Podcasts about Patient advocacy

What if the biggest multiplier for your health isn't another supplement—but presence? In this conversation, Carrie sits down with Dr. Marisa Catapano, a licensed Naturopathic Doctor (ND), Fellow of the American Board of Naturopathic Oncology (FABNO) and certified Neo Emotional Release Practitioner specializing in holistic healing, emotional wellbeing and integrative cancer care to explore how somatic work helps the body complete “stuck” emotional loops and why that matters for everything from thyroid and gut issues to integrative cancer care.You'll hear:What Neo-Emotional Release is (a somatic, integrative approach drawing from parts work, breathwork, Traditional Chinese Medicine, and more)How “emotions as energy in motion” get interrupted and where that shows up in the bodyWhy presence often needs to come before (or alongside) protocols, labs, and biohacksGentle, everyday practices to build presence into what you're already doing (no extra time required)A compassionate look at oncology: safety, timing, and real stories of hope and reconnectionThe difference between chasing symptoms and listening for what the body is trying to solveIf you've “done all the things” and still don't feel well ~ or if you sense there's a deeper root you haven't touched ~ this episode will meet you with curiosity, clarity, and practical next steps.Connect with MarisaWebsite: https://www.marisacatapanond.com/IG: https://www.instagram.com/dr.marisa.catapano/LinkedIn: https://www.linkedin.com/in/marisa-catapano/About MarisaDr. Marisa Catapano, ND, is a naturopathic doctor specializing in integrative support for oncology patients and individuals navigating complex gut, digestive, and treatment-related symptoms. With a background in working closely alongside oncology teams, she combines evidence-based natural medicine with deep compassion—addressing both the physical and emotional layers of healing. Marisa is dedicated to meeting patients exactly where they are and empowering them with personalized tools, gentle guidance, and whole-person care.Follow Carrie on:Instagram: https://www.instagram.com/carriechojnowski/Facebook: https://www.facebook.com/carrie.o.chojnowskiVisit https://thrivewithcarrie.com/ to book a free discovery call!See you next time!Disclaimer: The information provided in this podcast is for entertainment and educational purposes only and is not intended to replace professional medical advice, diagnosis, or treatment.

Dr. Rachel Gatlin entered neuroscience with curiosity and optimism. Then came chaos. She started her PhD at the University of Utah in March 2020—right as the world shut down. Her lab barely existed. Her advisor was on leave. Her project focused on isolation stress in mice, and then every human on earth became her control group. Rachel fought through supply shortages, grant freezes, and the brutal postdoc job market that treats scientists like disposable parts. When her first offer vanished under a hiring freeze, she doubled down, rewrote her plan, and won her own NIH training grant. Her story is about survival in the most literal sense—how to keep your brain intact when the system built to train you keeps collapsing.RELATED LINKS• Dr. Rachel Gatlin on LinkedIn• Dr. Gatlin's Paper Preprint• Dr. Eric Nestler on Wikipedia• News Coverage: Class of 2025 – PhD Students Redefine PrioritiesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

EPISODE DESCRIPTIONBefore she was raising millions to preserve fertility for cancer patients, Tracy Weiss was filming reenactments in her apartment for the Maury Povich Show using her grandmother's china. Her origin story includes Jerry Springer, cervical cancer, and a full-body allergic reaction to bullshit. Now, she's Executive Director of The Chick Mission, where she weaponizes sarcasm, spreadsheets, and the rage of every woman who's ever been told “you're fine” while actively bleeding out in a one-stall office bathroom.We get into all of it. The diagnosis. The misdiagnosis. The second opinion that saved her life. Why fertility preservation is still a luxury item. Why half of oncologists still don't mention it. And what it takes to turn permission to be pissed into a platform that actually pays for women's futures.This episode is blunt, hilarious, and very Jewish. There's chopped liver, Carrie Bradshaw slander, and more than one “fuck you” to the status quo. You've been warned.RELATED LINKSThe Chick MissionTracy Weiss on LinkedInFertility Preservation Interview (Dr. Aimee Podcast)Tracy's Story in Authority MagazineNBC DFW FeatureStork'd Podcast EpisodeNuDetroit ProfileChick Mission 2024 Gala RecapFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode of 'Confessions of a Terrible Leader', Layci Nelson speaks with Dana Sherwin about her framework, the Thinking Patient, which empowers individuals to take charge of their healthcare. Dana shares her personal health journey, emphasizing the importance of patient engagement, preparation, and effective communication with healthcare providers. The conversation highlights the need for patients to be proactive, ask questions, and participate actively in their health decisions, ultimately leading to better health outcomes. Dana also reflects on her leadership experiences and the lessons learned from her health challenges.Takeaways:Being engaged in your care leads to better health outcomes.Preparation is crucial for effective communication with healthcare providers.Patients should be the CEO of their own health.Understanding medical language enhances patient advocacy.Asking questions is essential for informed health decisions.Courage in healthcare can be built gradually.Active participation in appointments improves patient experiences.Trustworthy health information comes from reputable sources.Communication skills are vital for healthcare leaders.Learning from personal health experiences can inform better patient care.Chapters00:00 Introduction to the Thinking Patient Framework02:55 Dana's Personal Health Journey06:00 The Importance of Patient Engagement08:57 Preparing for Medical Appointments11:38 Understanding Medical Language15:00 The Art of Questioning17:40 Active Participation in Healthcare20:42 Building Courage in Health Advocacy23:39 Dana's Leadership Confession26:38 Conclusion and ResourcesEPISODE LINKS:https://www.thethinkingpatient.com/abouthttps://www.linkedin.com/in/desherwin/

This week, we meet members of the Minneapolis VA Health Care System’s Patient Advocate Team and learn that the Patient Advocacy Program is for all Veterans and their families who receive care at VA health care facilities. What can the patient advocate do? What are their limitations? And what do patients bring into the relationship […] The post Minneapolis VA Patient Advocacy Team appeared first on Minnesota Military Radio.

After closing her beloved yoga studio and losing her mother, Tanya Chiu was faced with a new challenge–she was diagnosed with myasthenia gravis. Her story is one of resilience, reclaiming purpose and rediscovering joy when life takes an unexpected turn.See omnystudio.com/listener for privacy information.

EPISODE DESCRIPTION:Libby Amber Shayo didn't just survive the pandemic—she branded it. Armed with a bun, a New York accent, and enough generational trauma to sell out a two-drink-minimum crowd, she turned her Jewish mom impressions into the viral sensation known as Sheryl Cohen. What started as one-off TikToks became a career in full technicolor: stand-up, sketch, podcasting, and Jewish community building.We covered everything. Jew camp lore. COVID courtship. Hannah Montana. Holocaust comedy. Dating app postmortems. And the raw, relentless grief that comes with being Jewish online in 2025. Libby's alter ego lets her say the quiet parts out loud, but the real Libby? She's got receipts, range, and a righteous sense of purpose.If you're burnt out on algorithm-friendly “influencers,” meet a creator who actually stands for something. She doesn't flinch. She doesn't filter. And she damn well earned her platform.This is the most Jewish episode I've ever recorded. And yes, there will be guilt.RELATED LINKSLibby's Website: https://libbyambershayo.comInstagram: https://www.instagram.com/libbyambershayoTikTok: https://www.tiktok.com/@libbyambershayoLinkedIn: https://www.linkedin.com/in/libby-walkerSchmuckboys Podcast: https://jewishjournal.com/podcasts/schmuckboysForbes Feature: Modern Mrs. Maisel Vibes https://www.forbes.com/sites/joshweissMedium Profile: https://medium.com/@libbyambershayoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform.For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

