Podcasts about Patient advocacy

A mysterious dust fills a young family's apartment. The truth begins to unravel when the mother gets a call from the pediatrician - the monster deep within the walls has been unleashed. LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett. EP1 features Zak Orth, Jenny Maguire, Daphne Gaines, and Micheal Gaston. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In Episode 94 of Nursing Uncharted, host Ann sits down with Ashley White, a NICU travel nurse, to explore the heart and soul of nursing: advocacy. This episode takes a deep dive into the unique challenges and rewarding experiences of NICU nursing, where patient advocacy is not just a skill but a lifeline. Ashley shares compelling personal stories that highlight the barriers nurses face when speaking up for their patients and the critical role of effective communication with physicians.The conversation also uncovers the power of teamwork in healthcare, the importance of self-awareness in building professional relationships, and the courage it takes to ask for help—especially in the ever-changing world of travel nursing. Whether you're a seasoned nurse or just starting your journey, this episode is a powerful reminder of the vital role nurses play in ensuring patient safety and the strength it takes to have a voice in the healthcare system.Chapters00:00 Introduction and Guest Background03:05 Passion for NICU and Patient Advocacy05:50 The Importance of Nurse-Physician Communication08:54 Challenges in Advocacy and Real-Life Experiences12:08 Navigating Barriers in Nursing15:04 The Role of Teamwork in Nursing18:09 Travel Nursing Experiences and Adaptability20:54 Self-Awareness and Professional Relationships23:28 The Importance of Asking for Help26:30 Patient Advocacy and Safety29:26 The Two Challenge Rule in Healthcare32:22 Conclusion and Final Thoughts Celebrate Nurses Month with us on Instagram @AMNNurse! About AnnAnn King, a seasoned travel nurse with a remarkable 14-year track record, has dedicated the past 13 years to specializing in Neonatal ICU. Ann has been traveling with AMN Healthcare for 4.5 years, enriching her expertise with diverse experiences. Currently residing in San Diego, Ann not only thrives in her nursing career but also serves as the host of the Nursing Uncharted podcast, where she shares invaluable insights and stories from the world of nursing. Connect with Ann on Instagram @annifer05 No Better Place than CA! Book your assignment in the Golden State Today! Level up your career today! Find your dream travel assignment! Support for every step. Learn more about AMN Healthcare's EAP Program. Share the opportunity and refer a friend today! Ready to start your next travel assignment in the Golden State? Browse CA Jobs! Episode Sponsor:We're proudly sponsored by AMN Healthcare, the leader in healthcare staffing and workforce solutions. Explore their services at AMN Healthcare. Discover job opportunities and manage your assignments with ease using AMN Passport. Download the AMN Passport App today! Join Our Communities: WebsiteYouTubeInstagramApple PodcastsSpotifyLinkedInFacebook Powered by AMN Healthcare

Send us a textThis conversation is the third and final segment of SurfingMASH's July discussion of #SLDThinkTank 2025. In addition to co-hosts Jörn Schattenberg, Louise Campbell and Roger Green, panelists include Dr. Kristina Curtis of Applied Behaviour Change, a UK-based consultancy. Louise begins this conversation by highlighting the low level of correct information (and, frequently, high level of passionately-held misinformation) that adults have about diet and her success in improving a family's behavior by educating parents about how to better help their children. Kristina replies that while knowledge and education are critical, they are not sufficient in themselves. She lists a variety of social or life priority factors that can also drive poor eating, from taking out fast food when too hungry to cook to not wanting to fight with one's children about eating their vegetables to comparing themselves to other, more obese friends or acquaintances.Roger asks about the role politicians can play on these kinds of issues. Jörn observed that politicians at the Think Tank were motivated to act and thought about how to support better behavior. Louise noted that multi-metabolic programs with broad support can help many MASLD patients, even though MASLD is not in the stated goal for the program. Roger and Kristina note that politicians and government budget manager are motivated by short-term solutions with little thought to longer term consequences.In the last part of this conversation, Roger asks the group to describe their reactions leavin the Think Tank in a single word. Louise and Kristina both choose "enlightened." Jörn chooses "inspiring" to describe Louise's comments and "motivating" to describe his own reaction. Listen to the conversation to hear the reasoning behind these word choices.

Sex gets better with age...if we let it! In this episode, DB sits down with her mom, badass OBGYN Dr. Rebecca Levy-Gantt, to talk all about sex and aging, They get into responsive desire, menopause, hormones, vaginal estrogen (gamechanger!), and why more women than ever are asking for what they want in the bedroom. Plus: how to talk to your doctor about your pleasure! GUEST DETAILSDr. Rebecca Levy-Gantt is an obstetrician and gynecologist who has been taking care of women of all ages for more than thirty years. She is on LinkedIn, and her practice website is Premierobgynnapa.com. ABOUT SEASON 12 Season 12 of Sex Ed with DB is ALL ABOUT PLEASURE! Solo pleasure. Partnered pleasure. Orgasms. Porn. Queer joy. Kinks, sex toys, fantasies—you name it. We're here to help you feel more informed, more empowered, and a whole lot more turned on to help YOU have the best sex. CONNECT WITH US Instagram: @sexedwithdbpodcast TikTok: @sexedwithdbTwitter: @sexedwithdb Threads: @sexedwithdbpodcast YouTube: Sex Ed with DB SEX ED WITH DB SEASON 12 SPONSORS Lion's Den, Uberlube, & Magic Wand Get discounts on all of DB's favorite things here! GET IN TOUCH Email: sexedwithdb@gmail.comSubscribe to our BRAND NEW newsletter for hot goss, expert advice, and *the* most salacious stories. FOR SEXUAL HEALTH PROFESSIONALS Check out DB's workshop: "Building A Profitable Online Sexual Health Brand" ABOUT THE SHOW Sex Ed with DB is your go-to podcast for smart, science-backed sex education—delivering trusted insights from top experts on sex, sexuality, and pleasure. Empowering, inclusive, and grounded in real science, it's the sex ed you've always wanted. ASK AN ANONYMOUS SEX ED QUESTION Fill out our anonymous form to ask your sex ed question. SEASON 12 TEAM Creator, Host & Executive Producer: Danielle Bezalel (DB) (she/her) Producer: Sadie Lidji (she/her) Communications Lead: Cathren Cohen (she/her) Growth Marketing Manager: Wil Williams (they/them) MUSIC Intro theme music: Hook Sounds Background music: Bright State by Ketsa Ad music: Soul Sync by Ketsa and Soul Trap by Ketsa

