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In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!
In this episode of Cheat Codes, Dr. Z and Dr. C are joined by renowned advocates TaLana Hughes and Cassandra Trimnell to explore what “the sickle cell community” truly means. They discuss how patients, caregivers, providers, and allies form interconnected, and often overlapping, communities that bring hope, support, and change. From building trust to celebrating wins, the conversation highlights the power of connection, the importance of access to information, and how to find your “tribe” in the sickle cell space. Whether local or global, online or in person, community remains the heartbeat of progress in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.
Sophie Sargent walked into the studio already owning the mic. A pandemic-era media rebel raised in New Hampshire, trained in Homeland Security (yep), and shaped by rejection, she's built a career out of DM'ing her way into rooms and then owning them. At 25, she's juggling chronic illness, chronic overachievement, and a generation that gets dismissed before it even speaks.We talk Lyme disease, Lyme denial, and the healthcare gaslighting that comes when you “look fine” but your body says otherwise. We dive into rejection as a career accelerant, mental health as content porn, and what it means to chase purpose without sacrificing identity. Sophie's a former morning radio host, country music interviewer, and Boston-based creator with a real voice—and she uses it.No fake podcast voice. No daddy-daughter moment. Just two loudmouths from different planets figuring out what it means to be seen, believed, and taken seriously in a system designed to do the opposite.Spoiler: She's smarter than I was at 25. And she'll probably be your boss someday.RELATED LINKSSophie on InstagramSophie on YouTubeSophie on LinkedInMedium article: “Redefining Rejection”See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
What happens when you hand a mic to the most extroverted, uncensored Gen Z career coach in New York? You get Olivia Battinelli—adjunct professor, student advisor, mentor, speaker, and unfiltered truth-teller on everything from invisible illness to resume crimes.We talked about growing up Jewish-Italian in Westchester, surviving the Big Four's corporate Kool-Aid, and quitting a job after 7 months because the shower goals weren't working out. She runs NYU Steinhardt's internship program by day, roasts Takis and “rate my professor” trolls by night, and somehow makes room for maple syrup takes, career coaching, and a boyfriend named Dom who sounds like a supporting character from The Sopranos.She teaches kids how to talk to humans. She's allergic to BS. And she might be the most Alexis Rose-meets-Maeve Wiley-mashup ever dropped into your feed. Welcome to her first podcast interview. It's pure gold.RELATED LINKS:Olivia Battinelli on LinkedInOlivia's Liv It Up Coaching WebsiteOlivia on InstagramNYU Steinhardt Faculty PageFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Betsy Wurzel welcomes back Neal K. Shah to Chatting with Betsy for an eye-opening conversation on health insurance denials and his new #1 Amazon Best Seller, Insured To Death: How Health Insurance Screws Over Americans And How We Take It Back (Foreword by David Casarett, M.D.). Neal shares his personal journey battling insurance denials during his wife's cancer treatment, along with stories from CareYaya clients who faced the same devastating obstacles. Together, Betsy and Neal explore:How insurers are using AI to increase claim denials (one jumped from 1% to 15%)The emotional and financial toll on patients and caregiversWhy physician burnout and shortages worsen the crisisSteps families can take to fight back and file appeals—especially vital for elderly patients who lack advocatesNeal also introduces his work with Counterforce Health, a free support resource for appeals, and shares updates from CareYaya, his caregiving tech startup.
In this episode, we begin with a brief introduction of our podcasters, Tom DeSilvio, Brennan Flannery, Yash Singh, and Ghazal Zandieh, before welcoming Dr. Gary Luker, Editor‑in‑Chief of the RSNA journal, Radiology: Imaging Cancer. Our goal is to showcase and better introduce the journal while highlighting the future of individualized cancer imaging. Dr. Luker joins us to discuss how advanced imaging, artificial intelligence, and translational research are transforming personalized cancer care.
How This Is Building Me, hosted by world-renowned oncologist D. Ross Camidge, MD, PhD, is a podcast focused on the highs and lows, ups and downs of all those involved with cancer, cancer medicine, and cancer science across the full spectrum of life's experiences. In this episode, Dr Camidge sat down with Ken Culver, MD, the director of Research and Clinical Affairs at ALK Positive Inc. Drs Camidge and Culver discussed the highlights of Dr Culver's career, which has been shaped by clinical practice, research, industry leadership, and patient advocacy. They noted elements of ALK Positive that set it apart from other patient advocacy groups, including its being entirely created, funded, and led by patients with stage IV lung cancer and their caregivers. Culver explained how he collaborates with patients to expand treatment opportunities, meets with companies and universities worldwide, and helps stakeholders recognize both the unmet needs and financial incentives for developing therapies for ALK-positive lung cancer. Culver detailed his path to the oncology field, which began with an intention to practice as a community pediatrician in Iowa. This led him to pursue residency training in California, where he gained diverse clinical experience, particularly in HIV/AIDS at the height of the epidemic. His early research explored HIV transmission in children born to drug-using mothers, highlighting the immunosuppressive effect of drug abuse even in the absence of HIV. During his fellowship, he contributed to pioneering work in gene therapy. He also participated in research that laid the groundwork for tumor-directed therapies, which later influenced large-scale clinical trials. Eventually, Culver explained that transitioned to industry. At Novartis, he contributed to the development of important drugs and witnessed the transformative launch of imatinib (Gleevec), one of the first targeted cancer therapies. Alongside his professional work, Culver established the Foundation for Peace, a nonprofit providing medical and community support in the Dominican Republic, Haiti, and Kenya. This initiative, which began with a mission trip in 1989, has grown to involve hundreds of volunteers annually, offering both medical care and broader community services. In his current role with ALK Positive, Culver noted that he has leveraged patient-led advocacy to influence industry priorities, resulting in several new clinical trials for ALK-positive patients. His work emphasizes balancing discovery research with near-term clinical opportunities to directly benefit patients with cancer today. He also shared how he prioritizes tools to empower patients, such as clinical trial finders, and stressed the importance of having contingency plans before disease progression. Overall, this conversation highlights a career that reflects a consistent commitment to science, patient care, and global service, guided by both professional and humanitarian values.