When the system kills a $2.4 million study on Black maternal health with one Friday afternoon email, the message is loud and clear: stop asking questions that make power uncomfortable. Dr. Jaime Slaughter-Acey, an epidemiologist at UNC, built a groundbreaking project called LIFE-2 to uncover how racism and stress shape the biology of pregnancy. It was science rooted in community, humanity, and truth. Then NIH pulled the plug, calling her work “DEI.” Jaime didn't quit. She fought back, turning her grief into art and her outrage into action. This episode is about the cost of integrity, the politics of science, and what happens when researchers refuse to stay silent.RELATED LINKS• The Guardian article• NIH Grant• Jaime's LinkedIn Post• Jaime's Website• Faculty PageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Palliative care isn't “giving up”—it's teaming up. Nurse practitioner Minerva Sabine explains how comfort, clarity, and support can begin from day one of a serious diagnosis—not just at the end. In this conversation, she demystifies palliative care, outlines who can benefit, and shares how early involvement can ease stress for both patients and families.You'll learn how palliative teams coordinate with doctors, manage symptoms, and guide meaningful conversations about goals and values. Minerva also shares powerful real-world stories that highlight the difference this approach makes in quality of life and peace of mind.Timestamps0:00 - Intro3:25 - What palliative care really is—and how it differs from hospice7:10 - When to involve palliative care and what families can expect10:45 - The interdisciplinary team: medicine, emotion, and spirit14:20 - Common misconceptions and real patient stories18:30 - How palliative care supports families and improves quality of lifeWhat's NextIf palliative care might help you or a loved one, start by asking your doctor for a referral. Visit The Conversation Project to explore free guides that help families talk about wishes and values before a crisis.Stay connected with Seniority Authority on Facebook and Instagram for more practical, positive conversations about growing older with purpose.

Greg's journey with LMNA cardiomyopathy, a rare inherited heart condition, began in high school when he experienced sudden episodes of rapid, irregular heartbeats during track practice. The cause remained a mystery for years, leading to misdiagnoses and untreated disease progression. During that time, Greg faced life-threatening arrhythmias and required several implanted devices before finally receiving a heart transplant. That experience, and the challenges that came before it, ultimately inspired his passion to create change and help others facing the same uncertainty. In this episode of On Rare, David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, speak with Greg about the long road to diagnosis, the emotional impact of learning he had passed the condition on to his children, and his transformation into an advocate as president of the DCM Foundation. He also shares how his personal experience led to the launch of Everygene, a free genetic testing program for people with cardiomyopathies. Dr. Clayton Beard, Chief Scientific Officer at BridgeBio Gene Therapy, provides a high-level medical overview of LMNA-related dilated cardiomyopathy, a form of heart disease caused by mutations in the LMNA gene that compromise the structural integrity of heart cells and disrupt electrical signaling. He explains how these changes can cause dangerous arrhythmias, weaken the heart muscle, and lead to heart failure, making LMNA cardiomyopathy one of the most severe genetic forms of the condition. Dr. Beard also highlights the importance of early genetic testing for at-risk families, the role of research in improving detection and treatment, and how a better understanding of LMNA can lead to life-saving interventions.

In this essential and empathetic episode of Navigating Cancer TOGETHER, host Talaya Dendy welcomes Amy Chastain, a seasoned caregiver and Registered Nurse, author, and tireless caregiver advocate. Amy shares wisdom from decades of experience, navigating the complexities of caregiving not only in her professional life but also through personal challenges.We dive deep into "the invisible job" that so many undertake: the role that is often exhausting, unacknowledged, and challenging to both the mind and the spirit.Why You Need to Listen:This conversation is a lifeline for caregivers, family members, and anyone who wants to know how to truly support someone through illness. You will gain:Validation: A powerful discussion on the intense emotional, spiritual, and personal grief that comes with being a caregiver.Wisdom: Honest advice on why asking for help is essential, and how to prepare for future caregiving roles.Empowerment: Strategies for holding onto yourself, your fun, and your identitywhen the demands of caregiving threaten to erase them.Advocacy: Insights on how to erase the stigma surrounding illness and caregiving so that everyone feels seen and supported.✨Episode Highlights:06:58 The Emotional Journey of Caregiving: Understanding the Invisible Burden10:15 The Importance of Asking for Help (And How to Actually Do It)12:53 Understanding Grief from Multiple Perspectives (The patient's, the caregiver's, the family's)20:31 Spiritual Challenges in Caregiving27:06 The Invisible Caregiver: The risk of losing yourself vs. Holding Onto Yourself (28:13)35:57 Advice on Preparing for Future Caregiving Roles43:36 Erasing the Stigma Around Caregiving and IllnessTranscript: https://bit.ly/podscript176Connect & Engage with Amy:Website: https://amychastain.comBook: https://a.co/d/btOgK9vInstagram: https://www.instagram.com/amychastain_author/Facebook: https://www.facebook.com/amychastainauthor/Let us know what you think about this episode. Send an email to nctpodcastfan@gmail.comSubscribe or follow Navigating Cancer TOGETHER on your favorite podcast app or platform so you never miss a life-changing conversation.Sponsor: This episode is brought to you by Laya's Haven Calming Health & Wellness Coaching. Thank you for your support!Hosted, Produced, Written, and Edited by: Talaya DendyDisclaimer: The information on this podcast is for general informational purposes only and SHOULD NOT be used as a substitute for sound professional medical advice, evaluation, or care from your physician or other qualified health care provider.Hosted by Ausha. See ausha.co/privacy-policy for more information.

Welcome to another insightful episode of the Legal Nurse Podcast with your host, Pat Iyer. Today, we're diving into one of the most critical—and challenging—roles nurses play: patient advocacy. Pat Iyer is joined by Catherine Andrades, a seasoned critical care nurse, rapid response team member, ballet instructor, and self-proclaimed houseplant negotiator. Together, they explore not only the ethical foundations that require nurses to advocate fiercely for their patients, but also the complex realities nurses face when standing up for those in their care. In this episode, Catherine Andrades brings real-world experience from the ICU, sharing hard-hitting stories of rapid response scenarios, the dangers of nurse burnout, and the haunting impact of workplace bullying. She and Pat Iyer unpack the power structures within healthcare, how policies sometimes fail at the bedside, and why patient advocacy is more important than ever—especially when facing intimidating colleagues or unresponsive physicians. Listen in as they discuss practical strategies for navigating the chain of command, uncovering hidden patterns in medical records, and protecting both patients and nurses from catastrophic outcomes. Whether you're a nurse, an attorney, or a legal nurse consultant, you'll come away with crucial insights into how advocating for patients isn't just a professional duty—it's a matter of life and death. What you'll learn in this episode on Mastering Money Mindset: Here are five intriguing questions that this podcast answers: Where does the nurse's role as a patient advocate originate, and how is it defined by the American Nurses Association? What are the consequences when nurses fail to act as patient advocates, especially in critical situations? How does bullying or intimidating behavior by physician's impact patient safety and nursing advocacy? What steps should nurses take when a physician does not respond or refuses to assist with an escalating patient emergency? How can legal nurse consultants identify issues of failed advocacy or chain of command breakdowns when reviewing medical records in malpractice cases? Listen to our podcasts or watch them using our app, Expert.edu, available at legalnursebusiness.com/expertedu. Get the free transcripts and also learn about other ways to subscribe. Go to Legal Nurse Podcasts subscribe options by using this short link: http://LNC.tips/subscribepodcast. https://youtu.be/IW7Vpo0vCpc Grow Your LNC Business 12th LNC SUCCESS® ONLINE CONFERENCE November 13, 14 & 15, 2025 Gain Specialized Skills That Attorneys Value Learn advanced techniques in deposition analysis, case screening, and report writing to provide high-impact services that attorneys need and trust. Stay Competitive with Cutting-Edge Strategies Discover how AI tools, LinkedIn marketing, and expert insights can help you streamline your workflow, attract more clients, and position yourself as a top-tier LNC. Build Meaningful Connections with Experts & Peers Network with experienced LNCs, attorneys, and industry leaders who can provide guidance, referrals, and opportunities to grow your legal nurse consulting business. Register now- Limited spots available Your Presenters for Patient Advocacy Under Pressure: Navigating Bullying, Burnout, and Chain of Command in Hospitals Pat Iyer Pat Iyer is a seasoned legal nurse consultant and business coach renowned for her expertise in guiding new legal nurse consultants to successfully break into the field. As the host of the Legal Nurse Podcast, Pat addresses critical challenges that legal nurse consultants face, such as difficulty in landing clients and lack of response from attorneys. Through her insightful episodes, she emphasizes the importance of effectively communicating one's value to potential clients. With a wealth of experience, Pat has empowered countless consultants to overcome these...