Lexi Silver is 15 years old. She lost both of her parents before she turned 11. That should tell you enough—but it doesn't. Because Lexi isn't here for your pity. She's not a sob story. She's not a trauma statistic. She's a writer, an advocate, and one of the most emotionally intelligent people you'll ever hear speak into a microphone.In this episode, Lexi breaks down what grief actually feels like when you're a kid and the adults around you just don't get it. She talks about losing her mom on Christmas morning, her dad nine months later, how the system let her down, and how Instagram trolls tell her she's faking it for attention. She also explains why she writes, what Experience Camps gave her, how she channels anger into poems, and what to say—and not say—to someone grieving.Her life isn't a Netflix drama. But it should be.And by the way, she's not “so strong.” She's just human. You'll never forget this conversation.RELATED LINKS• Lexi on Instagram: @meet.my.grief• Buy her book: The Girl Behind Grief's Shadow• Experience CampsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Healthcare's broken system hurts patients and physicians, but collective action can heal it. In this episode of Heartline: Changemaking in Healthcare, I sit down with Kim Downey, a physical therapist, three-time cancer survivor, and Community Ambassador for Medicine Forward and the Dr. Lorna Breen Heroes Foundation. Kim shares her transformative journey—facing thyroid and breast cancer, multiple surgeries, and the loss of her radiation oncologist to suicide—which sparked her mission to found Stand Up for Doctors. She discusses how gratitude, like thank-you notes, fosters connection, and how patients can advocate for physicians to improve care. Kim highlights the need for a culture shift in medicine, starting in med school, and emphasizes leadership and self-leadership to navigate toxic environments. Her upcoming 2026 retreat in New York promises community and resilience-building.You'll hear how to:· Use gratitude to bridge patient-physician divides.· Challenge limiting beliefs to find fulfilling work environments.· Build a culture of kindness and collective advocacy in healthcare.If you're seeking hope amidst healthcare's challenges, this episode offers actionable inspiration.About the Guest“If your goal is to change the world in one fell swoop, you will fail. But if you brighten the corner where you are, you will succeed.” – Kim DowneyKim Downey is a physical therapist, three-time cancer survivor, and passionate advocate for physician well-being. As Community Ambassador for Medicine Forward and the Dr. Lorna Breen Heroes Foundation, and founder of Stand Up for Doctors, she amplifies physicians' voices through her YouTube channel, Substack, and book White Coats, Courageous Hearts. Her journey through thyroid and breast cancer, and the loss of her radiologist to suicide, fuels her mission to foster gratitude and systemic change in healthcare.

Joining Dr. Buck Joffrey this week, Dr. Bobby Mukkamala shares his journey from aspiring cardiothoracic surgeon to becoming the president of the American Medical Association. He discusses his personal health challenges, including a brain tumor diagnosis, and how it has shaped his perspective on healthcare. The conversation delves into the importance of preventative medicine, the impact of the Flint water crisis, and the role of the AMA in shaping the future of healthcare, particularly in the realm of longevity and AI. Dr. Mukkamala emphasizes the need for a shift from reactive to proactive healthcare and addresses the challenges posed by influencer medicine and misinformation. Learn more about Dr. Bobby Mukkamala: https://www.ama-assn.org/about/board-trustees/bobby-mukkamala-md - Download Dr. Buck Joffrey's FREE ebook, Living Longer for Busy People: https://ru01tne2.pages.infusionsoft.net/?affiliate=0 Book a FREE longevity coaching consultation with Dr. Buck Joffrey: https://coaching.longevityroadmap.com/

Jasmine is a career coach, wife, and mother who is newly diagnosed with CIDP but no stranger to fighting for her health. After years of navigating lupus and rheumatoid arthritis, Jasmine learned how to push back, speak up, and keep going. Join Martine for the season 4 premiere as Jasmine shares what it’s like to face a new diagnosis mid-journey, and why she refuses to stay silent.See omnystudio.com/listener for privacy information.

Michelle Andrews built a career inside the pharma machine long before anyone knew what “DTC” meant. She helped launch Rituxan and watched Allegra commercials teach America how to ask for pills by name. Then she landed in the cancer fun house herself, stage 4 breast cancer, and learned exactly how hollow all the “journey” slide decks feel when you're the one circling the drain.We talk about what happens when the insider becomes the customer, why pill organizers and wheat field brochures still piss her off, and how she fired doctors who couldn't handle her will to live. You'll hear about the dawn of pharma advertising, the pre-Google advocacy hustle, and what she wants every brand team to finally admit about patient experience.If you've ever wondered who decided windsurfing was the best way to sell allergy meds—or what happens when you stop caring if you make people uncomfortable—listen up.RELATED LINKSMichelle Andrews on LinkedInTrinity Life Sciences – Strategic AdvisoryJade Magazine – Ticking Time Bombs ArticleNIHCM Foundation – Breast Cancer StoryFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Join us as we dive into the complexities of hormonal imbalances in perimenopause and menopause with board certified gynecologist and founder of SheMD, Meryl Kahan. Discover the common symptoms, diagnostic approaches, and effective treatments that can help restore balance and improve quality of life for all the symptoms during these times.  Chapters: Introduction to Hormonal Imbalances (0:00 - 5:00) Overview of hormonal health and common misconceptions. Symptoms and Misdiagnosis (5:01 - 15:00) Discussing the symptoms often dismissed or misdiagnosed. Diagnostic Approaches (15:01 - 25:00) Key hormones to test and the importance of comprehensive lab work. Treatment Options (25:01 - 35:00) Exploring hormone replacement therapy and lifestyle changes. The Role of Stress and Cortisol (35:01 - 45:00) Understanding the impact of stress on hormonal health. Patient Advocacy and Healthcare Challenges (45:01 - 55:00) Navigating the healthcare system and advocating for proper care. Conclusion and Key Takeaways (55:01 - End) Recap of insights and encouragement for those seeking help. Keywords: Hormonal Imbalance Diagnosis Treatment Hormone Replacement Therapy Cortisol Stress Management Women's Health Menopause Perimenopause Patient Advocacy   Meryl Kahan's practice: https://shemdny.com/   Ali's Resources:  Calm the Chaos: Practical Tips and Tools for Stopping Anxiety in It's Tracks Course! Consults with Ali  BIOptimizers Magnesium Breakthrough 10% off using code ALIDAMRON10 www.alidamron.com/magnesium Master Your Perimenopause Course + Toolkit "Am I in Perimenopause?" Checklist.  What Hormone is Imbalanced? Quiz! Fullscript (Get 10% off all supplements) "How To Balance Your Hormones For Better Sleep, Mood, Periods and Energy" Free, On Demand Training Website  Ali's Instagram Ali's Facebook Group: Holistic Health with Ali Damron 

Send us a textThis week's newsmaker, Dutch Liver Patients Association President Jose Willemse, joins Roger Green to discuss the patient screening program at this year's EASL Congress, which took place in Amsterdam, and the general idea of what constitutes a patient-sensitive dialogue. Jose describes the phenomenal level of interest in the screening activity, in which hepatologists and APPs scanned 400 people per day for MASLD and MASH. Boosted by significant mass publicity in Amsterdam, the number of people seeking screening exceeded the 400/day quota, with some arriving in line hours before the scheduled start time and others traveling for hours to reach the site. Jose believes that with adequate publicity, efforts like these could be replicated around the world, but that the healthcare system lacks the necessary resources to do so. In terms of physician-patient dialogues, Jose emphasized the importance of sensitive yet frank conversations and helping patients appreciate the successes they are achieving. 

In this episode of the Secure Your Retirement Podcast, Radon and Murs discuss the critical role of patient advocacy with Dr. Elizabeth Mizelle, founder of Palm Wellness. Drawing on her extensive background as a family medicine physician, Dr. Mizelle now serves as a health advocate for seniors and their caregivers, helping them navigate the complex world of senior healthcare. Whether it's understanding a new diagnosis, coordinating follow-up care, or finding the right resources for aging in place, her approach offers clarity and compassionate support for individuals and families alike.Listen in to learn about how a patient consultant can provide peace of mind by helping with healthcare decisions, coordinating communication with providers, and creating safe, functional home environments for aging loved ones. This episode is especially useful for those involved in retirement healthcare planning, acting as advocates for elderly parents, or seeking caregiver resources. Dr. Mizelle explains the unique difference between clinical care and advocacy, and how she supports people looking to stay home longer or adapt to life-changing diagnoses with confidence.In this episode, find out:· What patient advocacy is and how it differs from traditional clinical care· How a health advocate for seniors helps families manage new diagnoses and medical complexity· Real-life examples of how advocacy can ease transitions after hospitalization· The process of aging in place and how to safely adapt a home for long-term care· How to connect with Palm Wellness for personalized healthcare supportTweetable Quotes:“Patient advocacy helps you slow things down, understand what's happening, and make better-informed healthcare decisions.” – Radon Stancil“It's not just about treating the illness—it's about creating an environment where people can heal, live, and thrive.” – Murs TariqResources:If you are in or nearing retirement and you want to gain clarity on what questions you should be asking, learn what the biggest retirement myths are, and identify what you can do to achieve peace of mind for your retirement, get started today by requesting our complimentary video course, Four Steps to Secure Your Retirement!To access the course, simply visit: POMWealth.net/podcast

