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Dr. Marissa Russo trained to become a cancer biologist. She spent four years studying one of the deadliest brain tumors in adults and built her entire research career around a simple, urgent goal: open her own lab and improve the odds for patients with almost no shot at survival. In 2024 she applied for an F31 diversity grant through the NIH. The reviewers liked her work. Her resubmission was strong. Then the grant system started glitching. Dates vanished. Study sections disappeared. Emails went silent. When she finally reached a program officer, the message was clear: scrub the DEI language, withdraw, and resubmit. She rewrote the application in ten days. It failed. She had to start over. Again. This time with her identity erased.Marissa left the lab. She found new purpose as a science communicator, working at STAT News through the AAAS Mass Media Fellowship. Her story captures what happens when talent collides with institutional sabotage. Not every scientist gets to choose a Plan B. She made hers count.RELATED LINKSMarissa Russo at STAT NewsNIH F31 grant story in STATAAAS Mass Media FellowshipContact Marissa RussoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
What happens when lived experience, science, and nonprofit leadership collide? In this episode, I sit down with Dr. Eugene Manley, Jr. to discuss health equity, cancer care gaps, and what it truly takes to design programs that serve communities that have been overlooked for far too long. We explore how focus, intentionality, and listening to the people most impacted can turn complex equity challenges into meaningful, measurable action. Episode Highlights 02:32 Dr. Manley's Personal Journey and Inspiration 04:01 Challenges in the Hospital System 05:24 Launching the STEM and Cancer Equity Foundation 06:18 Addressing Health Disparities and Patient Advocacy 10:11 The Importance of Early Exposure to STEM 11:01 Navigating Academia and Nonprofit Work 11:57 The Lung Cancer Health Equity Summit 16:03 Fiscal Sponsorship for Nonprofits 19:46 Defining and Addressing Health Equity 22:03 Challenges in Lung Cancer Clinical Trials My guest for this episode is Dr. Eugene Manley, Jr., PhD, MS. Dr. Eugene Manley, Jr., PhD, MS, is a biomedical scientist-turned-social impact leader and the Founder & CEO of the STEMM & Cancer Health Equity (SCHEQ) Foundation. He brings 20+ years across engineering, molecular and cell biology, nonprofit strategy, and workforce development, with prior leadership at leading cancer organizations. He had worked in development at the AACR, grant system administration at LCRF, and directed national STEM and workforce initiatives and health equity initiatives at LUNGevity Foundation. Through SCHEQ, he advances STEMM workforce diversity and patient-centered solutions across the cancer care continuum, producing health-literacy resources, convening cross-sector stakeholders, and leading the Lung Cancer Interventions Summit to drive practical, equity-focused outcomes for underserved communities. He serves on local, national, and international advisory boards advocating for Medicaid, rural, and historically marginalized patients. Dr. Manley serves on the Stony Brook Cancer Community Advisory Council, PCORI advisory panels focused on healthcare delivery and comparative clinical effectiveness, and has co-authored a perspective work with the American Cancer Society's National Lung Cancer Roundtable on compassion and stigma in lung cancer care. His lived experience, research background, outreach, and policy engagement inform a pragmatic approach to closing gaps in screening, biomarker testing, trial access, and survivorship. Connect with Dr. Eugene: https://www.linkedin.com/in/eugenemanleyjrphd https://www.linkedin.com/company/stemmcheq https://www.facebook.com/stemmcheq https://www.instagram.com/stemmcheq https://www.instagram.com/manleyeugene Sponsored Resource Join the Inspired Nonprofit Leadership Newsletter for weekly tips and inspiration for leading your nonprofit! Access it here >> Be sure to subscribe to Inspired Nonprofit Leadership so that you don't miss a single episode, and while you're at it, won't you take a moment to write a short review and rate our show? It would be greatly appreciated! Let us know the topics or questions you would like to hear about in a future episode. You can do that and follow us on LinkedIn.
Have you ever found yourself helping a loved one through a confusing medical situation and thought, "I wish I could do this full-time"? You're not alone. Many physicians are naturally drawn to patient advocacy and navigation, even if they don't yet realize it has a name or a career path. In this episode, I'm joined by Dr. Angie Ingraham, a former trauma surgeon and critical care physician who made a powerful career transition after her father's diagnosis with glioblastoma. Experiencing the healthcare system from the other side opened her eyes to the gaps patients and families face. That journey led her to launch True North Patient Advocates, where she now supports others through complex medical situations with clarity and compassion. Whether you've thought about becoming a patient advocate and navigator — or are simply curious about what this work actually involves — Angie shares the real-life steps she took to create a fulfilling and sustainable new path. In this episode we're talking about: How a personal family crisis led Dr. Ingraham to explore patient navigation The surprising barriers patients face, even with medical connections What professional patient advocates and navigators actually do and how physicians are uniquely qualified How she built her business without formal business training The variety of clients and services in her day-to-day work Financial considerations and typical rates for advocates Steps you can take to explore this path for yourself You can find the show notes for this episode and more information by clicking here: www.doctorscrossing.com/episode236 Links for this episode: Dr. Angie Ingram — True North Patient Advocates Greater National Advocates Directory Alliance of Professional Health Advocates - Offers a Boot Camp and 100-day program for business startup Health Advocate X Patient Advocate Certification Board National Association of Healthcare Advocacy Work Episode #68: Being a Patient Advocate is a Real Option Episode #156: How To Start A Side Gig Or Business As A Patient Navigator
Scott Capozza and I could have been cloned in a bad lab experiment. Both diagnosed with cancer in our early twenties. Both raised on dial-up and mixtapes. Both now boy-girl twin dads with speech-therapist wives and a lifelong grudge against insurance companies. Scott is the first and only full-time oncology physical therapist at Yale New Haven Health, which means if he catches a cold, cancer rehab in Connecticut flatlines. He's part of a small, stubborn tribe of providers who believe movement belongs in cancer care, not just after it. We talked about sperm banking in the nineties, marathon training during chemo, and what it means to be told you're “otherwise healthy” when your lungs, ears, and fertility disagree. Scott's proof that survivorship is not a finish line. It's an endurance event with no medals, just perspective.RELATED LINKSScott Capozza on LinkedIn: https://www.linkedin.com/in/scott-capozza-a68873257Yale New Haven Health: https://www.ynhh.orgExercising Through Cancer: https://www.exercisingthroughcancer.com/team/scott-capozza-pt-msptProfiles in Survivorship – Yale Medicine: https://medicine.yale.edu/news-article/profiles-in-survivorship-scott-capozzaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this powerful episode of Keeping Abreast, Dr. Jenn Simmons sits down with Taylor Dukes, former ICU nurse, functional health advocate, and founder of Taylor Dukes Wellness, to explore what happens when conventional medicine stops asking deeper questions.Taylor shares her journey from the ICU to facing her own brain tumor diagnosis, an experience that reshaped her understanding of health, healing, and the healthcare system. Together, she and Dr. Jenn discuss the emotional and spiritual toll carried by front line providers, the limitations of modern medical education, and why chronic and childhood illness have become increasingly normalized.This conversation highlights the role of nutrition, detoxification, stress management, and faith in healing, while emphasizing personal responsibility and advocacy in a toxic world. Taylor also shares how her family became part of her mission, creating accessible wellness solutions rooted in foundational health.
