Podcasts about Patient advocacy

Dr Eugene Manley grew up in Detroit in the 1980s cycling through emergency rooms 20 to 30 times a year with asthma and anaphylaxis while hospital staff talked past his family and buried them in paperwork they could not decode. He responded by earning a BS in mechanical engineering an MS in biomedical engineering and a PhD in molecular biology cell biology and biochemistry. Along the way he tore his ACL training for a jiu jitsu black belt worked 86 straight days in a lab during his doctorate and learned how academic and clinical systems punish people who refuse to shrink.In this episode Manley walks through a recent post surgery ordeal at Mount Sinai Queens where staff falsified records attempted an illegal discharge and nearly sent him home on the wrong blood thinner. He explains how medical racism shows up in charts staffing and decision making and why measurable equity fails without accountability. Listeners hear how his STEMM and Cancer Health Equity Foundation builds pipelines for underrepresented students challenges clinical trial design and teaches patients how to protect themselves when institutions lie. RELATED LINKS• Eugene Manley Jr• STEMM and Cancer Health Equity Foundation• Village Voice• LUNGevity FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What if the most expensive healthcare decisions aren't made in the boardroom — but in the exam room, when the wrong infection gets treated with the wrong antibiotic? In this episode of the Your Health University, Podcast, Jamie sits down with Madison Browning, a registered nurse in urology at Your Health, to talk about what proper urological care actually looks like, why it matters far beyond the individual patient, and how a strong, collaborative provider team is the difference between a patient thriving and a patient stuck in a revolving door of emergency room visits. What you'll hear in this episode: Why getting a UTI diagnosis right the first time has massive implications for patient health and system costs The role nurse practitioners play in specialized urology care — and why their expertise is often underestimated How the team-based model at Your Health empowers every provider to collaborate and deliver better outcomes The direct connection between outpatient urology care and reduced hospital stays, ER visits, and downstream Medicare and tax costs Madison's genuine gratitude for the team around her — and what it looks like when a healthcare culture actually works If you've ever wondered whether the healthcare system could do better — this episode is proof that it already is, one patient at a time. www.YourHealth.Org

What does it actually take to say yes in healthcare when the system is wired to say no? In this episode of The Disrupted Podcast, Scott takes you straight into the field — from a brand-new administrator in Marietta, Georgia who's already revolutionizing her building eight days in, to a 190-patient facility in Charleston where the real conversation isn't about hospice referrals, it's about whether you have the staff to back it up. Scott gets honest about the moments where healthcare organizations talk a big game but fold when it matters — refusing acute visits to non-panel patients, locking providers into rigid workflows, and hiring bodies instead of talent. He challenges all of it. And he does it with the kind of clarity that only comes from someone who's actually in the buildings, at the dinner tables, and on the phone doing the hard work every day. From a nurse who deserves a Tesla to a wristband that could change emergency response forever, this episode is packed with real stories, bold ideas, and a simple but radical belief: that getting to the yes isn't just good business — it's the whole point of healthcare. If you're a provider, administrator, nurse, or healthcare leader who's tired of the way things have always been done, this one's for you. www.YourHealth.Org

Topic: Education Reform, Healthcare Advocacy, and Running for Georgia Superintendent of SchoolsIn this 43-minute episode, host JR Sparrow sits down with Dr. Nelva Lee, a healthcare administrator, entrepreneur, and candidate for Georgia Superintendent of Schools. Dr. Lee shares her inspiring journey from Panama to the United States, her work in healthcare advocacy, and her vision for transforming Georgia's education system through literacy, trade certifications, and school choice.Growing up in Panama during the Noriega dictatorshipFamily heritage from Costa Rica and JamaicaMoving to the US as a teenager and appreciating democratic freedomsLessons learned from her grandmother Nelva about gratitude and work ethicObtaining a trade certification in healthcare during high schoolEarning bachelor's, master's, and doctorate degrees in healthcare administrationWorking as Director of Patient Advocacy at Grady Health SystemFounding a vocational school for medical interpretersCreating the certification exam for medical interpretersInvolvement with AI and human interpreting integrationAppointment to Georgia Department of Community Health by Governor KempLearning the slow process of government policymakingImportance of community engagement in healthcare policyAdvocacy rooted in personal experience with dictatorshipCurrent State of Georgia Education:Georgia ranks 38th out of 50 states in educationMississippi improved from 50th to top 10 by returning to basicsKey Campaign Initiatives:Literacy FirstNo child leaves second grade without learning to readClear guidelines for teachers on literacy benchmarksRecognition that prisons are built based on third-grade literacy ratesUniversal Trade CertificationsAll Georgia graduates receive high school diploma AND trade certificationBenefits both college-bound and workforce-ready studentsProvides financial independence and career optionsExpanded School ChoiceExpansion of Promise Scholarship ActMore public Montessori and KIPP schoolsMatching learning environments to individual student needsSpecial Education & IEP Reform:Concerns about overuse of IEP labelsIEP test scores don't count toward school performance metricsRisk of implicit bias from teachers toward labeled studentsNeed for appropriate learning environments rather than automatic labelingPost-COVID Challenges:Addressing learning deficits in current 6th-7th gradersMental health impacts from isolation (anxiety, depression)Need for motivation and self-esteem building"By the third grade, they're building prisons based on whether or not children are literate.""Every child can learn, but they need to have a learning environment that matches their specific learning needs.""Good leaders really are great because they motivate others to do the best.""Anything that you do for children lasts a lifetime."Learn More About Dr. Nelva Lee:Website: drnelvalee.comBooks and additional information available on her websiteFollow WV Uncommon Place:Instagram, Tumblr, Twitter, TikTok, Facebook, LinkedInMerch: wvuncommonplace.square.siteSubscribe and rate on your favorite podcast platformEducation ReformHealthcare AdvocacyEntrepreneurshipImmigration & DemocracySpecial EducationTrade Schools & Vocational TrainingSchool ChoiceLeadership & Public ServiceEpisode SummaryKey Topics DiscussedBackground & Immigration (0:00 - 8:00)Healthcare Career & Entrepreneurship (8:00 - 18:00)Public Service & Policy (18:00 - 25:00)Running for Georgia Superintendent of Schools (25:00 - 43:00)Notable QuotesResourcesEpisode Themes

We're marking Rare Disease Month 2026 by highlighting the powerful story of Shanthi Hegde, a young patient advocate working to transform how bleeding disorders are understood, treated, and supported. This work is fueled by her own arduous journey with two rare bleeding disorders and immune dysregulatory syndrome, and an extended diagnostic odyssey marked by dismissal, underdiagnosis, and structural bias. “I was told many times by many providers that these disorders are not common in Indians and that my bruises were there just because I'm brown.” Admirably, Shanthi pushed past this mistreatment, advocated for her medical needs, and devoted herself to tackling a range of issues confronting rare disease patients from mental health access to affordable drug pricing to research equity. In this remarkable Year of the Zebra conversation with host Lindsey Smith, you'll also learn about: Shanti's work with the Hemophilia Federation of America; How gaps extend beyond treatment to include insurance coverage, provider training, and substance use care; What clinicians can do to improve the work they do with rare disease patients. Join us for a conversation that connects patient voice to system change, and explores what real equity for rare disease communities will require. Mentioned in this episode:Hemophilia Federation of AmericaShanthi's LinkedIn Profile If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/podcast