In this episode, Duane Schulthess is joined by Sam Rasty, Chief Business Officer at Sensorium Therapeutics, Steve Potts, Chair of the Drug Development Council at the International Cancer Advocacy Network, and Joe Hammang, neuroscientist and US Business Director at Vital Transformation, to discuss how U.S. health policy is reshaping neuroscience innovation, investment priorities, and patient access. Key Topics:- Investment and R&D Strategy Shifts: Explore how the Inflation Reduction Act’s pricing controls and Medicare negotiations change venture capital allocation and steer neuroscience pipelines.- Patient Advocacy and Access Barriers: Guests discuss how formulary rules, generic-first requirements, and uneven advocacy across diseases affect drug adoption and innovation incentives.- Neuroscience Development Hurdles: The discussion highlights how social stigma around psychiatric conditions, fragmented orphan-disease incentives, and small-molecule exclusivity gaps slow CNS drug progress.- Legislative Fix Imperatives: Contributors outline proposed solutions such as the EPIC Act and expanded orphan-designation policies aimed at restoring balanced incentives for novel therapies.- Ecosystem Collaboration: The conversation covers the essential partnership between NIH funding, biotech startups, and pharmaceutical companies in advancing drugs from discovery to patients. This episode examines the policy, economic, and social factors influencing neuroscience drug discovery and the importance of communicating biotech’s value. It also highlights the need to improve the biotech narrative so that policymakers and the public understand its contributions. It is essential listening for industry leaders, investors, policymakers, and patient advocates seeking insight into innovation challenges and solutions.See omnystudio.com/listener for privacy information.

Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward against all odds. This season, we hear from people living with myasthenia gravis (MG) and chronic inflammatory demyelinating polyneuropathy (CIDP) as they reclaim their identities, fight for care, and find strength in both community and themselves. Join us starting July 23rd.See omnystudio.com/listener for privacy information.

Dr. Anne Marie Morse walks into the studio like a one-woman Jersey Broadway show and leaves behind the best damn TED Talk you've never heard. She's a neurologist, sleep medicine doc, narcolepsy expert, founder of D.A.M.M. Good Sleep, and full-time myth buster in a white coat. We talk about why sleep isn't a luxury, why your mattress does matter, and how melatonin is the new Flintstones vitamin with a marketing budget. We unpack the BS around sleep hygiene, blow up the medical gaslighting around “disorders,” and dig into how a former aspiring butterfly became one of the loudest voices for patient-centered science. Also: naps, kids, burnout, CPAPs, co-sleeping, airport pods, the DeLorean, and Carl Sagan. If you think you're getting by on five hours of sleep and vibes, you're not. This episode will make you want to take a nap—and then call your doctor.RELATED LINKSdammgoodsleep.com: https://www.dammgoodsleep.comLinkedIn: https://www.linkedin.com/in/anne-marie-morse-753b2821/Instagram: https://www.instagram.com/dammgoodsleepDocWire News Author Page: https://www.docwirenews.com/author/anne-marie-morseSleep Review Interview: https://sleepreviewmag.com/practice-management/marketing/word-of-mouth/sleep-advocacy-anne-marie-morse/Geisinger Bio: https://providers.geisinger.org/provider/anne-marie-morse/756868SWHR Profile: https://swhr.org/team/anne-marie-morse-do-faasm/FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Kent Bressler talks with Josie Maier, co-director of Project Donor—a nonprofit offering free support to living organ donor candidates. Kent reflects on his journey as a living donor kidney transplant recipient and his recent triumph over cancer. Josie sheds light on key challenges in organ donation, especially how BMI restrictions can prevent otherwise willing individuals from donating. Project Donor works to shift the conversation by helping potential donors overcome reversible barriers through free weight loss programs, smoking cessation resources, and therapy. Together, Kent and Josie highlight the urgent need for more living kidney donors and the importance of awareness. Listen in and discover how you can make a difference in this life-saving mission. For more information about Project Donor, visit projectdonor.org and to connect with Kidney Solutions, go to kidneysolutions.org. Host: Kent Bressler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!  

Support the show and get 50% off MCT oil with free shipping—just leave us a review on iTunes and let us know!https://podcasts.apple.com/us/podcast/live-beyond-the-norms/id1714886566 I never imagined I'd be talking to someone who's advised the FDA, challenged medical orthodoxy, and lived through one of the most devastating pharmaceutical disasters in history, but Suzanne Robotti is that person.She's not just an FDA advisor. She's also the founder of MedShadow Foundation, a nonprofit that helps people understand the real risks of medications without the spin of pharmaceutical companies. And it's personal for her.Suzanne was born into this fight. A drug called DES, prescribed to her mother during pregnancy, led to her own infertility. That experience set her on a decades-long mission to stop another DES from ever happening again. She got trained, joined FDA drug safety committees, and built a trusted platform to empower millions of patients to make informed choices.In this episode, we talk about how few people participate in drug trials before the meds hit the market, what “post-approval” means, and how patients unknowingly become participants in phase 4 drug experiments. We also dig into the real story behind ADHD diagnoses, Ritalin overuse, and what happened when Suzanne was told to medicate her teenage nephew or risk getting him kicked out of school.This is a deeply honest conversation about what it means to become your own health advocate.“ The real effects of medicines are often kept in the shadows.” ~ Suzanne RobottiAbout Suzanne Robotti:Suzanne Robotti is a nationally recognized drug safety advocate, consumer representative to the FDA, and the founder of MedShadow Foundation — a nonprofit media organization dedicated to informing the public about the risks and side effects of medications. Her journey began after discovering that she was infertile because of prenatal DES exposure. Today, Suzanne speaks widely on the importance of transparency in medicine, shared decision-making, and empowering patients to ask better questions.Connect with Suzanne Robotti:- Website: https://medshadow.org - FDA Advocacy: https://desaction.org - Instagram: https://www.instagram.com/medshadowfoundation/ - TikTok: https://www.tiktok.com/@medshadow_foundation - Facebook: https://www.facebook.com/medshadow.foundation - YouTube: https://www.youtube.com/MedShadowFoundation Connect with Chris Burres:- Website: https://www.myvitalc.com/ - Website: http://www.livebeyondthenorms.com/ - Instagram: https://www.instagram.com/chrisburres/ - TikTok: https://www.tiktok.com/@myvitalc - LinkedIn: https://www.linkedin.com/in/chrisburres/ 

Why are so many women screaming through IUD insertions... and being told it's normal? In this episode of Pleasure Pathways, I'm sharing my own experience navigating the medical system to get an IUD—and asking the bigger question: If this pain is so common, why isn't anyone doing more about it? We'll dig into the lack of pain management, the privilege gap in reproductive healthcare, and why men are offered Valium for vasectomies while women are handed ibuprofen and told to “just breathe.” We'll talk about how systemic misogyny, outdated research standards, and class bias all shape the care we receive—and why advocating for our bodies is often met with silence. This episode is personal, emotional, and absolutely necessary—because too many of us have been taught to be grateful for care that ignores our pain. And we're not doing that anymore. Whether you love your IUD, hate it, or you're somewhere in between—this conversation matters.Stay connected here Connect with me on Instagram  Email me here: Lauren@ohyeahcoaching.com