EPISODE DESCRIPTIONAllison Applebaum was supposed to become a concert pianist. She chose ballet instead. Then 9/11 hit, and she ran straight into a psych ward—on purpose. What followed was one of the most quietly revolutionary acts in modern medicine: founding the country's first mental health clinic for caregivers. Because the system had decided that if you love someone dying, you don't get care. You get to wait in the hallway.She's a clinical psychologist. A former dancer. A daughter who sat next to her dad—legendary arranger of Stand By Me—through every ER visit, hallway wait, and impossible choice. Now she's training hospitals across the country to finally treat caregivers like patients. With names. With needs. With billing codes.We talked about music, grief, psycho-oncology, the real cost of invisible labor, and why no one gives a shit about the person driving you to chemo. This one's for the ones in the waiting room.RELATED LINKSAllisonApplebaum.comStand By Me – The BookLinkedInInstagramThe Elbaum Family Center for Caregiving at Mount SinaiFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Trent was a new father when his life changed overnight, losing the ability to walk, speak or even lift a phone. He spent years in a wheelchair before finding his way back through sport and self-advocacy. Join Martine as Trent shares how he went from paralysis to paratriathlete.See omnystudio.com/listener for privacy information.

EPISODE DESCRIPTIONRebecca V. Nellis never meant to run a nonprofit. She just never left. Twenty years later, she's still helming Cancer and Careers after a Craigslist maternity-leave temp job turned into a lifelong mission.In this 60-minute doubleheader, we cover everything from theater nerdom and improv rules for surviving bureaucracy, to hanging up on Jon Bon Jovi, to navigating cancer while working—or working while surviving cancer. Same thing.Rebecca's path is part Second City, part Prague hostel, part Upper East Side grant writer, and somehow all of that makes perfect sense. She breaks down how theater kids become nonprofit lifers, how “sample sale feminism” helped shape a cancer rights org, and how you know when the work is finally worth staying for.Also: Cleavon Little. Tap Dance Kid. 42 countries. And one extremely awkward moment involving a room full of women's handbags and one very confused Matthew.If you've ever had to hide your diagnosis to keep a job—or wanted to burn the whole HR system down—this one's for you.RELATED LINKSCancer and CareersRebecca Nellis on LinkedIn2024 Cancer and Careers Research ReportWorking with Cancer Pledge (Publicis)CEW FoundationI'm Not Rappaport – Broadway InfoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship opportunities, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Did you know that blocked fallopian tubes can be UNBLOCKED? Very often, women who discover blocked fallopian tubes during an HSG hear that their only option is to go on to IVF, but that's not the only path forward. There are actually ways to restore the healthy function of blocked tubes through a very simple procedure. Dr. Naomi Whittaker joins us today to talk about this easy approach and give you helpful information as you advocate for your own care! In this episode, she discusses:·      The limited amount of information available as to why tubes get blocked and how prevalent the problem is·      pain prevention and management for HSG·      the procedure that is MORE helpful than a standard HSG·      why this procedure is so effective·      how you can talk with your doctor about it and who is trained in this procedureNOTE: This episode does discuss briefly trauma of medical procedures, but should be appropriate for most audiences.GUEST BIO:  Dr. Whittaker is a Pennsylvania-based board certified OBGYN and fellowship-trained surgeon who specializes in the Creighton model system and NaPro technology, which works cooperatively with a woman's body to treat the underlying cause of gynecologic issues and infertility, such as endometriosis and PCOS. She created the Restorative Reproductive Medicine Academy and has dedicated her practice to women's restorative reproductive medicine, compassionate healthcare, and education.HELPFUL LINKS:RRM Academy @napro_fertility_surgeon on InstagramEp. 97: Ovarian Cysts, with Dr. Naomi Whittaker, MD, CFCMCEp. 139: Preventing scarring, adhesions, and repeat endometriosis surgery, with Dr. Naomi WhittakerSend us a textSupport the showOther great ways to connect with Woven Natural Fertility Care: Learn the Creighton Model System with us! Register here! Get our monthly newsletter: Get the updates! Chat about issues of fertility + faith: Substack Follow us on Instagram: @wovenfertility Watch our episodes on YouTube: @wovenfertility Love the content? The biggest gift you could give is to click a 5 star review and write why it was so meaningful! This podcast is provided for educational and informational purposes only and does not constitute providing medical advice or professional services. The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. Always seek the advice of your doctor or other qualified health provider regarding a medical condition. If you think you may have a medical emergency, call 911 or go to the nearest emergency room immediately. Neither Woven nor its staff, nor any contributor to this podcast, makes any represe...

Frightening statistics show that one in four older patients experience harm in hospitals, often from preventable medication errors, infections, or misdiagnoses. Your life, or the life of a loved one, can depend on knowing how to advocate for proper care when the system fails. In this episode, I speak with Dr. Julie Siemers, a nurse educator with 40 years of experience, about navigating the complex and sometimes hazardous hospital environment. She reveals the top causes of patient harm and gives practical, life-saving strategies to ensure you or your family members receive the safe, effective care you deserve.  We discuss the simple questions you should ask about medications, how to insist on basic safety protocols, and what to do when you feel pressured or ignored by medical staff.   " The hospital really is the last place you wanna be." ~ Julie Siemers   In This Episode: - Julie's nursing background - Top causes of death in hospitals - How to prevent dangerous medication errors - Preventing hospital-acquired infections - How to avoid diagnostic errors and medical coercion - How to choose the safest hospital - Tools for effective advocacy - Real stories of surgical mistakes - Concerns over new nurse competency - The financial cost of patient harm   Products & Resources Mentioned: Puori PW1 Whey Protein & Creatine+: Go to https://puori.com/wendy and use code WENDY to get 20% off your entire order, even on discounted subscriptions. Qualia Senolytic: Get 15% off with code WENDY at https://qualialife.com/wendy  Chef's Foundry P600 Non-Toxic Cookware: Perfect for health-conscious kitchens. Get a special discount at http://bit.ly/myersdetox  Organifi Collagen: Save 20% with code MYERSDETOX at https://organifi.com/myersdetox  Heavy Metals Quiz: Find out if heavy metals are impacting your energy, mood, and overall health at https://heavymetalsquiz.com    About Dr. Julie Siemers: Dr. Julie Siemers, DNP, RN, brings more than four decades of nursing experience across trauma, oncology, ER, and education. Her doctoral work focused on reducing patient harm and improving hospital safety systems. Today, she advocates for patient empowerment through public speaking, writing, and teaching, helping families recognize and prevent medical errors. Learn more at https://drjuliesiemers.com/    Disclaimer The Myers Detox Podcast was created and hosted by Dr. Wendy Myers. This podcast is for information purposes only. Statements and views expressed on this podcast are not medical advice. This podcast, including Wendy Myers and the producers, disclaims responsibility for any possible adverse effects from using the information contained herein. The opinions of guests are their own, and this podcast does not endorse or accept responsibility for statements made by guests. This podcast does not make any representations or warranties about guests' qualifications or credibility. Individuals on this podcast may have a direct or indirect financial interest in products or services referred to herein. If you think you have a medical problem, consult a licensed physician.