In this powerful episode of the Healing Pen and a Mic companion podcast, host Talaya Dendy sits down with Lisa Beckendorf, a celebrated cancer survivor and patient advocate.Lisa shares her personal journey through multiple cancer diagnoses and the pivotal moment she transitioned from a career in commercial real estate to full-time advocacy. Initially asking, "Why me?", she realized her experience was a powerful way to give back to the cancer community.This conversation dives into the transformative impact of journaling and storytelling in the healing process. Lisa highlights how the practice, central to the Healing Pen and a Mic Workshop offers emotional release, fosters deep community connections, and is a critical tool for personal growth.Whether you are navigating a diagnosis, supporting a loved one, or seeking to turn your personal story into powerful action, this episode offers invaluable insights on finding solace, strength, and purpose through writing and community.Support Our Mission / Partner With Us:Bring Healing to Your Community: Interested in hosting The Healing Pen and a Mic workshop in your city or organization? We'd love to partner with you!Sponsor Future Workshops: Help us continue offering these much-needed, workshops to the cancer community.For partnership or sponsorship inquiries, please email us at nctpodcastfan@gmail.com.
Ann Meyn started her advocacy in the 1990s, launching support groups and sharing the message of early detection. Even while facing aggressive treatments, she continued teaching, volunteering, and helping others understand cancer. With a scientific mindset, she shaped patient support and influenced research, guiding the next generation of advocates. Today, she joins Dorothy to reflect on their friendship and impact on The Rose’s community. Support The Rose HERE. Subscribe to Let’s Talk About Your Breasts on Apple Podcasts, Spotify, iHeart, and wherever you get your podcasts. Key Questions Answered 1. What was the Rosebuds group and why was it created?2. How did the Rose operate to serve both insured and uninsured women?3. Why were support groups for breast cancer patients so important?4. How did breast cancer treatment approaches change over time?5. What was Ann Meyn’s personal experience with breast cancer diagnosis and treatment?6. How have support group needs varied among different groups of women?7. How has patient advocacy in breast cancer research evolved, and why is it important?8. How has breast cancer detection and awareness changed, especially for younger women?9. What advances have been made in breast cancer research and treatment in recent years?10. What advice does Ann Meyn have for women regarding breast health?11. What is the psychological impact of support, both from groups and families, in the journey of breast cancer?12. What are the challenges for caregivers vs. being the patient?13. How can survivors and educators help reduce the stigma or fear around cancer for children and families?14. What changes occurred in support and treatment during and after the COVID-19 pandemic? Timestamped Overview 00:00 Passion Behind The Rose Concept 05:22 Reflecting on Terminal Cancer Cases 08:53 Breast Cancer Misdiagnosis Experience 11:43 Teaching Through Chemo Treatments 14:52 Patient Advocacy and Cancer Research 19:33 Advances in Cancer Diagnostics 20:41 Resilience, Discovery, and Complexity 24:31 Advances in Radiation Treatment 27:58 Complex Surgeries and Recovery 32:57 Taking Fear Away Through ConnectionSee omnystudio.com/listener for privacy information.
What Would It Take to Lose Every Civil Right You Have? Not a trial. Not a conviction. Not evidence of a crime.In America, all it takes is one person's opinion—dressed up in medical language and backed by institutional authority.Rachel Hunter walked into a hospital for a routine check. She walked out 38 days later, having been transferred between multiple psychiatric facilities, forcibly injected with antipsychotics, and stripped of her autonomy—all without her consent. Her crime? She'd been baptized. She felt at peace. She prayed for her neighbors. In this episode, Rachel shares what happened when a spiritual awakening was reinterpreted as a psychiatric emergency—and what she discovered when she started investigating the system that imprisoned her. This is a story about how easily your freedom can disappear. And about one woman who refused to stay silent. If you think this couldn't happen to you or someone you love, this episode will change your mind. Listen. Then share it with someone who needs to hear it. Visit Center for Integrated Behavioral HealthDr. Roger McFillin / Radically Genuine WebsiteYouTube @RadicallyGenuineDr. Roger McFillin (@DrMcFillin) / XSubstack | Radically Genuine | Dr. Roger McFillinInstagram @radicallygenuineContact Radically GenuineConscious Clinician CollectivePLEASE SUPPORT OUR PARTNERS15% Off Pure Spectrum CBD (Code: RadicallyGenuine)10% off Lovetuner click here
Joined by Nurse Nicole from www.nursesoutloud.com to discuss patient advocacy and how she got into legal nurse consulting. We discuss her journey through the medical system as a nurse and how that evolved into fighting at the local and state level for patient rights, informed consent, bodily autonomy, and legislation to protect people's right to choose. Follow Nicole on IG @hold_thelineclnc www.nursesoutloud.com and Nurses Out Loud podcast
In this episode of On Rare Innovators, Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, and David Rintell, Head of Patient Advocacy at BridgeBio, talk with Nasha Fitter, a parent, entrepreneur, and rare disease leader whose determination was reshaped the day her daughter Amara was diagnosed with FOXG1 syndrome. Drawing on a career defined by bold pivots and purpose-driven problem solving, Nasha is challenging long-held assumptions about what small, rare disease communities can achieve. From building the FOXG1 Research Foundation to co-founding Citizen Health, she has pushed for new models of data, drug development, and patient empowerment. Nasha's story is a reminder that innovation often begins with a single question: “Who says we can't do this?”
When Sandy was diagnosed with MG at age 60, she was forced to retire early, leaving behind the job she loved and facing her golden years with unanticipated hurdles. Now 15 years later, Sandy spends her days organizing her local support group, enjoying lunches with her friends, and attending her grandson's sporting events. MG may have thrown a wrench in her retirement plans, but it can’t slow her down for long.See omnystudio.com/listener for privacy information.
