Podcasts about Patient advocacy

Teresa Baglietto has lived through the kind of compounded harm that exposes how thin the safety net really is. In this episode she walks through a life shaped by medical neglect, personal violence, and the exhausting labor of self advocacy. She nearly died after a C section when hospital staff failed to confirm she had urinated before discharge, spending 15 days hospitalized and separated from her newborn while facing the possibility of permanent damage. In 2013 she discovered an aggressive breast cancer and waited weeks for test results and surgery while administrators stalled and passed responsibility. Care only moved forward after she threatened public exposure. Teresa also speaks openly about surviving rape in high school, losing her father to cancer at age 48 when she was 10, and growing up without reliable adults in the room. She explains why it took 7 years to write her book, why she launched a podcast, and how sales grit becomes a survival tool when patients must fight systems designed to delay them. The conversation stays specific, unsentimental, and grounded in consequence.RELATED LINKSTeresa Baglietto on LinkedInThe Ripple Effect by Teresa BagliettoIn Shock PodcastIn Shock Podcast on InstagramCanvas Rebel interview with Teresa BagliettoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Your Guide To Living With Adhd: Managing Daily Life, Healthcare, And Intimacy Living with ADHD often means struggling with essential executive functions like focus and organization. Because symptoms manifest differently in each person, many people lack the specific systems and structures needed to manage their unique challenges. Our guest offers advice on various coping strategies and what to do when those structures fail. Guest: Cate Osborn, online mental health advocate, co-author, The ADHD Field Guide for Adults Host: Elizabeth Westfield Producer: Kristen Farrah.     From Doctor To Patient: Lessons In Self-Advocacy From A Physician Dr. Sylvia Owusu-Ansah's life took a turn when a routine medical screening became anything but. Despite her professional expertise, she still had to navigate the frightening transition from provider to patient. Owusu-Ansah explains how she's using her story to show others how to self-advocate when navigating the healthcare system. Guest: Dr. Sylvia Owusu-Ansah, pediatric emergency medicine physician, assistant professor of pediatrics and emergency medicine, University of Pittsburgh School of Medicine, cancer patient Host: Greg Johnson Producers: Kristen Farrah  Facebook: ingoodhealthpodX: @ ingoodhealthpodIG: @ingoodhealthpodYouTube: @ingoodhealthpodSpotify Apple Podcast In Good Health PodcastSubscribed to the newsletterFull ArchiveContact UsBecome an Affiliate Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From Doctor To Patient: Lessons In Self-Advocacy From A Physician Dr. Sylvia Owusu-Ansah's life took a turn when a routine medical screening became anything but. Despite her professional expertise, she still had to navigate the frightening transition from provider to patient. Owusu-Ansah explains how she's using her story to show others how to self-advocate when navigating the healthcare system. Guest: Dr. Sylvia Owusu-Ansah, pediatric emergency medicine physician, assistant professor of pediatrics and emergency medicine, University of Pittsburgh School of Medicine, cancer patient Host: Greg Johnson Producers: Kristen Farrah   Links for information:Owusu-Ansah profileOwusu-Ansah InstagramOwusu-Ansah Website    Facebook: ingoodhealthpodX: @ ingoodhealthpodIG: @ingoodhealthpodYouTube: @ingoodhealthpodSpotify Apple Podcast In Good Health PodcastSubscribed to the newsletterFull ArchiveContact UsBecome an Affiliate Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

America spends nearly double what the fourth-ranked country spends on healthcare per capita — and still ranks among the worst in outcomes. So what exactly are we paying for? In this episode of the Experiencing Healthcare Podcast, Jamie Preston and Your Health CEO Matt Staub examine what happens when healthcare gets treated like gasoline: something people expect to be available, can't easily compare on quality, and ultimately choose based on price or convenience. When brand and price stop mattering, the only differentiator left is how patients are made to feel — and whether they trust the person across from them enough to actually change. What you'll hear in this episode: Why Matt ranks service above outcomes and access — and the patient story that changed how he thinks about both The "Chick-fil-A problem": how your healthcare experience is now being compared to your best service experience anywhere, not just the clinic down the street What provider burnout really looks like when a clinician closes their notes at 11pm wondering if their patient listened How insurance billing creates distrust that bleeds directly into the patient-provider relationship — and what healthcare organizations can do about it Why the most caring thing a doctor can do sometimes feels like the worst customer service in the room If you've ever felt like a number in a waiting room — or if you've ever been the one trying to help someone who wouldn't listen — this conversation will stay with you. Press play.

What happens when a life-changing diagnosis becomes the start of a bigger mission? In Healthy Mind, Healthy Life, hosted by Sayan, Debra Griffin shares how her 1989 breast cancer diagnosis reshaped her faith, identity, and view of healthcare. This episode is for anyone navigating illness, uncertainty, or systems that make people feel small. Debra explores self-advocacy, patient data ownership, and why healing is not only about treatment, but also about clarity, dignity, and voice. About the Guest: Debra Griffin is the founder of PPX Tech, a patient-centered health technology concept focused on healthcare access and data ownership. She also wrote a book exploring Judas, faith, and spiritual awakening. Episode Chapter: 00:03:41 – The moment pain became purpose 00:05:16 – A spiritual awakening after diagnosis 00:07:24 – Why Judas became the center of her book 00:10:22 – Breast cancer in 1989 and the turning point 00:12:00 – Why patient advocacy matters so much 00:13:32 – The vision behind PPX Tech 00:19:47 – Staying grounded when progress feels slow Key Takeaways: Advocate for yourself in healthcare decisions. Medical advice matters, but informed questions matter too. Access to healthcare should be a basic human right. Slow progress does not mean your mission lacks value. Protect your mental health while pursuing hard goals. How to Connect With the Guest: Website: https://debragriffin.com/  Book - https://debragriffin.com/books/    Want to be a guest on Healthy Mind, Healthy Life? DM on PM - Send me a message on PodMatch DM Me Here: https://www.podmatch.com/hostdetailpreview/avik Disclaimer: This video is for educational and informational purposes only. The views expressed are the personal opinions of the guest and do not reflect the views of the host or Healthy Mind By Avik™️. We do not intend to harm, defame, or discredit any person, organization, brand, product, country, or profession mentioned. All third-party media used remain the property of their respective owners and are used under fair use for informational purposes. By watching, you acknowledge and accept this disclaimer. Healthy Mind By Avik™️ is a global platform redefining mental health as a necessity, not a luxury. Born during the pandemic, it's become a sanctuary for healing, growth, and mindful living. Hosted by Avik Chakraborty, storyteller, survivor, and wellness advocate. With over 6000+ episodes and 200K+ global listeners, we unite voices, break stigma, and build a world where every story matters.

New research says that 50% of women who have infertility but no painful periods have endometriosis. Those with painful periods and infertility are *90%* likely to have it. But diagnosis isn't always the hardest part. Many physicians will say they can treat it, but very few have the specialization needed to provide a "one and done" surgery, leaving many women with only temporary symptom relief, years of endo suppression medications, and the need for repeat surgeries. Is there a different way? YES. Dr. Patrick Yeung shares the key things to look for in an endometriosis specialist to help you find someone who can provide you with high quality care that doesn't require IVF for pregnancy or suppression medications for pain. NOTE: This episode is appropriate for most audiences and does use the term sexual functioning.GUEST BIO: Dr. Patrick Yeung Jr. is Fellowship-trained in Minimally Invasive Gynecologic Surgery and spent most of his career in academics - at Duke University and still as Adjunct Professor at Saint Louis University, for 15 years, almost 4,000 cases, with multiple landmark publications. He founded the RESTORE Center for Endometriosis to pay forward what benefitted his own wife in relieving debilitating pain and leading to recurring natural fertility, and to enter the conversation among Centers of Endometriosis as the only Center dedicated to removing endometriosis and optimizing the anatomy that does not rely on IVF or post-operative hormonal suppressionSHOW NOTES: Journal article: https://rrmjournal.org/index.php/jrrm/article/view/13/17Ep. 10: Endometriosis 101Ep. 139: Preventing scarring, adhesions, and repeat endometriosis surgery, with Dr. Naomi WhittakerEp. 190: Unblocking Fallopian Tubes for Natural Conception with Dr. Naomi WhittakerSend a textSupport the showOther great ways to connect with Woven Natural Fertility Care: Learn the Creighton Model System with us! Register here! Get our monthly newsletter: Get the updates! Chat about issues of fertility + faith: Substack Follow us on Instagram: @wovenfertility Watch our episodes on YouTube: @wovenfertility Love the content? The biggest gift you could give is to click a 5 star review and write why it was so meaningful! This podcast is provided for educational and informational purposes only and does not constitute providing medical advice or professional services. The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. Always seek the advice of your doctor or other qualified health provider regarding a medical condition. If you think you may have a medical emergency, call 911 or go to the nearest emergency room immediately. Neither Woven nor its staff, nor any contributor to this podcast, makes any represe...