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Sally Wolf is back in the studio and this time we left cancer at the door. She turned 50, brought a 1993 Newsday valedictorian article as a prop, and sat down with me for a half hour of pure Gen X therapy. We dug into VHS tracking, Red Dawn paranoia, Michael J. Fox, Bette Midler, and how growing up with no helmets and playgrounds built over concrete somehow didn't kill us.We laughed about being Jewish kids in the suburbs, the crushes we had on thirty-year-olds playing teenagers, and what it means to hit 50 with your humor intact. This episode is part nostalgia trip, part roast of our own generation, and part meditation on the privilege of being alive long enough to look back at it all. If you ever watched Different Strokes “very special episodes” or had a Family Ties lunchbox, this one's for you.RELATED LINKSSally Wolf Official WebsiteSally Wolf on LinkedInSally Wolf on InstagramCosmopolitan Essay: “What It's Like to Have the ‘Good' Cancer”Oprah Daily: “Five Things I Wish Everyone Understood About My Metastatic Breast Cancer Diagnosis”Allure Breast Cancer Photo ShootTom Wilson's “Stop Asking Me the Question” SongFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Many challenging medical conditions defy treatment and challenge clinicians to come up with innovative solutions—Chronic Fatigue Syndrome, fibromyalgia, Lyme Disease, Multiple Chemical Sensitivity (MCS), Ehlers-Danlos Syndrome (EDS) and autoimmune conditions; add now the growing burden of patients with Long Covid and vaccine injury. Dr. Tania Dempsey specializes in treating these complicated chronic disorders. She has embraced and advanced a new paradigm based on addressing Mast Cell Activation Syndrome (MCAS). What is MCAS? How is it differentiated from ordinary allergies, and why are its symptoms so pervasive? What are its causes and triggers? What role for low-histamine diets? Antihistamines? Other novel medications? What nutritional supplements can facilitate its resolution? How does recognition of the contribution of MCAS facilitate treatment of patients suffering from Long Covid and vaccine injuries?

Dr. Hoffman continues his conversation with Dr. Tania Dempsey.

In this episode of HIPcast, Ilene Corina shares with us the importance of being a patient advocate whether it is for yourself, a family member or a friend. Healthcare is complicated and the Pulse Center for Patient Safety Education and Advocacy has resources available for you to learn how to advocate for better healthcare. #HIPcast with Shannan and Seth.Resource links:www.pulsecenterforpatientsafety.orgwww.icorina.comwww.takecharge.carewww.gnanow.orgHIPcast brought to you by Enterprise Social Record

Send us a textIn this podcast we discuss the challenges of navigating evidence-based information in the age of AI. We explore the importance of critical thinking, the role of trust in healthcare, and the impact of misinformation. We encourage patients to advocate for themselves and to question the information they come across, especially in a time where AI can fabricate data. Takeaways-- It's challenging to differentiate between valuable information and misinformation.- AI is designed to provide information that pleases users, which can lead to inaccuracies.- Critical thinking is essential for both healthcare providers and patients.- Mistrust in the healthcare system is growing due to various factors.- Insurance companies often dictate patient care, complicating treatment options.- AI can fabricate citations, making it crucial to verify sources.- Patients should be encouraged to ask questions about their care.Chapters-00:00- Navigating Evidence in the Age of AI02:47- The Role of Trust in Healthcare05:06- The Impact of AI on Research and Writing08:17- Patient Advocacy and Self-Advocacy10:42- The Challenges of Healthcare Systems13:38- Critical Thinking in Research16:02- The Importance of Personal Stories in Healthcare18:38- Building Trust in a Distrustful Environment21:14- Final Thoughts on Navigating InformationFollow us on instagram @crohns_and_colitis_dietitiansFollow us on youtube @thecrohnscolitisdietitiansWe love helping provide quality content on IBD nutrition and making it more accessible to all through our podcast, instagram and youtube channel. Creating the resources we provide comes at a significant cost to us. We dream of a day where we can provide even more free education, guidance and support to those with IBD like us. We need your support to do this. You can help us by liking episodes, sharing them on your social media, subscribing to you tube and telling others about us (your doctors, friends, family, forums/reddit etc). Can you do this for us? In return, I promise to continually level up what we do here.

Dr. Nikki Maphis didn't just lose a grant. She lost a lifeline. An early-career Alzheimer's researcher driven by her grandmother's diagnosis, Nikki poured years into her work—only to watch it vanish when the NIH's MOSAIC program got axed overnight. Her application wasn't rejected. It was deleted. No feedback. No score. Just gone.In this episode, Oliver Bogler pulls back the curtain on what happens when politics and science collide and promising scientists get crushed in the crossfire. Nikki shares how she's fighting to stay in the field, teaching the next generation, and rewriting her grant for a world where even the word “diversity” can get you blacklisted. The conversation is raw, human, and maddening—a reminder that the real “war on science” doesn't happen in labs. It happens in inboxes.RELATED LINKS:• Dr. Nikki Maphis LinkedIn page• Dr. Nikki Maphis' page at the University of New Mexico• Vanguard News Group coverage• Nature article• PNAS: Contribution of NIH funding to new drug approvals 2010–2016FEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Carla Tardiff has spent 17 years as the CEO of Family Reach, a nonprofit that shouldn't have to exist but absolutely does—because in America, cancer comes with a price tag your insurance doesn't cover.We talk about shame, fear, burnout, Wegmans, Syracuse, celebrity telethons, and the godforsaken reality of choosing between food and treatment. Carla's a lifer in this fight, holding the line between humanity and bureaucracy, between data and decency. She's also sharp as hell, deeply funny, and more purpose-driven than half of Congress on a good day.This episode is about the work no one wants to do, the stuff no one wants to say, and why staying angry might be the only way to stay sane.Come for the laughs. Stay for the rage. And find out why Family Reach is the only adult in the room.RELATED LINKSFamily ReachFinancial Resource CenterCarla on LinkedInMorgridge Foundation ProfileAuthority Magazine InterviewSyracuse University FeatureFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Robert Verkerk, the Executive Director of the Alliance for Natural Health (ANH), discusses a wide range of topics, including the intersection of high-tech medical advances and natural therapies. Dr. Verkerk explains the mission of ANH, emphasizing the defense of health freedom and the promotion of natural approaches to health. They delve into various initiatives that ANH is working on, such as defending access to natural thyroid, reversing bans on important supplements like NMN and NAC, and challenging FDA regulations that restrict information on the benefits of natural products. The episode also highlights the importance of maintaining a balanced approach to healthcare and the ongoing efforts to reform regulatory frameworks that favor pharmaceutical interventions over natural alternatives.