Dr. MaryAnn Wilbur trained her whole life to care for patients, then left medicine behind when it became a machine that punished empathy and rewarded throughput. She didn't burn out. She got out. A gynecologic oncologist, public health researcher, and no-bullshit single mom, MaryAnn walked straight off the cliff her career breadcrumbed her to—and lived to write the book.In this episode, we talk about what happens when doctors are forced to choose between their ethics and their employment, why medicine now operates like a low-resource war zone, and how the system breaks the very people it claims to elevate. We cover moral injury, medical gaslighting, and why she refused to lie on surgical charts just to boost hospital revenue.Her escape plan? Tell the truth, organize the exodus, and build something that actually works. If you've ever wondered why your doctor disappeared, this is your answer. If you're a clinician hiding your own suffering, this is your permission slip.RELATED LINKSMaryAnn Wilbur on LinkedInMedicine ForwardClinician Burnout FoundationThe Doctor Is No Longer In (Book)Suck It Up, Buttercup (Documentary)FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
We're looking at some major policy issues happening in Washington, and what you can really do to effect change. George Huntley is the CEO of DPAC, the Diabetes Patient Advocacy Coalition. We've got a lot to cover: Medicare changes like competitive bidding that could dramatically limit access to CGMs and insulin pumps for seniors, the changing landscape around GLP 1 meds, and we talk about patient advocacy wins. I know some of you are cynical, but it can work. If you've ever thought your voice doesn't matter, this conversation may change your mind. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Announcing Community Commericals! Learn how to get your message on the show here. Learn more about studies and research at Thrivable here Please visit our Sponsors & Partners - they help make the show possible! Learn more about Gvoke Glucagon Gvoke HypoPen® (glucagon injection): Glucagon Injection For Very Low Blood Sugar (gvokeglucagon.com) Omnipod - Simplify Life Learn about Dexcom Check out VIVI Cap to protect your insulin from extreme temperatures The best way to keep up with Stacey and the show is by signing up for our weekly newsletter: Sign up for our newsletter here Here's where to find us: Facebook (Group) Facebook (Page) Instagram Check out Stacey's books! Learn more about everything at our home page www.diabetes-connections.com Reach out with questions or comments: info@diabetes-connections. Keywords Diabetes, D-PAC, Medicare, GLP-1 medications, patient advocacy, healthcare access, insulin pumps, CGMs, diabetes technology, legislative reform AI info below: Summary In this conversation, George Huntley, CEO of the Diabetes Patient Advocacy Coalition (D-PAC), discusses the critical role of advocacy in improving diabetes care and access to technology. He highlights the challenges faced by patients, particularly regarding Medicare coverage for insulin pumps and continuous glucose monitors (CGMs), and the implications of recent legislative changes. The discussion also covers the potential of GLP-1 medications in diabetes management and the importance of patient stories in advocacy efforts. Takeaways D-PAC focuses on affordable and equitable access to diabetes care. Advocacy is crucial for influencing healthcare policies. Competitive bidding for diabetes technology could limit access for seniors. Patient stories are essential in legislative advocacy. GLP-1 medications show promise in reshaping diabetes treatment. Economic factors play a significant role in healthcare access. The aging population of type 1 diabetes patients requires urgent attention. Collaboration among advocacy groups is vital for success. Healthcare costs are driven more by major medical expenses than by drug prices. Continued advocacy is necessary to protect patient access to care. Chapters 00:00 Introduction to Diabetes Advocacy 03:01 The Role of D-PAC in Diabetes Care 05:53 Challenges in Medicare Coverage for Diabetes Technology 09:11 The Impact of Competitive Bidding on Seniors 11:55 Advocacy Efforts and Legislative Challenges 14:57 The Future of GLP-1 Medications 17:56 Economic Implications of Diabetes Management 21:01 The Importance of Patient Advocacy 23:59 Healthcare Costs and Insurance Dynamics 26:56 The Need for Continued Advocacy 29:54 Conclusion and Call to Action
Episode 5 of Standard Deviation with Oliver Bogler on the Out of Patients podcast feed pulls you straight into the story of Dr Ethan Moitra, a psychologist who fights for LGBTQ mental health while the system throws every obstacle it can find at him.Ethan built a study that tracked how COVID 19 tore through an already vulnerable community. He secured an NIH grant. He built a team. He reached 180 participants. Then he opened an email on a Saturday and learned that Washington had erased his work with one sentence about taxpayer priorities. The funding vanished. The timeline collapsed. His team scattered. Participants who trusted him sat in limbo.A federal court eventually forced the government to reinstate the grant, but the damage stayed baked into the process. Ethan had to push through months of paperwork while his university kept the original deadline as if the shutdown had not happened. The system handed him a win that felt like a warning.I brought Ethan on because his story shows how politics reaches into science and punishes the people who serve communities already carrying too much trauma. His honesty lands hard because he names the fear now spreading across academia and how young scientists question whether they can afford to care about the wrong population.You will hear what this ordeal did to him, what it cost his team, and why he refuses to walk away.RELATED LINKSFaculty PageNIH Grant DetailsScientific PresentationBoston Globe CoverageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Send us a textIn this eye-opening episode, Dr. Amols tackles a question most patients are too embarrassed to ask out loud: Does getting a second opinion mean you're cheating on your fertility doctor?Inspired by a real patient interaction, he breaks down why fertility care feels so personal, why patients often feel guilty seeking outside input, and why no confident doctor should ever take it personally. You'll hear how second opinions can validate your plan, reveal new options, and ultimately strengthen your confidence — not sabotage your treatment.You'll learn: • Why fertility patients feel “loyalty pressure” • Why two good doctors can disagree and both be right • When a second opinion is helpful (and when it's panic shopping) • What records to bring and what questions to ask • The red flags that mean you're in the wrong clinic • How to advocate for yourself without the guiltThis episode is your permission slip to put your peace of mind first. Your journey deserves clarity — not loyalty tests.Thanks for tuning in to another episode of 'Taco Bout Fertility Tuesday' with Dr. Mark Amols. If you found this episode insightful, please share it with friends and family who might benefit from our discussion. Remember, your feedback is invaluable to us – leave us a review on Apple Podcasts, Spotify, or your preferred listening platform. Stay connected with us for updates and fertility tips – follow us on Facebook. For more resources and information, visit our website at www.NewDirectionFertility.com. Have a question or a topic you'd like us to cover? We'd love to hear from you! Reach out to us at TBFT@NewDirectionFertility.com. Join us next Tuesday for more discussions on fertility, where we blend medical expertise with a touch of humor to make complex topics accessible and engaging. Until then, keep the conversation going and remember: understanding your fertility is a journey we're on together.
Join host Talaya Dendy on Navigating Cancer TOGETHER for another inspiring conversation with the truly remarkable Wenora Johnson.Wenora is a three-time cancer survivor (colorectal, endometrial, and basal cell carcinoma) and a passionate patient and research advocate. In this episode, she shares her incredible, decades-long journey and how her background in the Navy instilled the grit and discipline she needed to face these health challenges.What You'll Learn:Lynch Syndrome & Genetic Testing: Wenora discusses the pivotal role that genetic testing and the discovery of Lynch syndrome played in her early detection and survival. This segment is a must-listen for anyone considering testing.The Power of Policy Change: Hear about Wenora's dedicated work in patient advocacy, including her efforts to push for policy changes that would lower the recommended age for initial colonoscopies.Self-Advocacy & Resilience: Get real-world advice on how to stand up for yourself in the healthcare system and how Wenora harnessed her inner resilience to overcome multiple diagnoses.Caregiving Insights: The conversation touches on the often-overlooked challenges and realities faced by caregivers.Whether you are a patient, a caregiver, or simply looking for a story of extraordinary determination, Wenora's insights and message of hope are invaluable. Don't miss this episode!✨Episode Highlights:02:12 Meet Wenora Johnson: A Three-Time Survivor06:22 The Impact of Lynch Syndrome on Her Journey10:08 Why Genetic Testing Is So Important16:04 Fighting for Change: Advocacy and Policy33:00 Understanding Caregiving Challenges36:19 Tips for Self-Advocacy and Building Resilience43:19 Wenora's Final Thoughts and Resources (FORCE)Transcript: https://bit.ly/podscript177Resource: FORCE, https://www.facingourrisk.org/about-usInspired by Wenora's resilience? Start your journey with calm. Download your FREE Guided Meditation: "Calming Your Mind After a Cancer Diagnosis." Get inner peace now! https://www.ontheotherside.life/guidedmeditation
Chelsea J. Smith walks into a studio and suddenly I feel like a smurf. She's six-foot-three of sharp humor, dancer's poise, and radioactive charm. A working actor and thyroid cancer survivor, Chelsea is the kind of guest who laughs while dropping truth bombs about what it means to be told you're “lucky” to have the “good cancer.” We talk about turning trauma into art, how Shakespeare saved her sanity during the pandemic, and why bartending might be the best acting class money can't buy. She drops the polite bullshit, dismantles survivor guilt with punchline precision, and reminds every listener that grace and rage can live in the same body. If you've ever been told to “walk it off” while your body betrayed you, this one hits close.RELATED LINKS• Chelsea J. Smith Website• Chelsea on Instagram• Chelsea on Backstage• Chelsea on YouTube• Cancer Hope Network• Artichokes and Grace – Book by Chelsea's motherFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode of the Let's Talk Brain Health Podcast, we are joined by Dr. Jin Hyung Lee, Ph.D., a pioneering neuroscientist, Stanford professor, and founder of LVIS Corporation. Dr. Lee introduces NeuroMatch, a groundbreaking technology that creates live digital twins of brain function to revolutionize brain healthcare. She shares her personal journey from electrical engineering to neuroscience, inspired by her grandmother's stroke, and discusses the intersection of technology and brain health. Discover how NeuroMatch can diagnose and treat conditions like epilepsy, autism, and Alzheimer's, potentially transforming the way we understand and manage brain health. Learn about the importance of sleep, preventative care, and how AI could make brain health accessible to all. Tune in to explore the future of neuroscience, AI, and personalized brain healthcare.00:00 Introduction to Dr. Jin Lee and NeuroMatch00:42 Dr. Lee's Personal Journey into Neuroscience01:25 The Intersection of Electrical Engineering and Brain Health02:49 Developing NeuroMatch: From Lab to Clinic03:52 The Future of Brain Health Monitoring05:05 How NeuroMatch Works07:33 Collaborations and Inspirations09:56 Patient Advocacy and Real-World Impact12:25 Artificial Intelligence and Energy Efficiency17:53 Future of Neuro Match in Healthcare24:41 Rapid Fire Questions and Final ThoughtsResources:Explore more about Dr. Lee and her work on her lab's website Learn from Dr. Lee in one of her TedX talks from her websiteSee the Invisible: Innovating How Neurological Diseases Are Examined with NeuroMatch and LVIS on their websites.