Science likes to call itself a meritocracy. Angela Anderson and Brandi Mattson know better. Both served as editors at elite journals (Cell and Neuron), where a single decision could determine who gets tenure, funding, or obscurity. They watched brilliant data get filtered out because the authors did not know the unwritten rules controlled by 5 dominant publishing houses with profit margins higher than Google.In 2020, amid pandemic shutdowns and national reckoning over racial injustice, they co-founded a nonprofit to expose that hidden curriculum. Through the JEDI program, they provide 10 hours of free editorial consulting to scientists who lack access to elite networks. In 1 year alone, 25 awards helped researchers salvage canceled grants, secure NSF career funding, and rebuild careers derailed by rejection.This episode pulls back the curtain on the multibillion dollar publishing engine that profits from taxpayer funded science and reveals who gets heard, who gets sidelined, and how insiders are choosing to redistribute power.RELATED LINKSAngela AndersonBrandy MattsonLife Science EditorsLife Science Editors FoundationCellNeuronNational Science FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode of Disruption/Interruption, KJ sits down with Tracy MacNeal, CEO of Maternal Medical, to discuss a long-overlooked crisis in women's health: birth injuries. Tracy reveals how 10-15% of women who deliver vaginally experience severe pelvic floor trauma—injuries that often go undiagnosed and untreated for years. She shares how her company is developing groundbreaking technology to prevent these injuries during childbirth and why this space has been so dramatically underinvested. This conversation exposes the silence around maternal health and the urgent need for innovation in the delivery room. Four Key Takeaways: [11:28] The Hidden Epidemic of Birth Injuries - 10-15% of women who deliver vaginally suffer pelvic floor muscles torn off the bone—an injury only visible through ultrasound or MRI. This leads to pelvic organ prolapse, incontinence, and chronic pain, yet most women leave the hospital without knowing they've been injured. [5:22] Innovation Has Been Stalled for 80 Years - The epidural, introduced in the 1940s, was the last major innovation in labor and delivery. Unlike other medical fields that see constant advancement, maternal health has been dramatically underinvested, creating an anemic ecosystem for research and development. [20:12] Smart Technology That Listens to the Body - Maternal Medical's device gently pre-stretches the birth canal by listening to the mother's tissue and only expanding one millimeter at a time when the body relaxes. In clinical trials of over 200 patients, the device group had zero injuries compared to 11% in the control group. [30:58] The Power of Speaking Up - Women's silence about their symptoms has perpetuated the problem. When women speak up about birth injuries, it signals to investors that patients care and pushes physicians to prioritize these issues. Advocacy drives innovation and funding in healthcare. Quote of the Show (28:27):"Unless she's a fighter pilot, having a baby is the most dangerous thing most women will ever do."- Tracy MacNeal Join our Anti-PR newsletter where we’re keeping a watchful and clever eye on PR trends, PR fails, and interesting news in tech so you don't have to. You're welcome. Want PR that actually matters? Get 30 minutes of expert advice in a fast-paced, zero-nonsense session from Karla Jo Helms, a veteran Crisis PR and Anti-PR Strategist who knows how to tell your story in the best possible light and get the exposure you need to disrupt your industry. Click here to book your call: https://info.jotopr.com/free-anti-pr-eval Ways to connect with Tracy MacNeal: LinkedIn: https://www.linkedin.com/in/tracymacneal/Company Website: https://maternamed.com How to get more Disruption/Interruption: Amazon Music - https://music.amazon.com/podcasts/eccda84d-4d5b-4c52-ba54-7fd8af3cbe87/disruption-interruption Apple Podcast - https://podcasts.apple.com/us/podcast/disruption-interruption/id1581985755 Spotify - https://open.spotify.com/show/6yGSwcSp8J354awJkCmJlDSee omnystudio.com/listener for privacy information.

In this inspiring conversation, host Ashutosh Garg speaks with Sophie Shah, the 16-year-old founder of Chronically Me. Sophie is a speaker, researcher, and patient advocate whose work spans healthcare innovation and global equity.She shares her personal journey with chronic illness, the challenges of navigating an often isolating healthcare system, and how she transformed her experiences into a platform that empowers thousands of patients worldwide.Discover how Sophie built a distributed ambassador network across five continents, developed a patient-centric health app, and continues to champion health equity. She also shares valuable lessons on leadership, scaling impact, and staying true to one's mission.In addition, Sophie offers practical advice for young people who want to turn their lived experiences into meaningful systemic change.Don't miss this thought-provoking episode filled with leadership insights and real-world impact.

Today's episode of Out of Patients welcomes Dr Pamela Buchanan, an emergency room physician with over 20 years inside American medicine who refuses to sugarcoat what the job demands and what it destroys. She worked straight through COVID as protocols changed by the day and deaths arrived faster than anyone could process. She logged 80 to 100 hour weeks. She isolated from her family to avoid bringing the virus home. Over time, survival began to feel negotiable.Dr Buchanan speaks openly about burnout as emotional flatline and about physician suicide as a predictable outcome that leadership prefers to ignore. She describes the ER as the catch all for a broken system and explains why chronic care collapses there by design. She shares the reality of trying to access mental health care while still practicing medicine, calling dozens of therapists, getting nowhere, and spending $10,000 to $15,000 out of pocket just to stay alive and functional.Listeners will hear how neurodivergence shaped her career in emergency medicine, how race and trust intersect inside hospital walls, and why doctors are leaving in waves. This conversation carries clarity, anger, humor, and hard earned truth from someone who stayed long enough to name the damage.RELATED LINKSDr Pamela BuchananStrong MedicineDr Pamela Buchanan on LinkedInDr Pamela Buchanan on InstagramEmotional Flatline articleKevinMD essay by Dr Pamela BuchananFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dans cet épisode de Cheminements enregistré en public, nous explorons une aventure collective qui fait bouger les lignes de la prévention solaire. Comment passer des discours médicaux classiques à une communication qui "passe crème" auprès des jeunes ? À travers trois projets concrets. Du programme Student Voices au jeu de 7 familles pédagogique, jusqu'à l'outil MySun Experience, nos invitées dévoilent les coulisses d'une collaboration inédite entre une association de patients et un laboratoire dermatologique. Un échange riche sur l'importance de la co-construction pour transformer des messages de santé en véritables réflexes de vie.Les intervenantes :Pascale Benaksas : présidente de l'association France Assos Cancer et Peau, patiente engagée pour le dépistage précoce.Céline Decarpigny : chef de projet expérience patient au sein du Groupe Pierre Fabre.Catherine Baissac : docteur en pharmacie et responsable expérience patient (Patient Advocacy) chez Pierre Fabre.Les sujets abordés dans l'épisode :Les nouveaux codes de communication : pourquoi parler de vieillissement cutané et d'esthétique touche plus les jeunes que le discours sur le cancer.L'effet "daronne" : comprendre les freins psychologiques et sociaux à l'application de la crème solaire entre amis.Le danger des cabines UV : le combat pour l'interdiction des "machines à cancer" en France.Le jeu comme outil de soin : comment un jeu de 7 familles peut transformer les enfants en ambassadeurs de la prévention.L'algorithme du vieillissement : présentation de MySun Experience, l'outil qui calcule l'impact réel de vos habitudes solaires sur votre peau dans 15 ans.Crédits :Écriture : Marguerite de RodellecProduction : MedShake StudioCet épisode à été enregistré durant la première édition de la Journée Patients & Pharma, un événement pour créer un véritable espace de dialogue entre représentants de patients et industrie qui a eu lieu le 4 décembre 2025, à la Maison A. Trocadéro. Chers auditeurs, je vous informe que d'autres épisodes exclusifs du podcast Cheminements ont été enregistrés en direct, pour donner la parole à des binômes patients / laboratoires qui sont venus raconter leurs collaborations, leurs défis, et parfois même… leurs histoires d'amour professionnelles. Alors si ce sujet vous parle, rejoignez-nous.Ressources :https://patientspharma.com/En ouvrant le dictionnaire, on apprend que "cheminement" désigne une progression graduelle, un mouvement, une avance graduelle.➡ Retrouvez tous les épisodes sur https://www.cheminements.co/❤️ Soutenez-nous gratuitement :Abonnez-vous !Laissez 5 étoiles et un avis sur Apple Podcasts ou Spotify ⭐Cheminements, le podcast santé des femmes, dans vos oreilles chaque semaine.Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

