. Run Time - 58:23 Send your feedback to feedback@justtalkingpodcast.com.

Bennet Dunlap joins me this week to talk about the Pope's visit to Philadelphia, joining the AADE's planning committee, and as much about the Diabetes Patient Advocacy Coalition as we can fit into 45 minutes. If you have any interest in patient advocacy of any kind, this is a conversation for you. Learn more about the Diabetes Patient Advocacy Coalition at diabetespac.org. Follow Bennet on Twitter at @BadShoe and listen to him on DSMA Live 'Rents on BlogTalkRadio. Run Time - 50:48 Send your feedback to feedback@justtalkingpodcast.com.

DPAC is a new effort to make it easier for people with diabetes to communicate with policy makers. Co-founder Bennet Dunlap explains how Diabetes Patient Advocacy Coalition works and how we can all take part. Our Community Connection is with Stacey's cousin, Aaron. He shares his experience at JDRF Children's Congress this summer.