This episode is sponsored by Invivyd, Inc.Marc Elia is a biotech investor, the Chairman of the Board at Invivyd, and a Long COVID patient who decided to challenge the system while still stuck inside it. He's not here for corporate platitudes, regulatory shoulder shrugs, or vaccine-era gaslighting. This is not a conversation about politics, but it's about power and choice and the right to receive care and treatment no matter your condition.In this episode, we cover everything from broken clinical pathways to meme coins and the eternal shame of being old enough to remember Eastern Airlines. Marc talks about what it means to build tools instead of just complaining, what Long COVID has done to his body and his patience, and why the illusion of “choice” in healthcare is a luxury most patients don't have.This conversation doesn't ask for empathy. It demands it.RELATED LINKSMarc Elia on LinkedInInvivyd Company SiteMarc's Bio at InvivydFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Sunday, September 7, 2025. Week 37. Why does CURE SYNGAP1 aka SRF matter? Do PAGS make a difference? Heck yes. Empower Families - Support. Educate. Activate. Coordinate. Use Money Catalytically - Tax advantage. Pool. Manage. Make Catalytic. Focus. Manage. Partner with Science & Medicine - Push forward. Connect efforts. Focus on Tx. Work in Clinic. Leverage Ecosystem. Industry. PAGs. Superpags (CB, GG, ELF). Ensure Continuity. Our kids will outlast us. Our energy wanes. Life happens. Cure SYNGAP1 never stops focusing on the biggest challenge in our lives: SRD. Because you VOLUNTEER Join us: https://curesyngap1.org/volunteer-with-srf/ Gala video: Look at those faces.https://www.youtube.com/watch?v=d6dCSBq27Gc Friday: Beacon of Hope September 12, 2025 - Boston, MA cureSYNGAP1.org/Beacon25 Scramble for SYNGAP October 4, 2025 - Greer, SC cureSYNGAP1.org/Scramble
We're told to trust our instincts—but what happens when doctors dismiss them? In this powerful episode of the Uncover Your Eyes Podcast, Dr. Meenal Agarwal exposes the hidden crisis of medical gaslighting in today's healthcare system. Drawing from personal stories, patient experiences, and the latest research, Dr. Meenal uncovers: ✅ The origins of the term gaslighting and how it shows up in medicine ✅ Eye-opening statistics on the prevalence of medical gaslighting ✅ Real patient stories of being dismissed by healthcare providers ✅ The warning signs you're being gaslit in a medical setting ✅ How to advocate for your mental health and physical health when you feel unheard Whether you're a patient, healthcare provider, or advocate, this episode will empower you with tools for self-advocacy and inspire you to trust your voice in the exam room. At Uncover Your Eyes, Dr. Meenal Agarwal brings conversations that challenge the status quo in healthcare, wellness, and healthcare education—spotlighting innovations, mental health awareness, and practical strategies to help us all live healthier, more connected lives.
Alexion recently launched the second film in its Rare Connections series, Rare Connections in gMG.Managing editor Jack O'Brien talks with Lucid Diagnostics' chief technology and compliance officer Dr. Brian deGuzman about the company's nationwide initiative to provide education and testing for esophageal precancer.He explains how the NFLPA factors into the effort, which launched in Cincinnati, and how it is expanding across the country to address the heightened risk these athletes have for developing esophageal pre-cancer.Check us out at: mmm-online.com Fast Break theme music: Mark Buergler - On The Run, Triple Scoop Music Step into the future of health media at the MM+M Media Summit on October 30th, 2025 live in NYC! Join top voices in pharma marketing for a full day of forward-thinking discussions on AI, streaming, retail media, and more. Explore the latest in omnichannel strategy, personalization, media trust, and data privacy—all under one roof. Don't wait—use promo code PODCAST for $100 off your individual ticket. Click here to register! AI Deciphered is back—live in New York City this November 13th.Join leaders from brands, agencies, and platforms for a future-focused conversation on how AI is transforming media, marketing, and the retail experience. Ready to future-proof your strategy? Secure your spot now at aidecipheredsummit.com. Use code POD at check out for $100 your ticket! Check us out at: mmm-online.com Follow us: YouTube: @MMM-onlineTikTok: @MMMnewsInstagram: @MMMnewsonlineTwitter/X: @MMMnewsLinkedIn: MM+M To read more of the most timely, balanced and original reporting in medical marketing, subscribe here.Music: “Deep Reflection” by DP and Triple Scoop Music.
Most people think electroshock therapy was abandoned decades ago. The unfortunate truth is it's still widely used, with well over 100,000 (probably much higher) Americans receiving ECT every year.Yet the devices have never been properly safety tested.In this episode, Dr. Roger McFillin sits down with Sarah Price Hancock, a certified rehabilitation counselor, educator, and survivor who underwent 116 ECT treatments. Sarah lost 85–90% of her memories from the first 36 years of her life, developed neurological complications, and later learned her original psychiatric symptoms weren't even a mental illness.Life After ECT website Dr. Roger McFillin / Radically Genuine WebsiteYouTube @RadicallyGenuineDr. Roger McFillin (@DrMcFillin) / XSubstack | Radically Genuine | Dr. Roger McFillinInstagram @radicallygenuineContact Radically GenuineConscious Clinician CollectivePLEASE SUPPORT OUR PARTNERS15% Off Pure Spectrum CBD (Code: RadicallyGenuine)10% off Lovetuner click here
Before she turned eight, Cerys had already faced two diagnoses, only one of which she truly understood. While being diagnosed with celiac disease as a child, unusually high CK levels in her blood pointed to a deeper issue: limb-girdle muscular dystrophy type 2I/R9 (LGMD2I/R9). In this episode of On Rare, David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio Gene Therapy, speak with Cerys, a 23-year-old living in Wales, about living with LGMD2I/R9. She shares how she's navigated symptom progression, adapted to using mobility aids, and discovered the power of telling her story through her podcast, Unbalanced. When Cerys was first diagnosed with LGMD2I/R9 at age seven 7 years old, she didn't fully understand the diagnosis. Her parents carried the emotional weight, trying to protect her from fear of what was ahead. It wasn't until her muscle weakness became impossible to ignore, at 12 years old, that the condition began to define her daily life. From navigating stairs and driving to embracing a wheelchair, Cerys has had to adapt physically, emotionally, and socially, all while managing her energy levels so that she can continue to do the activities she loves. She finds strength in the LGMD community and hope in research, representation, and connection. In 2023, she launched Unbalanced to amplify stories like hers because growing up, she didn't see anyone with a disability who looked like her. Now, she's determined to be that voice for others. Dr. Anna Talaga, Director of Medical Affairs at ML Bio Solutions (a BridgeBio affiliate), provides a medical overview of LGMD. LGMDs are a group of genetic diseases that cause progressive muscle weakness and wasting, particularly in the shoulders, hips, and thighs. In some people, the heart and respiratory muscles may be impacted. Unlike many genetic conditions that are caused by a mutation in a single gene, LGMD can result from mutations in many different genes because they all affect the same protein complex that supports and stabilizes muscle fibers. LGMD type 2I/R9 (LGMD2I/R9), specifically, is caused by mutations in the FKRP gene, which is critical for maintaining muscle fiber integrity. Diagnosis typically begins with symptoms like difficulty walking, climbing stairs, or standing from a seated position, and is confirmed through genetic testing. LGMD2I/R9 is a progressive disease and there are currently no approved treatments that slow or stop its progression.
Send us a textSome healthcare professionals are nice. Some would go so far as to call themselves “body positive" or “HAES aligned”. But being pleasant doesn't make you safe for fat patients. There's a crucial difference between practitioners who are steadfastly kind while perpetuating harm, and those who actively work to counter medical weight bias. In this episode, I expose why often times anti-diet isn't enough, how well-meaning professionals can cause more damage than obvious bigots, and why fat people are trapped in an endless cycle of seeking help, getting weight loss advice, and avoiding care until they're desperate. I challenge anti-diet practitioners to move beyond good intentions and actually do the work to become weight-inclusive. Plus, I debunk the dangerous myths about anaesthesia safety that are used to deny fat people surgery. Want to learn more about anaesthesia? Then check out my masterclass today!Got a question for the next podcast? Let me know! Connect With Me WEEKLY NEWSLETTER: Get a free script when you sign up THE WEIGHTING ROOM: A community where authenticity thrives and every voice matters The CONSULTING ROOM: Get answers to all your medical questions via DM or Voice Note PLUS access to my entire library of paid resources CONSULTATION: For the ultimate transformation in your healthcare journe THE WEIGH FORWARD: For people who are being denied surgery because of their weight FREE GUIDES:Evidence-based, not diet nonsense Find me on Instagram, YouTube, and LinkedIn.