The ‘CHATGPT' Of Oncology: How AI Is Bridging The Gap In Cancer Care A person's life expectancy should never be determined by their zip code, yet access to top-tier cancer centers remains a major factor in survival rates. To bridge this gap, a new AI-driven platform is providing patients with expert breakdowns of their specific diagnosis. Our experts this week discuss how this new tool is ensuring all patients have access to the most effective and up-to-date care strategies available. Guests:  Simone Jensen, founder & CEO, Radical Health Elisabeth Drabkin, board member, Radical Health's Patient Advisory Board Host: Elizabeth Westfield Producer: Kristen Farrah     The Patient Playbook: Navigating Billing Systems And Reducing Medical Debt Do you know that you should never pay a medical bill as soon as you receive it? This is just one of many common mistakes patients make that's losing them a lot of money. Our expert this week breaks down how to take control of your financial health and get rid of unnecessary medical debt. Guests: Caitlin Donovan, senior director, Patient Advocate Foundation Host: Greg Johnson Producers: Kristen Farrah Facebook: ingoodhealthpodX: @ ingoodhealthpodIG: @ingoodhealthpodYouTube: @ingoodhealthpodSpotify Apple Podcast In Good Health PodcastSubscribed to the newsletterFull ArchiveContact UsBecome an Affiliate Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The ‘CHATGPT' Of Oncology: How AI Is Bridging The Gap In Cancer Care A person's life expectancy should never be determined by their zip code, yet access to top-tier cancer centers remains a major factor in survival rates. To bridge this gap, a new AI-driven platform is providing patients with expert breakdowns of their specific diagnosis. Our experts this week discuss how this new tool is ensuring all patients have access to the most effective and up-to-date care strategies available. Guest: Simone Jensen, founder & CEO, Radical Health; Elisabeth Drabkin, board member, Radical Health's Patient Advisory Board Host: Elizabeth Westfield Producer: Kristen Farrah Facebook: ingoodhealthpodX: @ ingoodhealthpodIG: @ingoodhealthpodYouTube: @ingoodhealthpodSpotify Apple Podcast In Good Health PodcastSubscribed to the newsletterFull ArchiveContact UsBecome an Affiliate Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Barbara Paldus is the Founder and CEO of CODEX Labs, the sponsor of this episode.She grew up around Nobel Prize winners, built biotech manufacturing equipment for vaccines and cancer therapeutics, and then sold her company after an 8 year old threatened suicide.Her son's severe eczema pushed her into an unregulated $100,000,000,000 skincare market where parents are told to trust labels that nobody verifies. She explains how corticosteroid ladders leave patients with years long withdrawal, why U.S. ingredient oversight lags Europe, and how chemotherapy destroys the same skin and gut barriers seen in inflammatory disease.The conversation tracks the real stakes behind “clean” marketing: a child's immune system, hospital infections like MRSA, and patients trying to survive treatment without new damage. She also details the research path from Irish medical manuscripts to microbiome science and why sick populations become the only reliable regulators when policy fails.RELATED LINKSBarbara PaldusCodex LabsSekhmet VenturesDr Peter LioFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode of On Rare: Innovators, hosts David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, speak with Kat Bryant Knudson, Founder and CEO of the Speak Foundation and a leader in the limb-girdle muscular dystrophy (LGMD) community. Diagnosed as a child after experiencing early symptoms of muscle breakdown, Kat spent years searching for answers before receiving a definitive genetic diagnosis. What began as a personal journey to understand her condition evolved into a lifelong commitment to ensuring that no one with LGMD faces that journey alone. From founding the Speak Foundation in an unexpected twist of fate to organizing groundbreaking scientific workshops that bring patients, researchers, industry, and the FDA to the same table, Kat has helped reshape how the LGMD community connects, advocates, and advances research. Guided by the belief that people with lived experience should have the loudest voice in the room, Kat continues to innovate on behalf of a diverse and growing rare disease community. Kat's story is a reminder that progress begins with connection, shared experience, and the courage to speak up. Pantene is a third-party trademark. BridgeBio is not affiliated with or endorsed by Pantene or Procter & Gamble, and this reference is for storytelling purposes only.

In this episode of the AARC Perspectives Podcast, Jennifer Hannosh, RRT, shares her heartfelt journey from a tragic loss to becoming a passionate trach patient advocate to FACES 2025 Patient Advocacy Award recipient. Listen in to learn more about her innovative pilot program and collaborative approach that are transforming patient care and inspiring systemic change across her hospital. The episode also highlights the importance of networking, professional involvement, and advocacy for respiratory therapists, as well as empowering patients through education to enhance confidence.Send us your thoughts on this podcast

Dr Eugene Manley grew up in Detroit in the 1980s cycling through emergency rooms 20 to 30 times a year with asthma and anaphylaxis while hospital staff talked past his family and buried them in paperwork they could not decode. He responded by earning a BS in mechanical engineering an MS in biomedical engineering and a PhD in molecular biology cell biology and biochemistry. Along the way he tore his ACL training for a jiu jitsu black belt worked 86 straight days in a lab during his doctorate and learned how academic and clinical systems punish people who refuse to shrink.In this episode Manley walks through a recent post surgery ordeal at Mount Sinai Queens where staff falsified records attempted an illegal discharge and nearly sent him home on the wrong blood thinner. He explains how medical racism shows up in charts staffing and decision making and why measurable equity fails without accountability. Listeners hear how his STEMM and Cancer Health Equity Foundation builds pipelines for underrepresented students challenges clinical trial design and teaches patients how to protect themselves when institutions lie. RELATED LINKS• Eugene Manley Jr• STEMM and Cancer Health Equity Foundation• Village Voice• LUNGevity FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What if the most expensive healthcare decisions aren't made in the boardroom — but in the exam room, when the wrong infection gets treated with the wrong antibiotic? In this episode of the Your Health University, Podcast, Jamie sits down with Madison Browning, a registered nurse in urology at Your Health, to talk about what proper urological care actually looks like, why it matters far beyond the individual patient, and how a strong, collaborative provider team is the difference between a patient thriving and a patient stuck in a revolving door of emergency room visits. What you'll hear in this episode: Why getting a UTI diagnosis right the first time has massive implications for patient health and system costs The role nurse practitioners play in specialized urology care — and why their expertise is often underestimated How the team-based model at Your Health empowers every provider to collaborate and deliver better outcomes The direct connection between outpatient urology care and reduced hospital stays, ER visits, and downstream Medicare and tax costs Madison's genuine gratitude for the team around her — and what it looks like when a healthcare culture actually works If you've ever wondered whether the healthcare system could do better — this episode is proof that it already is, one patient at a time. www.YourHealth.Org