When Julia Stalder heard the words ductal carcinoma in situ, she was told she had the “best kind of breast cancer.” Which is like saying you got hit by the nicest bus. Julia's a lawyer turned mediator who now runs DCIS Understood, a new nonprofit born out of her own diagnosis. Instead of panicking and letting the system chew her up, she asked questions the industry would rather avoid. Why do women lose breasts for conditions that may never become invasive? Why is prostate cancer allowed patience while breast cancer gets the knife? We talked about doctors' fear of uncertainty, the epidemic of overtreatment, and what happens when you build a movement while still in the waiting room. Funny, fierce, unfiltered—this one sticks.RELATED LINKS• DCIS Understood• Stalder Mediation• Julia's story in CURE Today• PreludeDx DCISionRT feature• Julia on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Send us a textDr. Matt Fontaine is a lifelong athlete with over 24 years of experience as a sports chiropractor. His private practice in integrative physical medicine focuses on an accurate diagnosis, rapid recovery, and peak performance. He has served as a sports chiropractor in Major League Baseball and with the ART Ironman Triathlon Medical team. He completed his residency at the Texas Back Institute and has spent the last decade-plus serving a patient community that includes men and women of the U.S. armed forces, veterans, and other governmental agencies. In this episode, Dr. Fontaine discusses the common missteps patients make regarding musculoskeletal issues, often leading them to primary care providers lacking the necessary expertise. He emphasized the need for better communication and collaboration among healthcare providers. The conversation also touches on systemic issues within traditional insurance models, highlighting the importance of integrative practices that prioritize patient needs and improve outcomes.The discussion further explores the significance of preventative care in athletics and the advancements in regenerative medicine, such as platelet-rich plasma and stem cell therapies. For more on Dr. Fontaine: Book: "ONLY ONE BODY: Your Owner's Manual for Optimal Health and Peak Performance for Life" Website: https://drmattfontaine.com/Sponsored by BluApple: https://thebluapple.com?sca_ref=8837292.HZGjjNgCncCode: Brandi15
What if the biggest multiplier for your health isn't another supplement—but presence? In this conversation, Carrie sits down with Dr. Marisa Catapano, a licensed Naturopathic Doctor (ND), Fellow of the American Board of Naturopathic Oncology (FABNO) and certified Neo Emotional Release Practitioner specializing in holistic healing, emotional wellbeing and integrative cancer care to explore how somatic work helps the body complete “stuck” emotional loops and why that matters for everything from thyroid and gut issues to integrative cancer care.You'll hear:What Neo-Emotional Release is (a somatic, integrative approach drawing from parts work, breathwork, Traditional Chinese Medicine, and more)How “emotions as energy in motion” get interrupted and where that shows up in the bodyWhy presence often needs to come before (or alongside) protocols, labs, and biohacksGentle, everyday practices to build presence into what you're already doing (no extra time required)A compassionate look at oncology: safety, timing, and real stories of hope and reconnectionThe difference between chasing symptoms and listening for what the body is trying to solveIf you've “done all the things” and still don't feel well ~ or if you sense there's a deeper root you haven't touched ~ this episode will meet you with curiosity, clarity, and practical next steps.Connect with MarisaWebsite: https://www.marisacatapanond.com/IG: https://www.instagram.com/dr.marisa.catapano/LinkedIn: https://www.linkedin.com/in/marisa-catapano/About MarisaDr. Marisa Catapano, ND, is a naturopathic doctor specializing in integrative support for oncology patients and individuals navigating complex gut, digestive, and treatment-related symptoms. With a background in working closely alongside oncology teams, she combines evidence-based natural medicine with deep compassion—addressing both the physical and emotional layers of healing. Marisa is dedicated to meeting patients exactly where they are and empowering them with personalized tools, gentle guidance, and whole-person care.Follow Carrie on:Instagram: https://www.instagram.com/carriechojnowski/Facebook: https://www.facebook.com/carrie.o.chojnowskiVisit https://thrivewithcarrie.com/ to book a free discovery call!See you next time!Disclaimer: The information provided in this podcast is for entertainment and educational purposes only and is not intended to replace professional medical advice, diagnosis, or treatment.
Dr. Rachel Gatlin entered neuroscience with curiosity and optimism. Then came chaos. She started her PhD at the University of Utah in March 2020—right as the world shut down. Her lab barely existed. Her advisor was on leave. Her project focused on isolation stress in mice, and then every human on earth became her control group. Rachel fought through supply shortages, grant freezes, and the brutal postdoc job market that treats scientists like disposable parts. When her first offer vanished under a hiring freeze, she doubled down, rewrote her plan, and won her own NIH training grant. Her story is about survival in the most literal sense—how to keep your brain intact when the system built to train you keeps collapsing.RELATED LINKS• Dr. Rachel Gatlin on LinkedIn• Dr. Gatlin's Paper Preprint• Dr. Eric Nestler on Wikipedia• News Coverage: Class of 2025 – PhD Students Redefine PrioritiesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
EPISODE DESCRIPTIONBefore she was raising millions to preserve fertility for cancer patients, Tracy Weiss was filming reenactments in her apartment for the Maury Povich Show using her grandmother's china. Her origin story includes Jerry Springer, cervical cancer, and a full-body allergic reaction to bullshit. Now, she's Executive Director of The Chick Mission, where she weaponizes sarcasm, spreadsheets, and the rage of every woman who's ever been told “you're fine” while actively bleeding out in a one-stall office bathroom.We get into all of it. The diagnosis. The misdiagnosis. The second opinion that saved her life. Why fertility preservation is still a luxury item. Why half of oncologists still don't mention it. And what it takes to turn permission to be pissed into a platform that actually pays for women's futures.This episode is blunt, hilarious, and very Jewish. There's chopped liver, Carrie Bradshaw slander, and more than one “fuck you” to the status quo. You've been warned.RELATED LINKSThe Chick MissionTracy Weiss on LinkedInFertility Preservation Interview (Dr. Aimee Podcast)Tracy's Story in Authority MagazineNBC DFW FeatureStork'd Podcast EpisodeNuDetroit ProfileChick Mission 2024 Gala RecapFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode of 'Confessions of a Terrible Leader', Layci Nelson speaks with Dana Sherwin about her framework, the Thinking Patient, which empowers individuals to take charge of their healthcare. Dana shares her personal health journey, emphasizing the importance of patient engagement, preparation, and effective communication with healthcare providers. The conversation highlights the need for patients to be proactive, ask questions, and participate actively in their health decisions, ultimately leading to better health outcomes. Dana also reflects on her leadership experiences and the lessons learned from her health challenges.Takeaways:Being engaged in your care leads to better health outcomes.Preparation is crucial for effective communication with healthcare providers.Patients should be the CEO of their own health.Understanding medical language enhances patient advocacy.Asking questions is essential for informed health decisions.Courage in healthcare can be built gradually.Active participation in appointments improves patient experiences.Trustworthy health information comes from reputable sources.Communication skills are vital for healthcare leaders.Learning from personal health experiences can inform better patient care.Chapters00:00 Introduction to the Thinking Patient Framework02:55 Dana's Personal Health Journey06:00 The Importance of Patient Engagement08:57 Preparing for Medical Appointments11:38 Understanding Medical Language15:00 The Art of Questioning17:40 Active Participation in Healthcare20:42 Building Courage in Health Advocacy23:39 Dana's Leadership Confession26:38 Conclusion and ResourcesEPISODE LINKS:https://www.thethinkingpatient.com/abouthttps://www.linkedin.com/in/desherwin/
This week, we meet members of the Minneapolis VA Health Care System’s Patient Advocate Team and learn that the Patient Advocacy Program is for all Veterans and their families who receive care at VA health care facilities. What can the patient advocate do? What are their limitations? And what do patients bring into the relationship […] The post Minneapolis VA Patient Advocacy Team appeared first on Minnesota Military Radio.