Leah is a Mexican American who experienced symptoms from slurring her words and choking on food with multiple doctors struggling to see the full picture. In this episode, hear how an MG crisis helped Leah uncover a diagnosis and how she turned that experience into action, building a space for others who may not feel seen.See omnystudio.com/listener for privacy information.
After years of carrying the weight of lead, Shannon and Cooper find a path out from under the darkness and into the sunlight.LEAD: how this story ends is up to us is an audio docudrama series that tells the true story of one child, his mysterious lead poisoning, and his mother's unwavering fight to keep him safe. A true story written by Shannon Burkett. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.Lead was produced by Shannon Burkett. Co-produced by Jenny Maguire. Featuring Amy Acker, Tom Butler, Dennis T. Carnegie, James Carpinello, Geneva Carr, Dann Fink, Alice Kris, Adriane Lenox, Katie O'Sullivan, Greg Pirenti, Armando Riesco, Shirley Rumierk, Thom Sesma, and Lana Young. Music by Peter Salett. “Joy In Resistance” written by Abena Koomson-Davis and performed by Resistance Revival Chorus. Casting by Alaine Alldaffer and Lisa Donadio. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Spontan, intuitiv, ohne Skript, Improvisation pur! Authentisch, ehrlich, direkt! Dafür steht Weissbunt! Prof. Dr. Jalid Sehouli, der Direktor der Frauenklinik an der Charité – Campus Virchow, startete im Mai 2021 mit „WeissBunt“ seinen eigenen Podcast. „Yvonne Ulrich ist Senior Vice President Clinical Development mit langjähriger internationaler Erfahrung in der Leitung globaler klinischer Studien. Sie verantwortete weltweit Clinical Operations, Site Management und Patienteneinbindung und setzte erfolgreich neue digitale Studienportale um, um Zugang und Diversität in klinischen Studien zu fördern. Ihre Expertise umfasst Qualitäts- und Risikomanagement, Patient Advocacy, strategisches Sourcing sowie Budget- und Teamführung. Mit ihrem Engagement trägt sie maßgeblich dazu bei, klinische Entwicklungen effizienter zu gestalten und die Patientenversorgung nachhaltig zu verbessern.“ Prof.Dr. Jalid Sehouli ist renommierter Krebsspezialist, Frauenarzt, Wissenschaftler, Schriftsteller und Weltbürger und engagiert sich seit Jahren für die zivile Gesellschaft für ein ganzheitliches und soziales Miteinander. Der Podcast entstand in Zusammenarbeit mit der Berliner Marketing Agentur Brand Activation und baut Brücken aus der Welt der Medizin in die unterschiedlichsten Bereiche der Gesellschaft. Instagram: @dr.sehouli @brandactivation_berlin Homepage: https://www.brand-activation.de https://weissbunt.podigee.io/ Presseanfragen: Karim Loreti per E-Mail an presse@brand-activation.de Allgemeine Anfragen: per E-Mail an request@brand-activation.de
Have you ever had a health concern that felt minor, but your gut told you to speak up anyway?In this episode, host Talaya Dendy shares a personal and timely story about the power of trusting your instincts, especially when it comes to your health. Drawing from her experience, she reveals how self-advocacy can be a life-saving tool, and why it's never a "false alarm" to speak up about your concerns.You'll discover how to:Recognize and honor your body's signals, even when they seem minor.Manage anxiety and build confidence in medical settings.Take charge of your health by transforming fear and uncertainty into empowered action.Turn your medical history into a powerful tool for better care.Whether you're newly diagnosed, in active treatment, or navigating life after cancer, this episode offers a powerful reminder that your voice matters. Talaya's story will help you feel more confident, informed, and supported on your health journey.✨Highlights from the show:08:59 A New Personal Story: My "False Alarm" Journey12:23 How to Advocate: Collaborating with Your Healthcare Team15:56 The Surprising Reason for My Pain17:21 Four Internal Self-Advocacy Strategies21:35 Closing Thoughts & Upcoming Survivor Series PreviewTranscript: https://bit.ly/podscript170Blog: https://www.ontheotherside.life/trusting-your-gut-why-it-s-never-a-false-alarm-in-self-advocacyNavigating Cancer TOGETHER delivers heartfelt stories and expert insights to remind you that you are not alone. Subscribe now on Spotify, Apple Podcasts, YouTube, or your favorite podcast platform.
En este episodio, conversamos con Andrés Treviño, padre de Andy, quien nació con una enfermedad rara llamada NEMO. Su historia familiar los llevó a tomar decisiones difíciles y valientes, como optar por la fertilización in vitro y el diagnóstico genético preimplantacional, lo que permitió que su hija Sofía naciera y donara las células que salvaron a su hermano. Actualmente, Andrés trabaja en Patient Advocacy, ha escrito un libro sobre su experiencia y continúa inspirando a la comunidad de enfermedades raras con su pasión y empatía. En esta conversación, exploramos cómo una historia personal puede convertirse en un motor de cambio, inspirar a otros pacientes y familias, y abrir nuevas puertas en la investigación médica. Más información: El libro Andy y Sofia: www.andysofia.org Subscribete: Mas Que Raras Podcast Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter
The deficits from the lead poisoning continue to intensify, Shannon channels her anger and grief into holding the people who hurt her son responsible.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.EP4 features Eboni Booth, Sasha Eden, Kevin Kane, April Matthis, Alysia Reiner, and Mandy Siegfried. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jamilah went from daily dance rehearsals to struggling to move through her own home, while her symptoms were continuously dismissed. In this episode, hear how finally getting a diagnosis changed everything: from relearning her body and rebuilding relationships to finding connection again in a whole new way of life.See omnystudio.com/listener for privacy information.