What does it actually take to say yes in healthcare when the system is wired to say no? In this episode of The Disrupted Podcast, Scott takes you straight into the field — from a brand-new administrator in Marietta, Georgia who's already revolutionizing her building eight days in, to a 190-patient facility in Charleston where the real conversation isn't about hospice referrals, it's about whether you have the staff to back it up. Scott gets honest about the moments where healthcare organizations talk a big game but fold when it matters — refusing acute visits to non-panel patients, locking providers into rigid workflows, and hiring bodies instead of talent. He challenges all of it. And he does it with the kind of clarity that only comes from someone who's actually in the buildings, at the dinner tables, and on the phone doing the hard work every day. From a nurse who deserves a Tesla to a wristband that could change emergency response forever, this episode is packed with real stories, bold ideas, and a simple but radical belief: that getting to the yes isn't just good business — it's the whole point of healthcare. If you're a provider, administrator, nurse, or healthcare leader who's tired of the way things have always been done, this one's for you. www.YourHealth.Org

Topic: Education Reform, Healthcare Advocacy, and Running for Georgia Superintendent of SchoolsIn this 43-minute episode, host JR Sparrow sits down with Dr. Nelva Lee, a healthcare administrator, entrepreneur, and candidate for Georgia Superintendent of Schools. Dr. Lee shares her inspiring journey from Panama to the United States, her work in healthcare advocacy, and her vision for transforming Georgia's education system through literacy, trade certifications, and school choice.Growing up in Panama during the Noriega dictatorshipFamily heritage from Costa Rica and JamaicaMoving to the US as a teenager and appreciating democratic freedomsLessons learned from her grandmother Nelva about gratitude and work ethicObtaining a trade certification in healthcare during high schoolEarning bachelor's, master's, and doctorate degrees in healthcare administrationWorking as Director of Patient Advocacy at Grady Health SystemFounding a vocational school for medical interpretersCreating the certification exam for medical interpretersInvolvement with AI and human interpreting integrationAppointment to Georgia Department of Community Health by Governor KempLearning the slow process of government policymakingImportance of community engagement in healthcare policyAdvocacy rooted in personal experience with dictatorshipCurrent State of Georgia Education:Georgia ranks 38th out of 50 states in educationMississippi improved from 50th to top 10 by returning to basicsKey Campaign Initiatives:Literacy FirstNo child leaves second grade without learning to readClear guidelines for teachers on literacy benchmarksRecognition that prisons are built based on third-grade literacy ratesUniversal Trade CertificationsAll Georgia graduates receive high school diploma AND trade certificationBenefits both college-bound and workforce-ready studentsProvides financial independence and career optionsExpanded School ChoiceExpansion of Promise Scholarship ActMore public Montessori and KIPP schoolsMatching learning environments to individual student needsSpecial Education & IEP Reform:Concerns about overuse of IEP labelsIEP test scores don't count toward school performance metricsRisk of implicit bias from teachers toward labeled studentsNeed for appropriate learning environments rather than automatic labelingPost-COVID Challenges:Addressing learning deficits in current 6th-7th gradersMental health impacts from isolation (anxiety, depression)Need for motivation and self-esteem building"By the third grade, they're building prisons based on whether or not children are literate.""Every child can learn, but they need to have a learning environment that matches their specific learning needs.""Good leaders really are great because they motivate others to do the best.""Anything that you do for children lasts a lifetime."Learn More About Dr. Nelva Lee:Website: drnelvalee.comBooks and additional information available on her websiteFollow WV Uncommon Place:Instagram, Tumblr, Twitter, TikTok, Facebook, LinkedInMerch: wvuncommonplace.square.siteSubscribe and rate on your favorite podcast platformEducation ReformHealthcare AdvocacyEntrepreneurshipImmigration & DemocracySpecial EducationTrade Schools & Vocational TrainingSchool ChoiceLeadership & Public ServiceEpisode SummaryKey Topics DiscussedBackground & Immigration (0:00 - 8:00)Healthcare Career & Entrepreneurship (8:00 - 18:00)Public Service & Policy (18:00 - 25:00)Running for Georgia Superintendent of Schools (25:00 - 43:00)Notable QuotesResourcesEpisode Themes

We're marking Rare Disease Month 2026 by highlighting the powerful story of Shanthi Hegde, a young patient advocate working to transform how bleeding disorders are understood, treated, and supported. This work is fueled by her own arduous journey with two rare bleeding disorders and immune dysregulatory syndrome, and an extended diagnostic odyssey marked by dismissal, underdiagnosis, and structural bias. “I was told many times by many providers that these disorders are not common in Indians and that my bruises were there just because I'm brown.” Admirably, Shanthi pushed past this mistreatment, advocated for her medical needs, and devoted herself to tackling a range of issues confronting rare disease patients from mental health access to affordable drug pricing to research equity. In this remarkable Year of the Zebra conversation with host Lindsey Smith, you'll also learn about: Shanti's work with the Hemophilia Federation of America; How gaps extend beyond treatment to include insurance coverage, provider training, and substance use care; What clinicians can do to improve the work they do with rare disease patients. Join us for a conversation that connects patient voice to system change, and explores what real equity for rare disease communities will require. Mentioned in this episode:Hemophilia Federation of AmericaShanthi's LinkedIn Profile If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/podcast

How can patient advocacy leaders ensure that artificial intelligence truly serves the people it is meant to help?As AI rapidly reshapes the healthcare system, patient advocates have both an opportunity and responsibility to influence how these technologies are designed, governed, and implemented to transform patient health.In this episode of Patient Advocacy Voices, host Eric Racine welcomes back Randy Rutta, President and CEO of the National Health Council (NHC), alongside Fabrice Bocquillon, Global Head of Digital Patient Experience at Sanofi, for a timely conversation on AI, innovation, and patient-centered leadership. Together, they explore how AI is being applied across healthcare, from accelerating drug discovery to improving disease diagnosis and enhancing how patients navigate care and access support. They discuss what it will take to ensure patients are not just beneficiaries of AI innovation but also active partners in shaping it.In this episode, you'll gain insights on:Why patient groups must actively shape the future of AI in healthcareWays that AI can help reduce friction across the patient journeyWhat “responsible AI” means including fairness, transparency and accountabilityHow patient advocates can collaborate with tech innovators, policymakers, and other health system players to ensure AI is patient-informed from design to deploymentHow NHC's Patient Experience + Innovation Center (PXI) is creating new pathways for patient groups and technology innovators to work togetherThis is a pivotal leadership moment for the patient advocacy community. This episode is a call for advocacy leaders to engage, ask critical questions, and help set the standards that ensure AI truly benefits patients while remaining ethical, transparent, and grounded in lived experiences.