Gigi Robinson grew up with Ehlers-Danlos syndrome, a disease that turns your joints into overcooked spaghetti. Instead of letting it sideline her, she built a career out of telling the truth about invisible illness. We talk about what it takes to grow up faster than you should, why chronic illness is the worst unpaid internship, and how she turned her story into a business. You'll hear about her days schlepping to physical therapy before sunrise, documenting the sterile absurdity of waiting rooms, and finding purpose in the mess. Gigi's not interested in pity or polished narratives. She wants you to see what resilience really looks like, even when it's ugly. If you think you know what an influencer does, think again. This conversation will challenge your assumptions about work, health, and what it means to be seen.RELATED LINKSGigi Robinson Website: https://www.gigirobinson.comLinkedIn: https://www.linkedin.com/in/gigirobinsonInstagram: https://www.instagram.com/itsgigirobinsonTikTok: @itsgigirobinsonA Kids Book About Chronic Illness: https://akidsco.com/products/a-kids-book-about-chronic-illnessFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Tony Royle shares his journey from a successful career as a military and commercial pilot to becoming a patient advocate after experiencing a heart attack. He discusses the impact of the medical system on his health, the challenges of medication, and the transformative power of lifestyle changes, including diet and exercise. Dr. Royle emphasises the importance of personal responsibility in health management and reflects on the education system and the need for curiosity and critical thinking in students. Enjoy the video, transcript and show notes over at www.zoeharcombe.com

Episode Description:If you've ever wondered what happens when a Bronx-born pediatric nurse with stage 4 colon cancer survives, raises a kid, becomes a policy shark, and fights like hell for the ignored, meet Vanessa Ghigliotty. She's not inspirational. She's a bulldozer. We go way back—like pre-Stupid Cancer back—when there was no “young adult cancer movement,” just a handful of pissed-off survivors building something out of nothing. This episode is personal. Vanessa and I built the plane while flying it. She fought to be heard, showed up in chemo dragging her kid to IEP meetings, and never stopped screaming for the rest of us to get what we needed. We talk war stories, progress, side-eyeing advocacy fads, TikTok activism, gatekeeping, policy wins, and why being loud is still necessary. And yeah—she's a damn good mom. Probably a better one than you. You'll laugh. You'll cry. You'll want to scream into a pillow. Come for the nostalgia. Stay for the righteous anger and iced coffee.RELATED LINKSVanessa on LinkedInColorectal Cancer Alliance: Vanessa's StoryZenOnco Interview with VanessaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Seizures, sleepless nights, and mysterious white patches on his skin marked the beginning of Daniel's journey with Tuberous Sclerosis Complex (TSC). Diagnosed at age 6, Daniel faced a childhood filled with MRIs, EEGs, and specialist visits, often requiring cross-country travel for coordinated care. In this moving episode of On Rare, David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio Gene Therapy, speak with Daniel, a 31-year-old living in Seattle, about growing up with TSC, the emotional toll of visible symptoms, and the stigma he faced from peers. He reflects on the cognitive and mood impacts of TSC, including OCD and outbursts, and how he often kept to himself to feel more accepted. Today, Daniel is an active advocate in the TSC community, emphasizing the importance of connection, representation, and finding support among those with shared experiences. As he puts it, “You have to find your people.” Che-Wei Chang, Principal Scientist at BridgeBio, presents a medical overview of Tuberous Sclerosis Complex (TSC), a rare genetic disorder marked by seizures and benign tumors throughout the body. TSC results from a spontaneous mutation in a single copy of the TSC1 or TSC2 gene, which normally inhibit mTOR, an enzyme that regulates cell growth. Loss of this inhibition leads to mTOR hyperactivation, leading to abnormal cell proliferation and tumors in the brain, kidneys, skin, and other organs. Diagnosis typically involves identifying tubers in the brain along with tumors in other organs and is confirmed through genetic testing. Treatments include mTOR inhibitors, which are effective against many TSC-related tumors, and anti-seizure medications, although drug resistance is common.

Here's a preview of the podcast Nobody Should Believe Me. This season, we tell the story of Lisa McDaniel, who crafted a public image as the Director of Patient Advocacy at the Guthy Jackson Foundation while concealing her conviction for child abuse more than a decade ago.We begin with an introduction to the McDaniel family: Lisa, her husband Carey, and their children—Mishelle, Angellyn, and Collin. While the unraveling of their family began when Collin was “diagnosed” with NMO (Neuromyelitis Optica), to understand the full story, we must go back to where it all began: Hazlehurst, Georgia.Host Andrea Dunlop and our producer Myrriah travel with Mishelle—Lisa’s courageous eldest daughter—to her mother’s hometown, where they sit down with Lisa’s younger sister, Sabrina. Sabrina recounts a childhood marked by emotional manipulation and physical abuse at the hands of her older sister. She walks us through Mishelle’s early years, how, as a baby, she was often left with relatives for days at a time, and then through Lisa’s troubled pregnancy with her second child, Angellyn.Stay tuned through the end of the episode for a preview of what’s to come this season.See omnystudio.com/listener for privacy information.

Risa Arin doesn't just talk about health literacy. She built the damn platform. As founder and CEO of XpertPatient.com (yes, expert with no E), Risa's taking a wrecking ball to how cancer education is delivered. A Cornell alum, cancer caregiver, and ex-agency insider who once sold Doritos to teens, she now applies that same marketing muscle to helping patients actually understand the garbage fire that is our healthcare system. We talk about why she left the “complacent social safety” of agency life, how her mom unknowingly used her own site during treatment, what it's like to pitch cancer education after someone pitches warm cookies, and why healthcare should come with a map, a translator, and a refund policy. Risa brings data, chutzpah, and Murphy Brown energy to the conversation—and you'll leave smarter, angrier, and maybe even a little more hopeful.RELATED LINKS• XpertPatient.com• Risa Arin on LinkedIn• XpertPatient & Antidote Partnership• XpertPatient Featured on KTLA• 2024 Health Award BioFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