Jenny Opalinski has spent more than a decade inside hospitals where people lose the ability to speak, breathe, swallow, and sometimes survive. A medical speech language pathologist by training, she worked in ICU, neuro rehab, and long term acute care settings, including a Level 1 trauma center, where she watched clinicians absorb 10 to 15 traumatic events in a single shift and then get told to move the crash cart faster next time.That lived reality pushed her to co found The Wellness Shift, an advocacy and education platform focused on healthcare worker burnout, suicide, and assault. In this conversation, Opalinski walks through the moment that changed everything for her: standing in a hospital hallway listening to a family wail after a failed code, followed by a debrief that addressed logistics and ignored grief entirely.She also explains how that work led to Humanity Rx, her podcast about the human cost of medicine, and Dragon's Breath: Calming Tricks for Big Feelings, a children's book that translates evidence based breathing and regulation strategies into language kids can actually use. The episode covers moral injury, time scarcity, false wellness, respiratory muscle training, and why empathy keeps getting treated as an optional expense instead of clinical infrastructure.RELATED LINKSJenny Opalinski on LinkedInThe Wellness ShiftHumanity RxDragon's Breath: Calming Tricks for Big FeelingsAspire Respiratory ProductsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this Your Health University episode, Jamie sits down with Nurse Practitioner, Brooke Howard, President of Clinical Operations, to talk about Biote, wellness, and bioidentical hormone optimization—and why it has been life-changing for both of them. Brooke shares how a trusted colleague pushed her to look deeper when she was exhausted, gaining weight, and “holding it together by a thread.” Jamie opens up about anxiety, ADD medication, and how feeling hormonally balanced gave him the confidence to step into a new chapter. This conversation is for anyone who feels “off,” has been told their labs are “normal,” and wants to explore a more complete picture of wellness. www.YourHealth.Org

Living with the End in Mind: Dr. Pyle emphasizes the importance of preparing for the inevitable. It’s not about being morbid; it’s about ensuring better days today by planning for tomorrow. In this episode of "Next Steps 4 Seniors: Conversatoins on Aging, host Wendy Jones welcomes Dr. Pamela Pyle, internal medicine physician and author of "Anticipating Heaven," to discuss end-of-life care. They explore the importance of preparation, advanced care planning, and meaningful family conversations about aging and death. Dr. Pamela Pyle shares practical tips for navigating the healthcare system, the value of tools like Five Wishes, and the role of nurses as advocates. The episode emphasizes living with the end in mind to ensure peace and clarity for families and loved ones during life’s final stages. Key Points: Navigating the Healthcare System: Learn the right questions to ask and steps to take before a crisis hits. Did you know the hospital your loved one is taken to might not be the one you expect? Preparation is key! The Role of Nurses: Nurses are invaluable advocates. They often have more time to provide insights and can be a great resource, especially during quieter times. Recording Conversations: Don’t hesitate to record medical conversations. It’s your right, and it helps ensure you don’t miss any critical information. Family Conversations: Dr. Pyle shares her unique approach to discussing end-of-life wishes with family. She even turned it into a birthday celebration! These conversations are crucial and can be a gift to your loved ones. Advanced Care Planning: Only 30% of Americans complete an advanced care plan. Tools like Five Wishes make it easier and more heartfelt. It’s a simple, affordable way to ensure your wishes are known and respected. Every week brings two ways to grow: Tuesdays dive into the physical next steps with real-life guidance for seniors and families, and Fridays uplift the heart with spiritual and emotional next steps—encouragement, faith, and hope for the journey ahead. Today’s episode explores the transformative power of forgiveness and its vital role in experiencing an abundant life as we age. To learn more about Next Steps 4 Seniors, contact us at 248-651-5010 or visit us online at www.nextsteps4seniors.com.Learn more : https://omny.fm/shows/next-steps-4-seniors-with-wendy-jonesSee omnystudio.com/listener for privacy information.

Reflections on the Peter Attia/Epstein scandal; How to lower lp(a)—does diet help? What are bio-active peptides? Could they stave off kidney disease? Scientists just tested the fittest 81-year-old in the world—here's what they found; Media erroneously report that intermittent fasting is not effective for weight loss; Sugary drinks may stoke anxiety in teens; Omega-3s support kids' reading fluency and spelling scores; Surprising study shows saturated fats not harmful to kidneys.

Grandpa Bill Reviews BRUNO-

Sarah Gromko and Matthew Zachary go back to SUNY Binghamton in the early 1990s, when they were barely 19 and living inside rehearsal rooms. She starred in campus musical theater productions. He served as pianist and music director for many of those shows and played rehearsal piano for the THEA101 repertory company. This episode reunites two former theater nerds who grew up and took very different paths through art, illness, and work that still circles the same truth.Gromko trained as a singer and composer, studied film scoring at Berklee College of Music, worked in New York and New Orleans, then moved into healthcare as a speech language pathologist and recognized vocologist. She explains aphasia, apraxia, dysarthria, and dysphagia with clarity earned from the clinic. She recounts helping a 16 year old gunshot survivor in New Orleans speak again using Melodic Intonation Therapy. The conversation covers voice banking for ALS, gender affirming voice care, and the damage caused when medicine confuses speech loss with intelligence loss. The result feels like an epic reunion powered by 1990s nostalgia and sharpened by decades of lived consequence.RELATED LINKSSarah GromkoGramco VoiceMelodic Intonation TherapyFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

I welcome my childhood friend Dr. Mike Meaney back on the show where we discuss how pain changes how a life moves. It sharpens every edge, tests every bond, and forces you to decide what you believe when there are no easy choices left. That's where our conversation begins: a candid account of failed orthopedic surgeries, a system that too often rewards the cut over the cure, and the daily reality of living inside a body that won't stop hurting. We examine how fee-for-service medicine, device royalties, and surgical center ownership can bend decisions, why second and third opinions matter, and what patients can do to avoid becoming a statistic in a volume-driven industry.From there, we turn toward the inner struggle—resentment, justice, and the long road to healing. We talk openly about opioids as a seductive solution to the human problem of physical pain, and the devastation they leave behind. We sit with the hardest question: when harm is done under anesthesia, what does forgiveness mean? Faith enters not as a slogan but as a practice. We return to the simple Catholic teachings we learned as kids—tell the truth, avoid violence, treat others as you wish to be treated, care for the marginal—and measure them against adult complexity. We explore the mystical claims of Christianity with clear eyes, and why daily sobriety can feel like proof enough for belief.Then we build forward. Our guest shares One Small Step, a platform delivering certified peer support on nights and weekends for people on Medicaid—exactly when the rest of the system is closed or the ER is the only option. We walk through how human-in-the-loop AI can safely triage, detect pre-crisis signals, and route people to real peers with lived experience, reducing avoidable ER visits and giving support that actually meets people where they are. It's a practical blueprint for reform: dignified care, data-informed decisions, and a focus on outcomes that matter.If this conversation resonates—about pain, faith, accountability, or access to real help—share it with someone who needs it. And if you appreciate these deep, unfiltered talks, tap follow, leave a quick review, and tell us: where do you draw the line between justice and mercy?To learn more about One Small Step head over to https://onesmallstep.io/Support the showWarmly,Nico Barraza@FeedTheSoulNBwww.nicobarraza.com