Dr. Hoffman continues his conversation with Dr. Rob Verkerk, Founder, Executive & Scientific Director, Alliance for Natural Health International & Alliance for Natural Health USA.

Advances in precision medicine and patient advocacy are transforming the way cancer is understood and treated. Nikoo McGoldrick shares her personal journey with metastatic breast cancer, emphasizing the importance of patients having a voice in their care. Sheldon Morris, M.D., M.P.H., explains how regenerative medicine progresses through stem cell therapies, gene therapies, CAR-T cell treatments, and small molecules, with clinical trials addressing cancer, autoimmune disorders, and neurological diseases. Sandip Patel, M.D., F.A.S.C.O., highlights cancer stem cells as key drivers of relapse and resistance, describing precision medicine approaches, novel CAR-T therapies, and the role of artificial intelligence in cancer detection and treatment. Rebecca Shatsky, M.D., focuses on breast cancer as a systemic disease linked to dormant cancer stem cells, underscoring the need for genomic and immune-based therapies, including innovative antibody treatments and targeted clinical trials. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40910]

Advances in precision medicine and patient advocacy are transforming the way cancer is understood and treated. Nikoo McGoldrick shares her personal journey with metastatic breast cancer, emphasizing the importance of patients having a voice in their care. Sheldon Morris, M.D., M.P.H., explains how regenerative medicine progresses through stem cell therapies, gene therapies, CAR-T cell treatments, and small molecules, with clinical trials addressing cancer, autoimmune disorders, and neurological diseases. Sandip Patel, M.D., F.A.S.C.O., highlights cancer stem cells as key drivers of relapse and resistance, describing precision medicine approaches, novel CAR-T therapies, and the role of artificial intelligence in cancer detection and treatment. Rebecca Shatsky, M.D., focuses on breast cancer as a systemic disease linked to dormant cancer stem cells, underscoring the need for genomic and immune-based therapies, including innovative antibody treatments and targeted clinical trials. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40910]

Advances in precision medicine and patient advocacy are transforming the way cancer is understood and treated. Nikoo McGoldrick shares her personal journey with metastatic breast cancer, emphasizing the importance of patients having a voice in their care. Sheldon Morris, M.D., M.P.H., explains how regenerative medicine progresses through stem cell therapies, gene therapies, CAR-T cell treatments, and small molecules, with clinical trials addressing cancer, autoimmune disorders, and neurological diseases. Sandip Patel, M.D., F.A.S.C.O., highlights cancer stem cells as key drivers of relapse and resistance, describing precision medicine approaches, novel CAR-T therapies, and the role of artificial intelligence in cancer detection and treatment. Rebecca Shatsky, M.D., focuses on breast cancer as a systemic disease linked to dormant cancer stem cells, underscoring the need for genomic and immune-based therapies, including innovative antibody treatments and targeted clinical trials. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40910]

Advances in precision medicine and patient advocacy are transforming the way cancer is understood and treated. Nikoo McGoldrick shares her personal journey with metastatic breast cancer, emphasizing the importance of patients having a voice in their care. Sheldon Morris, M.D., M.P.H., explains how regenerative medicine progresses through stem cell therapies, gene therapies, CAR-T cell treatments, and small molecules, with clinical trials addressing cancer, autoimmune disorders, and neurological diseases. Sandip Patel, M.D., F.A.S.C.O., highlights cancer stem cells as key drivers of relapse and resistance, describing precision medicine approaches, novel CAR-T therapies, and the role of artificial intelligence in cancer detection and treatment. Rebecca Shatsky, M.D., focuses on breast cancer as a systemic disease linked to dormant cancer stem cells, underscoring the need for genomic and immune-based therapies, including innovative antibody treatments and targeted clinical trials. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40910]

In the inaugural episode of On Rare: Innovators, a new sister series of On Rare from BridgeBio, hosts David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, introduce listeners to the changemakers reshaping the rare disease community through advocacy, compassion, and action. The series begins in Gijón, Spain with Carmen Alonso, founder and longtime leader of the ALPE Foundation, who has dedicated her life to improving care and building community for people and families living with achondroplasia. What began as Carmen's personal journey as a mother seeking information and support grew into an international network that has transformed how achondroplasia and other skeletal dysplasia are understood and managed. Joined by her son Yago and longtime colleague Fani , Carmen reflects on the lessons of love and inclusion that have guided her work and the belief that “you can always do something.”   Through Carmen's story, On Rare: Innovators celebrates leaders whose ideas and determination drive change across science, advocacy, and community. Their work reminds us that innovation isn't only found in laboratories or boardrooms—it thrives wherever people choose to act with purpose and heart.  

Zulma Williams: Inspiring Cancer Survivors Through Advocacy and Tenacity In this inspiring and essential episode of Navigating Cancer TOGETHER, host Talaya Dendy welcomes special guest Zulma Williams, a licensed clinical social worker and inspiring breast cancer survivor.Zulma shares her compelling personal journey: from immigrating to the U.S. and pursuing higher education later in life, to her personal journey through breast cancer treatment and recovery.This conversation is a vital resource for anyone facing a health challenge, focusing on the critical role of the patient.In this episode, you will gain crucial insights on:Self-Advocacy: Why being an informed and proactive patient is the most important step in your healthcare journey.Mental Well-being: Zulma's expertise on navigating anxiety, depression, and shared trauma during and after treatment.The Power of Attitude: Advice on setting boundaries, prioritizing self-care, and maintaining a positive mindset through life-altering challenges.Zulma's story and clinical experience blend to offer a powerful message of hope, tenacity, and authenticity. Don't miss her actionable advice on finding your voice and transforming your experience into a source of strength.✨Episode Highlights:08:50 Zulma's Breast Cancer Diagnosis and Treatment Journey20:38 KEY TOPIC: The Paramount Importance of Self-Advocacy in Healthcare30:55 Zulma's Insights: Addressing Anxiety, Depression, and Trauma in Recovery36:44 Practical Tips: Setting Boundaries and Prioritizing Self-Care38:25The Power of Attitude and Affirmations in Healing56:35Discussing Cultural Perspectives on Illness and Seeking TherapyTranscript: https://bit.ly/podscript173Connect & Engage with Zulma:Website & podcast: https://www.dragonflytherapyservices.netInstagram: https://www.instagram.com/theswearingtherapist/Connect with NCT: nctpodcastfan@gmail.com, https://fanlist.com/nctpodcastSupport the new Survivor Series: A mission to uncover the unfiltered reality of survivorship. Learn more here: https://givebutter.com/SurvivorSerieswithTalayaDendyNavigating Cancer TOGETHER delivers heartfelt stories and expert insights to remind you that you are not alone. Subscribe now on Spotify, Apple Podcasts, YouTube, or your favorite podcast platform.Sponsor: This episode is brought to you by On the Other Side. Thank you for your support!Hosted, Produced, Written, and Edited by: Talaya DendyDisclaimer: The information on this podcast is for general informational purposes only and SHOULD NOT be used as a substitute for sound professional medical advice, evaluation, or care from your physician or other qualified health care provider.Hosted by Ausha. See ausha.co/privacy-policy for more information.