After closing her beloved yoga studio and losing her mother, Tanya Chiu was faced with a new challenge–she was diagnosed with myasthenia gravis. Her story is one of resilience, reclaiming purpose and rediscovering joy when life takes an unexpected turn.See omnystudio.com/listener for privacy information.
EPISODE DESCRIPTION:Libby Amber Shayo didn't just survive the pandemic—she branded it. Armed with a bun, a New York accent, and enough generational trauma to sell out a two-drink-minimum crowd, she turned her Jewish mom impressions into the viral sensation known as Sheryl Cohen. What started as one-off TikToks became a career in full technicolor: stand-up, sketch, podcasting, and Jewish community building.We covered everything. Jew camp lore. COVID courtship. Hannah Montana. Holocaust comedy. Dating app postmortems. And the raw, relentless grief that comes with being Jewish online in 2025. Libby's alter ego lets her say the quiet parts out loud, but the real Libby? She's got receipts, range, and a righteous sense of purpose.If you're burnt out on algorithm-friendly “influencers,” meet a creator who actually stands for something. She doesn't flinch. She doesn't filter. And she damn well earned her platform.This is the most Jewish episode I've ever recorded. And yes, there will be guilt.RELATED LINKSLibby's Website: https://libbyambershayo.comInstagram: https://www.instagram.com/libbyambershayoTikTok: https://www.tiktok.com/@libbyambershayoLinkedIn: https://www.linkedin.com/in/libby-walkerSchmuckboys Podcast: https://jewishjournal.com/podcasts/schmuckboysForbes Feature: Modern Mrs. Maisel Vibes https://www.forbes.com/sites/joshweissMedium Profile: https://medium.com/@libbyambershayoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform.For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
When the system kills a $2.4 million study on Black maternal health with one Friday afternoon email, the message is loud and clear: stop asking questions that make power uncomfortable. Dr. Jaime Slaughter-Acey, an epidemiologist at UNC, built a groundbreaking project called LIFE-2 to uncover how racism and stress shape the biology of pregnancy. It was science rooted in community, humanity, and truth. Then NIH pulled the plug, calling her work “DEI.” Jaime didn't quit. She fought back, turning her grief into art and her outrage into action. This episode is about the cost of integrity, the politics of science, and what happens when researchers refuse to stay silent.RELATED LINKS• The Guardian article• NIH Grant• Jaime's LinkedIn Post• Jaime's Website• Faculty PageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Palliative care isn't “giving up”—it's teaming up. Nurse practitioner Minerva Sabine explains how comfort, clarity, and support can begin from day one of a serious diagnosis—not just at the end. In this conversation, she demystifies palliative care, outlines who can benefit, and shares how early involvement can ease stress for both patients and families.You'll learn how palliative teams coordinate with doctors, manage symptoms, and guide meaningful conversations about goals and values. Minerva also shares powerful real-world stories that highlight the difference this approach makes in quality of life and peace of mind.Timestamps0:00 - Intro3:25 - What palliative care really is—and how it differs from hospice7:10 - When to involve palliative care and what families can expect10:45 - The interdisciplinary team: medicine, emotion, and spirit14:20 - Common misconceptions and real patient stories18:30 - How palliative care supports families and improves quality of lifeWhat's NextIf palliative care might help you or a loved one, start by asking your doctor for a referral. Visit The Conversation Project to explore free guides that help families talk about wishes and values before a crisis.Stay connected with Seniority Authority on Facebook and Instagram for more practical, positive conversations about growing older with purpose.
Greg's journey with LMNA cardiomyopathy, a rare inherited heart condition, began in high school when he experienced sudden episodes of rapid, irregular heartbeats during track practice. The cause remained a mystery for years, leading to misdiagnoses and untreated disease progression. During that time, Greg faced life-threatening arrhythmias and required several implanted devices before finally receiving a heart transplant. That experience, and the challenges that came before it, ultimately inspired his passion to create change and help others facing the same uncertainty. In this episode of On Rare, David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, speak with Greg about the long road to diagnosis, the emotional impact of learning he had passed the condition on to his children, and his transformation into an advocate as president of the DCM Foundation. He also shares how his personal experience led to the launch of Everygene, a free genetic testing program for people with cardiomyopathies. Dr. Clayton Beard, Chief Scientific Officer at BridgeBio Gene Therapy, provides a high-level medical overview of LMNA-related dilated cardiomyopathy, a form of heart disease caused by mutations in the LMNA gene that compromise the structural integrity of heart cells and disrupt electrical signaling. He explains how these changes can cause dangerous arrhythmias, weaken the heart muscle, and lead to heart failure, making LMNA cardiomyopathy one of the most severe genetic forms of the condition. Dr. Beard also highlights the importance of early genetic testing for at-risk families, the role of research in improving detection and treatment, and how a better understanding of LMNA can lead to life-saving interventions.
In this essential and empathetic episode of Navigating Cancer TOGETHER, host Talaya Dendy welcomes Amy Chastain, a seasoned caregiver and Registered Nurse, author, and tireless caregiver advocate. Amy shares wisdom from decades of experience, navigating the complexities of caregiving not only in her professional life but also through personal challenges.We dive deep into "the invisible job" that so many undertake: the role that is often exhausting, unacknowledged, and challenging to both the mind and the spirit.Why You Need to Listen:This conversation is a lifeline for caregivers, family members, and anyone who wants to know how to truly support someone through illness. You will gain:Validation: A powerful discussion on the intense emotional, spiritual, and personal grief that comes with being a caregiver.Wisdom: Honest advice on why asking for help is essential, and how to prepare for future caregiving roles.Empowerment: Strategies for holding onto yourself, your fun, and your identitywhen the demands of caregiving threaten to erase them.Advocacy: Insights on how to erase the stigma surrounding illness and caregiving so that everyone feels seen and supported.✨Episode Highlights:06:58 The Emotional Journey of Caregiving: Understanding the Invisible Burden10:15 The Importance of Asking for Help (And How to Actually Do It)12:53 Understanding Grief from Multiple Perspectives (The patient's, the caregiver's, the family's)20:31 Spiritual Challenges in Caregiving27:06 The Invisible Caregiver: The risk of losing yourself vs. Holding Onto Yourself (28:13)35:57 Advice on Preparing for Future Caregiving Roles43:36 Erasing the Stigma Around Caregiving and IllnessTranscript: https://bit.ly/podscript176Connect & Engage with Amy:Website: https://amychastain.comBook: https://a.co/d/btOgK9vInstagram: https://www.instagram.com/amychastain_author/Facebook: https://www.facebook.com/amychastainauthor/Let us know what you think about this episode. Send an email to nctpodcastfan@gmail.comSubscribe or follow Navigating Cancer TOGETHER on your favorite podcast app or platform so you never miss a life-changing conversation.Sponsor: This episode is brought to you by Laya's Haven Calming Health & Wellness Coaching. Thank you for your support!Hosted, Produced, Written, and Edited by: Talaya DendyDisclaimer: The information on this podcast is for general informational purposes only and SHOULD NOT be used as a substitute for sound professional medical advice, evaluation, or care from your physician or other qualified health care provider.Hosted by Ausha. See ausha.co/privacy-policy for more information.