A.W.E.S.O.M.E.-#HolisticHealing, #PatientAdvocacy, #DrAnnHester, #BHSales, #MaineDailyDigest, #MedicalEmpowerment, #HealthCostSavings, #KAVECOGS, #InternalMedicine,Unlock the secret to harnessing your body's natural healing power — through vibration, perception, and mindful awareness. Grandpa Bill distills decades of health, wellness, and mind-expanding insights into practical tools you can use today. If you've ever wondered how to activate your innate ability to heal, connect with your subconscious, or simply elevate your mental clarity, this episode is your guide to transformative wellness.We break down actionable insights including the This episode matters because many health issues—chronic pain, mental fog, even stress—stem from misaligned perceptions and blocked energy. Grandpa Bill guides you on how to recalibrate your body's natural frequencies, opening the door to inner peace, clarity, and resilience. Imagine activating your body's innate ability to heal itself, simply by shifting how you perceive and tune into the world.Perfect for health enthusiasts, wellness seekers, and anyone curious about the untapped power within. Whether you're a caregiver, a patient, or someone looking to elevate your life experience, this episode equips you with actionable techniques backed by a 50-year journey in holistic health. Tap in, listen up, and start your transformation today—your body and mind will thank you.Unlock the secret to harnessing your body's natural healing power — through vibration, perception, and mindful awareness. Grandpa Bill distills decades of health, wellness, and mind-expanding insights into practical tools you can use today. If you've ever wondered how to activate your innate ability to heal, connect with your subconscious, or simply elevate your mental clarity, this episode is your guide to transformative wellness.Your journey begins with a deep dive into the fascinating world of vibration and perception. Grandpa Bill shares how body and voice vibrations influence everything from rheumatoid arthritis to mental clarity, revealing surprising techniques that use sound and breath to dissolve joint stiffness and rebalance your energy. You'll discover a powerful acronym, Grandpa Bill guides you on how to recalibrate your body's natural frequencies, opening the door to inner peace, clarity, and resilience. Imagine activating your body's innate ability to heal itself, simply by shifting how you perceive and tune into the world.How can perception and vibration reshape your approach to chronic pain and mental clarity?What simple practices can you integrate today to harness your body's healing power?#VibrationHealing,#HolisticWellness,#MindBodyConnection,#NaturalHealing,#WellnessJourney,AWESOME, rooted in sensory mastery—attune, waft, echo, manifest—that anchors you in practices to amplify your inner resonance and promote holistic healing.1: 

Matt Hampton and Dr Tom Ingegno came into my world the way the best guests always do. They found me first. They pulled me onto their Irreverent Health Podcast, a show that blends medicine, curiosity, and unapologetic nonsense the same way Gen X kids blended Saturday morning cartoons with nuclear-war anxiety. We recorded together, we went off the rails together, and by the end I told them the rule. If you ever come to New York, you sit in my studio. No exceptions.They showed up. They took the hot seat. They told Alexa to shut up. They joked about Postmates. They compared bifocals before I even hit record. From there it turned into a full blown eighties time machine powered by weed policy, AI diagnostics, acupuncture philosophy, art school trauma, cannabis data science, paranormal detours, and the kind of deep cut pop culture references only Gen X survivors can decode.Matt builds AI systems. Tom heals people with needles and a lifetime of East Asian medicine. Together they make healthcare funny without pretending it works. They remind you that curiosity carries weight when the system collapses under its own stupidity.This episode is a reunion of three loudmouths raised on Atari, late night cable, and the hard lesson that you either tell the truth or get flattened by it. Go subscribe to Irreverent Health. These guys earned it.RELATED LINKS• Irreverent Health Podcast• Matt Hampton – Consilium Institute• Envoy Design• Dr. Tom Ingegno – Charm City Integrative Health• The Cupping Book• You Got Sick—Now What?• Matt Hampton on LinkedIn• Dr. Tom Ingegno on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In Part 1 of this conversation, Jamie sits down with nurse practitioner Jaclyn Taylor to pull wellness out of the “buzzword” category and into real life. They talk about why so many people feel stuck—fatigued, anxious, gaining weight, losing motivation—and why the first step isn't a perfect plan…it's being listened to. Jaclyn breaks down what the Your Health Wellness Program offers, how bioidentical hormone replacement therapy works, and why “normal labs” don't always mean you're actually okay. This episode is for anyone who's been powering through, silently struggling, or wondering if feeling better is still possible. www.YourHealth.Org

Tech It to the Limit Episode 4.01 Patient Power: Dr. Archelle Georgiou and Danielle Teal on Patient Advocacy in Healthcare TechIn the Season 4 premiere of Tech It to the Limit, hosts Sarah Harper and Elliott Wilson return with humor, heart, and a timely focus on the most important voice in healthcare: the patient. The episode kicks off with the usual banter, nostalgic tech gifts, and a brand-new game, Trial Ready or Try Again, which puts emerging oncology innovations to the test and separates real breakthroughs from sci-fi hype.The episode features two remarkable guests. Danielle Teal, a Mayo Clinic Joy Program champion and patient advocate, shares her lived experience navigating a breast cancer diagnosis and how technology showed up during moments of shock, vulnerability, and resilience. Dr. Archelle Georgiou brings decades of insight as a physician, former healthcare executive, and nationally recognized patient advocate, offering perspective on where health technology truly empowers patients and where it falls short without personalization, context, and compassion.Together, they explore patient portals, AI, wearables, social platforms, and decision-making tools, emphasizing kindness, listening, and partnership in care. This Season 4 opener sets a powerful tone, highlighting how innovation and empathy must work together to create technology that genuinely supports patients and their real-world journeys.In this episode:[00:00] Welcome to Tech It to the Limit[00:51] Season 4 kickoff[01:20] Introducing our expert guests[02:37] Holiday tech gifts recap[04:38] Analog vs. digital: a fun debate[15:35] Patient advocacy and technology[24:51] A year ago: the start of chemotherapy[25:33] The challenge with technology in healthcare[26:00] Personalized health information: the key to better care[41:44] The importance of kindness in healthcare design[46:31] Call to action: Patients as equal partners[52:08] Wise nugs[59:48] Episode close & HealthTech HaikuResources:Tech It To The Limit PodcastWebsite Apple PodcastDanielle TealLinkedIn -https://www.linkedin.com/in/danielletealDr. Archelle Georgiouhttps://www.archellemd.com/abouthttps://www.linkedin.com/in/archellegeorgiouPodcastSarah HarperLinkedIn -https://www.linkedin.com/in/sarahbethharperElliott WilsonLinkedIn - https://www.linkedin.com/in/matthewelliottwilson

Bill Thach has had 9 lines of treatment, over 1,000 doses of chemo, and more scans than an airport. He runs ultramarathons for fun. He jokes about being his own Porta Potty. He became a father, then got cancer while his daughter was 5 months old. Today she is 8. He hides the worst of it so she can believe he stands strong, even when he knows that hiding has a cost.We talk about the illusion of strength, what it means to look fine when your body is falling apart, and how a random postcard in an MD Anderson waiting room led him to Man Up to Cancer, where he now leads Diversity and AYA Engagement. Fatherhood. Rage. Sex. Denial. Humor. Survival. All that and why the words good morning can act like a lifeline.RELATED LINKSFight Colorectal CancerCURE TodayINCA AllianceMan Up to CancerWeeViewsYouTubeLinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Send us a textIn this episode of Never Been Sicker, Michael Rubino interviews healthcare entrepreneur Vivienne Reign about why modern “healthcare” often functions as sick care and why so many people feel worse than ever despite medical advances.Vivienne breaks down the insurance model, the mindset shift required to pursue real wellness, and the difference between proactive biohacking vs reactive medical intervention. They also dive deep into red light therapy, including what makes a device legitimate (wavelength, dose, distance, power, and FDA clearance), how to avoid low-quality products, and how red light can support circulation, inflammation, pain, and neuropathy outcomes.This conversation also covers pelvic floor dysfunction in men and women, why common advice like kegels misses key involuntary muscles, and how improving pelvic floor function can impact sleep quality, incontinence, and long-term quality of life.If you feel like you pay for insurance but still have to figure out your health on your own, this episode will help you rethink the system and take back control.