Jennifer J. Brown is a scientist, a writer, and a mother who never got the luxury of separating those roles. Her memoir When the Baby Is Not OK: Hopes & Genes is a punch to the gut of polite society and a medical system that expects parents to smile through trauma. She wrote it because she had to. Because the people who gave her the diagnosis didn't give her the truth. Because a Harvard-educated geneticist with two daughters born with PKU still couldn't get a straight answer from the very system she trained in.We sat down in the studio to talk about the unbearable loneliness of rare disease parenting, the disconnect between medical knowledge and human connection, and what it means to weaponize science against silence. She talks about bias in the NICU, the failure of healthcare communication, and why “resilience” is a lazy word. Her daughters are grown now. One's a playwright. One's an artist. And Jennifer is still raising hell.This is a conversation about control, trauma, survival, and rewriting the script when the world hands you someone else's lines.Bring tissues. Then bring receipts.RELATED LINKS• When the Baby Is Not OK (Book)• Jennifer's Website• Jennifer on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Send us a textIn June, the Fatty Liver Foundation officially launched the Stephen A. Harrison Patient Advocacy program and announced its first class of 20 Fellows. In today's conversation, the program's organizers, Fatty Liver Foundation President Wayne Eskridge and Program Co-ordinator Elena Samsonova, share the program's goals and objectives with Louise Campbell and Roger Green. The bulk of this conversation focuses on the program's goals and scope for its first year. First, though, Harrison Fellow Julie Peyout from Canada describes what it means to her to be part of the program. (Julie's connection was interrupted while her colleagues were answering this question earlier in the roundtable.)Wayne points out that, while the FLF originally focused on NAFLD and NASH, the new nomenclature has led them to broaden their focus to all forms of SLD. (He plans to rebrand as the Steatotic Liver Foundation.)Elena describes the program's four "pillars": Mentorship - Having an experienced advocate guide each Fellow as they pursue the next steps in their advocacy.Education - Learning more about SLD.Networking - Connecting with other advocates and industry decision-makers at conferences.Fellowship - Supporting each other as they grow new skills and have new experiences. Wayne elaborates on some of the "robust flow of information" the Fellows will receive. He focuses on three areas: what he calls "the nuts and bolts of the regulatory process", clinical trials from the researcher and trialist perspectives and more general information about how different functions inside a pharmaceutical company work. As the conversation winds down, Roger cites this podcast's mission to "make a big fat dent in MASH" and asks the Fellows about the dent they anticipate making. Elena responds with a story from the previous week's meetings, during which another Fellow stated that when she has participated in trials, she has never received information on what the trial results and learnings actually showed. Elena describes watching clinicians and trialists respond by discussing ways participants could receive such information in the future. 

Send us a textIn June, the Fatty Liver Foundation officially launched the Stephen A. Harrison Patient Advocacy program and announced its first class of 20 Fellows. In today's conversation, Louise Campbell and Roger Green interview the founders to learn what motivated them to launch this program, and we meet five of the initial Fellows. Program Co-ordinator Elena Samsonova opens the conversation by celebrating last week's onboarding of 20 inaugural Fellows and the chemistry between them. She goes on to introduce five of them:Steven Rodrigues (ALD, UK citizen) shares his recent experience giving a 15-minute national interview on BBC Radio 5 discussing ALD clinical insights. Silvana Lesidrenska (Hepatitis B, Bulgaria) shares her desire to learn more about SLD as part of her advocacy leading a liver patients association in Bulgaria. Julie Peyout (MASH, Canada) is a great-grandmother who was recently found free after therapy for Non-Hodgkin's Lymphoma. Pam Miller (MASH cirrhosis, US) learned 24 years ago that she had MASH cirrhosis when her surgeon aborted a bariatric procedure. Since then, she has lived with cirrhosis and experienced hepatic encephalopathy (HE). She has participated in clinical trials, lobbied legislators, and collaborated with professional societies. Melanie Smith  (MASH cirrhosis, US) has lived with stage-4 MASH cirrhosis since age 36 (sixteen years ago) and experiences hepatic encephalopathy (HE). She has led support groups for over a decade. Next, Fatty Liver Foundation President Wayne Eskridge recounts the program's foundational story. He describes Stephen as a man with a genuine commitment to patients and his passing as a "tremendous loss." This led Wayne to discuss this idea with Rebecca Taub of Madrigal, "another one of my heroes." (Madrigal supports this program.) Elena describes how she joined the FLF to lead this program. Roger asks the Fellows where and how they intend to make a difference. Their goals vary, from working in a Biopharma company advocating for patients to "going to the top," perhaps even lobbying the HHS Secretary, to expanding their own education and knowledge about the various forms of SLD.  

Send us a textThe original roundtable has three segments. Surfing the MASH Tsunami is preempting the third segment, which will be posted next week, to share our co-hosts' reactions to the positivity and energy they felt from a group of empowered SLD advocates. Immediately after the roundtable, Louise suggested to Roger that they record a separate conversation sharing their reactions to what they had just witnessed. They turned the recording equipment on and resumed their conversation.Roger starts by noting that this is the first SurfingMASH episode comprised entirely of patient advocates at a moment when advocates felt empowered and optimistic. (Also, the Fellows were the first advocates to appear on SurfingMASH who are not part of the Advocate KOL community.)For Louise, her overpowering reaction is to the passion, because passion breeds energy and empowerment. She notes that the SLD advocates came from an array of liver-related backgrounds and from HIV, the original sources of truly empowered patients some 30 years ago. Roger shares two thoughts. As he listened to the roundtable, he recalled earlier episodes, some four to five years ago, when it seemed that the physician KOL community was not in sync with the patient advocates' goals and needs. Continuing along this train of thought, he discusses the shift in identity from “MASH patient” to “person living with MASH.” To Roger, the term "MASH patient" suggests a person defined by the disease, whereas the term "patient living with MASH" empowers individual patients to manage the disease and its place in their lives in whatever way they choose. The advocates, he says, choose to learn and speak out confidently. During the roundtable, Elena mentioned Úna Keightly, a Harrison Fellow from Ireland, who spoke from the floor at Paris MASH to request that patients learn about the outcomes of the trials in which they participate, whether the outcome is deemed a success or a failure. For the "MASH patient," a failed trial feels like a personal failure, but for a "person living the MASH," even the failed trial becomes an opportunity to learn about the disease and contribute to a long-term solution. Louise mentions a comment from Harrison Fellow Pam Miller about her cardiologist giving her a potentially hepatotoxic medication without considering Pam's liver status. This reminded both Louise and Roger of a comment former Global Liver Institute President Donna Cryer made years ago to the effect of "it doesn't matter what kills me. If I'm dead, I'm dead." From here, the conversation shifts to other changes in disease description Louise and Roger foresee:Describing the disease itself in more accessible terms, such as "liver stiffness" vs. "fibrosis level."Increasing the groups of attendees at events to include not only patients, but also the APPs who will provide much of the actual patient-level care.Educating those who still mischaracterize MASLD as “a bit of fat” that requires no action. Focusing more attention on post-menopausal women, who Louise notes are most likely to exhibit advanced SLD and cirrhosis. Being more sensitive to issues that drive changes in patients' quality of life, which might be the impact of hepatic encephalopathy, but might also relate to lean mass wasting with incretin agonists. Both foresee a growing “army” of advocates that can drive earlier detection, smarter trial design, and better everyday care. They cite some specific examples from the Fellows in the roundtable and others from their own life experiences.Ultimately, Louise and Roger share their belief that this program is an excellent tribute to Stephen Harrison, who strongly believed in the importance of patient advocates and the messages they convey. 