Jenny Opalinski has spent more than a decade inside hospitals where people lose the ability to speak, breathe, swallow, and sometimes survive. A medical speech language pathologist by training, she worked in ICU, neuro rehab, and long term acute care settings, including a Level 1 trauma center, where she watched clinicians absorb 10 to 15 traumatic events in a single shift and then get told to move the crash cart faster next time.That lived reality pushed her to co found The Wellness Shift, an advocacy and education platform focused on healthcare worker burnout, suicide, and assault. In this conversation, Opalinski walks through the moment that changed everything for her: standing in a hospital hallway listening to a family wail after a failed code, followed by a debrief that addressed logistics and ignored grief entirely.She also explains how that work led to Humanity Rx, her podcast about the human cost of medicine, and Dragon's Breath: Calming Tricks for Big Feelings, a children's book that translates evidence based breathing and regulation strategies into language kids can actually use. The episode covers moral injury, time scarcity, false wellness, respiratory muscle training, and why empathy keeps getting treated as an optional expense instead of clinical infrastructure.RELATED LINKSJenny Opalinski on LinkedInThe Wellness ShiftHumanity RxDragon's Breath: Calming Tricks for Big FeelingsAspire Respiratory ProductsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this Your Health University episode, Jamie sits down with Nurse Practitioner, Brooke Howard, President of Clinical Operations, to talk about Biote, wellness, and bioidentical hormone optimization—and why it has been life-changing for both of them. Brooke shares how a trusted colleague pushed her to look deeper when she was exhausted, gaining weight, and “holding it together by a thread.” Jamie opens up about anxiety, ADD medication, and how feeling hormonally balanced gave him the confidence to step into a new chapter. This conversation is for anyone who feels “off,” has been told their labs are “normal,” and wants to explore a more complete picture of wellness. www.YourHealth.Org

Living with the End in Mind: Dr. Pyle emphasizes the importance of preparing for the inevitable. It’s not about being morbid; it’s about ensuring better days today by planning for tomorrow. In this episode of "Next Steps 4 Seniors: Conversatoins on Aging, host Wendy Jones welcomes Dr. Pamela Pyle, internal medicine physician and author of "Anticipating Heaven," to discuss end-of-life care. They explore the importance of preparation, advanced care planning, and meaningful family conversations about aging and death. Dr. Pamela Pyle shares practical tips for navigating the healthcare system, the value of tools like Five Wishes, and the role of nurses as advocates. The episode emphasizes living with the end in mind to ensure peace and clarity for families and loved ones during life’s final stages. Key Points: Navigating the Healthcare System: Learn the right questions to ask and steps to take before a crisis hits. Did you know the hospital your loved one is taken to might not be the one you expect? Preparation is key! The Role of Nurses: Nurses are invaluable advocates. They often have more time to provide insights and can be a great resource, especially during quieter times. Recording Conversations: Don’t hesitate to record medical conversations. It’s your right, and it helps ensure you don’t miss any critical information. Family Conversations: Dr. Pyle shares her unique approach to discussing end-of-life wishes with family. She even turned it into a birthday celebration! These conversations are crucial and can be a gift to your loved ones. Advanced Care Planning: Only 30% of Americans complete an advanced care plan. Tools like Five Wishes make it easier and more heartfelt. It’s a simple, affordable way to ensure your wishes are known and respected. Every week brings two ways to grow: Tuesdays dive into the physical next steps with real-life guidance for seniors and families, and Fridays uplift the heart with spiritual and emotional next steps—encouragement, faith, and hope for the journey ahead. Today’s episode explores the transformative power of forgiveness and its vital role in experiencing an abundant life as we age. To learn more about Next Steps 4 Seniors, contact us at 248-651-5010 or visit us online at www.nextsteps4seniors.com.Learn more : https://omny.fm/shows/next-steps-4-seniors-with-wendy-jonesSee omnystudio.com/listener for privacy information.

Reflections on the Peter Attia/Epstein scandal; How to lower lp(a)—does diet help? What are bio-active peptides? Could they stave off kidney disease? Scientists just tested the fittest 81-year-old in the world—here's what they found; Media erroneously report that intermittent fasting is not effective for weight loss; Sugary drinks may stoke anxiety in teens; Omega-3s support kids' reading fluency and spelling scores; Surprising study shows saturated fats not harmful to kidneys.

Grandpa Bill Reviews BRUNO-

Sarah Gromko and Matthew Zachary go back to SUNY Binghamton in the early 1990s, when they were barely 19 and living inside rehearsal rooms. She starred in campus musical theater productions. He served as pianist and music director for many of those shows and played rehearsal piano for the THEA101 repertory company. This episode reunites two former theater nerds who grew up and took very different paths through art, illness, and work that still circles the same truth.Gromko trained as a singer and composer, studied film scoring at Berklee College of Music, worked in New York and New Orleans, then moved into healthcare as a speech language pathologist and recognized vocologist. She explains aphasia, apraxia, dysarthria, and dysphagia with clarity earned from the clinic. She recounts helping a 16 year old gunshot survivor in New Orleans speak again using Melodic Intonation Therapy. The conversation covers voice banking for ALS, gender affirming voice care, and the damage caused when medicine confuses speech loss with intelligence loss. The result feels like an epic reunion powered by 1990s nostalgia and sharpened by decades of lived consequence.RELATED LINKSSarah GromkoGramco VoiceMelodic Intonation TherapyFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

I welcome my childhood friend Dr. Mike Meaney back on the show where we discuss how pain changes how a life moves. It sharpens every edge, tests every bond, and forces you to decide what you believe when there are no easy choices left. That's where our conversation begins: a candid account of failed orthopedic surgeries, a system that too often rewards the cut over the cure, and the daily reality of living inside a body that won't stop hurting. We examine how fee-for-service medicine, device royalties, and surgical center ownership can bend decisions, why second and third opinions matter, and what patients can do to avoid becoming a statistic in a volume-driven industry.From there, we turn toward the inner struggle—resentment, justice, and the long road to healing. We talk openly about opioids as a seductive solution to the human problem of physical pain, and the devastation they leave behind. We sit with the hardest question: when harm is done under anesthesia, what does forgiveness mean? Faith enters not as a slogan but as a practice. We return to the simple Catholic teachings we learned as kids—tell the truth, avoid violence, treat others as you wish to be treated, care for the marginal—and measure them against adult complexity. We explore the mystical claims of Christianity with clear eyes, and why daily sobriety can feel like proof enough for belief.Then we build forward. Our guest shares One Small Step, a platform delivering certified peer support on nights and weekends for people on Medicaid—exactly when the rest of the system is closed or the ER is the only option. We walk through how human-in-the-loop AI can safely triage, detect pre-crisis signals, and route people to real peers with lived experience, reducing avoidable ER visits and giving support that actually meets people where they are. It's a practical blueprint for reform: dignified care, data-informed decisions, and a focus on outcomes that matter.If this conversation resonates—about pain, faith, accountability, or access to real help—share it with someone who needs it. And if you appreciate these deep, unfiltered talks, tap follow, leave a quick review, and tell us: where do you draw the line between justice and mercy?To learn more about One Small Step head over to https://onesmallstep.io/Support the showWarmly,Nico Barraza@FeedTheSoulNBwww.nicobarraza.com

A.W.E.S.O.M.E.-#HolisticHealing, #PatientAdvocacy, #DrAnnHester, #BHSales, #MaineDailyDigest, #MedicalEmpowerment, #HealthCostSavings, #KAVECOGS, #InternalMedicine,Unlock the secret to harnessing your body's natural healing power — through vibration, perception, and mindful awareness. Grandpa Bill distills decades of health, wellness, and mind-expanding insights into practical tools you can use today. If you've ever wondered how to activate your innate ability to heal, connect with your subconscious, or simply elevate your mental clarity, this episode is your guide to transformative wellness.We break down actionable insights including the This episode matters because many health issues—chronic pain, mental fog, even stress—stem from misaligned perceptions and blocked energy. Grandpa Bill guides you on how to recalibrate your body's natural frequencies, opening the door to inner peace, clarity, and resilience. Imagine activating your body's innate ability to heal itself, simply by shifting how you perceive and tune into the world.Perfect for health enthusiasts, wellness seekers, and anyone curious about the untapped power within. Whether you're a caregiver, a patient, or someone looking to elevate your life experience, this episode equips you with actionable techniques backed by a 50-year journey in holistic health. Tap in, listen up, and start your transformation today—your body and mind will thank you.Unlock the secret to harnessing your body's natural healing power — through vibration, perception, and mindful awareness. Grandpa Bill distills decades of health, wellness, and mind-expanding insights into practical tools you can use today. If you've ever wondered how to activate your innate ability to heal, connect with your subconscious, or simply elevate your mental clarity, this episode is your guide to transformative wellness.Your journey begins with a deep dive into the fascinating world of vibration and perception. Grandpa Bill shares how body and voice vibrations influence everything from rheumatoid arthritis to mental clarity, revealing surprising techniques that use sound and breath to dissolve joint stiffness and rebalance your energy. You'll discover a powerful acronym, Grandpa Bill guides you on how to recalibrate your body's natural frequencies, opening the door to inner peace, clarity, and resilience. Imagine activating your body's innate ability to heal itself, simply by shifting how you perceive and tune into the world.How can perception and vibration reshape your approach to chronic pain and mental clarity?What simple practices can you integrate today to harness your body's healing power?#VibrationHealing,#HolisticWellness,#MindBodyConnection,#NaturalHealing,#WellnessJourney,AWESOME, rooted in sensory mastery—attune, waft, echo, manifest—that anchors you in practices to amplify your inner resonance and promote holistic healing.1: 