This week on Ditch the Labcoat, Dr. Mark Bonta sits down with Dr. Diana Driscoll, an optometrist, researcher, and internationally recognized authority on the autonomic nervous system—who also happens to be one of the rare non-MDs to join the show. After her own sudden and life-altering health collapse, Dr. Driscoll found herself deep in the world of dysautonomia—a group of disorders affecting the autonomic nervous system, responsible for all those automatic functions in our bodies we don't usually have to think about. Finding few answers from doctors, and confronted by a system that too often shuns “invisible illnesses,” Dr. Driscoll became her own medical detective, pioneering research into conditions like Postural Orthostatic Tachycardia Syndrome (POTS) and unlocking innovative approaches to treatment.In this eye-opening conversation, Dr. Driscoll and Dr. Bonta tackle the complex, often misunderstood world of autonomic dysfunction, the science behind “mystery illnesses,” and the frustrating gaps in our medical knowledge. From the lived experience of being a patient who was told “it's all in your head,” to developing new therapeutics and advocating for others, Dr. Driscoll's story is as inspiring as it is informative.If you've ever struggled with unexplained symptoms, felt dismissed by the healthcare system, or just want to understand the evolving science behind these often-invisible disorders—this episode is for you. Plug in for a candid, practical, and hope-filled discussion that challenges the boundaries of what medicine knows today and explores the frontier where suffering finally meets science.Episode HighlightsInvisible Illness Is Real — Validation for patients with unexplained symptoms is crucial; their suffering is genuine, not imagined or "all in their head."Medicine's Knowledge Blindspots — The medical establishment often lacks answers—and even language—for complex autonomic disorders like dysautonomia and POTS.Patient-Led Discovery Matters — Dr. Driscoll's personal journey from patient to researcher demonstrates the power of self-advocacy in pushing knowledge forward.Autonomic System Ignorance — Most clinicians receive minimal training about the autonomic nervous system, leading to missed diagnoses and inadequate care.One Size Doesn't Fit All — There is no single solution for autonomic dysfunction—treatments must be individualized to each patient's complex presentation.Beyond Symptom Management — Suppressing symptoms (e.g., racing heart) without understanding the root cause can worsen patient outcomes or miss vital clues.The Inflammatory Connection — Inflammation, triggered by infections or stress, can drive autonomic dysfunction—a framework for science to pursue targeted therapies.Necessity of Clinical Innovation — When guidelines and therapies don't exist, scientific curiosity and non-traditional research can inspire new approaches and hope.The Power of Lived Experience — Practitioner-patients like Dr. Driscoll bridge gaps between science, clinical care, and compassion through firsthand understanding.Hope Through Education — Educating both patients and practitioners fosters progress—there's always hope, even if answers come step by step.Episode Timestamps04:15 – Post-COVID Dysautonomia Insights 07:12 – Invisible Illnesses and Tech Misguidance 13:07 – Central Sensitization and Unexplained Symptoms 16:44 – Nicotine Patch Stimulates Vagus Nerve 20:01 – Navigating Illness and Predatory Healthcare 20:51 – Navigating Autonomic Dysfunction Treatments 26:03 – Bridging Medical Knowledge Gaps 29:38 – Idiopathic Intracranial Hypertension Insights 31:25 – Inflammation's Impact on Heart and Vision 36:07 – Chronic Illness: The Domino Effect 41:18 – Questioning Symptom-Driven Treatments 44:22 – Unseen Illness: Recognition Grows 45:26 – Advancements in Autonomic Dysfunction Treatments 49:06 – Championing Long Covid ResearchDISCLAMER >>>>>> The Ditch Lab Coat podcast serves solely for general informational purposes and does not serve as a substitute for professional medical services such as medicine or nursing. It does not establish a doctor/patient relationship, and the use of information from the podcast or linked materials is at the user's own risk. The content does not aim to replace professional medical advice, diagnosis, or treatment, and users should promptly seek guidance from healthcare professionals for any medical conditions. >>>>>> The expressed opinions belong solely to the hosts and guests, and they do not necessarily reflect the views or opinions of the Hospitals, Clinics, Universities, or any other organization associated with the host or guests. Disclosures: Ditch The Lab Coat podcast is produced by (Podkind.co) and is independent of Dr. Bonta's teaching and research roles at McMaster University, Temerty Faculty of Medicine and Queens University.
The effects of the neurotoxin are taking their toll on Cooper as Shannon desperately tries to navigate the severity of their new reality.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.E43 features Jenny Maguire, JD Mollison, Laith Nakli, Deirdre O'Connell, Carolyn Baeumler, Zach Shaffer, and Monique Woodley. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
What if one natural molecule could reverse key signs of aging, repair your immune system, grow your hair, and even help you sleep better?In this episode, Robert Lufkin, MD, sits down with Leslie Kenny, a patient advocate with a remarkable story. At 39, she was told she had only 5 years to live with lupus and rheumatoid arthritis. Instead, through lifestyle changes and a breakthrough discovery about spermidine, she now enjoys extraordinary health — with a biological age of just 21 at age 60.
In this episode, host Shikha Jain, MD, speaks with Mika Stambaugh about bridging the patient and doctor information gap, her personal journey with patient advocacy and more. • Welcome to another exciting episode of Oncology Overdrive 1:34 • About Stambaugh 1:43 • The interview 4:00 • How did you get into media and PR? […] What Was your journey to get to this point in your career? 4:31 • Have you seen the evolution of people in health care speaking with the media? 6:57 • How do you remain objective when discussing hot button political topics with experts? 10:05 • Who is the coolest or most interesting person you have interviewed? 11:08 • Can you tell us about your recent cancer diagnosis and how it impacted you? 13:25 • How did your facial Mohs surgery impact your career? 18:39 • What was it about this situation that made you decide to share your journey publicly? 24:11 • Do you recommend getting a second opinion to people? How did the decision to seek out a second opinion come about for you? 27:57 • Do you see yourself continuing to work in the patient advocacy space? 30:35 • If someone could only listen to the last minute of this episode, what would you want listeners to take away? 36:50 • How to contact Stambaugh 37:55 • Thanks for listening 39:05 Mika Stambaugh is an Emmy award winning journalist and dynamic entrepreneur. We'd love to hear from you! Send your comments/questions to Dr. Jain at oncologyoverdrive@healio.com. Follow Healio on X and LinkedIn: @HemOncToday and https://www.linkedin.com/company/hemonctoday/. Follow Dr. Jain on X: @ShikhaJainMD. Stambaugh can be reached @MikaStambaugh on X and @mikastambaugh on Instagram, or via email mikastambaugh@gmail.com. Disclosures: Jain and Stambaugh report no relevant financial disclosures.
As the lead wreaks havoc on Cooper's development, Shannon searches for answers. Desperate to get a handle on what was happening to her son, she grabs onto a lifeboat - nursing school. Andy tries to piece together the past to make sense of the present.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper BurkettEP2 features Keith Nobbs and Frank Wood. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
This time on Code WACK! Why are some Americans choosing to go off the health insurance grid? For Lani Gonzales, entrepreneur and hypnotherapist, it was the mounting frustration with denials, delays … and ultimately being dropped by her health insurer through no fault of her own. So instead of reapplying she walked away—and pieced together a system for herself. Combining medical tourism, concierge medicine, a health share and even reclaiming her Philippine citizenship, Lani took an unconventional route to take control of her health care. What drove her to make these radical changes—and what can we learn from her journey? This is the second episode in a two-part series. Check out the Transcript and Show Notes for more! And please keep Code WACK! on the air with a tax-deductible donation.
Justin is a husband, entrepreneur, and full-time caregiver to his wife, Shawna–– our very first podcast guest. In this episode, Justin talks about what it’s really like to care for someone you love. From juggling nonstop doctor visits to being the go-to advocate in every medical setting, Justin shares how he stays grounded, what keeps him going, and why self-care is survival. See omnystudio.com/listener for privacy information.