This episode of Standard Deviation features Oliver Bogler in conversation with Dr Na Zhao, a cancer biologist caught in the crossfire of science, politics, and survival. Na's life reads like a brutal lab experiment in persistence.She grew up in China, lost her mother and aunt to breast cancer before she turned twelve, then came to the United States to chase science as both an immigrant and a survivor's daughter. She worked two decades to reach the brink of independence as a cancer researcher, only to watch offers and grants vanish in the political chaos of 2025.Oliver brings her story into sharp focus, tracing the impossible climb toward a tenure-track position and the human cost of a system that pulls the ladder up just as people like Na reach for it. This conversation pulls back the curtain on the NIH funding crisis, the toll on early-career scientists, and what happens when personal tragedy fuels professional ambition.Listeners will walk away with a raw sense of how fragile the future of cancer research really is, and why people like Na refuse to stop climbing.RELATED LINKSDr Zhao at Baylor College of MedicineDr Zhao on LinkedInDr Zhao's Science articleIndirect Costs explained by US CongressFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, Dr. Karen Litzy speaks with Steve Lewis, founder of Nabu, about the importance of empowering patients through technology. Steve shares his personal journey from working with musicians to developing a health tech startup aimed at improving patient care. The conversation explores the challenges of creating a health tech product, the importance of communication in healthcare, and the future of patient advocacy. Steve emphasizes the need for comprehensive tools that help patients manage their health information and advocate effectively for themselves.   Takeaways ·      His daughter's health challenges inspired Steve's journey into health tech. ·      Naboo aims to provide a single source of truth for patient information. ·      Effective communication is crucial for patient care and adherence. ·      Building a health tech startup requires understanding the needs of all stakeholders. ·      Safety and compliance are paramount in developing health tech solutions. ·      Patients need tools that help them advocate for their own care. ·      The entrepreneurial journey involves collaboration and community support. ·      Technology can enhance the patient experience and improve outcomes. ·      Don't hesitate to share your ideas and seek feedback. ·      Financial literacy is essential for aspiring entrepreneurs.   Time Stamps:  00:00 Introduction to Patient Empowerment 03:11 The Journey from Music to Medicine 05:55 The Birth of Nabu: A New Tool for Patients 08:42 Building a Health Tech Startup 12:01 Navigating Challenges in Health Tech 14:50 The Importance of Communication in Healthcare 17:57 Enhancing Patient Care with Technology 20:42 Safety and Compliance in Patient Care 23:49 His daughter's Experience with Nabu 26:52 The Future of Patient Advocacy 29:41 Entrepreneurial Insights and Advice   More About Steve:Steve Lewis is an internationally recognised healthtech founder, product leader, and patient advocate, known for building breakthrough solutions at the intersection of technology and real-world care. As Founder and CEO of Nabu.ai, Steve is on a mission to transform fragmented health information into a single, actionable source of truth for patients, families, and care teams. With over 20 years of experience spanning creative, brand strategy, product design, digital transformation, and startup leadership, Steve's work is informed by both professional expertise and deeply personal experience. His daughter's early arrival in the NICU and complicated health journey catalysed his relentless pursuit to fix the fragmented care journey as an advocate, an insight that powers Nabu's vision for a truly comprehensive patient- and carer-led technology addressing the most critical problems in health. Steve is rapidly emerging as a sought-after voice in digital health and innovation. He has been invited to share his authentic, “from the front lines” perspective at live events and on leading digital health podcasts. Steve's talks explore themes including AI for health equity, patient empowerment, data privacy, and the future of connected care, resonating with audiences for their candor and real-world relevance. A passionate believer in co-design and inclusion, Steve is actively collaborating with Australia's leading healthcare providers to validate the Nabu Advocate platform and drive innovation in its core feature set. By working closely with clinicians, families, special needs communities, and expert advisory boards, Steve ensures Nabu is built to meet real-world needs and deliver meaningful impact. Steve's story, which is rooted in resilience, empathy, and systems change resonates with audiences from hospital executives to grassroots advocates. Whether on stage, on air, or in the boardroom, he is known for challenging the status quo and inspiring others to put patient voices at the centre of healthcare transformation. Resources from this Episode: Nabu Website Steve on LinkedIn   Jane Sponsorship Information: Book a one-on-one demo here Mention the code LITZY1MO for a free month   Follow Dr. Karen Litzy on Social Media: Karen's Instagram Karen's LinkedIn   Subscribe to Healthy, Wealthy & Smart: YouTube Website Apple Podcast Spotify SoundCloud Stitcher iHeart Radio

In this powerful episode of Love Conquers Alz, Susie Singer Carter and Don Priess sit down with Neal K. Shah, visionary founder and CEO of CareYaya, a groundbreaking platform that connects families with compassionate, college-educated student caregivers. Neal shares how his personal caregiving journey inspired him to reimagine elder care, creating affordable, dignified, and deeply human support that benefits both older adults and the next generation of healthcare professionals.Together, they explore the urgent need to bridge generational divides, destigmatize dementia, and cultivate empathy in future doctors and nurses by immersing them in real-life caregiving experiences. Neal also opens up about his new book, "Insured to Death", which takes aim at the rising crisis of AI-driven healthcare claim denials and the devastating toll they take on patients and families.From stories of students forming life-changing bonds with people living with dementia, to hard truths about our broken long-term care and insurance systems, this conversation is both eye-opening and hopeful. It's a reminder that caregiving—when rooted in love, purpose, and community—has the power to transform lives.Counterforce HealthCareyaya.orgSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE ABSOLUTELY CRUCIAL PROMOTION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Follow us on Twitter, FB, IG, & TiK Tok

If you've ever felt trapped by the traditional health insurance system—high premiums, endless bureaucracy, and the frustration of fighting for coverage—you'll want to hear this. In this episode, I sit down with Andy Schoonover, founder and CEO of CrowdHealth, a community-powered alternative to health insurance that uses crowdfunding to pay medical bills directly. I recently became a CrowdHealth member myself and, for the first time in my adult life, happily don't have health insurance anymore. Andy breaks down exactly how CrowdHealth works, why he built it, and what makes it different from anything else out there. We talk about: Why paying doctors directly creates better healthcare How emergencies, pregnancies, and even cancer treatments are handled What happens when bills reach hundreds of thousands of dollars Whether preventative care like acupuncture is supported How CrowdHealth members are incentivized to stay healthy And what the future of healthcare could look like if people took power back from insurance companies Andy Schoonover is founder and CEO of CrowdHealth, a community-powered alternative to health insurance that provides a revolutionary way of paying for healthcare bills through crowdfunding. Schoonover was previously CEO of VRI, a healthcare technology company focused on monitoring patients with chronic conditions out of their homes. He is a graduate of the University of Virginia and Stanford University's Graduate School of Business. Sponsored By: → CURED | Right now, CURED Nutrition is offering my listeners an exclusive 20% off ON TOP OF the 10% off Best Seller Bundle. Just head to https://www.curednutrition.com/CLAUDIA and use the code CLAUDIA at checkout → PUORI | Shop Puori grass-fed protein powder + supplements (Clean Label Certified and third-party tested!!!) Use discount code: HEALINGTHESOURCE Interested or ready to join CrowdHealth? Use code CLAUDIA to get a major discount: $99/month for your first 3 months of membership! Follow the host, Claudia, on Instagram, check out HealingTheSource.co & Elham's Liquid Gold 100% Organic Castor Oil, and enjoy her deep-dives on Substack  

Lea was just 12 when her symptoms began, but six years passed before doctors finally gave her an MG diagnosis. In that time, she lost the ability to walk, speak, and swallow, yet never lost her determination to live fully. Join Martine as Lea shares her journey from Germany and how the fight to find a diagnosis crosses every border.See omnystudio.com/listener for privacy information.