Matt Hampton and Dr Tom Ingegno came into my world the way the best guests always do. They found me first. They pulled me onto their Irreverent Health Podcast, a show that blends medicine, curiosity, and unapologetic nonsense the same way Gen X kids blended Saturday morning cartoons with nuclear-war anxiety. We recorded together, we went off the rails together, and by the end I told them the rule. If you ever come to New York, you sit in my studio. No exceptions.They showed up. They took the hot seat. They told Alexa to shut up. They joked about Postmates. They compared bifocals before I even hit record. From there it turned into a full blown eighties time machine powered by weed policy, AI diagnostics, acupuncture philosophy, art school trauma, cannabis data science, paranormal detours, and the kind of deep cut pop culture references only Gen X survivors can decode.Matt builds AI systems. Tom heals people with needles and a lifetime of East Asian medicine. Together they make healthcare funny without pretending it works. They remind you that curiosity carries weight when the system collapses under its own stupidity.This episode is a reunion of three loudmouths raised on Atari, late night cable, and the hard lesson that you either tell the truth or get flattened by it. Go subscribe to Irreverent Health. These guys earned it.RELATED LINKS• Irreverent Health Podcast• Matt Hampton – Consilium Institute• Envoy Design• Dr. Tom Ingegno – Charm City Integrative Health• The Cupping Book• You Got Sick—Now What?• Matt Hampton on LinkedIn• Dr. Tom Ingegno on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In Part 1 of this conversation, Jamie sits down with nurse practitioner Jaclyn Taylor to pull wellness out of the “buzzword” category and into real life. They talk about why so many people feel stuck—fatigued, anxious, gaining weight, losing motivation—and why the first step isn't a perfect plan…it's being listened to. Jaclyn breaks down what the Your Health Wellness Program offers, how bioidentical hormone replacement therapy works, and why “normal labs” don't always mean you're actually okay. This episode is for anyone who's been powering through, silently struggling, or wondering if feeling better is still possible. www.YourHealth.Org

Tech It to the Limit Episode 4.01 Patient Power: Dr. Archelle Georgiou and Danielle Teal on Patient Advocacy in Healthcare TechIn the Season 4 premiere of Tech It to the Limit, hosts Sarah Harper and Elliott Wilson return with humor, heart, and a timely focus on the most important voice in healthcare: the patient. The episode kicks off with the usual banter, nostalgic tech gifts, and a brand-new game, Trial Ready or Try Again, which puts emerging oncology innovations to the test and separates real breakthroughs from sci-fi hype.The episode features two remarkable guests. Danielle Teal, a Mayo Clinic Joy Program champion and patient advocate, shares her lived experience navigating a breast cancer diagnosis and how technology showed up during moments of shock, vulnerability, and resilience. Dr. Archelle Georgiou brings decades of insight as a physician, former healthcare executive, and nationally recognized patient advocate, offering perspective on where health technology truly empowers patients and where it falls short without personalization, context, and compassion.Together, they explore patient portals, AI, wearables, social platforms, and decision-making tools, emphasizing kindness, listening, and partnership in care. This Season 4 opener sets a powerful tone, highlighting how innovation and empathy must work together to create technology that genuinely supports patients and their real-world journeys.In this episode:[00:00] Welcome to Tech It to the Limit[00:51] Season 4 kickoff[01:20] Introducing our expert guests[02:37] Holiday tech gifts recap[04:38] Analog vs. digital: a fun debate[15:35] Patient advocacy and technology[24:51] A year ago: the start of chemotherapy[25:33] The challenge with technology in healthcare[26:00] Personalized health information: the key to better care[41:44] The importance of kindness in healthcare design[46:31] Call to action: Patients as equal partners[52:08] Wise nugs[59:48] Episode close & HealthTech HaikuResources:Tech It To The Limit PodcastWebsite Apple PodcastDanielle TealLinkedIn -https://www.linkedin.com/in/danielletealDr. Archelle Georgiouhttps://www.archellemd.com/abouthttps://www.linkedin.com/in/archellegeorgiouPodcastSarah HarperLinkedIn -https://www.linkedin.com/in/sarahbethharperElliott WilsonLinkedIn - https://www.linkedin.com/in/matthewelliottwilson

Bill Thach has had 9 lines of treatment, over 1,000 doses of chemo, and more scans than an airport. He runs ultramarathons for fun. He jokes about being his own Porta Potty. He became a father, then got cancer while his daughter was 5 months old. Today she is 8. He hides the worst of it so she can believe he stands strong, even when he knows that hiding has a cost.We talk about the illusion of strength, what it means to look fine when your body is falling apart, and how a random postcard in an MD Anderson waiting room led him to Man Up to Cancer, where he now leads Diversity and AYA Engagement. Fatherhood. Rage. Sex. Denial. Humor. Survival. All that and why the words good morning can act like a lifeline.RELATED LINKSFight Colorectal CancerCURE TodayINCA AllianceMan Up to CancerWeeViewsYouTubeLinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Send us a textIn this episode of Never Been Sicker, Michael Rubino interviews healthcare entrepreneur Vivienne Reign about why modern “healthcare” often functions as sick care and why so many people feel worse than ever despite medical advances.Vivienne breaks down the insurance model, the mindset shift required to pursue real wellness, and the difference between proactive biohacking vs reactive medical intervention. They also dive deep into red light therapy, including what makes a device legitimate (wavelength, dose, distance, power, and FDA clearance), how to avoid low-quality products, and how red light can support circulation, inflammation, pain, and neuropathy outcomes.This conversation also covers pelvic floor dysfunction in men and women, why common advice like kegels misses key involuntary muscles, and how improving pelvic floor function can impact sleep quality, incontinence, and long-term quality of life.If you feel like you pay for insurance but still have to figure out your health on your own, this episode will help you rethink the system and take back control.

Shannon Burkett has lived about six lives. Broadway actor. SNL alum. Nurse. Filmmaker. Advocate. Cancer survivor. And the kind of person who makes you question what you've done with your day. She wrote and produced My Vagina—the stop-motion musical kind, not the cry-for-help kind—and built a global movement after her son was poisoned by lead dust in their New York apartment. Out of that came LEAD: How This Story Ends Is Up to Us, a documentary born from rage, science, and maternal defiance. We talked about everything from The Goonies to Patrick Stewart to the quiet rage of parenting in a country that treats public health like a hobby. This episode is about art, anger, resilience, and what happens when an unstoppable theater nerd turned science geek Jersey girl collides with an immovable healthcare system.RELATED LINKSShannon Burkett Official SiteLEAD: How This Story Ends Is Up to UsEnd Lead PoisoningLinkedIn: Shannon BurkettBroadwayWorld ProfileFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode of Life Beyond The Mic, Shawna and LaLa talk about why they're stepping away from one-size-fits-all, textbook medicine and embracing a more holistic, individualized approach to healthcare, all while preparing for the snowstorm of the century.  They open up about medical gaslighting, being dismissed by doctors, and the importance of doing your own research, bringing case studies to appointments, and getting second (and third) opinions. Both share moments when doctors didn't listen, and how they were right all along.  LaLa discusses the devastating reality of medical negligence and how her colon ruptured after five doctors failed to take her symptoms seriously.Shawna also shares a major update: after 36 years of unanswered questions, she recently met with a genetics doctor who may finally have answers related to her Cerebral Palsy and other long-standing health issues that have gone unexplained for decades.  This episode is a reminder that patient advocacy saves lives, holistic health looks at the whole person, and you are allowed to push for answers, even when the system makes it hard.