A mysterious dust fills a young family's apartment. The truth begins to unravel when the mother gets a call from the pediatrician - the monster deep within the walls has been unleashed. LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett. EP1 features Zak Orth, Jenny Maguire, Daphne Gaines, and Micheal Gaston. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In Episode 94 of Nursing Uncharted, host Ann sits down with Ashley White, a NICU travel nurse, to explore the heart and soul of nursing: advocacy. This episode takes a deep dive into the unique challenges and rewarding experiences of NICU nursing, where patient advocacy is not just a skill but a lifeline. Ashley shares compelling personal stories that highlight the barriers nurses face when speaking up for their patients and the critical role of effective communication with physicians.The conversation also uncovers the power of teamwork in healthcare, the importance of self-awareness in building professional relationships, and the courage it takes to ask for help—especially in the ever-changing world of travel nursing. Whether you're a seasoned nurse or just starting your journey, this episode is a powerful reminder of the vital role nurses play in ensuring patient safety and the strength it takes to have a voice in the healthcare system.Chapters00:00 Introduction and Guest Background03:05 Passion for NICU and Patient Advocacy05:50 The Importance of Nurse-Physician Communication08:54 Challenges in Advocacy and Real-Life Experiences12:08 Navigating Barriers in Nursing15:04 The Role of Teamwork in Nursing18:09 Travel Nursing Experiences and Adaptability20:54 Self-Awareness and Professional Relationships23:28 The Importance of Asking for Help26:30 Patient Advocacy and Safety29:26 The Two Challenge Rule in Healthcare32:22 Conclusion and Final Thoughts Celebrate Nurses Month with us on Instagram @AMNNurse! About AnnAnn King, a seasoned travel nurse with a remarkable 14-year track record, has dedicated the past 13 years to specializing in Neonatal ICU. Ann has been traveling with AMN Healthcare for 4.5 years, enriching her expertise with diverse experiences. Currently residing in San Diego, Ann not only thrives in her nursing career but also serves as the host of the Nursing Uncharted podcast, where she shares invaluable insights and stories from the world of nursing. Connect with Ann on Instagram @annifer05 No Better Place than CA! Book your assignment in the Golden State Today! Level up your career today! Find your dream travel assignment! Support for every step. Learn more about AMN Healthcare's EAP Program. Share the opportunity and refer a friend today! Ready to start your next travel assignment in the Golden State? Browse CA Jobs! Episode Sponsor:We're proudly sponsored by AMN Healthcare, the leader in healthcare staffing and workforce solutions. Explore their services at AMN Healthcare. Discover job opportunities and manage your assignments with ease using AMN Passport. Download the AMN Passport App today! Join Our Communities: WebsiteYouTubeInstagramApple PodcastsSpotifyLinkedInFacebook Powered by AMN Healthcare
Send us a textThis conversation is the third and final segment of SurfingMASH's July discussion of #SLDThinkTank 2025. In addition to co-hosts Jörn Schattenberg, Louise Campbell and Roger Green, panelists include Dr. Kristina Curtis of Applied Behaviour Change, a UK-based consultancy. Louise begins this conversation by highlighting the low level of correct information (and, frequently, high level of passionately-held misinformation) that adults have about diet and her success in improving a family's behavior by educating parents about how to better help their children. Kristina replies that while knowledge and education are critical, they are not sufficient in themselves. She lists a variety of social or life priority factors that can also drive poor eating, from taking out fast food when too hungry to cook to not wanting to fight with one's children about eating their vegetables to comparing themselves to other, more obese friends or acquaintances.Roger asks about the role politicians can play on these kinds of issues. Jörn observed that politicians at the Think Tank were motivated to act and thought about how to support better behavior. Louise noted that multi-metabolic programs with broad support can help many MASLD patients, even though MASLD is not in the stated goal for the program. Roger and Kristina note that politicians and government budget manager are motivated by short-term solutions with little thought to longer term consequences.In the last part of this conversation, Roger asks the group to describe their reactions leavin the Think Tank in a single word. Louise and Kristina both choose "enlightened." Jörn chooses "inspiring" to describe Louise's comments and "motivating" to describe his own reaction. Listen to the conversation to hear the reasoning behind these word choices.
Sex gets better with age...if we let it! In this episode, DB sits down with her mom, badass OBGYN Dr. Rebecca Levy-Gantt, to talk all about sex and aging, They get into responsive desire, menopause, hormones, vaginal estrogen (gamechanger!), and why more women than ever are asking for what they want in the bedroom. Plus: how to talk to your doctor about your pleasure! GUEST DETAILSDr. Rebecca Levy-Gantt is an obstetrician and gynecologist who has been taking care of women of all ages for more than thirty years. She is on LinkedIn, and her practice website is Premierobgynnapa.com. ABOUT SEASON 12 Season 12 of Sex Ed with DB is ALL ABOUT PLEASURE! Solo pleasure. Partnered pleasure. Orgasms. Porn. Queer joy. Kinks, sex toys, fantasies—you name it. We're here to help you feel more informed, more empowered, and a whole lot more turned on to help YOU have the best sex. CONNECT WITH US Instagram: @sexedwithdbpodcast TikTok: @sexedwithdbTwitter: @sexedwithdb Threads: @sexedwithdbpodcast YouTube: Sex Ed with DB SEX ED WITH DB SEASON 12 SPONSORS Lion's Den, Uberlube, & Magic Wand Get discounts on all of DB's favorite things here! GET IN TOUCH Email: sexedwithdb@gmail.comSubscribe to our BRAND NEW newsletter for hot goss, expert advice, and *the* most salacious stories. FOR SEXUAL HEALTH PROFESSIONALS Check out DB's workshop: "Building A Profitable Online Sexual Health Brand" ABOUT THE SHOW Sex Ed with DB is your go-to podcast for smart, science-backed sex education—delivering trusted insights from top experts on sex, sexuality, and pleasure. Empowering, inclusive, and grounded in real science, it's the sex ed you've always wanted. ASK AN ANONYMOUS SEX ED QUESTION Fill out our anonymous form to ask your sex ed question. SEASON 12 TEAM Creator, Host & Executive Producer: Danielle Bezalel (DB) (she/her) Producer: Sadie Lidji (she/her) Communications Lead: Cathren Cohen (she/her) Growth Marketing Manager: Wil Williams (they/them) MUSIC Intro theme music: Hook Sounds Background music: Bright State by Ketsa Ad music: Soul Sync by Ketsa and Soul Trap by Ketsa
Lexi Silver is 15 years old. She lost both of her parents before she turned 11. That should tell you enough—but it doesn't. Because Lexi isn't here for your pity. She's not a sob story. She's not a trauma statistic. She's a writer, an advocate, and one of the most emotionally intelligent people you'll ever hear speak into a microphone.In this episode, Lexi breaks down what grief actually feels like when you're a kid and the adults around you just don't get it. She talks about losing her mom on Christmas morning, her dad nine months later, how the system let her down, and how Instagram trolls tell her she's faking it for attention. She also explains why she writes, what Experience Camps gave her, how she channels anger into poems, and what to say—and not say—to someone grieving.Her life isn't a Netflix drama. But it should be.And by the way, she's not “so strong.” She's just human. You'll never forget this conversation.RELATED LINKS• Lexi on Instagram: @meet.my.grief• Buy her book: The Girl Behind Grief's Shadow• Experience CampsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Healthcare's broken system hurts patients and physicians, but collective action can heal it. In this episode of Heartline: Changemaking in Healthcare, I sit down with Kim Downey, a physical therapist, three-time cancer survivor, and Community Ambassador for Medicine Forward and the Dr. Lorna Breen Heroes Foundation. Kim shares her transformative journey—facing thyroid and breast cancer, multiple surgeries, and the loss of her radiation oncologist to suicide—which sparked her mission to found Stand Up for Doctors. She discusses how gratitude, like thank-you notes, fosters connection, and how patients can advocate for physicians to improve care. Kim highlights the need for a culture shift in medicine, starting in med school, and emphasizes leadership and self-leadership to navigate toxic environments. Her upcoming 2026 retreat in New York promises community and resilience-building.You'll hear how to:· Use gratitude to bridge patient-physician divides.· Challenge limiting beliefs to find fulfilling work environments.· Build a culture of kindness and collective advocacy in healthcare.If you're seeking hope amidst healthcare's challenges, this episode offers actionable inspiration.About the Guest“If your goal is to change the world in one fell swoop, you will fail. But if you brighten the corner where you are, you will succeed.” – Kim DowneyKim Downey is a physical therapist, three-time cancer survivor, and passionate advocate for physician well-being. As Community Ambassador for Medicine Forward and the Dr. Lorna Breen Heroes Foundation, and founder of Stand Up for Doctors, she amplifies physicians' voices through her YouTube channel, Substack, and book White Coats, Courageous Hearts. Her journey through thyroid and breast cancer, and the loss of her radiologist to suicide, fuels her mission to foster gratitude and systemic change in healthcare.
