The International Myeloma Foundation (IMF) is the world’s oldest and largest myeloma organization, reaching more than 525,000 members in 140 countries. Founded in 1990, the IMF is a non-profit organization dedicated to improving the quality of life of myeloma patients and their families. The IMF funds research, provides education, lends support, and promotes advocacy initiatives that allow collective voices to be heard. The IMF’s dedicated and diverse staff provides immediate help. Our knowledgeable and compassionate professionals can be reached via email at TheIMF@myeloma.org or our toll-free InfoLine 800-452-CURE (2873).
International Myeloma Foundation
A day in the life of Donna Kidder by International Myeloma Foundation
A Day in the Life of the Weintraub Family by International Myeloma Foundation
In this episode of "A Day in the Life," Jason Hendler and Chad Billmyer, a married patient and care partner duo, share their journey of Jason's multiple myeloma diagnosis. Jason encourages patients to find a myeloma specialist they trust, become informed, advocate for oneself, and remain vigilant about their health due to increased vulnerability.
In this episode of "A Day in the Life", Adrienne and Chad Moore, a patient and care partner duo, share their journey of Adrienne's multiple myeloma diagnosis and treatment at 42 amid the COVID-19 pandemic. Adrienne emphasizes the importance of self-advocacy and seeking support from the myeloma community while Chad highlights the significance of being proactive and informed in the caregiving journey.
In this episode of A Day in the Life podcast, Rebecca Zeiter, an oncology social worker, discusses the role of social workers in supporting cancer patients and their caregivers/care partners. She highlights the importance of eliminating barriers to care, providing emotional support, and helping patients navigate their treatment journey. Facts Oncology social workers are part of the healthcare team and play a crucial role in supporting cancer patients and their care partners. They help eliminate barriers to care, such as transportation issues and emotional barriers, and provide general support and a safe space for patients to express their feelings. Oncology social workers assist patients in finding transportation options to get to appointments, including public transportation, taxis, or arranging for family support. They also explore funding options for patients, such as grants for gas cards or assistance with car maintenance. Social workers coordinate appointment schedules with care partners and facilitate communication between the healthcare team and patients. Caregivers or care partners may face stressors related to the diagnosis, treatment uncertainties, and coordinating care. Shared decision making involves including the patient and their family in the decision-making process, considering their values, and respecting their dignity. Care partners play a significant role in supporting patients, providing transportation, emotional support, and being part of the decision-making process. Different care dynamic relationships, such as spouse, child, or sibling, can present unique challenges. It is important to have open communication, respect each other's perspectives, and advocate for the patient's wishes.
In this episode of the 'A Day in the Life' podcast, Jill Shook shares her journey as a myeloma care partner, navigating the challenges of her husband Jerry's disease and finding strength in her role. Gain insights into adapting to life's unexpected twists, maintaining a strong support system, and embracing the hand you're dealt. Explore the triumphs, setbacks, and unwavering determination that define their fight against myeloma. Listen now for uplifting stories, expert advice, and a reminder that together, we can overcome any obstacle.
In this episode of the “A Day in the Life” podcast, myeloma patient and support group leader Carl Burgman discusses his myeloma journey with the IMF.
In this episode of the A Day in the Life Podcast, 7-year multiple myeloma survivor and support group leader Valarie Traynham discusses her myeloma journey with the IMF.
You're listening to A Day in the Life Podcast, brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience, for those in the Myeloma Community and beyond. Today we are talking to Andy Sninsky, who was diagnosed with multiple myeloma in 2008, at the age of 59. Some of our listeners may be familiar with Andy, who is the self-described that crazy guy on a bike. Andy claims this moniker because despite a myeloma diagnosis, undergoing chemotherapy, radiation, and an autologous stem cell transplant, Andy has managed to complete multiple bicycle tours of Europe, and across the US and Canada.
You're listening to a Day in the Life podcast brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience for those in the myeloma community and beyond. Today we're talking to Nick Lenoir, who was diagnosed with multiple myeloma in 2016 at the young age of 31.
You're listening to A Day in the Life Podcast, brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience for those in the myeloma community and beyond. Today we're talking to myeloma patient Terrence Green and his spouse and care partner Toni Green.