We have a special episode of Raise the Line on tap today featuring the debut of host Dr. Parsa Mohri, who will now be leading our NextGen Journeys series that highlights the fresh perspectives of learners and early career healthcare professionals around the world on education, medicine, and the future of care. Parsa was himself a NextGen guest in 2024 as a medical student at Acibadem University in Turkey. He's now a general physician working in the Adult Palliative Care Department at Şişli Etfal Research and Training Hospital in Istanbul.  Luckily for us, he's also continuing in his role as a Regional Lead for the Osmosis Health Leadership Initiative (OHLI). For his first guest, Parsa reached out to a former colleague in the Osmosis family, Negeen Farsio, who worked with him as a member of OHLI's predecessor organization, the Osmosis Medical Education Fellowship. Negeen is now a graduate student in medical anthropology at Brunel University of London, a degree which she hopes will inform her future work as a clinician. “Medical anthropology is a field that looks at healthcare systems and how human culture shapes the way we view different illnesses, diseases, and treatments and helps you to see the full picture of each patient.” You are sure to enjoy this heartfelt conversation on how Negeen's lived experience as a patient and caregiver have shaped her commitment to mental health and patient advocacy, and how she hopes to marry humanity with medicine in a world that yearns to heal. If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/podcast

One of the most precious resources in dementia care are the stories we share. Today, we welcome back two deeply respected members of the Love Conquers Alz family for a conversation rooted in care, credibility, and shared purpose that has led to a major milestone:Marianne Sciucco, registered nurse, author, and  founding member of AlzAuthors, a groundbreaking global, rigorously vetted hub for Alzheimer's and dementia books, blogs, films, and podcasts, is passing the baton to senior care professional, writer Lance A. Slatton, host of the award-winning All Home Care Matters podcast and YouTube channel. , For over a decade, Marianne and the AlzAuthors team have thoughtfully spotlighted the most meaningful and reliable literature available for the Alzheimer's and dementia community. At a time when families are often overwhelmed by information, their careful curation created a trusted guidepost grounded in lived experience and compassion.Lance brings more than two decades of experience in senior care and continues to be a consistent, dependable voice, not only as a podcast host, but through his work as a Senior Case Manager with Enriched Life Home Care Services.What connects Marianne and Lance is presence. Both have remained steady voices in an ever-changing landscape, offering stringently curated, reliable resources to caregivers and families when clarity matters most.Join us as we celebrate a community that refuses to let its most valuable assets—truth, art, and love—fade into the noise. Subscribe, share with a caregiver who needs a lifeline, and tell us what resource you want to see next. Your voice shapes where this library goes from here.Support the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the ROAR 4 Long Term CareWebsite for more information.Follow us on Twitter, FB, IG, & TiK Tok

Michael Kramer was 19 when cancer ambushed his life. He went from surfing Florida beaches to chemo, radiation, and a bone marrow transplant that left him alive but carrying a chronic disease. He had necrosis in his knees and elbows, lost his ability to surf for years, and found himself stuck in hospitals instead of the ocean. Yet he adapted. Michael picked up a guitar, built Lego sets, led support groups, and started sharing his story on Instagram and TikTok.We talk about masculinity, identity, and what happens when the thing that defines you gets stripped away. He opens up about dating in Miami, freezing sperm at a children's hospital, awkward Uber-for-sperm moments with his brother, and how meditation became survival. Michael lost his father to cancer when he was a teen, and that grief shaped how he lives and advocates today. He is funny, grounded, and honest about the realities of survivorship in your twenties. This episode shows what resilience looks like when you refuse to walk it off and choose to speak it out loud instead.RELATED LINKSMichael Kramer on InstagramMichael Kramer on TikTokMichael and Mom Inspire on YouTubeAshlee Cramer's BookUniversity of Miami Sylvester Comprehensive Cancer CenterStupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Don Watenpaugh is a scientist, sleep clinician, data artist, and poet with a PhD in physiology. His extensive career spans academia, NASA, and the U.S. Navy, focusing on human sleep, exercise, and environmental physiology. As a board-certified sleep medicine specialist, he directed a large urban sleep clinic for over 13 years, caring for patients and educating healthcare providers. Dr. Watenpaugh is an adjunct faculty member in physiology, anatomy, and biomedical engineering. He now creates data-driven art and poetry at Studio Videnda. In this episode, he brings his deep expertise to the critical relationship between sleep and concussion recovery.Episode Summary:In this episode of the Concussion Coach Podcast, host Bethany Lewis welcomes sleep expert Dr. Don Watenpaugh, to explore the complex connection between sleep disturbances and concussion recovery. Dr. Watenpaugh explains the physiological reasons why concussions commonly disrupt sleep—from brain inflammation impacting cerebral spinal fluid "brainwashing" during non-REM sleep to the exacerbation of pre-existing conditions like PTSD, depression, and anxiety. The conversation delves into the different types of insomnia (sleep onset and maintenance) and their potential causes, including restless leg syndrome and sleep apnea.Crucially, Dr. Watenpaugh provides actionable, evidence-based strategies to improve sleep and support brain healing. He discusses the evolving role of exercise as medicine, emphasizing safe, non-jarring activities like stationary cycling. He covers practical sleep hygiene tips, such as the importance of spinal alignment during sleep, the potential benefits of slightly elevating the head of the bed, and the disruptive effects of electronics and blue light. The discussion also touches on the careful use of supplements like melatonin, the special considerations for military personnel and student-athletes, and the overarching importance of patient education and self-advocacy. This episode is packed with science-backed insights to help listeners break the vicious cycle of poor sleep and prolonged concussion symptoms.Key Resources & Strategies Mentioned:Exercise as Medicine: Safe, mild-to-moderate exercise (e.g., stationary cycling to avoid head acceleration) can aid concussion recovery and improve sleep. Always consult your doctor.Sleep Position & Environment:Maintain spinal alignment; avoid stomach sleeping to prevent neck torsion.Consider slightly elevating the head of the bed to help reduce intracranial pressure.Remove electronics (TVs, phones) from the bedroom to avoid mental stimulation and blue light, which suppresses natural melatonin.Addressing Underlying Causes:Restless Leg Syndrome (RLS): Evening exercise (ending 2+ hours before bed) can help. Other treatments are available.Sleep Apnea: A common cause of sleep maintenance insomnia. Treatment (e.g., CPAP) is critical for overall health and concussion recovery.Hormonal Factors: Post-menopausal women may see a link between hormone changes and sleep apnea onset.Melatonin & Supplements: Prioritize natural melatonin production by managing light exposure. If using supplements, start with a low dose well before bedtime, monitor for side effects like headaches or grogginess, and consult your doctor.Patient Advocacy & Reliable Research: Dr. Watenpaugh stresses the importance of educating yourself using reliable, peer-reviewed sources like PubMed/MEDLINE, reputable medical institutions (e.g., Johns Hopkins & the Mayo Clinic), and professional organizations (e.g., American Academy of Sleep Medicine).Dr. Don Watenpaugh's website:Website/Data Art Studio: https://www.studiovidenda.comBethany Lewis & The Concussion Coach:Free Guide: "5 Best Ways to Support Your Loved One Dealing with a Concussion" - Download at www.theconcussioncoach.comConcussion Coaching Program: For personalized mentorship in recovery. Sign up for a free consultation HERE