This season on Nobody Should Believe Me, we tell the story of Lisa McDaniel, who crafted a public image as the Director of Patient Advocacy at the Guthy Jackson Foundation while concealing her conviction for child abuse more than a decade ago. We begin with an introduction to the McDaniel family: Lisa, her husband Carey, and their children—Mishelle, Angellyn, and Collin. While the unraveling of their family began when Collin was “diagnosed” with NMO (Neuromyelitis Optica), to understand the full story, we must go back to where it all began: Hazlehurst, Georgia. Andrea and our producer Myrriah travel with Mishelle–Lisa's courageous eldest daughter– to her mother's hometown, where they sit down with Lisa's younger sister, Sabrina. Sabrina recounts a childhood marked by emotional manipulation and physical abuse at the hands of her older sister. She walks us through Mishelle's early years, how, as a baby, she was often left with relatives for days at a time, and then through Lisa's troubled pregnancy with her second child, Angellyn. Stay tuned through the end of the episode for a preview of what's to come this season. *** Andrea's June 28th event with Lisa Jewell: https://townhallseattle.org/event/lisa-jewell/ Andrea's August 1st event with Gregg Olsen: https://www.libertybaybooks.com/event/west-sound-crime-con-2025-local-authors-gregg-olsen-and-andrea-dunlop Order Andrea's new book The Mother Next Door: Medicine, Deception, and Munchausen by Proxy.  Click here to view our sponsors. Remember that using our codes helps advertisers know you're listening and helps us keep making the show!   Subscribe on YouTube where we have full episodes and lots of bonus content.  Follow Andrea on Instagram: @andreadunlop Buy Andrea's books here.  For more information and resources on Munchausen by Proxy, please visit MunchausenSupport.com The American Professional Society on the Abuse of Children's MBP Practice Guidelines can be downloaded here.  *** This season covers sensitive subject matter involving allegations of child abuse, medical child abuse (also known as Munchausen by proxy), and the death of a minor. All information presented is based on court records, first-person interviews, contemporaneous documentation, and publicly available sources. The podcast includes personal statements and perspectives from individuals directly involved in or affected by these events. These accounts represent their experiences and interpretations, and some statements reflect opinions that may be emotionally charged. Where appropriate, the reporting team has verified claims through official records or corroborating sources. Nothing in this podcast should be interpreted as a legal conclusion or diagnosis. All subjects are presumed innocent unless convicted in a court of law. This podcast is intended for informational and public interest purposes. This podcast contains audio excerpts from two phone conversations recorded in the states of Georgia and Alabama, respectively. Both recordings were obtained by a third-party source, who acted in accordance with the relevant one-party consent laws of those states, which allow for the lawful recording of a conversation with the consent of one participant. These recordings were subsequently shared with the producers of this podcast after the fact, and were not made by or at the direction of the podcast team or its parent organization. The podcast producers have made good-faith efforts to confirm the legal compliance of the original recordings, and are presenting these materials in the context of public interest reporting. The inclusion of this audio is intended for journalistic, educational, and documentary purposes in alignment with the principles of fair use and First Amendment protections. Listeners are advised that the views expressed in the recordings are those of the individuals speaking and do not necessarily reflect the views of the producers or affiliated entities. Learn more about your ad choices. Visit podcastchoices.com/adchoices

Dr. Jamie Wells is back—and this time, she brought a book. We cover everything from biomedical design screwups to the glorified billing software known as the EHR. Jamie's new book, A Clinical Lens on Pediatric Engineering, is a masterclass in what happens when you stop treating kids like small, drunk adults and start designing medicine around actual human factors. We talk about AI in pediatric radiology, why drug repurposing might save lives faster than biotech IPOs, and the absurdity of thinking one-size-fits-all in healthcare still works.Jamie's a former physician, a health policy disruptor, a bioethicist, an MIT director, and a recovering adjunct professor. She's also a unicorn. We dig into the wonk, throw shade at bad design, and channel our inner Lisa Simpsons. This one's for anyone who ever wondered why kids' hospitals feel like hell and why “make it taste like bubblegum” might be the most important clinical innovation of all time. You'll laugh, you'll learn, and you might get angry enough to fix something.RELATED LINKSJamie Wells on LinkedInBook: A Clinical Lens on Pediatric Engineering (Amazon)Book on SpringerDrexel BioMed ProfileGlobal Blockchain Business CouncilJamie's HuffPost ArticlesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Why Are We Paying More for Worse Health? | ShiftShapersIn this episode of ShiftShapers, host David A. Saltzman welcomes Helene M. Epstein—writer, speaker, and patient advocate behind the Substack series Patient No More. Helene dives deep into America's epidemic of medical errors, misdiagnoses, and system failures. She breaks down why even the most advanced technology and training haven't improved patient safety, how profit-driven healthcare puts patients at risk, and—most importantly—what individuals can do to protect themselves and their families. From shocking statistics about misdiagnosis to the hidden realities of rural hospital closures, Helene provides practical advice and hope for patients who are ready to become their own advocates.

Erica Campbell walked away from corporate life, took a hard left from the British Embassy, and found her calling writing checks for families nobody else sees. As Executive Director of Pinky Swear Foundation, she doesn't waste time on fluff. Her team pays rent, fills gas tanks, and gives sick kids' parents the one thing they don't have—time. Then, breast cancer hit her. She became the patient. Wrote a book about it. Didn't sugarcoat a damn thing. We talk about parking fees, grief, nonprofit burnout, and how the hell you decide which families get help and which don't. Also: AOL handles, John Hughes, and letters from strangers that make you cry. Erica is part Punky Brewster, part Rosie the Robot, and part Lisa Simpson—with just enough GenX Long Island sarcasm to make it all land. This one sticks.RELATED LINKSPinky Swear FoundationThe Mastectomy I Always Wanted (Book)Erica on LinkedInThink & Link: Erica Campbell“Like the Tale of a Starfish” - Blog Post“Cancer Diagnosis, Messy Life, Financial Support” - Blog PostFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, Dr. April Spencer discusses the evolving landscape of breast cancer, particularly among younger women, and the various lifestyle factors contributing to this trend. She emphasizes the importance of stress management, self-care, and setting boundaries to improve women's health outcomes.  This discussion also highlights: The emotional and physical challenges women face during a breast cancer diagnosis A multifaceted approach to breast cancer care, emphasizing the importance of support systems, the need for women to advocate for themselves, and the role of integrative medicine The significance of choosing the right medical team How healthcare providers are impacted by burnout Recent updates on mammogram guidelines and hormone therapy considerations for women Dr. Spencer's advice for those facing a breast cancer diagnosis  Show Notes:Learn more about Dr. Spencer and follow her on Instagram @dr.aprilspencer! Become a DUTCH Provider today to get access to free educational resources, expert clinical support, peer-reviewed and validated research, and comprehensive patient reports. 

June 5, 2025: Bill Russell sits down with Erica Olenski, VP at Finn Partners and Founder of August's Artists, Ironman athlete, and board-certified patient advocate, who brings a unique perspective from navigating the healthcare system through hundreds of overnight hospital stays with her son August, a four-time brain cancer survivor. Why does a family with an extensive hospital history still get treated like first-time visitors at check-in, and how might HIPAA compliance be unintentionally creating barriers to human connection in care? The conversation explores whether patients should control their complete medical records to share with AI assistants, the reality of managing a 60,000-page medical record delivered on CD-ROM, and practical solutions like reimagining emergency department processes for complex care families.  Key Points: 02:02 Erica's Son's Health Journey 09:08 The Role of Patient Advocates 13:41 Using AI as a Patient 21:54 August Artists: A Nonprofit Initiative 27:43 Rapid Fire Questions and Closing Remarks X: This Week Health LinkedIn: This Week Health Donate: Alex's Lemonade Stand: Foundation for Childhood Cancer

Patient advocate Tami Burdick discusses her article, "How collaboration saved my life from a rare disease doctors couldn't diagnose." Tami shares her personal and arduous journey with granulomatous mastitis (GM), a rare and poorly understood condition, and how embracing collaborative health care in three key ways led to her successful remission. She details the crucial partnership between her conventional Western medicine doctor, surgical breast oncologist Dr. Kelly McLean, and her functional medicine practitioner, Jared Seigler, which allowed for innovative testing and a broader perspective on her illness. Tami also highlights the power of patient-to-doctor collaboration, emphasizing how her own relentless research and self-advocacy were instrumental in uncovering answers that the traditional system initially missed, largely due to time constraints on physicians. Furthermore, she underscores the profound impact of patient-to-patient collaboration through her support group, where shared experiences and knowledge provided critical guidance and helped others navigate the complexities of GM. Tami's story is a testament to the potential of integrating different medical approaches, the necessity of patient empowerment, and a call for systemic changes in health care to foster more such collaborations, including better insurance coverage for alternative practices and more dedicated time for doctor-patient interactions. Our presenting sponsor is Microsoft Dragon Copilot. Want to streamline your clinical documentation and take advantage of customizations that put you in control? What about the ability to surface information right at the point of care or automate tasks with just a click? Now, you can. Microsoft Dragon Copilot, your AI assistant for clinical workflow, is transforming how clinicians work. Offering an extensible AI workspace and a single, integrated platform, Dragon Copilot can help you unlock new levels of efficiency. Plus, it's backed by a proven track record and decades of clinical expertise and it's part of Microsoft Cloud for Healthcare–and it's built on a foundation of trust. Ease your administrative burdens and stay focused on what matters most with Dragon Copilot, your AI assistant for clinical workflow. VISIT SPONSOR → https://aka.ms/kevinmd SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended

Allyson with a Y. Ocean with two Ls. And zero chill when it comes to changing the face of cancer care. Dr. Allyson Ocean has been quietly—loudly—at the center of every major cancer breakthrough, nonprofit board, and science-backed gut punch you didn't know you needed to hear. In this episode, she joins me in-studio for a conversation two decades in the making. We talk twin life, genetics, mitochondrial disease, and why she skipped the Doublemint Twins commercial but still ended up as one of the most recognizable forces in oncology. We cover her nonprofit hits, from Michael's Mission to Let's Win Pancreatic Cancer to launching the American Jewish Medical Association—yes, that's a thing now. We get personal about compassion in medicine, burnout, bad food science, and microplastics in your blood. She also drops the kind of wisdom only someone with her résumé and sarcasm can. It's raw. It's real. It's the kind of conversation we should've had 20 years ago—but better late than never.RELATED LINKS:– Dr. Allyson Ocean on LinkedIn– Let's Win Pancreatic Cancer– NovoCure Leadership Page– Michael's Mission– American Jewish Medical Association– The POLG Foundation– Cancer Buddy App (Bone Marrow and Cancer Foundation)– Dr. Ocean at OncLiveFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Sponsored by Invivyd, Inc.Nobody wants to hear about COVID-19 anymore. Especially not cancer patients. But if you've got a suppressed immune system thanks to chemo, radiation, stem cell transplants—or any of the other alphabet soup in your chart—then no, it's not over. It never was. While everyone else is getting sweaty at music festivals, you're still dodging a virus that could knock you flat.In this episode, Matthew Zachary and Matt Toresco say the quiet part out loud: many immunocompromised people may not even know they have options beyond vaccines. Why? Because the system doesn't bother to tell them. So we're doing it instead. We teamed up with Invivyd to help get the word out about tools other than vaccines that can help prevent COVID-19. We break down the why, the what, and the WTF of COVID-19 risk for cancer patients and why every oncologist should be talking about this.No fear-mongering. No sugarcoating. Just two guys with mics who've been through it and want to make sure you don't get blindsided. It's fast, funny, and furious—with actual facts. You've got more power than you think. Time to use it.RELATED LINKSExpand Their OptionsInvivydMatt Toresco on LinkedInOut of Patients podcastFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Anders Sorensen is a Danish clinical psychologist with a PhD in psychiatry who has dedicated his career to an area that most professionals won't touch—and that most patients don't even know exists. He's one of the world's leading authorities on psychiatric drug dependence and the complex science of safely discontinuing these medications. His upcoming book represents years of clinical research and hands-on experience helping hundreds of people navigate what may be one of the most misunderstood medical challenges of our time. This isn't just another podcast about mental health. This is a conversation that could fundamentally change how you understand psychiatric medications, withdrawal, and what's actually happening in the brains and bodies of millions of Americans right now. Dr. McFillin and Anders dive into territory that most medical professionals avoid—not because it's controversial, but because it requires a level of specialized knowledge that simply doesn't exist in mainstream medicine. What you'll hear challenges everything you've been told about these medications, reveals why so many people feel "trapped" on their prescriptions, and exposes a gap in medical care that's affecting countless lives.Substack: https://crossingzero.substack.com/X: https://x.com/_AndersSorensenRADICALLY GENUINE PODCASTDr. Roger McFillin / Radically Genuine WebsiteYouTube @RadicallyGenuineDr. Roger McFillin (@DrMcFillin) / XSubstack | Radically Genuine | Dr. Roger McFillinInstagram @radicallygenuineContact Radically GenuineConscious Clinician CollectivePLEASE SUPPORT OUR PARTNERS15% Off Pure Spectrum CBD (Code: RadicallyGenuine)10% off Lovetuner click here Dr. Roger McFillin / Radically Genuine WebsiteYouTube @RadicallyGenuineDr. Roger McFillin (@DrMcFillin) / XSubstack | Radically Genuine | Dr. Roger McFillinInstagram @radicallygenuineContact Radically GenuineConscious Clinician CollectivePLEASE SUPPORT OUR PARTNERS15% Off Pure Spectrum CBD (Code: RadicallyGenuine)10% off Lovetuner click here

EPISODE DESCRIPTIONLisa Shufro is the storyteller's storyteller. A musician turned innovation strategist, TEDMed curator, and unapologetic truth-teller, Lisa doesn't just craft narratives—she engineers constellations out of chaos. We go way back to the early TEDMed days, where she taught doctors, scientists, and technocrats how not to bore an audience to death. In this episode, we talk about how storytelling in healthcare has been weaponized, misunderstood, misused, and still holds the power to change lives—if done right. Lisa challenges the idea that storytelling should be persuasive and instead argues it should be connective. We get into AI, the myth of objectivity, musical scars, Richard Simmons, the Vegas healthcare experiment, and the real reason your startup pitch is still trash. If you've ever been told to “just tell your story,” this episode is the permission slip to do it your way. With a bow, not a violin.RELATED LINKSLisa Shufro's WebsiteLinkedInSuper Curious ArchiveEight Principles for Storytelling in InnovationStoryCorps InterviewCoursera Instructor ProfileWhatMatters ProjectFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Courtney Turich shares the journey of Cooler Heads, the startup behind a scalp cooling device that helps chemo patients keep their hair and dignity.   From early challenges to reaching over 100 infusion centers, she reveals how awareness, advocacy, and social media-fueled their growth.   We explore the emotional impact of scalp cooling, the barriers to oncologist adoption, and the company's commitment to patient education.   Courtney also offers career advice for breaking into medical sales, thriving in startups, and leading with purpose.   This is a must-listen for anyone who wants to build a mission-driven career, create a real impact in healthcare, or understand what it takes to grow a successful medical startup.   Connect with Courtney: LinkedIn Connect with Me: LinkedIn   Love the show? Subscribe, rate, review, and share! Here's How » Want to connect with past guests and access exclusive Q&As? Join our EYS Skool Community today!

What happens when you blend the soul of Mr. Rogers, the boldness of RuPaul, and just a pinch of Carrie Bradshaw? You get Sally Wolf.She's a Harvard and Stanford powerhouse who ditched corporate media to help people actually flourish at work and in life—because cancer kicked her ass and she kicked it back, with a pole dance routine on Netflix for good measure.In this episode, we unpack what it means to live (really live) with metastatic breast cancer. We talk about the toxic PR machine behind "pink ribbon" cancer, how the healthcare system gaslights survivors when treatment ends, and why spreadsheets and dance classes saved her sanity. Sally doesn't just survive. She rewrites the script, calls out the BS, and shows up in full color.If you've ever asked “Why me?”—or refused to—this one's for you.RELATED LINKS:Sally Wolf's WebsiteLinkedInInstagramCosmopolitan Essay: "What It's Like to Have the 'Good' Cancer"Oprah Daily Article: "Five Things I Wish Everyone Understood About My Metastatic Breast Cancer Diagnosis"Allure Photo ShootThe Story of Our Trauma PodcastFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

On this episode, Tania Simoncelli (Vice President, Translational Impact and Engagement, Chan Zuckerberg Initiative) and Nasha Fitter (Co-founder & CBO, Citizen Health and Co-founder & CEO, FOXG1 Research Foundation) join forces to discuss how rare disease patient advocacy has transformed over time and how the biopharmaceutical industry should adapt to better meet the needs of today's patients. They dive deeper into the evolution of rare disease patient advocacy groups, why industry must move beyond the hyperfocus on “blockbuster drugs” to make progress in rare disease research, and how advancements in rare disease treatments can benefit the clinical research ecosystem for all.