Shannon Burkett has lived about six lives. Broadway actor. SNL alum. Nurse. Filmmaker. Advocate. Cancer survivor. And the kind of person who makes you question what you've done with your day. She wrote and produced My Vagina—the stop-motion musical kind, not the cry-for-help kind—and built a global movement after her son was poisoned by lead dust in their New York apartment. Out of that came LEAD: How This Story Ends Is Up to Us, a documentary born from rage, science, and maternal defiance. We talked about everything from The Goonies to Patrick Stewart to the quiet rage of parenting in a country that treats public health like a hobby. This episode is about art, anger, resilience, and what happens when an unstoppable theater nerd turned science geek Jersey girl collides with an immovable healthcare system.RELATED LINKSShannon Burkett Official SiteLEAD: How This Story Ends Is Up to UsEnd Lead PoisoningLinkedIn: Shannon BurkettBroadwayWorld ProfileFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode of Life Beyond The Mic, Shawna and LaLa talk about why they're stepping away from one-size-fits-all, textbook medicine and embracing a more holistic, individualized approach to healthcare, all while preparing for the snowstorm of the century.  They open up about medical gaslighting, being dismissed by doctors, and the importance of doing your own research, bringing case studies to appointments, and getting second (and third) opinions. Both share moments when doctors didn't listen, and how they were right all along.  LaLa discusses the devastating reality of medical negligence and how her colon ruptured after five doctors failed to take her symptoms seriously.Shawna also shares a major update: after 36 years of unanswered questions, she recently met with a genetics doctor who may finally have answers related to her Cerebral Palsy and other long-standing health issues that have gone unexplained for decades.  This episode is a reminder that patient advocacy saves lives, holistic health looks at the whole person, and you are allowed to push for answers, even when the system makes it hard.

We have a special episode of Raise the Line on tap today featuring the debut of host Dr. Parsa Mohri, who will now be leading our NextGen Journeys series that highlights the fresh perspectives of learners and early career healthcare professionals around the world on education, medicine, and the future of care. Parsa was himself a NextGen guest in 2024 as a medical student at Acibadem University in Turkey. He's now a general physician working in the Adult Palliative Care Department at Şişli Etfal Research and Training Hospital in Istanbul.  Luckily for us, he's also continuing in his role as a Regional Lead for the Osmosis Health Leadership Initiative (OHLI). For his first guest, Parsa reached out to a former colleague in the Osmosis family, Negeen Farsio, who worked with him as a member of OHLI's predecessor organization, the Osmosis Medical Education Fellowship. Negeen is now a graduate student in medical anthropology at Brunel University of London, a degree which she hopes will inform her future work as a clinician. “Medical anthropology is a field that looks at healthcare systems and how human culture shapes the way we view different illnesses, diseases, and treatments and helps you to see the full picture of each patient.” You are sure to enjoy this heartfelt conversation on how Negeen's lived experience as a patient and caregiver have shaped her commitment to mental health and patient advocacy, and how she hopes to marry humanity with medicine in a world that yearns to heal. If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/podcast

One of the most precious resources in dementia care are the stories we share. Today, we welcome back two deeply respected members of the Love Conquers Alz family for a conversation rooted in care, credibility, and shared purpose that has led to a major milestone:Marianne Sciucco, registered nurse, author, and  founding member of AlzAuthors, a groundbreaking global, rigorously vetted hub for Alzheimer's and dementia books, blogs, films, and podcasts, is passing the baton to senior care professional, writer Lance A. Slatton, host of the award-winning All Home Care Matters podcast and YouTube channel. , For over a decade, Marianne and the AlzAuthors team have thoughtfully spotlighted the most meaningful and reliable literature available for the Alzheimer's and dementia community. At a time when families are often overwhelmed by information, their careful curation created a trusted guidepost grounded in lived experience and compassion.Lance brings more than two decades of experience in senior care and continues to be a consistent, dependable voice, not only as a podcast host, but through his work as a Senior Case Manager with Enriched Life Home Care Services.What connects Marianne and Lance is presence. Both have remained steady voices in an ever-changing landscape, offering stringently curated, reliable resources to caregivers and families when clarity matters most.Join us as we celebrate a community that refuses to let its most valuable assets—truth, art, and love—fade into the noise. Subscribe, share with a caregiver who needs a lifeline, and tell us what resource you want to see next. Your voice shapes where this library goes from here.Support the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the ROAR 4 Long Term CareWebsite for more information.Follow us on Twitter, FB, IG, & TiK Tok

Michael Kramer was 19 when cancer ambushed his life. He went from surfing Florida beaches to chemo, radiation, and a bone marrow transplant that left him alive but carrying a chronic disease. He had necrosis in his knees and elbows, lost his ability to surf for years, and found himself stuck in hospitals instead of the ocean. Yet he adapted. Michael picked up a guitar, built Lego sets, led support groups, and started sharing his story on Instagram and TikTok.We talk about masculinity, identity, and what happens when the thing that defines you gets stripped away. He opens up about dating in Miami, freezing sperm at a children's hospital, awkward Uber-for-sperm moments with his brother, and how meditation became survival. Michael lost his father to cancer when he was a teen, and that grief shaped how he lives and advocates today. He is funny, grounded, and honest about the realities of survivorship in your twenties. This episode shows what resilience looks like when you refuse to walk it off and choose to speak it out loud instead.RELATED LINKSMichael Kramer on InstagramMichael Kramer on TikTokMichael and Mom Inspire on YouTubeAshlee Cramer's BookUniversity of Miami Sylvester Comprehensive Cancer CenterStupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Don Watenpaugh is a scientist, sleep clinician, data artist, and poet with a PhD in physiology. His extensive career spans academia, NASA, and the U.S. Navy, focusing on human sleep, exercise, and environmental physiology. As a board-certified sleep medicine specialist, he directed a large urban sleep clinic for over 13 years, caring for patients and educating healthcare providers. Dr. Watenpaugh is an adjunct faculty member in physiology, anatomy, and biomedical engineering. He now creates data-driven art and poetry at Studio Videnda. In this episode, he brings his deep expertise to the critical relationship between sleep and concussion recovery.Episode Summary:In this episode of the Concussion Coach Podcast, host Bethany Lewis welcomes sleep expert Dr. Don Watenpaugh, to explore the complex connection between sleep disturbances and concussion recovery. Dr. Watenpaugh explains the physiological reasons why concussions commonly disrupt sleep—from brain inflammation impacting cerebral spinal fluid "brainwashing" during non-REM sleep to the exacerbation of pre-existing conditions like PTSD, depression, and anxiety. The conversation delves into the different types of insomnia (sleep onset and maintenance) and their potential causes, including restless leg syndrome and sleep apnea.Crucially, Dr. Watenpaugh provides actionable, evidence-based strategies to improve sleep and support brain healing. He discusses the evolving role of exercise as medicine, emphasizing safe, non-jarring activities like stationary cycling. He covers practical sleep hygiene tips, such as the importance of spinal alignment during sleep, the potential benefits of slightly elevating the head of the bed, and the disruptive effects of electronics and blue light. The discussion also touches on the careful use of supplements like melatonin, the special considerations for military personnel and student-athletes, and the overarching importance of patient education and self-advocacy. This episode is packed with science-backed insights to help listeners break the vicious cycle of poor sleep and prolonged concussion symptoms.Key Resources & Strategies Mentioned:Exercise as Medicine: Safe, mild-to-moderate exercise (e.g., stationary cycling to avoid head acceleration) can aid concussion recovery and improve sleep. Always consult your doctor.Sleep Position & Environment:Maintain spinal alignment; avoid stomach sleeping to prevent neck torsion.Consider slightly elevating the head of the bed to help reduce intracranial pressure.Remove electronics (TVs, phones) from the bedroom to avoid mental stimulation and blue light, which suppresses natural melatonin.Addressing Underlying Causes:Restless Leg Syndrome (RLS): Evening exercise (ending 2+ hours before bed) can help. Other treatments are available.Sleep Apnea: A common cause of sleep maintenance insomnia. Treatment (e.g., CPAP) is critical for overall health and concussion recovery.Hormonal Factors: Post-menopausal women may see a link between hormone changes and sleep apnea onset.Melatonin & Supplements: Prioritize natural melatonin production by managing light exposure. If using supplements, start with a low dose well before bedtime, monitor for side effects like headaches or grogginess, and consult your doctor.Patient Advocacy & Reliable Research: Dr. Watenpaugh stresses the importance of educating yourself using reliable, peer-reviewed sources like PubMed/MEDLINE, reputable medical institutions (e.g., Johns Hopkins & the Mayo Clinic), and professional organizations (e.g., American Academy of Sleep Medicine).Dr. Don Watenpaugh's website:Website/Data Art Studio: https://www.studiovidenda.comBethany Lewis & The Concussion Coach:Free Guide: "5 Best Ways to Support Your Loved One Dealing with a Concussion" - Download at www.theconcussioncoach.comConcussion Coaching Program: For personalized mentorship in recovery. Sign up for a free consultation HERE