In this episode of the Beacon Way Podcast, Adrienne Wilkerson discusses the critical role of internal marketing in healthcare, emphasizing how great patient experiences can lead to referrals and advocacy. She explores strategies for transforming patients into advocates, the importance of gathering feedback, and building trust within the community. The conversation also highlights the need for consistency in patient experiences and branding across multiple locations, ultimately encouraging healthcare providers to prioritize internal marketing to foster lasting relationships with patients. Takeaways Internal marketing is crucial for patient experiences. Great patient experiences lead to referrals and advocacy. Marketing should continue even after patients become clients. The patient experience is vital for building a strong reputation. Asking for feedback should be done thoughtfully and respectfully. Trust is essential in mental health and behavioral health. Consistency in patient experience is key to advocacy. Billing experiences can significantly impact patient satisfaction. Cohesive branding helps in building community trust. Internal marketing fosters relationships and encourages patient advocacy. 

Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AIPatient Power & Joy: Affordable Advocacy, Safe Spaces & Why Community Beats AI Art | FayeYouTube Description (Long-Form SEO & Social Media Ready)Are you tired of navigating the broken healthcare system alone?

Daniel Garza had momentum. Acting roles, directing gigs, national tours lined up. Then anal cancer stopped everything. Radiation wrecked his body, stripped him of control, and left him in diapers, staring down despair. His partner, Christian Ramirez, carried him through the darkest nights, changed his wounds, fought hospitals, and paid the price with his own health. Christian still lives with permanent damage from caregiving, but he stayed anyway.Together they talk with me about masculinity, sex, shame, friendship, and survival. They describe the friendships that vanished, the laughter that kept them alive, and the brutal reality of caregiving no one prepares you for. We get into survivor guilt, PTSD, and why even rocks need rocks. Daniel is now an actor, director, and comedian living with HIV. Christian continues to tell the unfiltered truth about what it takes to be a caregiver and stay whole. This episode gives voice to both sides of the cancer experience, the survivor and the one who stands guard. RELATED LINKSDaniel Garza IMDbDaniel Garza on InstagramDaniel Garza on FacebookChristian Ramirez on LinkedInLilmesican Productions Inc (Daniel & Christian)Stupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In our 2025 year-in-review episode, On Rare reflects on a year filled with meaningful conversations and powerful storytelling. Joined by David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, we revisit moments that moved us, challenged us, and reaffirmed the importance of listening to the voices of rare disease communities. This year also marked an exciting milestone with the launch of On Rare: Innovators, a new series spotlighting leaders, including patients, caregivers, scientists, and advocates, who are taking action to transform the lives of those impacted by rare disease. We are deeply grateful to all of our guests and listeners for being part of the 2025 journey. Subscribe to continue learning with us in 2026.

Trevor Maxwell lived the archetype of masculinity in rural Maine. Big, strong, splitting wood, raising kids, and carrying the load. Then cancer ripped that script apart. In 2018 he was bedridden, emasculated, ashamed, and convinced his family would be better off without him. His wife refused to let him disappear. That moment forced Trevor to face his depression, get help, and rebuild himself. Out of that came Man Up To Cancer, now the largest community for men with cancer, a place where men stop pretending they are bulletproof and start being honest with each other.Eric Charsky joins the conversation. A veteran with five cancers, forty-nine surgeries, and the scars to prove it, Eric lays out what happens when the military's invincible mindset collides with mortality. Together, we talk masculinity, vulnerability, sex, shame, and survival. This episode is blunt, raw, and overdue.RELATED LINKSMan Up To CancerTrevor Maxwell on LinkedInDempsey CenterEric Charsky on LinkedInStupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Understanding and Treating Complex Illnesses with Dr. Neil Nathan, author of “Toxic 2nd Edition: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness.” Dr. Nathan shares his expertise on the multifaceted nature of chronic illnesses, which often defy simple categorization and may be misdiagnosed as psychiatric issues. The discussion covers the impact of environmental toxins, electromagnetic fields, and infections like Lyme disease and long COVID. Dr. Nathan also highlights the importance of understanding inflammation's complex pathways and offers suggestions for both elimination of root causes and restoration of immune system functionality. The episode provides insights into new diagnostic tools and treatment methodologies for persistent and intrusive health issues.

Persuasion isn't just for politicians and advertisers—it's a core nursing skill.In this episode of the Emory University series, host Melissa Mills sits down with Dr. Roxana Chicas, Dr. Sharron Close, and recent Emory School of Nursing graduate Sofi Igyan to explore how nurses can use the power of words to influence change from the bedside to the boardroom.Together, they unpack what persuasion really means in health care—how it differs from simple education, and why it's both an art and a science. You'll hear how strategies like knowing your audience, framing messages, leveraging the “power of three,” and using data and stories together can move patients, policymakers, and the public to action.The guests share real-world examples—from farmworker advocacy and climate health, to social media “nurse hacks,” to early-career experiences with therapeutic communication and mental health. They also dig into storytelling tools like the AIDS Memorial Quilt and the legacy of Cesar Chavez to show how narrative can humanize complex issues, build empathy, and shift policy.Whether you're a new graduate nurse, bedside nurse, educator, or emerging nurse leader, this episode will help you:Claim your voice as a communicator and advocateUse persuasion ethically and effectivelyTurn everyday conversations into opportunities for impactListen in and rediscover your words as one of the most powerful tools you have as a nurse.>>Unlocking the Power of Persuasion in Your Nursing CareerJump Ahead to Listen: [00:01:39] Persuasion in nursing communication. [00:05:03] Core components of effective persuasion. [00:09:14] Applying persuasive strategies in community settings. [00:14:26] How nurses can influence public perception through media. [00:18:09] The power of storytelling. [00:20:40] Stories that drive meaningful change in healthcare. [00:25:28] Creativity as a communication tool for nurses. [00:30:05] Using multimedia platforms to expand reach. [00:34:02] Elevating patient voices in care and advocacy. [00:37:54] Fostering communication confidence among nurses. [00:44:42] Creating space for vulnerability in nursing culture. [00:48:13] Building confidence in clinical and professional expertise. [00:50:13] Developing therapeutic communication skills. [00:54:46] Embracing lifelong learning in nursing practice. For more information, full transcript and videos visit Nurse.org/podcastJoin our newsletter at nurse.org/joinInstagram: @nurse_orgTikTok: @nurse.orgFacebook: @nurse.orgYouTube: Nurse.org

The most anticipated annual tradition on Out of Patients returns with the 2025 Holiday Podcast Spectacular starring Matthew's twins Koby and Hannah. Now 15 and a half and deep into sophomore year, the twins deliver another unfiltered year end recap that longtime listeners wait for every December. What began as a novelty in 2018 has become a time capsule of adolescence, parenting, and how fast childhood burns off.This year's recap covers real moments from 2025 A subway ride home with a bloodied face after running full speed into that tree that grows in Brooklyn. Broadway obsessions fueled by James Madison High School's Roundabout Youth Ensemble access, including Chess, & Juliet, Good Night and Good Luck, and Pirates of Penzance holding court on Broadway. A Disneylanmd trip where the Millennium Falcon triggered a full system reboot. A New York Auto Show pilgrimage capped by a Bugatti sighting. All the things.The twins talk school pressure, AP classes, learner permit anxiety, pop culture fixation, musical theater devotion, and the strange clarity that comes with turning 15. The humor stays sharp, the details stay specific, and the passage of time stays undefeated. This episode lands where the show works best: family, honesty, and letting young people speak for themselves.FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.