Welcome to another insightful episode of the Legal Nurse Podcast with your host, Pat Iyer. Today, we're diving into one of the most critical—and challenging—roles nurses play: patient advocacy. Pat Iyer is joined by Catherine Andrades, a seasoned critical care nurse, rapid response team member, ballet instructor, and self-proclaimed houseplant negotiator. Together, they explore not only the ethical foundations that require nurses to advocate fiercely for their patients, but also the complex realities nurses face when standing up for those in their care. In this episode, Catherine Andrades brings real-world experience from the ICU, sharing hard-hitting stories of rapid response scenarios, the dangers of nurse burnout, and the haunting impact of workplace bullying. She and Pat Iyer unpack the power structures within healthcare, how policies sometimes fail at the bedside, and why patient advocacy is more important than ever—especially when facing intimidating colleagues or unresponsive physicians. Listen in as they discuss practical strategies for navigating the chain of command, uncovering hidden patterns in medical records, and protecting both patients and nurses from catastrophic outcomes. Whether you're a nurse, an attorney, or a legal nurse consultant, you'll come away with crucial insights into how advocating for patients isn't just a professional duty—it's a matter of life and death. What you'll learn in this episode on Mastering Money Mindset: Here are five intriguing questions that this podcast answers: Where does the nurse's role as a patient advocate originate, and how is it defined by the American Nurses Association? What are the consequences when nurses fail to act as patient advocates, especially in critical situations? How does bullying or intimidating behavior by physician's impact patient safety and nursing advocacy? What steps should nurses take when a physician does not respond or refuses to assist with an escalating patient emergency? How can legal nurse consultants identify issues of failed advocacy or chain of command breakdowns when reviewing medical records in malpractice cases? Listen to our podcasts or watch them using our app, Expert.edu, available at legalnursebusiness.com/expertedu. Get the free transcripts and also learn about other ways to subscribe. Go to Legal Nurse Podcasts subscribe options by using this short link: http://LNC.tips/subscribepodcast. https://youtu.be/IW7Vpo0vCpc Grow Your LNC Business 12th LNC SUCCESS® ONLINE CONFERENCE November 13, 14 & 15, 2025 Gain Specialized Skills That Attorneys Value Learn advanced techniques in deposition analysis, case screening, and report writing to provide high-impact services that attorneys need and trust. Stay Competitive with Cutting-Edge Strategies Discover how AI tools, LinkedIn marketing, and expert insights can help you streamline your workflow, attract more clients, and position yourself as a top-tier LNC. Build Meaningful Connections with Experts & Peers Network with experienced LNCs, attorneys, and industry leaders who can provide guidance, referrals, and opportunities to grow your legal nurse consulting business. Register now- Limited spots available Your Presenters for Patient Advocacy Under Pressure: Navigating Bullying, Burnout, and Chain of Command in Hospitals Pat Iyer Pat Iyer is a seasoned legal nurse consultant and business coach renowned for her expertise in guiding new legal nurse consultants to successfully break into the field. As the host of the Legal Nurse Podcast, Pat addresses critical challenges that legal nurse consultants face, such as difficulty in landing clients and lack of response from attorneys. Through her insightful episodes, she emphasizes the importance of effectively communicating one's value to potential clients. With a wealth of experience, Pat has empowered countless consultants to overcome these...
EPISODE DESCRIPTIONAllison Applebaum was supposed to become a concert pianist. She chose ballet instead. Then 9/11 hit, and she ran straight into a psych ward—on purpose. What followed was one of the most quietly revolutionary acts in modern medicine: founding the country's first mental health clinic for caregivers. Because the system had decided that if you love someone dying, you don't get care. You get to wait in the hallway.She's a clinical psychologist. A former dancer. A daughter who sat next to her dad—legendary arranger of Stand By Me—through every ER visit, hallway wait, and impossible choice. Now she's training hospitals across the country to finally treat caregivers like patients. With names. With needs. With billing codes.We talked about music, grief, psycho-oncology, the real cost of invisible labor, and why no one gives a shit about the person driving you to chemo. This one's for the ones in the waiting room.RELATED LINKSAllisonApplebaum.comStand By Me – The BookLinkedInInstagramThe Elbaum Family Center for Caregiving at Mount SinaiFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Trent was a new father when his life changed overnight, losing the ability to walk, speak or even lift a phone. He spent years in a wheelchair before finding his way back through sport and self-advocacy. Join Martine as Trent shares how he went from paralysis to paratriathlete.See omnystudio.com/listener for privacy information.
EPISODE DESCRIPTIONRebecca V. Nellis never meant to run a nonprofit. She just never left. Twenty years later, she's still helming Cancer and Careers after a Craigslist maternity-leave temp job turned into a lifelong mission.In this 60-minute doubleheader, we cover everything from theater nerdom and improv rules for surviving bureaucracy, to hanging up on Jon Bon Jovi, to navigating cancer while working—or working while surviving cancer. Same thing.Rebecca's path is part Second City, part Prague hostel, part Upper East Side grant writer, and somehow all of that makes perfect sense. She breaks down how theater kids become nonprofit lifers, how “sample sale feminism” helped shape a cancer rights org, and how you know when the work is finally worth staying for.Also: Cleavon Little. Tap Dance Kid. 42 countries. And one extremely awkward moment involving a room full of women's handbags and one very confused Matthew.If you've ever had to hide your diagnosis to keep a job—or wanted to burn the whole HR system down—this one's for you.RELATED LINKSCancer and CareersRebecca Nellis on LinkedIn2024 Cancer and Careers Research ReportWorking with Cancer Pledge (Publicis)CEW FoundationI'm Not Rappaport – Broadway InfoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship opportunities, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Did you know that blocked fallopian tubes can be UNBLOCKED? Very often, women who discover blocked fallopian tubes during an HSG hear that their only option is to go on to IVF, but that's not the only path forward. There are actually ways to restore the healthy function of blocked tubes through a very simple procedure. Dr. Naomi Whittaker joins us today to talk about this easy approach and give you helpful information as you advocate for your own care! In this episode, she discusses:· The limited amount of information available as to why tubes get blocked and how prevalent the problem is· pain prevention and management for HSG· the procedure that is MORE helpful than a standard HSG· why this procedure is so effective· how you can talk with your doctor about it and who is trained in this procedureNOTE: This episode does discuss briefly trauma of medical procedures, but should be appropriate for most audiences.GUEST BIO: Dr. Whittaker is a Pennsylvania-based board certified OBGYN and fellowship-trained surgeon who specializes in the Creighton model system and NaPro technology, which works cooperatively with a woman's body to treat the underlying cause of gynecologic issues and infertility, such as endometriosis and PCOS. She created the Restorative Reproductive Medicine Academy and has dedicated her practice to women's restorative reproductive medicine, compassionate healthcare, and education.HELPFUL LINKS:RRM Academy @napro_fertility_surgeon on InstagramEp. 97: Ovarian Cysts, with Dr. Naomi Whittaker, MD, CFCMCEp. 139: Preventing scarring, adhesions, and repeat endometriosis surgery, with Dr. Naomi WhittakerSend us a textSupport the showOther great ways to connect with Woven Natural Fertility Care: Learn the Creighton Model System with us! Register here! Get our monthly newsletter: Get the updates! Chat about issues of fertility + faith: Substack Follow us on Instagram: @wovenfertility Watch our episodes on YouTube: @wovenfertility Love the content? The biggest gift you could give is to click a 5 star review and write why it was so meaningful! This podcast is provided for educational and informational purposes only and does not constitute providing medical advice or professional services. The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. Always seek the advice of your doctor or other qualified health provider regarding a medical condition. If you think you may have a medical emergency, call 911 or go to the nearest emergency room immediately. Neither Woven nor its staff, nor any contributor to this podcast, makes any represe...