Joining Dr. Buck Joffrey this week, Dr. Bobby Mukkamala shares his journey from aspiring cardiothoracic surgeon to becoming the president of the American Medical Association. He discusses his personal health challenges, including a brain tumor diagnosis, and how it has shaped his perspective on healthcare. The conversation delves into the importance of preventative medicine, the impact of the Flint water crisis, and the role of the AMA in shaping the future of healthcare, particularly in the realm of longevity and AI. Dr. Mukkamala emphasizes the need for a shift from reactive to proactive healthcare and addresses the challenges posed by influencer medicine and misinformation. Learn more about Dr. Bobby Mukkamala: https://www.ama-assn.org/about/board-trustees/bobby-mukkamala-md - Download Dr. Buck Joffrey's FREE ebook, Living Longer for Busy People: https://ru01tne2.pages.infusionsoft.net/?affiliate=0 Book a FREE longevity coaching consultation with Dr. Buck Joffrey: https://coaching.longevityroadmap.com/
Jasmine is a career coach, wife, and mother who is newly diagnosed with CIDP but no stranger to fighting for her health. After years of navigating lupus and rheumatoid arthritis, Jasmine learned how to push back, speak up, and keep going. Join Martine for the season 4 premiere as Jasmine shares what it’s like to face a new diagnosis mid-journey, and why she refuses to stay silent.See omnystudio.com/listener for privacy information.
Michelle Andrews built a career inside the pharma machine long before anyone knew what “DTC” meant. She helped launch Rituxan and watched Allegra commercials teach America how to ask for pills by name. Then she landed in the cancer fun house herself, stage 4 breast cancer, and learned exactly how hollow all the “journey” slide decks feel when you're the one circling the drain.We talk about what happens when the insider becomes the customer, why pill organizers and wheat field brochures still piss her off, and how she fired doctors who couldn't handle her will to live. You'll hear about the dawn of pharma advertising, the pre-Google advocacy hustle, and what she wants every brand team to finally admit about patient experience.If you've ever wondered who decided windsurfing was the best way to sell allergy meds—or what happens when you stop caring if you make people uncomfortable—listen up.RELATED LINKSMichelle Andrews on LinkedInTrinity Life Sciences – Strategic AdvisoryJade Magazine – Ticking Time Bombs ArticleNIHCM Foundation – Breast Cancer StoryFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Join us as we dive into the complexities of hormonal imbalances in perimenopause and menopause with board certified gynecologist and founder of SheMD, Meryl Kahan. Discover the common symptoms, diagnostic approaches, and effective treatments that can help restore balance and improve quality of life for all the symptoms during these times. Chapters: Introduction to Hormonal Imbalances (0:00 - 5:00) Overview of hormonal health and common misconceptions. Symptoms and Misdiagnosis (5:01 - 15:00) Discussing the symptoms often dismissed or misdiagnosed. Diagnostic Approaches (15:01 - 25:00) Key hormones to test and the importance of comprehensive lab work. Treatment Options (25:01 - 35:00) Exploring hormone replacement therapy and lifestyle changes. The Role of Stress and Cortisol (35:01 - 45:00) Understanding the impact of stress on hormonal health. Patient Advocacy and Healthcare Challenges (45:01 - 55:00) Navigating the healthcare system and advocating for proper care. Conclusion and Key Takeaways (55:01 - End) Recap of insights and encouragement for those seeking help. Keywords: Hormonal Imbalance Diagnosis Treatment Hormone Replacement Therapy Cortisol Stress Management Women's Health Menopause Perimenopause Patient Advocacy Meryl Kahan's practice: https://shemdny.com/ Ali's Resources: Calm the Chaos: Practical Tips and Tools for Stopping Anxiety in It's Tracks Course! Consults with Ali BIOptimizers Magnesium Breakthrough 10% off using code ALIDAMRON10 www.alidamron.com/magnesium Master Your Perimenopause Course + Toolkit "Am I in Perimenopause?" Checklist. What Hormone is Imbalanced? Quiz! Fullscript (Get 10% off all supplements) "How To Balance Your Hormones For Better Sleep, Mood, Periods and Energy" Free, On Demand Training Website Ali's Instagram Ali's Facebook Group: Holistic Health with Ali Damron
Send us a textThis week's newsmaker, Dutch Liver Patients Association President Jose Willemse, joins Roger Green to discuss the patient screening program at this year's EASL Congress, which took place in Amsterdam, and the general idea of what constitutes a patient-sensitive dialogue. Jose describes the phenomenal level of interest in the screening activity, in which hepatologists and APPs scanned 400 people per day for MASLD and MASH. Boosted by significant mass publicity in Amsterdam, the number of people seeking screening exceeded the 400/day quota, with some arriving in line hours before the scheduled start time and others traveling for hours to reach the site. Jose believes that with adequate publicity, efforts like these could be replicated around the world, but that the healthcare system lacks the necessary resources to do so. In terms of physician-patient dialogues, Jose emphasized the importance of sensitive yet frank conversations and helping patients appreciate the successes they are achieving.