You're listening to A Day in The Life podcast brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience for those in the myeloma community and beyond. Today, we are talking to Thomas Goode, who was diagnosed with myeloma in 2005, at the young age of 34. Thomas shares his in-depth story of diagnosis, treatments, and multiple relapses in the audio podcast, Myeloma Voices, also brought to you by the International Myeloma Foundation.
Today we're talking to Marisel Brignoni from San Juan, Puerto Rico. Marisel is a FEMA disaster relief specialist who's working on the disaster relief for Hurricane Maria in Puerto Rico, from San Juan. She's a mother of two and she's also a myeloma patient and a strong supporter and advocate.
In this podcast, IMF Chairman of the Board Dr. Brian G.M. Durie interviews myeloma patient Leo Dierckman, who is now MRD negative. Leo was brave enough to enter into the ASCENT clinical trial, an aggressive treatment trial for the management of high-risk smoldering myeloma sponsored by the IMF Black Swan Research Initiative.® Leo has done incredibly well. After completing two full years of treatment (induction and consolidation, followed by maintenance), he has now been off all therapy for over a year and is — three years since the start of treatment — MRD negative. His story of hope and optimism for a potential myeloma cure is not to be missed!
This "A Day in the Life" podcast provides messages of hope and resilience to those in the myeloma community and beyond. In this episode, we talk to Baltimore-area businesswoman Bonnie Downing. Bonnie shares how she originally faced a nine-month prognosis when she was diagnosed with multiple myeloma, and how she continues to thrive 20 years after that diagnosis.
Today, we are talking to Jim Bond who many lovingly called the real James Bond and like the fictional spy who's faced many trials in his life and come out alive and on the other side, Jim bond continues to survive and thrive. Diagnosed with myeloma in 1992, Jim is a retired CPA, a husband who is loving wife Kathleen for more than 50 years, a father of two sons, and a grandparent.
The “A Day in the Life” podcast from the International Myeloma Foundation features messages of hope and resilience for myeloma patients, caregivers, and their loved ones. Today we're talking to Jameca Barret, a myeloma patient who helped start the South Side Myeloma Support Group in Atlanta and has been an advocate for herself and for others in the myeloma community for many years.
In this episode of “A Day in the Life” podcast, we're talking to Peter Smith, a seven-year myeloma survivor, accomplished educator, author, and now, prolific painter.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
Diagnosed in 2015, Kevin Veenstra shares how he has coped with living with multiple myeloma.
The “A Day in the Life” podcast from the International Myeloma Foundation features messages of hope and resilience for myeloma patients, caregivers, and their loved ones. Today we're talking to Robert Pugh. Robert is a resident of Charlotte, North Carolina. He is a retired businessman, pastor, and a father of four grown children. He is also a myeloma patient who helps other patients self-advocate for their care. We invited him on today to learn how he remains positive when facing challenges.
IMF Chairman of the Board Dr. Brian G.M. Durie interviews Alexis Stamatis, an internationally renowned novelist, poet, and playwright. Diagnosed with myeloma in 2012, Stamatis applies his writer's perspective to coping with the disease. He says, “I think that half a century from now, people will know things that we cannot even imagine now . . .They will answer questions that we cannot even pose now. That is being a writer, you are somehow thinking ahead. I'm always trying to be ahead of this. That's why I fantasize myself 5 years from now, 10 years from now . . . Let's work day-by-day, and everything's going to be well. We need support. We need to talk to each other and be together.” Listen now to hear the full interview.
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Listen to Multiple Myeloma Patient Deidra Jones Share His Story
Diagnosis Continued by International Myeloma Foundation
Treatment Segment 1 by International Myeloma Foundation
Treatment Segment 2 by International Myeloma Foundation
Treatment Segment 3 by International Myeloma Foundation
Treatment Segment 4 by International Myeloma Foundation
Treatment Segment 5 by International Myeloma Foundation
When I First Found Out by International Myeloma Foundation
Coping With The Pandemic by International Myeloma Foundation
What The IMF Means To Me by International Myeloma Foundation
01 Sheri Baker - Diagnosis by International Myeloma Foundation
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