In this episode of the Manta Cares's Patient from Hell Podcast Club, host Mike Lynn engages with Sheila Goodrow, a metastatic breast cancer advocate, to discuss the importance of mental health resources for cancer patients. They explore Sheila's personal journey with cancer, the challenges of accessing mental health care, and the role of advocacy in healing. The conversation emphasizes the need for comprehensive support systems for patients and caregivers alike, highlighting the significance of mental wellness in the cancer journey.This Podcast Club accompanies Patient from Hell podcast Episode 84: Managing Insomnia and Mental Health in Cancer Care with Dr. Cara Bohon.00:00 Introduction to Patient Advocacy and Podcast Goals02:00 Sheila's Journey with Metastatic Breast Cancer03:52 Mental Health Challenges in Cancer Care09:46 Exploring Therapy and Mental Health Resources14:03 Accessibility of Mental Health Services for Patients17:58 The Role of Advocacy in Personal Healing19:59 Conclusion and Final Thoughts on WellnessConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In this episode of the Manta Cares Patient from Hell Podcast Club, host Mike Lynn engages with Brenda Elveen, a breast cancer survivor and patient advocate. They discuss the challenges faced by cancer patients, including navigating the healthcare system, the impact of insurance on treatment options, and the importance of community support. Brenda shares her personal journey through cancer treatment and emphasizes the need for patient empowerment and effective communication with loved ones. The conversation highlights the transformative power of advocacy and the positive outcomes that can arise from difficult experiences.This Podcast Club accompanies Patient from Hell podcast Episode 91 "Personalized Oncology: General Surgeon Discusses Modern Breast Cancer Treatment" with Dr. Anitha Srinivasian.00:00 Introduction to Patient Advocacy and Personal Stories02:52 Navigating the Cancer Diagnosis Journey05:51 The Impact of Insurance on Treatment Decisions09:14 Understanding Treatment Options and Patient Empowerment11:57 The Role of Community and Support in Cancer Care15:02 The Importance of Communication with Loved Ones18:01 Finding Purpose in Advocacy and Personal GrowthConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In our Patient from Hell Podcast Club episode, Ashley Dedman, vice president of mission delivery at Living Beyond Breast Cancer. They discuss the importance of patient advocacy, particularly in the context of breast cancer and DCIS (ductal carcinoma in situ). Ashley shares her personal journey with cancer as a caregiver and advocate, emphasizing the need for timely information and emotional support for patients and their families. The conversation highlights the evolving landscape of cancer treatment, the significance of understanding individual experiences, and the critical role of mental health in navigating cancer journeys.Chapters00:00 Introduction to Patient Advocacy and Podcast Goals03:03 Understanding DCIS: A Deep Dive into Breast Cancer06:03 Personal Stories: The Impact of Cancer on Families12:06 The Role of Advocacy in Cancer Care17:51 Navigating Treatment Decisions and Patient Empowerment24:06 Mental Health and Support in Cancer JourneysConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Elsewhere: Website: https://mantacares.com/pages/podcast?srsltid=AfmBOopEP5GJ-Wd2nL-HYAInrwerIVhyJw67salKT-r9Qb_gadBvbHie YouTube: https://youtu.be/2SxvTqJht34?si=2U_98RfJJeWkTaT3 Spotify: https://open.spotify.com/episode/3TR1lFLtf6em5YyKtlWy2L?si=6ma-9g_wTIWTCLmHiHF_Aw Apple: https://podcasts.apple.com/us/podcast/navigating-cervical-cancer-screening-surgery-and/id1622669098?i=1000706666920 Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In this conversation, Dr. Jannine Krause sits down with Jennifer Brower as she shares her personal journey through chronic illness, including Lyme disease, mold toxicity, and the aftermath of COVID-19. She discusses the challenges of misdiagnosis and the emotional toll of navigating the healthcare system. Jennifer emphasizes the importance of finding the right healing modalities, building a supportive community, and advocating for oneself in medical settings. She also highlights the significance of emotional health and the need for personalized approaches to wellness. We dive deep into:

On this episode of Cheat Codes, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, is joined by sickle cell advocates Teonna Woolford, Cassandra Trimnell, and Rae Blaylark discuss the challenges and rewards of sickle cell advocacy. They delve into personal journeys, the nuances of advocacy, and the importance of self-care. The conversation highlights the power of community, the significance of setting boundaries, and the need for therapeutic support. The advocates also reflect on the impact of their work and offer advice for the next generation of sickle cell advocates.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.  

Episode DescriptionAudra Moran is the President and CEO of OCRA—Ovarian Cancer Research Alliance—which means she spends her days doing things most of us wouldn't survive five minutes doing: merging nonprofits, leading national patient support programs, funding lifesaving research, surviving pharma grant hell, and trying to reach every woman in America who might be slipping through the cracks. We talk about her time working with the Helen Keller National Center (yes, she knows finger spelling), her accidental journey into cancer nonprofit leadership, the weirdness of dermoid cysts, the ridiculousness of writing grants, and the absolute hellscape of diagnosis delay. Oh, and the fallopian tubes. You'll never look at them the same way again.This episode is funny, raw, deeply personal, and loaded with Gen X movie references and random facts about Paul Rudd, Terminator 2, and flipbook apps at 3am. Audra drops wisdom, humility, and a few hot takes on AI, advocacy, and what it really means to lead when the boulder keeps rolling downhill.RELATED LINKSAudra Moran on LinkedInOvarian Cancer Research Alliance (OCRA)Audra's profile on OCRACURE Today interview: Leading the FightOCRA + AI & Data: Overlooked PodcastFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Getting a diagnosis should feel like the beginning of healing—but for many living with chronic illness, it's just the start of a much longer, messier road.In this episode, Lyndsay Soprano sits down with Angel Parker from the Netflix documentary Diagnosis, for a raw, honest conversation about what it really means to live with chronic pain and illness. From the emotional exhaustion of being dismissed by doctors to the quiet heartbreak of not being believed by the people closest to you, this conversation doesn't shy away from the hard stuff. They talk about what happens when your body betrays you, when your mind starts to spiral, and when your world gets smaller because of pain.But this isn't just about struggle—it's about survival. About building your own village when the system fails you. About learning to advocate for yourself, even when your voice shakes. About navigating the anxiety, the food triggers, the family dynamics, and the invisible weight you carry every single day.Lyndsay and Angel also touch on the global gaps in healthcare, the mental toll of feeling alone in your illness, and the little things—like community, connection, and shared experience—that make all the difference. It's not tied up in a bow. It's real. And it just might make you feel a little more seen.Find Angel Parker Online Here:Instagram: @angelbangelllInstagram: @evolvetherapylvFind The Pain Game Podcast Online Here:Website: thepaingamepodcast.comInstagram: @thepaingamepodcastFacebook: The Pain Game PodcastLinkedIn: Lyndsay SopranoEpisode Highlights:(00:00) Introduction to Chronic Pain and Healing(02:35) The Journey to Diagnosis(10:18) Living with Chronic Pain: Personal Stories(16:45) Mental Health and Chronic Illness(20:32) Navigating Healthcare Systems(26:49) Understanding CPT2 and Dietary Needs(31:22) The Power of Community and Support(37:23) Final Thoughts and Encouragement