In this episode of the Beacon Way Podcast, Adrienne Wilkerson discusses the critical role of internal marketing in healthcare, emphasizing how great patient experiences can lead to referrals and advocacy. She explores strategies for transforming patients into advocates, the importance of gathering feedback, and building trust within the community. The conversation also highlights the need for consistency in patient experiences and branding across multiple locations, ultimately encouraging healthcare providers to prioritize internal marketing to foster lasting relationships with patients. Takeaways Internal marketing is crucial for patient experiences. Great patient experiences lead to referrals and advocacy. Marketing should continue even after patients become clients. The patient experience is vital for building a strong reputation. Asking for feedback should be done thoughtfully and respectfully. Trust is essential in mental health and behavioral health. Consistency in patient experience is key to advocacy. Billing experiences can significantly impact patient satisfaction. Cohesive branding helps in building community trust. Internal marketing fosters relationships and encourages patient advocacy. 

Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AIPatient Power & Joy: Affordable Advocacy, Safe Spaces & Why Community Beats AI Art | FayeYouTube Description (Long-Form SEO & Social Media Ready)Are you tired of navigating the broken healthcare system alone?

Daniel Garza had momentum. Acting roles, directing gigs, national tours lined up. Then anal cancer stopped everything. Radiation wrecked his body, stripped him of control, and left him in diapers, staring down despair. His partner, Christian Ramirez, carried him through the darkest nights, changed his wounds, fought hospitals, and paid the price with his own health. Christian still lives with permanent damage from caregiving, but he stayed anyway.Together they talk with me about masculinity, sex, shame, friendship, and survival. They describe the friendships that vanished, the laughter that kept them alive, and the brutal reality of caregiving no one prepares you for. We get into survivor guilt, PTSD, and why even rocks need rocks. Daniel is now an actor, director, and comedian living with HIV. Christian continues to tell the unfiltered truth about what it takes to be a caregiver and stay whole. This episode gives voice to both sides of the cancer experience, the survivor and the one who stands guard. RELATED LINKSDaniel Garza IMDbDaniel Garza on InstagramDaniel Garza on FacebookChristian Ramirez on LinkedInLilmesican Productions Inc (Daniel & Christian)Stupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In our 2025 year-in-review episode, On Rare reflects on a year filled with meaningful conversations and powerful storytelling. Joined by David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, we revisit moments that moved us, challenged us, and reaffirmed the importance of listening to the voices of rare disease communities. This year also marked an exciting milestone with the launch of On Rare: Innovators, a new series spotlighting leaders, including patients, caregivers, scientists, and advocates, who are taking action to transform the lives of those impacted by rare disease. We are deeply grateful to all of our guests and listeners for being part of the 2025 journey. Subscribe to continue learning with us in 2026.

Trevor Maxwell lived the archetype of masculinity in rural Maine. Big, strong, splitting wood, raising kids, and carrying the load. Then cancer ripped that script apart. In 2018 he was bedridden, emasculated, ashamed, and convinced his family would be better off without him. His wife refused to let him disappear. That moment forced Trevor to face his depression, get help, and rebuild himself. Out of that came Man Up To Cancer, now the largest community for men with cancer, a place where men stop pretending they are bulletproof and start being honest with each other.Eric Charsky joins the conversation. A veteran with five cancers, forty-nine surgeries, and the scars to prove it, Eric lays out what happens when the military's invincible mindset collides with mortality. Together, we talk masculinity, vulnerability, sex, shame, and survival. This episode is blunt, raw, and overdue.RELATED LINKSMan Up To CancerTrevor Maxwell on LinkedInDempsey CenterEric Charsky on LinkedInStupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Understanding and Treating Complex Illnesses with Dr. Neil Nathan, author of “Toxic 2nd Edition: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness.” Dr. Nathan shares his expertise on the multifaceted nature of chronic illnesses, which often defy simple categorization and may be misdiagnosed as psychiatric issues. The discussion covers the impact of environmental toxins, electromagnetic fields, and infections like Lyme disease and long COVID. Dr. Nathan also highlights the importance of understanding inflammation's complex pathways and offers suggestions for both elimination of root causes and restoration of immune system functionality. The episode provides insights into new diagnostic tools and treatment methodologies for persistent and intrusive health issues.

Persuasion isn't just for politicians and advertisers—it's a core nursing skill.In this episode of the Emory University series, host Melissa Mills sits down with Dr. Roxana Chicas, Dr. Sharron Close, and recent Emory School of Nursing graduate Sofi Igyan to explore how nurses can use the power of words to influence change from the bedside to the boardroom.Together, they unpack what persuasion really means in health care—how it differs from simple education, and why it's both an art and a science. You'll hear how strategies like knowing your audience, framing messages, leveraging the “power of three,” and using data and stories together can move patients, policymakers, and the public to action.The guests share real-world examples—from farmworker advocacy and climate health, to social media “nurse hacks,” to early-career experiences with therapeutic communication and mental health. They also dig into storytelling tools like the AIDS Memorial Quilt and the legacy of Cesar Chavez to show how narrative can humanize complex issues, build empathy, and shift policy.Whether you're a new graduate nurse, bedside nurse, educator, or emerging nurse leader, this episode will help you:Claim your voice as a communicator and advocateUse persuasion ethically and effectivelyTurn everyday conversations into opportunities for impactListen in and rediscover your words as one of the most powerful tools you have as a nurse.>>Unlocking the Power of Persuasion in Your Nursing CareerJump Ahead to Listen: [00:01:39] Persuasion in nursing communication. [00:05:03] Core components of effective persuasion. [00:09:14] Applying persuasive strategies in community settings. [00:14:26] How nurses can influence public perception through media. [00:18:09] The power of storytelling. [00:20:40] Stories that drive meaningful change in healthcare. [00:25:28] Creativity as a communication tool for nurses. [00:30:05] Using multimedia platforms to expand reach. [00:34:02] Elevating patient voices in care and advocacy. [00:37:54] Fostering communication confidence among nurses. [00:44:42] Creating space for vulnerability in nursing culture. [00:48:13] Building confidence in clinical and professional expertise. [00:50:13] Developing therapeutic communication skills. [00:54:46] Embracing lifelong learning in nursing practice. For more information, full transcript and videos visit Nurse.org/podcastJoin our newsletter at nurse.org/joinInstagram: @nurse_orgTikTok: @nurse.orgFacebook: @nurse.orgYouTube: Nurse.org