In this episode of the Secure Your Retirement Podcast, Radon and Murs discuss the critical role of patient advocacy with Dr. Elizabeth Mizelle, founder of Palm Wellness. Drawing on her extensive background as a family medicine physician, Dr. Mizelle now serves as a health advocate for seniors and their caregivers, helping them navigate the complex world of senior healthcare. Whether it's understanding a new diagnosis, coordinating follow-up care, or finding the right resources for aging in place, her approach offers clarity and compassionate support for individuals and families alike.Listen in to learn about how a patient consultant can provide peace of mind by helping with healthcare decisions, coordinating communication with providers, and creating safe, functional home environments for aging loved ones. This episode is especially useful for those involved in retirement healthcare planning, acting as advocates for elderly parents, or seeking caregiver resources. Dr. Mizelle explains the unique difference between clinical care and advocacy, and how she supports people looking to stay home longer or adapt to life-changing diagnoses with confidence.In this episode, find out:· What patient advocacy is and how it differs from traditional clinical care· How a health advocate for seniors helps families manage new diagnoses and medical complexity· Real-life examples of how advocacy can ease transitions after hospitalization· The process of aging in place and how to safely adapt a home for long-term care· How to connect with Palm Wellness for personalized healthcare supportTweetable Quotes:“Patient advocacy helps you slow things down, understand what's happening, and make better-informed healthcare decisions.” – Radon Stancil“It's not just about treating the illness—it's about creating an environment where people can heal, live, and thrive.” – Murs TariqResources:If you are in or nearing retirement and you want to gain clarity on what questions you should be asking, learn what the biggest retirement myths are, and identify what you can do to achieve peace of mind for your retirement, get started today by requesting our complimentary video course, Four Steps to Secure Your Retirement!To access the course, simply visit: POMWealth.net/podcast
Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward against all odds. This season, we hear from people living with myasthenia gravis (MG) and chronic inflammatory demyelinating polyneuropathy (CIDP) as they reclaim their identities, fight for care, and find strength in both community and themselves. Join us starting July 23rd.See omnystudio.com/listener for privacy information.
Dr. Anne Marie Morse walks into the studio like a one-woman Jersey Broadway show and leaves behind the best damn TED Talk you've never heard. She's a neurologist, sleep medicine doc, narcolepsy expert, founder of D.A.M.M. Good Sleep, and full-time myth buster in a white coat. We talk about why sleep isn't a luxury, why your mattress does matter, and how melatonin is the new Flintstones vitamin with a marketing budget. We unpack the BS around sleep hygiene, blow up the medical gaslighting around “disorders,” and dig into how a former aspiring butterfly became one of the loudest voices for patient-centered science. Also: naps, kids, burnout, CPAPs, co-sleeping, airport pods, the DeLorean, and Carl Sagan. If you think you're getting by on five hours of sleep and vibes, you're not. This episode will make you want to take a nap—and then call your doctor.RELATED LINKSdammgoodsleep.com: https://www.dammgoodsleep.comLinkedIn: https://www.linkedin.com/in/anne-marie-morse-753b2821/Instagram: https://www.instagram.com/dammgoodsleepDocWire News Author Page: https://www.docwirenews.com/author/anne-marie-morseSleep Review Interview: https://sleepreviewmag.com/practice-management/marketing/word-of-mouth/sleep-advocacy-anne-marie-morse/Geisinger Bio: https://providers.geisinger.org/provider/anne-marie-morse/756868SWHR Profile: https://swhr.org/team/anne-marie-morse-do-faasm/FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Kent Bressler talks with Josie Maier, co-director of Project Donor—a nonprofit offering free support to living organ donor candidates. Kent reflects on his journey as a living donor kidney transplant recipient and his recent triumph over cancer. Josie sheds light on key challenges in organ donation, especially how BMI restrictions can prevent otherwise willing individuals from donating. Project Donor works to shift the conversation by helping potential donors overcome reversible barriers through free weight loss programs, smoking cessation resources, and therapy. Together, Kent and Josie highlight the urgent need for more living kidney donors and the importance of awareness. Listen in and discover how you can make a difference in this life-saving mission. For more information about Project Donor, visit projectdonor.org and to connect with Kidney Solutions, go to kidneysolutions.org. Host: Kent Bressler Producer: Jason Nunez Remember to keep breathing, and don't miss the next amazing episodes of Kent's Kidney Stories!
Support the show and get 50% off MCT oil with free shipping—just leave us a review on iTunes and let us know!https://podcasts.apple.com/us/podcast/live-beyond-the-norms/id1714886566 I never imagined I'd be talking to someone who's advised the FDA, challenged medical orthodoxy, and lived through one of the most devastating pharmaceutical disasters in history, but Suzanne Robotti is that person.She's not just an FDA advisor. She's also the founder of MedShadow Foundation, a nonprofit that helps people understand the real risks of medications without the spin of pharmaceutical companies. And it's personal for her.Suzanne was born into this fight. A drug called DES, prescribed to her mother during pregnancy, led to her own infertility. That experience set her on a decades-long mission to stop another DES from ever happening again. She got trained, joined FDA drug safety committees, and built a trusted platform to empower millions of patients to make informed choices.In this episode, we talk about how few people participate in drug trials before the meds hit the market, what “post-approval” means, and how patients unknowingly become participants in phase 4 drug experiments. We also dig into the real story behind ADHD diagnoses, Ritalin overuse, and what happened when Suzanne was told to medicate her teenage nephew or risk getting him kicked out of school.This is a deeply honest conversation about what it means to become your own health advocate.“ The real effects of medicines are often kept in the shadows.” ~ Suzanne RobottiAbout Suzanne Robotti:Suzanne Robotti is a nationally recognized drug safety advocate, consumer representative to the FDA, and the founder of MedShadow Foundation — a nonprofit media organization dedicated to informing the public about the risks and side effects of medications. Her journey began after discovering that she was infertile because of prenatal DES exposure. Today, Suzanne speaks widely on the importance of transparency in medicine, shared decision-making, and empowering patients to ask better questions.Connect with Suzanne Robotti:- Website: https://medshadow.org - FDA Advocacy: https://desaction.org - Instagram: https://www.instagram.com/medshadowfoundation/ - TikTok: https://www.tiktok.com/@medshadow_foundation - Facebook: https://www.facebook.com/medshadow.foundation - YouTube: https://www.youtube.com/MedShadowFoundation Connect with Chris Burres:- Website: https://www.myvitalc.com/ - Website: http://www.livebeyondthenorms.com/ - Instagram: https://www.instagram.com/chrisburres/ - TikTok: https://www.tiktok.com/@myvitalc - LinkedIn: https://www.linkedin.com/in/chrisburres/