Christine Verini is a pharmacist by training, a nonprofit CEO by title, and an unapologetic empath by design. She now leads CancerCare, one of the oldest, least-known, and most impactful organizations in the country that actually helps real cancer patients deal with the practical garbage no one likes to talk about—like paying rent, affording a ride to chemo, or feeding their kids.We talk about her career pivot from industry to impact, what it's like trying to scale empathy without losing your soul, and the daily gut-punch of knowing there are millions of people who still have no idea that CancerCare exists. Christine gets real about leadership, advocacy, burnout, and why being “pan-cancer” matters more than ever in a world obsessed with biomarkers, buckets, and branding.She also dishes on what AI gets dead wrong, what patients actually want when they call for help, and why “ghosting” someone with cancer is still a thing. Buckle up. This one's packed with heart, brains, and a little righteous rage.RELATED LINKSCancerCareChristine Verini on LinkedInChristine's CEO Announcement – PR NewswireCancer Health 25: Christine VeriniChristine on HealthyWomenBIO Convention Speaker ProfileFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What do you do when your pain becomes so intense, so overwhelming, that the only place left to turn is the emergency room—and even that doesn't feel safe?In this raw and revealing episode, Lyndsay Soprano opens up about her own lived experience with chronic pain, including CRPS and Lyme disease, and the harsh reality of seeking help in an emergency medical system that often doesn't know what to do with people like her. The ER isn't always a place of comfort—it can be cold, dismissive, and downright dangerous when you're already at your breaking point.She's joined by Dr. Jim Keany, an emergency physician who brings honesty and insight to the conversation. Together, they unpack the disconnect between chronic pain patients and emergency care providers, the emotional toll of pain that goes far beyond the physical, and the desperate need for a healthcare system that sees people as whole humans—not just symptoms.Lyndsay and Dr. Keany discuss the deeper layers of chronic pain—how trauma can amplify it, how isolation can worsen it, and how the system often misses the mark. They touch on the struggles of medication management, the power of journaling, and how tools like hypnosis can actually help. Most of all, they stress the importance of treating the whole person, not just the symptoms. With empathy, advocacy, and even a little hope, healing becomes more possible.If you've ever felt dismissed, gaslit, or broken by your pain—or by the people meant to help you, this episode is for you.Find Dr. Jim Keany Online Here:LinkedIn: Dr. Jim KeanyFind The Pain Game Podcast Online Here:Website: thepaingamepodcast.comInstagram: @thepaingamepodcastFacebook: The Pain Game PodcastEpisode Highlights:(00:00) Introduction to Chronic Pain and Trauma(03:04) Emergency Situations and Pain Management(05:54) The Role of Emergency Medicine in Chronic Pain(08:48) Understanding Pain: Psychological and Physical Aspects(12:00) Navigating the Healthcare System(14:57) Alternative Pain Management Strategies(17:51) The Importance of Whole Person Care(21:00) Supporting Loved Ones in Chronic Pain(23:54) The Role of Journaling in Pain Management(26:50) Global Perspectives on Pain and Suffering(30:03) Hope and Future in Pain Management

Equity is not just a box to check; it is the framework for lasting change. In this week's BackTable podcast, guest host Dr. Veronica Lerner speaks with Dr. Ebony Carter, a high-risk obstetrician and Division Director for Maternal-Fetal Medicine at the University of North Carolina at Chapel Hill. Dr. Carter shares insights into her career journey, which was influenced by her mother's activism in health equity, her work on reproductive health disparities, and community engagement projects. ---SYNPOSISThe conversation underscores the importance of patient participation and agency in clinical decision-making. Dr. Carter and Dr. Lerner also discuss the development of an equity rubric for peer-reviewed journals, highlighting the need for inclusive and intentional research practices. They explore practical applications of the rubric, including the proper acknowledgment of contributors to foundational concepts. The episode further delves into Dr. Carter's mentorship initiatives at the Green Journal and her guiding philosophy of pursuing impactful, community-driven work rooted in passion and purpose.---TIMESTAMPS00:00 - Introduction02:06 - Dr. Carter's Journey and Inspiration05:19 - Community Engagement and Health Equity06:19 - Patient Advocacy and Shared Decision Making08:54 - Collaborative Research and Community Partnerships16:58 - Addressing Bias in Medical Practice22:12 - Equity in Academic Publishing28:26 - Diversifying the Peer Review Pool30:33 - Creating and Implementing the Equity Rubric31:17 - The Impact and Application of the Equity Rubric33:31 - Personal Reflections on Equity and Research35:25 - Citing Foundational Work38:48 - Mentorship and Training Future Leaders47:05 - Career Transitions and Future Goals52:36 - Final Thoughts and Advice for Aspiring Professionals---RESOURCESFull Equity Rubric:https://journals.lww.com/greenjournal/Documents/OnG_Equity_Rubric_1.pdf ​Equity Rubric Introduction Video:https://youtu.be/Jh5_L-pYkuE?si=JREjSSCr98jqjVVB Equity Rubric Introduction Video Slide Deck:https://journals.lww.com/greenjournal/Documents/Green%20Journal%20Equity%20Rubric%20YouTube_final_2022_01_16%20(Slides).pdf

Jennifer Finkelstein is not here for your pity, your pinkwashed slogans, or your performative awareness campaigns. She's a 20-year young adult breast cancer survivor who turned trauma into a blueprint for action and built 5 Under 40, a no-BS nonprofit supporting women diagnosed with breast cancer under 40.In this episode, we go full Gen X therapy session—from SNL nostalgia and cold caps to the absurdity of finding out you have cancer while looking for the remote. Jen drops real talk about founding a nonprofit when nothing existed for her age group, why mental health support isn't optional, and how passing down designer scarves can mean arming someone for battle.If you're looking for honesty, grit, and a few inappropriate jokes about gastroenterology, this one's for you. You'll laugh, you might cry, and you'll definitely leave knowing why Jennifer Finkelstein is a survivor, a fighter, and a damn legend.RELATED LINKS5 Under 40 FoundationJennifer Finkelstein on LinkedInAbout 5 Under 40: Board of DirectorsDan's Papers: 5 Under 40 Supports Young Breast Cancer SurvivorsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.Let me know if you want shorter pull quotes, audiogram text, or promotional copy for LinkedIn, Instagram, or your newsletter.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What happens when a black belt, sword-slinging fitness icon gets cancer—twice? She picks up a camera and dares the universe to test her again.Ilaria Montagnani is not your average anything. She's been building strong bodies (and stronger minds) for over 30 years as the founder of Powerstrike. She's part Jane Fonda, part Uma Thurman, and very much the action hero you wish was your personal trainer.In this episode, we talk about what happens when everything you built your life on—movement, strength, purpose—gets sideswiped by disease. Twice. Ilaria opens up about diagnosis shock, bad doctor vibes, wielding swords post-mastectomy, and why working out through treatment is the best revenge.We get into scanxiety, menopause side effects, nutrition spirals, and the moment she realized the fitness industry needed more truth—and less bullshit.This one's real, raw, and will either guilt you into planking or inspire you to finally cancel that gym membership you've never used. Either way, you're gonna feel something.RELATED LINKSStronger for Life documentaryPowerstrike official siteIlaria on InstagramIlaria on LinkedInWorkout programs and DVDsForza Sword Workout on AmazonFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.