What really happens inside the healthcare system when patients aren't heard — even those with expertise? ⚠️ In this powerful and eye-opening episode, Dr. Eugene Manley Jr., PhD, biomedical scientist and founder of the STEM & Cancer Health Equity (SCHEQ) Foundation, joins Amb. Elisha to expose the realities of medical racism, healthcare disparities, and the urgent need for patient advocacy

Why is it so hard to get the right help, ask the right questions, and know what to do when it comes to menopause after cancer?In this episode, Dani is joined by Dr Shilpa McQuillan, a gynaecologist, GP, and menopause specialist - for an honest conversation about why menopause after cancer remains so difficult to talk about, both for patients and clinicians.Together they explore what happens when menopause is left untreated, its impact on mental health, sexual wellbeing, and work, and why empowering patients in decision-making leads to better outcomes. This is the important bit! Your thoughts and feelings and ideas matter! You matter!Dr McQuillan also shares practical advice and helpful resources for patients and clinicians alike.As the year ends, Dani reflects on how far we've come; and shares a special poem to close with warmth and hope for the year ahead. So make sure you stay tuned to the end.You can find Dr McQuillan Shilpa here on Instagram and https://www.instagram.com/berkshiremenopauseclinic/?hl=en and here on her website www.berkshiremenopauseclinic.comFor more support head to www.menopauseandcancer.orgEpisode Highlights:00:00 Introduction04:38 Menopause Symptoms Overlooked in Cancer07:53 Clinicians' Fears: Uncertainty and Blame12:11 "Long-Term Cancer Treatment Challenges"17:03 Cancer Worries and Holistic Challenges21:25 "Communication is Key for Care"23:28 Patient Advocacy and Information Struggles34:32 Navigating Specialist Pathways Effectively38:29 Empowering Menopause Health StrategiesConnect with us:For more information and resources visit our website: www.menopauseandcancer.org Or follow us on Instagram @menopause_and_cancerJoin our Facebook group: www.facebook.com/groups/menopauseandcancerchathub

The most anticipated annual tradition on Out of Patients returns with the 2025 Holiday Podcast Spectacular starring Matthew's twins Koby and Hannah. Now 15 and a half and deep into sophomore year, the twins deliver another unfiltered year end recap that longtime listeners wait for every December. What began as a novelty in 2018 has become a time capsule of adolescence, parenting, and how fast childhood burns off.This year's recap covers real moments from 2025 A subway ride home with a bloodied face after running full speed into that tree that grows in Brooklyn. Broadway obsessions fueled by James Madison High School's Roundabout Youth Ensemble access, including Chess, & Juliet, Good Night and Good Luck, and Pirates of Penzance holding court on Broadway. A Disneylanmd trip where the Millennium Falcon triggered a full system reboot. A New York Auto Show pilgrimage capped by a Bugatti sighting. All the things.The twins talk school pressure, AP classes, learner permit anxiety, pop culture fixation, musical theater devotion, and the strange clarity that comes with turning 15. The humor stays sharp, the details stay specific, and the passage of time stays undefeated. This episode lands where the show works best: family, honesty, and letting young people speak for themselves.FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

After a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership with his neurologist, Dr. Sujata Thawani. In this special episode, Brandon and Dr. Thawani share how trust, advocacy, and shared decision-making make the doctor-patient relationship central to navigating a chronic illness.See omnystudio.com/listener for privacy information.

Jason Gilley walked into adulthood with a fastball, a college roster spot, and a head of curls that deserved its own agent. Cancer crashed that party and took him on a tour of chemo chairs, pediatric wards, metal taste, numb legs, PTSD, and the kind of late night panic that rewires a kid before he even knows who he is.I sat with him in the studio and heard a story I know in my bones. He grew up fast. He learned how to stare down mortality at nineteen. He found anchors in baseball, therapy, and the strange friendships cancer hands you when it tears your plans apart. He owns the fear and the humor without slogans or shortcuts. Listeners will meet a young man who refuses to let cancer shrink his world. He fights for the life he wants. He names the truth without apology. He reminds us that survivorship stays messy and sacred at the same time. This conversation will stay with you.RELATED LINKS• Jason Gilley on IG• Athletek Baseball Podcast• EMDR information• Children's Healthcare of AtlantaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Marissa Russo trained to become a cancer biologist. She spent four years studying one of the deadliest brain tumors in adults and built her entire research career around a simple, urgent goal: open her own lab and improve the odds for patients with almost no shot at survival. In 2024 she applied for an F31 diversity grant through the NIH. The reviewers liked her work. Her resubmission was strong. Then the grant system started glitching. Dates vanished. Study sections disappeared. Emails went silent. When she finally reached a program officer, the message was clear: scrub the DEI language, withdraw, and resubmit. She rewrote the application in ten days. It failed. She had to start over. Again. This time with her identity erased.Marissa left the lab. She found new purpose as a science communicator, working at STAT News through the AAAS Mass Media Fellowship. Her story captures what happens when talent collides with institutional sabotage. Not every scientist gets to choose a Plan B. She made hers count.RELATED LINKSMarissa Russo at STAT NewsNIH F31 grant story in STATAAAS Mass Media FellowshipContact Marissa RussoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What happens when lived experience, science, and nonprofit leadership collide? In this episode, I sit down with Dr. Eugene Manley, Jr. to discuss health equity, cancer care gaps, and what it truly takes to design programs that serve communities that have been overlooked for far too long. We explore how focus, intentionality, and listening to the people most impacted can turn complex equity challenges into meaningful, measurable action. Episode Highlights 02:32 Dr. Manley's Personal Journey and Inspiration 04:01 Challenges in the Hospital System 05:24 Launching the STEM and Cancer Equity Foundation 06:18 Addressing Health Disparities and Patient Advocacy 10:11 The Importance of Early Exposure to STEM 11:01 Navigating Academia and Nonprofit Work 11:57 The Lung Cancer Health Equity Summit 16:03 Fiscal Sponsorship for Nonprofits 19:46 Defining and Addressing Health Equity 22:03 Challenges in Lung Cancer Clinical Trials My guest for this episode is Dr. Eugene Manley, Jr., PhD, MS. Dr. Eugene Manley, Jr., PhD, MS, is a biomedical scientist-turned-social impact leader and the Founder & CEO of the STEMM & Cancer Health Equity (SCHEQ) Foundation. He brings 20+ years across engineering, molecular and cell biology, nonprofit strategy, and workforce development, with prior leadership at leading cancer organizations. He had worked in development at the AACR, grant system administration at LCRF, and directed national STEM and workforce initiatives and health equity initiatives at LUNGevity Foundation.   Through SCHEQ, he advances STEMM workforce diversity and patient-centered solutions across the cancer care continuum, producing health-literacy resources, convening cross-sector stakeholders, and leading the Lung Cancer Interventions Summit to drive practical, equity-focused outcomes for underserved communities. He serves on local, national, and international advisory boards advocating for Medicaid, rural, and historically marginalized patients. Dr. Manley serves on the Stony Brook Cancer Community Advisory Council, PCORI advisory panels focused on healthcare delivery and comparative clinical effectiveness, and has co-authored a perspective work with the American Cancer Society's National Lung Cancer Roundtable on compassion and stigma in lung cancer care. His lived experience, research background, outreach, and policy engagement inform a pragmatic approach to closing gaps in screening, biomarker testing, trial access, and survivorship. Connect with Dr. Eugene: https://www.linkedin.com/in/eugenemanleyjrphd https://www.linkedin.com/company/stemmcheq https://www.facebook.com/stemmcheq https://www.instagram.com/stemmcheq https://www.instagram.com/manleyeugene Sponsored Resource Join the Inspired Nonprofit Leadership Newsletter for weekly tips and inspiration for leading your nonprofit! Access it here >> Be sure to subscribe to Inspired Nonprofit Leadership so that you don't miss a single episode, and while you're at it, won't you take a moment to write a short review and rate our show? It would be greatly appreciated! Let us know the topics or questions you would like to hear about in a future episode. You can do that and follow us on LinkedIn.