Gigi Robinson grew up with Ehlers-Danlos syndrome, a disease that turns your joints into overcooked spaghetti. Instead of letting it sideline her, she built a career out of telling the truth about invisible illness. We talk about what it takes to grow up faster than you should, why chronic illness is the worst unpaid internship, and how she turned her story into a business. You'll hear about her days schlepping to physical therapy before sunrise, documenting the sterile absurdity of waiting rooms, and finding purpose in the mess. Gigi's not interested in pity or polished narratives. She wants you to see what resilience really looks like, even when it's ugly. If you think you know what an influencer does, think again. This conversation will challenge your assumptions about work, health, and what it means to be seen.RELATED LINKSGigi Robinson Website: https://www.gigirobinson.comLinkedIn: https://www.linkedin.com/in/gigirobinsonInstagram: https://www.instagram.com/itsgigirobinsonTikTok: @itsgigirobinsonA Kids Book About Chronic Illness: https://akidsco.com/products/a-kids-book-about-chronic-illnessFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Episode Description:If you've ever wondered what happens when a Bronx-born pediatric nurse with stage 4 colon cancer survives, raises a kid, becomes a policy shark, and fights like hell for the ignored, meet Vanessa Ghigliotty. She's not inspirational. She's a bulldozer. We go way back—like pre-Stupid Cancer back—when there was no “young adult cancer movement,” just a handful of pissed-off survivors building something out of nothing. This episode is personal. Vanessa and I built the plane while flying it. She fought to be heard, showed up in chemo dragging her kid to IEP meetings, and never stopped screaming for the rest of us to get what we needed. We talk war stories, progress, side-eyeing advocacy fads, TikTok activism, gatekeeping, policy wins, and why being loud is still necessary. And yeah—she's a damn good mom. Probably a better one than you. You'll laugh. You'll cry. You'll want to scream into a pillow. Come for the nostalgia. Stay for the righteous anger and iced coffee.RELATED LINKSVanessa on LinkedInColorectal Cancer Alliance: Vanessa's StoryZenOnco Interview with VanessaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Risa Arin doesn't just talk about health literacy. She built the damn platform. As founder and CEO of XpertPatient.com (yes, expert with no E), Risa's taking a wrecking ball to how cancer education is delivered. A Cornell alum, cancer caregiver, and ex-agency insider who once sold Doritos to teens, she now applies that same marketing muscle to helping patients actually understand the garbage fire that is our healthcare system. We talk about why she left the “complacent social safety” of agency life, how her mom unknowingly used her own site during treatment, what it's like to pitch cancer education after someone pitches warm cookies, and why healthcare should come with a map, a translator, and a refund policy. Risa brings data, chutzpah, and Murphy Brown energy to the conversation—and you'll leave smarter, angrier, and maybe even a little more hopeful.RELATED LINKS• XpertPatient.com• Risa Arin on LinkedIn• XpertPatient & Antidote Partnership• XpertPatient Featured on KTLA• 2024 Health Award BioFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
This season on Nobody Should Believe Me, we tell the story of Lisa McDaniel, who crafted a public image as the Director of Patient Advocacy at the Guthy Jackson Foundation while concealing her conviction for child abuse more than a decade ago. We begin with an introduction to the McDaniel family: Lisa, her husband Carey, and their children—Mishelle, Angellyn, and Collin. While the unraveling of their family began when Collin was “diagnosed” with NMO (Neuromyelitis Optica), to understand the full story, we must go back to where it all began: Hazlehurst, Georgia. Andrea and our producer Myrriah travel with Mishelle–Lisa's courageous eldest daughter– to her mother's hometown, where they sit down with Lisa's younger sister, Sabrina. Sabrina recounts a childhood marked by emotional manipulation and physical abuse at the hands of her older sister. She walks us through Mishelle's early years, how, as a baby, she was often left with relatives for days at a time, and then through Lisa's troubled pregnancy with her second child, Angellyn. Stay tuned through the end of the episode for a preview of what's to come this season. *** Andrea's June 28th event with Lisa Jewell: https://townhallseattle.org/event/lisa-jewell/ Andrea's August 1st event with Gregg Olsen: https://www.libertybaybooks.com/event/west-sound-crime-con-2025-local-authors-gregg-olsen-and-andrea-dunlop Order Andrea's new book The Mother Next Door: Medicine, Deception, and Munchausen by Proxy. Click here to view our sponsors. Remember that using our codes helps advertisers know you're listening and helps us keep making the show! Subscribe on YouTube where we have full episodes and lots of bonus content. Follow Andrea on Instagram: @andreadunlop Buy Andrea's books here. For more information and resources on Munchausen by Proxy, please visit MunchausenSupport.com The American Professional Society on the Abuse of Children's MBP Practice Guidelines can be downloaded here. *** This season covers sensitive subject matter involving allegations of child abuse, medical child abuse (also known as Munchausen by proxy), and the death of a minor. All information presented is based on court records, first-person interviews, contemporaneous documentation, and publicly available sources. The podcast includes personal statements and perspectives from individuals directly involved in or affected by these events. These accounts represent their experiences and interpretations, and some statements reflect opinions that may be emotionally charged. Where appropriate, the reporting team has verified claims through official records or corroborating sources. Nothing in this podcast should be interpreted as a legal conclusion or diagnosis. All subjects are presumed innocent unless convicted in a court of law. This podcast is intended for informational and public interest purposes. This podcast contains audio excerpts from two phone conversations recorded in the states of Georgia and Alabama, respectively. Both recordings were obtained by a third-party source, who acted in accordance with the relevant one-party consent laws of those states, which allow for the lawful recording of a conversation with the consent of one participant. These recordings were subsequently shared with the producers of this podcast after the fact, and were not made by or at the direction of the podcast team or its parent organization. The podcast producers have made good-faith efforts to confirm the legal compliance of the original recordings, and are presenting these materials in the context of public interest reporting. The inclusion of this audio is intended for journalistic, educational, and documentary purposes in alignment with the principles of fair use and First Amendment protections. Listeners are advised that the views expressed in the recordings are those of the individuals speaking and do not necessarily reflect the views of the producers or affiliated entities. Learn more about your ad choices. Visit podcastchoices.com/adchoices
Dr. Jamie Wells is back—and this time, she brought a book. We cover everything from biomedical design screwups to the glorified billing software known as the EHR. Jamie's new book, A Clinical Lens on Pediatric Engineering, is a masterclass in what happens when you stop treating kids like small, drunk adults and start designing medicine around actual human factors. We talk about AI in pediatric radiology, why drug repurposing might save lives faster than biotech IPOs, and the absurdity of thinking one-size-fits-all in healthcare still works.Jamie's a former physician, a health policy disruptor, a bioethicist, an MIT director, and a recovering adjunct professor. She's also a unicorn. We dig into the wonk, throw shade at bad design, and channel our inner Lisa Simpsons. This one's for anyone who ever wondered why kids' hospitals feel like hell and why “make it taste like bubblegum” might be the most important clinical innovation of all time. You'll laugh, you'll learn, and you might get angry enough to fix something.RELATED LINKSJamie Wells on LinkedInBook: A Clinical Lens on Pediatric Engineering (Amazon)Book on SpringerDrexel BioMed ProfileGlobal Blockchain Business CouncilJamie's HuffPost ArticlesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Erica Campbell walked away from corporate life, took a hard left from the British Embassy, and found her calling writing checks for families nobody else sees. As Executive Director of Pinky Swear Foundation, she doesn't waste time on fluff. Her team pays rent, fills gas tanks, and gives sick kids' parents the one thing they don't have—time. Then, breast cancer hit her. She became the patient. Wrote a book about it. Didn't sugarcoat a damn thing. We talk about parking fees, grief, nonprofit burnout, and how the hell you decide which families get help and which don't. Also: AOL handles, John Hughes, and letters from strangers that make you cry. Erica is part Punky Brewster, part Rosie the Robot, and part Lisa Simpson—with just enough GenX Long Island sarcasm to make it all land. This one sticks.RELATED LINKSPinky Swear FoundationThe Mastectomy I Always Wanted (Book)Erica on LinkedInThink & Link: Erica Campbell“Like the Tale of a Starfish” - Blog Post“Cancer Diagnosis, Messy Life, Financial Support” - Blog PostFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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