Frightening statistics show that one in four older patients experience harm in hospitals, often from preventable medication errors, infections, or misdiagnoses. Your life, or the life of a loved one, can depend on knowing how to advocate for proper care when the system fails. In this episode, I speak with Dr. Julie Siemers, a nurse educator with 40 years of experience, about navigating the complex and sometimes hazardous hospital environment. She reveals the top causes of patient harm and gives practical, life-saving strategies to ensure you or your family members receive the safe, effective care you deserve. We discuss the simple questions you should ask about medications, how to insist on basic safety protocols, and what to do when you feel pressured or ignored by medical staff. " The hospital really is the last place you wanna be." ~ Julie Siemers In This Episode: - Julie's nursing background - Top causes of death in hospitals - How to prevent dangerous medication errors - Preventing hospital-acquired infections - How to avoid diagnostic errors and medical coercion - How to choose the safest hospital - Tools for effective advocacy - Real stories of surgical mistakes - Concerns over new nurse competency - The financial cost of patient harm Products & Resources Mentioned: Puori PW1 Whey Protein & Creatine+: Go to https://puori.com/wendy and use code WENDY to get 20% off your entire order, even on discounted subscriptions. Qualia Senolytic: Get 15% off with code WENDY at https://qualialife.com/wendy Chef's Foundry P600 Non-Toxic Cookware: Perfect for health-conscious kitchens. Get a special discount at http://bit.ly/myersdetox Organifi Collagen: Save 20% with code MYERSDETOX at https://organifi.com/myersdetox Heavy Metals Quiz: Find out if heavy metals are impacting your energy, mood, and overall health at https://heavymetalsquiz.com About Dr. Julie Siemers: Dr. Julie Siemers, DNP, RN, brings more than four decades of nursing experience across trauma, oncology, ER, and education. Her doctoral work focused on reducing patient harm and improving hospital safety systems. Today, she advocates for patient empowerment through public speaking, writing, and teaching, helping families recognize and prevent medical errors. Learn more at https://drjuliesiemers.com/ Disclaimer The Myers Detox Podcast was created and hosted by Dr. Wendy Myers. This podcast is for information purposes only. Statements and views expressed on this podcast are not medical advice. This podcast, including Wendy Myers and the producers, disclaims responsibility for any possible adverse effects from using the information contained herein. The opinions of guests are their own, and this podcast does not endorse or accept responsibility for statements made by guests. This podcast does not make any representations or warranties about guests' qualifications or credibility. Individuals on this podcast may have a direct or indirect financial interest in products or services referred to herein. If you think you have a medical problem, consult a licensed physician.
See omnystudio.com/listener for privacy information.
Sally Wolf is back in the studio and this time we left cancer at the door. She turned 50, brought a 1993 Newsday valedictorian article as a prop, and sat down with me for a half hour of pure Gen X therapy. We dug into VHS tracking, Red Dawn paranoia, Michael J. Fox, Bette Midler, and how growing up with no helmets and playgrounds built over concrete somehow didn't kill us.We laughed about being Jewish kids in the suburbs, the crushes we had on thirty-year-olds playing teenagers, and what it means to hit 50 with your humor intact. This episode is part nostalgia trip, part roast of our own generation, and part meditation on the privilege of being alive long enough to look back at it all. If you ever watched Different Strokes “very special episodes” or had a Family Ties lunchbox, this one's for you.RELATED LINKSSally Wolf Official WebsiteSally Wolf on LinkedInSally Wolf on InstagramCosmopolitan Essay: “What It's Like to Have the ‘Good' Cancer”Oprah Daily: “Five Things I Wish Everyone Understood About My Metastatic Breast Cancer Diagnosis”Allure Breast Cancer Photo ShootTom Wilson's “Stop Asking Me the Question” SongFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Dr. Hoffman continues his conversation with Dr. Tania Dempsey.
Many challenging medical conditions defy treatment and challenge clinicians to come up with innovative solutions—Chronic Fatigue Syndrome, fibromyalgia, Lyme Disease, Multiple Chemical Sensitivity (MCS), Ehlers-Danlos Syndrome (EDS) and autoimmune conditions; add now the growing burden of patients with Long Covid and vaccine injury. Dr. Tania Dempsey specializes in treating these complicated chronic disorders. She has embraced and advanced a new paradigm based on addressing Mast Cell Activation Syndrome (MCAS). What is MCAS? How is it differentiated from ordinary allergies, and why are its symptoms so pervasive? What are its causes and triggers? What role for low-histamine diets? Antihistamines? Other novel medications? What nutritional supplements can facilitate its resolution? How does recognition of the contribution of MCAS facilitate treatment of patients suffering from Long Covid and vaccine injuries?
In this episode of HIPcast, Ilene Corina shares with us the importance of being a patient advocate whether it is for yourself, a family member or a friend. Healthcare is complicated and the Pulse Center for Patient Safety Education and Advocacy has resources available for you to learn how to advocate for better healthcare. #HIPcast with Shannan and Seth.Resource links:www.pulsecenterforpatientsafety.orgwww.icorina.comwww.takecharge.carewww.gnanow.orgHIPcast brought to you by Enterprise Social Record
Dr. Nikki Maphis didn't just lose a grant. She lost a lifeline. An early-career Alzheimer's researcher driven by her grandmother's diagnosis, Nikki poured years into her work—only to watch it vanish when the NIH's MOSAIC program got axed overnight. Her application wasn't rejected. It was deleted. No feedback. No score. Just gone.In this episode, Oliver Bogler pulls back the curtain on what happens when politics and science collide and promising scientists get crushed in the crossfire. Nikki shares how she's fighting to stay in the field, teaching the next generation, and rewriting her grant for a world where even the word “diversity” can get you blacklisted. The conversation is raw, human, and maddening—a reminder that the real “war on science” doesn't happen in labs. It happens in inboxes.RELATED LINKS:• Dr. Nikki Maphis LinkedIn page• Dr. Nikki Maphis' page at the University of New Mexico• Vanguard News Group coverage• Nature article• PNAS: Contribution of NIH funding to new drug approvals 2010–2016FEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Carla Tardiff has spent 17 years as the CEO of Family Reach, a nonprofit that shouldn't have to exist but absolutely does—because in America, cancer comes with a price tag your insurance doesn't cover.We talk about shame, fear, burnout, Wegmans, Syracuse, celebrity telethons, and the godforsaken reality of choosing between food and treatment. Carla's a lifer in this fight, holding the line between humanity and bureaucracy, between data and decency. She's also sharp as hell, deeply funny, and more purpose-driven than half of Congress on a good day.This episode is about the work no one wants to do, the stuff no one wants to say, and why staying angry might be the only way to stay sane.Come for the laughs. Stay for the rage. And find out why Family Reach is the only adult in the room.RELATED LINKSFamily ReachFinancial Resource CenterCarla on LinkedInMorgridge Foundation ProfileAuthority Magazine InterviewSyracuse University FeatureFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Dr. Hoffman continues his conversation with Dr. Rob Verkerk, Founder, Executive & Scientific Director, Alliance for Natural Health International & Alliance for Natural Health USA.