Have you ever found yourself helping a loved one through a confusing medical situation and thought, "I wish I could do this full-time"? You're not alone. Many physicians are naturally drawn to patient advocacy and navigation, even if they don't yet realize it has a name or a career path. In this episode, I'm joined by Dr. Angie Ingraham, a former trauma surgeon and critical care physician who made a powerful career transition after her father's diagnosis with glioblastoma. Experiencing the healthcare system from the other side opened her eyes to the gaps patients and families face. That journey led her to launch True North Patient Advocates, where she now supports others through complex medical situations with clarity and compassion. Whether you've thought about becoming a patient advocate and navigator — or are simply curious about what this work actually involves — Angie shares the real-life steps she took to create a fulfilling and sustainable new path.   In this episode we're talking about: How a personal family crisis led Dr. Ingraham to explore patient navigation The surprising barriers patients face, even with medical connections What professional patient advocates and navigators actually do and how physicians are uniquely qualified How she built her business without formal business training The variety of clients and services in her day-to-day work Financial considerations and typical rates for advocates Steps you can take to explore this path for yourself You can find the show notes for this episode and more information by clicking here: www.doctorscrossing.com/episode236 Links for this episode: Dr. Angie Ingram — True North Patient Advocates Greater National Advocates Directory Alliance of Professional Health Advocates - Offers a Boot Camp and 100-day program for business startup Health Advocate X Patient Advocate Certification Board National Association of Healthcare Advocacy Work Episode #68: Being a Patient Advocate is a Real Option Episode #156: How To Start A Side Gig Or Business As A Patient Navigator  

Scott Capozza and I could have been cloned in a bad lab experiment. Both diagnosed with cancer in our early twenties. Both raised on dial-up and mixtapes. Both now boy-girl twin dads with speech-therapist wives and a lifelong grudge against insurance companies. Scott is the first and only full-time oncology physical therapist at Yale New Haven Health, which means if he catches a cold, cancer rehab in Connecticut flatlines. He's part of a small, stubborn tribe of providers who believe movement belongs in cancer care, not just after it. We talked about sperm banking in the nineties, marathon training during chemo, and what it means to be told you're “otherwise healthy” when your lungs, ears, and fertility disagree. Scott's proof that survivorship is not a finish line. It's an endurance event with no medals, just perspective.RELATED LINKSScott Capozza on LinkedIn: https://www.linkedin.com/in/scott-capozza-a68873257Yale New Haven Health: https://www.ynhh.orgExercising Through Cancer: https://www.exercisingthroughcancer.com/team/scott-capozza-pt-msptProfiles in Survivorship – Yale Medicine: https://medicine.yale.edu/news-article/profiles-in-survivorship-scott-capozzaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this powerful episode of Keeping Abreast, Dr. Jenn Simmons sits down with Taylor Dukes, former ICU nurse, functional health advocate, and founder of Taylor Dukes Wellness, to explore what happens when conventional medicine stops asking deeper questions.Taylor shares her journey from the ICU to facing her own brain tumor diagnosis, an experience that reshaped her understanding of health, healing, and the healthcare system. Together, she and Dr. Jenn discuss the emotional and spiritual toll carried by front line providers, the limitations of modern medical education, and why chronic and childhood illness have become increasingly normalized.This conversation highlights the role of nutrition, detoxification, stress management, and faith in healing, while emphasizing personal responsibility and advocacy in a toxic world. Taylor also shares how her family became part of her mission, creating accessible wellness solutions rooted in foundational health.

In this powerful episode of the Healing Pen and a Mic companion podcast, host Talaya Dendy sits down with Lisa Beckendorf, a celebrated cancer survivor and patient advocate.Lisa shares her personal journey through multiple cancer diagnoses and the pivotal moment she transitioned from a career in commercial real estate to full-time advocacy. Initially asking, "Why me?", she realized her experience was a powerful way to give back to the cancer community.This conversation dives into the transformative impact of journaling and storytelling in the healing process. Lisa highlights how the practice, central to the Healing Pen and a Mic Workshop offers emotional release, fosters deep community connections, and is a critical tool for personal growth.Whether you are navigating a diagnosis, supporting a loved one, or seeking to turn your personal story into powerful action, this episode offers invaluable insights on finding solace, strength, and purpose through writing and community.Support Our Mission / Partner With Us:Bring Healing to Your Community: Interested in hosting The Healing Pen and a Mic workshop in your city or organization? We'd love to partner with you!Sponsor Future Workshops: Help us continue offering these much-needed, workshops to the cancer community.For partnership or sponsorship inquiries, please email us at nctpodcastfan@gmail.com.

Ann Meyn started her advocacy in the 1990s, launching support groups and sharing the message of early detection. Even while facing aggressive treatments, she continued teaching, volunteering, and helping others understand cancer. With a scientific mindset, she shaped patient support and influenced research, guiding the next generation of advocates. Today, she joins Dorothy to reflect on their friendship and impact on The Rose’s community. Support The Rose HERE. Subscribe to Let’s Talk About Your Breasts on Apple Podcasts, Spotify, iHeart, and wherever you get your podcasts. Key Questions Answered 1. What was the Rosebuds group and why was it created?2. How did the Rose operate to serve both insured and uninsured women?3. Why were support groups for breast cancer patients so important?4. How did breast cancer treatment approaches change over time?5. What was Ann Meyn’s personal experience with breast cancer diagnosis and treatment?6. How have support group needs varied among different groups of women?7. How has patient advocacy in breast cancer research evolved, and why is it important?8. How has breast cancer detection and awareness changed, especially for younger women?9. What advances have been made in breast cancer research and treatment in recent years?10. What advice does Ann Meyn have for women regarding breast health?11. What is the psychological impact of support, both from groups and families, in the journey of breast cancer?12. What are the challenges for caregivers vs. being the patient?13. How can survivors and educators help reduce the stigma or fear around cancer for children and families?14. What changes occurred in support and treatment during and after the COVID-19 pandemic? Timestamped Overview 00:00 Passion Behind The Rose Concept 05:22 Reflecting on Terminal Cancer Cases 08:53 Breast Cancer Misdiagnosis Experience 11:43 Teaching Through Chemo Treatments 14:52 Patient Advocacy and Cancer Research 19:33 Advances in Cancer Diagnostics 20:41 Resilience, Discovery, and Complexity 24:31 Advances in Radiation Treatment 27:58 Complex Surgeries and Recovery 32:57 Taking Fear Away Through ConnectionSee omnystudio.com/listener for privacy information.