Katie Henry has seen some things. From nonprofit bootstraps to Big Pharma boardrooms, she's been inside the machine—and still believes we can fix it. We go deep on her winding road from folding sweaters at J.Crew to launching a vibrator-based advocacy campaign that accidentally changed the sexual health narrative in breast cancer.Katie doesn't pull punches. She's a born problem solver with zero tolerance for pink fluff and performative empathy. We talk survivor semantics, band camp trauma, nonprofit burnout, and why “Didi” is the grandparent alter ego you never saw coming.She's Murphy Brown with a marimba. Veronica Sawyer in pharma. Carla Tortelli with an oncology Rolodex. And she still calls herself a learner.This is one of the most honest, hilarious, and refreshingly real conversations I've had. Period.RELATED LINKS:Katie Henry on LinkedInKatie Henry on ResearchGateLiving Beyond Breast CancerNational Breast Cancer CoalitionFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Hoffman continues his conversation with Nicole Bell, the CEO of Galaxy Diagnostics and author of “What Lurks in the Woods.” 

This episode of the Intelligent Medicine podcast is a deep dive into the complexities of Lyme disease and other tick-borne illnesses. Nicole Bell, the CEO of Galaxy Diagnostics and author of “What Lurks in the Woods,” details the challenges of diagnosing tick-borne diseases, the limitations of current diagnostic tests, and the controversy around treatment methodologies. Nicole shares her personal journey that led her to this field after her husband was misdiagnosed with early-onset Alzheimer's, which was later revealed to be caused by advanced Lyme disease. They also discuss new diagnostic techniques, the importance of personalized treatment plans, and ongoing advocacy efforts to improve awareness and research funding for Lyme disease.

Blind biopsies leave questions unanswered. In this episode of BackTable OBGYN, host Dr. Mark Hoffman welcomes back Dr. Linda Bradley, an expert in obstetrics, gynecology, and hysteroscopy from the Cleveland Clinic, to discuss the benefits and advancements of direct visualized endometrial sampling over traditional blind biopsy techniques. ---This podcast is supported by:Medtronichttps://www.medtronic.com/en-us/healthcare-professionals/specialties/gynecology/product-portfolio.html---SYNPOSISDr. Bradley emphasizes the importance of hysteroscopy for accurate diagnosis and treatment of various gynecological issues, including abnormal uterine bleeding. They explore the limitations of blind biopsies and the advantages of hysteroscopy in detecting focal lesions, avoiding unnecessary hysterectomies, and ensuring patient safety. The discussion also touches on the economic and procedural challenges in adopting hysteroscopy more widely in clinical practice.---TIMESTAMPS00:00 - Introduction 03:30 - The Evolution of Hysteroscopy at Cleveland Clinic04:49 - Challenges and Innovations in Hysteroscopy06:30 - Clinical Insights: Direct Visualized Endometrial Sampling12:03 - Case Studies and Practical Applications15:46 - The Importance of Visual Examination in Gynecology20:03 - Advocating for Hysteroscopy in Medical Practice31:07 - Patient History and Trauma Considerations31:34 - Cancer Detection and Missed Diagnoses32:14 - Challenges with Unscheduled Bleeding32:56 - Case Study: Blood Transfusions and Hysterectomy33:38 - Importance of Hysteroscopy34:43 - Hysteroscopy Techniques and Best Practices37:41 - Ultrasound and SIS (Saline Infusion Sonohysterography) for Imaging38:45 - Post-Operative Care and Follow-Up47:41 - Environmental and Economic Considerations in Healthcare52:51 - Final Thoughts and Patient Advocacy

In this episode of Cheat Codes, Dr. Z and Dr. C are joined by renowned advocates TaLana Hughes and Cassandra Trimnell to explore what “the sickle cell community” truly means. They discuss how patients, caregivers, providers, and allies form interconnected, and often overlapping, communities that bring hope, support, and change. From building trust to celebrating wins, the conversation highlights the power of connection, the importance of access to information, and how to find your “tribe” in the sickle cell space. Whether local or global, online or in person, community remains the heartbeat of progress in sickle cell disease.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.  

What happens when you hand a mic to the most extroverted, uncensored Gen Z career coach in New York? You get Olivia Battinelli—adjunct professor, student advisor, mentor, speaker, and unfiltered truth-teller on everything from invisible illness to resume crimes.We talked about growing up Jewish-Italian in Westchester, surviving the Big Four's corporate Kool-Aid, and quitting a job after 7 months because the shower goals weren't working out. She runs NYU Steinhardt's internship program by day, roasts Takis and “rate my professor” trolls by night, and somehow makes room for maple syrup takes, career coaching, and a boyfriend named Dom who sounds like a supporting character from The Sopranos.She teaches kids how to talk to humans. She's allergic to BS. And she might be the most Alexis Rose-meets-Maeve Wiley-mashup ever dropped into your feed. Welcome to her first podcast interview. It's pure gold.RELATED LINKS:Olivia Battinelli on LinkedInOlivia's Liv It Up Coaching WebsiteOlivia on InstagramNYU Steinhardt Faculty PageFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Sophie Sargent walked into the studio already owning the mic. A pandemic-era media rebel raised in New Hampshire, trained in Homeland Security (yep), and shaped by rejection, she's built a career out of DM'ing her way into rooms and then owning them. At 25, she's juggling chronic illness, chronic overachievement, and a generation that gets dismissed before it even speaks.We talk Lyme disease, Lyme denial, and the healthcare gaslighting that comes when you “look fine” but your body says otherwise. We dive into rejection as a career accelerant, mental health as content porn, and what it means to chase purpose without sacrificing identity. Sophie's a former morning radio host, country music interviewer, and Boston-based creator with a real voice—and she uses it.No fake podcast voice. No daddy-daughter moment. Just two loudmouths from different planets figuring out what it means to be seen, believed, and taken seriously in a system designed to do the opposite.Spoiler: She's smarter than I was at 25. And she'll probably be your boss someday.RELATED LINKSSophie on InstagramSophie on YouTubeSophie on LinkedInMedium article: “Redefining Rejection”See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

This episode is sponsored by Invivyd, Inc.Marc Elia is a biotech investor, the Chairman of the Board at Invivyd, and a Long COVID patient who decided to challenge the system while still stuck inside it. He's not here for corporate platitudes, regulatory shoulder shrugs, or vaccine-era gaslighting. This is not a conversation about politics, but it's about power and choice and the right to receive care and treatment no matter your condition.In this episode, we cover everything from broken clinical pathways to meme coins and the eternal shame of being old enough to remember Eastern Airlines. Marc talks about what it means to build tools instead of just complaining, what Long COVID has done to his body and his patience, and why the illusion of “choice” in healthcare is a luxury most patients don't have.This conversation doesn't ask for empathy. It demands it.RELATED LINKSMarc Elia on LinkedInInvivyd Company SiteMarc's Bio at InvivydFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.