Dr. Robert Verkerk, the Executive Director of the Alliance for Natural Health (ANH), discusses a wide range of topics, including the intersection of high-tech medical advances and natural therapies. Dr. Verkerk explains the mission of ANH, emphasizing the defense of health freedom and the promotion of natural approaches to health. They delve into various initiatives that ANH is working on, such as defending access to natural thyroid, reversing bans on important supplements like NMN and NAC, and challenging FDA regulations that restrict information on the benefits of natural products. The episode also highlights the importance of maintaining a balanced approach to healthcare and the ongoing efforts to reform regulatory frameworks that favor pharmaceutical interventions over natural alternatives.
Jennifer J. Brown is a scientist, a writer, and a mother who never got the luxury of separating those roles. Her memoir When the Baby Is Not OK: Hopes & Genes is a punch to the gut of polite society and a medical system that expects parents to smile through trauma. She wrote it because she had to. Because the people who gave her the diagnosis didn't give her the truth. Because a Harvard-educated geneticist with two daughters born with PKU still couldn't get a straight answer from the very system she trained in.We sat down in the studio to talk about the unbearable loneliness of rare disease parenting, the disconnect between medical knowledge and human connection, and what it means to weaponize science against silence. She talks about bias in the NICU, the failure of healthcare communication, and why “resilience” is a lazy word. Her daughters are grown now. One's a playwright. One's an artist. And Jennifer is still raising hell.This is a conversation about control, trauma, survival, and rewriting the script when the world hands you someone else's lines.Bring tissues. Then bring receipts.RELATED LINKS• When the Baby Is Not OK (Book)• Jennifer's Website• Jennifer on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
This episode of Standard Deviation features Oliver Bogler in conversation with Dr Na Zhao, a cancer biologist caught in the crossfire of science, politics, and survival. Na's life reads like a brutal lab experiment in persistence.She grew up in China, lost her mother and aunt to breast cancer before she turned twelve, then came to the United States to chase science as both an immigrant and a survivor's daughter. She worked two decades to reach the brink of independence as a cancer researcher, only to watch offers and grants vanish in the political chaos of 2025.Oliver brings her story into sharp focus, tracing the impossible climb toward a tenure-track position and the human cost of a system that pulls the ladder up just as people like Na reach for it. This conversation pulls back the curtain on the NIH funding crisis, the toll on early-career scientists, and what happens when personal tragedy fuels professional ambition.Listeners will walk away with a raw sense of how fragile the future of cancer research really is, and why people like Na refuse to stop climbing.RELATED LINKSDr Zhao at Baylor College of MedicineDr Zhao on LinkedInDr Zhao's Science articleIndirect Costs explained by US CongressFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode, Dr. Karen Litzy speaks with Steve Lewis, founder of Nabu, about the importance of empowering patients through technology. Steve shares his personal journey from working with musicians to developing a health tech startup aimed at improving patient care. The conversation explores the challenges of creating a health tech product, the importance of communication in healthcare, and the future of patient advocacy. Steve emphasizes the need for comprehensive tools that help patients manage their health information and advocate effectively for themselves. Takeaways · His daughter's health challenges inspired Steve's journey into health tech. · Naboo aims to provide a single source of truth for patient information. · Effective communication is crucial for patient care and adherence. · Building a health tech startup requires understanding the needs of all stakeholders. · Safety and compliance are paramount in developing health tech solutions. · Patients need tools that help them advocate for their own care. · The entrepreneurial journey involves collaboration and community support. · Technology can enhance the patient experience and improve outcomes. · Don't hesitate to share your ideas and seek feedback. · Financial literacy is essential for aspiring entrepreneurs. Time Stamps: 00:00 Introduction to Patient Empowerment 03:11 The Journey from Music to Medicine 05:55 The Birth of Nabu: A New Tool for Patients 08:42 Building a Health Tech Startup 12:01 Navigating Challenges in Health Tech 14:50 The Importance of Communication in Healthcare 17:57 Enhancing Patient Care with Technology 20:42 Safety and Compliance in Patient Care 23:49 His daughter's Experience with Nabu 26:52 The Future of Patient Advocacy 29:41 Entrepreneurial Insights and Advice More About Steve:Steve Lewis is an internationally recognised healthtech founder, product leader, and patient advocate, known for building breakthrough solutions at the intersection of technology and real-world care. As Founder and CEO of Nabu.ai, Steve is on a mission to transform fragmented health information into a single, actionable source of truth for patients, families, and care teams. With over 20 years of experience spanning creative, brand strategy, product design, digital transformation, and startup leadership, Steve's work is informed by both professional expertise and deeply personal experience. His daughter's early arrival in the NICU and complicated health journey catalysed his relentless pursuit to fix the fragmented care journey as an advocate, an insight that powers Nabu's vision for a truly comprehensive patient- and carer-led technology addressing the most critical problems in health. Steve is rapidly emerging as a sought-after voice in digital health and innovation. He has been invited to share his authentic, “from the front lines” perspective at live events and on leading digital health podcasts. Steve's talks explore themes including AI for health equity, patient empowerment, data privacy, and the future of connected care, resonating with audiences for their candor and real-world relevance. A passionate believer in co-design and inclusion, Steve is actively collaborating with Australia's leading healthcare providers to validate the Nabu Advocate platform and drive innovation in its core feature set. By working closely with clinicians, families, special needs communities, and expert advisory boards, Steve ensures Nabu is built to meet real-world needs and deliver meaningful impact. Steve's story, which is rooted in resilience, empathy, and systems change resonates with audiences from hospital executives to grassroots advocates. Whether on stage, on air, or in the boardroom, he is known for challenging the status quo and inspiring others to put patient voices at the centre of healthcare transformation. Resources from this Episode: Nabu Website Steve on LinkedIn Jane Sponsorship Information: Book a one-on-one demo here Mention the code LITZY1MO for a free month Follow Dr. Karen Litzy on Social Media: Karen's Instagram Karen's LinkedIn Subscribe to Healthy, Wealthy & Smart: YouTube Website Apple Podcast Spotify SoundCloud Stitcher iHeart Radio
Katie Henry has seen some things. From nonprofit bootstraps to Big Pharma boardrooms, she's been inside the machine—and still believes we can fix it. We go deep on her winding road from folding sweaters at J.Crew to launching a vibrator-based advocacy campaign that accidentally changed the sexual health narrative in breast cancer.Katie doesn't pull punches. She's a born problem solver with zero tolerance for pink fluff and performative empathy. We talk survivor semantics, band camp trauma, nonprofit burnout, and why “Didi” is the grandparent alter ego you never saw coming.She's Murphy Brown with a marimba. Veronica Sawyer in pharma. Carla Tortelli with an oncology Rolodex. And she still calls herself a learner.This is one of the most honest, hilarious, and refreshingly real conversations I've had. Period.RELATED LINKS:Katie Henry on LinkedInKatie Henry on ResearchGateLiving Beyond Breast CancerNational Breast Cancer CoalitionFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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