Joined by Nurse Nicole from www.nursesoutloud.com to discuss patient advocacy and how she got into legal nurse consulting. We discuss her journey through the medical system as a nurse and how that evolved into fighting at the local and state level for patient rights, informed consent, bodily autonomy, and legislation to protect people's right to choose.  Follow Nicole on IG @hold_thelineclnc www.nursesoutloud.com and Nurses Out Loud podcast  

Dr. MaryAnn Wilbur trained her whole life to care for patients, then left medicine behind when it became a machine that punished empathy and rewarded throughput. She didn't burn out. She got out. A gynecologic oncologist, public health researcher, and no-bullshit single mom, MaryAnn walked straight off the cliff her career breadcrumbed her to—and lived to write the book.In this episode, we talk about what happens when doctors are forced to choose between their ethics and their employment, why medicine now operates like a low-resource war zone, and how the system breaks the very people it claims to elevate. We cover moral injury, medical gaslighting, and why she refused to lie on surgical charts just to boost hospital revenue.Her escape plan? Tell the truth, organize the exodus, and build something that actually works. If you've ever wondered why your doctor disappeared, this is your answer. If you're a clinician hiding your own suffering, this is your permission slip.RELATED LINKSMaryAnn Wilbur on LinkedInMedicine ForwardClinician Burnout FoundationThe Doctor Is No Longer In (Book)Suck It Up, Buttercup (Documentary)FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

We're looking at some major policy issues happening in Washington, and what you can really do to effect change. George Huntley is the CEO of DPAC, the Diabetes Patient Advocacy Coalition. We've got a lot to cover: Medicare changes like competitive bidding that could dramatically limit access to CGMs and insulin pumps for seniors, the changing landscape around GLP 1 meds, and we talk about patient advocacy wins. I know some of you are cynical, but it can work. If you've ever thought your voice doesn't matter, this conversation may change your mind. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Announcing Community Commericals! Learn how to get your message on the show here. Learn more about studies and research at Thrivable here Please visit our Sponsors & Partners - they help make the show possible! Learn more about Gvoke Glucagon Gvoke HypoPen® (glucagon injection): Glucagon Injection For Very Low Blood Sugar (gvokeglucagon.com) Omnipod - Simplify Life Learn about Dexcom  Check out VIVI Cap to protect your insulin from extreme temperatures The best way to keep up with Stacey and the show is by signing up for our weekly newsletter: Sign up for our newsletter here Here's where to find us: Facebook (Group) Facebook (Page) Instagram Check out Stacey's books! Learn more about everything at our home page www.diabetes-connections.com  Reach out with questions or comments: info@diabetes-connections. Keywords Diabetes, D-PAC, Medicare, GLP-1 medications, patient advocacy, healthcare access, insulin pumps, CGMs, diabetes technology, legislative reform AI info below: Summary In this conversation, George Huntley, CEO of the Diabetes Patient Advocacy Coalition (D-PAC), discusses the critical role of advocacy in improving diabetes care and access to technology. He highlights the challenges faced by patients, particularly regarding Medicare coverage for insulin pumps and continuous glucose monitors (CGMs), and the implications of recent legislative changes. The discussion also covers the potential of GLP-1 medications in diabetes management and the importance of patient stories in advocacy efforts. Takeaways D-PAC focuses on affordable and equitable access to diabetes care. Advocacy is crucial for influencing healthcare policies. Competitive bidding for diabetes technology could limit access for seniors. Patient stories are essential in legislative advocacy. GLP-1 medications show promise in reshaping diabetes treatment. Economic factors play a significant role in healthcare access. The aging population of type 1 diabetes patients requires urgent attention. Collaboration among advocacy groups is vital for success. Healthcare costs are driven more by major medical expenses than by drug prices. Continued advocacy is necessary to protect patient access to care. Chapters 00:00 Introduction to Diabetes Advocacy 03:01 The Role of D-PAC in Diabetes Care 05:53 Challenges in Medicare Coverage for Diabetes Technology 09:11 The Impact of Competitive Bidding on Seniors 11:55 Advocacy Efforts and Legislative Challenges 14:57 The Future of GLP-1 Medications 17:56 Economic Implications of Diabetes Management 21:01 The Importance of Patient Advocacy 23:59 Healthcare Costs and Insurance Dynamics 26:56 The Need for Continued Advocacy 29:54 Conclusion and Call to Action

Episode 5 of Standard Deviation with Oliver Bogler on the Out of Patients podcast feed pulls you straight into the story of Dr Ethan Moitra, a psychologist who fights for LGBTQ mental health while the system throws every obstacle it can find at him.Ethan built a study that tracked how COVID 19 tore through an already vulnerable community. He secured an NIH grant. He built a team. He reached 180 participants. Then he opened an email on a Saturday and learned that Washington had erased his work with one sentence about taxpayer priorities. The funding vanished. The timeline collapsed. His team scattered. Participants who trusted him sat in limbo.A federal court eventually forced the government to reinstate the grant, but the damage stayed baked into the process. Ethan had to push through months of paperwork while his university kept the original deadline as if the shutdown had not happened. The system handed him a win that felt like a warning.I brought Ethan on because his story shows how politics reaches into science and punishes the people who serve communities already carrying too much trauma. His honesty lands hard because he names the fear now spreading across academia and how young scientists question whether they can afford to care about the wrong population.You will hear what this ordeal did to him, what it cost his team, and why he refuses to walk away.RELATED LINKSFaculty PageNIH Grant DetailsScientific PresentationBoston Globe CoverageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Send us a textIn this eye-opening episode, Dr. Amols tackles a question most patients are too embarrassed to ask out loud: Does getting a second opinion mean you're cheating on your fertility doctor?Inspired by a real patient interaction, he breaks down why fertility care feels so personal, why patients often feel guilty seeking outside input, and why no confident doctor should ever take it personally. You'll hear how second opinions can validate your plan, reveal new options, and ultimately strengthen your confidence — not sabotage your treatment.You'll learn: • Why fertility patients feel “loyalty pressure” • Why two good doctors can disagree and both be right • When a second opinion is helpful (and when it's panic shopping) • What records to bring and what questions to ask • The red flags that mean you're in the wrong clinic • How to advocate for yourself without the guiltThis episode is your permission slip to put your peace of mind first. Your journey deserves clarity — not loyalty tests.Thanks for tuning in to another episode of 'Taco Bout Fertility Tuesday' with Dr. Mark Amols. If you found this episode insightful, please share it with friends and family who might benefit from our discussion. Remember, your feedback is invaluable to us – leave us a review on Apple Podcasts, Spotify, or your preferred listening platform. Stay connected with us for updates and fertility tips – follow us on Facebook. For more resources and information, visit our website at www.NewDirectionFertility.com. Have a question or a topic you'd like us to cover? We'd love to hear from you! Reach out to us at TBFT@NewDirectionFertility.com. Join us next Tuesday for more discussions on fertility, where we blend medical expertise with a touch of humor to make complex topics accessible and engaging. Until then, keep the conversation going and remember: understanding your fertility is a journey we're on together.

Chelsea J. Smith walks into a studio and suddenly I feel like a smurf. She's six-foot-three of sharp humor, dancer's poise, and radioactive charm. A working actor and thyroid cancer survivor, Chelsea is the kind of guest who laughs while dropping truth bombs about what it means to be told you're “lucky” to have the “good cancer.” We talk about turning trauma into art, how Shakespeare saved her sanity during the pandemic, and why bartending might be the best acting class money can't buy. She drops the polite bullshit, dismantles survivor guilt with punchline precision, and reminds every listener that grace and rage can live in the same body. If you've ever been told to “walk it off” while your body betrayed you, this one hits close.RELATED LINKS• Chelsea J. Smith Website• Chelsea on Instagram• Chelsea on Backstage• Chelsea on YouTube• Cancer Hope Network• Artichokes and Grace – Book by Chelsea's motherFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

When Julia Stalder heard the words ductal carcinoma in situ, she was told she had the “best kind of breast cancer.” Which is like saying you got hit by the nicest bus. Julia's a lawyer turned mediator who now runs DCIS Understood, a new nonprofit born out of her own diagnosis. Instead of panicking and letting the system chew her up, she asked questions the industry would rather avoid. Why do women lose breasts for conditions that may never become invasive? Why is prostate cancer allowed patience while breast cancer gets the knife? We talked about doctors' fear of uncertainty, the epidemic of overtreatment, and what happens when you build a movement while still in the waiting room. Funny, fierce, unfiltered—this one sticks.RELATED LINKS• DCIS Understood• Stalder Mediation• Julia's story in CURE Today• PreludeDx DCISionRT feature• Julia on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.